#1689 Boomer, Cope, Six Seven

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Jaime shares her 2-year-old son’s type 1 diabetes diagnosis, daycare symptoms, CGM and pump choices, caregiver anxiety, marriage and football-family life on the Juicebox Podcast.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome back to another episode of The Juicebox podcast.

Jaime 0:15
Hi, my name is Jamie. I am 39 years old, and I have a son with type one diabetes, and I live in Buffalo, New York.

Scott Benner 0:25
If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management. Go to Juicebox podcast.com up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and, of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched by type one.org I'm having an on body vibe alert. This episode of The Juicebox podcast is sponsored by ever since 365 the only one year wear CGM that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox a huge Thanks to my longest sponsor, Omnipod. Check out the Omnipod five now with my link, omnipod.com/juicebox you may be eligible for a free starter kit, a free Omnipod five starter kit at my link, go check it out. Omnipod.com/juicebox Terms and Conditions apply. Full terms and conditions can be found at omnipod.com/juicebox, hi.

Jaime 2:25
My name is Jamie. I am 39 years old, and I have a son with type one diabetes, and I live in Buffalo, New York. Buffalo.

Scott Benner 2:36
Are they the only undefeated NFL team at this moment,

Jaime 2:39
the Buffalo Bills, didn't we just lose to the Patriots?

Scott Benner 2:43
I thought you won this week. I don't know. That boy is huge. That that quarterback you have there is a big person. He's a big person. Yeah, you're 39 the kid is how old? He's 440, do you have any other little children? I do. I have a six year old, your first baby when you're 33 boys. I did on purpose, by mistake. What

Jaime 3:05
happened? No, I was, I got married at 31 and was, you know, had baby fever,

Scott Benner 3:14
and went from there. You have such a big personality. Thank you. Explain to me I grew up. I mean, you're 39 I'm 15 years older than you. When I was in high school, people were like, you know, I'm gonna get married. And I was like, Yeah, you talk about all the time now, kids like my daughter's 21 i i don't even think she'll tell her boyfriend she likes him. What's the shift? Because you don't come off like mousey to me, I don't think you would not be a person who dated like you, just not interested in it. Or did it like is the timeline different for you? Can you explain that all to me? Do you know I'm asking,

Jaime 3:52
yeah, so I actually did get married at 25 and that was just a quick oops. This was a terrible mistake.

Scott Benner 4:00
Got out of it quickly. How quickly did you know it was a mistake?

Jaime 4:04
So we were living in New York City, and he was in the army, and we moved to Texas, and as soon as we moved away from all of the distraction, the friends and the, you know, being able to be home in three hours and and that kind of stuff, we realized that we were better roommates than husband and wife.

Scott Benner 4:24
Gotcha, it was mutual. Yeah, it was mutual. Oh, no kidding, that's nice. Do you still know him? Not really. Okay, that's fine.

Jaime 4:32
No. I mean, I don't follow him on social media or anything

Scott Benner 4:34
like that. You don't check in once while I go. You remember that time we got married? No, how long were you actually married to him? A year. No kidding, probably doesn't even seem like it happened, right?

Jaime 4:45
It doesn't. It feels like a it feels like a total, totally different lifetime.

Scott Benner 4:49
Did you do it? Because it felt like the thing to do. You

Jaime 4:51
know, it was a weird time in my life. My my step brother had just passed away in a car accident, and it was one of those grieving. Being kind of grasping onto anything you could possibly grasp onto, and he happened to be the thing that I grasped onto.

Scott Benner 5:07
No kidding. Do you think he figured it out first? Or you did? I think he

Jaime 5:11
would have probably he was a very kind of complacent person, so he would have just stayed in it and been

Scott Benner 5:17
miserable. Could have had a house and a car and an unhappy wife. Yeah, sounds fun. I mean, it's going okay. For me, it's so I'm just kidding. I'm sure you are okay. So that happened, and that does that slow your role on the next Do you spend that time dating? Does it slow you down? How do you handle that space in between getting married again?

Jaime 5:40
So I moved back to Pittsburgh, where I was living before that, and I was thriving. For sure, yeah. I was yeah, oh yeah. I was working, started to get my MBA. Was dating. I didn't necessarily love the whole dating scene, but when I got my MBA, it was, it was an executive program. So we, there were 32 of us, and we were all in class together, all day, Friday and all day, Saturday every other week for a year and a half. It wasn't like a typical like, you meet someone in class and, you know, you become friends. It was like we were tight, right? And that was really, really fun. Yeah. It sounds like you loved it. Actually, yeah, it was great. I mean, I have very fond memories of that. And actually, that's how I met my husband. Oh, I was getting my MBA with this girl, Susie, and Susie worked with this other girl, Angela, and I promise I'm going somewhere with this. Angela was getting married to my husband's brother, and she could not wait to get him out of the house. She was like, I gotta find Matt. Matt's my husband a girlfriend, to get him out of the house. And Susie was like, Well, I have a friend. She's single, and they threw spaghetti at the wall. And it worked. It stuck. Yeah, that's

Scott Benner 6:58
crazy. They used she was like, bait. And then you just were like, No, this is good. We'll stay. Yeah. So, okay, so you basically were just helping. You were being a wing woman. And when you meet him, what about him? Says to you, like, this is right. This time I got this, his

Jaime 7:15
mom. It took a couple months wait his mom. Yeah, his mom really was the thing that convinced me to stick around, how because she's just so

Scott Benner 7:24
wonderful. You thought this lady is so delightful. There's got to be something going on with this guy. I'm not seeing right now. Yeah,

Jaime 7:33
I mean, he's kind of gruff. He's a football coach. You know? He's when he showed up at my doorstep on our first date chewing gum, and I was just, we were going to a nice restaurant, and I was like, I don't know about this. And I was, I was probably too picky at the time, because I just didn't really have any interest in anything having fun. Do you think he was handsome? Oh yeah, he's so handsome.

Scott Benner 7:58
Oh, okay, that part was like, so there's enough of a reason to hang for a second. Yeah, yeah. He's very nice to look at, but you figured he was going to be a dullard. No, I

Jaime 8:08
just the gum thing. And then we showed up, and you know, he was like, buddy, buddy with the valet at the restaurant. And I was like, I don't know about this guy. Like, I think he's into himself. Like, just wasn't really feeling it.

Scott Benner 8:21
How'd you meet his mom so quickly? Then isn't the Meet the mom thing pretty later usually? Well, it

Jaime 8:26
was, that was two months later. I stuck around for two months, and then I met the mom.

Scott Benner 8:31
So you thought he was gruff and all these things, but you Oh, were you enjoying the rest of it?

Jaime 8:38
Well, I mean, he okay. So a week after we went on our first date, he I was in an auction, a dating auction.

Scott Benner 8:46
Oh, okay, that slowed me down for a second, but okay, go ahead.

Jaime 8:49
Yeah, so I was being auctioned off for a date for the American Heart Association. Oh, nice. And my friends were going to come with me. And my friend Susie, who set this whole thing up. Had talked to him before that, and she was like, Well, do you want us to bet on her for you? And he goes, Yeah, don't lose. So, you know he he bet on me and won me, and we met up afterwards. He wasn't even at the auction. We met up afterwards and had some drinks, and

Scott Benner 9:22
then I liked him. All right, did the drinks help? The drinks helped? Yeah. I mean,

Jaime 9:28
I think it was the buying me at auction that really was like, All right, this guy's kind of romantic.

Scott Benner 9:32
It's cute. I'm gonna go, What's the going rate for a Jamie at the auction? What did that cost?

Jaime 9:36
You know, what I think it was like. I think it was like, $400

Scott Benner 9:40
Oh, did you feel like you owed him the 400 bucks? Somehow? No, no good for you. It's awesome. Well, this is nice. Okay, so he, he used his what he had to keep you in. Then you meet, I know this has nothing to do with anything, but I'm fascinated by this. So then you meet the mom, and you're like, Oh, my God, this is a, this is a situation I'd like to. Be around,

Jaime 10:00
yeah, so I meet, I meet his mom, and we just really hit it off. She's so much fun. And we, I think we went, we ended up going camping at the end of that summer. So this was February that we met, and then by August, you know, I had been up to, they had a lake house at the time. They live there full time now, but this was just like their little cottage at the time. So I had been there a couple times. I brought my dog, and we just had so much fun. And then we went camping, and we just, like, it was just her and I and then football season was, was started up, and I don't know, I was like, well, if I'm gonna, if I'm gonna be married to a football coach, I'm gonna have to get along with his family and enjoy being around his family, because, like, right now, we're in season, and I don't see the football coach very much, but I see his family.

Scott Benner 10:53
I gotcha, that all makes sense. Did he coach like, high school or college or

Jaime 10:57
no, he coaches at the University of Buffalo. He's the offensive line coach. Oh, that's pretty awesome. Did he play himself? Yeah, he played at Duquesne in Pittsburgh. Oh,

Scott Benner 11:05
I know that place. Yeah, what got you from? Oh, the job probably from Pittsburgh to Buffalo. That was,

Jaime 11:12
yeah, it was, it was the job my so we had just had my oldest son was turning two, and my younger son was four months old, and he walked in the bedroom and was like, Do you want to move to Buffalo? No, I just had a baby, and all of our families in Pittsburgh, and, you know, we had just bought our dream home, and,

Scott Benner 11:36
and he's like, I want to go teach five big guys how to push Yeah.

Jaime 11:42
Will you come with me? Yeah, I guess I will. I guess I signed up for this, didn't I,

Scott Benner 11:47
yeah, I guess since the kids look like you, I'll come along. Do you work? Or are you a full time mom? Or how do you handle it?

Jaime 11:55
So I do some things for work. Before diabetes came to our family. I had a staffing company that was, you know, thriving, and then diabetes hit, and I that had to go into maintenance mode. So I wasn't really building new business at the time. But now we're two years in, and I'm feeling like it's, I'm I'm ready to back to it. Make that a business. Again, good

Scott Benner 12:21
for you. That's awesome. Yeah. So the diabetes came in Buffalo, or Pittsburgh, buffalo, Buffalo. Tell me about it.

Jaime 12:29
So it was September 2023, my son was two years old. He started peeing through his diapers at daycare. I didn't really think anything of it. I was just like, he's just kind of a monster. He eats a lot, but then he started looking a little bit skinnier. I think he lost two pounds. And he was, you know, 30 pounds at the time. So two pounds was noticeable, right? It was actually one of the daycare workers in his room, who was just a nice, quiet young man. He wouldn't have said anything if he wasn't concerned. And he said to me, Luke's peeing through his diapers. I think you might need to take him to the doctor. But nobody ever said anything about diabetes. And I went home and I Googled it, as soon as I started seeing the symptoms of type one I go, I remember I was actually sitting exactly where I am right now, having a drink with my husband, and I looked at him and I said, Luke has type one diabetes. And he, of course, is like, no, like, let's just wait. We're going to the doctor in the morning. And I was like, I know he does. And we went to the doctor in the morning, and they did a finger stick, and it read high. And I was like, well, he just had a popsicle, like I had, I had no clue. I had no idea, you know, what a normal blood sugar was, or even really what a blood sugar was at all, because I didn't have to know Sure. So they checked in. They were like, you know, popsicle probably wouldn't have done that. Go home, pack a bag. We're gonna call the hospital. They're gonna meet, they're gonna admit you. And I go, wait what? I'm like, we're gonna stay overnight. What do you mean? And they were like, just go down. Tell them who you are. They're waiting for you. So we go and, you know, they check his blood sugar, and it was, I think one of the ratings was, like over 1000

Unknown Speaker 14:25
is he in DK? At that point,

Jaime 14:28
he was not in DK. He had ketones, but he was not in DK

Scott Benner 14:32
DKA, because the magic daycare fairy knew about diabetes. Am I right or No, he just saw the peeing thing and thought that was enough to say something. This episode is brought to you by Omnipod. Would you ever buy a car without test driving it first? That's a big risk to take on a pretty large investment. You wouldn't do that, right? So why would you do it? When it comes to choosing an insulin pump, most pumps come with a four year lock in period. It through the DME channel, and you don't even get to try it first, but not Omnipod five. Omnipod five is available exclusively through the pharmacy, which means it doesn't come with a typical four year DME lock in period. Plus you can get started with a free 30 day trial to be sure it's the right choice for you or your family. My daughter has been wearing an Omnipod every day for 17 years. Are you ready to give Omnipod five a try? Request your free Starter Kit today at my link, omnipod.com/juicebox Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox find my link in the show notes of this podcast player, or at Juicebox podcast.com Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data? Today's episode is sponsored by the ever since 365 it is the only CGM with a tiny sensor that lasts a full year sitting comfortably under your skin with no more frequent sensor changes and essentially no compression lows. For one year, you'll get your CGM data in real time on your phone, smart watch, Android or iOS, even an Apple Watch predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence, and you can instantly share that data with your healthcare provider or your family. You're going to get one year of reliable data without all those sensor changes. That's the ever since 365, gentle on your skin, strong for your life, one sensor a year. That gives you one less thing to worry about. Head now to ever since cgm.com/juicebox to get started,

Jaime 16:50
I can't say what was going through their mind. I know. I know. After the fact, I spoke to the head teacher in his room, and she said that she thought it was diabetes, but she didn't want to use the word diabetes because she didn't want to scare

Scott Benner 17:04
me. Okay, but they pushed hard enough with the idea of going to a doctor to try to get you to do that people were

Jaime 17:09
concerned enough that I yeah, it jolted me to take action

Scott Benner 17:16
in hindsight. Is there an autoimmune in your side of the family or or or your husband?

Jaime 17:21
Yeah, there is so we've got some arthritis, some thyroid stuff, no diabetes, though there was type two. My grandmother had type two when she was much older, thyroid.

Scott Benner 17:33
Okay, how about you personally? No, I don't have any autoimmune in the football boy, anything for him, not that I know of. No. Maybe being gruff is autoimmune.

Jaime 17:42
Yeah, I mean bowling in china shop. Maybe I

Scott Benner 17:47
like how you describe your son as a monster. I don't know he's kind of a monster.

Jaime 17:51
So well, he was eating like 12 waffles, and we were like, What is going on here? He's growing, guys, he's growing. Meanwhile, his body's not getting any nutrition.

Scott Benner 18:03
Did you toast them or was eating them frozen? At some point he would have eaten them frozen if I would have served them that way. Crazy. So now you're in the hospital, and you're you're coming to grips and everything. What is your understanding leaving the hospital, and how has it changed since then

Jaime 18:20
leaving the hospital. So we got a Dexcom the same day we were still in the emergency room, and I asked for one. And the endocrinologist that we were speaking to, who's actually now our endocrinologist, was like, how do you know about that? I was like, Well, I saw it on one of the peloton instructors.

Scott Benner 18:40
That's where you saw it on Robin arzon. Like,

Jaime 18:47
why that? Like, for some reason that popped into my head. I was like, I know there's something that monitors this. And then you I'm not leaving here having to stick my son 10 times a

Scott Benner 18:56
day. So you're like, the little chick that rides on the screen when I'm doing my peloton has diabetes, and there's a thing stuck to her. And you did she talk about it? Did she say the words ever?

Jaime 19:06
I don't think so. Where did you figure that out at then, I don't know. My brain just was gone a million miles a minute.

Scott Benner 19:13
No kidding. Well, you pulled that right out of your That's awesome. Yeah.

Jaime 19:17
So she sent it in, and I went to the, you know, I had to go to three different pharmacies to get the receiver and, you know, all the stuff that comes with the initial kit,

Scott Benner 19:26
harried, feeling like, just crazy, right? Like end of the world's coming. We're trying to pack the car with supplies and drive away from the volcano, that kind

Jaime 19:34
of feeling, yeah. I mean, it's one of those situations where it's like, okay, as soon as I get home, I can cry. But here, like, what am I gonna do? I gotta, I gotta learn everything. Yeah.

Scott Benner 19:44
How long were you in the hospital? One night, one night I got you out of there, yeah,

Jaime 19:49
so they I, we had our, our diabetes training the next morning, at like 11am my husband stayed with my son overnight. He had a game that day. Yeah. He stayed with him overnight, and then went to the game and I came back down to the hospital. Gosh, when do you cry? Well, after that, I cried for probably a year and a half.

Scott Benner 20:09
Okay, tell me about that, please. Well, are you gonna cry now?

Jaime 20:20
I don't think so, but just thinking about it makes me just so sad for for him, and just I remember when he started school last year, he I cried probably every day. I cried to the nurse when I met with her, I cried to his teacher when I found out that she had raised a daughter with type one, and I was just like, oh, like, God is shining on me, you know, yeah, because we're going to the school. And I was so I was terrified to send him to school, even though he had been in daycare before. Like, this was school, and it wasn't like four kids to one teacher, it was a whole classroom full of kids.

Scott Benner 20:58
Yeah, yeah. And so you're worried at every step, and anytime you you open up to tell somebody what's happening, all those emotions come out of you.

Jaime 21:07
Oh yeah. I mean, it was just like water works every and every time I saw the nurse, probably for two months, I would cry, emotional.

Scott Benner 21:14
Or am I in generally emotional? Yeah, generally speaking, are you? I don't think I

Jaime 21:19
was as much before I had kids, I don't think I am as emotional now that I have accepted the

Scott Benner 21:26
fact that this is our life. Okay. Were you depressed in that time? Do you think there were times where I was very depressed? Yeah, so much so that you told somebody or you just were paying attention to it.

Jaime 21:36
I was paying attention to it and talking to my husband. Okay? And what do you think I went to one therapy session and therapist called me an elitist.

Scott Benner 21:49
Wait, hold on, we'll get back. No, actually, do that? Actually, the way you're laughing. I'm wondering if they were right, but like, but wait, what was why did that happen?

Jaime 21:58
Well, I was okay. So we were eight months in. It was last summer. It was our first summer, and I had gone to this, you know, one of these diabetes meetups, where it's all the moms with all their kids and and I just felt like such an imposter. I was like, we're not supposed to be here. We don't have this in our family. This isn't, this isn't part of our story, like it was. I was just in such denial, yeah, that I just couldn't accept it. And I was, you know, racking my brain for anything that I could come up with that could have caused it, like, was it vaccines? Was it, you know, what? What was it? Was it this cold that he had, or the RSV he had when he was six months old? Like, I just couldn't, I couldn't put my finger on it, and my brain couldn't accept that. And I told him that, and he called me an elitist.

Scott Benner 22:44
Well, he's probably not a very good therapist, but I never went back. So by the way, let's say you were, how does that change how he's supposed to help you? Let's not get off on that tangent. But like, that's not, that's not well done by him. Let's say you could have put your finger on it and said it was absolutely this. My kid had RSV, and that's what happened. I can see the whole function here of how it turned into type one diabetes. I'm just making this up, right? Yeah. What would that have done for you?

Jaime 23:08
I actually don't know. I never, my brain never went to the point where it was like, If This Then That it was always, what is

Scott Benner 23:17
this? I need to know why this happened, yeah, but to no end. Not, like, I need to know why this happened, because that knowledge excessively, yeah, that knowledge will help me something,

Jaime 23:26
nothing. Yeah, like, we did genetic testing, we did all kinds of stuff. Oh,

Scott Benner 23:31
because you were like, this shouldn't be happening. Yeah,

Jaime 23:33
I had no preparation for it. And that's something that I've struggled in the past. Is just anxiety of not, you know, not knowing what's going to happen. And I think that's what really made me obsess over. It was just the fact that I didn't have time to prepare.

Scott Benner 23:51
You could have used that anxiety a little bit when you married some boy in Texas. It would have been nice if it said to you, Hey, I wonder what's going to happen. We probably

Jaime 23:59
shouldn't do this. Could have been the reason that I had it. I mean, oh, maybe

Scott Benner 24:04
that's what brought it around. I need some anxiety, because without it, I seem to do things I shouldn't be doing, right? Well, this is very fascinating. I appreciate you sharing all this with me, and by the way, your intake form said, I don't know what we're going to talk about, so you put yourself in this position for me to pick through your life. I apologize about that. Now. Totally fine. Okay, so felt depressed at times. Shared that with your husband. Did he feel depressed? Was he handling it differently than you were?

Jaime 24:29
I would like to say the voice of reason, but it's more everything's going to be fine. And that was very frustrating for me, because when he says everything's going to be fine, I'm like, how, how's it going to be fine? Because of me, like, that's how it's going to be fine, is I'm going to educate myself like the burden is on me for it to be fine.

Scott Benner 24:50
Oh, you do have anxiety. Oh, yeah, how about that? I recognize this for some lady who I married, that whole idea of, like, the way you just laid. That out is so crystal clear, because he's telling you, we're going to work it out it's going to be okay, right? And that's probably true, and also it's probably true that it's going to be okay, because of all the things you're going to learn about it to help it get along. If you weren't there, would he have that attitude and learn the stuff? Or do you think he'd throw it up to God and wait and see what

Jaime 25:23
happened? I'm not sure what would have happened if I weren't

Scott Benner 25:25
here. He's just gonna go, maybe we should go hit the sled. That'll fix it. Well,

Jaime 25:29
he's like a 40 year old Boomer, like he doesn't he's not a tech guy, like, I'm the one that we've gone through. You know, four different pumps and three different insulins and the CGM were pretty stable on we've switched from the g6 to the g7 but I don't consider that like a change on me. You know, right? I'm always the one that's changing things to make things better, and I just don't know that he would have done that.

Scott Benner 25:58
You sometimes change things and it's not better and you're just tinkering too much. Or have you been pretty good paced so

Jaime 26:04
far, I've been trying not to over tinker. Okay? I think at the beginning with the pumps, I probably overdid it. I'm interested in that. Now I'm I'm very happy with where we are. What pump did you start with? We started on the tea slim,

Scott Benner 26:19
and then you switched. And now you're like, maybe I even shouldn't have done that well.

Jaime 26:23
And then we went to the Moby because we were in this, like, very short window where it was like, you can upgrade to the Moby for, you know, a couple 100 bucks. So I did that, and then I just didn't feel like I had enough, enough insight into his diabetes when he wasn't with me. And so we tried loop. I didn't like loop. And then we, when trio came along, we switched to that, and I'm very happy with it.

Scott Benner 26:50
That's where you're at now, yeah, what didn't you like about loop? The fake carbs. You had to keep telling it you were eating stuff that you weren't. You couldn't fix it with settings, right?

Jaime 27:01
I mean, I probably could have fixed it with settings, but I didn't. You didn't. I didn't. You know it was just at the time my brain couldn't do it.

Scott Benner 27:10
So you weren't ready to figure out how to do it. So you kept pivoting, thinking the answer was another device. Yeah, yeah. Can I say something? Everybody listening? Sure, whatever device you're using is probably great. Oh, they're all great. Yeah, if you're having trouble with it, you may not understand completely how to use it, or you might not understand the impacts of your food or timing of insulin. Are some of the algorithms better one thing than the other, absolutely. But they're all very, very, very solid. And probably

Jaime 27:38
I did love tandem. I loved it. I thought it was great, but I just couldn't see. I couldn't see what I needed to see to make informed decisions when I wasn't with him.

Scott Benner 27:49
Okay? And that anxiety then forced you to keep trying something new. Yes, you still have the anxiety now,

Jaime 27:56
not as much. I've learned to let go a little bit, to not look at my phone constantly and check his blood sugar. But it took two mental breakdowns, actually, this summer, I took a week long trip, turned all my devices off. He was with Matt. Had a week off over the summer, and I just said, I need to go. And I turned everything off. And he and his lovely mother took care of my son, both sons,

Scott Benner 28:24
you're right about that lady,

Jaime 28:25
right? She's, listen, I knew

Scott Benner 28:29
Jamie's like, Listen, if push comes to shove, I'd marry her and get rid of him. If I had to break downs, like classic, you know, or just be me. Just needed to walk away. What happened?

Jaime 28:43
Just total overwhelm. I mean, this past year, it happened because the boys got out of school June 11, and I just, I didn't have a good plan, and so we went from me trying to get my business back going, and they're in school and had a really good routine. And then summer hit, and I was like, you didn't

Scott Benner 29:09
have a plan for summer.

Jaime 29:10
No, I didn't have a plan. And it just it hit me so hard. And two weeks in, I was like, I gotta, I gotta, I gotta get out of here. I gotta get out of here. It was just like, we went from having a spreadsheet with, you know, lunch in it, to wanting to snack all day. And I was like, my brain, my brain is an overload.

Scott Benner 29:30
How do you like me? I don't I would never do any of those spreadsheet you just made. My Do you ever see the that movie with the lady with the big lips, the Erin Brockovich lady? Her real name is, sorry, we're playing charades, Julia Roberts. And she's in England where she meets a boy and falls in love. And she's famous. That one's called God nodding Hill, nodding Hill. Good job. And the boy has a roommate who says, I'm going to tell you a story that'll Share. Your balls to the size of raisins?

Jaime 30:01
No, I don't remember that. I've watched Notting Hill since I was like, 11.

Scott Benner 30:06
Well, okay, now I have to watch it anyway. There's a line in the movie that says that that's what, that's how I felt when you said spreadsheet. I was like, spreadsheet. Oh, my God, that's terrible. And, but why do you like me? If I'm like, No, it'll be fine. Just do these things, and you're you have a spreadsheet. Where do we find an intersection you and I,

Jaime 30:27
like you as the podcast host, yeah,

Scott Benner 30:29
yeah. Not me as, like, the like, the guy who you don't know, but like, like the podcast and you know, the group, even the vibe there. Like, why is that like, why is that comforting

Jaime 30:37
to you? Well, because whenever it's funny, because I you pop into my head a lot. I'm sorry, and it's, it's for interesting reasons. So one of them is, like, in the middle of the night when I'm waking up to give juice, I'm like, All right, I just got to bump and nudge this like, Damn you, Scott, at

Scott Benner 30:58
least it's nothing creepy that your husband's gonna come beat me up over that's awesome. No,

Jaime 31:02
no. And then it's funny. I mean, it's just like, like, today I texted the my son's teacher, and we have like, a group chat with the teacher and the nurse, and I was like, can you just give him, like, half of a glucose tab because he was going down? And, you know, I knew it's when I have to trust that I know what's going to happen before it happens. That's when I think of you,

Scott Benner 31:24
oh, okay, I'm glad. If I could say one thing to you, I'd say worry is a waste of imagination and trust that what you know is going to happen is going to happen, those things can help you a lot. You know, it occurs to me, as you're talking about this, I feel like we, maybe as a society, talk about anxiety all the time, like it's bad. I'm not saying it's good, but I think some of it can be good. And as an example, you said earlier you had a really successful self built business, yeah, and I bet the way your brain works helps a lot with that. It does. Yeah, but did you feel anxious about the job, about the business? No, no, but it's the it's the part where your kid could get sick or hurt or something like that, that adds to it.

Jaime 32:02
Yeah, it's just the anticipation of not knowing what's going to happen. And I think my husband helps with that, because he's like, you know, he helps and hurts with the everything's going to be fine. Because I'm like, he's like, nobody's going to miss a meal. And I'm like, okay, like, that doesn't help me in this moment, but thank you for

Scott Benner 32:19
that nobody's going to miss a meal. Is that, that's his way of saying, We're doing fine. It's gonna be okay. Yes, yeah, it's interesting, because that little bit of a, like, I'm not an anxious person, but I have drive and, like, so, like, I built this podcast off of the drive. As a matter of fact, I've been struggling the last month or so with being bored, and it's really getting to me. Like, I don't, that's interesting. Yeah, I have this thing running so smoothly now that I'm just like, oh, I need more to do. Like, I want to accomplish something or make something bigger or better or stronger or faster, or something like, I can't, like, we can't just sit here and just nurture this thing like this. Like, even though it's great and it does it. I could do I could keep doing it like this forever, yeah, but I don't have anything to conquer, and that's tough for me, like, really, really hard. That's a level of anxiety, but it doesn't make it is, yeah, no, I know it is. Now I can sit here and tell you over and over again that I'm not an anxious person, but let me tell you a story where I will open up for a second. Jamie, you ready? Ready? I have a group chat with my brothers. You know, we text. We're boys. We text all the time, or not at all, or sometimes just about sports, or sometimes about kids, or, you know, like, whatever, and, you know, back and forth. And yesterday, my we're five years apart. I'm the oldest. I don't know if I ever said their names on here. Brian's the next youngest. He's five years younger than me, and Rob's the next youngest. He's 10 years younger than me. And Brian texts and says his weight. He's been using a GLP. Had type two. He had pre diabetes, you know, almost as it like, non diabetic levels, lost a bunch of weight. Said, like, Hey, this is my weight. I haven't been this weight. I don't even know when, and we're like, you know, Hey, man, that's awesome, or congratulating them and stuff like that. My brother, Rob, who's younger, has been in a situation where his company bought up another company, but they weren't going to be the dominant executive structure. And so there was a lot of concern that the other company was going to bring their people in, and they're he's been worried he's going to lose his job for a couple years, right? So my one brother tells us all that he's lost some weight, doing great. We're real like, you know, that's cool. 45 minutes an hour later, Rob texts, and I want to find it, because it seems so benign. He says, my weights down to this blah blah. We do all the thing and everything. Like an hour and a half later, my other brother says, we're still waiting for the official announcement, but I was told by my manager today that I'm in the plan, and I burst into tears. I'm 54, years old, but I raise. Raised those two like my mom and dad got divorced when I was 13. I don't know that I did a good job, but I raised my brothers right? And if you told me, if I was worried about them, I'd say, No, Rob's gonna do great. He's fine, like, he does good work. They'll they'll see that. They'll keep him. It's exactly what I've been telling him for two years. Like, don't worry, man, I'm just gonna work out. I never in a million years would have told you that I was nervous, anxious, worried about Rob, and I was washing dishes, and it got announced through my headphones, like there's a text message from Robert blah blah blah, still waiting for official announcement, but was told by my manager today that I didn't have a second to think. My eyes exploded. Water came flying out of my face, and I started crying uncontrollably, yeah? And I thought, Oh, my God, how long have I been worried about Rob that? I didn't know that. You know what I mean, like, so it's easy for me to sit and say, like, I don't have anxiety. Maybe it's because I manage it better, but that's not me managing it. It's just the way my body works, like it's, I can't take any credit for it. You know what I mean? Anyway, that's a lot of talking. But I texted and then I texted him, I told him, I was like, oh God. And then we talked about it, like, I actually said, I'm crying. I'm so happy for you, but I don't know if I'm happy for you or just relieved not to worry about you, right? You know what I mean? Like, it's really great. And then, like, there's some nice things that were said. My other brother said, I won the brother lottery. That was really nice. Like, stuff, it was really lovely, actually. And it hit me for a couple minutes, like, it wasn't just like, oh. And then I like, let it go. Like, Arden walked in the room. She goes, Are you crying? Like, yes, not gonna explain to her why I'm crying. You know what I mean? And, um, and and then she's like, oh. And then she was nice to me, so I think she, like, gave me a hug. And I was like, Oh, this is lovely. Like, she's gonna be a real person too one day. My point is, is that whatever that is, it's part of the reason why I'm successful at this, yeah. And I think it's probably also part of the reason why I'm successful at the diabetes stuff too, but I don't have whatever that slice of it is. Like you alluded you didn't allude to it you said earlier, like I probably wasn't this emotional before I had kids. So is it like, do you think it's a mix of that anxiety that is valuable in your life, in some places and probably valuable in this place, but then mixed together with what hormones and and worry like, how do you describe the stew that it is?

Jaime 37:24
I would say it's definitely hormones. I don't know. I think you just your empathy increases when you have kids. I would think, I mean, is that how it feels to you? Yeah, I mean, I think I'm much better at relating to people that I don't, that I wouldn't necessarily relate to otherwise. I think it's, it's a big mixture of all the things. But having kids changes you. It totally changes you, right?

Scott Benner 37:53
And you're mad. You feel like it's, it's kind of, what's the word? Because it's settling in. I can't believe I said that. Because people are like, how's your diabetes? Is it settling in? Do you find, like, you're finding, like, a balance with it as time goes past? You are,

Jaime 38:06
yeah, but it took about two years, two years, yeah. I mean, even, even last month. So we just switched insulin again last month because I was just having the hardest time and just having, you know, lows upon lows, we were just, we had a nice stretch where it was like no issues, and then it just went haywire. Then we switched insulin, and now we're back to a good place. But I think it it ebbs and

Scott Benner 38:30
flows. What made you switch to insulin and what'd you switch from to? I

Jaime 38:34
switched from a Pedra to fiosp, and it just felt like it felt like the carbs just hit his little body so hard that I needed something that was gonna hit hard

Scott Benner 38:46
back faster. They are two different profiles for sure. Yeah, the the A

Jaime 38:52
Pedro, it was good. It just felt like it took so long to do what I needed it to do.

Scott Benner 38:59
I like a Pedro because it's, how does it feel? Like more consistent, or like spread out? I don't know how to put that exactly. You don't get like, a fast crash from it. And that's me. Yeah,

Jaime 39:10
I did notice that. I did. I did like that with that. And I liked that there wasn't, like, a tail,

Scott Benner 39:16
yeah, it doesn't see

Jaime 39:19
we were on Nova log before that. And there it just seemed like hours later, it was like a tail and we he would dump

Scott Benner 39:26
that's what got me from Nova log to a Pedra. Yeah, is the like, you know, two a lot of two arrows up before I really understood how to Bolus. But then a lot of crashing later. And then I switched her to a Pedra a long time ago, and it hasn't been like that since. But it also is not like. It's not going to be like fiasp, where you're like, where it works more quickly. Now, how long has he been using

Jaime 39:52
fiasp? Five pods in so

Scott Benner 39:56
couple weeks. You know, some people report that that fast action kind. Of dissipates over time. Oh, great. Keep an eye out for that. I will. I'm not saying it'll happen for sure, but like, that's it. And he doesn't, he's not, um, it doesn't sting or burn for

Jaime 40:11
him. No, no, no in the other another thing with with a Pedro, why we switch is at the like, end of the last day. So day three on the pod, it was like, just not working. And that started maybe two months ago. And I was like, What's going on here? It just like, after that day three pod, it was, it was just like, highs,

Scott Benner 40:35
yeah, all the time. Gotcha. You know, earlier you called your husband a would you call him a something Boomer? Oh, a 40 year old

Boomer? Yeah, you called him a 40 year old Boomer, which I found hilarious, and it made me bring up, like all the generational titles in front of me to look at. And I realized, because how old is he? When was he born? What was his birth date? 1984 Yeah, he's a millennial. Yeah, right. But, and by the way, for people who don't track this stuff, connected and digital, care about purpose, social issues, value experiences over things, that's a millennial, baby boomer, post war, growth, optimistic, hard working, competitive, value, status, stability. Grew up during a rise in prosperity, a rising prosperity. It's interesting because I, as I looked, I realized, I think I'm I'm a blend of, like, three of these. And I don't know how that happened.

Jaime 41:30
Well, it could be because you had younger brothers too, because

Scott Benner 41:33
that's what I started wondering, like, how much of it is? How old your parents are? If you're overlapping generations and your parents are younger or older. Does it drag you in one direction or the other? How much of it does my job

Jaime 41:45
or and well, and having to have that parental role at a young age probably have something to

Scott Benner 41:51
do with it. Because as you look through these Have you ever done this for yourself?

Jaime 41:55
Not really. I'm a millennial, but like I'm I'm 100%

Scott Benner 41:59
right in there. Oh, yeah, because Gen X, independent, pragmatic, resourceful, skeptical of authority, first, digital adopters. That's literally that describes me. But I'm also optimistic, hard working, competitive and values status and stability. I have that too. And then you slide the other way to millennials, connected and digital. I 100% I am, but I think that's my job. Yeah, care about purpose. I really, sincerely do social issues. Yes, value experiences over things and yeah, but I wouldn't, I wouldn't put that one on me. And then you go to Z, digital narrative, socially aware. Expect inclusion and authenticity. Fast moving multitasker. I am digitally connected. Fast moving multitasker. This stuff in this stuff in the middle there. Like, I have my social like, opinions. But I also don't think I'm in charge of the world. I don't think I'm going to be able to, you know what I mean, like, you know when somebody's, like, using their Instagram, like they're gonna fix the world with it, I'm like, I don't think that's gonna work. That part I wouldn't fall into.

Jaime 43:08
So you're not an elitist. I'm not an elitist.

Scott Benner 43:12
I don't know people have called me that.

Jaime 43:16
I'm sure they have Yeah, for saying you're just misunderstood.

Scott Benner 43:20
It's possible. I also, like, maybe not, who knows? I couldn't begin to tell you. Generation alpha, born to screens and smart devices, highly connected. First fully 21st, century. Generation, yeah, that's our that's my kids. I gotta think that, but that's how I feel now. Well, you have to be I guess so. And then generation beta, just beginning, expected to be more immersed in the AI, digital tech, global change. Wait, we're already done with alpha. Alpha's over 2010 to 2024 beta started. 2025 Do you not hear yourself and all those things?

Jaime 43:55
Yeah. I mean, everything's cross generational, like we learn things from our parents, you know, my husband, he skipped right over millennial and Gen X and went straight to Boomer.

Speaker 1 44:08
Is it the football thing? Do you think it could be? I

Jaime 44:11
mean, he just, he uses his phone, like he has to be on Twitter and stuff for for football, but otherwise, I don't know that. Like, I think he would just be one of those people that just kind of left their phone in the car, you know, if he did not, if he didn't have to be connected, I don't think he would be right like his. I remember hearing a story about his dad when he they first got cell phones, his voicemail was like, Hey, this is John. I'm not in my car right now. Like, that's why he wasn't answering his phone because he wasn't in his car right now. The

Scott Benner 44:42
car is where the phone is, and that's why you're not hearing from me right now. And that's that, yeah, that's 20 years removed from if that the machines existed back, then he'd be like, Hey, I mean, I'm not in the kitchen, so that's why I'm not here, right? The cord doesn't reach to where I was. I. It's right. I think this might just be like, the I don't know. Maybe this is more like, you know, I'm a cancer, I'm an Aries, like, kind of bull that also sometimes is right on, you know what? I mean, like, I don't know. I just You cracked me up when you said 40 year old Boomer, because I know enough about it to know that that was really funny, but not enough about that's why I pulled up, because I don't know enough about it. Like, I don't know what a millennial is or Gen Z, I don't, I wouldn't have been able to tell you that on my own, right?

Jaime 45:28
So interesting. The reason I said that was because, like, I build the apps, like I do the updating on on the apps, and I'm the one that's tweaking everything in his his diabetes care via trio at this point and like, I just don't think my husband could do it if he had to. Could he I don't think so. You know who I think could if they had to his mom, his mom,

Scott Benner 45:50
that lady you married? Yeah, I wonder if he knows he's allowed to have sex either because of how great his mom is. Does he ever thank her?

He should. That's awesome. I hope he hears this. Oh, he will, Oh, that's good. Also, football's cool. I like football. Yeah. Football is cool, yeah. Do you go to

Jaime 46:15
games? Yeah, we go to all the home games and some of the, some of the away games, nice.

Scott Benner 46:20
The kids go to, yep, that's awesome. How do you find managing the diabetes in the cold at the games? We don't go to the cold games for that reason, or because you don't want to be cold. Well,

Jaime 46:31
because in November, the Mac turns into action, and they play on Tuesday and Wednesday nights at seven o'clock or eight o'clock.

Scott Benner 46:39
Oh, bad timing. And my kids are four and six. Yeah? Well, that makes sense, yeah. Like, now, with the technology being the way it is, it's occurred to me a few winters in a row, like, how different it used to be. It was freezing out. You're, like, pulling out a meter all the time to check blood sugars. People's hands were cold and like, yeah, no, that really happens much anymore now, with CGM and stuff like that, and pumps and, you know, like, when you're you're overdressed for the weather, and your kids, like, only wants to take a shot in their leg. And you know what? I mean, you're just like, I guess we'll get hard through the snow suit. Go in the car. We'll take your pants off. We'll get it warm in there first. Like, I've done all that, or been in, like, you know, sure, public places where you're like, Well, we have to go somewhere because she doesn't want it, like, in a place that's accessible. I will tell you that I have in the past, given injections through clothing, which I know you are not supposed to do, right? But it's definitely happened, yeah, and now it does all just a little easier, and that, as I'm looking at this generation beta thing, it's making me wonder, like, I wonder how it'll change again.

Jaime 47:42
Could you imagine being called Generation beta?

Scott Benner 47:45
That seems weird, right? Like how emasculating the next one

Jaime 47:49
gonna be? It's gotta be C, whatever C is,

Scott Benner 47:53
is it just gonna keep going kappa. You went to college. You gotta

Jaime 47:58
I did. I was in a sorority too, and I had to learn the Greek alphabet. But it's just, it's escaping me right now. What

Scott Benner 48:03
was the MBA in business? It's Masters in Business, like it was, with a focus, though, on something

Jaime 48:08
being awesome.

Scott Benner 48:12
No formal cohort governing body defines generational labels. Many are societal or marketing conventions. So it has. Nobody's come up with it yet.

Jaime 48:23
Wait, continuing. Nobody's come up with what I mean.

Scott Benner 48:26
What this is saying is like, if it follows, continue to follow the Greek alphabet, the generation after beta will be gamma, gamma. That's it. Yeah. And then delta born from 2040, to 2054, but this is not official. It's a logical This is AI telling me this is the logical idea, but it doesn't mean that's what's going to happen, because society might deem it something else.

Jaime 48:47
Why? We just went from X to Y to Z, and now we're back at alpha why? Why would it deem it anything else?

Scott Benner 48:55
Because motherfuckers don't make sense. That's probably why. But I think it's interesting. I think it's because the society just picks things that happen. Like, I mean, you know, where did sus come from? Suspect, Yeah, but why? Like, why wasn't it something else? Like, what's the big one now? Riz, well, no, no, no, I'm talking about, like, if somebody explains how they feel about something, what do they call it now, cope. Oh, yeah, right. Look how you don't know that, because you're busy living your life

Jaime 49:23
Well, yeah. And like, why would I know that? My kids, my kids are saying six seven now, like, it's a joke. And like, I have no idea what they're

Scott Benner 49:29
talking about. I don't know. You don't even know.

Jaime 49:32
I was like, Oh, well, 789, you know? And my six year old is like, no, six seven. And I'm like, What is six seven? Look it up. I'm trying ridiculous. Nobody knows. I don't even think they know what it means.

Scott Benner 49:47
It's a viral phrase used especially by teens. Originates from the song dude, dude, six seven by rapper. It often associated with the basketball player, Lamelo ball, because he's six seven, tall. It has no fixed meaning. Sometimes it means something is so so or awkward. It can also reference height or TA, we're doomed. Is that really? Yeah, oh my God, oh yeah. Your kids are idiots. Look at that.

Jaime 50:13
They're just repeating what they hear at school.

Scott Benner 50:15
But they're little. They're How will they even do? They're six and four, and they're running around, going, six, seven,

Jaime 50:25
well, they go to school with up to eighth graders,

Scott Benner 50:28
oh, like on the bus and stuff. Well,

Jaime 50:30
yeah, I mean, just in general, like the school is, it's an elementary and middle school combined. It's like a small Catholic

Scott Benner 50:36
school. Oh, okay, all right. That is really a mix there. Yeah? Okay, so, by the way, when somebody says what you're saying is cope, they're accusing you of, like, being in denial or not accepting

Jaime 50:51
reality. Oh, like, that's how you're coping with whatever it is, right,

Scott Benner 50:55
right? So you couldn't possibly mean what you're saying. You're just coping, yeah, which is an interesting part of, like, the mock outrage thing online, where, like, you know, you have an opinion, and I start a channel, and I just take the opposite opinion, and then anytime you explain your opinion, I just say, oh, that's cope. You're wrong because I'm because what I think is right. And so interesting that nobody the idea of, like middle now is, is so inflammatory to some

Jaime 51:27
people. Oh, yeah, no, you can't be, you can't be Switzerland on anything. Yeah,

Scott Benner 51:31
I am. I think that makes sense. I think it's gonna come back. I hope so. I think you make a lot of sense. And I think they make a lot of sense, not about everything, but a blend of it is where reality is.

Jaime 51:42
Well, yeah, I think everybody thinks that they make a lot of sense, or they wouldn't, they wouldn't be saying it.

Scott Benner 51:47
Why is being centrist like a bad idea then? Because you're not taking a stand, I know, but that doesn't mean anything. Some things

Jaime 51:55
don't need a stand,

Scott Benner 51:56
though. Yeah, most things don't need a stand. Actually, if everybody was just being reasonable, most of this wouldn't be happening, right? Okay, I'm sorry. We've gotten off the topic, which, by the way, the topic is, I have no idea, but I have enjoyed our conversation. So now that we've been doing this for like, an hour, and we didn't start with a topic, and it's gone the way it's gone. What about diabetes, or your experience with diabetes? Should people know about?

Jaime 52:23
Well, I know that everybody says this, but it just gets so much easier. You know, like you start to know how many carbs things are. And I'm not to the point where I'm like, oh, that's one unit, but I am to the point where I'm like, oh, that's 30 carbs. And I don't need to look it up everything. It's like drinking from a fire hose at the very beginning. And I know you've said that a million times before, but it really is, and then it just turns into a trickle. Yeah.

Scott Benner 52:51
Is there anything that could have been said to you back then that would have made it feel better, or hopeful, or anything like what would have made those feelings go away?

Jaime 53:00
I think people said lots of things to me that should have made me feel better, but I was on such a spiral that nothing

Scott Benner 53:07
would have helped. Yeah, so the answer is probably not,

Jaime 53:11
probably not. I mean, everyone says, Oh, it'll get better, and it's just like, Okay, well, hurry up and wait for that to happen, but it's gotten better, good.

Scott Benner 53:20
Well, that's my experience. Listen, I the way I found to say it over and over again is that diabetes is hard. It doesn't usually get any easier, but eventually you should be so good at it that it will feel easier. And that's kind of the same thing, actually, in the end. But it takes time, and you have to have experiences. You have to have the ability to step back during those experiences and really absorb them, not get super dramatic and like, give them away, or throw your hands up, because they are learning experiences. And if you don't take the knowledge from it, then you're just going to be doomed to have it happen again and again until you figure it out. Yeah, you know, macro is helpful. You know, don't, don't stand too close when you're trying to figure it out. I think that all is true, and I hope that people hear that and and can, you know, be quantitative about it and try to apply it in their lives. But I don't know if that's possible. When you're crying every time you look another human being in the face, right? You know, like, you know, support yourself with people around you. And you know, hopefully guys that don't just say it'll be okay, because that's me, by the way, I would have done the same thing to Kelly. I probably did, you know, like, it'll be all right. Don't worry about it, right? I just did it with painting that we painted a couple of rooms, and she, like, put what I consider to be a significant amount of effort into choosing the colors, yeah, to the point where, like, one of the kids, I won't say which one, in case she ever hears this. Was like, Hey, why is the lady so wrapped up in what colors the walls gonna be? And I was like, I don't think you should say that to her. The lady, this one's way taken with this idea, but, but you know what the colors up now? Looks great, and I know Sure. I know for sure. If it would have been me, I would have been, Oh, that one's probably fine. And, yeah, would you care about it? I wouldn't. And during the picking period, I did probably say at some point, Kelly, it doesn't matter just any one of those three is fine, and she did not find that valuable. So no, yeah, there's, there's a blend in here somewhere, Jamie, between whatever hormones and childbirth does to ladies, it's super necessary. But right, that vibe of like, oh, chill out, it's gonna be all right, that's necessary too. Like, I can't believe that I've accomplished this, and I didn't do it on purpose, but I think you need a more centrist view of

Jaime 55:42
I agree with that, and I think I do have, I mean, I need, I needed that balance in my life, and he's helped me with that, for sure, yeah, but I'm still very type A when it comes to diabetes

Scott Benner 55:55
management. Think it's gonna stop.

Jaime 55:57
I don't know. I'm trying. I'm doing better with not letting, not letting the highs and lows affect me so much, because I can't make this my, this is his burden, and this is something that is going to affect him. I can't put my the way that it affects me on him, right? Because, especially as he gets older, tell me why? Well, I mean, he's gonna, he's gonna be the one that's physically feeling these highs and lows, and physically feeling, you know, the drop when you have too much insulin and and you know, I'm not feeling that. I feel it for him right now, because Emotionally, I feel it for him, and it affects me when he's high for a long time, and it affects me when he goes low really fast. And, you know, like yesterday, he he was dumping because they had cake in school, and just the insulin hit faster than the cake and and it was right before he was about to get on the bus. And I was like, Wait, like, stop everything. We can't put him on the bus. I went and got him, but it's just like, it's nerve wracking. And then, you know, the Dexcom goes out, and it's just like everything hitting all at once, and this is going to be happening to him. I can't be the the additional burden on him,

Scott Benner 57:09
right? Because why? What'll happen to him if that's who you are, well, he'll push me away, right? And by the way, to the therapist, you tried one time. That's what you should have done, but I just did right there. It's beautiful. What I did, it was awesome. Actually, you're a wonderful therapist, you know what? Seriously, I walked you right through it. And why was it hard? Right? If they call you an elitist, terrible, so rude, right? Do you like that? I set myself as an elitist to ask why he called you an elitist. That was, yeah, but it was smooth. It was for your humor, too, like, but now I'm shining a light on it to see so the people who are now mad at me can go, oh, he was kidding, and the people who knew I was laughing are like, I'm so much smarter than everybody else. Now you're an elitist. What do you

Jaime 57:51
think of that? I've been called it before.

Scott Benner 57:53
No, I mean the other people listening who were like, I got the joke the first time. Yeah, you got to remember there's other people here, just not us, just not now. Oh yeah, hi. Hey

Jaime 58:03
guys, no, but it's just it kills me that, like I can, I can have a meltdown and go away for a week and turn diabetes off, and he'll never be able to do that.

Scott Benner 58:13
Yeah, it's upsetting. It really is, but it also he'll find a way to do that on his own, hope, but the goal is for him not to find that way by not taking care of himself for a week, right? So the your real job micro, your real job is don't let him get on the bus when his blood sugar is falling, etc, and all that other stuff, right? Your macro job is to make sure that he has a healthy view of himself as options. Doesn't think that this is a burden, right? Doesn't think that you're burdened by it. Doesn't think that you're being oppressive about it, doesn't think all those other things. That's the big picture stuff. It's the stuff I didn't realize till the last few years, like, this is that's the real job. Like, yeah, you got to keep them alive, and, yeah, you got to make sure you can take care of the thing. But that's to your point. Earlier gonna come, and you're gonna be on, you're paying attention to it, so you're gonna figure you're going to figure it out. So how

Jaime 59:04
did you go through the period of Arden gaining independence without being overbearing?

Scott Benner 59:12
Oh, going through, still not go through, going through still not all the way through it yet. Okay, maybe we'll never be who knows, right? It was hard at first, because all of my instincts were with you, and my memories of like your memory is, oh, my God, his blood sugar is tanking as he gets on the bus. I gotta text somebody and stop him. My memory is her having a seizure, or the time that her blood sugar was crashing while she was in gym class, and that I was in the shower and I was texting her and texting her and calling and calling and getting out and drying myself off and putting on enough clothing, and thinking, oh my god, am I going to drive across town and run into the gymnasium and like, you know, texting and calling and calling and telling. Next thing, and the whole thing, and getting right to the front door, going into school, because of 911 now, you can't walk into a school, you know, you have to, right? You know, there's 17 concrete barriers out front. You got to get around them. And then you get inside, you buzz them in. I look the lady in the face, and I'm like, and I start talking, and I realized that whatever I was about to say, you would have locked me up if you if you saw me out of hand, you would have been like, there's something wrong with this guy. And just as that happened, my phone rang, and I picked it up, and I was like, hey. And she goes, Hey, are you trying to call me? And I'm like, Yeah, you're really low. She goes, I took care of that. That was it. And I turned around, half wet, half dry, half dressed. I looked at the woman in the window, and I was like, sorry, and just walked out like I didn't even I didn't even contextualize it for I was just like, but I'm leaving now. And left, drove back across town, went back upstairs and got dressed. But when something's happening to her, five years later, 10 years later, those are the things that that hit your nervous system when you're thinking about it, right, right? The big stuff, how do you get past that? For me, it was the day I realized that if I kept thinking about it that way, she was literally not going to talk to me, that we were going to be completely separated on on her and I don't mean talk to me ever. I mean talk to me about her diabetes, that we were going to be separated about that, and here I was with all this information and knowledge that was going to help her, and she was going to choose diabetes as a way to drive a wedge between us if I kept pushing. And so you have to step back and then let things happen that you know you could stop and just let them happen. And where do you get the confidence from that? I got it from interviewing all you guys who live through it. And I thought, Oh, she'll live through it, and she knows what she's doing, and she's, you know, earnest enough about it, like she's not gonna, like, Arden is not gonna wake up one day with an 11 a 1c like, when Arden is really struggling in college, or anyone sees like, six seven, right? And there was a moment in my life where I saw that and I thought, Oh, my God, I could have a five five. She just needs to do this here and that here and do that over here and change this pump this time instead of that time. Like, this is very easy, like, I could do this forever, right? But she's not in my position. And I learned that from people too. Like, why do people not take care of themselves until they want to do it for somebody else? Right? Like, why is that such a common human story? I don't know, but it is so. I believe that. And I moved on, Arden is not going to give herself a five, five until she decides she needs to. When's that probably going to happen if she has a baby? That's the most common answer for women that I talk to, right? Yeah. Every once in a while, it's when I met a guy and I was way out of control and I wanted to be married, but that's not her, her vibe. Six Seven is not out of control, right? Like, there's, there's nothing wrong with that. She could live her whole life like this. Six Seven, yeah. Like, and be great. Like, this would be fine. And sometimes she's a six five, sometimes six. Two depends on her stress level, how busy she is at school. But at some point, when we we did that, then it became like, you don't get to be involved in this anymore. I rode the horse too long. It was trying to throw me at that point, okay? And so then I backed completely off for like, six months, and then slowly, she'd be like, Hey, can you help me with this? I, you know, that kind of thing. And now, more recently, once in a while, I'll send her a text, I'll be like, hey, like, you know, you really got to Bolus, whatever it's suggesting here, you should Bolus it. And now she's back to like, we reset our relationship, yeah. And if I would have fought against that, then, you know, then I have the Jerry Springer equivalent of a 16 year old girl who's pregnant, just to show me, you know what I mean? Oh, yeah. And instead of that, we're good, like, we're really in a good spot. Good, yeah. So I don't know, in that word salad somewhere, is the answer?

Jaime 1:04:02
Yeah, no, I think I got an answer out of it, for sure. Cool, awesome. Did you use caregiver with loop?

Scott Benner 1:04:11
That doesn't sound like a thing I know about,

Jaime 1:04:14
like, were you able to remote Bolus? Oh,

Scott Benner 1:04:17
I never put myself in a position to be able to remote Bolus. I did have it set up that I could change basal like temporary basal rates, yeah, but there's always been this confusion as to whether or not that actually worked or not. There are some people in the dev side of it who tell me, like that doesn't really do anything, like you're seeing it on screen, but it's not happening. You thought you were doing something. And there's part of me that thinks that can't be true, because I've seen myself manipulate it, but I've asked myself over and over again, did I just wait so long that it was happening anyway, and I deluded myself into thinking I was doing it? I don't know. Now, when she's on trio, I actually do have remote Bolus on my phone. Oh, you do, yeah. And so one of the ways I got through. The time where we were less connected without bugging her. This is where she's going to find out about this one day. Probably, if she was struggling, I would give her the suggested insulin. It was asking for,

Jaime 1:05:11
really, and she didn't know it didn't her pump didn't beep or anything.

Scott Benner 1:05:15
I mean it. She can hear it going in, but she's also aware of it. Now, people are gonna be like, That's so dangerous. Well, I'm talking about like, point four to change, like, a 160 to a 130 like, stuff like I wasn't I'm not sending like, five units of insulin through or something like that. If I was ever in a situation like that, I would and had, like, bit the bullet Center attacks and said, hey, you need a lot of insulin. I'm not comfortable, you know, giving it to you without you knowing. So you need to do it yourself. Also, she was not unaware that she was getting insulin. Remotely, she knew that, okay, but I wouldn't send her a text if it was point two or point four or something like that, but I would text her and say, Hey, listen, you need a unit right now. Give yourself a unit. Here's an example of a real life example, like she's in a class, she doesn't answer me back, doesn't answer, doesn't answer. I'm looking on night scout. She has not Bolus. And so the next thing I do is I push the unit through, and then I send a text that says, hey, at 1015 I Bolus the unit that it was asking for, FYI, so she would know it was there. It was nothing nefarious. You know what? I mean? Yeah, that helped. Because I think there was an amount of time where she didn't want the connection, but she did want the help, right? And again, I took that, like, where did I make that leap from? There's gonna be adults that have type one and listen to this, or, like, probably, like, mortified by this, and you, maybe you should be I don't know. But where did I get that from? I got it from all the 27 year old young women that come on here and tell me I pushed my family away. I told them I didn't need help, but I did, but I didn't want it. And I look back now and I wish the hell they wouldn't have stopped trying to help me. And you have any idea, many people said that to me and a lot of young women seriously, I learned to believe that what was going to happen was going to happen, and I took everybody's advice from these conversations and aggregated it together. And I thought I have an opportunity to let my daughter have this autonomy, feel like she's breaking away without it impacting her a 1c and having to say, five years from now, hey, I have a couple of problems. I wish somebody would have pushed a little harder when I tried to push them away. Yeah, that's it. That's a delicate balance. I'm very focused on that kind of stuff. Yeah, it's not a thing you can jump in and out of or be flipping about, like, it's got to be a really well considered, like, this is not a thing I thought up in the shower this morning. Yeah, I've been thinking about this for 20 years, you know. Anyway, that's what I did. All right, I have one more question. Good. How do

Jaime 1:07:48
you keep up with the the trio updates, if you don't build it yourself, do you build it yourself?

Scott Benner 1:07:54
No. Lovely people help me. Well, they just came out

Jaime 1:07:57
with one. It's a follow update and a trio update, and you have to do both for them to continue to work together.

Scott Benner 1:08:04
And I tell you something embarrassing, what? And then you can explain it to me, God, this little thing pops up on my phone sometimes about this, um, this app called loop follow, yeah, and it tells me sometimes that an update is available to it? Yeah, I couldn't, for love, money or to save my own life, tell you how to update that app. I literally don't know. I'm sure you might know it says it's set up for it auto updates. But that is not a thing that I've ever found to be true. So yeah, I don't know anything about it. Somebody set it up for me. It's lovely. Works great. I did hear there's another version of TRIO out, but I haven't looked at it being perfectly honest. Tell me, first of all, this isn't test flight, am I right about that? For

Jaime 1:08:54
people, test flight. Test Flight is like, if you're an app developer and you want to put a test app on someone's phone, they have to download test flight to for you to be able to

Scott Benner 1:09:04
so I go into test flight, I see the follow a B app here. It says automatic updates, but I do not believe that it's updated to its current version. Or maybe it is, I have no idea. It says the current version is 3.2 for follow Yeah. It expires in 53 days. It

Jaime 1:09:23
says yeah, I think, well, the one, the version they just came out with, is four, 4.0 okay.

Scott Benner 1:09:29
And what version Am I even using? All right, I am using 3.2 it says the latest four, yeah. Again, if you told me right now, Scott, to save your own life, you have to update this, I would not know how to do it.

Jaime 1:09:42
Well, I don't use test flight, so I don't know if you could just update through

Scott Benner 1:09:46
that. And you're saying there's a new version of TRIO

Jaime 1:09:49
too. Yeah. So this most recent update. You know how, when you send a remote Bolus, you're just like, hoping it went through,

Scott Benner 1:09:56
and sometimes you have to do it twice. Sometimes you have to

Jaime 1:09:59
do it twice. Now. Now it shoots back a notification on your phone that the Bolus has been received, and it's it's going

Scott Benner 1:10:07
through. What are other parts of the Do you know what else was updated on it? Yeah,

Jaime 1:10:11
there's a whole list of things. Actually, you were talking about the recommended Bolus. They're reworking that so that it shows you the exact recommended Bolus that you would get if you were in trio, because before it was pulling some other number from somewhere

Scott Benner 1:10:25
else interesting, I did find myself having to, once in a while, make it more aggressive than it was asking to get the outcome. So I don't know how to update this. Being perfectly honest with you, like if you told me, I think it's worth updating the trio app, I would probably send a text to somebody and ask them to spend a couple with minutes with me, helping me with that.

Jaime 1:10:46
Yeah. I mean, most of the time I would say, just don't worry about it, because it was really good before. But because of this, this change and you, but you have to make sure that you're doing both of them at the same time, trio and loop follow for this one to

Scott Benner 1:11:00
work. Well, then I'm gonna, I'll send my text. Thank you. I appreciate that. See now you helped me. Great. Thank you. Have you enjoyed yourself?

Yeah, this was great, awesome. I'm glad I agree. I never once bad mouthed Pittsburgh, but there were some weird hills at that school, and I don't know why they expect people to walk up and down them. It's a weird place. The hills are insane, really, really, just like driving up them seems like I don't know if my car can do this.

Jaime 1:11:30
Yeah, you know what surprised me about moving to Buffalo is just how beautifully flat it is. Yeah?

Scott Benner 1:11:37
Pittsburgh, Buffalo. Cold places. Texas, not cold. Do you have a preference?

Speaker 2 1:11:41
I like seasons. Okay, so you'd

Scott Benner 1:11:45
rather be where you are now than in Texas, where it's pretty hot the whole time. I actually really like buffalo. Yeah. Where in Texas were you

Jaime 1:11:51
San Antonio? Okay, I feel like that's such a teeny blip of my life, though, like you don't even remember it. No. I mean, it's just like, like, think about one year of your life when you were in your early 20s. Yeah, no,

Scott Benner 1:12:05
I don't even know how to quantify that, honestly, right? Yeah, it's interesting. You've had a very interesting life. I don't think it's over yet. It sounds like there's a lot more interesting

Jaime 1:12:14
to come. Well, hopefully I'll just learn not to be such an elitist.

Scott Benner 1:12:17
Do you think that boy will get to teach professionals how to push each other eventually, or is that not his goal? That's the goal. Yeah, is it? Does he have? I mean, you got to know somebody, right? Like, it's got to be somebody that brings you along. Yeah, he's got some buddies in the NFL, nice, yeah, on any teams that I would hate. Or, well, who's your team? I live in Philadelphia, outside of Philadelphia, so you're the Eagles. Yeah, my whole life.

Jaime 1:12:40
Actually, he's got it. He's got a buddy that's coaching the Eagles. Yeah,

Scott Benner 1:12:43
see, well, I hope he knows how to tell people, because I'll tell you what to be like an offensive line coach here would probably be great for a career. Because, oh yeah, yeah, right, because you get to learn from Jeff stoutland, that'd be pretty great on your resume. I would imagine

Jaime 1:12:59
it would Yeah, yeah. To get into the NFL, though, you have to start you have to come in as an like he would have to come in as an offensive line assistant, right?

Scott Benner 1:13:07
Is that a paid drop? Is that a thing that wouldn't be something you couldn't do?

Jaime 1:13:10
No, it depends. The NFL is different, because it just depends on who's willing to pay you. Like the Steelers don't pay as well. From what I understand, I don't know a whole lot about it, other than what I hear, you know, through the grapevine,

Scott Benner 1:13:22
but is there anxiety with that? Because that seems like a very like tenuous way to make a living.

Jaime 1:13:27
Yeah, I I live in, in just a total state of unrest all the time,

Scott Benner 1:13:33
constant fear that we're about to be on. What else would he be good at, by the way,

Jaime 1:13:39
besides being a football coach? Yeah, I don't know you'd have to talk. I bet you could figure out what he'd

Scott Benner 1:13:45
be good at. Yeah, well, listen, if the podcast ever needs those kind of conversations, that's what we'll do. Imagine he just should my next job be Scott. He just grunts through the the conversation. I'm like, trying to pick through his brain, like, you have to say something, buddy. Yeah, you don't say something. I'm not gonna be able to figure out anything. You got to talk you, by the way, opened right up like an old book. I appreciate that very much. Jamie, yeah, no worries. You seriously, just flopped right open like the you were just like, all right, fine. Here's all my stuff. I really appreciated that.

Jaime 1:14:15
Actually, I feel like everything that I do I try to do at 100

Scott Benner 1:14:20
Well, you did this today, so thank you very much. I appreciate it, yeah, thank you, Scott. I appreciate it absolutely. Hold on one second.

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#1688 Bolus 4 - Quaker Chewy Chocolate Chip Granola Bar

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Jenny and Scott talk about bolusing for Quaker Chewy Chocolate Chip Granola Bar.

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox podcast.

In every episode of Bolus for Jenny Smith and I are going to take a few minutes to talk through how to Bolus for a single item of food. Jenny and I are going to follow a little bit of a roadmap called meal bolt. Measure the meal, evaluate yourself, add the base units, layer a correction. Build the Bolus shape, offset the timing. Look at the CGM. Tweak for next time. Having said that these episodes are going to be very conversational and not incredibly technical. We want you to hear how we think about it, but we also would like you to know that this is kind of the pathway we're considering while we're talking about it. So while you might not hear us say every letter of meal bolt in every episode, we will be thinking about it while we're talking. If you want to learn more, go to Juicebox podcast.com. Forward slash, meal, dash, bolt. But for now, we'll find out how to Bolus for today's subject,

nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. All right, Jenny, you get to pick the food this time. What's a food you want to talk about? How to Bolus for?

Speaker 1 1:30
Oh, my God, what do people struggle with? Um, we did cereal. We did the silly like muffin bite,

Scott Benner 1:41
the chocolate chip muffin bites. Yeah, right, yeah.

Jennifer Smith, CDE 1:46
We did those. I think one that I get a lot of questions about are, let's call them granola bars. But there's a very large group of things that I think would fit into that you go, you've got power bars, you've got, like, you know what I mean, but that, that grouping of bars, let's just call it

Scott Benner 2:07
all right, so give me one name brand that I can look up so I can get some baseline numbers.

Speaker 1 2:11
Short what's an easy one, Kind bars.

Jennifer Smith, CDE 2:18
Kind bars are a weird one we could do. Kind bars. The other one I'm trying to think of, though, is more of a squishy like it's a typical granola bar, okay, not NutriGrain, because those are a little bit different too. What's the most common?

Scott Benner 2:32
Nature Valley, oh, Nature Valley. They're the Quaker chewy ones. Is that the one you're thinking of, that's the one I'm thinking of, I bet you this is the one that people give to their kids. Yes. All right, you want to do Quaker chewy chocolate chip? All right, yeah, all right, Quaker chewy chocolate chip.

Jennifer Smith, CDE 2:48
I mean, the amount of bars that are available out in the world today, it really is astounding. They they're almost an entire aisle at the grocery store.

Scott Benner 2:57
No kidding, right? Absolutely. And they come in

Jennifer Smith, CDE 3:01
assorted like, this is a bar, and this is like, a fiber full bar, and this is like, this is a protein full bar, like you like, stand in the aisle for 45 minutes and then you never get one,

Scott Benner 3:13
trying to figure out which is which. All right, I've got the nutrition information here, awesome, or it, or the, let me be clear. The Quaker, chewy granola bars, chocolate chip, there you go. All right, I have total fat, three and a half grams. So not high fat, not not high fat. Oh, carbs, 17,

Speaker 1 3:35
total sugar, seven, protein, one gram.

Jennifer Smith, CDE 3:39
So pretty much we're looking at what just a carbohydrate based effect, right, right, pretty low fat and virtually no protein. And you're really looking at about half of the total carbs coming from sugar,

Scott Benner 3:57
approximately, yeah, I was gonna say, like even the fat might be mostly from the chocolate, right?

Jennifer Smith, CDE 4:02
I would assume. So I don't know what else, if there's like palm oil or something in them. I don't even know

Scott Benner 4:09
whole grain oats, brown sugar, brown rice crisp, which seems to be whole grain brown rice flour, sugar and salt, whole grain wheat, soybean oil, coconut whole wheat flour, baking soda, soy lecithin, non fat, dry milk, semi sweet. Chocolate chips, which are sugar, chocolate liqueur, cocoa butter, soy lecithin, vanilla extract, and then there's corn syrup, wow. Then the brown rice crisps, whole grain, brown rice, flour, sugar, salt, invert sugar, sugar, corn syrup, solids, glycerin, soybean oil, holy crap.

Jennifer Smith, CDE 4:49
Like, how many sugar? So you can see, you know this, this is going to be a hard hit, quick hit, yeah, because, like you said, it's, it's almost 50% sugar. By the amount of total carb and how many sources of sugar in that carbohydrate grain, as well as added sugar, can you count a

Scott Benner 5:10
lot? Yeah, yeah. Also, I'm sorry I got a little lost for a second, because I don't eat the I don't eat. I just thought, like, what could be in this? Like, some nuts and like

Jennifer Smith, CDE 5:21
some oats and chocolate chips and maybe some honey,

Scott Benner 5:27
sorbitol, molasses, natural flavor. I love that. They call something natural flavor.

Jennifer Smith, CDE 5:34
Yeah, natural flavor is a host of The Who knows, and sometimes even for those who have a lot of allergy based things. When you call the company to ask about it, many times, the company won't even tell you what is in their natural flavor, because it's either proprietary or it's a host of things that are just chemical based.

Scott Benner 5:54
Well, here they say, natural flavors are obtained from essences or extracts of sources found in nature. Found in nature, by the way, everything's found in nature, such as spice, fruit, vegetable, yeast, Herb, plant material, meat, seafood, poultry, eggs, dairy products.

Jennifer Smith, CDE 6:13
There could be chicken extract in these Quaker kernels.

Scott Benner 6:16
Enjoy your chewy chocolate chip bar. I'm really stunned by them. I know maybe I shouldn't be at this point, but like, this was a fun one to bring up. Yeah, I just thought, like, Wait, hold on a second. What if I said to the internet, I'm just gonna go to Google. How do I make homemade consulate chip? What do I want to call it granola bar. Granola bar. Okay, hold on one second, granola bar. Oh, okay, so here's a recipe that just pops up. I'm just gonna click on the first one that pops up because I'm not really making them. These look nice. Butter, honey, brown sugar, quick cooking. Oats, crispy rice cereal, vanilla, mini chocolate chips.

Jennifer Smith, CDE 6:59
Okay, right? And where are all of those fancy ingredients that you really tried hard reading

Scott Benner 7:05
lost lecithin is, I'm not even saying that, right? Forget. I don't even care. Yeah, yeah. Okay, so how do we Bolus? Do you think you would Bolus differently for this handmade one than you would for the one in the store? Or maybe I would think

Jennifer Smith, CDE 7:21
that they're both fairly high glycemic, okay, right? I mean, the ingredients, even in the homemade one, are pretty much all carbohydrate, okay? And so in terms of, like building your Bolus idea, yeah, you know the nutrition facts, even if you were trying to be more choosy about ingredients, and you were going to go to the more homemade route, you can easily break a recipe down, add up all the carbs, how many bars did it make? Divide that into, how many grams of carb went into the recipe? There you've got the nutrition facts. It's pretty easy breakdown, right? But you would build the Bolus idea the same way. You know how much CARB is in it. We've already talked about. It doesn't have a heck of a lot of fat to consider. There's virtually no protein in it. Glycemic impact or glycemic, you know, even the load, if you're eating three of them at a time versus just one of them at a time. But most people have one, right? So the impact is probably pretty high, glycemic, I would assume, somewhere over 70 on the index. And then what do we do? We evaluate, where are we, what's our setting? What are we going to do after this? What have we been doing to do you

Scott Benner 8:28
think people eat these in the morning, or maybe even, like is coming in from the running around snacks too? Maybe they

Jennifer Smith, CDE 8:33
may, they may be bringing them around. You know, along, it's something easy to pop into a backpack or a purse or a bag as a sort of an in between. I don't think anybody's really using this as a meal replacement, because it truly is not. It's not mixed enough nutrient, but these are definitely heavily used as

Scott Benner 8:51
snacks. Yeah, I just think so my imagination is, is that people were like, Oh no, I thought it's good, like, it's, it's granola, but with, like, a little chocolate in it, so that it's, well, it's not like that at all. Jesus, okay, like that at all. Okay, so we evaluate where we are. We've measured the meal. We evaluate where we are, blood sugar, activity, stress, etc. Do the math, yep. Does this need an extended Bolus? No, right? No, just up front. We're gonna give some insulin for this. You like a 1015, minute Pre-Bolus. If you could,

Jennifer Smith, CDE 9:22
I would say, given the fact that this is almost 50% sugar or carbohydrate, again, knowing where you are, blood sugar wise, where you're headed, could be, I'd say, a minimum of a 15 minute Pre-Bolus, if you're starting in a place that's a, you know, a blood sugar that's your target, or even dropping, even if you're dropping, unless you're truly low, you're definitely still going to need a Pre-Bolus, probably five or 10 minutes for this to get that insulin moving. Longer. If you're high, it's going to be

Scott Benner 9:53
fast, yeah, and then to look at your CGM to kind of check the curve of what's going on later. Maybe it's not even an hour. Right, like, oh, right, yeah, you want to know pretty soon you're going to know in the first, I would think 20 minutes, if you missed on getting ahead of this or not,

Jennifer Smith, CDE 10:09
on Pre-Bolus timing exactly. And then the the watch time period, the evaluation time period is okay. I can see I'm rising 20 minutes later. But where is my Bolus gonna kick in to hit along with now the digesting carbs, yeah, so you really do have to be patient and say, Okay, it's an hour now, I went up a little higher than I want, but gosh, at hour 90 minutes, I'm not rising anymore. I'm pretty flat, and now my blood sugar is coming back down, so it just gives you details about my timing might need to be better later. Do

Scott Benner 10:45
you think this is a quick hitter that goes away, or does it have a tail?

Jennifer Smith, CDE 10:48
It shouldn't really have a tail again. I mean, I can't imagine that there's more than what, two or three grams of fiber in one of these bars.

Scott Benner 10:58
Maybe three grams dietary fiber, one.

Unknown Speaker 11:01
Oh, I was even

Jennifer Smith, CDE 11:03
overestimating, giving them more credit than

Scott Benner 11:05
he's, like, maybe put some fiber in food once, hoping for more

Jennifer Smith, CDE 11:09
fiber. But no. And I asked that because it might be a lingering effect if it was more of a high fiber kind of like, you know, another bar that's commonly used, or used to be, at least, was like the fiber one product. They've got Fiber One bars, their fiber content is actually pretty considerable, and so the stretch out effect of those could be a slow down in initial hit, but a lingering impact. Whereas this bar, it's going to be an in and out your typical bell curve, up, down. And if you know your Bolus ratio and you've timed it, it should get you back to target pretty well. You want to

Scott Benner 11:43
hear something interesting. The Yeah, the handmade one that I clicked on for the recipe has a nutritional breakdown. It says it gives calories and as 176 kcal, carbohydrates, 29 I don't know how big they're saying the bar is though, protein, three grams fat, six. Saturated fat, four sodium. Actually, it's funny, like on paper,

Speaker 2 12:10
this thing, the Quaker, looks better because it's probably a much smaller bar. I'm

Scott Benner 12:13
gonna guess that's what's happening too here, because this one also has two grams of fiber. But what's the serving size? Let me see if I can figure out serving size.

Jennifer Smith, CDE 12:21
Yeah, you'd have to compare gram weight, because most labels have the gram weight next to the serving size for the product on labels. Yeah, in recipes, it's harder to find,

Scott Benner 12:31
so it says that the recipe makes 10 bars, but yeah, it doesn't give me it's not going to tell me how big the serving size

Jennifer Smith, CDE 12:39
is. Yeah, my guess is that this bar is like, twice the size of the grocery store.

Scott Benner 12:44
Well, yeah. And nutritionally, if it's saying the calories are 176 versus the calories in the Quaker one, which is listed as 100 maybe that's a little Yeah, oh, 8.84

Speaker 3 12:57
ounce bars. That's a big bar.

Scott Benner 13:02
No, the Quaker one, you get eight in a box, point eight, four ounces is that? Right? It's not even an ounce.

Unknown Speaker 13:08
What are you paying for? These are

Jennifer Smith, CDE 13:11
pretty tiny bar again. And as a snack component, I think that it brings a bigger, a bigger piece of discussion now that people know how to expect to Bolus for it, right? It's, I'm choosing this for a snack. It's got a really quick hit in and out. And is it going to hold me until my next meal? Very likely not. In fact, we know that eating higher carb things alone, often their in and out effect, means you're going to be hungry sooner than you want to be, yep. So planning something that's a little bit higher in protein content or a little bit more even in overall nutrients, right? You know, things like an example would be like an RX bar. It's got somewhere between 20 and 24 grams of carb per bar. It's got three to five simple ingredients that are all food. They're real food. They tend to have somewhere between eight and 12 grams of protein and similar for fat. So they really are a good mix of those macronutrients. They're not going to leave you hungry an hour from now.

Scott Benner 14:19
This Quaker chewy bar is a sweet treat masquerading as a health food. Oh, 100%

Jennifer Smith, CDE 14:23
it's like it's a candy bar, essentially, right? Okay? And many, many of the granola bars that are on the market today are entirely a candy bar in disguise.

Scott Benner 14:33
Yeah, no, okay, it's not a thing we eat here. So I didn't really know much about them until I was looking at them. But wow, you get almost eight. I don't know how much these cost, but you're gonna, you're not even gonna get eight ounces of bars. I wonder how much they do cost. Give me a half a second, because I'm completely enamored with this idea. Wow, I'm on Amazon. There's a box of six. Is that the typical size? That one said eight, but, like, oh, eight. I'm looking here for the. Oh, here it is the this one has 16 bars in it for five bucks. Oh, there's the other side of it. It's cheap, huh? It feels, feels inexpensive. Oh, that is real, 16 bars for $5 Oh, yeah, actually, it's calling it a value pack. I guess they give you two extra ones in there too. Wow. That is inexpensive. What is it saying on the front? 25% less sugar than regular chocolate chip or peanut butter, chocolate chip flavor. What? I don't know, what everybody's saying. Please try to make your own food if you can. I know it's hard and it's expensive and everything, but like these episodes are really just taking the they're taking all my hope away, taking

Jennifer Smith, CDE 15:39
your hope away for what

Scott Benner 15:41
look at these nutritional like, what is happening? I'm down to three things I can eat, all right, Jenny, thank you so much. Thank you.

In each episode of The Bolus for series, Jenny Smith and I are going to pick one food and talk through the Bolus thing for that food. We hope you find it valuable. Generally speaking, we're going to follow a bit of a formula, the meal bolt formula, M, E, A, l, B, O, L, T. You can learn more about it at Juicebox podcast.com, forward slash, meal, dash bolt. But here's what it is, step 1m. Measure the meal. E, evaluate yourself. A, add the base units, l, layer a, correction B, build the Bolus shape, O, offset the timing. L, look at the CGM and T, tweak for next time. In a nutshell, we measure our meal, total carbohydrates, protein, fat, consider the glycemic index and the glycemic load, and then we evaluate yourself. What's your current blood sugar, how much insulin is on board, and what kind of activity are you going to be involved in or not involved in. You have any stress hormones, illness, what's going on with you? Then a we add the base units your carbs divided by insulin to carb ratio. Just a simple Bolus l layer of correction, right? Do you have to add or subtract insulin based on your current blood sugar? Build the Bolus shape. Are we going to give it all up front, 100% for a fast digesting meal? Or is there going to be like a combo or a square wave Bolus? Does it have to be extended? I'll set the timing. This is about pre bolusing. Does it take a couple of minutes this meal, or maybe 20 minutes? Are we going to have to, again, consider combo square wave boluses and meals. Figure out the timing of that meal and then L, look at the CGM an hour later. Was there a fast spike? Three hours later? Was there a delayed rise five hours later? Is there any lingering effect from fat and protein? Tweak, tweak for next time. T, what did you eat? How much insulin and when? What did your blood sugar curve look like? What would you do next time? This is what we're going to talk about in every episode of Bolus for measure the meal, evaluate yourself. Add the base units, layer a correction, build the Bolus shape, offset the timing. Look at the CGM tweak for next time. But it's not going to be that confusing, and we're not going to ask you to remember all of that stuff, but that's the pathway that Jenny and I are going to use to speak about each Bolus. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com, you.

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#1687 Knowing Doesn’t Mean Ready

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Lauren, a former diabetes pharma rep and mom to a seven-year-old with type 1, shares her diagnosis story, bold insulin approach, looping plans, and how GLP-1 meds changed Scott’s life.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.

Lauren 0:15
Hi, my name is Lauren. I am the mother of a seven year old type one diabetic.

Scott Benner 0:21
This episode of The Juicebox podcast is sponsored by skin grip durable, skin safe, adhesive that lasts your diabetes. Devices, they can fall off easily, sometimes, especially when you're bathing or very active. When those devices fall off, your life is disrupted and it costs you money. But skin grip patches. They keep your devices secure. Skin grip was founded by a family directly impacted by type one, and it's trusted by hundreds of 1000s of individuals living with diabetes. Juicebox podcast listeners are going to get 20% off of their first order by visiting skin grip.com/juicebox please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Dexcom sponsored this episode of The Juicebox podcast. Learn more about the Dexcom g7 at my link, dexcom.com/juicebox this episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube, free, automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections, learn more and get started today at omnipod.com/juicebox at my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox Hi.

Lauren 1:56
My name is Lauren. I am the mother of a seven year old, type one diabetic. Do you have any other kids? Lauren, I have one other son. I saw I have two boys. My oldest son is 10, about to be 11, and my youngest, who is my type one, just turned seven, the end of September.

Scott Benner 2:13
Okay, all right, yeah. How long has he had type one?

Lauren 2:17
So he was diagnosed in September of last year, so one week after his sixth birthday, oh, no kidding, received our diagnosis,

Scott Benner 2:23
yep, just slightly over a year, yep, okay. Well, this will be interesting. I appreciate you doing this with me. Thank you for sure. Yeah, what made you want to do it well,

Lauren 2:33
because it's been such an important part of our journey and being successful with managing him this first year that I felt like it could be really important to share our family's story and hopefully make impact on others just the way they have impacted me, and connect with someone somehow to help them get through some of the hard times. Because it's definitely a marathon managing this and taking this on, and your podcast has, like I said, help my family immensely. So I hope to share and do the same. I

Scott Benner 3:03
appreciate knowing that. Thank you. Yes, and I'm sure you will. I'm excited to find out all about you guys and and see where where this leads. So let's find out first, let's go over the simple stuff. First, any other autoimmune with you the kids? Are you married? Yes, I'm married, a husband or extend a

Lauren 3:24
family, none, nothing that we are aware of. I will say that my mother is adopted. So we are lacking some of that family history from our, you know, genetics that we are aware of, however, nothing that we are aware of with any other

Scott Benner 3:39
autoimmune okay. How do you like being the kid of an adopted parent? It doesn't

Lauren 3:44
bother me at all. You know, I still had grandparents from the parents of my mom who were adopted her. You know, as you get older, and if you have health things, that's when you start to notice, like, oh yeah. I can't tell you much about some this side of my Yeah, you know, family makeup or my genetic makeup. But other than that, it's been absolutely

Scott Benner 4:06
fine. I always felt like being adopted was cool because you was almost like a choose your own adventure, right? You know, yeah,

Lauren 4:13
and it's a blessing that it's out there and that people will take that on. And, yeah, you know, I appreciate

Scott Benner 4:19
it. That's very cool. Okay, so your father's side? How about your husband's parents? Anybody I'm talking about, like celiac, thyroid, nothing you can find. Okay,

Lauren 4:29
my husband's cousin has Crohn's disease, but I don't know that they consider that autoimmune really, like

Scott Benner 4:37
I got you. Well, do they what I'm going to look while I ask you what happened that you noticed that your child needed medical care?

Lauren 4:46
Yeah, so background on me, a little bit, is I have been doing pharmaceutical sales since I graduated college, so that has been my or was my career, and so I was in. The medical field, if you will. And for the 19 years that I did it, 12 of the years was spent in diabetes. And so obviously the focus is more around type two diabetes, with just how America is with type two and where the pharma companies are putting a lot of their technology and research into type two, because that seems to be a big, big problem in the country, but you still get background knowledge, and they do a very deep dive into understanding the disease state that you are going to be walking out into the offices to talk to doctors and nurses about. And so I had been very, very well versed in in diabetes, if you will. Yeah, my son was we had a unique situation where my husband actually we are at a soccer game for him, and he is finishing up the soccer game, and where his game was to our home was about a 12 minute car ride, and my little six year old son is in the car crying that he needs me to pull over so he can go to the bathroom. And I said,

Scott Benner 6:08
No. He said, No. You're like, no, yeah. I said, No, no, you can

Lauren 6:11
hold it. You can hold it. It is a 10 minute drive. And my husband's like, why are you being so mean? Please just pull over. He has to go to the bathroom. I'm like, we are not pulling over to go to the bathroom, if he cannot hold it, he has diabetes. Did you say that? I said I said that. And my husband's like, gosh, Lord, You are so rude and mean. And you think everyone has diabetes, because that's your job. And so Saturday, Yep, that was Saturday. And then, like, there's no hard feelings. My son was able to hold it until we got home, he went to the bathroom, and everything's fine. So the day goes on, and it's really just the three of us at home that day, because my other son went to a friend's house for a little bit, and so we're just spending time at home, and my husband's he's asking my husband for food all the time, and

Scott Benner 7:01
he learned the day before not to ask you, right, right? Yeah, no.

Lauren 7:05
Mom's not helping me out with anything. So he's, he's definitely leaning towards dad this day. And you know, I don't notice anything else, you know, I say that, but I'm like, when he tells me you're crazy. You think everyone has diabetes, I go back to the fact that I probably, you know, I know there's no way my kid has diabetes. I I'm just aware of the symptoms, right? And that I am, you know, because when you start learning and doing a disease state with pharma, you often feel like you become a hypochondriac and think you have everything that they're teaching you. So I didn't think much of it. And then the next morning, we wake up and everything's fine. We're giving them breakfast. And, you know, on the weekends, we do more fun breakfast and my stuff, both my boys are having cereal and apple cider, which I like, want to just have a stroke about now. And my husband says, Hey, is there a way that we can actually find out if he really does have diabetes? And I said, Yeah. And I said, Are you serious? And he's like, yeah, how can we check? I'm like, go upstairs, take him upstairs and put him on the scale, and I'm going to go find my blue comforter that I had because when I was pregnant, I decided I want to watch my sugar in case I were to get gestational diabetes just again, because I was in the industry, and I became fascinated with that, yeah, and so worried that I would get gestational diabetes. So I have the six year old glucometer, and I had weighed my son the week before for his birthday. So I measure him, and I weigh him like, how old are like, how tall are you? How much do you weigh on your six your sixth birthday to document and just know. And he had, he was 66 pounds on his sixth birthday, and my husband screams downstairs, hey, he's he's 60 pounds. And in that moment I knew. I said, What is how much does he weigh? He

Scott Benner 8:49
said, 60. Yeah, skip the glucometer. We could just come back down.

Lauren 8:52
Yeah, I knew in that moment. And so, okay, I get the glucometer out anyways. I said, Okay, bring him here. We're going to do a finger stick. I poke his finger and it says 564, wow. I said, Oh gosh. Well, this is old. This is this thing is literally six years old. We haven't used it. There's no way, so I poked my other son's finger. Said, Okay, Brian, it's your turn. His isn't blood sugar is 95 so I'm like, Okay, it's not broken. I'm like, Okay, Ryan, he's going to be diagnosed with type one diabetes. Go get a bag and we have to go to the hospital, but I'm going to call the pediatrician's office first, because our pediatrician's office has like, weekend hours, and someone always on call for them, and I'm just going to call them to see if they can do anything, if we can go to them before we actually have to go the hospital. Because I'm delusional at that same point and thinking, Oh, they can just write me a prescription for insulin, and everything is going to be fine. Is that where your head was? Yes. And I call the pediatrician's office and talk to the nurse. You know my son, I just checked his blood sugar. It's 564 you know, I do diabetes. I know what I'm talking about. Like I had Lantus, I've had humolog, I've had all the insulins. I have all the GLP ones. I I know it all. Can you just, if we come into you, can you guys just give us a prescription for some insulin and tell me what I need to dose them and we'll be fine? And they're like, the lady is, like, You're crazy. Lady like, you need to go to the hospital. So I'm like, okay, okay,

Scott Benner 10:13
I don't do that here, but that's not right.

Lauren 10:16
I know. I know. But in my mind, I'm thinking, this is everything's going to be fine, and just, I don't really want to go to the hospital. We go to the hospital, we pack up, and I tell my husband, like, you need to text this person and this person and this person, because I knew he had acquaintances that had children that had type one diabetes. So I'm telling him, You need to find out who their pediatric endo is. And I'm just going into this mode of we got to get a proper doctor. We got to do all of the things and find out other people's experiences so that we have a good one. Because we don't have a pediatric endo in our area. We don't eat we have, like, one endocrinologist that's here too. Like, we live in South Bend, and it's kind of like a black hole for medicine, if you ask me, just because we're so close to Chicago, we're so close to University of Michigan. We're so close to Indy, and so I don't feel like it's a great spot for medicine, if you will, and specialists. And like I said, in the diabetes world, I we, I knew we didn't even have a pediatric endo in the area. He starts texting his friends, we go to the hospital, and we're walking into the ER. And I tell them right away, I'm like, my son's about to be in DKA. I need someone to see him really fast and get him insulin. And so they did take they took this back really fast in their mind, though, my son's already a type one diabetic because comes into the hospital and says that. And so they're treating him like they think he's a type one and the guy, yeah, right, because they're like this. They're saying this type one diabetics probably coming in in DKA, because something went

Scott Benner 11:46
wrong. And you have a little too much context to seem like a person who just figured it out today.

Lauren 11:50
Yeah and Yes, right? And I honestly Yes.

Scott Benner 11:55
Where you go on, Rob's gonna put the ads right here, but I need to say because it's gonna get away from me. Crohn's is an autoimmune condition. We got pretty far away from it, and I can't believe

Lauren 12:04
I know that's okay well. And so when I Google it and research it, they're like, it's a different type of autoimmune though, like, where it's,

Scott Benner 12:12
well, I mean, you know, it's an immune immune reaction. It causes chronic inflammation. You get, like, thickening of intestinal walls, inflammation, etc. I mean, I You're right, church, wrong, pew, maybe. But, like, it's an autoimmune inflammatory disorder, yeah,

Lauren 12:28
so that that is there, but when I told our doctor, he's just, like, poo pooed that, like, that was

Scott Benner 12:33
no big deal, yeah? Well, you're in South Bend,

Lauren 12:35
so, well, no, I'm in India at that point. Oh, sorry, but, and I do like

Scott Benner 12:40
him, I appreciate I'm sorry I cut you off, but go on, we're back at the hospital. They're thinking he's an established type one,

Lauren 12:47
yeah, somewhat, they get us back very, very quickly, because I think that's literally, because I use the words DKA, yeah. And they check his blood sugar, it shows I on their meter. And they push us back into a room, and like, they, you know, start getting ready to do a pic line in him and wanting to draw his blood. And so they come in like, so your son's a type one diabetic. And I said, No, no, you're going to diagnose him with type one diabetes. This is what happened. I just have a unique background that I'm I'm aware of what's happening. And they're like, oh, okay, okay. And, you know, are you sure it's type one? I'm like, yeah, pretty sure. I don't know what else this would be. He's lost six pounds in a week. I did a, you know, check the sugar at home. It's, you know, my meters clearly working, yeah, just, when can you get him some insulin? Like, because I'm just thinking to myself, he's going to be in DK, soon. Like, how do we get him? I just want insulin sooner than later. And, you know, they take their sweet time. They run all the lab work. And the doctor was really nice and responsive to me. That was the ER intake doctor. And yep, you're probably right. He's like, all the lab works coming back because a 1c shows 10.3 there's ketones in his urine. Obviously, we're gonna roll him upstairs, get him admitted into our pediatric unit, but he's not in DKA, good, so, okay, great. And I think that that moment like also made me think this is not a big deal, like, everything's gonna be fine. Everything is fine

Scott Benner 14:18
because he wasn't in a dire situation. Yeah, it lessened the weight of it. For you, today's episode is brought to you by Omnipod. We talk a lot about ways to lower your a 1c on this podcast, did you know that the Omnipod five was shown to lower a 1c that's right. Omnipod five is a tube free automated insulin delivery system, and it was shown to significantly improve a 1c and time and range for people with type one diabetes when they switched from daily injections. My daughter is about to turn 21 years old, and she has been wearing an Omnipod every day since she was four. It has been a friend to our family, and I think it could be a friend to yours. If you're ready to try Omnipod five for yourself or your family, use my link now to get started. Omnipod.com/juicebox get that free. Omnipod five Starter Kit today. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox you can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel. And with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juicebox when you use my link, you're supporting the podcast, dexcom.com/juicebox

Lauren 16:19
head over there. Now, for me, in that moment, I think it did okay, yep, in that moment, and my husband and my older son are in the corner crying, and my I'm trying to make my other son who's actually going through this, like you're brave, like this is really amazing, like you're super, like you are a superhero. You are you are selected to do this because you're strong and you're tough, and mommy knows how to do the shots, and it's, you know, I have pens, like I had demo pens at my house from my job, you know, to hand out to people to know. So I'm, like, in that moment, I felt like this is no big deal. And what I was never trained on and never understood was the fact of, like, the variables and all of the things that impact the blood sugar. That's not just food. Yeah. And I was trained that insulin works because it does work. Insulin can work if you use it properly, right? It will get your a 1c down. So I was confident that things were going to be okay. You were

Scott Benner 17:13
just throwing at any platitude you could think at your son to just to pump him up and keep him thinking, Do you think you were doing that for him, or do you think you think you're doing it

Lauren 17:21
for you? And in the moment, totally doing it for him. And in that moment I also I'm believing everything that I'm saying. I'm like, Okay, this, this is no big deal, you know, my he's, this isn't something that could be, you know, 10 times worse not. And trust me, I know, I think diabetes is the worst thing that could ever happen. But there's also awful, awful things that can happen to anyone that don't have, you know, treatment options and things like

Scott Benner 17:47
that. Yeah, your perspective has changed over time,

Lauren 17:49
absolutely sure. So they wheel us upstairs, and I'm telling them, I need X, Y and Z. I need a CGM. I need all of these things. I want to make sure you put me on this particular insulin, you know? And I remember we were there at 11 o'clock, and he didn't get his first shot until five o'clock. And I just was so frustrated by that, like, what is taking so long? Like, what are we waiting for? Like, what is going on? Like, we're upstairs and no one's has any urgency to do anything. The hospitalist comes into the room, walks in and tells me, You know, I can't give you insulin yet because he, like, I don't know if he's a type one or a type two. I'm look at the guide saying it's 100% of type one. I can't even believe that you would suggest that this is type two diabetes. In what world is this type two

Speaker 1 18:35
diabetes? Yeah. And he's an odd breach,

Lauren 18:39
for sure, right? Yeah, I mean, and then in that moment, now I'm angry, and everything changes, because I'm like, we got to get the hell out of here, because they don't know what they're doing. No one knows what they're doing. I mean, this is classic textbook type one diabetes, and no one knows what they're doing. Okay, yeah, so that, I mean, that's part of it. And then they didn't want to give me a CGM. Oh, and they're like, you know, insurance doesn't really cover that. My I'm like, my insurance well, and if they don't, I'll pay cash for it, yeah? Well, we really don't want to give that to your son. You know, it's not the way to learn how to manage this, and it's not compatible with the hospital

Scott Benner 19:13
system. The way to learn about diabetes isn't to be able to see your blood

Lauren 19:17
sugar exactly at all moments. So it's you have to learn how to do it without all the technology. Okay, right? And so it was a bad and we boom, and then they're trying to reference us to this random endo in a town two hours away. And I said, No, I need to go here, but we are not going to do a referral for you there. Okay? Like, why not? You know, it just, it was a very combative relationship right after that interaction. Yeah,

Scott Benner 19:43
and Lauren, in fairness, I've known you 20 minutes. You have a strong personality too, you know what I mean?

Lauren 19:48
Yes. Oh, very, very much so. And I was comfortable with my job interacting with doctors like my job has been to challenge doctors and what they're doing and be comfortable to make them uncomfortable. All and ask them why they're doing what they're doing, and help me understand why you make decisions that way. And it's very obvious to know when they care and when they don't care, and they're just kind of doing the rounds.

Scott Benner 20:12
Yeah, it's an interesting mix. Like you have more information than most people, not all that you need, obviously, because you think, oh, it's going to be easy, and you don't really know the whole thing. And you're used to challenging positions, so you're not in a position of like, Oh, thanks, you're so great, right? That's not coming from them, which they might not appreciate, or, you know, whatnot. And then they've got their rules the way they do things, and before you know it, you're right where you landed. Yeah, you know, it's funny when you said it's not, you know, I didn't think it'd be that hard. It makes me think of, I'm sorry if you've never seen the movie Moneyball with maybe you haven't. There's this great scene where Brad Pitt is like the general manager of the Oakland A's, and he's going to try to get this player who's kind of broken down to play for him. He wants him to switch positions, and he's there with one of his coaches as well, and he and the guy says, Well, I've never played first base. And he goes, Oh, don't worry, it's easy. And he turns to the coach, it's with him, and he says, Tell him wash. And the guy goes, it's incredibly difficult. And he goes, that he just pivots so funny, that the next line, he goes, Well, anything worth doing is and that's sort of like, I don't know, like, for anybody who's seen the movie, they're laughing right now, everyone else is like, you could have done a better job explaining that. I like the idea of what you learned from that moment to where you are now, because I think it's going to make your story really interesting moving forward. Like, because you had a pre conceived notion and then you went home and found out the truth. So exactly when does that information start hitting you? You're home now, like, what did you shake out of them? Did you get a CGM?

Lauren 21:45
So yeah, they did. They prescribed it after we were discharged. Technically, the the nurse or the diabetic educator at the hospital came in and helped us put it on him. Okay, and I will say too that when we were in there, they were like, comfortable with his blood sugar being in the high two hundreds, and me getting in an argument with them. So they wanted me out of there quick. Because, you know, they would only come in and do the random blood sugar temp tests when they had it on their timer, which was, I don't know, two to, like, three times a day. And then, like, before I was eating, he they did one of his random checks, and it was like, 280 and I'm like, Oh, he needs insulin for that. Like, let's correct it. And because it has been two hours and or three hours, and they're like, no, no, no, this is a good number. And I said, You guys, this is not a good number. And what world is this a good blood sugar to you? Yeah, this is bad medicine. This is terrible medicine. And I would let you just so you know, the second I leave this hospital, my kid's blood sugar is anything above 250 at this time of day, I'm giving him insulin. I don't care how many shots he needs for it, you're not doing your job right?

Scott Benner 22:50
Was that their argument, that it was another injection, you're saving him from an injection, or was their argument we're comfortable with the number, the number is okay with them.

Lauren 22:57
And I said, why everybody were like, You worried he's coming down too quickly, like, what? What is the concern? And they couldn't even answer that, you know, like, because I understand that if they're dropping his blood sugar too fast, he's gonna feel terrible, potentially dangerous, yada yada yada. But all I could think about was getting him into the normal range, which I knew was at that time, the 70 to 180 and never was it in that range when we checked him at the hospital. Yeah,

Scott Benner 23:20
no, they're not. They're definitely not shooting for that. They don't Right, no, they don't have the bandwidth for that, even if they had the knowledge right, truthfully.

Lauren 23:28
And so I'm calling, since they won't refer me to the end that I'd like to, because they don't have a relationship with that group, I'm calling this children's hospital down in Indianapolis every single day, multiple times to say, my kid was newly diagnosed. We have no education up here. We need help. And we got out of that. We went into the hospital Sunday, got out on Tuesday, and got into Riley's Children's Hospital down on Thursday morning. Very thankful for a physician who told us that was willing to see us at like before he saw patients, squeezed us in, got us in early. And so I think the big thing to that was, is that when I said we had no education, which the hospital thinks, they gave us education, but I knew that they didn't. They got us in, and they prioritized that for us. So it's kind of like saying the right things at the right time, and I want other parents to know, or people to know, like you have to advocate for yourself, and if something doesn't feel right, do whatever you need to do to get a better result, or someone who's more receptive to you.

Scott Benner 24:30
I'm afraid that for most people, though, they're not going to have enough context to know that something doesn't feel right, you

Lauren 24:35
know, I know, and that's what's so often you're in this like fight or fight situation to where you're just trying to get through and make sense of what's actually happening. I will say when I had my husband reach out to people, and I reached out to two people that I was just kind of like vaguely knew like that. I knew had children with type one diabetes. One girl had shared with me what you need to do immediately is order a sugar pixel, demand a CGM like. I was and then on top of it, listen to the Juicebox podcast. So that was the blessing. So in that moment, while you're awake at night, sitting in the little rocking chair next to the bed, I listen. My first episode was being bold with insulin. Oh No kidding, and yeah, and I'm like, This is so great. I need my husband to listen to this, because if I say this, it's not gonna be well received, but the second he does listens to this, it will resonate, and it will be someone else telling him, and not me, being overly aggressive, and it was the best thing I listened to in that moment, because, again, I was pro insulin. I knew it worked. I knew how it worked, and I knew that if it wasn't working, you're weren't injecting it properly, or you were not dosing it properly. It was just really good to have someone and, you know, they train you, even at my job and they at the hospital, they want you to be afraid, like deadly afraid of the low blood sugars, yeah, which definitely are scary. But, you know, I can't remember how many, just normal primary care doctors I said I would tell me, like, we're not worried about low blood sugar, we're worried about the hyperglycemia, and I'm seeing the consequences in these endocrinology offices of people with high blood sugar and uncontrolled diabetes. I'm never hearing stories which I know exist, of people having problems with the hypos. You can bring them up usually, you know? And I don't want to minimize that people have severe hypoglycemic episodes that can be very scary and detrimental by any means.

Scott Benner 26:27
Well, you know what, though, like, it's such a human thing, right? To just pick one of the other black or white. Like, why couldn't the middle be okay? Why is it like either or like, you're either going to be high, you'll be low. I'm like, why is that the case? What if we were stable and in a good spot? Let's go for that. Yeah,

Lauren 26:42
yes, exactly. And you know, they just, they'd want to keep you alive in the moment, and they're not worried about what it's going to look like for you in 25 years or for your child.

Scott Benner 26:51
Nobody's thinking that far ahead. Apparently, I tell the same story all the time, like, you know, when ardent, you know, first diagnosed, and her blood sugar is really high, and I finally, kind of, I have enough wherewithal to say, like, Is this okay, you know? And they're like, oh, yeah, yeah, cuz she's only two. And for a while, I was just telling someone this last night, like, for a while, I thought, oh, there must be some medical or physiological reason why high blood sugars don't impact two year olds. And then I then realized, like, one day, that's ridiculous. And I pushed farther and got the answer back. Well, no, it's, you know, it takes 30 years she told me for diabetes complications to start. And I was like, but she's two Exactly. Oh, see, I'm like, so you're telling me that we're shooting for diabetes complications when she's 32 like, does that make sense to you? Exactly? That's when I was like, I was out. I was like, okay, that these people don't know what they're talking about. I was at a good endocrinologist office too, right? Well,

Lauren 27:47
and that's, that's where I my frustration comes in, too, is, and I love the confidence that you have. I love that you figured it out, you know, because I feel like I had an unfair advantage to a certain extent with going into part of this, right, with just some of that background knowledge and but again, I was trained to train people to be afraid of high blood sugars, like that was my job to discuss the consequences of high blood sugars. Yeah, so that's like, I'm deadly afraid of the highs.

Scott Benner 28:16
Yeah, that's your step one then, because that's where, that's where all your education stems from

Lauren 28:21
yep, yep. And I understood what you can do, and I and then in that same moment, because obviously I'm getting frustrated. I'm like, Okay, I need to think, like all these other medicines have these additional benefits, like that, it would totally be off label use. But like, I want him on these. Like, when would it be appropriate to go on? You know, an sglt Two. When will it be appropriate to go on. I would love for him to be able to be on a, you know, a GLP, 1g I P receptor agonist, if possible. But I know that's crazy in the moment, but I'm like, it's, there's

Scott Benner 28:52
your head though at the time. Yeah, you're kind of going through the entire thing. Hey, did it work when you said, I'll show the podcast to my husband, and he won't just think this is me being a lot, like, did that work for you?

Lauren 29:03
So the best thing that happened we go down to Riley's in Indianapolis, and our doctor. So I hadn't told him about the hospital yet, because I'm just trying to get him to, like, hang in there in this moment. He's also the man who, like, almost passed out when I got my epidural when we're having our children. So, like, I was so worried about him, like being able to give a shot, like that whole getting over that mental barrier, and he's done an excellent job, so I didn't want to overwhelm him in the moment. But we go down to Riley's, and we have this, like, 7am appointment with our new end now, and my husband goes in and says, I was trying to tell him some of the certain parts. They're like, we want an A 1c below seven. That's the goal. And my husband's like, No, we're going to have one below six. And I said, Okay, great. Like, I don't even know where he's getting this, but that's great. And then he's like, You know what you should listen to, the Juicebox podcast. Is what our endocrinologist said to us in that moment. And then he started doing it from it. Again from the endo saying it. I don't know that if it was someone else saying it, he would have done it. It was the endo that

Scott Benner 30:05
said it. You had an acquaintance and a doctor tell you to listen to the podcast in short order. Yes, that's and it

Lauren 30:11
was the best thing. And I honestly took more of it from my acquaintance, friend that I had met, and then he impacted him more coming from

Scott Benner 30:21
the doctor. Well, now knowing that the doctor told you about the pockets, it makes me feel terrible to tell you that the worst bagel I've ever had in my life was in an adapt I listened to you say that before. I know I mentioned it often not because I'm out of things to say, but because I'm trying to change the world. You poor people, right? I know that you believe that's a bagel. It's maybe it's one of the bigger tragedies.

Lauren 30:42
I would agree. I would totally agree with you, horrifying.

Scott Benner 30:45
Well, that's awesome, so I'm glad you Yeah, and then, and it got your husband on board,

Lauren 30:49
yeah, and I had never listened to a podcast before that. I had never done that. And I thought, you know, okay, he's, he's starting to do this, and he took ownership and started to do that, and would come home and talk to me about them, and really quickly, like a few of them, that stood out were, you know, ways that we needed to figure out and how to manage this. And he started to listen to episodes with Jenny, and he automatically, like, took to her and her approach, and appreciated it and figured out a way to hire Jenny right away

Scott Benner 31:23
as well. Well, you got that whole Midwestern thing going on too, right? So,

Lauren 31:26
small world, all these little, small connections, so that's was has been really, really helpful, too. So, like, we really took all of these little pieces of information that people were throwing at us and embraced it and tried to figure out what was going to work for us and our family, and how to filter out bad information and do what we knew we needed to do for him, even just like getting more CGM right, like using the resources we knew, like I had a doctor tell me, Hey, I'm going to write you a prescription for a CGM, if you're willing to pay cash for it, take it to Costco, if you have a membership, and it will be pretty affordable so you have a backup supply, because Dexcom can take a long time to send you your replacement. You want a backup supply. And so these little things have been so helpful to take some of the stress away, because I learned really fast, how stressful it is to not have a CGM if you didn't have a little backup supply, because it wasn't last in the 10 days, until we figured out how to make it last 10 days. And so we emerged ourselves in in that, in the podcast.

Scott Benner 32:34
And where does that get you to a year later?

Lauren 32:37
Oh yeah. So it's been wonderful. I mean, it's been awful. At the same time, the podcast has made me feel less alone in this journey, because it's a very isolating experience once you actually get home and realize what is going on and eating the same things and being comfortable changing things. And as much as I love our Endo, and I think he's great. I will also say the educator that was down there at that first appointment after we met with him was a type one diabetic herself, and she was this young, cute girl, and my son's blood sugar is sitting at like, 150 which I'm like, thinking is pretty good at this moment for where we've been, like, been in the car for two and a half hours or four or five days into this, he's at a 150 and me, you know, it's been two hours since he ate, and she's like, why are you letting him sit at 150 you can give him a correction right now. And that was the best thing she ever said to me, yeah? Because even though he was in range, like, she's like, you can do better than that, yeah. And let's keep going. Don't be afraid of it. Don't be you're not gonna stack the insulin. I'm like, okay, great. So these little moments give you this courage to do better and set the higher bar, a little bit higher. That's like, like I said, what the podcast has done. I think my husband's biggest takeaway is, like, we have to steal the A, 1c, overnight. And that's one of the best things. Like, I think that we've tried to do, and have done as well.

Scott Benner 34:02
That's interesting, that that helped him, huh? That

Lauren 34:04
was something that stood out and, you know, in his mind. And like I said, it makes sense, is like, if we can have a good, you know? And this started to happen, yeah, kind of right away, really, we wanted to have a good overnight. And that moment time we're on Lantus and humolog, and within, I'd say five weeks we're on a pump we got on Omnipod really fast in those moments, though. He's like, we it will help with some of these variables during the day. You know, the what we're dealing with during the day at school, because we're still trying to navigate school time, but like nighttime, like we we're here, we can take care of that. And if we can make that strong and tight and that a flat line, like we will win. Isn't

Scott Benner 34:45
it interesting, Lauren, that like you took that thing from the podcast that occurred to me years ago, and you've turned it into way more than I did, like because when I had that thought, I was just in a battle with a number, with the A, 1c, and. I couldn't get it to move. That's when it hit me. I was like, Oh, she's not eating overnight. Maybe I could find some stability there. And, you know, like, steal some a 1c out of this number, you know what I mean. But I wasn't thinking about it as deeply as you thought about it. That's pretty cool at the time that it translated.

Lauren 35:17
That's something that I will live and die by that that's so important if we can always keep good control overnight, which does require sacrifice sometimes, like that means if I don't have to get to sleep because I'm constantly doing some corrections or pulling back basal, like is basal right, or doing anything because we are in manual mode on our Omnipod, and that is a result of Jenny telling us to use Omnipod in manual mode, and as the one of the other best things that we ever did is do it that way, because we have much better control,

Scott Benner 35:49
and you have the time to put to am I right to say that you're you stop working your stay at home. Now, I

Lauren 35:54
did stop working. Yes, I did. I did stop which that was a really big struggle for me, and I think that the first few months of dealing with his diabetes diagnosis, I don't even know that I I took the FMLA for a while, and, you know, was able to focus on on him and learning it. And I knew that if I went back to work, which I tried, I did try to go back like it would be harder to care for him to the way I wanted to, and I know that's not possible for everyone to do. It was possible for me. And so I and I worked because I loved to work. I loved my job. And so it was so hard for me to walk away from that. And I was also afraid, like, how am I walking away for a company that that spends makes the medicine that saves my kids life. How am I? How am I doing that?

Scott Benner 36:43
Yeah, and you give up a big piece of who you are when you stop working as well. Yes.

Lauren 36:47
And I was so worried I was gonna, like, lose my connections in the diabetes world and like, would not become familiar with, like, what's coming next, and what would be best, and all of these things that I was gonna lose my knowledge on. And I said, there's just nothing more important than making sure he stays healthy and doesn't have these long term complications. So it's he's more important than this job, and so I've got to make that sacrifice,

Scott Benner 37:10
because you're around all the time and, you know, and you you stop working, so you took the pump out of automation to get like lower targets, and you're basically acting like the algorithm. Now. You're making adjustments, bumping and nudging stuff like that.

Lauren 37:26
And so the way Jenny kind of described it to us was it's important to understand what the pump will do and when it's doing it before you allow it to do it. So it's kind of like a marriage where you're kind of like sitting down and understanding all the little details before you actually get married and commit to the algorithm. In a sense, because you want to know how to do the an extended Bolus, you want to know how to do a temp basal increase or a decrease. And like, kind of learn those things before you give over to automated mode. And I will say our trainer was not happy that we were doing it that way, and had the nerve to tell us we won't ever get the control we want in manual mode. Oh, and then once you tell us that, now we're definitely going to do it and show you.

Scott Benner 38:15
Do you think at some point you'll move into automation? Our

Lauren 38:18
newest step that we're actually trying to go before is we're gonna get ready to loop, which I'm having a hard time doing, and, like, for some reason, okay, like, letting go of that control. But Jenny has now suggested that we loop, and we have actually, like, built our loop system, and I'm just kind of nervous for it, but I will say, because my son so we went from a 10.3 a 1c at diagnosis, to a 5.8 which was our first follow up appointment, to a 4.9 and then back up to a 4.2 Wow. Excuse me, not, 4.2 5.2 excuse me, gosh, that would have been terrible. I was like, Oh my gosh, really, no, that's like, nuts.

Scott Benner 39:00
Then, yeah. What makes you nervous about about looping

Lauren 39:03
the change now? So now, when you've been successful doing it the way you're doing it, it becomes nerve wracking to give up some of that control they walked us through building everything. And I think what kind of intimidated me at that is like I did what you told me to do with building this app. But I don't know what I did or why I did it.

Scott Benner 39:24
You don't know what the company did when they made made it right. It just shows up and you use it. I

Lauren 39:30
don't know why I'm scared. I'm I don't know. But because I don't, you have dash pods. You do right? Yes, you have them. Haven't started them yet.

Scott Benner 39:38
So if you tried loop, you could just, like, swap, right? If it panicked you you could just take the pot off the new bottle and go right back again. Yeah, I know

Lauren 39:45
I was hopeful to, you know, I listened to your podcasts with the fox and the loophouse, yeah. And that helped, that helped after we built it like, kind of understand things in a little different way. Yeah. I mean, we need to, we're like, sitting there just waiting to do it. We actually, you know, it's like, you kind of want him at home for a few days, so he's obviously in first grade, and, like, just to kind of control and get comfortable with it. And so you're not, like, relying on the school, which has been wonderful, like, hey, fix this or do this.

Scott Benner 40:17
And, yeah, I mean, a long weekend, didn't we just go past Columbus Day, what happened? You had your

Lauren 40:22
shot. So we have fall break coming up. And so I was thinking, We should do it then, yeah, we'll have a Thursday, Friday, Saturday, Sunday. Well, listen,

Scott Benner 40:30
if you're going to do it, do it then, because then your next opportunity is going to be Christmas, and then you're gonna think, well, I don't want to do it during Christmas, and then you're never going to get it done then. So, yeah, fall

Lauren 40:39
breaks it. Okay, I need it. Let's like, I need people to tell me what to do. And Jenny's so sweet, like, she does it in her own way. And I sometimes, like, wish she had a little bit more, like, Lauren just do this. It's okay, a little more of me. Yes, I need you. And my husband needs Jenny. So it's kind of funny, like, I need you to just like, slap me in the face and say, This is what. How you do it?

Scott Benner 40:59
Hey, question you have. You have two boys, right? The younger one is he more like you than your husband? Is the older one more like your husband than you like?

Lauren 41:07
No, my older one's more like me, for sure. Okay, yeah, and my younger one is no, you know I I don't know that I would ever be as brave as he is and like he's just been so wonderful through this experience. It almost like makes me so frustrated and feel bad for him, really, yeah, like, because I just think I would never have been this way, or I would feel sorry for myself or and he just doesn't, you know, and he's asked questions, why do I have this? And that's, that's, you know, the worst, like, how do you answer this in a way that makes sense to A then six year old. For how many more years am I going to have diabetes? And those things are hard. And he's like, Okay, you tell him, though. And he just, he processes it and doesn't cry, doesn't have a moment, you know what? He has me. I like, oh, I don't want to change my pump today. I hate pump changes. Like, he'll say that, which I'm like, you know, you just go with it and but you do get those hard questions. And I don't know that I would have been as, like, mentally strong as he has been. Yeah,

Scott Benner 42:07
Arden was up last night. She's got midterms right now, and she was up till she's been up all week, studying, like, late at night, and then getting up going to class. And, you know, blah, blah, I got a text from her last night at 1:55am Are you awake? And I said, Why? Because, by the way, I was not awake. And she goes, my pod just stopped working, and I just put my laptop down to go to sleep. I could punch the wall. She said, right. God bless her. I said, Hold on one second. So I ran downstairs, got a pod, filled it up, brought it upstairs, handed it to her, she was swapped the pod and was back to sleep, you know, in literally, like three minutes. But I said to her, as she was putting it down, like, as she put it on, I said, I look for suggested insulin and put any in right now, especially with the new pump, and your blood sugar started to trend up over the last couple of hours. I don't know if she was snacking while she was while she was studying, or if maybe the pod was like, going sideways, you know the I'm not sure, yeah, and she put in a little bit, and I walked out, and I was like, I don't feel like that was enough. I've been really tired lately. But by the way, because Apple messed up and my podcast hasn't been publishing on its own, I've had to get up in the middle of the night all week to publish the podcast manually. It's fine, but, but I've been a little behind on sleep. I guess is my point. I went to bed early last night, and then I got woken up at two o'clock. But still, when I left the room, I thought, well, let me sit up for a little bit. I want to see which way this trends. I don't want her to have to stay up. She's got to be up at eight to go to class, to take this this French midterm, right? I stayed up for like, another hour, and I'm glad I did, because I, you know, after about 45 minutes, I said, You know what, this isn't enough insulin. She was like 150 when she changed the pod, she drifted towards 170 I went in and I made a Bolus. I waited 20 minutes to see if it started moving in the right direction. It did, and then I went to sleep. So, yeah, I mean, it takes, it takes some effort sometimes, and it's frustrating. You know,

Lauren 44:06
the best thing that we can do, though, is what I try to remind myself is like, it's, I'm tired, but it's okay, it's, it's so worth it, and it's a privilege to be able to take care of them. I try to convince myself, obviously, I wish they didn't have to do any of this. And I try to tell my son too, and I love that you're still helping her and doing next I'm like, if you ever get one day, you're going to take care of this by yourself. And if there's ever a time that you're kind of tired of it or you don't want to do something, like, you can always call me and I'll always be there to help you. Yeah. Like, even if you don't want to do your pod, change, like, I'll do it for you. Like, so you don't have to think about it. Or if you want to be me to Bolus you for the day or count your carbs like I will always be there.

Scott Benner 44:43
I don't want her to be 170 overnight while the new site is settling in, because also, right, you know, also little things. Her basal rates lower overnight. Her correction factor is a little weaker overnight. And it's a new site, you know, if the old site was going bad, and that's what the drift up is. About, or there's food in there, and that's what the drift up is about. Then the algorithm is not going to, not really going to think about that. It's only really going to look at the number. And then you've got the new site. That's not going to work as well, because it's brand new. And then what, she sits 170 all night long, then she gets up in the morning at 170 and yeah, and the adrenaline hits her, and now she's 200 and now she's in class, and she's trying to take a test with the 200 blood sugar that's maybe going to come down while she's in there, and then she has to feel the fall and the whole thing, like, it was just, I thought easier for me to stay up for an hour and make sure that that didn't happen. Yeah,

Lauren 45:32
100% and I agree. And those are the things that you have taught me that I'm so grateful for. And, yeah, I can't, like, even crush and catch like, yeah, crush it and catch it. And you know, like, if there's a time where I've ever felt like, Okay, this pump site, is there something wrong with this pump site, I kind of put a I'm comfortable. Maybe that's a bad thing, but I'm comfortable putting in, like, what I feel like is a kind of an aggressive amount of insulin to see if it works, and be pre prepared to catch it.

Scott Benner 46:00
Yeah, it feels like you're figuring it out. To be perfectly honest, it's safe and yeah, and you're still very new at it. And you're doing obviously, excuse me, you're obviously doing really well.

Lauren 46:09
Well, thank you. Well, it's all courtesy of you, and knowing that this matters, and you know, and it's like trying one thing at a time. Like, you can't try it all at once. I don't, I don't believe. I think you have to get really comfortable, really fat, like, with certain things, and get really good at one thing, and then, okay, let's tackle the next thing that we can improve. And we were always pretty good about Pre-Bolus thing, because I did understand the importance of that with my background, with my job. So like, seems like it can be scary too, because what if he doesn't want to eat what you Bolus him for, but I've been so lucky that he'll eat everything. And, you know, I found like, Oh, if he doesn't want to eat, you know, something like, you add a little bit of something else that calculates to run the same amount of carbs, he'll he'll never say no to some ice cream. He'll never say no to something to give him a little bit more carbs. That's a treat, if you will.

Scott Benner 47:04
I'll say this, you're focused on what you're doing. You're paying attention. Things are making sense to you. Really. You're at the point now where you need to not overwhelm yourself and burn out and continue to have experiences that you learn from and build on your portfolio of knowledge. Correct.

Lauren 47:21
And then there's definitely ways we can improve, for sure, and we're not all the way there. So it's a constant process and a battle that you always have to fight. And well,

Scott Benner 47:32
yeah, I hope you stop seeing it as a battle at some point. And I mean, yeah, in the first year I get it, it is a battle at some point, it should feel more of like a marriage of, you know, you know, that's not, not always easy, or something like that, like, you know, like, yeah, something you're happier to be involved with that you know, can be difficult at times out of the blue, sometimes, you know, you're not stunned by when it, when it goes sideways, and you're not sitting there thinking, like, oh, I can't believe I have to do this. It's almost like a thing you're happy to be involved in. Happy is the wrong word, but like, you know what I mean? Like, you're okay being involved to take care of them and help, and it's like a bigger thing, you know, it's bigger than the moment usually, yeah, I think that happened for you. I think you're

Lauren 48:17
like, I'm in a like, it's like an extreme sport to some extent, you know, and that you have to, you know, have a different level of endurance. So and you have to train your body, just like an athlete has to train their body to be prepared for this new level of what you are required to think about and do on a day to day basis that you've never had to do before. And that's what I'm like. I have to train my body to get comfortable and a stronger endurance for

Scott Benner 48:46
a lot of this. Just don't forget

Lauren 48:48
to sleep. No, that's why, I think that's why Jenny wants us to loop because she wants us to sleep too. And I funny. I think it's funny, not funny, but interesting. Like when we go back down to our endos appointment, he's always like, I feel like he's more worried about us than our son. He calls us that tells us we're sugar surfing. Or I feel like we bump and nudge, which is probably the same thing

Scott Benner 49:08
during the day, if you're on top of it, and you don't mind being on top of it, I didn't find it to be taxing during the day. It's at night when you have to do it. It's like, it's a little more like, you know, like

Lauren 49:19
the sleep Yeah, it wears on you. It can be very, very tiring, you know. And I think you also taught us to, like, lower your alarms, to go off sooner, because if you can treat something sooner, you need less insulin. And so it's just listening to all these things and applying them that is so important. And I'm so grateful for, well,

Scott Benner 49:40
I appreciate it even the way, like the bold beginnings or the pro tips or whatever are structured. It's kind of a bigger idea, meaning, like, I want you as the listener to be captured by the idea that this is possible. And then I want to give you bare bones ideas that hopefully. Lead you to thinking like, oh, wow, this is possible. I'm doing it. It sounds like you're there, right? But at the same time, if the next episode of That was like, hey, now listen, you know, 130 overnights okay if you need to sleep or something like, I think it sends a missed a mixed message then. But I do think that if you know you need to sleep one night and the blood sugar is 130 I don't think you should sit up all night trying to make it 85 like. I do believe that it's also a thing that I do. But in my mind, you can't mix that into the instruction manual, the initial instruction manual. It can't be like, You don't mean it can't be like, Hey, this is very important. You absolutely have to do this, unless it's Friday at 3pm and then don't worry about it, because I think that's what gives people the permission to ignore things, you know what I mean? Like, I want you to get to the point where once you know how it really works, then you can adapt it to your life. Like, right? Like, I don't expect you to do it exactly like that. I've heard people say, like, you know, I What's he think I'm going to follow these exact rules? And I'm like, No, I'm like, this is just the stuff I noticed. Like, do what you want with it. Like, I don't care. I'm

Lauren 51:01
so grateful you just said that, and I heard you say that right now. And because it's good to hear that, that it's okay to have one night at a 130 so that you can recharge and get a good night's sleep, and you get back on that horse tomorrow. And obviously, I totally understand what you're saying, but it's really good to hear you say that, because you have been so successful, I know that if I do that one night, or if I can't stay awake, or it does drift up past that, it will still be okay, and we can still be successful, because it's really easy to get hung up on feeling bad if you have a bad day or something goes wrong, and being able to bounce back from that, but also not get complacent, like, I'm also can't be okay with, you know, 130 or overnight for forever?

Scott Benner 51:49
Yeah, no. But frankly, yeah, 131 50, 202, like, none of that, you know, I don't know what the analogy here is. I didn't know this was all going to get this big when I made that stuff. I I also didn't have all the information in my head now then that I have now I didn't have, you know, back when the pro tips were made, as an example, I hadn't been a person who ran a Facebook group with 75,000 people in it. I wasn't that pre I didn't get to see people's reactions and 19 different perspectives. I had my perspective and the ones that I could imagine, but not everybody else is now I I'm a little closer to having maybe a complete portfolio of perspectives, but I'm still paying attention to other people, because there are times people say something that I thought, Oh, I wouldn't have thought of that, you know, and then I look around and I think, I'm they're not the only one that thinks that way. I'll have to adapt myself to understand that this is also, you know, a concern or a way of thinking. And even if I had all that information on day one, there's no way I could have gotten it all into that. I put that series together in a way that it should leave you honestly. It should leave you right where you are. If you're focused and you understand it, and you put in some effort. You should have an A, 1c, and the low sixes, high fives, depending on how you eat. To me, that's what happens when you understand that Pro Tip series. You know, you understand what I'm saying. Am I making sense?

Lauren 53:12
Yes. And I, like I said, it's people like me who are new into this. Need to hear this, because the doctors just want you under seven. And I like, that's not good enough, and I kind of resent that that's the goal, and I understand that it's hard, and I understand but like, they can do better for everyone, especially like the children. I feel like we can do better, and with the technology and all that stuff, we can do better, and you're the reason that we do better not because of what our endo team? Yeah, no, I appreciate that taught us or helped us

Scott Benner 53:44
with. I'll defend them and try to alleviate your anger a little bit too. Like they don't know you. They don't know everybody. They've got a system. You know, here's the stuff I do. This is what it's done for me. I've seen enough people mimic it that and it worked out for them the same way that I'm pretty comfortable saying, like, you should give it a listen and see if it makes sense to you. They can't do that. Right? They can't give you. I

Lauren 54:07
wish that they I wish that they wanted people to have better than a seven, a, 1c, like, I wish that the standards on what they were focusing on war was tighter control. And I know we're like, just shifting to time and range, but, like, I don't necessarily love that either, unless we're going to tighten that range, because you can hang out at 170 all day.

Scott Benner 54:27
Is that's awful. I think the time and range, the way it's set up right now. What is it, 70 to 180 is that how they talk about it? Yes, yes, that's based on, I'm guessing, what the establishment believes is possible, and what they've seen from people, and what leaves you under a 780, 1c et cetera. They're shooting for commonly accepted ideas and and they're trying to make space for, I would imagine, the fact that everybody's not the same. Everybody doesn't understand it the same. They don't have the same amount of effort. They don't have the same access

Lauren 54:59
to right. And I know that, and I understand that component of it, or like, knowledge or willingness to, I mean, everyone

Scott Benner 55:06
medications, you know, like all that. Yes, hey, with your last couple of minutes here you're obviously, you're involved in pharma. You said, like, you know, the people who make the insulin, so, like, I'm guessing somewhere between where you live and how you're talking, you worked for Lily or novo, you don't have to say that's sort of my expectation there. And then you talked about like, glps, yeah, tell me what you saw. Tell me what you saw while you were at work that made you think about them. Oh my

Lauren 55:34
gosh. They are miracle drugs. I was so excited too. So I was actually at Santa Fe. I did start my diabetes career at Santa Fe, so I was Atlantis and a PJ girl. And then I did. I started at Lily that before not in diabetes. Went to Santa Fe's to get involved into the diabetes marketplace, because that's where I thought it was best for my job. And then came back to Lily because I knew what they were going to be launching, and I wanted I realized, like, hey, the GLP ones are great, wonderful medications. Like, I want to be a part of this and learn about them. And they are miracle drugs. They do wonderful, wonderful things for people. And, like I said, I kind of was, like, angry. I don't even know if I could do my job anymore, because, like, I'm jealous at the sense that, like, it's not indicated for my child, and what they can do for someone, and I get frustrated to think, and I know they are, I think they are starting to do studies around in type one diabetics for these medications, but they can really change The outlook and the forecast of someone who has diabetes, and it's, they're like, I said, they're really, really life changing, and their future is bright for the type two diabetes market place, with what's going to be capable for people. And it's with, I think it's also like, you don't have to do it the hard way, like using insulin is difficult, right? And you do have these risks of hypoglycemia if you're using it, if you're you know dosing properly, if you will. And I think people are really under utilizing insulin and dose don't dose it have proper ratios to prevent the hypoglycemic episodes. But that's here or there. But what the GLP ones can do for you, I mean, and what I've seen people transform, it's it. They're wonderful. And I know you've had wonderful experiences with them, too. And what they can do with insulin sensitivity is amazing, yeah, and I've loved listening to the episodes where

Scott Benner 57:35
you talk about them. Well, I'm glad. I appreciate you sharing your perspective on it. Yeah, I'll tell you that. Gosh, I feel like I've said this already, but my wife came home from work 10 years ago and longer now, honestly, and she works in the safety side of things and and so, and she said, Hey, there's a drug one day, people are just going to take it and lose weight. And I was like, really? She goes, yeah. She's like, it's like an injectable. And she's like, you're just gonna lose weight. And that's all she really knew about it. And I said, what, you know? Why are you telling me about this? She said, I just saw a lot of the data come back from studies and everything. And she's like, it's a type two medication, but it's gonna be a weight loss drug. I think,

Lauren 58:14
yep, she was right.

Scott Benner 58:16
Yeah, she just said that, and then never said it again. You know, like it was just the thing she said one time. And then all, you know, lo and behold, a few years ago, people started, it was out there before people knew. And then it kind of caught trend, and a couple of famous people lost some weight. I think that put, like a focus on people and

Lauren 58:34
and then there's a shortage, and it's stressful, and, oh my gosh, all

Scott Benner 58:38
that stuff you expect to happen happens like, they're not going to make a ton of it if before they know if they're going to sell it and like that kind of stuff. And then that all happens like that. And there's, you know, every one of the arguments that you can, kind of like, foresee easily that are going to come. But then one day, you know, I went to the doctor and just said, like, you know, I'm not okay. Like, I need help. And the doctor was like, Oh, I'll put you on a GLP medication. And I was like, Okay. And then, you know, I said to my wife, this is what's happening. Maybe you should do it too. And now today, I think together, Kelly and I have lost 200 pounds. Isn't

Lauren 59:13
that amazing? Yeah. I mean, I don't know. I know you say you did, but like, Did you realize that that was even something you could have done? Like, did you think that between the two of you, you could even lose that much weight? No,

Scott Benner 59:24
no, no, no, no. That's not an expectation, like

Lauren 59:28
life changing medicine that I mean, which, and I know they're studying it in more places, but it's the benefits it can have and that it does have, and the stories I've heard from people who have been on these it it's just, it's really unbelievable, and I hope the doctors hear them, and I encourage people to tell the doctors their experience, not just about their weight, but other things that are happening that have improved their life, because I believe it extends beyond just the weight loss. Obviously people feel better when they're, you know, to a whole different level once with with that, I think mentally, socially, all, all of those things they need to know. And I also think that if you are diabetic, or you've had even pre diabetic numbers like it can help lower. I mean, not people who go from being like high a 1c, is type two diabetic to normal blood sugars. With this, with just having this medication on board, is also really, really phenomenal and not discussed enough. And I think that doctors can have better standards for their patients by using these medicines. And even, you know, we don't, we're not just shooting for the seven. Let's shoot for a below a six, because it's possible.

Scott Benner 1:00:42
Because why not? There's studies going on in all kinds of different disease states and how GOP ones might help them. Yes, you know, a lot of that comes from community people too, which is nice. It's a group of people saying, like, hey, you know, I went on this for weight, and look what else happened. And then, you know, and then they're online, and somebody goes, Yo. That happened to me too. I thought that I've watched those conversations happen, like, Oh, I thought I was imagining that. And then next thing, you know, there's 1000 people in there saying it, and you're like, oh, that maybe is part of and then now they go study it and try to figure it out. It's gonna be awesome. Like, I, you know, happy to tell people all the time, like, I'm not anemic anymore, since I went on a GOP medication.

Lauren 1:01:20
Yeah. Do you think it will what dose Are you on now? Of the Manjaro I

Scott Benner 1:01:24
use? Well, yes, that bound. But Manjaro I use 12. I use 12.5 but I'm not really trying to lose weight anymore. So Right? Wondering if I, I don't know if I should go back a little bit, or if I should mess around and try to see if there's a lower amount that would do the same thing. What does your doctor want you to do? You know she and I actually haven't talked about it in a little while. I'm due, I'm due to go back in and chat with her again about it, but that's going to be something that I bring up next time I am really, like, very stable right now at a certain weight, I have one more thing I'm going to work out about my health, and then I think I'm going to be in a good spot, and then I want to really sit back and assess it and then make a decision about, like, you know, if, if I should be searching for a number, an amount that could be lower. I don't know. Do

Lauren 1:02:12
you worry that you it might stop working?

Scott Benner 1:02:15
Oh, I mean, I don't worry about it, because I'm not, I'm not a an anxious person. But if that happened, I would run my head right through a wall. Yeah. So, because I had to stop it for a week for a surgery, I really focused on not changing my eating at all. I really, was really as careful as I could be, and I still, I gained six pounds that week, yeah, yeah. And I was like, that's, this is insane. So, right, yeah. Also, it can. It can, once you've lost the weight, to, not gonna lie to you, like, it can be a crutch sometimes, like, there are times where you're like, Oh, I could have a piece of cake right now, because the medicine will take care of it, and it kind of does. It slows your digestion down, like, keeps your insulin levels better, like, and

Lauren 1:03:01
you notice that, do you ever wear a CGM while? I know you've talked about wearing CGM before, but it's curious, if you ever wore a CGM while, honest? GLP, yeah, notice a difference from your original I did. It's like,

Scott Benner 1:03:14
you're not it's like the joke. It's like the CGM is not working. It's just repeating the same line over and over again. You

Lauren 1:03:19
know, see, oh my gosh. And I wish doctors would also put more people on the CGM when they prescribe these to really see what it's doing, because it's they don't, I don't know that they do that. And that would tell a whole different story too, and give up different real, a big, different perspective. I

Scott Benner 1:03:38
think being studied, how amazing it is eczema. PCOS, anxiety, fatty liver, yeah, heart disease. I said to my brother the other day, I'm like, I'm gonna live forever on this GOP, I

Lauren 1:03:51
mean, right, and, but there's more. There's gonna be new things coming. So be excited about the new thing and see if you're gonna switch and paying attention, right? I know you need everyone should be. It's, it's exciting. Like I said, I hope that with this, like, we get more comfortable and using them in type ones

Scott Benner 1:04:07
too. Somebody said to me recently, like, do you think you're gonna have to take that forever? And I said, probably. And they're like, oh, and they got all like that. And the person who said it to me is not like the picture of health. And I thought, well, I'll be bright and chipper at your funeral. Don't make fun of me. You should be looking into it for yourself, don't, you know, right?

Lauren 1:04:26
And it's, I'm out of cholesterol medicine, not because I, you know, I don't have a weight issue. I it's, it's hereditary. I've, you know, heart disease runs in my family. I had slightly elevated cholesterol. I started a medication way before the average female that takes starts one, and if I stop that medication, it's a crime. It's a lifelong thing for me too, like just a pill. I mean, it's so, so easy, but if I stopped in my it doesn't matter what I eat my blood, my cholesterol levels will become elevated again. So it's lifelong for me, and no one's judging me that I'm taking. Taking that for the rest of my life,

Scott Benner 1:05:01
I take the job of an actuary very, very serious. And like those tables are incredibly accurate. And if you don't know what I'm talking about, like there are there's research, there's tables that actuaries used to, you know, pinpoint how and when you're going to die. And trust me, you fall into a bucket that they can pretty accurately figure out I was not going to get for whatever reason. God bless my body. I was not going to get type two diabetes, right? So I'm overweight, and my endo keeps telling me, she's like, You are so like, I'm looking at your a 1c she's like, I really don't think you'll ever get type two she's like, it just feels like your body's not that's not going to be its failing point. So with that in mind, I was going to have a heart attack one day. Like, one day, maybe it would have been when I was 70. I have absolutely no idea, right? Like, but if you think you're going to be the one overweight person who lives till they're 100 that's I heard somebody say the other day, like, you see a lot of fat old people, do you? And I was like, No, I guess not. I'm not in as good of health as I could possibly be in. I think I'm not the picture of health, but I'm in as bad as good of health as this body is going to handle. Right? This gives me the best possibility I have of making it as far as I can, as well as I can, for as long as I can. That's the way I see that like it's, it's and listen, if you wake up tomorrow and turn the podcast on and it's the editor, and he goes, Hey everybody, I'm so sorry to tell you, Scott's dead. I have 35 episodes of the show left. I'll put them up for you, and then that'll be the end of it. Like you say, okay, it didn't work out. But if I look up when I'm 80 and my joints feel better and My back feels better, and my heart's working better, and I don't have clogged arteries, and I don't have type two diabetes and all this other stuff like you think it's gonna matter to me that I had to do an injection once a week. You kidding?

Lauren 1:06:50
Exactly now it's it's amazing, and we should be all lucky that it's available to us now, and God bless the researchers and the scientists who develop these things, because it it will change a lot for a lot of

Scott Benner 1:07:03
people, celebrate smart people, like they're out there doing that stuff right and, by the way, if you can live till 80 doing a sit up and eat in a certain way, and your body's, like, jives with that, like, right on. Like, I'm not telling you to use a ninja, I'm telling you where I was that wasn't happening for me. Yeah. And it's

Lauren 1:07:20
important to be proactive with that, that sort of oh yeah stuff. You can't be reactive. I mean, you've got to be proactive with your health. I

Scott Benner 1:07:27
wish it existed sooner. I would have done it sooner if I knew about it, so I know, yeah. Anyway, you all can do whatever you want. It's been

Lauren 1:07:35
successful, and it hopefully still will be. And like I said, keep the advancements coming, and it's positive for all of those struggling with these things, because it's real. I had to

Scott Benner 1:07:45
go to a doctor's appointment the other day at a new doctor I'd never been to before, and the girl at the front desk hand me back my driver's license, and we chatted a little more, and she's like, Oh, I'm glad you added that. I forget what I said. I added some context to something. And she's like, I'm glad you said that, because I actually was sitting here thinking that maybe you had stolen this driver's license. Oh my goodness, yeah, she thought I was like, maybe committing fraud. Because she's like, I didn't think that that was you in the driver's license. Well, that's, I mean, somehow sad and lovely at the same time?

Lauren 1:08:21
Well, yes, especially since driver's license photos are so not good

Scott Benner 1:08:25
anyways. But it's only four years old, and she's like, this, isn't you, is it? And I was like, No, it was. It's not now, I guess so. Yeah, right on. I'm in and if I I'll say the thing I haven't said in a long time. If I grow a tail from it, I'll just write that bound on the tail. I'll be like, That's okay,

Lauren 1:08:44
exactly, exactly. And you know what? They've been studied long time there. There's been other medicines out there before, the ozempic and the Manjaro, the Zepp bound, wegovy, the there's been other ones before that. They weren't

Scott Benner 1:08:58
as longer than you think you will, yeah, yes.

Lauren 1:09:01
So these medicines, this class of medication, has been studied for a long time, you know, over 20 years.

Scott Benner 1:09:09
You know what I mean, right? Yeah, I didn't hear you talking about it then.

Lauren 1:09:12
So, oh well, yeah. So, I mean, they're, they're there, and there's the safety is there. So it's like, stop hating on it from the people who are like, Oh, what's gonna happen in 20 years? I

Scott Benner 1:09:25
don't know, but I do know what was gonna happen. And so I do think that sometimes we make our judgments the wrong way. And you see, like, I saw a news story this morning, like, 104 year old ladies still work six days a week, blah, blah, blah. Like everyone thinks that's who they're going to be. That's a random thing. And you ever notice when you talk to those people too? They're like, I cake every day and I've been smoking since I was 12. These people weren't dying no matter what exactly they won, some sort of a genetic lottery. We all didn't win that lottery,

Lauren 1:09:57
so, right? And we're not invincible. Oh, there's a handful that are, yeah,

Scott Benner 1:10:01
there's Yeah. There's a random few people who just, who knows for what reason they're just gonna go forever, no matter what they do to themselves. But instead, people take away from it. Oh, look, that lady is 104 and she smokes cigarettes and works every day and blah, blah, so I'll be fine. Yeah, no, that's not how I what you want to believe? Yeah, I ain't going out like that. What do you think? Right?

Lauren 1:10:25
Yep, and I admire it. And like I said, I'm so grateful for you and what you've done and sharing your experiences, it makes a big, big difference. And so keep doing it, please.

Scott Benner 1:10:37
I appreciate it. I am going to go have lunch now and then, Arden and I are going out because I'm doing a little speaking thing next week, and I need a since we're talking about it, I'll tell you, I need a pair of pants in a smaller size. We're going out to get

Lauren 1:10:51
some. That's the best feeling. That's what people we joke you like people you need. They will save money on food, but they will also need to have spend more money on some new clothes, most likely, if they commit to this

Scott Benner 1:11:02
medicine. It was so drastic that we, my wife and I both made a conscious effort. We only bought enough. We started buying clothing, thinking about it in like, six to eight week terms, so we'd only buy a couple of I were the same thing, yeah, because then and then we would just, we took them off and then put them in a bag and then we donated them to a shelter. Yep, we just kept doing that for two years.

Lauren 1:11:27
Yeah, that's where the expense comes at, is needing the new clothes for sure.

Speaker 1 1:11:32
Lot of donated clothes in the last two years have left the house. So anyway, I would, I would like that money back. I'll contact Lily and see if there's a program for the for the southbound that I get. Give them the idea, give them the idea. I should listen. I get some clothing money out of it anyway. Thank you very much. I really appreciate it. Thank you.

Scott Benner 1:11:59
Today's episode of The Juicebox podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juicebox this episode of The Juicebox podcast is sponsored by Omnipod five. Omnipod five is a tube free automated insulin delivery system that's been shown to significantly improve a 1c and time and range for people with type one diabetes when they've switched from daily injections, learn more and get started today at omnipod.com/juicebox at my link, you can get a free starter kit right now. Terms and Conditions apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox Did you know that skin grip has donated over $100,000 in scholarships to help people with diabetes? The people at skin grip, they know what it's like to live with type one diabetes. They know what it's like when your devices fall off at the absolute worst time. And they're here to help skin grip.com/juicebox save 20% off your first order when you use my link. That's what you get for being a Juicebox podcast listener. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card if your loved one is newly diabetes? Diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one our series cuts through the medical jargon and deliver straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series and all of the collections in the Juicebox podcast are available in your audio app and at Juicebox podcast.com in the menu, the episode you just heard was professionally edited by wrong way recording, wrong way recording.com,

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