#1672 Balls of Steel
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Taylor, dad of a newly diagnosed three-year-old, shares year-one lessons: Omnipod 5, Dexcom/daycare coordination, treating lows without overcorrection, mastering settings over gadgets, and facing GLP-1 stigma
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Scott Benner 0:00
Friends, we're all back together for the next episode of The Juicebox podcast. Welcome.
Taylor 0:14
Hey everybody. My name is Taylor, 30 years old, and I'm the father of a top one diabetic who is now three years old.
Scott Benner 0:27
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while you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin.
This episode of The Juicebox podcast is sponsored by us med. US med.com/juicebox, or call 888-721-1514, get your supplies the same way we do from us. Med, this episode of The Juicebox podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox you can get yourself a free, what'd I just say, a free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions. Apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes, links at Juicebox podcast.com.
Taylor 2:17
Hey everybody. My name is Taylor, 30 years old, and I'm the father of a top one diabetic who is now three years old.
Scott Benner 2:27
Your three year old was how old when they were diagnosed?
Taylor 2:30
Taylor, just last year, summer of last year. So, okay, you have other kids or No, no, not at the moment. You think it happened more. I would like to
Scott Benner 2:39
does the lady you made the first one with agree with that? She
Taylor 2:43
does. I guess it's all just situational. And the the diabetes kind of threw a curve ball in there, I wouldn't, but it's still, it's still on the table.
Scott Benner 2:51
Okay, yeah, I would imagine. Were you, I mean, did diabetes literally slow you down? Were you thinking, hey, we're gonna have two, three kids, and now you're like, well, let's wait and see.
Taylor 3:00
Yeah, that's kind of what it was that I would say that was the main driving force behind that, just because of all the extra care and attention. But my wife listened to one of the podcasts, and I can't remember exactly it was a guess you had on previously. We're going to Florida on vacation, and we listened to some of the episodes on the way there. And it was along the lines of, if it's not diabetes, and, you know, it could have been cancer, it could have been this. So what's kind of stopping you from doing what you want? And I guess that kind of resonated with her, and kind of brought that back into consideration.
Scott Benner 3:35
Oh, are we going to name the next kid after me? That'd be lovely, by the way, Taylor think about it. Oh, just depends. By the way, you shouldn't do that. I don't think it's funny. I was downstairs just now. There's a guy, a local guy in our town, and he does painting such a good job and such a fair price. He's He's painting my my room. And I was downstairs talking to him a little bit, and his name is Scott. And it's funny that when I call him Scott, it sounds fine to me, but when people call me Scott, I think, Oh, what a terrible name I have. I wonder why that is. Yeah, I don't know. Yeah. So anyway, let's ask you other autoimmune stuff. Do you have anything? Does your wife or on your sides of the family, does anything exist
Taylor 4:15
me personally, no, my wife does have PCOS. And after, honestly, after listening to the podcast, I'm a little suspicious of some thyroid issues. Possibly we still have some appointments to set up and kind of dig more into that
Speaker 1 4:31
thyroid for who my wife, okay, okay, how? What kind of things make you think that that's a possibility,
Taylor 4:38
just the hair falling out all the time. I'm kind of blinking right now, but I'm listening to the podcast. I know there was a lot of symptoms you went over that I'm like, that sounds like my wife. That sounds like my
Scott Benner 4:51
wife. No kidding, no kidding. Was it hard to go tell her that?
Taylor 4:55
No, not really. Okay. I feel like we have pretty good relationship when it comes to health stuff. Of being open about it and seeing things from an outsider's perspective, because we both do that with one another, that's awesome. But other than that, my father diagnosed bipolar, which she has a lot of other health issues, heart, a lot of joint stuff, has had more surgeries than anyone I know. My mother actually, just last year, the year before, had her thyroid removed because they found cancer there, and the only other autoimmune I believe, I believe my aunt had lupus, and actually her daughter is the only other top one in our family.
Scott Benner 5:37
Okay, well, that's a fair amount. Let's figure out how you figured this out. So the other person within your family with type one that they have type one prior to your child's diagnosis?
Unknown Speaker 5:47
Yes, yes,
Taylor 5:48
they were diagnosed around 17 or 18. They're in their late 30s, so they've they've had it for a while now.
Scott Benner 5:55
And is this a person that you've been around, or is it just like Thanksgiving and Christmas kind of thing? No, it's
Taylor 6:01
been around grow up with I haven't in recent years. She moved to a different state. We actually seen her not long ago. She got to meet my son for a little while, and their top one buddy.
Scott Benner 6:13
That's awesome. Yeah. So type one, something you knew about. So then when your son is, what, two years old and starting to show signs like, what are the first signs that pop up? And how quickly do you figure out what it is?
Taylor 6:26
We did not figure it out. It's a lot like your typical diagnosis stories you hear on here, urinating a lot, drinking a lot, terrible mood swings. But also, he's two years old, so we were like, oh, that's kind of to be expected, you know. So we didn't really pieced anything together, and it was not until a well check at our pediatrician, is when we found out
Scott Benner 6:47
well check at the pediatrician. And so what they do? They didn't do a finger stick. Did they what did they
Taylor 6:52
do? They actually did a urine test when he had been urinating a lot and drinking a lot for three or four months. And we're like, you know, that seems kind of weird, but it's not out of the ordinary that we thought they we brought our concerns to them, and they were like, well, we'll just do a urine test and just to make sure. And sure enough, I believe his glucose from the urine test was like 473, if I'm not mistaken.
Scott Benner 7:17
Okay, that's a good office. You just mentioned the frequent thirst, and they went to the test. That's pretty awesome. Actually, I'm using
Unknown Speaker 7:26
the word Yeah, you're lucky. We
Taylor 7:28
We had just moved there probably six months prior to all that happening, and we've been very happy with their care of him, yeah, and I kind of felt bad at the time our pediatrician was training someone doing their clinicals, and he got to experience all that as well.
Scott Benner 7:46
Yeah, so it's good experience. They might, maybe it'll help somebody else in the future. You know, yeah, and that's what I was hoping, yeah. I bet you, I bet you, it will. So what do they do? Do they I mean, that's a pretty high blood sugar for such a little kid. Do you they tell you to go home, pack a bag, go to the hospital, or how does that work? That
Taylor 8:03
was pretty much what they told us, yeah, they said they would call ahead to the local, I'd say local. It's about half away. Children's Hospital north of us, told us, you know, we can go home, pack a bag, and they'll let us know we're coming. We were both pretty upset about it. I think I took it a little bit better than my wife. And I don't say that as a jab, we actually I took off work to go to the appointment with her. So all that happened. So we drove back to my work. I got out of my company vehicle, got in her car, and we just went straight there. Kind of let our parents know to see if they could get us a backpack, because we just want to get there as quick as we could, just to see what
Scott Benner 8:39
was going on. Of course, obviously, both of you are upset, and it's harried, right? There's a it's a crazy moment, but what did you mean? You think you took it a little better. What was her like? What was her initial response?
Taylor 8:51
I think, just disbelief and just a lot of worry, just what's going to happen. What does this mean? A lot of tears, which rightfully so, and for both of us. And I guess that's more of a, I don't say this in a bad way, but a womanly response, because once I kind of got past the initial emotions, I kind of just focused in. And looks like we need to get here. We need to figure out what's going on, what tests that they need to run.
Scott Benner 9:19
Yeah. So you started focusing on the task, and you think the emotions got the better of her, yes, yeah, yes. Okay. When did the emotions get to you?
Taylor 9:28
Actually, after we had got they first admitted us to the, er, you know, try to see what's going on, IVs, get blood tests and everything. And her parents had brought us some overnight stuff because they told us, like, you're going to be here for a few days, and the endocrinologist come in talk to us, and then the staff there at the hospital kind of explained a lot of the stuff. And I went out to the lobby to speak with them, kind of tell them what was going on, and to get our stuff from them. And I had it all in my head. You know, ready? I was like, they told me this, this and this, get out there, and I sit down with them, and they start asking, and then that's kind of when I clammed up. I couldn't speak, and then it all just kind of hit me there in the lobby once I actually had to tell someone else
Speaker 1 10:15
that. Yeah, no, I'm sorry that sucks, man, are you in a better place today.
Taylor 10:21
Oh yeah, we're not. We're not gonna let this bring us down. Good for you. It's just another thing. We're gonna keep going take care of him the best we can, and hopefully get to a point kind of like you and Arden, where we can pass that control over to them and let them continue to handle it. It's a good
Scott Benner 10:37
plan. That's a good point. Let's figure out how you're doing it. So a year is a pretty short amount of time. I assume they started you. MDI, yes, and then where are you at now? You're still doing, MDI, if you moved on to something else?
Taylor 10:49
Well, I know we're on Omnipod five since
Scott Benner 10:53
February. Okay, this year, how's that been?
Taylor 10:56
It had a turning curve, for sure. But all in all, it's been wonderful because, as you know, trying to give a five or a two year old shot for MDI to try to keep it in range is not
Scott Benner 11:10
an easy task, not a ton of fun chasing him around the house.
Taylor 11:13
No, it's terrible. So that was, that was the big, the big benefit to us once we got on a pump is because he doesn't have to stop and sit down and let us give him a shot or us chase him around. He can just keep doing what he's doing. And we can just, you know, those from the phone, and let him, let him be.
Scott Benner 11:33
Keep going, keep on, keeping on. What is his I mean, he's three, right? But yes, do you have a feeling about how he thinks about diabetes? You do? Like, how do you talk to him about it? What do you see him kind of reflecting back to you.
Taylor 11:45
We've kind of started, I guess, introducing more terms and kind of explaining things to him more. I don't think he thinks much of it as a three year old, but he understands, you know, the Dexcom and Omnipod, because he does mention, you know his pod. He'll say, my pod. You know, if he's high right now, he'll be like, I'm hungry. We're like, hey, you know that's fine. We'll give you some food, but first we need to get your blood sugar down. It's too high. And he'll say, my sugar high. Yeah. So he's kind of getting a few more things as we're introducing him, but as of right now, I think he's just so young, he just doesn't quite understand what's going
Scott Benner 12:20
on. Yeah? But that's the beginning of all this, right? Like, just the small, little understandings that he's capable of taking in, that you're comfortable sharing with him. And like you said, you'll build and build on it, and one day it'll just, you know, hopefully be a, you know, a thing that exists, that isn't a burden, and he understands. And I'll head off to college, or wherever he's gonna go, and you'll feel pretty comfortable that he's doing okay. Yeah. Isn't that funny how that now becomes your entire goal? Yes. What was your goal before that? Well, what, how did you see what was important in your life, what you were going to focus on with your kids? Did you have even a feeling about it, or were you just like, hey, we had a baby. This is fun.
Taylor 12:58
I would say a little bit of that. But I mean, just, just raise them to be a good person, you know, take care of themselves and things like that. I mean, just, I guess you would say typical parent things like, you want your child to do better than you. You want them to be healthier than you.
Scott Benner 13:14
Yeah, don't let me put words in your mouth. But has has the diabetes diagnosis shifted your perspective on family or life or parenting, say.
Taylor 13:24
So we've, we've always been very family oriented. We we see both of our parents all the time. Throughout the week, we'll go visit, we'll eat dinner, family, get togethers, holidays. I mean, we see our family a lot, so we're very family focused. So I wouldn't say it shifted my perspective there.
Scott Benner 13:41
So you're just blending this diabetes into how you were living before you're it hasn't changed a whole lot for you. No, no, it
Taylor 13:48
hasn't changed a whole lot. That's great. I guess one thing we kind of did not get completely into since he was diagnosed early, is like staying with my parents or her parents overnight, or anything like that we have, or just staying over there for extended periods of time, where all you have to do is say, Hey, is he alive? Is he eating? And now let's pay his blood sugar's high, can you dose him? Or his blood sugar's low? Can you dose him? Or here's lunch, dinner, breakfast. Can you dose this much for what you're giving him? How's
Scott Benner 14:19
that been for your parents, though, I mean, because obviously, what I'm hearing is that you have a lifestyle that would have been very interactive with, you know, grandparents and everything, and I assume that was going to be part of it, like, Hey, here's the baby. We're going to go to a movie, and your parents would be thrilled to have him for a couple of hours. Is that, yes, have they talked to you about that? Like, talk to you about the uncertainty that it's brought to them, or where their fear points are.
Unknown Speaker 14:46
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Scott Benner 14:48
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Unknown Speaker 17:11
podcast.
Taylor 17:13
Don't think they have any fear about it. They all we really ask of them is if you're going to give him any food, you know, let us know. So we can tell you what to give him, or if he wants something extra, like a snack or something like let us know. I mean, other than that, he's just typical kid playing, doing his own thing, hanging out with them and enjoying
Scott Benner 17:35
it. Do you think that they have a full understanding of it, or just enough to get through those moments,
Taylor 17:41
I would say they're, they're getting better. I mean, they obviously understand, you know, if he's going to eat, then he needs insulin, like they understand the concept of all that. Or if he's low, he needs, you know, something to bring his low back into normal range.
Scott Benner 17:55
Okay, is that a thing you taught them? Or did they figure it out on their own?
Taylor 18:00
Oh, we kind of taught, you know, as we learned as well.
Scott Benner 18:03
Yeah, you guys have all been learning together, maybe, yeah, pretty much.
Taylor 18:07
Obviously, if he's with us, it's a lot better. But also, we try not to put any, I guess, fear or worry on them when he's with them, you know. So if he's with them, and he's just a little bit higher than he needs to be, then, you know, if it's stable, we'll just kind of let it be. But if he's climbing rapidly, or if he's, you know, dropping low pretty quick, like, we will get in touch with him. But like, Hey, you think you could deck fly or z or give him, you know, cracker or something to try to get that back up?
Scott Benner 18:39
Are lows the thing that you deal with frequently or not so much, not
Taylor 18:43
as much. It's more highs. I've went and looked at my clarity report. I check on it pretty frequently, or, I say mine, my son's sure most of the time we're in low or very low range, 1% or less most of the time. Okay, that's awesome. So I mean lows aren't too bad, and if he does go low, usually we get it up pretty quick. But also we have the issue of, usually we're over correcting, so then we're having to get that high back down as well. On the back
Scott Benner 19:09
side, little bit of panic with the low blood sugars create a highlighter.
Taylor 19:13
Yeah, it seems like it. I'm not sure. I'm sure a lot of people feel this way, but they'll be stable. You know, 80s, 90s kind of just sitting right in there, and then it's almost like something just starts pulling it down, you know, a couple points at a time, and then all of a sudden, it's like the arrows slanted down and, you know, we just dropped 15 points. And it's like, what the heck happened? You know,
Scott Benner 19:33
yeah, and is it difficult to know how much is going to fix it at this point, or do you think that anxiety just keeps you pushing the carbs a little too far.
Taylor 19:44
Think it's a little bit of both. Usually, we've kind of got a good routine right now. We know if it's a pretty significant drop, certain things we give him, or if it's kind of a slower drop, it's not as aggressive. I think where the panic sets in you. Which is still something we're working on, is once we give him something, we obviously know it's going to take time for his body to digest it and get that in its system. But it turns into a 65 turns into a 60 and then it turns into a 55 after we've already given him something, we're like, okay, when's this going to work? When's this going to work? Yeah. And we wait, and then it's like, Okay, we have to give him something else to get this up. And then usually it'll, you know, start shooting up after that.
Scott Benner 20:26
Okay, is he good about it, you know, or is there some nervousness that he won't eat when you need him to,
Taylor 20:33
not typically, right? Now, he still sees we use a lot of some gummies or fruit snacks, the Welch's fruit snacks or peanut butter crackers. Usually he sees that as a treat, which I'm sure that thinking will change once he gets a little bit older and he gets tired of eating the same thing every time. So he's usually pretty good about that. The only issue have in terms of eating is we'll fix dinner, lunch or something or breakfast and bring it to him, and we'll dose him, and then it's like, well, I'm not hungry now. It's like, Listen, you have got to eat this. We just
Scott Benner 21:06
dose you. Please just eat this. I'm
Taylor 21:08
convinced that parents with small children could be terrorist negotiators. For the most part.
Scott Benner 21:16
That's so funny. You can make some things happen when you're under enough pressure, right? You got to succeed. My gosh, that's hilarious. Who does most of the diabetes work like does is your do you guys both work? Does you want to you stay home or you want to split schedule? How does that go?
Taylor 21:33
We both work. My wife is in the school system in the county we live in, and so she's off in the summertime. She has breaks throughout the year, so it kind of defaults to her when she's off, yeah, but when we're both working, it's kind of 5050 actually, my wife just texts our daycare and asked if he could have some gummies, because he's starting to drop a little bit because they're eating lunch right now. So it's, I would say, during normal working between her and me, it's kind of 5050, and sometimes I'll be busy and she catches it, or she'll be busy, I'll catch it, yeah,
Scott Benner 22:06
but a lot of the management happens through text messaging and and remote monitoring. Yes, that is correct. That's awesome. I mean, it's really great. Like, people haven't been around this for a long time. It was so much harder when you couldn't see blood sugars. I used to have to like text art and ask her what her blood sugar was. We actually had a system. She'd sent me a number with an arrow too, because at first I was like, you know, just send me the number. And then I realized the number was meaningless if I didn't know the direction. So, you know, when I noticed I sound old, but when they started adding like emoticons to texting like they weren't there at first, you know. And in those little arrows in the boxes showed up one day. I was like, Oh, thank God. And then they put then they put arrows with like, two arrows in it. I was like, this is like, I feel like this is just for me, you know, yeah, catering to me. Yeah, those little blue gray, if you have an iPhone, the little blue gray boxes with the white arrows inside of them, they actually have diagonal, up, diagonal, down, left, right, you know, it was just perfect. And when you need, when you need dual arrows, you would just do two of them. I'm remembering now, and that's how we managed for a long time. Like, I'd be like, I would type BG, she'd send a number with arrows. I'd say, you know, three carbs, five carbs, you know, Bolus point this like that. We did that a long time. Like that is made me really good at it, and it helped her be out in the world without having to stop and start all the time, which I always thought was a big deal. And it really, like, warms my heart to see people doing it like all these years later, and now you can pick up your phone like you said. See the number right there, contact people quickly. I think texting, still to this day, is a, is a diabetes tool? Yes, yeah,
Taylor 23:49
especially in the case 100%
Scott Benner 23:51
Yeah, 100% Yeah. With, especially with children, etc.
Taylor 23:55
And like you were talking about the technology, you know, you have a lot of people come on with frustrations with, you know, these companies coming out with these new technologies. Once I got caught up on the podcast, I was like, You know what? I'm gonna I'm gonna go back to the first few episodes and start listening from there. So I'm kind of burning the candle at both ends. And it kind of shocked me when you explained how all that worked back then with the cradle and the older Dexcom and stuff. I was like, holy cow, this is 10 years ago, and we've got from there to here. And it just kind of shocked me, yeah, how far it's coming that short amount of time I
Scott Benner 24:31
had to install one year, I had to install a I don't even know what they would but they called it back then the cell phone company made these extenders, and I had to install one in a central location between all of Arden's middle school classrooms so that her phone would work and that I could get her blood. Oh, my God. Like you should just saw the loop the hoops I had to jump through to get the school to let me, like, plug this thing in. You know, the last day of school, I had to go back and get it. They're like, come get your thing. And I was like, also. Uh, kind of to jump into something you said a second ago. I just this morning online, saw a post, and it was, was specifically about people like this woman's like this Omnipod five I don't like it doesn't work. Blah, blah, blah. Look at my kids blood sugar online. And I started, like, picking through, trying to understand who she was like, before I answered, right? And you could see that, yeah. You know, the kids had diabetes for a couple years now. I've been using the Omnipod five for a little while. I looked at some pictures. The kids grown a lot. She had good success with it at first. Doesn't have it now. But what I realized, moreover, is that, like, she came into diabetes at a time her son comes into diabetes at a time when the idea was like, put this thing on, put that thing on, and push these buttons, and the thing is going to do the thing, you know what? I mean, it's going to take care of your high but, and I realized, like she's having these conversations, she doesn't fundamentally understand how insulin works. I guess never had to really like they put it on a more newly diagnosed child whose insulin needs were probably lower, and then the needs grew. The kid got bigger. I could see that in the pictures. And, you know, nobody went back and rechecked these settings, and, you know, and now all of a sudden, she's up to the part where I see people all the time like, this device doesn't do what it's supposed to, and I'm thinking like, you're gonna switch to another device and have the same exact problem. And so I just said, Look, I would look at these episodes that talk about how to figure out where your insulin to carb ratio, where your sensitivity and where your basal should be, and switch that thing back into manual. And let's get those settings straight first. Then when you can do it well in manual for a little bit awesome. Then I listen to these three tips, these pro tips about Omnipod five make sure you understand how the system actually works, put the thing back into automation, and then go listen to those pro tip episodes. Because I don't know for sure that you understand the impact insulin is having, how to use it how the timing works and how your different foods are impacting and, you know, that might seem like a big thing to do, but, you know, you can't just put this tool in someone's hand, set it up incorrectly, and them not understand why they're pushing the buttons and then blame the thing, because if they get caught in that loop, They're going to change pumps 1000 times. Like, you know, right now, tandem might be listening going, Oh, and this is awesome. They're going to switch from Omnipod five. Omnipod might be like, Oh my god, no. They're going to leave Omnipod. Like, they're going to leave Omnipod, they're going to go to tandem. They're going to leave tandem, they're going to go to Medtronic. They leave Medtronic. They're going to go to twist. They're going to just keep jumping around thinking that the thing doesn't work and never quite understanding what they're supposed to be doing, and so I've been paying a lot of attention that lately, with more and more a ID systems coming up. Anyway, I don't know why I said that. I think it's because it was fresh in my head. Hopefully that fits in the conversation. I
Taylor 27:53
would say that's probably one of the hurdles that I'll put it as I have one leg over the hurdle right now is adjusting settings on the fly. I just recently actually adjusted them a little bit. We had a few weeks stretch where it should. I'm not sure if he's going through a growth spurt. Nothing physically had changed about him. He was eating about the same, but we were just running high, more than I would like to, and it just seemed like we were pumping him full of insulin, because right now we put in, like, the minimum 80 units in the Omnipod right now, and typically in the three days, I mean, we may use 30 to 40 units out of it. And we got to a point in that, that few weeks stretch, where, when we would change it, there'd be 20 units or less. And I'm like, I don't know what's going on. And I just found it took me a, you know, a couple changes to recognize, like, maybe something's going on here, maybe I need to tweak something. So I went in, adjusted the sensitivity, and I adjusted the insulin, the car, kind of changed some of the schedules up. And it seems like that has kind of got it under control. I'm not sure about anyone else, but that was one of my biggest, I wouldn't say fears, but just like I said, a hurdle to get over is like, I don't need to run to the incorn endocrinologist every time to change the stuff on the fly. I need to try to figure this out on my own. Because, like, we've just say we, like, I'm on the podcast every day. Like has been discussed on the podcast. I mean, you you know your child, or you know yourself better than your endocrinologist or your GP, or anyone like that. And if you can get over that hurdle of I need to tweak this, then I think it, you know, that just makes it better.
Scott Benner 29:30
I was on stage last weekend. I gave a couple talks that touched by type one. Did one with Jenny. We did a cute we did a like an ask Scott and Jenny. That was awesome. Did this thing in the kids room, which was fantastic. It must have been like, God, there must have been 60 or 70 kids in that room, and, you know, and all different ages. And I just, I sort of do a thing with them, where I just kind of go around, like they ask questions, and, you know, we let them talk to each other, just let them see how similar their lives are. You know. Yeah, and let them ask their questions and make their statements and their pronouncements about things. And then I ran right into a room gave a talk. I actually based it on the all the small sips episode this year. I basically said, like, you know, like, look, here's the things that people said that helped them from the podcast. These things might help you, too. And went through them, and towards the end. Got the vibe from somebody that they just were unsure, like this, you know, more newly diagnosed, how's this gonna go? And I looked up, and I'll be honest, it's the biggest crowd I've ever spoken in front of. You know, there were a lot of people in that room, and it was a giant room. It's a much bigger room than I'd ever spoken before, like, to the point where you can almost hear your voice echoing off the back. And there were people so far away, you couldn't make out their faces. And I just told I said that the whole crowd. I said, Look, you're all going to be okay. And I said, I've been doing this a really long time, spoken to a lot of people, the people who do well, have have two simple things in common. And I said, you all have one of them today because you're here. I said, the one, the one thing you have to have around diabetes is a desire to understand and to be involved. And you obviously have that, because here you are. And I said, and the other thing that I see successful people have is the confidence and the knowledge to change their settings. That's it. I think, if you care and you're involved and you know how to change your settings. That is a huge part of making it through the actual management portion of
Taylor 31:25
diabetes. Yes, I mean, just like you said, I mean, it doesn't matter what product you use, the settings are wrong, or if you don't have the confidence or the knowledge to work on those and try to make it better, then it's just, you're just going to be in that same situation where you just, you're having poor management, not necessarily in terms of because you don't try, but it's, I don't know if it's the confidence or a fear thing, but if you can get past that, it's going to make it
Scott Benner 31:51
better. Yeah, you know, it's like getting in a car and not knowing how to drive it, then blaming the car when you lose the race. You know, it's, yeah, gosh, I think I'll probably just come out and say this, all these systems are great. You know what I mean? Like, I mean, I know I do ads for a lot of them, and thank them all. I hope they keep doing their ads. But, you know, get the Medtronic, get the Omnipod, get the tandem, get the twist. Like they're insulin pumps. They have algorithms. They're different, and you're going to find one of them that fits better with your lifestyle or your vibe or the way you do things, there's no doubt about that there's a better choice for you out there, but I'm not going to tell you that the best choice is A, B, C or D or whatever. It's, whatever fits best with you. But in the end, they all have algorithms that work pretty damn well, and they're probably all going to keep trying to improve them a tandem. Just put out a nice little update for theirs. What did it do? It, among other things, gives you the opportunity to do extended boluses while you're in Automotion. That's a great ad. I think, yes, that would be great. Yeah, right. Fantastic. Omnipod five is right now, in a they're doing studies to, I think they're, I don't know what they're calling, I can't remember, but it's like a 2.0 version of their algorithm for, for this, like, right for, you know, for the back the way this thing works. And, you know what? If Medtronic, medtronics, got a new CGM and that 780 G, I hear a lot of people love that pump. Like, I've talked to a lot of people where that pump think that pump is awesome. You're going to update the CGM. It's probably that system is going to get better. Twist allows you to target a lower number. It's using, you know, a version of loop. You think that's going to be the last version of loop it uses? I bet not. I bet you they're going to get the okay to like, I bet you they're out there. This stuff is all awesome. You don't know how to use it. You don't know why you're doing what you're doing. It ain't going to work. And it's all going to look just as random as if you were on MDI and you didn't know what you were doing, as if you were on a regular manual pump, but you weren't Pre-Bolus in your meals, like it's all timing and amount people. I really I don't care if you're using the latest and greatest algorithm, if you're using some Do It Yourself system like Arden is or anywhere in between. If you don't understand how insulin works. These things are not going to work out for you. Your settings have to be right, and you have to understand how to use the insulin. Yeah, and you're it sounds like you're doing a pretty good job. First of all, do you think there's any honeymooning for your for your son, or do you think you're at his full need?
Unknown Speaker 34:16
I would say that it's full on.
Taylor 34:21
I would say, which, I think I've heard you talk on the podcast about this. You know, seems like, usually when they're diagnosed younger, the honeymoon is not as long. I think we may have had one or two days where we went from, you know, three to four units a day, MDI to one unit for the whole day with with his basal as well. But, I mean, we just had a few days shortly after diagnosis, we had that. And then other than that, it's kind of been, I would say, the norm as of right now. So
Scott Benner 34:51
not a lot of honeymooning. I was interviewing a doctor recently. I do so many of these, like, I'm sorry if I, if I get this a little wrong, but I feel like. What he was telling me was like, yeah, when you're diagnosed really young, you're smaller. Pancreas is smaller. You have fewer beta cells. And I was like, oh, like, I had never occurred to me,
Taylor 35:09
yeah. And it makes sense once someone points it out,
Scott Benner 35:13
and maybe a few words, not the right word, but like, you know you're whatever. I don't know. You have to find his episode was really good. It was the first time I felt sad about Arden being diagnosed when she was younger. Like I was like, oh, had she been alive longer, maybe there would have been more. And I was like, Oh, I didn't think of it like that. And I, you know, again, if you're looking for me for the technical explanation, you're in the wrong place. But it was just sort of the way he put it touched me. I should find his name and tell people where it's at but, but I want to hear more about your story right now. So you have a couple of notes in front of me. I'm going to jump around a little bit. Are you on a GLP medication yourself? Are you thinking about doing it?
Taylor 35:57
I'm currently not. I'm still kind of on the fence about it. I am pro GOP one. I do believe it helps a lot of people, and there's a lot of benefits to it. Still just considering it right now, and my wife, at the time of the email I sent you, was currently on one. Now she's off of it right now.
Speaker 1 36:16
So tell me why she started it and why she came off of it,
Taylor 36:20
I think, just to help with some weight, to try to get where she wants to be. Think she started on the mongero or mongiarno, okay, started there. I think she got up to, I believe, the second highest dose, and kind of plateaued there for a little while. And when she stepped up to the highest dose, that's when she kind of started getting sick from it a lot more leading up to that, no real issues, and she had lost some weight, but just like I said, plateaued.
Scott Benner 36:50
So wait, was she up to 12.5 or 15? I want to
Taylor 36:54
say maybe the 12 okay was, because this has been a while back now,
Scott Benner 36:59
yeah, that's okay. But like she so she just did it for weight. So it was that bound, or it was somebody gave her a manger. She didn't have a pre diabetes diagnosis, no.
Taylor 37:10
How the hell did she get I think she was able to do it because she had PCOS, okay, okay. She actually had it prescribed from her OB.
Scott Benner 37:18
Ah, I see and how much weight did she lose? I
Taylor 37:21
believe she lost 20 pounds or so, 20 or 30 pounds right in
Scott Benner 37:25
there. Did it help her with her PCOS symptoms? I
Taylor 37:29
believe a little bit like I said, I still think there's some kind of underlying thyroid issue there, but I think it hopefully she doesn't kill me for saying this, but I believe she'd become more regular on it, which she's also taken birth control. But before, even with the Bucks control, she still was having irregular periods and things like that.
Scott Benner 37:47
Okay, oh, Tyler, you're so sweet. He's like, I hope she's not worried about this. I sometimes don't remember that everybody's brain doesn't work like mine. Because I was like, why would anyone care if you said that?
Taylor 37:59
But I she knew she knew all this, doing this, but she never really asked, like, Hey, what are you going to talk about, or anything like that. So she has no idea
Scott Benner 38:07
her period was going to come up. Okay, so, but you're saying at 12 and a half she was doing well, but that at 15 she started not feeling well. What did that? What were the adverse events she was having?
Taylor 38:18
Nauseous all the time, throwing up, just felt terrible in general, on
Scott Benner 38:23
the 15, you think so. Did she just go back to the 12.5 then? Or did she stop using
Taylor 38:28
it? I think she stopped using it for a while because, and it was fairly quick. And I don't know if it was something you know, that was already on its way, because it was the day after when she went up to the next dose. It was like, immediate, woke up that morning, felt terrible, was throwing up, so she come off of it just because they wouldn't let her refill for the lower dose, just because she had just filled the higher dose. So she came off of it until her prescription come up. But it mean it went on for a week or two, and she was like, I just don't think I can do it right now again, because she just felt that bad. I see, I see, once she kind of got up, not necessarily the habit, but just got out of doing it, and she started feeling better. She's like, I'm not sure if I want to do that again. I'm like, Well, maybe that one just doesn't agree with your body. Maybe you need to try a different one. So she tried the Z bound, and it was the same thing, even at the lowest dose, just almost immediate, just that same sick throwing up things
Scott Benner 39:22
like that, because that Benner manjar are the same drug so like so after using it for how
Taylor 39:26
long? I want to say it was probably five or six months, I believe
Scott Benner 39:30
interesting. Did she gain the 20 pounds back? Yes, that's the part she's going to be upset with you about, not the period thing, by the way. But okay, so it was really helping her. You think it was helping her metabolically, or was it helping her just eat less? How do you think the value was? I
Taylor 39:45
believe it was eating less as well, just having that, like you've talked about the noise in your head of food, noise in your head just gone. Helped without help with eating less, she just felt better. In general, had more energy. I guess from, I'm not sure what's happened, because I believe she even went back to, I can't remember which one she even tried another one and still had the same effect. Was, I'm not sure what goes she's not on one, but is still considering trying it again. And I actually took advice from you and told her, I was like, Well, you know, on the podcast, I'm sure she hates hearing me say this all the time. On the podcast, they micro dose the GLP, I was like, maybe that's what we need to try instead, is, you know, just start smaller doses and kind of work up from there, or try to get that in between.
Scott Benner 40:35
I am a big believer tailor in the idea that the companies had to do testing on dosing. So they picked doses. I think there's probably also financial reasons around this, but I don't understand that piece of it as much, but as as raw as around the dosing, I think they had to pick plateaus, like, you know, two and a half, five, whatever, seven and a half, like that kind of thing. I think people are shooting that stuff where they could get value out of less of it, or maybe more or having it more frequently or less frequently, or whatever. Like, I think there's not this similar to insulin. I think that in the future, people will think about dosing GLP medications in a more personal way. And like, Arden has the smallest injector, the number and I think she has, like, 2.5 pens, but we don't use all of that. And yeah, if you guys would have, I wish everyone could have seen Arden and I trying to choose lunch yesterday. It was, it was freaking hilarious, because I was working downstairs. I bought a laptop last year so I could be a little more mobile and be in the, you know, more social part of the house more frequently, instead of sitting in my computer all the time. So she's gonna study all day for a French exam. And she's like, do you want to study with me? And I was like, Sure. So we kind of, like, staked our spot out in the kitchen and sat at the kitchen table together. I brought my laptop down. I was writing a, I'm putting together a speech that I'm giving somewhere in a couple of weeks, and she was doing that, and she's like, you know, I gotta eat lunch. I haven't eaten today. And it's funny, we don't say I'm hungry, we say I have to eat. It's a different vibe now, right? I said, Oh, I said, I say, Yeah, okay, I could eat too. What do you want? She goes, I don't know. And I She's like, Well, what do you want? I was like, I don't know. And it's not like, the I don't know, like, you know, like, Oh, we're all going to the restaurant. We can't pick one of our favorite restaurants to go to. Yeah, you are not hungry, in the same way that people think about hunger. So start, she brings one thing up. She goes, what about this? And I said, okay, like that, that sounds like a good idea. Do you want that? And she goes, I don't know, just tell me what to eat. We finally, like, she finally kind of landed on an idea. And I was like, all right, but she couldn't commit to it. Like, I was like, you want to do that? Like, because it was a thing, I was gonna have to run out and get something for and she just couldn't commit to it. She's like, she's like, Just do it. I'll eat it. And that, to me, is like, if you've never experienced that idea of like, you know, you're hungry, it's time to eat, but you don't feel hungry in your stomach, and your brain is not giving you one idea in the world about what you should try to eat. It's a fascinating thing. And I'm sure some people might think it's like, oh, God, that's horrible. You don't crave anything or but if you're a person who craves too much, or, you know, has a propensity to overeat, or whatever, it just, man, it just takes that away. Yeah, and not only that, but, you know, the week before, she didn't, she didn't have the medication on board, because, I mean, I've shared with people on here, like, Arden's got a bit of a needle phobia she's working through. And, you know, there are some weeks that we go to do it and she just can't bring herself to do it, and so we have to adjust her insulin needs, and everything changes, etc. But last week, you know, I said to her on Sunday, I was like, you know, try to do the GLP, you know. Just looks at me like, yeah, if you brought it in here, maybe we could try it. You know what? I mean? I was like, okay, so I, I filled the syringe, I went to her room, but she was in the shower, so I just, I left it. And I thought, like, well, I'll leave it here on the table, and when, you know, she gets out of the shower. But then I fell asleep. There's the end of the night. Next morning, she sends me a text. She's like, Hey, are you, are you recording right now? And I was like, No. And she's like, Could you come here for a second? And I went to her bedroom, and she's barely awake, like she's literally just pulling herself together and, like, the first like, half conscious words, she's like, I did my shot last night. She was really proud of herself. That's awesome, yeah. And I was really excited for Yeah, and, but then, you know, two days later, we're sitting at lunch, she's like, I don't know what to eat, and she's not using a full dose of the smallest dose. It's fascinating. She can still eat like, there's not she's not too over full or anything like that. But that part in her brain is gone, and her blood sugars, I wish you could see the difference from the stability. Ability today, just last week, even on, like, more food, but less variability, it's really fascinating, nevertheless. So what makes you think about doing it? Yes, I
Taylor 45:11
would say mainly just the weight loss part of it, but also just I needed. I guess my thought is, like, I want to be here longer, like you've talked about, like, if there's something I can do, something I can take to help me be here longer, for my son, for my family, then I need to try to pursue that.
Scott Benner 45:28
How much weight do you think you have to lose? Tell her, I
Taylor 45:30
would say I think I would be happy with, you know, 3040, pounds. I work in a pretty active job. I'm climbing ladders and crawling down in pits. You know, I'm working on my hands all the time, but there are sometimes I'm in an office for a week at a time. It just kind of depends on what we have going on. So, I mean, it's not like I'm sedentary or anything. There's periods of it, but, yes, but yeah. So I mean, I still stay pretty active. I think the the food noise, I would like that to kind of quieten down. But I would say mainly
Unknown Speaker 46:02
that explain it
Scott Benner 46:03
to people like you just bored. You eat, or you start eating, you can't stop, or what? How would you put it into words? I
Taylor 46:10
would say it's probably like that. For example, I'll leave work. I'm heading home, you know, I know we're going to eat in a couple hours, but I had lunch earlier in the day. I'm not hungry. I know I'm not hungry, but, man, a milkshake and a large fry sounds good, right now. You know something like that, like it just comes in your head. It's almost like a little ear worm. It's like, Hey, that sounds good. You should stop. It's on the way home. That sounds like something you need stuff like that. I ran
Scott Benner 46:35
to the grocery store yesterday to pick up three items, and it was at that time of the day, it was like 435 o'clock. It had been a while since art and I had that lunch. It's weird to talk about like that, like I knew I should eat, like I knew it was time to eat, that I was hungry, right? That I could eat something if I wanted to, but yet there's no compulsion to do it whatsoever. And compulsion is even the wrong word. There's like no idea to do it whatsoever. Yeah. And I had this, like, thought in the past I would pre there's this one aisle that has, like, you know, like, small, like, I don't know, little candies or stuff like that, like a grabbable thing that you'd have a few of, and they'd be gone. And it's, like a treat, like, as an example. And, yeah, I thought about all the times that I'd been to that grocery store, walked back up that aisle, spent $1 or two on something and snacked on something in the car on the way home. Yes. And I actually thought, like, is that a thing I'll do today? And then that was it. I was like, No, I have no desire. I pictured that aisle in my head. Of all the different things are in it, everything that I thought. I was like, You know what I mean? Like, I just, I felt like, not nauseated by it, but just like, I have no desire to do that whatsoever. And when I tried to consider, like, like, what if I just pushed, pushed through and grabbed one of those things right now, I was like, I would really hate that. Like, I would really just not want it. It gives you a control over your life, that is, if you hadn't had it in the past. Is pretty awesome, actually.
Taylor 48:01
Yeah, the weird thing about when it comes to or, for example, you know, that gets in my head, it's like, you know, that sounds good. You should have this. But other things in my life, it's easier. I have that control. I can be like, No, I'm not going to do that. Or, Yeah, I'll do that. Or, but when it comes to the food, I guess it's just not the same, whatever chemicals that they put in, you know, all these foods. It's, it literally has you addicted to it, sugar, salt, fat, I believe combination, they've got it down. Yeah? Well,
Scott Benner 48:29
look at you. You're like, milkshake, sugar and then fat, fat and salt on the fries. Perfect. Yep, you know what I mean, perfect. Yeah. I mean, they found a way to Jack your brain, that's for sure. Yeah, so not for nothing. Like you think it's maybe a little bit about weight right now, but more about just overall health
Taylor 48:47
and longevity. Yes, that's the main thing, you know. If I knew, I mean, obviously I'm not at a weight that I want to be like I said, I can. I'm still active. I still, you know, I don't really have any aches and pains or anything. I can't see, you know, my heart or my liver, kidneys, you know, I can't see that stuff, yeah, and don't know what's going on with it. So I just know, hey, I think eating a milkshake and fries, you know, every so often, it's probably not the best thing to do, you know. So I would say that's the main thing. Is I just want to be here for my family. Yeah, of course, as long as I can, Lord willing,
Scott Benner 49:25
good for you. That's awesome. I'm glad you're thinking about yourself like that. I mean, so what's stopping you?
Taylor 49:30
I don't know. I guess it's just some hurdle I have to get over mentally, just getting over the stigma of it's like, oh, well, why can't you just say, No, I'm not going to eat carbs or fries or, you know, why don't you just eat healthier? Why don't you exercise? That's interesting. And, you know, I guess just a ridicu ridicule from others. It's like, Well, why don't you just do this, you know?
Unknown Speaker 49:52
Well,
Scott Benner 49:53
listen, I'll, I'll share this with you right again. Back to this weekend, I was up on that stage and giving that talk in front of everybody. And, you know, there's, you know, little things you hit along the way. And I bring up thyroid stuff for people, by the way, as soon as you bring it up, you know, end of the talk. 20 people come to the stage, yeah, and they're like, Oh my God. Like, wait my TSH is four, and I have all those problems. My doctor said I was okay. And I was like that. They all like, go off to help themselves. And I shared too. I said, you know, for those of you who have been here for many years, I've been coming to this event since its inception, probably, gosh, I probably been there eight times. You know, I forget how long they've been doing me, but I've been at every one of them. And there's a covid year in there. They didn't do it, maybe. And I said, some of you might recognize that I don't look the same anymore. And I said, I said, I just want to be completely clear, like I lost this weight by using a GLP medication. And if you have any questions about that while I'm walking around, I'd be happy to spend free time talking with you about it. You know, I know there can be a stigma around it, but here's some other things that I've seen it help people with. And you know, there's a couple of episodes you might want to go listen to if you want to hear about some impacts that people with type one have had, or people with type two, and people started to clap. And I just, I put my hand up. I was like, Oh yeah, I don't really do much. But then somebody pulled me aside later and said, No, I'm on a GLP two. You did a lot more. And you think it's not just the commitment of sticking yourself once a week with the thing, it is all the other stuff that comes with it, like it's a it's more about the psychological stuff, the fundamental shift about how you think about food or, you know, or that you have to consider, like, what you're talking about, like, you know, Am I cheating? Am I giving up? Am I not doing a thing I should be doing? Like, is this, I don't know, whatever thought popped into your head. And all I can tell you is that that's you're not gonna care about any of that when you're clutching your heart and going to the floor 25 years from now, when you're like, Oh no, you're not gonna go like, I could be not having a heart attack right now, but I didn't want to cheat. It's all bullshit. Taylor, you know what I mean? Like, and I wouldn't, yeah. And in the end, what I would tell you is that those people in that room are very supportive. And I'll tell you the same thing that I would tell my kids when they were growing up, like people who don't have our best interest at heart, we don't care what they think, yeah, you know, so, trust me, those are just people wanting to judge something. Yeah, always, yeah. I don't know what. I don't know what, what, what they're missing in their life, but, like, don't let them take it out on yours. Yeah, diabetes wise, like, going back to your son for a bit here, you've talked a lot about, you know, you the podcast and listening to the podcast and everything. Like, could you? Could you give anybody who's got, like, a newly diagnosed kid, like, a little bit of like, What helped you here? You know, what was your takeaway is that that were valuable for you.
Taylor 52:42
Honestly believe the what you've always said, Just be bold with insulin, because I think that was one of our biggest fears when we were first diagnosed. Like we don't want to give too much, you know, we're afraid we're going to hurt him, or, even worse, you know, kill our our kid that is still new to us. I mean, he's two years old, so and we just got trouble getting, yeah, we just got him, and we also had trouble getting pregnant and everything. So like it when I
Scott Benner 53:10
almost asked PCOS made it more difficult for to have the baby, right?
Taylor 53:15
Yes, yes, it did. We had one miscarriage. Unfortunately, I'm sorry. In terms of some people on those you know, there's some people they've tried for 10 plus years, is probably, I have a child, and that's wonderful. I'm all for that. You know that that makes me happy when someone else has a child of their own, because it's just a feeling you can't really describe. It's joyous. I think it took us about two years. We did take, you know, short break there for a little while after the miscarriage. So, I mean, it took us a little over two years to have our son, and like I said, we were just scared to death of doing something that would hurt him. And it just eventually, I just kind of got over that. And I'm like, we have to get this blood sugar down, like we need to get more insulin, you know, if it's high, you know, things like that, right? And just give yourself more credit. I want to say this, and don't take it the wrong way, but people that have good results, it's due to what they do, not because of what you've said, because you're not I mean, what you've said is correct, and you give them the tools to do it, but give yourself more credit, because Scott is not doing that for you. Scott, give you the tools you have to do it. So give yourself more credit.
Scott Benner 54:26
You know, I try very hard to tell people all the time when anybody you know, very graciously will reach out and they'll say eventually something like, you know, look what you did for me. Or I'm like, I didn't do any of this. Like, that's first of all, someone else should have told you this a long time ago, and I'm not some great genius. I don't understand a thing you don't understand. You know, I've laid some ideas out in front of you. You've decided which ones fit in your life best, and then you're doing the hard work. You're putting them into practice. You're remembering to do them every day. You're learning things going off on your own. Yes, you know. I guess I've said this in a lot of different ways. I really just do see myself as, like, the coach that's just yelling at you, like, get out there. You can do it. You know what I mean? Like, like, you know, just go, go, go, try the thing. It's gonna work. Like, you know, run the play. If it doesn't work, run it again, you know, we'll get there. Like, you know, Let's be together on this. I really just think I'm a cheerleader, like, to a great degree, you know. And I might be a cheerleader who first says, like, hey, you know, you got to understand how this works. And, you know, you can't just go out there blind. You're going to have to have some some tools and knowledge. But yeah, you know, I'd even go so far as the is the one to be honest, and tell you that in the beginning, I didn't realize all that, like, in the beginning, I thought, like, well, this is how I do it. If they do it like this, they'll be okay. And it is, until I put it out there for so long, that I realized that you guys were going to cherry pick from what I was talking about. And it wouldn't just be for me, but it would be from other people that came on the podcast and shared their ideas. And like, you're going to cherry pick from all of this and build your own thing and make it work best for you. And then again, if you don't do the work and you don't put in the effort, none of that's going to matter anyway. And so I agree with you. I agree with you
Taylor 56:12
like you said, the tools are there. I mean, there's some things like, I think you've kind of said you kind of have to read between the lines, because what works for this person may not exactly work for you, but you can take what they've done and kind of tweak it for yourself. When my son was diagnosed, I think his a 1c was like 9.5 something. It was pretty high for a two year old, and within a year's time, we just recently went to the end, though, maybe a month or so ago, and we're all the way down to 6.2 just just from putting to practice. What I've learned from this? Well, that's because we have, we have no one else personally that we know, other than my cousin. That's top one where we live. So it's kind of, it's hard to get ideas off other papers, you know, see what they're doing.
Scott Benner 57:01
Well, that's really well done. Taylor, good job. How do you find the podcast? Like, how do you like find it to begin with?
Taylor 57:08
It's kind of funny. My wife is not a podcast listener, but also at her job. She works in the school system, like I said, so she doesn't really have the time to sit down when you have 30 kids running around the room, sit down and listen to a podcast. But once we were admitted to the PICU, I guess my wife got online and was looking up different things. She was like, Have you heard of this podcast? I'm like, no, because she knows I listen podcast, because I'm able to with the job I do throughout the day. I was like, No, I haven't heard of it, but all you know, I'll look into it. And a month or so went by, and then one day, I was just like, I kind of forgot about that. I'm gonna, you know, I'm gonna look for that and listen to it and just put it on, kind of listening. And I guess the turning point was, I don't, I think I started listening in the 1200s somewhere in there, is when I first started listening. And you had said Your daughter was diagnosed at two years old as well. And it's like my ears just immediately turned on. I was like, what does he just say? Like, I felt like I wasn't alone. You know,
Unknown Speaker 58:05
yeah, yeah, no kidding.
Taylor 58:06
And just from there, I've just started listening from there.
Scott Benner 58:10
I'm forever going to be fascinated by the different roads that people get to it that pit hit you and captured your your idea. I think some people make it because they're lost, or some people are, you know, like, they feel like they've tried everything they can. They're willing to, like, well, I guess a bike, I mean, because, I mean, it sounds ridiculous, right? Like I listen to a podcast and it helps me with my diabetes, like, gets,
Taylor 58:33
you know, yeah, you're like, there's no way that works, yeah, right. I
Scott Benner 58:37
swear to you, I would think the same thing. Like, if I intersected myself, I'd be like, this is probably some bullshit. I would feel the same way. It's not until you dig into it and you really find out it's interesting to me to know that you were aware of it for months before you listened. I just got another one of those letters again recently, where the person's like, Hey, I started listening and really did not like you, and then came back to it, and then, you know, now we're really having a lot of success because of the podcast and etc, like, it's fascinating all the different ways that I don't know that people end up here eventually. Yeah, I appreciate you sharing that with me. I really do. It's very, really, uh, lovely of you to want to do this. Well, then that's my really. My last question is, like, what motivates you to want to be on the podcast after? You know, after this
Taylor 59:21
year, at the time, I hadn't heard a lot of guests come on that had, you know, early diagnosis stories. You know, seem like a lot of the people you've had on. It's like me or my child have, you know, we're five years after diagnosis, three years after diagnosis. And when I applied to try to come on at the time, we weren't even to a year yet. And I just kind of wanted to give my perspective to someone that's in the grand scheme of things, very early diagnosis, right? And pretty much, to let those people, maybe someone, when this episode comes out, this that's their first one they listen to, and just let. Know, like it's gonna be fine. Use this podcast as a tool. You can figure it out it's gonna be all right, that's
Scott Benner 1:00:06
a good message. I'm up for that. All right. Well, the only thing that we didn't accomplish today, Taylor is we didn't come up with a catchy title for your episode. That hurts me. You didn't say anything ridiculous, other than the negotiating with terrorists. Well, yeah, you know what? That was good?
Taylor 1:00:28
Like, please eat this food. It's almost like, yes, we'll give you a million dollars in a helicopter to escape. I
Scott Benner 1:00:33
don't really care. It's fine. We'll do whatever you want to do. We need to get past this part right here. I've had that deal. I've begged in those situations too, like, please just take a bite of this. Or that, that horrible feeling like you're not hungry, we already pushed the plunger. Like, that's,
Taylor 1:00:48
yeah, it's already in you, like, we have to do something. Oh my gosh. I would say one of our one of the times we were, like, almost frantic, that we were like, You have to eat. This was this last Thanksgiving, so his first Thanksgiving post diagnosis, and we made a plate, and it was the most insulin we'd ever give him at one time. And we give him the insulin, and then he's like, I don't want to eat. We're like, we almost immediately lost it. We're like, we've never given him this one, like, Please, you have to do something, which we did. We did have a low then, but we were able to catch it. It wasn't his lowest low that we've ever seen.
Scott Benner 1:01:26
But I would have with the pie out. Taylor, I would have pulled the pie out right away. I would have been like, immediately, just like, here please. Ate dessert for dinner. Here you go, buddy. Something. Do you like an apple pie? Huh? That'd be awesome, wouldn't it? What did you end up doing? Did you talk him into eating something?
Taylor 1:01:41
Or, pretty much, like you said, kind of got some kind of dessert out, and was like, Here, eat this. And then once he had that, he was like, oh, now I'm gonna eat my other food. And it's like, we didn't account for the dessert part. Now we're gonna have to wait till this comes up, catch it on the back end, you know.
Scott Benner 1:01:53
But you figured it out, right? Yeah, we did, yeah,
Taylor 1:01:57
you know, we did have a low and we had a immediate hot bike afterwards, but, you know, give it some time, you know, let it play out. And we, you know, got back in range.
Unknown Speaker 1:02:06
I think
Scott Benner 1:02:08
that that day probably lent you more more knowledge and experience than you even realize right now. You'll pull from that experience multiple times. Yes, if you already have it,
Taylor 1:02:19
to put it bluntly, having the balls of steel when you're, like, my son would be at daycare, and like he's going low, was told, you know, the people that run the daycare like, okay, give him this. Give him this. And like you're just sitting there, like waiting to pull, you know, tell him to give him more. Like you're waiting to see that, you know, curve flatten out from the low, like you just literally have to, like, you've said, I don't remember how you word it, but like, you know what's going to happen, just like, wait for it to happen.
Scott Benner 1:02:47
Yeah, but you have to trust that what, what you know is going to happen is going to happen, and then act at the appropriate time.
Taylor 1:02:54
Yes, it's just kind of hard for us, because we're both of us where we work, we're like, 30 minutes away, so it's not like we could get there in a short amount of time.
Scott Benner 1:03:02
Feels like if something really got sideways, it would be too late by the time you got there.
Taylor 1:03:06
Yeah, and we have had a situation at daycare where I have called them, and I'm like, not trying to scare you, but his glucagon is there and explain the whole deal. And I'm like, look on the package. It'll tell you how to but I'm also going to tell you how to do it. Only use this in this situation, like I'm just letting you know. And then my wife had called him and kind of explained the same thing as well, because she didn't know I called. She just seen the number. And then we, we communicated after the fact, it's like, oh yeah, I just called him too, which, you know, luckily we didn't have to use that. But after the fact, when we went to pick him up, they're like, we prefer to talk to him. He was a little more calm.
Scott Benner 1:03:46
Your wife was coming hard. Yeah, she wasn't like,
Taylor 1:03:49
super frantic, but she like, I guess they could tell in her voice, like, she was pretty worried about it, and I just tried to stay calm. I'm like, this is, you know, this is what could happen. So you're aware. This is how you take care of it.
Scott Benner 1:04:02
She was like, don't you let my baby die,
Taylor 1:04:07
which we broke a record the other day in terms of the blow while at daycare or not at daycare those other night. Actually, it was one of those stubborn like, we didn't overdose for food. I'm not sure what was going on. It just kept dropping and dropping and dropping. We actually kind of underdosed for what we thought, because he was a little bit on the lower end. We didn't give him as much food, okay? And eventually said low when we're like, okay, like, let's check this just to make sure. And sure enough, we were at like, 28 and we're like, holy crap, my gosh. Like, that is not good, which we knew we'd already given plenty of stuff to try to get that up. So I know it's going to take some time, but I mean that once I've seen that 28 come up, I'm like, my eyes just popped out of my head. I'm like,
Scott Benner 1:04:48
holy crap. You don't have any feeling for how it got to that.
Taylor 1:04:51
No, no, just normal, kind of normal dinner, actually, like I said, a little bit less than what we would normally give him just because we knew he'd be. Up and around and kind of active. And this was after we actually had gotten bed to go to sleep, because we kind of leveled out after the meal, and it just started slowly creeping down. And then, like I said, I don't know what it is, but even if we're just slowly creeping down in like the 70s and 80s, it's almost like just someone pulls a lever and then we're just dropping.
Speaker 1 1:05:19
Wow, yeah, is activity you think it could be,
Taylor 1:05:24
but I'm not nearly as knowledgeable. But things like, I'm not sure if it's after he's kind of calmed down and we're, you know, ready to get in bed, if all of that just kind of starts working then, because I would think he would start working as he's doing whatever the activity is, whether he's running around the house or playing or something like that, jumping off my head onto the couch or something, you know,
Scott Benner 1:05:46
head diving. So you think that when the day winds down, he starts to calm down and relax, his blood sugar starts to drop.
Taylor 1:05:54
It seems like it, for some reason, interesting. I'm still kind of testing that theory. But then, then also, you know, we'll be in a good range. And then middle of the night, you know, he had some kind of spike in the middle of the night, it's like you're asleep. You've not anything. It was stable coming into the night, you know, yeah, not sure what's going on there. And there's sometimes, you know, we have to wake up and, dose, yeah, it ain't
Scott Benner 1:06:15
a whole lot of fun with the diabetes, I'll tell you that much.
Taylor 1:06:18
Yeah, I would not recommend it to anybody,
Scott Benner 1:06:21
yeah, with that meme like diabetes, do not recommend something like that. It's like a Yeah, I agree. I genuinely appreciate you coming on, spending the time. I know you're at work, so it's nice to you to be here and to share your story like this. And I do think we now call the episode Balls of Steel. That'll be good. So I appreciate you. I appreciate you coming through at the very end there. Thank you. Yes, no problem. I appreciate it. Yeah, hold on one second for me. Okay, all right.
Did you know that skin grip has donated over $100,000 in scholarships to help people with diabetes. The people at skin grip, they know what it's like to live with type one diabetes. They know what it's like when your devices fall off at the absolute worst time. And they're here to help skin grip.com/juicebox save 20% off your first order when you use my link. That's what you get for being a Juicebox podcast listener. This episode of The Juicebox podcast is sponsored by the Omnipod five. And at my link, omnipod.com/juicebox you can get yourself a free What'd I just say? A free Omnipod five starter kit, free. Get out of here. Go click on that link, omnipod.com/juicebox check it out. Terms and Conditions. Apply. Eligibility may vary. Full terms and conditions can be found at omnipod.com/juicebox links in the show notes, links at Juicebox podcast.com. This episode of The Juicebox podcast was sponsored by us, med, us, med.com/juicebox, or call, 888-721-1514, get started today with us. Med, links in the show notes. Links at Juicebox podcast.com, hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast.
My diabetes Pro Tip series is about cutting through the clutter of diabetes management to give you the straightforward, practical insights that truly make a difference. This series is all about mastering the fundamentals, whether it's the basics of insulin dosing adjustments or everyday management strategies that will empower you to take control. I'm joined by Jenny Smith, who is a diabetes educator with over 35 years of personal experience, and we break down complex concepts into simple, actionable tips. The Diabetes Pro Tip series runs between Episode 1001 1025 in your podcast player, or you can listen to it at Juicebox podcast.com by going up into the menu. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com,
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#1671 Deez Nuts - Part 2
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Part two: Scott and Kirby dive into fat/protein bolusing, gaps in clinical guidance, parenting/language around food, online noise, and real-life T1D pragmatism—with laughs, candor, and Buffalo Bills jabs.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox podcast.
Kirby 0:15
My name is Kirby, and I'm a mom of a eight year old who was diagnosed just about a year ago with type one diabetes.
Scott Benner 0:23
This is part two of a two part episode. Go look at the title if you don't recognize it. You haven't heard part one yet. It's probably the episode right before this in your podcast player, my diabetes Pro Tip series is about cutting through the clutter of diabetes management to give you the straightforward, practical insights that truly make a difference. This series is all about mastering the fundamentals, whether it's the basics of insulin dosing adjustments or everyday management strategies that will empower you to take control. I'm joined by Jenny Smith, who is a diabetes educator with over 35 years of personal experience, and we break down complex concepts into simple, actionable tips. The Diabetes Pro Tip series runs between Episode 1001 1025 in your podcast player, or you can listen to it at Juicebox podcast.com by going up into the menu. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. This episode of The Juicebox podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about missed boluses or miscalculated carbs thanks to meal detection technology and automatic correction doses, learn more and get started today at Medtronic diabetes.com/juicebox today's episode of The Juicebox podcast is sponsored by the contour next gen blood glucose meter. This is the meter that my daughter has on her person right now. It is incredibly accurate and waiting for you at contour next.com/juicebox oh my gosh, yeah, yelled up at the doctor. That's one
Kirby 2:14
that drives me nuts, if I can talk about that drives me nuts, because there is no doubt that you need to Bolus for those things I get, especially as a dietitian, that even just teaching carb counting is an uphill battle for a lot of people, luckily for me, like I was teaching it for a decade or more before this happened, so it was I was old hat. It drives me nuts that that wasn't one of the first things we learned about I get it is very difficult to kind of suss out, because everybody's a little bit different, and you got to kind of tweak the way that you do it. But it is just just yesterday I was re listening to your fat and protein pro tip with Jenny, and I sent my husband a text. I said, OMFG answers, because I wanted that the idea that you were guys were talking about with doing the protein at the end, and what was it like doing 0% up front, 100% over three hours. I wanted that. I also wanted. I hadn't even heard of the concept of doing a temporary basal increase for the fat, and both of those things make perfect sense to me, because I understand how protein gets turned into glucose, and I understand how fat slows down digestion. Why is it almost a year later that these pieces are being put together for me? Because I have an eight year old who eats pizza, he eats mac and cheese, he eats all of those things. So we went a year not being able to practice and nobody teaches it.
Scott Benner 3:40
It's not. It was never going to occur to you that's like, how
Kirby 3:43
would I even know to like and I did actually ask early on about bolusing for those and somebody said, No, people don't normally have to do that. Well,
Scott Benner 3:51
if it makes you feel better, two things if, first of all, it makes you feel better. I didn't recognize it. Somebody told me about it. I recognized the action and the need, but I didn't put it together with the fat and the protein, right? It wasn't until, like, I was talking about it so much that somebody who knew about that was like, yeah, that's this. You should talk to this lady. There's a lady in Canada, like, she's got a website called waltzing the dragon. She came on the podcast and, like, laid the whole thing out for me, really technically. And I was like, oh, that's what I do. I just didn't know that's why I was doing it. Yes, yeah. And now it's part of the thing. Like, you know what I mean? Like, that's why this thing keeps building. It really is me learning as I go right, just like you are. And I think that if someone would have said that to you on day one, I don't think it would have stuck to you anyway.
Kirby 4:35
It might not have stuck, like the way to do it, but acknowledging that it was something that we could address when we were ready, would have been nice, because, you know, it would be like, then I would know to ask. But instead, I had somebody early on say, you don't have to. And you know when, when your kid gets diagnosed with something, even, no matter what you know, even as a dietitian, as a mom, everything I knew flew out the window, everything it was gone for, like. A hot second. So like, anything, people said to me, that's what we did for a little while just to stay safe. And then I was like, well, would have been nice if they had said, when you're ready, we can talk about this. Well, it
Scott Benner 5:12
makes the assumption that they know too. And I suppose, bring this full circle by telling you that the person who was chastised in the doctor's office was told by the endocrinologist, not that, like, that's a difficult thing to explain to people, or like, let's not confuse them with that. Told them that's not real.
Kirby 5:28
Oh my gosh, see now that I have to laugh because it's infuriating. Of course, it is absolutely infuriating. I
Scott Benner 5:34
don't know what to tell you. Like, people are people aren't perfect, and some of them are
Kirby 5:38
doctors. I suppose my Yeah, my expectations are way too high for people. My dad has always said that, like, Well, I mean, are they really that high?
Scott Benner 5:47
I think so. Mean, I really do. I yeah, I try very much to have a more human view of this. Like, I know doctors, they're just people too their husbands and wives are mad at them. They have kids that don't listen. They can't afford stuff. They, you know, like they're paying off their blah, blah, blah. They, you know, their moms are sick. I can't believe any of us get up in the morning and go do the thing we're supposed to do half
Kirby 6:10
the time. I will. I will give you that, yeah, but, but because the fat and protein thing is real, your dog dying shouldn't prevent you from acknowledging that. No, you know,
Scott Benner 6:20
but it does. And you know, because you forget, or you're tired or whatnot,
Kirby 6:24
well, in the case you just said, they actually denied it, or they don't know, maybe they don't know. Yeah, I'm fired up. I give people a lot of grace right now. I'm just fired up. I'd
Scott Benner 6:34
be, listen, I'd be happy to get fired up with you. I, you know, I started telling you about something before we got on here, and I alluded to it at the very beginning, that I don't know if I'm getting older and surly or if I'm starting to like, really, I pay a lot of attention to things. Like, I'm either nosy or I'm interested by things, right? But I watch the world as closely as I can, and I've noticed lately that no one seems to know how to comport themselves anymore, right? In public, right, right? They're unaware of each other. They don't know what they're doing. They're I watched two people talking the other day. One guy just coughed in the other guy's face. He didn't like flinch when he coughed, and the guy that got coughed on didn't flinch. And all I could think was like, we're like, a couple of years removed from covid, where everybody wouldn't even, like, stand near each other, right? And now it's all gone out of your head, like, not the button, but forget covid. Like, it's all going out of your head not to cough in someone's face. Then go, Oh, I'm so sorry, or for the person to even react. I was like, why is so? I watched that app, and then I walk around, I see I'm in the grocery store just for contact, right? And this woman's like, you know, she grabs something off the shelf, she walks a few feet, gets into what I would consider to be the main thoroughfare at the end of like, she's she couldn't be in more people's way if she set out to be in more people's way. And then she stopped and started doing something that could have happened anywhere, but she's now blocking the traffic of four different directions, and she is completely unaware that this is happening. So I stop, because whether you think this or not when you're listening, I'm a good person, okay? And like, I'm gonna give her the benefit of the doubt here. Kirby, right? I just stop. I got headphones on. I'm listening to something. Truth is, I ain't in a hurry to get back to where I'm going either, so I just sit, I chill out. I'm waiting. I'm waiting. I'm waiting for her to, like, figure out what it is she needs to figure out and get and start moving along. And she looks up and sees me, and then eyeballs me, like I'm doing something to her. And I was like, Is this a fucking joke? Yeah, I'm like, lady. I didn't say anything. I just smiled and gestured for her to go by. And then she walked by, and I was like, Oh, my God, she's mad at me.
Kirby 8:52
It's wild. That's awesome. Really wild.
Scott Benner 8:55
In this same trip, people are going along. I watched a guy get sherbert or, like ice cream or something, right? Like the colorful ice cream, is that sherbet? Herbert sorbet? No, it wasn't sorbet. Anybody know I was in the sorbet section. I would have known if it was sorbet. Okay, gets it out, takes 10 or 20 steps, realizes he doesn't want it, and puts it down somewhere that's not frozen anymore. I was like, okay, and then no lie as leaving and checking out, checking out, checking out, checking out, doing the whole thing. There's a waste paper basket, like, there's like, there's like, super cashiers. They don't actually have to run the registers, but they seem to run the whole thing. You know what? I mean, they have a little like, podium. They have, right? Yeah, and the podium has a little waste paper basket, actually, because they do a lot with paper. And this family's walking out. Father, I'm going to call him, 3840 years old. Wife, same age. Son, eight, 910, range. Daughter, seven, eight, range. Like walking along, I see the daughter get a look on her face, and then she just Hawks up a loogie and spits it in the waste paper basket that the people are standing next to the cashiers are standing. And she just kept going. And the mom saw it happen, nothing. The dad saw it happen. Nothing. The brother kept going, and all I could think was 1978 I'd be 50 feet from that location right now. My dad would have hit me so hard, right? Like I would have just flown. I just would have flown through the air, through the grocery day. Is it right to hit your children? I don't
Kirby 10:37
think so. No, there's we got to get somewhere in the middle somehow,
Scott Benner 10:40
from the time I was nine till the time I'm 54 went from like, this is a beatable offense, to like, No one looked up, right? And this was not okay, like she wasn't get for any of you listening, I know how you all are now you try to make an excuse for everybody, like there was no reason she couldn't have just like, lived five more seconds and spit that into a bush outside. She was so close to being outside, you know what I mean, and no direction, even, not even like, so now I'm watching, God, I got my car too. I'm leaving so, like, I stay not close. I'm not being creepy, but I stay, I stay close enough to see, like, am I gonna get outside and see a little parenting? Hopefully, no, that part was over already. That's what
Kirby 11:26
was in my head. Is like maybe they were waiting to talk. I thought so
Scott Benner 11:29
too. That was me again, given the benefit that they get girl outside, they pull aside. Nice to go. Hey honey, listen, you know we don't want to spit in the trash can. Blah, blah, blah, you know nothing,
Kirby 11:40
and I don't know how, like, I mean, I could have all sorts of, you know, speculation about how all this came to be, but I can, at least, with you, acknowledge that it's just something has disappeared, and some it's sometimes I find myself like, gosh, this seems so obvious. Like, how to be a good person, how to think about our impact on other people. Well, why
Scott Benner 12:05
do I bring this up here? Because I think that the only because my my initial reaction was, I went home, I said to my wife, we got to go right, right. She's like, what? I'm like, we got to bug out. I was like. I said, if we can sell the house, great. If not, let's just burn it to the ground. We got to get out here. And she's like, why I tell my long winded story about the grocery store? My must have caught my wife in a mood, because she was like, agreeing with me. She never agrees me. We've been together way too long. And so I was like, okay, but then what I landed on was running is the wrong thing to do. I got to keep going to the grocery store and just acting the way, like a generation ago knew to act right and like, and maybe that'll help something.
Kirby 12:43
I think so that's the whole idea of Be the change that you want to see Right? Like, that's it
Scott Benner 12:47
for the people you're talking about, like, who are very honestly, probably listening to this. Like, if you know something, like, put something into action. Like, maybe, maybe your work will say yes to it. Like, you know, like, try something. Because otherwise, whatever the version of spitting in the waste paper basket is 10 years from now is gonna happen. Somebody doesn't stand up and say, Hey, I think we should talk about the fact that sometimes fat needs a Bolus. Like, it'll just go away. Like, nobody's gonna like, I don't know where we're all headed exactly, and I don't want to be high minded about my stupid podcast. I think people who know have got to keep saying so Agreed, agreed, right? And maybe you'll be wrong, or maybe you'll bump into people won't agree with you. Maybe, if I would have said to the guy, like, Hey, man, your kid just spit in the waist paper basket. Like, are you going to do something, even if he didn't take offense to it? Right? Which, of course he would. But like, say he was going to be thoughtful about it. He might be like a kid had to spit. Like, what do you want to do? To spit on the floor? Like, right? No, I wanted to hold it into her mouth, swallow it like a human being. Live through it. Go be uncomfortable for five seconds, and don't make everyone else part of your problem. A guy just coughed right in the other guy's face. He didn't even notice he did it contour next.com/juicebox that's the link you'll use to find out more about the contour, next gen blood glucose meter. When you get there, there's a little bit at the top. You can click right on blood glucose monitoring. I'll do it with you. Go to meters, click on any of the meters. I'll click on the Next Gen, and you're going to get more information. It's easy to use and highly accurate. Smart light provides a simple understanding of your blood glucose levels, and of course, with Second Chance sampling technology, you can save money with fewer wasted test strips. As if all that wasn't enough, the contour next gen also has a compatible app for an easy way to share and see your blood glucose results, contour, next.com/juicebox and if you scroll down at that link, you're going to see things like a Buy Now button. You could register your meter after you purchase it. Or what is this? Download a coupon, oh, receive a free contour next gen blood glucose meter that. To tell contour next.com/juicebox head over there. Now get the same accurate and reliable meter that we use. Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system. The mini med 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to an 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic, extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts. You can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox,
Kirby 16:14
and that's this is why it's so hard to do the right thing, because we are living in this kind of and I wouldn't say it's not so hard to do the right thing. I was saying it's we have so many different perspectives on the right way to be that are existing around us that make it kind of hard to move things forward. But truthfully, like, as I sit here, I think, like, Where will I be with all of this in five years? Right now, we are just getting our legs under us, but as soon as there is a path, like I want to be on that path talking about it, and maybe I'm not the one to make the change, but my voice could potentially be one of the voices that propels it forward. Well,
Scott Benner 16:50
all of our voices, yes, exactly. Everyone's got to do it, because I earlier said there's no way it's going to happen. That's me being cynical, telling you that it doesn't look like things are going that way. It doesn't look like they're going in a direction where enough people say, hey, you know what? We got to say something about this and around diabetes specifically. Like, I'm not the only one. But you know, when I was writing a blog, most of those blogs were just like, I don't know how to put it exact. They were just like, Woe is me. Blogs, right? They were like, diabetes is hard, isn't diabetes hard? It's so hard. It's hard for me. I know it's hard for you. Let's be sad together, you know? Like, that's a lot of them were like that. I had conversations back then with people writing those blogs. Some of them were really and I was like, I'm like, I look at you privately, like you're doing so well, why don't you tell people about this, right? I don't want to get involved in that. I'm like, oh, okay, great. Yeah, I don't want to tell people what to like, because then it's going to open you up to, like, somebody's going to tell you you're wrong, and then they're going to yell at you. And I was like, people been yelling at me for 15 years. It's not bad, you know. It's really not that bad. You can live through it, you know.
Kirby 17:54
And you know, like, how long it takes and what actually goes in to being able to discover these things, and the things that you discover sometimes really are just for the person with type one that you're considering. Yeah, right. And some of them apply to everybody, but especially when you're early on, you're like, can't make heads or tails of things. Like, you don't know what the difference between those two things are,
Scott Benner 18:14
right? So I agree, too that you're not going to know what they are. So somebody should say them all, and then you can just figure out which work for you and which don't exactly. It's fine. Everything's not a rule. And the other thing is, too, is when someone's, you know, online, you know, disagreeing with you, you know, that's a minority of people, right? Like, you know, I Kirby, I'm not going to bring up where we are in the world's history today, because it's not for this podcast, right? But, yeah, I told my kids yesterday, I was like, I know it seems like the whole world knows about this. And I was like, but it's really only a small fraction of people. And, you know, there's only a small fraction of people who even know who that person is. There's only a small fraction of people who know that this happened. I just went out to I stopped by a health food store yesterday afternoon. No one knew what happened in the world. If I would have said to the person, hey, do you know about this? They would have said, I don't know who you're talking about. Most people are not the internet. I was like, I know it feels like everything that happens on your screen is everything. And I was like, but the truth is, is that if you go look it up, only a small fraction of people are online every day, right? And as you get older, you'll realize that that's not the whole world. It's a piece of it shouldn't be ignored, and it's not nothing. But there are a lot of people out in the world just doing their thing, living another day. And I was like, and you you should. That's, in my opinion, what you should be doing.
Kirby 19:38
I agree. I actually it's funny that you said that. Because I went to see a new therapist, I realized that I wanted to talk to someone after my son was diagnosed, because I was, you know, having all the stuff going on, I'm like, I just need something to ground me. The first thing I talked to her about was some stuff I was seeing not related to type one, but things that were causing me a. Lot of anxiety and panic that I was seeing online, and she was just like, limit your exposure. Like, how much of that do you need to know? I was like, Well, I think I need to know. She's like, No, you don't actually need to know any of that. If you need to know something, will that information get to you? I said, Yeah. And she said, limit your exposure. So I had to take an action. Yeah, it's like a spring cleaning, almost. Of the things that you're exposed to, it's like, really remove the stuff that is not serving you, because you're gonna get the information that you need. And why do that to yourself? Because you get sucked in. And so anyway, that's that was some of the best advice I got.
Scott Benner 20:40
Yeah, it's great advice, and also it counts for everybody. Like, it would be easy to say, oh, you know that that's how famous people get treated. Like, I've heard people say, like, well, they deserve it. They want to be famous, so, like, they take what they get, right? But it happens to me. It would happen to you if you had 10 followers on Facebook. Like you can go online right now. And I am either a deity or an asshole, and neither are true. And you know, like, who knows? Like, where does that come from? Like, why would you like listen? I'm happy I get that. If you if the podcast has helped you, then you're grateful about it. Like, that's very cool. I think that's awesome, and I'm happy that it, it helped you. But like, at what point I don't know. Like, how could this make you so angry? You need to tell people that I'm a bad person, right? This person, like, said something that I disagreed with, and now I'm gonna go make sure to tell everybody that I can find, to let them know that they're wrong. And I'm like, my god, like, what are you doing? This isn't hurting anybody. It is bonkers, but I'm saying that happens to people. Like, I'm not famous. It happens to me. It doesn't happen often, but it happens to me, and it happens to people in their regular lives too. Like, right? Like this, listen, I don't understand people's psychology enough to really, like, speak about this, but like, whatever that framework is that applies to, you know, the most famous person in the world, down to some guy with a niche podcast about a niche disease, because that's really what this is, right? Like, it's not even diabetes, it's not even type two diabetes, type one diabetes, right, right? Like, there's as few people as possible within diabetes in your regular life, like I saw yesterday, there's people online ranting to three followers, and one of the followers is busy telling them how right they are, and one of them's busy telling them how wrong they are. And I was like, Oh, my God, this is four people talking. Is what I'm seeing here.
Kirby 22:33
And that's, I mean, that's a microcosm of what is like happening, yeah, everywhere.
Scott Benner 22:37
To bring it back to what you were talking about around diabetes, specifically, like you can get into that space and what happens? Like everything feels so what like Why was, what was the feedback online doing to you? What did you see and how did
Kirby 22:51
it make you feel regarding type one or the other? Stuff that I was the type one thing that mostly it made me feel comforted that there were so many questions and so many people that had found their way through it, but early on, it felt a little confusing, because so much, and still, I mean to a degree still today, because there's so much that's so specific to our situation, and it's very hard to explain all of that, like on a Facebook post, you Know, Like, here are all the things you need. And that's one thing. Another thing, if you know any of the tech people are listening, would be great to have the ability to put more into like, if, I'm say, if we have to treat a low and to put in how much we treated and when, because I don't remember, I don't I wish we could put a little bit more that wrote alongside the graph, so that when we're looking at it, because I don't remember, I don't remember what happened last Friday, I'm like, I know that he had pizza and we I can't remember quite what we did. So I think that that's partially how I feel sometimes when I'm trying to piece things together based on other what other people are saying online is like, it's not exactly what we're experiencing, and it's hard to place it, kind of transpose it into our situation. So, but what we do is, I know you asked this earlier, is like I hear something, and then I try it and I see if it works, and then if it didn't, I try to figure out why, and then maybe I'll go back and see if I can find information on somebody else saying the same thing, and try something else. And so it's just like you kind of keep trying new things until you find it which you know is going to is going to change again with, you know, as the years go on. But I had to figure out how to use it, because at first it did feel like a little bit. It made me feel a little anxious, because it was kind of, it seemed like so many people had so many answers, which was cool, but then I was like, Well, I really don't know how to, like, really into what we have going on. I mean, there's
Scott Benner 24:44
something about the way the internet works and being online works, and, you know, social media something that just, it just, I don't know if it's the the speed it runs at, or what it is that it helps people who are already anxious to feel more anxious. Right, right, right, or in an anxious situation to feel it turned up somehow, yeah. But the irony, of course, is this is the best place to get the information for sure,
Kirby 25:10
yeah. And I think what I, you know, I would urge people to do is just be mindful of, you know, how you know your tone comes across different when you're typing versus talking. And what struck me a couple of times is when people say things so definitively, like, Do this, do this, do this, do this. It's like they don't come along with your disclaimer of, this is not medical advice. It's like, you know, it's like, you have, you have, I'm so happy for you. You have found what works for you. But when you kind of say it like, this is exactly what you need to do, which not everybody does, I will say that's the minority. But when you're searching for answers, sometimes the minority feel a little bit louder to you. You know, it's like if you get a haircut and, like, a million people tell you it looks great, but one person tells you it's not the best look on you. That's the one you focus on. So
Scott Benner 25:56
you should try being me long enough you learn how to ignore those
Kirby 25:58
people. Well, I don't know if they have wonderful hair, though. I mean, so come on, the
Scott Benner 26:02
voices who have been scared in the past are often the the loudest, yeah? Like, because I see that through throughout a number of different conversations. Like, you know, my kids blood sugar has been high for two hours. What do I do? Go to the emergency room? Like, wow, yeah. And then, right, you get the like, well, if they don't go and something happens, then what? And I'm like, okay, okay. Like,
Kirby 26:24
not on you. It's not, you're not responsible for that.
Scott Benner 26:27
Something that happened to somebody, another one that I and I don't, I don't see any humor, and I don't see any humor in any of these because it's something bad's happened to somebody along the way. But like, anyone who's had an eating disorder, and you start saying, like, Yo, you know, I didn't want my kid to have this cookie. It turns immediately into the worst part of what happened to them. They are now going to, like, they're gonna tell you about right? Because they don't want that to happen to your kid. And it's a loving thing. Like, I really do think it comes from a good place. I think all this stuff comes from a good place. Oh, for sure. Of course, it does. Often their experiences change the way they communicate it, yes, absolutely, the communication can feel very aggressive, and then they don't. They don't know it's aggressive,
Kirby 27:13
right? And I think, you know, I'm very tuned into that, because I see it all the time with, like, weight loss. So I don't work directly with people, but I hear a lot of weight loss conversations, and somebody will find something that worked perfectly for them, then they'll tell somebody, say, You should do this, whatever the thing is, and because we're different people, everybody has a different body, it might not work for that person. And what sometimes I'll say often will happen is that they'll blame themselves. They'll think that they did something wrong, when really it wasn't the right thing for them. And I think the same thing kind of applies here, is like if, if we say things with authority that can leave somebody feeling like they failed if it didn't work for them, or if maybe you didn't have all of the information. So, and I don't, I mean, I think you're right. Everybody is seeing this from a very loving place, because if they found something that worked, they want to spread the good word. Right? When
Scott Benner 28:04
I was just writing the blog, there was this moment, this lady, she's a lovely woman. She wrote a book called Kids, first, diabetes, second. And I mean, I want to be completely honest, I have a passage in the book. I haven't read the book. So I want to just be clear. I'm so sorry. She hears this, I haven't, I haven't read your book, but I don't read. Nobody should take that offensive. I haven't read her book. I don't actually know what it means. I think what she meant was, like, try to see the kid first, and then, like, I mean, there's no other way to put this. I watched kind of like, very aggressive low carb people say, Oh, she means that health isn't as important as having fun. And I'm like, I don't feel like she's saying that at all. Yeah, yeah. You know, it was like that. That's a weird distortion of what she's saying, right? But around that time when that book was in the zeitgeist, and it was popular enough, and, you know, like, it was like kids, first diabetes, second, this lady doesn't care about blah, blah, blah. I mean, some people, some people, some people think it's a great way to think, like, hey, let's make sure your kid's happy first. Like, who knows what you care. But I got wrapped into it at one point, because I started making the podcast. Then on the kind of the tail end of that, and it was the it's episode 11, which is crazy to say, because, like, so early years will be like episode 1800 or something like that wild. Oh my goodness. But in Episode 11, I was searching for a title, and I back then I didn't know how to make the titles, so while I was editing it, I just wrote down things that I heard me say in the middle of, and it was like a talking head episode where I just was talking to myself. And I think at some point in the episode, I said, that's when I learned to be bold with insulin. I was like, Oh, I'll call this episode bold with insulin. Oh, my God, right. And I call it that. And it became a thing, like, it's, it's a mantra. People use that term, right? And for sure, that wasn't on purpose for me. You know what I mean? Like, I just, it was a catchy phrase that I heard inside of the 45 minutes that I made the recording and I made it the title, and now that's a movement. Now. Well, those same people came at me, oh yeah. He just wants you to use a bunch of insulin for everything. He doesn't care if you eat healthier or not. I'm like, I don't think that at all. But then I got to make a choice, and the choice that I fell to was that what I see mostly from people, is they have trouble with high blood sugars, and that caused them problems long term. And I don't think it's a good idea to put into their head that there's an amount of insulin that's too much, right, because it could lead them to not use enough insulin, and to ride with higher blood sugars, and to think that higher is better than low, and all that other stuff, right? And so, like, I've got to pick a messaging basically, like, what side of this coin am I going to stand on more firmly? And I stood on the idea of, like, I think you should learn how insulin works so that you can use it very effectively. I'd like you to Pre-Bolus so that you don't you know, because that that is definitely going to keep you from using more insulin. You're not going to be fighting highs later. I don't want you to get low afterwards. That is certainly not a goal. But in the end, you need as much insulin as you need. And for 10 years, that small group of people you know are like, Oh, he's pushing insulin on people. He's, you know, why won't he just tell them to eat low carb? And what I mean, you as a nutritionist, know, like, you can't tell people how to eat. No, that isn't gonna work. No, well, it's just not gonna work. Like, even if I was, even if they're right, like, like, just say, give it to them for a second, right? Like, you know, I'm thinking to this one person, you know, like, sorry, I'm laughing, but she's just so crazy, but in a very lovely way. And by the way, now there's like 20 people who think I'm talking about them, and they're all like, I'm not crazy. Actually, you all seem a little crazy to me, but that's just my opinion. Maybe you're not
Kirby 31:46
like each other's crazy,
Scott Benner 31:47
but at the same time, like, I think that they just have been saved by a thing, and they know it's working for them, and they want other people to know, and they and they do think that, like, too much insulin will cause problems, by the way, hey, between you and me, it is better to use less insulin. Yeah, yeah, but not so much so that, like I That would be nice in a perfect world, right? If you ate lower carb and you got all your nutrients and you were using less insulin, that would be, I do think that would be a better way to go, right? But when most people don't live lives like that. That's not good messaging for them, right? Yeah, you got to do the bigger picture thing. Like, look, I've never gone all the way on what I think, but like, I do say it out loud enough that, like, I don't understand if you're drinking soda with sugar in it. I do not understand you. I don't understand why you would do that. Having said that, I'm in the minority. Cook and Pepsi are pretty big companies. They're doing okay, you know what I
Kirby 32:48
mean, right, right? And, and I think, you know. And that's interesting, that you're bringing that, that up, because that is something I have struggled with, because in it, you made me think of it when you said, kid, first diabetes, second or later, whatever it was that that has been like this convergence of the way I wanted to parent around food, and now trying to make it make sense in the context of diabetes, because I had a very specific and I still hold it philosophy about the way we talk about food and the way we talk about what we consume, and it really pressed me to figure out how to stay true to that and align with my own personal philosophy and still help my son and help our family manage his diabetes. So like, you mentioned soda, but I'll use juice, because I know he's mentioned like orange juice a few times, right? Like, I come from a place of there's no and I hate saying this because it's been said so many times, but it has been said so much because there's truth to it, which is, like, no food is bad food and but then you have to start asking yourself, like, what constitutes food, and is it the amount that you're having that is the issue, or is it the actual food? So like in the case of orange juice, or any juice, part of the issue, especially with kids, is that it has been over served. It's at too many meals, they get too big of a portion. But we come from a place of it has a place and it has some nutrients in it. It can be considered part of your fruit intake. So the way we talk about that is different than what you might tell someone who's trying to manage their blood sugar right like so it's been really interesting, even with I'll back up a little bit more too. Even just what I've told my kids about food is that I won't tell them. I would never force them to eat anything. It's something I told them so early. I will never make you eat anything. I'm not even a try a bite club type of person. If you don't want it, don't eat it. But fast forward, and my son has a low blood sugar, and he has to eat or drink something in the very early days. He said, Mom, you told me that you would never make me eat something if I didn't want to. I didn't know exactly. So it's like all of these things coming together. That's it's just so interesting to see. Like, I say interesting, but really, sometimes it's challenging to walk the line between. The two, because I think as he gets older, he'll find foods that are that he enjoys, that are better for his blood sugar management. But right now he's still a kid learning to eat, and part of that is letting them explore, letting them you know, you're in charge of what you put in front of them, but at the end of the day, they can eat of that what they want, and I have to try to help manage his insulin around that. So it's just, it's, it's tough. I think when, when you start talking about the actual food, with with the kids, and the drinks, we're still finding our way,
Scott Benner 35:33
but yeah, you just shouldn't drink sugar. Like, I think it's just, yeah, like, that's
Kirby 35:39
the thing. Like you can, I mean, it's if I had my druthers soda probably wouldn't have been invented if I could. That's not the world we're in. You know,
Scott Benner 35:49
don't not drink soda, by the way, I do. I drink diet soda with, I know frequency is the right word, but, like, I drink diet soda. I said this recently when I was talking to Jenny. I was like, you know, like, orange juice. Like a couple of swallows of orange juice, like, is, like, that's awesome. Like, a 16 ounce glass, exactly, right? Yeah? Like, that's way too much.
Kirby 36:09
And I think I always use the example, like, we all, like, you'll people say, like, we shouldn't, you know, donuts are bad for you, right? Like, that's, that's the thing that people will say. It's like, Well, so is an apple, if you only eat apples and bags and bags of apples, and only apples for your life, like it is the dose, it's the dose, and that the environment that we live in right now is not really that conducive to, you know, foundational foods that are good for health and moderation of the other foods. That's just not where we live. I
Scott Benner 36:37
don't understand the chemical mechanism of it. But I can tell you, like, after, you know, having used the GLP for two years, now, if you gave me a donut, I could take a bite of it and go, Oh, that's good, and then not eat the rest of it, right? But I know for certain that before the GLP, I would avoid the donut, because, if you because, if not, I would eat as many donuts as was there,
Kirby 37:00
right, right? Yeah, it is working on your hunger and your fullness hormones. It's also helping with food noise. I don't know if you experienced that, but like, the internal narrative so that it
Scott Benner 37:09
is, I hear people say, like, oh well, you just, you know, have to have more, you know, restrain or something like that. Like, it's not just, I don't know how to explain that. That's not what was happening. Yeah,
Kirby 37:20
no, I'm with you. I mean, I think that those are it's people don't, even the experts, we don't fully understand all that goes into hunger, fullness, weight, metabolism, you know,
Scott Benner 37:31
yeah, you have to experience it to understand it, yeah, and I can't. It's still hard to put into words, to be perfectly honest, like, I'm not, I was not an undisciplined person, but I definitely had weight to lose, and I was definitely eating, you know, too much, or the wrong thing, or whatever, enough to hold that weight. And, you know, and there's plenty of times where I didn't eat that way, and my body just never, like it never responded to eating well, and no kidding, like, without a certain amount of sugar, like I would have told you in the past, if you said to me, like, cut out sugar, I would have said, Oh, I don't know, like sugar, so only one of the ways, like, my digestion works the best. Like, if I cut too much sugar out, I can't go to the bathroom. Interesting, that's the thing I would have told you. I believed 100% and it seemed like it was proving itself out in my life. I don't know what it was doing or not doing, but I can tell you that I don't have as much sugar anymore, and it's not a problem. Yeah, so, and I wasn't having a ton of it, but I was having some, right? I don't know, like, I just think that the entire thing is, it's easy to say, like, this is the way to do it, if it's working for you, exactly. It's also not easy to put into practice, just like anything else, like, say, you know, if you're a runner, you you tell a great shipment, everybody should run. Well, that's, oh, yeah, too easy. That's not true. Yeah, it's not gonna work for everybody.
Kirby 38:49
That's, that's right, some people can't even walk a mile, you know. So it's, and that's that you can use that as a, you know, what's the word? Metaphor, you know, like, some people can't do what you're doing even at a slow pace. So
Scott Benner 39:01
I just think that in the end, like people shouldn't suffer, agree, and no matter what pathway it takes to get them to that, if it's eating low carb, then that's great. If it's running every day and they can do it, then that's great. If it's somebody needs a GLP medication, then awesome. Like, in the end, like your life is a is a very finite thing. It is very short and very finite, and it could end at any second. And even if it lasts as long as it possibly can, it only lasts 7580 years. And those last 15 years aren't gonna awesome to begin with. So, like, so maybe you're getting like, 60 years that are awesome. But also, if you're an adult, remember this, you don't really remember your life before you were like 16 anyway, so you lose the first 15 to that maybe 20, and then the last 15 you can't walk. So basically, making this not sound great, Life is 35 years long, okay, so, like, while I'm in those 35 years, I gotta struggle the whole time. No, no, no, I'd like people to be as happy as possible in that
Kirby 39:59
great yeah. And I think that's what like, the foundation that we lay with the kids, especially like in the setting of type one, is so important, because though they won't remember every single thing you said, you are creating their formative experiences around food, around their diabetes, and the way you talk about it is so important. And that's what like I with with my kids, and especially with our type one. I won't ever say like, Well, you shouldn't eat that because of your diabetes. Those words will never leave my mouth. I won't even say that. You know, that's not a great food. That's not a bad food. The only thing I'll ever say is, if there is something that is has something in it that's not great for them, like an ingredient that's not good for little bodies, I might say, Oh yeah, it's got something in there that's not great for little bodies. That's as close as I get. But what you're describing like the joy that we can get out of food, that ability to do that, is laid. It's a foundation that's laid at such an early age, like I grew up in the area of, you know, the Jenny Craig's and all of the women and my family going on diets and eating salads. And that has stuck with me till this, this exact moment I still struggle, and that was put there early. It doesn't mean you can't learn to cope with it and learn, you know, ways to to thrive, but it has just been so, you know, it has come into focus for me so much with the diabetes, because the way we talk about food, we have started kind of walking on ice a little bit for a minute. It was or eggshells, then ice. What's the you know, whatever. Yeah, we can walk on thin eggshells or on ice.
Scott Benner 41:26
How about you walked on thin ice shells? I love it. That's that's the episode. Walking on thin ice shells. There you go. Okay, I don't know, these nuts is
Kirby 41:35
awesome. I know I'm gonna, how about go bills? Can we do one of those? Oh, my God,
Scott Benner 41:40
that's insane. The bills are never gonna win anything, and for you to assert otherwise is ridiculous. Gosh, okay, in this moment, what a disaster.
Kirby 41:54
You have enough stuff
Scott Benner 41:55
when that quarterback will win. You know, when that quarterback will win? Think long and hard what you're gonna when he leaves buffalo? That's when it'll win, because he's pretty good. Yeah, you guys are jinxed. I don't know how to put it. Remember the time you lost four Super Bowls in a row. I think
Kirby 42:11
what you mean is, remember the time we made it to the Super Bowl four times in a row.
Scott Benner 42:16
That's not what it felt like, please.
Kirby 42:20
So see again, formative memories that gave me grit.
Scott Benner 42:23
Brother, hey, listen, there's something to be said for that. Like, you know, like living through a lot of disappointment really is helpful. Sometimes.
Kirby 42:33
I'm telling you, I do look at it as they went for years. So I mean, not every day that no one
Scott Benner 42:39
there's the only way you could possibly look at that, because otherwise you would have to fling yourself into one of those frozen rivers. You know, they mean that you live near and honestly, no one should live, no one should live where you are. It's too cold.
Kirby 42:50
It's not that bad. You know, we had like, 90 degree days all summer, so,
Scott Benner 42:55
but humidity, right? Yeah, it's been, it's been hot, yeah? No good.
Kirby 43:01
All right, listen, talk nice about your food, people. That's what I'm saying. Just be me.
Scott Benner 43:05
I'll make a point to that too. Is you don't always say what you mean, either, and it's hard to, like, remember it day to day, moment to moment. Like the other night, Arden and I were doing something, and it was something she had trouble with. And I said, Okay, well, you know, I said something like, let me know if you're gonna do it, because if you're gonna do it, because if not, I have to throw it away because it's not going to be good after this time. Doesn't even matter what we were talking about. And she felt bad about that. But I didn't mean. I wasn't trying to make her feel bad about it. Like, I just, I was like, I was like, and then I realized, I'm like, Hey, we have more. It's not a big deal.
Speaker 1 43:36
Back track, back, track, back. Yeah. I was like, I just
Scott Benner 43:39
want to like, like, I just want to know, like, what am I supposed to be doing with it? Right? Doing with it right now? Like, you know, I mean, because it won't last past this, and I want to toss it so it doesn't get confused with something else. Blah, blah, blah. And then she's like, well, thanks a lot. And I was like, what? She goes now, I feel bad. And I was like, Oh, I didn't mean for that. Yeah. Wait, did you look back over your life and figure out how many times something like that happened? Oh,
Kirby 44:00
my gosh, yeah. And I'm sure it happens without them even telling us, yeah.
Scott Benner 44:04
My point is, you're doing it. You're doing it right now. Like you don't know it. You think you're trying not to, which is commendable, but like, it's gonna
Kirby 44:11
happen. It is, yeah, it's tough, and it's like, it's a learning process. I think as long as your intentions are good, that's the part that will stick. You know, we're not bringing our own baggage, and putting that
Scott Benner 44:21
doesn't really work is when somebody makes you a Bills fan, like, that's, oh, my damaging and there's no way out of it. You know what?
Kirby 44:27
I mean, you're gonna be feeling so ridiculous in February of 2026, about this conversation.
Scott Benner 44:35
So after the joy of the Eagles winning a consecutive Super Bowl happens, what? How will I feel? Exactly what's
Kirby 44:41
gonna you're gonna feel so silly when we bring that home. You're just gonna feel
Scott Benner 44:47
I'm so sorry you had Stefan Diggs and you ruined it.
Kirby 44:50
Oh, please. He's fine. He's good, we're good, everybody's good.
Scott Benner 44:55
You ruined Stefan
Kirby 44:56
Diggs. What do you think of that he was part we you
Scott Benner 44:59
ruined his. Career,
Kirby 45:01
I'm not gonna I have opinions, but I'm not gonna share them right here.
Scott Benner 45:05
Just been on a decent football team. Imagine what would have happened for him, stuck up there. Remember, you ruined that beautiful defensive ends life, too. He was so good. What was his name? Oh, my God. Which one was the most famous defensive lineman you've ever had in Buffalo? Ever? Who you mean? Ever? Oh, my God, look at how young you are. How old are you?
Kirby 45:27
I'm 42 really, I'm trying to think of who you could be talking
Scott Benner 45:31
about. Wait, are you sure you're thinking of the bills? I definitely am. Hold on, like, old. What? Like a Yeah, older, older. I'm just gonna do it here.
Kirby 45:39
Like, like Bruce Smith. You can't be talking about him. No,
Scott Benner 45:42
you ruined his life too. Yeah,
Kirby 45:46
I can't believe the turn this is taking. If you could see my face, this is
Scott Benner 45:49
like, what did he win? Nothing. Uh, he won the one of the great defense events.
Kirby 45:56
He still is. If you asked him today if he would have, he would say, I would there was no place you'd rather be than right there, right then you
Scott Benner 46:05
would have said, I would have rather been somewhere warm where we could have won something. What
Kirby 46:08
do you think? Bruce Smith, if you are listening, please tell Scott Benner that you are proud to be a bill and that you wouldn't trade it for the world.
Scott Benner 46:17
I don't believe. I think he wished he would have played in the year of free agency. Think
Kirby 46:21
of his name, because I thought you couldn't be talking about him. I was trying to lead
Scott Benner 46:25
you to the greatest defensive end that ever played for the bills.
Kirby 46:28
But you said that we ruined him. His
Scott Benner 46:32
career was ruined by playing in Buffalo.
Kirby 46:34
Like, why does he still spend half of his time in Buffalo then? Because
Scott Benner 46:37
he didn't make enough money to get out of there, because he was before free agency, and he got screwed.
Kirby 46:42
He's nuts. That's it. I
Scott Benner 46:45
can't believe you didn't say, put these in your mouth and shut up.
Kirby 46:51
You just said it. You say all of the
Scott Benner 46:53
things. For me, the bills are terrible. I don't know what to tell you.
Kirby 46:56
We can't go bill. We can't end like this.
Scott Benner 47:01
They should be a good team, and they're just not. I don't know why.
Kirby 47:04
Oh my gosh, you did watch the game on Sunday, right? It doesn't
Scott Benner 47:07
matter. And you have our old defensive coordinator, and I like him, McDermott,
Kirby 47:12
right? I'm gonna send you, yeah, he's amazing. I'm gonna send you a note in February. Just wait. Make sure you're checking your inbox. Make sure you're checking
Scott Benner 47:20
I will look for when you say, oh my god, I can't believe how they lost in the playoffs again.
Kirby 47:25
Okay, listen, here's a deal. If they lose, you have to send me and my family on your juice
Scott Benner 47:31
cruise. Listen, I can't afford that. Wait a minute, are you referring to the game was, was it the ravens and the bills? The game that the Ravens lost, you're taking credit for winning. Well, not me personally, okay? Because that the bills didn't win that game. The Ravens lost
Kirby 47:48
it. You do know that everybody plays until the last second, right?
Scott Benner 47:52
You can't lose a game when you're up 40 to 25 that's your fault when that happens. This is just a difference of opinion. It's a difference of opinion, right? Like between somebody who was watching the game from a third party position and a person like yourself who's trying to make yourself believe something that's not true. I want I swear I don't even care.
Kirby 48:11
How about that? I'm going to tell you something cute. My son said, because when they were playing Sunday night, I did not make it through the first night. I watched the highlights because I had to get up in the morning. But my husband was watching part of it with my son, and pointed out, I can't remember his name on the ravens, who's a type one. And my son, yes, yes, yes. And my son so sweet. He says, I wish Josh Allen had type one, like not
Scott Benner 48:33
because he wanted, because he wants some of the room for with diabetes. Yes.
Kirby 48:38
And I loved that he felt so okay about having diabetes, that he wasn't like, he wasn't wishing it on an enemy. He was wishing it on a hero, because he wanted it. You know, it was such. I was like, That is
Scott Benner 48:49
sweet. I take your point. Noah Gray has been on the podcast. He's, I
Kirby 48:52
just listened to that one. So good, right? Actually,
Scott Benner 48:56
I think I have an email here from here. I have an email here from, oh, my God, look at all these emails. You people, you got to stop emailing me. It's enough. I don't, I don't have a person. It's just me over here.
Unknown Speaker 49:13
Oh, where's her drawback of fame?
Scott Benner 49:15
I Yeah. I am emailing with, yeah. I'm emailing with Chad, mumas. Mumas, oh yeah, wife, right now. I think they're both. That's awesome, yeah. So that's, that's another guy, like he's, yeah, we love
Kirby 49:32
seeing it better than the bills problem. Stop it. Just are the bills we were going in such a good direction. We were getting off of it. And then he went back. He went back.
Scott Benner 49:43
I know I felt like I did. Okay. I think we're just gonna call this the episode The bills suck, and then that'll if I swear I would
Kirby 49:50
be the worst. The worst I would choose these nuts. Okay, I would.
Scott Benner 49:54
We've spoken for an hour and a half, even longer. Rob's gonna have to turn this into a two episode pod. Podcast. That's gonna be a two part podcast. Oh, and I never once brought up that my mom bought a Kirby vacuum cleaner when I was younger, and to ask you if you knew what that was,
Kirby 50:10
of course, I did, because I have to always say to people say, like the vacuum my response, which I've been working on since a child, is yes, except I don't
Scott Benner 50:19
suck. There you go. Not like the bills. So we were so close see what you did, though, you allowed me to do that by saying, Oh yeah, okay, all right. Well, thank you. We're done now. Goodbye. Okay, hold on a second.
Thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about medtronics, mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox, I'd like to thank the blood glucose meter that my daughter carries. The contour next gen blood glucose meter. Learn more and get started today at contour, next.com/juicebox and don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the contour next gen in cash. There are links in the show notes of the audio app you're listening in right now, and links at Juicebox podcast.com, to contour and all of the sponsors you Okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me or Instagram Tiktok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please. Do you not know about the private group? You have to join the private group. As of this recording, it has 74,000 members. They're active talking about diabetes, whatever you need to know, there's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. If your loved one is newly diagnosed with type one diabetes and you're seeking a clear, practical perspective, check out the bold beginning series on the Juicebox podcast. It's hosted by myself and Jenny Smith, an experienced diabetes educator with over 35 years of personal insight into type one, our series cuts through the medical jargon and delivers straightforward answers to your most pressing questions. You'll gain insight from real patients and caregivers and find practical advice to help you confidently navigate life with type one. You can start your journey informed and empowered with the Juicebox podcast, the bold beginning series and all of the collections in the Juicebox podcast are available in your audio app and at Juicebox podcast.com in the menu, the episode you just heard was professionally edited by wrong way recording, wrong way, recording.com
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#1670 Deez Nuts - Part 1
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Scott and Kirby trade stories about kids, chaos, and humor before diving into Kirby’s son’s type 1 diagnosis and the need for better education and support after the “don’t-die” stage.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox podcast.
Kirby 0:14
My name is Kirby, and I'm a mom of a eight year old who was diagnosed just about a year ago with type one diabetes.
Scott Benner 0:22
If this is your first time listening to the Juicebox podcast and you'd like to hear more, download Apple podcasts or Spotify, really, any audio app at all, look for the Juicebox podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management, go to Juicebox podcast.com. Up in the menu and look for bold Beginnings The Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin while you're listening. Please remember that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days. You want the ever since CGM, ever since cgm.com/juicebox one year one CGM. Today's podcast is sponsored by us Med, US med.com/juicebox you can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom, libre, Omnipod, tandem and so much more us, med.com/juicebox or call 888-721-1514, this episode is sponsored by the tandem Moby system, which is powered by tandems, newest algorithm control iq plus technology. Tandem Moby has a predictive algorithm that helps prevent highs and lows, and is now available for ages two and up. Learn more and get started today at tandem diabetes.com/juicebox,
Kirby 2:17
my name is Kirby, and I'm a mom of a eight year old who was diagnosed just about a year ago with type one diabetes. Okay,
Scott Benner 2:24
and I'm sure we'll get to that. But Kirby and I were having way too good of a time speaking before we started recording, so I just hit record very quickly. Now we have two things to talk about. The way I say it Okay, is that all the first one, well, I mean, from the get go, Okay, the first one is my assertion that people are just wandering through the world, unaware of each other, right? And that I feel like that might be getting worse. It's not just me getting older and being a bigger complainer,
Kirby 2:52
but that two things can be true.
Scott Benner 2:54
Both can be true. Thank you, Kirby. I appreciate that very much that you can't just let me have it for a second. But I think maybe the other thing we have to talk about is like, Why do I have so much anger about my vision getting worse, right? But there was something else in there.
Kirby 3:07
What was your friend caught a murderer?
Scott Benner 3:11
So Kirby, I are talking all very related. I use a completely ridiculous example of something about why I have my file naming system the way I have it. And I said, you know, because, like, five years from now, when I get a note that says, hey, you had this person named Kirby on your show one time, and they murdered three people, and we need you to find the recording. I need to be able to find it. And she laughed, because that's silly. Then I said, Hey, don't like she said something about like you might catch a murderer one day. And I, Kirby felt like you're being sarcastic, no. And I said, my friend of mine caught a murderer once, and then we had to share Yes, and now I will tell you about it. Okay, so my friend is mortician,
Kirby 3:54
and I thought that would go, yeah. See
Scott Benner 3:56
now you now, you feel like there's a story here. There is a story. He was preparing a body of an older person, and he was doing all the things he does. And he checked the airway, down the, you know, down the throat and everything, as this part of his process. And he felt like he saw something. And he looked and felt like he did see something. Got a forcep, I believe, and tried to find out what it was and what it was. Do you want to guess? A bouncy ball? It was a rag. Oh, someone, this poor person's neighbor, for reasons I don't, I don't remember. Maybe he didn't even know when he was telling the story, an elderly person's neighbor accosted them and jammed a rag down their throat and suffocated them for the love. Yeah, and then he called the police and did all the things, and they caught the person that did it.
Kirby 4:54
So wouldn't they like when they collected the body? First of all, I didn't think I would. Say that sentence this morning, by the way. But wouldn't they, like, check for
Scott Benner 5:04
that? So I think the person was old enough that they were they were just deceased, yeah, and they just probably thought that's what was going on there. Your question should be the indicator, from what he told me, of how far the person somehow jammed the rag down. That is wild. Yeah, that it was not, it was not obvious, huh?
Kirby 5:27
Yep, that's quite a story. Yeah, there you go. I said bouncy ball because my kids have been taking to putting bouncy balls in their mouth, and I keep having to tell them to stop. So I immediately pictured that happening.
Scott Benner 5:39
So are they big enough that they could not swallow them, or I feel like
Kirby 5:43
everything could get in there. You know, I just, how old are the kids? So I've got an eight year old, that's my type one, and then two, four and a half year old twins, all boys. So, like, everything's just always very chaotic, and feels like it needs attention. The
Scott Benner 6:00
twins putting the balls. I almost said, balls in their mouth.
Kirby 6:04
Well, now you did. So there you go. The older one doing it. They all do it, yeah, like he'll look at me and be like, Look. And I'm like, stop it.
Scott Benner 6:12
Are there any other indications your kids are a little dumb? Or this the only one so far. I feel like
Kirby 6:16
this is fair exploration of, you know, the world around them right at some point they'll stop. I think, oh, yeah, sure.
Scott Benner 6:27
I'm still staring at I'm staring at my kids, going, like, is that ever going to end? You know, looking at myself and think, I mean, honestly, I'm looking at myself thinking the same thing. Because, to your point, you know, I'm sitting here trying to type your name in, and I can't see. And instead of just putting my glasses on, I just sit here pissed. And you're like, oh my god, I heard you talking about this in the podcast race. And I'm like, Yeah, I'm not making it up. I'm angry that I can't see.
Kirby 6:51
This is the equivalent of putting the bouncy ball in your mouth. It's just like a mature version of it. You're doing something repeatedly that is not serving you well.
Scott Benner 7:00
You think that me not wearing glasses is the equivalent of me putting balls in my mouth, but we should call this episode these nuts. Oh, my God.
Kirby 7:10
You know of all of the things that floated through my head of what you would decide to call this, that was not one of the options that I can see what happens? Oh, my God, my husband would be just thrilled. So yeah, I mean, he would go just celebrate.
Scott Benner 7:23
Arden went on a Dee's nuts tear for like, three weeks this summer.
Kirby 7:26
What does that just said it all the
Scott Benner 7:29
time, oh, just all the time about anything that got said for like she was delighted by it, like she was five years old for about three weeks.
Kirby 7:38
I can't wait for the trend to end. I don't know how long this one will be around, but I'm I might be a little over it. I'm over things nuts.
Scott Benner 7:46
Yeah, well, you've been married for a while.
Kirby 7:48
Oh, my God. Let's just take a turn. I don't know what we're
Scott Benner 7:51
going to talk about when this thing starts. I'm trying to be upbeat today, the world, the world got weird again yesterday.
Kirby 8:00
I am here for it. Thank
Scott Benner 8:01
you. All right, so, so we've covered all the unimportant things. Actually, you know what? This may be a thing I do because May I share something with you before we go on and talk about your kids diabetes. Of course, I don't do you listen to the podcast. I do. Okay, so I think it's fairly obvious that I record daily with people who are not accustomed to being recorded, right? And so the episodes all take on sort of a same, a similar vibe in the beginning, because I ask people questions that they know the answers to. It's usually around their kids, like, how old your kids are? How old are you? Have you been married? Like, sometimes I'll say, somebody, are you married? And people are probably like, the hell's that got to do with anything? What it has to do with it is they know the answer to it, and it's something they're they're going to be comfortable. Then they get themselves comfortable, and then I get them comfortable, and then we keep talking. Makes sense, but look how we did. I got you comfortable by talking about a dead body and these nuts what does that say about me? I don't know, but I what I can tell you is that you gave off the vibe that I could do this. So, yeah,
Kirby 9:01
I don't know what that is. And I'm sitting here thinking, Gosh, I was gonna share this episode with like, family members, so now I'm gonna have to, we haven't said anything wrong. Come with a disclaimer. Some people might not even know what is happening right now. So you know, and I can always blame you. I gotta follow the host leads.
Scott Benner 9:16
Yeah, you just say, Oh my god. Another guy's crazy. I I didn't want to, God knows how these things become.
Kirby 9:22
Write an email pleading my case or anything. I didn't
Scott Benner 9:25
send a long note about wanting to be on the podcast anyway. Tell me about your family and how diabetes came into your life.
Kirby 9:33
Sure. Okay, so I already said about our kids. I'm married. We've been married. I'm not even gonna try to guess
Scott Benner 9:38
12 years. Kirby, you don't know how long you've been married.
Kirby 9:42
I do. So this is what I do. Okay, all of the dates of all of the things and all of my life float around like a jumble in my head. And I sometimes forget when people were born. And there is a cutting board in my kitchen that my sister had made for me with my wedding anniversary on it, just the date, so it was 2013 and I just picture the cutting board. So now I. Can do the math, it was 12 years. Wow. So that's I was trying to save you from that
Scott Benner 10:05
circuitous route you took to that that was awesome. You and I might get along really well. My brain works, so you only know how long you've been married because your sister bought you a cutting board with your wedding date on it.
Kirby 10:17
That is a reductionist description of what I just said, sort
Scott Benner 10:23
of what I do. I don't know if you realize what this is. I generalize things. Then we talk,
Kirby 10:27
my gosh, it's how I do the math quick, because we were together much longer than this. We've been together, like almost 20 years, you know? So it's just like the dates are a jumble, like I said. So we've been married 12 years, so we've got three beautiful boys, and my oldest, my eight year old, was diagnosed. We're actually five days away from his first diversity. So we're coming up on
Scott Benner 10:49
it. This is only 361 days old. Yeah, it's
Kirby 10:53
fresh. It feels fresh. It feels feels still fresh, even though we've come a long way. I just
Scott Benner 10:58
want everyone to know it's 360 I just got the math wrong. When that right, didn't I? I don't know. Is it a leap year? How many good point? No, it's not. I was trying to help you, but it's not. I tried to do the simplest of math, and I was I did that wrong. I found myself going like, wait, 364, three.
Kirby 11:14
Cutting Board. Buy the cutting board.
Scott Benner 11:17
It said, how many days there weren't a year this all would have been much easier. That's 100% right? So you have these three, three lovely children, yeah, the oldest one develops type one just a year ago. He's diagnosed, yeah, yeah. Tell me what led you to believe that he had it? What got you to the doctor? Or yeah, yes.
Kirby 11:35
We had just come back from vacation, so we were in the Adirondacks, and typically we left like, a week between vacation and when school started last year, it actually was just we got home the weekend before school started. And that's important, because he started having some nighttime accidents. So he was wetting the bed overnight, and because we thought that that was potentially related to the quick transition to school, because he had some history, you know, he took a little bit longer to, you know, go all night when he was younger, and he had some history of night terrors and stuff like that, really. So we just thought it might have been a regression, and maybe that transition was a trigger for some of those things. So first couple nights, we didn't think anything of it. Then it was continuing. So I emailed the doctor, and I said, Hey, this is going on. We didn't see anything else happening. Everything else seemed fine. She asked a couple questions. She said, don't think it's going to be a long term issue. I laugh now at that, because, like, little did we know, so we just monitored it, but it just continued for a whole week. We couldn't wake him out of sleep. He was like, in a dead sleep, when we tried to wake him up to try to have him go to the bathroom again. And then that's when I was just like, I kind of knew, you know, because I'm, I'm a dietitian, so I this is something that's rattling around in my brain that I know that is a symptom of. And I thought this is either type one or the rarest time of a kid getting like, a UTI, which doesn't,
Scott Benner 12:52
oh, you got diabetes from wet in the bed. Oh, yeah, yeah.
Kirby 12:55
Because, because of how it was happening, it was just like every single night and the tiredness that he had. And then over the weekend, before, we were able to get an appointment for him, like the Monday, after all of this, after a week of this had had been happening, he had a daytime accident. And that was actually when I really was like, this is diabetes, because he He's seven years old. He's not That's not typical, sure. And then something, he was with some family members who said he was drinking a lot. And I a lot and had the bathroom a lot. So that all happened in the span of, like, you know, the wedding, the bed was like a week ish week and a half, and then that daytime accident and the increased thirst was just only a few days. So then he went to the doctor that Monday, and that was that we found out right away. I told the doctor, what's that? What do night terrors look like? So he would wake up, like, screaming and crying and yelling like he was just terrified, like he was in the middle of a nightmare. And it was odd, because he had had this kind of glassy look to his eyes, so we could tell that he wasn't, like, conscious of what was happening, and we would have to wait him out. I mean, it's we just keep him safe, because sometimes he would thrash a little bit, and we just kind of waited him out, sat with him. We were there to comfort him, but just kind of let him run its course. So it would happen not often throughout his young life, but there was a period of time where it was happening often enough that we cousins slept over. We had to tell them, you know, this might happen. So
Scott Benner 14:22
has it gone away completely? Yeah.
Kirby 14:26
And once in a while, I think he'll wake up and, like, just kind of sleep, not sleepwalk, but he'd be, like, not really awake. Do you know what
Scott Benner 14:33
I mean, I slept walk as a kid. I don't do it anymore. I haven't done it in forever. But, like, does he do that as well?
Kirby 14:39
No, no. Okay, so it all kind of, you know, went away. So
Scott Benner 14:43
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Kirby 17:18
Yeah. This is great. Yeah, really, great. That's fantastic. This is exactly what I thought life would be
Scott Benner 17:24
like. We used to just drink and go out on the weekends.
Kirby 17:28
We would say that would be like, remember what it used to be like? Obviously, you know, it's like, you can't do that your whole life, but it's just there's all these things that you're not ready for, because each family, each kid, each person, has their own story. I always say nobody gets out unscathed. So I believe this was, you know, it was something we had to quickly learn how to, you know, manage and help him through. And then it went away. And, okay, now we're where we are. I'm
Scott Benner 17:52
sorry for the detour. I was just interested. Okay, okay, so you sniff the thing out pretty quickly. You just call a doctor. Or do you think it's emergent?
Kirby 17:59
My husband actually happened to have his own annual checkup scheduled. So we actually just asked them if they could use the time for my son instead. And they said, Sure, and I'm at work, and I knew what time this The appointment was, and with my chart, you know, I I'm just keeping my eyes on my phone, and I saw the my chart message pop up that said, you have a new test result available. And I saw it, and I was like,
Scott Benner 18:23
Why does your husband see a pediatrician?
Kirby 18:26
Oh, she's a family doctor, so she sees us all. He's awesome. Oh, because he's a child. He's my fourth child, that's why.
Scott Benner 18:33
Well, okay, so it pops up on my chart, and you're like, that's, isn't that crazy that that's how you found
Kirby 18:38
out? Yeah. And I know a lot of people might not know immediately, but like, it was, I can't remember the exact number, but it was number, but it was over 400 so I was just like, well, that that's what this is. So I just, I actually called the office and talked to the doctor while she was like, in route. She was like, I knew you were gonna call. I was like,
Scott Benner 18:53
so you people who understand lab results?
Kirby 18:56
Yes, I know. But yeah, she's so she's amazing. And so we went to pre folks around here, though, no Golisano Children's Hospital, which is an incredible resource. We're incredibly lucky through urm C and he stayed, I think we stayed two nights, and then we, we came home. Okay, he wasn't in any DKA or anything like that. He just, I'm sorry. Folks near where, oh, near where we live, they the Rochester area. So it's just, it's a very it's a gem. We're really lucky to have the resource. So giving a shout
Scott Benner 19:28
out. So in your note, you say that there was confusion and challenges in the early days and months of diagnosis. Do you remember? So it sounds so formal, doesn't
Kirby 19:38
it? Because I know I was re reading what I wrote. I'm like, gosh, I was having some feelings.
Scott Benner 19:44
Yeah, that you went on. You're like, assumption you did use a lot of big words. You were like, No, and perceptions of support systems, my God, should I have used smaller words for you? No, I understood all of them. And a couple of my looked up. And then once I looked them up, I took it to somebody else, and I said,
Kirby 19:59
Hey, right. You just had to make the font bigger, like zoom to 200%
Scott Benner 20:04
you know, that I saw over somebody's shoulder in the store the other day. This guy's font on his phone was as big as it I mean, there were five words on each screen, you know, like, as it went by, and I thought, This is what's gonna happen, isn't it? Well,
Kirby 20:17
at least we have the ability to manage but, but, yeah, so I think I'm trying to remember what I meant by that, but it was just like, it depends on where you are, like, the information you get, but everybody gets the same kind of basic information. And I know you've you've referenced it as, like, the do not die information, which makes sense, right? Like, they don't know who these families are, what their capabilities are, what their ability to understand it, so I get it. I think when we we got home and we started to realize how many factors outside of, just like the basic carb counting, were involved, I think I got very frustrated, because I was like, Well, geez, like, now that the dust has settled, I want more information on this, because we are intelligent people who want to dive into this, and if you give us the tools, we'll use them. So I think that's probably what I was referencing, because I do think there's a lot that could be done in the early stages, or, like, in the, you know, the three to six month stage after diagnosis, to kind of identify what families are ready for. And there's not really a lot available. That's formal, right? There's like, I think I refer to as like a patchwork of user generated stuff that we're relying on, which is amazing. But sometimes I wish there was something a little bit more formalized. So it's kind of like I can work through almost like class work, because that's how I learned. So I think that's probably what I was talking
Scott Benner 21:36
about, what you want, you know, I find interesting that I don't know how you probably wrote that six months ago, right? And six months later, you're like, Oh, I wonder what I meant by that. Like, I it just, it's very, I guess, just indicative of how quickly things change. Yes, usually when I bump into people who are more newly diagnosed and they're out of their minds, and, you know, they think I actually have to, I have to answer. A lady online today, you know, who just said to me, like, when is the sadness gonna stop? I saw that one. Yeah, so I have to get back to that one. And I think the answer is, honestly, you're not going to feel like this soon, and it's going to, once you get there, it'll, it'll actually be much quicker than you expected. It to be. It just, I don't know, like it's, you just got to make it your amount of time. And I think it's more about learning and becoming comfortable than like I assume that her sadness just comes from uncertainty. Today's episode is sponsored by a long term CGM. It's going to help you to stay on top of your glucose readings the ever since 365 I'm talking, of course, about the world's first and only CGM that lasts for one year, one year, one CGM. Are you tired of those other CGM, the ones that give you all those problems that you didn't expect, knocking them off, false alerts not lasting as long as they're supposed to. If you're tired of those constant frustrations, use my link ever since cgm.com/juicebox to learn more about the ever since 365 some of you may be able to experience the ever since 365 for as low as $199 for a full year. At my link, you'll find those details and can learn about eligibility. Ever since cgm.com/juicebox,
Kirby 23:23
check it out. I think so, yeah, and I think that that's another thing that could have been. And I don't know, looking back, it's easy to say this, but to take away some of the uncertainty at the get go, I think should be, yeah, it should be a very routine part of this, because I remember even looking back, nobody actually sat us down and explained what this would look like long term. It's like, get them the tools that they need to, you know, keep him alive, right, and then follow up in six weeks, and then every three months after that. But at the get go, like nobody actually sat my son down and us at the same time to say, this is what this means. And I was actually the one that had to tell my son that this was forever, because he thought when we were in the hospital, the injections and everything after we left, they would be done. He thought they were all just to get him back, steady, fix, fix, whatever was wrong, and then go home. So I had to do that, which, you know, I want to be present for when he's being told that. But it was kind of like, wow. We just went, we're about to go home. And nobody actually said this.
Scott Benner 24:24
Oh, listen, you knew, but like, oh yeah,
Kirby 24:27
of course, yeah, exactly.
Scott Benner 24:29
Did you know that? He didn't know, or did you did it? Like,
Kirby 24:33
I didn't know until he he said something. I can't remember what it was. This is over, yeah. And I his face. I was like, Oh, my God, I'm gonna have to say it like, in this moment, because I don't even know that he was in the room. I mean, you know, we're in and out. There's all these people in and out. That was something too that I wanted to make sure, I think, in my early note to you that I am a dietitian. So like, I these are, like, theoretically, should know a lot about this. Yes, but it's still hard for me. Like there's stuff that makes no sense to me still, and I wanted people to hear that, especially for the, you know, the person who's experiencing sadness, not to make them feel worse. Like, oh, even a dietitian can't figure this out. How what hope do I have? But it's like, it's okay, like there is a light at the end of the tunnel. It will eventually be fine. I feel like, you know, I think people have different perspectives on that.
Scott Benner 25:24
Yeah, I retold somebody yesterday, just very briefly, that I once took a private call from a, like, a literal brain surgeon whose kid got diabetes and was on the phone, like, I don't know what to do. Please help me. Yeah, and it's funny, because the way you just said it, like, you see it backwards for me, like you were like, Oh, I don't want them to feel bad that, like, you know, a dietitian doesn't get it all the time at what chance do I have? I saw it the other way. I was like, Oh, he didn't get it either. We're all in the same boat Exactly.
Kirby 25:49
Well, that's exactly what I mean. Is that, like, that might be the knee jerk response for people, but that's kind of the point is that it's okay, that it's hard. Because I think there is a feeling that, especially with the technology now, we can get such tight control. So a lot of the information that I see kind of being bounced around is people trying to get tighter, tighter, tighter, tighter, right? Like, get that A, 1c, under six. Get it under 5.5 like, get it as low as you can. Here's all of the things that we do. For me, I think that's great. It gives me a lot of hope, but I wonder if it sometimes gives the impression to others that that's what they need to be striving for. Because for some people, that might not be possible right now, it might take longer to get there, and if you don't get it quickly, maybe you feel like you're never going to get it, especially early on, when you're trying to get as much information as
Scott Benner 26:39
possible, you're bringing up something interesting that is a little back end that I'll share here. So when I start making the podcast, I don't really know what it is like that's just fair, like, I just, you know, I've told people a million times I thought I was going to read my most popular blog posts into a microphone, like, because I had these blog posts that people found really valuable, and I thought, I'll just read them, and then they can listen to them too. I mean, very ridiculous, but it was my thought. That is how I intended to start the podcast. I got away from it pretty quickly. And I've said on here before, like, I think I was 20 minutes and doing it the first time, I was like, Oh my God, no one's gonna listen to this. I was having trouble doing it. I was like, if I, if I can't deal with it, like they're not gonna want to listen to it, you know. And you know. So I don't know what happens the podcast starts, it starts following my personality more and becomes more conversational, and me just chatting with people and and then I had this idea that, like, well, I'll be like an avatar for you listening, and I'll just, I don't know a lot of this, so it's perfect. I'll ask questions, and I'll assume the questions I'm asking are the questions you would have, and you know, hopefully you'll, you know, you'll like it that way. And I think it built that, built on that. And then, like I've said before, couple 100 episodes into it really was like I was always learning on the job, and it started to become apparent from people's responses and letters and everything, the people were just saying, like, Hey, I don't even know what to say, why, but I've been listening to this podcast for a year in my a one season the sixes. And I was like, Oh, awesome, yeah. And then, you know, like, and then I just kind of realized that the I had a framework about how I did things. Then people would come on and add their two cents, or things that worked for them, and that we were basically making a really long winded manual for diabetes, right? Yeah. And then I go to Jenny, and I say, hey, what if I like? I said, I think I have these things. I've like, I've written them down, but I think these are the things I do. And then when I do those things, Arden's a 1c, stays in the sixes. I want to tell people because I think it's unreasonable to ask them to listen to 200 episodes of a podcast to get that information, but I think it'll be crazy if I sit there and talk about it by myself. I was like, I just, I think it'll be hard to listen to and I'll probably start rambling. I was like, and I love the way you think about diabetes. Like, would you come have these conversations with me, you know? And she was like, yeah, right on, that sounds good. And, you know, and we made that Pro Tip series, yes, right? Like, so the way that works is, I didn't expect it to work that way, like I didn't. I didn't expect any of this to be perfectly honest with you. And now we are in a really strange situation, Kirby, because I forget why I started telling you this. Tell me, you know. I know, you know. So just tell me, I
Kirby 29:26
think, because I was saying the impression it might give folks. Thank you. We're back. Okay, hold on.
Scott Benner 29:32
So at some point, when you start realizing how it's all building and working, there's this decision for me to make, right? Do I lay it out there and say, if you do these things, you have a really great chance of this working out, and run the risk of making some people feel like I can't do that, or, oh gosh, it's not working for me. I think in there, in that problem, lies my theory on all this, which is, I. Think that aspirational is the way to go? Yes, I totally agree. Yeah. I think you set up look other people can accomplish this. I'm an idiot. Like, I mean, if you listen that for any I mean, if you listen the first five minutes of this, you can say, I'm not that. I'm not either
Kirby 30:15
self deprecating or calling yourself a genius. It's a really interesting, like, kind of line
Scott Benner 30:20
you are. I appreciate that. I think the answer again, that is in the middle too. Yeah, yeah. I think there are moments when I'm like, Oh no, I there might be something wrong with me, and there are moments when I'm like, I am exceptionally smart, actually. What did we somebody told me the other day, I was sharing my IQ with a personal friend. I was like, I'm a genius. And they went, That's not how the chart says. And I was like, shout up says you're not a genius. Actually, smart. You can't even read the check. I also don't believe I'm a
Kirby 30:50
genius. I was just joking. We all know it. We all know thank you. I do
Scott Benner 30:54
think I'm smarter than some
Kirby 30:56
people are. Yes, and I think that's okay to say that yeah, and your your point is so well taken. And I think the reason it occurred to me to say it is because of my work as a dietitian, I often see the way that people consume information and the way that it might land, you know, differently with people. And that was part of the reason that I think I asked to come on was to say, well, it's one of the like, I think I listed, like, 14 things. It's okay if this isn't the exact right way for you, like, the way that I think the word you use, aspirational, is exactly the way I personally use your information, because it doesn't quite match my full learning style. Because, like I said, I kind of want to sit down, I want calculations, because I start from them, and then I get more freedom, you know, but I use them as a starting point, yeah, but a lot of people learn like that, right? So I think it's good to know how to use this for your own self. Yes,
Scott Benner 31:48
there was a moment, I'd be perfectly honest with you, like, there was a moment where I thought, Oh, I've laid it out for you, and then you'll just hear it, and then that will work for you, right? And then it took me a while of, like, interacting with people. I think it's really important to interact with the people you're talking to, so that you it's not just my assumptions of what's going on. I'm actually seeing returns, you know? And I was like, oh, not everybody uses all of the information, right? Not everybody agrees with me about that piece, or forget, agrees like it doesn't work that way for them or whatever, like, you know what I mean? And then that was a real building moment for me. I was like, Okay, so I've laid out here what works for me. You should pick and choose from it, like a, you know, like a buffet, take from it what you what's going to help you, or what lands with you, and then go off and learn some other stuff and build on that somehow, have your own experiences. Like, what do I care? Exactly, you know what I mean? Like,
Kirby 32:42
yeah, exactly. And I think what has helped me is that this actually helped me identify questions that I want to either ask my husband about what we think we should do or to bring to the end, though, when we go to say hey, you know, I'm kind of uncovering some stuff here and applying it to our specific situation. Because honestly, like when I found your podcast, it was from another mom who we just randomly gotten in, you know, connected with that. We found out that her son had type one as well. And she's like, You got to listen to Juicebox. So this was, like, in the early, early days. So of course, you're looking for anything after, after you kind of come up for air. Yeah, and I'm just starting. I started with the first episode. Then I start, because you have so many, you have so many, and they're so awesome. So I just started picking and choosing, like, based on the not very helpful titles. But that's fine, but it's like, you look at it and you say, Okay, I think this is where I'm at today. And so you start to get this feeling of community. You start to hear other people's stories. And that was like a warm blanket in the beginning, it was like, oh, okay, like, there is so much hope here. There's other people. But then I start going through our actual day to day management, and it starts to get a little trickier for me to find information. Sure, and it's a little trickier even with a because if I'm on Spotify, right, I'm looking for pro tips. And I'm like, Okay, I think I understand this because of my background. I'm like, I don't really need to know about carbs. I've got that. So then I'm starting to piece things together. And I think when I reached out to you, I was in the middle of, like, trying to sort through how to integrate it into our story. I think I've finally found a way that's kind of working for my issue. It's really just like, I'm sorry. Go ahead.
Scott Benner 34:21
I want to hear but I also want to say to you, how great will it be that to know that six months a year from now, sometimes five years from now, someone will ask a question online that this episode will answer and that Nico will have to tell them, hey, put these nuts in your ears and you'll get the answer.
Kirby 34:37
You can't do it. You just can't be awesome. You're either gonna get a ton of people to click on it or, like, nobody, most
Scott Benner 34:45
people know what it means. Don't you think
Kirby 34:49
could it be like to catch a murderer? I mean, like, we gotta workshop this a little bit.
Scott Benner 34:55
I know what you were saying a minute ago. It's like, like, listen, some of these titles don't are meaningless. And. And, but I know, I know there's Thank you. I do. I think of a more as like monikers. So I do see people say like, oh, go listen to, you know, whatever, like and, and I look at it, I think that's a strange title. Like, who came up with that? It's interesting. So you don't need all the information, because you have some from your professional life you're picking through. Obviously every answer is not in the podcast. That's not the goal of it, right? So to kind of finish off my earlier thought, and then we'll move on to what you put together for yourself, I think that the reason the podcast ended up going in this direction is because I have an aversion to kind of lowest common denominator teaching. I don't like when we do that. I feel, yeah, yeah. I don't. I don't like when we dumb things down because, you know, we don't want to leave anybody behind. I think, first of all, that's reductive to that person. I think that's the second time someone's used the word reductive in the list. And I think there's a way to reach that person. I don't think you have to give them less information because you've made some sort of a, I don't know, decision that they can't handle the information. And what about let's say, let's say you're right. Let's say you did find somebody who's just never going to handle the information. Now, everybody gets that level of information, that's insane, right? So let's lay it out there, as easy as as, I mean, listen, I I feel like I do a pretty good job of every Manning this conversation. And I will say, like, for anybody listening who's like, yeah, that's because this is your level. Like, you're right, yeah, right. I'm not having any grand thoughts that I'm distilling for you, dude. I mean, like, I the words that come into my head are the words that come into my head. I think I listened to an episode the other day where I said hospital people made me laugh. I was like, Oh my God. I said whole episode of me not being able to come up with the words I wanted. And I said hospital people at some point. But I think that that's partly why it works for everybody, because doesn't matter really what level you're at, the way I talk about it should be pretty easy to understand, and yet it's not leaving anything out, right, right? So if you hear something that you don't get, that somebody else understands, then that's great. And if it makes you feel badly. I feel bad about that, but I don't think hiding things is the way to
Kirby 37:25
go. I don't think so either, and I didn't, I certainly didn't mean to okay so. And I think that it struck me in a moment where I was like, gosh, I hope people know, you know. I hope people know that it's okay if you're not here and you're so and I think they do, and I think you do an excellent job of of that too. Is that it might take some time,
Scott Benner 37:44
well, Kirby, I told you all that to let you know that, like I hope that too. Yeah, it was worrisome for me, because there was a moment when I made a conscious decision that I'm not going to just, you know, I said this before, and I probably have sounded angry about it at times, or confused about it at other times. But I think that the diabetes community, at least the one that I grew up in, like writing blogs for and stuff like that, very often hid information from people.
Kirby 38:10
Yes, yeah. I think I'll still do, yeah, that's part of my frustration. Is that we, and I don't take this the wrong way, like I think we need to have all of it. But I don't think that there is no other condition like this that I can think of where there is so much management put on individuals, there's so much calculation, there's tech involved, there's medication that you're essentially dosing on your own. I mean, truly, yeah, there's no other condition like that, but there is very little. I will just call it formal support. There is your Endo, and if you're lucky, you've got a good one. I've seen people who theirs doesn't even answer them when they message them in, you know, maybe an immediate need. And so that shouldn't be that should not be the case, that we are left to to do this in this way. So I guess my point in bringing that up is because I know so many people listen to this, and I hope that somewhere, someone is hearing this and says, gosh, wouldn't it be great if we had something that was slightly more formalized so that people could tap into it, especially people who maybe don't have maybe they don't listen to podcasts, maybe they don't learn this way, or maybe they don't read stuff online. Maybe they don't trust anyone besides their doctor. It frost. It frustrates me that. I mean, can you think of another condition that is like this, where it's lifelong, calculating your
Scott Benner 39:34
change doses, yeah, on your own, 24 hours a day. What if you had
Kirby 39:39
to do that, like, with your heart? What if you were responsible for, like, what's the thing called that? The thing that makes your heart beat? Yeah, pacemaker. What if you were in charge
Scott Benner 39:48
on it? You were like, I wonder where I should put this dial.
Speaker 1 39:51
I'll try four. It would be banana.
Scott Benner 39:55
Does feel like that? So I saw somebody online the other day. Outside of my ecosystem, which I think I feel like, I actually felt like a douchebag saying that, but I do think there's like a Juicebox I do think there's like a Juicebox ecosystem now, right? Yes, there is. And I saw somebody outside of it, and this person is struggling, like, significantly, talking about, like, I don't know that life is worth living. I can't figure this diabetes out, and it wasn't my place to say something, but I could have been like, Hey, here's a list of episodes. I think they'll help you, and I think they would have, but everybody is so I don't know territorial that I can't I'm not gonna look like I'm because, to me, it would be helping somebody to the person who's running that space. I listen, I think this is disgusting, because I don't see it this way, and I don't reverse engineer this idea, but I've seen it. I've seen it had a number of times, have been yelled at about a number of times they see it as you poaching their people. And so I'm like, Look, I can't get involved in this, because I don't want to be like, the Oh, Scott's running around, grabbing people out of other places, and this wasn't even Facebook, by the way, and so I don't get involved in that, but I felt, I felt terrible for for a while after I walked away from that screen, I was like, I really think that this stuff would help this person, and now I'm just left hoping that somebody else gets the information
Kirby 41:15
to them. Yeah, and I think those are the people I'm really thinking of, because I think those of us who have found our way to this. There's a reason we've gravitated towards it and stayed there, yeah, but then there's everybody else, and so that's, you know, and
Scott Benner 41:29
there's a lot of everybody else's. That's my other point that I'll make this point over and over again. I hope for people listening who are in a position to do something to help people, this will mean something to them. I very likely reach more people with type one diabetes than anybody else. Agreed, okay, and I don't reach a small fraction of people with type one diabetes. That's a problem. Exactly. Yeah, whether you like me or not, that's not really the point. I figured out a way to reach more people than anybody has ever and I'm not touching a small fraction of people who have type one. And so there's a lot of people walking around out there, you know, you don't realize that if you're listening to the show, they'll be and you're like, Oh, I got to get my my seven down to a six. A lot of people wandering around with 12, A, one, CS, more than you think, you know?
Kirby 42:18
Well, I mean, I know it's a lot. That's my point, I suppose, is that whoever the big we is, we need to do better. Because this is, do you have any idea how to do that? I mean, I've thought about like, I wish, and I told so we had this amazing nurse practitioner who just retired, and on her way out, I said, Hey, are you gonna, like, do anything in your retirement? Because maybe you could, because, you know, most people don't fully retire who love this work as, like, You should do a master class for for caregivers. And she said that it was something that they have tossed around. But like, for some reason, I think there was, you know, nursing shortage, and there's all these staffing things. So for me, like, I don't think that that's the only thing. I think it would be a starting point is to establish this as, like, a standard of care is that classes could be available when you know caregivers are ready, parents and the caregivers who are going to be responsible. Because obviously, my son's not only with us, that they
Scott Benner 43:10
can happen though, right? No, but you
Kirby 43:13
asked, and I think it should be through like a hospital system or a doctor's only because, for the most part, I know people are, there's some camps that are kind of anti doctor and establishment right now, but for the most part, that trust has been established, and it could stem from there, but it doesn't even exist.
Scott Benner 43:30
You know, I was listening to a podcast the other day. I was coming home from, where was I coming home from? Oh, I got to go see the Super Bowl trophies. Oh, yeah. Well, not, of course I did. Actually, that was a great Can I tell you something I'm going to
Kirby 43:47
get to the podcast. Don't forget where we came from. Podcast, don't worry.
Scott Benner 43:51
Hold on a second. So my brother and I don't live in the same state anymore. My brother moved away. He's a turn coat, okay? And for work, I guess, something like, he had to keep his job. He had to come back to go to a professional event, and it was being held in the Eagles stadium. And he's like, Yo, why don't you come with me? You know, we don't get to see each other enough like, he's like, we can hang out for the day. He goes, it's gonna be really boring for you. And I was like, right? I was like, I don't care. I was like, we'll get to, you know, we'll hang out, we'll see each other. And I was like, that'll be great, you know? So I moved my recordings around, and I did the whole thing. I had to go tell my wife I was taking a day off, which is not a thing. You guys don't know me and my wife, we don't really take time off. So she was like, Oh, this must be nice. And I'm like, I know. I'll just sit here and kill myself. And I was like, Okay, you go enjoy your work myself right into the ground while you're out gallivanting. I'm like, I'm at a conference for something I don't understand and have no need for, right? Well, I get to see my brother and Brandon Graham was going to be there linebacker formerly the Philadelphia Eagles, who I believe is the reason. Why we won the Super Bowl against the Patriots, and like a small child, I brought his rookie card with me to get signed. Right? Yeah. Anyway, my brother and I spent two hours walking the floor. He's going from he's actually working. He's going from place to place, gathering information about vendors they might use and stuff like that. I'm out of my mind board. I'm like, oh my god, what they've been talking about, but they're doing a raffle, and I want to win the raffle, so at every table, I have to get somebody to initial my goddamn card so I can put my thing in for the raffle to try to win the raffle, which I did not win. And that's not the point of this conversation, but I got in this position where I had to start talking to people, because why not? And do you have any idea how many people were like, what's Juicebox? Because I had to have a thing, right? And I'm like, Oh, I make a podcast about type one diabetes. And they're like, you know me, people are like, Oh, my son has type one my gosh, I get so many conversations, right? Maybe two hours into this thing, my brother's talking at a table. I've gotten my card signed already. By the way, I'm an adult. I could have just forged the card and handed it in as my entry. But no, I got people to sign the card. I have this feeling that someone's looking at me, and I look over and there is a guy standing in front of me, and he is like, eyeballing my name tag. And I was like, he probably just is, like, what is Juicebox ridiculous? You know what? I mean, I might have smiled and I kind of looked away, and then a brief moment later, he kind of reappears in my peripheral vision, and I'm like, okay, something's happening, right? So I turn I go, Hey, man, can I help you? And he goes, Are you Scott from the Juicebox podcast. Oh my god. And I was like, I am he goes, Oh, like, AC is a vendor there, and where he worked for the event, maybe I forget. And he goes, I saw your name on the list. And I was like, that's crazy. He's like, my wife's such a big fan of your podcast, no way. And so he's like, talking to me and everything, and it's really nice. And we're chatting for a couple minutes. And then it occurred to me, and I was like, you want a picture to send to your wife? And he's like, Yes, please. And I was like, oh, okay, this is crazy. So we take a picture and say thank you and everything, and walk away, and my brother goes, What are you famous or something?
Kirby 47:13
You're like, yeah, in a community.
Scott Benner 47:16
I said, Well, I usually say to people like, yeah, diabetes events, I am right, but yeah, wasn't a diabetes event, and I was like,
Kirby 47:25
That's wild. Is that the first time that's happened outside of something connected to type one?
Scott Benner 47:29
I have been recognized for my voice once in public. I could see that I had a person across an airport to say hi to me once, and I couldn't believe they even recognized me. That was crazy. Yeah, this was different, because I just got back from, like, I went to friends for life, I did a bunch of stuff. Like, there's no doubt, like, in those settings, I'm famous, but you take me out of those settings and, like, no one knows who I am, and honestly prefer it that way, right, right? But anyway, so we're driving home from driving home from that, and I'm listening to a podcast. Watch how I put this all together. This is why I have a podcast, and you don't. I forgot yet, I don't yet I was talking to everybody, not just you, okay? And also, don't start a podcast. It will not work. You'll just own a microphone that you have to embarrassingly explain to friends later. Okay, all right, thanks for the advice. I'm driving home and I'm listening to a podcast, and it's a CIA agent who wrote a book, and I don't know, I'm just listening to him tell his story about being a CIA agent, and he said this thing, and he just said, you know, there's the way people want the world to be, and there's the way it is. And that popped into my head when you were like, Well, what I wish people would do is, like, give, like, master classes on but there's a way the world is, and there's the way things are for real, you know, and the way you want it to be, and the way I want it to be, I wish that person would do that class, right? Yeah, but along the way, the hospital is going to say, like, wow, we don't want, you know, you don't work here anymore, you're not covered by our liability insurance. Or, you know, not everybody's gonna understand, or not everybody will be able to agree on what gets said in the thing. And people will, like, you know, go back and forth for years and never, you know, never come to any conclusions. It's why I like the DIY algorithm stuff so much, you know, like, you know, trio and loop and Android APS, why I think that's so amazing, because it doesn't get caught up in committee. And when it does, somebody just takes their stuff and runs into a different branch and goes, Hey, you know what? I was arguing too much with that person over there. Here's my version of this. Right, right? I wish the world would do that more often with these things, yeah, yeah, but I don't think it's gonna happen. No,
Kirby 49:36
it probably won't. And the thing is, though it does, none of it happens if somebody doesn't try to make it happen, right? No, it won't. And it is. I mean, I guess it's just an expression of frustration, because it seems completely ridiculous in my mind. So it's like, red tape, your bureaucracy, just and egos and all of the stuff. You know, it's like, just do the right thing. It's not, I. That hard.
Scott Benner 50:02
You know, I know no one's gonna do it, because you live in the real world. Well, because, well, I am a realistic person, but I've been listening to a lot of stuff about stoicism lately. I'm wondering if I don't lean that way, it's not for this right now, I think I believe it's not going to happen, because it's easier for it not to happen. Oh, for sure, it's proven to me over and over again, because, because of all the and I'm glad they do it, and they should, but the amount of actual, like professional people who direct people to the podcast is an insane number of people. So that's them saying. That's them having the same thought that I'm having. Like, look, I can tell you about this, but I'm gonna get fired. And if I tell you to Pre-Bolus, like I just heard from somebody recently who got chastised a professional person who got yelled at in a doctor's office for telling somebody that they might have to Bolus for a fat or a protein rise.
This episode was too good to cut anything out of but too long to make just one episode. So this is part one. Make sure you go find Part Two right now it's going to be the next episode in your feed. The podcast you just enjoyed was sponsored by tandem diabetes care. Learn more about tandems, newest automated insulin delivery system, tandem Moby with control iq plus technology at tandem diabetes.com/juicebox there are links in the show notes and links at Juicebox podcast.com Arden has been getting her diabetes supplies from us med for three years. You can as well us med.com/juicebox, or Paul, 888-721-1514, my thanks to us, med for sponsoring this episode and for being longtime sponsors of the Juicebox podcast. There are links in the show notes and links at Juicebox podcast.com to us, med and all the sponsors. The podcast episode that you just enjoyed was sponsored by ever since CGM, they make the ever since 365 that thing lasts a whole year. One insertion every year. Come on, you probably feel like I'm messing with you, but I'm not. Ever since cgm.com/juicebox Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox podcast.
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