#370 Wee In a Cup
That's Australian for Pee
Allison is the mother of a young type 1 and she's brought a few diabetes topics to talk about.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:02
Hello and welcome to Episode 370 of the Juicebox Podcast. Today's episode is with Tiff and TIFF is from Australia. Tiff has so much what I call good energy. It may actually be more than a person is allowed to have inside of them. But she has trouble holding it all in a lot of it comes out while she's while she's talking, which was just 100% delightful. This was one of those conversations where because of the timezone change, I think it was the middle of the night while TIFF was recording and I was early in the morning. It's I don't know how to describe it exactly. But she's terrific. And this episode is a massive amount of fun. Her accent if you aren't from Australia, it'll take a few minutes, but you'll settle into it and start hearing her really well. I mean, you got used to my accent. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. or becoming bold with insulin. I don't think there's much left to say except maybe perhaps Gird your loins. This is TIFF.
Tiffany 1:26
I wrote these things to you and I never actually remember what I wrote because I'm sure I just write about going on a trip to Europe in America, but I just talk about, I didn't know what I was that I was going to talk about.
Scott Benner 1:38
So Tiffany, I'm not gonna answer you until after you introduce yourself. Go ahead.
Tiffany 1:43
Okay.
No worries.
Scott Benner 1:48
This episode of The Juicebox Podcast is sponsored by Omni pod makers of the tubeless insulin pump that my daughter has been wearing, since she was four years old. And by the dexcom g six continuous glucose monitor, find out more about the dexcom G six@dexcom.com forward slash juice box. And you can get a free no obligation demo of the Omni pod tubeless insulin pump sent right to your home by going to my Omni pod.com forward slash juice box. Would you like to help support Type One Diabetes Research and support the podcast at the same time? Well, the T one D exchange is looking for you if you're a United States citizen and have type one diabetes, or the parent of a child who is a United States citizen who has type one diabetes, go to T one d exchange.org. Ford slash juice box. I just did this the other day It took about seven minutes, I answered some fairly basic questions about Arden's type one diabetes. And now her information is being used to make advancements and improvements for people with type one. This is completely anonymous, 100% HIPAA compliant, and 1,000,000%. A great thing to do. T one d exchange.org. forward slash juicebox. Add your voice
Tiffany 3:13
on key on in Australia. I live in wangaratta. And I will I've got type one diabetes. But that's not all of me. I'm also a parent.
Scott Benner 3:23
Oh, very nice. How many kids?
Unknown Speaker 3:25
I've got two children.
Unknown Speaker 3:27
They're two and three. You're just getting started Good for you.
Scott Benner 3:31
I allowed their father to stay in the home. We're all together. You didn't tell us yet?
Unknown Speaker 3:37
Yeah, yeah, he's still there. Yeah.
Scott Benner 3:41
Well, he's on a short leash, let's just say that. I'm sure he'll do something incredibly wrong soon, you'll be very angry with him. But now.
Tiffany 3:50
daily, daily,
Scott Benner 3:51
daily, right. So tip, I'm going to I'm going to totally leave in what you said before you introduce yourself because because of our geography, and it is, you know, 10am where I'm at and midnight, where you are, it's been difficult, obviously, to get to get something set up. And more so than just the geography of us getting our timezone straight enough to make this recording. You and I have like going back and forth a number of times. And you know, like almost had it happen. It was supposed to be yesterday you It was so great. You sent me you sent me a message yesterday, you're like, is this happening in an hour or tomorrow? And I was like, well, it's supposed to happen in an hour. But if I'm being honest, I don't feel great. And if you want to do it tomorrow, we can do it tomorrow. So we're doing it today. So my point is, is we've gone back and forth a number of times. And then the first thing you said is I forget why I said I wanted to be on the podcast. And what I was going to tell you is that I forget why you're coming. Because it's gone back and forth. So many thoughts. So why don't we just pretend you're on because you have diabetes, and then we'll figure the rest of it out that sound okay. Yeah. So we'll dig down. You know, we'll start by by doing this. So, how old are you right now?
Tiffany 5:00
I'm, well actually it's my birthday. It was 15 minutes ago.
Scott Benner 5:06
petitions.
Unknown Speaker 5:08
I'm now 39 Happy birthday.
Tiffany 5:11
Yeah. Nearly 40 Oh my god. Thank you very much. Absolutely.
Scott Benner 5:16
That's exciting. It really is. So you're it's your birthday, you turned 39 years old. But how old? were you when you were diagnosed with type one?
Tiffany 5:24
I was 11. It was in. I think it was July. It was a diet. It was Earth Day in July. So I mean, if there's a day if it's I don't know if national thing or for the International thing. I've heard of it. Okay, yeah.
Scott Benner 5:40
So 2131 then we're gonna go 3230 330-435-3637 just 33. So 1828 28 years sounds like 28 years, right?
Tiffany 5:50
That's right. Yep. All right.
Scott Benner 5:52
And that that math works in Australia or in America or anywhere?
Tiffany 5:57
I think matters are pretty much the same a worldwide isn't it?
Scott Benner 6:01
I've heard it's pretty universal. Yeah. I mean, I haven't been everywhere at TIFF, but my understanding is that two plus two pretty much equals four everywhere. So 11 years old in Australia. You're outside, you're writing a wallaby. Your mom calls you what happens next?
Tiffany 6:21
Yeah, so, um, I was at school, I was probably that probably took about two weeks for it to develop. And we don't have Wallabies running around the Main Street. It's nothing like that. Although I did go to school in a very small town called queenscliff, which is on the coast of Victoria, down the bottom of Australia. And it was sorry, my cats running around. And, and I'd been drinking heaps and heaps of water. Like I hate water. Back when I was a kid. If you gave me what I'd be like, Hell, no, I want coke or cardio or orange juice. And so mom knew something was up because I was drinking water. And I hate water. And I was drinking an entire bottle of water for school that I was drinking an entire bottle of water before lunch at school. And I drink a whole whole bottle at lunchtime. And then I come as soon as I finish school, I'd go back to my Nana's house because my mom worked full time. Right. And on I would drink another entire bottle of water at my grandma's house. Yeah, and I guess I'd go to the toilet numerous times during the night.
Scott Benner 7:35
And it went on for about two weeks, weeks. And so I just want to before we move forward after the water drinking, I want to say that when your cat ran around just now if you would have just said Oh, I'm so sorry. My pet wallaby took my attention away. I really would have been delighted but that's okay. It's not. It's not up to you to make the comedy. So anyway, we so so okay, a ton of water drinking not normal for you. And that was enough to make your mom go. Something's wrong with her.
Tiffany 8:04
Yeah, but he had to wait till Friday because he wanted a long weekend and he didn't want to get time or have to have time off work. And he absolutely had to.
Scott Benner 8:11
Oh, okay.
Tiffany 8:13
He waited till Friday.
Scott Benner 8:15
to like, Look, there's something really wrong with her. But we cannot deal with it on a Wednesday. I just like you need to Did anyone pull you aside and grabbed me by the shoulders a good tip. Listen, honey, you need to not die until Friday when we can go to the doctor. And this wasn't because the doctor is on some Safari truck from your house. It's just that your parents fans just wanted to get to the weekend make it easier. I understand this.
Tiffany 8:39
Yeah. Cuz you know, you'd rather dealing with a problem on Friday and then have the weekend to deal with it as well. If in case it's a sickness, and then go to work on Monday and everything, everyone's all good.
Scott Benner 8:48
I like it. So So our plan is is to manage is to diagnose, treat, learn to manage and get back to life in about 72 hours. I like the I like the upside of this, but it's very, it's an energetic idea for you. They're like, we can get this done. So she you're off to the doctor, is it just as easy as like, hey, I've been drinking a lot of water and they say you have diabetes? Or how does that process go? Do you remember? Yeah.
Tiffany 9:14
So yeah, it was 1991. And I do quite distinctly remember because my mom would always be like, you're going to have to go to the toilet before we leave the house. So I went to the toilet. And we go to the doctors and I was pretty much we sat down didn't I don't even remember. I think I sat down. I just went straight into the doctor's room. And he said, Okay, I know you do away in a cup. And I said I just went to the toilet because my mom tells me I've got to and she says okay, well I've got this little machine here. She says, I've got to take some blood. Just put your finger out and I'm just like, okay, no worries. And that was my first blood test.
Scott Benner 9:49
Yeah. Well, and you've named the episode Wait a cup. So you're all set. I really, you guys do all the work. It's true. So he a little finger stick you You remember what you were? Do you remember the feeling in the room when it happened?
Tiffany 10:03
I was just sitting there going, what the hell? You know, maybe they got to do this so that they can see what's wrong with me, you know. And I can go back to I can go back to school because I was ready for school because it was birthday. And I had my beautiful picture that I'd drawn during the week that I wanted to take to school and display and show everyone I was dressed in green. Because it was, you know, this is gonna just be like, this will be over by 930 and I'll be at school, but can it all be good?
Scott Benner 10:32
Because in so in your life at this point, the only real like thing that's going on for you, it's just the, like, an incessant thirst. There's nothing else happening that's got you feel I don't feel well.
Tiffany 10:43
nigh and like, I mean, I've lost weight. But like, my dad tells me now that I had gone. Like I look like, I look very, very skinny and my little my face, he could feel the bones in my face. Um, which wasn't normal for me because I was chubby kid. I put
the weight back on straightaway after I got diagnosed anyway, but you know,
Scott Benner 11:04
listen, I just looked at myself in a reflection. I thought there are bones in your face. How would I even be able to tell that under my chin or my cheeks? No. So you were pretty gone. And it's funny. He he knew. It's funny, because I didn't know when I looked at Arden until until she put a couple of pounds back on. And then I looked at a picture from the week before and thought, Wow, how did I not recognize that? You know?
Tiffany 11:28
Yeah, yeah. Well, my mom, for the wife of her would never find anything like that, because my mom was too busy dealing with everything else.
Scott Benner 11:38
So she's just a busy. Do you have other siblings?
Tiffany 11:41
I've got one brother who's five years older than me.
Scott Benner 11:45
And he kept her busy.
Tiffany 11:48
Yeah, and he like key worked. So he was always he worked full time. My dad worked full time. My dad was an interstate truck driver. So I was basically, I'd go to work with my mom in the morning. And I'd go to school. And I'd say, Mom before I went to school, and then I'd see mom, when she picked me up after work, we'd go home had dinner, and I'd go to bed. So I saw my mom probably, I don't know, four or five, four hours a day.
Scott Benner 12:14
Your parents weren't looking for other stuff to do is what you're telling me?
Tiffany 12:17
No, I
Scott Benner 12:19
was busy enough. Right? So
Tiffany 12:21
yeah, that would kind of get in life.
Scott Benner 12:24
I understand. You start out 91 I'm assuming they gave you just was it needles or pens? or How did you start?
Tiffany 12:32
It was just um, just pin so No, it wasn't. It was in there. We had damn syringes. Okay, back then, and the big, lovely enqueuing vials. And to learn how to draw the intent out of the vial, so I could have my injections.
Scott Benner 12:50
So you're starting, you're starting at just at go, right? There's no, you have no knowledge about diabetes whatsoever. And so you're starting with just here's how you get out of the vial. Now you're gonna stick into your arm, you know, or your belly or wherever you're gonna put this did your parents become involved in, like the process of day to day management? Or was it pretty much on you right away?
Tiffany 13:12
Um, my mother. She was in shock. He didn't understand she did not like she couldn't deal with it. And so I went straight to hospital because as soon as the doctor took my reading, I think it was in the 30s. Like, in Australia, we use a different measurement as well.
So I was 32.5
millimeters per mega later or something. And he's desolated. So your measurement for lack, I think it might be about 500. I'd like
Scott Benner 13:45
to get my my graph up right now for this conversation. I have one that I like to use in this situation here. Let's see. But so you were you were plenty high enough. But but you really only saw the the thirst for a couple of weeks. Right?
Tiffany 14:03
Yeah, yeah, it happened pretty quickly. It wasn't something that
was going for months and months and months. Like some people.
Scott Benner 14:11
Yeah, yeah. Did you need insulin right away? Or was it were you in a honeymoon situation where it was kind of like, sometimes you needed it? Sometimes you didn't?
Tiffany 14:22
It was straightaway. I went from from going to into like, I couldn't not have insulin. Okay.
Scott Benner 14:30
Okay. Yeah. Okay. It's funny, because I talked to some people now who find it so early. You don't mean like so early? Yeah. They can't even use insulin properly for a while because even having any kind of basal insulin running ends up being too much. Central.
Unknown Speaker 14:45
Yeah.
Tiffany 14:49
I'm back in 1991. I don't think they even had the testing. I do remember at some point black I must have been in high school and my parents went and had their very first blood test to see Am I brah I should also mention my brother isn't my brother. He's actually adopted. So we are blood relatives, but we're not actually brother and sister. So I do refer to him a lot. And I grew up with him in the same house. calling my mom and dad mom and dad, but they just blood relative but but just blood. Not mom and dad, by parent teacher.
Scott Benner 15:27
All right, hold on. You got me on that one. I'm going to start over. So you have a mom and a dad in the house. Dad's a truck driver. Mom's there. Both of those people made you your dad. Yes. Okay. And then the your brother who was five years older than you? Was he a half brother from your father from your mother? nor my not at all? No. He's my mom's sister's fan. Mom's sister's son took him in by the dogs. Yes.
Tiffany 15:52
Yeah, essentially.
Scott Benner 15:56
Yeah. And he's still and he's a blood relatives still because he's your mom's sister son. Yeah. Okay. Thank God, we went through that, because your initial Expo explanation made me think that you had that that cat had had module and you were you're a rabbit at this point. And you didn't know what you were saying? Because you were like, he's my brother. But he's not my brother. But he's blood related. I was like, hold on a second. That doesn't make any sense. But I
Tiffany 16:21
found it to be interesting situation. But I I grew up knowing that he was my brother because he's my mom, mom, mom and dad, but he's also my cousin. So I like his brothers and sisters would visit us. But they the heath brothers and sisters. They're not mine. Because he's my cousin. But he's my brother because we grew up together. We got he was there before I was born. He was like the first. Yeah, he froze. Yeah, he's
Scott Benner 16:50
such a big smile on my face, because there's a part of me that wants to take those last 20 words and make them the title of the episode. But that won't happen. Don't worry, but I completely. Tiff. Oddly, I completely agree. I understand exactly what you're saying. And please keep in mind, it's late at night for TIFF. Okay, so. Okay, so you grew up having a brotherly sisterly feeling towards him because he was there. I have to ask, even though I almost I'm upset at myself for wanting to continue with us. But why did he live with you, but his other brothers and sisters remained back with his parents?
Tiffany 17:25
Um, well, he's mom was very young when Chad and so he had one son first. And he was I think 15 or so. And my grandfather made her give him up. And they've only just been reunited last year. So that was that he's net 45. And Mike, then she had my brother. And her partner at the time, was then killed tragically in a fire. I think I think that was the he's dead, hot. And I they've all got different dads. Anyway, something happened to him. And he wasn't led to keep him either, because my grandfather wouldn't let her and she wanted to have a life because she was she wasn't even 20. So she just went, you know,
Scott Benner 18:08
there's part of me that doesn't even want to talk about diabetes anymore. It's it's fascinating. Do you have any idea what kind of fire was in the home? Or was he a firefighter?
Tiffany 18:18
It was not within the home he had. He was fica. He was fica and he the fleet smoking? Tiffany?
Scott Benner 18:27
How many do you have? Like, do we even need to talk about the diabetes? Do you have like 1000 other great stories? Is this an Australian thing? I need to know the problem? Let's see you get caught on that like that. He got water all around you. It must make you a little crazy at some point. Like you know, because really, without a plane, you're stuck there. You can't try from Australia. Okay, how do you how did you find growing up with diabetes? Was it something that bothered you? Or were you pretty just kind of chill about it? What was your overall, you know, 11 to graduating from high school kind of experience. Okay, let's just take a quick break. Tiff has got like I said a ton of good energy and she has not yet begun to talk. So just need a second here. Right? Well, we'll collect ourselves and get ready to keep going. While we do that, let's talk about what I consider to be the gold standard of Type One Diabetes Care, dex calm, g six continuous glucose monitor and the Omni pod to boost insulin pump. Let's start with the Omni pod because it's easy. It's an insulin pump. It's tubeless it's small and compact, easy to hide below your clothing or you can wear out and let everybody see it if you want to. It's completely flexible. And flexibility is what you need when you're managing type one. You're going to have the flexibility to bave without Taking off your pump to swim to play sports with other people, if they ever let us do that, again, to go outside for a run to do everything that everyone does in life, except you get to do it without being connected to a bunch of tubing or having to take off your pump and watch your blood sugar shoot up because you don't have insulin. You just get to keep the Omni pod on. It's small, it's tubeless. It's easy. And they'll send you a free, no obligation demo. So you don't even have to take my word for it, you can try for yourself. My omnipod.com forward slash juice box, take you a couple of seconds to put in the information they need. And by they I mean on the pod and they'll send you off right in the mail and get you going with that free no obligation demo. It's well worth your time. Now the Dexcom g six continuous glucose monitor. This is another thing that I don't know how I don't know what I'd be doing without it. showing my daughter's blood sugar, speed and direction without a finger stick. That in itself is just stunning. Arden's sleeping right now it's early in the morning. Let me tell you something right now, her blood sugar is 101. As a matter of fact, I'm helping a young man named Joe right now and Joe's blood sugar's 111 and Arden's friend biani, her blood sugar 70, I can see all of that on my cell phone, right here holding it in my iPhone, if I had an Android, I could do the same thing. And you could as well, you could see the direction and speed of a loved one's blood sugar on your device. More importantly, you could share that information with up to 10 people say you're the one wearing it. And adult with Type One Diabetes, you just want. I don't know your partner to know that's doable as well. This thing is going to give you alerts and alarms that you get to decide on to let you know when your blood sugar's leaving the range that you've set ardens ranges from 70 to 120. She never gets too low or too high without us knowing that it's happening so that we can make good well considered decisions about insulin and carbohydrates to keep her from bouncing all over the place. So sure the Dexcom is great for safety and sure to wake you up in the middle of the night if you get low. But there's so much more than a little do. Find out more about those things@dexcom.com forward slash juice box. While you're there, go to my omnipod.com forward slash juice box. Get yourself a demo pod. And just why don't you just make it a trifecta T one d exchange.org. forward slash juice box. You can help improve knowledge of Type One Diabetes help accelerate the discovery and development of new treatments and generate evidence to support policy and insurance coverage changes that can and will help people living with Type One Diabetes. It's completely anonymous. totally safe. Hundred percent HIPAA compliant. T one d exchange.org. forward slash juicebox. All these links are in your show notes at Juicebox. podcast.com. Alright, Tiffany is about to take off like a rocket. So get ready. But how did you find growing up with diabetes?
Tiffany 23:16
Yeah, so yeah, my mom, he couldn't deal with it. She couldn't handle halfway through. I stayed in hospital until the Friday the next week. And my mom just couldn't deal with it. And I, I was in there the first day, so I'd been an emergency. And then I went up to the ward, and a nurse comes up like in emergency other kind of lab and emergency. But when I was in the ward, I distinctly remember a meal. And it must have been lunch and the nurse comes up. And she says, Well, I've got to give you insurance. And I said to her, really now because I don't like needles. And she says to me, Well, unfortunately, because you've got type one diabetes, you have to have needles before you have anything to eat, you're gonna have to a couple of times a day from now on. You know, it might be once it might be twice because back then there was only I don't even remember what was it called predefine. And something else? I don't know. I can't remember because it was just it wasn't that wasn't what I need to know, there was more important things to know the names of insurance, I just need to know, which was the cloudy one, which one was the clear one, cloudy with long acting, and clear was short acting. But then I didn't make them anyway, I had mixed atod which was a mixture of both of them. Anyway, that's fine.
Scott Benner 24:31
But that's the first time that's the first time someone said it to you like you they were there with your food and the nurse was like, hey, you're gonna get injections every time before you eat from now on and that you hadn't heard that prior to that moment?
Tiffany 24:43
No, no, because I'm they might be they must have given me an injection in emergency because otherwise I would have ended up I'm assuming like going back now and reading other people's stories. I should have ended up in ICU but I didn't. So obviously I wasn't in DK or I Was that they dealt with it differently back in 1991? I've got no idea.
Scott Benner 25:04
No, of course not. Yeah. I mean, who knows how why what happens happens, right?
Tiffany 25:08
Yeah, that I was on after after I left the hospital anyway, I was on mix the tide and I took two injections a day. But at this thinking conversation with the nurse and she's comes up. You've got to have an instrument before you can eight. And I'm like hell no. And she's like, well, I've got to do it too. Yeah. And I said, Okay, I said, you do your deal. I said, you can do this one. And then next one, I'm doing myself because you are not touching me ever again with a needle? And that was it.
Scott Benner 25:37
You wanted it in your control? Yes,
Tiffany 25:39
yes. And that was I took control of the needle. And because I knew if I did it, I could do it the way I liked. And no one else would hurt me with a needle.
Scott Benner 25:49
I think that's a that's a sound, that sound idea and, and psychologically makes a lot of sense to like, you know, if somebody is going to do this, it needs to be me. I'll figure out a way to do it. It'll be best for me. And that way, nobody else can screw up and make it hurt. No.
Tiffany 26:04
Um, but yeah. And yeah, if I was in hospital for a week, and my mom would come in every day, he mother taking care of that he must have taken time off work, because I do know that she came in during the day. And she come in, and he'd always burst that bawling. And then one time, the nurse comes up and says, okay, so you'd met your mom needs to learn how to give you injections. And I'm like, no way.
Scott Benner 26:26
Listen, that lady to a point where she's not crying before we give her the needle, right?
Tiffany 26:32
He probably wasn't crying by the end, but he was just, he just was traumatized by the whole event. And so my mom's just like, Okay, I've got to do this. And I'm like, he's not touching me with a needle. And they talked me into it. And I'm just like, You know why? Because I, I was terrified. I would if I had to have bloods taken, I would look away. I'd stare at the wall and I'd sing songs to myself, I'd make up stories in my head, because I don't like even now, when I go to pathology. I just, I can't watch I look at the wall. I take my phone, I play by my phone while I do it, because I just don't want to see someone else sticking a needle in me. Because you
Scott Benner 27:09
don't have that reaction. Even now, like as an adult when you're doing it, though.
Tiffany 27:13
You know it but I'm fine. Because it's me doing it. So I know exactly. And I've got to look at what I'm doing. But other people Oh, even on TV. I can't handle watching other people. One person give another person an injection, but I can watch someone give themselves an injection. That's fine. Okay, that's interesting.
Scott Benner 27:28
No, right. Really is interesting. All right. So like, do you are you still injecting now or how do you handle like getting your insulin today?
Tiffany 27:37
Oh, yeah, I was I was injecting up until, um, my I was pregnant with my second, my little boy. And so I got my pump. Or he, I must have been four or five months pregnant with him. So I've had I've been pumping for two and a half years, maybe nearly three.
Scott Benner 27:56
That's crazy. So you injected for over 25 years? Yeah, I did. Yeah. And how did you? What about glucose monitors? Do you guys I know you? Yeah. You have one? Do you have it?
Tiffany 28:07
We thought Yep, we've got all different ones. We've got the same ones. As you guys have. We actually got the lab right before you guys did. So that's pretty cool. I saw that. Yeah.
Unknown Speaker 28:15
And you use what are you using?
Tiffany 28:18
I'm currently using I use a Medtronic pump. I've got the 640 or as you guys call it a 630. Okay. And I use the the meter that goes with it, which is a con context contour next link. Excellent.
Scott Benner 28:35
Okay. Yeah. And how do you like I mean, you're it's interesting because you did you did injection actually, you're really good person to talk about with us. So talk to about this because you injected for a really long time. Would you call your time injecting like successful for your health? You were pretty you were doing well.
Tiffany 28:53
Yeah. So before I fell pregnant with my first I was taking taking taking Lantus and Nova rapid. And on my, my, my hike bi one C was 5.9. No objections. Yeah, so I was pretty good. And I'd also just done a course called Daphne. I think you guys I'm sure you guys have it over there. It's dose judgment phenomena. That dose adjustment for normal eating. And, as in Australia is called audacity because we're in AWS, obviously. But it's the same thing. And it's a course that was developed in Germany, by doctors who saw the need to help diabetics to understand how to adjust their own each one rather than having to wait three months for every doctor's visit, to help their doctor to help them adjust the internet again. It's like how we came up with this practice and you used it really successfully. Can you describe it a little bit Yeah, so it's just, um, you know, knowing how to carb count correctly, it's a five day course. So you learn, like how to carb count correctly, you do seek day management. All the meals are provided while you do the course. And you just come into the air of the way you're doing the course every day. And they have snacks and meals. And I have regular food. I don't have like, you know, sugar free. It's like, you know, we have Tim Tams. And we've got, yes, Tim Tams. We've got, you know, jelly snakes, and anything you want to eat,
Scott Benner 30:34
biscuits, all different kinds of biscuits, but everything's got a carb count on it. So that we have to figure out how to do it without the assistance of the diabetes educator and the dietician who are running the course. Well, so people were so kind of frozen in the idea that I will live my life for these three months. And then any adjustments that have to be made to my insulin, or the way I'm managing things doesn't happen until I get back to the doctor again. And this and this was the idea of No, you could do this, you could make these adjustments on your own.
Tiffany 31:05
Yeah, well, I was already kind of doing it. But I didn't do it. I was obviously I was doing it really successfully. Because before I did all that mean, my fault, my height, Bo and C was also 5.9. I did it probably six months before I fell pregnant. Um, and I so I'd been doing that I hadn't been very successful job because I would have like major hypose and stuff, but never anything where I went unconscious, except like many years before that. But I did kind of like look at things and go, that doesn't look like you know, two portions that looks like it could be like a bit more or a bit less. And so I'd have a bit more a bit within keulen. That's and you have to
Scott Benner 31:44
I think personally, I mean, obviously you listen to the podcast, I think you have to make your adjustments like that. By the way Phil fell pregnant is such a wonderful phrase. Because here you might say that you fell ill but like that the idea of fell is like, you know, you've been overwhelmed by something unpleasant. And to say like, fell pregnant. It's just it delights me to no end. I really am.
Tiffany 32:10
Okay, I became pregnant.
Scott Benner 32:13
I just please, I'm not I'm not correcting you. I'm telling you. You're making me happy. I just every time you say it, I'm like that's I also enjoy. What is that? Something like you guys talk about going to the hospital. But you don't say go to the hospital. You say?
Tiffany 32:29
No. Yeah.
Scott Benner 32:29
Yeah. Isn't that funny? You don't even know what you say. It's hilarious. Oh, anyway, fell pregnant. You've just made my whole day as I'm saying. So you're five nine. You're doing fantastic. You What made you take the course by the way, even though you were five nine? Did you just think I could do better at this or did something they made you do?
Tiffany 32:46
Um, because well, I before I did the Daphne course I had been I had the same the same endocrinologist. So the same endo for from the time I was diagnosed for 20 years. And then just before my 20 year anniversary, he says to me, oh, by the way, I'm going to move to Queensland. And you're going to be saying my ofada you've been because I sees our solder occasionally. And then he just popped in. He's gonna say this other guy called Adam. And I'm just like, wow. And so I had to make an appointment for a new guy. And back then as well I lived with, I'd have to drive 40 minutes to go see my doctor. And there were other doctors who were closer to me and I just thought you know what, stop him. I'm gonna find a new endo. But I never did. So I was just going to the GP I'd get new skin get prescriptions for more in killin the doctor might occasionally get me to do a high DPI one C and that would be and so I just got a walk in clinic and do it that way. So I didn't have an endo for about four years. And then I was in Melbourne by that point. And I moved to moved up the top end of that the top of Victoria to bend a little town called vanilla, which is the wind grad where I currently live. And I get there and I thought I need to find a doctor surgery and I found one and I go there and the donor GP says to me, Oh, you've got type one. He says okay, you can go see this guy called Robert. He's German, but he's really nice. And I'm like, okay, so I say Robert, and he's not actually a an endo. He's called a diabetes specialist because in Germany, every single doctor I don't know this is what I've heard. So I'm just I'm just is he sighs so it could be true could not I don't know. But apparently allegedly, every single doctor in Germany has to do an entire class two semester course unit or whatever on type one diabetes. So the Germans they've got something gone You know, they think and type one diabetes. We've got to do something about this obviously because I came up with a with some that me and you They decided, you know, we've got we've got to learn about type one diabetes. So they've got something going on there. And I go see him and he fantastic thing, and this is this guy's really good. And he says to me, you've got to do this course. And I'm like, do I have to do it? Because
Unknown Speaker 35:17
I feel like I'm doing all right.
Tiffany 35:20
It's fantastic. He says, but this call seriously how, like, you actually you actually know the carbs that you're eating? And I'm like, Yeah, kinda like the last time I saw a dietitian was probably like, I don't know, 10 years ago, but you know, whatever. And off I go to, to do this course. And that was like a turning point. I'm like, I have to understand how to look at a recipe. And like, I love biking. So now I get a recipe and I can figure out the carb count, I can divide it up and know exactly how many carbs in every single portion of like a slice or cupcakes or a cake. But just by weighing it now and I never used to do that uses go. I Yeah, that looks like you know, it could be 50 grams of carbs. But you know, whatever. Just, you know, just winging it.
Scott Benner 36:07
Have you actually with Daphne, have you actually improved on your five? Nine?
Tiffany 36:13
No, I haven't, say five nights really
Scott Benner 36:15
good. Like, I don't know how you're doing better than five nine. But But. But it gives you more comfort. Like you feel more kind of in control. You're not guessing you feel like that?
Tiffany 36:26
Yes, it gives me and then because I need the cause I was like, Huh, cuz I said I'm terrified of needles. So the pump freaked me out because I didn't want to have a needle inside me all the time. That's like, the only reason I was against getting a pump for so long. And get in on, you know, cruising along. And Mike Beyonce went up to bat was because I was pregnant, as I said, so it's 5.9. And then it went up. Because when you're pregnant, things happen. And things get harder to many Jen. I ended up at like, 6.2 by the time he was born.
Scott Benner 37:04
Well, it's not that's not a terrible I mean, that's not a terrible increase during a pregnancy for sure.
Unknown Speaker 37:09
Yeah, are they?
Scott Benner 37:11
So let me say something I cuz I'm gonna forget, because I am so just delighted, like listening to you. Like, I feel like this should just be your podcast, and I should just sit here. But I, but there's this one thing you brought up that I think bears like going over. So this happens to Arden a lot. You know, she used to obviously, she's had type one since she was two. And she'd go in and get her blood draws. And you know, she never flinched. And then one day, I don't know, she was like, eight, nine years old. And she was just up in the corner of the room, like, you know, like a cat trying to avoid water. And and, you know, trying to get away from the nurse who was like Arden, I don't understand what's going on. Like I've been drawing your blood for, you know, close to a decade like what what just happened, she just suddenly couldn't bring yourself to hold still for it. And she's gotten better over the years. But any time that comes up, even if it's at the dentist, you know, where I'm like look, Arden's going to be difficult to get numb, because she really does not like the needles, then the person will say, and this is I find this infuriating, and I try really hard to like educate them, like nicely away from it. They're like, but she has diabetes, she must be used to this. And I was like, why do you think getting stuck more makes a person who doesn't want to get stuck? Like just forget about that? You don't really forget about it because you do it more. Like if I said to you like there's I watch boxing some guys don't apparently mind if they get hit in the face, you hit me in the face once I'm very upset. And if you hit me in the face 50 times, I'm not going to be less upset by it. It's just a very strange idea to say to someone, but you should be used to this. And and so you have diabetes, you're not allowed to have a needle phobia, you're not allowed that, like that's just such an odd way of looking at it. And I think that does happen to a lot of people, they get that like, well, you're you have diabetes, so obviously you should just be okay with this. And you're not, you know, like it's just you're not, but it's it's really interesting about the pump idea that what you didn't like about a pump? was the idea that something would be inside of you constantly. How did you get over that?
Tiffany 39:21
I heard this thing called the eye port. Um, and I and also the Libra came out. So I I ordered a library online and it arrived and I put it on and it was like, I didn't like the sand that might because it goes could funk. The little sort of thing you got to use. And I didn't like that noise. So that was part of the problem with the pump as well because I knew you had to insert and using the little third thing is like good I don't have that noise. Anyway, I put the Libra on. I was like this is amazing. I like to sleep writing. So I'm looking I'm looking around like scanning myself constantly looking at my little meetup going. This is amazing. Oh lobby, why do not do this alien? I'm like, hang on, if I can do this, then that means maybe I can do a pump.
Scott Benner 40:07
And that's what that was your bridge to it then.
Tiffany 40:10
Yeah. And then I got this thing called an iPod because Medtronic do like free samples. Have you heard what an either an iPod on a human you
Scott Benner 40:18
know that you can inject without putting the needle in, right? Like it's this it's a port it's a port that you use, then you inject into the port instead of into your skin every time.
Tiffany 40:26
Yeah, so that was kind of like so I did the Brian in like, my date, my, my, What's the name? My diabetes guy, Rob. Rob, he says to me, sorry, I'm, I've just gone blank for a second. Then he says to me, I'm okay. Robert. He says, okay, Tiff. So, why don't you see how you go with this? And I'm like, okay, so he said, go visit my da next door. And so I go see her. He's also a type one diabetic. And she, she talks to me a little bit about it. And I'm just like, I'm terrified of the noise. And she's like, that's okay. She said, Oh, I'll show you how I'll do this one. And then you've got another one in the box. And you can do that later on if you want at home. So I put it he put in for me. And I didn't like the I 40 it was horrendous. It really irritated me. I just couldn't handle it. And then I figured out I don't like putting fights on my tummy. So that because that's where I put it. So I'm like, okay, that's that's a no go down. But anyway, and then I put the second one in. And I'm like, wasn't so bad. So I organized in Australia as well, you could have private health insurance to get pumps. So I organized by private health insurance. And my next visit. I said, Okay, yep, I'm ready to do this. And I said, oh, by the way, I'm also pregnant.
Unknown Speaker 41:45
I fell pregnant.
Tiffany 41:50
Completely didn't want to but anyway, they're only 17 months apart. I'm not planning anyway.
Scott Benner 41:58
I just won't let your children ever listen to this. I bet that's fine. What What happened? I we're gonna take a detour for a second. When did you go to a wedding and drink too much but what happened? Exactly like how did you stop defending your uterus from this falling into pregnancy?
Tiffany 42:19
I kid you forget you Don't you think it's like you? You know your tablet?
Scott Benner 42:27
It's that boy. Swear to God. I don't know what we're talking about. I'm having a great time.
Tiffany 42:32
And I'm, I'm very fertile, obviously. Because I yeah, I just I, before I had my first child, I had a miscarriage. And that didn't take very, very much effort. Either.
Unknown Speaker 42:44
Way to hold on the pregnancy or the miscarriage. What didn't take very much effort.
Tiffany 42:48
getting pregnant, getting pregnant in general.
Unknown Speaker 42:52
That's wonderful. You're wonderful. I'm so happy we're doing this.
Unknown Speaker 42:57
Hold on a second. I have to pull myself together. Give me
Scott Benner 43:01
Okay. All right. We're good. My favorite part so far is that Rob was German but it's okay. He's nice.
Tiffany 43:12
Oh, my JP was also Indian. He was amazing. And then he went and moved to bloody Melbourne did meet with family with him. So
Scott Benner 43:18
I love this guy tried to upgrade his life with no concern for you whatsoever.
Tiffany 43:23
It was like the best jPi ever had, because he he didn't try to try to take my diabetes away from him. You know, tell me that. You know, I'm silly because I'm doing this and that because what most of the JPEGs I ever saw did and yet anyway, he moved away.
Scott Benner 43:36
Yeah, but he gave you real freedom and and, and respect right. Not not freedom because he left you alone. But but like freedom and respect with your type one like he Yeah, yeah. I think that's it. That's really important. So yeah, so first curse him for leaving. Let's hope he felt he falls on something. Right?
Tiffany 43:57
Yeah. Anyway,
Scott Benner 43:58
anyway. Is your how involved or not involved? I want to get back you know what, hold on. Where do I want to go with this? I here's what here's what I'm gonna go with this. You're really interesting with like, I don't want it on my stomach. I don't like the way it clicks. I don't want to do that. Like that's real. That's sort of different stuff than you hear people talk about all the time. Do you have do you have that with other things? Like Are there other things in your life that like you don't like the way they feel or don't like they like when I go clothes shopping? If you watch me walk through a place with clothing. I'm touching everything constantly. Because if I don't like the way it feels, I wouldn't even care what it looked like.
Tiffany 44:40
Yeah, yeah. Yep, definitely. Yeah, that's me.
Scott Benner 44:42
Yeah. Have a little bit of that tactile thing going on. Because Because a port on your stomach's not okay, but you can put it somewhere else.
Unknown Speaker 44:49
Mm hmm. Yes. Okay. Interesting.
Scott Benner 44:52
You are very quirky. I like that. That's excellent. And but I think it's important to talk about because I don't think that for the people who that affects, I don't I think we talked about that quite enough, right? Like, yeah, that there's this great technology. But what if it just is in your head all the time where you can't take the clicking or the or the other stuff that comes with it, but you have been able to kind of overcome everything you found a way around most of your roadblocks, right?
Tiffany 45:18
Yeah, yeah. Yeah.
Scott Benner 45:20
And so would you tell other people to press on? Would you tell them to follow their heart? Like, where when something bothers them just give up? Or what do you think? What do you think ended up being the, I don't know the right path for you?
Tiffany 45:35
Well, it's more of a matter of just, you know, looking around, and just seeing what your options are like. So it took me 25 years, and then the Libra to go, I can do this thing now. Like, before, then it was it terrified the hell out of me. Um, and then yeah, the Libra was the turning point. It's just a matter of just, you know, seeing what's happening, keeping up with what's what's going on with the diabetes industry, the map for the companies that manage what we have to do what we can do to ourselves, and how we can manage our diabetes better. And they just might come up with something and you go, that's it. That's what's gonna help me to, you know, get control of my diabetes. Like, I don't think I've actually experienced burnout. Like I look back and I'm like, is that when I was in high school, I kind of went in whatever. But I still took my insulin and never stopped because I remembered what it felt like to constantly be thirsty, and to just feel disgusting all the time, from when I was 11. And I was just like, I don't want to do that again. That's interesting. I want to feel disgusting. And I've always had glasses. And I'm like, I don't want my eyesight to suffer. Because I can't say enough as it is like, I can drive. But if my eyesight gets worse, then I can't drive. I don't want to not Dr. Right, you might not be able to see.
Scott Benner 46:51
Yeah, I think that what you what I just took out of what you just said was that when you knew what it was like to feel, well, you knew what it was like to feel sick. And you were just trying to avoid feeling sick again, where I think that there's a possibility that when we diagnose young kids now and tell people like oh, it's okay, if your blood sugar's like 220 or, you know, 300 spikes fine. You are teaching that person's body to be to feel normal at that range. And there and that's, you know, that can be dangerous in itself to give you a normal feeling at a 250 blood sugar. Yeah, you know, is is a recipe for like a long term disaster really. So
Tiffany 47:31
yeah, yeah. Because I remember as a teenager having like my, my endo, he was quite old. Well, I thought he was old. Because he was bald.
He probably wasn't that
Scott Benner 47:44
old when you're a child. I agree with that. Yeah, that's fine. That's absolutely fine.
Tiffany 47:49
And he he would we would have arguments when I was in high school about my about what I was doing and how I was managing and stuff. And I remember like storming out of his office like this is asked my mom to stop coming. Like I didn't even know I my mother kept coming. Because, you know, she had no say in what was going on, because she didn't want to be involved. But she would always come to doctor's appointments. Anyway, so we would have arguments as soon as she stopped coming, it was like, This is my, this is my job. Now my mom is not here. That means I can tell him often I can tell him that he's been silly. And he's telling me that, you know, what he wants me to do is impossible. And like, you know, my HPA once they would be like in the sevens and he'd be like, you can do better than this. And I'm like, Look, this is what I've got to work with. If I can't do it with this, then I can't do it. Okay, I'm doing the best I can. Right.
Scott Benner 48:37
And by the way, did you notice my mom is not any help whatsoever? And so you know, I'm so I'm interested, if you've ever had a conversation with your mom about this, do you have any idea why she was disconnected from it? Or why she couldn't kind of dive in? Or did she? Did she fall asleep smoking in the fire? And you don't know, right? More? I don't know.
Tiffany 48:58
I've never actually spoken to her about it. But I just, I don't want to because when she asked me like he's he's got type two now he was diagnosed few years ago. And he says to me, also has the diabetes going and I'm like, good. He says, if you had any hypose and I'm like, I'm I'm thinking in my head Well, yeah, I had one yesterday but I'm not going to tell you that because you're going to freak out and I decide to are not so good. You know, I'm just you know, cruising along because if I tell her I've had a hypo even if it's only like, you know, a 3.9 or you know, like it just I'm just like 33.1 we should probably be like on I 55 5055 or so yeah. Yeah, he'd be like, oh my god you like I you I kind of like, you know, this is this happens man.
Scott Benner 49:45
You know what I'm trying to figure out because when we look at your like tactile stuff, like I don't like the way it sounds. I don't like the way it looks right. Because imagine like you said, I can't watch someone else. give someone else a needle, even on television, which by the way TIFF is regular Because you're not, right, because you're not actually there. And it's not really happening. And it's all fake and everything. But but because it gives you that feeling. My question is, I wonder if your mom doesn't have something similar? And I wonder if right if watching it happened to you didn't put her into a tailspin the way it does when you're watching an old rerun of er on Netflix. And so that's what I'm trying to. That's what I wonder. And please, I don't want you to, you know, I'm sure your mother's an older person. Now, you don't need to have an argument with her. But I was really interested to know if maybe that wasn't it, right. Maybe she didn't have her own kind of like issues and that was something she couldn't overcome. It's interesting.
Tiffany 50:39
Yeah, it is. It is actually that I've never thought of that, that that that does actually make sense. why he's so like, Yeah, he did. He was so disinterested in the whole thing. And oh, my goodness, the blood test machine when I was first diagnosed, yeah.
Scott Benner 50:55
Yeah, because TIF because by your explanation, she wasn't disinterested, and she's still not disinterested now because she's worried for you. You haven't? Yeah. Have you TIF like, how's the diabetes? You haven't been low? Have you? I'm worried that you're okay. So yeah, I mean, I've heard Listen, I've interviewed people who have we've outright set it sometimes. And sometimes it's gone unsaid rifle. Ooh, your parents just didn't care. And like, where they were just like, huh? Well, that's for you to worry about. Not me. Like that. Kind of. Yeah. Your mom wasn't there. Like she tried to come to the appointments. Right? Yeah. And, and she still cares now. I mean, how old is she now?
Tiffany 51:31
Um,
Scott Benner 51:35
she's still asking. She's asking you. So I think this is a I think if we dig down that's what's going on here. Does your dad have any going on? Does he Yeah, my
Tiffany 51:45
dad's cool. He he says to me, How you going with everything outside? Oh, yeah. So like I can I can be more open with my diabetes and with my dad because he's pleased with like, you know, these things happen. Whereas my mom's always about the, the other stuff. Just like my mom or dad, you know, like if I yeah, mom's mom's like, you know, if I had a car accident, maybe like, Oh, my God, the car and my dad to be like you okay? The car? Yeah. Yeah. Like you have to be like, you know, if you got your insurance up to date. What's that? My my
Scott Benner 52:17
mom, my arms falling off. Yes, yes. But have we told Allstate?
Unknown Speaker 52:22
Exactly, exactly. That's wonderful.
Scott Benner 52:24
Well, I think that I was just speaking, you know, it's so funny. I was just speaking about a mother's love yesterday on a phone call within Australia. It wasn't for this podcast, Australia would just be a place on a map to me. But instead it's not because this podcast is incredibly popular in Australia. So so I'm on the phone with a an Australian who lives in America. And we're talking about something. And we were talking about, like kind of the anxiety she was feeling around her kids blood sugar. So I was like, see that's like that moms. That's a that's that thing that's so wonderful. And yet sometimes it won't shut off. Like a mother's love like, right, like, like, you know, like, it's wonderful. Because there and it's so present even throughout your life. As you get older, your mom still feels that way about you. But at the same time, there's always this line where they don't seem to be able to like stop sometimes. And I was telling her that we were we had gone this past weekend, a few states away to watch my son play baseball. And it was the end. He's in college, but it was the day before a holiday. So he said can I just come home for the night. And then I'll go back to school the next day. And we thought that was great. We hadn't been around. He hadn't slept in the house in months. And we're like, that'd be wonderful. So you know, the kid poor kid gets up at 6am gets on a bus takes a two hour bus ride plays two baseball games, think gets in our car and is taking a two hour ride home. And he falls asleep. And his head is tilted to the side. And my wife says in the backseat, you know and she goes his head. And I'm like Kelly, he's 19 he's a strong as an ox, like he's fine like you like they just leave him there. He's asleep and he looks fine. And he's fine. Well, 15 minutes later, I see your hand come up from the backseat. I'm like, What are you doing? I'm trying to drive. Just his head can't stay like this. I'm like, Kelly, he's fine. Leave him alone. Right? But she couldn't have she could not overcome the feeling that that kid was uncomfortable. Like, yeah, you know? And so she starts nudging his head up and he wakes up he's like, what's what's happening? And I looked at her I went I told you to leave him alone. And so but there's something about I'm not kidding. Like I think there's something connected from women probably straight from your you know, straight from the moment you have them inside you until apparently till the very very end of their life for a lot of moms. She couldn't see him be uncomfortable. And I was like, He's fine. She she could and she's a bright person. It's not like she was confused by it. She just couldn't overwhelm that. So I'm interested very much in what was so powerful in your mom's had that she couldn't overwhelm To come help you with your diabetes, and I bet you it was something pretty strong. So that's Yeah, yeah, I could be 100% wrong. I'm just the guy on a podcast so I might be 100% wrong, but it seems that way as we're talking about.
Tiffany 55:12
Yeah, now he's he's very he Yeah, he's loving and stuff and he does he does worry a lot. Since I've also like, you know, the only blood like being a child by blood that she's
Scott Benner 55:26
gonna hold on to you. Yeah, your dad still just a guy she met like you're Yeah, you're her family right now. I understand. Yeah,
Unknown Speaker 55:32
exactly.
Scott Benner 55:36
Okay, so overall in, in Australia, what is it like? Like you have private insurance, which I'm still even through a number of episodes trying to understand a little bit. But but yet things don't cost a ton of money, though, right?
Tiffany 55:52
No, it's pretty good. We've got this game code ndss National Diabetes service game, and it's, it's funded by the government through taxes, and we pay quite a substantial amount less for supplies. And then if you've also got health care card, so if you're on a low income, or you or you're under certain age, you also get a discount an extra discount again on top. But that's nothing to do with private health. private health is only needed for pumps. But cgms full cost no matter what, except they've just changed government funding again for CGM. And now people who are women who are in preconception for six months, they can get CGM for free. women who are pregnant can get CGM for free. And when they're breastfeeding up until the baby is six months old from the due date for free j for it's free CGM and I can get anyone they want. Libra is still not on the cards though. I don't know why but everything else is subsidized. Now. Also if children are under 21 years old, they get free CGM. And anyone who is hyper went away This is only new, this whole this pregnancy one and the hyper one awareness. So if you're hyper aware, you have to have a healthcare card. But your hypo unawareness has to be very severe. And you have to had been hospitalized within the last 12 months. And you will also receive free funding CGM. Gotcha. So
Scott Benner 57:39
I think it sounds to me if I can have if I can have it six months, you call it preconception, which was fantastic. So six months before you're pregnant, right? Plus the nine months you're pregnant, six months, you're breastfeeding. If you just have a baby every 21 months, you can have CGM for free for the rest of your life.
Tiffany 57:57
Exactly. Yeah. But you've got you've got to be a woman that's gonna be thing like there are lots of men who are very upset about this. Now, the aim is that everyone gets sick in funding. But my issue like I could, up until they change, the legislature changed the legislation again, I was actually eligible to get free CGM, because I'm a low income earner. And I have had episodes I look but I haven't been hospitalized. I have episodes where I've been. I've been had a bad hypo. But that was last one was when I was pregnant with my first Hello was and she's three now. So I haven't been hospitalized. I've had an ambulance cold out. But I haven't been hospitalized because of a hypo. Which means I'm no longer eligible. What My issue is, I would like it if they could say instead of people getting free CGM, if everyone, anyone who wants can get a CGM at like half price or a quarter price, because that's how we do medications. Like it's not fair for one one Pacific group to get it for free. Why don't we all just get everyone just pays a little bit if everyone pays a little bit, then everyone the funding goes further. And everyone benefits rather than just these tiny little groups,
Scott Benner 59:12
right? Yeah, I listen that I look at college the way colleges paid for an American I think the same thing, like how can my son be in a class with a kid who's paying, you know, a few thousand dollars a year to go to the same school that other people are paying 10s of thousands of dollars? Like what if we all just kind of like found the middle ground, you know, exactly right. And that really would be valuable and especially for medical stuff. To say that you have to be sickly to get something that could be used preventatively Yeah, it just thinks you don't even you know,
Tiffany 59:45
yep, with with the this whole new hype, I want to win this thing and having to be hospitalized. This makes a lot of people there's quite a few people who have written on Facebook groups about the fact that this means that people are going to run Specifically low, get low, so they can pick you have to have a hospital visit before they're gonna run low. They're gonna get the ambulance come to their house, they're going to go to hospital. So they're gonna cause more strain in the healthcare system. And then free CGM because they want to say free CGM. That's it,
Scott Benner 1:00:16
and that stents gonna go wrong for somebody and somebody is gonna end up hurt. And exactly, yep, you're putting people in a very weird position.
Tiffany 1:00:23
And I also read a fantastic comment. It said, it's like bolting the doors to the table after the horse is left. And I'm like, that's, that's a really good analogy, because, like, wouldn't it be better off because like, my partner, he works away, half awake. And so I'm basically a single mom at home with two children by myself. Yeah. And it freaks me out like I've got, I can get a CGM occasionally when I can afford it, but most of the time, I'm just running off doing bgl. I don't have the CGM. Yeah. So it freaks me out that one day, my two and three year olds who have no idea how to use my phone, because I don't like them using it. And I don't want to teach them, you know, screentime stuff that they need to use my phone to play with games, you know, and they're gonna come, they're gonna wake up and come into my bedroom, and mommy's not gonna be white.
Scott Benner 1:01:14
And then they're not gonna know what to do and
Tiffany 1:01:16
fix me up, of course, and then because my partner at home, like, my parents live three hours away, they leave back in Melbourne, which is three hours from wangaratta. And they're not going to know, Nick not gonna know, because he's at work, like in an hour and a half away in New South Wales. Um, which is a sight above Victoria. And I'm going to be at home with these two children, and no one knows. And it freaks the hell out of me. So I'm hoping I've got a dog. I've got an appointment, say my, my D in a couple of weeks, and I'm thinking, oh, maybe, maybe just maybe they can like wrangle the paperwork so that I can just get it when I have to.
Unknown Speaker 1:01:53
Yeah, it's, I want to
Tiffany 1:01:54
do that thing. The other reason I do not want it, I would rather not have a CGM, because I don't like having the SAT to me. I think they're bulky. But you know, it's fantastic work. As I said, earlier, I was in hospital last week. And I, my friend who just had a baby, she's breastfeeding, I messaged her, and I said, I need your help, can you please help me and she came around to my place. And she gave me three of shgs because she got them for free. cuz she's breastfeeding shoes. And I'm like, I only wanted one. I didn't want three. And he's like to take him, okay. He says, Don't worry, he forgot them for six months, you can have a couple I doesn't bother me. Like, you are a lifesaver.
Scott Benner 1:02:32
And that's wonderful for to do. And at the same time, it does illustrate like this weird dance that that these rules push people into having, you know, she's breastfeeding. So she gets some so she gives some to you because you're scared. And you can't get them because you haven't had a hypo that put you in the hospital. But at some point she's going to run out. And then you know, it's just, I don't know, the idea of medical insurance. Everywhere I hear the conversation. It's just very fun. Yeah.
Tiffany 1:03:02
And anyway, but my da, she's really cool. She just had it. And we've got an election coming up soon. And she just spoke to the local federal Member of Parliament who's up for who's up for a nomination. And he said, This is what I want to do. And he just he told you what I just did about having everyone pay a smaller cost, a smaller cost amount. And then everyone can benefit rather than just having these tiny groups that don't necessarily like it's not, it's going to benefit them, but wouldn't be better if everyone had a little bit. Right.
Scott Benner 1:03:33
Yeah. Yeah. I mean, and no, and I understand there are going to always be people who can't afford it at all, and that's fine. But there's, you know, listen, free is nice, but if you even could throw in 20 or $50 towards it, and that would keep somebody like you from having to pay like you know, 75% could get you down to 50%. Like there's got to be a way where everybody sort of shoulders the burden a little bit,
Tiffany 1:03:58
I think come back and get subscriptions. But I think a box of a one box of five in light sensors from Medtronic is $250. But I might be wrong. No, it's more. It's more because the libri senses off $95 Ah, Australian over here. And the actually know what, I'll look it up. I'll go to the Medtronic website. Give me a second. Look it up. Yeah, it's ridiculous. If everyone just pays a little bit we'd all be better off.
Scott Benner 1:04:35
Yeah, as much as you can. Right? Like, I mean, until it's not a burden and so that everybody's covered it's just at some point they're going to stop treating this technology like it's a nice to have and they're gonna realize that for the people who want it it's it's imperative.
Tiffany 1:04:51
Yeah, but my baby for $350 for one book. Oh
Unknown Speaker 1:04:56
my gosh.
Scott Benner 1:04:59
Yeah. It's ridiculous. I'm like, you know, just make it benefit, everyone gets benefit everyone rather than just going, Hey, you know, if you're under 18, if you're under 21, and then hang on, you know what, when you turn 21, you don't have Type One Diabetes anymore, because you don't need a gym. So you know, we're just going to take them away from you, goodbye, once you go to go to, you know, college, university, whatever. Until very recently in America, people like on Medicare would lose, you know, would lose it when they needed it most when they hit like 65 years old, like we really start needing this stuff like really badly, then they're like, Oh, you can't have it anymore. Because you switched insurances, you went from like your private to this, but they've gotten that finally figured out, but it's just such an interesting idea that, you know, certain ages need it more than others. Like, it just doesn't, it doesn't make any sense to be perfect NIH,
Tiffany 1:05:46
NIH, and like the people who are retired like this, you still got type one diabetes, when you retire, like it doesn't go away? How the hell am I gonna afford to pay $375 for one box of fences? Like even the subscriptions like the subscriptions are significantly discounted, but I still end up paying like $250 every four weeks coming out of your bank account
Scott Benner 1:06:07
out of money? Yeah, no, it's a lot of money, even in Australia, where all you really have to pay for is like snake venom, and, like repellent and stuff like that. And, you know, whatever it is, I mean, whatever it is, you keep your like, grass hut, like clean with like, so. I know. That's not what your life is like. But anyway, like, we are up on an hour, I am going to resist the urge to to go back and let's do exactly how you described your cousin brother. And used you kind of Oh, no, no, but you were fantastic. I really appreciate you doing this. And I know how hard it was for us to get this together and and do this, but I appreciate that you stayed steadfast. And we got to this point, I really am. Okay, I was really excited to have you on and i think i think i was right.
Tiffany 1:06:57
I can always do it again. Cuz like I've got more stories I've got when I went to America and Europe back in 2007. And my each one got stolen in New York.
Scott Benner 1:07:06
And wait. And then during the during the, during the theft. The person who stolen from you pulled out a knife and you said that's not a knife. This is a knife. You pulled out a larger knife. And then what happened after that?
Tiffany 1:07:20
Oh, no, I didn't even realize until like the next day because I was too buggered.
Unknown Speaker 1:07:26
Wait a minute, you were drunk when you
Tiffany 1:07:28
lost insulin. I know I was buggered. I was tired. I've been on a flight. However many hours
time zones and all that stuff. Yeah.
Scott Benner 1:07:42
Somebody just lifted it off of you. Alright, we're gonna find out this one thing. Hold on. So you're, you get to America. And of course, someone steals from you immediately. Yeah. And but
Tiffany 1:07:55
the funny thing was that I went to I went to America, I was doing a summer camp in what's it called Code Camp salaat. I'm, like, now forgotten what the name of what was called. Anyway, it's almost like the border of New Jersey, New York and Pennsylvania, somewhere around that area anyway, late to there. So like something or I can't, like stop what I think the cat like that was the area. And the camp I was that was called B'nai brith pillman camp, which is a Jewish camp. Anyway, so I had to go to America, I go to LA to do my training for a day. Then I get another point. And I go and I fly to get to New York. And then we live in New York. And it's like, midnight, and I get off the bus. And I remember picking up my little bag, my little, my little refrigerated bag that had my insulin in it out of the box. And I went inside to the to the reception area to book to get my room. And that's the last time I remember having my little bag. I can't remember what happened to it after that. So it's possible you lost it and you're telling me this. It's possible.
Scott Benner 1:09:02
It definitely started because
Tiffany 1:09:04
as soon as I realized I went down to the reception area, and I said, Did you see this bag and I described it and I get in like I had a picture of it. I gave him the picture. And they're like, No, we didn't see it. I was like, Oh my god, did
Scott Benner 1:09:19
you replace your How did you replace your insulin being here?
Tiffany 1:09:23
I rang up my insurance company. And they don't replace they replace the cost in Australian dollars, not American dollars. And of course, I bought them. They cost me $35 for a box, five boxes of five pins for 25 pins. But I had I must have got a couple of scripts because I had more than that. Yeah, so I had Yeah, was in 2006. Um, I was 27 back then, um, wow. 12 years those in America. Um, I had I must have had two scripts. So I had like $70 worth of insurance. And that's what I replaced. And my I had done medical leave padlets I had to take as well at the time, which I still do take for blood pressure, like stupid. I, anyway, they replaced the cost of that. And that was easy and obvious, like how the hell am I gonna pay for more insurance in America, and I, my insurance company, I was on the team on the phone with my insurance company trying to figure it out. They wouldn't help me. And so I ended up having to, like ration how much I would eat, and be very, like, that would have been like the worst control of my life. I was away for like five months. Well, um, and I had to, I had to buy syringes. That's the other thing Australia, we get syringes supplied for free, any kind of that we have to pay fingerprints. But apart from that, like, we don't we get, we get in. And pump supplies, you do have to pay for all your consumables for the pump, but we don't have to pay we don't have to pay for for needle tips. And we don't have to pay for syringes.
Scott Benner 1:11:04
Yeah, some stuffs covered and some stuff
Tiffany 1:11:06
to buy a box of syringes. And I was just like, this is gonna kill me. Luckily, like at the camp though, there was a doctor, because we had a, it was a big camp. So obviously, there's an infirmary and the doctor and stuff. And the doctor, I didn't have to pay and say, doctor because the doctor was there. So he gave me a prescription for insulin. And I take a day off work and go to the chemist and I bawled my eyes out like that whole day, it was horrible, just trying to figure out like how I was going to pay for this stuff. And figuring out I needed, I couldn't buy pens anymore, I cut to get disposable syringes, and I had to get vials of each one because it was cheaper than buying pens. Well, I think that that Oh,
Unknown Speaker 1:11:51
yeah, really
Scott Benner 1:11:52
highlights just the stress and the pressure that people with type one feel when they can't afford whatever it is they can't afford that they need for their health. It's a very omnipresent feeling. That just is it's overwhelming, you know, like this, the thing that keeps me alive, and now I suddenly can't afford it, and nobody's helping. And what do I do? And you know,
Tiffany 1:12:14
I like, luckily, like, because I had a really good job before I left and I quit my job because they said they would only hold my position for three months. And I'm like, but I'm gonna be gone for five months, I'm going to America and I'm going to Europe. I'm going to go to New Zealand before I come home, and they're like, Oh, nice, sorry. And I'm like, Well, if you're not going to hold the position for me, I said, Well, I don't want to work for you guys anymore. So I quit. And
Unknown Speaker 1:12:36
I'm like,
Tiffany 1:12:38
Yes, I had all this money like so I bought I got a credit card. And luckily, I got the credit card before I went to America, and you know, pay for my trip and everything. And I had money to fall back on for when I came home. That money ended up being used to buy insurance in America. And so I didn't really have much spending money. So I spent the whole trip like feeling so sorry for myself and having to go to TJ Maxx and like, you know, I want to actually like have something nice that I want to bring back souvenirs,
Scott Benner 1:13:06
right? Not just what you could get for the max for the minimum right, which is Yeah, I understand you're saying no. Oh my gosh. All right. This is it. I have to go you've exhausted me. Actually, I actually do have to go but I really appreciate this and let me just say goodbye. And I'm gonna starting the recording back up real quick because I'm gonna do Arden's lunch Bolus, Wallah Tiffany's on with me, so. Alright, so Arden a little while ago was like, I'm gonna go get a bagel with a friend of mine at school, so I think they split a bagel. I've never seen the bagel before. I did. I did my love
Unknown Speaker 1:13:47
bagel. I love
Scott Benner 1:13:48
bagel like bread, right? And so she's like, she's 179 right now. And I've got her coming back down. We've been bolusing trying to you know, we missed on the bagel bolus, the initial one. Yeah. And we've been bolusing trying to get it back down. So but now we're getting ready for lunch. So now she's got to go to lunch. So we're gonna reset attempt bazel increase of 95% for
Tiffany 1:14:14
we don't have bagels in Australia and nowhere near as good as the bagels I had in New York. And when I had a camp Oh my god, they were amazing with lox, and cream cheese.
Scott Benner 1:14:23
We Yeah, I don't I don't understand how anyone, once they've had a bagel or bread near New York City, goes anywhere else and doesn't hold on a second.
Tiffany 1:14:35
It was anything about New York City with the bagels. I don't like New York City. It's not my favorite place at all. I could think of I would rather go to Pennsylvania and go to Philadelphia. I like Philadelphia,
Scott Benner 1:14:45
Philly. Yeah, that's a good place. Let's see. I'm going to do a 12 unit bolus extended 50%. Now and the rest over an hour, I have a lot of insulin going. So I'm trying to figure out how I can try to figure out how Not to mess this up basically.
Tiffany 1:15:01
Sorry, I'm distracting you from Well, you're
Scott Benner 1:15:03
not I could do this in my sleep. But your pandologic No, no, it's wait. So let's go over everything. First of all, if you're not from the east coast, you've never been to the east coast, whatever. Someone's giving you a breakfast and calling a bagel is not a bagel, and I'm sorry for you. The pizza crust you get is not good. And anything really that's like bread or flour you're being lied to by the people who are giving it to. There's a pizza place in New York City that also has a location in Florida. And they truck water from New York to Florida just to make the dough.
Tiffany 1:15:38
Oh, wow, that's insane. How cool
Scott Benner 1:15:41
are truck full of water drives from New York to Florida. And that's how they make decent pizza in Florida. Wow. And the rest of you? I don't know what you're doing Pizza Hut or something.
Tiffany 1:15:53
If I go to Florida to go, then you could go to Disney World. I am not going to eat pizza there. I would rather eat it in New York.
Scott Benner 1:16:00
Yes. I mean, you might find someone who can figure out how to make it. But the odds are, it's just a pale reproduction of something and just yeah, nearly as good at a bagel once in Indian apalis. Yes, I was getting ready to get on a plane in Indianapolis and I was leaving my hotel and they're like here, we're going to work July. I said, Well, I'd like to eat light because I'm getting on a plane. And they gave me this bagel. And I started eating and I said Can I just get some fruit instead? And she's like, you don't like the bagel? And I said, oh you poor dear. This is not a bagel. I don't even know what this is. You know, I was like, but this is terrible. And please stop eating this. Get on the plane with me. I said you flew into where I'm going. got off the plane in the terminal. But a terminal like a like an airport bagel. It would be the best bagel you ever had to get back on the plane to fly back to Indianapolis. Anyway. Tip Thank you so much. We're all good. I got Ardennes Bolus, and we did a Temp Basal increase 95% for an hour we Bolus 12 units extended did 50% now and 50% over another hour. And I think this is gonna do it. So well. We'll say Good work. Thank you. I'm now going to go get on with the rest of my life and you're gonna go to bed because it is now 120 in the morning where you're at. Is that correct?
Tiffany 1:17:19
Yes, that is correct. Yep.
Scott Benner 1:17:20
Thank you very much for staying up so late to do this. I really
Tiffany 1:17:23
thank you. It wasn't good. It was good. having a chat. Thanks for comfort finally happened after all the stumbles we had,
Scott Benner 1:17:30
seriously might have taken a year to get you on here. So thanks again. I'm gonna say goodbye privately real quick. Hey, hold on till the very end. I have an update email here from Tiffany if you're interested, but it'll be after everything that's coming right now. Huge thanks to me for not doing any bad Australian accents during this episode. And to Dexcom on the pod and T one D exchange for sponsoring this episode. Please go to my Omni pod.com Ford slash juice box to get your free no obligation demo of the Omni pod tubeless insulin pump sent directly to you and learn more about the dexcom g six continuous glucose monitor. I genuinely think that it is at the core of every decision I make. And that you would really love to know more about the dexcom g six dexcom.com Ford slash juice box. You too can help with Type One Diabetes Research while supporting the podcast. You can do a great thing for people living with type one and support your favorite podcast. I'm assuming this is your favorite podcast. Let's just let me believe that it is okay. Anyway, T one d exchange.org. forward slash juicebox. You need to be a US citizen. answer a couple of quick questions make sure you're eligible. As soon as that happens, there's a seven minutes It took me to answer the questions they wanted. There was nothing insanely private. It was about like what insulin do you use? You know what what shape are you when when you were diagnosed stuff like that this information they use to do all kinds of great things in the world. As a matter of fact, some things that you don't realize happened in the world. Medicare covering CGM, that that came from this research, certain test trips being covered by insurance companies that came from here. So they're changing how insurance covers supplies. They're changing how you know, entities see technology. There's a lot going on here. It's a tiniest bit from you. And it has huge and wonderful ripples throughout the world with Type One Diabetes. I did it as a matter of fact, on the first day that my link became available 100 people did it. But that he Wendy exchange needs thousands. So if you can take the time, it really will just take a couple of minutes you can do it right from your cell phone or a computer. The interface is very clean and easy to use. It's nothing about it as a is cumbersome at all. If you can take that time. I think a lot of goodwill come from it. So that's pretty much it. I hope you give it a shot, T one d exchange.org. forward slash juicebox. Alright, just from editing this, I feel the same kind of rush I got when I was talking to tip. She was just amazing. I hope you had a good time today. I'll be back next week with more of the Juicebox Podcast. Thanks so much for listening, everybody. Thank you for telling other people about the show and supporting the sponsors and all the great stuff that you guys do. Seriously. Oh, don't forget to there's like 10 more days left, you can enter the giveaway, celebrating 2 million downloads of the Juicebox Podcast go to juice box. There's nothing to do by the way you just enter you don't have to do anything to enter Juicebox podcast.com. Up at the top it says 2 million. Click on it. There's some talky talk there for me a list of the swag from the giveaway Juicebox Podcast sweatshirt on the pod t shirts, Lily's chocolate gift pack 30 minute consultation with Jenny Smith CDE for free, tons of Dexcom swag tons of touch by type on swag. And it looks like there's just about those close to 2000 entries. So I mean, there's nothing to do he just click on the thing to enter. And that's it. Not keeping your name not keeping your email address. I don't get anything out of this. I'm just trying to give some stuff away and say Hey, thanks for downloading the show and sharing it with people. So if you want to take a shot at some of that, goodness, head over there now Juicebox podcast.com 2 million, little clicky clicky. At the top of the screen, there's a whole bunch of links up there actually. Diabetes pro tip link. The best endocrinologist link is the juice box docs. There's lists of the episodes. Oh, there's a link here to the free pie. Free par The free private Facebook group. Why did it take me three times to say private that was weird signs and symptoms of type one diabetes. Oh, the new BG conversion chart for those of you overseas, right. And I've got something exciting coming soon to go with that conversion chart, but it's not quite ready yet. Anyway, so pretty damn nice podcast. And I think the blog that associates itself to it is also pretty well done. If I do have to say so myself, which I'm gonna have to because there's no one else here. And no one else gives us. Except for me, because I put all this work into making it anyway. Goodbye. Hello. I almost forgot the email. Wait one second. She's home. Sorry.
Tiffany, Tiffany wrote, hey, Scott loving listening to all the stories from everyone you have on the show. I was just wondering if there was a scheduled date for my recording to go out. Tiffany, you're delightful. This by the way is back in March. It's August. Now Tiffany recorded this in January. And it took us a year so it's gonna take about two years for Tiffany to get on the podcast and total but anyway. Oh, there's been some updates to the CGM subsidy in Australia on first March 2020. It was updated to now include those who have access to those receiving assisted benefits from the government for low income pensioners. Low income and slash pensioners um
Unknown Speaker 1:23:17
Why am I being texted?
Scott Benner 1:23:21
People leave me alone. I'm trying to do something here. Oh, geez. Now I have to start over March 1. Updates now include those who have access to wait, what is Tiffany? What are you trying to Tiffany reading you is like talking to you. It's absolutely delightful. March 1 2020. It was updated to now include people who have access to those receiving assisted benefits. Alright, Tiffany, Elizabeth here. It seems like it seems like people who receive assisted benefits assistance benefits from the government in Australia for low income people or people on pensions. She says this means since I'm a stay at home parent, I can now access it too. Oh, she's excited happy dance. I just received her email to she just received an email today telling her the application was successful. And now she just has to wait for the CD to train her. She's going to be using Dexcom g five. Also g six has passed and should hopefully be available mid year in Australia. Okay. I hope you all got that. I'm now exhausted. Tiffany I love you. I I think I want to start a podcast. It's just me and you. We're not even gonna talk about anything. We're just gonna talk. I'm now really leaving for real. This is over. Goodbye.
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#369 Ask Scott And Jenny: Chapter Fourteen
Answers to Your Diabetes Questions…
Ask Scott and Jenny, Answers to Your Diabetes Questions
Any helpful tips on sleepovers?
What to do and consider when relocating? Tips on finding a new doctor.
What other specialists do diabetics need to visit?
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:02
Hello, everyone, welcome to Episode 369 of the Juicebox Podcast today on Ask Scott and Jenny. And these are questions that Jenny and I did our best to answer that came directly from you. Today we'll be talking about sleep overs, relocating, finding new doctors, blind management, which is the idea of being able to manage Type One Diabetes without being with the person that you're helping. And what are those other doctors that people with type one diabetes need to visit? Now you guys know Jenny, by now, Jenny has had Type One Diabetes for over 30 years. She's a certified diabetes educator and a lot of other cool things. But mostly, she's the first you know, from the pro tip series from ask Scott and Jenny, of course, and defining diabetes. Jenny really is just the cat's pajamas when it comes to type one and a couple of other things. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin. If you hold on for just one second, after the music, I have something for you.
So today's show doesn't have a sponsor in the classic sense, meaning that no one has you know, paid a fee to put an ad on the podcast today. What I do have, however, is an opportunity, one for you. And one for me. One for everybody living with Type One Diabetes, actually, but let me explain a little bit to you. If you remember back a number of weeks ago, maybe it's months now, the CEO of T one D exchange came on. It's a nonprofit that does data driven stuff to help people with type one diabetes. Anyway, after that episode, I maintained a relationship with T Wendy exchange, we're talking back and forth about a couple of things. And they asked me if I'd be interested in helping them gain participants for the T one D exchange registry. So see the T one D exchange registry is a research study conducted over time for individuals with Type One Diabetes and their supporters for like the parents of somebody with type one as well. The participants are volunteers that provide their data for research by just answering these questions in an annual survey. Once you're enrolled, registry, participants have the opportunity to sign up for other studies on various topics related to type one diabetes. The goal here is to improve knowledge of type one diabetes, help accelerate the discovery and development of new treatments, or to generate evidence that supports policy and insurance coverage changes that help people living with type one. So if you're not just paying for me to tell you this, how does this work? This is important for me to tell you, I want you to understand this.
Every one of you that goes to the link, T one d exchange.org. forward slash juicebox enters the registry, answers a couple of questions to see if you're eligible. And it's really just about having diabetes, couple other things. And then complete the questionnaire, which I've done already took me about seven minutes, I actually did it live. And I recorded it. So it's at the end of this episode. So you can hear took me about seven minutes. The questions are very basic and completely anonymous, your information will never be attached to the answers, they will never know that you. Let's say your name, for instance, is john. And john, your information, the answers to your questions will never be attached to your name. It's taken very, very, very seriously. HIPAA regulations are followed to, you know, the nth degree. Anyway, this information impacts all kinds of things. For instance, you know how Medicare started covering cgms. They used the data that the T one D exchange was able to pull together to show how important that was. And it helped move that legislation forward. It's helped coverage for test trips, it's helped to show that Dexcom can work without finger sticks, all of this different stuff. But but here ends up being the real problem. The more data that they have, the better. They can do their job. And the T one D exchange is having trouble getting enough people to do it. That's why they came to me they thought that this podcast could reach more people. It's not a situation where people don't want to do it. It's that they don't know it exists. So they don't know how to do it. So they don't just need 25 of you to do this. They don't just need 100 of you to do this. They need thousands of you to do this and it's super simple. Again, you'll see at the end, but you go online, the website is really clean. It's very intuitive. It's easy to get through a couple quick questions. Am I okay to do this? Yes, comes back immediately through your email, you keep going, right there on the web page, answer the questions, I go over every question. So you know them. And then that's it. And then annually, so yearly, you'll be asked to kind of update your answers to some things and maybe ask different questions. I put a lot more information at the end of the episode, so you can understand this. But that's it. It's super simple, and incredibly valuable for people living with type one. So if you've been looking for a way to support people with type one diabetes, and if you'd like to support the podcast, this is going to do that, you know, with one one effort two birds, one stone, think of it any way you want to, you're going to help people with type one, you're going to help yourself, you're going to help your child, you're going to help the future with type one diabetes, and you're going to help support the podcast. T one D exchange wants you to know that the purpose of the study is to collect the information from individuals with type one diabetes, and parents of children with T one D to learn more about the management of type one diabetes, how it may change over time, and how different management approaches relate to glycaemic outcomes, acute complications and the use of health services at this time, there is no end date in sight for the registry. T Wendy exchanged hopes to follow a large group of people with type one diabetes over many years, so they can get a very firm grasp of what all this data means. Anyway, I think the people listening to this podcast fit perfectly into this idea. And I know we can reach a lot of people. So if that sounds good to you, and you can spare a few minutes, T one d exchange.org. forward slash juicebox. Links near show notes and links at Juicebox podcast.com. us residents only. Oh my god. Hi.
Unknown Speaker 7:00
Hi.
Scott Benner 7:02
When you texted I was like leisurely. Just you know,
Jennifer Smith, CDE 7:05
like getting a cup of coffee or no tea. Don't drink coffee. Tea. Yeah, I was.
Scott Benner 7:10
I had a Arden's blood sugar got low on me at 4am Oh, no, just two seconds. I got up and I fixed it. But I I stayed awake to make sure. And then the dogs barked. And then before I knew it, it was 630 to get out. I hadn't been up yet. And Kelly let me sleep. So I just like 10 minutes ago, my eyes was like, Huh, it's morning. Funny, I don't sleep in ever. I never get to sleep in. So I was like,
Jennifer Smith, CDE 7:43
well, that's a long sleep. And it was.
Scott Benner 7:45
And so I was like, Okay, cool. Like, I'm gonna go set up and get ready. I'll take a shower. And then you're like, I'm ready. Lady, what's going on? All right, Jenny, let's actually get to the questions here, shall we? Get Megan Megan goes, I've heard Jenny talk about when she was little. This is about little tiny Jenny Oh, and did sleep overs. I've never let my daughter go to someone else's house overnight. She's nine years old. Any helpful hints? She doesn't wake up to her phone alarms. So it would have to be me calling in other parents when she needs something. Well, I know what I do. So you're in a different position. You're, you're not little Jenny anymore. But like, let's talk about that for a second back in the day. Like why was it easier when people knew less about diabetes? Like and I mean about the data and what was actually happening? Because
Jennifer Smith, CDE 8:37
Yeah, I mean, did you because nobody could follow anything. I mean, there was there was literally no continuous glucose monitor. And while there were pumps, they were they were nothing. So I didn't I didn't have one. I was only on daily injections. I mean, this lipo was first that I had, it wasn't like some random person down the block that was like, Hey, I met Jenny at the playground. Let's have her come sleep over. You know, I mean, these sleep overs were with good friends that knew that I had diabetes. I mean, they didn't know much about the management of it. But you know, what my parents essentially my mom really did. And she was like, the order keeper in our house. Was she just kind of hyped up a plan, right, she was, she called the parent ahead of time. She knew kind of like what kind of snacks and things what we were going to be doing, whether it be like playing outside or whatnot before or if it was just an evening kind of thing where we'd be watching movies and then talking all night or whatever it was, you know, and she essentially just gave a guideline for Jenny needs to check her blood sugar at these times. Again, we had no continuous monitor just so I had to do a finger stick right and you know, has to have a snack at this time because actually at the time of doing sleep overs, and even In through high school, the insulin that I was on required very regular meals and snacks, I didn't have the option of using a human log because it wasn't available or a nova log because it wasn't available. There was no rapid there was our right, which was longer acting. So I had very time two types of things. So I always had an evening snack plan. And it was just that my mom had to make a consideration for what that was going to be at the friend's house. Now compared to what I usually had at home,
Scott Benner 10:31
did you deal with the lows, the way people deal with lows now on that insulin.
Jennifer Smith, CDE 10:37
Um, only if you didn't eat only if you didn't eat correct, because on regular insulin, you usually mixed it in a syringe with an intermediate acting insulin, which was cloudy, right? And that had about a 12 to maybe 16 ish hour impacts, you took that kind of insulin with the our insulin every 12 hours morning, you didn't take any insulin at lunchtime, because the cloudy insulin was supposed to peak in action. And so the lunchtime met the peak of that insulin, so you didn't take insulin to cover lunch. But again, meals were also very structured, like I had a certain amount of fruit and vegetable and protein and fat. And, you know, everything at the meal was very sort of sketchy, you know, a schedule that was regimented. So I think that might have actually made it a little bit. A little simpler. I would say
Scott Benner 11:28
I'm honestly, I'm thinking your mom's real concern was eating at certain times, right testing to make sure we're not way crazy off one way or the other, and, and maybe having to adjust the insulin a little more aggressively for party foods that you didn't eat every day.
Jennifer Smith, CDE 11:47
Right? Right. And potentially knowing that, you know, the next morning, I mean, the call was always this Jenny's blood sugar. It wasn't that the parent of the house figured out what to do. It was that they called my mom and they were like, this is Jenny's blood sugar, and that we did the math, and we figured it out. You know, we knew how much to take them in. Because we did have a correction. Yeah, you know, to be able to add in. But as far as overnight, I believe I remember the parents at night, waking me up in some cases, but I can definitely say not all the time to test. I mean, that was a, that was a thing that my parents did do at home. But I'm quite sure that my mom didn't have them doing that all the time with,
Scott Benner 12:33
it'll be okay. It's usually Okay, that kind of thing.
Jennifer Smith, CDE 12:35
And she went with that, because she knew the kinds of things I was going to be snacking on at a party in the evening, were likely actually just going to drive my blood sugar higher than we would want them anyway. Yeah. And we just left him sit there. So you know, we didn't know really,
Scott Benner 12:48
so. So I think the two things here that make your experience different than Megan's question is the type of insulin right that we use now versus back then. Right? And that your mom had things pretty well structured, right? Yeah. She wasn't like, things weren't a mess at your house for your diabetes. Your mom was like, well, we'll just roll the dice and let her go. You're like, shoot, right? She had a plan? I think it sounds to me, How old is your mom?
Jennifer Smith, CDE 13:21
Um, my mom is
Scott Benner 13:22
- How would she do on one of these interviews? Do you think I just thought it might be. might be interesting to talk to your mom one day. But, but you'll decide if that's a good idea or not. I don't I don't need to know. But But my thought was, is that she was she was more like us, the people listening to this podcast, probably. But back then. She really, like dug through it. It wasn't just as easy as you know, like, blah, blah. Like, I know, I had friends who had diabetes, you know, that long ago. And it was just sort of like, Hey, this is what they told me to do. And this is what I do. Right? They weren't looking at it any farther than that. Right? And so
Jennifer Smith, CDE 13:59
today's technology has brought in the ability to see so much more. I mean, I mean, even my mom says, today, gosh, I wish that I had had this type of visual information. When you were little right. The things that we could have done differently is kind of, and I'm like, you know what, Mom, I'm alive. I am complication free. You did a really good job with what you had. And that is what it is, you know. But in today's world with the technology we have, you kind of have to take it and say, What do you know about the people where you're sending your child's sleep over?
Scott Benner 14:34
Right really going to do this thing that you're asking to do? Or will they not see it as being important? But I also think that if Megan has a CGM, if she has a dexcom and she has shared I mean, which I think at this point, they all share like there's not one that I don't think anybody's using one that they can't see on a phone or, or something like that remotely. So is the idea for me. I mean, here's how I did it. I think I thought, okay, I can't not let Arden spend the night at someone's house, right. And I've had two different experiences. I've had parents who lets you know what, I've had three different experiences. That's interesting. I've had parents who just listened to what I said, and didn't over or under think it. And that always went well. I had a guy who had struck him so hard. The Father, not the mother. He just stayed up all night long. He couldn't bring himself and go to sleep. When I got there in the morning to pick him up. He hugged me, and we did not know each other. And it was a I'm sorry, Your daughter has this hug. Oh, like it was like that.
Jennifer Smith, CDE 15:39
Like, I'm sorry that you stay up all night? Yes.
Scott Benner 15:41
He just assumed I think that I probably know, he probably looked at me. Like, that's why that guy looks so bad. But, yeah, I mean, I wouldn't be I wouldn't be okay either if I never slept, but no, he just, he cared so much. And he and he took it so seriously, that he couldn't bring himself to have a moment he slept through. And he just sat up. Sure. And I've had people this one woman comes to mind. Who, if something would go wrong, it was fine if it went right. But if something went wrong, if Arden's blood sugar got out of toe a little bit, she'd call me and say you have to come get her. And she made me pick it up at three o'clock in the morning, once. So I've had all the different experiences. So the people you're sending them to, are a big part of this AR because you don't know how they're going to react to being able to see the data. Right?
Jennifer Smith, CDE 16:37
And I think you may want to in that, in that sense, you may want to even start with the people who really, you've come to know them, well, you don't only know their child, but you've come to know the parents of the child, right? You've gotten comfortable with them, they see your strategy of management because you've interacted socially, hopefully again, at some point.
Unknown Speaker 16:59
What right.
Jennifer Smith, CDE 17:02
video now. Right, right. So, you know, I think once you get to know people, they have a comfort level, because they can see how you strategize. And they can see your comfort level with it. It's throwing a child into a setting where again, it's like, the parent of a kid who's kind of newer, to the group of kids your child hangs out with, and you're like, they're trying to get to know people. So they're going to have a party and whatever. Well, you know, what, maybe call the parent talk, see what their comfort level really is with everything. Because people I've learned people get a sense of comfort from what you exude. Right? They, they, they feel eventually what you're feeling about it. So if you're like, oh my goodness, wow. I mean, they're gonna be all like, anxious and like, ramped up
Scott Benner 17:53
to, every time I talked about school, I tell people do not come off as crazy, because they're just gonna think you're crazy. And that's going to be the end of it. Now, the person who made me come get Arden at three o'clock in the morning, let me say this. I was not surprised that she was the one that that happened with. She was a me person. And when it got hard for me, being her she didn't want to have anything to do with anymore, but her kid was popular and art and was trying to, you know, get along. Yeah. Interestingly enough, now I think Arden's popularity has changed a better way. Yeah. So I don't see Arden trying to, you know, make friends anymore. It's she's just comfortable with the people she's comfortable with now, which is really nice. But But this bigger idea. And Megan, you're lucky you answer the SS question here. Do you know, years ago before all this fun technology, I actually sat in Manhattan for 12 hours in a television studio in a chair, and a light would come on. And someone would say you're live in Indianapolis on CBS three news in 54321. And then I would talk about sleep overs. And I did it for Lilly. And then you'd sit back and say this one's a radio, you don't have to be on camera and you sit back and then you do a radio interview. I forget what they call them. But I did one one time for Lilly diabetes, when they were putting out this little book, it was like kids books or something like yeah, like the CoCo bucks. Yeah. And it was interesting, because I got to talk about sleep overs over and over again, it was a little more like, Listen, you really need to let your kids do this, because it's a weird thing to restrict. Now, having said that, I know people who think that sleep overs are weird, and would never let their children sleep in someone else's house. And I don't know that I can argue with that. Like, I mean, if that's your feeling then right on, but what I think is, is that if this is something your kid wants to do, and something you want them to do, having to restrict them because of diabetes is gonna have some sort of psychological impact. It might be a little But it's not a good thing moving forward, I was never allowed to go anywhere, which will later build into I shouldn't go places I'm scared like it could, it could pet right it could build, some people might not care. So I think if you've got the technology, the way I ended up eventually being good at letting art and go anywhere, was I would practice managing when she wasn't with me through Texas Rangers, right, and then we got so good at it, I don't need to be with Arden to help her with their blood sugar, right, then it becomes the overnight spot, then you have to have a person who's willing to take a phone call, and knows it's possible the phone's gonna ring overnight and will wake up and can take direction from you over the phone. Correct me though.
Jennifer Smith, CDE 20:44
And all kids too hard, a very different level of their own ability to manage, right? Some kids from early on, can wake up to their alarms, and they may not know how to treat it, but they wake up to it, they go shake their parent, they're like I'm low, or their parent is already in the kitchen getting themselves think or whatever. Some kids sleep through everything. And it's a good majority of kids who actually sleep through everything, you know, because they just kids have a very deep sleep, which is a good thing. But from the standpoint of alarms, especially when you're trying to communicate with your child at three o'clock in the morning, and they're, you know, six miles away. That's it's hard. So again, you have to have that communication piece with the parent, not necessarily saying hey, if to sit up all night and watch my child's blood sugar, but if I call you, I would hope that you're going to answer you know,
Scott Benner 21:38
two other things with technology that helped with that. One Find My iPhone for people with iPhones, if you don't know what find iPhone is it sends a piercing signal through another phone. So you know, you could send that. The other thing is to I would you know, after dexcom share was was you know, a thing. I put the the follow app on the parents phone, right? But only give them alarms for low extreme
Jennifer Smith, CDE 22:08
high or really
Scott Benner 22:10
percent right, I would put an extreme high or at 55. I said, Alright, listen, if this thing beeps you know, kind of deep and twice. Her blood sugar's too high. And if it beeps, like faster, I can't I said dumb and you'll see like, it actually sounds more panic the low beat Yeah, it feels like it's killing you, oh my god, you're low do something. Or my brain is, you know, you know, attributed that to the sound at this point. But and I said, you know, it'll be beep, beep, beep beep for really fast that's low. Low means do something right now don't wait, hi means we really should be getting her blood sugar down. And those were simple, like directions that I think they were able to understand. Yeah, maybe my
Jennifer Smith, CDE 22:55
mom, my mom went as far as all the sleepovers that I went to I always had my glue gun kit with me. I did. I mean, the parents again, were knowledgeable, good friend, parents. And they, they knew how to use it. They knew the purpose of it. So I just I brought it along. But again, never had to use it in those circumstances. Thankfully, the parents never had to try to read the directions at two o'clock in the morning. And
Scott Benner 23:22
it's a tough thing to look at another human being in the face, pull the thing out and go, if she has a seizure, what I need you to do, like, wait, what a second now. Yeah, and you're like, Oh, don't worry, that's not gonna happen. I used to say aren't had diabetes for five years, six years, eight years, that's never happened. We've never used one of these, I buy these and throw these away all the time, blah, blah, blah. Right. Having said that, if she should have a seizure, it's not a not a reassuring thing to say to another person. But it's a good thing. And so my point is, maybe have that this is how the glucagon works conversation, not at the drop off. But prior to that, so that you don't put them into shock. You know,
Jennifer Smith, CDE 24:02
and I think you'd actually just said something very appropriate. It's the prior to, it's the planning. Yeah, right. Most people don't have any plan for dropping their child off at a sleep over. Other than just saying, yes, you can go get everything ready, and they drop them off. Yeah, as a parent with diabetes, you already know that you have to have a plan for a plan and plan B for Plan C and whatever else. Yeah. So it's the plan ahead, the talk ahead, don't expect to spit everything out at the parent as you're dropping your child off at the curb and then be like, bye, bye.
Scott Benner 24:40
This is not something you should be yelling out the car window. I'm actually thinking we should add a couple other things to this. So parties, picnics, things that you don't go to because you don't you know, you don't like the parents. So you just I can't spend the afternoon over there with those drunks, you know, like gigs or whatever. Whenever you know, something you Won't be at. I think a lot of these ideas fit right along. And they're actually simpler because people are always going to be awake during them. The one thing that I know causes a hiccup is a pool party when you go in the pool, now you're not, you don't have a signal for your CGM anymore, right. And so I think still, one of my, one of my most valuable diabetes skills, is being able to blind manage diabetes, like not to have to be with the person or see exactly what's happening, to infer, from what I know about the situation or what I can see in the data. I think that's why I'm good at looking at someone's graph and being like, hey, blah, blah, blah, you know, do this and this and the way I think of it, the way I thought of it originally, when I realized I need to be better at this when I'm not with it, is I was always impressed by customer service people for computers. Like they're not looking at your computer, but they're walking you through the computer, right? Like they're like, you know, see that thing over there. Click on that,
Jennifer Smith, CDE 26:06
you know, the parts, they know where they are, they know where to poke it, they know exactly on a list of a drop down which one to write,
Scott Benner 26:12
right, like, in my mind, make yourself a marine that can take apart and put his gun back together, blindfolded. Like, like that sort of a thing with diabetes. Like I feel like I'm there now, which will help you in your own life too. But it definitely helps you when you lose the signal. And you can calmly say to yourself, okay, the signals last Arden's in the pool now, yeah, she's not gonna swim that long, she doesn't usually swim this long. So in about a half an hour, you know, she was 105 and a half an hour, if I haven't heard from her, I'm gonna send her a text and ask her to get back near the transmitter for a minute. And be okay with that. And not be sitting around your house, you know, scrolling on the walls in your own excrement because you've lost your mind. Billy's a nice boy. Like, you know what I mean? Like, like, try to hold it together is what I'm saying. And if you can't hold it together a nice phone call to the host parent who's willing to take that phone call or text just say, hey, I need you to have Arden test your blood sugar. Right? That's all
Jennifer Smith, CDE 27:12
and tell her to get out of the pool for five
Scott Benner 27:15
minutes, text me afterwards. That's, it's all very reasonable. In the end, as we're talking to Megan and talking to each other, and I'm recollecting all these things I've done throughout time with diabetes. In my mind, I feel like I'm like, I almost feel like I'm getting away with something or having a podcast, because is anything we've just said not common sense. Like, right? It's just that what happens to us around diabetes, is the fear literally knocks that common sense right out to you. Correct? Yeah. And then and you cling to I need rules, give me rules to follow, if I have rules, then nothing will happen to my kids not gonna have something happened to him, I don't want to happen. I don't think that's it. Like I don't, I think those rules are just there to make people give them like a, almost a false sense of calm, where what you really need to do is understand it, and is different than anything else in the world really. You know, also making keep in mind is your kids nine, now she's going to get a little older skin and want to go to a dance at the school, this is going to be the same, the same muscle you're going to use there, you're going to start sending her to parties, I hate to say this in the 1314 range, some little malcontent and your town is going to start drinking and think it's really super cool to bring alcohol to a party. And hopefully your kid won't be the one at 14 years old and artist that wants to try it right. But you know, by then I'd like to see you have a firm grasp on this. Because, you know, right, everything gets a little harder when they hit that, that age in there.
Jennifer Smith, CDE 28:50
And I think you brought up a point to before about, you know, it's your decision that you just don't agree with sleepovers at all has nothing to do with diabetes, then for the child who has siblings, those siblings also follow the same rules. So it's a little easier for that child to feel like has nothing to do with diabetes, it's just because mom and dad don't really agree with going to sleepovers. Whereas if your siblings are going to parties, and they're eight years old, and you're 12 years old, that's really that's not fair. It's not your call, and you're causing a problem that could be a problem later on for how that child continues to grow and feel about sharing about diabetes and being open about it and even managing it a little bit more on their own in an open way.
Scott Benner 29:36
Diabetes is already an already has the possibility of being an issue in your kid's life. You don't want to turn it into that cousin that you talk about behind their back. Where you know, I mean, where you're like, oh, yo, Patty's great. And then at home, everybody's like, Patti. So where am I? Right? You know, maybe like you, you know how it goes with family, right? Like because that's, you don't want your kid you don't want to be telling your kid. It's fun. This is manageable, you can have a normal life. And then, you know, three times a year be like, but you can't go because of this diabetes. It's not my fault. I'm not the one keeping you out of it. Because now you now know Nobody. Nobody likes Patti, and not therapy, and right, not gonna help you throughout your life.
Jennifer Smith, CDE 30:18
No, no, I mean, I can, I can remember only one. And as an adult now, well beyond my teen years, I still remember this one time that I was not allowed to go to do something. And it was in high school. And I know it had to do with diabetes. I do. Yeah. And I know, because my brother who's four years younger, so we were never in high school together, right. I finished I went to college, he started his freshman year, so we were never together. My senior year, our basketball team went to stay. And that meant that we wanted to travel with our team. And we wanted to go to state and watch them play a weekend tournament. Right? My mom wouldn't let me go. All my friends were going my known friends, good parents that my parents knew were going to be there. My mom wouldn't let me go. Yeah. And I knew the reason, despite her letting me go to a million other things, sleep away Girl Scout camp, sleep overs, all those things. But I was in high school. And she didn't want me to go out of town to sleep in a hotel, along with this like, and again, I think from a visual had she had some information technology wise, she would have been okay with it. But yeah, that was the one instance and I know it was diabetes, because my brother when he was in high school, they also at some point went to state, the varsity team, and my brother got to go
Scott Benner 31:46
could this has been a gender thing, as I'm asking was, was was your mom trying to keep Jenny pure another week? I don't know. Why, why did you really want to go to the basketball tournament?
Jennifer Smith, CDE 31:58
And that's the funny thing that was a really like, I was I still am pretty much like a follow the rules. There are many things that I don't, you know, follow strictly everything kind of go my, but I'm pretty much like the rule follower. And I was I growing up my brother was the one that pushed the buttons. He pushed the limits. He did not me. I was the firstborn and I did it. Like I was told I'd be home by 1130. I am home at 1120. I was told to be home at 1130. I I don't know if it was the gender component. Perhaps it was. I maybe don't
Scott Benner 32:33
I don't know, either. I'm just wondering. That's all
Jennifer Smith, CDE 32:35
anyway, that's the only one situation that I
Scott Benner 32:37
can remember if your mom was like, I'm just gonna pull this diabetes card out one time here to keep Jenny a virgin.
Jennifer Smith, CDE 32:47
Boyfriend at the point.
Scott Benner 32:49
Don't need one of those at a basketball tournament. Anyway, that's nice. Do we want to talk about relocating when you have type one, like literally moving somewhere else? Or do we want to talk about it or
Unknown Speaker 33:05
have you? Oh, I've done.
Scott Benner 33:07
Alright, here we go. MC pres what to do or what to consider when relocating, especially if you're the caregiver of a younger kid with type one, what should I do before leaving? And when I get to my new location? All right, Jenny, you married somebody in the military. All right.
Jennifer Smith, CDE 33:26
I did. My husband is a retired Marines.
Scott Benner 33:29
So he actually probably does know how to take a gun apart with his eyes closed. And what else can your husband do in the dark? And? And
Unknown Speaker 33:42
we'll go with guns.
Unknown Speaker 33:42
Yeah.
Scott Benner 33:45
We're just gonna talk about Jenny's husband's pistol for a couple more seconds. And then we're going to talk about reload. I'm just kidding. Go ahead. What do you do to read now that I've got her?
Jennifer Smith, CDE 33:52
Yeah, we've, we've relocated a lot. I mean, since we got married. We have moved many numerous times, within cities as well as out I mean, we grew, we moved. When I did my internship out to Colorado, that I took my first job and we moved down to Florida. Now we, that husband took a different job. So we moved up to Washington, DC. And then the area was very busy, and we wanted to be closer to family. So we moved back to Madison, Wisconsin to be closer to family when we wanted to have kids. So we've moved a lot. And in each instance I can say that prep ahead of time and so that this is a great question. I somebody is thinking ahead here, they're thinking I know I should be planning something, but what should it be right? I mean, as as the person myself with diabetes, I always very quickly established, who to go to write with whoever my insurance was. Once we got there who I could see I called a bunch Have people I called around to see, you know, as an endocrine practice for adults? Do you see a lot of type ones? Or are you mostly type twos and you just dabble in type ones, or, you know, you're only like, this friendly to this particular pump, and you don't want to help anybody with anybody, anything else? I. So I guess, in that it's asking questions, right? In within, again, kind of your network of provider availability, yeah. As the caregiver, those are some things that you can do ahead of time, that, you know, if you're, if you know that you're moving someplace, obviously, you've got a location that you're moving to, you're not just going to like live in your car on the street corner until you find a place. So you've either got an apartment, or a home that you're renting or a home that you're buying and your new location. You know, consider distance in a city, if the best provider is 20 miles across the city, but they're the best. And you've heard the, the greatest things and they've got openings, you have to kind of fit that into your I can do that. And in the moment to see the person every three months or every six months. So I can do that? Or do you want to be closer? Do you have a lot more issues that you need to discuss, but calling around as well, like I said, if you know, especially because insurance dictates a lot of what you can do. So if you know what your provider is going to allow in the new location, look at the network of providers on that plan. Yeah, start to pick out some even even you know, with so much social networking online and the diabetes online community, there's so many Facebook groups, especially available that can give you you know, parents of kids with type one, ask a guarantee, at least in some of the big major cities, and in most of the states, you're gonna find somebody who answers you back and says, Hey, I live in this city, and I see this person and they're really, really awesome.
Scott Benner 36:59
You know, mine when you do that, though, everybody, everybody grades differently, like they do. What is awesome mean? Like, you know, in the back of someone's head, awesome could mean you know, I come in there with an 8.1. And they don't give me a hassle. I like that. It's awesome, which probably isn't is a good thing. I'm just saying that people's expectations are varying. But I do think it's a valuable way I just used my breach to try to find a an endo, for a girl in New York City. Yeah, you know, and I'm wondering as we're talking, if you don't, I wonder if you couldn't set up a short conversation, not an interview, you wouldn't call it an interview to the doctor, because they wouldn't like that. Right there. God complex would definitely not like that. But um, but you know, I conversation where you say, look, this is how I manage? Would that be okay with you? You know, like, would you be open to helping me on this path, because I don't want to take all the effort of coming to the PAC practice sitting down explaining to you what I do, and having you say, you can't do it like this, or, you know, I just don't waste your time or my time. I wonder if that's not valuable?
Jennifer Smith, CDE 38:04
I think that's kind of the it's sort of a more in depth. thing to do, I think more the tip of the iceberg for for filtering. Yeah, which is kind of what you're doing is calling the providers that you can see, you know, on your plan or whatever, and assessing, most likely you're going to get in contact with their nurse that helps them rather than the actual practitioner and ask ask them Yeah, right, you know, have a line of questions that are essentially, I use this kind of product, I use this kind of continuous monitor this kind of, you know, I use this software. Does your offer, is your office, you know, kind of allowable for these types of things. Do you use these? Would you allow me to bring in reports, if you can't physically see them? How much time will you spend with me? I've got a lot of questions. I've got other things besides diabetes, maybe they've got celiac as well. Or maybe they've right can you work with them?
Scott Benner 39:03
how flexible would you be if I said, you look, I you know, I don't wait three hours to correct the high. You know, because there's a there's some places who'd know, I'm starting to believe they know so little about it. In regard in terms of like, looking at the data and making a decision, they need to know when things happen, because that's how they think about it. I'm starting to think now that's what it's about. It's not about I don't want you correcting a high probably in the back of their mind. They're like, geez, get this blood sugar down. But if you did, then they don't know how to look at your graphs and make sense of them anymore. Right. And and so, you know, if I did that, yeah, right. I need these notes to say what I need them to say so that I can help you. Otherwise, if you bring me different data, I'm, I'm useless to you. You know, I'm starting to think it's a little less about them wanting you to do something a specific way just to control you or because they think you're wrong. And it's more about them, about you getting them out of their element. By doing things differently than they're accustomed to, right, right. But But and
Jennifer Smith, CDE 40:04
that's, that's the notes component that I always talk to the people that I work with about. Your doctor isn't necessarily like a bad doctor. Yeah, it's just that one, they have a time constraint. First. Secondly, if you only give them your pump to download, there are no notes. There's no history, and there's no information about it. They can only take the information there and make suggestions based on data, right, but they don't know the variables of your day. If you come into the office, and you've been in Aruba for the last three weeks drinking my ties on the beach. They didn't know that when they looked at your data and said, well,
Unknown Speaker 40:43
gosh, right,
Jennifer Smith, CDE 40:44
what was going on here?
Scott Benner 40:46
Sometimes people don't know, I have to say, That's weird. What's happening right there. You know, I, you know, what made me think of this. And I've never considered this before. But I think it's a good idea. Like you're saying call head talk to a nurse or practitioner or something, get a feel before you lock yourself in, and then then have to go through that trauma. It made me think of, when my son was recruiting for baseball, we went to a meeting. And I think he wanted to go to this place. And the guy started saying weird stuff. And it was like any any we walked out, he goes not here, not this guy. And I went, Okay, why he goes, I don't know, man, not here. And I'm like, all right, you know. So he just, he got some feedback back from this man that made him feel like this is not where I want to spend four years playing bass. Right?
Jennifer Smith, CDE 41:31
Well, and you bring in a good point there too, from you know, this, this person is asking specifically for their child, they don't know how old this child might be a young or might be a teen or whatnot. But I think especially for all ages, finding this would be a pediatric and no practice, right? But finding one that the doctor really has interaction with the child and expects the child to be a part of the conversation too. Even if it's you, right? It's it's not just I'm talking to your parent, and you're off in the corner playing on your iPad, because I don't give two hoots about talking to you. I'm just going to look at your data. In my opinion, if it was my child, that's not the kind of practitioner I want. My child needs to be engaged in that visit, even if they're three years old. And the doctor just asks, Where do you like to put your pump? Or which finger Do you like to stick or write? I mean, there needs to be and that those are questions again, that you can ask ahead of time. How do you work with kids? Yeah,
Scott Benner 42:35
and that's good, because it might not be so important in the moment, but it's important for when your kids 25 and feels comfortable talking to their doctor about their diabetes, right? Yeah, I our endo is very good about that with Arden. Because, you know, in honesty, Jenny's right, they're just they're honestly those kids are really there. So they can check their sites to make sure their sites aren't going bad. And like, you know, right, ask them, you know, the rest of the questions or to make them comfortable. And now you're making a point, though, about being an adult. I think about this all the time for Arden. I wouldn't know this if I wasn't so involved in community. But adult endos are a bit of a grab bag. Right? It there's not a ton of really good ones. And so, unfortunately, I want Yeah, I wonder how long I have to start prior to art and getting booted from a children's hospital. How old? Do they let you be at a children's hospital? You're done college 18. Is it not? If you go to college, you can keep going there because PD pediatric? That's a good question. Yeah. also find out about that.
Jennifer Smith, CDE 43:40
Yeah, I would definitely ask about that. Because I know it used to be like, when I was kicked out of my pedes it I was 18 Yeah, it didn't matter. That was in college. I was 18. And I had to switch over to a an adult and oh,
Scott Benner 43:53
yeah, I'll tell you, I might very well lead with Listen, here's Arden's records for all these years. I just need you to write some prescriptions. Can you do that for me? You got an A one c machine back there somewhere, you know what I mean? Like, like, that sort of thing. Without being cocky in a way that will make them be like not like you to like there's that's the other part of it is like you have to realize you're building a real personal relationship even though it only happens 20 minutes at a time every three months. You don't want the doctor to walk in and look you in the face again. This one? Yeah. I remember him. He didn't need me, like didn't mean like you're you need to avoid that kind of stuff. So. Alright. That makes sense to be cover that,
Unknown Speaker 44:40
I think All right, cool.
Scott Benner 44:46
So here's a pretty simple one. And now you got you go.
Jennifer Smith, CDE 44:48
Oh, I was gonna say the one. The only other thing that I would add to the end of that would also be from a prep standpoint, which is the quote, you know the question make sure that priority tubing, you have enough supplies that you're not in a rat race of establishing with a practitioner to actually get new prescriptions for things. Yeah. Because that a new new provider will usually not do, right. If they don't know you from the corner, man. They are not going to write a prescription for you just because you're in urgent need of one, but
Scott Benner 45:22
the person you're currently with would probably be happy to load you up before you moved. Yeah, right. I know. Um, one time, Kelly switched jobs, unexpectedly. Nice way of saying that, isn't it? One time? Oh, and don't worry, we're fine. But but but you know, she switched jobs unexpectedly one time. And I was right on the phone, nurse practitioner, I was like, Hey, we might have a gap in medical insurance. And she's she, I didn't even have to like, finish my sentence. She's like, Oh, okay. I'll just send all the scripts here because we bought online pharmacies. Like I'll send everything in right now. for it. I was like, thank you. There was it. So what I'm saying is that while my wife was transitioning, there was a stack of insulin in my refrigerator big enough that like, we couldn't buy hotdogs get on me. Yeah, so we're a little low on space. And, and, and that's because we had a great relationship with her. But you know, she's the one we know. So if you're going to relocate, stopped up with the person who knows you beforehand. All right. We I think we can do this one before you go. Brittany said, all of the other. By the way, there's a before I start, there's there's a question here that I don't know if we can ever, I'm going to read your question, and we're not going to do it. But it says I feel like so many of us struggle with finding the right balance of explaining diabetes, like fitting in the right amount of details. So they understand it's more than a couple of shots, but not too many details where you give, but they give you the glazed over last
Jennifer Smith, CDE 46:54
is like explaining to somebody else about
Scott Benner 46:58
just like not necessarily the how or the why or the scientific medical part. But like a, hey, if you're listening to this, someone you know, love has type one diabetes feel they need insulin for food they eat but not all carbs are equal, you know, and she goes, this is really interesting. She goes, basically, you know, could you roll all of the episodes of the podcast into a quick 30 minutes that I can hand off to another person? I don't know. I don't know if we could and at the same time, I'm I'm invigorated by the idea of trying.
Jennifer Smith, CDE 47:31
Well, actually, that strikes of funny because I had a thought the other day, like as I was, I usually try to like read or like do a little bit of journaling before bed. Just like my down mental shift. And I was thinking, we've done a lot of like informative, I was like, I wonder if somebody would take all of these and like write them into a book. I make a book for
Scott Benner 47:56
waiting for somebody to ask me to make the podcast the book. And to be perfectly honest with you. I started having that conversation with someone last year, and then it died somewhere along the way. But interestingly enough, for you know, I've written a book, I have this podcast, there's a couple of things I've done throughout my life. If you knew how many things how many irons went into the fire and never came back out of the fire again, you gotta throw a lot against the wall to make something work, you know? Yeah. Yes, you do. I'll tell you what I you know, hold on. Let's do one more quick question about that. Okay. So Brittany says all of the other type one diabetes related appointments we need to make diagnosed for nine months and just heard last week, we need to make eye appointments for my four year old what else Don't I know about? So I appointments are the, you know, the big one, right? They dilate your eyes, and they look all the way back there and they get a baseline for the health of your eye? And then you go back every year and do it again and again. Yep. Right? And what do they just tell people what they're looking forward to that.
Jennifer Smith, CDE 48:56
They're really looking at the vessels in the back of the eye? Anytime you go to an ophthalmologist, not just an optoma optometry, you know, Dr. omala, just actually has studied enough and knows, like, kind of the diseases of the eyes. And also can really focus in and do that where they dilate the eye. They look at the back of the eye. They're essentially looking at the vessels and they're looking for what are called micro like hemorrhages, or big hemorrhages, potentially, but they're looking for those vessels to have kind of opened, right. And when that happens, the eye tries to heal itself and it makes these tinier little vessels. But unfortunately, in that healing and making of little vessels, those little vessels are not as stable so they have more potential to break and or hemorrhage yet again, creating more problem in the eye so that you just we really want to establish and when I was first diagnosed, my doctor told my parents Not to have me visit the eye doctor until my blood sugar's had actually stabilized after diagnosis. Because those high blood sugars can affect so much early on, it makes
Scott Benner 50:09
it look wonky right there,
Jennifer Smith, CDE 50:11
it makes it looks wonky. So you, you really want some stability after initial diagnosis to go in and get an eye exam, right. So, you know, nine months post diagnosis certainly get been established, where is the eye health right now, whether the child has to or 80, or 96, you want to have kind of an established, this is where your eyes are, because then every year at least, you should be having new checks. And if there are problems that do end up coming up, they'll have you come in more frequently then, and there are therapies and things that they can do if there is a problem down the road. But that early on, gives you baseline, right. And for little kids, it's it's really mostly the eye doctor, really, I think of one two that many people don't really consider relevant to diabetes, but it's the dentist. Yeah, if you don't have a regular dental routine for your children with diabetes, get on board with that right now. They should be having a cleaning evaluation checkup every six months at least. Right?
Scott Benner 51:16
Yeah, it's a for a couple of reasons a diabetes, but by your kid is, you know, we always talk about it, like, you don't think of juice is a bad thing. Cuz it's medicine. You know? Oh, my kid takes Smarties by do. You know, like, there's a lot of simple sugars, especially in the beginning, when you're really learning how to keep things, they are a lot of sugar that is not followed up by much teeth brushing. So you really have to be ahead of it. And I've talked about it on here before we just one time switch juice boxes, because Arden just was sick of hers. But I had the right one meaning I could track it, it did what I wanted, it didn't have too much sugar in it. In the six months, she used the other box. And thank God she had baby teeth, teeth still, she developed 10 cavities from this different juice box. So you know, yeah. T says, Is there anything else you should be doing that she can't think of right now.
Unknown Speaker 52:13
I mean,
Jennifer Smith, CDE 52:15
you know, we always talk about like, foot health as well with diabetes, right, just from the standpoint of like nerve health and everything. podiatry. I mean,
Scott Benner 52:25
you know, taking your No, no, your four year old to the house. Yeah, this
Jennifer Smith, CDE 52:29
unless for some reason they already have been established with flat feet, or something else, or they've got shoe inserts or whatnot, obviously, you want to talk to your podiatrist and inform them. Well, now we have a diagnosis of diabetes in the picture here, as well, just to you know, I obviously chart should show them that, but you just want to bring it up.
Scott Benner 52:48
Yeah, if you don't understand the reason, foot health is so important for diabetics, if you should develop neuropathy, and you can't feel your feet now suddenly a small wound that you'd be aware of you might not be aware of any more wrapping that could be your fat goes on long enough, that can be a really terrible problem.
Jennifer Smith, CDE 53:06
Correct. And in the same vein, you know, kids are kids. I mean, sometimes my kids run around in the backyard in the nice grass without shoes on. Yeah, I mean, technically, as somebody with diabetes, and technically, you know, we're told Don't, don't not wear shoes, you know, walk in the backyard without shoes, and walk out to get the mail in the morning or whatever, you know, without my flip flops on, and, but I have feeling in my feet, no
Unknown Speaker 53:33
buttons, nobody dresses.
Jennifer Smith, CDE 53:35
But even for kids, you know, kids, sometimes they're not very like a tune to their body, right? So check your kid's feed every time you give them a bath or at night when you're taking their socks off to put them in bed. Just check their feet. And that's better than anything but don't have
Scott Benner 53:51
a paranoia around it puts don't happen. Right, right. I mean, the only thing, the only other thing I would say to Brittany is that through the years, you know, I pay a little closer attention to blood tests. I think I don't just take it's in range as an answer. So, you know, what does that mean? Am I at the low end of the range of she thought, like were in that range? Is she and you know, I'll go into it in another episode. But, you know, Arden has hypothyroidism but her labs were quote unquote, in range, but we were watching her like, shut off like a, you know, like a light. That battery was dying. Yeah. And and the doctor is like, no, she's fine. We don't treat in this range. And I was like, ooh, you treat my kid in this range. So make make with the Synthroid, you know, right, but right. I'll talk about that at some point.
Unknown Speaker 54:39
Yeah,
Jennifer Smith, CDE 54:40
I think the the only other thing I was gonna say would be um, this is a, I feel like this is a missed point entirely. And I know I've talked about it, we talked about nutrition, and kind of impact of foods and whatnot. But for kids who have diabetes, working with A good dietitian, who's a diabetes educator. Yeah. It's a great way to establish what are your child's needs? Not because they have diabetes, but as a child, what should your child be eating? How much and it's not, you know, work with somebody who really understands that it's not all about, I'm not here to talk about carbohydrates, I get it, I know how to count my carbs don't teach me how to read a label. I want to know what my kid needs, how much extra protein do they need, they're in gymnastics for hours, three times a week, or they're playing soccer, you know, two hours, four times, whatever it is, those are really important, because then the diabetes management works in to what you're
Scott Benner 55:43
feeding them. We really don't talk about, like, food as fuel. No, in America at all the way we should. And sometimes you're pushing through activities. And your body is, you know, it's it's lacking. It's eating itself to get through what it wants to do. And you're like, Look, they're fine. They're kids, kids are resilient, you know? Right, whatever stupid thing people say.
Hey, huge thanks to everybody out there for sending in their questions. And of course, the Jenny from integrated diabetes.com for coming on and checking it out. If you want to hire Jenny, you can do that at integrated diabetes.com. Okay, if you want to join the T one D exchange registry, just go to T one d exchange.org. forward slash juicebox. And you can do everything that I explained at the beginning of the podcast episode. But if you'd like to actually hear me go through the questions first, that's going to happen right now. So settle in and keep listening or jump over there to T one d exchange.org. forward slash juice box right now. And get started. Okay, guys, I'm gonna sign up for the T one D registry right here. My name is Scott, enter. My email address is Scott Juicebox podcast.com. password, phone number for added security for a one time identification code to your mobile phone. All right, do that. Who am I completing these questions for my child who is under 18. The other option is myself over 18 because I picked my child I put in hardens name. Sign up. Well, that was easy. confirmation code. That quick submit success. Your account has been created. Let's get started. Okay, now I'm going to answer the questions. Start the study. Are you and your child able to read understand English? Yes. What's your child's date of birth? was easy. I knew that. What is your child currently live which state? Okay, was easy. And the code you can also answer my child does not live in the US or US territory. Let's say. Has your child been diagnosed with Type One Diabetes? Why she has been easier child currently using insulin? Yes, I'm finished. You are all finished the screen questions? That was easy. Once you're ready, you can submit your answers. I have submitted my answers. But this is going to tell me if I'm if Arden's eligible for success your child is eligible to take part in the registry, you will now move on to the informed consent and decide to go to consent. There's some legal stuff here I say continue what is good for my son? Can I stop being the study? You or your child can stop participating at any time you will be told about new information or is there a cost related to being the study no cost? Is there a payment for taking part in the study? There is no payment for taking part in the study at this time. How will my child's or my information be kept confidential? Very, very, very. There's a lot of stuff here confidential. Okay. Now consent, I agree to take part and then type your name like a signature and agree received an email says, Oh, it's a copy of the consent form. That's lovely. That was easy. And you do a cent you're being asked to be in a research study. The purpose of this asset form is to help you decide if you want to be in the research study then you should not join this study until you've answered all the questions are answered. Okay. Who's doing the study done by the T one D Exchange and is being funded by the Helmsley charitable trust. He went to exchange we use the funding to organize the study. purpose of the study is to collect information from individuals with one D and parents of children went to India to learn more about the management of T one D, how it may change over time and how different management approaches relate to glycaemic outcomes, acute complications and use of health services So at this time, we do not have an end date for the registry, but we hope to enroll and follow a large group of people with T one D for multiple years. That's cool. And I hope that a large amount of those people come from this podcast. Alright, so we say yes to assent we have your consent you have completed the informed consent process, you are signed and dated consent form has been sent to your email. Oh, there it is. Okay, now there's a questionnaire. Before you start, you will be reading and answering the following questions on behalf of a minor. Okay. What's your child's biological sex at birth? They identify race and ethnicity. What percentage of the time does your child reside in your home? When was your child diagnosed with Type One Diabetes? You know, I don't remember the exact day. What's interesting, just put month in year how was your child diagnosed? Or it was in DK? What was your child's last day one see this one? I know
5.8 How did you or your child find out about the registry I found out from the Juicebox Podcast that's other juice box make sure you put that in their podcast Cool. Thanks. What's the highest level of education that you the parent of the parent or caregiver completed Please select only one answer. What is your the parent or caregivers current household income from all sources? How would you best describe your the parent caregivers current employment status? I think I'm employed right here on the podcast. Call that part time. What kind of health coverage does your child currently have? Who does your child see for diabetes care? And you can choose more than one like she has an endocrinologist but also a nurse practitioner he which of course we go by Be specific match practitioner got it in a certified diabetes educator. How tall is your job? I know this to Arden is five seven feet seven inches.
Unknown Speaker 1:02:21
wants to see why. I know that as well.
Scott Benner 1:02:26
Just any of her immediate biological family members have diabetes. Does your child have any other immune diseases? Seems so hypothyroidism? I look at this psoriasis is listed there. It's interesting.
Unknown Speaker 1:02:44
Is your child currently pregnant?
Scott Benner 1:02:46
No. How many biological children does your child have? Zero? Has your child ever been treated for and or diagnosed with any of the following frozen shoulder? anxiety Alzheimer's substance abuse I'm not gonna read all these let me just roll through here real quick cardiovascular disease
Unknown Speaker 1:03:07
No, no, no, no.
Scott Benner 1:03:11
It feels pretty good to be able to say no to these things. That's cool. No I should child had an ice slit transplant. No. pancreas transplant No. Types of insulin does your child take a pee next How does your child usually take insulin? insulin pump tubeless Omni pod it's very specific was also on here for if you loop you can put on here open APS Android. Oh, there's very uh, insulin, pens, oranges and helbling. Everything's here. addition to insulin. Is your child currently using medications to lower blood sugar? No. Child ever used a real time continuous glucose monitor? Yes. The dexcom g six. How many times per day? Does your child check their blood sugar with a glucose meter? Doing a little averaging here? Which glucose monitors your child use? Oh, that's easy. Contour. Next One blood glucose meter. Where's that? From a sensia Contour. Next One. Got it. Next, describe your child's experience starting in January of 2020 with Coronavirus.
No, my child has not had symptoms. And then okay. And my child did not get tested. Okay. I finished it was it I submit my answers. I've done it. I have successfully joined the T one D exchange and completed the questions. Now what's gonna happen is once a year they're going to reach out to me and ask me to update some questions. And that's it. That's all this is completely complete. pletely blinded meaning no one knows who you are. Nobody knows who your kid is. These are just questions that you're answering to help other people with type one diabetes. The T one D exchange registry is a research study conducted over time for individuals with Type One Diabetes and their supporters. Participants volunteer to provide their data for research, for example, by answering questions in an annual survey. Once enrolled, registry participants have the opportunity to sign up for other studies on various topics related to type one diabetes. The goal here is to improve knowledge of type one, help accelerate the discovery and development of new treatments, and to generate evidence to support policy or insurance coverage changes that help people with type one diabetes, all participant information is kept confidential participation is completely voluntary, your information will be kept in an encrypted database in an anonymous way, this means in place of your name, you will be issued a randomly generated identification number, opting out at any point will not affect your care. By sharing your opinions, experiences and data, you will help create the most comprehensive data set of those diagnosed with Type One Diabetes in the United States. This will advance meaningful treatment care and policy, all participation information is kept confidential. And participation is completely voluntary. This questionnaire can be done from your mobile device on the go or in the comfort of your own home. It is fast as you just heard, easy as you just heard, and confidential. As I've promised you now three times, and the T one t exchange has promised me over and over again, I asked them a million times before I did this, the online platform is very easy to use. I just did it in front of you. But I'm telling you super simple and clear. The screens are clear what to do next is clear, there's no you know what I mean? Like it's not a messy setup online, you can really see what it is you're supposed to be doing. It is not difficult to get through this. The T one D exchange, of course takes your data very seriously. That's why they are HIPAA compliant. When you register, you're assigned a unique identifier. So none of your personal identifiable information will ever be linked to the data, you provide your what I'm saying, you and the data, even though I mean, you heard what they just asked me it's not like it's a big deal or anything but you and the data are never associated to each other within the database. Nobody could. I'm so nervous talking about this, because I'm going to keep saying data and data because I jump between data and data just like it's super easy. Oh, by the way, everything you do with T when the exchange is online, you'll never be asked to go to a doctor or an in person study or anything like that. But if they have something like that in the future, that's going to be completely optional. So if you've ever wanted to support the Type One Diabetes community, and didn't know how this is a really super simple way for you to do it. And full disclosure, it supports the podcast. But I want to be absolutely clear. This is an ad. Now it doesn't mean that the T one D exchange just said Look, I'll pay you some money to be on this episode, you'll tell people about the exchange. It's not an ad like that you just hearing this is not is not making money to understand I'm saying I'm going to get some money every time one of you completes the survey. So if you're looking for a super simple way to support the T one D community research development, things like that, and the podcast without having to buy anything, right. So here's a way for you to support the podcast without $1 leave in your pocket. You don't have to get yourself an omni pod tubeless insulin pump, you don't have to get yourself a dexcom g six continuous glucose monitor. You don't have to get yourself a Contour. Next One blood glucose meter. You don't have to buy Lily's chocolates. You don't have to get some GMO glucagon through a link. Like none of that just do this thing. You'll support the podcast. Obviously, supporting goals of people with type one diabetes comes first. But if you can help the podcast at the same time, I mean, double bonus. Right? Like Bingo.
I just want to add that as you know you hear me say all the time I'm very careful about the advertisers that come on the podcast. I think you know that I believe on the pod Dexcom Contour Next One to be gold standard in their spaces and the T one D exchange gives me that same feeling. I don't know if you remember back a little while ago but the CEO of the T one D exchange, Dave Walton came on the show and I had a really interesting conversation with him. That led to more conversations that led to this opportunity. So being superduper honest, the T one D exchange has thousands of spots open and they need this data from the from thousands of people and they're not getting it. So they came to me and said we were hoping you could reach a broader audience with more people and fill these slots. So Everybody, please go. They don't just need 50 people, they don't just need 500 people, they need thousands. And I know you're all out there, I can see, I can see who's listening. So if you guys could just jump in and do this, you'd be helping them, helping me helping the podcast, helping yourself helping other people with type one diabetes, it is a win, win, win, win, win, win, win. Okay, guys, T one d exchange.org, forward slash juicebox. I put that link right there in the show notes to the podcast app. And there'll be a page at Juicebox podcast.com. But all you need to do is go to T one d exchange.org. Ford slash juice box and do the things you just heard me do. It's that simple. Thanks so much for listening to this episode of the Juicebox Podcast. We'll be back very soon. With more interviews, information, and fun. Oh, hey, I'm glad you're still here. Listen, I bought any new microphone and we had a time set up this to get it all set up for and it happened to be as I was finishing up this episode, the editing of this episode, so I recorded it. I don't know if you want to hear Jenny and I set up a microphone. But if you do keep listening,
Jennifer Smith, CDE 1:11:17
stay in place. And then I hooked on the microphone and just see where it was supposed to be. So I was
Scott Benner 1:11:22
like, clearly that's all I had to do. By the way a second ago. I decided I'm recording this because I'm going to put it at the end of the episode. I was trying to hook your microphone and microphone. So if you want to curse I'll BPL Okay, so you already hooked up your one mic, it shouldn't be that hard. This is just a USB cable just like the other one, right?
Jennifer Smith, CDE 1:11:41
Um, yes, it's got a USB cable. Again, I didn't like connected or plug it in yet. And it looks like it's got a place for like, it just got a headphone jack to
Scott Benner 1:11:51
Yes, that is not something you'll need.
Jennifer Smith, CDE 1:11:54
So just keep doing my headphones through the computer like I do. 100%
Scott Benner 1:11:57
that's for if you were doing recording and you wanted to do something where you could hear yourself before you got processed through the computer, you'd listen to that. And that's actually those dials are for that as well. So you won't need those dials either. Okay.
Jennifer Smith, CDE 1:12:13
So I don't really have to play with either of these, which I don't really know what they mean nothing
Scott Benner 1:12:17
for you to do there.
Jennifer Smith, CDE 1:12:19
Okay, so just plug this into the computer and then hopefully the microphone goes through this. I
Scott Benner 1:12:25
think it's gonna magically begin to work. Let's see. I'm just finishing an episode that's gonna go up now, but with you and I, oh, yeah, I can ask Scott and Jenny episode.
Jennifer Smith, CDE 1:12:38
Oh, nice. Yay. Okay, I've got like a little blue light on this thing in the jigger. Okay. It's all fancy. Like I walked into my office, I set it up, like, at night, it was like 10 o'clock, because then everybody's asleep, right? And nobody bugs me. And little boys aren't like, Can I play with the buttons and like, dial everything and like, see how the arm works and whatever. Yeah. And so then I walked into my office the other day, and I was like, outside my office being completely deranged right now because we'll be doing the floor and everything in it. So everything works for it. This is art and stuff from
Scott Benner 1:13:11
her room or painting her room. Everything of hers is behind me right now. So I hear you.
Jennifer Smith, CDE 1:13:16
Yes, if you could see the floor, it looks it's like a disaster. for it. They walked in and I was like, outside of the horrid stuff. I was like, my desk actually looks like it looks like like a studio.
Scott Benner 1:13:30
Kind of is. So um, alright, so I think what you need to do is go you're Are you in zoom the application? Are you on zoom online, you have the application zoom on your, on your computer, right?
Jennifer Smith, CDE 1:13:43
I do have the zoom app on my computer, and that I clicked the link that you sent me in the the message and I just pulled up my messenger messages on my computer. And I just clicked the link through the messages. So I'm assuming it's coming through the app on my computer.
Scott Benner 1:13:59
So top left of your so when you click on the zoom window and activate it, you should see on the top left of your screen and your Apple it should say zoom.us next Yeah. Okay, good. So go up to that and then go down to preferences. Yep. And microphone. What's the show?
Jennifer Smith, CDE 1:14:18
I have? Oh, yeah. So it's on audio already. And then
Scott Benner 1:14:22
this is a microphone microphone on turn. All right now,
Jennifer Smith, CDE 1:14:26
it looks like it says built in microphone. internal microphone. Yes.
Scott Benner 1:14:31
Click on that. And then the new microphone should be there as well.
Jennifer Smith, CDE 1:14:34
Yes. And click on there.
Scott Benner 1:14:36
Yeah. Okay. Oh is the volume all the way up the volume slider underneath of it.
Jennifer Smith, CDE 1:14:41
The volume slide is like a little bit down lower than half. We should
Scott Benner 1:14:46
all the way to the top. Let's see what happens at the top.
Jennifer Smith, CDE 1:14:51
Hello, move, move, move, move, move. almost to the top. Wow.
Scott Benner 1:14:58
Okay, let's try halfway.
Jennifer Smith, CDE 1:15:02
Alright, let's see here. Oh, I don't know what it's, it's not sliding down. Now, let's just
Scott Benner 1:15:11
click on it. You can click on the dot and then drag it.
Jennifer Smith, CDE 1:15:16
It's not dragging for me. It's not doing anything. It's kind of weird. Did you click on automatically adjust microphone volume by mistake? Oh, let's take that off. There. So now it's in the now it's in the middle.
Scott Benner 1:15:28
Okay. So, now you can see, I my microphone is different than yours, but I'm up on my mic, right? Yes, I'm like, about next to it like next to him. I don't want you to have to be that much. So let's try bringing it How far are we from your face right now, I guess. Jenny's measuring with their fingers, probably about 434 inches. Okay, three inches, so try bringing it a little closer. But there are that,
Unknown Speaker 1:16:00
hey, that's like, two inches right
Scott Benner 1:16:03
there. Whoo. It sounds really good.
Jennifer Smith, CDE 1:16:05
Okay, I'll have to just mark this little like, space. Well, like, I feel like I like cfcu. Because the microphones like covering. I know,
Scott Benner 1:16:14
I feel the same way. Sometimes. Actually, there are times when people say you go away from the mic. It's because I'm looking at a person and I kind of turn my face to try to feel more like something which is not the there's not good, better, better, they can hear us. Cool. So I'm with you at that desk. Here's why I like you at that distance. Because when that slider was higher, we were getting a little noise but but slide that slider up just a little bit more. And let me see where the noise comes in.
Unknown Speaker 1:16:43
See.
Jennifer Smith, CDE 1:16:47
So now it's at like three quarters.
Scott Benner 1:16:50
And there's a little bit of noise. So slide it down. Go back a little bit. I'm trying to get it so that's louder, and you can take the mic a little farther away from your mouth, if that makes sense.
Jennifer Smith, CDE 1:16:59
So now it's probably at like 60% of the way towards full volume. I love this.
Scott Benner 1:17:04
This sounds terrific. It really really does sound good. Yay. Oh, I'm so excited. I'm glad it's because this good.
Jennifer Smith, CDE 1:17:13
I don't I don't hear anything like different but I also don't do this, like, you know, I don't record and do all of the listening and the editing. So I don't hear the differences. Yeah,
Scott Benner 1:17:23
it is literally not going to sound any different here, but it's just gonna be way better for the people listening. So this actually ended up being Oh, I lost my ears for a second. But I know why give me a second. Um, hold on one second.
Jennifer Smith, CDE 1:17:38
Yeah, thank my my tea and like slosh around the ice cubes anymore. While we're actually
Scott Benner 1:17:44
because the irony here everything The irony is, is that microphone is going to hear less of the background in your room than they did. So that one is more just right here around your mouth. Because interest. It's so odd the way this worked out. Because you and I set up this microphone test randomly. And I spent the morning editing an episode, the episode that made me think I am buying Jenny a new microphone. Because there was something I don't know if you remember we must have recorded How would you remember this was like April right? As Corona was starting. We did an ask Scott and Jenny, which is this episode right here. Okay, um, because I'm just going to leave this conversation at the end of it so people can hear it. And there was a noise behind you. And we couldn't get rid of it. And we were like, Is it the fan from your computer? You remember? So there's some small noise in the background? That that microphone was just picking it up? Right?
Jennifer Smith, CDE 1:18:38
Yeah, I remember picking up the mic that I had, which is a much better mic than I had ever had before. And I was like moving it around. You're like Yep, nope, I can still hear it. I can still hear I don't know what else
Scott Benner 1:18:50
was picking something up in the room, right like a background noise in the room. And so I'm getting a text that Arden is hungry. One second. Apparently I'm the short order cook. today. I would never say this in front of my wife. But when we're both working for home, I think to her Her work is more important than mine. So when something like this comes up, I tend to be the verse that takes a break and goes and handles it. But I'm not complaining. It's fine. No. But anyway, yeah, like so we're recording and there's this background noise and you're talking I'm really interested. And then I'm just annoyed by the noise and I thought yeah, I have to get any better microphones so you have a much better microphone now. And you sound super clear. As a matter of fact, in an hour or two when this is on the internet, you should go listen to some of it from the beginning and then and then listen to this you'll be totally different in the difference in it. I am jacked up excited about this. This is a really great thank you and you don't have anything else to do so. Is it okay like you'll be able to keep it out of your way when you don't need it like or Yeah,
Jennifer Smith, CDE 1:19:52
absolutely the arm is really actually quite nice because I it did come the microphone itself came with like a stand to pop it up.
Scott Benner 1:19:59
I saw that. I didn't like that though, for you
Jennifer Smith, CDE 1:20:02
that Yeah, the nice thing is that this I can just slide off to the side and pot often over. Um, so yeah,
Scott Benner 1:20:10
plus Thank you very much. No, please, thank you. Here's some stuff you don't know about yourself when you're being when you're making a point. You bang the table. Do I really you get excited? You're like, you bang the table. So I couldn't give you the mic stand on the table because it would like go think when you were doing that that was and so I'm like, I she can't have that. That's why when I didn't by the way for anyone listening I did not force Jenny. I said Do you want a boom arm? Or do you want a table? She got the pic. And but when you said you under the boom arm? I was quietly like, yes. Okay, that's gonna be better. But you're gonna use this now for your calls. Now? I would imagine, right?
Jennifer Smith, CDE 1:20:45
I guess I certainly could try it and see if the call like, if the noise and everything is certainly better, especially since you said that it deletes much of the noise in the background. I mean, I do work from home. So especially with everything the way that it is now and the fact that my upcoming second grader will be virtually school from home.
Unknown Speaker 1:21:06
I'm ever feeling it was gonna be on the podcast sometime this year.
Unknown Speaker 1:21:10
Or noise? background.
Jennifer Smith, CDE 1:21:12
But that'll be kind of nice. Because if I do use this, I would expect that then maybe some of that background noise will be less Yeah, I'm can't guarantee that my 85 pound chocolate lab barking will be completely gone. But
Scott Benner 1:21:26
no, no, this is a way to you just hear those a clarity in your voice now. And like a like a, I think you would call it a timber. Like there's a depth to it that didn't exist before. So isn't there's perfect? Listen, we never do this. But when we're going to record on Friday, let's see. Can we do an episode of you and I talking to significant others in people's lives, teachers, co workers, family members and explain diabetes to them. Like this is the first time they're hearing about it.
Jennifer Smith, CDE 1:21:57
Like layman's term? Well,
Scott Benner 1:21:59
well, so like imagine you get diagnosed or you have type one and you have people around you who want to know more, but it's overwhelming to explain it to them. I want them to be able to say here's an episode of this podcast. It will explain diabetes too. Can we do though? That sounds fun. I think we can. Okay, absolutely. All right. You go back to your life. This is super exciting. I will send you a text when this is available so you can hear it. Thanks Scott. CJ, you want to say goodbye to the people are gonna hear
Jennifer Smith, CDE 1:22:23
Bye bye. Bye
Scott Benner 1:22:27
bye. See you
About Jenny Smith
Jennifer holds a Bachelor’s Degree in Human Nutrition and Biology from the University of Wisconsin. She is a Registered (and Licensed) Dietitian, Certified Diabetes Educator, and Certified Trainer on most makes/models of insulin pumps and continuous glucose monitoring systems. You can reach Jenny at jennifer@integrateddiabetes.com
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!
#368 Benny and the Jets
Hope Not Pressure
Allison is the mother of a young type 1 and she's brought a few diabetes topics to talk about.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:10
Hello, everyone, welcome to Episode 368 of the Juicebox Podcast. Today's show is sponsored by the Contour Next One blood glucose meter and touched by type one, you can get a touched by type one.org. To learn more about my favorite diabetes organization, or Contour Next one.com forward slash juice box to learn more about the blood glucose meter that my daughter uses, I find it to be small, easy to use, easy to use at night, easy to get a second reading from if you don't quite get enough blood the first time right they've got those kinds of test strips and it fits nicely in whatever you carry your diabetes gear in the Contour. Next One blood glucose meter is spectacular for accuracy. And I think you should check it out. So while you're busy listening to Benny's mom, Allison today talk about a number of things including social media around diabetes, being hopeful and a lot of other stuff actually. Remember this. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your medical plan for becoming bold with insulin.
Alison 1:26
My name is Alison. I am a mom to my daughter who is six. And my son, Benjamin, who would call Benny who is my type one diabetic. And he is four and a half. Excellent.
Scott Benner 1:45
Benny is four and a half. How old was he when he was diagnosed?
Unknown Speaker 1:49
He's that bad? And he Yes, that's him.
Alison 1:54
I see you later. She's going out with his baby. So right now. Nice.
Unknown Speaker 1:59
Yeah.
Scott Benner 2:01
How old? How old was he? Who the babysitter? Wait, hold on a second. Let's not get crazy for a second. Hold on. Let me slow down. Or give me Benny Benny was how old was diagnosed?
Alison 2:12
Benny was diagnosed last March. So it'll be
Scott Benner 2:18
1010 months? Yes. And how did you find the type one babysitter?
Alison 2:26
So we actually were I live in New Jersey, we have a great a type one diabetic, like mom group community. And so I sort of found her through the grapevine. And one of our friends recommended her and she's amazing.
Unknown Speaker 2:43
I'm very nice.
Scott Benner 2:46
So yeah, so we've had her for about six months. Now two. Interesting question. Did the babysitter know more about diabetes than you did? Or did she think of it different? I assume she that was sexist of me. I apologize is the babysitter.
Unknown Speaker 3:01
Is she Yes. She says yeah.
Scott Benner 3:04
I was right. Okay, but that's fine. But how is
Unknown Speaker 3:09
it? That's an interesting question. Mm hmm.
Scott Benner 3:12
That's why I asked it.
Alison 3:13
Because she did not know about your podcast, and I found your podcast maybe two or three days
after we came home from the hospital. Well,
Scott Benner 3:25
how did that happen?
Unknown Speaker 3:27
I think a little bit of desperation.
Scott Benner 3:31
Dear internet,
Unknown Speaker 3:33
please, please.
Alison 3:36
Um, yeah, so. So she wasn't really she didn't know about the techniques that you talked about? Okay. And I had already known so we had a, we had bit of different management styles. Mm hmm.
Scott Benner 3:52
And what ends up happening is it turned into an employee employer situation where you're like, just do it this way, please. Or do you kind of let her roll her way? Or how do you guys handle that?
Alison 4:01
I think it's a little bit of both. I think it's a little bit of both. I definitely give her a lot of leeway. But I don't let things get crazy. Obviously, don't let him hang out in the 250s 300 when she's with him. And she always asked me before, you know, can I give him insulin? I need to treat this low.
Unknown Speaker 4:22
So I would say it's a good mix. Nice.
Scott Benner 4:24
And she and she understands the you know, the the overarching ideas between you know about what's wrong, why how you would fix it, why you wouldn't want somebody to stay one way or the other. So it's good, right?
Alison 4:36
Yeah, absolutely. And I think the biggest thing is that she doesn't panic. Mm hmm.
Scott Benner 4:41
And that's what's super important to me. Ken, she charged more for having diabetes skills.
Unknown Speaker 4:47
She can she and she does, which is good for her.
Scott Benner 4:52
So like a diabetes tax on the on the hourly rate.
Unknown Speaker 4:55
Yeah.
Alison 4:57
Um, you know, and we have two dogs, too. So she also deals with that, oh my
Unknown Speaker 5:01
god, I just
Unknown Speaker 5:03
paid very well. Let
Scott Benner 5:04
me just tell you, if I had to take care of your two children and your dogs, and one of the kids had diabetes, I would want somewhere around $150 now,
Unknown Speaker 5:15
pay $250
Scott Benner 5:18
I'd be like, Listen, I can watch your kids for $1,000 a day round if we keep it under the table. But if we're gonna pay taxes, I'm more in the 1500 range, because you've got these dogs and these kids, and it's a lot of work. Now. I'm just I'm joking. But that's
Unknown Speaker 5:31
pretty chaotic.
Scott Benner 5:32
Of course. That's very cool. So do you have a babysitter because you de drinker, you have a job.
Unknown Speaker 5:38
So
Alison 5:40
I don't currently work. I have our babysitter come once a week. So when Danny was first diagnosed, it was crazy. Obviously, that's what happens to everyone. I pulled him out of pre K, I quit my job. I our whole world shifted when he was diagnosed, which I'm pretty sure happens to everyone. And so I have her come so that he, he's in pre k in the afternoons. And he gets to spend some time with someone else who's not me in the mornings. Yeah, which I think he enjoys.
Scott Benner 6:23
I would like to spend some time away from my mom when I was younger. So you're saying you're trying to pass this off as this is for Benny, not for you. And I like by the way that when I asked if you need a drink? You did not say no, Scott, I did not get a
Unknown Speaker 6:34
no. I'm totally a drink.
Scott Benner 6:38
Right. Now, but that's cool. So it's so that you get a babysitter once a week to give yourself a break and give him a break and let everybody sort of you know, find their own space.
Alison 6:48
Nice. Because Yeah, sorry to cut you off. But yeah, she has because she has diabetes. I don't have to think about diabetes. For the couple hours that she's with him.
Scott Benner 7:00
It's a little mental health thing.
Unknown Speaker 7:01
It's a little mental health thing. Yeah, for sure.
Scott Benner 7:03
I'm down. I like it. Okay, um, let's start slow. Benny was diagnosed, but he was only diagnosed 10 months ago, you found the podcast very quickly, which is interesting. Did you was that seriously through a Google thing? Or did you ask a person?
Alison 7:19
To me? No, it was not there a person I was definitely through Google. Or, you know, just searching, you know, Type One Diabetes on Apple podcasts.
Scott Benner 7:27
Gotcha. Um, what kind of technology is Benny using?
Alison 7:32
So Benny is MDI and he has a dexcom. He's had a dex
Unknown Speaker 7:37
Tom,
Unknown Speaker 7:39
honestly, for about seven months, eight months?
Scott Benner 7:43
How are you finding that that method?
Alison 7:49
We like it, we're used to it. He is sort of a creature of habit. And so he is really comfortable with the shots. Eventually, I mean, pretty soon. Now he's only in school half day. But when he moves to school, you know, when he goes to kindergarten next year, and he's in school for the whole day, I'd like him to be
Unknown Speaker 8:09
on a pump thinking about a pump. Yeah.
Scott Benner 8:12
Where do you inject mostly is it arms, legs, stomach excites us.
Alison 8:19
So our endocrinologist just asked us this.
And we mostly do his arms. It's really where he'll let us do it got to be honest. And we want him to be comfortable. So I don't really try and push it.
Unknown Speaker 8:32
And it works. Well, for us. Are they
Scott Benner 8:34
worried that it's being overused the spot?
Unknown Speaker 8:39
I do.
Unknown Speaker 8:43
But then I remember, you know,
Alison 8:46
right now hold a stick out his arm and let us give us a shot. Let us give him a shot. But I don't really want to hold him down again to try and give him a shot and his legs or his butt. So we don't do that to him.
Scott Benner 8:59
So back to the arms. Do you think it's out of sight out of mind? Because you're behind him? Do you think it's easier for him? I always used to think that like garden kid couldn't see it as much. So it felt more relaxing to her.
Unknown Speaker 9:10
Sure. And I think it's just habitual at this point.
Scott Benner 9:13
Well, so I'm really interested in this. Take a little bit of a sidebar for a second because she Arden was obviously really young when she was diagnosed. And just like you said, like you you build a habit with something like there, you start putting a pump somewhere. And then that seems like that's where the pump goes after a while like it's a rule almost.
Unknown Speaker 9:31
Right?
Scott Benner 9:32
And then you say, hey, let's put it here now and they're like, Whoa, that's not where it goes. And it brings anxiety. We actually got really lucky. This is gonna sound weird for a second. But Arden had to have a cyst removed. You know, she had to have surgery. And they were going to go in laparoscopically through her like a couple of small holes they made in her stomach. Actually they made 200 stomach and one right in her belly button which was freaky weird. And so she wears her palms on her stomach a lot. And I'm always like, hey, let's try other places. And she's stomach stomach, like either side of her belly button. And then her thighs, but her thighs don't work great. And so I'm always like, you know, we got to go back to your arms a little bit, which we hadn't done since she was really little. And she ended up getting away from because it was tough to play softball with it on her arms, because she was swinging your arms, right? She felt like the pod would wobble. And it felt like it was pulling and she didn't like that. So I'm saying, we don't get as good of control on the legs as we do on your stomach. And we can't just keep using your stomach forever. And I you know, explain the whole thing to her about why she understands why you can't just use the same places over and over again. And then when I'm like, let's use your arm. She's like, now, like, right away, I don't want to do that. You can see it it. It heightens your anxiety, it makes her it makes her frightened. So when she gets the surgery, we go in for the pre op consultation. I said the doctor so you know, she has an insulin pump. We can put it on her legs or stomach or arms. Obviously, you can't be on the stomach for the surgery. Where would you prefer? And because he because the surgery was going to be happening on our sides. They just didn't want to on our legs because they didn't want to lean on it or something like that. So the guys like arm. And I just, it was so hard for me to hold my smile. And when he said arms. I was like, Well, if that's what you want. We'll work that out. And I looked over at her super seriously. And as soon as he left the room, she looked at me and she's like, you're enjoying this because I have to use my arms for though I was like, No, I don't know what you're talking about. But I was so happy. You know,
Alison 11:36
your daughter is about to have surgery and you're smiling because I finally figured
Scott Benner 11:39
out a way to get her pump onto her arm. I was like well I when you know. And like it was some sort of like a Dorrance like I was like I sweated her out finally. And she's been back and forth on our arms now for a couple of weeks. And she doesn't mind it. So the only thing we have left to get over is her wanting to not like it. If that makes sense. You know, because she's our
Unknown Speaker 12:03
course.
Scott Benner 12:05
In this morning, we changed her pod before she went to school. And she's like, I think I can put it back on my stomach. And I was like, I don't know, I think it needs more time. But anyway, but anyway, this is a big problem for a lot of people, you know, because you just get so kind of like and it's I don't think it's something people think about but it happens with injections to with kids. You know, when I was growing up, my friend Mike would just bang them into his stomach like it was nothing.
Alison 12:31
A lot of adults do their stomach. Mm hmm.
Unknown Speaker 12:34
Yeah, I I've seen Yeah,
Scott Benner 12:36
it's a just grab a little fat. They're like, bang, they seem to think nothing. I don't even
Unknown Speaker 12:39
flinch. Right. My point he won't. He won't do that.
Scott Benner 12:43
No. Well, my point in telling the story is that you have to look for an avenue somewhere like you hear me joke with people sometimes like, you know, just buy them off, like give them money or toys like i a woman recently got her kid to use an insulin pump by buying them like a Lego set. It's like there's I know, I don't see anything wrong with
Alison 13:00
that. bribery is the key to parenting.
Scott Benner 13:02
I mean, if you want to do it easy instead of well, it's 100%.
Unknown Speaker 13:06
Right? Absolutely.
Unknown Speaker 13:08
Anyway.
Scott Benner 13:10
So you are on the show today. I remember you want to talk about kind of like fear and anxiety and social media like that kind of mix. But am I right about that?
Unknown Speaker 13:21
Yeah.
Scott Benner 13:22
Tell me what made you reach out.
Unknown Speaker 13:26
So
Alison 13:29
when Benny was first diagnosed,
I remember coming out of the hospital.
In a days, I was just in a daze.
Unknown Speaker 13:42
And
Alison 13:45
our endocrinologist, I have to say was really great. You know, he came into the room on the first day of diagnosis. And he said, Listen, Benjamin is a healthy kid with diabetes. And in a lot of ways, to us, that's how we live and it's true for us. But I couldn't pull myself out of the dais. And so part of what I did was I went online, found your podcast, people told me to join support groups and go online and find the Facebook group for your town or join all these Facebook groups. And so I did that. And I mean, he was home from pre K. So he was he was home a lot with me in the beginning. And I remember just sort of scrolling through social media.
And I remember it's actually scaring me a lot. I think. Sometimes it made things worse, and I was looking for some sort of answer for it to be okay. And when I went online, I was like, Oh my god, everyone else is freaking out too. And they're still freaking out. So it was like are they gonna Do we come out of this? Is there always is there always is there another side to this? And for what I could, from what I was reading, I couldn't see that. Which was funny because when I listened to your podcast, I remember the first time I listened to your podcast, Benjamin was taking a bath as he was in the bathtub. And it was his first few days out of diagnosis, I was looking at him. And when you come out of the hospital, you're sort of and this sounds horrible, but you're sort of ready for them to sort of, you're sort of ready for something really bad to happen at any second. Watching him and listening to your podcast and thinking, Man, this guy is he's so calm. Why is he so calm? He should be freaking out too.
Scott Benner 15:47
I can forget it. You want me to but
Alison 15:50
I mean, you were just you were talking about diabetes, like it was diabetes. And I hadn't really encountered that anywhere else.
Scott Benner 16:01
Okay. Well, I didn't know how you were going to answer the question. And I'm not gonna lie. I'm excited about how you answered the question. Because I'm glad Yes. I'm glad to respond. And I'll tell you, I'll tell you why. Because first of all, it's the internet, right? People don't go to the internet to say great things. That's not what the internet's for. The internet's for. Listen. It's for email. It's for pornography. And it's for complaining. That's what the internet is for. as near as I can tell in dating now that the the app world is and that's not even the internet it is but
Unknown Speaker 16:34
it doesn't even work well, so
Scott Benner 16:35
well. Everyone you know, you love it once in a while. We're like we met on Tinder and we're married now. Like, you're the one story of that, aren't you? But okay.
Unknown Speaker 16:45
Talk to you in a couple years. It's
Scott Benner 16:46
more like I met someone on Tinder. Now I hide in my house. But But No, but seriously, I know nothing about dating on Tinder. And I hope not to have to find out.
Unknown Speaker 16:54
We're both married. Yeah. Odds are
Scott Benner 16:56
though at some point, at some point, Kelly's gonna get sick of me and leave. So I'm probably gonna have to keep abreast of this a little bit. But, but no, my but my serious point is that there are so I think there's levels of thought, right? You can you can look at a problem and see the surface. And that's easy. Most people can see the surface. Every once in a while somebody gets confused and think they see one thing when they see another thing, you know, we talked about that sometimes, like the pencil in the pocket, kind of an idea. Like, right, you think you know what you're saying. But when you start chipping away at ideas, there's levels after levels after levels and things compound and they and they come in from all different angles and perspectives and and change the problem. Things are not easy, nothing is easy to understand, right? You need a wide view, you need to be calm, but most people look at something make a snap judgment, and then that's what they think of it. And in the you know, in the diabetes space in general. You know, there are some people who talk about it really thoughtfully. And you know, that's why I love Jenny. Because Jenny breaks things down. She She thinks on levels. She sees what impacts you know, from from places you don't notice. But then they're just some people will say things like, don't share your graph online. It makes people sad. Like, hey, how do you know that? It made you sad? It doesn't mean it makes people sad. It means it makes you sad. And you have a blog. So now that's a rule. You know what I mean? Like, I don't get that. And then I heard from someone recently. Oh, do you mind doing Arden's lunch real quick?
Unknown Speaker 18:35
No, I don't hold my writing or
Scott Benner 18:37
is it Alright, hold on, I first have to find out she's hungry cuz she's in the middle to the end of her period, and she has not been as hungry lately. We bolused really hardly for dinner last night. She's like, I could eat all this. gave her the insulin and like three seconds later, she's like, I don't want this soup. I was like you gotta be and now her friends are sending me pictures of themselves. Instead of instead of answering my question, oh, just
Unknown Speaker 19:05
past the phone time at school.
Scott Benner 19:07
Yes, I'm getting photos of people. Not insanely is the answer to my question. Are you hungry? sometime today, I want you to head over to touched by type one.org To find out more about my favorite diabetes organization. Their mission of course is to elevate awareness to type one diabetes to raise funds to find a cure and to inspire those with diabetes to thrive. They have all kinds of great programs and services and you can find out more about them at touched by type one.org at Contour Next one.com Ford slash juicebox. As soon as it comes up at that website I know a lot of English show for but at Contour Next one.com forward slash juice box. You're going to find right at the top of the page. A photograph of Arden's blood glucose meter It's hard to get excited about a blood glucose meter, right, but this one is inexpensive, it uses strips that work incredibly well and have a second chance testing. So if you touch the blood drop, but don't quite get enough, you can go back in again and try again without wasting the test strip. But honestly, you know, we can talk about the portability of the meter, how bright the light is, at night, the things that you are going to end up caring about. But what can't get lost in all this is the accuracy, this thing just works, right, you're gonna get a good, accurate blood glucose test with the Contour Next One blood glucose system. And if you want, there's even an app to help you make sense of all those numbers that goes to your Android or Apple phone. But if you don't want the app, it's okay, you can just use the meter. So with the app or without the app, you're going to be holding in your hand, a blood glucose meter, that's going to give you a number that you can feel confident about. And it's affordable. So if your insurance covers it, obviously, that's easy. But there may be some of you who find that the cash price for the Contour Next One blood glucose meter is less than what you're paying for your other meter through your insurance. All this is well worth the five minutes, it's gonna take you to figure it out. Contour Next one.com forward slash juicebox. There are links in your show notes, and links at Juicebox Podcast comm for this and all of the sponsors. I love this meter. It just works. It's easy. That's what you need. You need easy. You need works. This isn't rocket science. Life's tough enough. doesn't need to be made tougher by having some old 10 year old meter technology. It's giving you a number that you can't trust. Alright, that's it, we're gonna get back to the show, check out touch by type one.org Contour Next one.com forward slash juice box. You can fill your heart and upgrade your gear in just a few minutes with those links. Let's get back to Allison we'll finish up Arden's meal bolus, which actually comes back around again I've talked to, I'll end up talking to Arden again, a little later in the episode, we're gonna make a small adjustment for that meal bolus, but you'll see as it's happening, anyway, this is this conversation is really just getting going. I never say this inside of the ads for some reason, but thank you very much for supporting the sponsors of the Juicebox Podcast. They really are the reason in total honesty that I can keep the podcast going and free for you to listen to. And when you and when you click on the links, it helps. So thank you very much. Thanks for your support. And I hope I'm you know, I hope I'm thanking you for your support by bringing you good quality advertising, not just you know, not selling you a mattress or something like that. This is this is a stuff that you can use that I think most of you are going to find to be really valuable in your life. I was this little bad boy right there, but it comes out.
So let me thank bagel banana cookies. Grapes, cherries, she's gonna eat the grapes and the cherries, the cookies. 2035 bed sheets half of the banana 45 Why don't we do 55 carbs? People are like he got the 45 and then just added 10 for no reason. You're right. I did. Okay,
Unknown Speaker 23:50
so I'm gonna do
Scott Benner 23:52
I'm gonna have her do 50 carbs. But tell me if you eat that seems good. Mmm, I'd be fine. But Amanda
Alison 24:05
Arden is like my daughter in the sense of the eat the same thing every day.
Scott Benner 24:09
Yeah. It I don't think she wants to. But every time I take her to the grocery store, it's about once a month. This is a parenting skill I have, which is I am. I'm a hopeful person. It's funny, because if you knew me personally, you'd be like, I think Scott's not a hopeful person. I think he's like really cynical. But I'm super hopeful, right? I always think that people are going to do the best they can. And and I try things over and over again. When they prove out wrong. Doesn't matter. I'm like, this is right. I should do this. So my kids, I take shopping with me once a month and I'm like walk around the store. Find anything you want to try. I'll buy it. And every time they buy the same stuff. They never try anything though, and it never works. So I it's not that Arden's repetitive because I'm like, Look, these are the five things I buy. It's just she won't try Something new at lunchtime. But at any other point in her life, she mostly try anything. She's no real aversion to any food. But when you say take it to school, it somehow changes things for she's like, I just want these things.
Alison 25:13
Again, it's habit. And also I told my daughter, I say, look at what the other kids are eating or class. Is there anything that you like? Do you want to steal anyone else's lunch ideas? Anyone snack because I do not
Scott Benner 25:26
know it's okay. We made my son meatballs for years wouldn't touch them one day, he's at his cousin's house, they have meatballs, he was probably pressured into eating them. He comes home, he goes, Hey, you know what, I like? meatballs. My wife almost killed him. Like, I thought she was gonna, like, throw them out of a door. Like you don't I mean, like, She's like, wait, you we we've been throwing meatballs away for six years? You
Unknown Speaker 25:45
know, that's good peer pressure.
Unknown Speaker 25:48
Yeah, right. When peer pressure works. Wow.
Unknown Speaker 25:51
That could be the title of this episode, when peer pressure works.
Scott Benner 25:55
So okay, so back to the social media idea, right? People? Um, you know, they see something, and they just say to themselves, well, this is the answer. This was my first thought about this. And so this is the answer. And that's just not how things work. So, you know, so you see, a lot of times that happened, don't share your graphs, it makes people feel bad. Well, I happen to get to talk to more people than just my own thoughts. And what I hear overwhelming from people is, hear seeing someone do well, is hopeful. It's not, it doesn't beat you up. It doesn't listen, it's not great. It's not a great feeling to see like, oh, wow, there are people doing this. And I'm not if you choose to see it that way, what you should choose to see is, that's possible. And I say that on the show a lot. You see somebody doing better than you at anything, you should think, oh, that's possible. Don't be jealous of them be excited that that's the thing that happens. And you know, I it's not that a person with a flatter graph than you or a lower graph than you is lucky. They don't have a better kind of diabetes than you do. You know, like they just they know something you don't know, find out what that thing is.
Alison 27:09
And yes, absolutely let it inspire you and rip
Scott Benner 27:11
them off. Just like the idea of the lunches. Boy, this is really coming together, you would think I plan this? Seriously, it's one of my like, tiny superpowers talking and making things connect. I don't know how it happens.
Unknown Speaker 27:26
But that's impressive.
Scott Benner 27:27
Thank you. And another one of my superpowers is to get people to say nice things about me. No, but seriously. So I don't believe in that I don't believe in don't share your graph, I believe in share your graph, show people look, look at how well this is going and then say, I don't know how the heck I did this. Or here's how I did this. Or, you know, but don't don't just throw it out there and be like, I'm better at this new go to hell. Like that's not the point. Right? The point is to be, you know, an example for someone else. And anyone who sees that example and right away wants to erase it from the world. I don't trust them. Like, I don't, I don't like that idea. There's so much fear, like so now. People are afraid of their insulin, causing them issues with their blood sugar. And now we're gonna make them afraid of good examples. Like, why don't we just why don't we just drag them into a dark room and starve them to death? Like, what's the point? What's the point of being alive? You know,
Unknown Speaker 28:23
like putting them in a blindfold?
Scott Benner 28:25
Yeah, yeah, take them out to pasture. They're done already. Like it didn't work out for you on the first day. So give up. Like, that's how it feels to me. And so we're so busy protecting perceived ideas of what people's feelings are, that we don't bother trying or reaching. And I don't get that. So I don't want to be reactive, productive, productive. Reactive would be like, if I got a piece of paper, and I blacked out something I want to be productive, right. I think I redacted from probably all the news in the world. Anyway, I don't want to be I don't want to be reductive. Because there are some people who have anxiety issues. And I'm going to assume that those things are harder for them. But this week's episode of the podcast, which by the time you hear Allison, maybe, you know, last year was like Episode 293 or 294. with Megan, right? And Megan talked about her anxiety. But she also said in that episode, that she found it hopeful that other people were doing well. So don't put your bs on other people and decide what they get to look at and what they don't get to look at. And don't go out into the public and you know, and be nasty to people don't don't just run around going I'm doing better than you nananananana but you know, I don't know. I just I feel very strongly about this. I don't like when people dumb down this space. And it happens more often than it should I think.
Alison 29:51
Yeah, and I think there's also another sort of layer to it. When you're talking about the fear, and I think that's fear as a parent, which was Are you experienced with Arden, especially when she was younger? Um, I think people as bet once been he was I noticed. And as he as, as the D started to pile up, and you know, 10 months in now, and there are days that we don't think about diabetes all day long. Yeah, of course, we don't. We, I don't look at him and I don't think diabetes, I look at him. And he's funny, and he's funny. And he has this amazing personalities growing into this. Still little, but he's growing into a person. And I think some it's so hard for some parents, because they're so afraid, just sort of snap out of that, and see their kid as a kid, with diaper, eds and sort of not the other way around. And I don't know how you feel about that. But we've seen it on so many levels. Was there a time when you never thought this time would come? Oh, yeah. Okay, the first two months, I would say, the first two months, I was waiting him for him to sort of drop, I remember bringing him to the playground. And you my husband, I were really lucky because we actually knew a bunch of people who have had type one for a long time. And, you know, it hasn't went to high school, elementary school and middle school and high school with a woman who now is an endocrinologist. She's had type one forever. There's a, someone he works with who's had diabetes for a really long time, and type one. And I also have a friend who is type one, and they were super supportive in the beginning to which I think really helped us sort of get our feet on the ground.
Scott Benner 31:46
But look at that you had all that knowledge and those people and still you felt like this is never gonna change. Right? So So even with good examples around you in real life, it probably still wasn't enough to go Yeah, but this will be okay. For me. You probably thought I'll be the exception. These people are all doing great. We're gonna be terrible. Is that I felt Yeah, cuz Where do you get self confidence from about a disease that you just found out about five seconds ago?
Unknown Speaker 32:12
Right. All right.
Scott Benner 32:14
All right. Awesome. You're all wrapped up. But you're all revved up. Now. I like this. We're moving.
Unknown Speaker 32:18
Oh, good. God. Yeah.
Scott Benner 32:19
Yeah, I love this. Okay, so, okay, I want to stay in this for another minute. Because if you stop and think about who reaches out into the world for help, it's people who are more newly diagnosed, really struggling, or have gotten the information that they are at the point now where like, this can't be right, like, you know what I mean, like, maybe there's something else going on here. Those are the three people I hear from the most new and scared, not going well. Starting to figure it out, blah, blah, blah, they get out into the world. So the internet's an interesting thing. And I've been around it long enough around diabetes, to know that people come and they go, and that's hard to hear, right. But I will interact with someone this month, that I won't know, six months from now. Right? They'll just be gone with any luck, they'll, you know, they won't need the Facebook page anymore. Or they'll keep listening to the podcast, but they won't interact over social media. Like however it ends up happening. That's got to be the goal, right? I write I need to be comfortable enough thinking that the the information that I'm putting in the world is valuable enough that new people will find it through the old people. But I can't be a person who says, Let me keep putting out new information that keeps people scared and keeps them here. Yes, right. Right. I, my my, my goal is not to raise my children have them live with me for the rest of my life. I want them to go live their own lives. I'll be sad when they leave. But I don't I don't want to hold them back. And, and so that's the goal. And that's what happens for most people. There are very few people like me who stay behind to say, Hey, here's all the stuff I learned. I'm just gonna stay here and keep telling it to you. And let's be honest, why? Right, like I was writing a blog. So I kept doing it. I saw it helping people It felt good. I have kind of a caregivers mentality. So that fit me. Then I found the podcasting and not lying to you. I enjoy talking to you. I enjoy talking to the other people who come on here. And and so this is something I like, it's not something I'm doing because I have an ad to, you know, to get out. It's not that it's not because I have a bill to pay. It's because I enjoy it. I think it's valuable. There are some people who are just doing it to make their money. There. There are some people who are doing it for ego. There are plenty of people who probably think I'm one of those people. You can think that if you want no i don't think well, I wasn't talking to you. I was talking to the people. And there are a couple and that's fine, you know But But you have to realize that this should be, I find these people that who are starting one of these couple of fragile situations, show them what I know. Hopefully that's valuable to them, and it helps them and then they should go on and live their lives. But if we treat those people with kid gloves when they show up like they're fragile eggs, and they can't handle hearing anything, well, that's just going to keep them where they're at. And maybe some of them can't handle it. But that's not a good reason not to tell all the others who can handle it. And I don't know how to figure out who's who. So I'm not going to least common denominator to the things I'm putting into the world. That's how I've decided to handle it. And it sounds like that was helpful to you. Am I right?
Alison 35:49
Yeah, absolutely. Being able to? Well, first the decks calm was, was so super helpful. Once we got that, and we actually saw what was going on, um, being but feeling like we were starting to take charge of diabetes versus diabetes, running our lives, our lives.
That that's when things really started to settle,
Unknown Speaker 36:14
I think, yeah.
Scott Benner 36:15
And it's just a little confidence, right? That you need somebody to give you because where else you're gonna get it from. And, you know, some good information, like you said, the CGM really helped you. I have to say, like, you know, I feel like we can open like, pull this curtain back for people. So I just did a talk on Sunday. And, you know, sort of, there's nowhere to be, it's not one of the bigger talks, it was in a smaller it was at a hospital for a group. So maybe 50 people, right? In the bigger talks, I can hide somewhere else and just come out on the stage and be like, hey, Scott's here, and then talk about insulin and leave. But in those I'm in the room. And so people are coming in now. It's sort of like a wedding reception, like, and I'm just like, Hi, how are you? Like standing by the door shaking hands with people. And this Sunday, you came up to me, and you're like, I'm recording with you on Wednesday. And I was like, Oh, you're Allison. And you probably were even like, knew my name from the thing. It was just, I was a little surprised. It's on my calendar. Allison. Let's Let's play it so I got to see. This is the second time I've done your group's talk. You weren't at the first one. Were you? No, no. Okay. Because your kid wouldn't have even your child was diagnosed when he was diagnosed, like two months after I did that first talk there. So, so did this talk last January 2019. And they asked me if I would come back. It's very cool, because it's run by the CDs who were in the department. And its families that are you know, coming to the hospital, a lot of adults there were some of you guys who listen who showed up. And so I gave my little talk. I think we were there probably three hours if I'm
Unknown Speaker 37:59
probably right about that.
Scott Benner 38:00
Yep. And, and then the next year, I thought, like, when they invited me back, I was like, it's just gonna be the same people. But Alright, like, I'll come, even though missing the football game, whatever. I'll do it. And. Right, right. But I got there. And really only about 10 of the 50 people were holdovers from last year.
Unknown Speaker 38:20
That's so interesting. Yeah.
Scott Benner 38:21
And I was like, well, these are all new people. And so you are in a unique situation, to give me feedback, and I am going to ask for honest feedback now, because you can help me make my talks better. We offer that for a second. Sure. All right. So to start with, because I, I, you know, let's, let's ease me into it. Start with start with what you enjoyed. And even after listening to the podcast, what you found helpful if there was anything. Okay, I'm gonna edit out that pause. So that No, I'm just kidding. No,
Alison 39:01
no, because I'm trying to think of it as someone who has not walked. See I had already listened to your podcast before. So a lot of the things that you were talking about, I hadn't known already.
Scott Benner 39:12
Okay, well, then let's say I'm listening to you what's asked this question, then? Yeah. Does it work live? Would you need the podcast? Like the like, did was there enough time to get it out?
Alison 39:24
What you said was really amazing. It really struck me. Um, when you said something about, I'm not here to give you something like, this is totally spitballing here, but he said something like, I'm not here to give you the intricacies of this. I'm here to give you the overarching ideas that I use, that I know work that work for all of these other people. And I'm doing this so that you're interested enough and you see hope enough to go to the podcast. really listen, and listen to what I have to say. And you brought home the ideas well enough. And the idea is well enough. And the woman who was sitting next to Nope, she doesn't mind me talking about her, but she has had type one diabetes. And she told me she was 21 months old. Well, and I could see that she was really understanding what you're saying. And she had not really listened to your podcast. So she was sort of new to listening to you. And the things that she was that you were saying she was nodding, saying, Yeah, yeah, I get it. And they make sense. They're logical. And you use real world ideas and concepts to bring those things home.
Scott Benner 40:50
Okay, well, that's good. I, I'm happy to hear that. Because it's not enough time. It's obviously I mean, the podcast is now 300 episodes long, in my opinion, you should just listen to all of them if you really want to get the feeling for what you need to be doing. But I obviously don't have 300 hours. So yeah, my my thought is, these are the main parts. Here's the big idea. Here's an example of how it works. Can you you know, just get them to the point where they're like, yeah, that does make sense to me. And then they're gonna have to go home and find out more on their own. Like some people. It's amazing. Some people just from that talk, they leap right into it. That always fascinates, right? Like, I'm like, Wow, you really, like added your own information to what I said, like me, there must be some outside information that you added to this. But some people still struggle there are some people are just walk out. And they're just like, it doesn't make sense to me. And they might not never try it again. But I didn't. So I'm asking you like, do you see a better way? Having listened to the podcast and been at a talk? Is there something I could be doing that I'm not that you think might be valuable? It's also okay to say no, Scott, you're doing a perfect job. But I'm just I'm really interested if you think so?
Alison 42:07
No, because I think I don't think there's anything I think you've I think you've perfected it in a way. That is totally understandable for people. And here's why I say that. Because I think your biggest concept is you need the insulin and the food to be working at the same time. Right? Really? That's, that's she needs to know about diabetes, and they will tell you that the hospital,
Unknown Speaker 42:33
right? Right. They don't tell you that.
Scott Benner 42:37
Well, if they did, I wouldn't have a podcast. I mean, it really, really is the whole thing. Here's the truth, right? Here's how the podcast should go. Hello, and welcome to the first episode of the Juicebox Podcast. Make sure your insulins working while your food's working, you know, so when the insolence trying to pull you down in the foods trying to pull you up. They're kind of doing it at the same time. Okay, thanks so much for coming. You'll figure out the rest.
Unknown Speaker 43:00
Yeah, they told us. I mean, they told us
Alison 43:03
when we left the hospital, they said, you know, after Benny eats, see how much he eats and give him an insulin. Here's the the calculation you use. And I remember I walked home, we had this huge stack of paper, these charts for what he ate and the card counts, and how to do the math. And I don't you know, now I'm like you, I don't really, really know. I don't really card count. I can look at a plate and I say, Hey, this is what I think, based on what his blood sugar is right now. How much insulin he is gonna need. And here's what I think he's gonna need it.
Scott Benner 43:43
Yeah, I mean, you picked it up in 10 months, right? So it's, that's really cool. How do I do with the bazel? Like, did you understand? Was I clear about bazel? Because like talking about Oh, yeah,
Unknown Speaker 43:54
you know, one thing I thought that there we go. Sure if you said it, but what?
Unknown Speaker 43:59
I got my pen.
Alison 44:01
Uh, you were saying a lot that bazel is the most important thing. thing, which is what I've found 100% if we can tell, on a day when Benjamin's bazel is off that his bazel is off. His graph is crazy. Which doesn't happen very often. But with MDI, it's a little hard because sometimes, you know, you get sort of one shot at it. And sometimes, like, if we don't hold it in long enough, or we haven't pulled it out exactly the amount that he needs, his visa will be off for the day, okay. And which is annoying. But one thing that you said on the podcast that you didn't say that talk was that it's sort of the volume, and that's how we look at it. We sort of BS our bazel on what one how fast his blood sugar tends to move up and down. So when our So on the bad days, we get a lot of skyrocket up, crash skyrocket up crash happen often right and but then also we can tell overnight how has Basal is doing by sort of where it lands sort of the volume it lands at So, no sometimes we get a good 195 90 those are the those are when is diesel is that's when it's bazel is on point.
Scott Benner 45:29
So I'm not following the volume part though. Are you? You mean like an analogy about sound? Or do you mean about like liquid? Like volume like enough?
Alison 45:37
No, I mean, like sound like sound? So I turning
Scott Benner 45:40
it up and I didn't say that I felt like I did. Maybe you stopped listening. You might have been like swept off with I can't believe the guy from the podcast here. So exciting. Oh, my God. By the way, if you thought that seek mental health. You need to do psychiatry. But I felt like but I will make sure I wrote it down. I will double make sure that I say it like so that analogy works for you. The idea of turn it off until it and then bring it back down again. Okay. All right. Good. Thank you. Do I talk too fast? Well, you're from Jersey, you don't you don't know you? I know I can I
Unknown Speaker 46:16
just like whatever. I can hear anyone?
Scott Benner 46:18
Yeah. Yeah, I'm six people talking at the same time. You'd be like, yeah, I get you
Unknown Speaker 46:22
know, listening. Right. So, um,
Scott Benner 46:26
how fast that I look. That's important to know was I don't okay. I mean, trying my hardest, you know, they mean?
Unknown Speaker 46:33
Yeah, he looks fat.
Scott Benner 46:34
Yeah, that's what I thought I seriously a week before I go to any speaking thing. I literally cut out carbohydrates. no carbs. I
Unknown Speaker 46:44
drained all carbs. Fingers crossed.
Scott Benner 46:47
I just drained all the liquid out of my body right before I go. Like I get there in the morning. Like you want to eat them? Like, I feel like that would be a bad idea.
Unknown Speaker 46:55
Also a smaller
Unknown Speaker 46:56
rule. Mm hmm.
Alison 47:00
So so I'm sure you're like, No, I'm sure you're used to and you are, you're sort of on it. Like you were saying, You're used to talking on a stage you were sort of on our level. Yes, I could get you did seem a little bit nervous at first.
Scott Benner 47:11
Yeah, we got into Oh, because I'm like, I don't like the angle you're looking at me from just like, oh my god, geez, I know how this must look. It's also I'll tell you the one thing where I, when I start where I probably don't look completely like set settled yet is that I'm not so so I don't know if you've ever spoken to a bunch of people with the the intention of saying 10 things that are kind of complicated. But I would assume that most people have it down to some sort of a, I don't know, I just I just stand up there. And five seconds before I start talking, I think to myself, explain how insulin works to these people. And then I start talking. I don't think one of my talks has ever been the same. When I left there. I asked the CDs. Interesting. We had a conversation at the end that I had with the three CDs, and I said, um, how do I do? I didn't it wasn't real repetitive from last year, right? And one was like, it didn't seem anything like last year. And I was like, Oh, good. And then at the same time, I was like, maybe that's not good. Okay, I like how to lay. Because I said the same stuff. I just didn't say it the same way. Because I just don't want it to become repetitive. But it was funny.
Alison 48:28
I don't want it to sound scripted, too.
Scott Benner 48:31
Yeah, that to me, then it would get boring. And then if it's boring, then you're not listening. And it's boring.
Unknown Speaker 48:36
Yeah, cuz it's scripted. It would be boring. Oh,
Scott Benner 48:38
my God. Well, I'm talking about diabetes. It's not like, I'm not telling you the story of the time that me and a hooker and an elephant, you know, gotten in a plane and went to, you know, by the way, it wasn't a hooker, or an elephant, but me and somebody and somebody got into a plane into the thing. I get that. Okay, that's good. It's funny, because at the end, I said, I'm sorry, if I went really long, and they're like, no, this is this was fine. I said, The truth is, and I said it to you a little bit earlier. In a perfect world, I'd go and like, Go look, get your Basal, right. Learn your Pre-Bolus time. You know, try to stay flexible. bumping nudge, you're probably going to use more insulin than you think you're probably gonna use more baisley you think? Alright, I'm out of here. You know, to me, like, like, in the end, that really is. That is what I'm there to say. You know, and so I just do you find stories helpful. Like, did you find like the boy, the boy and the Cheerios? Like, did you find that story interesting for thinking about how food impacts insulin instead of
Unknown Speaker 49:39
Yeah, hundred percent.
Scott Benner 49:40
Okay, good. All right. Good. All right. I'm doing fine. What am I worried about?
Alison 49:44
Yeah, no, I think I think
going off experience stories, it makes it relatable. It's easier to listen to and you're still bringing home the key concepts. Yeah. So I really did think you did a great JOHN, thank you very good job.
Scott Benner 50:01
Was it weird that at no point did I show you a picture of art? And did you ever think maybe the kid doesn't have a daughter? He's making this all up?
Alison 50:07
No, I just think she probably doesn't want you to show her a picture. You don't?
Scott Benner 50:10
Yeah, she's not. She's not like, She's like, don't put my picture up there. Like, gotcha. Yeah, I didn't even ask her. She was just like, I don't like, even though like the podcasts, like the icons, the podcast and everything. They were always pictures of her when she was really little, like three years old. And one day, she was like, I do not want to look like a baby on the internet. And I was like, gotcha. So we just did away with them. And, you know, with this something else? All right, cool. All right. So where do you go from here? When your kids only four and a half? You've had diabetes for 10 months? Like, are you? This is a long haul scenario for you. Right? Like you're thinking about the next 20 years? Right? Maybe Maybe you can marry him off in his late 20s and get some girl to help him? You know, but like, this seems like a big How do you plan for the long haul? Do you think about it? Are you more of a one day at a time person? Or what are your? Like? What are your big ideas around around Benny's diabetes?
Alison 51:10
Yeah, that's a really interesting question.
Unknown Speaker 51:14
I, I'm,
Alison 51:17
I think I'm a little bit of both. I don't know how you have a long term plan for diabetes. I'm just hoping one day within the next 20 years, he'll have some sort of weird robot part that just handles his diabetes for him. I don't know if that's ever gonna happen. But we do the day to day, we really did. Do the day to day. Yeah.
Scott Benner 51:41
Is he so small right now you, it's probably just about like, let me get him to school with a pump. And like, I'll figure out how to get that done. And then we'll figure out the next piece. And I think that's, listen, I never know what anybody's gonna say when I asked them a question. But I think that if you're spending time with your kids, four and a half worrying about what's going to happen when they're going to college, you have, you know, you have found a way to worry, that probably isn't necessary. You don't I mean, and so that's cool. I think it's day to day. And I think that what you said about there are some days I don't think about diabetes, I think that's astonishing for 10 months, and that's excellent. Actually,
Alison 52:20
my main objective for having a, a young kid with diabetes is for him to never feel like his diabetes is bigger than he is.
Scott Benner 52:36
Yeah, I think my, my goal ends up being the thing, I end up wearing it when it works, it's the thing you worry about, too. So my goal is for Arden, not to feel like she has diabetes, and you know, as much as possible. And at the same time, there's times, you know, like you just pay attention to that place because and you know, so it's, it's weird, you put her in a scenario where she's just like, Yo, this works, I'm good. These are the things I do these things do this, everything's okay. It really is more about the timing the amount and the settings than it is about anything else. I always like when I hear people, I saw somebody the other day, who I think of is a real kind of icon in the space of people sharing diabetes information with other people. And this person is talking about being burned down. And I'm only watching from afar, whatever they're willing to share online, obviously, I'm not not in their house, you know. But I get that like just not wanting to do it, or just, you know, rather doing something else. You're being so busy that it's not it doesn't come first. All that stuff I completely understand. But as I see them, I think is it just like are you just are your settings wrong? Are you just like, like, why is it that much trouble to begin with?
Unknown Speaker 53:54
That's how I feel about it. Right?
Scott Benner 53:56
That's the thing I can't understand. I know why not understand. And and I you know, I don't reach out I don't know the person well enough to do something like that. But, but that's what I keep thinking cuz there's days I don't want to deal with. I've seen there's days for arms, like you have to be kidding me. We're changing this pump today. You don't mean like, and again, it's been three days, you know, and and it's just a look on our face. Like I've got homework, and I don't want to you know, like all that stuff. But it's a couple of minutes. It's the pump, it's filled, the pump goes on, you push the button, it's over. You keep going. Like it literally is five minutes. And yeah, like start to finish. And when your kids are younger, it takes longer, but trust me as they get older. I could. Let's just say this. I think if you could give me a tray that things stuck to. I could ride a bicycle and fill in on the pod and stick it on myself. Right? Like it's just it's super simple to do. Same thing with the CGM like boom, boom, boom. It's like you know,
Alison 54:56
I try to look at it sorry to pay off but I look at it as just annoying. things you have to do during the day. There are all a lot of annoying things that I have to do that we all have to do. Mm hmm.
Scott Benner 55:08
Well, you're married. So you have a different perspective.
Alison 55:11
Yeah, that is true. But I, you know, I was like you, I mean, when you were, we were at the top here at hanging out, like missing, I was the same way. I was the same way with school. Okay. Um, and, and like, that was a, it was annoying to me to go to school, not saying diabetes, the same thing. But I'm just saying life is a series of like, really annoying things. And so, you know, Benny's Dexcom is out tomorrow, and we're gonna have to change it. It's not his favorite. But bam, we change it, this is the situation just try and move on. There's nothing we can do about it. So it's funny,
Scott Benner 55:50
I saw I grew up really broke, like super broke. And so there are plenty of things that I just think of as tasks, right? Like they need to get done, and they get done and you do them because there's no other option can't buy your way out of them, you can't get somebody else to do them for you. You know, that stuff, like I've just always grown up that way, like just put your head down and do it. But at the same time, I think that if you want to know one of the reasons, I feel like I'm successful with helping my daughter with diabetes, it's because I see my to do list as very fluid. And so when I make a list of things in my mind, or on a piece of paper on my phone that I need to get done both today, this week, this month, this year, those things just they can, they are constantly reordering themselves. You know what I mean? Like, I don't write the list down. And now go, I have to now I did the first thing. And now the fifth thing is yelling at me. But I have to do two, three and four before I get to five, like my brain does not work. And I'm like, Alright, five is random either five now goes to one. And and so now I do five. And I think you'll find as you go along that there are some things in life that you would be nice to get done. But if they don't get done, it's not really the end of the world. And you know, pay your bills on time. You know that stuff. Make sure there's food in the house that stuff. But you know, you're really meant to, I don't know. So a hole in a pair of pants you have and it doesn't get done. doesn't get done. You know, like, like, you can't make
Unknown Speaker 57:26
pants.
Scott Benner 57:27
You don't sew holes and pants you so holes closed. Oh, so just kidding. No, no, I'm just joking. You didn't have to apologize. Um, well, I stitch up some clothing if I like it, and often I don't want it to keep wrapping Sure. I've been a stay at home dad for 20 years. I clean toilets, take out the garbage, clean the floors, do the dishes. I the other day. I'm mumbling to myself. And Arne goes, What are you saying? And I said, I'm saying? I said I'm saying wash the pan, make the pan dirty. Wash the pan, make the pan dirty. Wash the pan make the pan?
Unknown Speaker 58:01
She's like you're about to commit?
Scott Benner 58:03
Yeah. She's like Yari? No, Mike, I've watched this pot four times the day someone needs to stop eating for a while, like, what do you just give up for a minute. But my son's home from school, they all get up at different times get on your break? Yeah, kind of stuff like that. I don't know, like, you know, but I'm not washing the pot thinking about Oh, the thing that's 10th on my list, I've pushed down three times, and I don't get mental about that stuff. And I so I do that with diabetes, too. There's what's important. It's like nice to haves and nice to haves. So then I take care of the needs as the needs turn from nice to need. That's all. Yeah, and then sometimes nothing needs to be done. And that's when you relax and Coast. Right? I mean, is that not life? Maybe I'm wrong.
Unknown Speaker 58:51
I don't know. good moments, bad moments, annoying moments.
Scott Benner 58:56
Right? And here's one for you. You want to get a little deeper?
Unknown Speaker 59:00
Sure.
Scott Benner 59:02
Every day is not gonna be terrific.
Unknown Speaker 59:04
No, you don't mean like
Scott Benner 59:06
if you wake up every day go and this day better be terrific. I better be happy and smiling. I'm not saying like I'm walking around like dragging myself around thinking like, Oh, I just need to find a window to talk myself out of but I'm just saying like, some days aren't super exciting. You said something earlier that I thought was very mature and like indicative of a parent and a married person. You said something like the day started piling up. And I thought that is interesting. If you've been alive for a while you realize there are a lot of days. And you know what I mean? And that they're not all gonna get to be you know, they're not all the day you went to Rockefeller Center, went skating saw the you know, saw the saw the girls kick for the Christmas show and then get your picture taken in front of the cathedral and then bumped into Jeremy Irons like that, you know, that's by the way that actually happened with me one day, which is where
Unknown Speaker 59:59
that whole day happened to you?
Scott Benner 1:00:00
Yeah, Jeremy Irons was right in New York. And he was shopping at Christmas. And I was like scar. Right? Right. Like we got your scar. So we just everybody looked at him, we're like, yo, Jeremy Irons. And he was like, hello. And then we just lock the layer like was back before cell phone cameras. So you were just like, the guy from The Lion King and other films. And right now people are like Jeremy Irons is from this not the Lion King, but and
Alison 1:00:31
he definitely has the better version of be prepared. 100%
Scott Benner 1:00:35
of course, first of all, and secondly, number one super skinny guy.
Unknown Speaker 1:00:39
Really, I found myself
Unknown Speaker 1:00:40
thinking, could I just break Jeremy Irons in half if I needed to? Probably I
Unknown Speaker 1:00:46
would definitely be a story man be a day.
Scott Benner 1:00:49
Went to the Christmas show. Ice skating saw the tree broke Jeremy Irons and F for no reason. Just because he looked brutal. No, but but my point is, is that every day can't be that day. Yeah, you know what I mean? Like and so with diabetes every day can't be the day you don't think about diabetes. It doesn't make the day you have to think about it. Some horrible, depressing slides just that's such a huge thing. Right? Yeah, it's such a huge thing. be hopeful. That's sort of how it seems to me, and the rest of it kind of comes together. Okay, so you didn't say but when do you have a pump in mind for Benny when you try to get him on a pump?
Alison 1:01:31
Yeah, we're definitely gonna put them on the pod for definitely
Scott Benner 1:01:35
no ads on this show. Just know, just go to the links, you'll be all set. No, I'm, I. I'm a fan, obviously. And they're their sponsors. Because we have such a good time using the Omnipod. For so long. It just it's consistent. It's a it's a workhorse in our life. Right? Like it doesn't, it doesn't let you down and it does what it's supposed to do. It does the way you expect it to do it. It does without tubing boom. I find it, you know, for little kids, or adults doesn't matter to me. Like I find like when you say something about something and you're like, Oh, it's great for kids because of this, then people like suddenly think well, it's not good for other people then but that's not the case. Like that thing. I just love it. I think it's terrific. Do you think Has he seen it yet? Have you
Alison 1:02:21
he has so he is not a big fan of putting on the Dexcom Mm hmm. And so it's been partially why we have sort of held off on the pump. He doesn't really want to be wearing something else. Mm hmm. So that's where we're at right now. about it. But you know, it's it's all like getting into the routine of things.
Scott Benner 1:02:46
Yeah. And you're doing well with MDI. It's not like you be not pressured to move. You can do it. When you're comfortable doing it. How, um, how would you mind sharing? what is success look like? What are your goals, you know, day to day and a once a day, once a day.
Alison 1:03:03
So his first when he was diagnosed, he was we caught it really early. So he was maybe seven something when he was diagnosed. Hmm. And we, with the honeymooning and stuff like that we were able to bring it down to force for seven times. And then his last endo appointment, which was last month he was five, six.
Scott Benner 1:03:27
I think that's very respectable.
Alison 1:03:29
Yeah, yeah. So we do the best we can at school. It's a look now that he's been in school since September. That time is harder because he's not with me. Although he has a great team at school, his his, the nurses, great. His teachers are great. They follow the dexcom they're really vigilant, although they don't and they don't shelter him, which is sort of where, what I really asked of them, sort of like just like every other Katie spine, but also make sure you're looking at is Dexcom.
Scott Benner 1:04:01
Yeah, you know, I realized that you say that to people. They don't really, some of them don't really hear it like they do. They pretend they are but I'm just gonna. It's my hope. But you know, artists in high school. She's a sophomore, she doesn't look like you know, she looks like every other kid. And they're to drop off points in the front of Arden's High School one that's right at the door like a loop that takes you right to the front door. And there's a loop that kind of takes you to the top side of the parking lot where you would let your kid out and they would probably go about on a 30 cent 32nd walk to get to the front door. And they re kind of like moved around how the traffic went. And I one of the principals said to me one day, hey, I you know, I just moved the traffic, you should try the top drop off, like inferring the drop off that takes the 32nd walk and then says totally seriously and with that concerning his voice and his face, she can walk that right. And I was like, I almost for a second was like, What the heck? Are you even asking me, you know? And then I realized what he was saying. He was like, I know she has diabetes, can she make that walk? And I thought you don't understand that at all. Do you like you have no grasp of this whatsoever? And I was like, and it's not important that he does. I just went, Yeah, no problem. Anyone? Okay, great. Give it a try. Then I was like, we certainly will. But I was I drove away. I was like, Huh, there's something I never would have known had they not fixed the traffic pattern in front of the school. And he wanted to say that to me, um, but he he sees her is different, even if he doesn't say it out loud. Right. And I think that's probably fair, you know, I mean, like, he didn't know anything about diabetes. And what he really meant was like, I don't want to put her in a situation that she's not okay with. But he wasn't being like, you know, your busted up kid can walk right? Like, that's, he was just like, you know, oh, I made this suggestion to you. And now I realize, maybe, maybe I shouldn't have and he was just trying to figure it out. There was no malice, you know what I mean? It was perfectly
Unknown Speaker 1:06:11
right. It was innocent, completely, completely innocent.
Scott Benner 1:06:15
But I just think sometimes, people really expect other people to completely understand everything. And I'm like, I don't even completely understand this stuff in my life. And you know, I've used this analogy in the past. If you started telling me you got on here and started telling me about your disease that wasn't diabetes. I have no idea what I was talking. I just feeling well, it's amazing. I might, I might speak to you about it more carefully, because I know you know how people have spoken to us. Oh, hold on. Arden's back. Excuse me. One second. Sure. didn't eat the chips or the cookies. Oh, look at me. But she that means she ate the bagel.
Unknown Speaker 1:06:55
Then I want to Bolus more.
Scott Benner 1:06:59
How many more? How many more? How many more? 918? Three more units?
Okay, um, what you don't know is while we've been talking for the last five or 10 minutes I've been typing. Hello. What did you eat? Hello. What have you eating?
Alison 1:07:23
Did you do the can talk right now?
Scott Benner 1:07:25
I said I she answered me finally when I said killing that. me that. Then I got What? Oh, I didn't eat the chips. Cookies. So I just sent back Bolus, you know, three more units. Yeah, hello. Hello. It wasn't the No. Oh, I told you guys that at the thing. I don't know if I ever say that here. But when if I call art and it's not when I text if I give up and call to get the ring to kind of get her attention because she's not ignoring me on purpose. She's just not hearing it. She's just busy. The minutes that her phone rings she you know, for those of you have an iPhone, she swipes up on the thing and hits like, I'm sorry, I can't talk right now. So it sends me It stops the phone from ringing and then sends me a text it says I'm sorry, I can't talk right. That's my that's supposed to be my clue that All right, I'm paying attention now. What do you want? But this was texting. I was been texting her. Hello, hello. Um, sometimes I text her name one letter at a time. That seems to piss her off. In case you're wondering.
Unknown Speaker 1:08:27
Hey, I could see that. I could see that. Or
Scott Benner 1:08:32
the she's like what? But it opens me up or if I don't see her text. Oh my gosh. Then I start getting s see. Oh, and she doesn't stop. She hammers them out really quickly. So even once you're answering you're like, stop. I'm here and they just keep coming. And you're like,
Unknown Speaker 1:08:48
because How old is she? She's 15. Yeah, yeah. She can talk with her eyes closed.
Scott Benner 1:08:54
Yeah. Oh my god. Are you kidding me? sometimes she's talking and texting. And I'm like, That's fascinating. You know, I'm getting there, by the way. Like, can you do it a little bit? Can you text without looking? Yeah, I can. I can start imagining like, oh, the Jays over here. I'll just move in that direction. Alright, Alison, you had topics I really liked, which meant I spoke more. So I feel bad about that. But did we? Did we not do any of the things that you were hoping to talk about?
Alison 1:09:25
No, I really think we covered
I think we covered everything really touched what I wanted to what I wanted to bring home to people. Okay, so you let me down on one point.
Scott Benner 1:09:36
At no point in the podcast did you use the word jet? So that I could make the title of this episode Benny and the Jets? Yeah, so
Unknown Speaker 1:09:47
does Benny like playing again?
Unknown Speaker 1:09:51
How's Benny with planes? Does he like them at all?
Scott Benner 1:09:55
Just say Benny likes just
Unknown Speaker 1:09:58
loves jet. So I thought
Scott Benner 1:09:59
so. Thank you, Jesus, Allison get on board.
Unknown Speaker 1:10:05
Just hold my hand they'll get there eventually say the kid
Scott Benner 1:10:08
likes planes, for God's sakes make this easier on me. Now. I'm totally calling it many of the Jets.
Alison 1:10:15
Oh, 100% I didn't even think about that. But do you
Scott Benner 1:10:18
know, in my mind, what I think is people say it's called Benny in the jets and the entire time they're listening. They're like, when is this gonna be about planes? Okay,
Unknown Speaker 1:10:28
where is the song?
Scott Benner 1:10:29
Yeah, right. Are they gonna sing is just about elton john, what's going on? So that you all know, I? Alright, ready? We're gonna be a little honest. I named the podcast episodes. First of all, they're vague for for a reason. Like, because if I said to you right now, Allison, what did we talk about today? Is there a way for you to put that into a sentence?
Unknown Speaker 1:10:53
Absolutely not.
Scott Benner 1:10:53
Not right. And I think we hit three or four, maybe five important ideas about diabetes. If I start listing them, then it feels like medicine, right? Today's show is about, you know, the Internet, and share like Pope, if you told me that I'd be like, I'd be like, Oh my God, why don't I just bang my head into this door instead of listen to that, right? If I say, Allison's the mom of a four year old with type one diabetes, and everybody who's an adult ago, and that's not for me, but that wouldn't be true either. Right? And so I just picked something out from the episode. That tickled me. And I make that the title. The title almost never has anything to do with the episode, but it's just the hook. The devious part of me thinks, you know, if the thing in the title comes in the last 45 minutes, I could probably make sure you listen to the whole episode. For those people who are paying attention to that I'm I'm like a mastermind.
Alison 1:11:50
I feel like you just let us in on a big secret. Do you
Scott Benner 1:11:52
feel like you're gonna look back now some of the titles and be like, Oh, my God, that's true. This episode wasn't about that at all. It's just what they said in the last 10 minutes. And then I got to that I was like, I might as well keep listening now. Because? Because I'm not interesting enough to hold you for an hour. I don't that's not true. I don't think that at all. I think I'm incredibly interesting. How else would I make a pie? Who else would have listened? It's like being like president, right?
Unknown Speaker 1:12:19
If you're looking Oh,
Scott Benner 1:12:21
wow. How is it like being Oprah? I'm interested. Good.
Alison 1:12:25
Because Oprah is Oprah because Oprah believes in herself. And overthink, she's great. And look at her.
Scott Benner 1:12:33
All right. Well, if you have a second This podcast is gonna go longer. You good? Yeah. All right. So we're having this conversation last night. With someone in Arizona, I'm in talks to do a to go out to Arizona in May of 2020. I think it's going to happen. So if you're in the Arizona area, I think it's like may 2 or may 3 or something like that. But there'll be more details when it gets hammered down. So when someone reaches out to me, and they want me to speak, you know, the first thing they're really interested in is listening to me speak to some people hear the podcast, they know what they're getting. They're just like, we want you to come out like, just come. But some people are like, Hey, we had a colleague tell us about you, or there have been so many people who have you know, from our group, they keep asking for you to come and let me be honest with you. I don't know who you are. So you know, we get on the phone. And it's my job to sell them the idea of me, I guess, right? Sure. And so I kind of have to say, look, here's where I came from, here's my ideas. Here's how I'm going to talk to the people when I get there. This is my goal for them. You know, I kind of lay it out for them. But at the same time you're being engaging while you're talking because you want them to think, oh, I've had a good time on this phone call. I bet you he'll do the same thing when he gets here. So there's a whole lot of that going on. And I had that call last night for Arizona while I was coming home from somewhere. So I was driving. And we got along so well on the call. I thought that at the end, I said I'm so sorry. Like I sold you pretty hard. I really want to come out there. And she said Why do you want to come to Arizona so badly? I said, I've been there before I'm getting a lot of people asking me to come back. But the jdrf doesn't, they don't repeat speakers one year after the next like so I'm, I'm not coming next this year for that group. And I still would like to be in the area. So I was like I was I was trying really hard. I wanna I want to come out. And I said it's a weird thing to talk to you about this because I have to project to you confidence in what I'm saying. Confidence in my ability to come out there and reach your audience without sounding like I love myself. And I you know, and I don't but at the same time I do have a lot of confidence in my ability to come do the things I just told you. I was gonna do And so it's a weird line to walk you don't know when you're walking if you're on the wrong side of it or not. And sometimes you can be on the right side of it for some people and on the wrong side of it for other people, which everyone's perception. Right, right. I sure if you don't hear sarcasm, well, we didn't grow up around it. I could, I could totally see listening to this podcast and thinking that guy Scott is a jerk, like I would, but you don't feel like I'm a jerk. But you grew up around here where people are generally sarcastic with each other. Yeah, for no real reason.
Alison 1:15:36
or actual jerks. And I'm still not bothered, right?
Scott Benner 1:15:39
Yeah. You guys and ask but nice guy. Right, right, right. And so. So you're talking to people in other parts of the country, and you're sort of like, I don't know how I'm coming off right now. I can only be myself and it'll, it'll be what it is. But it's a really, now here's the other side of it. I've spoken at a lot of things. And I'm not always speaking 24 seven, while I'm there, you know, I do a lot more than most people like I don't just come in and do an hour, I do sometimes three or four separate hour long talks. And in some situations, I'll do one block, like I did with you guys on Sunday have like three hours. But but so I have some time to move around and listen to other people. And some people are so engaging and delightful. And I'm like, Oh, they do it so much different than me. But this is so much fun. And you know, interesting. There are some people, like you walk into the room, and you start listening and you think, how do I get out of here? Like, like, I gotta get out of here. You know, like, painful? Yeah. And and, you know, don't have any carriage of the, you know, the, you know, like, I don't even know there are some of maybe they get frozen in headlights or something like that. I don't know. But there's some of them. I think to myself, why would they have offered themselves up for this even like, this would be like if I showed up? You know? You know, at the at the Sixers game tomorrow night, I was like, I could play center for you guys tonight. They were like, really? We need a center like, absolutely. And then I got out there and realize that was you know, five, nine and 50 years old.
Alison 1:17:05
Yeah, like the bad people that try out for American Idol.
Scott Benner 1:17:08
Right? Sort of like that. Like, you're just like, why are you here? Like, why did you think this was the thing you do? It's not, you know, or, but then there's sometimes they're done. And they're so pleased. I was like, oh, wow, this is interesting. So I talked as I talked to the people who put these things on, and sometimes I asked like, How frequently do you have someone in and you're just like, Whoa, we missed on this one. And they're like, every year, every year, there's someone where you're like, how did who, who told us this person was good for this, you know? And it's sad. Like, it hurts because I'm going to tell you right now, if I do have ego around something, I don't want to show up at something and speak to an empty room. Like that would crush me. I'd be like, oh god, there's no one in here. I'm gonna fake up broken leg and get back on the plane. But I saw a person one time speak to three people in a room that held 150 people. And I felt terrible for them. Like I do.
Unknown Speaker 1:18:05
I don't think I would be able to do that.
Scott Benner 1:18:07
What would you do? Like right? Like hi head? Oh, no, everyone. Why don't we? Why don't we introduce ourselves? Like, it's like, I wouldn't know where to go from there. I just I'm telling you, if that ever happens to me, you'll hear the next thing you'll hear from people Scott got sick anyhow.
Alison 1:18:24
I feel like confidence genuine confidence comes from from three places. One, your ability to fake it. Right? Like some sort of ability to like, really be able to put on a show, fake it smile. Act like you know what you're talking about? And I guess it's I guess maybe too, and then really listening to other people. Right? So someone's like, it's like you asked me said, How did I do in my talk? Right? Because you are genuinely curious. Because you're gonna take what I say. And you're gonna use it next time, right?
Unknown Speaker 1:19:00
I said, Scott, you sucked.
Scott Benner 1:19:02
You'd be like, Oh, I would say Why? I would say tell me why. Yeah. Well, I think that, you know, being complete, not that I wasn't being serious before, but I was being a little flippant at one point, but being completely serious. I am confident with the information that I'm giving. Right, that I think if you listen to the podcast, you'll know I won't answer questions. I don't think I that I don't have an answer to I don't I don't pretend to know something. I don't know. But the things I do know, I'm confident that I know. And it's the confidence comes from writing about it for eight years, talking about it for five years, having all these conversations with all you guys and the people that I have these conversations privately with, like, that's practice. You don't I mean, it's it's it's that that I'm confident about an experience.
Yes. I don't. I never feel good about how I feel like I look like I'm like I I'm not gonna lie to you. I wish I was 62 and, you know, you know, more handsome and dashing like, but I'm over That, like, I don't care that I don't look like that. That doesn't bother me anymore. But it did in the beginning was hard. In the beginning, I was like, I stood up there and I thought, I don't look the way I think a person doing this should look. But that turns out not to be a problem. And I was able to work through that. But you're you're right. It's not even the faking it part. It's the faking it to yourself. Like, you have to believe you belong there saying it. Yes, that's really the like, you're not faking the information, you're faking that it should be you because no one has that confidence that it should be them. You know, like, what, what do they call that imposter syndrome? We all feel like we're imposters in our lives. Right? Like,
Unknown Speaker 1:20:39
like, they're why you put it in a really good way. Did you really manage to say what I was trying to
Scott Benner 1:20:43
say? And so and that's the other thing that I know, I do. Like, I know that I say complicated things, simply. You know. And so I but I've seen that throughout my life, is I didn't just decide yesterday that it would work and take advantage of it and go like all speak your thing because you asked me to like, I didn't speak at something until I was confident that I could do it until I had practiced it. Other places. I didn't just wander in somewhere and be like, yeah, let me tell you all about this topic. And by the way, some of the topics aren't topics here, you if you know what if you're, if you have a podcast of your own, you're still listening. You deserve to know this. You know, the problem with your podcast is that you try to make one episode about a topic. No topic eats up an hour. That's pompous. Okay? You don't know enough about a thing to fill an hour about it. You don't I mean, like, you're not you're not a lecturing like. And by the way, how bad is that in college when they get up and lecture for two hours? Like? Yeah, who? Exactly? So so one of the problems with podcasts is, some of them try to pick a topic and talk about it the entire time. And there's no like, it's just there's nothing's that interesting. It also doesn't
Alison 1:21:56
allow for the fluidness of conversation,
Scott Benner 1:21:58
right? Where the idea that you might say something I didn't expect you to say. You don't mean like, and that's why I don't like to talk to people beforehand, because I asked you a question earlier. And I was like, Oh, I like the way this answer when, but you could have answered the opposite. And I would and that would have started a different conversation. And you know, then I don't know, it. Just it makes sense to me. But I don't know, like some of them. You're just like, oh my god, like, all right. It's 45 minutes later, I swear to god off, I'll recycle. Leave me alone. I'm sorry. I'll do it. Please, please stop talking about though you're trying to beat me into submission here. Like is that what's going on? The even when I had the idea to bring Jenny and and do pro tips. I was like today we're going to talk about one idea. There's still conversational around the one idea there. It's not part one, part two, part three, this step 1234. I just don't I mean, maybe there are people who can talk about talk like that. But it's not me, you know. So.
Alison 1:22:59
Right. But also those episodes that you have with Jenny, the shorter one,
Unknown Speaker 1:23:03
huh? They're not an hour. Yeah, they're usually not that long. Right?
Unknown Speaker 1:23:08
Yeah. To talk about the thing. You're done talking about the thing. And we're done. Yeah. And then you're done. It'll keep beating the
Scott Benner 1:23:15
don't keep beating that, you know, I'm just like, Ah, this horse is dead. Let's move on. You know, this is how you Pre-Bolus Let's get out of here. Now, and I appreciate that. I really do I have to admit, like, I'm, this is the sixth season of the of the show. And sixth year, I complained in an episode recently about podcasts or like have eight episodes and like that was season one. I'm like, Nah, what? Alright, you know, but, but I've been doing this like a really long time. I feel as comfortable now as I ever have. I feel like the the shows are getting deeper. Yeah, but not in a bad or boring way. And I really do enjoy doing it. Like you'll know when I stopped enjoying it, because I'll stop doing it. But I just I have a really love this. And again, I haven't said this in a while. But the super secret of the podcast, it's not that secret is that these conversations really helped me help my daughter. And then that in turn helps me talk about it on the podcast. So it's sort of a very uncommon thing. That's everybody's giving to it. And everybody's getting from it. Which you don't you don't see something. Yeah,
Unknown Speaker 1:24:23
absolutely. It's very cool. It's like the ripple. The ripple.
Scott Benner 1:24:28
Yeah, that's hundred percent. It's wonderful. You people like you Come on, and you open up about your life. And, you know, everybody grows along with the idea. So I love it. I'm very happy to this. I appreciate I'm sorry, I'm holding up now. I appreciate you coming on. And
Alison 1:24:42
no, of course I was so happy to come on.
Scott Benner 1:24:45
I really appreciate that. I wrote it was very nice to meet you. I know while I was talking. On Sunday, I said to Alison I was like this is disconcerting because you look just like your avatar picture. And, and it really did and then you were like Oh good. Whatever, you know, what is that? What is that? What? on Facebook? See? What do make me look old for they used to be called avatars. Okay? Like your little picture of yourself on wherever you are.
Alison 1:25:11
It might be called that I just I don't think I've ever heard it.
Scott Benner 1:25:15
You trying to make me feel old? That's fine. And now you've just insulted all the other old people who are listening. Just Say No, but you look just like, yeah, you look just like literally, like there was part of me that at first like so here's how it went through my head. I was like, Did she like dress like her photo online, so I would know who she was like, that was my first thing then I just realized it's your glasses and dark hair. Yeah. Do you see what I'm saying? That like that. I was just like, it's just very recognizable. And I just looked at you on Facebook to have this conversation. So now this this episode's gonna go three more minutes. Are you from Red Bank?
Alison 1:25:52
Yeah, I was born in Riverview. I love
Scott Benner 1:25:54
Red Bank. Because Kevin Smith so nice there. Yeah, that's why that's 100% Well, that's how I found that town. Like, like, 2020 years ago, I was like, yo, you guys know Kevin Smith opened a comic book store and Red Bank. Like, can we like, you know, we're like, We're going and here's the thing, people who don't live in New Jersey don't realize you can drive across New Jersey in like, 45 minutes.
Unknown Speaker 1:26:19
Yeah, no, it's right. Yes. It's no, it's not bad.
Scott Benner 1:26:23
It's not that there's a part of Central New Jersey, where you basically can go from the entire western part of New Jersey to the to the shore in literally like an hour. And so the first time we got in the car, like, Oh, it's gonna be a trek, you know? And then an hour later, we're there like, Oh, my God. And then and then there was Kevin Smith's comic book store.
Alison 1:26:43
And I'm so happy you said central jersey.
Yeah. Always something there's like a huge thing. Where are some people say central jersey does not exist. But I always say that I grew up in central jersey, right
Scott Benner 1:26:55
people in so people in the Trenton Princeton area are considered South Jersey to anybody north of them. As if, right as if the south, the southern part of New Jersey doesn't exist. But there's a Southern part down below Philadelphia. That's that South Jersey. And so this essentially, this is not a difficult thing. You look at it, and the middle is the central part. Right? But everybody gets that wrong. Everybody's always like you live in South Jersey. I'm like, No, I live in central jersey.
Unknown Speaker 1:27:29
Like jersey,
Unknown Speaker 1:27:30
everyone has an opinion about it. So jersey,
Scott Benner 1:27:34
to disagree about something so simple that they really can't be disagreed
Unknown Speaker 1:27:37
about name.
Scott Benner 1:27:39
Yeah. So what is it that the real southern part of New Jersey people think of is Pennsylvania they think of it more is Philadelphia, right? Do you think I
Alison 1:27:46
just think of wah wah
Scott Benner 1:27:51
wah wah. Now here are everywhere. There's one in Red Bank.
Alison 1:27:54
There is one of my bank. I've been to 10 Really? 10 minutes from my house growing up. Never knew it.
Scott Benner 1:28:02
I went to Kevin Smith's film festivals at that in that little theater right there in Red Bank. Count Basie. Yeah, it's at the Count Basie theatre. I've been to the Count Basie theatre a half a dozen times in my life always to see Kevin Smith's movies. And you're saying you grew up like 10 minutes from there? Yep. So now here we are. All right. Now no one Allison does not live in.
Unknown Speaker 1:28:25
I don't live there. Right bank anymore. Don't go looking for you. We're gonna try and find me. Yeah, yeah, that
Scott Benner 1:28:30
one of you out there right now. It's like dark hair and glasses. Red Bank, you say? Just pull yourself together. Turn yourself into the cops. If you're thinking that all right.
Unknown Speaker 1:28:39
Don't worry. I'm pretty sure they'll find about
Unknown Speaker 1:28:42
I don't know.
Scott Benner 1:28:43
More than one Allison.
Alison 1:28:45
Allison with dark hair and glasses in Red Bank.
Scott Benner 1:28:48
All right. Leave Alison's alone for God's sake. All right. Awesome. I'm gonna say goodbye. Hey, huge thanks to Alison for coming on and talking about her life and Benny's type one diabetes and bringing up so many great topics. Thank you all so touched by type one. And the Contour Next One blood glucose meter for sponsoring this episode of the Juicebox Podcast. Go to Contour Next one.com forward slash juice box and touched by type one.org to support today's sponsors. There are links to all of the sponsors right there in the show notes of your podcast player and at Juicebox podcast.com.
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