Scott Benner 7/27/20 Scott Benner 7/27/20

#361 Bons Temps

Justin (T1D) , Cory (T1 Mom) and Scott chat it up

Cory is a T1D mom and Justin is her grown son living with type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:01
Hello, everyone, welcome to Episode 361 of the Juicebox Podcast. On today's show, we're gonna let the good times roll. And by that I mean we're gonna try something a little different. I'm having a person with Type One Diabetes, Justin, he's an adult and his mother who, then this may not surprise you is also an adult. That's not the point. The point is Justin's mom kind of fills in some of the questions about diagnosis in the early days, and then we move on to Justin who talks about having Type One Diabetes now and his career as a chef and many other things. As you're listening, please do me the favor of remembering that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Do you have an absolutely favorite diabetes endocrinologist doctor nutritionist, nurse practitioner somebody you love and you'd like to share it with someone else. Head to juice box Doc's calm. Not only will you find a list of listener approved doctors, but you can add to that list by sending an email with your favorite doc and their deeds doc in their deeds juicebox Doc's dot com

This episode of the podcast is sponsored by the Contour Next One blood glucose meter and touched by type one touched by type one can be found at touched by type one.org. When you visit their website, you'll see a list of their programs, their awareness campaigns, and how you can get involved with supporting people who have type one diabetes, Elizabeth forest as their founder, she's a wonderful person. I've met her a number of times, and each time I've come away feeling warmer than the last. And you may absolutely have that experience as well, when you visit touched by type one.org. Hey, are you perhaps in the market for a new blood glucose meter? Have you been using the same old meter for far too long? And you're sort of unsure of how accurate it is? I mean, how long ago? Was it designed and made? Are you holding like a 10 year old piece of technology in your hand and hoping it's going to tell you what your blood sugar is? Are you tired of test strips that fail and throwing them away and being wasteful, not being able to see the test trip at night? Having this meter that's hard to hold in your hand and do what you need to do at the same time? Are these things happening to you and you think I wish they weren't? Well, they don't have to. Because you could go to Contour Next one.com Ford slash juice box and find out all about the Contour Next One blood glucose meter, what you're going to find is a meter that is easy to handle, easy to read, easy to see the test strip at night. And incredibly accurate. These are the things you need from a blood glucose meter. Handle Ability Test trips that you're not always throwing away because it didn't go quite right. Because this test trip has a second chance you can go in hit a little blood not quite get law come back out try again. It's a great meter. My daughter's been using it for a while now. And I mean, I don't want to throw any shade on the other meters. But this is the best one she's ever used. Head over to Contour Next one.com Ford slash juice box and find out more. There's all kinds of links there. Even about Savings Programs, possibility of getting a free Contour. Next One meter, check it out. Contour Next one.com forward slash juice box with links in your show notes. Or at Juicebox podcast.com. When you support the sponsors, you're supporting the show, and I appreciate that very much.

Justin 3:46
Hi, my name is Justin. I'm 39. I've been diabetic for 36 plus years. And

yeah, it's cold in Minnesota.

Scott Benner 4:00
That's where you're at. Now also on the on the show is Justin's mom, Cory. Cory, can you say hello?

Courtney 4:08
Hello, everyone. I'm Courtney. I also live in Minnesota. I don't know why. No, I'm just kidding. And I am Justin's mom. Justin is our oldest.

Scott Benner 4:20
How many kids do you have? Cory?

Courtney 4:22
We have three but I consider that we have six because they all have wonderful, significant others.

Scott Benner 4:29
Your mom's gonna be sweet. See, this is nice. Okay. So we'll start off a little bit. Here. I'm going to kind of do things backwards a little bit, I guess. Corey, can you tell me what you remember about Justin's diagnosis?

Courtney 4:44
Yeah, it was actually very memorable because we found out that he was diabetic in a pretty unusual way. We were living in Minnesota but my husband was being transferred to St. Louis. And so the night before we left, my husband was already gone. I was and you can picture this. I had Justin who was to one week before his third birthday. I had Amanda who was one. And I was pregnant. And so the night yeah. There's not a lot of other things to do. No, just kidding. Um, so what happened was the night before we had been outside, swimming, playing, having a good time. And we stopped to get a bite to eat. And unbeknownst to me, Justin is drinking everything on the table. Are you finished with this? He asks very nicely. And are you finished with that he's drinking everything on the table. And I thought something was really odd. But a friend of mine who is an ER nurse goes, Oh, we've been outside, it's hot. You know, no big deal. Well, by the time we go to get on the plane, the next morning, he is again, drinking everything inside, he has to go to the bathroom. And he is potty trained. But he has toured the bathroom frequently. And we get on the flight. And we get to St. Louis. And mind you, I'm by myself with two babies pregnant. And I think you know what, something's not right. So I pull into what looks like a pediatric clinic. Because it's, again, my first day in St. Louis. And we know no one. Yeah. I pull in and I sit, you know, take them out of car seats, and so on. And I go in and I give them what I don't know. But they should know, classic diabetic diabetic symptoms. His eyes are very dark, he looks very dehydrated. He's, you know, thirsty all the time. And of course, he has to have a bathroom all the time. And I tell them, I just need to know if this is life threatening. Or if it's just a virus. And they're like, Well, you know, we're really busy. It's 10 o'clock in the morning. We're really busy. We can't see him until about four. Oh. And they kind of look at me like,

Oh, she's just being overprotective.

Unknown Speaker 7:20
I'm sorry, you cut out. She's just

Courtney 7:23
being over protective. Gotcha.

And that's not my nature, I usually handle things pretty well. So I'm like, Well, okay, I guess it's not life threatening, and bundle them back up in the car. And mind you it's 100 degrees in St. Louis. It's, you know, summer bundle backup in the car. And I started to drive down the road. And I'm like, No, something is not right, I need to get this check. So I said, I'm just going to take him to the emergency room. But of course, I don't know where I'm going. And this is long before cell phones. It's even long before MapQuest if we can imagine. So for all the youngsters out there, yeah, way before. So I think I'll just take them to an emergency room, will I miss the entrance to an emergency room down the road. But then I see another like high rise clinic. That what you know what, we'll just go there, and I'll see if somebody else will just take a look at him. By this point, he has to go to the bathroom again, we go in, and I just hit a button that I see pediatric ear. So it's just one doctor on one floor kind of thing. And I go in and I say the same thing. I just need to know if this is life threatening. Or this is just, you know, a cold or virus. They were so dear. They took us in immediately. They did a quick test. And they said Mrs. emo. I don't want to alarm you, but your son is less than 12 hours from going into a coma. He has type one diabetes also

Scott Benner 9:00
here right now, that's not an alarming sentence at all, you will probably find pregnant with your little children in a brand new.

Courtney 9:08
So in this way, said I am not someone who panics. So I said, Oh my gosh. And to be honest, I was just so thankful to know what it was. And to know that it was something we could deal with. So at that point, I just said Could I please borrow your phone so I can let my husband know he's at his place of work. And can you please give me directions for where I need to go? Because they had also said we've called ahead to Cardinal Glennon children's Memorial Hospital, downtown St. Louis, and my job my way on the south side of St. Louis, my very first day there. So they give me all the directions. I put the kids back in the car. We drive to the hospital and by this point, they've Both falling asleep and Justin's becoming more and more lethargic by the minute.

Scott Benner 10:04
Yeah, dying is another word for it. Yeah, pretty nice. Exactly.

Courtney 10:10
So we get there again, like I said, it's 100 degrees, I take one out of the car seat, I start to take the other one out, the security guard was just wonderful. He's like, may I help you? I said, that would be wonderful. So he picks up Amanda carries her and I carry Justin and Justin is so far gone at this point. And this has just happened to you rapidly that they were in the ER for six hours. And I held him when they put his IV and because he was that lethargic. And fortunately for us, we say this, though, so so many times. We were meant to find this out in St. Louis, because Cardinal Glennon children's Memorial Hospital is across the street from Washington University, the premier diabetic Research Hospital at the time, at the time,

Scott Benner 11:06
so things have changed. So I save a couple of questions. First of all, this is like a classic Midwestern experience, you know, you just people are taking you in, you know, you didn't get turned away at first. But you know, everybody's very happy to help you once you're there. Scary, or no time to be scared. Do you remember at all and Justin, I'm interested to do you know this story? Or is the first time you're hearing it?

Justin 11:33
I know the story, but I

was obviously out of it at the time. So it's it's pure hearsay, which is kind of why I thought it would be a good idea for my mom to actually tell it.

Scott Benner 11:46
Yeah, it's super interesting. Yeah. And I thought it would be interesting even to kind of hear your I mean, your three. So I mean, honestly, I don't remember one thing from when I was three. I don't know a lot of people do. But yeah, yeah, this exact please. 36 years ago, this happened to you. And you know, it's just like she's borrowing people's phones to call them and you know, can I can I borrow your telephone? And she she left out the part where it was like a rotary dial phone hanging on the walls of the office. Probably. She also

Justin 12:15
left out the part where hadn't even got to our new house yet.

Scott Benner 12:21
Yeah, you're just there, right?

Courtney 12:24
Yeah, it's my first, basically our first hour or two in St. Louis, in a rental car. And yeah, it's, I will tell you honestly, that I was not so much scared. I was truly I was scared, because I knew something was happening. And I felt like they didn't take me seriously at the first place. So that was a big deal to me. And so then when I got the answer, well, I thought it was a monumental piece of news to get, obviously, I was so so thankful I know what it was.

Scott Benner 13:04
Anyone who's gone through an undiagnosed illness, knows the relief that comes when somebody tells you what it is funny, because you put so much effort and time into worrying and thinking and trying to figure it out and going to different doctors, and then everybody's always like, well, maybe it's this like, Well, that doesn't seem like an answer, an answer, sometimes very comforting, even if it's not the answer you want.

Courtney 13:26
Absolutely. And then I will be really honest, too, in that when he was in the hospital, so of course, they admitted him. And so our first six days in St. Louis, was in the hospital, right. And it's funny, the little things that happen, I happen to have coloring book and crayons and things. So Amanda was underneath Justin's bed coloring. He was just being fantastic. And I think, you know, kids rise to the occasion when there's things going on. Yeah. So she, she was wonderful. Justin was absolutely amazing. Because once he started to get IVs, and those sorts of things, you know, we got him back pretty quickly. And that was great. But I remember them worrying so much about us being overwhelmed and being really frightened. And I think both both Gemini, my husband and I just do really well with information. So at that time, of course there wasn't Google. And I said I'm fine. But can you get me all the information that you have? And I said, I don't want the layman's terms. I want all the medical documents. Yeah. And they gave me everything. It was wonderful. And then I'm just a voracious researcher and reader anyway you poured through. So that became my mission. My mission was find out absolutely everything. thing possible?

Well, Justin could have the best life.

Scott Benner 15:04
How was the treatment? 33 years ago? Was it regular an MPH? Did you even have a meter in your house? How did all that work?

Courtney 15:11
Oh, that yeah, that's interesting. It was regular and mph. And we tested blood sugar Betty, it was basically just on a stick. Yeah. And then you know, you were checking out and getting your your ratings. And then, but because we were in St. Louis, it was very different than a lot of places that I've heard of, in that he was having multiple shots from the beginning, though he he had four shots a day, which was not common for a lot of protocols elsewhere. Yeah. And so we felt very fortunate about that. And then he also tested his blood sugar, six to eight times a day. But he was, he was amazing, because I grew up.

So I'm 61.

And so when I grew up, it was kind of that whole time of free spirited people, and you would see things on TV is black and white TV, but things on TV where people were doing things with needles, and so on, and I, I was really pretty afraid of needles, okay, um, you know, of course, you have to have a shot. So I would do that without a problem. But it was something I was like, I could never be a nurse or I could never, you know, that was not my thing, right? And then I end up having a child who's diabetic

Scott Benner 16:38
is that, and this is the 60s or those know, the 70s.

Courtney 16:43
For him, he Well, when I grew up, or when he was no, he was born in the 80s. He was born in the 80s. But when you when you're talking about you're growing that time period for yourself. So well, I lived in California at the time, so I was spent a lot of time in San Francisco and so on. And that would have been like, for me, I was in the hospital. San Francisco General, for a complicated elbow surgery. Okay. And that was right in the time. It was like 1967 1968 Yeah, so that was kind of that big free, you know,

Scott Benner 17:18
free love cuz the whole space in there, the Vietnam War. And and absolutely, yeah, that is a weird time. If people who aren't there don't realize probably all the culture that was happening and kind of bang into each other at the moment.

Courtney 17:33
So for me, I thought, Oh, my gosh, I should be the last person to have a child that has to have shots. But you figured it out. Right? Well, I, I will tell you honestly, I'm practicing on an orange Jim was as well. And the nurses were giving him his shots this first couple of days. And then one day, Justin looks up and he says, Mommy, will you give me my shot?

inside a wet?

Unknown Speaker 17:58
Oh, we're gonna give you up for adoption.

Courtney 18:02
Holy crap. And you know what? He was so brave, right through the entire thing that I thought if he can be this brave, I have to be this brave. And it was probably the best thing because it made me have to do it. Yeah. And once you do it once, then you're fine. Sure. No, but that first time, I was dreading and he, he made me He made me strong because he was so strong.

Scott Benner 18:27
That's very cool. So how long do you think Justin? How do you When do you remember picking up your care? Like, when did you guys did you transfer it over? Did you just all sort of do it together for a very long time? How did that all work in your memory?

Justin 18:43
In my memory, I remember. I remember starting to give myself shots. like eight ish, nine ish, somewhere in that range.

Unknown Speaker 18:59
Six, okay. Memories testing your blood sugar at four.

Scott Benner 19:04
Wow. You can pee on a stick when you were four. Justin. Good for you?

Justin 19:11
Um, yeah, I feel like is it I feel like, I mean, not full control, obviously. But I remember doing a lot like, as soon as I could. Okay, kind of thing. Um, because self sufficiency or something? I don't know.

Scott Benner 19:30
I'm just something you were taught you. You were inclined to try it even at a young age. And you did.

Justin 19:36
Yeah, I mean, still, I mean, to this day, I don't I don't like needles either. Like, I go, I go and get my blood drawn at the doctors and I like have a nerve like I don't want someone else standing. I'll stab myself. Thank you very much. Like, I don't Yeah, right. Um, but yeah, I remember doing I remember doing a lot of it. Since As long as I like I don't remember not ever doing if

Scott Benner 20:04
not here. When did Justin in today's like world? You have a pump you have a CGM. Like Is that how you manage? Yep, I tandem. I'm an old I'm an old tech g4 and dexcom g4. Okay, how do you find that still? I love it. That's amazing, isn't it? And that's something that's that's real perspective. Actually, Justin, because I was talking about this with someone the other day, like literally the other day, were you. It was with an old school person who'd been around diabetes for 50 years. And they were mentioning how it freaks them out when someone says, Oh, you know, my Dexcom lost its signal for 10 minutes. This thing is a pain in the butt. And the guy's like, they have no idea what they're, I mean, I guess he said it's relative to their life. I guess he's like, they have no idea how far we've come so quickly.

Justin 20:57
Absolutely. Like, and I I started listening. Actually, the first podcast I listened to of yours was the because it popped up in my like Google News Feed about Costco carrying g six stone.

Scott Benner 21:17
I remember that moment in time when that happened.

Justin 21:19
Yes. And, and I, that was the first podcast I ever listened to. And I was like, you know, I had had, I've had Dexcom for a while and a pump and yada yada yada, but like, and I and again, I come from a strong, like, we've been Pre-Bolus since since I was three. Yeah. Like, taking a shot half an hour, before meals was kind of always the thing comedy. So like people who've, like never heard of it. I'm like, what, like, confused, like, I've known about that since 1983. Like, but I started listening and it immediately kind of kicked in a gear. And I think I've said this on like, the the discussion group, like it, put it in a framework that put a technique to all of the information that I knew, if that makes sense.

Scott Benner 22:19
It does. I'm glad to,

Justin 22:21
um, because it's like, I had all the tools I have all the knowledge like, Why are my eight one C's? Eight and a half, or whatever, you know what I mean? Course, um, but I but but the one thing I didn't have, like I had the old dexcom g4. So I immediately went on a search because I I went to bowl too early, real fast and had some bonkers lows. Some like real hardcore, like Van Gogh, Kaleidoscope type type situations. Um, so that Mike, my girlfriend has a friend whose daughter is diabetic. And she got me a g4 with the share function. Okay, because I never I never had that, right. So like, once I had some bonkers lows, I'm like, I need other people to be able to see this, like, what's going on with my sugars? Because I'm being all crazy. Um, yeah, so like, I just this year, like, I've kicked it into gear. And now my girlfriend can see my numbers and my mom can see my numbers. And like,

Scott Benner 23:31
yeah, and you're managing really well on on dex contact. It's two generations old. Yeah, what were you able to so this this time you're talking about? It's not that long ago? Like you've only been listening like inside of this calendar year. Is that right? Correct. Yeah. And where did you get your a one seater so far?

Justin 23:49
Um, my last one was six, two or six, three. Wow,

Unknown Speaker 23:53
that's very cool.

Justin 23:55
And I'll be honest, like, like, I was tracking it on clarity and, and tide pool and like, I know, I have all the things basically, that I can that I can work with my g4,

Scott Benner 24:08
right? That's excellent, man. How's your variability and your time and range? Is it does it always get better? Are you having trouble with it?

Justin 24:15
I do. variability is I'm working on that. That's kind of the hard one. Timing range. I mean, my 70 to 120 timing range is isn't as great but if I put it to the, the standard, like, on my clarity, I put it to 70 to 180 because that's what all the doctors like to look at. Yeah. And then then I'm sitting at like, 80%

Scott Benner 24:42
that's really great. You know, congratulations. That's wonderful. Now, I need to stop you for a second mom. Is this. How does that feel to you is he's an adult now obviously. And and you're, you know, you're probably far removed from day to day being in contact with him about it, but Want to know? Like, does it feel any different? Being 61? To hear that he has a six two than it would have been if he was 10. And this was happening?

Courtney 25:09
Oh, yeah, I think I think a lot has changed. Our goal, always from the beginning was to, to educate him, you know, enough so that if he was invited to a birthday party, or he, you know, had an opportunity that they were doing a field trip at school. You know, we didn't have the technology that is available now. So if he was in charge, I mean, he had to learn pretty quickly how to be in charge, and what choices to make for food and those kinds of things. But it was really important to me that he be able to know why to make the choices that you make, and how it would affect. But he, he literally said to me, was this a year ago, Justin, that or maybe even shorter than that, he goes, Mom, I have a present for you. It's, you know, 30, you know, 35 years too late. But here you go. And it was the first time I could actually see his blood sugar's through the shared program. That's cool. Where there's so many parents now that, like you were saying, you know, if they can't see something, or something goes down for a short period of time. And they kind of panic and say, that was old school all the time. Yeah, I mean, anything that he did, or whatever, we did not want him to be in this, you know, bubble or cocoon type of life. We wanted him to be able to do anything and everything that he wanted to do. But that meant he had to know what he was doing, too. And he was he, you know, he's, he's smart, smart man. And he was pretty smart, young man. So he took those things pretty well. But I think we tried to understand that there had to be grace within that those choices in those decisions to as part of the learning process.

Scott Benner 27:12
Justin, you're Sir, I'm sorry, I cut you off. Just do you think that you're a one see being in the eights is a product of that was expectation as you were growing up? So you were hitting expectation in the eights at one point, that was what they told you? And now they and then they said sevens? And they always push the number but was it not? Because it doesn't seem like To me it's a lack of your understanding? or lack of trying? I think it was, it's, I'm going to ask you like it was that just because that was the goal.

Justin 27:40
I'll be honest, like I

Yeah, no. I mean, my goal was never to be like Mike, I never, I always wanted to be good. It's not like I was like, I'm gonna be crappy, but like, like, had like, having having knowledge and having the direction to use the knowledge are two different things. Okay. So like, I mean, like, even my mom said it with diagnosis. Like, I don't trust what they said. Like, I I can't tell you how many doctors I've gone to. And within 15 minutes or endos, 15 minutes gone. I'm gonna have to teach this person something like I'm out. Yeah,

Scott Benner 28:27
yeah, I'm here. You know, I'm teaching the doctor. Great. Yeah. And I'm not exactly like the world on fire. So what does that say? Right. Yeah.

Justin 28:36
So so like, I, I kind of had a distrust of like, Don't when I, when I got my first under seven, eight, when I was like, the first one like that, like, I teared up, it was like a 6466 or something. It was first one under seven in my whole life this year. Like the doctor, she looked at me and she went, I don't know if this is good. You know, usually when when patients get under a seven, you know, risk for heart stuff goes up this, that and the other this, that and the other and I looked at it, I went for type ones or type twos. And she kind of stopped and went, you're right. Like and then and then she like, immediately got on my page, because she realized she's not talking to someone who's needs to take a bunch of pills to get a six, six, or whatever, you know what I mean? And it was very, like now I'm like her favorite patient because I roll in with my laptop. And I show her all the tide pool stuff and all the clarity stuff like I don't you know what I mean? She's usually bringing residents in who are like, Oh my God, I've never seen this before. You know what I mean? So it's like finally, finally, I built up a little trust with a doctor in for the first time in 36 years. And it's kind of cool.

Scott Benner 30:00
That's amazing. It's crazy that they don't know about that stuff. It's great that you're introducing it to them. It's nice that they're receptive to it. They're not just putting up a wall, which happens, a lot of people win it.

Justin 30:09
And I'll be honest, like, we're in Minnesota. I mean, I live in Minneapolis. And what's, what's the big company that's right in the cities here. So like, I walk in with a tandem pump, and they are confused.

Scott Benner 30:24
It's very true. Medtronic is it's like if if, if minister, if Minnesota had a state insulin pump, it would be it would be a Medtronic pump. I think it's Oh, absolutely.

Justin 30:37
And like, I was supposed to get a pump, years and years ago, but it was there, like, Oh, go to the IDC, which I maybe they've changed, but they were, you know, I went to the international Diabetes Center that's really well known here. And they're like, Oh, you need three months of exact logs. And you pretty much have to get an A one c under seven before we can even think about getting you a bump. And I was like, that makes zero. Just like you think like that makes zero sense.

Scott Benner 31:05
When you're making that's for sure.

Courtney 31:08
Like, Oh, definitely backwards? Yeah.

Scott Benner 31:12
Well, it's, it's if they don't understand, then we can't give them more to understand in it. And I don't have I feel like I say it a million times. But they either give you incomplete or wrong tools. Even if they give them to you, they don't tell you how to use them. And then they chastise you for not getting a great day one see with those tools until you if you want more help, you're gonna have to do better even though we've given you zero direction. Good luck. And, and I'll

Justin 31:37
be honest, my big my biggest issue, recording, I'm not going to write down every finger stick I do ever. Like that's it's not going to happen.

Scott Benner 31:48
Oh, sorry. Most of this, most of this podcasts exists because of my laziness around diabetes, not wanting to count carbs, not wanting to bring logs to doctors, you know, yeah, all that stuff. Like I'm like, Oh, really, I'm you know, not because I'm lazy. But because it's, you're busy. And even when that Arden was, you know, two, three years old, didn't have time to sit down and hack through months of data to show them which by the way, when you showed it to them, they would sort of look at it like, ah, I think I see a high here. It happened more than once. Like, that's what I spent two days they can through that afford. So you could like, point to a uptick on a line. I could have figured that out. Like that's not helpful. You know, it's I saw that for the last three months. Now, what do I do about it? You know?

Courtney 32:34
Absolutely. Balance is the key. And that's I think that's really the the key to diabetes anyway, is you've got to figure out how to balance all of the things that you are responsible for when you have type one diabetes, with having the most enriched life you can have.

Scott Benner 32:57
Cory, wouldn't you say that? That's life, too, not just diabetes, like oh,

Courtney 33:01
yeah, absolutely. But I think there's a layer that gets added that for those who don't have it, they don't realize because you are required. Because, you know, because of the diagnosis and the management of the illness, you are required to adhere to a certain amount of steps within your protocol to have a full life. So yes, everyone, everyone on the planet, you know, every human being, you know, has certain responsibilities and certain things that they have to do for self care. But if you have diabetes, whether it be one or two, but one specifically, there are requirements, your you cannot jerk,

Scott Benner 33:50
right? There's some stuff it would be

Courtney 33:52
nice some days. Yeah, yeah, it would be nice. If some days you could just get a vacation from it. But as a parent watching a child or other people, you know, never, you know, for Justin to never get a vacation from that. You know, kinda kind of breaks my heart so there's nothing I can do about it. But man if I if I had one wish, you know, well, first of all, he wouldn't. He wouldn't be diabetic, but say How

Scott Benner 34:27
nice is that? Justin? She didn't wish for money. That's really cool.

Courtney 34:33
He knows me I would never wish for money to go

Scott Benner 34:38
I thought you're gonna say if I had one wish. What I do is I'd wish for three more wishes then my first wish would be that no matter what happened, I couldn't die before I made my second wish and my second wish had to come true. My second wish would be that I'd have unlimited wishes then my third wish would be for no more diabetes, because that's I have it worked out that way in my mind, Korea in case I ever meet a genie that comes out of a bottle. Yeah. I definitely know what I'm going to say because I figured I would get flustered in that moment and just ask for like, a Sunday or something like that, you know?

Courtney 35:08
Yeah, I think Justin knows that would be my, that would be my big wish, because it's just one of those things that even just a break. Gosh, I think it would be wonderful. But now that remind me, how old are your children? My daughter,

Scott Benner 35:23
Arden, who has diabetes is 15. And my son is a sophomore in college, he's going to turn 20 in a couple months.

Unknown Speaker 35:29
Okay, so picture this.

Courtney 35:33
Justin knows what he's supposed to do. And here's the thing, knowing what you're supposed to do, and always doing it, it may not always be the same thing to. And, and I think that's just real life and us being human beings. But imagine, you know, they go off to college, and well, we just happen to be in Minnesota and the college he goes to, is all the way down in Louisiana. And so he goes down there, which, okay, that's not a big deal. You know, like, he was ready, you know, to go and, and that was his path. That was great. But our insurance didn't have any affiliation with anything down in Louisiana. When we dropped him off, their only advice was, if he has any medical needs, he just needs to go to the emergency room. Just, we we had no doctor that we could align with no one that he could go to and it would be partially covered. Nothing.

Scott Benner 36:38
This is gonna be over before it starts. I just want to remind you to check out touched by type one at touched by type one.org. And don't forget to go check out that Contour. Next One blood glucose meter at Contour Next one.com Ford slash juicebox. That's it. Just a reminder. Right back to it. Let's find out what happened to Justin when he went away to college and learned how to be a chef by the way. Ooh, wait, it was that a spoiler? Huh? All right. Well, I don't remember now. So if it is, sorry, Justin's a chef. And if it's not, I should be paying closer attention.

And Justin, that's not that long ago, right. 20 years?

Justin 37:28
Those 90 Yeah. 9899 I guess? No. 98 Yeah. 98.

Courtney 37:35
And I remember us leaving Louisiana. And man, I cried. Not because we were leaving him per se. I was worried because let's be honest, kids are going to have fun, they might go out and you know, have a drink here or there, you know, kind of part of college life. And Gemini, we're not naive to think that he was going to you know, like, eat everything just the way you should and drink the things he should whatever. And we had no backup plan medically other than the emergency room. That that was just heart wrenching.

Scott Benner 38:21
How'd it go? Did you ever have to make an emergency trip to Louisiana from Minnesota?

Justin 38:28
Justin? Well, I went to the emergency room once, but they never came down for an emergency. Okay.

Scott Benner 38:35
Yeah, it wasn't so bad that like you were incapacitated, your mom had to jump on a plane and go back.

Justin 38:40
And I'll be honest, like the the I went into DK a, like my junior year, but it was spurned by like I got food poisoning. And it just Domino affected the whole thing. Right? Yep. kind of deal. And that was pretty rough. But yeah, that was

Scott Benner 38:59
a would you go to college to do. What are you trying to learn while you're there?

Justin 39:03
I'm a I got a Bachelor's in culinary arts. I'm a chef.

Scott Benner 39:07
Nice. You have your own restaurant.

Justin 39:10
I, uh, me and my girlfriend run an awesome underground restaurant in Minneapolis. It's very

Scott Benner 39:15
cool. So always in the same location, or do you pop up? Or how do you handle it?

Justin 39:20
Both. We kind of have a central location and then we do we do pop ups also? Okay.

Scott Benner 39:27
Wow, that's really weird is that? I bet she didn't think that's what he would do. Cory when you were looking at him when he was 10 years old. Hmm.

Courtney 39:34
Well, I didn't though he kept saying that. That's what he wanted to do. And he was he was really, really bright in school, but he was kind of bored. And because I also worked in the school system, I worked with one of his coordinators, and got him an apprenticeship to try culinary. And my thought truthfully was that he would go down. They'd Give him all of the grunt work. And he would realize really what a hard profession it is, and how difficult it is, and he would no way do it. And he went down there. They were really good to him. He got to put rings and desserts when people were proposing to their, you know, girlfriend, you got to do all these really wonderful things. And he loved it. And it became his career.

Scott Benner 40:26
Justin, How good was the chef show on Netflix that came out a couple months ago with Jon Favreau. And those guys,

Justin 40:34
I think it's great. Yeah. That's fun. I mean, what I like about it is like, you know, obviously Jon Favreau is not a chef. But um, but you can tell that when he learns stuff, like he learns it. And I think that's cool. Like, there's a lot of people on TV who like, aren't chefs, and I can tell that they're not chefs. And he, like, his knife skills are pretty good. And he doesn't have it down because he doesn't do it every day. But he cares right after he won. He cares about it. Yeah, yes.

Scott Benner 41:07
It's very interesting. It's more than a, he's not just making food. He's trying to he's trying to attain something. It's like watching someone try to teach themselves chess for their whole life. Like they're never gonna get to be a grandmaster. Right, but they keep trying. It's very, very injury. Yes. I remember, I remember the first day somebody showed me how to hold a knife correctly, like more back in your hand, and, you know, thumb and forefinger up on the blade and that sort of thing. And I was like, Yes. Didn't realize that at all. There we go. And absolute. So it's just little things to watch I get right. It's like, it's this guy that made a living, cooking and still does. Next to this guy who just really wishes he could be good at it. And it's like, I don't I found that delightful to watch. I really did.

Justin 41:49
Yeah, it's it's fun. And it's it's weird, like how, I mean, I've gone through, you know, my teens and 20s and whatnot. Like being in kitchens where you're around food constantly. And it's very different from the the young lady, the cake decorator who was on a couple months ago or Ellsberg? Yeah. Kelsey? Yes. Like, she kind of has a, quote unquote, nine to five. And she kind of does the same thing every day. And my days are completely bonkers and different. And it's so hard to like, get my basal rates down. Because of that is because

Scott Benner 42:29
your activity level and when you're being active changes. Hey, how. So this is really like, interesting, because if you spent your time with food when you were young, you're tasting it, too. So how is that? Like? How does that work when you're constantly around food, and sometimes you're not just eating it because you're hungry, you're eating it because you have to

Justin 42:53
the the activity usually cancels out anything your taste.

Scott Benner 43:00
Because you're not having a meal, you're having a couple of bites or a taste or a lick or something like that.

Justin 43:04
I would say if at most, it's usually like a link. It's not even like a full bite. Right?

Scott Benner 43:09
And you're hustling around, and it's hard work cooking. Like, I don't know how much Miguel, how many meals do you make? Do you first of all, you open seven days? And how many meals do you make a day?

Justin 43:18
Actually, we we we are only open, like two weekends a month.

Scott Benner 43:25
Okay.

Justin 43:27
And we do five plus courses? It's kind of fine dining, right? For eight people at a time.

Scott Benner 43:36
So Justin, you cook for 3032 people a month maybe? Or not even like 16 people about

Unknown Speaker 43:43
Yeah, about that.

Scott Benner 43:44
And you're making a living or is you know, living in your mom's basement? And I know I'm not.

Unknown Speaker 43:51
But we I pay

Unknown Speaker 43:52
the bills, right?

Scott Benner 43:55
Like, you better start feeding more people, man, man, but is

Justin 43:59
well, but that's the thing. It's underground. Like, what I'm doing isn't exactly the most onboard thing on the planet.

Scott Benner 44:07
Okay.

Justin 44:08
So I, I can't, and in our food culture here. Like if I were where you're at, I could probably do five days a week, because there's more people and more people probably interested. But here, there's a lot of people who say they're interested. But then when they say, you know, because I don't, I don't basically people go online and they reserve tickets, and then I send them the address the week, the week of the reservation they made that's fun. So that's a little we live in a very sort of Scandinavian society. And that's going to other people's houses is is an odd thing here. No kidding.

Scott Benner 44:49
Just that's really crazy that that works. I hope you scale that one day like and make because it's a really, it's a fun idea. The idea of like, you'll pop up somewhere you don't know where it's gonna be. There's gonna be this this really wonderful, you know, multi course meal that's going to be there and you kind of roll I think that sounds. Is that your idea? Or do you do that from somebody? Or would you? Oh,

Justin 45:09
well, I mean, the kind of underground pop up thing isn't my idea. But I think the method of my menus and things is kind of different because I don't I give out like menu teasers, but I don't like post whole menus, okay. And no menu, no menu gets repeated. That's where no menu item gets repeated. So you said

Scott Benner 45:33
that it's it's culturally odd in that areas just show up somewhere and eat but is it also about the food is are you cooking off culture?

Justin 45:44
Absolutely. I mean, yes, for the most part. Absolutely. And our last our last dinner was kind of Steakhouse themed. I wanted to it was kind of an homage to an idea I had a decade plus ago. But it was it was like steak. It was like steak house food that I wanted to turn on its head, I guess. So there was like a wedge salad had like a mosaic of slow roasted tomatoes and Gorgonzola in a romaine, romaine sherbet in smoked tomatoes and smoked sherry vinegar. And yeah, I mean, it was very on its head in a lot of ways, which I just, it's, it's creative and fun.

Scott Benner 46:29
Yeah, that's really amazing. I, I went to, you know, in high school, I just had technical school took baking for a number of years, and I really enjoyed it. I wasn't good at working in the world at a bakery. It was the getting up early in the morning thing. It just it threw me for a loop. I was like, I'm not starting work at 130 in the morning for the rest of my life. But I enjoy it enough that you know, I cook at home and I am the person who cooks here every day too. So there's an episode of the podcast that went up today that I edited after I made dinner last night like I made dinner, cleaned up from dinner, packed it away, ran upstairs, finished the podcast, but online.

Justin 47:08
See, and like I was talking about my basal rates, like, you know, you talk about stress and adrenaline, like affecting blood sugars. Yeah. I'm like my Friday night dinners are like the first run at the new menu. So like my stress and adrenaline are out there. They blow the Skyway, right? And my bazel rates are miniscule, okay, like they're a third, the third of what they normally are, when you're working like that, when I'm when I'm working. So I have like a, it's literally called Friday, like bazel rate profile. It says Friday, but I can't test that, because I won't have another Friday for two weeks. So I've got one for Saturday, that's a little higher and a little different. Because the nerves of how the food might turn out or might be plated or whatever, like I'm a little more comfortable with it. So they're higher. Yeah, but those are different than like my normal day, right? because they'd be way too low for like a normal day. That's all fun. So it's like, I'm always wrestling. I'm always wrestling with that. Like, we had a we had a dinner a Saturday night in like, late July, where I was playing food again. We have eight people at my dining room. And my girlfriend is I'm plating and she's feeding me m&ms. Because my blood sugar's at like 62 for three hours.

Scott Benner 48:42
She's just pushing m&ms through your lips while you're working.

Justin 48:46
Yes. And like, I couldn't get it. I couldn't get it above 70 for three, four hours, and then when the dinner was done, I crashed I crashed so hard. And I was like, I was just an emotional low mess. Because I was stressed out whatever. And, like, I facetimed my mom, like laughing and crying. Just because I was like my mom has to see how ridiculous everything is right now. And my mom's just like, staring at me in the in the phone going. Eat some food. Right? Eat some food, like being mom and I'm like just looking. I'm eating food. Just, you know, I was like, I was like having like a meltdown. But I was like, I was like 40

Scott Benner 49:29
Yeah, I think that while you were working the adrenaline was probably the only thing keeping your blood sugar at 70

Justin 49:36
probably Yeah, it was it was crazy. I mean, everything about it was was trying to try to knock me down. It was it was crazy, but but I can't I can't bazel test it. Because how do you bazel test something twice a month,

Scott Benner 49:49
right? How was the food though? Oh, it was awesome. Yeah, of course. That's great. Today Justin was taken to the hospital, but the meals were fancy. tastic more 11 Yeah, he seems happy even though he's dizzy. And

Justin 50:06
when it's fun because like, I have like my, my, my sugars now like, show up on my watch and whatever. And every once in a while we'll have a type one or parents of a type one, they come to a dinner and I'll be like, where are they at right now? Or where are you at right now? And I'll be like, I'm here. And they'll be like, Oh my god, you're doing all this work. And you're 102. And I'm like, yeah, this is great.

Scott Benner 50:31
And, and not to, but we're coming up on the end a little bit. I do want to understand the podcast has been helpful to you, because you're you're in you mentioned the the private discussion group on Facebook, which, by the way, is astounds me every day. 1700 people now, I watched a woman ask a question. This morning, I read through everybody's responses, and I just responded, I'm, like, super proud of everybody, this was a really amazing thread, the way like, not one misstep in the, in the, in the responses, like the, you know, it's sometimes online, you're like, you know, somebody will respond. And like three of the people you're thinking like, oh, they're just guessing, they don't know what they're talking about. Even this was like watching four or five brains come in, who shared a thought process. And they were thinking of different ideas and adding on valuable ways. And by the time the threads over the original poster, completely understood was comfortable, they literally fixed her problem. And I'm really proud of the people who listen to this podcast to go in there and do that. Not that you have to or anything like that. But there are people who are motivated to do it. And they they speak in the language of the podcast, and you alluded to that earlier, like, having like direction for the tools. Totally, I was hoping you could tell me a little bit about how that's changed things for you.

Justin 51:47
Well, it's, it's things I guess it's it's, well, a it was, you know, moving the the High Line down to 120. Like, I didn't, I didn't nudge mine down. Like, I think I listened to the two podcasts. And it was at 120. Like,

Scott Benner 52:06
from where where did it start?

Justin 52:08
Um, I, it was probably at at 180 or 200. Just because I know, like 220 is ridiculous. But um, but it was it was more of

Unknown Speaker 52:23
Don't

Justin 52:27
let me think it was the it was the old school idea that you're always going to get high after a meal.

Scott Benner 52:36
Like an unavoidable.

Justin 52:38
What like that, that I just thought was, that's, that's all. That's what everyone's always said, no one's ever said. No, you can make it not do that. You know what I mean? Even though in my brain in my brain, like the first time I got a CGM and a pump, I was like, Oh, I can figure this out. So it flatlines right. Like, that was the first thing in my brain. But then I was like, I can't figure that out. And I can't figure it out and be I don't have the time to figure it out.

Scott Benner 53:07
Well, I think that I do say that a lot. Yes. And I really think that a great deal of the credit to me figuring this out, is that I had the time to I sure it's important, you know,

Justin 53:18
but yeah, I was I was always like, oh, if I eat a carb, I can figure out exactly how much my blood sugar will go up. So then I can, I should be able to then reverse engineer that to know exactly how much insulin I need. And you know, that that's all what's going through my brain when I first get this stuff, but then it's it's still, you know, big spikes and this that and the other. And I guess I never looked at it kind of as going on the offensive versus being on the defensive.

Scott Benner 53:49
That's something it's just simple little ideas that that that paint a picture I have. Who did I it's funny name just like was it Frazier who Dolly knock for knockout flat core, you know, who did Muhammad Ali lay right out on his face? It was Joe Frazier.

Unknown Speaker 54:05
I think it's Joe Frazier. Yeah.

Scott Benner 54:07
So I use that old, I use that really famous photo when I speak in public. And I just put it up and I'm like, Look, you got to punch first, like you can't lay back. You know, you want to be the one dictating the pace, which is a very sports oriented theme. But you know, there's an idea of you don't show up on the field and like try to stop somebody from scoring, you show up on the field and try to run them over. And sure, again, at least then the pace is yours. What happens next is based off of what you did, and you're not blindly, like not just defending but defending against something you don't really understand what it is or what it's about to do. You know, it's like, you know,

Unknown Speaker 54:44
I think it's good, but even Scott,

Courtney 54:48
you having this podcast is such a blessing to so many people. I mean, think of how many people you affect in and People You don't even know of, you know, that are affected by by people who listen and follow you and, and so on that impact that you are having.

It has a ripple effect, you know,

far beyond what, what you can even imagine if one day makes a difference in someone's life. Yeah.

Scott Benner 55:26
Huge. No, I know I can do that too much, Cory, because it makes me sad like that sad. I get like weepy. And hearing someone's mom say it just and it almost made me cry. Like when people when people come on, and like, Yo, man, the podcast helped me I'm like, right on, that's great. But I was like, now you're here. And I'm thinking of you as a little kid. And she's saying that and I'm like, Am I gonna cry on this podcast? Probably not. I'm gonna hold it together. But I really those are very kind words. And I really appreciate it. Cory, I have, intellectually, I understand what you said. And I try really hard not to think about it. I try to keep the podcast me talking to somebody else. And just imagine,

Courtney 56:04
you have to do the day to day thing. Yeah. But Justin will tell you, I'm very, I'm definitely an optimist, and always looking for what's within our control. There's things that you can't control, of course, but within that, what can you control. And so any bit of information that you can get, if you have other people that are kind hearted, and can help, you know, problem solve, all those kinds of voices, and all those kinds of pieces of input, just help people be more successful. And we didn't, you know, we just the bigger the community, and the more knowledge that's available, the more people are helped. And I think that's, that's the bottom line.

Scott Benner 56:57
At the end of the day. It's very cool. I was in Kansas City this past weekend speaking. And I did three sessions, I did a one session that was about just thinking differently than maybe you had been, you know, talk to about this so far. The second session was like a breakdown of the ideas, the podcast and the tools and sort of how to put them into practice. And then the third session, I did a q&a. And people just ask kind of real life questions from their, you know, they're their management. But when I was done, I went into a fourth session where I spoke to the kids that were there like teens. And, you know, I sat them, I get in, stand up on the stage, I've like, brought everybody into a couple of tables, and we sat together in a quiet room, you know, and I just told them, I'm like, you know, look, I, I realized that up until now, things are not going well for you, and everybody who you have to trust seems like they don't have the answer. And that's making you feel like they don't know. So my concern was that I was going to say something new to your parents today. They were going to come home excited. And then you were going to look at them ago. There's that old man again, trying to get me to do something, but he doesn't know what he's talking about, you know. So I said, I'm going to explain to you what I told them. And that was my goal for the talk. But midway through, kids had 12 1317 year old kids had paper out, they were taking notes. Like they were writing stuff down. They wanted, they wanted better for themselves. They just didn't believe it existed. And, and I think I made them believe that it existed. And I just felt very good about that when I left like the whole day was terrific, but like talking to those kids made me feel good.

Courtney 58:32
Yeah, that was like the icing on the

Scott Benner 58:34
cake. For sure. I did it made the flight home easier as well. But I'm exhausted and now sitting on the plane guy.

Courtney 58:43
Yeah, but you know, when you're mentally and physically exhausted, because you've done good things. That's a great feeling.

Scott Benner 58:50
It was I had a wonderful weekend, actually. And it was very fulfilling and, and I think I impacted people which to me is great, because I feel like if I move around the country in enough places and talk about stuff like this, then those people like you said Korea will start talking to each other. And then one day, I can stop doing this podcast. You know, when when, when people's lives don't start, you know, with expectations that are not great and no tools and things like that, that that really is illegal.

Courtney 59:18
So well. imperfect information is so powerful. Really,

Unknown Speaker 59:23
where do you listen to the show ever?

Unknown Speaker 59:25
I do not.

Scott Benner 59:28
Listen, we need to downloads for each part like a person is a download. Okay. never listened to Yeah.

Justin 59:35
Yeah, no, we definitely I'm, I think I'm wait. I'm way ahead of where she's at in the listening situation.

Scott Benner 59:42
That's really nice. Has it helped you talk to him by any chance?

Courtney 59:46
Um, I don't know, Justin. I, I feel. I mean, we've always been pretty close. And I feel like we can talk about anything and I think he knows at the end of the day, whatever it is. We always, always have his back and always want, I think just generally for him to be happy and healthy, and to be able to, you know, really pursue his dreams, whatever that is. And we say that for all of our kids, yeah. And we're fortunate because they're all grown. And honestly, we like we love hanging out with them.

Scott Benner 1:00:26
You know, it's a good time. Oh, I'm glad to hear that I, my kids might talk to me when I get older. Were you Corey, were you keeping up with management? Or is the podcast kind of moved you into this? Where the space is now?

Courtney 1:00:39
You mean, as far as

Scott Benner 1:00:41
I know, diabetes in general? Like, were you aware of everything that was going on? Or has a lot of

Courtney 1:00:47
it? You know, yeah, I kind of keep on top of things. Not as much as Justin does at this particular point. Because I, I, I have other pursuits that I follow as well. And so I, yeah, I'm always driven. I'm kind of a goal setter. And I always am setting new goals for myself and things that I'm doing. So just they'll tell, you know, for a while I was running quite a bit. And so like listening to your podcast with the gal who ran the marathon was interesting. Yeah, it was. So you know, just listening to those kinds of things, just because I've run a few marathons and done that kind of thing. And then I decided I wanted to try and get my black belt when I was 16 in karate, and so I've been working pretty diligently and I did that last December.

Justin 1:01:48
Okay, let me let me interrupt. Go ahead, Mike. She broke her frickin toe, in the middle of one of the tests for the black belt. And she had the instructor straighten the toe out, and she finished the test.

Scott Benner 1:02:05
That's amazing.

Courtney 1:02:07
I couldn't do. I couldn't do my kicks, it was sticking out. So it was my little toe. But it was sticking straight out to the side. So I call over to him because I tried to keep going and I couldn't. And Mike I broke my toe. And it comes over with the tape. And he thinks I just broke it. He doesn't realize that it's

Scott Benner 1:02:24
yaks.

Courtney 1:02:25
Yeah. And so he looks up at me, I'm like, just do it. Because I, I was not going to say I kind of second quitting. So I'm like, I, I'm not failing on my third and final screening towards black belt. So he quickly pulled it, taped it together. And I was about a third into my test. So I still had two thirds left. But

Scott Benner 1:02:48
yeah, how did it hurt? pull it straight?

Courtney 1:02:52
Well, you know, it was pretty quick. And I was kind of on adrenaline. So I think I just did a quick Yelp is what everyone tells me, right? I was so focused on, hurry up. And let me keep going because I didn't want to fail. And it's so hard. It's like two plus hours, as hard as you can go without any breaks. And like I said, you have to do three of those in order to then test for your black belt. And it was my third and final one. And if I would have failed, it would have been fine. I just would have had to start over again in January and do those three again. Yep. And I did not want to do that.

Scott Benner 1:03:32
So he'll too.

Courtney 1:03:34
Oh, yeah, it was. Yeah, it was not great. But I still had all of my pad kicks and my fighting yet to do on my exam. Gotcha. Yeah.

Scott Benner 1:03:45
I guess Justin doesn't feel like he can quit anything.

Justin 1:03:51
No pressure. Exactly.

Unknown Speaker 1:03:52
No pressure. Well, I want to thank you guys. Yeah. Do it your back.

Scott Benner 1:03:56
Yeah. No, I appreciate this a lot. I this was really cool. This was Justin's idea to try to get three people on at the same time. And I was all worried about the sound and everything. And I think this went really well. So I I really appreciate this. And it was really cool to have the insight of, of two different people, you know, seeing a situation from two different angles. Hold on one second. My daughter is texting me.

Unknown Speaker 1:04:20
lunchtime, lunchtime. Hold on a second. I changed her. We changed something about her ratio. So I have to redo the math in my head real quick.

Scott Benner 1:04:35
There. I did the math. That was quick.

Courtney 1:04:38
This is real life.

Scott Benner 1:04:40
Yeah, we were making we were making adjustments to some of her her settings yesterday and so this is the first day of the have the new settings and and she was she was like I don't know how much it's supposed to do. And I was like, okay, so I just popped the number over. I'm waiting to see if she still sees it but her blood Sugar is Arden's blood sugar is 72 and she's gone to lunch now. Yeah, she's been nice. She's been right in that like 85 ish range.

Courtney 1:05:14
The How long have you had like a way to track her blood sugars. So you knew like when she was at school and

Scott Benner 1:05:21
how long it is since g4 with the share. So now when g4 first came out, it came out with a cradle. And so it was a nighttime thing. So she'd go to bed slide the g4 into a cradle, it would dock in the cradle and then that would somehow I forget how it would give it like access to the internet and then you had to share. But without that many years ago. Oh my gosh. Cory, you know, make me Google. I'm not sure. Second, hold on now. Damn it, we'll figure it out. I'm gonna let you know what I'll do. And this is kind of meta and creepy. I'm gonna go to my own website and see when because I remember reason why

Courtney 1:06:03
I'm asking is because you've had this timeframe where you've been able to track Yeah, I've had this very short window when I've been able to track all the rest of Justin's life. It's just one blind. Yeah.

Scott Benner 1:06:16
Oh, no, I had that before. By the way. I had the Wow. Yeah, I had the oh my gosh, like staring at or constantly thinking, you know, is she hi she low? Okay, I wrote a blog article on November 9 2012. That was called first impressions dexcom Platinum g4 night so I guess about that long that she was diagnosed in 2007. So eight 910 i saw i went five years without without it as well. Or not great at it. By the way. A one c wise. I'm even looking now. Oh my gosh, look at this. I haven't looked this in a long time. Like there's a picture here. of her blood sugar being like 250 overnight and but a pretty stable line. And I'm probably like thinking back then. Whoo.

Unknown Speaker 1:07:04
Look at look at

Courtney 1:07:06
you are right. They did not want Justin day one C to get too low. Right? They absolutely didn't. And we would had some times where he would play hockey when he was little. He play hockey. And then we'd have to feed him a lot before we go to bed and he would wake up with the worst blood sugar in the middle of the night. Yeah. Screaming Yeah, I am. We cannot feed them enough.

Scott Benner 1:07:30
I just helped a family whose son plays ice hockey. And he's doing really well now. But we had to like it was tough. Like we had to throw a lot of the a lot of the ideas in the podcast needed to get thrown at it. And then you really had to look at it, watch it happen, figure it out. Because you know that this gentleman and then there's a fall off and there's so much exertion and then there's, you know, super hungry after the hockey game. And there's a lot of things going on there. It's a big mixed bag, for sure made me happy. My kid didn't play ice hockey when I was doing to be perfectly honest. But we figured it out. I mean, I think that's the important part is that it was in the end, when you look back at what happened to those people. It was timing and amount. They were just, they were using their insolent the wrong time. They're always chasing loads and chasing highs instead of being in front of them and not defending and blah, blah, blah, all that other stuff.

Courtney 1:08:25
We Yeah,

Scott Benner 1:08:26
yeah, I really I'm having a great time. But I have to go on. I'm out of time on this side. So I just really wanted to say thank you again, and I appreciate this. And Justin, congratulations on having a really unique business that that's really cool.

Justin 1:08:41
Yeah, totally at it. Anyone who's out there listening, come find us on the interwebs How did they first joke? It's a scared so mn comm scared so like music? s ch er Xeo and then calm and we've got a Facebook page and instagram and twitter if you're into Twitter, and yeah, it's pretty cool. I'm working on I'm working on Joe marcher. What was that?

Unknown Speaker 1:09:11
What was that URL again? One more time.

Justin 1:09:14
Oh, Sc, H, er, ZO, yo, and n.com.

Scott Benner 1:09:26
So the man can find you. All right, I'll figure it out.

Justin 1:09:32
Yeah, I my my girlfriend gets mad at me. She's like, why do you have to pick such up? Something people can't pronounce. I'm like, it's scared. So it's Italian. Like, she's like, yeah, the only people who know that are people who are into music. I'm like, fair enough. Okay.

Scott Benner 1:09:49
All right, Justin, I am going to ask you to email me that link because I don't seem to be able to get it right. But okay, but seriously, send it to me. I'd love to put it in the show notes and help people find you. Okay. Yeah, cool. Thank you. Absolutely. Cory. Justin, I hope you have a great day. Thank you very much for doing this.

Justin 1:10:06
Awesome. Thanks, Scott.

Courtney 1:10:07
Take care guys. Thank you for doing what you do. Oh,

Scott Benner 1:10:09
you're very kind. I appreciate it. Thank you. Huge thanks to Justin Cory for coming on the show and sharing their experience with Type One Diabetes. And thanks to the Contour Next One blood glucose meter and touched by type one for sponsoring the show. There are links in the show notes of your podcast player or at Juicebox podcast.com. If you'd like to find out more about the sponsors

support the sponsors

more juicebox

#1632 Bolus 4 - Cinnamon Toast Crunch

#1631 Glucose Guardians

#1630 Tilt-A-Whirl

#1629 Jump Kick

#1628 A River in Egypt - Part 2

#1626 A River in Egypt - Part 1

#1625 Three the Hard Way

#1624 Nappetizer

#1623 Camp and Canine Victory

#1622 Thick Thighs Save Lives - Part 2

#1620 Thick Thighs Save Lives - Part 1

#1619 Bolus 4 Oatmeal

#1618 T1Daredevil

#1617 Fifty Countries with Diabetes

#1616 Somebody’s Always Peeing - Part 2

#1614 Somebody’s Always Peeing - Part 1

#1613 Bolus 4 - Intro and Doritos

#1612 Chemo Caused Type One

#1611 Boxer Briefs

#1610 The Ex

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

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Scott Benner 7/23/20 Scott Benner 7/23/20

#360 Defining Diabetes: Fat and Protein Rise

Scott and Jenny Smith define diabetes terms

Defining Diabetes: Fat and Protein Rise. Scott and Jenny Smith, CDE define the terms that are at the center of your type 1 diabetes care.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
This episode of defining diabetes is brought to you by Omni pod, the tubeless insulin pump, and dexcom, makers of the dexcom g six continuous glucose monitor. Find out more at my Omni pod.com Ford slash juice box and dexcom.com Ford slash juice box on the pod we'll even send you a free no obligation demo. In this episode of defining diabetes, Jenny Smith and I will be defining fat and protein rise. Now you know Jenny, she's an all the pro tip episodes and defining diabetes and ask Scott and Jenny. She's also a person who's been living with Type One Diabetes for over 30 years. Jenny holds a bachelor's degree in human nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian, a certified diabetes educator and a certified trainer on most makes and models of insulin pumps, and continuous glucose monitoring systems. Jenny services are for hire, check her out at integrated diabetes.com.

We're gonna get started in just a moment. But before we do, please remember that nothing you hear on the Juicebox Podcast should be considered advice medical more. Otherwise, please always consult a physician before making any changes to your health care plan. or becoming bold with insulin.

Do you have an absolutely spectacular endocrinologist certified diabetes educator diabetes, nutritionist if you know anybody who's helping you with type one, you have one like that, that you'd love to share with other people? Or are you looking for one that fits that description? Check out juicebox docs.com. If you do JUEBOXD OCS, it's a place where I'm collecting an amazing list of fantastic support for people with type one diabetes, it's absolutely free. If you have somebody great to add, check it out. If you're looking for somebody, check it out.

Let's do protein rise. Because as you know, and these are separate episodes, so you would have heard me say on one of these other define diabetes, but I got the chance to wear a glucose monitor for 10 days. And I ate pizza. And hours later, my blood sugar started to go back up again. I was like oh my god, this is the thing. You could see it. It's not as bad as if you have diabetes nowhere near and I guess for context what it meant what I meant by that was I ate pizza. I was in like that it was at the end of the day. So my blood sugar was more like 95 or I'd been snack. I was listening. I made the pizza from scratch. So you know there might have been some pepperoni and cheese going in. And maybe I was stepping in the sauce along the way while I was working. So I had some food going. I was snacking a little bit made the pizza I ate the pizza. About eight o'clock at night I had two slices of homemade pizzas. So you know, basic ingredients, not giant slices. And it midnight, my blood sugar tried to go off. And I was like what sorcery is this? You know and it and I'm texting Jenny the next day. I'm like, I gotta fat and protein rise yesterday was the weirdest text our text while By the way, Jenny and I will do an episode at some point that just is me talking about wearing a glucose monitor because it's frying my mind. But But anyway, a protein rice, can we say fat and protein rice here? Do you think it's worth just describing them that way together?

Jennifer Smith, CDE 4:11
I think they're both.

They're both food specific. They both happen or start to happen in about the same timeframe in the aftermath of a meal. They both have a little bit of a different impact and a little bit of a different strategy for managing them or preventing them really. But yeah, I think they they go Okay,

Scott Benner 4:32
so we're really good. This is going to be short. We're really just going to define it here because Jenny and I have already done what I think is an exceptional pro tip episode about fat and protein rise. But for those of you who are newer to diabetes and are hearing people say Oh, that looks like protein to me. And that doesn't make any sense to you because your endo told you that protein doesn't have carbs and it does your car. Yeah, capture carbs, you'll be fine. It's not the case. So like I said deep dive in the pro tip episode, but for defining purposes, when you hear someone say that looks like a protein rise, or a fat rise, or a fat and protein rise, Jenny's gonna explain to you what it is right now, because she's better at this than I am.

Jennifer Smith, CDE 5:10
Yay. So protein and fat do have impact on blood sugar, it all is relative, essentially, to portion and sometimes the content of what you're eating at a mealtime, right. So protein and fat rise, usually, you're going to see it started about the same time in the aftermath of a meal sometime between about two to three hours after the meal, sometimes a little bit later. Like your example with the pizza started a little bit later, like the four hour kind of mark, probably because it was a little bit both of protein and fat. Yep, kind of happening, right. But protein typically will raise blood sugar into scenario is one, you've had a really large amount of protein more than the typical three to four ounce, you know, portion at a meal time, or you've eaten a really low, almost no carb containing meal. And so then what ends up happening is the body breaks down protein, in both scenarios, into Google's starts to happen hour and a half to two hours after the meal, you get this like slight rise that happens, if you don't compensate for some of the protein at the end of the meal. With insulin in one way or another, you're going to get a rise, and then you're going to end up correcting to get it back down.

Scott Benner 6:22
And so if you're looking for a very simple way to wrap your head around that concept, you know, when you see somebody market something that's pure sugar, and they say it's fat free. There, and technically they're right, there's no fat in the sugar, and then you eat the sugar and your body goes, What should I do with the sugar? Hmm, you know, don't turn it into fat. So, technically, you're right, there was no fat in it when you ate it, but it all became fat afterwards. So similarly, you eat this protein, and there are no carbs in it. But then your body begins to break the protein down, and all of a sudden, your blood sugar starts going up. And for most people, it makes zero sense because you'll think I ate like zero carbs at my last meal. This doesn't make any sense. But it does. And it's real. And it's always going to happen. It's not, it's not not going to happen. So when I look at Arden's food. And I'll be like, oh, there's, you know, I don't know, a roll. And I always throw in. I don't know, I don't want to give people a number because what I do is completely random. But when I see some meat on

Jennifer Smith, CDE 7:30
random for artists, right, right for art,

Scott Benner 7:34
yeah, six or seven carbs, I add for for the protein if there's cheese involved, or a lot of butter or something like that. And sometimes I go to 10. But, you know, there it is, it's going to happen now, like Johnny said, but pizza, and this will be explained in the pro tip episode. But there's the cheese in the pizza slows down your digestion, which pushed basically, for me pushed off the digestion of the crust, way out into the future. Because as a person without diabetes, I don't think I was getting much of a rise out of the protein or the fat I was, I just my body didn't, quote unquote, get to the dough until a significant time later. So that's what a fat rise or a protein rise is. If you really want to understand it, Jenny did an amazing job of explaining it. And I pretend that I knew what she was talking about in that episode. So I'll put the episode number at the end so people know it. But it's it's game changing. There's also a couple episodes around keto eating, or low carb eating that that go deep into this idea as well.

Jennifer Smith, CDE 8:44
Yeah, the person who had on for the keto was very, very, they were very good. Well explained,

Scott Benner 8:49
oh my god, she's going to just be giddy when she hears you say that just so you know. She's, I will get a note at some point. So I'm talking to you in the future. Now, I'm gonna get a text that said, Jenny just said I did a really good job of my bike months from now and I'll be like, What did she

Jennifer Smith, CDE 9:07
was great. It was it was good.

Scott Benner 9:09
She really understands it now in a different way. To learn more about how fat and protein can affect your blood sugar, check out Episode 263 diabetes, pro tip, fat and protein. It's with me and Jenny. It's a much longer description of what we talked about here. Friends, it's time to get yourself a free, no obligation demo of the Omni pod sent over to the house. Okay, let's talk about the Omni pod tubeless insulin pump, besides being absolutely spectacular, is the insulin pump that my daughter who was about to turn 16 has been wearing every day since she was four years old. That's a long time. Every day on the pod comes through exactly the way we expect it to and in a myriad of ways By being unobtrusive by being tubeless by helping us with extended boluses Temp Basal rates and just being what's the word I want really just it's there, it's solid. You don't I mean, like it does, it does what I think it's going to do when it's going to do it, I get what I expect. And what I expect is a quality insulin pump. That gives me the delivery and the wearability for my daughter that we need. And that means that she can stay attached to her insulin, when she's playing sports without being obtrusive, while she's taking a shower, sleeping, running around in the backyard, jumping on the trampoline, riding a bike, swimming, all of the things that your body still needs insulin for, you know, when you hear people saying, Oh, I disconnect for that? Well, they don't have insulin during that time. And that's very likely gonna cause a high blood sugar. Now, I understand that two pumps need to be disconnected sometimes. But the Omni pod never needs to be disconnected. It's tubeless. Wonderful. And you don't have to take my word for it. Because on the pod will be thrilled, happy, elated, delighted to send you a free, no obligation demo that you can try on yourself. Find out if what I just said is true. But you notice, but still try my on the pod.com Ford slash juice box. Check it out, get the demo, decide what you want to do. If you want to keep going with Omni pod, it'll be easy. And if you don't, no harm, no foul. You were just trying. That's why they call it no obligation. Now I have an obligation to tell you about the dexcom g six continuous glucose monitor. This application is both business oriented because their advertisers and moral because I think everyone should know about the dexcom g six continuous glucose monitor. Here's why. I'm going to use an example from this morning. Arden wakes up her blood sugar is 106 I see it on her Dexcom nice and steady. I hear her moving around upstairs. No big deal. She's getting her facewash getting dressed getting ready to actually go out right now. All of a sudden her blood sugar diagnol up starts moving up. 106 turns into 115 turns into 118 all of a sudden 125 Well,

we bolus right we're trying to stop that rise before it happens. Arden's trying to go out she's trying to do things she needs to eat. She doesn't need to walk into this day. 5060 7080 points higher than she needs to. But imagine had she woken up and tested her blood sugar with a meter boom, she would have saw 106 and thought, Hey, I'm doing great. And then she never would have seen anything that happened next. And then a half an hour 40 minutes later when she's sitting down to eat and tests again, you know in a world without a CGM. Who knows what she is to 25 now suddenly, the first meal is in jeopardy. It puts the rest of the day in question. You're looking at roller coaster going up and down up and down or skipping a meal. Instead, beep beep Arden's blood sugar hits 120 she gets a little insulin right back to where we need to be ready for that meal ready for the day. That uniquely happened. Because Arden has a dexcom g six continuous glucose monitor. Now that's just one example. Imagine all of the other ways that technology can be used for you. Imagine that the way I found out about it wasn't because I was bugging Arden while she was getting dressed. It's because it popped up on my iPhone. Because the dexcom g six has Sharon follow. And that works on Android and iPhone. So Arden CGM told her app or app, put it up in the cloud came back down on my phone. And just like that, we averted a high blood sugar, a burden a problem at a meal. save the day Dexcom g six is gonna save more than one day for you. That's for certain. Find out how you can get a dexcom@dexcom.com forward slash juice box. There are links to Dexcom Omni pod and the other sponsors at Juicebox podcast.com. If you can't remember them, they're also right there. in the show notes of your podcast player, you can click on them right there, like click Like with your finger. But very much appreciate when you support the sponsors because it supports the podcast, whether it's on the pod Dexcom the Contour Next One blood glucose meter or touched by type one. When you check out the links. You're telling those sponsors. I listen to the Juicebox Podcast I heard about you there may keep sponsoring you keep getting the podcast for free. Seems like a good deal.

Unknown Speaker 14:49
All right, a little

Scott Benner 14:50
bit of music, and we're out of here. Do I have any announcements here? Maybe one Hold tight. You can find the rest of the defining diabetes series as well as ask Scott Jenny and the diabetes pro tip episodes at diabetes pro tip comm you can find them too at Juicebox podcast.com. But, you know diabetes pro tips pretty easy to understand notice after the P, so just the P no si p a.com diabetes pro tip.com. Also, if you have a great doctor or need one, for type one diabetes, check out juicebox Doc's calm, do cs juicebox Doc's calm and ever growing list of Type One Diabetes health care professionals that listeners of the podcast have recommended. Let me give you a couple of examples. For instance, right there in Australia, Rachel Baker, Rn and CDE he does some amazing work. How about up in Canada? Dr. Jeremy Gilbert over in Ontario, that's Toronto. You understand Toronto, Ontario, right? Like Canada does their places weird? I mean, compared to how we do it? How about Melissa and tonic? in Fairfax, Virginia alfonzo Armstead, Nashville, Tennessee, and many, many, many more. And people put in effort when they send in their doctors to give real examples of why, for instance, someone wrote in that Elizabeth Harris in Chapel Hill, North Carolina, she said about Elizabeth. I've worked with Dr. Harris for close to a decade and she's taking care of me through many different stages of my diabetes from the disengaged teenager to the engaged but struggling young adult to well controlled debate goes online. Check it out, juice box Doc's calm. It's not a pay service. None of the doctors are paying me to be there. It's just me trying to take your good experiences and putting them in one place to somebody else can get the advantage of what you've learned about your doctor.

support the sponsors

more juicebox

#1632 Bolus 4 - Cinnamon Toast Crunch

#1631 Glucose Guardians

#1630 Tilt-A-Whirl

#1629 Jump Kick

#1628 A River in Egypt - Part 2

#1626 A River in Egypt - Part 1

#1625 Three the Hard Way

#1624 Nappetizer

#1623 Camp and Canine Victory

#1622 Thick Thighs Save Lives - Part 2

#1620 Thick Thighs Save Lives - Part 1

#1619 Bolus 4 Oatmeal

#1618 T1Daredevil

#1617 Fifty Countries with Diabetes

#1616 Somebody’s Always Peeing - Part 2

#1614 Somebody’s Always Peeing - Part 1

#1613 Bolus 4 - Intro and Doritos

#1612 Chemo Caused Type One

#1611 Boxer Briefs

#1610 The Ex

Donate

Scott Benner 7/20/20 Scott Benner 7/20/20

#359 Tap Dancing Dogs

Quick start episodes disscused

Maxine is the mother of a young man living with type 1 diabetes. Scott and Maxine talk about some quick start episodes from the podcast and her son not being sure about insulin pumping.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:04
Hello, everyone, welcome to Episode 359 of Juicebox Podcast. Today's show features Maxine. Maxine is the mother of a child with Type One Diabetes, who came on the show for reasons that weren't 100% clear as we started. The conversation moved into the Quick Start episodes from the podcast where we sort of went through them. I mean, you know me it wasn't exactly like we went through it. Anyway, you'll see, we do Arden's lunch bolus, and then we talk about Maxine's desire for her son to wear an insulin pump. But he didn't want to. We talked about that for a little bit at the very end. And I have an update here from Maxine in my email to let you know how that all went. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. or becoming bold within so today's show is sponsored by touched by type one, and the Contour Next One blood glucose meter. You can find out more at touched by type one.org. For Contour Next one.com forward slash juice box.

For the first couple of minutes of the show, you're going to hear Maxine's tap dancing dogs, but that stops. So don't panic. It won't last long. vaccine. How many times have we tried to do this? Chip? It's not terrible. How did it fall apart? The first time Do you remember? Because I don't.

Maxine 1:47
Um, I thought my kids would be in school and they weren't

Scott Benner 1:51
right. Second time somebody was sick. Both kids were setting kids. There's like this time, you're good.

Maxine 1:57
I'm good. All the kids are in school.

Scott Benner 1:59
I didn't know if you were good. Or if you just gave up and you were just like, Look, we're just gonna do it with sick kids here or something.

Maxine 2:04
I don't know. You would have been like, I hear a lot of kids screaming in the background. This is

Scott Benner 2:08
how many children what I've heard, too, right? They sound like more.

Maxine 2:14
Oh, yeah. It sounds like a zoo in my house. I have two dogs too. So between the wife three kids, but Michael's always, you know, he's at school during the day. But it's it's my ham here.

Unknown Speaker 2:23
I gotcha. All

Scott Benner 2:24
right. So I did my best this morning to figure out why you're on the podcast. And I can't even find our notes together. So

Maxine 2:31
I don't even think there was a reason I just wanted to be on it. Because I love it.

Scott Benner 2:35
That's perfect then. So we've already started Go ahead, introduce yourself, and then we'll get rolling.

Maxine 2:41
All right. My name is Maxine. My sons Michael. He's seven years old. He was diagnosed with Type One Diabetes 15 months ago today.

Scott Benner 2:51
Oh, wow. Really? Yes. Geez. you vote Juba monthly. Like do you know every buddy No,

Maxine 2:58
no, no. But I was like thinking I was like, Oh, I should probably like, think about how long ago he was diagnosed because I know it was a year. And then when I looked at the data, I was like, Oh, yeah, it was August 13. So look at that. I definitely wasn't intentional.

Scott Benner 3:11
That's excellent. Because I was worried for you that you were like a person who like every month on the 13th or like, it's been another month.

Maxine 3:17
Just the first year the first year I was. Yeah, now you're good. Now I'm like, well, it's just another day.

Scott Benner 3:24
doesn't doesn't seem like it's gonna magically disappear. You're gonna wake up from a nightmare or anything like that. You might as well keep going. Right? Yeah. Well, that's cool. So I thought I like it nice for you an easy conversation. So um, when did you start?

Maxine 3:40
And I shut it. I shut the door. So I wonder if they can hear your noise there. Your voice through the headphones?

Unknown Speaker 3:46
Sorry.

Scott Benner 3:51
Are they in the room with you? Or no?

Maxine 3:53
Yeah, they don't leave me alone. Mason, Galena, okay, that's way they relax.

We might have to do a lot of editing.

Scott Benner 4:01
It's gonna say with the charge you for editing this episode. A free podcast turns into pay for play when ladies dogbone Stop talking. Oh my gosh. So anyway, I was gonna say you found the podcast first or the blog? or How did you? How do you and I even are we in the same orbit together?

Maxine 4:23
So I found the podcast. I think my friend Jess, she, um, she's been in contact with you pretty frequently her son Jacob has typed on. Yep. So we're pretty good friends. Actually, we're really good. I feel like we're really good friends. Now. You know, now we have that mutual type one bond. And she told me the one day she was like, you gotta listen to this guy. We used to call you juicebox man. And um, and then that was probably a month into diagnosis, and it totally changed the game changer.

Scott Benner 4:51
So actually, just for clarity, if the kids were there, it would be louder than this.

Unknown Speaker 4:56
Oh, yeah. What was the buzzing?

Maxine 4:58
Oh, that's Michael sugar. He's Hi. Oh, Okay, yeah.

It was like, This is so quiet. You have no idea.

Scott Benner 5:07
Do we without revealing where you live? Do you and I live reasonably near each other?

Maxine 5:11
Oh, yeah, we live in the same state. Okay, I live in South Jersey,

Scott Benner 5:15
just gave it away.

Maxine 5:16
I'm not well, I'm sorry. I'm just kidding. I'm sure I'm sure people might have a more a better idea of where you live.

Scott Benner 5:22
It's so funny. If, if somebody were to be able to find my home from your description of I live in South Jersey, and we're in the same state, I'd be incredibly impressed right before I died is from a strangulation from diabetes podcast, man.

Unknown Speaker 5:39
So you started listening not long ago.

Maxine 5:42
Um, so he was diagnosed in August in September.

Scott Benner 5:46
Okay. And you just right away, you were in Athens and going, how did you know just that quick? Did you meet her online,

Maxine 5:52
um, I went to X ray school with a girl who just so she's a mutual friend. And she reached out to me when I posted like Michael had diabetes, she was like, you gotta, you got to reach out to my friend. She's, you know, she's wonderful. She's so like, uh, you know, world knowledge. So I did, and I'm telling you, she's been a lifesaver, to she's like, my go to person. Um, besides you.

She's my everyday go to person I hear you.

Scott Benner 6:22
That's, first of all, I want to give you a lot of credit. Because that's something that happens frequently, where someone's diagnosed, and someone else steps in and says, Hey, I know a person you should reach out to, and then people don't ever do that. I, I swear to you, I get six emails a year from friends were like, hey, somebody I work with, their kid was just diagnosed, or they were just diagnosed. And would it be okay, if they contacted you? And I'm like, Yeah, sure. You can give them my phone number or something. Let them text me. And you never hear from them. And then so I'll like circle back around. And I'll be like, hey, they must be doing great. They're like, Oh, no, they're they're struggling greatly. I'm like, well, they haven't reached out, remind them that it's okay, that I'm okay with it. I just people can't bring themselves to do it. It's interesting.

Maxine 7:03
Yeah. And especially I think with something like this, like, I feel like I learned so much more from other parents. Yeah. And even you know, social media, then I would then I've learned at the end of which I'm not knocking them, you know, it's just when you live with it. 24. Seven, it's, you know, totally different.

Scott Benner 7:22
You need more information than just a few minutes every couple of months. And let's be careful not to give just too much credit here. Because anything she knows, she probably knows for me anyway. So all the all the credit should funnel back to me.

Maxine 7:33
She's pretty amazing, though. I will say, I feel like she's the female version of Yo,

Scott Benner 7:37
what's up? Let her get a microphone, then we'll see how it goes. Not just this, because this podcast has no real ending. I could meander. I hope nobody turns out because of that, I still think it's gonna be. But No, I'm kidding. It just is terrific. And I think it's amazing that you guys Connect. And I think more people out there should be doing that.

Unknown Speaker 7:56
I agree. I have to say,

Scott Benner 7:58
Did you did you go into the the private Facebook group that I set up? And and that's having a similar effect, I'm noticing,

Unknown Speaker 8:07
oh, yeah, just

Scott Benner 8:09
like minded people, like getting together sort of, you know, saying the same things to each other, talking to each other in the same way as I was really, I'm really impressed by it. Like I, someone asked me at some point, you know, how come you don't have a place that's more private, where we can all talk? And I was just like, yeah, Facebook is not my jam, really. And I don't want to be an admin of a Facebook group, because that sounds like a horror. Yeah. But people kept like saying, Please, please. And I'm like, Alright, let's say set it up. There's like 1600 people in there. Now. It's only been up for a few weeks. And it's amazing watching them talk to each other.

Maxine 8:47
Because I think what's so great about it is the people that are in there, they want to, you know, they want to take as best care of themselves and their children as possible. Yeah. Where I think a lot of the other groups like some people are in there, you know, they're, they're kind of like degrading other parents, or, like, there's not that much like their support. But like, here, it's just different. Like, it's so much more positive.

Scott Benner 9:11
Yeah, I see it on line two, like there's, everybody's in a different phase, right. And sometimes people are like, well, if I can put them down, maybe I can feel better about myself. Like that's not a conscious thought they have but you know, it's a it's a pretty human trait.

Maxine 9:24
Right? Because they almost feel guilty for not, you know, doing so well with managing their diabetes.

Scott Benner 9:31
Yeah, I swear to you, I bumped into four or five people a year who say, I heard the podcast and I really didn't like you. And I was like, well, that's hurtful. Did you have to email me? Like, it's like, it's like, I'm like, I'm already married. I don't need to know the person telling me what I'm not doing right. Like, you know, and you know, but then they'll note so go on and I was angry and I didn't like what you were saying and all this stuff. And then I walked away from it and came back a little later. And I figured out maybe I was more angry with myself than I was with you. And I swear to you for those a year nicey nice people who just they found the podcast at the wrong time. I'm sure some people just legitimately don't like me. I don't want to discount that. That's fine.

Maxine 10:13
You know, we were too cuz like, I was never a podcast person ever. Yeah. Like, I don't even know where the app was on my phone. I actually think I may have deleted it. And then, you know, when I was told to listen to it, I was like, Okay, now it's, I mean, I drive an hour to and from work. And that's what I listen

Scott Benner 10:30
to. Oh, that's really nice. I'm sorry if I'm, if I bother you ever, but Well, thank you. I guess if you if I do, you can feel free to write me an email or you told me.

Unknown Speaker 10:40
I promise I will do that. Sure. I appreciate where then, you know, complain

Scott Benner 10:44
to somebody who's giving you something for free. It would be like, if you were at like, one of those big box stores. They were giving out food on the corner and like you want to try this? You know? Sure. Hey, put your mouth ago. I don't like that. You're terrible for giving that to me.

Maxine 10:58
It's almost like a toddler. Right? Like,

Scott Benner 11:01
I don't want to say that. No, I don't feel that way. Please, no, an email me. I'm not calling you a toddler. I just, it's just another listen. It's another response to the diabetes and the information, all that stuff. And maybe it's just they don't like me, that's fine, too. But my point is, is that there's no real reason to tell somebody I got in bed last night and my wife was watching one of the worst television shows that I've ever seen in my life, she appears to love it. At no point was I like thinking to myself, you know, I should just knock off a couple hundred word email to the producers of the show and let them know how bad it is. I just won't watch it. And and it's, it's interesting. So sometimes I think that's not it. Like, there's got to be a different, like more, there's a deeper reason, right? Like, why would anyone spend time complaining to someone about something free that they don't like? Like, just don't listen to it anyway?

Unknown Speaker 11:53
Yeah, right.

Scott Benner 11:54
Yeah, I don't get it. And so that it's fascinating to me, I also don't have enough time to delve into it. And I'm not a psychology major. So I don't really understand it in any particular way. But anyway, I appreciate all the nice people out there who don't write. That's, those are the ones I appreciate the most, the ones who listen, and don't write me to say bad things. Like that's perfect. You don't have to leave a nice review. But it's just I don't know, Maxine, like, you know, if you want to look a little bit into the human part of it, it's tough to pop out of bed in the morning and read a tome from somebody about how much you suck. Yeah, you know, and when you're trying to do something nice. Like, that's really kind of it. Anyway. So you find the podcast, what's the first part? Like? How did you get into it? Are you one of those people that started at the beginning and listen through? Did you jump around? Would you do I

Maxine 12:42
know, I started with like that list that you um, that you recommend? Everyone start with? Oh, cool.

Scott Benner 12:49
You know what? I never say that out loud. Well, you could tell me a little bit about your experience. I'm gonna find that list.

Unknown Speaker 12:58
too. I don't know.

Scott Benner 12:59
I started. You've been trying for a long time to be on this project. Coming up with I don't know, you

Maxine 13:07
know, so let me actually because what's I think, what's the first episode? Is it bold with insulin? So So I think the first episode and not that it was, um, it was interesting, because I think it's just you on that episode. It's not you talking to anybody, it's just you talking about diabetes,

Scott Benner 13:22
there's a number of them in the beginning, where I basically went back and read what I thought were some of my more impactful blog posts and kind of made myself like, like, recall them, like put myself back in that moment when I read them. And then I would record an episode about them. Because I noticed, I didn't notice I knew that these blog posts were an important part of how people who were reading the blog, were moving through management. So I went back and would sprinkle them in. I didn't expect when I started the podcast for the interview stuff to happen. That was all just crazy. Like I was sitting down to record what is now Episode Two, when I somehow got Adam last year to be on the show. Yeah, so

Maxine 14:03
I have recently listened to that one because I start I not to cut you off. No, no, I am. Because now that I've gotten through all like the recent ones, I'm like, Oh, you know what, let me come back to the beginning and see what it was like in the beginning when he started the book. How

Scott Benner 14:14
bad Am I in the beginning?

Maxine 14:16
No, you're not. But it's funny, you can just tell that you were starting out. So it was just kind of like a lot of will try to say

Scott Benner 14:22
even imagine like I had the equipment. I figured out how to like record the sound. I figured out how to like process the file, how to get it on the internet, like how to host it with a podcast company that all took a while actually. And then all the sudden there's a guy with Type One Diabetes on American Idol back when American Idol was still fairly popular. And I just reached out to him and I was like, hey, do you want to come on a podcast about type one diabetes, he right away said Yeah, sure. And I went, huh, okay. It is easy, really know what to do. And so I got him on and I remember him being really delightful. And I put it up as the first episode and it just It's crazy, because I didn't expect to be interviewing people. But then when I started doing what I meant to do, I thought, like, can't sustain this forever, like a podcast can't just be me talking the whole time, you know, constantly Plus, I only have my experience my perspective, like I get to find other people's perspectives and mix them in.

Maxine 15:19
Right, which I think is huge. And I mean, even listening to like, you know, every episode of like everyone's diagnosis story, even though they're so different. They're so alike. And like, it just brings you back every time to those like emotions from like, the day of diagnosis. Yeah,

Scott Benner 15:34
yeah, I maintain that all of our stories are fairly the same. Seriously, yeah.

Maxine 15:38
And I think well, and I think that's what makes it unique in a way where like, we can all

you know, we all feel the same way.

Scott Benner 15:47
Yeah. The details and where you were and who you were with, like, That stuff's different. But mostly, I mean, listen, if we really broke it down, there's probably like, a couple dozen different, like, versions of the story, but they all seem pretty similar. So right. So okay, so back to your point, like, so you found the podcast, and somebody shared with you this list that I put out, and this list is, I'm gonna say carefully curated, but that's probably a lie. But it's a list of episodes that I found, kind of, like, quick walk you through how I think. Yeah, you know, and, and so it's funny the other day, a listener named Jeremy, online, and I've seen him say this once or twice in the past, but he just recently said it. In the way he said it, this last time really kind of hit me. He's like, if you listen to these, like, 10 or so episodes, they put you in Scotts head. Like, you'll know how he thinks about diabetes once you're finished with them. Yeah. And then he goes, and then the other stuff starts to make more sense. And so I thought, Wow, that's cool. Like, I didn't even particularly think about it that deeply. One of the, you know, things about the podcast is that it takes so much effort to put it together, that I'm not left with a ton of time. You know, for the other part of it. Like I think if I had, if I had as much time to market the podcast as I do to make it, I think it would probably reach twice as many people I just, I'm out of time, you know, right. But anyway, I've never said them out loud. So let's go through them together, I guess. Okay. The first one on the list is Episode Four. It's called texting diabetes. Do you remember that one?

Maxine 17:28
I do. I mean, like, I think I remember it now. Just because I just had someone start listening to them. So she just you know, she just told me that. Now she wants to start texting with her daughter instead to kind of eliminate the nurse a little bit,

Scott Benner 17:46
right? It's funny, because to me, if you said to me, Scott, what's texting diabetes about like that episode? I'd say, well, overarching Lee, it's about the idea that text messaging is a great tool for type one diabetes, especially when you're helping someone else. But moreover, it's a story of the moment where I realized how much my fear of being in control was limiting what I was doing. And like and it's, you know, you you're not going to remember it word for word, obviously. But it was there's a moment in that episodes where I just tell a story about Arden being upstairs, and I was too lazy to go to her. So I texted her, like, give yourself some insulin.

Maxine 18:23
Yeah, I remember that now. And

Scott Benner 18:26
then all of a sudden, I was like, Oh, geez, this is it. Like, why does it matter where she is? And it was just a leap, you know? And I really thought about it. I was like, God, it's I'm scared. Like, I'm scared not to be there. And I just don't think that's a good reason to live or to live your life. You know?

Maxine 18:42
No, no. And it's funny, actually, now that you say that, like the past couple nights. twice this week. Michael has texted me he's, um, he shares a room with my other son, and he's on the top bunk. And he was texting me mom. I feel shaky. So I'm like, kind of like, does he feel so low that he doesn't even feel like climbing out of his bed? Yeah, to come tell me that he shaky but I was like, This is great. I mean, he can't fully spell, but he'll talk to text into Siri, and then send it to me. Oh, that's excellent. Yeah. Yeah,

Scott Benner 19:14
I got the 15 year old version of that text the other night. I'm gonna finish it for you. I'm not gonna it's too it would be too much. bleeping. So I'm going to sit on a second. How far back is this? Then we're gonna go to the next episode. Because this is worth it. I'll probably like, right now. I feel like I'll edit out this space. But then when I go to edit it, I'll think

Unknown Speaker 19:37
maybe I won't.

Scott Benner 19:40
Okay, okay. So it was at night that it was a Saturday night, and I passed out. I'm asleep. It's 1230. I get a text from Arden that says my BG says I'm dying. Oh my gosh. 1230 to two minutes later, my disease indicates death is on its way. 1236 My phone is beeping, which means it's trying to tell me to leave the earth 1237 my unworkable pancreas has told me to give up. This next one. I don't know, I don't know where people fall on the use of the Lord's name. So let's just skip that part. And say, dad, my blood sugar is low all in caps. Now at this point, I'm sleeping Just so you know, like, I'm not getting it's not like I'm ignoring her. I'm just not hearing these tags. Right. The next one says, If I told you what the next one says, you might not respect my kid anymore. I don't even know if I beat it out if it would make any sense. But there's I'll read the words I can. Holy Mother. Blank, looking ugly. blank, blank, blank head. I think Brad Pitt is at the door. Oh my god with his brothers do stupid. But just

Unknown Speaker 20:57
her humor.

Scott Benner 20:58
The bad dad joke we call around the house. Brad Pitt does not have a brother named Stu. But if you ever meet somebody go, Hey, have you ever seen Brad Pitt's brother act anything? And when they go who's Brad Pitt's brother goes to, you know, stupid. Anyway, like it's a bad dad trick. Then I get dad. Now it's 1249. But oh, my God started at 1230. Dad, I'm hungry. Now it's 101. So I finally Hold on, which will indicate my BG is low. It starts all over again. That so when I wake up, I see these. But you may ask why is Arden texting because I don't know what you want to do. Dad like and bah bah, bah. So finally, I'm like, I wake up, I read all these. I don't understand the timing of them. You know what I mean? Like, I figured they just started coming. And I woke up. And I get out of bed and I walk in a room. I'm like, what's going on? And she's like, Um, hello. I was like, why don't you like, do something because I don't know, I just thought maybe you were up and you'd want to know what to do and like, but this now I'm looking like this has been for 45 minutes. She was actually I started to get low. And then it went back up again. So I thought, yeah, and then I went back to talking to my friend. She's facetiming with their friends, you know, like, on Saturday night, and she doesn't then I started getting low again. Then I started getting hungry. And I knew that man, I was gonna get lower. So I started texting more. I was like, why did it not mean you got something to eat? And she just was like, I don't know. Just you know, like, can't really tell you. She knows what to do. She could have done any number of things. There's, you know, sugar, multiple different kinds, right in her bedside table. She was not incapacitated. She's just 15 Yeah, yeah. So. And she's got a crazy bad sense of humor. And so she's just messing with me the whole time. It wasn't bad enough that she was in a in a, you know, a dire situation. So she was just using her blood sugar as a way to mess around with me. And you know, so she ate something. And we both went back to bed. I love the sense of humor. Like I love that she can find some humor in it. She's no, she's completely just chill about the whole thing. Like she said to me the other day in a really serious moment. She goes to be honest, most of the time. I don't feel like I have diabetes. That's awesome. And I was like, cool. She's like, sometimes, like some days it's, you know, a little worse than others. And there's more to do and stuff like that. But she's like, yeah, most time, but not really. So that's pretty cool.

Maxine 23:22
So when she was was your phone alarming? Were you sleeping?

Scott Benner 23:26
Oh, yeah. Oh, please. Absolutely.

Maxine 23:28
I know. Because like, I feel like some but like even now though, I'm like, sometimes I like sleep through the alarms, and I set it up. Now we're sugarbeet calls my phone and I have it on like the loudest, you know, ring it can do. And my husband will even be like, get up. Your phone's ringing. Like, what are you doing? I'm like, this is scary sometimes that I slipped through them.

Scott Benner 23:46
Yeah, I have to. I

Maxine 23:47
mean, I still wake up. I mean, it's not like I go, he goes an hour and he's low. But I'm still like, Oh my gosh,

Scott Benner 23:53
I've had that happen. I've had it happen where you wake up in the morning, and you're like, well, she was 55 for three hours. You know, and it's not something you want to have happen. But I didn't wake up, you know, and she she's not gonna wake up that mean that she's just like,

Maxine 24:09
and then that's another scary thought. Like, once you know, once they're old, and often they're completely managing it themselves. Like, what if they slipped through the alarms?

Unknown Speaker 24:17
Yeah,

Scott Benner 24:18
I I think that and there's also some kids I know, in college who were like this when they were kids, and when they got to college, like there was a moment of reality where they're like, okay, I really, you know, I'm not looking to have a problem like that. So I'm gonna have to figure out a way around that and they and they kind of adapt on their own to, you know, yeah, it's not around diabetes, but the other day, my son said to me, Hey, you know, I he had a bad week at school. And there was this one thing, that when it came back around, he asked me, he's like, we talked about this last week. He's like, why didn't you like say something? I thought, No, you were I told him I was like, you're, you were kind of set on an idea. And I didn't think it was the right thing to do, but also didn't think it was gonna kill you if it went wrong and I figured, let him find out. And he goes, I found out I was like, Yeah, right. So good on good on you. Now, you know, you know what I mean? Like, I can't explain the whole world to you every second Yes, the time like, you're gonna have to do it a little bit yourself. So, Episode 11 is bold with insulin. How do you recall that one? Because that's the one. When I ask people what their favorite episode is. That's the one they say.

Maxine 25:24
Um, I don't know. Can you refresh my memory? Listen, I've listened to a lot of them. Like, how many episodes do you have now? To over

Scott Benner 25:30
200 270 is going up on Friday? Yeah, and I've looked for a good amount of more that are not yet. Like, so I've recorded like 300 of them. Okay, so bold with insulin again. I don't remember it. So I went back, I went, I mean, it's, it was five years ago, where I just sat down telling basically trying to impart the message about, you know, not being passive. And not waiting for things to happen to you kind of being aggressive, that kind of stuff. I'm actually going to go speak this weekend, I'll go back and listen to a couple of these episodes, just to remind myself of the energy I had when I was talking about that stuff. Because it's, there's something about that episode. That's the one that everyone's like, this is my favorite one. And so then I asked people to listen to Episode 29. It's called fear of insulin, because I think most of the problems we have is, is about being afraid of the insulin in general.

Maxine 26:25
No, I think that's the one that probably resonated the most with me, okay. And not that I was scared of it. I just didn't understand it. Mm hmm. So once I understood it, I was like, Oh, yeah, now we're gonna, we're gonna do this, like, we're gonna catch it with a juice box if we have two or a couple of carbs. But I'd rather give more insulin than deal with his high.

Scott Benner 26:49
It's fascinating that no one tells you like how insulin works. Like, it's our whole culture is like that. Really, though? Like, I mean, no one ever told you when you were 16 or 17, like, hey, the gas goes in the car. And then it actually burns and a thing called a carburetor. And that's burning. Like, you know, when they're just like, you put that in there. And the thing goes,

Maxine 27:06
Yeah, I mean, even like I said, you know, when he was diagnosed, they were like, okay, you're going to inject the insulin, and you're going to he's going to eat, and he needs to finish eating within 30 minutes, I would set a timer for 30 minutes. Yeah. And I would use Michael, you need to hurry up and eat like, let's go. Let's go, look, come on, finish eating. And now I'm like, go ahead. take as long as you want. Like, you know what I mean? Sometimes it works out better that way if he like, takes longer to eat a meal. Yeah.

Scott Benner 27:32
Yeah. Yeah. Cuz you spread the food, the impact of the food out, like we always think about spreading out the impact of the insult, but you can spread out the impact of the food as well.

Unknown Speaker 27:39
Yeah. Okay.

Scott Benner 27:40
So I think that one's incredibly important. Then you go to Episode 37. This is, this stuns me honestly, because I was just texting with Jenny a couple of minutes ago. And Jenny Smith was on for the first time in Episode 37, which if I'm doing my math, right is four 812 24. It was only about eight months into the podcast.

Unknown Speaker 27:59
Oh, wow.

Scott Benner 28:00
And she was just a guest at that point. And the way that happened was that my friend of mine, who's also a friend of Jenny's ginger, and ginger beer has been on to she wrote a book about being pregnant with type one, actually, she wrote it with Jenny. And she's written other books about diabetes, burnout and everything. And she's just a person in the diabetes community, who I trust. I like the way she talks about diabetes. She's Matter of fact, she's thoughtful. She's consider it like, it's, it's well, you know, well thought through. It's not not like kind of, you know, Ram shot, like all over the place. She's good. And she says to me one day, hey, you should have Jenny on your podcast. You and Jenny, really think about diabetes the same way. And so I still like you mean, you know, you're on and you're just like, hey, I want to come on the podcast is like, all right. Like, in my mind, I think we can make something out of the conversation, right? So I'm like, yeah, let's have Jenny on. Well, man, by the time I was done with Jenny, I was like, This woman's, a guru. Like, she knows everything about this. So Episode 37, Jenny Smith diabetes guru. Then after that episode 44 is getting off the diabetes roller coaster. And I think that's incredibly important. Yeah, I agree. Yeah. Knowing how to get off. Yeah. And knowing why to get off. Like that's the whole thing. Did you find yourself chasing blood sugars in the beginning?

Unknown Speaker 29:25
I'm

Maxine 29:30
not too much only because

I think when we got set up with Dexcom, they wanted my heart or Michaels High Line to be set at 300. And I was like, Um, no, I don't like that. Um, so she was like, well, it's going to be alarming a lot. I'm like, okay, but I like cringe when his blood sugar's high. So I set it to choose 50, which still really is high. Um, but then Like I said, a month into him being diagnosed and I found your podcast, I dropped it to 200. So I guess I was chasing it, but I was chasing it more with noticing like, I don't want his blood sugar to be high. So I was messaging, or CDE, probably every couple of days, like, his ratios need to be changed. This needs to be changed to sugars high for too long. I don't like this like, so I was chasing it more in that aspect. Not

Scott Benner 30:26
Does that make sense? No, it does. I think you were seeing it quickly. I think your first sounds to me like your first inclination was, I'm not gonna be okay with 300.

Maxine 30:34
Yeah. And I wasn't and and, you know, she was like, well, it's a lot of information, like, you know, and I'm like, okay, but I don't like his blood sugar. I don't want it that high. Right?

Scott Benner 30:45
Well, that's cool. Like, because that's normally and somebody would just hear something for the doctor, you'd be like, Alright, yeah. But I have to say, I don't know what the hospital you use. And please don't tell me because I'm gonna say something right now. And I don't want to know who it is. But that idea of like, are you sure it's gonna alarm if you put it lower is criminal? Like, why would you say to somebody, you don't want to know when your blood sugar is high? Do you know? And why not say to you, hey, listen, there's actually things you could do to keep it from getting that high? Like, did they not know like, what's your experience? Now? Did they not know? Or were they just trying to make it easier on you in the beginning,

Maxine 31:21
I think that's what it is. And especially when like you really still don't like a month into diagnosis, I still really didn't understand a lot about it. I just knew I didn't want his blood sugar high. And I knew I was scared of him going low. Okay, so I knew like I wanted him in the middle. I just didn't understand how.

Scott Benner 31:36
So I'm going to tell you that, I think and this is where someone will later tell me that I'm pompous or full of myself, but I can give a talk that goes up an hour, that would give you enough information that you wouldn't feel like that, that you know what I mean? Like when they're guarding against, they don't know anything yet. Like, why don't you tell them? Like, right, right? Why don't you like tell them the stuff they need to know, because you really don't need to know that much in the beginning to get a good launch into it. It's it's some simple things, right? So I don't know the whole thing. It's upsetting. Like, it really is, especially because I just did a talk. And you weren't there. Even though it seems like it might have been

Maxine 32:16
I know, don't don't make me feel guilty on Sunday.

Scott Benner 32:18
I'm just saying. And so I know

Maxine 32:20
I wanted to be there. I swear. I gave it a soccer game. And I didn't want to miss it.

Scott Benner 32:25
It's not a real sport. But I'm sorry. You have any idea? When I make that joke? How many people write me and say I really like soccer? It's okay. I'm sorry.

Maxine 32:35
I don't know that Michael really likes it, to be honest with you.

Scott Benner 32:37
Of course, he doesn't no one does. I'm kidding. Some people like soccer now, but anyway, I would have been nice to meet you in person. But But the point is, there were people in that room who had just found the podcast, who I'm already hearing back from that they're saying that like after an hour, it took them to a different place. And and it's so it's not that hard. And the CDE could do it. If they if they knew the points to hit on. And it's not fair to them like they're not. I mean, their CDs. They're medically trained, but they also weren't writing a blog for 10 years trying to figure out how to talk to people about this.

Maxine 33:12
Right. Well, and I think there's like a fine line too, because I think there's, and I'm not knocking other parents, I think there's some parents who get it. I think there's parents who want want to educate themselves more. And I think there's parents that just don't get it, and they don't care to get it. And I think there's like that, they could probably potentially kill their child because they just don't understand it. So I think like they can only educate them enough to keep their kids safe.

Scott Benner 33:39
Yeah, I mean, the way I usually say it is that the doctor doesn't know who you are. You could be you could be the brightest person they've ever met or the opposite of that and right. So they're not going to hand you a Howard sir, on the first day and be like, Alright, so what you do is look through here and get it like they're gonna start off with here's a flyswatter tried to knock these back with this for a while.

Maxine 33:57
Yeah, and I think like, you know, after so many messages, because I'm pretty sure I messaged RCB, every single day, like the first month, and I was like, I I'm not even kidding. Um, but I was like, I just don't like how his blood sugar spiking to 250 every time he eats, and so she actually did tell me She's like, why don't you try giving him his insulin and waiting like 10 to 15 minutes. And even at that point, I didn't understand why. And I didn't do it. Because the first time I tried he was like, freaking out that he was starving. Right. And I actually did not start doing it until I listened to your podcast, and

Unknown Speaker 34:32
I was like, Oh my gosh, that's what she was talking. How did you stop him from complaining?

Maxine 34:36
Um, he just knows now probably like to live away. I'm like, Yeah, that's it. But he's on MDI. If he was on a pump, I could do something he wouldn't even know makes me but

Scott Benner 34:49
You're hilarious. Maxine. That's great. I'm waiting for a clown to climb out of a car and blow a horn.

Unknown Speaker 34:59
Do you need to bake it? Are you okay?

Unknown Speaker 35:00
Now? That was my husband

Scott Benner 35:01
I listened to makes you feel better we call the doctor because texting wasn't even a thing back then. So I had to wake up. I woke a woman up in the middle of the night. And I was just like, I tested her blood sugar system. I want to give her this much insulin. Is that okay? That was it was the first night we were home from the hospital. It was worse because it was a vacation house. And we had a bed that was okay for my wife and I but it wasn't enough for three people. And Kelly's like I'm sleeping with Arden. So I just sleep on the floor at the foot of the bed that first night. Oh my gosh, a lot of fun. Okay, so anyway, about that episode 44. The basic idea if you're just listening for the first time is that once your blood sugar is out of time with your insulin, you go up, then you crash down, then you go up and you crash down and you don't ever consider but what you're doing right now in the moment like in in this moment with insulin isn't for now it's for later. And so when you see something going up, and you try to knock it down, it's you're out of time with it. You know, another way to say it is um, is a pretty, I think is a pretty well known story. But when Wayne Gretzky, his father was teaching him how to play hockey. He told him to skate where the puck is going. Don't skate where it is skate where it's going. And so I'll leave you thinking about that for a second while we do Arden's lunch. Hold on a second. Well, Maxine, you get a lunch episode. How exciting exciting. Arden's blood sugar is 132 it was 125 about a half an hour ago, we gave her a little bit of insulin doesn't seem to have done anything. I think her lunch has I count I thought about it around 75 carbs this morning when I looked at it. So she's like, 146. So what is that? Like? I don't know. I think that's 12.

Unknown Speaker 36:56
Did you just say a car ratio?

Scott Benner 36:58
Yeah, I have to cuz the way we're doing it. I am going to tell Arden because she's also got an elevated blood sugar. I want to get a little more going 50 carbs. Two hours. 25 carbs. Three hours.

Unknown Speaker 37:18
And that should be

Scott Benner 37:21
430 568. Right. I think it's right. Good. Close enough.

Maxine 37:32
So that makes it makes me like jealous. Like, I'm actually like, we're in like, we're getting into the bribery stages with Michael to get them on a pump.

Scott Benner 37:39
Oh, really? Yeah, money's fine. I think you do it like that. It's totally good. Actually, I guessed it. Well, I guess I wanted around 12 units, and I ended up with 12 and a half based on what I just said to her.

Maxine 37:51
When What age do you feel like she made that big jump because like if I like giving, I think the most I've given Michael was like eight units and that was for like, you know, like, birthday cake like something super super carb heavy. Yeah. Um, well, sometimes I'm like, oh, gosh, it just seems like so much. But I know there's gonna come a point especially with him being a male like he's probably gonna have like 20 units for

Scott Benner 38:14
Yeah, there's there's no, there's grown men out there laughing at you right now who are probably injecting 70 units of insulin.

Maxine 38:20
Oh, yeah. Like I can't even imagine.

Scott Benner 38:28
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Well, so for Arden, you make a point, like there's a moment with their body mass picks up, and they just aren't kids anymore. And then all of a sudden they eat more, they have more body to deal with. And in part of that 12 and a half units that I just gave her. It's not all about the carbs. Right? So it's a weird mixed bag. meal. Let me think what's in there. It's like a half of a bagel. There's a bag of grapes. But I honestly don't know how many grapes are in there. I just grabbed as many as I grabbed in a banana the banana. I remember thinking when I put it in the bag. This is bigger than the banana yesterday. That was the extent of my. My consideration or How's that? Okay, hold on one second. She said nothing happened. So I say Bolus Well, units.

I can't wait hold this gets through the FDA. So I can talk about a little more clearly.

Unknown Speaker 42:37
Talk about

Unknown Speaker 42:39
I can't.

Scott Benner 42:41
If I say it, then I lose the episode for something else, although six months down the line. All right. I'll just say Arden's looping. So she's on she's using a loop right now.

Unknown Speaker 42:54
So Riley link,

Scott Benner 42:55
yes. So I basically told the loop, consider that 50 of these carbs are going to absorb over two hours. And 25 of these carbs are going to absorb over three hours. By spreading out that those absorption times that helps the loop not take away bazel insulin because it has this feeling like oh, there's something aggressive in there, and something long lasting in there. So I'll keep the Bayes a lot because I need the bazel to write. And the The reason I had to vaguely know how many carbs is because that's how you have to talk to the to the app, the app, okay, I can't just tell the app, so I need to put the carbs in for the absorption time. And then the insulin in for the food. Now the funny thing is, is that when she put it in there, it told her like it didn't offer any insulin. That doesn't make any sense to me because her blood sugar's 131. But probably what it was going to do is like 15 minutes from now, it was going to say like, hey, put this insulin in. But she doesn't look she's eating. And I want it to Pre-Bolus so right I want it all in now anyway. Anyway, it's gonna work, right? I've I have figured out how to trick the loop and all aspects and maybe not trick it, but work with it.

Maxine 44:13
See, and I know you did an episode on loop, but like now you're gonna have to like once it does get approved. Now you're gonna have to do like a whole,

Scott Benner 44:21
like class on looping. Well, as much as it's nice that people are like, tell me what you think like, I'm still learning what I think it's gonna take me this whole year to really figure it out. And that's my goal is to be able to talk about it in a way where Jenny can come back on at some point, and we can do that. Now that I've said that out loud, I'll have to get it done before different podcasts steals my idea, which happens a lot. Every time I say something out loud. I'm like, oh, okay, so the next episode 62 unfounded diabetes, fear, right. What is she saying to me? Hi, Maxine. Hold on one second.

Unknown Speaker 44:54
It won't work. What do you mean?

Unknown Speaker 45:01
Bolus won't go through.

Scott Benner 45:15
Try six years. See if it'll take us. This has never happened before. So now you're having a conversation that's meaningless for people who are listening. They won't Bolus. So

Unknown Speaker 45:25
So what? Can you override it all?

Scott Benner 45:29
Hey, man, I have a better idea.

Unknown Speaker 45:32
Turn Riley link off, then on

Unknown Speaker 45:40
and trying.

Unknown Speaker 45:43
So

Scott Benner 45:45
we wait and see what she says about the six units. Because I think she's gonna tell me it didn't work. So I'm gonna set this text up at a time it says turn rally link off and then on again, and try 12 and a half minutes, but I won't hit send on that toy. You're back. Yeah, it's um, I don't know, this is my first go through with this, like Riley link thing? I mean, we've had it for six months now, is it? You know, does it last that long? Is it supposed to last longer? Like, I don't know, it's a little circuit board inside of a plastic case that some person somewhere? Oh, wait, nevermind. I got it. Yeah, I thought it was more of a user error thing.

Maxine 46:25
Do you think that your Do you feel like you're thinking less about it with Riley link? Or do you feel like you're actually doing more management with it? Hmm.

Scott Benner 46:36
In the beginning, it was much more. And now that I've figured out like the four basic ideas around it, that fixed my problems, it's less, okay, automation is going to be better for people. Getting them to the spot where it will be better is not going to be easy. So that that's my feel. And I'm so sorry. So Episode 62 unfounded diabetes fear, if I remember right, I think it was an interview with a mom who came to the revelation during the interview that she had become comfortable with 200 blood sugar's remember that let them creep up and creep up and creep up. I thought that was like a watershed thing. Like I really did. I thought that's something people need to hear.

Maxine 47:17
Yeah, I agree. I think that was huge.

Scott Benner 47:20
Yeah. Right. Cuz she, you can hear it happen to her right? While she's talking. Am I right? Like you remember that way? Yeah. Like it was sort of like, she was being recorded when her brain went, Oh, my God, I do that. Like like that, you know, because I was explaining to her how, you know, if you, you kind of get what you expect. And so if you expect 130, you get 130. And that's, you know, pretty basic idea till you hear the rest of the podcast, but that she started going out. It's just 150. It's just 160. And then before you know it, she's like, Oh, it's only 60 points higher than the doctor said. That's not bad. It's within range. Like they started making all those excuses. And then before she knew it, her kids blood sugar was always 200. Right. And she was just okay with it. In Episode 105, it's called all about a one C with Jenny Smith. So I saw something I was like, I'm getting that Jenny Smith person back on the podcast. Because I really wanted to break down what an A one C was. Because so many so much of your life is wrapped around like what's is a once a what's everyone see? What's my agency like that feeling? How do I get my agency lower? How do I get my agency stable? Like let people really understand what it is because you know, back to insulin, I don't know insulin? Do I really know what an agency is? And, and let her come in and just talk about it. I thought that was great. That actually believe it or not, is when I decided I'm going to get Jenny back on. Like after I get enough episodes out that I think that I've explained everything and after I've said it enough times that I can say it in my sleep. I'm going to get Jenny back on to break down the tenants of the podcast with me. And it took it took another like hundred and 30 episodes before I was ready to do that. Oh, wow. You know, and so I when I got back on and we did the pro tip series. I mean, that to me is that pro tip series is great. Like I'm really proud. Yeah, you know, yeah, I like them. And they're quick. So they're like, easy, you know, you don't doesn't take much time to listen to and it gets right to the like a point but they're still conversational, so it doesn't feel like like a teacher standing in front of you and go Okay, first thing you have to do second thing you have to write Episode 120. One's all about insulin, just understanding insulin. And then in Episode 100, I go back and listen to Episode 11 to the bold with insulin episode, and I do like a commentary track on it to see where in 90 episodes of the podcast like what I've learned about like what I would have said differently than what I said in the beginning. Right. And I think that once you get through those episodes, you're coming as close as you can be to like Jeremy said to being in my head about how I think about IVs And then I think the other stuff that I think that helps you when you're hearing the interviews moving forward. Yeah. To hear to have your own aha moments, I guess. Yep. Right.

Maxine 50:08
I agree, right? Because now you have more of an understanding of diabetes. So then you can just understand people's stories.

Scott Benner 50:17
Yeah. And I'm also, as I mean, I, I like joking around that I'm not that smart. But I'm also planting aha moments in the story. So the way, here's a real behind this curtain, look at the podcast. So a person comes on. Just like you today, we had no idea what you're going to talk about. You mentioned those lists, and I've made an episode out of it. Okay. And so and you're, you're kicking in and like, it's, it's really, it's cool. Some people talk more in some episodes, some don't. You know, it doesn't matter like it. So when someone's talking, and I hear them telling a story, I sort of think ahead. So I'm kind of proud of this, actually, just because I never thought of myself as someone who had an ability like this. But you're telling somebody telling a story. And I'm thinking, Okay, what I'll do is I'll ask this question, when they're done. It will prompt this answer, most likely, I think. And then when people are listening, they'll make the leap about this. So I'm planting your aha moments. Yeah, within the story, as best I can.

Maxine 51:26
And then it's like a lesson for other people.

Scott Benner 51:28
It just, it's nice. And it's conversational still, and it doesn't feel forced down your throat, which I think is all really important. You know, I don't I don't learn well, when someone stands in front of me telling me things. Now, you know, my son complains all the time. I wish you know that. That's what he wants. You know, so when he gets a professor isn't like that. He's like, Oh, this guy won't say anything. You know, and I'm like, hey, he wants you to figure it out. He goes, Yeah, well, I'm we're paying him. I want him to tell me.

Maxine 51:57
Oh, that's definitely like, well, he's not really a T. He's kind of an adult now. He's almost

Scott Benner 52:01

Yeah, yeah, he's getting there. He's a really good kid. So it's, it's not a big, it's not a problem. But like, there's some in some classes. He's like, I wish the person was more expressive. And so I can only do what I do, like, you know, I, you will, I swear to God, I will hear from somebody you didn't let Maxine talk today. That's going that's funny, but you're having a good No,

Unknown Speaker 52:23
it's good. Yeah.

Scott Benner 52:24
No, I like that. So. So the point is, is that it's you know, you came on, and I asked you a question when you were like, um, I was like, oh, Maxine just wants to be on the pod.

Maxine 52:36
No, I think I just kind of had like a, I don't have a brain fart, I guess? Well, it happens a lot recently.

Scott Benner 52:45
Let's, let's, you know, we have like 10 to 15 minutes here at the end, let's talk a little differently. So when, what's what I really want to know from you? I guess, let's let's talk about this. Well, how has your life changed since your son was diagnosed?

Maxine 53:04
Um, I mean, I guess

diabetes has definitely, you know, taken the forefront of everything. So I do feel like you know, with my other two kids, like not that they get like, pushed to the side, but you know, if Michaels low, we have to, like, stop what we're doing with them, we need to treat up here they go. We have to treat my goal or, like, I kind of just feel like oh, my gosh, you have to know when I talk and they start yelling. They start barking.

Unknown Speaker 53:38
Um,

Maxine 53:41
I guess I like in that aspect. Like, yeah, I mean, my sleeps definitely, like, way deprived. Um, and finances. I think it's just, I mean, it's definitely dramatically changed. But I think a year into it now. Now. It is just a daily part of our lives.

Scott Benner 53:59
Yeah. So you'll climb back out of that hole, like the initial the initial impact has obviously created a crater and you're finding your way out of it.

Maxine 54:06
Yeah. Yeah. I mean, I think I think the biggest thing is like the financial aspect of it, you know, we've a very high deductible insurance, which we just met. So we that means we spent $7,000 out of pocket. Well, and it's November, and it's November. So now I have what a month to stock up on anything that I can. So I think that's been, you know, the biggest struggle because Michael is he adapted from day one. I mean, he was so resilient. It it doesn't faze him. So I think that made it easier on us to transition to this new life.

Scott Benner 54:45
So I know he's younger, but did he have that vibe about his personality prior to this? Was he that easy to get along with?

Maxine 54:52
Yeah, I mean, even as a baby like he was just like a textbook baby he napped. He slept well. He he he's a rule follower. Like he's just an all around good kid. Um, now if this was my four year old that got diagnosed, it would I mean, we would probably still be,

Scott Benner 55:11
probably just fix a couple problems at once. You could probably just duct tape them to the bigger, my god and go find the runway in the world. That's all. Yeah, let's pay the $7,000 deductible.

Maxine 55:23
Gosh, I'm telling you that. So that's been the biggest, you know, hurdle for us. But you know it, we'll do whatever we can, you know, the bills get paid.

Scott Benner 55:34
Does it feel like there's light? Like, do you see? Do you feel yourself moving towards something positive generally?

Maxine 55:39
Oh, yeah. Yeah. I mean, we definitely like diabetes isn't it doesn't hold us back anymore. Like it doesn't we don't we go on vacation. You know, we don't do anything. Or don't not do anything because of diabetes.

Unknown Speaker 55:56
That's excellent. I

Maxine 55:57
mean, it's nice. I mean, even my two younger ones. They're four and two, like, my two year old wants to help me do Michaels injections. Or every once in a while they want me to check their sugar. Like it's it's nothing to them, you know,

Scott Benner 56:10
they're definitely gonna have a different perspective on the world. Hey, four, two and seven. Can I ask how old you are?

Unknown Speaker 56:15
32.

Scott Benner 56:17
Right home doing the math. That seems right. That's right. That's, that seems normal. I think I had my kids so early, that I just I'm still like, sometimes, like, how am I? Like, I'm 48? My son's like a sophomore in

Unknown Speaker 56:31
college. See? That's awesome.

Scott Benner 56:33
I hope so. Like, yeah, but

Maxine 56:34
I feel like, um, I feel like I'm 16

I mean, I will say I do feel like diabetes. The first year has aged me pretty significantly, but

Scott Benner 56:46
Well, that's our life. But that's, that's also something to be considered and to be worked on, too, because you can't just get any me like, you can't just set your hair on fire and run forward forever. Like, eventually it's gonna burn out and you're gonna be, you're gonna be done. So yeah, you need to find a way in there for yourself to what, what's the biggest impediment to you getting rest? Do you think?

Unknown Speaker 57:05
Um,

Maxine 57:07
I guess? I don't know. I guess it should. It's not that like, you know, I feel like I'm actually dealing with more highs in the middle of the night with Michael than lows. Um, but yeah, I guess it's just I set my alarm every night. I still set it for 3am. Not to check his finger. But I'll get up. I'll look at my phone. See what his blood sugar is? How all

Scott Benner 57:26
the pieces arranged. Okay, how many times a week at that 3am alarm? Do you think Oh, I didn't need to get up at 3am.

Maxine 57:33
I'm probably about like three to four times a week.

Scott Benner 57:37
You hear what I'm saying?

Maxine 57:38
Yeah. This is why he needs to be on the pump.

Scott Benner 57:41
Yeah. Well, so is that is that a goal? You'll get to your 7000 faster.

Maxine 57:45
We got the pump last year when we hit our deductible. And it's just collecting dust,

Scott Benner 57:50
which we have the Omnipod Why are you not using it? Because he

Maxine 57:53
doesn't he doesn't want it. And I feel like it's just I don't want to force it on him. But I don't think he realizes like that his life will be a little bit easier to

Scott Benner 58:02
Oh boy. This is where my advice here is, uh, I guess some people don't like it. But

Unknown Speaker 58:09
Yep, send it this way.

Scott Benner 58:10
I would, uh, I massage the situation. He would just force it. I don't know, I don't force it. I mean, I'd make it seem like it was a good thing to do. And then, you know, move things in that direction. Maybe make some overtures about, you know, video games that maybe want to be purchased stuff like 87, he could probably be bought for somewhere around $65 as well. Oh,

Maxine 58:31
gosh, I was thinking getting the kid an Apple Watch. Like,

Scott Benner 58:34
I don't think you have to go that far. An Apple Watch. I would like to come live with you.

Maxine 58:38
No, I was thinking because then I could I could text him while he's in school and to

Scott Benner 58:43
lose your thinking about what you would want in a situation

Maxine 58:47
because selfishly I know, selfishly. It's definitely it's definitely

Scott Benner 58:51
I'm talking about getting to do it. Like Like, what if you said to him, Hey, look, I want to try, I think we should try pumping. We've got the pumps here. You know, they're just sitting there. It's such a waste, we should use them. Like, like, so even if you don't like it, that's okay. Let's just use them up. And how many of you have probably three months worth? Right? So you give him that right? It's November now? November, December, January. So we'll probably be all through these by the end of Christmas. And if and then if you don't like it will stop. It's no big deal to me. I don't care one way or the other. I just feel like I don't want to waste them.

Maxine 59:24
I'm gonna do it. I even tried decorating a pod. Like I decorated what you know, like a lightning. Yeah, he put it on for the entirety of the Eagles game and then he was like, I want it off. I'm like, but I think that's because he knew he could take it off. It wasn't giving him insulin right now.

Scott Benner 59:39
Yeah, I listen, I I watch my wife say probably once a month, something about my son. And I'm like, he doesn't care about that. No, you think he does, but he doesn't care. He does not care about that. You are barking up the proverbial wrong tree. Like like, here's what he cares about. These are the things the kid cares about. Just you know, go Look at him, like as a person, like put yourself in his shoes, what does he care about? And then give it to him be like, Look, we're gonna do this. And I know it's not something you want to do. And, you know, I don't want to force it obviously should always be your decision, but we got to use these up. So anyway, how can I make this better for you? Like turn it into a mob situation just

Maxine 1:00:20
and then there's like, give him a decision of what? Or like, give him the choice of what he would want for it right? Yeah, like,

Scott Benner 1:00:25
how, how can I help you help me not waste these pods? And this is just one idea. Right? Like, so. You know, buddy, I need to not waste these, you know, we paid money for them. Other people, you know, can't afford this stuff. And I feel bad about it just sitting here. So let's give it a try. Don't even say to them, maybe you'll like it, is of course they'll like it. Eventually. It's just what it's Chinese water torture, right? drip, drip, drip, drip? Is that even is that offensive to say at this point? I don't understand how in the world. Anyway, um, but without insulting someone, basically just use the same tactic. I got to keep my wife married. Like I just thought eventually. She'll just like me. Yes, keep going until she gives up. And

Unknown Speaker 1:01:07
now that you put it that way, I totally get it.

Scott Benner 1:01:10
Use why ever? You're still married to get that kid daughter?

Maxine 1:01:15
Yeah. All right. So then this is and I know you can't really give medical advice or like so right. Right now we have the regular Omni pod. We don't the dash. But we were approved for the dash. And since we met our deductible, I could technically get the dash with no money out of pocket, right? Would you recommend just starting with what we have? Or if I can get him to start it?

Scott Benner 1:01:37
Why would it doesn't matter, you should start with what you have. And then if at the end, he's like, no, maybe at the end when you're like you're cracking open your last box and you're noticing he's caught a rhythm. And he's cool with this. And you have slyly found ways to say things during the day. Like isn't it great not to have to inject or, you know, it was really cool. The other night, your blood sugar tried to go up but I gave you a Temp Basal increase and it stopped that was really cool. Because you didn't you know, or your blood sugar tried to go down the other night, I bet you don't know this buddy. But at like four o'clock in the morning, your blood sugar went to go down, and mommy shut your basal insulin off for an hour, you didn't get low and I didn't have to wake you up to eat something that cool. Like, like that kind of stuff. And then just you know, you just keep slipping it in slipping it in here and there. It's pretty much the way I'm teaching all of you about diabetes, you just don't realize it. And so and then you just sort of keep at that. And then when you get to the end, you go, Ah, you know what, I wonder if we shouldn't keep doing this, they actually have this really cool, like, we could get away better PDM like, look at this and show it to them online. Like if I reordered these for you Now we could get this instead. And then just see what he thinks.

Maxine 1:02:45
I'm gonna do it. I'm gonna bring out the box tonight, when he gets home.

Scott Benner 1:02:47
And if you need me to pull my father out of the grave and just yell at him. I'm sure you can do it that way too. But, uh, I mean, he'd probably be a little jarred by that whole experience having grown up in the 2000s ease and all. My daughter and I were joking around last night, and she said something back to me. I was like, You know what, don't push me. Or I'm gonna flip back that 1976 and you're gonna be frightened. She was like, what I was like, if I talk to you, though, like right now, she we were not in an argument. I want to be clear. We were literally talking and joking. And I said, even if I would have joked with my father that way, like Hellfire would have rained down on me. Like, you know what I mean? Like, there would have been probably a solid week of me just walk around the house going don't look him in the face. Yeah. Try not to say anything. Maybe I should skip a couple meals. They see I'm not a financial burden. Yeah. Yeah.

Maxine 1:03:39
Yeah, they definitely get away with a lot more these days.

Scott Benner 1:03:41
It's all good. Like, I must say, My kids are incredibly healthy. Like, they're thoughtful. I wasn't nearly as you know, like, connected to my feelings as they are like, I don't think there's anything wrong with it. I'm just saying that every once in a while you could like, impose your will in ways they would notice. And yeah, I think you could I think you could do that.

Maxine 1:04:03
I really don't want to do it. Yeah, good for you. I think what I'll do is I'll just set up the because what do you have to do to say lien trial? I think I'm going to schedule that. Right? You have to

Scott Benner 1:04:12
I mean, I don't know what that means. I'm in an ambiguous position right now, I can tell you that if I was you, I would put insulin in the pump in use.

Maxine 1:04:25
So I guess I should have just come over is what you're saying and help me.

Scott Benner 1:04:29
I think you should do whatever you think is right for you. That's what I should say. But that there are plenty of people who start pumps, not just the army pod without doing the things that you There are plenty of doctors offices that don't do this stuff, too. So I don't know. And if yours does, see, here's what I think. If you start with the sailing trial, then that's going to be a doctor's visit. And then yeah, the doctor visit three days from now and then all you're going to do is Make him upset. And these are going to be all the reasons he doesn't want to do it.

Maxine 1:05:03
Yeah, I think you're right. I know I am. Because you're definitely

Scott Benner 1:05:06
Yeah. Because I trust myself way too much. Some people call that narcissism. I just think it's confidence, but that's fine. Whatever. I'm telling you that I believe that as I'm looking at this scenario, and hearing what you're saying about him, the minute you put him into the process, he's gonna flip. Yeah, even maybe that's it like, you know, act like a renegade be like your mom's like an outlaw here. Here's what we're gonna do something really gangster, let's use this pump without going to the, to the thing that he might look at you and be like, here's what I know for sure. I'm only seven years old, but this woman does not know what the hell she's doing. I'm gonna let her put that insulin pump on me without that even maybe that would flip him maybe he'd be like, yo, lady, look, I'm up for doing it. But I don't trust you. So why don't we take it in and let them show us how like, whatever it is, makes it his idea.

Unknown Speaker 1:05:55
Yeah, is the

Maxine 1:05:56
cuz I because I know it's partially You know, he wants control.

Scott Benner 1:06:00
Yeah. Yeah, of course. Let him do the whole thing. Like, like, tell him Look, you can fill it, you can figure the whole thing. He screws one up, throw it away, and just try the next one. Yeah, it's not going to By the way, you put the insulin in the tube, you know, in the big syringes, make sure there's no air bubbles in it. And by the way, here's a on the pod life hack for you. You can't we can't get all the air bubbles out. But when you're filling the syringe to fill the on the pod, first thing you do, obviously, is you draw back the syringe to wherever you're going to fill it to we use 200 units, that you inject that air into the insulin, you know, so that it keeps the equilibrium correct inside of the vial. Draw back out slowly. Try to take in as few bubbles as you can, but you're going to get Wow, I'll edit that out. Excuse me, you're going, you're going to get some Okay. And then tap tap, tap with the needle pointing up, get the bubbles to go up. And then press it some back into the press back into the insulin like push the air back into the insulin Wait a second, let the insulin bubbles float up and keep drawing down drawing down on the on the vial. Try to get as much as you can, then you can tap some out, but that's folly. That's a fool's errand trying to get all the bubbles out. Just flip it upside down like you're going to inject it in the pot and tap it again make all the bubbles go up to the top. And then when you inject in the insulin, just don't push all the way down on the plunger. Don't push the air from the bubbles through just push the insulin through.

Unknown Speaker 1:07:28
Alright, does that make sense? Oh, yes. Oh, yes.

Scott Benner 1:07:31
And so that's a great way to keep bubbles out. And not spend 25 minutes hurting your fingernail going on the side of the syrup.

Unknown Speaker 1:07:40
Oh, yeah. Because eventually I know exactly what we're talking

Scott Benner 1:07:42
about, like stop, it goes in he Prime's it. I take off the needle cap and use a clean sterile we usually use a tissue that doesn't have any like oil or anything like that. Dab out the little bit of insulin that Prime threw into the needle because that keeps the the injection spot from being moist afterwards. You know, sometimes people see a What do they see like kind of like a haze in the in the window. It's because there's probably a couple drops of insulin when they put it on there. So I kind of dab those out. Okay, apply it, pinch up the skin, right? And then push the button and it clicks a couple times. And it goes in after it goes in. He's gonna be startled. And I but I heard that it actually hurts less than Dexcom. You know, Arden doesn't say either of them hurt at this. Okay, so she the clicking from the on the pod freaks her out. Like still she's been using it for 11 years. And as it goes, click click, click she gets like, you can see her winding up like a you know, like those old windup toys with a key like, you know, when you like, I think I can turn it one more time. But you really yeah, that's her she goes. And I'm like, she can see her kind of in her mind counting like 123. And it'll insert sometimes on the sixth click on the fifth click it mostly in there. And all it's really doing if I'm think I'm guessing, right is it's creating tension on the the needle to shoot the needle in. And so I'm in my mind, and this could be 100% wrong. It's kind of it's creating this tension to fire the needle. And it happens in like, you know, a split second needle goes in pops right back out. It's way faster than that, and it leaves the canyon behind. It's fantastic. It happens so fast. That it's on. Now, I think after you do that your next step is to not mess around getting his bezels. Right,

Maxine 1:09:37
right. chatswood Okay,

Scott Benner 1:09:38
right, because you don't want him to be crazy high. And then him see that as a reason why he doesn't want to do it. Right. I could.

Maxine 1:09:46
Yeah, I was gonna say I'll probably be messaging you then once I can get it on him to kind of figure out because I've heard too though that on the pump, you actually usually use less bazel than on MDI

Unknown Speaker 1:09:58
could be Could be more?

Maxine 1:10:01
Well, I Well, I guess depends on like, maybe let's just say like his general, like, hourly bazel it

Scott Benner 1:10:07
not, but probably it is. So what I usually see with people is that the doctors sometimes err on the side of caution. They make their basis lower. This dries up everybody's blood sugars. And then people go, oh my god, these pumps don't work like no matter what pump it is. And really it's the doctor wanting you to ease into it. If you were doing it over a weekend and being you know, interactive with it, I personally think I mean, I'm not I'm not trying to be boastful, but I think I could get your bazel right inside of four or five.

Maxine 1:10:37
Yeah, but that's totally what I was thinking. I'm off Friday, Saturday, Sunday, if I can get him to get this pump on Friday, that gives me three full days before he goes back to school to get it figured out right?

Scott Benner 1:10:49
And even sell him like, like, think about a Thanksgiving. You're gonna be able to snack all day on Thanksgiving without getting shots. Like, Won't that be cool to just be like, I'm gonna have a cookie and push a button instead of think I'm not gonna eat a cookie because I don't want to take us. You know, I don't like that whole thing. Like there. Yeah, show him a couple high sides to it. But you know, I don't know what you'll end up figuring out. He's obviously your kid and it's your life, you'll decide.

Maxine 1:11:12
Well, I know bribery will totally work for him. It's just figuring out in a

Unknown Speaker 1:11:18
affordable way.

Scott Benner 1:11:20
picturing you sitting across the table from a seven year old deal in one's out. And you saying something like, stop me when we get to an ami pod? For five, like how many dollars till the kid goes Hmm, I find the problem with the kids is they have no real feeling for how much money is. But I know they don't my kids will look at $20 and they'll be like, it's just $20 I'm like, No, no, no. Well, now you're gonna get a talk. That's a lot of money. Here's why. You go ahead and try to make $20 God, let me see it happen. All right, you're gonna be alright. Are you excited?

Maxine 1:11:55
To do this? I am excited because I think I'm gonna recruit Jasper and Jacob. And I think we're gonna do this on Friday. Excellent. We're

Scott Benner 1:12:02
done for you. Let me know what happens.

Maxine 1:12:04
Oh, absolutely. Because I'm gonna need your help.

Scott Benner 1:12:06
Just know, Friday. I'm flying to Kansas City. And Saturday. I'm given an all day. I'll be talking all day in Kansas City on Saturday. So

Maxine 1:12:13
all right, well, so Sunday, I might not

Scott Benner 1:12:16
be possible. I'm flying back. Sorry. No,

Maxine 1:12:18
no, it's sorry. I have just to kind of show guide me in the beginning. And then once I kind of get him dialed in, then I'll be reaching out to you

Scott Benner 1:12:27
use the pro tip episode about setting bezel and so on to I think it's really good.

Maxine 1:12:30
Okay, all right. Oh, look, I just got an alert. Clarity goal yesterday, you reached your time and range 70%

Unknown Speaker 1:12:37
compared with

Maxine 1:12:39
a 70 to 162. Excellent. Yeah, I mean, well, we cruise last night. And that Oh, that. I will say that about one. I can't remember what episode. But when you said if you can keep the overnight numbers in range that sets you know the rest of your day. And it's so true.

Scott Benner 1:13:01
Yeah. Oh my god, I like about this all the time. It's a third of the hour. It's a third.

Unknown Speaker 1:13:05
Oh my gosh,

Maxine 1:13:06
you could like he literally cruised at I mean, it's probably higher than you would like. But he cruised between like 118 and 130. The entire night and not even not much. He didn't even like fluctuate that much. But

Scott Benner 1:13:17
that was huge. That's excellent. And I'm telling you that's, you know, I talk about all the time, but that's one way you get your agency down. It's you take advantage of the night when there's no food and no activity. Yeah, right. And so once you figure the night out, that's a third of the it's a 30 year time. That's it? Yeah, cold. You know what I mean? Let's That's beautiful.

Maxine 1:13:36
Because then I don't feel so guilty if like, he kind of not that he gets out of control. But like, you know, if I have a bad day, I'm like, Alright, but he did really well. Overnight, like

Unknown Speaker 1:13:46
anxiety.

Scott Benner 1:13:47
Yeah, you're like, Alright, we messed this up. But do you remember the last eight hours? They were beautiful? I hear you. I really do. I had fun. Maxine. I

Unknown Speaker 1:13:56
could tell. Thank you. Absolutely.

Scott Benner 1:14:00
I'm going to give you a little update on how Maxine suns doing and whether or not he ended up on an insulin pump in just a second. But first, let's thank the Contour Next One blood glucose meter and touched by type one, please get touched by type one.org. Or Contour Next one.com Ford slash juice box to find out more about the sponsors. There's a complete list of sponsors. Right there in the show notes of your podcast app. We're at Juicebox podcast.com. Support the sponsors support the show. All right. Let me find this email here from Maxine. Oh, look at this. She said um, we totally bribed him. But we told him, he had to try it for a month. And if he absolutely hated it, then we could go back to MDI. That's fair. Give them a month. Check it out. Uh oh. Maxine says it's been great so much less time. consuming less thinking about diabetes, less trash. He likes being in and out of the nurse's office very quickly for his lunch balls is at school. And they love the on the pod, especially in the summer. Being waterproof. They're being let's see, they're setting up Temp Basal decreases when he's swimming all day. It was definitely worth switching for his diabetes management. And she says he's starting to get comfortable bolusing himself for meals, which has been great. Thank you so much for listening. more episodes will be up soon. If you're enjoying the show, please share it with someone who you think may also enjoy listening to the Juicebox Podcast. Take care. I'll talk to you soon.