#1602 Lesbian Energy

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After divorcing a woman pre-pandemic, Hannah and her now-husband went from coworkers to roommates to soulmates—raising daughter Jude with T1D, balancing autoimmune histories, anxiety, and love.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.

Hannah 0:14
Hi, I'm Hannah, and I am the mom of a four year old with type one diabetes. She was diagnosed a couple months before her third birthday.

Scott Benner 0:26
I am here to tell you about juice cruise, 2026 we will be departing from Miami on June 21 2026 for a seven night trip, going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to St Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes, expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice. Cruise. At that link, you'll also find photographs from the first cruise. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Today's episode is sponsored by the tandem mobi system with control iq plus technology, if you are looking for the only system with auto Bolus, multiple wear options and full control from your personal iPhone. You're looking for tandems, newest pump and algorithm. Use my link to support the podcast tandem diabetes.com/juicebox check it out. This episode of The Juicebox podcast is sponsored by the Dexcom g7 the same CGM that my daughter wears. Check it out now at dexcom.com/juicebox,

Hannah 2:04
Hi, I'm Hannah, and I am the mom of a four year old with type one diabetes. She was diagnosed a couple months before her third birthday. Do you have any other kids? I do. My son. He just turned two last month. Oh,

Scott Benner 2:18
I thought you're gonna say older for some reason. No,

Hannah 2:21
nope. It was a nice, nice shock to be with my daughter in the hospital with my 10 month old. Like, I'm sorry, what now diabetes?

Scott Benner 2:31
You were holding a 10 month old while the doctor was talking to you about diabetes for your three year old. You're like, oh, this is good. Yep. We've made a lot of good decisions. Things are really coming

Hannah 2:40
together. Yeah. I mean, like, I kind of knew that that was what was coming. But I was also like, this isn't real. How did you know I have a medical background? And I also had noticed some concerning things, like, over, like, the year before that, but I was, I would just chalk it up to like, Oh, she's just not feeling well right now. Or, I don't know, maybe just something wonky with toddlers. This is my first kid, so I what do I

Scott Benner 3:06
know this probably happens? What kind of things do you recall? So she

Hannah 3:10
would just, like, randomly throw up, like, just literally out of nowhere. She'd be like, jumping around and then just puke. Or, like, one time my husband was taking her to the aquarium, and she was riding in the back seat, and then all of a sudden, just, like, vomited, like, so so much. And he took her home thinking she was sick, but she didn't have a fever or anything, and she was just like, I feel fine, and I know now, like when she threw up those times, like she had recently eaten a ton of fruit, so she probably just had like crazy high blood sugar, and her body was just trying to get it out. Oh,

Scott Benner 3:43
it's interesting. Oh, she waited a little longer. She could have chummed at the aquarium. They would have loved that.

Hannah 3:48
I know. Yeah, she would wake up from naps, like, inconsolable, until she had like, an ice pop or some fruit or something. And I think she was having, like, a really bad low, but we didn't know then, didn't even know to check Hannah. That's heartbreaking. Yeah, it was not easy, not easy for her, that's for sure.

Scott Benner 4:09
No, of course not. But he was just talking about it. Is kind of soul crushing a little bit. Am I going to be all emotional today? Okay, let's find out, I guess, because we'll see you're talking about it. I'm like, Oh no, this is horrible. I don't want to cry today. I have to record twice today. I can't be crying. Oh my gosh. So other autoimmune stuff in your family, or no,

Hannah 4:31
yes, like rampant on both sides of our family. So I have vitiligo. One of my sisters has Hashimotos. My mom has thyroid issues. Another sister has pots. My father in law has myasthenia gravis, and my sister in law has MS, Myos, my what? Myasthenia gravis? Okay, what is? It's a neurodegenerative autoimmune disease basically causes like muscle weakness.

Scott Benner 5:00
Okay, you didn't just want to see if I could spell it. I don't think I came anywhere close to it, but I'm gonna find out right now. It'll probably pop up. The user is asking about this, but there seems like there might be a typo. You think. So see when it comes up, what? How does that affect him?

Hannah 5:16
So he has to take prednisone, like, constantly. He gets, like, really weak. Can't, like, lift anything, so Jeez, he first realized it because, like, his eyelids started drooping. And so we went in to have that checked out. Like, Oh, am I having a stroke or something? And then found out that it was that,

Scott Benner 5:35
oh my gosh. And you and your then boyfriend were just awesomely attracted to each other. Like, I think we could make a baby to tell you. Type one

Hannah 5:43
if we try. Yeah, yep, that's Yeah, exactly, exactly how it

Scott Benner 5:48
happened. Where's your vitiligo at? Is it like visible, or is it like widespread or in smaller places?

Hannah 5:54
Yeah. So I started getting spots of it when I was maybe five or six, and it's definitely, like, slowed down as I have aged, but it's all over, and it mine is the type that's mirrored. So if it's on one side of my body, it's in the same place on the other side. So lots of like, like, elbows, hips, I

Scott Benner 6:15
didn't realize that did that. So some people have mirrored vitiligo, and some people don't, yes, yeah. Can I say something ridiculous? That's sure, at least it's symmetrical, right? That's probably helpful. No,

Hannah 6:27
I mean, it doesn't really, doesn't really have any impact for me. Impact either way. I've just, you know, I've had it forever, 30 some years, so not a thing you think about. Yeah, I don't think about it at all, and when people notice it, I'm, like, surprised that they even notice,

Scott Benner 6:44
because you've you've forgotten about it, yeah, pretty much. Is it on your face at all?

Hannah 6:48
It is, yeah, but very minimal,

Scott Benner 6:50
okay. And when you were choosing this boy, did you know like, I have an autoimmune issue, so do all my sisters and my mom, and now he has somebody who says we shouldn't do that, is that even I know this isn't a thing you thought about, but I just want not at all, right, like, it's not a thing you would have ever considered. Yeah, no,

Hannah 7:09
honestly, like, when we got together, like I I knew his sister had, MS, his dad had not been diagnosed with Myasthenia, gratis yet, but it was just, like, not something I considered at all. Yeah, I didn't really fully understand, like, the genetic components of autoimmune diseases at that point. But I mean, like, when we were in the ER, and the doctor was telling us, you know, hey, she has type one diabetes, he had asked the same question, like, do you have other things in your family? He even said, I see you have vitiligo. What else is going on? Like, medical history wise? And then he was like, Yeah, unfortunately, like, this tracks, and she pulled the type one stick. So

Scott Benner 7:52
exactly I listen. Would it over rule love when I was in my 20s, I know it wouldn't have like, if you said, you said, You know what I mean? Like, if you're busy running around, having a good time, and you're like, I love this person, and you know, you're like, we're gonna get married and have children, it's gonna be wonderful. And somebody said you have a higher chance of having here's a list of things you'd be like, it's okay. Love will conquer all 2030, years later, I don't know. Like, yeah, maybe I would have just been like, all right, Kelly, we've had a good time. I think the mix of us isn't going to go well, do you know what I mean?

Hannah 8:29
Yeah, what's super interesting is that I've, like, I've always known that I wanted kids, but my husband didn't really want them previously, and then, like, realized later on, maybe I do want kids.

Scott Benner 8:43
You told him he wanted kids. He understood that he wanted

Hannah 8:48
kids. Um, kind of he it was more like, I knew that I didn't want kids with the people I was with before.

Scott Benner 8:55
Oh, okay, well, that's Yeah, yeah. Like being serious, that makes a lot of sense. Like, why would you have that feeling if the people you're with were like, it was uncomfortable somehow, yeah, did you explain it to him in your underwear, or did you talk to him about it at dinner? How did you trick him exactly?

Hannah 9:12
We met, we worked together, and we had both recently been divorced, and it was like, right before covid times.

Scott Benner 9:20
Honestly, this is all very fresh. This is very new relationship,

Hannah 9:23
kind of, yeah, but we had been friends for a bit because we worked together, but we had both recently been divorced, and he needed a new place to live, and I had an extra room, so I was like, Hey, you can like be we can be roommates. And, you know, because we were good friends, and then the world shut down, and we realized that it was a different relationship than we initially thought.

Scott Benner 9:43
You didn't have that feeling like you weren't honestly, when you told him to move in, you weren't like, this could work into something. You weren't thinking that. No, not at all. He didn't think that. No, but what about him? He's a boy. He thought he was going to try to have sex with

Hannah 9:56
you at some point. Well, no, actually,

Scott Benner 9:59
so. What kind of a self respecting boy wouldn't have that thought? No, go

Hannah 10:02
ahead. I guess maybe I don't know, but I'm queer, and I had been divorced from a woman, so I don't think it even crossed his mind.

Scott Benner 10:11
This is a completely safe place for me. She is gonna fight me off with a stick I got you. Well, then what happened here is he just so masculine and overcame everything. No, he has like,

Hannah 10:21
very lesbian energy. I tell everybody that he's a very like gentle soul, just like a really kind person. Oh, that's

Scott Benner 10:32
lovely. Yeah, it's nice. Does he brag to people that he turned you?

Hannah 10:37
Oh, no, not at all. No, not really. He makes jokes about it to me sometimes, but not, not anybody else. It's

Scott Benner 10:46
a real it's a hell of a flex, though, don't you think?

Hannah 10:49
I mean, I guess I don't know why

Scott Benner 10:52
you're not thinking about it the way I'm thinking about I know he's telling all of his friends. He's like, here's what happened. She saw my penis, and she was like, I guess I'm not gay anymore.

Hannah 11:02
Yeah. I mean, maybe

Scott Benner 11:05
was that, yeah, for the penis.

Hannah 11:09
I don't really, I don't, I don't know. So, all right, we got to get past

Scott Benner 11:13
this. But I want to understand before, like, did you like, I don't understand all the words. So did you consider yourself bi while you were with the girl you were married

Hannah 11:23
to. Yeah, okay, yeah, I prefer the word queer. But I mean, okay, Pan, whatever it all, it's all the

Scott Benner 11:29
same. Can you tell me why you prefer that word over the other when

Hannah 11:33
I hear the word like bisexual, I think like man or woman, and queer is more like all encompassing of all genders, and I, like me personally, I'm attracted to personalities.

Scott Benner 11:45
Okay, all right, yeah, it really doesn't matter to you what the gender is, right?

Hannah 11:49
Yeah, or the gender identity doesn't got you. Does not bother me. Whatever it is. I think it's

Scott Benner 11:55
interesting when you know they're words that I would imagine, that most people would hear and go, do they not all mean the same thing, right? For you, no. So, like, let's understand what they mean. Okay, so this boy somehow tricks you and then ruins your life by making you pregnant twice. Tell me a little bit about like, even though there's illness in your family, right? Like, people are taking medications, there's still pills, right? Like, you know, injecting things and so on and so forth. Like, what was the shift like, especially coming out of like, it all, it just occurs to me that, like, you get together covid, a lot of big shifts in your life, right? You end up married. You're like, Yeah, I'm gonna have a baby. He didn't think he was gonna have one. You thought you are, here's the baby. This all starts happening inside of a couple of years, like, what's the shift like for you? Like, psychologically, I guess.

Hannah 12:44
I mean, it was definitely tough on us, tougher on my husband. I think because I grew up knowing someone who had type one, while I didn't, obviously didn't understand, like, all of the intricacies of it, I at least knew, like, okay, she's going to be okay. Like, this guy is perfectly fine, healthy now has his own kid, like, he has a very successful job, like, she's gonna be okay. And because I had the medical background too, I'm like, I can figure this out. Like, we can figure out how to dose her correctly, like, we'll get it together. But my husband really doesn't have much experience with medical stuff, so it was definitely more of a shock to

Scott Benner 13:33
him. He was shocked more so you described him as having lesbian energy. So is he very emotional person. You can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast dexcom.com/juicebox head over there. Now this episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pump and algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglyce. Semia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my link, tandem diabetes.com/juicebox, this is going to help you to get started with tandem, smallest pump yet that's powered by its best algorithm ever control iq plus technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead, and it adjusts insulin accordingly. You can wear the tandem Moby in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing or slip it into your pocket head. Now to my link, tandem diabetes.com/juicebox, to check out your benefits and get started today. Yeah, yeah. Do you think it hit him on that level? Or do you think definitely, yeah, and the nuts and bolts of, like, how do we manage this was off putting too, okay, yeah.

Hannah 15:56
I mean, honestly, he's like, he's very like, private when it comes to, like, being outwardly emotional, like, it really only happens, like, in the confines of our home, but like, for me, like, we go to a breakthrough, T 1d, walk, and I'm, like, crying when we get in the parking lot. Because I'm just like all these people, we all understand, and

Scott Benner 16:18
he's not going to cry in the parking lot. No later, no,

Hannah 16:22
get home and just be like, I'm so sad for her, but yeah, so

Scott Benner 16:26
does the care fall to you? Mainly, then after the diagnosis? No,

Hannah 16:30
actually, my husband is a stay at home dad, much like you were. Oh yeah. So he had to get with it, like, right away. And honestly, like he was, he was amazing with it. Like, from the beginning, like, kept it together with her. And like, was able to get her to calm down enough to, you know, get her shot before she ate. And it was tough for him, but he, he held it together. Like, so Well, yeah, I like the data part. So, like, I'm on tandem source, a lot was on clarity before we were on the pump, just to, like, figure stuff out. And I'm, like, constantly tinkering with settings and everything. But like, he is the one who handles like, 90% of the care, like he does overnights, if there's lows, he obviously is all day managing it. So,

Scott Benner 17:18
yeah, okay, hey, do I have lesbian energy?

Hannah 17:21
Is that why you like me? Maybe a little

Scott Benner 17:23
bit. I mean, I just figured like I was also a stay at home dad. For a long time, there was an awesome I know I've said this before, but there was an awesome thread on Yahoo arguing if I was gay or not after I wrote my book. It was fantastic.

Hannah 17:38
Well, I thought my husband was gay when I first met him. So, you know, there's some similarities. I write

Scott Benner 17:42
this book about being a stay at home dad, right? I get some media around it, which is not easy to accomplish, and I end up on Katie Couric show, and then they repurposed the show as a post, and it got on Yahoo, and it made it through the front page of Yahoo, back when that really meant something. And like, the book boomed from that, yeah. So we couldn't figure out why my like book that was selling fine was all of a sudden selling so well. And then so we started Googling and trying to figure it out. And then one day, we found this Yahoo, like, like post, and my wife sitting on the sofa, and she goes, Hey, there's a lot of comments on this post. And she she dug into it. She goes, Oh, I see what's happening here. And I said, what's going on? She goes, half of these people think you're like, emotional and then connected and a good dad, and the other half definitely think you're closeted and that I should know that I'm married to a gay guy. And so while they're arguing, some of the people are going and buying the book. So I was like, awesome. Yeah, it was great. It's the first time I learned about that. Like, I didn't really that's not a thing I understood until I saw it happen there, and then people will be like, Oh, are you, like, sad that, like, people are talking about you, like this. I was like, No, I hope they keep doing it. I was like, I don't hear them, and I do want the book to sell. So anyway, I just wanted to try to figure out what lesbian energy means. What is it? But is it? But we'll figure it out as we go. Yeah. So is the kid, the kid, sorry, your daughter, right? Yeah, yeah, the kid, that kid you made that's not, that's fine. I didn't. That's not how I met it. But, uh, pumping CGM like, how do you manage it today? Yeah,

Hannah 19:22
yeah. So back in August, it's June now, right? Yeah, that is when she started on a pump. So it was MDI before that, but she's been on the g7 since about a week after diagnosis, and she's on the Mobi. Oh, okay. How do you like that. Oh, I love it. Her last day 1c, was just on Monday, 6.2 Hey, congratulations. That's awesome. Thank you. Thank you. I was very excited.

Scott Benner 19:49
Speaking of daughters, mine's texting me. I am

Hannah 19:52
recording what's up.

Scott Benner 19:56
People tell me they miss when Arden used to like text during from. School about her Bolus, I don't know how to tell you. She doesn't text me about her boluses anymore. Yeah, I'm sure. Okay, so you like the Moby is the first pump she's ever had?

Hannah 20:10
Yes? Yeah, we were debating between the Moby and the Omnipod five because at that time, it was not approved for her age. But I, after I did, like, a ton of research, I was like, You know what, I really want to try this. And we, luckily have an absolutely wonderful, excellent endocrinologist. And she was like, let's go. Do you want to be experimental? Like, I will fight for you. Let's get it and let's try it. She had, didn't have anybody else that was on that pump, but she was like, we'll figure it out. And the diabetes educator that we have, she is also type one herself, and she had been on an Omnipod, but she was like, You know what, I'm gonna test out the Moby before you come in, just so I can, like, have something to, yeah, contribute in terms of, like, self management. And so she tried it out for like, three weeks before we went in for our appointment to learn how to use the pump and put up, you know, all the settings and everything. And it was just great, good. It was a great experience. Yeah, listen

Scott Benner 21:10
for the people listening, no matter what side of this you fall on, it's omnipod.com/juicebox or tandem diabetes.com/juicebox. Just, I don't care which one you get, just use my link. Yeah, that's the world we live in now, kids, you got to click on those links. Or Scott, he's not making this podcast awesome. So I'm glad you found something you like so quickly. That's it's fantastic. Did you do the software update recently? Yep. What did that change? If anything? So

Hannah 21:35
it has really helped with trickier foods, like like pizza or, like, she loves ramen, which is just the death of me. But like, the other day, we were able to do a much longer, extended Bolus. We could do one for five hours to get on top of something, get on top of something. And she, she had had, like, a little mini personal pizza, and she didn't get above 124

Scott Benner 22:01
Well, that's awesome. Isn't

Hannah 22:03
that good? Amazing?

Scott Benner 22:03
I think all the aid systems should maybe rethink the fact that there's a need for extended boluses, or, you know, that kind of stuff, split boluses, whatever you want to call them. Those are valuable tools that we for some reason. Some people were just like, oh, I guess we don't need this anymore because it's automated. I'm like, Ah, automated. I'm like, I don't think you're like, you're thinking this through, but yeah, I assume they'll all get to that position again. Yeah, yeah. Awesome. Okay, so how does she handle having diabetes? She's so little,

Hannah 22:33
definitely in the first few months there was some resistance, but honestly, she's been a real trooper through the whole thing. Very occasionally we'll get times where, like she doesn't want to wait for a snack or something, and so she's just like, why can't I be normal? I don't want diabetes. And then two seconds later, she's like, I love having diabetes. So it's, it's very interesting. But I mean, she she handles site changes really well. Her Dexcom changes she handles well. The worst part, honestly, is taking stuff off of her. She hates having things removed, yeah, but she she does great. She the first thing she tells everybody is like, Hi, my name is Jude, and I have type one diabetes. And she'll then explain what happened to her pancreas and how she needs insulin because her body doesn't make it. No kidding, yes, it's really great. Actually, do

Scott Benner 23:26
people respond and go, Hey Jude? Because that's what I would do. I'd be like, Yes, I do, yeah, of course. Right? Everyone says, Hey, Jude. Door, no. Oh yeah. Did you name her after the Beatles song?

Hannah 23:36
Yes, yeah. Our son is named after a Beatles song as well. His name's let it be No, his name is Maxwell. Oh, that's awesome.

Scott Benner 23:47
How old are you? I'm 36 who seeded the Beatles into you my

Hannah 23:52
aunt and my mom. No kidding. That's

Scott Benner 23:56
awesome. I forced the Beatles on my kids at an appropriate time so that they would appreciate it. Yeah, I think I've talked my kids into believing but I've told them before. I'm, like, really think about it. Like, right now today, a Beatles song comes on the radio. Everybody can sing it, right? Billy Joel almost falls under this like, like, yeah, totally right, this space too. And I said, like, pick up popular song from this year. And I think the first time we started talking about it like this, like, Meek Mill was huge One summer, I said, Cole, if 50 years from now you are singing a meek mill song, dig me up and tell me, because I want to know. I was like, because I don't think that's going to happen, yeah. And I was like, There's something like, I don't know what it is, if it's like when it happened, or how different it was, or how widespread it was, or it was because nobody had access to anything else at the time, you know, like it was just but it doesn't explain why a 34 year old would name both of her kids after a Beatles song so many years after those songs were written, like there's Scott. To be something special about them that I don't know if you can quantify it or not. Yeah, yeah, the husband agreed with all this. Or was he like, I have a slayer song I want to name

Hannah 25:10
America. No, he's a big Beatles fan too. So it was perfect. It

Scott Benner 25:14
really is. So you guys just sat around listen to music during covid and fell in love, huh?

Hannah 25:18
Yeah. I mean, mostly watching Marvel movies. But, yeah,

Scott Benner 25:21
really, do you watch them in chronological order? Or we have a long argument around, like, where do you watch and do you include the the old Hulk movies when you watch straight through? So,

Hannah 25:34
yeah, so the old, the oldest Hulk movie, that is, like, technically, part of it isn't streaming on anything, or wasn't at that time when we were watching them. So we did not watch that one, but we we didn't do it in like timeline order, but we did it in release order. So starting with the first Iron Man movie, and then went all the way through till the end of the Infinity saga. Do

Scott Benner 25:59
you feel like the newer stuff after end game is terrible. Or do you think that it just, it's up and down, it's hit or miss. So may I say, I hope this is something people care about. But I have a similar feeling about the Marvel movies that I I do about the Beatles stuff. Like, I think it just captured a moment. Yeah, right. Like, there was something going like, they finally figured out superhero movies and like, and I mean that, like, I'm much older than you, but trust me, if I went to the theater to see Superman, the first one that guy was in underwear, okay, yeah, it wasn't good, okay. Like, Christopher Reeves was, like, fine and all, but like, it just wasn't that great. Yeah, we loved it. We thought it was awesome. But, you know, oh my God, he's flying like he looks like he's flying. I the same feeling when I saw Star Wars in the theater. I was like, Oh my God, those are spaceships in space. Yeah? And like, right now, you don't have those thoughts anymore, because the stuff is, is so awesome. But anyway, like, there was something that had to happen. Because those Marvel movies, they were like, they're coming. And even if one came out, and you were like, is that a Thor movie in an RV, like, this is not awesome, yeah, you didn't care, because you felt like, you felt like, well, I know the next big one's coming, and this kind of keeps us attached to it on its way. Like, it like, you know, the the first Ant Man movie had that feeling right? Like, all that stuff, yeah. But then they get to end game, and what happened? Did it just feel like it stopped? My son's like, they should just pick new characters, put new actors with them, and do it again. I don't know if that would

Hannah 27:39
work. Yeah. I kind of feel like it's a Lightning in a Bottle situation, like I don't know if they're going to be able to get back to that. It's just

Scott Benner 27:48
over, right? Yeah, yeah. And you have to wait for the next thing to organically happen, yeah, to catch that again, I agree. All right. Listen, I run around here all the time, and I think if you enjoyed that time. You're thanking Jon Favreau for it, yes, definitely, really, is it right? Like he's the one who's like, Hey, I'm gonna take that drug addict and make an Iron Man movie, because that's how it was back then. Like, Robert Downey was like, persona non grata. Nobody was touching Robert Downey, yeah. Listen, there is an awesome news report of him showing up by, think, naked in his neighbor's house, so nobody's touching. Robert Downey Favreau picks, I know today, in 2025 you say Iron Man, everybody's like, I know exactly what that means. But back when they made that Iron Man movie, that was a side character, nobody gave a about, oh yeah, that's how he got them to give him the IP to make the movie because they were, like, you wanted to move what I find, try it. Who cares? Yeah, but he's perfect. The whole thing's perfect. That Iron Man movies awesome, right? Yeah. We have a lot of arguments around here. If it's Iron Man one, then Iron Man three and Iron Man two, or vice versa. Arden has some pretty, like, strongly held beliefs about what order those movies are valuable in. It's so funny that Arden loves all that Marvel stuff, because, and it does really put a like a thumbtack in your idea of like lightning in a bottle, because it just hit her at the right time. Yeah? Because, if you take her to other movies that are more modern, like that, like, she doesn't give a about them, yeah, really interesting. Did you almost name your kids after Marvel characters, or was it always

Hannah 29:24
going to be Beatles? No, it was always going to be Beatles. I've always wanted a daughter named Jude, like since I was a teenager.

Scott Benner 29:30
That's awesome. On our initial list that we made for Cole's names, that you know, the first list where you just say every ridiculous name out. Oh, my God, Anakin was on that list.

Hannah 29:44
That's funny. I'm a huge Star Wars fan too, but I don't think I would name my kid, Anakin.

Scott Benner 29:48
No, I know. But back then, I was like, oh, that's different. You know, it got, I want to be clear, it got struck off in one of the very first like, yeah, mark down. I don't know if everybody does this. So we made an exhaust. Of lists of names, and then we'd, like, whip it out almost every night after work. And like, we'd sit in the living room and we we'd read them out loud and somebody and you could just veto it. You could just go, No, I'm done with that one. Like, I wanted to name a girl Madison. And Kelly was like, I am not okay with that. I was like, lost that one pretty quickly. Yeah, I think if I wasn't there, Kelly would have named Arden Serafina, really? Yeah, that's interesting. Yeah, it's interesting. So anyway, neither here nor there, but there is a name that was on Kelly's initial girls list, and then Arden shared her baby name list with us one time, and that same name was on it. I can't remember. I can't believe, I can't think of what it is right now, but I thought that was interesting too, because it's not a name that we talked about around the that we talked about around the house at all, all right. Oh, I'm so sorry. So you made a baby and it came out, and now it has diabetes, and she's doing great, and your husband's doing great, but that's not what you wanted to come on the podcast about, like, your note is so specific, it took me by surprise,

Hannah 30:56
yeah, so I, as much as I have tried, I cannot understand why some people are more prone to DKA than others. Okay, so like, you know, like my daughter has had ketones, moderate ketones one time, and it was when she had flu B, like, a month ago. But other than that, like she is, even when she was getting diagnosed, it was like trace like, and her sugar was, like, 797, and they were like, yeah, no, she's not in DKA. She's She's doing good. Like, they literally, like, gave her insulin and sent us home and told us to come back in the morning.

Scott Benner 31:33
Why is this something you think about? I think

Hannah 31:36
because I see so many posts about people's kids like getting sick and going into DKA, or, like so many diagnosis stories of DKA, which I know is just mainly people not noticing that the symptoms are diabetes, you know, like they're just thinking their kid is sick, you know. Like, I see things on Reddit where people are like, Oh yeah, I want to try low carb. And somebody else will comment and be like, I tried doing low carb, and I ended up in DKA three times. And so it's just like, makes no sense to me. Like, I feel like some people just like, end up there a lot. And so how to, like, my kid doesn't.

Scott Benner 32:14
Why does one person have like, a low carb diet and do great on it, but another person has low carb diet, obviously, it reduces their insulin needs, and then they end up in DK because they're not taking enough insulin.

Hannah 32:25
Yeah, it's like, I get, I understand, like, why people go into DKA, but it just seems like some people are so much more prone to it. I looked at your

Scott Benner 32:36
note this morning, but this is crazy. I never prepare for the podcast. Oh, wow. But this

Hannah 32:41
maybe it's because I messaged you yesterday, like, should I be doing something? Yeah, you were a little panicked.

Scott Benner 32:45
I might have put it in my head. I was like, Oh, maybe I should look like, what did she write in that thing? Because you're like, what should I be doing? And I'm like, doing what it was

Hannah 32:51
is, I was listening to the episode that came out this week, and the lady had sent you, like, a list of things that she wanted to cover. And I was like, Oh, I did not I, what should I be doing here?

Scott Benner 33:04
I think I know which one you're talking about. She was, like, over prepared. Like, I think I commented in the middle of it, like, yeah, I was like, I'm like, I know people think I must be doing a great job of leading this, but I'm just following her, like, exhaustive outline that she put together. Yeah, I'm just, I'm just good at doing it, and you not knowing I'm doing it, but I'm going to tell the truth here and tell you we're just going to look at something very quickly. Because I asked your question this morning into our overlords. I said, Why are some type ones more prone to DKA, or are they not? And like, because I wondered, like, maybe you're just seeing ghosts. You know what I mean? Like, maybe, maybe that's not true. And if you ask chat GPT or other AIS really specific questions, like, Hey, how come there's more people with DKA than blah, blah, blah, it'll follow the it could follow the thread of the of the question and want to give you an answer that responds instead of thinking through both sides. What it said was some people at type one are more prone to DKA, but their reasons are multi factor, so it makes a listing here biological and physiological differences. First listing is insulin deficiency severity. People who produce little to no residual insulin, as measured by C peptide levels, are at higher risk. So that's just saying. Like some people are further along and aren't making any insulin. Some people probably are still making tiny amounts of their own endogenous insulin. Those newly diagnosed or with long standing type one diabetes have less beta cell function and are more vulnerable hormonal counter regulation. Some individuals experience stronger counter regulation responses, high glucagon, cortisol, growth hormone, with accelerated ketone production during insulin deprivation, body compensation and metabolism. Leaner individuals may enter ketosis more rapidly due to lower glycogen reserves. And people with high insulin sensitive. Activity can still develop decay If insulin deliberately is disrupted, as their fat metabolism kicks in quickly. Jenny and I did a hump as a pro tip about this or defining maybe, but the difference between ketones that you have from eating low carb and ketones that you have from not having enough insulin are different, right, right? So, if you have a higher ketone level because you're super low carb and you're burning fat and etc, it doesn't necessarily mean you're going to be in the hospital. But the ones you brought up about people are like, I tried to eat low carb and I ended up in DKA. That's not just them saying they had ketones. They they're, you know, if we're taking them at their word they had DK, right? Maybe they had such low insulin needs because they were so low carb and they just weren't using enough insulin. I don't know. This goes on. It says insulin delivery issues, of course, like, you know you could have a pump malfunction. Like obvious. There's obvious reasons why somebody could be in DKA, an illness or infection. Infections ramp up insulin requirements. Without proactive insulin increase, EPA can develop, but that's really just still talking about you're not using enough insulin for your needs,

Hannah 36:10
right? Yeah, yeah. Like, we had one situation where, like, my daughter woke up and she had been at 180 all night and we hadn't. Our alarm is set at 200 overnight, so, like, we never, never got an alarm. Nobody woke up. And in the morning I went to get her out of bed, and her site was ripped out. And I was like, Oh my gosh, I wonder when that happened, considering you've been so high all night. And she goes, Oh, do you remember last night when I jumped off the couch and I said something hurt? And I was like, yeah. She was like, It ripped off. Then I just put it back on.

Scott Benner 36:41
Hey, I stuck it back on. It was fine, okay.

Hannah 36:44
I was like, okay, so you have literally been without insulin for 12 hours. How do you feel? She's like, I feel fine. Like, no, no, stomach ache like, nothing like that. No, I'm hungry. Can I have breakfast?

Scott Benner 36:57
That's so lucky. The one time that Arden had a cannula come out, literally one time. And the whole time, we found I should, knock on wood or something, but, but she woke up in the morning and she was like, she was, you know, green, and not feeling good at all. And we realized that the cannula had been out for a while. But her blood sugar, I forget what exactly happened. It didn't rise right away. And then once it rose, it was overnight, and we didn't get a signal. Who knows what happens? Then you wake up. Oh my God, what's going on? This is interesting. People don't like AI, some of you and some of you do. I think you're both overreacting. On either side of it. This goes into other things. It's like, hey, there's, there's psychosocial and environmental factors. Some people don't have access to care. They don't have access to CGM or good healthcare support. People can get burned out and like and talk about things. Really like, it's complete. You know, teens and young adults are at higher risk to decay hormone surges, risky behavior, sometimes lower parental oversight. Really like, this is more thoughtful of a response than you would, uh,

Hannah 38:02
than I would have expected. Yeah, same.

Scott Benner 38:05
You know, all things being equal, and you're getting your insulin, why would somebody have ketones before another person? I think there's probably a ton of different reasons. Yeah, are you just worried that it's going to happen to your daughter and you don't

Hannah 38:19
know what to look for? No. I mean, I'm I know what to look for. I think I'm just, like, trying to make sense of how different it can be for every person. Because it's like in, you know, intellectually I understand, like, everybody's diabetes is different. Yeah, I think it's more of like a thought exercise for me.

Scott Benner 38:38
Yeah, I was gonna say, Are we more talking about like, you're a young mom with young kids who have a recent diagnosis, and you're trying to game out the entirety of the next 20 years, so you understand

Hannah 38:52
maybe, maybe, because I'm like, you know, I'm a very like, forward thinking person, I always kind of want To be prepared for what could be coming. I already am thinking about, like, hormones related to menstruation and, like, Okay, what's gonna happen if she eventually, like, grows up and wants to have a kid on her own? Like, how's she gonna handle it during pregnancy? Like, I am always kind of thinking about what to expect in the future. Like, I would just want to be prepared.

Scott Benner 39:19
Yeah, you're right. You're worrying about the entirety of everything. Yeah. Were you like that before you had kids? Yes, yep, awesome. Did you find that to be a lot of fun?

Hannah 39:32
Fun is a word for it. Do you have anxiety? Oh, definitely,

Scott Benner 39:36
yeah, I do. Yeah. I was gonna say because that's anxiety, worrying about stuff that you don't can't control them as an area, yes,

Hannah 39:44
yeah, my therapist loves it because

Scott Benner 39:46
you're buying them a boat. Is that probably so you're anxious before the kids, did you get a layer of mom with that mom guilt thing? Did that come to or no? Yeah. Um, you already jacked up so much you can't tell the difference already there. Did the diabetes add to it? Or do you really not have any ceiling left?

Hannah 40:13
Yeah, no. I mean, I've had health anxiety about myself forever. Okay, so you know that's, this is just run in the middle.

Scott Benner 40:21
It's just a day in my head. Scott, okay, yeah, you had health anxiety about your self. What were you worried about?

Hannah 40:29
Well, it's definitely just from stemming from anxiety. Like, if I was anxious about something, I'd be like, hey, my heart's beating really fast. I must be having a heart attack.

Scott Benner 40:40
You found yourself in the emergency room telling that to anybody?

Hannah 40:43
No, I never have, because I'm like, anxiety is like, in my family, so, like, I've seen my he would kill me to say this, but whatever, he won't listen to this. I have seen my dad deal with anxiety, like, my whole life, and so I know, okay, this is just that, like, I feel like I'm dying. Yeah, and I might be thinking to myself that I'm dying, but I know that I'm not, and if I just lay down for like, an hour, I'm gonna feel better. How did it hit your dad? He had really bad anxiety when it came to, like, flying. So anytime we would travel, he would just get, like, really, like, tightly wound, have a little bit of a short fuse, so it was easy to see he also had a stressful job, which didn't help.

Scott Benner 41:27
Oh, really, did your mom have any of the anxiety?

Hannah 41:31
No, not really. I learned, like, later as an adult that she frequently was, like, very overwhelmed about, like, just noise and like, commotion happening around her. I didn't recognize that so much as a kid. How did you find out about it? Well, so I come from a big family. I'm one of four kids. My oldest sister has six, and then my other one has two. I have two. My brother doesn't have kids yet, but everybody was in the house at the same time for somebody's birthday. And I am very sensitive to sounds, and get overwhelmed and overstimulated, like, pretty easily. And I was sitting on the couch with my mom, and I was, like, deep breathing, and she's like, are you okay? And I'm, like, real overwhelmed right now I'm trying to calm down. And she said, yeah, that's my entire life. I was like, what?

Scott Benner 42:25
Thanks for sharing. Yeah, maybe you could have shared sooner, yeah. So you and your mom are just in the corner, just doing the 54321, yeah. It's nothing specific, right? There's not necessarily anything wrong happening. It's just, there's a lot of happening, happening.

Hannah 42:43
Yeah, exactly, too many sounds at once.

Scott Benner 42:46
Yeah, I don't have, I don't know. I'm so sorry to not be able to commiserate with you on that. Yeah, it's okay. Yeah, I know people like that, but I don't. I just feel lucky. Honestly, that's the truth. Like when people talk about that, I just feel so lucky that I actually don't know what you're talking about. Because, yeah, it sounds horrifying. Hey, Jude,

Hannah 43:11
more and more like bang, bang. Maxwell, silver hammer. That's

Scott Benner 43:17
what it sounds like in the room when everybody laughs. Oh, my God, did you almost, uh, name the kid after the raccoon? No,

Hannah 43:26
um, Rocky was on the list for him. Had to be. It means there's limited options. Yeah, it was, yeah, our list for him was, it was Maxwell, Rocky and Rigby and my husband right right away was like, We are not naming him Rigby. So it was between Rocky and Maxwell

Scott Benner 43:42
Rigby stuff. How you're pulling that off exactly. Yeah. What's your favorite Beatles song that nobody knows is a

Hannah 43:51
Beatles song? I love something. Okay,

Scott Benner 43:57
yeah, okay, yeah, okay. That makes sense to me. I like the one about being up on the hill. What is the mood? What's that song? Why can't I think of it, pool on the hill? Oh yeah. I think I like that one a lot. Yeah. Nevertheless, do you do you prefer the more artistic Beatles later, or the be Boppy ones from the beginning?

Hannah 44:17
I really enjoy a mix like I even like the experimental stuff, like Norwegian would. Most people are like, What the heck with that? But I enjoy that all of it's pretty good.

Scott Benner 44:30
Okay? It's hard to find a bad Beatles song, honestly, yeah, every once in a while, like, one will come on and I'll be like, I didn't know. How did I not know this was a Beatles song? But there's so few of them for the mass amount of like, their catalog is so big, totally. You know, I think my my least favorite time is when Paul McCartney got into the 80s by himself, like, and still, some of those songs are really good. But it gets a little like,

Hannah 44:57
I gotta say the worst Christmas song. Oh, ever is a Paul McCartney song? What is it? Oh, gosh. What is it called? I can, like, hear it in my head, but it's like, there's, it's like, since ish or simply having a wonderful Christmas time. Oh,

Scott Benner 45:15
it's the worst. I would have to say. That's my thought too. Is that when McCartney gets into more electronic instruments like I don't find that very musical. Yeah, that part hurts me a little bit. Did you watch the documentary of the making of the last album that the Lord of the Rings boy made?

Hannah 45:32
Which one was that? Oh my gosh, I think I know what you're talking about. Was it on Disney? Yeah, yes, I did. Yeah. It was really good. It was, I agree. I found

Scott Benner 45:43
it so sad to think of like, like, to watch them all in that room and realize, like, like, this is the end of the Beatles right here, right yeah, it's happening right now. They are falling apart. And it's just, I don't know. I found it very strange and then, because it just leads to the, I mean, I don't know if they would have kept going. Maybe the next album would have been garb. Have been garbage. Like, I have no idea, you know,

Hannah 46:04
yeah, but I find it best not to question just

Scott Benner 46:08
it's okay that it went this way. Yes, yeah. I don't imagine that 50 years from now, people are going to be like, you know, I was watching that documentary about dochi. I really found it sad about how it was all falling apart at

Hannah 46:23
the end. Yeah, no, people, no, I don't think that's gonna happen. That anxiety, yes, theme song to my life.

Scott Benner 46:35
Isn't that even interesting? Like her pathway to like you getting her music is tick tock.

Hannah 46:41
Yeah, yeah, crazy. It is weird, yeah. But also, she, she grew up and went to high school, like, 30 minutes for me. So, oh,

Scott Benner 46:49
really, did you know about her before the rest of us? I

Hannah 46:53
did not, not before the rest of us. But I, because she's from Tampa, like, you know, her name is, like, out there, yeah, so, yeah, maybe, maybe just before she got, like, you know, Grammy famous, but yeah,

Scott Benner 47:07
Tampa is a wild place now. Yeah, it's interesting. Where are you from? Are you from there

Hannah 47:14
originally? I am from here originally. Yeah, my husband is from New Jersey, and so he's like, we gotta get out of here. We gotta go back up there. Do you call it

Scott Benner 47:26
temper when you say it? No, no, but that's colloquial, right? Like temper.

Hannah 47:32
I've never heard anybody say like that, honestly.

Scott Benner 47:35
I mean, the person I heard it was a real hillbilly, so that might be why, yeah, so your husband wants to retreat. He wants to come back north.

Hannah 47:43
Yes. And I would love to also do that. I have never liked Florida. What's wrong with Florida? First of all, it's hot all the time, all the time. There's maybe three weeks of like, semi decent weather. It's terrible. It's so humid, not to get political, but like, we are very, very left

Scott Benner 48:06
leaning, so politics don't fit with where you're at.

Hannah 48:09
Yeah, it's it's not. We don't really jive with the politics

Scott Benner 48:13
in Florida. You're up in Tampa. But let me ask you a question, why are the Florida Keys and not a more popular vacation destination? Isn't it really like being in the Bahamas, but still being in

Hannah 48:24
Florida, I've actually never been there, so I don't know. I just,

Scott Benner 48:28
I keep wondering, because sometimes I hear it's not a very safe place. Yeah, that is my understanding as well. That sucks. Because, man, what a what a gem. Like, we have our own Caribbean islands. Like, we just don't, like, yeah, you know, I'm saying I don't know if it's really an island. Is it a peninsula, or is it a series of small islands, okay, disconnected by an actual road, right? Yeah, crazy. Of course, it's crazy. We were like, Hey, there's a bunch of islands out there. We'll build a road to it. Who thought of that? What crack head is, like, I could build a road on the ocean? Yeah, I don't know they did it, though. No, it's amazing. Like, I there's another one somewhere up north, and it goes over, like, such a long body of water. And all I can think when I'm driving over, it's like, everybody's like, what if we fall in? We're gonna die. And I'm like, what if we fall in? Who did this? How did they get that pillar into the ground? This is amazing,

Hannah 49:20
I know. And there's a road that goes underground. I think it's in it's either England or France, or maybe it goes from England to France, I don't remember, but, yeah, it goes underneath the ocean. Yeah, it's

Scott Benner 49:31
awesome. It's crazy. I just think it's amazing. And then, you know, you see that done, and then you like, look up, and you're like, we can't figure out healthcare. Like, you can't figure out healthcare. There's a road in the ocean. Give that guy the problem, he'll figure it out in five seconds, or her, whoever ends up being this is crazy. All right, have you ever found anything that's made your anxiety better?

Hannah 49:53
Yes, running and yoga really measurably different. Yes, yep. One I don't I definitely like feel my anxiety heightened. I have less patience, just, you know, tough having too little cancer. So I always, I really need to make sure for myself that I do those things, running in yoga

Scott Benner 50:18
and a measurable benefit to your life. Yeah, why do you not do it then? All the time?

Hannah 50:24
Well, it's hard to find the time sometimes, but I do try to get up early, before work, before anybody else is awake, and try to get it done. Sometimes it doesn't. Doesn't happen that way, but, but I

Scott Benner 50:37
try every day my life is thwarted by somebody else. I came home last night and I walked in and my son and my wife are like, in the I think they're in the living room, like, watching videos together and laughing. They're just they look delighted. They're just laughing. They look up at me, and I was like, they're like, what's up? And I'm like, I don't want to complain. And my wife's like, yeah, don't, don't complain. I was like, I didn't even stop myself. I should just kept going. But it's like, it was like, how it was like, how could it be that without people, my life would be sad and lonely, and with people, my life is very frustrating,

Hannah 51:13
because that is the human condition.

Scott Benner 51:15
Why is there no middle ground on this? Like, why can't you all just chill out and be cool. Yep. She's like, Who do you mean? I'm like, at the moment, I'm just talking about the girl at the counter at Walgreens, but I was like, but all of you, I love you guys, but you're killing me. And I'm sure they feel the same way about me. Like, don't get me wrong. I'm not saying like, otherwise, but like, yeah, it's just like, What a weird mix of like, whatever this is, like, every problem I have is from another person. Mine are

Hannah 51:47
mostly from myself, but, you know, also other people.

Scott Benner 51:51
Hannah's like, I don't actually have time to get to the problems other people are giving to me because I am keeping so many of them on myself. You know, life in the way, you can't do the things that help your anxiety. I don't know how to like ask this question, does the boy have anxiety too?

Hannah 52:05
Worse than me,

Scott Benner 52:07
that how you found each other?

Hannah 52:08
I mean, maybe partially, it was definitely something we bonded over.

Scott Benner 52:12
I imagine two tuning fork shaking, but when you hold them together, they stop

Hannah 52:16
eventually. Yeah. I mean, I think we, we are able to really balance each other out a lot of times. Like, typically, we're not both anxious at the same time, okay? Or, like, if we are, usually the person who's more anxious, like, gets to have that moment the other one pulls it together and is the support person.

Scott Benner 52:40
Oh, that's interesting. So you can hold it together, vice versa, like, for the other person, yeah. I think the whole thing's just inflammation connected.

Hannah 52:50
I mean, I would not disagree with that.

Scott Benner 52:54
Do wonder if, like, I wonder if they're gonna figure that out ever, like, yeah, you know, there's that story about when, when they first they were, they is, maybe I'm completely wrong about this, but it's a story I've heard right, like so that, when they first came up with steroids, just like, you know, you know, like a Z pack, or not a Z pack, but like a story pack you would get, right? Yeah, when they first came up with those, they thought they had fixed mankind. They were like, these things are magic. You don't feel sick anymore. You have more energy. You have more clarity. Blah, blah, blah, yeah, they didn't realize you couldn't take them forever, and when you came off them, there'd be this horrible rebound that would go the other way and everything. But for like, a half a minute, they were like, Oh, we did it. Like, this is it? We fixed we fixed humans. And there are problems, meaning that all those years ago, people were still thinking about the same exact thing they're thinking about today. We're talking about it differently. Like, oh, there's inflammation. And, like, you know, have you heard that? I heard somebody went on a GLP and their inflammation went down, and this got better for them, and blah, blah, blah, like that really does seem like it's such the crux of the problem for so many different people like you. Probably your kid probably ends up with type one diabetes, somewhat related to inflammation. Yeah, you know that kind of like, hand in hand, that autoimmune inflammation have together, celiac, Hashimotos, arthritis, lupus, like these things are, like, you know, they they chronically attack your body. There's an immune activation, blah, blah, blah. Like, I clearly don't understand the whole thing. But like, I talked to so many people, I genuinely think, let me start over Hannah, that if I started another podcast and didn't talk to people who had type one diabetes, I would not hear people bring up anxiety as much. Yeah, that's my guess. So, yeah, I just, I don't know, it sucks. And then people start talking about, like, your gut health, like, have you ever tried to attack it that

Hannah 54:40
way. I mean, I guess probably I am currently, like, working through some like, it's very important to me to have a healthy relationship with food and bodies for my kids, because that's something I didn't grow up with. Okay, yeah. In the past, I have, like, kind of been down those, like, quote, unquote wellness rabbit holes, and, like, tried to be a vegan and be vegetarian or whatever it is, try whatever new thing I see. I honestly gotta say, nothing has really, like, helped.

Scott Benner 55:18
It's frustrating. It really is. What was I gonna say? There was that documentary actually that I always give Rob crap about other stuff, but let me give like Rob the editor, he set me up with this documentary one time, and it was about gut health, right? And so at some point in the documentary, they tell a story about how they did like fecal transplants with people. So all right, and this might get hippy dippy for some people, but you know, so this woman, she wanted to try to take a fecal transplant from another person. They put it in capsules. You take it, you're seeding your gut with like, somebody else. Anyway, it's a thing for real,

Hannah 55:55
trust me, yeah, no, no, I know there's some decent science behind that, actually.

Scott Benner 55:59
So then she does it from like, I forget what it was her boyfriend or her brother, one of the other, yeah, I don't remember which. The first person she does it with is an anxious person, and she's not anxious, and she takes the fecal transplant and develops anxiety, really, yeah. So then she switches to the second person, the brother or the boyfriend, or whatever, likes to another person, and then all of a sudden, the anxiety goes away, but she has another issue that the brother has. And I'm like, and I know I'm forgetting the details at this point now, but trust me, that's the gist of it, exactly. Yeah. And then I'm going to tell you that four weeks ago, Arden, who has, like, already has giant tonsils. Like Arden's tonsils look like chicken hearts in the back of her huge right? And she gets tonsillitis a lot. That's terrible, yeah? So she made a decision on her own a few weeks ago. She's gonna have her tonsils removed in August, and this is not going to be fun. They like light saber. Them off. They have to crust over and scab. They're, yeah, they can't really tie them off or anything. Like, you have to drink, like, soft liquids for two weeks. Like, it's not, it ain't good, okay, yeah, but she's been through it so much that she's gonna do it. It's her decision. She wants to do it. We're, you know, supporting her. We're taking care of it, yeah, because she's been sick so many times, but a month ago, when she got tonsillitis out of nowhere, the doctor gave her, the doctor, I think, she went to urgent care, and they gave her amoxicillin. Okay, in 48 hours, her acne was completely gone. Really, she hadn't been on amoxicillin in a very, very long time. So this is like, like, a data point, right? So I just looked at her one day, I'm like, your acne is completely gone. And she goes, Yeah. I feel like I remember this happening one other time when I took amoxicillin, and I'm like, really? And I was like, okay, all right, remember that now three days into the tonsillitis, she's not better, so the doctor's like, Okay, well, I guess amoxicillin is not going to cover it. They gave her a broader spectrum antibiotic, which, by the way, also didn't stop the tonsillitis. She ended up, she ended up, a week later in the emergency room, getting IV antibiotics. It was really terrible. Okay, yeah, which is why she's getting her tonsils removed. But this is neither here nor there. So just yesterday, we went to a dermatologist, and I said, like, look, here's all the things art has tried. Like, she's got type one, she probably has PCOS, she probably has this, yeah, right, right. She probably has this. That all these things, blah, blah. Here's the things we've done. Here's everything we've done. And we've noticed a change. And I even told her, I said, at one point she, you know, when she started using a GLP, I said, Art and basically, micro doses a GLP for insulin resistance, yeah. And it also helps her with, like, the PCOS symptoms. But I've also seen her acne get better, but not perfect, just better. And I said, So I'm willing to believe that that's inflammation being reduced, and so her acne gets a little better. I'm like, but trust me, I looked the woman because I think she thought I was crazy for a second, and I said, Look, my kids had type one diabetes since she was two. My son's got Hashimotos. My wife has the hypothyroidism. Like I said, Scotty is paying attention, okay? Like I'm really looking hard. I'm not making this up. I'm telling you that amoxicillin, boom, shut off her acne just did, and I said, and now she's been off it for a while, and it's starting to come back again. And I'm like, and I looked at her, and I went, That's gut health, right? Like, it's maybe a little inflammation, because, yes, it can help with inflammation, but, like, it's gut health, isn't it? And I watched her really, really think I saw that I was taking her outside of, like, the zone that she usually works inside of. She goes, I'd have a hard time arguing with that. And I was like, Okay. And I said, so is there anything topical you can give her that has an antibiotic based and she goes. Oh, you know what? Yeah, there is. I was like, Cool. I'm like, Can she get that please? And like, you know, because, like, the rest of it, like, she's done everything, like, it dries you out, it goes away for a little bit, it comes back worse, like, that kind of stuff. Like, right? Nothing's ever really worked for she's like, Yeah, I mean, that makes total sense to me. And she's like, of course, you can't take amoxicillin forever. I'm like, No, I'm not saying that. I'm like, but this is a data point. Like, we changed Arden's gut drastically, quickly and her acne. I'm not, I'm not kidding you, Hannah, it's just gone, right? Yeah. And I was like, that's the answer, right there. And then I thought, but how do you like fix that. Do you know what I mean, like, because her body obviously goes in a direction. So, like, We're trying, like, like, some, like, high quality probiotics to hopefully, like, pre seed things in a more positive way. But I don't know how long it'll stay like that, or not, or Yeah, is your anxiety in your in your stomach? You know what? I mean?

Hannah 1:01:01
Yeah. I mean, that's a good question. I don't personally have a ton of, like, GI issues. My husband definitely does, and he always has, and I have wondered that about him. If his is related to his gut health.

Scott Benner 1:01:19
You're like, what do you do? Like, how do you like, because we ran into this by mistake. Obviously, the tonsillitis brings on the amoxicillin. I'm not, by the way, I'm not telling everybody, go take amoxicillin. I'm saying, I'm saying that this was a very specific pathway that we got to this idea, and I don't know if it's going to work out. But, like, that's the other thing too. Is like, when we left there yesterday, I could see it on Arden's face. She's like, this isn't gonna work. Like you like, it's just like you said that earlier. You try things, you try things, you try things, they don't work. Eventually just give up and you go, I guess this is it like, this is what happens,

Hannah 1:01:50
yeah, yeah, yeah. It is interesting, because you think, you know, like, everybody's body is a little bit different, and you know, you have your predispositions to certain things. And, yeah, it's hard, it's hard to know what, what was is gonna work, or, if anything will,

Scott Benner 1:02:06
they're gonna figure it out five seconds after I die. I know, yeah, probably I know I'm gonna drop that. They're gonna be, oh, it was a switch. It was under your toe. We found it. Never mind. Oh my gosh. They're actually waiting for you to die. Yeah, they're waiting for me to die so that they can like, but there are people who believe that, you know that one day you'll have a box attached to you, and you'll just turn all the dials and move everything to where it's supposed to be, and things will just work.

Hannah 1:02:30
I mean, maybe you never know. Well, wouldn't

Scott Benner 1:02:33
that be crazy? Like, isn't that what a GLP is, though, for some people, yeah, right, definitely. We just use these medications in such a crude way, still, because we don't really, I mean, I don't think we have the technology, the understanding to, like, just give person. I guess what I'm saying is that there are a lot of people on GLP medications, and they're on standard doses because we've figured out, like, these are safe, and they seem to work in a lot of people. Yeah, those amounts are not they're not right for everybody, it's a lot like insulin, honestly, yeah, you know, you got, you know, except insulin, because you're getting the feedback so quickly, you can figure out what your settings should be if you're kind of paying attention to it. So, right? Hannah, have I bored you to death? Are you done? No, you're done with me now. No, not at all. I have to record again in a little bit, I'm gonna have to say goodbye, okay, because I'm doing a follow up with the mom whose daughter, her teenager, went on GLP for weight, and then their insulin needs almost completely went away. Oh, wow. So I'm doing a follow up with her, because her kids story like I keep in touch with her through text messages. But if I'm not mistaken, I'm gonna get on the phone or I'm gonna get on the call today recording and learn that this kid is now using like a unit of basal a day. Oh, wow, down from 70 units of insulin total every day.

Hannah 1:03:58
Holy. That crazy. That is nuts.

Scott Benner 1:04:02
That's one of the things. Like, it's obviously a very specific thing to this person. Like, I'm not telling you, like, if you go on, GLP, you're not gonna need any insulin. I'm genuinely not saying that. But like, it's happening to this one person, and she has type one, she has markers for type one, like, all that. Like, it's that that's not like in dispute, but she had had diabetes for years, and was up to like 70 units a day. Was gaining weight, like all this stuff. As a teenager, the mom had struggled with PCOS in the past. They thought maybe that was happening to the kid. The mom had success with GLP, so they gave the GLP to the kid, and then her insulin is just kept falling. Yeah, like, and I've seen her graphs, they're insane. Yeah. Anyway, I'm going to talk to her and try to get a little more about that out of her, see where that's going. You were awesome, though, I really do appreciate this. Oh, thank you. You're welcome. Thanks for talking to me. Did I let you down? I feel sometimes I let people down. No, no, no. Well, I'm sorry you started saying something. I feel like we didn't get through it completely. Like, do you have five more minutes? Sure. Wait, wait, tell me more about your relationship with food. Oh,

Hannah 1:05:12
just I, like, grew up in a very like diet culture type of family, and so it has taken me a really long time to work through all of that. Like, I remember going on a diet the first time when I was, like, eight years old. So, you know, I've had a lot of, I mean, therapy related to it, but also, just like, even outside of therapy, like my own personal like, work that I've tried to do, to really, like, mend my relationship with with food, because it's important to me that, like, my kids learn what it's like, that like, food is just food. Like, we don't have to, like, think like, oh, I ate ice cream. So I need to go exercise for an hour to like, negate that. Like, I want them to be able to just like, enjoy things like, Sure, understanding like, nutrition is important, but also, like, we don't need to be beating ourselves up about, you know, maybe not eating the most, like, balanced meal when

Scott Benner 1:06:14
you were younger. This come from your parents. Yeah, was one of them overweight, and they were always working on it, or something like that.

Hannah 1:06:22
See, that's the thing is, like, my my parents are not like, huge people by any means. Like, they've definitely, like fluctuated, but I've seen it happen like with them, like, basically, like, Yo Yo dieting, okay? Like, my mom has really always been, like, like, very normal, like, thin person and like my dad, I kind of have his build, like, stockier, but definitely not like, like, he was never, like, obese or

Scott Benner 1:06:51
anything, yeah. I hear you every girl's dream to be built like their dad, right? Yeah,

Hannah 1:06:58
yeah. I would never say that he was, like, an obese person, yeah, but like, you know, I always remember like, being chastised basically, about, like, not eating enough vegetables, or like, but mostly it was them, like they, you know, they did, like, Atkins diet back in the day, Weight Watchers, Like they've done all of the things, and, like, it was very, like, they were very open about it. And so it kind of made me really self conscious about eating in general. And like, one of my sisters definitely has, like, a very unhealthy relationship with food and, yeah, like,

Scott Benner 1:07:44
just been a lot. It's a lot, yeah, and then you got to get through it. And it's, I talk to people all the time that have different eating disorders, and it just sounds like a, I mean, it sounds like

Hannah 1:07:54
a horror, yeah. And especially with the type one I'm like, I'm very conscious of the fact that eating disorders are higher in this population, and I want to be very cautious of that,

Scott Benner 1:08:06
of that, okay, like, the people come up to you and say, like, you need to lose weight. Where was that? Just directly to you? Yeah?

Hannah 1:08:13
Like, totally right in my face. Like, hey, I'm worried about, I'm worried about you. You should, you need to be thinner, or people aren't gonna like you really, yeah, or people aren't gonna like you yeah because of the way you look, I like

Scott Benner 1:08:30
you. That's enough, yeah? But, oh, wow, all right, Mom, thanks. That's awesome. Yeah?

Hannah 1:08:37
Well, my mom didn't say that to me those that was my

Scott Benner 1:08:40
dad. Oh, yeah. Oh, geez. Good times, good

Hannah 1:08:45
times. And

Scott Benner 1:08:46
understand how you can be a parent, be in charge of the food, in charge of the activity, and have lived a life long enough to know that sometimes things, just for reasons you can't even figure out, go a certain way, and then just turn to somebody and go, Yeah, you more carrots. Yeah, you think that's it, that you think that'll handle it, do you? Yeah? And

Hannah 1:09:06
honestly, like, I know from having a conversation with him, like he would not even remember that he said that to me, yeah? Like he wouldn't even remember the conversation, because it's not in his mind. Like, that's not what he was telling me. Yeah,

Scott Benner 1:09:19
there's no malice in what he was saying, as far as he knew, right? Yeah, just the way it it hits you and it sticks to you. Yeah? That sucks. So you're working on not having that happen for your kids. Yes, awesome. Oh, that's good, good for you. I mean, that's a that's life is just breaking circles. So, yeah, you break the chain. You know what I mean. All right, what did we say? We were calling this one lesbian energy. I'll just tell Rob at the end, if he hears something he likes better, he can tell me, but yeah, sure, it's a pretty good episode. All right, thank you kind of hold on a second for me. Thank you very much. Sure. Yeah, you.

Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox head now to tandem diabetes.com/juice box and check out today's sponsor tandem diabetes care. I think you're going to find exactly what you're looking for at that link, including a way to sign up and get started with the tandem Moby system. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. You

when I created the defining diabetes series, I pictured a dictionary in my mind to help you understand key terms that shape type one diabetes management. Along with Jenny Smith, who, of course, is an experienced diabetes educator, we break down concepts like basal, time and range, insulin on board and much more. This series must have 70 short episodes in it. We have to take the jargon out of the jargon so that you can focus on what really matters, living confidently and staying healthy. You can't do these things if you don't know what they mean. Go get your diabetes defined. Juicebox podcast.com go up in the menu and click on series, Hey, what's up? Everybody? If you've noticed that the podcast sounds better, and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording, doing his magic to these files. So if you want him to do his magic to you, wrong wayrecording.com, you got a podcast? You want somebody to edit it. You want rob you.

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#1601 Kitchen Triple Threat

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

Valerie, 44, horticulturist and “triple threat” cook, juggles life with four kids, including a 10-year-old recently diagnosed with type 1 diabetes.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.

Valerie 0:14
My name is Valerie, and I am a mother to a type one diabetic.

Scott Benner 0:24
I am here to tell you about juice cruise 2026 we will be departing from Miami on June 21 2026 for a seven night trip going to the Caribbean. That's right. We're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to St Kitts, St Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one's going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes, expand your community and your knowledge on juice cruise, 2026 learn more right now at Juicebox podcast.com/juice. Cruise. At that link, you'll also find photographs from the first cruise. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode of The Juicebox podcast is sponsored by the twist AI D system powered by tidepool that features the twist loop algorithm, which you can target to a glucose level as low as 87 Learn more at twist.com/juicebox. That's twist with two eyes.com/juicebox. Get precision insulin delivery with a target range that you choose at twist.com/juicebox. That's t, w, i, i s t.com/juice. Box, you today's episode of The Juicebox podcast is sponsored by the contour next gen blood glucose meter. This is the meter that my daughter has on her person right now. It is incredibly accurate, and waiting for you at contour next.com/juicebox this episode of The Juicebox podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about missed boluses or miscalculated carbs thanks to meal detection technology and automatic correction doses. Learn more and get started today at Medtronic diabetes.com/juicebox

Valerie 2:44
My name is Valerie, and I am a mother to a type one diabetic, and that's that's who I am. I call myself a triple threat in the kitchen because I have a horticulture degree and I have a background in nutrition, and I cook by default.

Scott Benner 3:05
Wait, what does horticulture have to do with a triple threat in the

Valerie 3:09
kitchen? Because you grow food,

Scott Benner 3:13
look at me. I'm like, Duh. You're like, I have a garden, idiot.

Valerie 3:16
That stuff that comes out of the ground, you can eat it. Friends, I thought you were

Scott Benner 3:21
talking about flowers for some reason.

Valerie 3:23
Yeah. Well, flowers are edible broccoli. Broccoli is a flower bud. Please don't

Scott Benner 3:26
start me on broccoli. I don't like it. There's a reason when I reach for food that I think people start eating when they want to be healthy. I say broccoli all the time because, right, I just, I don't understand. Nevertheless, you have just one child.

Valerie 3:40
I have four children. Wow, yeah, okay. The oldest is in college. She is applying for grad school. And the middle children are identical twins. They are going into the sixth grade, the major leagues, as I like to call it. And then there's Thomas, my youngest, and he was, he's going into fourth grade, and we were diagnosed a year ago. How old are you? How old am I? I am 44 Wait,

Scott Benner 4:11
all right, hold on a second. All these kids were the same boy. No, that's a good question. Yeah, definitely not. You could have three men in this but definitely two, right,

Valerie 4:21
right, for sure. So I didn't meet my husband now until the oldest was 10. Okay? So I had really accepted that it was just going to be her and I, and then here comes this stud just strolling along, and I just can see the rest of my life. So I go for

Scott Benner 4:41
it. It's like, you know what I need? I need to pay for somebody else's kid. It's gonna be awesome. Okay, so how old were you when you had your first? I was 21 okay? And then 10 years later,

Valerie 4:53
10 years later, I got pregnant with two babies at the same time on purpose. Yes, it was. Yes, it was intentional. Yeah, we had been married for about, Gosh, was it three months. And I joke with my husband now, because, like, every maybe three months, I'll wake up and I'll look over to him and I'm, I'll say, hey, let's get married by a farm and have a bunch of kids. And he's like, What are you fucking crazy? And I'm like, You got it, buddy? Because that's literally what we did. We did it like all in one year. And it was like, we went from one child who was 10, so she was very independent, yeah, and then it was just like, you know, we had goats and pigs and chickens and rabbits, and we, we really didn't know what we were doing with all of it. So it I'm sure, from afar, it looked chaotic. Oh my gosh, but in our mind, we were like, we're living the American

Scott Benner 5:51
dream. I sincerely apologize to my wife. Two weeks ago, there was a bunch of stuff going on in the house. One of the kids has something sad happening. One of the kids is sick. My wife's, like, gotta go somewhere for work. She doesn't want to go, like, just like, everything is upside down right. Like, as much could be possibly wrong is possibly wrong. And it's, I don't know. It's hitting you psychologically and physically in every other way. You know how it goes right, right? Oh, yeah. And I turned to her, and I was like, I'm so sorry. And she goes for what? And I said, asking you out, I apologize. I like, I feel like this is my fault.

Valerie 6:29
Yeah, I should probably tell my husband, and I'm more often as well. I did charm and Ben to all this, yeah.

Scott Benner 6:37
And I thought she was gonna be like, you're an idiot. She's like, I hear it, and I was like, no, no, no, I this is my fault. I should have left you alone. Is, you know, you looked pretty. I don't know. I should have just said, walked away, sure I didn't know all this was gonna I actually said I didn't know all this was gonna happen, right? Or I definitely would have left you alone, and I'm so sorry. And then we went and, you know, did something very important, like cleaned up something or, you know,

Valerie 7:02
right, dishes, put something away. Okay,

Scott Benner 7:05
so other autoimmune in your family, besides your son's type one,

Valerie 7:09
I have psoriasis, and then there's touches of thyroid on both sides of the family, lots of allergies, especially on my husband's side, like severe allergies like his his sister is only not allergic to oatmeal, so her throat is literally constantly, you know, inflamed.

Scott Benner 7:33
Wait, wait, his sister can only eat oatmeal and nothing else. Well, it's

Valerie 7:37
not that she can only eat that, it's that everything else that's not oatmeal is causing some type of an allergic reaction. So she's building, yeah, so it's, can you hear the diabetes alarm? It just No. Well, okay, because I it was super loud on my phone, and so I was like, Oh my gosh,

Scott Benner 7:57
that's gonna keep happening. I'm sorry. So she eats other things, but everything right inflames her throat

Valerie 8:03
Exactly. So she's having, like, oh gosh, acid reflux and all this other stuff happen now, and it's, gosh, yeah, I know

Scott Benner 8:11
I hate oatmeal. Does she like it at least? I mean, not anymore.

Valerie 8:15
I don't even know if she eats oatmeal, you know, it's just like, that's the only thing that didn't cause an allergic reaction on her, on her

Scott Benner 8:23
test, I like her resistance. She's like, I'm not. Oh, my God. Well, that's great saying your husband has what bad, like seasonal allergies, things like

Valerie 8:30
that. Seasonal allergies. Recently, I see it was about five years ago he had an allergic reaction to a bee sting. He experienced anaphylaxis. But, yeah, I know. And we, we thought maybe it was just a fluke. We'll just be more careful, because he had the whole bee suit on and everything, and he, you know, of course, got stung, like, right in the jugular. You guys keep bees. Well, not anymore, because we, we almost died. We had a few, a few more incidents after the first one, and we were like, You know what? This probably is just not a good idea. And so we sold them. And then the lady that we sold them to contacted me just after the pandemic, and she was like, two people now that she knows of have experienced anaphylaxis from the bees that we were keeping, and so they had, like, these beekeepers come out and study them, and they're like this pure strand of St Clair County honeybees, and they're great, you know, honey producers, but, but they'll kill you. Pack a punch. Valerie, how much of your

Scott Benner 9:41
life did you get off a tick tock? Do you also, do you also live in a converted school bus? What else is happening?

Valerie 9:47
No, no, that's next. That's next year. We're we're working up to that.

Scott Benner 9:51
We've got goats and bees. And I was like, Oh, she's going to convert a school bus into a living situation.

Valerie 9:58
We got out of the goat game. We are all. All done with goats. We are about to be all done with pot belly pigs. Those were an adventure. They're about 10 years old, and they're a couple of thugs. I'm just done. I'm done with the pot bellies. So the

Scott Benner 10:15
kid gets the diabetes. Sorry, trying to get back on track. How does it present,

Valerie 10:22
Thomas was going to the bathroom a lot and drinking a lot of water, and the teacher said something, I think, on a Tuesday, and she said, he's going to the bathroom twice as much as the other kids. I just wanted to let you know I was picking him up from school. I was in the playground, and I looked over at the other mom, and I said, Oh my God, what if it's type one diabetes? That was like my very first thought, jeez, Val, where'd that come from? Well, my sister, her youngest, was diagnosed when he was in fifth or sixth grade, and so I remembered what she had told me. You know, he was so thirsty, he was going to the bathroom a lot. He was having accidents. And so, yeah, I think I just had my my antennas were so your nephew has type one as well. Yes, I forgot to tell you about that. Okay, he does. What else? You forget to tell me? Anybody else? Oh, gosh, it'll it'll surface. It'll surface through the hour, trust me.

Scott Benner 11:20
Okay, okay, all right. Oh, so, okay. So you had enough background, yeah, so you said that the other person out there, and they were like, stop it, dummy, that's not what it is, right,

Valerie 11:28
right? And I was like, Well, of course it could be a bladder infection. I was like, I think don't girls get bladder infections more than boys? And I was like, Oh, well, I'll just call the doctor. We'll get them in. The nurse that answered the phone said, you know, they didn't have an opening until next week, and so I got off the phone thinking, Oh, I just being paranoid. She doesn't even think it's diabetes, so I'm just gonna I did all the steps. I made the appointment. It's for next week. Saturday, I woke up and I just knew something wasn't right. He was having accidents all throughout the night and the thirst. I mean, when you talk about that, and I hear other people saying that, it's like, just unbelievable. It really is. I mean, you just, you cannot imagine how much water they're drinking. It's

Scott Benner 12:20
like zombies with brains.

Valerie 12:22
Oh my gosh. So that Saturday, he had a basketball game, and I just started crying. And my husband was like, Well, do you not want him to do the game? And I was like, No, I want him to go to the game. And I, I think at that point I did for sure. No, like, I didn't need anybody to tell me anymore. So now it was more like, once somebody tells you that he has it, you can undo it now. And so I was kind of like, that's what was holding me back. I didn't want it to be confirmed just

Scott Benner 12:51
yet. Okay? And now the girl that one of the pot belly bigs is crying at the basketball game, and your husband's like, Oh, awesome.

Valerie 12:59
Right, right.

Scott Benner 13:01
Great. I bought the pigs. I mean, leave me alone.

Valerie 13:06
So the have you heard a pig cry? It's awful. I mean, it's like,

Scott Benner 13:10
can I tell you something very bad. Sound, yes. Would you be insulted if this episode was, have you heard a pig cry? Oh, nice.

Valerie 13:19
That's awesome. He's gonna love that.

Scott Benner 13:21
I'll tell you what. I haven't heard a pig cry, but I have very more recently heard a fox. Oh, wow. It's also very loud.

Valerie 13:29
I've been hearing people post stuff like that, like they thought it was a coyote or something, and I wonder if it was a fox.

Scott Benner 13:37
Wow. This segment's brought to you by Dr Seuss,

Valerie 13:40
that's funny. That is very funny. My God, that

Scott Benner 13:44
sounded like a dirty Dr Seuss book to me just

Valerie 13:48
now, that's another good time. Oh,

Scott Benner 13:50
dirty Dr Seuss, yes. Oh, that's even better. Valerie, you're producing good job. Keep going. All right. So do we go to basketball? We do?

Valerie 14:00
Yeah, we did. So the compromise was, Tom's dad is a type one diabetic. So he said, I'll just have my dad bring the kit. We'll test him.

Scott Benner 14:09
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Valerie 16:29
There you go. There you go. We got what? We got 40 more minutes.

Scott Benner 16:34
Does the fire department guy have it too? And the guy like, how many people in this story are gonna have right? Okay,

Valerie 16:40
right. All right. Go ahead. She Oh, my dad has type one diabetes. There you go. That's it. Valerie, your father has type one. No, actually, it's type two. Okay, type two. Both grandfathers

Scott Benner 16:53
have diabetes. One, type two, one, type one.

Valerie 16:55
No, well, I mean, he's the third stage of type two is type one, right? So that's why are you saying type one,

Scott Benner 17:01
okay, Tom's dad uses insulin, but has type two diabetes. No, no. Tom's grandfather.

Valerie 17:07
Tom's dad just checks his blood sugar every once while he's type two, he's well in control, okay, fit as a fiddle. My dad is type two, but is insulin dependent at this

point. Okay, got it all right. I'm sorry, and I'm

I'm like, constantly, like, on him, and he's like, you know, I'm just been sitting around, and someone was, oh, you might want to, you know, up your insulin if you've been sitting for more than three hours. And he's like, what? I'm like, Just a thought. I'm just gonna throw it out there. Awesome. Yeah, I think that's everybody. Okay, okay, so sorry. Okay, back to the basketball game. Back to the basketball game. So we have the kit there, and it's after the game. And he was very lethargic throughout the game, so I was quick to test him, and it it just registered as high. And so I I just looked at my husband, I said, Okay, are are we calling 911? Are we taking him to the hospital? Like, those are the options now. And we decided to take him across the river to the Children's Hospital. And I got a ride home. And then Tom called us, you know, right when he got to the emergency room, because then we're Googling and stuff, and they're like, if it tests high, then it's above 500 so then I'm calling our primary care physician, I'm calling the ER and letting them know that we're on our way. Because I'm just like, I'm just full of guilt already, like I could have done more, and why didn't I do more? Why didn't I listen to myself?

Scott Benner 18:43
Wait, wait, how long is it between the basketball game and standing on the playground telling the mom

Valerie 18:47
four it was four days. Oh, okay, yeah, so I guess Yeah, that wasn't that bad. Tuesday, Wednesday, Thursday, Friday, Saturday, five days.

Scott Benner 18:54
That's not bad. Sounds like it didn't take you that long to get it together. True, true. Was he Okay? Was he in? DK,

Valerie 19:00
no, he was not. He was actually ended up being 950 when we checked him into the

Scott Benner 19:06
hospital. It's very high. How long did they keep him over the river?

Valerie 19:08
We stayed four days. It ended up being four days. But three of the days were training. So those were the only reason why they said that they were keeping us was we had to complete our training, okay, and then we would get discharged

Scott Benner 19:24
on the way home. Did you have to go through the woods? No, because I really want you to say over the river and through the woods. At some point that didn't happen. No,

Valerie 19:35
a boy was trying on a boat. I did not have a coat. A

Scott Benner 19:40
couple more sentences we can make our own poem. Is what

Valerie 19:44
I'm saying. We're close. We're close. How old was he at

Scott Benner 19:46
that point? Again, I'm sorry, the contour next gen blood glucose meter is sponsoring this episode of The Juicebox podcast, and it's entirely possible that it is less expensive in cash than your. Paying right now for your meter through your insurance company. That's right. If you go to my link, contour, next.com/juicebox, you're going to find links to Walmart, Amazon, Walgreens, CVS, Rite, aid, Kroger and Meijer. You could be paying more right now through your insurance for your test strips in meter, then you would pay through my link for the contour next gen and contour next test strips in cash. What am I saying? My link may be cheaper out of your pocket than you're paying right now, even with your insurance, and I don't know what meter you have right now. I can't say that, but what I can say for sure is that the contour next gen meter is accurate. It is reliable, and it is the meter that we've been using for years. Contour next.com/juicebox and if you already have a contour meter and you're buying test strips, doing so through the Juicebox podcast link will help to support the show.

Valerie 21:00
Thomas was nine, and what was his reaction? He didn't really ask a whole lot of questions. And I don't think, I don't think we really talked about what was happening until the last day we were at the hospital. Now, Thomas is on the autism spectrum, okay, so he's, I mean, you would never know by talking to him or anything now, but when he was three years old, it was very obvious his speech was very delayed and he was just a wild thing, is the best way that I could describe it. I honestly think the pandemic was the best thing that ever happened to us, because we reset our schedule, and it just so happened to align with wherever he was developmentally, and so we just completely focused on his speech and understanding the behaviors. And yeah, I mean, he caught up so quick. He literally wasn't talking until he was like five more than seven words.

Scott Benner 22:01
How did having more time help? What did you do during that time? We would

Valerie 22:05
get a lot of behaviors during like transitional time. So like, going from the house, going to the car, leaving the grocery, going back to the car, and there would be, like a fit, and we weren't going anywhere. So that was all removed. It was very beneficial, which is crazy, because a lot of the behavioral plans implement, you know, how to work through those situations, because it's not realistic to take all that away and to just stay home, right? But then we slowly got back out there, and that was, that was the he kind of re emerged differently. Oh my gosh. Like a completely different person. Yeah, I mean, I couldn't get him in to private school before the pandemic, so we pulled the other two boys out of private school, signed everybody up for just regular public school, and then the public school was like, he doesn't even need an IEP. And I'm just like, I don't understand what's happened. Like he has an autism diagnosis and he doesn't even have an IEP, like, we have no goals here. Like he's they were just like, He's average. There's nothing this. He's good. We'll keep, you know, 504 open, just in case. But he's doing great. Okay, so,

Scott Benner 23:18
yeah, then you think something about who he is colored the first three days in the hospital, like, where you guys didn't really

Valerie 23:25
talk about he was watching just a lot of TV, and he was able to eat, you know, hamburgers and french fries and jerky. He was eating his favorite foods. So when we actually, I think we talked about it, like, maybe six months after it all happened, and he was like, remember that vacation that we took? And I was like, what vacation? He was like, the one where I got all the Legos and I got to eat the hamburgers and the French fries. I was like, are you talking about being in the hospital? And that's, that's how he remembers that had a good time.

Scott Benner 23:57
I was sick over the weekend, and besides being horribly disfigured by the fever and the shaking, oh gosh, I did enjoy sitting on the couch for a couple of days. I actually found myself thinking, I should try this once or twice when I'm not sick, right? It's interesting, at his age, that he thought of it that way. Is like a little break from life, and he got some toys, anything

Valerie 24:17
that he said he wanted. It was like, there within 15 minutes. So I'm sure that that was, that was a nice treat. I mean, it was, like an early Christmas. Pretty much, we just continuously were buying stuff and looking on Amazon. It was like, What do you want now? Oh, what can we get you? Oh, okay, that looks fun, because it was just my husband and I were really struggling. I wasn't eating or sleeping. I was just, I was beside myself. I stayed by his bedside the whole time. I didn't leave leave aside. I was just, I just remember this terror and just so much fear and the fact that no matter how bad I wanted it to go away, it just was never. Things were never going to change. I really struggled with that. For that would that was a hard one. It was a really hard one for me. How

Scott Benner 25:06
do you handle that? Do you speak with somebody, or is it family? Or what do you do?

Valerie 25:10
I journaled. I started a diabetes log or a book, and I just started, like, pouring all the information onto these pages. And then was, you know, talking about how I was feeling. I was literally grafting, you know, his insulin, the time of day, the activity, writing it all down, like when the insulin was peaking, what we were doing before, during and after. And it gave me so much peace of mind. I guess I was having such a hard time with processing how everything overlapped and affected each other, I just kept thinking I was going to get upside down or something, or drop off a little bit of information and Miss dose. And

Scott Benner 25:58
I always worried about everything you were doing and how the double checks. When you said you were graphing, yeah, I thought you said grafting, and I and then my mind jumped at the horticulture, and I was like, she was hybridizing plants,

Valerie 26:10
yes, yes, I was fusing, yes, fusing it together. I waited a little

Scott Benner 26:19
longer, got more context clues, and then I figured out what I was doing. Did it help? Did it help? The journaling helped you?

Valerie 26:24
It did help? It helped a lot. And then I, like, had this idea that I was going to try to, you know, publish the journal to help somebody. And then as I sat with it, I was just like, I don't know, it's so personal. It's, it's hard to know what to do with it. Yeah, I know it, but if I could just help one person, I would feel. I mean, that would be enough, right? I hear,

Scott Benner 26:46
did you end up doing anything with it? Is that what you're talking about? You were thinking about getting on Facebook?

Valerie 26:51
Yeah, it's sitting right here in front of me. I haven't opened it up, and in a really long time, it's, it's a lot. I mean, I three meals a day. I wrote down every food, every carb, every activity. I mean, it's a little crazy. I think that's what maybe that's what's holding me back from letting the world see this is because I went so extreme with it. Oh, you think you look nutty. I definitely not gonna look normal. It's a little concerning. Just because I did it that way doesn't make it the right way. It was just I knew that I couldn't control Thomas as a little boy, because it's not healthy. But if I obsessed about this notebook and how I wanted it done, then that that was a better choice, right? So

Scott Benner 27:42
I'm a little not confused, but I want to clarify, did the act of writing it down just make you psychologically feel better, or did it, did it actually functionally give you ideas about how to manage or both?

Valerie 27:54
It was very functional. So I'm a I'm a visual learner, and so when I would see it, it was, you know, permanent. And I, I did get peace of mind with, like, okay, I can let that go. I don't have to keep saying, has it been 15 minutes? I just open up the page. Oh, look, it was an hour ago. Okay, we're

Scott Benner 28:12
good. Yeah, it's interesting, because people's minds work differently. Sure, I had to rejigger the ad calendar the other day for the podcast. I mean, I'm sitting in front of like a color coded, you know, graph of like, days and episodes and, you know, advertisers and stuff like that. I found myself thinking, I'm like, I wonder how, like a person who doesn't think like me would do this, because there must be, like, a functionally correct way to handle this, but I just stared at it until I went, I'm gonna move this over here and that there, and put that there. I'm gonna do this and that, and that'll all work. And I was like, and done, right? And then I looked at it and I went, that it won't work. And then I did it again, and I was like, and now it's done. But I felt dumb while I was doing it, it, you know, like, just because I thought, like, I don't know what I thought, like the people, somebody's brain is better suited for this than mine. Yeah, it sounds stupid. I have a certain number of names and a certain number of times and a certain number of places they have to go, and you would, but I don't have any. I think it's why I'm bad at algebra. I didn't know the steps and, like, I didn't know if there were steps or if I should learn steps. It just sounds like you just didn't know what was happening, right? Like, so you just, like, I'll just keep putting it down in front of me exactly. And then when stuff happens, I'll refer back to the list I wrote, and I'll go, Oh, I did this. And then that happened, right? Yeah, right. And that happens a few times, and you think, Okay, I got a rule now, right? Yeah. And then

Valerie 29:41
just follow it, yeah. And then it was just like, I wonder, what else I don't know. I'll just write down everything.

Scott Benner 29:49
Oh, I see. And then did you find new ideas through that?

Valerie 29:52
Yes, and no, I can't remember. When I came across your podcast, somebody had forward it to the. They sent me a link or something, I can honestly say that your podcast changed everything for me. I was feeling so I don't know, alone, like, just completely alone, like there was just this. This was how it was going to be. Nobody was going to understand every time it was, like, every conversation that I had with somebody, it was the same it was the same conversation. It would take 45 minutes to explain. There would be like, 15 minute questions, and then that was our conversation. And it was exhausting to a point where I just didn't even want to really bring it up anymore, or I didn't want to talk to people about it. And then when I started listening to the episodes, I could relate to everything I mean, every single interview I can find something in the interview where it's like, wow, that I get that. Oh, I'm glad that's awesome. I like completely. I just found it so healing. It really made me feel better, like they're doing it, I can do it, it's going to be okay.

Scott Benner 31:11
Oh, that's, that's awesome. I'm glad that worked for that way. And I feel bad about making funny about the pigs, really, yeah. I mean, honestly, why would you buy a pig? What are you thinking when you do that?

Valerie 31:21
They were so dang cute. I mean, this little pig fit into dune. Do you know the American girl like stuff?

Scott Benner 31:28
No, I don't know anything about American girl. Stop it. No, I've been to that store. Go

Valerie 31:33
ahead. My daughter had an American girl sleeping bag, and this little pig would just like, go right inside of it and sleep. It was the tiniest little thing, and it was the run. It was like some Charlotte Webb story when we went and it was at an auction, they're like, it's the run, and it had a few bites on it from its brothers and sisters. And I just was like, oh, we gotta take this little pig and gonna be so much fun. We named him Timothy.

Scott Benner 31:58
And how much drywall did Timothy eat Exactly?

Valerie 32:01
Oh, he did not stay in the house. We knew. We knew after a month you've got to be outside this and yeah, it would, he would rip the binding off of a book, like, just like he was ripping a piece of paper into two pieces. It just was nothing.

Scott Benner 32:17
Maybe the bite marks were from the people who owned him. They were just like, bite that pig, see if it'll stop by eating the

Valerie 32:22
book. You're like, does he taste good? Let's try. Yeah. Let's eat the pig.

Scott Benner 32:28
Seriously, all right. Well, how long ago is this now? His diagnosis? Couple

Valerie 32:33
of years. It's just been a year, just a year a little over. Do you feel differently

Scott Benner 32:37
today? I do. And how do you manage? Like, is it like mdivi pump? What do you do? We

Valerie 32:44
have the Omnipod five, and we're on the g6 we were on the g7 and then that wasn't compatible with the iPhone, so we had to downgrade, okay,

Scott Benner 32:56
and then you'll wait for the next thing to happen. You'll keep moving, and you running in automation. Yeah? Awesome. Yep, yep. How's it working for you?

Valerie 33:07
We love it. We absolutely love it. For a little while, we were 80% in range, and then every once in a while, it'll go back to 50. But I still, I still do my timers, and I'm pretty religious about watching the trends and checking the numbers, and so we catch when we need to up our insulin. So Pre-Bolus

Scott Benner 33:28
your meals. Oh yeah, oh yeah, okay.

Valerie 33:33
And, I mean, thanks to the podcast. I know you know, not all foods were created equally, and you'll find that, you know, you can Pre-Bolus more so on certain things, and just, yeah, roll with it, right? That's

Scott Benner 33:47
what I've been trying to do. Yeah, I haven't died yet so, and she seems good, so, right, yeah, I mean, the roll with it thing, and I don't, I don't know if you can't put it better than just, you know, stay flexible, and it's just not static, you know? And you can't, yeah, you can't bend it to your will. Sometimes, sometimes you just have to,

Valerie 34:07
gotta go with it, you know, there's no perfect number. I've held on to that that was in my training. And, yeah, there is no perfect number.

Scott Benner 34:15
Okay, all right, so would you call yourself better in your mind, or is there still?

Valerie 34:22
Yeah, I do feel better about things. I still worry about Thomas being on his own a little bit. He's starting to wanna put in his carbs and dose himself. And when we left the hospital, they said, you know, when you can drive a car, you can give yourself insulin. And so we've held on to that rule. I didn't realize that at school that they were letting him put in his numbers. Hence,

Scott Benner 34:51
you got me for a second. Here, I cut you off. I apologize. No, the hospital told you that he can't give himself insulin till he's 1816,

Valerie 34:59
until. I can drive a car. Do you think that's right? I'm wondering now, because

Scott Benner 35:03
that sounds sorry. I know we're not all using that word again, but just the word popped the bite. I was like, that don't sound right, right? Is it possible you misunderstood them? No. Do you live on the side of a mountain?

Valerie 35:19
No, sure. On the side of a river,

Scott Benner 35:21
okay, does the river anywhere near like a city or people or anything like

Valerie 35:25
that, right outside of St Louis? Okay? Yeah, our Children's Hospital was

Scott Benner 35:28
an encampment or something like that somewhere. No, no, no. I in my life have never heard anyone say that really, yes, not once, ever has anyone said that to me. Oh, wow. Arden was giving herself insulin when she was in third grade. Wow, yeah. Like, I would be like, hey, that's 30 carbs. And she'd be like, right on, and then roll it up on the pump and do it okay.

Valerie 35:51
So back to what I was saying. Cool. So he was eating a Blow Pop, and it was 17 carbs, and he entered it as 71 Yeah, and nobody double checked him.

Scott Benner 36:04
We don't want that, that's for sure, right? Yeah, I'm not saying, like, why? Just give it to him now, let him get going. But I'm like, I don't know that you can't work towards it sooner than that. He doesn't have any developmental reasons why he couldn't handle it, right? I mean, autism, but I mean, you said you also told me I wouldn't notice. Yeah, he doesn't have an IEP, right? You said about his autism specifically, if I didn't tell you at autism, you wouldn't notice exactly so does it impede his ability to understand

Valerie 36:28
numbers or, I mean, he processes information differently. My husband's probably better at explaining this. My husband is a BCBA. We have our own practice, so he's a board certified behavior analyst, and he specializes with autistic clients. So there's a little bit of irony

Scott Benner 36:52
there. I'm an analyst, I'm not board certified. I just have a podcast.

Valerie 36:57
I mean, I've said it a million times. I don't know why the best type one diabetes training is a podcast, and it's you that I'm referring to. I don't I don't understand it. I don't know why, but there it is. Because I've had, like, the school nurse and stuff when I'm, like, referring to the podcast or something, and they're like, you can't just, you know, ask somebody to listen to a podcast, and I'm like, the hell I can't I'm telling you this. This is the information. It's all right here. Just let me send you the link. It'll be great. School

Scott Benner 37:26
nurse. Not interested. Not interested. A lot of school nurses do listen, though, I have a nice contingent of school nurses in the Facebook group. They believe it for everyone and who don't have kids with type one and come and listen to podcasts. So the truth is, is that, you know, if they wanted to, they would, and you know, they don't want

Valerie 37:41
to, right? I think it says something more about me also, is that when, you know, when I was so emotional when we first got diagnosed, I think that the school got to know me as that person. And that's not, that's not who I am. That was the situation that I was in, right? And that was awful, little nutty. Wow, gosh, it was, it was really rough. I mean, I was just like, I could just start crying, and I would just try to just talk right through it like it wasn't happening. Because I'm not really a crier. So that was how I would deal with it, like, oh, I don't know, it's like water coming from my eyes, and I'll just keep talking. I don't know,

Scott Benner 38:20
consider yourself stable before this happened. I just want to check,

Valerie 38:23
I mean, I'm flighty. Is that a

Scott Benner 38:27
thing your dad told you, wait, what the hell? I

Valerie 38:29
guess I've heard people joke like that. I have ADHD because I'm high energy and I thrive on, you know, solving problems and creative thinking and stuff like that. But

Scott Benner 38:43
well, when do you think your son would be able to handle this? Like, I think that's maybe a more appropriate question. Or what, forget the age. Like, what do you think he would need to be able to accomplish for this to work out for him?

Valerie 38:55
I think he's just waiting for me to say, you can do it, because that's just the type of person he is. So if I say, you know, we're he does like rules, and he likes things done a certain way. And for that reason, diabetes is probably going to be a slam dunk for him, because that's his personality, following the rules. So I think he is just waiting for us to be like, you can do this, Thomas, here's the plan. Let's

Scott Benner 39:20
start. Is there any reason you don't do it together? It together?

Valerie 39:23
I guess, just because we haven't sat down and talked about starting? Maybe

Scott Benner 39:28
what that would look like, because I think maybe, like, start slow, start volleys at the house.

Valerie 39:33
Yeah. I mean, it's summertime, so this would be the best time to and don't start before

Scott Benner 39:37
you think he's ready, but like, like, you know, listen, I don't know him. I'm I'm judging him based on what you're talking about, but he's definitely old enough to understand numbers, yeah, yeah, and push buttons and understand why being right is important about, you know, carb counts and stuff like that. And if you see an and you could also, you said earlier, he entered a 71 instead of a 17. Or somebody did, you could set the pump up so it won't give them that many carbs. Like, you can, you know, like, like, put in a safety of, like, Look, if you know, a Bolus is over this many carbs, you know, it won't take exactly, and that way that should, you know, be, I mean, valuable there, but yeah, I like the like, are you home during the day? Or no,

Valerie 40:19
I've pretty much dedicated the past year to type one diabetes. So we, you know, we pretty much let our farm slide a lot. And I just was like, This is what I'm going to focus on. I'm going to master this. And

Scott Benner 40:36
how are you doing? What does anyone say?

Valerie 40:38
I don't even know. What Is anyone C is? It's so crazy that I am sure that they're checking it every time. They never really say at our appointments.

Scott Benner 40:47
Well, you now making me think that might be the oddest thing anyone's ever said to me. You said in concurring sentences I've made my life about diabetes. I don't say 1c I know, I

Valerie 40:57
know I'm a contradiction. So humiliated.

Scott Benner 41:03
So wait. How about in his like Dexcom clarity app, can you not see what his GMI is? Can I? Yeah, you

Valerie 41:09
can. Should I put you on speakerphone and look, is it possible you're smoking

Scott Benner 41:13
crack during the day and not paying attention to diabetes? What are you doing? Yeah, you can these timers, his phone, not in yours. Oh, yeah. Oh, wait, you have a, you have a follow. Of the follow, yeah, hell. I don't even remember.

Valerie 41:27
I mean, it's, there's the new, what is that new app, the glue co I don't

Scott Benner 41:33
know. Yeah, if I told you the number of apps that have come and gone since I've been around all this that I don't pay attention,

Valerie 41:40
that makes my heart hurt to hear you say that, because that's the it is very annoying, all of the passwords, all of the accounts, I

Scott Benner 41:47
just mean the third party companies are like, this is gonna help with that, and this is gonna I'm like, Okay, we'll see, right? Let's find out real quick, though. Like Dexcom follow

Valerie 41:59
GM, I

Scott Benner 42:02
check my Google foo here to see your glucose management indicator and Dexcom g7 Nope. Dexcom g6 Do you think people at home were like, g6 like, yelling as I was typing, yeah, yeah. Allows user to share the glucose data when we know that. I don't know if your follow. Oh, why am I looking mine? Sorry, if only I knew were to get one of those damn Dexcom follow upset. I definitely don't think you can see it and follow. That makes me feel a lot better. Yeah, awesome. I mean, how often you think I'm looking at this thing?

Valerie 42:37
So I have, like, all these questions ready every appointment. And I think I focus on my questions too much. I do. Sorry. I paused because my diabetes alarm was beeping high.

Scott Benner 42:54
What's the alarm set up for? High i is above 150 Okay, and he's, yeah, he's at school. Now, what happens that you just wait for the algorithm that takes take care of it. I

Valerie 43:05
mean, if he's at home, I'll give him a blood correction, if it's after an hour from the Bolus. And then if he's at school, the nurse, it's not in his plan. And I've, I've talked to her about giving them a correction, but it's they're having a hard time with taking him off exercise mode. So like most of the day at school, he's on exercise mode. And I'm like, Was he really at recess for four hours? And why are they that's not true. Is he getting low? There was a period of time where they were forgetting to put him on exercise mode, and he would go low, especially because, you know, they have lunch and then they go straight to recess. The temperatures, you know, getting warmer. Well, now they can get him on exercise mode, but they can't get him remember to get him off. So it's like, if I push for them to turn it off, are they gonna forget to turn it on. Like, it's just, like, where, what's wrong? What's going on here? Like, why?

Scott Benner 44:06
Valerie, listen to me. You okay?

Valerie 44:09
I mean, most days, yeah, I can't tell if you're okay

Scott Benner 44:12
or not, really. Oh, 45 minutes, I can't figure it out. Oh,

Valerie 44:17
that scares me. That's not good, Scott, that's really bad.

Scott Benner 44:21
There's like, I stopped myself from asking you, were bipolar 10 minutes ago, because I don't think you are. But like, oh god, that's really bad. You feel like somebody put you in a box and shook you up. Yeah, yeah. I don't think you need to feel that way, so I'm trying to figure out how to get you through it. But you really knocked me over when you said you don't have any idea. What does anyone say? Is like, Yeah, I'm confused by that, in a way that I'm having trouble putting into words,

Valerie 44:47
yeah. I don't really even have a good, good answer for that.

Scott Benner 44:50
I spending your day doing

Valerie 44:52
I think I feel good about seeing that we're 80% in range, and so if we're 80% in range. Range, then the A, 1c, is where it should be at, right? No, I guess that. No, what's the range? The range is 70 to 160

Scott Benner 45:08
Okay, that's awesome. And being that 80% of time is fantastic. Like, I don't know how often you're low or high or anything, or if high means 400 and low means 30, then this isn't great, just being right. Get in range 80% of the time, right? I'm trying to resolve the idea that you told me that your whole life is diabetes and that you don't work and you're at home because you're taking care of it, but you don't have that information like so what are your goals? Are you just shooting time in range that what you're worried about? No,

Valerie 45:38
I spend a lot of time cooking. I'm preparing all of the meals. I'm out in the garden, you know, planting and getting things ready. I make my own sourdough. We do our own yogurt. I just started brewing kombucha for gut health.

Scott Benner 46:01
Valerie, when I asked you how much of your life is from tick tock, how come you didn't say most of it when I tick tock, is it really like you're doing a lot of social media, things like making sourdough? Like, not that you can't make sourdough and not be on social media, but if you knew what social I guess if you're not on these things, you don't realize this,

Valerie 46:18
but I don't know. So I'm like a, what do they call caricature?

Scott Benner 46:22
It feels like you're a caricature of a person on Tiktok, but I don't think you are, though, no, I'm not on Tiktok. Yeah, you're not. Like, where did you get the idea to do sourdough from? I think it was,

Valerie 46:33
that was about 10 years ago I started doing sourdough. And so

Scott Benner 46:38
Val, is it possible that Tiktok is a caricature of somebody living your life.

Valerie 46:42
Oh, thank God, am I an algorithm? Oh, geez,

Scott Benner 46:45
maybe they're watching you and you're what's feeding the algorithm. They're like, what's Val doing now, kombucha, we can make a video about that. You know,

Valerie 46:53
that's really funny that you said that because I live next to one of the largest you pick farms in the country, or at least it was 15 years ago, every time I was doing so I would, like start hosting, like a DIY stuff. And then months later, this farm, this big, like Walmart of a farm, would start doing the same type of thing. And I was like, Am I really that close to being successful? Like,

Scott Benner 47:23
Valerie, your chat. GPT, am I missing? Am

Valerie 47:27
I Am I really a day late and $1 short? Is it that close for me,

Scott Benner 47:33
your ideas are being stolen. Two of you, first of all, we're gonna have to make a hat for you out of tin foil. Right now, they're watching you, and they're taking all your ideas.

Valerie 47:41
They are not. Tell me that's not true. God, yeah,

Scott Benner 47:48
sorry. I'll start.

Valerie 47:49
I'll post to my friends, like, oh, let's have a seed exchange. And then all of a sudden, like, it's happening all around me. And I'm like, How did, how did that happen?

Scott Benner 47:58
I tell you a story. Yeah, one summer night, it was so hot we were dying, like, we didn't have air conditioning. I don't know about you people who grew up rich, but back then, you had to be rich to have air conditioning. Like, so we didn't have air conditioning. It was like, ungodly hot outside, and my buddy and I went to the toy store and bought a baby pool and filled it up outside, drug A television outside, with a extension cord, and we just laid in a baby pool trying to, like, not die and watching TV. We were watching Seinfeld first run because I'm old. There's this bit on Seinfeld, and I promise you, I don't remember the bit anymore. It was so reminiscent of, like, a running joke I had like that I would do like, I don't know, like, I don't want to say that I was out there doing bits when I was 20. But like, you know, like, sometimes you got stuff that works. You use it a lot. I always thought it was very unique and different. Made people laugh and everything, and it's happening right on screen in front of me. And I turned to my friend, I was like, Are you selling my fcking ideas to people, and he laughed, and he goes, that was oddly similar to what you said. I was like similar. And he goes, no word for word. We couldn't go back and check, of course, because it was before time shifting or nothing was re you would never see that episode of our game, but it just flew by in front of us. And now I want to point out that I did not think he was selling my ideas to people, but I do think maybe the internet is chasing you around. Oh my god. You said, I make my own yogurt. You said, beekeeping. You said, kombucha. You said, Pop belly pig. You said, so many sourdough you did. Yeah, your husband is does what for

Valerie 49:38
a living. Is this gonna help? Is this gonna help your views and your likes. I mean, I'm sorry,

Scott Benner 49:42
all the right words is, apparently everything people care about

Valerie 49:46
now we have to say puppies and pizza and we're done. It's all stick a fork in it. We did it exactly. We have arrived. Oh

Scott Benner 49:55
my gosh. I want to get back to this. I hear you're busy, like, obviously you're doing a lot. Of stuff, right? Yeah, yeah. And you're jamming that diabetes stuff into any little bit of free time you have, and right? And so it feels like the day is overwhelmed with diabetes.

Valerie 50:09
It's timers, yeah, the time. And I've tried to, I've tried to take a step back, and I've tried, I mean, it was really hard to stop doing the logging after 100 days. And I told myself, you're going to do it for 100 days, and then you're going to stop, because this is it's this isn't the way. This is it's okay for right now and for this amount of time, but then you will be done. Because what I have noticed is like with with the sourdough and with the yogurt, is I jump in and I go deep. I like, want to know, like, everything there is about it. I don't want to do it, like, six times a day, and then I'll burn myself out. And it's like, oh, I need something else. Let's start, you know, crocheting. What are we going to make? Or soaping? Oh, that's another thing. There you go. Can't believe you just said that. I'm a soaper.

Scott Benner 50:59
You did not know to keep that to yourself when it was started coming out of your

Valerie 51:05
mouth. I am also a hooker, but only at night. It's rug hooking.

Scott Benner 51:10
Yeah, wait, you're doing hook rugs. Oh, my dad

Valerie 51:14
used to do this. Oh, yeah. Those are fun. Those are a lot of fun. Is there any chance you're autistic? Oh, gosh. I mean, how could I not be and I and I always have told, you know, all the kids that you know, if Thomas is diabetic, then we're a diabetic family. If one of us is autistic, then we're an autistic family. It's just who we are. And you guys come from me, and so how could I not have that somewhere in my body? Because that's, you know you're the byproduct.

Scott Benner 51:41
Well, I want you to be calmer, like, and not feel like you're like, running towards timers all the time for sure, right, right? And your time is difficult to know. Like, I'm not telling you a 1c is everything, but I just it would have been a launching in place for the conversation. Like, if you understand that, you know, he can't be low all the time and then high all the time, and then say, like, you know, oh, is a 1c is good, because it averages out. Like, if you understand that, that's true, and you're pre bolusing meals, and he's, how often do you think he's low? Like, how many times do you find yourself stopping a low blood sugar? What do you call low?

Valerie 52:16
I call double arrows down and like the 150 range that I just call that a low that it's happening, it will be low within 15 minutes. That usually happens about twice a week. You see

Scott Benner 52:30
double arrows, twice a week. Yeah, is that during activity, or after a meal, or after a meal, and then activity like, do you see a pattern how that happens

Valerie 52:40
so, and I think that it is maybe part of the autism. Maybe I have downplayed that a little bit, Thomas will spontaneously, like, do like these spurts of jumping. And so, yeah, that can trigger, that can trigger a quick low, quick low. If he gets, like, really excited, he could start like jumping. It's less noticeable, though, because I, I mean, he's coping so well with the autism, so he's masking it a little bit better. Or, you know, if we just didn't get the timing right on exercise and the last meal, I do like to do the sports with no insulin on board, but it doesn't always work out like that, because, you know, with school in session, everything's around dinner time, right? So it's like, you Yeah, yes, I have cucumbers and string cheese to hold them over before. And sometimes I'm like, You know what? We'll just, we'll roll with it, and I'll just keep, keep carbon you up to keep you afloat.

Scott Benner 53:41
You don't see the double hours after certain meals or a certain size boluses.

Valerie 53:47
Not anymore, okay. Well, it does feel kind of random

Scott Benner 53:51
activity with insulin on board gets you a low. Oh, yeah. And so if you see 150 double hours down, you give them something. How low does the CGM ever say, before you

Valerie 54:01
stop it, I'll usually catch it in the 90s. Okay,

Scott Benner 54:05
that's awesome. Good for you. Yeah, yeah. So he doesn't get the or does he get feelings of being low? Then,

Valerie 54:10
yeah, we've had two scary lows in a year. What were the numbers, 43 and then almost to 40,

Scott Benner 54:19
okay? And how did he feel? Then, did he? Did he verbalize it?

Valerie 54:23
Yeah, he his eyes got really red. He said he was tired. And then the other time, he got very nauseous

Scott Benner 54:33
and but you haven't seen that recently. Actually, last month, we had a really scary low. You know, where it came from? Could you put your finger on it, yeah,

Valerie 54:41
he was sick for a week. Was sick for a week, and he went so he wasn't eating very much at all, and his blood sugar was like, just beautiful. I was like, Oh, I like, Thomas sick. This is amazing. He's just a straight arrow buddy. And then he started. To get his appetite back. And it was about on day five. And so I was like, Okay, well, you want to eat this donut? Well, you only eat half of it. And I was like, Okay, it's cool. Don't worry, because it's still gonna, it's still gonna hit. We'll just give you something when it's when the insulin starts pulling harder than the carbs, right? That's how I'm always looking at it as like a tug of war. Yeah, you know, you just don't want the insulin to pull harder than the carbs. So he, all of a sudden, just started to feel nauseous, and we were like, oh, no, let's just start sipping some juice. And then we tested his blood, and it was like, 60s. And then it's his CGM started reading double arrows down, and I was like, Oh my gosh. And he got all the way down to the 40s, and then we couldn't get him to go above 60 for like, almost an hour. And then I couldn't get him above 90 for almost three hours,

Scott Benner 56:00
because you Bolus for a whole donut, he had a half a donut, yes? And he hadn't had much food recently, right? Sick, use a little lower to begin with.

Valerie 56:08
It just like, it just blew my mind. Like, I was just, like, I can't believe that was so hard to correct when juice is, like, you know, usually the magic, oh my gosh, yeah. I mean, it's gonna, just the littlest bit will send you to the moon.

Scott Benner 56:22
Yeah, the illness can make you really insulin sensitive sometimes,

Valerie 56:26
oh my gosh, yeah. I mean, I was, I felt sick. I was even to the point where I was thinking about, like, putting, like, honey on his gums and stuff, because he was just so low and not going up. And I kept thinking, what if he slips further down and we're already so low? And then we tried to call the on call doctor, and their system was down. Of course. It was just, it was rough, right? It was, it was Yeah. And then when we did get the doctor on the phone, she was like, You should have given him his emergency medicine, the nasal

Scott Benner 57:04
glucagon. Yes. Well, did you feel like that was necessary? It sounds like you managed

Valerie 57:08
it. I'm very hesitant to give it to him while he's conscious, but then when I say that if he goes unconscious, that's even scarier, and that's what you're trying to prevent, right? When Thomas throws up, the vomit usually comes out of his nose, and it's just so painful for him, he gets very upset, as anyone would, right? Yeah, to give him medicine in his nose and to know that that's how he feels with like the burning sensation in his nose, I just know he's gonna be so unhappy, and I know it's gonna happen. I haven't talked to him about this is what this medicine is. This is how it's gonna feel. And I don't even know if I should

Scott Benner 57:53
you're afraid he wouldn't use it if he needed it. I

Valerie 57:56
mean, we would make sure that it happened regardless. But yeah, if it were up to him, would he, would he pass on it? Yeah, yeah. That's

Scott Benner 58:03
a tough one. And I don't know that he needs to know that it, it might burn in his nose afterwards. You know what? I mean, like, right? I don't know it's tough. They're going to be people listening to this and say, you have to tell them. And there's going to be people are like, Oh, God, don't like so, I mean, that's a personal decision. I think, you know, right? You're going to know him better than anybody

Valerie 58:22
else. Yeah, he's, I mean, he's the sweetest. He really is just the sweetest boy every all of his teachers are. You know, he's just an amazing kid. And he's,

Scott Benner 58:33
how did the other sisters, brothers handle the diabetes stuff?

Valerie 58:37
Well, right or wrong? I like, shut down the kitchen, because we were pretty much free range, like anybody could come into the kitchen and get anything they wanted. I had snacks all prepped. And then once we were diagnosed, it was more like, Hi, how can I help you? Can I get you something to eat? And you know, I was turning people away. We weren't allowed to just eat anywhere we wanted in the house. I didn't realize at the time that Thomas was feeling guilty because he felt like he had done that to the whole family, like changed food for everyone. We have just started talking about that, and we've we're seeing a psychiatrist here in town just to make sure that we're talking about our feelings a little bit more because it's with food. I mean, gosh, it. There's not a single thing in your life that it doesn't touch, right? Yeah. So I just want to make sure that we're staying checked in, and that we're having the conversations, and that we continue, continue to talk about what's bothering us and what we can do better. You

Scott Benner 59:42
said you're in the kitchen all the time. Are you the security? Are you standing there making sure nobody has food or, like, what do you how do you managing it?

Valerie 59:48
I mean, I was, I was then, like, the first three months that we got diagnosed, and then I started labeling everything and saying, you know, okay, just let me know what you want, and I can get it for you. Or the timer with the pre bullet saying, so it's like, he goes in there and he wants it. I'm like, Okay, let's set a timer for 15 minutes. And he, like, looks at me, like, Well, I'm not going to be hungry in 15 minutes. And I'm like, Yeah, you will, don't worry, buddy. I'll just set it real quick. Just go play a game or whatever. That's been really hard,

Scott Benner 1:00:16
the weight, it's hard for everybody, not just him, like, Yeah,

Valerie 1:00:20
what a liberty to just be able to throw food in your mouth and not

Scott Benner 1:00:23
think about it, right? And what happens if you do that? He gets high, yeah,

Valerie 1:00:28
oh, yeah, for sure. And just two days ago, he was sitting on the couch and he was eating some pretzels, and I was like, Oh, I didn't realize you were, you were having a snack. I could have given you some insulin. Do you need? You know, do you need me to take a look at your numbers, and I was trying to be, like, casual about it and not guilt him. I didn't really understand if he forgot or if he just didn't want to care in the moment. But that has been happening more often, yeah, where he's just eating something and not saying anything, and I'm I'm trying to handle it the best I can and just

Scott Benner 1:01:01
listen. Only been at it for a year, first of all, and it sounds like you have a handle on a lot of it, and you're getting a handle on the rest of it, like it's not going to be see. Listen, I teased you a little bit earlier. It's a year. Yeah, you know what I mean, you're doing great, and you're going to do more, and you're going to learn more, and you're going to build on top of your grade, and it's going to get better and better, and you'll be less flustered, you'll be less focused on, like, constantly looking at it. You'll probably get to a point where you realize you can't, like, safeguard the kitchen, and that everybody gets to eat and stuff like that. Like you'll get it's just a process, right? It'd be easy for anybody to listen to, like, one section of anybody's, you know, interview, forget you and go, oh, like, they can't do that. Like, you know, I'm not telling you that there's not an argument for the other side. Like, I don't think you should have shut your kitchen down because eating disorders come weirdly from stuff like that too. You don't want that, right, for sure, but I see what you're doing. You're like, I gotta figure something out before we just, like, for like, like, something's gotta slow down a little bit so I can get a handle on this, like, firmly. So just keep doing that, keep learning, having experiences, adapt and expand your understanding, and keep going. You know what? I mean, like, I think you're getting there. It sounds to me like you're doing well, honestly, like, after, yeah, you know,

Valerie 1:02:23
I feel better. I have to keep reminding myself, too, though, that this isn't really happening to me. This is happening to Thomas. You

Scott Benner 1:02:30
have said a couple of things that I know that a like an adult living with diabetes would, like, cringe at, right? Yeah. It felt like you were looping yourself in with his experience. Yeah, yeah, and, but it must feel like that to you, right? I want to carry it. Oh, you're still stuck on that. Yeah, that has to go. I know. I know. Strap it to one of the pigs and let it go. Never abandon your animals. I'm sorry. I was just, gosh, those pigs, I don't know what you're doing there. You've made a couple of hinky decisions. The pigs is one of them. Although the soap thing sounds nice,

Valerie 1:03:08
oh, the soap is amazing. Which I started doing that because of my psoriasis. So that's been, you know, 20 years, 20 years making soap because it, you know, the fragrance isn't regulated as a lot of things aren't in a country that's quote, unquote free. So yeah, I was trying to eliminate those byproducts that were drying my skin out. But is

Scott Benner 1:03:31
it possible your psoriasis is autoimmune?

Valerie 1:03:34
Yes, yeah, psoriasis is autoimmune, right?

Scott Benner 1:03:37
So you have that going too. Gotcha. Yeah? Listen, here's what I think. I think you got to find out. What does anyone say is that's first he's got blood work done, right?

Valerie 1:03:48
Yeah. And I'm sure that they've said it, and I've been like, Oh, that's good. And then I just disregard the number, because there was nothing to worry about. So if I'm sure that that's what happened, I wonder if my husband knows. I mean,

Scott Benner 1:04:01
somebody said you it's good, and you were in, oh, they said, it's good. That's fine. I don't want you to do that, if that's what's happening. Like, I want you to know, yeah, I don't want you to obsess about it, but I want you to have that information, because I don't know how else you're supposed to begin to gage how things are going. You know, timing, like I said, timing range is great, but I can't see the rest of the range. I don't know what the other 20%

Valerie 1:04:21
look like. So okay, so maybe I don't understand what a 1c is.

Scott Benner 1:04:25
Is he going to the doctor, like quarterly and having a blood draw? Yes, and they're checking his a 1c Yes. Okay, that's the first step of every appointment. Okay? And then that number comes back and someone says to you, the number, or they say to you, it looks good. How do they handle it?

Valerie 1:04:42
Yeah, I don't. They're not really, like, focused on it

Scott Benner 1:04:46
at all. Okay? And you've never asked.

Valerie 1:04:49
I've never had to ask, yeah, because I think that they are just saying it, and I'm maybe I'm distracted when they're going over it. I

Scott Benner 1:04:57
hear you find out next time, like, next time something. See what's the A 1c i got my 80% time and range here, but I want to just make sure that, you know, correlating to what we're seeing. And you know, like, like as an example, right? Like, if your blood sugar went all day long, say it went from 50 to 450 to 400 it just did that. Like mountain peaks all day long. Oh, gosh, if that happened, your a 1c wouldn't look that bad, because it would do an average. It would show you an average between 50 and 40, which would put you somewhere in the middle. And you'd be like, Oh my one sees not bad. It's seven or something like that, right? That's not the right way to come by a lower a 1c but you're looking for stability, which I think your time and range is showing is pretty damn steady. You know what I mean, 80% between 70 and 160 is awesome. But are we jumping up and down in there? Are we having big excursions and leaving 150 or 160 and going to 400 or 300 and staying there for an hour and coming back down? If so, then this is not what you're shooting for. You're looking for more rolling, you know, gentle rolling hills on that graph. Like I said, again, anyone sees not everything. But I'm not asking so much because of the number. I'm just asking because it's a weird thing that nobody's made. It's so strange to me that somebody hasn't told you the value in knowing what it is. Yeah, yeah. It's interesting. And you've been to how many appointments now since he's been 230, 230,

Valerie 1:06:22
gosh, like five or six, yeah, because there were special appointments when we got our pump.

Scott Benner 1:06:27
But I mean, like, the actual, like, quarterly appointment where you go in and they, they pretend to look at all your stuff and ask you how you're doing, and take the blood,

Valerie 1:06:35
yeah, like four. And I think our next one is, like, in a couple of weeks. So this is, this is going to be at the top of my list.

Scott Benner 1:06:42
I'm super interested, okay?

Valerie 1:06:44
And then I bet. And so they have a log of all of it. Obviously, find

Scott Benner 1:06:48
it if you put, I'm not asking to do that now, but you would have access to that, right? Yeah, once you take a look and see, like it's just good for you to know where you're at. And you know for goal setting, too. If you, you know, some people don't like to think about the number, but like, I'm doing this, and this is the outcome I'm getting, you know. So if I want a different outcome, I can maybe change how we're using the insulin and how activity is being done, how eating is happening, like, a number of different things that can, you know, help you manage that idea. So I don't know. I just think you just have all that information. So

Valerie 1:07:22
I'm trying to apply the information that you did give me. So let me just double check that I understand if we are having, like, the the lows and then the high, and then the lows and the high, and our a, 1c, is like, at seven. Well, the graph with the number says that things could be better. But if the graph is showing, oh, you know, you're these rolling hills, and you're getting stuck every once in a while at 200 but then you come right back down with a good a, 1c, it's like a double check system, because

Scott Benner 1:07:53
it's like, yeah, you want to stay in range, and you want that range to be tighter. Like some some people will be like, Oh, I'm in range 100% of the time. And you look in their range is like 50 to 400

Valerie 1:08:01
and, oh, my god, yeah, I did listen to that episode, I remember. But if you're

Scott Benner 1:08:05
at 70 to 150 or 160 I mean, that's a pretty tight that's a pretty tight range, that's awesome. Yeah, you don't even mean all this a 1c is doing is measuring time and range. It's glucose on your red blood cells. I just think that's a thing you should understand, because then it'll lead you understanding other things Gotcha. And not only that, I just honestly, Valerie, like you stunned me, because I just No one's ever said that before. No, I swear to God, are you being serious? I've been stunned three times in the last three months. One of them was somebody telling me about their porn addiction. And the other one is, you telling me about this a 1c thing people have said, Oh, I don't know what my 1c is right now, no one's not been able to after a year of getting a 1c tell me about what their a 1c is that's interesting to me, like, and I don't know if that's incredibly healthy or disconnected. I can't figure out.

Valerie 1:08:54
I mean, I'm I'm asking myself the same question. I'm like, wow, I thought I was ninja level. And now I'm questioning, I'm questioning my process.

Scott Benner 1:09:02
I don't know, like I would, I mean, don't question yourself too much, because it really is a process. Just roll through and keep, keep adding to yourself. Like, I'm not saying, like, feel badly about any of

Valerie 1:09:11
this. No, I'm not. And, yeah, I get what you're saying. You talk to a lot of people. And yeah, people know the number, and I didn't. And, yeah,

Scott Benner 1:09:19
have you ever heard this sound effect that went off in my head when you said that? I was like, I was like, because you literally, you were like, Mom is on this I spend my whole day with this thing. I was like, What's your 1c he was like, I don't know. I don't

Valerie 1:09:35
know, whatever. What's your a 1c? What's a two? Yeah, you got a problem with my a 1c

Scott Benner 1:09:42
I definitely don't have a problem with it. I mean, I don't. I never get an A 1c done, and I can tell you my last day 1c

Valerie 1:09:52
Wow, I wonder, yeah. I mean, I know it's not above seven. I know that it's coming back to me now. I think that they did. Say, I want to say that it was like six, because it was the first one that's, this is what it is, okay. So the first appointment, they were like, well, this isn't going to be very accurate, because you guys just got diagnosed, right? And so then the second one was a little bit closer, but still not really accurate, I guess. And maybe that's why I've just been writing it off ever since

Scott Benner 1:10:22
they keep telling you it's not accurate. So why pay attention to it?

Valerie 1:10:26
I don't think that they told me that. I think that I just was kind of under the impression that, oh, we're still kind of that there's not enough data to really give us a solid number yet, but now that we're at a year, that's that's a lot of a one CS now we've got four. That's a good average. You're

Scott Benner 1:10:43
not going to average all four of them together. I would just look at the most recent one and take that as what's going on. Don't average all four of them together. If you because, like, one of them's during, like, diagnosis, right, right? You don't want to average them together. That's meaningless to average for a one CS together in this scenario. Like, if you want to look back over 10 years and go, Hey, like, on average over the last 10 years, my 1c has been six and a half and go, like, Oh, that's pretty great. Over the last four a one CS, one of them being a diagnosis one, there's no reason to like, in my opinion, to combine those four numbers and try to come up with and try to read anything into it. I would look at whatever the most recent one is the next time you get it and say, this is a good example of how we've been doing over the last three months. That's all you know. What have we done? And how is it? What are the outcomes? And this is about it interesting. Yeah, you got to keep going. Like, for only being at this for a year, you were doing awesome, yeah, right. Like, just awesome. But you're also probably not doing what you think you're doing, either. But that just happens to everybody. Like, everybody gets that, like, if you're lucky, you get to a point where you feel like, this is rolling. I'm doing this. You know what I mean, like, and I think you're, you're there now, which is, it's like, it's awesome, but you don't know everything. And, yeah, there is an exception. You're gonna keep learning along the way. You know what I mean? Like, I swear to you, a year from now, you'll be like, Oh my god. A year ago, I was on a podcast, and I thought I knew what I was talking about. That's insane. Yeah. And you'll feel like that, you know, over and over again. As this goes on, I find at least, like, I look back all the time and I'm like, Oh, that was weird. I thought that. But that's life in general, isn't it? Sure, yeah, absolutely. Have you ever considered jettisoning a few hobbies? Maybe you're not really busy.

Valerie 1:12:27
Mean, I so the way I justify everything is, like the focal point is like farm and like crafting and so I mean that just making money? No. I mean, I'm a hobbyist, so I try to cover my costs of the hobby, sure. So sometimes I'll, like, rope a few friends, and I'm like, hey, you know, I did the price breakdown. Let's do this this weekend, or whatever. And so, yeah, usually, you know, pays off or or not, but, and I think before, before diabetes, I I was thinking that I was gonna, like, open up a shop, or I managed a farmer's market for about 10 years, and so, yeah, a lot of my craft came from that. So, like, if we didn't have an enough soap, then I would start soaping and fill that void in the market. And the same thing with the bees and stuff. So there's just been ways that I've tried to apply my degree and be able to stay home. And, yeah,

Scott Benner 1:13:33
I mean, it sounds like you're doing it actually, I just don't know. Like, if you're like, you said I'm so busy. And I was like, Maybe you should just stop doing a couple of things. You wouldn't

Valerie 1:13:41
be as busy. Yeah, I have, I have thought about, yeah, dropping a few things off. I mean, hitting the easy button. It's exhausting more often than not. Yeah, it is really exhausting. And there's, you know, now that I am getting older, it's, it's not as easy physically on my body. And so I'm starting to, like, understand, like, Hmm, like, how, how long am I going to be able to manage five acres? Like, how long is that realistic? And I'm like, Well, I got all these kids cracking the whip on these kids

Scott Benner 1:14:14
tie yourself to the pig and just hold your arms out while it runs around the

Valerie 1:14:18
field. Boys are so different than girls, I tell you what? Yeah. I mean, I had just Ava for ever, and, you know, she potty trained herself for Pete sake. And then I have these three wild things, and they're just the opposite. I used to have to remind my sixth grader to tie his shoes.

Scott Benner 1:14:38
It's Where the Wild Things Are, that's for sure. Sounds like they're at your house. Yes, well, I appreciate you doing this with me greatly. I really do being so transparent and and just sharing how you feel and what's happening to you is such a big deal for people. Thank you. Yeah, I don't want you to walk away feeling like, Oh no. I can't believe I didn't know that thing. Like I thought it was like, No, I thought it was AWESOME. That you said that, because it made me wonder, how many people are going to hear that and go, I don't know my kids. They won't say either. Like, I'm interested now. Like, so take a poll. Let's find out. I don't I won't put you in charge of it. You have no time, but I'll do it all right. Hold on one second for me. And thanks again. I really appreciate

Valerie 1:15:15
it. Yeah, thank you. You foreign

Scott Benner 1:15:23
thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night. Whether it's their meal detection technology or the Medtronic extended infusion set. It all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox

the episode you just enjoyed was sponsored by the twist a ID system powered by tide pool if you want a commercially available insulin pump with twist loop that offers unmatched personalization and precision or peace of mind. You want twist, twist.com/juicebox, I'd like to thank the blood glucose meter, the my daughter carries the contour next gen blood glucose meter. Learn more and get started today at contour, next.com/juicebox and don't forget, you may be paying more through your insurance right now for the meter you have then you would pay for the contour next gen in cash. There are links in the show notes of the audio app you're listening in right now and links at Juicebox podcast.com to contour and all of the sponsors. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. You foreign if you or a loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one. Our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series and all of the collections in the Juicebox podcast are available in your audio app and@juiceboxpodcast.com in the menu, the episode you just heard was professionally edited by wrong way recording, wrong wayrecording.com,

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#1600 Into The Woods

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

Ten-year-old Emma shares life with type 1 diabetes, from gymnastics to MMA, carb counting at school, and spotting her cousin’s diagnosis before anyone else.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox Podcast.

Emma 0:14
I'm Emma. I'm 10 years old, and I have type one diabetes. I was diagnosed October 23 2018 I was three, almost four. If

Scott Benner 0:26
this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The show you're about to listen to is sponsored by the ever since 365 the ever since 365 has exceptional accuracy over one year, and is the most accurate CGM in the low range that you can get ever since cgm.com/juicebox this episode of The Juicebox podcast is sponsored by the Omnipod five, and at My link, omnipod.com/juicebox you can get yourself a free, what I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out, terms and conditions. Apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes. Links@juiceboxpodcast.com the episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and, of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org

Emma 2:26
I'm Emma. I'm 10 years old, and I have type one diabetes. I was diagnosed October 23 2018 I was

Scott Benner 2:35
three, almost four, almost four, and you're how old now I'm 1010, wow. You've had it for six years. Yeah, wow. Okay, that's longer. So you've had diabetes for longer than you haven't had diabetes? Yes, yes. Do you remember anything about being diagnosed? I don't, really, literally, nothing. Yes, nothing. So do you have? I don't know. I don't know how that I don't I'm old, so I don't know how this works for younger people. But What's your earliest memory of diabetes? Do you have like, one that sticks in your

Emma 3:04
head? Not really, but the only memory I remember was we were at a campsite. This is what, like triggered my diabetes. I was playing tag with another friend. I was the three, and we were running. I had tripped and I'd fallen into a bee's nest, and then a few days later, I got diagnosed. That was the only one. Wait, did the bee sting you? Yeah, the bees, I fell into the hive because it was on the grounds. Oh, my God, how bad was that? It was pretty bad. I got stung by like 20 ish, it was pretty bad. Did you have to go to the hospital? Thankfully, no, the other people at the camp had, like, Benadryl and stuff that they gave me.

Scott Benner 3:46
Oh, wow, did you yell the bees, the bees when it was happening, or anything like that. Do you remember, I

Emma 3:50
think I screamed and, like, because I was little, I cried and we had to go in the camper for a

Scott Benner 3:56
while. Are you telling me that if you fell into a bee's nest today, you wouldn't cry because you're not little anymore. I don't know, oh, because I would cry. I'm trying to figure out why you're so tough. You're like, I only cried because I was young. Okay, so you fell at the campground, got stung by 20 B's. And then how does that lead to the diabetes?

Emma 4:17
I think that either, like, triggered it, because a few days later, my dad was at a huge work meeting. My mom was calling him, like, shaking like, I don't know what to do. She has diabetes. My dad had to, like, cancel his work meeting at the place and drive back, and on the way back, he actually listened to your podcast.

Scott Benner 4:38
No kidding, he found my podcast while he was driving to meet you for the first time with diabetes. Yes, that's crazy. Oh, Emma, yeah, I'm wearing white socks today, yeah, and I have my feet up while we're talking, and my chameleon is freaking out because my socks are white. Oh, my God. This is so upsetting, because I really want to put my feet up. I. Hold on a second. Oh, I'm sorry, buddy. You should see him. Do you know what a chameleon is? Yes. Okay, so he is right now, bent in half, leaning away from me. His colors have completely changed to like defensive colors, and he is staring me in the face, like, Why did you bring those in here? But he just doesn't like certain colors. Oh, my God, I'm gonna take the socks off. He's eyeballing the socks. Hold on a second and take the socks off and I'm gonna throw them where he can't see them. This would be nice. A, B testing. All right, socks are gone, buddy. Okay, now, can I put my feet back up, although I am white, so I don't know like but I'm not as white as a sock. So yeah, all right, let's see what happens here. I'll look away from him for a second and we'll get back to it. Sorry. I just looked up and he was like, Oh, this is going to be okay. He's okay, okay, good. That's crazy, isn't it? You imagine being afraid of socks,

Emma 5:55
but only if they were white, only if they were white. That

Scott Benner 5:59
phobia you would have, I know. So you're in the hospital, you're young, you're only four. You don't really, you don't have any hospital memories, yeah, not really. I don't remember. Okay, that's fine. And then, do you recall, Mom? Let's, let's ask it this way, how much of your diabetes is in your control day to day?

Emma 6:18
A lot, sometimes, if the nurse, like, isn't there in time for snack, I just text my parents and what I'm having and, yeah, mostly

Scott Benner 6:27
that. So the school wants you to do it with the nurse, but if the nurse is there, you text your mom. You're like, Hey, I don't see a nurse. You know, it's snack time or whatever. Like, what do I do? Yes, could you do it without them? Yes, I'm pretty sure I could, yeah. And so are you good at counting carbs? I think so, yeah. Well, yeah. What's the highest your blood sugar gets in the in the course of a general day, a general day,

Emma 6:54
the highest it gets is like 130 but if it's like a bad day, like 200

Scott Benner 6:58
okay, how do you manage? Are you MDI? Do you have a pump? Do you have a CGM?

Emma 7:04
I started with MDI and finger poke, and I got the Omnipod and Dexcom three months later.

Scott Benner 7:10
Okay, so you're using just regular Omnipod dash.

Emma 7:12
Oh, yes, okay, because I have loop. Oh, you're looping. Okay, yeah. How

Scott Benner 7:16
long have you been doing that? A few years. Okay, you like that, yeah, it's the best thing for me. Awesome, awesome. Oh, look at you. You're like, you're like, out of a commercial. You're like, it's the, oh, who's calling me a spam risk. Hold on. It's

Emma 7:30
like, go away.

Scott Benner 7:32
Oh, sorry, don't they know, I make a podcast. So you've been looping for how long do you think? A few years. You said, Yeah, a few years. Okay, you've been looping for a few years. You go to counting carbs. You think of a high blood sugar as 130

Emma 7:46
kind of, yeah. When I'm 200 I do get pretty nervous.

Scott Benner 7:50
It changes how you feel internally, yeah, yeah. Explain that to me a little bit like how it feels.

Emma 7:56
I don't know why I get, like, so scared, but whenever I'm high, I get just really nervous, shaky, sweaty. I, like, get afraid it won't come down for some reason. Okay,

Scott Benner 8:06
so do you think you are having a physical reaction to the high blood sugar, or do you think you're having like, an anxiety reaction about seeing the high number?

Emma 8:14
I think anxiety because, um, whenever I look at it, I get even, like, really scared. Or what

Scott Benner 8:19
do you think is going to happen if it stays at 200

Emma 8:21
for a while? I don't know, I think, like I feel really sick, and that's mostly the reason,

Scott Benner 8:27
has that happened in the past that you felt sick with high blood sugar? Uh, yes, yeah, okay. I am not a professional therapist, okay, but I think that's the thing that you you could talk to your parents about working on like I do, yeah? I talk to them. What do they do for you? Like, try to make it better.

Emma 8:45
Tell me, like, it's gonna be okay. Blood sugar always comes down. We have insulin. We're all good.

Scott Benner 8:50
So they just give you reinforcing calming ideas, yeah, does that help you? Yeah, it does a lot awesome. What kind of activities are you involved in

Emma 9:00
I do a lot of sports. My biggest one is gymnastics. I started softball a few months ago. I do soccer, basketball and yeah,

Scott Benner 9:09
so you're trying a little bit of everything. What do you like? You have something that you prefer?

Emma 9:13
Gymnastics is my favorite so far. How come? What do you love about it? I just like being able to like work out and have fun with all my friends that are there

Scott Benner 9:22
and there's a dirt stuck in your socks when it's over. Yeah, that you're gonna get with softball. Oh yeah. Let's rank your activities as how good you are at them. Like gymnastics is first, or do you just love it?

Emma 9:34
I love it, and I think I'm way better than my dad at it. You're way better than what my dad, but

Scott Benner 9:40
your dad, he's so good, but your dad's in gymnastics too. Nobody

Emma 9:44
tries to copy me and watches me and he thinks he's so much better than me. Now,

Scott Benner 9:49
when that happens, what do you think in your head that you don't say out loud?

Emma 9:52
I think that he's so bad that he will never get it. Well, I really think that he could get it, but

Scott Benner 9:59
not. Gonna happen? He's busy, yeah, working and doing the things your mom tells him to do, right? Yeah, yeah, it takes a lot of time. Yeah, right. Okay. Then what else do you basketball? What's next on your list that you prefer? Like, if you couldn't play, if you couldn't do gymnastics anymore, what would

Emma 10:14
you do? And love soccer, softball, okay, all right,

Scott Benner 10:17
awesome. Like, I don't understand soccer at all. So, like, you just all running around crazy, right? And there's a

Emma 10:21
ball. Oh yeah, you kick the ball in the goal, and yeah, it gets pretty intense when you get older, though.

Scott Benner 10:26
Oh yeah. Is it intense now? Or you think it's going to get intense later?

Emma 10:30
I think it's going to get more intense. But people have been getting more hurt in soccer once we've been getting older.

Scott Benner 10:37
Have you identified the angry girls that run people over? Yes. Are you one of them?

Emma 10:44
No, I don't think so. Don't think so. No, I don't I don't try and kick people over. Awesome. Good for you. That's very nice. Do you have any brothers or sisters? Uh, yes, I have two brothers. Are they older or younger? They're older than me. I'm the youngest. Oh, do you not prefer that? I mean, I like being the youngest, but I also don't, because I don't get to drive and that type of stuff. Oh, they're already driving. My oldest is graduating soon, the middle, middle my brother, he is doing Driver's Ed right now.

Scott Benner 11:16
Hold on, Emma, have you ever thought this through like you're a lot younger than them? Yeah, I'm really I'm a lot younger. Either of your parents are you like a second marriage, baby. Today's episode is brought to you by Omnipod. Did you know that the majority of Omnipod five users pay less than $30 per month at the pharmacy? That's less than $1 a day for tube free automated insulin delivery, and a third of Omnipod five users pay $0 per month. You heard that right? Zero? That's less than your daily coffee for all of the benefits of tubeless, waterproof, automated insulin delivery. My daughter has been wearing an Omnipod every day since she was four years old, and she's about to be 21 my family relies on Omnipod, and I think you'll love it, and you can try it for free right now by requesting your free Starter Kit today at my link, omnipod.com/juicebox Omnipod has been an advertiser for a decade. But even if they weren't, I would tell you proudly, my daughter wears an Omnipod. Omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit, full terms and conditions can be found at omnipod.com/juicebox this episode of The Juicebox podcast is sponsored by the ever since 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days, but the Eversense 365 it lives up to its name, lasting 365 days. That's one year without having to change your CGM with the Eversense 365 you can count on comfort and consistency. 365 days a year, because the ever sense, silicon based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy and a one year wear you are looking for ever since 365 go to ever since cgm.com/juicebox To learn more, I

Emma 13:34
think so. I was technically an accident.

Scott Benner 13:39
Oh, you're, you're an oops baby, yeah, I gotcha. How much of life do you understand? Do you know what that means? Yeah, I think so. Would you please tell me your best explanation of what that means? Like,

Emma 13:53
they weren't planning on having any more babies. But then I came like,

Scott Benner 13:58
yeah, I gotcha. Okay, all right, that's what I could tell. Because usually, what happens when the youngest is that far off of the older ones, either, like, the parents have been divorced and remarried and you're like, the baby of a second marriage, or, you know, something happened that they weren't expecting. Yeah,

Emma 14:16
did they tell you that? Yeah, they told me that. How did that Do you remember how that made you feel? Yeah, I didn't really care, honestly, as long as you're here, right? Yeah, Jackson was technically an oops baby, too. Oh, your

Scott Benner 14:29
parents were trying to say, your parents are not very good at not having babies.

Emma 14:33
Yeah, my middle was the only one that was planned. What do you enjoy doing in school? I like math gym and art, those are my top math

Scott Benner 14:43
gym and art. And your dad has kind of a math based job too, right?

Emma 14:47
Yeah, but he's horrible at math. He didn't graduate college, didn't

Scott Benner 14:51
graduate from college. He tried to go to college and couldn't do it,

Emma 14:55
yeah? Like he couldn't, so he just dropped out. Your

Scott Benner 14:58
dad's a college dropout, yeah? Yeah, if you want to say it out loud, just so you can get it on the

Emma 15:02
recording, yeah, my dad's a big college drop out. There you go, awesome.

Scott Benner 15:06
How about your mom? What does she do? She

Emma 15:09
doesn't usually work, but she sometimes substitutes for kids in school.

Scott Benner 15:15
Yeah, hey, your pod's about to expire, yeah? What do you got four hours?

Emma 15:19
Oh, no, I have low reserve of insulin. I have four hours left. Oh, I do have four

Scott Benner 15:24
hours. Oh, look at me. How much insulin Do you have? A 25 more units. Oh, how much do you know? How much you use in a day,

Emma 15:30
in a day, I honestly don't know.

Scott Benner 15:33
Okay, what do you know? What your a 1c is right now about

Emma 15:36
it's about either like six or five point like nine or eight.

Scott Benner 15:43
Okay, so let me ask you a couple of diabetes questions, right? Are you good at answering diabetes questions? Yeah, I'm pretty sure I'm pretty good. We'll find out together. So you're 10 years old, you've had diabetes for six years. You're looping, but you, you know you, you have your parents help, right? But you can do it by yourself. You feel pretty confident. So that's kind of the setup of who you are around diabetes. Yes. Now, how do you eat? Are you like a trash baby? When you eat, you eat pretty well. Like, what's a go through your day? For me, what did I have? What do you have for breakfast, lunch, dinner?

Emma 16:13
Okay, so I always have the same thing for breakfast. It's this protein bar I have. It's like 12 grams, 12 minute timer every morning, and I know how to bolster that really well now.

Scott Benner 16:24
Okay, and then is that, do you eat that way because you have diabetes, or that's how you prefer to eat? Both? Okay, all right, so you wouldn't eat like a bowl of Apple Jacks?

Emma 16:33
I don't think so. I would. Have you ever had an Apple Jack? Never had an Apple

Scott Benner 16:38
Jack? Let me tell you something. They're not good. Okay, yeah, but if I could put you in a time machine and take you to 1977 they were awesome. Do you understand they were awesome back then? But now I don't know what they are, garbage, Styrofoam, okay, now, okay, so you have a nice protein bar. In the morning, you get up. They tell me how you set take me through it. You wake up in the morning. Where's your blood sugar? Usually when

Emma 17:01
you wake up, usually when I wake up, it's like 100 to 80s, like 80.

Scott Benner 17:07
Okay? And then you get in the shower, you give yourself insulin. How's your day go?

Emma 17:11
So then after that, I either ask dad to Bolus because I'm too tired, or I Bolus myself. Is it

Scott Benner 17:19
difficult for you getting up in the morning? Yeah, I don't, I don't

Emma 17:23
like mornings. Has it always been that way? Pretty sure.

Scott Benner 17:26
Do you have hypothyroidism or any other autoimmune issues? Uh, no, I don't think so. Okay, you don't think so. Do you take a pill for anything? No, I don't take a pill. Okay, all right, so your dad comes in and wakes you up, or you wake yourself up.

Emma 17:38
Sometimes He wakes me up. Sometimes I just wake up.

Scott Benner 17:42
There's no way that Arden would let me share this online, but I have a video of me trying to wake Arden up when she was, like, young and in high school or middle school or something, and I'm literally, like, picking her limbs up off the bed and dropping them and just like, and she's not like, I'm like, I'm yelling, Arden, Arden. I'm banging on things, like I'm making my phone make noises, holding it up to her ear, dropping her limbs, like she looks like a dead body. Okay, so now we've had our protein bar. Yeah, you are you finally awake? Are you a problem in the morning? Do you know what I mean? Do you give your parents trouble? Not really, not usually. Okay. Now, do you spike from the protein bar? Or you're good,

Emma 18:20
because we've had it for a long time, I'm pretty good with it.

Scott Benner 18:24
It took you a while, though to figure it out. Yeah, okay. And then you get your energy. You feel good. You're off to school. Yeah, all right, now, when's the first time you eat at school? School

Emma 18:33
starts at like you get on the playground at 810 you have to be inside by 830

Scott Benner 18:40
Okay, so you get a playground, you mess around a little bit. You say hi to people. It's like a, like a, like a meet and greet in the morning, right? You find your friends, blah, blah, blah. Head inside and you eat lunch. Then do you have a snack in the morning? Do they let you snack? Still? Are you too old for that?

Emma 18:55
If we're, like, really hungry, we didn't eat breakfast, you could go down to the cafeteria where we're having recess. To go grab a breakfast.

Scott Benner 19:02
Okay, you don't do that? No. Okay, so lunch comes. You go visit the nurse.

Emma 19:06
No. So I usually just, if I get hot lunch, I go grab it and sit down. If I'm out of the cold lunch, I just go straight to the table and sit down. When do you? When do you? Bolus, usually when I start eating, or it's either eyeball us or the nurse comes. The nurse comes either a little after or a little before I'm

Scott Benner 19:26
there. She comes to you in

Emma 19:28
the lunch room. Yes, and one of my other friends that has diabetes,

Scott Benner 19:32
they call that concierge service. That's lovely. You don't have to go to the nurse room, the nurse room, sorry, the nurse's office, and she comes to you. Yes. Do you ever tip her? Give her a couple bucks? You know what I mean? Not really. No. How funny would that be one time if you turned to her with a couple dollars folded in between your forefinger and your pointer finger, or your middle finger and your pointer finger, and you just reached out with you said, Hey, I appreciate it. Please do that one day and tell me how that goes. Yes, I will. That would be hilarious. You just you turned her to go, Hey, and you get her in real close. Just reach out with the dollar, and you go, you're doing a good job. All right, sorry. Okay, so she boluses for you. Do you spike at lunch?

Emma 20:13
If it's like hot lunch and we're having, like, french toast sticks, usually I spike a little bit. But if it's like my normal lunch, no, you

Scott Benner 20:21
know, it's funny, when you said that you have a protein bar for breakfast, I thought, oh, like, you're a little Jenny in training. Do you know who Jenny is from the podcast? Like, she's in, like, the pro tip stuff and stuff. Oh, yeah, okay. I thought, like, Oh, that's it. But no, you're, you get the school and you're, you're like, I'll have some french toast sticks with everybody else, right? Okay, all right. So it's so that's carb heavier, harder to deal with. But what is it your parents have figured out how to Bolus for that usually, yes, okay, because I mean a 596, a, 1c, is really awesome. You know that, right?

Emma 20:51
Yeah, a few times ago when we had went to, oh, my nurses are like, Corey and Tori at, like, not school. What

Scott Benner 21:01
are you in a Disney Channel show

Emma 21:06
we go to there for, like, when I need to get my diabetes check up. And a few times ago, one of the nurses came in with her, like, jaw dropped, and they gave me a squishy my a 1c, was 5.6 or 5.50

Scott Benner 21:18
wait, your nurse in the school, or your nurse at the like, the endos office, the endos office. Oh, you got a doll for having a good a one say,

Emma 21:25
well, it's like this little, like, squishy panda. I got awesome. You should

Scott Benner 21:29
hand it back to him and say, I prefer cash poor Bitcoin. Tell them that next time go, oh, yeah, give me some bitcoin. Yeah, I prefer cash or Bitcoin. And then just hand it back to them. And then don't and look away, like, as if it doesn't bother you at all. What kind of squishy did you get? Squishy

Emma 21:43
did you get? Um, it was just, like, rubber, squishy type of thing. What's it like? Though, it's a kind of, like a panda, um, it's, it's in like a plastic bag, but you open it, you get, like, the squishies from like, Dollar Tree or something. Yeah,

Scott Benner 21:56
you should, you should have said, thanks. This is gonna end up in the ocean. Give them like, a real black bummer feeling. Well, that's nice. So they, they incentivized you. They with, with plastic tchotchkes. Do you know tchotchke means, uh, no. What does it mean? It's a Yiddish word. It just means a thing that sits and you look at it. Did they say stuff to you like, Oh, my God, you're the best person we have here. Or, like, what is like, what are their names, Millie and Jilly. What are their

Emma 22:23
names? Again, Corey and Tory. Corey and Tory. Gotcha so. Corey is like, he's a boy. He's like, the one of the head people there that I do for he said I was one of the best because he right before this, he saw someone with like, like a point 11 or 1111,

Scott Benner 22:40
yeah, yeah. Corey, pitting you all against each other. Do you eat again in the afternoon at school or not? Till you get

Emma 22:47
home, we have a snack like right before we leave, kind of like we have snack special, and then pack up and go home. When do you learn anything? Oh, so when we get there, we usually have morning meeting, math, social studies, lunch, recess, social studies, reading, writing, and then snack, and then special.

Scott Benner 23:08
Did you have to do school and covid? You know you were like six during covid, right? Six? Yeah. Did you have to do, like, school online, a little bit? Yeah. Do you prefer going there or doing it online? Oh, I prefer going there, okay, because is it the people or just, do you like it now the house? What is it you like about

Emma 23:26
it? Getting to see my friends, yeah, yeah,

Scott Benner 23:29
seeing people, right? Okay, well, that makes sense. And

Emma 23:31
something crazy happened last Thanksgiving. Actually, what? He's one of my cousins, peeing and drinking a lot, blah, blah. They come over for Thanksgiving. We had a big party and jokingly tested blood sugar. It was 700

Scott Benner 23:44
Wait, hold on. Cousin has diabetes.

Emma 23:48
Yes, he has diabetes now. Or she

Scott Benner 23:50
just like making fun of him. Or did she know could be something?

Emma 23:54
She knew it could be something because talks about like me a lot in my diabetes, that some of the symptoms were that, because I tell her about some of this stuff sometimes,

Scott Benner 24:04
wow. Okay, so notices peeing a lot, mentions it to who

Emma 24:08
to my parents, because we have, like, a tester, and after we found out he did had diabetes, because we tested a bunch of other people with different needles, the meter was right, and we actually gave him some insulin, so we technically diagnosed him. Oh,

Scott Benner 24:24
look at you take an event. Also, I don't think it's legal to do that, but don't that's okay. No big deal to what you do. Go around the room and test everybody you turn into a party. Well,

Emma 24:32
everyone wanted to because,

Scott Benner 24:36
yeah, all right, let's figure out how. Oh, gosh, okay. Is somebody's kid? Is it your father or mother's brother or sister? It's my mom's sister? Your mom's sister's son has type one diabetes too?

Emma 24:51
Yes, he's had it for like, about either six months or a year. Does your

Scott Benner 24:55
mom have anything like, like, thyroid or any. Me like that, yeah,

Emma 25:00
she has all of thyroid and a few other things. I don't know lupus

Scott Benner 25:04
really, your mom, yeah, she has some more. Oh, she's collecting them, like squishies. Yeah, I got you. Okay, so your mom has thyroid, lupus. How about on your dad's side? Anything over there? Just bandage gymnastics,

Emma 25:16
yeah? But also, he has ADHD on his side,

Scott Benner 25:20
oh, yeah, he has ADHD, or it's in his family. It's in his family, and

Emma 25:24
he has ADHD. It's both. Do you notice that, yes, he has to take meds for it, and my brothers do too.

Scott Benner 25:32
From your perspective, what does ADHD look like on your dad? Pretty

Emma 25:35
like, getting more mad at us sometimes. And he was like, just he was like, it looks like he was going crazy a little bit.

Scott Benner 25:45
Oh, awesome. I think he's gonna love hearing that so but with the medicine, he's less crazy, or not crazy.

Emma 25:53
Oh, he's not as crazy, but he's when he doesn't take it. It makes him feel like, I don't know if it's like, depressed is the word. It makes it feels like sadder and like, madder. Yeah,

Scott Benner 26:05
crazy. That's interesting, huh? And you don't have any of that, no, but you don't think so. You don't think so. I

Emma 26:13
don't think I do.

Scott Benner 26:13
But like, Have you ever had a moment you're like, Oh, I just acted crazy.

Emma 26:17
Not really. I don't think unless, like, I was like, really mad. Gotcha. What would make you mad? Kind of if someone's like, I love we all love animals. We have a lot of cats, chickens and dogs. If someone was like, abusing or hurting an animal or like hurting

Scott Benner 26:33
someone else, the chickens and the cats can't be together, though, right? Oh no. The cats are inside. The chickens are outside, right? You eat the chickens or eat the eggs. We eat the eggs,

Emma 26:43
and sometimes we have to call the chickens, like, kill the roosters. Why? Because they get because we have too many and like, oh yeah, we have too many of them. The eggs are mixing and like, the roosters are getting too mean to each other, I

Scott Benner 26:58
see, so yeah, so you can stop them from being mean by eating them.

Emma 27:02
Whoa, kinda, yeah. Oh, I've watched them be been killed before by my dad. I

Scott Benner 27:07
don't wanna know exactly where you live, but, like, What state do you live in? Maine, you live in Maine,

Emma 27:13
yeah, I live we live in Maine. We're like, at the end of the road. So we could technically have

Scott Benner 27:18
chickens. The end of the road makes a chicken available? Well,

Emma 27:22
kinda, it's like everyone else, like, down the road, except for one person can't have chickens, really? Yeah, I don't know why. Our house where it is, we can,

Scott Benner 27:32
that's interesting. Okay, we have, yeah, it's incredibly cold there in the winter. Yes, yes, very cold. Do you wish that your parents would move somewhere warmer? Kinda, yeah. Where have you been on vacation that you enjoyed?

Emma 27:44
I liked Cape Cod a lot. And I don't remember this one, but I would like to try and go to Florida, because it's really warm.

Scott Benner 27:52
It is really warm. Yeah, it'll definitely be warm and humid. You know what humidity is, I think. So you think so? Yeah, does it get sticky in the summertime there?

Emma 28:02
Uh, yeah, like, inside right now, I don't know if it's the heat or, like, they have the crank the heat cranks. I'm sweating right now,

Scott Benner 28:10
are you or you're in a room, and they close the door too, right? Oh, yeah, and the windows not open. I'm hot when I make this podcast, too, because I turn the air conditioner down so it doesn't make noise. I, like, close the door, and then eventually someone will come in here after I'm done and be like, Oh my god, it's so hot. And I'm like, yeah, no, I know you're welcome. I that's what I say. I'm like, You're welcome for working. You know what? I mean? I know this is weird. Isn't this weird that this is my job talking to you, yeah, don't get full of yourself and think you're gonna get a job like this one day. No, it doesn't work that way. All right. You got to go do a real job. Do you have anything you really enjoy doing? I either want to be a chef or a veterinarian. Why not be a chef for dogs? Perfect. Combine your loves, you know what I mean? Yeah, then you gotta, just gotta find one rich pop star and talk them into letting you cook for their dog, which I'm sure you could do chapel Ronan, looks like she'd go for that in two seconds, doesn't she? Yeah, you could trick one of those. Do you like cooking? Do you get to cook?

Emma 29:09
Yeah, sometimes I cook dinner, not, not a lot, because I don't want to. But sometimes, if it's something I like, Yeah, I do

Scott Benner 29:16
Emma, let me tell you a secret, no one wants to make dinner. Do you have that thing in your house when you go out to eat and nobody can decide where to go? Yeah. Do you guys fight when that happens? Not.

Emma 29:28
Usually. We just have to, like, choose one place. We have to, like, all put in a like, either we use this, like, spinny wheel that we have on our phones, okay, that sometimes, or we just choose a random place. That's not a bad idea, but I do. I don't like McDonald's.

Scott Benner 29:44
No, no, we don't want to go to McDonald's. Yeah, I know this sounds crazy, but we're out of school. They give you a snack at the end of the day you go home, are you very hungry when you get home from school? Usually, yes, all right. Do you eat something? Yes, and your mom's there, because as we went. Over earlier she doesn't work. Is that, right? Yes, you like that. Your mom's at home when she gets when you get home,

Emma 30:06
yeah? Because I get to, like, play with her a little

Scott Benner 30:10
bit. Yeah, she messes around with you guys for a while before she sends you off to do your homework.

Emma 30:13
Yeah? Or she helps me with my homework. Sometimes look at her and she's

Scott Benner 30:17
probably bored, you know what I mean? Yeah. What do you think she does all day when no one's there.

Emma 30:21
I either, like, clean the house a little bit, or like, chillax, because I really don't know, because she had broken her back a while ago, and we had to, I don't know where it was. I forgot where it was. We had to fly somewhere. We had to fix her back. And then when we went back to the airport, and my mom had to walk through, they wouldn't let her go through with the wheelchair, so she had to use a cane. But her back was

Scott Benner 30:45
really she should have been in the wheelchair. Yes, wow, but she gets around. Okay. Now, yes, she can walk a lot better. Now, awesome, like when you leave for school in the morning. You ever go, Hey, why don't you do some laundry or clean this place

Emma 30:58
up a little bit? Sometimes she does do the laundry. My dad doesn't.

Scott Benner 31:02
Oh, really, yeah, I do the laundry almost exclusively here. You know, I wrote a book one time

Emma 31:09
we oh yeah, my, my dad has a bunch of books from you on his toilet.

Scott Benner 31:15
Wait, my, the one with the picture of the guy like holding the laundry is on your toilet.

Emma 31:22
I don't know if it's that one, but we have a bunch of your your books on like the toilet, so we could just read them.

Scott Benner 31:27
No, no, I think you're thinking about me. I only have one book. Oh,

Emma 31:31
my I asked my dad. He said, too. It must be that one. Who's your dad cheating on me with?

Scott Benner 31:38
We'll find out. Yeah. Anyway, I was gonna say the book is called Life is short. Laundry is eternal, because I constantly am doing laundry. Like, yesterday, I was up here programming something for any I can't say what it's for yet, but I was doing something for the podcast, and in the middle of it, like, in the middle of like, Oh, I gotta put laundry in. Like, I ran to put in laundry that it's like, beeping and like, I'm like, Oh, I gotta put the dryer now, okay, now, I gotta fold it so you're at home. Your mom's there. You guys mess around, which is nice. You like that she's there. Yes, somebody's gonna make dinner. It's not you, because you like to cook, but not that much. And you, Bolus again, do you have a snack in the evenings before you go to bed or, like, or is that I'm trying to go through your whole day eating

Emma 32:22
sometimes I have it before bed. Usually we have, like, sugar free ice cream, kind of, like vanilla ice cream. I usually either have, like, a little bit that or just nothing before bed, sugar free ice cream. It's not, like, completely sugar free, is it good? But it's, yeah, it's pretty good. It's vanilla, all

Scott Benner 32:39
right. You like it, so you're not just eating it. Like, oh, I guess this is okay for sugar free, but you actually enjoy it, okay? Yeah,

Emma 32:46
it's not as good as, like, we have a ice cream shop down the street, and it's, yeah,

Scott Benner 32:52
awesome. I wonder if the ice cream shop has a refrigerator, if they just use main to keep their ice cream cold, yeah? I mean, because very cold. Are you near the ocean,

Emma 33:01
we have a river in our backyard, kind of like, if you walk down, we have a campsite, and then if you keep going down, we have a huge

Scott Benner 33:09
river. You know what's so funny when I was young, I remember there being this pretty, like, big creek that ran through my apartment complex. Sorry, I'm not fancy, like you people with the house, but it ran through my apartment complex. We used to play in it and cross it and all this stuff. And in my mind, it was, it's huge, you know? And as an adult, I went back there one time, and it is a trickle of garbage water, barely like, I couldn't believe how small it was compared to my memory. Oh, my God, you know, like, you'll also one day have this experience where you go back to your elementary school and realize that, like, you're you'll feel huge, yeah, in there anyway. Like, it made me wonder, like, Do you have a river in your backyard? Or is it like, or is it just like, this small trickling of water that one day you'll be like, Oh, that was not a river, because a river is, like, pretty specific, is why? Like, you know what I

Emma 34:06
mean, if you go down, there's a bunch of like, huge rocks, like you can walk on them. There's a river in across the rivers, a street with like, more rocks on that side. If you keep going down the rocks, we have that. We call it a cove. It's like a sandy

Scott Benner 34:20
beach. Oh, nice. Yeah, huh, this is fancy. Yeah. You like it? Do you like living there?

Emma 34:27
I do like living here, but the trees, because this place, I don't know how much we got it for. It was like 100 I have no idea.

Scott Benner 34:35
Yeah, you don't need to make up a number. But go ahead, it was

Emma 34:39
less than we expected that it would be now, but why it was, like, so cheap is because there's so many trees here,

Scott Benner 34:45
so a lot of the ground, you have a lot of land, but a lot of it's covered in, like, woods, and there's not a lot you can

Emma 34:50
do with it, yeah, there's, like, a lot of leaves. There is a lot we can do with it, because my dad cut down the tree, a lot of trees to make, like, a

Scott Benner 34:58
pathway down to the river. Yeah. Is your dad? Like a big, strong guy. He

Emma 35:02
looks pretty skinny and weak, but he um, actually lifted 100 something pounds the other

Scott Benner 35:07
day. Wow. He lifted up 100 pounds even though he's skinny and weak. Well, he looks weak,

Emma 35:12
but he um, not what? Yeah, what he says is, um, the muscles are made in the kitchen. That's what he always says. Do you have

Scott Benner 35:21
any idea what he means when he says that,

Emma 35:23
like, eat healthy and that type of stuff? Yeah,

Scott Benner 35:26
that's a good idea. Are

Emma 35:28
there animals in the woods? Sometimes, we see deer a lot, but no bears, not usually we see turkeys in our yard. Sometimes, yeah,

Scott Benner 35:38
turkeys are fun. They're loud, though, aren't they? Yeah, so, so you're not afraid to play in the woods, is what I'm saying. Sometimes,

Emma 35:45
like, I get nervous. If I see like a big footprint, or like, the trees are

Scott Benner 35:52
shaking, I get scared. Yeah, what do you what do you think the footprints from? I

Emma 35:55
honestly don't know. But the other day I was looking it was, I wasn't the other day. It was in winter. I It looked like a moose footprint, like a big moose, yeah, but I think it was just a huge deer, because the footprint was huge and it looked like, um, it wasn't like a human footprint. I

Scott Benner 36:14
hear what you're saying. Do you want me to find out if they're bears where you live? Uh, sure. Honestly, bears in I remember the name of your town, although I'm going to ask Rob to take the name of your town out, but I remember it. So hold on a second. Asking chat. GPT, are you using that,

Emma 36:32
by the way, yeah, I use that sometimes. What important things are you asking it sometimes i i usually just mess around with it. Yeah,

Scott Benner 36:41
just ask it, like, stuff. Do you think it's going to take over for Google, for kids?

Emma 36:47
Oh, yes, yeah. I also asked, like, how many carbs are in like, say, I'm having to see pop as how many grams are in a Tootsie Pop? And,

Scott Benner 36:56
yeah, it knows that, yeah,

Emma 37:00
oh, I actually have a joke for you. Go ahead, tell me the joke. Okay, it's a pretty long one, but so there's 500 bricks on a plane one falls off. How many are left?

Scott Benner 37:09
500 bricks on a plane one falls off. How many are left? 499,

Emma 37:14
yep. And then, how do you put an elephant in a fridge? How

Scott Benner 37:18
do you put an elephant in a fridge? Yes, one piece at a time,

Emma 37:22
you open the door, put the elephant in, and close the door. How do you put a giraffe in a fridge?

Scott Benner 37:28
Maybe you open the door, you put the giraffe in the fridge and you close the door.

Emma 37:32
No, you open the door, take the elephant out, put the giraffe in, close the door.

Scott Benner 37:36
Oh, really. Okay, now the giraffe in the refrigerator. Now what

Emma 37:40
so the lion kings having a birthday party. Every single animal is there except for one animal. Which animal is it? Lion

Scott Benner 37:47
kings, having a birthday party, every single animal is there except for one animal. Which is it? Is it Mufasa? Because he died?

Emma 37:55
No, it's a giraffe because he's in the fridge. Oh, how come? I didn't put that together. Do you think? And then Susie's crossing the alligator like, um, but she survives. How does she survive?

Scott Benner 38:06
Susie's crossing the alligator Lake, and she survives. How does she survive? I don't know,

Emma 38:11
because all the alligators at the birthday party, but she still somehow dies. How does she die? Does she drown? No, the brick from the plane.

Scott Benner 38:21
Oh, it answered that. This is one big joke you're telling me. Yeah, that was the whole joke. That's awesome. Jeez, hey, there are bears in Maine. Oh, yeah. Maine supports 24,000 to 36,000 black bears, the largest population east of the Mississippi River. What that means for where you are, it's prime bear habitat urban edges don't stop bears that follow river corridors and green belts looking for food. Bears are active from early April through November. Residents start reporting sightings each spring. As soon as natural food is become scarce, you're growing up in a world where anything you can ask will get given back to you immediately. Yeah, right. Now, when I grew up, when I was 10, it was 1981 when I was 10, Oh, right. It's crazy, right? Yeah. And back then, there were five stations on my television, right? So you don't even think of it as stations. You think of it as like, apps or, yeah, like, right, YouTube, right? So there was ABC, CBS, NBC, PBS, those were the stations I had. They were on one dial of my I know you don't even understand this, but there was a thing you turned on the like a dial, you turned on the television to change the channels, and then there was another dial at the bottom that was UHF, and that had, like, channel 48 channel 29 like, there were, like, they were kind of like junky channels, yeah, right. If you wanted to watch a football game, for example, yeah, you had to sit down when the football game started, and you had to stay sitting there and watch it the whole time because it only played once. You could not record it. You couldn't pause it. Like you. Had to sit there and watch it like that was. How insane is that? Right? Phones hung on the wall. They didn't go in your pocket. They had long cords on them so you could walk around while you're talking on them, but all they did was make phone calls. You couldn't do anything else with them. Oh, there were no computers in your house. Some people didn't have microwaves at that point. What right, how old I am, right? And so then and so, like, a day in my life was like, get up watch cartoons on UHF channels. This is my Saturday, okay? I'd get up really super early. I had to be up at 6am to watch Mighty Mouse. Do you know what Mighty Mouse is? I have no idea. It's a cartoon. Okay, I had to be up at 6am to watch Mighty Mouse, and then I had to sit through some other garbage, religious based cartoons until seven o'clock and then, and then I could watch like super friends and Tom and Jerry and stuff like that. Okay, oh my God. Then it was 8am cartoons were over now, like they would come to an end, and you could feel your soul die because you were like, Oh no, the cartoons are done until next week at 6am oh my god, and then I had to live for the next 12 hours. But what would I do? Think about it. Now, what do I do? I'm dumb. I don't read that already takes out a whole thing. Now, I got to go outside and pull weeds and cut the lawn and like, right, right, right. There's nothing to do. I talked to my grandmother a little bit on a Saturday, maybe my mom, my brothers, we go outside, we play. Our parents would just kick us out of the house. Oh, my God, get outside. Come back later.

Emma 41:50
Okay, all right. My dad had a way different childhood than

Scott Benner 41:54
that. I imagine he did. And I know, hold on, we're gonna find out about your dad's in a second. Okay, all right. And so then eventually I got a computer like, let me tell you. When did the first Radio Shack computer? My god, that's all become available for retail. This is when I bought my first computer. Now keep in mind, I've just asked a prompt on one of my two computers sitting on my on my screen right now. Oh, the TRS 80, which is what I got. Oh, my God, this historically released in 77 but that is not, certainly when I got it originally, like it was available for a long time before people actually use them. Oh, I bought it, I think when I was like, maybe 13 or 14. So this thing's gonna get it, yeah, so it was out already for a few years. When I bought it, I bought it in like, 84 maybe, I don't remember exactly anymore. Now, it didn't do anything. So I returned it like it was literally just you could code on it or program on it for back then, but I didn't know. But I didn't know how to do that, and so I bought it. I was like, oh, man, this thing's gonna be amazing. And then it wasn't, and I returned it. Okay? I saved for how many years to buy the computer? A lot, yeah, four years of saving my money to go buy the computer that when I got it home, I typed from a book. I took a book that had code in it, and I sat down, I typed out that code for days, and then I hit Enter, and it said error. Then I went back to the book, re went through all the code, found the like one place. I made a typo, fixed it. Hit enter and tell me what you think popped up on screen. It didn't work. No, it worked. What did I get? What did you get? It was a stick figure, man. He did one Jumping Jack. Oh, my God, that's right, that's right. And when it did that Jumping Jack, I unplugged that thing, put it back in the box and took it right back to the store. It's like, this ain't ready for prime time. Then my next one was a Commodore 64 and that only really played games and did like, little like, it didn't really do anything. Yeah, right. But even that, like, that was my whole like, day. Like, that, was it like nothing happened. Do you understand? We'd go to school, we'd come home, we'd argue, fight, eat a little food, go to bed. There was nothing to do. You are going to grow up in a world that not only has the internet right, which I know you don't know, is important, but it's super important. You have the internet and you have AI, your life is going to be so incredibly different from mine in ways that we can't even figure out yet. Yeah, like, what do you think you'll like, really, you're like, oh, I want to be a chef or, like, work with animals or something like that. But, like, I mean, will that even exist?

Emma 44:55
Good? I don't

Scott Benner 44:57
even know, right? Like, your dad's job. Didn't exist 20 years ago. Yeah, right. My job didn't, like, think about my job, right? You and I don't know each other. We're talking we're recording it. Yeah, people are gonna listen to it, like, on their phones and their computers all over the world, like somebody right now is listening to this in Australia, England, China, India, Canada, Mexico. Like, like, seriously, like, this conversation, right, right, right, right. It's crazy, right? And so, like, yeah, they can only do that because the internet exists and phones exist, yeah, right. And so before that, if you would have gone back to before the internet, which, you know, or before cell phones, and said, One day people are going to talk about diabetes in their house, record it, and people all around the world are going to listen to it. Nobody would have even understood what you were saying, yeah, right, because they would have said, Wait, they're going to be on the radio. That's what they would have said, Oh, my God. And you would have said, no, no, not on the radio. And then they would not have context for that. So Don't you wonder, what is it you don't have context for right now that's going to happen in your lifetime. Oh, my God. What do you think it could be? Make up. Make a

Emma 46:09
guess, a levitated car or something. Maybe I have no idea. They used

Scott Benner 46:14
to say that when I was a kid. They used to say, like, when you grow up, cars will fly.

Emma 46:17
Oh, my God, they don't fly.

Scott Benner 46:21
Maybe that's not a thing that could happen. Like, it's going to be stuff you don't think of. Yeah, right, oh my god. Like, I imagine one day that you will just sit down at a computer and tell it, like, Hey, here's my charts and my graphs from my blood sugar from this week. Like, what should I change? And it'll just give you, like, oh, like, turn this setting here, do that there. But then one day, what I imagine is that your pump will just do that. Your pump, your pump will just go, you know, okay, like, here's a week's worth of data. Me, because your pump knows where food went in. It knows how many carbs went in, right? It knows what insulin happened. It knows what happened afterwards. If it keeps that information and just goes over it can't it just make adjustments. I mean, it could right like, so maybe one day, that won't even be a thing, you'll have to think about very much. That would be so cool. Yeah, tell me why that would be cool. It would be cool because I wouldn't have to worry about it. Is like, Yeah, and you do think about it. I think about it a lot now, yeah, yeah. Tell me what that means. Like, what does think about it a lot. Mean, let's

Emma 47:32
say in class, if we're right in the middle of something, and I feel I always have to, like, immediately check, let check it. Or else, like, I get nervous and I, I feel like that's one of the things that I depend on, is diabetes and like my pods, is it because

Scott Benner 47:47
you don't want to be different than the other kids, or you just don't want the hassle?

Emma 47:50
I think I just don't want the hassle because I'm fine with being different that

Scott Benner 47:54
you have no trouble with. You don't care about people knowing you have diabetes or anything like that. Nope. And does anybody give you about it?

Emma 48:01
Not really, but a lot of little kids come over say, What's that on your arm? What's it on your leg? And I have to, like, explain it to them.

Scott Benner 48:08
Anybody who would send me an email to complain to me about the way you and I are talking? What should I say? Back to them,

Emma 48:14
shut up. Shut up. Ish, just anything like that. Awesome. Do you think about boys? Yeah, yeah. So

Scott Benner 48:23
are you like, like, lining up, which ones, like, do you guys all have, like, boyfriends at school, kind of thing

Emma 48:28
I did, but I don't anymore. I have a crush. Oh, yeah, yeah. I can't say his name, though he's coming over today. Oh, does he know that you have a crush on him? I don't think so, but I pretty sure he might have a crush on me. Yeah. Why do you think that? Because, um, like, I play Four Square recess, and whenever we're playing four square, even if I know, like, I'm definitely out, he always is like, Oh no, she's not out because blah, blah, blah, but he has a girlfriend, but I don't think like he doesn't seem to like his girlfriend.

Scott Benner 49:00
That goes around sometimes, and vice versa, vice versa. So right now, you're, you're lining up to be a home wrecker. You're trying to, you're trying to get her out so that you can get in. Is that

Emma 49:10
right kind of well, I'm friends with her, so how are we going to handle that? I don't know. I'm just not going to tell them. I'm not going to tell them. So you until,

Scott Benner 49:20
yeah, you keep it to yourself. You let them break up naturally, yeah. And then you, then you come in,

Emma 49:26
yeah. I come take my shot,

Scott Benner 49:27
yeah, take your shot. And where do you think this will go, like, when, when you're 10 and you're dating? What does that mean? I don't know.

Emma 49:34
But a lot of people in like, fourth grade, in fifth grade are dating for I don't even know why. I just like like

Scott Benner 49:41
people, yeah. So what does that really mean? Like you like you walk next to each other in the hall a little

Emma 49:46
bit. You hold hands. I used to kiss my boyfriend. Oh

Scott Benner 49:49
my gosh. When did that? Did it stop for a reason? Did you get in

Emma 49:54
trouble? I just didn't want to, well, I didn't do it at school a lot. I just didn't want to date them anymore. I was just. Done.

Scott Benner 50:01
What did a boy do that made you be done? Well,

Emma 50:04
one of them just, like, just like, didn't care, kind of, like, pushed me a little bit like, so I just, I didn't like him, and the next one, um, like, forced him and yelled at me. So, yeah, I didn't you had a boy yell at you? Yeah, I've had a boy yell at me.

Scott Benner 50:21
Why? Why did he do that?

Emma 50:23
I don't know. I was grumpy from a sleepover and he was mad at me for being grumpy. My

Scott Benner 50:29
wife gets grumpy sometimes. Yeah, I don't push her, though, although I'm sure she would push me. So yeah, like, do a lot of kids date. Uh, yes, and it's like that. That's the level of how it works. Yes, okay, are there any kids your age doing stuff that you're like, Oh God, I don't think they should be doing that. Tongue Kissing, like French kissing, oh my god. Really? Yep, yep, yeah. You know how you can stop that hell. Get married. Yep, yeah. That'll put an end to that real quick. Get rid but we don't want 10 year olds getting married, just so they don't French kiss. Yeah, that would be going too far, probably, yeah, yeah. So like, that gets around, like, somebody French kisses, and then it, like, gets all over the school, and everybody knows about it, yeah, yeah. Is there anything you wanted to talk about? It's been an hour. I didn't ask. Oh,

Emma 51:22
yeah, kind of go ahead. So, um, I have a best friend. Uh, can I say a friend name? I don't care if you're okay with it, I'm okay with it. Yeah, she Oh, she's gonna listen to this, but she's completely fine with it. I asked her before it okay. Her name's Emmy, and her brother's name is Bennett. Bennett was diagnosed September 22 with diabetes. Oh, okay,

Scott Benner 51:42
how old is he? He's four. Oh, how old is she? She's your age.

Emma 51:47
Emmy is 10. Yep, she's a little younger. So I'm pretty sure it's

Scott Benner 51:51
Emma and Emmy. Yeah, and then the doctor's office is Corey and Tori. Corey and Tori. Does everybody's name rhyme with someone else's name and where you live,

Emma 52:02
kind of but, oh, something crazy with that is the Bennet was diagnosed September, like, I don't know what day, but, and then Emmy was diagnosed October, 22 2022 the day before my diversity.

Scott Benner 52:17
Wait, your friend also has type one diabetes, and she was diagnosed and her brother, oh my gosh, yeah. I wonder how that's happening. Maybe the bears are giving it to people. What do you think of that? That'd be, I mean, the bears, the bears eat the honey from the beehives. Oh, yeah, and you fell on a beehive and then got diabetes. Yeah. I mean, science, right? It is, yeah, right, right, right. Well, that Do you know a lot of people who have type one?

Emma 52:45
I'm pretty sure, yeah, oh, this girl named BJ, she's an MMA fighter with diabetes.

Scott Benner 52:50
Wait, she lives locally to you?

Emma 52:53
Yeah, she does MMA, and I'm actually starting it this weekend with her. Wait, you're gonna start doing MMA? Yes, and it's free for me, because I have diabetes.

Scott Benner 53:03
Wait, diabetes makes MMA free. How does that work?

Emma 53:07
She does like a program with all these adults and kids can, but no kids have so far, and she made it so like people with that kids, or like adults with diabetes, can go in for free. I'm gonna be the only kid

Scott Benner 53:20
there? Okay, is she? BJ, Garcia,

Emma 53:25
I don't know. She does pea pods.

Scott Benner 53:28
She does pea pods. What the hell does pea pods mean? Pea

Emma 53:31
pods is, like, it's an event we get to go to for summer and, like, they do pumpkin carving, ice skating events. Okay,

Scott Benner 53:38
got a news report about her, so she's given you, like, free lessons.

Emma 53:42
Yeah, I'm gonna start this Saturday. It's at seven. Are you looking forward to hitting people? Yes, very much. How come tell me about it. I'm really excited for that, because I've technically been practicing with my dad every

Scott Benner 53:55
day. You and your dad fight every day,

Emma 53:59
at night, what we do is I start, we start in the bedroom, and he has to get me to the bathroom, and I'm not allowed to bite, sometimes I'm not allowed to scratch, and he's not allowed to tickle or cover me with a blanket. That seems like good rules. Yeah, we just fight. We just fight to the bathroom. I usually win.

Scott Benner 54:17
Yeah, you think he lets you win? Or do you think you were actually

Emma 54:21
wanting he, most of the time, tries his hardest. And dad, when you listed this,

Scott Benner 54:25
you Oh, there you go. Awesome. I wish I could leave that in for you. Well, I mean, he's so weak. How could he stop you? I know, yeah, he should eat more good food.

Emma 54:35
Yeah. I usually grab the lamps though. You wait, you fight him with lamps. Well, no, when he tries to drag me, I grab onto the lamp, and he has to let go.

Scott Benner 54:46
Oh, I see, I see, because he doesn't want the lamp to fall over,

Emma 54:49
yeah, well, the lamp usually does fall over, so you're cheating. Well, kind of have

Scott Benner 54:56
you ever shot a gun? No, but I really want to really. Yeah, do people around you target shoot or anything like that?

Emma 55:03
My brothers, once in a while, do is my dad and we actually got a place in levant we're gonna get because there was this old man that was my dad's friend for a while, then he died. Yeah, he died, and he had a wife named Carol.

Scott Benner 55:19
So you guys are buying their place. Is that what you're

Emma 55:21
doing? So it's actually 100 acres. And we're, we're in their will, so when Carol dies, we're gonna get the place, and they actually have a shooting range there.

Scott Benner 55:31
Wow. 100 acres in the woods, the 100 Acre Wood, kind

Emma 55:35
of, but it's also, it's like, in the middle of nowhere, kind of, I mean, that's how you get 100 acres, yeah, but it's in LA van. He actually got it for like, a really cheap price. The husband, yeah, and yeah.

Scott Benner 55:48
So listen, I want to tell people something, you know, Emma's dad reaches out and says, like, my daughter could be on the podcast. And people do that once in a while. They're like, my kids, you know, you know, could be on the podcast. And I go, how old? And he says, 10. And I go, Sure, because often kids can't, like, hold up a conversation. They don't know what they think they're you know, they sometimes they lack self confidence. But every once in a while, you meet one who just, like, can really talk like, I'm talking to you right now. I know you're 10, but you are doing such a good job of of representing yourself and holding up your side of the conversation, like, is that something all of your friends are good at at this age now?

Emma 56:26
No, I don't think so. But most people say I talk like an adult and when my dad talks to me, he does like real adult conversations. He's like, I feel like I'm talking to like an A 20 year old. I'm talking to

Scott Benner 56:38
you No kidding, like you really are. Like, you're very easy to say, I don't know. If you don't know, you know you're not, like, cursing, just the curse. Like, you know what I mean. Like, you everything you're doing is very, like, purposeful. It makes me this all makes me very hopeful for the world. Yeah, yeah, no kidding. Like, I am super interested in, like, how, and you're too young to ask, because you don't know. Like, I know I kind of went over it, but you can't grasp yet how much the world's going to look different, like, in the next five or, like, even, maybe by the time you go to college. I have no idea. Are kids cheating with chat GPT now on homework? Yes, right. Like, so that's not going to stop they're gonna have to find a way to fold that into education.

Emma 57:23
Yeah, I don't cheat with, like, any program thing. Yeah, you're

Scott Benner 57:29
already hearing them talk about it, right? Yes, yeah. I mean, that's, I don't believe that's going to stop. Like, you could Google stuff in the past, but when you get you get the return back, you still have to read it, make sense of it, or you had to, like, plagiarize it, like, copy and paste it, which, you know, they quickly made software to catch plagiarism. You know what plagiarism is, right? Yes, yeah, okay. Like, so, like, they quickly made software that's not plagiarism. So people would turn in plagiarized stuff in college and high school. They'd run it through a computer real quick, and they'd say, No, this isn't your work, right? And there's really bad like you, you get kicked out of school for it. So yes, that stopped people from doing that, but chatgpt and other AIS, I don't think that's going to be distinguishable at some point. And just understanding people in general, like I think instead of having to see this as a problem, I think we need to see this as what they would call an inflection point, or as a moment where life changes a little bit, because I don't think you're going backwards from this. Yeah, you know what I mean, like. So I super, I'm super interested in what like school is going to look like for you, like for the next, you know, eight years till you graduate, yeah, it's gonna be something. I mean, I hope I can stay alive long enough to find out what happens, you know you mean, but I'm like, maybe I can come back in a few years. Oh, you were already gonna get invited back. Don't worry about that. That's awesome. I think you should probably come back, like every 24 months till I stop making the podcast, because I see you again at 1212. Is a real interesting time. Yeah, you know you're gonna get your lady time at some point. You know what that is?

Emma 59:08
Yeah, period. I don't want to get my period. Of course not. Who would want that?

Scott Benner 59:11
That's going to change your blood sugar a little bit. You know about that?

Emma 59:14
Yeah, yeah, I'm scared for that. That's one of the things I'm scared of. And my dad's like, I'm just gonna, like, just watch you with their beard, not, not creepily. Just, I want to I'm interested with your

Scott Benner 59:25
blood sugar. Yeah, I say, are you what are you reading a book? What's that noise?

Emma 59:29
I have no idea. Oh, am I boring? You? No, are you sure? Yes, I like talking with you.

Scott Benner 59:36
Awesome. So, like, okay, so you told me about your friend Emma and Bennett, who also have type one diabetes. Me, Emmy, excuse me, you're MX. We always get our names confused. I mean, absolutely, they're in the same class too. Oh, awesome. Do you always think you're hearing your name when it's somebody else's? Yeah,

Emma 59:53
sometimes, like, the teacher calls on me and she's like, Emmy, I was like, That's not my name.

Scott Benner 59:59
That's. Still went over there gotcha Okay, so is there anything else that you wanted to talk

Emma 1:00:04
about that we haven't talked Oh, I do have this other condition. Okay, it's a lung disease, really. Yeah, it's like a lung disease. It's, it's a really hard word to say. It's a really long word. It's nominal, ultra microscopic, so called volcanoconiosis. Have you heard of

Scott Benner 1:00:22
that? Well, I don't even know what you just said. So numeo,

Emma 1:00:26
numeno, ultra microscopic, silico, volcano coniosis, and also that I'm just with you,

Scott Benner 1:00:38
that's something you had planned for today.

Emma 1:00:40
Yes, because it is, it is a real lung disease, but I don't have

Scott Benner 1:00:45
it. You don't have it. No. Oh, what does it do to people? Do you know?

Emma 1:00:50
Um, I know it's a lung disease. I have no idea. I think it's like short of breath or something. Oh, it

Scott Benner 1:00:54
means short of breath. I have no idea. How long have you been planning to tell me

Emma 1:00:59
that? What? Right when my dad said I will be on the podcast.

Scott Benner 1:01:04
So you've been sitting on this for that

Emma 1:01:06
long? Yes, it's been so hard to keep it in.

Scott Benner 1:01:10
Have you been lying to me about anything else today? No. How will I know that for sure now that I know that you've lied about this lung disease? Well, I guess you'll never know it's true. That's very, very true. Oh my gosh. Are you gonna be tall or short? Like, how are your parents?

Emma 1:01:24
They're both very short, but my brothers are both very tall. Like, my 14 year old brother is a lot taller than my 18 year old brother 15. Do you know how tall your tall brother is? No but I know he's taller than my dad and mom, and my dad's really short.

Scott Benner 1:01:40
What else? Let's see, oh yeah, please drive with your seat belt on, yeah, okay, okay, and don't like and when you start driving, be careful. It's gonna be fun to drive fast, but don't do that. Okay, yeah, all right, make sure boys are nice to you, yeah, nobody gets to push you or yell at you. Okay, yep, even if you're grumpy, yeah, all right, anything else you want to talk about?

Emma 1:02:03
Oh, I wrote this one down because my dad wanted to know kind of or I wanted to know, but wait, do you get your eyebrows started? That's what my dad said.

Scott Benner 1:02:13
I do get my eyebrows threaded. Yes. Does it hurt? Okay, so, yeah, I mean, but it's fleeting, but like, you know, like, it's not like it hurts afterwards, but while it's happening, it's feels like someone's pulling like a shard of metal out of your face, like it's just like, it's like, plink, they come out, and you're like, oh, but it really does. It really is, all right, I want to be clear. Okay, I do a couple of things because it's stuff Arden and I do together. Yeah, if Arden didn't say, Hey, I'm gonna go get my eyebrow started. Would you drive me? I would never have done this. Okay, but once I got there and she's like, You should do it, I was like, I'll do it. Like, you know? I was just like, I get did it now it's kind of a thing we do together. And if I'm being honest, it does look a little nicer for me, because my eyebrows have a way of, like, curling down the side of my head, like, like, sad faces. So they do a good job of cleaning them up. So whenever Arden goes, I just go with her and we do it together. Well, that's cool. Exactly same goes for sometimes, every once in a while, in the wintertime, we go, like, to a tanning salon. But that's the thing Arden wants to do. And it started out with me just driving her over there. And then I was like, I'll do it too. So it's like a thing we do together. Like, if, if Arden left, like she moved across the country, I'd never go tanning again, and I'd never get my eyebrows threaded again. It's the thing I do with my daughter. You know what? I mean? Well, yeah, so that's that's it? Yeah, yeah. I mean, I once shaved my legs, but that was different one time when we were like, God, were we, like, 19 or, I don't know what we were, but it was summertime, and we were all this week. We were so bored. And everybody, like, everyone was talking about how bored we were because, like, I'm telling you, the world was just different. Like, there was not a lot to do. Okay? We all got around one day and we all said something like, like, let's do something stupid, like, and we all came up with different stupid stuff to do. And I was like, I'll shave my legs. So, like, anyway, it was very itchy when it came back. Oh, my God. I don't remember what my other friends did. We once shaved. We once gave my brother, I think he was maybe like, 13 at the time. We collected money up from a bunch of people. Gave my brother $20 so we could shave his head bald. Oh, my God. And so for $20 my brother let his head get shaved completely bald.

Emma 1:04:49
My dad did it for free. My mom

Scott Benner 1:04:52
was so mad. Oh, my God. She was so incredibly. Be angry, and my brother didn't care. Like, he was just like, he was like, I have $20 like, can you imagine? Can you imagine nowadays? Like, how much if I said to you, am I going to shave your head bald, but you're going to get money for it? How much money would you want

Emma 1:05:14
if it's more than 50 because I am, I am not shaving my head,

Scott Benner 1:05:20
right? It would have to be, to you, would be a lot of money. And to you, $50 is a lot of money.

Emma 1:05:26
Yes, 100 is, like, I've only had ever $100 bill that I've earned. And how did you make the money? I worked six hours with my dad for a whole day. Okay? Would you cleaning the chicken coop and cleaning up the leaves. Very unpleasant. It was disgusting. What'd you do with the money? I think I saved it for a bit, and did I bought some stuff? I should have saved her an Apple Watch, but I was too dumb at the time to know.

Scott Benner 1:05:51
So you kind of like you spent it before you could build up. Yeah, I got you

Emma 1:05:56
that place we're getting we have to mow in last summer. My brother, the younger brother, he earned $1,000 for doing it. So I'm gonna try and plan to mow the summer. Is it a push mower or a rider? Oh, you ride it. I did that last year for a little bit.

Scott Benner 1:06:14
Oh, so you, so you would cut this lawn for the whole summer to make like, $1,000

Emma 1:06:18
Oh, yeah, no, definitely. Yeah. That's not a bad deal. Yeah, you don't have to buy the gas, do you? Oh no. My dad

Scott Benner 1:06:25
does. Oh, awesome. Well, then I would do that. If I was you, they'll let you do that when you're 10.

Emma 1:06:30
Oh yeah, my brothers do? I mean, my dad does. The lady that's there, she gets very, like, scared when I'm out, and my mom is, like, holding her breath. Like, why is she going, Oh,

Scott Benner 1:06:41
I see I say because you're because you're young, right?

Emma 1:06:44
Yeah, but I don't, I don't, I don't feel like I'm young. I feel like I'm older than that.

Scott Benner 1:06:49
You do? You feel like it's safe for you to be doing it?

Emma 1:06:51
Yeah? And a lot of people said I look a lot older because I just, I had really long hair down to like, I don't know how long it was it, but I finally got it so I could put it like over my shoulder and have it there. I cut it all off, not like shaved. Why'd you cut it off? Because I did not like having to take care of it. So now I have this really short haircut. Gotcha? You like that better? Oh, way better. I hated taking care of my head there. Do

Scott Benner 1:07:16
you think? Have you ever thought about, will there become a time where you're get tired of diabetes and you just don't want to do it. Has that ever happened

Emma 1:07:23
to you? I mean, I get like, upset that I haven't but no, I don't think I'd never, I don't think I'd ever, like, not take care of myself for it. What's upset? What do you mean? You get upset like I sometimes when I have to change my podcast, just like, I'm not having a good day, I get really mad about

Scott Benner 1:07:39
it. Yeah, you ever get mad at your parents for trying to help you? No, I don't do that, though. That's good. It doesn't bother you when people are trying to help you, uh, not really. Okay. If that ever, if that ever happens, try hard to fight that feeling. Yeah, okay.

Emma 1:07:54
But sometimes when I, like, uh, let's say I played this new video game the other day, because we're all big gamers, except for my mom. We were playing this game, and I was a new game, and my dad was like, Oh, I can help because I played him for I was like, No, I like doing this stuff by myself. Yeah, you

Scott Benner 1:08:10
like to have something for yourself, right? Yeah, gotcha. How come you're not at

Emma 1:08:14
school today? Oh, I'm skipping it until we're done.

Scott Benner 1:08:18
Oh, okay, yeah, nice. So you'll go to school and say I was on a podcast today, so I couldn't be here on time. Or are you gonna lie and say something else?

Emma 1:08:26
I'm gonna say that, Oh, only one of my friends really cares about this podcast, and it's the one with diabetes me,

Scott Benner 1:08:32
of course. Yeah, nobody else, yes. So I have a last question for you. Said your dad found the podcast the day you were diagnosed, yes, right? And do you guys talk about it, or does he bring ideas to you from the show? Because that's like, six years ago, so he's been listening for a long time. Like, so it's kind of, he's listened to almost all the episodes. Yeah. So it's kind of a part of your like, of your life, a little bit. So like, how does it impact you? Like, does your dad come to you with stuff? Or do you think that doesn't happen?

Emma 1:08:59
He sometimes does that? Yeah, okay. Do you know things

Scott Benner 1:09:03
because of the podcast or no, you know things because your parents? I also listened

Emma 1:09:07
to the school nurse one. Okay, I've listened to a few of them that I really liked, like it was someone in the motorcycle. Oh, Shay. Shay in the motorcycle. Yeah. I just listened to that one. I finished it with my dad. Yeah,

Scott Benner 1:09:20
yeah, so. But do you think, like, some of the ways you manage your diabetes come from this podcast?

Emma 1:09:26
Yes, it definitely does. Like, how my algorithm

Scott Benner 1:09:30
is, okay, all right, well, that's cool. That's really awesome. So, you know what, you have a couple friends with diabetes, which I think will be like, I think that's gonna be great while you're growing up. Yeah, yeah. Do you guys have, like, kind of, like an unspoken kind of club thing. Like, do you, you know what I mean? Like, you feel like you guys are closer than other people,

Emma 1:09:48
kinda like, with Emmy, I'm best friends with her, like, all the way, but with some other people, I have different best friends than

Scott Benner 1:09:57
them. I know what you mean. Like, yeah, like. People are, like, you have like, different relationships with Yes, I gotcha. Okay, all right, listen, I think we're done, but, yeah, but I would, but, but I want you to go to school and try to learn something. You know what I mean? Yeah. What do you think you'll learn today?

Emma 1:10:12
Well, we just finished a new we had test, so a bunch of math, and we're learning in social studies about

Scott Benner 1:10:20
waves, like sound waves or waves,

Emma 1:10:23
sound waves, like actual waves, that type of stuff.

Scott Benner 1:10:27
Yeah, okay. Are you enjoying that? Yes, awesome. Okay, all right. Well, Emma, this was awesome. I really appreciate you doing this with me. Maybe, like I said, couple years from now, you come back and do it again. Okay, yeah, definitely awesome. Can I talk to you? Dad first? Oh, you're very welcome. Let me go grab my dad. Yeah, let me talk to your dad

Emma 1:10:44
for a second. Be right back. Okay.

Scott Benner 1:10:55
The conversation you just heard was sponsored by touched by type one. Check them out please. At touched by type one.org, on Instagram and Facebook, you're gonna love them. I love them. They're helping so many people. At touched by type one.org, this episode of The Juicebox podcast is sponsored by the Omnipod five, and at my link, omnipod.com/juicebox you can get yourself a free, what I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes, links at Juicebox podcast.com Are you tired of getting a rash from your CGM adhesive? Give the ever since 365 a try, ever since cgm.com/juicebox beautiful silicon that they use. It changes every day. Keeps it fresh. Not only that, you only have to change the sensor once a year. So I mean, that's better. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? I am here to tell you about juice cruise 2026 we will be departing from Miami on June 21 2026 for a seven night trip going to the Caribbean. That's right, we're going to leave Miami and then stop at Coco k in the Bahamas. After that, it's on to Saint Kitts, Saint Thomas and a beautiful cruise through the Virgin Islands. The first juice Cruise was awesome. The second one is going to be bigger, better and bolder. This is your opportunity to relax while making lifelong friends who have type one diabetes. Expand your community and your knowledge on juice cruise 2026 learn more right now at Juicebox podcast.com/juice cruise at that link, you'll also find photographs from the first cruise. The episode you just heard was professionally edited by wrong way recording. Wrong wayrecording.com, you.

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