#1691 Autumn Needs an Answer - Part 2

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Autumn, diagnosed type 1 at 13, discovers after 31 years she’s MODY. We unpack misdiagnosis, GLP-1s, insurance roadblocks, self-advocacy, and how one podcast episode changed her entire life. Part 2 of 2.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox podcast.

Autumn 0:15
Good morning. My name is Autumn. I am a 44 year old female who was diagnosed with type one diabetes in 1994 at the age of 13.

Scott Benner 0:26
This is part two of a two part episode. Go look at the title if you don't recognize it. You haven't heard part one yet. It's probably the episode right before this in your podcast player, when I created the defining diabetes series, I pictured a dictionary in my mind to help you understand key terms that shape type one diabetes management. Along with Jenny Smith, who, of course, is an experienced diabetes educator, we break down concepts like basal, time and range, insulin on board and much more. This series must have 70 short episodes in it. We have to take the jargon out of the jargon so that you can focus on what really matters, living confidently and staying healthy. You can't do these things if you don't know what they mean. Go get your diabetes to find Juicebox podcast.com, go up in the menu and click on series. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Just in time for the holidays, cozy Earth is back with a great offer for Juicebox podcast listeners. That's right, Black Friday has come early at cozy earth.com and right now you can stack my code Juicebox on top of their site wide sale, giving you up to 40% off in savings. These deals will not last, so start your holiday shopping today by going to cozy earth.com and using the offer code Juicebox at checkout. This episode of The Juicebox podcast is sponsored by us, med, us. Med.com/juicebox, or call 888-721-1514, get your supplies the same way we do from us. Med, the episode you're about to listen to is sponsored by tandem Moby, the impressively small insulin pump. Tandem. Moby features tandems newest algorithm control, iq plus technology, it's designed for greater discretion, more freedom and improved time and range. Learn more and get started today at tandem diabetes.com/juicebox,

Autumn 2:31
I went through a total identity crisis, and when all of this was happening to me, I'm like, well, if I'm not type one, what am I like? What do you mean? Like, I have all of this medical history, and it just fits right here. And you know, he, he was with me through all of it. I honestly didn't start to share my story until this year, until I got the answer. Nobody in my family knew this was happening, other than my husband and a very, very close friend, no kidding, yeah. And part of it was, you know, candidly, that the societal criticisms of, oh, you're using a GLP, Well, no wonder that's why you lost weight, or no wonder that's why you feel better. And it's like I struggled with my identity, and then also with the fear that you you mentioned for people, where it's like, you want me to take my insulin pump off, but what do you mean? You how? But then it was like, I had to listen to that, you know, little inner voice that you have that's like, what do you have to lose? You take the insulin pump off. You get sick. Okay, put the damn thing back on. But if you don't try, how will you know? And I don't ever want to live my life thinking I should have, could have, would have, type thing like, no regrets. So here we are.

Scott Benner 3:42
Well, I mean, the doctor tells you to do it, you easily could have just put it back on again. Like, it's not sure, yeah. I mean, you didn't have to sit there and just slowly die over the next couple of days, right? Right? Like, yeah, you could pay attention to what was going on. I mean, you were doing it with the doctors overseeing it sounds like you did it the right way. And, yeah, for sure. And I think that Moreover, don't be just happy sitting there and withering or being sick all the time like try something. The examples are endless. I interviewed a woman yesterday who clearly has thyroid issues, and her TSH, in my mind, is elevated, and her doctor's mind isn't. And she's 10 years at it, 10 years just suffering along. And when I said to her, why don't you try the medication, she goes, Well, the the numbers, right? I'm like, Yeah, but that shouldn't make any sense. And meanwhile, she's telling a story about how she's advocating for her kid, but not for herself. And like, you know what? I'm just like, this happens constantly with people forever, and you know, at some point, you either get to a doctor who understands the bigger picture, or you get to a doctor who says, Hey, I'm sorry, but the thing in the box says, No, so you don't get it right,

Autumn 4:50
right? Well, and like how I mentioned earlier, thankfully, my mom taught me a long time ago to advocate for myself, because I can remember going to endocrinologist that they would just dismiss me. Or, you know? Well, this is what it was. I'm like, You know what? You're fired. I'm going to go find an endocrinologist that works for me. I'm going to find somebody that listens to what's going on, and they're not just looking at, you know what? The their again, their checklist says, Okay, this is how we treat this symptom. This is how we take care of that ailment. Like no health care has to be personalized to the individual's needs. And I don't give a rat's ass what your book says, or how many years you went to school. Yeah, I know how I feel right now. And I've never felt this good in my entire

Scott Benner 5:28
life. Tell people what your weight was when you started what it is now.

Autumn 5:33
Gosh, it was 238 at that initial appointment back in November of 2022 and right now I weigh 160 Wow. Good for you. And, like, seriously, the last 40 pounds, as soon as I took that insulin pump off, it just came off like water. And I can't even tell you how mind blowing that was for me, you know, like I had said that identity crisis, I also spent a little bit of time, like angry, like, mad. Like, how could I have been? I just felt like it was a disservice by the healthcare system to

Scott Benner 6:08
gone that long. Yeah, tell me more about that please. Yeah,

Autumn 6:10
I just because, you know, I think back to that endocrinologist, and I'm like, hey, something doesn't seem right. I'm using all this insulin, and it's like, you're type one, it's in your head. You need to get over it. Like, really? Like, how, how is that? Or, you know, I had even gone to her before, like, how do you even know I'm a type one diabetic? And it always went back to, well, it's in your head, or it's just because you've been diabetic so long, and all of these things. Like, I feel like I got robbed of the prime of my life, like times when I wouldn't want to play with my son because I didn't feel good, or because I was, you know, just just tired, exhausted, fatigued, because I just wasn't healthy. And, you know, now I look back and like, I could have had more kids, Scott, yeah, and I didn't, because of, you know, the doctor, oh, your diabetes. It's like, okay,

Scott Benner 7:04
then I guess that's not, not what's supposed to happen for me. And now it's and now it's gone. Like, I'm not trying to make you upset, but that it's over, like, that part passed, yeah, yeah, my wife and I went out the other day. It was Friday night, so we worked all day. And I mean, this is kind of boring, but, like she she travels for work a lot, and so she wanted to get Global Entry on her passport so she wouldn't have to stand in line coming back from other countries. But she had to make an appointment at the airport at 8pm on a Friday night to finish the process. And we drove about an hour, and we decided to do some shopping at this place that's near the airport that we don't get to very often. Let me just say what it is, because I think it adds levity. I really love IKEA's dish brushes for this for the kitchen. They're $2.99 They're awesome. Okay, it's black. It has a suction cup on the end. Buy them. They're absolutely awesome. Okay, and I've been using mine way too long, because I don't want to drive an hour towards the airport to buy a brush and but as soon as she said, I have to go to the airport, I was like, Oh my god. Can we go? Like, right? I was like, I need a dish brush and so, so we, we left early. Now this is the end of a day. Do you understand what I'm saying? Like, I like, I've been, I've been I'm old, I've been up, I've been working, I've been thinking, I've been talking, I've been sitting in this room, I've been typing, I've been letting people online yell at me. I've been helping. Like, you know, I've been I had a full day already. I drove an hour in traffic on the New Jersey Turnpike. If you've never been here, you don't know what I'm talking about. It ain't great. Okay, we walked around IKEA for a while. Because you're there, what are you gonna do? You go look at the hernkum burger and stuff like that. You see what else they got. And like we did the whole walk, I bought, I bought seven dish brushes, like

Autumn 9:00
you're not going back to that airport for a while.

Scott Benner 9:02
I was trying to minimize my travel, and so I spent the 14 and and then we went over to the Newark Airport, if you've ever been there, also not awesome. And eight o'clock, she has her meeting. She does her thing. We get done. She's like, are you hungry? I said, Man, I am a little hungry. Ted. I don't think I've eaten much today. I think I should eat. We drove all the way home, another hour through traffic, went to a restaurant, sat and ate, did all this stuff. It's like 1030 at night now, and we're sitting there and we're talking, and I said to her, I don't think we could have done this before the GLP medication. And she's like, what? I'm like, You really think we could have worked a whole week and then a whole Friday and then gone out and walked around for an hour and a half and then run across and then still, gone to dinner and been sitting here and talking to each other as bright eyed as we are right now. And I know people will be like, Well, yeah, you lost weight. Okay, like, I'm not gonna argue with that at all. But. So I'm telling you that without that, whatever the hell is in that stuff, and that really is I whatever GLP is, whatever that I don't even know and I don't care and like, but whatever it is, I think it has fundamentally changed how my body works. Absolutely, yeah, yes. I don't know how to quantify it, really, but I can tell you for sure that I wouldn't have done any of the things on Friday that I did. And then I started thinking about all the times that we'd walk around somewhere because Kelly be like, hey, you know, we need a chair, or we need then she'd take me out, and I'd walk around thinking the whole time like, I hate this, like I can't wait to get home. I'm so tired, I like and I don't realize I never going to be able to honestly quantify how much I was probably lying to myself about what my appearance meant to me in public. Sure, like, because I'll like, I'm you're going to hear me on this recording and in my personal life, I don't care what people think of me. I'm not my body, I'm my thoughts. And I really do believe all that, but I still believe, the farther I go forward, the GLP, that that's not completely accurate, because I saw a photo of myself the other day that somebody took candidly, and I thought, I'm okay if people see that. And before, I would have been like, Hey, can you delete that please? Like, you know what I mean, like, like, it was just at a weird angle and everything, and I didn't even care. And then I started doing the rest of the math. Like, I wonder what I didn't do with my kids or my wife or with my life, because I was belt held back by the amount of energy I had, or you talked about your elimination. I had that problem too, right? Like I didn't eliminate? Well, my iron was low all the time. My iron is not low anymore. That had its own impacts. Blah, blah, blah, blah, blah, and I'm going to go back to what I said earlier. I don't think we know where we're at with this medication yet, or what it's doing for people. And I'm happy to say because you brought it up, the pressure of knowing that if you tell somebody you're doing this, that some person who doesn't have the benefit of all this information and all this perspective and all these experiences is just going to go like, Oh yeah, you cheated and took that medicine. This episode is sponsored by tandem Diabetes Care, and today I'm going to tell you about tandems, newest pumping algorithm, the tandem mobi system with control iq plus technology features auto Bolus, which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. 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Autumn 14:25
Yeah, yeah. And like little do they know how much freaking work it is actually to take that medication, especially it's like you're titrating the dose up. And you don't always feel the greatest when that happens. But then you you have to change so many things about your life, the way that you eat, your relationship with food. I mean, the food noise completely gone after starting that medication was like a complete game changer in my life, like on top of all of the wins and the discoveries with my diabetes like that going away like, holy smokes. Anybody that wants. This medicine that their body can tolerate it, in my opinion, should be given to them freely, just like you could get birth control for free at a health

Scott Benner 15:06
department. Isn't it funny how we've sat around see older people are going to know this, younger people aren't going to know it as well. But I grew up through a time where people just sat back and they ruminated. They're like, one day science is going to find a way to stop this epidemic that we have of people's weight. I grew up through a media that talked about that it's gonna happen. We're gonna figure it out. And then, by the way, this all connects, whether it's the vaccine story I told about the online thing or the person telling me not to do the thing, this all connects. If you're not paying it, got to pay attention, okay? But like, back there the it's gonna happen. We're gonna fix it, we're gonna we're gonna move forward. We're gonna find better ways. And then we did that as a society, and then everyone just moved the goal post when you're a cheater, like, oh my god, you motherfckers. Like, like, it took some dork in a lab 30 years to figure this out, and he figured it out. And your hot take on it was, oh, you're gonna cheat like that. For the last 30 years, you've been saying, no matter how much I diet and exercise, nothing's working for me. The food's not right. Monsanto sprayed something on my corn. You guys have 1000 different reasons why you're being held down by something, and someone figures out your way around it, and then you become the thing holding the person down. Oh, my God, you're all stupid. Sometimes, me too, by the way, we're all stupid sometimes. But like, it's crazy, how it like, it's that goal post moving. Yeah, it's like, not good enough. You didn't do it good enough. But I tell you about before we started recording here, I got two people ranting and rave at me on Instagram. I can't believe you're using Instagram images. Do you know how much electricity that uses? Well, guess what? I didn't know how much electricity it used, so I looked it up, and then you know what else? I looked up how much electricity Instagram uses. Turns out the person who used Instagram to yell at me used way more electricity than I did to make the picture. And I was just like, none of us are perfect. That's all I came down to. Like, there is no perfect way to get through life. Like, so if you think railing about me using an AI image is a good use of your time, then God bless you. Like, go for it, right? And if you think yelling at poor autumn here for cheating is a good use of your time, and go for it, but she's off living a better life while you're busy telling her what she's doing wrong, right? And you

Autumn 17:30
know, what that person can do, they can grade off.

Scott Benner 17:35
But at the same time, like, that's, you know, in my personal life, like I explained to you earlier, like, you know, the way I responded to the person on Instagram, I was like, well, listen, I'm doing my best here, and I'm trying to I really do mean all that, and it's all, it's all sincere, but if it was just me in a room with them, I would 100% say, oh, you should go yourself and like, because I am like, I've said this before on the podcast, so I don't want to belabor it, but like, because it's not an apples to apples comparison. But every time something like this happens, I think of the line from and I can never remember the name of the movie, and you reminded me of it. The name of the movie is, oh, a few good men. Few Good Men. Where, at the end the bad, I mean, he's a bad guy, like, I'm not the, not the bad guy in this, but the way he feels, I understand, where he just says, at one point, like, I appreciate it, if you would just say thank you and move on. And it's the feeling that he has that, like I am out here putting my whole effort into something, I'm doing it for you, and you're over here telling me how I'm doing it wrong. And you know, in that scenario, in the movie, again, my analogy doesn't hold up, because he's actually doing something wrong, but like, but the way he felt, I can seriously dig into this deeper, the way he felt. From his perspective, he doesn't see it that way, and like, and that's the thing that you all need to understand about this, is that let's just for a second, just put ourselves in an alternate universe where Autumn's use of a GLP is wrong. She doesn't feel that way. She's having a different experience than you're having. So yelling at her that she's doing it wrong, even if she is doing it wrong, is not an answer to the bigger issue. Right and and I'm here to tell you I don't think you did anything wrong. I don't think I did anything wrong. I'm telling you that modern medicine came up with a way for me not to have low iron, not go to the bathroom on any particular schedule, be carrying fat in places that I don't understand, being tired all the time, you know, not being able to be myself in my own mind because I'm cloudy and all the other things we all run around all the time, inflammation. We got to get rid of it. We got to get rid of it. Somebody came up a way to get rid of it. And they went, Oh, you can't do that. God damn it. And then, oh, my god, autumn. You know what just happened there? I said, God damn it. Now some people are gonna send me an email and say, Oh, I love this podcast, but then use the Lord's name in vain, and I can't listen anymore. Y'all got to stop setting up guardrails and rules about how we can all. Talk to each other where no one's gonna say anything, and Autumn's not gonna find out that she could have been healthier. I've made my point now, autumn, tell the rest of your story. Thank you. Diabetes comes with a lot of things to remember, so it's nice when someone takes something off of your plate. US med has done that for us. When it's time for Arden supplies to be refreshed. We get an email rolls up and in your inbox says, Hi, Arden. This is your friendly reorder email from us. Med. You open up the email. It's a big button that says, Click here to reorder, and you're done. Finally, somebody taking away a responsibility instead of adding one us. Med has done that for us, an email arrives, we click on a link, and the next thing you know, your products are at the front door. That simple, us, med.com/juicebox, or call, 888-721-1514, I never have to wonder if Arden has enough supplies. I click on one link, I open up a box, I put the stuff in the drawer, and we're done. Us. Med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and the Dexcom g7 they accept Medicare nationwide over 800 private insurers, and all you have to do to get started is called 888-721-1514, or go to my link, us, med.com/juicebox, using that number or my link helps to support the production of the Juicebox podcast.

Autumn 21:35
I just, you know I really, really enjoy you, but you're a great, great, great, great guy. There's no doubt about

Scott Benner 21:41
that Autumn, I'm awesome. That's not why we're here.

Autumn 21:45
You did say something there, though about that, that experience with your wife at the airport and like the medication giving you the energy to be able to do that. But it just made me think, especially about the photo piece with I think about from the time I started on my insulin pump. Because that's the other thing I didn't mention before. I started on the insulin pump. Like, I never had a weight problem. I mean, I'm five nine. I've always weighed between, like, 161 70, and it was like, I put that insulin pump on and Damn, did that weight come? And it came for me, and it was, like, 30 pounds within a matter of, I don't know, two, three months and like, What in the hell is going on? Like, I eat healthy. I barely eat carbs. Like, why am I using all of this insulin? There are so few photos of me with my family, with my son, with my husband. And, of course, the ones that we do have, you know, I had to make sure that they they were okay. Like, okay. I don't look like a complete cow in that picture. Like, yep, we can share that one kind of thing. And now I'm over here where people will, oh, my God, you look really great. And I'm almost like, I don't, I don't want you to, I don't want to talk about it, because I want to skirt over the fact that, how did I get here? Because I don't want to deal with their judgments or their their bullshit when it comes to, you know, what they think I should have done with my life, but I do know that that medication led me to one removing the pump, to finding out that I'm a type two diabetic, that it's actually Modi for the 1% of the 1% and I told my husband, we met me like I'm a special unicorn. Not sure if you're aware of that, but

Scott Benner 23:17
this test actually proved it for Yeah, you didn't realize how right you are right.

Autumn 23:21
I know right, right, but it's just like, people are nicer to you when you don't wait when you're not overweight. I didn't realize that before, because I just try to be nice to everybody. Like, I'm a big advocate of, like, human kindness, regardless of what's going on. Like, just be kind to people. I've had more people offer to help me. Like, I'm at the gas station with a flat tire, just a random guy, like, Hey, do you need any help? And I'm like, Are you talking to me? Like, why are you trying to help me? That would have never happened, you know, 80 pounds ago. I'm sorry. It just would not have happened.

Scott Benner 23:51
That's crazy. Yeah, I don't this. I don't, I don't imagine you're wrong. I just it's, it really is insane. I do feel the same like I don't. I wouldn't understand treating somebody differently for how they appear, but also maybe I have a perspective of a person who appeared that way, so at some point, yeah, I wouldn't have judged myself for it. So maybe I wouldn't have judged other people for it.

Autumn 24:13
It's like, that's the thing, like, I guess I just, I don't know, let people be who they are, let them do what they do. And you know, sharing stories helps. I mean, that's part of how we get through society, is by sharing our stories and by learning from each other. And when you want to shut it down because you don't agree with me, like you don't have to agree with me, that's fine, but it's still my reality. I'm still going to share the fact that this is how I got here to this new diagnosis and this new life where, you know, I feel great and I have energy and I want to do things, and, you know, I'm not trying to nap constantly because I'm exhausted all the time. Yeah, I

Scott Benner 24:44
also think it's important to like, you know, another thing that people used to talk about when I was younger, before the world got so complicated, is that, you know, people learn as they go, and you don't judge them on what they thought before, you praise them for what they figured out. Right? And so, you know, because there's a certain, I can hear people in my mind like there's a certain, by the way, that's not because I'm schizophrenic. I just, I know what's gonna happen. I can hear people saying, Oh, sure, well, he used to think this, but now he says this. He's a hypocrite. I'm not a hypocrite. I'm a human being who learns something, and now I'm continuing to share. And by the way, if you would have gone back 10 years ago and heard me say something. I probably say it more clearly now, but if I hadn't said it, then I wouldn't know how to say it more clearly now, you have to let the process. You have to trust the process of being alive and learning and growing and and not not want to hold people accountable for things that they thought or did in the past that they understand are different now, this happens to everybody. Yeah, it's not. It's not a thing that happens to just bad people, or people were dumb and then they weren't. Or like it's it's happening, if you think that it's happening to you right now and you don't know it, because 10 years from now, you'll look back on this moment ago, I shouldn't have judged those people that way, and by then it's too late, because you already ran around telling people they cheated or they're bad, or, you know, blah, blah, blah, blah, blah, like, whatever it is that you thought you were fixing the world with today. That's not how I'm going to say this over and over again. I say it in the Facebook group all the time. Telling people they're wrong is not a good way to get them to know they're wrong. Like, that's not how you do it. They say something. And maybe you have a different perspective. Maybe you're a little older, a little wiser. Maybe you've been through another thing that they haven't been through yet. Maybe you've just seen a part of the path they haven't seen yet. You just share your perspective with them, and one day they'll see it. It's not going to be that day. It's not going to be that moment in my life. I have never disagreed with somebody and talked them out of it, but you could give them ideas and walk away and let them go live their life and see if it doesn't come back around for them in a way that makes them figure it out right? Exactly? Yeah, I told on them before we started today. I think I told you about like the the emails I get emails sometimes from people, and they, they, they tell me how awful I am, and then, and then a lot of them will write back six months a year later. Some of them don't go to the trouble of telling me how awful I am. Some, some of them just write the second email. And I got one of those the other day, and I mentioned it the other day. I won't say the person's name again, but I again, but I thank the person because they started listening and really didn't like me for a number of different reasons. They hated me, but persevered, kept listening, and now are doing really well, and they took the time to write an email to apologize for a thing that I didn't even know they were doing, which I found to be incredibly kind. Yeah, and I'm not saying that. I'm always right, and you'll figure it out one day. I'm saying that some of the things you hear you don't intersect with, well at some points, and then maybe later, when you have more information, you'll intersect with it differently. And that isn't to say that some of you just don't hate me and not and have really good, great reasons for it. I'm sure you do right on like, you know what I mean? Like, I there are people I don't like to I don't know what to tell you, and I don't have the time or the inclination to figure out why, but in the light of what's going on in the world right now, as a person who makes content, I'd like to point out to you that it's incredibly unhealthy. If you keep listening to me and you don't like me, you should really stop. Yeah,

Autumn 28:31
but scroll past, yeah. Keep

Scott Benner 28:34
moving right. Think of me as something you can scroll past and and head off, although, let me say this, you know, again, as a timestamp, I am not an avatar. I'm a real person, okay, like you ranting and raving about me, or, you know, showing up somewhere where I am, which hasn't happened to me gleefully, but is happening to other people. And like you're not down voting me on Reddit, right? I'm not a thing you disagree with that you get to put a check mark on, or a thumbs up or a thumbs down or a sad face on. I'm an actual person, and if you don't know that, I mean, I'm not a person who just randomly says, Go touch grass. But you probably should put your device down for five seconds because, yeah, because I am not a pretend thing on the other side of your screen. And you're not either, by the way. And if we intersect in real in the real world, one day, your misunderstanding of what it is when you think of somebody digitally, but then meet them personally, most people just, you know, say, Hey, what's up? But every once in a while, a person who's too far down a path does something crazy, and it's not man, it's not cool, and all that's going to lead to is people not sharing their perspectives and stories not being told, and people not taking a lifetime to learn and move forward and coming to a better decision. And we're not going to move forward if you stop people from talking absolutely and I think that a part of that is to see that I'm not I'm not an avatar, I'm an actual person. I'm not always right, I'm not always wrong. You're not always going to agree with me. Sometimes I'm going to be doing things you don't understand, and sometimes I'm going to be doing things I don't understand. So, yeah, I don't know what the answer is, other than be nice and keep your hands to yourself. Yeah,

Autumn 30:29
exactly. Just be kind. Yeah, keep your hands to yourself and be kind. That's all we got.

Scott Benner 30:34
You know, all the stuff you tell a five year old, like, just do that. Anyway. What have you not talked about that you wanted to although this episode, I love this episode,

Autumn 30:45
so I'm glad, I'm glad. I am so thankful to be able to share this story. You know, for me personally, next steps, like I mentioned, I'm going to meet with my endocrinologist from the University of Michigan atypical Diabetes Program this coming Monday, and we're going to hash out that sulfur Ariana, probably not saying that 100% correctly, but it's close enough. And essentially, you know, the medication, it allows your pancreas to secrete more insulin. You know that the mixed message, kind of from the two doctors in the same department, one saying you make enough insulin your body doesn't secrete. The other one saying, Hey, I'm concerned, if we, you know, put you on this medication, it's going to push all the B cells that you do have left that are healthy, and you might end up back on insulin. And for me, I'm not scared of that, Scott, because I took insulin for 31 years. We're still taking insulin.

Scott Benner 31:35
You're willing to try it like that's yes, it occurs to me, while you're talking, that you're not likely to find one doctor that has all the answers. You're likely to find a few people that understand certain parts of this, and then you're going to conduct a science experiment on yourself and try to figure it out. And you're telling me that that's better than living the way you did before.

Autumn 31:54
Absolutely, yeah, absolutely. There's no doubt. And you know, the other piece that I'm really excited about is both my parents are still living and they are going to have their genetic testing done so that hopefully we can help more people, you know, with Modi and figuring out, you know, early diagnosis, so that there are children in the world that don't spend the 31 years on an insulin pump when they never really even needed the medication in the first place. So I'm excited. It's kind of like my pay it forward, I guess, like, I want to give back in a way, and lovely, and if that means you throw me in a lab and do all the tests and sign me up because I, again, I have nothing to lose, and helping somebody else is really my goal at the end of

Scott Benner 32:32
the day. That's lovely. That really is great. I will tell you this. I used to make ads for Jibo hypo pen, and I might again in the future, but I don't at the moment, but when I started making them, I had to say, sulfano Uriah, and there you go. I don't know what I was saying, but they would send back the audio and go, you're not saying that correctly. And so I wish I would have recorded it, because I basically sat here. They sent me a clip of it being said correctly, and I would like, sit here with my eyes closed, hit play the clip. Would say, so final urea. I'd go, so final urea. And then it was just, it was just me going, so, final urea. So final urea. So until it felt like it flowed, because I had to say it in a sentence, and I couldn't stop to think about it while I was saying it, because it needed to flow out and sound like it's not the first time I had heard the word right, and I got it all done. I was super excited. I sent it back to him. They're like, you're

Autumn 33:27
not saying it right, okay. But

Scott Benner 33:29
anyway, I don't know if I'm saying it right now or not, but definitely don't judge yourself on it, because Scott spent two hours on it and he's not sure.

Autumn 33:38
Listen, I'll be candid when the doctor first said it to me. I'm like, is sulfur Uranus? What do you what? I have no idea what you're talking about. And then I couldn't pronounce it, so that's what I would refer to. It to my husband, like, you know, the sulfur Uranus medication they want you to me to try. And he's like, is it really what it's called? Like, no butcher the way that it said. And this helps me remember, so

Scott Benner 33:57
you gotta do beating my hand on my thigh. Now, wondering, can we call this episode sulfur Uranus?

Autumn 34:04
I'm totally fine with that. Go for it. That was the piece. Sulfur Uranus. Here we go. Let's see if that's the next thing to change my life, other than everything I've gotten to this far.

Scott Benner 34:17
So I just imagine people listening, hearing your whole story, hearing me rant and rave, and thinking like, when does the part where you put the sulfur on your anus come in and

Autumn 34:30
that that will be, it'll be interesting to see how Monday goes. And then, you know, I'll shoot you an email to let you know the piece that that there is one other thing I wanted to it's, it's not about me. It's actually about my father. I had mentioned to you about him having that heart attack back in May, and he spent 18 days in the hospital, and he's type he's a type two diabetic. Can I tell you how disturbing it is the medical professionals in this hospital that have no clue how to treat diabetes? Days, whether it's type one, type two, they're giving this man insulin, crashing him, bringing him all the way up to 500 crashed him again. I'm like, can you stop? It got to the point where I just simply was like, we refuse the treatment. Like we can't do that. Mike, actually, I can. It's my right. We're refusing the treatment because you keep bringing him up, crashing him down. Just stop. We're telling you what he needs, and you don't want to listen, because it's not what your freaking book says. Take your book, throw it out the window and listen to what I'm telling you. Yeah, it's just, it's a shock to me how uneducated they are and how unwilling they are to listen.

Scott Benner 35:33
Yeah. I mean, I'm shocked by that pretty regularly, and at the same time, I've had enough conversations with people that I don't blame them the same way that I used to. Yeah, there's something about the process that of leading people to into that into that life, that doesn't allow them to, like, fully understand everything that they need to understand and the limits of humans in general. Like, you know, you can't, yeah, you're not. You're not a limitless, I, you know, thought machine, and then the pressure that goes with it, and, you know, the long shifts and so many people, and I'm sure the hospital is telling you to go faster and do this, and blah, blah. And, you know, like, there's just, I think it's like everything else. I think there's just too much to tackle. And, and may I also say autumn that I know that it's probably attractive to just blame something and say, well, it's the reason of this, but I don't think that's the case anymore. Like, I think it's possible that we've just been here so long, and society just has so many nooks and crannies, right? That this is what it looks like at this point. Like it's we can't, I don't know. It's like a bunch of extension cords wrapped around each other, like we're not going to be able to, like, untwist them all sure this is just how it works now. And would it be great if you could go back to simple and start over? Sounds simple, but it would eventually get convoluted again. And I don't know what the answer is going to be like. I'll tell you. Like, there is part of me that thinks that the answer is going to be, I know people will hate this, but like, the computers being able to, like, just sort through things and to take away the stuff that you can't possibly know and make it readily available so that you don't need to be able to access it through your, you know, the meat thing inside of your skull. Like, it'll actually somebody can just say to you, like, look, this is the real answer, because then your dad blood sugar doesn't get jerked around while he's in the hospital, right? Yeah. And

Autumn 37:45
I, I, I would agree with that piece. And I feel like, you know, there's just so many if I put myself in a medical professional shoes, and I went to school, I read this book. It tells me this is what I'm supposed to do. It goes back to that point of healthcare not being personalized, but also they're just doing what they were taught and what they think is right. And I don't think they're willing to take the risk just for the random guy laying in the hospital bed. You know what I mean? Like, they might be more willing to take the risk if it was their loved one, like I was willing to take the risk and advocate for my dad or advocate for myself. They have too much to lose. It's their livelihood. It's their license. I get those things, but it's so freaking frustrating. Of

Scott Benner 38:24
course, yes, terrible, yeah, you're just autumn. Like, like, there might be, like, look, I went to nursing school. I've been doing this for six years. I report to three doctors. This is a hospital I'm in. Like, you know what I mean? And you're telling me, I got to listen to autumn, right? You know, I don't know you. And so I take, I mean, I take their perspective. I understand where they're at, but it doesn't stop that thing is happening to your father, exactly, and it doesn't stop you, by the way, you know how you now have a new perspective, like you've leveled up your perspective, because you talked about wasted time. And I have that perspective from years ago, not through my own life, but through a conversation I've had that I've commented on here a number of times, somebody online just needed help. Like, back before, I had this kind of whole ecosystem really set up where, you know, you could go to the Facebook group somebody might help you. You can go find an episode that'll help you, like, it'll help you, like, it'll lead you to other ideas you can kind of get through it on your own. Like, it's a little more self service now than it used to be, sure, and right? So people used to say, like, Oh, that guy, Scott, could probably help you. And then somebody would message me, and then I'd get on the phone with them, which I know I've said in the past, is probably, like, the part of how the podcast got started. Because I was like, Oh, I talked to this person for an hour, and now they're okay, yeah. What if more people heard that? And so have this, you know, experience with a woman in her 40s, if I'm remembering correctly, she had a lot of kids, if I'm remembering correctly, but you guys have all heard me on here, and I think more than two is a lot, so I don't remember exactly how many she had, but she had a lot of kids and diabetes for over. Very long time, and I basically just chatted her up for 45 minutes or an hour, and didn't do anything different than I'm going to do it to touch by type one event on Saturday, like, I'm just going to stand up on a stage for an hour and be like, Hey, listen, diabetes. Here's how I think about it. Go off see if it helps you. And, you know, and I did that with her, and then she contacted me back a day or so later, and was thanking me, and this was all private. It wasn't on the podcast. And then she starts crying, and really crying, and all she could say was, Why did no one tell me this? I've been living this way for decades? Oh yes, yes. And that that lost, that feeling of Lost Time stuck with me so deeply when she was talking about it, when she was talking about like it's possible that my health has progressed to a place that I can't get it back again, and I have small children, and I lost all this time, and it was so overwhelming to her, she couldn't, almost, in the moment, enjoy the fact that she'd figured out the answer. And so I said to her, I'm like, Look, I don't know what. I don't know what to tell you here, other than to say, you know now, so just move forward, cross your fingers and try to enjoy your life, you know, like, because I don't, yeah, what else am I gonna say, really, but the conversation, I never forget her. I don't know her name, I don't know all of her details. I know that. I know the agony in her voice when she realized that there was an actual answer. She didn't have it, and the days and hours and weeks and months and years of her life had passed by that she won't get back again. That part really hit me, and it hit me just as hard when you said

Autumn 41:38
it too, like, that's the thing Scott like again. January 2022 is when I started listening to your podcast. And I had been diabetic for many, many years. At that point, I learned more from listening to your podcast about bumping and nudging, things I could do, about being bold with insulin, all of the tips and tricks that you put out there and like it was mind blowing to me to think like, why isn't this information more readily available? Why isn't there? You know, you get your little kit to go home with when you leave the hospital because you're diabetic now, but you know, where is the link to the podcast? To say, hey, this can help you. It doesn't mean that it's it's correct or it's going to work for you, but just listen, because there's things that you can apply to your specific situation. And I use those all along until, of course, I got to the point where, hey, let me try this for my insulin resistance. Let me keep pushing. Let me keep advocating. Like I said, I feel like I was done a disservice, you know, from the health care system because I had a problem with insulin resistance. And instead of the doctor saying, hey, there's something that we could try, you know, they said, no, these still fit over here in that box, and I'll always go back to that the healthcare meeting to be personalized and for people to advocate for what they need, because the time is lost and I can't get it back, but I am trying to, like I said, pay it forward. How can I take what I've been through to help somebody else that maybe gets diagnosed? I'm glad that 13, you

Scott Benner 43:00
know, you know, I'm so I'm so happy for you, you know, I'm just thrilled that you found this place. And I hope that you can, you know, hope that in some time, you can, you know, do what I said and to that other person, which is just, you know, kind of draw a line and start over again. Yep, don't think about what was lost, you know. Think about what you've got left and and how much better. Yeah, I really do. I hope that for you. Yeah, and I agree with you about the personalization of healthcare. I also think that, as you were explaining that it made me think of my stupid analogy about the electrical cords and maybe the podcast is just the outlet extender at the end of that whole thing. Like, you know what I mean, like, maybe it's just, it's it fits in that, in that whole mess, because that's what the mess is, and this is what it needs. Like, like, I've said this on the podcast a number of times, and I genuinely, at this moment, believe this, and I don't know where I'll be five years from now on, okay, or what the implications are that I don't understand, but I think someone should develop an app that you just tell your medical problems to and I think it should be run by an AI that can collate everything you've said and give you back suggestions about what you should look into, because I can't figure out, as we're talking, exactly what it is about you, like, what is the stew of you that allows you To make your way through this. And what do other people not have in their stew that won't let them get through your same prompt? Because there are plenty of people we could have dropped in your same situation that

Autumn 44:30
would not have come out the other side of this. Oh, for sure, right? I could not agree more with that. Yep. And that's

Scott Benner 44:34
random, and lucky for you. Yeah, right. And so we can't go finding other people and telling them, like, go do the right thing. You'll get an answer. Like, they might not have that ability or time or research or whatever, like, they just might not be able to get to it. But wouldn't it be awesome? Everyone's got a phone at this point. Like, wouldn't it be awesome if you just sat down with your phone and told it all of your little problems and then at the end, had its. Say to you, like, you know, this is crazy, but sound like you're Modi four, right? Yeah, and that's a real like, unicorn thing, but like, I'd go say this. Go show this to like, let's print out a one page here. Take that to the doctor, see if they maybe wouldn't see our sense on this, and look into it for you, right? I don't think that's crazy at all, by the way, and I and in my mind, it's the only way you're going to accomplish it for the largest group of people, because otherwise you're counting on the doctor knowing you, seeing you, being able to communicate it correctly, them being able to hear it correctly, them having the knowledge and the perspective and having heard enough stories where they'll be able to like, you know, two plus two is four at the whole thing, and I just think that's not gonna work. It hasn't worked so far. You know what I mean, like, so anyway, that's my hope. My hope is that because I've done it here. Have you ever heard me do it on the podcast with somebody?

Autumn 45:52
Yeah, I actually have where they've explained to you what they're thinking and you say, Oh, I think it could be this, yeah, but, or have you checked into

Scott Benner 45:59
that? Well, there's also, well, yeah, you've heard me do it, but that's just me working off my database of what I've heard. Not, you know, I didn't go to college and listen, or anything like that. I'm talking about. There's a couple of episodes where somebody had like, all these things wrong, and we just sat together and put it into, like, chat, G, P, T, and at the end, it was like, I think this. And I'm like, huh, that sounds right. And then they took it to a doctor, and they're doing better now. Like, that's amazing. Yeah, actually did that with somebody very recently. So anyway, but then, yeah, again, you'll say that, and then everybody's gonna be like, it's using a lot of

Autumn 46:33
electricity. You're killing everybody, and we let the AI go. We got to get back into reality over here,

Scott Benner 46:38
ruining the world. And like, I'm okay, all right. Anyway, you're awesome.

Autumn 46:44
Autumn. Thank you. I appreciate that. And like I said, I am a special unicorn. I just didn't really realize that I was the 1% of the 1% out here. And I will say, I feel like my doctors at the University of Michigan and the geneticists and everybody, I feel like they're always really happy when they see me, because I get to just add more to their case studies.

Scott Benner 47:06
I did hear you a number of times say things that made me think, Oh, she did eventually run into some really good doctors. I

Autumn 47:12
did. I am so blessed to have found them. There's no doubt about that. And you know, the genetic specialist, when we were going through the Modi testing, they actually thought I was going to be Modi three, because I do have some renal cysts on my kidneys. And they're like, oh, yeah, this is you. And they told me it would take probably four or six weeks for those results to come back, and it was within maybe five days. And I'm like, Why are they calling me? They were so excited. They were like, you, you're really special. Like, you have Modi four. And I'm like, what does that mean? Like, like, this is just really rare, and you're the 21st case that we have in our registry. And I'm like, holy, 21st Yeah,

Scott Benner 47:48
all right. How does this work for me? Can I get this fixed? Like, I see you're excited, and that's awesome. But like, yeah, yeah. All that means an answer, yeah.

Autumn 47:56
And when do I start taking this all for Uranus? Because

Scott Benner 48:00
I have to tell you, just so you all know how my mind really works. I'm down to wanting to call the episode unicorns anus, but it's probably going to be autumn needs an answer. That is true, yeah, I mean, but if I had my druthers, just no unicorn anus would definitely be the episode title,

Autumn 48:20
you know, Autumn needs an answer. Unicorn, anus, that's it right there.

Scott Benner 48:25
Put a colon in it. No pun intended on the colon thing I meant, I meant, I meant semicolon. Did I mean semicond? I meant colon. Autumn needs colon. Autumn needs an answer. Colon. Yeah. Anyway, sorry, I don't know my punctuation.

Autumn 48:44
That's okay. You'll figure it out. And if not, you have AI, they'll help you, not in this

Scott Benner 48:49
lifetime, not if you not. If you saw my English scores when I was in school, you wouldn't say, go figure it out. You'd say, How come that guy doesn't know where a comma goes?

Autumn 48:57
Well, you know you are from New Jersey, so we have to forgive you. Look at you

Scott Benner 49:01
coming around on me making fun of Michigan an hour and a half ago. Very nice. Oh, you're awesome. All right, autumn, hold on one second for me. Okay.

US, med sponsored this episode of The Juicebox podcast. Check them out at us. Med.com/juicebox, or by calling 888-721-1514, get your free benefits. Check and get started today with us. Med, the podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby with control iq plus technology at tandem diabetes.com/juicebox there are links in the show notes and links at Juicebox podcast.com a huge thanks to cozy Earth for sponsoring this episode. Don't forget, Black Friday has come early at cozy earth.com right now. You can stack my code Juicebox on top of their site wide sale. This is going to give you up to 40% off in savings. And these deals are definitely not going to last. I'm talking about sheets, towels, clothing, everything they have. Get that holiday shopping going right now today. Do it? Do it. Do it. Cozy earth.com. Use the off code Juicebox. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes. I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card?

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#1690 Autumn Needs an Answer - Part 1

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Autumn, diagnosed type 1 at 13, discovers after 31 years she’s MODY. We unpack misdiagnosis, GLP-1s, insurance roadblocks, self-advocacy, and how one podcast episode changed her entire life.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.

Autumn 0:15
Hi, good morning. My name is Autumn. I am a 44 year old female who was diagnosed with type one diabetes in 1994 at the age of 13.

Scott Benner 0:24
If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. This episode of The Juicebox podcast is sponsored by the Omnipod five and at my link, omnipod.com/juicebox you can get yourself a free, what I just say, a free Omnipod five starter kit, free, get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox. Links in the show notes. Links at Juicebox podcast.com. I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year wear CGM that's one insertion and one CGM a year, one CGM, one year, not every 10 or 14 days ever since cgm.com/juicebox us med is sponsoring this episode of The Juicebox podcast, and we've been getting our diabetes supplies from us med for years. You can as well us med.com/juicebox or call 888-721-1514, use the link or the number get your free benefits check and get started today with us. Med,

Autumn 2:31
Hi. Good morning. My name is Autumn. I am a 44 year old female who was diagnosed with type one diabetes in 1994 at the age of 13,

Scott Benner 2:41
auto is most people's favorite part of the year. Don't you think?

Autumn 2:46
You know, I do enjoy the fall. However, I could skip winter and go right back to spring, because here in Michigan, winter is quite brutal. Oh,

Scott Benner 2:54
Michigan, yes, yeah, it's basically Canada. It's not good. No, no, I hear you. My brother's up there in the Wisconsin. I don't know what he's doing. He says it's more it's easier for him.

Autumn 3:07
No, I tell my husband regularly, like we are adults. Why do we choose to live in a state where our face freezes off in the middle of winter? Like, what are we doing here?

Scott Benner 3:15
Isn't that interesting? Can we take a sidebar before we even begin? Absolutely awesome everyone says that, but no one does anything about it,

Autumn 3:25
right? Those damn kids get in the way. You can't just leave them.

Scott Benner 3:29
It's what it is, right? Like, because I'm in the same position, like, nothing would make me happier than getting out of here, like, and only about the weather, actually, like the place. I like the people, like, I'm good with all that. I would prefer we did a little traveling this this summer, and I got a chance to see San Diego for the first time. Okay? I might rather be living outdoors in San Diego than in my house in New Jersey, right? It's so nice there the weather, but I won't actually, first of all, it's bad example, because I and most other people can't afford to live in San Diego. But like, that part, yeah, there's that part, but that's that part. Aside for a second. If I could, I wouldn't go, yeah, and it's the end. It is about my kids, Partially, partially. But it's also about, like, I don't know, there's that thing hanging on the wall over there. Like, how the hell am I getting that down? Won't it just be easier to die and make my kids take care of this? You know what? I mean?

Autumn 4:25
Yes, yes. And then you'd be painting every bedroom or room in the house instead of just one. So

Scott Benner 4:30
yeah, Autumn unfairly knows that we're painting our living room, which was before we were recording but nevertheless, so if it's money or help or I don't know what it is, it slows people down. But it's interesting that so many people have that. Like, I really wish I could go hear desire, but so few people actually do

Autumn 4:48
it. Yeah, I mean, I moved around quite a bit growing up, and it was important for me, once we had my son, that he had a place, that he had roots, where he could say, I grew up with these kids. You know, I wore diapers with. Med daycare, and then proceeded to go to elementary, middle school, high school with them. And my husband and I have talked a lot recently, like, what happens when he's done with school? Because if he doesn't choose to stay here, you know, what's really keeping us here? It's just him and I. We have very little family. So you know, do we relocate? Do we look to the sunny, sunshine state of Florida? Is it somewhere down south. I mean, I don't know, but possibilities are endless.

Scott Benner 5:23
Yeah, they really are. But you'll die in Michigan.

Unknown Speaker 5:26
I know you're 100% right.

Scott Benner 5:29
If you moved around a lot as a young person, how did you end up in Michigan? No offense to people in

Autumn 5:33
Michigan. Yeah, no. So I actually was born here in Michigan, and Port Huron and we took a turn down to Missouri for a few years, came back to Michigan and landed on the west side of the state, which is where I was diagnosed with the diabetes, came back to the east side of the state, went to university down in Ypsilanti, which is where Eastern Michigan is, and just kept my life down here after I had started a career and friends and family and yeah, but I mean through that time, I had four different high schools. My dad in automotive, he's an automotive engineer, so just constantly moving with the job. And you know, you just go where your parents go, obviously, until you're an adult. So yeah,

Scott Benner 6:12
did you ever get a chance to speak with your father? Do you think he was, Do you think he was, in retrospect, happy that he moved around for his job? Or do you think he wished he would have laid down roots.

Autumn 6:21
But you know, that's interesting that you ask that. So I'm fortunate. My dad is still here. He suffered a major heart attack back in May, the quadruple bypass like his kidneys failed, like the whole kit and caboodle, by the way, he's also diabetic, which we'll obviously get into a little bit further. But one thing I hear from my dad a lot now is that he wishes he had never left Fort Huron. He wishes that he had stayed there. He had, you know, laid the roots that he had grown up with all of his friends that you know, he had known since grade school. So,

Scott Benner 6:50
yeah, interesting. So you're telling me that no matter what I do, I'm going to regret it later.

Autumn 6:55
Pretty much awesome. Are you crying? Did I make

Scott Benner 6:57
you cry on him?

Autumn 6:58
No, but I am a crier. So there will be a point today where I'm going to be like, I got to grab a tissue. So, you know, like, I'm not a crier. We're like, Oh, boo hoo. Like, I'm just a very passionate individual. So like, that'll come out. You'll you'll definitely get to hear that. And if you could see me, you would know my nose is like, bright red, like Rudolph the Reindeer, and like, I can never hide that I've been crying in any way, shape or form. I wish you

Scott Benner 7:19
could see me in my regular life, but I'm like, I'm not yelling. I'm just really passionate,

Autumn 7:24
right, right? Exactly.

Scott Benner 7:26
I really do feel that way. I just really, like, generally, you know, when that happens, I'm either very excited or sad. You know, it's not usually anger, like, it's just like, I get louder when I'm talking and I'm motivated about something, and other people who don't know that are just like, what's wrong? And I'm like, you know, it's funny, because I'm adopted, so I don't really know my background, but I did that 23andme thing because I wanted the Chinese to be able to control me or whatever it is, right? And I now found out I'm like, mostly Italian, oh, and I want to be like, if it's because I'm passionate, because I'm Italian, but am I like because I didn't grow up with it? You know what I mean?

Autumn 8:08
Like, sure, sure, nature versus nurture. It's just the part of you. I

Scott Benner 8:12
Maybe I don't know. I'm just saying it's not my fault. Okay, so you were how old when you're diagnosed? Did you say 13 or 14? I was 1313. Look at me. Remember things, good work, any memory of the time? Yeah.

Autumn 8:25
So it's kind of what led me into, you know, where I am now, when I started listening to the Juicebox podcast, book, I can't even speak. I'm just kidding.

Scott Benner 8:38
I really have never been to Michigan. I'm sure it's lovely,

Autumn 8:42
you know, they do say a lot of great things about this date. But anyway, I digress. So, yeah, I started listening to your podcast back in January of 22 and I mean, I had been diabetic for pretty much my whole life at this point, and I'm learning so many new things. And people will always bring up their diagnosis, and like, you know, they were typically, you know, very ill DKA, you know, the sudden weight loss, all of these things. And I'm thinking back to my own diagnosis, and like, gosh, I don't, I don't remember that. Like, I remember having migraine headaches all the time that I constantly needed something to drink. And it was always like, Mom, I gotta go pee. Like, I can you pull over. Like, we need to go to the gas station. I gotta go. The migraines got to the point where, you know, my mom just like, something's not right. We need to get you checked out. Ended up in the emergency room. You know, my blood sugar is over 500 and immediately, at that point, they're just like, oh yeah, she's a type one diabetic. And we're going to send you over to the department where they're going to teach you how to shoot insulin into an orange. And this is just going to be your life as you move

Scott Benner 9:40
forward, the Department of orange shooting, yes, yes.

Autumn 9:44
You know, I don't know why they pick an orange. It's not like you can really pinch that up so you can get under the muscle, into the fat. But hey, whatever it worked in 94 I'm sure it still works today.

Scott Benner 9:53
I've heard other people say bananas. It seems like whatever fruit is is a little old in the cafeteria, is what you get. Maybe. Yeah. Wouldn't that be something if there's like, an entire group of people who think about it like it's some rule, like, you inject into an apple or an orange to learn how to do injections. But really the answer is that it's just whatever fruit is going bad in the cafeteria.

Autumn 10:13
Yeah? Exactly. They don't want to have to waste it, so they got to use it somehow. Yeah,

Scott Benner 10:17
here, use these. Yeah. So you're on your way. Did you Your dad has diabetes type one or two,

Autumn 10:22
so he was diagnosed as a type two. He was probably 3536 at the time. And then his mother, also diabetic type two. And then his great grandmother, diabetic type two. They weren't diagnosed until, you know, their 60s, so we never really thought too much about them, because, you know, you get older and obviously you become diabetic. But the one thing that really sticks out for me about, you know, my grandma and my great grandma is that, like, they weren't unhealthy, they weren't overweight, they didn't they weren't the typical things that you might think of a type two diabetic that, oh, you're just not eating well and you don't exercise enough, like they checked all the boxes of Healthy People, so them being diabetic doesn't make sense to me now, and you know, that's part of why I've been on this journey to figure out what actually is wrong with me. Yeah, I

Scott Benner 11:10
hope I live long enough to see a number of things. But one of the things I'm interested in, it's more specific to the podcast thinking about what you just talked about. My dad had type two diabetes. My grandmother, his mom did his brother. Did? You know my grandmother grew up farming, you know what I mean, like she ate fresh vegetables, fresh livestock, and moved constantly, and still had type two diabetes, and my dad had that hard belly. You know what I mean? So did his brother. I'm just wondering, like, at what point are they going to take those injectable glps, turn them into pills, and you're going to just go to the doctor one day and somebody's going to go, like, look, trust this. You're going to have type two diabetes one day. And get ahead of it. And I wonder, I wonder for how many people will that perhaps make it so that it never occurs? Or how many people would make it so that if it occurs, it's muted to the degree where it doesn't shorten their life or create strokes, which is what killed my grandmother, or heart attacks, which killed my uncle, or, like, you know, you know, like, etc, I wonder.

Autumn 12:20
Anyway, you know, I wonder this all the time, because, you know the GLP medication, I'm on a tricepetide Now, the mangiorno, 15 milligrams a week, and I can tell you, hands down, this medication completely changed my life. Sorry, this is where you might get some of the tears. No,

Scott Benner 12:36
you're gonna make me cry, because I think it changed my life too. But go and we're gonna sound like two diabetes that are like, going like, gops are awesome, but go ahead. Like,

Autumn 12:44
I mean, they just, they really are, Scott, I mean, you know, like I said, I started listening to your podcast, and I'm learning more and more. And you know, insulin resistance had become a really big problem for me, and I had gone to my endocrinologist, and she's like, well, you're on a pump, so we can't do anything really with metformin, because it can cause DKA, and this, that and the other. And I'm like, Okay, at this point, I've been diabetic. 2728 years. I've never had DKA once. I'm not scared of it. Like, can we please try it? No, no, no, no. She comes back to me probably six months later, like, oh, they changed. The FDA said, you can. I don't know all the medical bullshit that they try to throw it.

Scott Benner 13:20
I gotta jump in. Hold your thought. Yeah. What an indicator from your provider that they don't know what they think about anything. They just know that it was written down somewhere, and so they're not gonna do it. Yeah,

Autumn 13:30
exactly, exactly.

Scott Benner 13:34
You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't respond to the email, because I don't trust myself 100% so one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording was like, us. Med doesn't actually sound like that, but you know what I'm saying. It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it? Push this button if you want us to send it, or if you'd like to wait. I think it lets you put it off, like, a couple of weeks, or push this button for that. That's pretty much it. I pushed the button to send it, and a few days later, box right at my door. That's it. Us. Med.com/juicebox, or call 888-721-1514, get your free benefits. Check now and get started with us. Med, Dexcom, Omnipod, tandem freestyle, they've got all your favorites, even that new eyelet pump. Check them out now at us, med.com/juicebox, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at Juicebox podcast.com to us, med and all the sponsors. Today's episode is brought to you by Omnipod. Did you know. Showed that the majority of Omnipod five users pay less than $30 per month at the pharmacy. That's less than $1 a day for tube free automated insulin delivery, and a third of Omnipod five users pay $0 per month. You heard that right? Zero. That's less than your daily coffee for all of the benefits of tubeless, waterproof, automated insulin delivery. My daughter has been wearing an Omnipod every day since she was four years old, and she's about to be 21 my family relies on Omnipod, and I think you'll love it, and you can try it for free right now by requesting your free Starter Kit today at my link, omnipod.com/juicebox Omnipod has been an advertiser for a decade. But even if they weren't, I would tell you proudly, my daughter wears an Omnipod, omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit, full terms and conditions can be found at omnipod.com/juicebox

Autumn 15:59
so she comes back, and she's like, Hey, you know, like, we can give this Metformin a go if you want to try it. And I'm like, hey, you know, I don't have anything to lose. Let's go. It destroyed my guts, like I already was, like, a, not a everyday pooper, like I was every three to five day. And like, I always had problems where I'm like, why am I constipated? Why is it like, oh, I can go and that. Here goes the I always compare it to like a champagne bottle. There goes the cork, and just all the flow, right? So anyway, take the Metformin. It destroys me. I'm like, Nope, that's not going to work, so I just grin and bear it like I'm insulin resistant. It's because of how long I've been taking medication, according to my doctor, blah, blah, blah, blah, blah. So then, of course, we start hearing all of these things about this lovely drug called ozempic, and how it's helping people with type one diabetes. And you know, going back to the same endocrinologist who had been with for 17 years, who helped, got me on the pump, helped me through my pregnancy, all of the things, you know, she's like, Nope, I can't provide that to your type one diabetic. Like, okay, but it's going to help me with the insulin resistance. Wouldn't budge. She's like, you know, why don't you go talk to your primary care, see if they'll help you? Great. Go to my primary care. And thankfully, an amazing, amazing doctor. She was like, you know, what if we think it's going to help your insulin resistance, let's do that. And immediately I'm like, Thank God, somebody is going to help me here. And I think at the time, I was using probably anywhere from 180 to 200 units a day through my Omnipod. It didn't make sense, obviously, which is why I'm like pushing to find something to help, right? Couldn't lose weight, couldn't do any of the things. And I start taking the ozempic in the fall of 22 and I didn't see any really immediate impact. I mean, obviously, as you know, that really small dose isn't necessarily doing a whole lot, but you know, what I did notice is that I was starting to feel better, like I was starting to feel a little bit less inflamed or puffy, if that makes sense, it does, yeah. And then I'm like, Oh, that's interesting. Like, I'm not using 180 to 200 units anymore. I'm using like, 160 to 180 and as my dose kept titrating up, my insulin needs started going down. So we get about six months into the journey, and then the insurance company finally figures out she's not in the right box. She doesn't check the type two box. She's a type one. You can't have the medication any longer. Like, okay, well, that's extremely up, because here I am getting better, but you're telling me I can't have a medication because your black and white box doesn't fit for me. Like, make that make sense? How does that even make any sense to anyone in this world? So thankfully, my insurance company, they cover it for weight loss. And I was like, You know what? Write it for weight loss. Put me on set bound. If that's what it needs to be, then I will go that route with

Scott Benner 18:51
it. A whole generation of people autumn who refine themselves saying something they thought they'd never say, Well, the good news is, I'm fat.

Speaker 1 18:58
So right, exactly thing.

Scott Benner 19:01
You never thought you'd be, like, gleefully telling somebody, but here you are. You're like, oh, wait, I yeah, I make it under this one, awesome, yeah, geez,

Autumn 19:10
oh, that diagnosis on my chart, and my chart, that's Oh, class one, drug induced. And BC, oh yeah, that's me. Okay, yep, I can go ahead and take that for for the weight loss,

Scott Benner 19:18
whatever box makes this work, and let's go, yeah, yeah.

Autumn 19:22
So, you know, I'm taking the medication, and everything is going well, I'm down to, like, I don't know, maybe 60 units a day at this point. And here comes the insurance company. Hey, we're no longer going to cover this medication for weight loss. We don't cover any more medications for weight loss. And, you know, starting August of 2024, that's when we're no longer going to write your prescription. And it wasn't just me, it was everybody on the plan. And I'm like, Okay, what are we going to do here? Because I never in my life had felt this good. I mean, the insulin needs were down. I did lose weight. It wasn't immediate for me, like, you know, it took probably that first full year before I even saw the scale. Move 2530 pounds, but it happened over the course of time, and obviously a huge benefit for me, it was the fact that I felt good. I was having better bowel movements. You know, the inflammation was gone. I had never felt this healthy in my life. So I'm just racking my brain with like, How in the hell am I going to afford to keep this medication if I have to pay for it out of pocket. Would have figured it out if it meant taking a second job, or, you know, or whatever it meant, like I was going to figure it out because I knew I could not live without this medicine any longer. Yeah, so you can, I know.

Scott Benner 20:33
I just want to give you a second to take a breath. And this story is so common and literally just happened with a person in my personal life that I was I almost had counseling, but it makes me feel like I'm a youth pastor, but I was talking to a friend of mine, and they were going through the exact same thing, being told by a physician that if they could just get their a 1c up a little bit so that they have type two diabetes, then we could get you this medication. This episode of The Juicebox podcast is sponsored by the ever since 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor. You think of a CGM that lasts 10 or 14 days, but the ever since 365 it lives up to its name, lasting 365 days. That's one year without having to change your CGM with the ever since 365 you can count on comfort and consistency, 365, days a year, because the ever since silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on Your body, if you're looking for comfort, accuracy, and a one year wear you are looking for ever since 365 go to ever since cgm.com/juicebox

Autumn 22:11
To learn more, right? So in like, that's the that's the craziest part. It's like, I literally have a doctor telling me, okay, if we can't get the medicine, what can we do to stretch the medicine as long as possible, until we figure out a solution? Like, you're a medical doctor who knows what I need to help me to be healthy, but yet, because an insurance company says they don't fit in that box, I'm going to have to manipulate this drug and stretch it out 1012, days so that way I can continue to be healthy. Like, what in the world is happening here? You know?

Scott Benner 22:40
Well, and it comes down. Listen, we could dig into it, and I don't understand that enough to, like, really pick it apart. But it's also about pricing from the pharma company and and the insurance company's unwillingness to pay for it like they're having a back room. It's kind of like commiserate to when your cable company sends you an email that tells you that you should go yell at Fox, or you're not going to get football anymore, you know what I mean, right?

Autumn 23:03
Yeah, exactly, exactly. Anyway, yeah. So again, that you your podcast completely changed my life, because in July of 2024, I am listening to an episode about Jim, and Jim is a type one diabetic who doesn't take insulin and only uses, you know, the tricepatide or the semaglutide. I don't recall which one I believe he was on Manjaro. Okay, Manjaro, so Jim talked about his antibodies and how, you know, he had the antibodies. So technically, he fit the box for type one. And I'm like, holy, I don't ever remember anybody in my life saying, Hey, you are type one, and here are the antibodies that prove it, or or anything like that. And I'm like, All right, Hey, Doc, I think I have an answer or a solution to help us get to next steps. Can you test my antibodies? And she's like, I love it. Yes. Let's run the test. You can't even imagine how mind blown I was as over the course of three, four weeks, these test results start coming back, and I don't have not one, not one antibody. Ironically enough, I have C peptide. I had a score of 1.1 and when I went back to the original endocrinologist, who wouldn't prescribe the ozempic For me, she said that C peptide is still too low. It's too low you're a type one diabetic. This is in your head. You need to accept it, and you need to move on. And I'm like, wait a second. Do you not see all of the improvements my blood work? Do not see all of the improvements. And wait, do not see these things. And she just refused to help. So at that point, I was like, let's find a new endocrinologist. So I did some research and found a lovely lady up at the University of Michigan who oversees their atypical diabetes department. And I purposely waited another six months just to see her, because I felt like if there's anybody that's going to be able to help me, it's going to be the lady in charge of the whole department, right? So I. I went and saw her in March. I want to say it was, yeah, it was the very beginning of March, and she went through everything with me, and she was like, Well, you know, I don't know if you're Lada, I don't know if you are Modi, I don't know what you are, but I know you're not a type one, and we're going to prove it by re running your CPEP CDE. Like, okay, how do we go about doing that? Because this was the score last time she said, Well, your previous endocrinologist failed to see that your blood sugar was only 106, when you took that test. So I want you to get your blood sugar up to 200 and take the test and see what it comes back as, like. That's going to be kind of difficult, because even if I were to go and eat a bunch of candy, have a Coke, whatever it is, the mongiorno or at that time it was the Zeb bound is keeping my blood sugar in such good control, I don't even know if I can get it to that point right. And, oh, by the way, I'm only using 20 units of insulin at this point. Like we'll give it a try. So I go take the test. She calls me, hey, come into the office, and my C peptide score at that point, with a blood sugar of 170 was up to 2.4 so she said, You are a type two diabetic. You are not a type one diabetic, misdiagnosed. You know, we see this all of the time, unfortunately, and as we've gotten smarter with testing, you know, we're hoping to do a better job as we go forward. So she kind of went back to Lada, and I was like, that doesn't make sense to me. I don't think I can be lotta if I was diagnosed at 13. And she said, Well, what do you think about possibly Modi? We went through my family history, with my dad, with his mother, with my grandma, great grandma, and she's like, I think that we should investigate this more. Like, all right, cool. It's like, but in the meantime, would you be willing to take your pump off? And I'm like, why don't I don't know, because I have my primary care over here saying, hey, the reason you're so healthy is because the pump is working with the Z bound and that it all has to work together for you to stay this healthy. And, like, kind of nervous about it. I haven't went MDI in 17 years at this point, like, what? What's going to happen to me? And just like, well, you just got to have a little bit of trust. And I'm like, okay, so I took off my insulin pump on March 24 of this year. My a 1c was a 7.5 at the time when I just went for my checkup here in July, not only had I lost 40 pounds, but my aim 1c was at a 6.1

Scott Benner 27:27
and you're not using insulin. I am

Autumn 27:29
currently using 14 units of Lantus a day, and then my once weekly shot of mangiorno with the 15 milligrams. But what we discovered through the genetic testing is that I am actually Modi four, which is like the 1% of the 1% of all Modi patients. So it's the PDX one gene that has the mutation in it. The way that I'm understanding it is that during the developmental phase in the embryo, the pancreas either doesn't develop, which is where you get the neonatal diabetes, or your pancreas just isn't, I guess, like, the right size, like it's smaller than what it should be, so you don't have as many B cells in there. And I'm kind of in a spot right now where the lady that helped me get to this point is telling me, hey, let's stay the course with insulin. We'll try to get off of it. But you know, you're doing really well. I don't think we should change anything. And I have a new doctor that I have recently connected with through the registry of Modi at the University of Michigan, who's telling me, I think that you could get off of insulin completely, and you could take sulforanoria In addition to the tricepatide, and you'll be good to go. So I meet with my doctor this Monday to find out, hey, what do we got to do to try this? Because she's concerned that it will force me to have lows, that, you know, it could cause some issues with me eventually needing insulin again. And like, well, I don't really think I have anything to lose. I mean, I took off the pump and I trusted it, and here I am. I want to try this new medication to see if it really means I no longer have to take insulin, but I can tell you that if I use any type of noble log or rapid acting insulin, it's because I chose to get a really cheap meal full of carbs or over indulged in something which doesn't really happen, just because the tricepatide keeps you from wanting that, as you know. But yeah, I'll use maybe two or three units of rapid acting here and there, but pretty much it's just that 14 units Atlantis and my once a week. So like I said, my life completely changed because of you, your show, Jim, and those antibodies, and just basically saying you to the insurance company, because if it were up to them, they would have just kept me in that one box and kept me sick. I didn't meet the they didn't want to personalize my health care. And I think that's the travesty in this world.

Scott Benner 29:46
Oh, my God, autumn, that's an insane story, yeah. How did you figure, like, where did you get the fortitude to fight through all this and the knowledge, or did it just kind of. Lay in front of you like a path, and it just started to make sense as you dug deeper, like I'm trying to figure out how you got through all of it,

Autumn 30:06
you know, I was, I was fortunate growing up that my mom always had taught me to advocate for myself. And if something didn't make sense, when a doctor, you know, said, Hey, this is what it is that just because they went to school for all those years and they wear a white coat. It doesn't mean that they know everything and that you should ask questions and you should push back. And I mean, as I was on this journey, and when I would ask the questions, if it didn't make sense, I would have to stop and say, okay, logically speaking, remove all of the insurance companies and remove all of this, what would be the best thing? And it always kept coming back to taking that tricepatide And just keep pushing forward, getting more answers. And once I learned what Modi was, I just I couldn't stop Scott. I was like, I have to know, I have to know if this is what I have, because I've gone 31 years of my life not knowing, and here we are. I mean, like through my adolescence, it was just the random, rapid acting insulin that you would need here and there. And then it became 7030 and then when 7030 did not work any longer, it was like, Oh, here's your Lantus. And I'm talking obscene amounts of insulin. It's like, you know, like the doctor said, like your body just didn't know what to do with it. You need the tricepatide to unlock those two things so that way, your body can put everything to use the way that it's supposed to be put to

Scott Benner 31:22
use. I don't think I've ever been happier making this podcast than I am right now. I'm being serious,

Autumn 31:29
yeah, I just, you know, and I had emailed you probably it was about this time last year, and I'm like, you know, my doctor's telling me I need to keep the Omnipod, but I also need this. And you know, what would you tell your daughter to do? And you know you have gotten back to me and like I tell her to say, Screw the insurance company, and who cares what their spreadsheet looks like, and keep pushing. So you know you also helped encourage me to keep going and to find the answers to get where I am

Scott Benner 31:53
now. Oh no, I'm so sorry to tell you that I don't remember that, but I'm glad, I'm glad, I'm glad to know that I did the right thing. You did. You did. Wow, I appreciate you sharing this. I'm not I'm not ending the conversation, but I really appreciate you sharing this with me. Thank you so much. Yeah, I'm so happy for you. Me too. Yeah? I mean, I don't want to make this about me, but I will for a half a second please. When I started talking about this stuff, there were people out there that really just took the light in, heating up a sharp stick and shoving it up my you know, and in the same feeling of, like, whoa, you can't take Metformin because it'll cause the eka that's written down somewhere now, you know. Or and then it became, well, you can't do a GLP, one that's not for type one diabetes, that's for this, and it'll cause DKA. And I'm like, and I understand the study, I understand where people are concerned. I think what ends up happening is, you do some studies on a thing you don't completely understand yet, and you know, glps are just the core of your conversation, you know, today. But I think this goes for a lot of things. We see something new. We start to try to figure it out. People identify the scary parts and the exciting parts. And some people's brains flow towards, I want to be excited about the exciting stuff. And some people's brains flow to, I want to be scared about the scary stuff. And and then these things get written down. And then everyone in the middle, all the people who are rule followers, start saying, No, there's a rule. You can't do this. You have to, it's written down. It's got to be true. And everything about you was written down somewhere, and most of it wasn't right, right, yeah, right. And, yeah, yeah. And you were willing to, like, be in the part that just says, like, I want to be excited by this and see what it does, because why not? Right? And I think there's a lesson in that for everybody, hopefully. But then, you know, moving forward, I said, I'm seeing a lot of things happening here that don't quite make sense, but look positive, I'm gonna just keep doing what I always do, which is let people tell their stories. Like if you think, if anybody thinks that I ran around finding Jim to be on the podcast so that he could come on and tell his story about how someone told him he had type one diabetes. He's got antibodies. He used mangiarno, and he had to, and he stopped using insulin. Like that was not an easy thing for him to tell me, because he knew people were going to come after him. It wasn't an easy thing for me to put on the podcast, because I knew people were going to come after me, and I didn't track him down. He found me right. Like, I'm not out here setting up a narrative. I'm just talking to the people who are interested in talking it's really what I do right? And then to think that I stop and think about the arguments that I watched happen around that episode after it came out, and the pressure that I got from people. You have to take that down. It's dangerous. You're gonna hurt somebody. Blah blah blah blah blah blah blah, I don't know how people. Telling their story is just dangerous. I can't wrap my head around people who think that way. But nevertheless, there they were. So to those people, if you're listening right now, I want you to know that if I would have listened to you, Autumn would still be sick 100% yeah, that's all I'm saying. Like, just keep talking. Yes.

Autumn 35:20
That's Yes, and it was just by happenstance that I picked that that up. I'm driving back from from Ohio, dropping my son off, and he's going out on a boat trip with his friends, and I've got an hour drive. And I'm like, You know what? Let me see what the what the podcast is going today, and it was the episode of the day. And I'm like, holy, my entire life is going to change because of this man, and because of Jim, and because of that story. And I can remember being on the website, or I'm sorry, your Facebook page and and people going back and forth about, well, it's impossible, and you're wrong, and Jim this and Jim that, and it was like, Is Jim really wrong? Or Jim's just sharing what his reality is because that was Jim's reality, and there's nothing inappropriate about sharing that it clearly saved my life.

Scott Benner 36:06
Yeah, it's ironically enough. There's a couple of ironies here. One, of course, is I don't really know who anybody is when I start recording with them, so I'm actually hearing your story as you're telling it, which is on purpose. But I also didn't know that this is what you were going to talk about. And before we started recording, I oftentimes chat with people for a couple of minutes to help them get rid of their nervousness, so that we don't waste the first 10 minutes of the episode, you know, with you getting rid of your nervousness. And I chose to tell you about my you know, it's through with the day du jour and, and it was, it was that someone posted in the Facebook group, you know, how did you get diabetes? You know, I don't or, you know, should I get it doesn't matter. It always leads to the same place. How did you get diabetes? Or would you use the flu shot one way or the other? You're going to get the people arguing about vaccines. So, yeah, like, so that's always going to happen, right? But the but what I'll tell you is that, overwhelmingly, the conversation is good, and that I think there's a ton of value in letting people have it. And there's always going to be a couple of nerd nicks that decide to like argue, and they always come from a crazy perspective. And I want you to know I don't think that a pro or con vaccine perspective is what makes you crazy. I think what makes you crazy is the feeling that if you don't suppress someone else's thoughts, the whole world's going to explode right when you're doing that, just so you know, that's when Scott draws a line and says, Uh oh, you need to visit a mental health professional and but I don't treat you that way. I still say, Look, I got good points here. I'm not telling you you're wrong. I'm just saying you've said what you think. They've said what they think. Now everybody can see both things. Let people decide for their own. And it's always no, you can't let them talk. You can't let them say within me, you're now, I'm hurting somebody. Now somebody's sharing their opinion, and now it's my fault, and that's the part where I always laugh, because it makes me think of when Isabelle started helping me with the Facebook group. At one point, I shared something with her. I said, you're going to realize that one day, in the end, I'm always the bad guy. I said, when stuff goes wrong at the end of it, someone will blame me. They won't blame covid. They won't blame, you know, their mental health. They won't blame the myriad of other things that are involved in their reaction to this. It will be the person who stood up and just said, Hey, could you just let everybody talk, please? Right, and we'll see where this goes. And they never see their part in it. The only thing I can I ever come down to like, that's my takeaway, is that what stops them from just letting those conversations happen without them making them like out of their minds sometimes, is that they don't they never quite see their own perspective clearly. And I'm not saying that I see the whole world completely clearly. I'm just saying that in this moment, I really don't have a dog in the fight, a horse in the race, or, you know, whatever those sayings are, sure, sure. I just want people to, like, harmoniously, say what they think, and then let somebody else say what they think. Yeah.

Autumn 39:20
And, I mean, I feel like if the question was, how did you come down with the diabetes, or how do you think you came into it? Like, isn't that just again, everyone sharing their story? Yes. Like, why does that have to be a right or wrong? It was my story. My story is not wrong. It's amazing, in my opinion, that I have the story I have, but it doesn't mean that I'm wrong for having that right.

Scott Benner 39:39
And to be more candid, like this person was told by their doctor that they thought that the kids vaccine triggered an immune response that might have led to their type one. That's what the person's doctor told them. That's what they've been living with for years, that knowledge that they were given. Then another person starts like, your doctor's an idiot, and they don't know what they're doing. And this is and I'm like, listen, maybe you. Right. Maybe, maybe you're right. Maybe her doctor's right. Maybe something else is right. What I'm telling you, that Autumn story proves to you, is you don't know. We don't know. Humanity is just a constant learning process. Every six months, you can look back at something you were saying six months ago and go, Oh, bad take. You know what I mean? Like, like, great. But instead of then in the present, saying what I'm saying right now is likely a bad take, why don't I just like, since I can't know for sure, why don't I just like, I can't believe I use this phrase. It's not a phrase I ever thought of you. We just offer everyone a little grace, and let's see where this goes, right? Yeah, because if, if you would have, you know, it's funny, because I'm using the gym story to say that if somebody would have shut me down on that, you may not have, you may have turned on your podcast app that day and found a different episode, right, right, right. But I'll go back to 2015 when I started the podcast, and I don't want to give a lot of details, because I'm not trying to. I don't want the person to feel badly, and I don't want them to get crap from people. That's not my goal, but, but someone came to me, not I don't know, felt like it was about a few months after I started my podcast, and they wanted to start their own podcast and asked me for help explain what I've learned, etc, microphones, blah, blah, blah. I was very, I thought, kind. And I, you know, took time out of my day to talk to a person I didn't know that well, if at all, to be perfectly honest with you. And, you know, set the whole thing up and explained how I did it, and wish them luck. And the very end of the conversation, the person said, Well, I'm gonna do it differently than you. You do it wrong. And I was like, What just happened after I gave up an hour of my life? Like, wait what? And the person went on to tell me that I should not be sharing how I manage my daughter's diabetes. That was dangerous and I was going to kill somebody. Oh, my. And I was like, Awesome. Well, good luck, and thanks. And on my way, and I people are going to misunderstand what you're saying, and what that person was really saying was, don't tell people your story. Don't tell them your perspective. Don't tell them about your experiences. Just feed them banal gruel, just verbal bull, right? It'll keep them connected so that you can do what you want to do. That's what I'm going to do. I'm going to go make a podcast. It doesn't say anything, but it'll, you know, and that's what I heard. Now, maybe that's not what they meant. That's what I heard. That's how I feel about it. I feel like if you're not going to honestly share what's happening with yourself, and maybe you're right, maybe you're wrong, maybe you're misinterpreting it, maybe you're over interpreting it, I don't know, but we don't get to the answers if nobody says any of it out loud, that's all. I couldn't agree more. Thank you. That's all. I just want you to know that I believed genuinely, that a decision I made in, gosh, in the, in the 2000s these, you know, when I started writing my blog, and my wife came to me at first, and she's like, Is this okay? Like, just saying what we like? And I was like, I'm like, we're having all this success with Arden. I was like, she's having outcomes that are so much more, more or less variable and lower and like you know better for our health, and we're figuring out all this other stuff. And my response back to my wife is, I said I'm not comfortable knowing how to do this and not telling people about it, right? Because I'm going to spend the rest of my life walking around thinking, well, that kids, a 1c, is high, and I think I could help, but I'm just not going to, because I'm worried about that, and I know that this is a it will seem like a stretch to some people, but that reaction, by the way, it's not a high minded thing for me. I'm not like some like Machiavellian genius, that was just my response in that moment, right? Like the world was telling me Don't say out loud what you do. And I was saying, No, I think that's a good idea in 2007 when I started that blog. And then again, somebody tried to shut me down in 2015 and then two years ago, somebody tried to shut me down again on Jim's story and blah, blah, blah, blah, blah. And I just want you to go back and think if someone stops that guy from saying what he thinks, Autumn's not okay, and there is a ripple effect to things that you do. And I just think that if you're well intended and transparent, that we have to trust adults to be adults and sift through that information. That's all I want to say. I'm done now.

Autumn 44:39
You're absolutely correct, because the reality is, if it hadn't been for you having that perseverance to push through and basically say, I don't care what you think I'm going to do, what I think is right, you wouldn't have helped all the people you've helped. I wouldn't be here right now talking to you and that my husband's like, why is it so important for you to get on this podcast and like, because the. Man's podcast changed my life, but I want to help change somebody else's life, because the reality is, I sat for 31 years misdiagnosed when it happens so often, because people don't know what questions to ask. They don't know to say, You know what, shooting the insulin in that orange is not going to be the answer for my child. I want to know about antibodies. I want to know about C peptide. I want to know more than just what your black and white checklist says you have to tell me,

Scott Benner 45:24
right? And I shouldn't have to follow up your statement with some disclaimer that where I go. Like, no, listen, if you have type one diabetes, you'd obviously have to take insulin and you're gonna die, of course, like no one's would, no one would say no to that, like no one's saying otherwise. But there's a certain brain that hears what you just said and goes, that's dangerous. People are gonna stop taking their insulin and they're gonna die like No, like autumn didn't just stop taking her insulin. She talked to 17 doctors and persevered through a ton of misnomers and kept pressing until she got to a safe, protected place where she could try this thing for herself, like she didn't just randomly go home and be like, I don't need this insulin. And then somehow that'll get missed, trust me, because eventually this goes out, and someone's going to be like, Oh my god, Scott's, you know, got a lady on it says you don't have to take insulin if you have diabetes. I'm like, Okay, well, that's not what anybody said. But here we are, internet, right? Yeah, great, right, yeah. Well, I appreciate that you're that you're doing this. Tell your husband to shut up. I mean, what's he doing? You don't know about the power of podcasting.

This episode was too good to cut anything out of but too long to make just one episode. So this is part one. Make sure you go find part two. Right now it's going to be the next episode in your feed. Are you tired of getting a rash from your CGM adhesive? Give the ever since 365 a try. Ever since cgm.com/juicebox beautiful silicone that they use. It changes every day keeps it fresh. Not only that, you only have to change the sensor once a year. So I mean, that's better. Arden has been getting her diabetes supplies from us med for three years. You can as well us med.com/juicebox, or call 888-721-1514, my thanks to us, med, for sponsoring this episode and for being longtime sponsors of the Juicebox podcast. There are links in the show notes and links at Juicebox podcast.com to us, med and all the sponsors. This episode of The Juicebox podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox you can get yourself a free, what'd I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes. Links at Juicebox podcast.com. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know what else you might enjoy, the private Facebook group for the Juicebox podcast. I know you're thinking, uh, Facebook, Scott, please. But no. Beautiful group, wonderful people, a fantastic community. Juicebox podcast. Type one diabetes on Facebook. Of course, if you have type two, are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions. Couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app. Sometimes. That's why they're also collected at Juicebox podcast.com, go up to the top. There's a menu right there. Click on series, defining diabetes. Bold beginnings, the Pro Tip series, small sips, Omnipod, five ask Scott and Jenny. Mental wellness, fat and protein, defining thyroid, after dark, diabetes, variables, Grand Rounds, cold, wind, pregnancy, type two, diabetes, GLP, meds, the math behind diabetes, diabetes myths and so much more. You have to go check it out. It's all there. I'm waiting for you, and it's absolutely free. Juicebox podcast.com, Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob. That wrong way. Recording, doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast? You want somebody to edit it? You want rob you?

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Jaime shares her 2-year-old son’s type 1 diabetes diagnosis, daycare symptoms, CGM and pump choices, caregiver anxiety, marriage and football-family life on the Juicebox Podcast.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.

Jaime 0:15
Hi, my name is Jamie. I am 39 years old, and I have a son with type one diabetes, and I live in Buffalo, New York.

Scott Benner 0:25
If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and, of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched by type one.org I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year wear CGM that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox a huge Thanks to my longest sponsor, Omnipod. Check out the Omnipod five now with my link, omnipod.com/juicebox you may be eligible for a free starter kit, a free Omnipod five starter kit at my link, go check it out. Omnipod.com/juicebox Terms and Conditions apply. Full terms and conditions can be found at omnipod.com/juicebox, hi.

Jaime 2:25
My name is Jamie. I am 39 years old, and I have a son with type one diabetes, and I live in Buffalo, New York. Buffalo.

Scott Benner 2:36
Are they the only undefeated NFL team at this moment,

Jaime 2:39
the Buffalo Bills, didn't we just lose to the Patriots?

Scott Benner 2:43
I thought you won this week. I don't know. That boy is huge. That that quarterback you have there is a big person. He's a big person. Yeah, you're 39 the kid is how old? He's 440, do you have any other little children? I do. I have a six year old, your first baby when you're 33 boys. I did on purpose, by mistake. What

Jaime 3:05
happened? No, I was, I got married at 31 and was, you know, had baby fever,

Scott Benner 3:14
and went from there. You have such a big personality. Thank you. Explain to me I grew up. I mean, you're 39 I'm 15 years older than you. When I was in high school, people were like, you know, I'm gonna get married. And I was like, Yeah, you talk about all the time now, kids like my daughter's 21 i i don't even think she'll tell her boyfriend she likes him. What's the shift? Because you don't come off like mousey to me, I don't think you would not be a person who dated like you, just not interested in it. Or did it like is the timeline different for you? Can you explain that all to me? Do you know I'm asking,

Jaime 3:52
yeah, so I actually did get married at 25 and that was just a quick oops. This was a terrible mistake.

Scott Benner 4:00
Got out of it quickly. How quickly did you know it was a mistake?

Jaime 4:04
So we were living in New York City, and he was in the army, and we moved to Texas, and as soon as we moved away from all of the distraction, the friends and the, you know, being able to be home in three hours and and that kind of stuff, we realized that we were better roommates than husband and wife.

Scott Benner 4:24
Gotcha, it was mutual. Yeah, it was mutual. Oh, no kidding, that's nice. Do you still know him? Not really. Okay, that's fine.

Jaime 4:32
No. I mean, I don't follow him on social media or anything

Scott Benner 4:34
like that. You don't check in once while I go. You remember that time we got married? No, how long were you actually married to him? A year. No kidding, probably doesn't even seem like it happened, right?

Jaime 4:45
It doesn't. It feels like a it feels like a total, totally different lifetime.

Scott Benner 4:49
Did you do it? Because it felt like the thing to do. You

Jaime 4:51
know, it was a weird time in my life. My my step brother had just passed away in a car accident, and it was one of those grieving. Being kind of grasping onto anything you could possibly grasp onto, and he happened to be the thing that I grasped onto.

Scott Benner 5:07
No kidding. Do you think he figured it out first? Or you did? I think he

Jaime 5:11
would have probably he was a very kind of complacent person, so he would have just stayed in it and been

Scott Benner 5:17
miserable. Could have had a house and a car and an unhappy wife. Yeah, sounds fun. I mean, it's going okay. For me, it's so I'm just kidding. I'm sure you are okay. So that happened, and that does that slow your role on the next Do you spend that time dating? Does it slow you down? How do you handle that space in between getting married again?

Jaime 5:40
So I moved back to Pittsburgh, where I was living before that, and I was thriving. For sure, yeah. I was yeah, oh yeah. I was working, started to get my MBA. Was dating. I didn't necessarily love the whole dating scene, but when I got my MBA, it was, it was an executive program. So we, there were 32 of us, and we were all in class together, all day, Friday and all day, Saturday every other week for a year and a half. It wasn't like a typical like, you meet someone in class and, you know, you become friends. It was like we were tight, right? And that was really, really fun. Yeah. It sounds like you loved it. Actually, yeah, it was great. I mean, I have very fond memories of that. And actually, that's how I met my husband. Oh, I was getting my MBA with this girl, Susie, and Susie worked with this other girl, Angela, and I promise I'm going somewhere with this. Angela was getting married to my husband's brother, and she could not wait to get him out of the house. She was like, I gotta find Matt. Matt's my husband a girlfriend, to get him out of the house. And Susie was like, Well, I have a friend. She's single, and they threw spaghetti at the wall. And it worked. It stuck. Yeah, that's

Scott Benner 6:58
crazy. They used she was like, bait. And then you just were like, No, this is good. We'll stay. Yeah. So, okay, so you basically were just helping. You were being a wing woman. And when you meet him, what about him? Says to you, like, this is right. This time I got this, his

Jaime 7:15
mom. It took a couple months wait his mom. Yeah, his mom really was the thing that convinced me to stick around, how because she's just so

Scott Benner 7:24
wonderful. You thought this lady is so delightful. There's got to be something going on with this guy. I'm not seeing right now. Yeah,

Jaime 7:33
I mean, he's kind of gruff. He's a football coach. You know? He's when he showed up at my doorstep on our first date chewing gum, and I was just, we were going to a nice restaurant, and I was like, I don't know about this. And I was, I was probably too picky at the time, because I just didn't really have any interest in anything having fun. Do you think he was handsome? Oh yeah, he's so handsome.

Scott Benner 7:58
Oh, okay, that part was like, so there's enough of a reason to hang for a second. Yeah, yeah. He's very nice to look at, but you figured he was going to be a dullard. No, I

Jaime 8:08
just the gum thing. And then we showed up, and you know, he was like, buddy, buddy with the valet at the restaurant. And I was like, I don't know about this guy. Like, I think he's into himself. Like, just wasn't really feeling it.

Scott Benner 8:21
How'd you meet his mom so quickly? Then isn't the Meet the mom thing pretty later usually? Well, it

Jaime 8:26
was, that was two months later. I stuck around for two months, and then I met the mom.

Scott Benner 8:31
So you thought he was gruff and all these things, but you Oh, were you enjoying the rest of it?

Jaime 8:38
Well, I mean, he okay. So a week after we went on our first date, he I was in an auction, a dating auction.

Scott Benner 8:46
Oh, okay, that slowed me down for a second, but okay, go ahead.

Jaime 8:49
Yeah, so I was being auctioned off for a date for the American Heart Association. Oh, nice. And my friends were going to come with me. And my friend Susie, who set this whole thing up. Had talked to him before that, and she was like, Well, do you want us to bet on her for you? And he goes, Yeah, don't lose. So, you know he he bet on me and won me, and we met up afterwards. He wasn't even at the auction. We met up afterwards and had some drinks, and

Scott Benner 9:22
then I liked him. All right, did the drinks help? The drinks helped? Yeah. I mean,

Jaime 9:28
I think it was the buying me at auction that really was like, All right, this guy's kind of romantic.

Scott Benner 9:32
It's cute. I'm gonna go, What's the going rate for a Jamie at the auction? What did that cost?

Jaime 9:36
You know, what I think it was like. I think it was like, $400

Scott Benner 9:40
Oh, did you feel like you owed him the 400 bucks? Somehow? No, no good for you. It's awesome. Well, this is nice. Okay, so he, he used his what he had to keep you in. Then you meet, I know this has nothing to do with anything, but I'm fascinated by this. So then you meet the mom, and you're like, Oh, my God, this is a, this is a situation I'd like to. Be around,

Jaime 10:00
yeah, so I meet, I meet his mom, and we just really hit it off. She's so much fun. And we, I think we went, we ended up going camping at the end of that summer. So this was February that we met, and then by August, you know, I had been up to, they had a lake house at the time. They live there full time now, but this was just like their little cottage at the time. So I had been there a couple times. I brought my dog, and we just had so much fun. And then we went camping, and we just, like, it was just her and I and then football season was, was started up, and I don't know, I was like, well, if I'm gonna, if I'm gonna be married to a football coach, I'm gonna have to get along with his family and enjoy being around his family, because, like, right now, we're in season, and I don't see the football coach very much, but I see his family.

Scott Benner 10:53
I gotcha, that all makes sense. Did he coach like, high school or college or

Jaime 10:57
no, he coaches at the University of Buffalo. He's the offensive line coach. Oh, that's pretty awesome. Did he play himself? Yeah, he played at Duquesne in Pittsburgh. Oh,

Scott Benner 11:05
I know that place. Yeah, what got you from? Oh, the job probably from Pittsburgh to Buffalo. That was,

Jaime 11:12
yeah, it was, it was the job my so we had just had my oldest son was turning two, and my younger son was four months old, and he walked in the bedroom and was like, Do you want to move to Buffalo? No, I just had a baby, and all of our families in Pittsburgh, and, you know, we had just bought our dream home, and,

Scott Benner 11:36
and he's like, I want to go teach five big guys how to push Yeah.

Jaime 11:42
Will you come with me? Yeah, I guess I will. I guess I signed up for this, didn't I,

Scott Benner 11:47
yeah, I guess since the kids look like you, I'll come along. Do you work? Or are you a full time mom? Or how do you handle it?

Jaime 11:55
So I do some things for work. Before diabetes came to our family. I had a staffing company that was, you know, thriving, and then diabetes hit, and I that had to go into maintenance mode. So I wasn't really building new business at the time. But now we're two years in, and I'm feeling like it's, I'm I'm ready to back to it. Make that a business. Again, good

Scott Benner 12:21
for you. That's awesome. Yeah. So the diabetes came in Buffalo, or Pittsburgh, buffalo, Buffalo. Tell me about it.

Jaime 12:29
So it was September 2023, my son was two years old. He started peeing through his diapers at daycare. I didn't really think anything of it. I was just like, he's just kind of a monster. He eats a lot, but then he started looking a little bit skinnier. I think he lost two pounds. And he was, you know, 30 pounds at the time. So two pounds was noticeable, right? It was actually one of the daycare workers in his room, who was just a nice, quiet young man. He wouldn't have said anything if he wasn't concerned. And he said to me, Luke's peeing through his diapers. I think you might need to take him to the doctor. But nobody ever said anything about diabetes. And I went home and I Googled it, as soon as I started seeing the symptoms of type one I go, I remember I was actually sitting exactly where I am right now, having a drink with my husband, and I looked at him and I said, Luke has type one diabetes. And he, of course, is like, no, like, let's just wait. We're going to the doctor in the morning. And I was like, I know he does. And we went to the doctor in the morning, and they did a finger stick, and it read high. And I was like, well, he just had a popsicle, like I had, I had no clue. I had no idea, you know, what a normal blood sugar was, or even really what a blood sugar was at all, because I didn't have to know Sure. So they checked in. They were like, you know, popsicle probably wouldn't have done that. Go home, pack a bag. We're gonna call the hospital. They're gonna meet, they're gonna admit you. And I go, wait what? I'm like, we're gonna stay overnight. What do you mean? And they were like, just go down. Tell them who you are. They're waiting for you. So we go and, you know, they check his blood sugar, and it was, I think one of the ratings was, like over 1000

Unknown Speaker 14:25
is he in DK? At that point,

Jaime 14:28
he was not in DK. He had ketones, but he was not in DK

Scott Benner 14:32
DKA, because the magic daycare fairy knew about diabetes. Am I right or No, he just saw the peeing thing and thought that was enough to say something. This episode is brought to you by Omnipod. Would you ever buy a car without test driving it first? That's a big risk to take on a pretty large investment. You wouldn't do that, right? So why would you do it? When it comes to choosing an insulin pump, most pumps come with a four year lock in period. It through the DME channel, and you don't even get to try it first, but not Omnipod five. Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period. Plus you can get started with a free 30 day trial to be sure it's the right choice for you or your family. My daughter has been wearing an Omnipod every day for 17 years. Are you ready to give Omnipod five a try? Request your free Starter Kit today at my link, omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox find my link in the show notes of this podcast player, or at Juicebox podcast.com Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data? Today's episode is sponsored by the ever since 365 it is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows. For one year, you'll get your CGM data in real time on your phone, smart watch, Android or iOS, even an Apple Watch predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence, and you can instantly share that data with your healthcare provider or your family. You're going to get one year of reliable data without all those sensor changes. That's the ever since 365, gentle on your skin, strong for your life, one sensor a year. That gives you one less thing to worry about. Head now to ever since cgm.com/juicebox to get started,

Jaime 16:50
I can't say what was going through their mind. I know. I know. After the fact, I spoke to the head teacher in his room, and she said that she thought it was diabetes, but she didn't want to use the word diabetes because she didn't want to scare

Scott Benner 17:04
me. Okay, but they pushed hard enough with the idea of going to a doctor to try to get you to do that people were

Jaime 17:09
concerned enough that I yeah, it jolted me to take action

Scott Benner 17:16
in hindsight. Is there an autoimmune in your side of the family or or or your husband?

Jaime 17:21
Yeah, there is so we've got some arthritis, some thyroid stuff, no diabetes, though there was type two. My grandmother had type two when she was much older, thyroid.

Scott Benner 17:33
Okay, how about you personally? No, I don't have any autoimmune in the football boy, anything for him, not that I know of. No. Maybe being gruff is autoimmune.

Jaime 17:42
Yeah, I mean bowling in china shop. Maybe I

Scott Benner 17:47
like how you describe your son as a monster. I don't know he's kind of a monster.

Jaime 17:51
So well, he was eating like 12 waffles, and we were like, What is going on here? He's growing, guys, he's growing. Meanwhile, his body's not getting any nutrition.

Scott Benner 18:03
Did you toast them or was eating them frozen? At some point he would have eaten them frozen if I would have served them that way. Crazy. So now you're in the hospital, and you're you're coming to grips and everything. What is your understanding leaving the hospital, and how has it changed since then

Jaime 18:20
leaving the hospital. So we got a Dexcom the same day we were still in the emergency room, and I asked for one. And the endocrinologist that we were speaking to, who's actually now our endocrinologist, was like, how do you know about that? I was like, Well, I saw it on one of the peloton instructors.

Scott Benner 18:40
That's where you saw it on Robin arzon. Like,

Jaime 18:47
why that? Like, for some reason that popped into my head. I was like, I know there's something that monitors this. And then you I'm not leaving here having to stick my son 10 times a

Scott Benner 18:56
day. So you're like, the little chick that rides on the screen when I'm doing my peloton has diabetes, and there's a thing stuck to her. And you did she talk about it? Did she say the words ever?

Jaime 19:06
I don't think so. Where did you figure that out at then, I don't know. My brain just was gone a million miles a minute.

Scott Benner 19:13
No kidding. Well, you pulled that right out of your That's awesome. Yeah.

Jaime 19:17
So she sent it in, and I went to the, you know, I had to go to three different pharmacies to get the receiver and, you know, all the stuff that comes with the initial kit,

Scott Benner 19:26
harried, feeling like, just crazy, right? Like end of the world's coming. We're trying to pack the car with supplies and drive away from the volcano, that kind

Jaime 19:34
of feeling, yeah. I mean, it's one of those situations where it's like, okay, as soon as I get home, I can cry. But here, like, what am I gonna do? I gotta, I gotta learn everything. Yeah.

Scott Benner 19:44
How long were you in the hospital? One night, one night I got you out of there, yeah,

Jaime 19:49
so they I, we had our, our diabetes training the next morning, at like 11am my husband stayed with my son overnight. He had a game that day. Yeah. He stayed with him overnight, and then went to the game and I came back down to the hospital. Gosh, when do you cry? Well, after that, I cried for probably a year and a half.

Scott Benner 20:09
Okay, tell me about that, please. Well, are you gonna cry now?

Jaime 20:20
I don't think so, but just thinking about it makes me just so sad for for him, and just I remember when he started school last year, he I cried probably every day. I cried to the nurse when I met with her, I cried to his teacher when I found out that she had raised a daughter with type one, and I was just like, oh, like, God is shining on me, you know, yeah, because we're going to the school. And I was so I was terrified to send him to school, even though he had been in daycare before. Like, this was school, and it wasn't like four kids to one teacher, it was a whole classroom full of kids.

Scott Benner 20:58
Yeah, yeah. And so you're worried at every step, and anytime you you open up to tell somebody what's happening, all those emotions come out of you.

Jaime 21:07
Oh yeah. I mean, it was just like water works every and every time I saw the nurse, probably for two months, I would cry, emotional.

Scott Benner 21:14
Or am I in generally emotional? Yeah, generally speaking, are you? I don't think I

Jaime 21:19
was as much before I had kids, I don't think I am as emotional now that I have accepted the

Scott Benner 21:26
fact that this is our life. Okay. Were you depressed in that time? Do you think there were times where I was very depressed? Yeah, so much so that you told somebody or you just were paying attention to it.

Jaime 21:36
I was paying attention to it and talking to my husband. Okay? And what do you think I went to one therapy session and therapist called me an elitist.

Scott Benner 21:49
Wait, hold on, we'll get back. No, actually, do that? Actually, the way you're laughing. I'm wondering if they were right, but like, but wait, what was why did that happen?

Jaime 21:58
Well, I was okay. So we were eight months in. It was last summer. It was our first summer, and I had gone to this, you know, one of these diabetes meetups, where it's all the moms with all their kids and and I just felt like such an imposter. I was like, we're not supposed to be here. We don't have this in our family. This isn't, this isn't part of our story, like it was. I was just in such denial, yeah, that I just couldn't accept it. And I was, you know, racking my brain for anything that I could come up with that could have caused it, like, was it vaccines? Was it, you know, what? What was it? Was it this cold that he had, or the RSV he had when he was six months old? Like, I just couldn't, I couldn't put my finger on it, and my brain couldn't accept that. And I told him that, and he called me an elitist.

Scott Benner 22:44
Well, he's probably not a very good therapist, but I never went back. So by the way, let's say you were, how does that change how he's supposed to help you? Let's not get off on that tangent. But like, that's not, that's not well done by him. Let's say you could have put your finger on it and said it was absolutely this. My kid had RSV, and that's what happened. I can see the whole function here of how it turned into type one diabetes. I'm just making this up, right? Yeah. What would that have done for you?

Jaime 23:08
I actually don't know. I never, my brain never went to the point where it was like, If This Then That it was always, what is

Scott Benner 23:17
this? I need to know why this happened, yeah, but to no end. Not, like, I need to know why this happened, because that knowledge excessively, yeah, that knowledge will help me something,

Jaime 23:26
nothing. Yeah, like, we did genetic testing, we did all kinds of stuff. Oh,

Scott Benner 23:31
because you were like, this shouldn't be happening. Yeah,

Jaime 23:33
I had no preparation for it. And that's something that I've struggled in the past. Is just anxiety of not, you know, not knowing what's going to happen. And I think that's what really made me obsess over. It was just the fact that I didn't have time to prepare.

Scott Benner 23:51
You could have used that anxiety a little bit when you married some boy in Texas. It would have been nice if it said to you, Hey, I wonder what's going to happen. We probably

Jaime 23:59
shouldn't do this. Could have been the reason that I had it. I mean, oh, maybe

Scott Benner 24:04
that's what brought it around. I need some anxiety, because without it, I seem to do things I shouldn't be doing, right? Well, this is very fascinating. I appreciate you sharing all this with me, and by the way, your intake form said, I don't know what we're going to talk about, so you put yourself in this position for me to pick through your life. I apologize about that. Now. Totally fine. Okay, so felt depressed at times. Shared that with your husband. Did he feel depressed? Was he handling it differently than you were?

Jaime 24:29
I would like to say the voice of reason, but it's more everything's going to be fine. And that was very frustrating for me, because when he says everything's going to be fine, I'm like, how, how's it going to be fine? Because of me, like, that's how it's going to be fine, is I'm going to educate myself like the burden is on me for it to be fine.

Scott Benner 24:50
Oh, you do have anxiety. Oh, yeah, how about that? I recognize this for some lady who I married, that whole idea of, like, the way you just laid. That out is so crystal clear, because he's telling you, we're going to work it out it's going to be okay, right? And that's probably true, and also it's probably true that it's going to be okay, because of all the things you're going to learn about it to help it get along. If you weren't there, would he have that attitude and learn the stuff? Or do you think he'd throw it up to God and wait and see what

Jaime 25:23
happened? I'm not sure what would have happened if I weren't

Scott Benner 25:25
here. He's just gonna go, maybe we should go hit the sled. That'll fix it. Well,

Jaime 25:29
he's like a 40 year old Boomer, like he doesn't he's not a tech guy, like, I'm the one that we've gone through. You know, four different pumps and three different insulins and the CGM were pretty stable on we've switched from the g6 to the g7 but I don't consider that like a change on me. You know, right? I'm always the one that's changing things to make things better, and I just don't know that he would have done that.

Scott Benner 25:58
You sometimes change things and it's not better and you're just tinkering too much. Or have you been pretty good paced so

Jaime 26:04
far, I've been trying not to over tinker. Okay? I think at the beginning with the pumps, I probably overdid it. I'm interested in that. Now I'm I'm very happy with where we are. What pump did you start with? We started on the tea slim,

Scott Benner 26:19
and then you switched. And now you're like, maybe I even shouldn't have done that well.

Jaime 26:23
And then we went to the Moby because we were in this, like, very short window where it was like, you can upgrade to the Moby for, you know, a couple 100 bucks. So I did that, and then I just didn't feel like I had enough, enough insight into his diabetes when he wasn't with me. And so we tried loop. I didn't like loop. And then we, when trio came along, we switched to that, and I'm very happy with it.

Scott Benner 26:50
That's where you're at now, yeah, what didn't you like about loop? The fake carbs. You had to keep telling it you were eating stuff that you weren't. You couldn't fix it with settings, right?

Jaime 27:01
I mean, I probably could have fixed it with settings, but I didn't. You didn't. I didn't. You know it was just at the time my brain couldn't do it.

Scott Benner 27:10
So you weren't ready to figure out how to do it. So you kept pivoting, thinking the answer was another device. Yeah, yeah. Can I say something? Everybody listening? Sure, whatever device you're using is probably great. Oh, they're all great. Yeah, if you're having trouble with it, you may not understand completely how to use it, or you might not understand the impacts of your food or timing of insulin. Are some of the algorithms better one thing than the other, absolutely. But they're all very, very, very solid. And probably

Jaime 27:38
I did love tandem. I loved it. I thought it was great, but I just couldn't see. I couldn't see what I needed to see to make informed decisions when I wasn't with him.

Scott Benner 27:49
Okay? And that anxiety then forced you to keep trying something new. Yes, you still have the anxiety now,

Jaime 27:56
not as much. I've learned to let go a little bit, to not look at my phone constantly and check his blood sugar. But it took two mental breakdowns, actually, this summer, I took a week long trip, turned all my devices off. He was with Matt. Had a week off over the summer, and I just said, I need to go. And I turned everything off. And he and his lovely mother took care of my son, both sons,

Scott Benner 28:24
you're right about that lady,

Jaime 28:25
right? She's, listen, I knew

Scott Benner 28:29
Jamie's like, Listen, if push comes to shove, I'd marry her and get rid of him. If I had to break downs, like classic, you know, or just be me. Just needed to walk away. What happened?

Jaime 28:43
Just total overwhelm. I mean, this past year, it happened because the boys got out of school June 11, and I just, I didn't have a good plan, and so we went from me trying to get my business back going, and they're in school and had a really good routine. And then summer hit, and I was like, you didn't

Scott Benner 29:09
have a plan for summer.

Jaime 29:10
No, I didn't have a plan. And it just it hit me so hard. And two weeks in, I was like, I gotta, I gotta, I gotta get out of here. I gotta get out of here. It was just like, we went from having a spreadsheet with, you know, lunch in it, to wanting to snack all day. And I was like, my brain, my brain is an overload.

Scott Benner 29:30
How do you like me? I don't I would never do any of those spreadsheet you just made. My Do you ever see the that movie with the lady with the big lips, the Erin Brockovich lady? Her real name is, sorry, we're playing charades, Julia Roberts. And she's in England where she meets a boy and falls in love. And she's famous. That one's called God nodding Hill, nodding Hill. Good job. And the boy has a roommate who says, I'm going to tell you a story that'll Share. Your balls to the size of raisins?

Jaime 30:01
No, I don't remember that. I've watched Notting Hill since I was like, 11.

Scott Benner 30:06
Well, okay, now I have to watch it anyway. There's a line in the movie that says that that's what, that's how I felt when you said spreadsheet. I was like, spreadsheet. Oh, my God, that's terrible. And, but why do you like me? If I'm like, No, it'll be fine. Just do these things, and you're you have a spreadsheet. Where do we find an intersection you and I,

Jaime 30:27
like you as the podcast host, yeah,

Scott Benner 30:29
yeah. Not me as, like, the like, the guy who you don't know, but like, like the podcast and you know, the group, even the vibe there. Like, why is that like, why is that comforting

Jaime 30:37
to you? Well, because whenever it's funny, because I you pop into my head a lot. I'm sorry, and it's, it's for interesting reasons. So one of them is, like, in the middle of the night when I'm waking up to give juice, I'm like, All right, I just got to bump and nudge this like, Damn you, Scott, at

Scott Benner 30:58
least it's nothing creepy that your husband's gonna come beat me up over that's awesome. No,

Jaime 31:02
no. And then it's funny. I mean, it's just like, like, today I texted the my son's teacher, and we have like, a group chat with the teacher and the nurse, and I was like, can you just give him, like, half of a glucose tab because he was going down? And, you know, I knew it's when I have to trust that I know what's going to happen before it happens. That's when I think of you,

Scott Benner 31:24
oh, okay, I'm glad. If I could say one thing to you, I'd say worry is a waste of imagination and trust that what you know is going to happen is going to happen, those things can help you a lot. You know, it occurs to me, as you're talking about this, I feel like we, maybe as a society, talk about anxiety all the time, like it's bad. I'm not saying it's good, but I think some of it can be good. And as an example, you said earlier you had a really successful self built business, yeah, and I bet the way your brain works helps a lot with that. It does. Yeah, but did you feel anxious about the job, about the business? No, no, but it's the it's the part where your kid could get sick or hurt or something like that, that adds to it.

Jaime 32:02
Yeah, it's just the anticipation of not knowing what's going to happen. And I think my husband helps with that, because he's like, you know, he helps and hurts with the everything's going to be fine. Because I'm like, he's like, nobody's going to miss a meal. And I'm like, okay, like, that doesn't help me in this moment, but thank you for

Scott Benner 32:19
that nobody's going to miss a meal. Is that, that's his way of saying, We're doing fine. It's gonna be okay. Yes, yeah, it's interesting, because that little bit of a, like, I'm not an anxious person, but I have drive and, like, so, like, I built this podcast off of the drive. As a matter of fact, I've been struggling the last month or so with being bored, and it's really getting to me. Like, I don't, that's interesting. Yeah, I have this thing running so smoothly now that I'm just like, oh, I need more to do. Like, I want to accomplish something or make something bigger or better or stronger or faster, or something like, I can't, like, we can't just sit here and just nurture this thing like this. Like, even though it's great and it does it. I could do I could keep doing it like this forever, yeah, but I don't have anything to conquer, and that's tough for me, like, really, really hard. That's a level of anxiety, but it doesn't make it is, yeah, no, I know it is. Now I can sit here and tell you over and over again that I'm not an anxious person, but let me tell you a story where I will open up for a second. Jamie, you ready? Ready? I have a group chat with my brothers. You know, we text. We're boys. We text all the time, or not at all, or sometimes just about sports, or sometimes about kids, or, you know, like, whatever, and, you know, back and forth. And yesterday, my we're five years apart. I'm the oldest. I don't know if I ever said their names on here. Brian's the next youngest. He's five years younger than me, and Rob's the next youngest. He's 10 years younger than me. And Brian texts and says his weight. He's been using a GLP. Had type two. He had pre diabetes, you know, almost as it like, non diabetic levels, lost a bunch of weight. Said, like, Hey, this is my weight. I haven't been this weight. I don't even know when, and we're like, you know, Hey, man, that's awesome, or congratulating them and stuff like that. My brother, Rob, who's younger, has been in a situation where his company bought up another company, but they weren't going to be the dominant executive structure. And so there was a lot of concern that the other company was going to bring their people in, and they're he's been worried he's going to lose his job for a couple years, right? So my one brother tells us all that he's lost some weight, doing great. We're real like, you know, that's cool. 45 minutes an hour later, Rob texts, and I want to find it, because it seems so benign. He says, my weights down to this blah blah. We do all the thing and everything. Like an hour and a half later, my other brother says, we're still waiting for the official announcement, but I was told by my manager today that I'm in the plan, and I burst into tears. I'm 54, years old, but I raise. Raised those two like my mom and dad got divorced when I was 13. I don't know that I did a good job, but I raised my brothers right? And if you told me, if I was worried about them, I'd say, No, Rob's gonna do great. He's fine, like, he does good work. They'll they'll see that. They'll keep him. It's exactly what I've been telling him for two years. Like, don't worry, man, I'm just gonna work out. I never in a million years would have told you that I was nervous, anxious, worried about Rob, and I was washing dishes, and it got announced through my headphones, like there's a text message from Robert blah blah blah, still waiting for official announcement, but was told by my manager today that I didn't have a second to think. My eyes exploded. Water came flying out of my face, and I started crying uncontrollably, yeah? And I thought, Oh, my God, how long have I been worried about Rob that? I didn't know that. You know what I mean, like, so it's easy for me to sit and say, like, I don't have anxiety. Maybe it's because I manage it better, but that's not me managing it. It's just the way my body works, like it's, I can't take any credit for it. You know what I mean? Anyway, that's a lot of talking. But I texted and then I texted him, I told him, I was like, oh God. And then we talked about it, like, I actually said, I'm crying. I'm so happy for you, but I don't know if I'm happy for you or just relieved not to worry about you, right? You know what I mean? Like, it's really great. And then, like, there's some nice things that were said. My other brother said, I won the brother lottery. That was really nice. Like, stuff, it was really lovely, actually. And it hit me for a couple minutes, like, it wasn't just like, oh. And then I like, let it go. Like, Arden walked in the room. She goes, Are you crying? Like, yes, not gonna explain to her why I'm crying. You know what I mean? And, um, and and then she's like, oh. And then she was nice to me, so I think she, like, gave me a hug. And I was like, Oh, this is lovely. Like, she's gonna be a real person too one day. My point is, is that whatever that is, it's part of the reason why I'm successful at this, yeah. And I think it's probably also part of the reason why I'm successful at the diabetes stuff too, but I don't have whatever that slice of it is. Like you alluded you didn't allude to it you said earlier, like I probably wasn't this emotional before I had kids. So is it like, do you think it's a mix of that anxiety that is valuable in your life, in some places and probably valuable in this place, but then mixed together with what hormones and and worry like, how do you describe the stew that it is?

Jaime 37:24
I would say it's definitely hormones. I don't know. I think you just your empathy increases when you have kids. I would think, I mean, is that how it feels to you? Yeah, I mean, I think I'm much better at relating to people that I don't, that I wouldn't necessarily relate to otherwise. I think it's, it's a big mixture of all the things. But having kids changes you. It totally changes you, right?

Scott Benner 37:53
And you're mad. You feel like it's, it's kind of, what's the word? Because it's settling in. I can't believe I said that. Because people are like, how's your diabetes? Is it settling in? Do you find, like, you're finding, like, a balance with it as time goes past? You are,

Jaime 38:06
yeah, but it took about two years, two years, yeah. I mean, even, even last month. So we just switched insulin again last month because I was just having the hardest time and just having, you know, lows upon lows, we were just, we had a nice stretch where it was like no issues, and then it just went haywire. Then we switched insulin, and now we're back to a good place. But I think it it ebbs and

Scott Benner 38:30
flows. What made you switch to insulin and what'd you switch from to? I

Jaime 38:34
switched from a Pedra to fiosp, and it just felt like it felt like the carbs just hit his little body so hard that I needed something that was gonna hit hard

Scott Benner 38:46
back faster. They are two different profiles for sure. Yeah, the the A

Jaime 38:52
Pedro, it was good. It just felt like it took so long to do what I needed it to do.

Scott Benner 38:59
I like a Pedro because it's, how does it feel? Like more consistent, or like spread out? I don't know how to put that exactly. You don't get like, a fast crash from it. And that's me. Yeah,

Jaime 39:10
I did notice that. I did. I did like that with that. And I liked that there wasn't, like, a tail,

Scott Benner 39:16
yeah, it doesn't see

Jaime 39:19
we were on Nova log before that. And there it just seemed like hours later, it was like a tail and we he would dump

Scott Benner 39:26
that's what got me from Nova log to a Pedra. Yeah, is the like, you know, two a lot of two arrows up before I really understood how to Bolus. But then a lot of crashing later. And then I switched her to a Pedra a long time ago, and it hasn't been like that since. But it also is not like. It's not going to be like fiasp, where you're like, where it works more quickly. Now, how long has he been using

Jaime 39:52
fiasp? Five pods in so

Scott Benner 39:56
couple weeks. You know, some people report that that fast action kind. Of dissipates over time. Oh, great. Keep an eye out for that. I will. I'm not saying it'll happen for sure, but like, that's it. And he doesn't, he's not, um, it doesn't sting or burn for

Jaime 40:11
him. No, no, no in the other another thing with with a Pedro, why we switch is at the like, end of the last day. So day three on the pod, it was like, just not working. And that started maybe two months ago. And I was like, What's going on here? It just like, after that day three pod, it was, it was just like, highs,

Scott Benner 40:35
yeah, all the time. Gotcha. You know, earlier you called your husband a would you call him a something Boomer? Oh, a 40 year old

Boomer? Yeah, you called him a 40 year old Boomer, which I found hilarious, and it made me bring up, like all the generational titles in front of me to look at. And I realized, because how old is he? When was he born? What was his birth date? 1984 Yeah, he's a millennial. Yeah, right. But, and by the way, for people who don't track this stuff, connected and digital, care about purpose, social issues, value experiences over things, that's a millennial, baby boomer, post war, growth, optimistic, hard working, competitive, value, status, stability. Grew up during a rise in prosperity, a rising prosperity. It's interesting because I, as I looked, I realized, I think I'm I'm a blend of, like, three of these. And I don't know how that happened.

Jaime 41:30
Well, it could be because you had younger brothers too, because

Scott Benner 41:33
that's what I started wondering, like, how much of it is? How old your parents are? If you're overlapping generations and your parents are younger or older. Does it drag you in one direction or the other? How much of it does my job

Jaime 41:45
or and well, and having to have that parental role at a young age probably have something to

Scott Benner 41:51
do with it. Because as you look through these Have you ever done this for yourself?

Jaime 41:55
Not really. I'm a millennial, but like I'm I'm 100%

Scott Benner 41:59
right in there. Oh, yeah, because Gen X, independent, pragmatic, resourceful, skeptical of authority, first, digital adopters. That's literally that describes me. But I'm also optimistic, hard working, competitive and values status and stability. I have that too. And then you slide the other way to millennials, connected and digital. I 100% I am, but I think that's my job. Yeah, care about purpose. I really, sincerely do social issues. Yes, value experiences over things and yeah, but I wouldn't, I wouldn't put that one on me. And then you go to Z, digital narrative, socially aware. Expect inclusion and authenticity. Fast moving multitasker. I am digitally connected. Fast moving multitasker. This stuff in this stuff in the middle there. Like, I have my social like, opinions. But I also don't think I'm in charge of the world. I don't think I'm going to be able to, you know what I mean, like, you know when somebody's, like, using their Instagram, like they're gonna fix the world with it, I'm like, I don't think that's gonna work. That part I wouldn't fall into.

Jaime 43:08
So you're not an elitist. I'm not an elitist.

Scott Benner 43:12
I don't know people have called me that.

Jaime 43:16
I'm sure they have Yeah, for saying you're just misunderstood.

Scott Benner 43:20
It's possible. I also, like, maybe not, who knows? I couldn't begin to tell you. Generation alpha, born to screens and smart devices, highly connected. First fully 21st, century. Generation, yeah, that's our that's my kids. I gotta think that, but that's how I feel now. Well, you have to be I guess so. And then generation beta, just beginning, expected to be more immersed in the AI, digital tech, global change. Wait, we're already done with alpha. Alpha's over 2010 to 2024 beta started. 2025 Do you not hear yourself and all those things?

Jaime 43:55
Yeah. I mean, everything's cross generational, like we learn things from our parents, you know, my husband, he skipped right over millennial and Gen X and went straight to Boomer.

Speaker 1 44:08
Is it the football thing? Do you think it could be? I

Jaime 44:11
mean, he just, he uses his phone, like he has to be on Twitter and stuff for for football, but otherwise, I don't know that. Like, I think he would just be one of those people that just kind of left their phone in the car, you know, if he did not, if he didn't have to be connected, I don't think he would be right like his. I remember hearing a story about his dad when he they first got cell phones, his voicemail was like, Hey, this is John. I'm not in my car right now. Like, that's why he wasn't answering his phone because he wasn't in his car right now. The

Scott Benner 44:42
car is where the phone is, and that's why you're not hearing from me right now. And that's that, yeah, that's 20 years removed from if that the machines existed back, then he'd be like, Hey, I mean, I'm not in the kitchen, so that's why I'm not here, right? The cord doesn't reach to where I was. I. It's right. I think this might just be like, the I don't know. Maybe this is more like, you know, I'm a cancer, I'm an Aries, like, kind of bull that also sometimes is right on, you know what? I mean, like, I don't know. I just You cracked me up when you said 40 year old Boomer, because I know enough about it to know that that was really funny, but not enough about that's why I pulled up, because I don't know enough about it. Like, I don't know what a millennial is or Gen Z, I don't, I wouldn't have been able to tell you that on my own, right?

Jaime 45:28
So interesting. The reason I said that was because, like, I build the apps, like I do the updating on on the apps, and I'm the one that's tweaking everything in his his diabetes care via trio at this point and like, I just don't think my husband could do it if he had to. Could he I don't think so. You know who I think could if they had to his mom, his mom,

Scott Benner 45:50
that lady you married? Yeah, I wonder if he knows he's allowed to have sex either because of how great his mom is. Does he ever thank her?

He should. That's awesome. I hope he hears this. Oh, he will, Oh, that's good. Also, football's cool. I like football. Yeah. Football is cool, yeah. Do you go to

Jaime 46:15
games? Yeah, we go to all the home games and some of the, some of the away games, nice.

Scott Benner 46:20
The kids go to, yep, that's awesome. How do you find managing the diabetes in the cold at the games? We don't go to the cold games for that reason, or because you don't want to be cold. Well,

Jaime 46:31
because in November, the Mac turns into action, and they play on Tuesday and Wednesday nights at seven o'clock or eight o'clock.

Scott Benner 46:39
Oh, bad timing. And my kids are four and six. Yeah? Well, that makes sense, yeah. Like, now, with the technology being the way it is, it's occurred to me a few winters in a row, like, how different it used to be. It was freezing out. You're, like, pulling out a meter all the time to check blood sugars. People's hands were cold and like, yeah, no, that really happens much anymore now, with CGM and stuff like that, and pumps and, you know, like, when you're you're overdressed for the weather, and your kids, like, only wants to take a shot in their leg. And you know what? I mean, you're just like, I guess we'll get hard through the snow suit. Go in the car. We'll take your pants off. We'll get it warm in there first. Like, I've done all that, or been in, like, you know, sure, public places where you're like, Well, we have to go somewhere because she doesn't want it, like, in a place that's accessible. I will tell you that I have in the past, given injections through clothing, which I know you are not supposed to do, right? But it's definitely happened, yeah, and now it does all just a little easier, and that, as I'm looking at this generation beta thing, it's making me wonder, like, I wonder how it'll change again.

Jaime 47:42
Could you imagine being called Generation beta?

Scott Benner 47:45
That seems weird, right? Like how emasculating the next one

Jaime 47:49
gonna be? It's gotta be C, whatever C is,

Scott Benner 47:53
is it just gonna keep going kappa. You went to college. You gotta

Jaime 47:58
I did. I was in a sorority too, and I had to learn the Greek alphabet. But it's just, it's escaping me right now. What

Scott Benner 48:03
was the MBA in business? It's Masters in Business, like it was, with a focus, though, on something

Jaime 48:08
being awesome.

Scott Benner 48:12
No formal cohort governing body defines generational labels. Many are societal or marketing conventions. So it has. Nobody's come up with it yet.

Jaime 48:23
Wait, continuing. Nobody's come up with what I mean.

Scott Benner 48:26
What this is saying is like, if it follows, continue to follow the Greek alphabet, the generation after beta will be gamma, gamma. That's it. Yeah. And then delta born from 2040, to 2054, but this is not official. It's a logical This is AI telling me this is the logical idea, but it doesn't mean that's what's going to happen, because society might deem it something else.

Jaime 48:47
Why? We just went from X to Y to Z, and now we're back at alpha why? Why would it deem it anything else?

Scott Benner 48:55
Because motherfuckers don't make sense. That's probably why. But I think it's interesting. I think it's because the society just picks things that happen. Like, I mean, you know, where did sus come from? Suspect, Yeah, but why? Like, why wasn't it something else? Like, what's the big one now? Riz, well, no, no, no, I'm talking about, like, if somebody explains how they feel about something, what do they call it now, cope. Oh, yeah, right. Look how you don't know that, because you're busy living your life

Jaime 49:23
Well, yeah. And like, why would I know that? My kids, my kids are saying six seven now, like, it's a joke. And like, I have no idea what they're

Scott Benner 49:29
talking about. I don't know. You don't even know.

Jaime 49:32
I was like, Oh, well, 789, you know? And my six year old is like, no, six seven. And I'm like, What is six seven? Look it up. I'm trying ridiculous. Nobody knows. I don't even think they know what it means.

Scott Benner 49:47
It's a viral phrase used especially by teens. Originates from the song dude, dude, six seven by rapper. It often associated with the basketball player, Lamelo ball, because he's six seven, tall. It has no fixed meaning. Sometimes it means something is so so or awkward. It can also reference height or TA, we're doomed. Is that really? Yeah, oh my God, oh yeah. Your kids are idiots. Look at that.

Jaime 50:13
They're just repeating what they hear at school.

Scott Benner 50:15
But they're little. They're How will they even do? They're six and four, and they're running around, going, six, seven,

Jaime 50:25
well, they go to school with up to eighth graders,

Scott Benner 50:28
oh, like on the bus and stuff. Well,

Jaime 50:30
yeah, I mean, just in general, like the school is, it's an elementary and middle school combined. It's like a small Catholic

Scott Benner 50:36
school. Oh, okay, all right. That is really a mix there. Yeah? Okay, so, by the way, when somebody says what you're saying is cope, they're accusing you of, like, being in denial or not accepting

Jaime 50:51
reality. Oh, like, that's how you're coping with whatever it is, right,

Scott Benner 50:55
right? So you couldn't possibly mean what you're saying. You're just coping, yeah, which is an interesting part of, like, the mock outrage thing online, where, like, you know, you have an opinion, and I start a channel, and I just take the opposite opinion, and then anytime you explain your opinion, I just say, oh, that's cope. You're wrong because I'm because what I think is right. And so interesting that nobody the idea of, like middle now is, is so inflammatory to some

Jaime 51:27
people. Oh, yeah, no, you can't be, you can't be Switzerland on anything. Yeah,

Scott Benner 51:31
I am. I think that makes sense. I think it's gonna come back. I hope so. I think you make a lot of sense. And I think they make a lot of sense, not about everything, but a blend of it is where reality is.

Jaime 51:42
Well, yeah, I think everybody thinks that they make a lot of sense, or they wouldn't, they wouldn't be saying it.

Scott Benner 51:47
Why is being centrist like a bad idea then? Because you're not taking a stand, I know, but that doesn't mean anything. Some things

Jaime 51:55
don't need a stand,

Scott Benner 51:56
though. Yeah, most things don't need a stand. Actually, if everybody was just being reasonable, most of this wouldn't be happening, right? Okay, I'm sorry. We've gotten off the topic, which, by the way, the topic is, I have no idea, but I have enjoyed our conversation. So now that we've been doing this for like, an hour, and we didn't start with a topic, and it's gone the way it's gone. What about diabetes, or your experience with diabetes? Should people know about?

Jaime 52:23
Well, I know that everybody says this, but it just gets so much easier. You know, like you start to know how many carbs things are. And I'm not to the point where I'm like, oh, that's one unit, but I am to the point where I'm like, oh, that's 30 carbs. And I don't need to look it up everything. It's like drinking from a fire hose at the very beginning. And I know you've said that a million times before, but it really is, and then it just turns into a trickle. Yeah.

Scott Benner 52:51
Is there anything that could have been said to you back then that would have made it feel better, or hopeful, or anything like what would have made those feelings go away?

Jaime 53:00
I think people said lots of things to me that should have made me feel better, but I was on such a spiral that nothing

Scott Benner 53:07
would have helped. Yeah, so the answer is probably not,

Jaime 53:11
probably not. I mean, everyone says, Oh, it'll get better, and it's just like, Okay, well, hurry up and wait for that to happen, but it's gotten better, good.

Scott Benner 53:20
Well, that's my experience. Listen, I the way I found to say it over and over again is that diabetes is hard. It doesn't usually get any easier, but eventually you should be so good at it that it will feel easier. And that's kind of the same thing, actually, in the end. But it takes time, and you have to have experiences. You have to have the ability to step back during those experiences and really absorb them, not get super dramatic and like, give them away, or throw your hands up, because they are learning experiences. And if you don't take the knowledge from it, then you're just going to be doomed to have it happen again and again until you figure it out. Yeah, you know, macro is helpful. You know, don't, don't stand too close when you're trying to figure it out. I think that all is true, and I hope that people hear that and and can, you know, be quantitative about it and try to apply it in their lives. But I don't know if that's possible. When you're crying every time you look another human being in the face, right? You know, like, you know, support yourself with people around you. And you know, hopefully guys that don't just say it'll be okay, because that's me, by the way, I would have done the same thing to Kelly. I probably did, you know, like, it'll be all right. Don't worry about it, right? I just did it with painting that we painted a couple of rooms, and she, like, put what I consider to be a significant amount of effort into choosing the colors, yeah, to the point where, like, one of the kids, I won't say which one, in case she ever hears this. Was like, Hey, why is the lady so wrapped up in what colors the walls gonna be? And I was like, I don't think you should say that to her. The lady, this one's way taken with this idea, but, but you know what the colors up now? Looks great, and I know Sure. I know for sure. If it would have been me, I would have been, Oh, that one's probably fine. And, yeah, would you care about it? I wouldn't. And during the picking period, I did probably say at some point, Kelly, it doesn't matter just any one of those three is fine, and she did not find that valuable. So no, yeah, there's, there's a blend in here somewhere, Jamie, between whatever hormones and childbirth does to ladies, it's super necessary. But right, that vibe of like, oh, chill out, it's gonna be all right, that's necessary too. Like, I can't believe that I've accomplished this, and I didn't do it on purpose, but I think you need a more centrist view of

Jaime 55:42
I agree with that, and I think I do have, I mean, I need, I needed that balance in my life, and he's helped me with that, for sure, yeah, but I'm still very type A when it comes to diabetes

Scott Benner 55:55
management. Think it's gonna stop.

Jaime 55:57
I don't know. I'm trying. I'm doing better with not letting, not letting the highs and lows affect me so much, because I can't make this my, this is his burden, and this is something that is going to affect him. I can't put my the way that it affects me on him, right? Because, especially as he gets older, tell me why? Well, I mean, he's gonna, he's gonna be the one that's physically feeling these highs and lows, and physically feeling, you know, the drop when you have too much insulin and and you know, I'm not feeling that. I feel it for him right now, because Emotionally, I feel it for him, and it affects me when he's high for a long time, and it affects me when he goes low really fast. And, you know, like yesterday, he he was dumping because they had cake in school, and just the insulin hit faster than the cake and and it was right before he was about to get on the bus. And I was like, Wait, like, stop everything. We can't put him on the bus. I went and got him, but it's just like, it's nerve wracking. And then, you know, the Dexcom goes out, and it's just like everything hitting all at once, and this is going to be happening to him. I can't be the the additional burden on him,

Scott Benner 57:09
right? Because why? What'll happen to him if that's who you are, well, he'll push me away, right? And by the way, to the therapist, you tried one time. That's what you should have done, but I just did right there. It's beautiful. What I did, it was awesome. Actually, you're a wonderful therapist, you know what? Seriously, I walked you right through it. And why was it hard? Right? If they call you an elitist, terrible, so rude, right? Do you like that? I set myself as an elitist to ask why he called you an elitist. That was, yeah, but it was smooth. It was for your humor, too, like, but now I'm shining a light on it to see so the people who are now mad at me can go, oh, he was kidding, and the people who knew I was laughing are like, I'm so much smarter than everybody else. Now you're an elitist. What do you

Jaime 57:51
think of that? I've been called it before.

Scott Benner 57:53
No, I mean the other people listening who were like, I got the joke the first time. Yeah, you got to remember there's other people here, just not us, just not now. Oh yeah, hi. Hey

Jaime 58:03
guys, no, but it's just it kills me that, like I can, I can have a meltdown and go away for a week and turn diabetes off, and he'll never be able to do that.

Scott Benner 58:13
Yeah, it's upsetting. It really is, but it also he'll find a way to do that on his own, hope, but the goal is for him not to find that way by not taking care of himself for a week, right? So the your real job micro, your real job is don't let him get on the bus when his blood sugar is falling, etc, and all that other stuff, right? Your macro job is to make sure that he has a healthy view of himself as options. Doesn't think that this is a burden, right? Doesn't think that you're burdened by it. Doesn't think that you're being oppressive about it, doesn't think all those other things. That's the big picture stuff. It's the stuff I didn't realize till the last few years, like, this is that's the real job. Like, yeah, you got to keep them alive, and, yeah, you got to make sure you can take care of the thing. But that's to your point. Earlier gonna come, and you're gonna be on, you're paying attention to it, so you're gonna figure you're going to figure it out. So how

Jaime 59:04
did you go through the period of Arden gaining independence without being overbearing?

Scott Benner 59:12
Oh, going through, still not go through, going through still not all the way through it yet. Okay, maybe we'll never be who knows, right? It was hard at first, because all of my instincts were with you, and my memories of like your memory is, oh, my God, his blood sugar is tanking as he gets on the bus. I gotta text somebody and stop him. My memory is her having a seizure, or the time that her blood sugar was crashing while she was in gym class, and that I was in the shower and I was texting her and texting her and calling and calling and getting out and drying myself off and putting on enough clothing, and thinking, oh my god, am I going to drive across town and run into the gymnasium and like, you know, texting and calling and calling and telling. Next thing, and the whole thing, and getting right to the front door, going into school, because of 911 now, you can't walk into a school, you know, you have to, right? You know, there's 17 concrete barriers out front. You got to get around them. And then you get inside, you buzz them in. I look the lady in the face, and I'm like, and I start talking, and I realized that whatever I was about to say, you would have locked me up if you if you saw me out of hand, you would have been like, there's something wrong with this guy. And just as that happened, my phone rang, and I picked it up, and I was like, hey. And she goes, Hey, are you trying to call me? And I'm like, Yeah, you're really low. She goes, I took care of that. That was it. And I turned around, half wet, half dry, half dressed. I looked at the woman in the window, and I was like, sorry, and just walked out like I didn't even I didn't even contextualize it for I was just like, but I'm leaving now. And left, drove back across town, went back upstairs and got dressed. But when something's happening to her, five years later, 10 years later, those are the things that that hit your nervous system when you're thinking about it, right, right? The big stuff, how do you get past that? For me, it was the day I realized that if I kept thinking about it that way, she was literally not going to talk to me, that we were going to be completely separated on on her and I don't mean talk to me ever. I mean talk to me about her diabetes, that we were going to be separated about that, and here I was with all this information and knowledge that was going to help her, and she was going to choose diabetes as a way to drive a wedge between us if I kept pushing. And so you have to step back and then let things happen that you know you could stop and just let them happen. And where do you get the confidence from that? I got it from interviewing all you guys who live through it. And I thought, Oh, she'll live through it, and she knows what she's doing, and she's, you know, earnest enough about it, like she's not gonna, like, Arden is not gonna wake up one day with an 11 a 1c like, when Arden is really struggling in college, or anyone sees like, six seven, right? And there was a moment in my life where I saw that and I thought, Oh, my God, I could have a five five. She just needs to do this here and that here and do that over here and change this pump this time instead of that time. Like, this is very easy, like, I could do this forever, right? But she's not in my position. And I learned that from people too. Like, why do people not take care of themselves until they want to do it for somebody else? Right? Like, why is that such a common human story? I don't know, but it is so. I believe that. And I moved on, Arden is not going to give herself a five, five until she decides she needs to. When's that probably going to happen if she has a baby? That's the most common answer for women that I talk to, right? Yeah. Every once in a while, it's when I met a guy and I was way out of control and I wanted to be married, but that's not her, her vibe. Six Seven is not out of control, right? Like, there's, there's nothing wrong with that. She could live her whole life like this. Six Seven, yeah. Like, and be great. Like, this would be fine. And sometimes she's a six five, sometimes six. Two depends on her stress level, how busy she is at school. But at some point, when we we did that, then it became like, you don't get to be involved in this anymore. I rode the horse too long. It was trying to throw me at that point, okay? And so then I backed completely off for like, six months, and then slowly, she'd be like, Hey, can you help me with this? I, you know, that kind of thing. And now, more recently, once in a while, I'll send her a text, I'll be like, hey, like, you know, you really got to Bolus, whatever it's suggesting here, you should Bolus it. And now she's back to like, we reset our relationship, yeah. And if I would have fought against that, then, you know, then I have the Jerry Springer equivalent of a 16 year old girl who's pregnant, just to show me, you know what I mean? Oh, yeah. And instead of that, we're good, like, we're really in a good spot. Good, yeah. So I don't know, in that word salad somewhere, is the answer?

Jaime 1:04:02
Yeah, no, I think I got an answer out of it, for sure. Cool, awesome. Did you use caregiver with loop?

Scott Benner 1:04:11
That doesn't sound like a thing I know about,

Jaime 1:04:14
like, were you able to remote Bolus? Oh,

Scott Benner 1:04:17
I never put myself in a position to be able to remote Bolus. I did have it set up that I could change basal like temporary basal rates, yeah, but there's always been this confusion as to whether or not that actually worked or not. There are some people in the dev side of it who tell me, like that doesn't really do anything, like you're seeing it on screen, but it's not happening. You thought you were doing something. And there's part of me that thinks that can't be true, because I've seen myself manipulate it, but I've asked myself over and over again, did I just wait so long that it was happening anyway, and I deluded myself into thinking I was doing it? I don't know. Now, when she's on trio, I actually do have remote Bolus on my phone. Oh, you do, yeah. And so one of the ways I got through. The time where we were less connected without bugging her. This is where she's going to find out about this one day. Probably, if she was struggling, I would give her the suggested insulin. It was asking for,

Jaime 1:05:11
really, and she didn't know it didn't her pump didn't beep or anything.

Scott Benner 1:05:15
I mean it. She can hear it going in, but she's also aware of it. Now, people are gonna be like, That's so dangerous. Well, I'm talking about like, point four to change, like, a 160 to a 130 like, stuff like I wasn't I'm not sending like, five units of insulin through or something like that. If I was ever in a situation like that, I would and had, like, bit the bullet Center attacks and said, hey, you need a lot of insulin. I'm not comfortable, you know, giving it to you without you knowing. So you need to do it yourself. Also, she was not unaware that she was getting insulin. Remotely, she knew that, okay, but I wouldn't send her a text if it was point two or point four or something like that, but I would text her and say, Hey, listen, you need a unit right now. Give yourself a unit. Here's an example of a real life example, like she's in a class, she doesn't answer me back, doesn't answer, doesn't answer. I'm looking on night scout. She has not Bolus. And so the next thing I do is I push the unit through, and then I send a text that says, hey, at 1015 I Bolus the unit that it was asking for, FYI, so she would know it was there. It was nothing nefarious. You know what? I mean? Yeah, that helped. Because I think there was an amount of time where she didn't want the connection, but she did want the help, right? And again, I took that, like, where did I make that leap from? There's gonna be adults that have type one and listen to this, or, like, probably, like, mortified by this, and you, maybe you should be I don't know. But where did I get that from? I got it from all the 27 year old young women that come on here and tell me I pushed my family away. I told them I didn't need help, but I did, but I didn't want it. And I look back now and I wish the hell they wouldn't have stopped trying to help me. And you have any idea, many people said that to me and a lot of young women seriously, I learned to believe that what was going to happen was going to happen, and I took everybody's advice from these conversations and aggregated it together. And I thought I have an opportunity to let my daughter have this autonomy, feel like she's breaking away without it impacting her a 1c and having to say, five years from now, hey, I have a couple of problems. I wish somebody would have pushed a little harder when I tried to push them away. Yeah, that's it. That's a delicate balance. I'm very focused on that kind of stuff. Yeah, it's not a thing you can jump in and out of or be flipping about, like, it's got to be a really well considered, like, this is not a thing I thought up in the shower this morning. Yeah, I've been thinking about this for 20 years, you know. Anyway, that's what I did. All right, I have one more question. Good. How do

Jaime 1:07:48
you keep up with the the trio updates, if you don't build it yourself, do you build it yourself?

Scott Benner 1:07:54
No. Lovely people help me. Well, they just came out

Jaime 1:07:57
with one. It's a follow update and a trio update, and you have to do both for them to continue to work together.

Scott Benner 1:08:04
And I tell you something embarrassing, what? And then you can explain it to me, God, this little thing pops up on my phone sometimes about this, um, this app called loop follow, yeah, and it tells me sometimes that an update is available to it? Yeah, I couldn't, for love, money or to save my own life, tell you how to update that app. I literally don't know. I'm sure you might know it says it's set up for it auto updates. But that is not a thing that I've ever found to be true. So yeah, I don't know anything about it. Somebody set it up for me. It's lovely. Works great. I did hear there's another version of TRIO out, but I haven't looked at it being perfectly honest. Tell me, first of all, this isn't test flight, am I right about that? For

Jaime 1:08:54
people, test flight. Test Flight is like, if you're an app developer and you want to put a test app on someone's phone, they have to download test flight to for you to be able to

Scott Benner 1:09:04
so I go into test flight, I see the follow a B app here. It says automatic updates, but I do not believe that it's updated to its current version. Or maybe it is, I have no idea. It says the current version is 3.2 for follow Yeah. It expires in 53 days. It

Jaime 1:09:23
says yeah, I think, well, the one, the version they just came out with, is four, 4.0 okay.

Scott Benner 1:09:29
And what version Am I even using? All right, I am using 3.2 it says the latest four, yeah. Again, if you told me right now, Scott, to save your own life, you have to update this, I would not know how to do it.

Jaime 1:09:42
Well, I don't use test flight, so I don't know if you could just update through

Scott Benner 1:09:46
that. And you're saying there's a new version of TRIO

Jaime 1:09:49
too. Yeah. So this most recent update. You know how, when you send a remote Bolus, you're just like, hoping it went through,

Scott Benner 1:09:56
and sometimes you have to do it twice. Sometimes you have to

Jaime 1:09:59
do it twice. Now. Now it shoots back a notification on your phone that the Bolus has been received, and it's it's going

Scott Benner 1:10:07
through. What are other parts of the Do you know what else was updated on it? Yeah,

Jaime 1:10:11
there's a whole list of things. Actually, you were talking about the recommended Bolus. They're reworking that so that it shows you the exact recommended Bolus that you would get if you were in trio, because before it was pulling some other number from somewhere

Scott Benner 1:10:25
else interesting, I did find myself having to, once in a while, make it more aggressive than it was asking to get the outcome. So I don't know how to update this. Being perfectly honest with you, like if you told me, I think it's worth updating the trio app, I would probably send a text to somebody and ask them to spend a couple with minutes with me, helping me with that.

Jaime 1:10:46
Yeah. I mean, most of the time I would say, just don't worry about it, because it was really good before. But because of this, this change and you, but you have to make sure that you're doing both of them at the same time, trio and loop follow for this one to

Scott Benner 1:11:00
work. Well, then I'm gonna, I'll send my text. Thank you. I appreciate that. See now you helped me. Great. Thank you. Have you enjoyed yourself?

Yeah, this was great, awesome. I'm glad I agree. I never once bad mouthed Pittsburgh, but there were some weird hills at that school, and I don't know why they expect people to walk up and down them. It's a weird place. The hills are insane, really, really, just like driving up them seems like I don't know if my car can do this.

Jaime 1:11:30
Yeah, you know what surprised me about moving to Buffalo is just how beautifully flat it is. Yeah?

Scott Benner 1:11:37
Pittsburgh, Buffalo. Cold places. Texas, not cold. Do you have a preference?

Speaker 2 1:11:41
I like seasons. Okay, so you'd

Scott Benner 1:11:45
rather be where you are now than in Texas, where it's pretty hot the whole time. I actually really like buffalo. Yeah. Where in Texas were you

Jaime 1:11:51
San Antonio? Okay, I feel like that's such a teeny blip of my life, though, like you don't even remember it. No. I mean, it's just like, like, think about one year of your life when you were in your early 20s. Yeah, no,

Scott Benner 1:12:05
I don't even know how to quantify that, honestly, right? Yeah, it's interesting. You've had a very interesting life. I don't think it's over yet. It sounds like there's a lot more interesting

Jaime 1:12:14
to come. Well, hopefully I'll just learn not to be such an elitist.

Scott Benner 1:12:17
Do you think that boy will get to teach professionals how to push each other eventually, or is that not his goal? That's the goal. Yeah, is it? Does he have? I mean, you got to know somebody, right? Like, it's got to be somebody that brings you along. Yeah, he's got some buddies in the NFL, nice, yeah, on any teams that I would hate. Or, well, who's your team? I live in Philadelphia, outside of Philadelphia, so you're the Eagles. Yeah, my whole life.

Jaime 1:12:40
Actually, he's got it. He's got a buddy that's coaching the Eagles. Yeah,

Scott Benner 1:12:43
see, well, I hope he knows how to tell people, because I'll tell you what to be like an offensive line coach here would probably be great for a career. Because, oh yeah, yeah, right, because you get to learn from Jeff stoutland, that'd be pretty great on your resume. I would imagine

Jaime 1:12:59
it would Yeah, yeah. To get into the NFL, though, you have to start you have to come in as an like he would have to come in as an offensive line assistant, right?

Scott Benner 1:13:07
Is that a paid drop? Is that a thing that wouldn't be something you couldn't do?

Jaime 1:13:10
No, it depends. The NFL is different, because it just depends on who's willing to pay you. Like the Steelers don't pay as well. From what I understand, I don't know a whole lot about it, other than what I hear, you know, through the grapevine,

Scott Benner 1:13:22
but is there anxiety with that? Because that seems like a very like tenuous way to make a living.

Jaime 1:13:27
Yeah, I I live in, in just a total state of unrest all the time,

Scott Benner 1:13:33
constant fear that we're about to be on. What else would he be good at, by the way,

Jaime 1:13:39
besides being a football coach? Yeah, I don't know you'd have to talk. I bet you could figure out what he'd

Scott Benner 1:13:45
be good at. Yeah, well, listen, if the podcast ever needs those kind of conversations, that's what we'll do. Imagine he just should my next job be Scott. He just grunts through the the conversation. I'm like, trying to pick through his brain, like, you have to say something, buddy. Yeah, you don't say something. I'm not gonna be able to figure out anything. You got to talk you, by the way, opened right up like an old book. I appreciate that very much. Jamie, yeah, no worries. You seriously, just flopped right open like the you were just like, all right, fine. Here's all my stuff. I really appreciated that.

Jaime 1:14:15
Actually, I feel like everything that I do I try to do at 100

Scott Benner 1:14:20
Well, you did this today, so thank you very much. I appreciate it, yeah, thank you, Scott. I appreciate it absolutely. Hold on one second.

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