Scott Benner 7/9/20 Scott Benner 7/9/20

#354 Sweet Song

Jaime is her take-out name…

Jaime moved to New York from China. She was initially mis-diagnosed with type 2 diabetes before learning that she had type 1.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to Episode 354 of the Juicebox Podcast. Today's show is sponsored by oh geez, I don't remember what sponsored by hold on a very back. Sorry about that I'm back. This episode of The Juicebox Podcast is sponsored by Dexcom and Omni pod, find out more about the dexcom g six continuous glucose monitor by going to dexcom.com Ford slash juice box. And to get a free no obligation demo of the Omni pod tubeless insulin pump sent directly to you or just to find out more my Omni pod.com forward slash juice box. Jamie's on the show today she was typed to before she was type one, meeting somebody misdiagnosis type two. But she has an incredibly different perspective than most of the people coming on the show because she came to America from another country to study here. So she knows two different worlds. I want you to remember two things. Don't skip forward because you think I'm just going to tell you that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, please always consult a physician before making any changes to your medical plan. or becoming bold within some you think I know that Scott. I was going to skip through it. But there's something else I'd like you to check out juicebox docs.com and diabetes pro tip calm. Those are two URLs I've set up. One to get you to the ever growing list of great diabetes doctors that have been sent in by listeners, you can add yours to the list by the way. And at diabetes pro tip calm. All the diabetes pro tip episodes are collected in one place for those of you who would like to listen to them again, or share them more easily. So that's pretty much it. I want you to get ready for Jamie, Jamie's got a little bit of an accent, but you'll stop hearing it in just a couple of minutes. She's got a really great story.

Unknown Speaker 2:06
Hi.

Jaime Song 2:08
Yeah, it's been a while I feel like I'm almost like a completely different person. Since I sent you the email.

Scott Benner 2:18
You know what I really, really thought that's what was gonna be you know, when when we started talking, because you were at the very beginning of an incredibly confusing journey when you sent this email.

Unknown Speaker 2:29
Yeah, it is.

Scott Benner 2:31
So why don't you go ahead and introduce yourself? And then we'll pick through it a little bit.

Jaime Song 2:35
Yeah, sure. Yeah, it sounds like an interview. So my name is Jaime Song, I have a Chinese name as dunking song, but it's hard on like American people to pronounce that. So Jamie is my reservation name and take our name and everything.

Scott Benner 3:01
By reservation, and

Unknown Speaker 3:04
yeah. So,

Jaime Song 3:07
um, so a little bit about my journey is think I, it's a long story, actually. Because right now I'm 29 years old. But why was like 18 probably even earlier, I started start to have those low, low blood sugar symptom. Um, I always want to learn that long word like that fancy word, but I haven't. So I always like sweat. And like, it's always like after two hours of eating, or it's either around midnight, or it's like I had breakfast at 8am. And I start to have this crazy, like, low sugar symptom at 10 or sometimes 12. I've known So, but we didn't figure it out. I I feel I am a constant visitor to hospital because I wasn't like that much of a healthy kid. Why growing up. So, but we, like we see doctors like Western medicine doctors and also Chinese medicine doctors. They didn't know like, what is happening and I was having anemia back then. So until then, like until 2013. I came to United States for my master's program at Columbia University. Somehow I got something checked out and the nurse was saying oh, you need to watch your Avon see, because it's elevated is it was like I didn't remember the exact number is is a 4.8 or five point something so Oh I, so I, I saw, like, Oh, I probably need to exercise. And I remember I started running at that time at the gym of the university also, I I run like all doors and like, start to eat salad before that I never saw like salad as, like a meal like, because I feel like it's just raw vegetables. But um, I did that for a while also i remembering like, in year of 2015, I start to see a specialist, like, she's a handle, but like, in the hospital near our university. And she was like, uh, give me a bunch of like, strip strips, and also the meter. Want me to take my sugar after the meal before you and before bedtime? Like for four months? And as that time she saw it and she says, Oh, it's still okay. Like, I don't I cannot give you any diagnosis right now. But you need to watch your diet and exercise. So I got him I think definitely my a once you was five point something. And

Scott Benner 6:23
then you were thinking, Well, everyone was thinking you were about to get type two diabetes? Is that what was happening?

Jaime Song 6:29
Yeah, I think so. Like, she's more like towards that. Because also she wasn't sure she said, I don't know if you are type one or type two. But until now I realize she could have test my all my antibodies, or like, yeah, to make sure like to figure out what is happening but she didn't she just let me go home. So I saw nurse like a world like that Titian to like she taught. She taught me how to eat berries, like how many very detailed and how to control my diet. But then last for a while. I was eating healthy, I was exercising. But I and then I had a room another roommate, like, right, like me a lot like sweets. So wait, drink Coke, like, whatever, like even doulos like there was there's a Xiang famous food near Chinese University also, you know, like Chinese, Mr. Chinese. So our diet is more like, heavy on carbs. So I basically like last day, like, at that time, I feel like something changed at my house. Like I was thinking because our exam apartment wavefront is like, more towards like, indoor, like, the window doesn't have that much light. So I was like, during the weekend, I can sleep through like noon or something. I was quite sleepy. Also, I feel lazy or like lethargic. Almost like, since I was 15 or 12. Because I start to I can a lot of weight when I was in middle school like Klaus I was I don't know how much pounds, but I was like 45 kilograms. Why was tough, but I jumped to maybe almost

Scott Benner 8:38
like 60 Why was like a, you know, over for period of time. And that was that was all wait, you didn't get like incredibly taller at that time or something like that to?

Jaime Song 8:49
Not really because my height is five, four. Okay. Um, so it's around that I hide almost all the time. So I can wait, I was skinny. But because while I was in middle school, my mom suddenly start to cook very, for her cooking skills. Like I turn into another person. Like, it's really delicious. It's got better. So so so I start to eat more. And also the the work has schools start to pick up so I don't run outside all the times. Instead, I stay inside and do my homework all the time. So again,

Scott Benner 9:31
a lot of Wait, can I ask you? Have you ever had your thyroid levels checked?

Jaime Song 9:37
Carol level? I think so. Yeah, I think that's why so my endo. Like why go my final diagnosis. Before that. My endo saw my thyroid level. She was saying something.

Scott Benner 9:51
Yeah. Because my thought there is if you had a significant weight gain out of nowhere and you're lethargic, and you're sleeping a lot that that all could lead to hype. hypothyroidism. Oh, which Arden has and oh, I see and it's very similar. I've you know, Arden didn't gain weight with it she just got really tired and, and and Arden's the same way if you blackout her windows, she'll sleep forever. Forever. Yeah,

Jaime Song 10:22
yeah, I heard you talking about this before on the podcast.

Scott Benner 10:27
Yeah. Oh worth looking into. Can I let me pick through a couple other questions too. So,

Jaime Song 10:32
where did you grow up? I grew up in China. What?

Scott Benner 10:37
How would we like where abouts in? Like, is there a problem? How do they How do they split China up?

Jaime Song 10:43
So it's a it's in the middle, if you have ever heard of Shaolin Temple is CRC. Okay, so our province is called Hernan. And our city is jungle. So it's not like really famous city like Beijing and Shanghai, but it seemed the right right in the middle.

Scott Benner 11:02
And you were there until it was time to come to? To do your graduate work?

Jaime Song 11:08
Yeah, almost. I had my college not far from my home.

Scott Benner 11:13
How does that work? not to get too far away from diabetes for a second. But how does somebody how does someone from the middle of China who assuming obviously is a really incredible student, how do you find your way to Colombia?

Jaime Song 11:24
Um, I think while I was in college, my cousin was telling me someone, her, her like, classmate because she was having a master's degree is getting those tests called gr. e. And TOEFL. And I was thinking about it, because either I'm going to graduate school in China, or I'm thinking about here. So I definitely want to go outside and check it out. What is out there? So I start Yeah,

Scott Benner 11:57
did you take care? Yeah, I do. I do tend to be a doctor.

Jaime Song 12:02
Oh, no, I think it's because I'm, I was studying math.

Scott Benner 12:07
Mr. E is the prayer physician. Oh, yeah.

Jaime Song 12:10
Yeah, I think so. It's a separate thing. So Jerry is more for signs.

Scott Benner 12:17
Subject, okay. Okay, so let's pick a little more through so because you said something here we have friends who are Indian. They, they say that the incidence of type two diabetes in Indians living in America is incredible. Because of that, again, their diets are so like, really, like, carb heavy, and like, you know, sauces and stuff like that. Yeah. And so you grew up with the same thing. Now? How about back at home or their or their family members with diabetes?

Jaime Song 12:48
No, actually, no, not. Or, like, my grandparents, they they passed away quite early. Also, at that time. They don't have this sort of thing to check out. Check it out. But none of my parents siblings who work themselves have heaven.

Scott Benner 13:09
Gotcha. And so there's nobody who can help you at home and you're just you're here trying to figure it out on your own. Do you go to the doctor at a private physician? Or do you go through the school?

Jaime Song 13:20
Um, so at that time, I I call that first like, I usual a once a school and then I graduate, I start to work, so yep.

Scott Benner 13:33
Now you're now you're a real person with a job? Yep. Okay, so is it at some point, someone figured out a weight? I had one more question that I'm sorry. You said that with the with your diet being like heavy the way it was at home and you got here you describe like, you know, like to like drink soda and eat carb heavy meals, or all those things were available at home or was it sort of the situation where you got here and you're like, Wow, look at all of these options I didn't have before.

Jaime Song 14:05
Oh, you mean heavy carbs?

Scott Benner 14:07
Well, I even like Coke and like stuff. Yeah. Is that universal? Or did you get here? Yeah. Presented much of things.

Jaime Song 14:15
I think is universal like, um, because why was little like, I feel I was drinking soda growing up. I am such crazy fun about coke.

Scott Benner 14:31
Was it like a sign? Was it like a Hey, this is American. This is cool. Like that kind of feeling?

Jaime Song 14:37
Ah, not really. I feel like life wise. It's miserable. Sorry, no offense. No,

Unknown Speaker 14:42
no, no.

Jaime Song 14:44
Um, because I feel like um, oh. I would say the western food I had at home like we had Pizza Hut at home. It's more like a sit down like diner like cheese factory. We're like more fancy diner like in China. So all the pizza burgers KFC, like McDonald's are customized to Chinese like taste. I would say I would rather have KFC in China than here. Because, yeah,

Scott Benner 15:18
it sounds to me like, America is planning like, we're attacking you with bad restaurants.

Jaime Song 15:27
No, it's delicious. Actually. I feel like when I was growing up, KFC would be like, a more better meals and like as a meal say it's more expensive and also like,

I couldn't have it every day. or right.

Scott Benner 15:44
Was it tailored? Was it tailored to Chinese culture? Or was it chicken and mashed potatoes?

Jaime Song 15:50
I think it's tailored to Chinese culture. It's mainly I feel like I I always had that impression like McDonald's and KFC. Chicken burgers. Only a few like, beef burgers, but here I feel like most of the beef, most of the burgers like Shake Shack. Five Guys. Also like my McDonald's, they have more like beef burgers,

Scott Benner 16:20
right? I understand. Okay. That's really it's crazy. How did you speak any English when you got here?

Jaime Song 16:28
Oh, yeah. Yeah. Because as TOEFL is a language test, it has like writing, speaking, listening. And what else? Yeah. So it has everything. So you have to get certain braid to get get getting into a good school.

Scott Benner 16:45
Gotcha. Gotcha. That's really cool. I you're, I mean, what are you doing now? You said you're out and you're working? What kind of job do you have?

Jaime Song 16:53
Yeah, so I work in pharmaceutical right after my graduation as a analyst, more like statistical analyst because I went to a stats program. Now I'm, like software year, like, completely different,

Scott Benner 17:12
just not with farm anymore.

Jaime Song 17:14
No, I'm with a bank. I'm with JP Morgan right now. Wow.

Scott Benner 17:19
Geez, you killing it?

Jaime Song 17:23
Yeah, it's not really hard. It's just some.

Unknown Speaker 17:28
You said it's not hard.

Jaime Song 17:30
Yeah, I will say I feel I am a average person. especially among Chinese. So yeah, I feel like if you just apply, apply, keep applying. So you get it.

Scott Benner 17:44
Jimmy, smart. People always think they're not smart. It's very interesting. I'm average for you know, a statistical you know how that goes. So at what point? Because Do you consider yourself type one now?

Jaime Song 18:01
Yeah, I think so. Yeah. Because the funniest story is, actually I got my first diagnosis in China. Because I was drinking sodas and now care about my life at it at all. While I was traveling back to China, I think 2018 February. So my cousin was staying with us. She's a nurse. So she was saying, oh, why don't you get your sugar check? I know you have this problem. I said okay, so we checked the fasting sugar. It was like eight point something nine point something. It's right now I'm thinking probably 140 something as measure here. So that was like quite high and she checked a few times or twice or three times. And then she said you need to see a doctor. So me and my mom just hop on a taxi and went to our big hospital there to see the doctor. I saw we were just like, like we always do we sorry, we check like we check with a specialist. I thought we were going home but she was saying because I only had vacation for like three weeks or something that was almost like halfway through it. She was saying oh you need to be like stay in hospital if you want to check all your things. So we did over wore checked because I was complaining. I was having a low blood sugar. I I don't have really any feeling when the sugar is really high. So they'd either over or check like even something like eat they had some fancy check is like checking. I think they did that safety or something. they inject something into my arm. And they can scan me to see the shape of my pancreas. They were sick. Yeah, things as it were sinking, I have some tumor on my pancreas or something is causing me low blood sugar. Because I didn't find any tumor and they put on us like CGM ami, actually, it's quite like, I feel is a dinosaur model or like something where So anyway, like, they check if I will have low sugar symptome also they, they will because I'm in hospital, they will come like, even during the night, they will come like every two hours to collect my blood and check my sugar. And after that, they were saying, Oh, you are like, type two you need. This is my foreman, and another drug I forgot. So take Metformin and just

pass your blood and do this.

Scott Benner 21:05
And so when you so you're in China, they're doing these tests, they felt like this was tight to still there.

Jaime Song 21:13
Yeah, yes. Because this because I feel I'm 130 pounds at a time. So if I Oh, you're not really skinny person. And from my sugars, they also stats, they were saying oh, you you're probably have to. It's also

Scott Benner 21:33
funny how they do that with certain ages and certain body types. They just make a leap. And they decide, though this is type two diabetes and like you said they probably could have checked for anybody's for type one and had a better answer. But then you got to put on Metformin. How did that process go? Like how does treating a type one like a type two affect your life?

Jaime Song 21:54
Yeah, sure is mostly like emotional, like impact. Because I came back here, I started to see my primary care physician to continue my prescription for my my foreman. And I thought because at that time I start to pick up all the exercise, I run our building have some class, I almost like attend them all. So I exercise like two hours a day. At least list so as I have I am losing weight. Also. I feel like promising. I was thinking Oh, if I keep exercising and eating healthy meals, I will be off this I will be cured. Yeah, you'll get rid of this. Right? Yeah, yeah. So but I still want to confirm this one with a specialist here again. So I went to Columbia in niomi Diabetes Center

make made an appointment. And

and I think I only called the appointment like until like five months later. But before that I was attending classes. They require you to attend class to see a doctor. But that's apparently like a type two class. Right. So my. The certified diabetes, diabetes. Yeah. educator. Yeah.

Scott Benner 23:30
You call that a CBE? That can be their their? Their name? Yeah,

Jaime Song 23:35
yes. Yeah. My city is like she was hosting. She's teaching those classes. She was saying, oh, there's probably something wrong with your case. Let me like, give you an appointment like four and Oh. So in the meanwhile, you just keep your diet like, better this way. And that.

Scott Benner 24:00
Yeah. So how hard was that for you to just change your diet immediately. Did you think Did you struggle with that?

Jaime Song 24:08
I don't think so. I was more like, afraid of that. So I changed immediately. Like snap your finger like, I never. I feel like that. That was another extreme. Like I barely eat. I feel like my my eating like dropped like, must be like 50% so I lost a lot of weight at that time. Also, I was afraid to eat. I was very careful with everything I'm eating.

Yeah, but

Scott Benner 24:40
that sounds did that. Did did your change of diet affect your tiredness? Did you stop feeling so tired as you lost weight?

Jaime Song 24:49
No, I think it's getting worse. Okay, sure.

Scott Benner 24:51
Okay. Yeah. And would you call that like you have like, like, brain fog or you're kind of foggy when you're trying to think again. Do you have like muscle aches, joint pain? That kind of stuff, too?

Jaime Song 25:03
Yeah, I think I have brain fog fog, like for a long time, especially before my period like something like, yeah, I think before. Yeah, it got.

Scott Benner 25:15
So let me suggest this to you if you have someone look at your thyroid panels again. Mm hmm. And the numbers aren't out of range, but they're like a little high or a little different. So ask the doctor to give you medication anyway. Sanjay say can I just try it anyway? Because I've heard of a lot of people whose tests come back in range, but who have hypothyroidism and and here are my symptoms. My symptoms really seem to match hypothyroidism. Because I'll tell you why. My my wife realized she had hypothyroidism after she gave birth to Arden. And for seven years, doctors wouldn't listen to her about it. Seven years. And it really impacted her body and her health and everything. And then one day in a doctor's appointment, we just said to the doctor, I don't care what the panel say, Give her the medicine. And two weeks later, she felt better. Oh, so I don't don't struggle with it. Just because that number is sitting in a range because it's very common for people to have hypothyroidism and not be in that range. Or I should not be out of the range. I'm sorry.

Jaime Song 26:21
Yeah, I see. Yeah, I would definitely check out with my doctor but but I think right now is everything turns wrong. Like I think is I'm all already above a year actually, I feel like a year is really a threshold. Because I remember myself like crying. Like why her my doctor calling me like Oh, your antibodies came out you I think you are definitely a type one diabetes.

Scott Benner 26:49
Patient crying because you were happy to have a good diagnosis.

Jaime Song 26:53
crying because after eyes Oh, I I saw I'm have to I'm still getting control of this. But now it's like, I need to be on like being a bit dependent on insulin forever. So I feel like that was a shock. Okay.

Scott Benner 27:14
Yeah, I can see did did that push it into any kind of did you experience any kind of depression around this time?

Jaime Song 27:20
Oh, no, I think I was a little bit depressed at the moment, like a few months. Also, I didn't really use insulin that much either. Even though I was prescribed also I think as my first try I use like two units for like 40 something carbs or I got like low. Okay,

on the first time, so I was even more scared.

But I think everything changed after one event. Maybe because 2018 like 2018 July God the first like, Type One Diabetes diagnosis and 2018 December I went back home again. And they put on CGM like I was doing over or checked because in China like if you go to hospital they will check everything for you. Now here like why tell if I tell my doctor I have stomach work like something else happening I will have to go to see a separate specialist. So they are even though they are specialists, they will probably they will call consultation for other doctors but they will check everything for you to the all the labs. So they put on the freestyle CGM ami. So I saw Oh, actually, I can see my sugar this way instead of poking myself like 10 times a day. So after I came back I I get my doctor to get me like freestyle CGM. But that was my primary care physician. So I didn't know like I didn't. I lost touch with my endo. Like, ever since. So I was like, I wasn't sure like what it was. I'm using. So actually, I made an appointment with my uncle A few months later on, she was saying oh, here as a Diabetes Center, actually using Dexcom because it's more accurate during the night, right? Also I feel I'm I feel like swiping is so stupid. I have to scan a layer every time. I feel like I'm a food like a frozen foods like from Trader Joe's. What was checkout I knew to scare myself.

Scott Benner 29:58
I never thought of it that way. But you're just passing yourself over top of that glass thing. Beep

Unknown Speaker 30:05
Yep.

Scott Benner 30:06
Yeah, that's fine. It's very funny. Jamie, that's hilarious, actually. I mean, I think, you know, if Next comes, if you can afford next comments, I think it's a huge leap over the Libra. And you know, people say, Well, we braise less expensive. So it's all I can afford, which I think if that's the case, there's nothing wrong with it. But I have heard ideas of it being less accurate, too. So it's, it's a, it's a tough call, like, you know, there's a lot of a lot of different things that impact what you can afford and what you can use. And I think you do your best. So how so? I guess let me just start here, like, like with the type one, how long have you been living with your type one diagnosis now?

Jaime Song 30:53
thing is

one year and three months

Scott Benner 31:00
with the Type One Diabetes diagnosis. Yeah. Okay. And you said something at the beginning, you said that when I sent you this email, I was a completely different person. And you've described pretty well now how, like, what the person was you were back then. But what what is your situation now? How do you how do you see yourself now, if you were to write me again today to tell me about your diabetes? You know, how would you How would you characterize yourself?

Jaime Song 31:27
I think, probably, um, I feel like more. Right now, at that time, while I was reading you the email, I feel like diabetes is like, 99% of my life. Right now. It's like, it's just a sitting quietly in a corner is like five person or like, 3% of my life.

Scott Benner 31:51
I like the I like the the vision of it just sitting quietly in a corner. I think that's how did you get to that place?

Jaime Song 32:00
I think it's a lot of, I think you're just some

Ah, I think it's like, it's like, debugging, or like, if you don't do the right thing, it won't work. If you just constantly struggling emotionally, and banging or had to say things repeatedly, by doing the wrong thing, it will never get better again, like, will never happen.

Scott Benner 32:27
So you just looked at the steps that needed to be taken and you make sure to take them.

Jaime Song 32:32
Yeah, I think you just saw need to, because right now I'm, like, constantly seeing or, because my allowance is really like, perfect, quote unquote. My one C has been like 5.5. Wow. Like, twice, or it was, once I use insulin is always like four or 5.8. Like, when I'm sloppy six point something. So I'm always like, 5.5.

Scott Benner 33:03
That's amazing. How, how have you been? I mean, where did you is the doctors, I guess the question I should ask is, the doctors you met put you on a plan that is really helping you?

Jaime Song 33:13
Yeah, I think that's definitely helpful. I think the way my Diabetes Center is doing things is very, like, logical and organized. And I got all the information I need. And they're always there for me. And also, I feel like because I only I'm on, I was on injection until you think September or August. I use my pen to inject insulin at the time. But I was browsing this beyond hype one. forum, I put up a question there. I was, I was asking because I was listening to your podcast a lot. You're talking about Omni path. So I want to check it out. I say I reached out to them in the beginning, because I I don't really use as think as much insight as other tech one right now. So in the beginning, first time, I call them call the Omni pod saying oh, I want to check it, check it out. If I'm I'm able to do this. But they said what's your injection dose? I I told a number to them. And they say oh, you don't have minimum. So probably cost back later. Also, my city was saying, Oh, I think we still have a little bit time. So you can just use a injection for now.

Scott Benner 34:44
Are you wanting to get away from injections?

Jaime Song 34:46
Yeah, I'd certainly do like because I'm a big fan of like all the garbage trash. Food like cakes.

Unknown Speaker 34:59
Babies like Listen, I really would like to get back to.

Jaime Song 35:05
Yeah, because I heard while your back pocket podcast was saying he wanted to eat a chocolate muffin, and you have to create a blanket of insulin for her to absorb all the carbs,

Scott Benner 35:20
it's those chocolate muffins at her school are difficult. But I haven't figured I have figured them out. But they did take some. They took some trial and error for sure there's a, a pretty hefty amount of I don't know what it's also interesting because I never with her. So when she has, I don't get to see them. I don't get to look at the nutrition labels. You know, we just sort of wing it. She's always, you know, kind of rolling now out of our class real quick to go grab one and then goes back and it took us I bet he ate about eight or 10 of those muffins before we got that straight. But yes. And you live you live in New York, right? Are you? Yeah. It's a city full of bagels and muffins and pizza. And you know, a lot of stuff like that. And you're trying to live your life. And that's what you want to do. Are you still are you still exercising the way that you did?

Jaime Song 36:09
Yeah, actually, I recently because I also read that American Diabetes magazine Association magazine, it was saying, if you I used to run also, like, almost I exercise after each meal, like, but I own like elliptical like slow motion, like, not really intense. So I recently read like, because also I'm gaining weight. So my city is saying try cardio exercise. So I start to run. And I'm joined, I joined a club, a running club with all the massive runners. So I trained. I only joined them once one month now. And I trained with them like 6am in the morning, twice a week. And then I read about this on the magazine saying, if you exercise in the morning before breakfast, it will be better on your sugar tolerance and our bed saying it's better on your finger. Okay,

basically. So

also, I saw that if I run in the morning, like say, eight miles, I'll be meeting, I'll be meeting like less insulin design normally would. So I have been trying to run my five miles every morning. For like, two weeks now I feel is working very

well for me. Well,

Scott Benner 37:38
that's excellent. Where did you find the podcast?

Jaime Song 37:42
Um, oh, yeah, I found the podcast on the magazine. I'm American.

Scott Benner 37:48
Oh, uh, when they did that thing last year on the on diabetes podcast in the ABA magazine.

Jaime Song 37:54
Yeah, yeah. I think that.

Yeah, I think that's the only reason like, I got out of the depression. Like, I was feeling like miserable, like, deprived and so depressed until I heard your podcast, you are so funny. And you're always like, making joke of all those things. And also, yeah, talking about eating away. Like, I feel like, it's no big deal. You just have to

Scott Benner 38:26
do our thing. And does it helps to feel that way like that. It's just you got to see that's how your brain works, though. Right? Like I, I basically said, they're like, if you just do this, this, this and this, it should work out. And that that makes you happy. Like the idea that there's a process there?

Jaime Song 38:43
Is that Yeah. Is that right? Yeah. Yeah. That's cool.

Scott Benner 38:46
Well, I'm very happy that you found it. And that it that it helped you. Sincerely, I'm huge in the center of China, from what I understand. I'm just kidding. I don't think. Yeah, you are. I don't think anyone listens in the center. It's, it's really wonderful to hear you say that. And it's, it's hard to know how to, to answer somebody when they say something like that. It feels it's nice. And at the same time, it's, it's, uh, I know what the podcast is. And I know how it helps people. And still when somebody says it right to your face. It's, it feels strange. So I really appreciate you saying it. I'm happy for you. I wish I could be less awkward about answering.

Jaime Song 39:29
Yeah, I really yeah.

I really appreciate this because I feel I really like turn my life around completely. Like, yeah, this your podcast is I it has huge impact. Like, I don't know how many people like me, but like it's, yeah, it's amazing.

Scott Benner 39:51
Well, that's cool. I just looked actually and in the last, it has been downloaded 500 times in China in the last like year and a half which is not You know, not a not a lot in the grand scheme of things, but it is a lot when you consider I don't have any impact in China. I don't think. So that's, that's really cool. Well, I don't like you threw me off a little bit saying nice things. I'll tell you what, if you could give me like one minute actually Arden's sleeping in today, and I just need to change to her and some I'll be right back. Okay.

Jaime Song 40:27
Yeah, sure. Sure. Take your time. Thanks. Yep.

Scott Benner 40:31
So what are you doing after the podcast? Don't worry, I'm not hitting on you. I'm just saying maybe you should take a look at the Omni pod tubeless insulin pump and get yourself set up with a free no obligation demo. Alright. Hold on. I got an itch on my head here. It's very distracting. This is not what a pod sprayer for. Hey, on the pod. Appreciate you by the ad where I'm scratching my head. Don't worry. I'll do the IBM Oh my god, that was weird. Check for something I could have an element. When you go to my omnipod.com forward slash juice box, you are going to be presented with information. Wow. Huh? God damn. Sorry, about my voice broke. All right, hold on a little water. Goodness me. You're going to be presented with information about the Omni pod tubeless insulin pump. Now this is information that you want to have trust me, my daughter will be turning 16 in just a couple of days. She's been wearing it on the pod every day since she was four years old. It is in fact, exactly what it says it is. and not many things in life are. It is little, it is convenient. It is tubeless. It is discreet. If you want it to be. You can wear it loud and proud. Or you can hide it away. It doesn't matter. It's not going to cause you to need tubing snaking all through your clothing. It's not going to make you disconnect to shower, to take a bath to go for a swim, to play soccer hockey, go for a run whatever you do, where this tubing would be a problem for you. The Omni pod will not be a concern. And on the pod is so sure that you're going to like it. They're happy to send you a free, no obligation demo. That's why you go to the link, Miami pod.com forward slash juice box. Fill in a tiny bit of information about yourself. And on the pod will whisk right into the mail. A demo for you to wear. And that way you can swim and run and sleep and do whatever it else is you do and do whatever else it is you do that you'll also be doing with your insulin pump. You can give it a test drive. That's not bad, right? I mean, they call it a pod. What do they call it? They used to call it a demo kit. Now they're calling it a pod experience kit. But I like test drive. Nevertheless, let's not confuse the marketing. Get yourself a free no obligation pod experience kit from Omnipod. Today, you will be happy that you at least tried and there is no no harm and trying. Right? Give it a shot. Imagine yourself in your desk chair, leaning against the wall in your kitchen. I don't know where you lean in the kitchen counter later when I'm in the kitchen. You've got your phone there, your laptops out and you've just gotten you're on the pod demo squared away. It's on the way to you and you're feeling good about yourself. But you want to feel even better. This feeling should send you directly to dexcom.com Ford slash juice box. Why you ask? Well, because everything you want to know about the dexcom g six continuous glucose monitor that you don't already know they haven't learned here on the podcast is available@dexcom.com Ford slash juice box. I'm typing it in right now. The website pops up and boom, there it is gorgeous. The dexcom g six there's a transmitter, the receiver you can see that you can use it on your iPhone or Android shows you the sensor. My goodness gracious, everything's right there. super exciting. Now super exciting for everybody in the world. Probably not everybody, but for someone using insulin. This may not be judged against any other exciting things. Understand I'm saying it already won Dexcom is the most exciting thing you could do for your type one diabetes.

Keep in mind if this was an omni pod, I would say the most exciting thing you could do for God. You know you what I'm saying? You know where I'm at on this. There's no parsing words. I'm an omni pod and Dexcom fan. We use them both. We've loved them both for a decade or more. And I know what they bring to your life. But at the moment, we're talking about Dexcom. So the Dexcom to the best, sort of like when you're talking to friends about who's most attractive. It's whoever you're talking to. Right? Patty? Oh, but you, you're gorgeous. Anyway, Dexcom, the G six, no finger sticks, glucose readings right on your smart device, customizable alerts, and alarms, seeing the data that gives you the answers to how you can use your insulin more effectively. That's how I use it. I mean, sure, it's indicated for kids, too. And plus, and it's got Siri integration. And of course, you can share your data with loved ones up to 10 people. But you know, at its core, the Dexcom is that great information, that tells me I'm rising, I'm falling, how fast so you can do something about it. Be healthy and safe. That's what you need to know. dexcom.com forward slash juicebox. Dexcom is the most attractive of my friends, right? Until Omnipod gets here and then I'm just going to go off in a corner and I'll be like, Hey, Dexcom I'll be back on one second. Hello on the pod. You're so pretty. links in the show notes of your podcast player. Where Juicebox podcast.com. Upgrade your health.

Okay, so I have questions that have nothing to do with diabetes. Do you mind?

Jaime Song 46:31
Yeah, not at all. Go ahead. How?

Scott Benner 46:36
I love crazy rich Asians the movie?

Unknown Speaker 46:39
Ah, do you?

Scott Benner 46:40
Is it a caricature that you think is ridiculous? And the only something that Americans would like? Or is there any accuracy to it? Why is it that every time it comes on cable, and I noticed some like oh look, there's that movie again? And then I end up watching it?

Jaime Song 46:54
Um, I liked the movie too. But I feel I saw a little bit Hollywood pies.

Scott Benner 47:03
Oh, I wouldn't I would imagine I was. I was imagining I didn't think that everyone in China was running around incredibly wealthy wearing like, million dollar outfits and stuff like that. But yeah, but but but how does the How does it compare? How much cinema Do you get in China first, I guess?

Jaime Song 47:20
thing every few blocks or a lot? Yeah.

Scott Benner 47:25
So are there movies that are made in China that you grew up watching? Or do you see a mix of those plus, like imported movies?

Jaime Song 47:34
I think is some probably more Chinese movie now. In China, China.

Scott Benner 47:41
So there's a there's a there's a like a Chinese Hollywood somewhere.

Jaime Song 47:46
Oh, probably because I feel like entertainment is pretty like active right now.

Scott Benner 47:51
Yeah. How can you guys in China, people always say and I have no idea about this. So I'm dying to know that your technology is way better. Your Wi Fi is way better, like infrastructure. Is that true?

Jaime Song 48:05
Ah, I will say yes. I feel I would have I go back I will be like go back to the future.

Scott Benner 48:12
Ah. So you guys so you like like your cell phones are like better?

Unknown Speaker 48:19
Ah,

Jaime Song 48:20
actually, I never use a Huawei phone. But my parents use and also one thing different is like, you know, in Chinese show drama shows it used to be like the the they're using iPhones in the show. But now it's all hallway show. A Huawei phones?

Scott Benner 48:39
Oh, okay, so Chinese made phones? Yeah, yeah. And seriously, the Wi Fi way better, right.

Jaime Song 48:46
Wi Fi actually, I think there are always Wi Fi like,

in shops

bought I don't think Wi Fi is on the road yet.

Scott Benner 48:58
Or wait, but you live in New York. So it's there in New York. Most people don't have it the way they have in New York where it's kind of covered everywhere.

Jaime Song 49:07
But New York Wi Fi. I don't know if I connected the wrong world. I'm too impatient. Like it's always Oh, I'm listening to your podcast and sighs it stopped because I connect to New York City WiFi,

Scott Benner 49:20
and then it doesn't work as well.

Jaime Song 49:22
Yeah, I don't think so. We're like, I just turn it off. Because I have like unlimited

Scott Benner 49:29
data, you can do that. So is there I guess the question I want to, I want to understand is I understand coming here to to, like, want to, like absorb what Colombia has. Mm hmm. And do you stay behind because you like it here because there's better opportunity here. Like that's it. It's an interesting thing to me like to move away from home even if it wasn't from country to country if you you know, move away from home and then don't go back is it just this is where you feel like you live now.

Jaime Song 49:58
Um, I will say Still thinking if I would go back or not because I'm the only child in the family also, but I feel like right now because with I'm using Omni pod I'm using Dexcom is like if some in the future something comes out I feel like it probably gonna be here.

Scott Benner 50:21
Right? So you consider that you might want to go home just I guess because your parents when they get older and that you're the only child. Yeah, but you feel kind of held here by your about the, from the medical supplies you can get here.

Jaime Song 50:36
Yeah, I think so. Also, I have I feel like I've been living here like six years.

Scott Benner 50:44
Starting starting to feel like home.

Jaime Song 50:46
Yeah, I feel like it's more homes on my my CD because I also practice Japanese martial art. Like for three years now. My teacher, my Sensei, my son pies like my, my dojo, which is a place I practice is like, community to me. I'm

Scott Benner 51:09
building a life here.

Jaime Song 51:11
Yeah, exactly.

Scott Benner 51:12
I find it. It's not. It's bizarre that you know, medical devices, it's hard to get them everywhere they need to be. I've been having a messaging conversation with somebody from Iran, who's trying really hard to get on the pod index comm for their kid and they can't figure out a way to get it accomplished. Because they just it's not for sale there. Oh, so I guess Same thing with China. That's just you can't buy those things there.

Jaime Song 51:40
I think freestyle you could buy them. I look it up once to see if there's Dexcom. But I don't know if they have or the news doesn't say so. Yeah. And yeah, I believe there must be like, actually, influence in China is pretty good. I will say if I have a job and everything, I would say probably I'm even spending less than here. But if tax calm is now there probably I was still stay here for a while.

Scott Benner 52:16
How does insurance work in China? If you have a job? Do you get it through your employer? Do you pay for it? Do they pay for it? How does that work?

Jaime Song 52:24
Oh, I should? I don't know.

Yeah, but I would say because my mom is a teacher. their insurance is pretty good. Also, there's like difference between like, if you stay in hospital if you are inpatient or outpatient also, like, because I feel I teachers probably have the very good insurance because they are consider like the same benefit as government or whatever.

Scott Benner 52:56
So, yeah. Is there is there a way for you to take what you do and do it in China? I would imagine so right. I mean, you're working for a bank so that

Unknown Speaker 53:05
Yeah,

Scott Benner 53:06
yeah, I it's weird. I wouldn't think you'd go. But I to be perfectly perfectly honest. My brother just went from New Jersey to Wisconsin for college, and he never came back. Because he built a life there. You know, like he met people and got a job. And it's just where he lives. Now. I think it's incredibly common. It just wouldn't, it feels like when it's that far away. Like I didn't know how hard it was to be, you know, away from your parents that far. And that's tough. But you sounds like you have a real incredible base here between your dojo. And you know, your job and you live in New York it talk about that for a second. Because New York City is an interesting place because there are so many people yet no one's really talking to each other. Right? So are you are you alone with people? Or do you not feel alone? When you're when you live there?

Jaime Song 53:55
Um, I feel like half on have actually, on one hand, I have my community, I have my running club, I have my dojo, I have my work. Also, I'm living with a roommate. We have known each other since I got here. Um, but on the other hand, I feel like, Oh, my parents are getting old. But I'm away. So I feel a bit guilty

Scott Benner 54:22
about that. Of course, no, I understand. How long does it take to fly home to see them?

Jaime Song 54:27
Um, if I I always have two flights, the directing flight to Beijing takes 13 hours. And then I take another flight to my home one hour.

Scott Benner 54:42
So how long do you usually sit in Beijing?

Jaime Song 54:45
Um, I will. If I say I I'll take a long like layover and we'll call call my friends and we'll go out and eat all the foods.

Scott Benner 54:58
How how's How is it Traveling that far now that you're using insulin is that have you done that trip yet with?

Jaime Song 55:05
Yeah, I have actually there are some because I think why I travel internationally I I just put my insulin all the pens in the ass pack. Something I got I was going to kind of soak it in the water and it will become cold and

Unknown Speaker 55:21
free. Oh pack. Yes. So yeah, something

Jaime Song 55:25
like that.

Now I'm with Omni pod. Actually, I try it because my Qingdao like always, like not sometimes like when I'm showering sunlight scraped the white it came off. Or like sometimes I have to change it like, not the time I plan because this weekend is a long weekend. I'm traveling to North Carolina to see my friends. So I was thinking probably because I saw that can inject the insulin into the pot and carried outside like put it on whenever I want.

So I tried. I tried it like

on Tuesday I work actually i in the morning before I left, I inject insulin i saw i heard two beeps. Then I went to work after I put it on like around. It's definitely above two hours. And it doesn't let me activate that part. So I didn't read the really thick manual of the a PA that's my fault.

Scott Benner 56:34
Yeah, I think right. So I get what you're saying you were trying to transport the insulin inside of the pod that wasn't set up yet. Except that after a certain amount of time, it just errors if you don't turn it on, right?

Jaime Song 56:45
Yeah, yeah. So

Scott Benner 56:47
I gotcha. So do you have a very small shower? Or do you just take very active showers? How did you knock off your

Jaime Song 56:55
Yeah, that's, that's totally on me. Because, you know, like, we have a dent on the wall like you can put in like shower gels and everything. It has a an edge. So I was like, I just bending over to scrub my feet. And I was like, probably like, I scrub the wall on that ash. So it's just take it

off completely. Like

I was so surprised, because normally, it takes me so much strings. And if I have like, marks, like when I take it off, it

sticks, so Wow.

Scott Benner 57:30
Yeah, you just hit it just right and it pop and pop right off.

Jaime Song 57:33
Yeah, it's like, not even like sticky edge on it anymore. So have

Scott Benner 57:40
to be honest, you made me jealous for being younger and single. When you're like this weekend, I'm gonna go to North Carolina. Going to North Carolina for three days is like a major upheaval of my life. And I love the idea that you could just kind of pick up and go. It's very cool. Somebody that somebody you met in college?

Jaime Song 57:58
Oh, yeah. Yeah. From my master program. She's getting a PhD over there. So I've never been to North Carolina, so I'm going to check it out.

Scott Benner 58:08
That's nice. I get to celebrate with her a little bit.

Jaime Song 58:11
Yeah, I think she's, although she's statistician. She also is a choreographer and musician. So I probably gonna dance with her or like, um, and also I want to keep my running schedule. I will run with her probably

Scott Benner 58:29
in North Carolina. Well, hopefully it's got to be warmer there right now than it is here. I would think. I hope so. Yeah, yeah. How, by the way, how bad are New York winters? They're terrible, right? Just

Jaime Song 58:44
I will say, yeah, it's so much colder than my hometown. And I when I got here, I was like, Ah, it's snow. Like, this is so beautiful. And after two weeks, it's still still snowing. I feel like oh, no, not again. Stop being beautiful. A while

Scott Benner 58:59
ago, the most interesting thing for anybody who's never been in New York City, isn't always it on very cold, windy days. The wind only blows through the city one way so you can be on a cross street where there's no wind, all the sudden, to an intersection, and it feels like there's like a giant God sized fan blowing down the street. Right? And yeah, and if you get stuck on one of those streets, and you're walking up and down the way the winds blowing, it's it's very, I mean, it's to be expected. I guess there's so many buildings, but the buildings block the cross streets. It's very weird The first time you experienced it. It's a strange thing. Very much.

Jaime Song 59:36
Yeah, it is like I heard a story like because our office was at Wall Street area once. So while my colleagues actually came out of the building and his glasses were all blown away.

Scott Benner 59:50
That sounds completely right.

Jaime Song 59:51
Yeah.

Scott Benner 59:54
Yeah, it's a very it's a wind tunnel going in one direction and the other direction there's just a void of air. There's nothing happening no noise and it's all it's all fine. But I know I mean, it really is how, how I'm how immersed Are you in culture here? Like when like Christmas time, Christmas time is coming up soon? Like, is that a big deal for you? Or is it just another day like thanksgiving to like, how do you handle those kinds of holidays?

Jaime Song 1:00:22
Um, I will say yeah, I'm also like, half and half. Like, I school, I used to go to Thanksgiving dinner with my, like, American friends and but at work is like, my friends aren't going away home. So I feel like, I almost like spend all those like, American holidays, especially when I'm working more and more. Now I'm spent spending it like, you know, Chinese way I will go with my roommate for like, a celebration for hapa or like, my Japanese friend or like, it's different.

Scott Benner 1:01:03
Yeah, that's excellent. So it sounds like you have a cross culture of friends. So that's, that's nice. Like I we live in a diverse place. And it's just it's great because Arden and Cole have friends from just all different kinds of backgrounds. And they are always you know, they're always doing different things and seeing how other people celebrate different holidays. It's very cool. So it sounds like it sounds like you're living a very Metropolitan lifestyle to be perfectly honest.

Jaime Song 1:01:32
Yeah. At least a full wise it is in York City.

Scott Benner 1:01:36
You can find almost anything there which might not be good for you, Jamie. I'm starting to think but

Jaime Song 1:01:42
yeah, but still one thing I'm thinking about is I hear like everything is labeled clearly and it's also like label crackly I would say.

Unknown Speaker 1:01:53
Yeah. at home. It's not always right.

Jaime Song 1:01:56
Yeah, I hope like I brought something back like it's some sesame like powder. You can actually put in hot water and drink it is more like a soup or something. So it says like, fun day something carbs. So I pulled in my insulin, but my is my sugar jumped to like 200 or something? Well, so I never tried it. Again. Probably I will. was more insulin.

Scott Benner 1:02:22
Yeah, sometimes in American we complain about the government and the things that they do. And you know, the regulations they put on industry, but that's a good example. You know, there's a part of the US government that makes sure that foods are labeled correctly, and they come down hard on businesses that don't do it. And therefore those businesses make sure it's right. And And that ends up helping somebody like you, I just I really like tickled by the idea that the podcast helped you. With your with your with your goal of eating cake. So I I think it's true that Jamie is actually having her cake and eating it as well. Can I we're right up on an hour. But I am I wanted to ask you to say your name again. In the in Chinese

Jaime Song 1:03:06
a bullying song.

Scott Benner 1:03:09
Yeah, you're right. I would not be able to say that. Can you in Chinese say you're listening to the Juicebox Podcast? Or does that not translate?

Jaime Song 1:03:18
Oh, I can try. I'm watching the agenda teen gorgeous podcast or full cup playing that Dr. shoting or fish on she wants to go broke.

Scott Benner 1:03:35
Thank you. I don't know what I'm gonna do with that. But it made me happy. I just, I just got done. Actually, I didn't just get that I'm doing tomorrow morning. with somebody who's gonna jump on real quick in Spanish and go over the signs and symptoms of type one diabetes in Spanish. We're gonna put that up along with something else. But you're making me think that I should be doing it more languages because I have to admit, like I like, I mean, you listen to the podcast, you know, there's, there's been like 280 episodes so far with mainly English speaking people. Like every once in a while somebody comes from, you know, Czech, or, you know, I've had people from, you know, other countries, but they're still mainly English speaking Australia, the UK, you know, that sort of thing. But you in your email, and when we've been going back and forth, you're like, Listen, my English isn't great. And like, you're like that, but you really are. I had absolutely no trouble understanding you at any point during this conversation. So, I mean, obviously you work with mostly English speaking people all day. Yeah, sounds very cool. I I'm thrilled that it reached you like this. Do you think there'd be any value in me adding the signs of type one diabetes in Chinese?

Jaime Song 1:04:49
Yeah, I think I think so. Because I feel like um, but I don't really know what is care, care like diabetes. Carry in China like because I'm mostly like, just do the checkup and go because they have some like classes and also, before I have type while we saw like, diabetes is same for senior people. Um, so I feel like people need to conquer their fear for insulin and also there's certain like misunderstanding thinking Chinese medicine can cure anything like, say type one diabetes, or like it might be helpful but still you need to take insulin so I feel like people need definitely need more information about Type One Diabetes there.

Scott Benner 1:05:45
Yeah, great. I really appreciate you coming on and doing this.

Jaime Song 1:05:48
I appreciate your time too. This is fun. Good guy.

Scott Benner 1:05:53
Thank you so much, Jamie for coming on and sharing your very unique experience. Thank you also to Dexcom and Omni pod for sponsoring this episode. You can get a free no obligation on the pod at my Omni pod.com forward slash juice box. And of course learn all about the Dexcom g six continuous glucose monitor@dexcom.com forward slash Juicebox Podcast remember those links there right there in your podcast player notes or at Juicebox podcast.com. I got you covered. You'll find your way there.

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Scott Benner 7/6/20 Scott Benner 7/6/20

#353 Quite a Pickle

Diabetic Dyl Pickle that is…

Dylan is a young man living with type 1 diabetes, hypothyroidism and fibromyalgia. He also shares his experiences with the world.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends. Today's episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. And by touched by type one. You know what? I should have said that backwards I'll tell you I think that one touched by type on has buy in and be Why? And I said this and buy and I think it ruins the flow of language. Watch this Hello friends. Today's episode of The Juicebox Podcast is sponsored by a dozen hidden works that way too I say touched by type when I go by touch by type one. Today's episode of the Juicebox Podcast podcast is sponsored by there's no way out of this is there Hold on a second. And how the music's playing. I gotta think faster. Well, first of all, this episode of the podcast is with a young man named Dylan and he is absolutely delightful. Dylan has type one diabetes, hypothyroidism, and Fibromyalgia is a wonderful Facebook page where he's trying to tell people about type one diabetes, and he'll explain about some of the experiences both good and bad he's had trying to share been pushed around a little bit online. But I think the way he handled it is really excellent. I want to tell you that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Right now how do I talk about the sponsors without saying by and by consecutively? Today's episode of the Juicebox Podcast game sponsorship from touched by type one, and the Contour Next One blood glucose meter, please go to touched by type one.org or Contour Next one.com. For more information, you may even be eligible for an absolutely free Contour. Next One meter you'll find out the link. And they're also linked in the show notes of your podcast player at Juicebox. podcast.com. I mean, whenever you're ready.

Dylan Giuliano 2:14
I think I'm ready.

Scott Benner 2:16
I bet you are. Don't worry. It started off with just start off with your name.

Dylan Giuliano 2:20
Hello, my name is Dylan Giuliano. I've had type one Davies for four years and I work for jdrf. I am a Youth Ambassador. And I have a Facebook Instagram and YouTube page called diabetic dill pickle.

Scott Benner 2:36
So you are the kid that people called diabetic dill pickle. Yeah, that's pretty cool. So I see the word play. Right. Dylan? dill pickle. I'm right there. But where does that come from though? Is that something from your life? Or did it just come up to you when you're trying to think of a name? How did that? How did you end up with that?

Dylan Giuliano 2:54
Well, technically, I just thought of it in my head. My parents my just thought of it was actually technically

Scott Benner 3:01
my nickname. That's what I'm getting at. Like so people called you like dill pickle before?

Unknown Speaker 3:07
Yeah.

Scott Benner 3:08
Yeah. You know what I call Arden?

Unknown Speaker 3:11
What? boogers.

Unknown Speaker 3:14
It's funny for no

Scott Benner 3:16
for no reason. She doesn't have like, a bunch of boogers in her nose or anything like that. I just call her boogers. She walks into a room and I'm like, hey, boogers. What's up? And she just like, hey, and then it goes on from there. My wife actually said the other day. Why do you call her boogers? And I was like, I don't know. Don't you like it? And she goes, No, I'm like, No, no, I love it. So anyway, there's worse nicknames, right? Yeah. Her nickname seems to to move around a lot. We used to call her boo when she was little like before the monsters movie. And then they started using it in the monsters movie. And I was like, I can't do that anymore. It seems like we're ripping off Pixar. And we've gone through a number of nicknames. My brother has the best nickname in the world. And I'll tell it to you right now, but it's completely out of context. And I won't explain to you why it's his nickname. Okay. Okay, this is back when he was like 14 or 13. Originally, his nickname was good job, Bob. But eventually it became good job Bob the half naked Bruce Lee boy. And I can't tell you, but you can try to imagine how you would come up with a nickname where you're naked and Bruce Lee. half naked actually. all I'm gonna say to you, Dylan is that I don't think you should practice your karate in front of an open window without your shirt on. Okay. Okay. Good for you. Alright, man. So listen, how old are you? I'm 12 Oh, cool. And how? How old were you when you were diagnosed?

Dylan Giuliano 4:47
I was seven when I was diagnosed. Do you

Scott Benner 4:49
know that? That's been five years.

Dylan Giuliano 4:52
Well, actually, it's four.

Scott Benner 4:54
Okay, my math my math is wrong.

Unknown Speaker 4:59
Yeah.

Unknown Speaker 5:02
So, you're

Dylan Giuliano 5:04
all good. Well, technically, I was almost a basically, I was almost eight when I got

Scott Benner 5:09
sick. So my math is right. Your assertion isn't? Right, right. I so, so diagnosed around the time you were towards sort of the end of being seven. And yeah, and now you're 12. How are things? Well, no, wait, I was gonna ask you one thing I'm gonna ask, do you remember being diagnosed at all?

Dylan Giuliano 5:29
Yeah. So basically what happened? I was told the kid, I've been in many different rooms, like probably like three or four rooms, because they didn't know what one to choose me. And so I had in, they checked my blood sugar, and I was like, 590 it was, it was crazy. And they just thought I had the flu, but

I guess not.

Scott Benner 5:57
Yeah. So obviously, right. So up until or if you just had the flu, then this has just been one horrible practical joke on you for the last five years, or four years. Excuse me. But so you went into the hospital because you had like flu like symptoms

Dylan Giuliano 6:12
are basically my mom took me in like three or four doctor visits.

Scott Benner 6:18
So over time, she saw that you weren't feeling well, and she kept taking you back. And they weren't really doing anything about it. And then Is that it?

Unknown Speaker 6:27
Oh, yeah.

Scott Benner 6:28
Yeah. So you had to go a number of times before you before they could come to a conclusion. So it took them all the way to the hospital to check your blood sugar? Yeah. Wow. How long are you in the hospital?

Dylan Giuliano 6:40
Um, maybe like a week? Yeah, about a week? No kidding.

Scott Benner 6:45
To turn it into like a little vacation or were you just not kind of feeling better fast enough.

Dylan Giuliano 6:51
I just really wasn't feeling better fast enough. That sucks. How do

Scott Benner 6:55
you feel now?

Dylan Giuliano 6:57
Right now I feel way much better. Like I still have like a couple diseases mine but not all of them. Like I have fibromyalgia and low thyroid and stuff like that.

Scott Benner 7:12
You're just collecting, like, autoimmune issues as you walk down the path?

Unknown Speaker 7:18
Yeah.

Scott Benner 7:19
There's one. I'll take that one with me. So Alright, let's let's take a second for a second because you mentioned some interesting stuff. So hypo thyroidism. Yes. Okay. And you take Synthroid

Dylan Giuliano 7:33
Lords are low thyroid, and yeah,

Scott Benner 7:38
yeah, I do take a secondary medication. Like cider mill or no, no, just just the one. Okay. And what does it feel like? Well, how I guess what age did you start taking that medication?

Dylan Giuliano 7:53
Um, if I could guess, maybe

Scott Benner 8:01
this month, months ago, just months ago, actually. So within like, the last year you found out about hypothyroidism?

Dylan Giuliano 8:07
Yeah, gotcha. Just about a month ago, just about a month ago.

Scott Benner 8:11
Oh, she's very recently.

Unknown Speaker 8:12
Yeah. How were you

Scott Benner 8:13
feeling prior to being diagnosed?

Unknown Speaker 8:18
Um,

Dylan Giuliano 8:22
like, my stomach and stuff like that was hurting and I barely couldn't drink. Well, I barely didn't eat. I was just keep on drinking and drinking. just kept taking naps and stuff.

Scott Benner 8:36
stomach pain and tired, right? Yes. Yeah. Okay. So Arden has hypothyroidism too. And that's exactly how it presented to her. Her stomach hurt all the time. She actually was still hungry. So she ate through it. And

Unknown Speaker 8:53
oh, wow, she

Scott Benner 8:54
was incredibly tired. And she would have really and please, you can tell me if you want to, but she had a situation where she wouldn't go to the bathroom for a number of days. And then all the sudden she would go a lot if you know what I mean. And yeah, it wasn't exactly pleasant. Did that happen to you as well? Yeah. I see. Is there any chance that this episode is going to be called? diarrhea dill pickle, now maybe? I wouldn't do that to you Don't worry don't. But it's making me happy thinking about it. So it's really horrible. Like when your thyroids not operating properly. And you don't have the medication. It's crazy. Arden was exhausted like she could barely lift her head up sometimes. I don't know how she went to school some days and really terrible stomach pains. Wow, really, really bad. And then of course, you know, she'd eat meat need nothing would happen and then all of a sudden her body would just, you know, expel everything and then The process would just start over again. And there was no real relief from it. And, you know, we had you know, she gets tested for, you know, just like most people who go into their endo appointment shirt, her thyroid levels are tested yearly. And you know, the year prior, there was nothing. Had you ever now knowing about it the day ever that you know of see any indication from your blood test that something like this was coming?

Unknown Speaker 10:25
Yeah.

Scott Benner 10:27
So you could see your levels changing over time?

Unknown Speaker 10:29
Yes.

Scott Benner 10:30
Okay. So you didn't suffer too long before you thought? This is? hypothyroidism? I have to go back to the doctor.

Dylan Giuliano 10:37
Oh, m kinda.

Scott Benner 10:39
Would you think it was at first?

Dylan Giuliano 10:41
So at first, I kind of thought it was Moto, because of like, maybe a couple months ago. I got moto for a little bit.

Scott Benner 10:52
I thought you were gonna say it a couple months ago. I kissed a whole bunch of girls. Oh,

Unknown Speaker 10:57
God.

Scott Benner 10:59
Is that not what happened? No. How did you get moto then? I don't know. I don't know. I don't either. I don't really know anything about it. I had it once when I was younger. Like when I was like 19. I think I had it. It really sucked. I was like really beat up and it mimicked a lot of how Arden was when her when she didn't have her Synthroid. Like I was really super tired. That's how moto makes you feel. So you kind of like commingled those two ideas from it and thought, well, maybe this is just like, a leftover effect of the Moto.

Dylan Giuliano 11:28
Um, I think so. Yeah.

Scott Benner 11:31
Are you in charge? So how so you know what, let's do something here that might be interesting. How does it work? When you're a little kid, and you feel sick? Do you? Do you try to handle it on your own? Do you just dump it on your parents and hope they figure it out? Like what's, how does that all work?

Dylan Giuliano 11:50
So basically, I try and figure it out first, but usually, like we're all trying to help it out. together. And so we, um, yeah, I technically work with my parents the most.

Scott Benner 12:06
Do they notice that you don't feel well? Or do you tell them?

Dylan Giuliano 12:10
Oh, yeah, I just tell them that. I don't feel good.

Scott Benner 12:13
So if you wouldn't have said anything about your stomach pain, you think they didn't know until you told them?

Dylan Giuliano 12:17
Maybe? Well, I kind of looked pretty pale. So I'm pretty sure they probably could tell

Scott Benner 12:24
from your from your skin color. Yeah, that is the key to everything. When Yeah, when Dylan's when Dylan's pale. Something's wrong.

Unknown Speaker 12:33
Yeah.

Scott Benner 12:35
All right. Dill Pickle. Now let's, um, okay, so because I find that interesting, right? Because as a parent, I know that I try really hard to pay attention to my kids and how they're feeling and how they're acting, right? Because sometimes people will just power through things. You know, they think oh, or you lose track of it. You know, that happens. Sometimes you have a pain. Don't I just burped hold on? Oh, my gosh, I had a little soda this morning, which I never do. And I'm very bubbly now. Excuse me. I'm so sorry. So, sometimes, do you ever burp? Yeah. Do you have one now that you could share with us?

Dylan Giuliano 13:14
On No, no, I usually like never drink soda.

Scott Benner 13:18
Gotcha. I don't either. Diet soda was sitting downstairs, I thought let me be crazy. You know, not not a very crazy person. So it's like, Hey, give me Nazi over here with a diet soda. Anyway, you watch your kids, right? So you know, I do. I don't know what all parents do. I mean, some people might be listening now who are terrible parents and pay no attention to their children whatsoever. I've no idea. But I tried to pay attention. And if you see something happening over and over, you kind of say to your kid like, Hey, how are you feeling? Or I've noticed you're limping. Or why is it you're not using your right hand or you know, whatever it ends up being. And sometimes kids are like, it's fine. It's fine. It's fine. And you have to persevere a little bit and be like, No, I'm still seeing it happen. Like, let me see. And sometimes, they're so sick. They just come to you. And they're like, Oh, my God, I just vomited all over the hallway. Like, do you know what I mean? Like there's, yeah, some there seems to be no. Middle Ground, really. But what I was really interested in was like, how long did you persevere with stomach pain and being tired before you mentioned it? Or did your parents kind of figured out pretty quickly along with you?

Dylan Giuliano 14:24
Um, but maybe, maybe then, like, a day?

Scott Benner 14:29
Yeah. So pretty quickly, they got involved. Yeah. And then do you go right to the doctor, or do they try all the like, regular stuff like, Did your mom say have you gone to the bathroom lately? It was like the first thing she said.

Dylan Giuliano 14:42
Well, actually, um, I've been to the doctor like three, maybe three or four visits.

Unknown Speaker 14:51
And

Dylan Giuliano 14:54
like, yeah, it was pretty crazy.

Scott Benner 14:56
So as always, what happened that you told her you're stomach hurt, and she took you right to the doctor, and then they couldn't find anything. And you had to go back a couple times.

Dylan Giuliano 15:05
But she took me to a regular doctor.

Scott Benner 15:07
Right? Instead of an irregular doctor. Yeah, yeah. So not a diabetes doctor. No, right. I feel like I knew what you meant. But okay, so I had an irregular doctor one time, but that's a different story. So you went to like your regular like pediatrician and you're like, and she's like, hey, Dylan. stomach hurts.

Unknown Speaker 15:27
And um,

Scott Benner 15:28
yeah. Did he like poke you or give you something? Or did he ask if you pooped? Who asked you? If you would have gone to the bathroom? Somebody had to have asked?

Unknown Speaker 15:37
Oh, if I can remember.

Unknown Speaker 15:41
No one asked.

Dylan Giuliano 15:43
I'm trying to remember.

Scott Benner 15:47
I think is the doctor. But the doctor did ask you. Yeah, gotcha. And then you said, Yo, man, here's what's going on. Like it don't come out. Then all of a sudden that comes out crazy. Yeah. How did you say it? Tell me what you said?

Dylan Giuliano 16:04
Well, so basically, I couldn't go to the bathroom for a little bit. So and then I just went to the bathroom. There it goes.

Unknown Speaker 16:14
He said, There it goes. Yeah.

Scott Benner 16:18
That could be the name of your episode. There it goes. Let her fly. Don't pickle. So

Dylan Giuliano 16:26
well, okay. So then what did he do? So actually, it like my, I've actually, it's been holding for a little while. It's like hard to go. So then it probably took like a few days for it to feel better and stuff.

Scott Benner 16:42
So initially, the idea was just like, well, you'll feel better. Like he probably thought you had like a little virus or stomach flu or something. Yeah. Right. So he was just like, oh, that happens to people and you go head home and you'll feel better, but then you didn't feel better. Did you go back to him again, and you go somewhere else?

Dylan Giuliano 16:59
I went somewhere else.

Scott Benner 17:01
Because he wasn't helpful or because your mom started thinking diabetes.

Dylan Giuliano 17:06
Um, well, my mom actually finally talked to the endo, endocrinologist.

Scott Benner 17:11
Ah, and then the endo said, hey, let's do a blood test. Yes, gotcha. So the endo kind of solid for Yeah, signs there because they're very, they're very clear signs of hypothyroidism, untreated, the stomach pain, just like you described is clear. I don't want everybody whose kid tummy hurts not to think they have hypothyroidism. But you know, it's it's pretty. What Dylan's describing what Arden went through is it's severe. And it is, it's noticeable. It's not just a little stomach pain. It's not. And it persists. Well pass, any common sense would tell you that an illness would would last. So. So if people see the signs, you get a simple blood test. And they'll let you know now the hard part and you're just finding out in the beginning is that getting that medication? Correct? is really hard. Like the dose right? Yeah, you going through that right now?

Dylan Giuliano 18:05
I'm kinda Yeah.

Scott Benner 18:08
Have you changed it yet? Or do you think it's working? Are you feeling better?

Dylan Giuliano 18:13
I think I should probably just keep it the same. Just because?

Scott Benner 18:19
Because it's working.

Unknown Speaker 18:20
Yeah. Okay.

Scott Benner 18:22
So can you explain to people after you start taking the Synthroid, and it starts helping you? Like, what's the what's the change from how you felt to how you feel with the medication, I don't think that the blood glucose meter you have should just be the one that somebody gave to you. I think you should have the best, the most accurate, the easiest to use the most pleasing to your eye, the one that fits in your hand, like what fits well, on your hand, you know, fits well in your hand like something if it's holding your hand, it has a beautiful bright light for when you're testing at night, and test trips that allow you to go back to the blood drop a second time, if you don't get quite enough the first time. That saves a lot of test trips, and a lot of hassle. I believe that you deserve a meter that can chart your blood sugar tests in an app on your iPhone or Android phone to give you the data that you need later, to see how things have been going, huh, don't you feel like you deserve that as well. Of course you do. Now, like a dream. It will come true when you go to Contour Next one.com. That's where you're going to find out about the meter. That's where you're going to find out. If you're eligible for a free meter. There's a little button at the top of the page, give it a little click, you might be one of the lucky ones. But if you're not, it's super simple to tell your doctor I'd like to change my blood glucose meter. I've been using this old meter forever. I don't even know if it's accurate. I haven't even ever checked Have you ever looked online to see if you meters one of the really accurate ones or one of the ones where people are like, Well, you know, it's a blood glucose meter? Have you? I bet you haven't. But you know which one of those meters is right at the top of that list. I know you know that I'm gonna say the Contour. Next One. So it's worth a shot. blood glucose meter is an absolutely integral part of your life with type one diabetes, and you shouldn't be using an old busted up one, you just shouldn't Contour Next one.com go there today, there are links in the show notes of this podcast player, and at Juicebox podcast.com. If you can't remember, Contour, Next One. But I mean, the name of the meter, you want the meter? The websites the same? feels like you're gonna be able to remember. Go check it out, get it done. Don't wait. When you think about people helping people, who do you think about besides Dylan today? Who's doing a really wonderful job of sharing his life with Type One Diabetes? What do you think when you think of an organization that's out there? Doing things for people with type one diabetes, do you think of touched by type one? Well, if you don't, you should, you should check out touched by type one.org. They're also on Facebook, and Instagram. And they're doing amazing things for people with type one diabetes every day, not once a week, or six times a month, every single hour of every single day. They're helping people with type one. And they have an overarching goal of finding a cure. So they even donate money to that. This seems like something you'd like to know about, I imagine. And Firstly, all you have to do is make with the typing. Touched by type one.org. There's about 20 seconds of music left, should I cut it off? Or would you like to just bop your head and maybe dance a little while you're vacuuming or whatever you're doing? You know what things have been stressful lately? Why don't we dance?

Dylan Giuliano 22:37
I was actually not as tired pooping regular basically.

Scott Benner 22:42
You weren't as tired? No. Right? And then your your kind of your valves and everything went back to kind of normal using the bathroom the way you expect. Yeah, all of a sudden, all that stuff. So how quickly did it happen after you start taking the medicine?

Dylan Giuliano 22:58
If I could, maybe.

Scott Benner 23:03
Maybe week, a couple weeks, and you felt better? Yeah. That's cool. That's excellent. Any other changes that you have your parents noticed? Like, were you in a bad mood? Or like anything else happening that the medications changed? Or have you not noticed anything else?

Dylan Giuliano 23:18
Yeah, I was kind of like in a bad mood and stuff.

Scott Benner 23:21
Yeah. The people whose thyroids are off can be short tempered, I guess is the way to put it. Yeah. Right. And, and that's another thing you could be looking for.

Dylan Giuliano 23:33
Yeah, I was actually kind of depressed and stuff like that.

Scott Benner 23:36
Yep. I'm glad you're feeling better. That's really cool. All right. So all right, one thing down. And we'll get to the diabetes in a second. But you mentioned something else that is incredibly interesting. Because it's, it's hard to get a diagnosis for. But how are you? You know, how are you diagnosed with fibromyalgia? First of all, tell me a little bit about it. Like what what does that how does it make you feel and how does it impact your life?

Dylan Giuliano 24:02
Like so like, my elbows and arms and stuff for just like affecting so my mom was just like, wait, why is your elbows like so red or something? And so she just took me in. I just had fibromyalgia. So they saw something on your skin. Like, basically, there's like pain all over myself.

Scott Benner 24:24
Okay, but you saw something visibly on your skin like redness? Oh, my elbows. Yeah. Okay. And that's what got and did you have joint pain and that kind of stuff going on? Yeah. Is it in your muscles or in your joints? I know that's a weird thing. But like your muscles hurt. Do you feel weak? Or do you have like pain in your knees and hips and things like that?

Unknown Speaker 24:47
both

Scott Benner 24:48
areas that it happens like that. So you just have sort of like an all over body pain? Yeah, does it cause muscle pain or muscle stiffness to your muscles get really tight like You worked out too much. And they're like, super like in a knot, or do they just hurt in general?

Dylan Giuliano 25:06
Um, they

Unknown Speaker 25:10
kind of both actually

Scott Benner 25:12
do. How do you help that? Like, do you ask people to give you like massages? Or like, how does that work?

Dylan Giuliano 25:19
I just

add on stuff. And just hopefully that goes away and I stretch.

Unknown Speaker 25:27
Stretching.

Dylan Giuliano 25:29
Yeah, stretch and I take Advil.

Scott Benner 25:32
Is that what the doctor asked you to do? Or do you just do that? Because the pain is bad. And you we kind of can't? Do you want to do something?

Dylan Giuliano 25:38
Yeah, I probably because my, um, because I just do it because I feel like, worse and stuff like that. So I usually just take Advil and stretch, and my pain was very bad.

Scott Benner 25:56
Yeah, what's the impact of the pain? That's what I was gonna ask you like, is it does it keep you in bed? does it keep you from doing things you want to do? But how does it affect you?

Dylan Giuliano 26:06
Um, so basically,

Unknown Speaker 26:10
huh?

Dylan Giuliano 26:14
I can't really run around and stuff. Okay.

And Mmm

Scott Benner 26:23
hmm. What happens if you run around?

Dylan Giuliano 26:26
Like my joints and stuff to start to hurt and stuff like that? And I just feel run down.

Scott Benner 26:34
What's the dike? Like? How did they diagnose? Fibromyalgia? Is that a test they give you? Or is it just because? Is it one of those things that it doesn't have a diagnosis, but it's nothing else. So they call it that or how do they do that?

Dylan Giuliano 26:48
I actually don't know. I just saw a rheumatologist.

Scott Benner 26:52
Okay. And that's and so is there's no medication beyond Advil. I don't know. But you're not taking anything is what I'm saying. No. Okay. So it's not like they were like, oh, here's the Fibromyalgia medication like, yeah, diabetes, no, like, Hey, you have diabetes. Here's insulin. They weren't like you have fibromyalgia. Here's this. It wasn't like, Oh, right. So stretch. Is diet impactful. Do you have you changed your diet?

Unknown Speaker 27:20
Yes. How?

Dylan Giuliano 27:23
I'm just eat a little healthier. And then it just started helping thing helping my joints and stuff.

Scott Benner 27:32
No kidding. So what are some foods that you are eating that you're not eating anymore?

Dylan Giuliano 27:36
So I'm actually back then I used to eat some wheat and stuff. But now I'm just good friends. So it helps my joints and stuff. Cool. That's cool. So eating gluten free is helping? Yes. A lot.

Scott Benner 27:50
And are you do you have celiac or No,

Dylan Giuliano 27:53
No,

Scott Benner 27:54
I don't. So it's not for reasons of celiac. It's for reasons of like inflammation and things like that. Yes.

Unknown Speaker 27:59
Yeah. Gotcha.

Scott Benner 28:03
on a day to day basis, is it? Like I know that some people say there's flare ups? Like there's some days that are worse than others? And there's hard to figure out why sometimes, but are you in the middle of a good day or a bad day right now?

Dylan Giuliano 28:17
Right now? I'm in a good

Scott Benner 28:20
pool. And it now if you just got up and went outside and ran a marathon, would it start hurting right away? Or on a good day? Does it not bother you when that happens?

Dylan Giuliano 28:30
Um, it wouldn't really hurt me

Scott Benner 28:33
on this day. Oh, no kidding. But then when it happens, it happens and then running would be bothersome. Yeah. Wow. That sucks, man.

Dylan Giuliano 28:41
But usually when I get sick, it gets like worse. So if

Scott Benner 28:45
you get a cold like a like what they call regular people sick you get to get a cold or something like that. Then that kind of. Yeah, it's worse as well. Okay. Yeah. Any other brothers or sisters?

Dylan Giuliano 28:57
Well, I actually have one brother. He's an older brother.

He is 13

Scott Benner 29:03
Nice. Is he Karl the cucumber? What? No, pickles are cucumbers that are pickled. So I don't know if his name was Carl and you guys call? Nevermind. Dylan? If you're not gonna laugh at my dumb joke. I don't know what to do. It's not is it Chris the cucumber? Like what's his the you don't have to tell me his name. Is he named after any kind of sides? coleslaw? No big potato salad. No, what's his neck? Does he have a nickname?

Dylan Giuliano 29:32
Yeah, so basically, his real name is Anthony. But we like to call my mom and stuff like to call it man. Just because I don't know. Why is he tiny? No. Is he a superhero?

Scott Benner 29:48
I don't know. I thought you're gonna say was Tony the Tiger. I would have been a great nickname for a kid named Anthony.

Dylan Giuliano 29:54
Probably. Probably would.

Scott Benner 29:56
Yeah, if you put me in charge of his nickname. He'd be Tony the Tiger or I'd probably just On boogers, because I'd be lazy about it and want something easy that I can remember. Do you think my daughter enjoys being called boogers?

Unknown Speaker 30:09
Ah,

Scott Benner 30:10
probably not. Oh, I 100% think you're right about that, by the way, complained about it openly. But she does make a weird face at me. When I do it. I actually have a test or something right now I'm texting her get loop green. Her loop is not looping. Do you? What do you how do you manage your diabetes? What do you use?

Dylan Giuliano 30:33
I use and pan and a dexcom

Scott Benner 30:37
Dexcom in Penn. Nice. They're a sponsor of the show.

Unknown Speaker 30:43
You know that?

Dylan Giuliano 30:44
Yeah, I've actually heard it from a couple episodes ago.

Scott Benner 30:47
Thank you. So Dylan, um, no insulin pump. That's cool. Arden's looping. So I'm trying to get out of like right now that there's so there's no connection between her. Her pump and her Dexcom and her phone aren't connected right now. So because of that her the algorithms going back to whatever her standardized bazel rate is. And it's not adjusting her bazel up and down, which has been fine for the last hour or so I've just let it go because it's working. But now all of a sudden, her blood sugar's trying to drift down. And I need the loop to cut her bazel off, but it's not connected. So it's not doing it. Oh, so I've sent her a text and asked her to do that. And whether or not she does that is anybody's guess. But what I need her to do, basically is to turn Bluetooth off and turn it back on. And then it should connect again. So we'll see. So I might have to texture once or twice while we're talking because it seems like she's in a part of the building where she's not getting good coverage, because my texts are going through slowly. So do you are you homeschooled? I actually yeah, I'm homeschooled. And have you been always? Or is that something that started after the diabetes? Or what are you guys doing?

Dylan Giuliano 32:11
It's actually started after the diabetes. Because like I used to get always sick and stuff like that. Like, I probably would get sick like every week. If I can guess it'd be like every week

Scott Benner 32:27
diabetes related or something else?

Dylan Giuliano 32:30
I don't know. Basically both.

Scott Benner 32:33
Do you like it low blood sugars? And it was hard to deal with at school? Yeah. And how do you enjoy? Who teaches you at home? like where do you get your lessons from?

Dylan Giuliano 32:43
Um, well, I get my lessons from my teachers. So, but Well, actually I do k 12.

Scott Benner 32:53
I don't understand. So wait, the school sends you lessons and like your mom and dad help you with them? Or how does that work?

Dylan Giuliano 33:00
So, um, I'm actually in public school. online school. Sorry.

Scott Benner 33:06
Oh, online public school at home? Yeah. Nice. That's cool. You know, you could use Instagram to learn if you needed to. You could just like, between, let me just say this, between cardi B and Drake. I think there's a lot of wisdom in the world. And I think you'd be able to get it from them. I don't. Do you believe in that what I just said or do you think I'm being sarcastic and joking with you always sarcastic? I am being sarcastic. But there there is a lot of good information in the world. It none of it comes from cardi B. I you know, I'm lying. She says some stuff that is hilarious. I sometimes she's talking I'm like that woman is a genius. And, and yet her messages is marred by some some of her tone. Nevertheless, you so you have a so you have an online system. That's through the public school system, but you do it from home. And so when you get up in the morning, like it's super early where you are right now, right?

Dylan Giuliano 34:04
Yeah. 657 right now,

Scott Benner 34:06
like I tried. I was like Dylan, you can do this later. And you're like, Nah, I'm too excited. Let's do it now. And I'm like, that's cool. So you're really excited to be on this podcast, aren't you?

Dylan Giuliano 34:15
Yes. Like I couldn't sleep last night.

Unknown Speaker 34:19
Seriously?

Dylan Giuliano 34:20
Yeah. That's how excited I was. Why?

Scott Benner 34:23
What did you think was like, what was your excitement coming from?

Dylan Giuliano 34:27
I don't know. It's just when I was in your livestream a couple of days ago. So like, I was just like, Yes, I just remembered that was by Juicebox Podcast, so I just got super excited and I couldn't sleep.

Scott Benner 34:40
Is it my fault? You didn't sleep? No. He shorted it sounds like as I went online, you saw I got excited and didn't sleep that I feel like I did this to you know, Oh, is it gonna make the rest of your day like sleepy?

Unknown Speaker 34:54
No, no.

Scott Benner 34:55
So what are you going to study today

Dylan Giuliano 34:58
um, No, actually,

Scott Benner 35:02
who decides? Is that just you? You log on and it's like, hey, Dylan, today you're doing this.

Dylan Giuliano 35:08
Oh, technically. So I have live classes and lessons basically. So like, my live classes are Mac era science and history.

Scott Benner 35:20
So Dylan, let me make sure I understand you sit in front of a computer where you see video of a classroom happening. Kinda like can you interact with it?

Dylan Giuliano 35:30
Sure. So it's like,

these teachers are actually talking to you on mics, and they're like, teaching you some stuff. And it's pretty cool. Actually.

Scott Benner 35:43
It's insane. I had to get up and get on a bus. And then a Dylan, I'm gonna tell you right now.

Dylan Giuliano 35:50
So basically, it's actually after PowerPoint. It's PowerPoint. Okay.

Scott Benner 35:54
Okay. So like they did. It's a presentation about that. And if you have a question, you can be like, yo, just now on number five. I don't understand. Stop. Go back and explain it. Yeah. Okay. Yeah. You have interaction with somebody? Yeah, I don't do you want to hear about my walk to the bus stop. out of my house right? down this long Hill. Then I got to make a left. Then I walk a full block. Right. Then I make a right, a right. Make a walk another full block. Then I make a left walk three blocks up over a big hill. That was my bus stop. It took me 20 minutes to get to my bus stop every morning. Wow, one cared about children in the 80s Do you understand? No one. No one cared. They were just like, they were like, Look, if that one dies, it dies, whatever. You know, like there's more kids. Nobody protected children the way they do now. And then it would be raining. And you know, and you would just go out and just be like, Oh, I'm gonna get soaked going to the bus stop. Don't be so all day long. And you know who will care Dolan? Who no one I just explained it to you. No one cared. Okay, so you get to school your shoes were soaked. Your jeans were soaked. What would you do? If you got to school and you were stuck? You would go tell somebody? Hey, look, I'm all wet. I gotta call my mom. Right? Yeah. That's not what happened in the 80s. Dylan in the 80s. They'd go, no one cares. Go back and sit down and don't get the floor wet. And you'd be like, how am I gonna get the floor wet? I'm dripping like a wet towel. Right? No one. Yeah. Different World. Different World. Dylan. I'm telling you right now. You live in a golden age of being a kid. Did it stand. There's you're at home right now because you don't feel well. And you get to go to school online. If I didn't feel well, when I was little. You know what my dad said? What? Nothing because he had left for work hours before school started. And he didn't not to put too fine a point on it. What done? What did my dad do?

Dylan Giuliano 37:51
did nothing. Yeah,

Scott Benner 37:52
right. He didn't care. He didn't give it. He was like, yeah, that kid will grow up. It'll get a job. Whatever. You don't I mean, like, right. Your mom and dad care about you. Look at all the effort Your parents are putting into helping you feel better. To make you a keep you educated. It's really cool. I really am really impressed that that with all these I mean, because you're having a lot of dealing. Can we curse you and I together just a little curse? Do you cry? Sure. I'm fine. You do? Yeah. I'll bleep this out later. But you're going through a lot of you don't I mean, like you got diabetes sucks. This fiber mile just sounds like a headache. And then you and then the hypothyroidism I know from Arden is not fun. And, and and you're dealing with all this stuff. You got a great attitude. And on top of that you're trying to help other people. Yeah, dude, why are you such a nice person? I don't know who just happens natural. Yeah, yeah. Good for you. That's nice. I'm a nice person to people don't think it. My wife, people, my wife always be like, isn't that woman nice? I'm like, I'm nice. You never hear anybody say it. And she's like, it's because you're saying it. I'm like, man, I don't think that's why I think people don't think I'm nice, but I am. But you're really you're superduper double nice. So to see. You're welcome. That's how I know you're nice. You thanked me for saying something nice about you. I would never do that. If you said something nice about me. I tried.

Unknown Speaker 39:18
I'm here.

Scott Benner 39:20
You're a nice guy. I'll see now I say thank you because I feel pressure. But in the past, I would just say of course I am done. You're 100% right. You know, I'm just kidding. I wouldn't say that. It is a it is a very good thing you're doing trying to share your life and I want to talk about that a little bit as much as you're comfortable. So you have a Facebook page. You have like the YouTube you're a kid you probably probably have everything right? Like you have different like pathways to people. Yeah, I need to share your life with Type One Diabetes, right? And talking to people about what's going on and everything and first of all, are you enjoying doing that?

Dylan Giuliano 39:56
Yes. I very enjoyed it.

Scott Benner 39:58
What about it? Is, like rewarding.

Dylan Giuliano 40:02
I just like to educate people and tell people about like, type one and stuff.

Scott Benner 40:08
That's very nice of you. Now, we're gonna curse again and again, it'll get bleeped out. Okay, some of

Unknown Speaker 40:16
you online.

Dylan Giuliano 40:17
Yes, like I got bullied a lot of times.

Scott Benner 40:21
And is this from people like that you can actually see like, you know who they are like, are they adults? Are they kids?

Dylan Giuliano 40:28
I honestly don't know. I can't tell. No.

Scott Benner 40:32
Okay, so So are they, you can't tell if there's somebody who has diabetes who's like you're doing this wrong, like, what do they What have you what has been said to you in the past? I hope this isn't hard to talk about, but what is it what has been said to you?

Dylan Giuliano 40:44
So basically, actually, I think they're most mostly adult. So like, many people like this, there's just one lady who said, who told me, I don't know how to, like, take care of myself. And like, like, when I was in the hospital, they said, Oh, I thought you were low carb. And you should probably stay healthy again, and stuff like that.

Scott Benner 41:07
So someone just kind of like came at you when you ended up until you're trying to share with somebody, hey, I'm in the hospital. Now this is going on. And instead of them saying, Oh, I hope you feel better. Someone actually said, Oh, I thought you were low carb. This shouldn't be happening to you, or you should get back to that or something like that. So that seems like a good time to again, remind people how old you are. Don't I'm 12? Yeah, it's a good time to tell a 12 year old they're making a mistake, because you're completely in control of your life. Right, Dylan making all your own decisions. Your parents have nothing to do with it. No, of course not. You're a kid. Right? Right. Like you. You just you're rolling along doing your best, everyone's doing their best and you're trying to share. Now, let's discuss what kind of a monster would say something like that to a 12 year old? What did you imagine in your mind when you looked at it? You know what? No, no. What was your reaction? When that was said to you? How did that make you feel?

Dylan Giuliano 41:56
I just felt very sad. Because an emotional because, like, I've never had that happen to me before. Like, I was probably like my first time that ever happened. So I just got very sad and stuff. No,

Scott Benner 42:09
no, I'm sorry for you seriously. And I am going to, I'm going to try my best right here to give you some guidance that I think will help you because if you're going to keep sharing with people online, like this are some things you're going to have to understand. And I have a unique perspective on this. You have come to the right place, Dylan, this is your online class today on dealing with people who feel like they have an input into what you're doing. Okay. Okay. So you're in an interesting situation. You are sharing stuff online. So you are putting yourself out there, you're opening yourself up to anyone's interpretations, desires to speak to you, right? So yeah, you've taken that risk. And so that's something you've done on your own, I'm assuming with your parents, I assuming your parents understand what you're doing online, and they're okay with it. Right?

Unknown Speaker 42:59
Yeah. Yeah.

Scott Benner 43:00
Right. Okay. So, you've done that. That's your decision. You've put yourself out there. What you have to realize from there is that not everyone is going to jive with what you're doing. Right? So you're going to talk to some people who you're going to hit right in the heart and they're going to be like, I love this Dylan kid. You know, like, I love what he's saying. I love what he's trying to share. I'm with this. Those people are going to be you know, for the lack of a better word fans of what you're doing. Now, there are going to be some people who don't agree with you. Now, when those people are mentally healthy, they just won't pay attention to you. Right? Like, like, for instance. Do you like baseball? Yeah. Okay. Do you like football? Yes. Do you like soccer? Yes. Like, ah, do you like ice hockey? Huh? Do you like ice hockey?

Dylan Giuliano 43:52
I'm not really big fan of ice hockey.

Scott Benner 43:54
Okay, so do you watch baseball games on television? Yeah. Do you watch ice hockey games on television? Yeah, you do or you don't? kinda guy but you don't love it? No. Okay. So if I put a baseball game up at a hockey game up, what would you watch? Probably a baseball game. Okay. If you decided to watch the baseball game instead of the hockey game, would you then send an email to the hockey game and tell them you suck? I'm not watching you. I'm watching baseball instead. No, ah, why would you not do that?

Dylan Giuliano 44:25
Because it's just disrespectful. I mean, and unnecessary.

Scott Benner 44:28
And Dylan, let me say insane. It's absolutely insane. Why would you I don't understand why someone would take the time to let someone know I don't watch your thing. I don't get I don't get that. I don't understand why someone wouldn't see you online and if they disagreed with you or didn't like the way you presented yourself or whatever, why they wouldn't just think Hmm, well, this is the thing I won't follow anymore. And I'll unfollow this. Why is it that they need to Do they feel the need to jump in? And give their opinion?

Dylan Giuliano 45:05
I don't know, like many people, just like, make fun of me because of my videos and like on YouTube and Instagram and Facebook and stuff like that for all for basically.

Scott Benner 45:17
So that's happening, what keeps you doing it? Why do you keep doing it?

Dylan Giuliano 45:21
Well, I can just push away the bullies and just stay positive and try my best to ignore them. And I just block them. And just keep going.

Scott Benner 45:34
And because there are probably plenty of people who are enjoying what you're doing, and they're getting something out of it, right? Yes. Excellent. That's right. Like

Dylan Giuliano 45:41
many people are just like, Oh, my gosh, you're thanking me so much. You're helping me a lot and stuff like that.

Scott Benner 45:49
So there are people who relate to you. And those people are being genuinely helped through just the community really just feeling like they're not alone, you know. And that, did you hear the episode with Tommy?

Unknown Speaker 46:03
Yes. And Tommy's

Scott Benner 46:04
more your age. Right? Did you enjoy listening to Tommy?

Unknown Speaker 46:07
Yeah. Cool.

Scott Benner 46:09
Now, do you think that a 55 year old guy would enjoy listening to Tommy as much as you did? Probably. Yeah. I think so too. I think people's stories are universal. And I think that if you really stop and listen, that you'll hear something, and something that's being said, that's valuable to you. And that's very cool. And I think that those people could find that with you, too, if they wanted to. Instead, they want to be mean, I guess, and and I don't know why that would be I also, you sometimes also run into people who are like, Hey, here's what you should be doing. Here's what you're doing. But this is what you should be doing. Have you had Yeah. Have you had that one yet? Yeah. Yeah. So they think you have some sort of a spotlight on you. People are paying attention to you. And they want you to be saying something different than what you're saying. Yeah, yeah. You know, what those people should do? What What do you think they should

Dylan Giuliano 47:07
just leave? Don't come back or something? Yeah,

Scott Benner 47:12
they should either start their own thing and say what they want to say and see if people will follow them. Where they should shut up. Because, right, because what is the point you only have your perspective to share? That's Oh, yeah, that's all you have. I can't, I can't come on this podcast and be somebody other than who I am. Mm hmm. So I will share with you. Because I know this has been hard for you. And I know you like the podcast, that I get emails once in a while and notes from people who are like, you're not doing a good job with the podcast. You should Yeah, you should be doing it like this. You did you made this decision and not that decision. I'll tell you one thing that people don't know, don't is that sometimes guests come on the show. And they're nervous. And they don't speak the way that makes it interesting to listen to, sometimes there's slower, or they kind of, you know, they don't maybe have command of their thoughts the way they thought they were going to when they come on. And when that happens. I jump in and talk more. Okay. And I think that that's noticeable for most people. Like I think when people listen, you go into Scott talked a little more this week, the news last week, probably a reason for that. But every once in a while, you'll get a note from somebody who's like you talked over that person and didn't let them speak. And what I want to say to them is Listen, I was doing what I thought was best there. If you don't agree. You're welcome to buy a computer and software and get hosting and a microphone and a processor and make your own podcast and edit it and put it up and find people to listen to it and see if you can do something that you would be interested in. Because, wow. Right? Because that's all this podcast is honestly, it's something that I would be interested in listening to. If I was looking for a podcast about diabetes, I am not here to make bland content that everyone's going to like because there are people who do that. And those podcasts aren't very popular for a reason. So I like you being unique. I like you doing your thing. And the people who love it. Love it and the people who don't. That's okay, too. Yeah. Good for you. How do you get so strong in this scenario? Like seriously? I, I am. I've had practice. Like I wrote a book A long time ago and some people really liked it and some people didn't like it. And that was my first real practice and being like, wow, not everybody's gonna like everything. I say, Okay, I have to be okay with that. But you're 12 you're living with diabetes, fibromyalgia, hypothyroidism. And on top of that, some people come along and they're they're not nice to Like how did you find the like, where do you find the goodness inside of you to like, just deal with it so well?

Unknown Speaker 50:05
I don't know.

Scott Benner 50:08
You're supposed to say good parenting there. That was for your mom I set you up there don't so you know my parents have raised me really well. Good deal and how did you find the kindness inside you to deal with that so well,

Unknown Speaker 50:19
I

Scott Benner 50:22
actually don't know Dylan take three. When I asked you the question. You're gonna say it's great parenting. My mom and dad are beautiful people ready? 123 Where do you find the goodness inside of you to do that? So well.

Dylan Giuliano 50:31
Great parents. I agree

Scott Benner 50:33
with you man. Good parenting is always the key. You know, amen. Just really people who have your best at heart and they're looking forward to you're really filling you full of goodness in life. So you can give it back out again. That was for your mom and because she's gonna listen to this, okay.

Unknown Speaker 50:47
Okay,

Scott Benner 50:47
kids never understand. Every once in a while, man, you got throw a bone to your mom. You know what I mean? Like just the text message during the day. Hey, Mom was thinking about you. Hope you're having a good day. Boom. Perfect. I'm telling you don't know how to do it. You got to do it like that. Even just your role, Pastor. Is she in the house with you now? Yeah. Let me tell you something right now, though. At some point today, not as soon as you get off our show. Now. Out of nowhere, you make eye contact with your mom and you go, Hey, mom, and she looks over at me. She goes, Hey, Dell. And here's what you said. I just want you to know I love you. And then she goes, Oh, thanks, buddy. Come give me a hug. And she'd be like, Yeah, come over, give her a nice hug. And you move away made her day.

Unknown Speaker 51:28
Right? Yeah.

Scott Benner 51:30
Now you do that today. And like months from now, she's gonna hear this podcast, and she's gonna be like, that's why that kid hugged me that day. You know, right, right. Yeah. But it's, but it's seriously a nice thing to be kind to other people. All right. I joke. I joke around a lot on this podcast, I'm sarcastic. And I do that for a number of different reasons. It's a pretty purposeful when I'm doing it. And and yet I am, I have a real kindness inside of me that that doesn't reflect in sarcasm. I really, I want just like you do to share something with somebody that might help them. And so yeah, have you ever shared something with somebody that you've seen reflected back? Like, they've come to you and said, You've helped me and how does that make you feel?

Dylan Giuliano 52:16
I think it feels like, great. When you

Scott Benner 52:20
get that kind of response back and you get that great feeling is it like, I'm happy to have helped someone, or, or I feel badly and I just need to feel a little better for a second. And it's nice that I was able to do something that this person liked. And I get to feel good about myself for that. Like is it all of that none of it, some of it?

Dylan Giuliano 52:41
All of it. Because when I actually grow up, I'm actually going to be an endocrinologist

Scott Benner 52:48
for type one, so that's why I'm kind of getting the hang of doing my page and stuff. So you're trying to teach yourself how to talk to people with diabetes, so that one day you can become a doctor and help people with their diabetes. Yeah, that's pretty thoughtful. I didn't plan ahead like that in life. And that's like, I have a podcast, but no, sorry. But, but so that really occurred to you like I'm gonna like, I'm gonna learn how to talk to people better. Now, where did that come from? Do you not like the way you're spoken to about your diabetes? Or do you wish it was different?

Dylan Giuliano 53:27
i? I don't know.

Scott Benner 53:30
You don't? Do you have any feelings? Like when you're talking to the doctor that you're like, I wish this guy understood better? Or I like the way they're talking to me. Do you ever leave? Feeling like you wish your appointments would go differently for you? Or do you not really think about it that way?

Dylan Giuliano 53:45
My doctor is great, though.

Scott Benner 53:47
Yeah, really cool.

Unknown Speaker 53:49
Yeah, nice.

Scott Benner 53:50
They let you steal rubber gloves and blow them up like balloons. That's what that's what we do when we're waiting too long, or that I play. Like volleyball with a rubber glove, we blow it up. And then she sits up on the examining table. They sit in the chair and we just bounce it back and forth to each other. It's how we pass the time waiting for the doctor to come in. But it's very cool that you have a doctor that you really like. Yeah, yes, a lot of people don't get that. And so it's nice that you have it. So what's your favorite thing in school? Like what's the what's the thing that you do online that you've enjoyed the most? Like, what are you the best at is it math or?

Dylan Giuliano 54:28
i? I like science and math.

Scott Benner 54:32
Yeah. Yeah, not so much the writing and the history.

Dylan Giuliano 54:37
Not really.

Scott Benner 54:38
Not right. You don't want to know what the Bolsheviks are doing? Or we're doing hundreds and hundred. No, you're not worried about that. So much. I watched Arden's writing a history paper right now on the Cold War, and she doesn't seem thrilled. You have a couple of years before you're gonna get to something like that. But yeah, she doesn't seem to be thrilled at all. Um, have we ever met You and I,

Dylan Giuliano 55:01
I think yeah, I think we have I mean, summit. You were there, right? I feel like

Scott Benner 55:07
you weren't like it's the type one nation summit. No. Were you listening to the podcast back then when you met me? Or is that where you figured out to listen?

Dylan Giuliano 55:14
I kinda.

Scott Benner 55:16
That's about when you started listening. Yeah. Let's What do you like about the podcast?

Dylan Giuliano 55:22
I just like to hear people with type one. Tell about their feelings and stuff. Nice. Because I went to my agency went to 7.8 6.9.

Scott Benner 55:37
Wow, from listening to the podcast. Yeah. No kidding. You should probably send me some money in the mail or something. I'm kidding. I'm 100% joking about that. I although if one day, there's a diabetic, they'll pick a T shirt. Maybe I would like to get one of those. But we'll see if things blow up enough. You know, they mean, by the way, if you become an endo, Monday, how are we going to keep the pickle for it? Same going for that?

Dylan Giuliano 56:05
I don't know. I'll probably just keep it going and stuff like that.

Scott Benner 56:11
I have a question. And I'm being serious. What do you like pickles? Yes, you do that? Do you prefer a dill like a spear? Or a bread and butter? Kind of like a sandwich style pickle? Or what's your favorite pickle?

Dylan Giuliano 56:24
I kind of like dill. Yeah. Like, don't people

Scott Benner 56:28
eat him right out of the jar? Do you want them along the side of a sandwich or on a sandwich we're looking for?

Dylan Giuliano 56:34
I don't know. I'm kind of like both.

Scott Benner 56:37
You anyway, you'll do it? Yeah, there's no way that you wouldn't be like, Hey, have you ever passed on a pickle? Have you ever looked at and said, I don't like a bread and butter pickle? No, thank you. No, no, there's no, no one that you've ever seen that you haven't? Like? No, I'm going to share something with you now. I don't think I've ever had a pickle. What I mean, I'm sure I've been into one into a cheeseburger once or twice that I didn't realize was there. But I would recoil immediately and get rid of it. Wow. Yeah. I don't know. I'm not a pickle person. But I defend your right to love pickles. By the way. Very cool. don't I? If we not covered anything you were hoping we talked about? Like, are you sitting there right now going? How come? He hasn't asked me about this?

Unknown Speaker 57:26
Huh? No, no.

Scott Benner 57:28
Well, if people don't like this episode, and they send me an email and say I did a bad job. What would you say?

Unknown Speaker 57:38
You just blocked them, wouldn't you? You'd be like,

Unknown Speaker 57:41
yeah, call block.

Unknown Speaker 57:41
Do

Scott Benner 57:45
Yeah. So is it? How does it if you block I've never blocked somebody before. But if you did that, does it make you feel bad that they didn't get something out of it? Or do you feel like goodbye soccer? Like, which? How do you make you feel?

Dylan Giuliano 58:01
Like I kind of feel sad? Because like, they were kind of like rude. and stuff. I just had to block them.

Scott Benner 58:13
Do you think there'd be a way for somebody to say something to you? That wouldn't have been rude, where they could be like, hey, Dylan, you know, I really, I love what you're doing here. But one time you said this. And now you seem to be saying something different? And it's conflicting? And I don't understand or like, like, would you have a conversation with somebody if they were just confused?

Unknown Speaker 58:32
Yeah, yeah,

Scott Benner 58:34
I do that sometimes I send emails back sometimes I'm like, Look, I feel like you might be just don't understand what's going on here completely. And, you know, I can't really explain it to you. But if you can just accept that, you know, there was a reason that that happened. And that that kind of thing. It's a very weird thing to have a one way conversation with the person because they'll know the thing you might not realize that I'm starting to realize more and more from the podcast is that people listening to you or reading you feel like they know you a little bit. And then when you do something that they don't expect, it feels wrong to them. But what I would say is you're just doing you and that's why they were looking in the first place. So yeah,

Dylan Giuliano 59:19
I just feel like they aren't they they're rude. And I just tried to chalk talk to them.

Scott Benner 59:27
Yeah, good for you. And then if they don't listen, come block. Done. Yeah, smack them in the face with a pickle. Yeah. If you were going to if you were going to throw a pickle at somebody, what kind of pickle would be the best pickle to throw? I have my answer. I don't know. I think Paul. Good. Good. What do you got? Which one?

Dylan Giuliano 59:51
Probably does a Sally's like hot pickles. Oh,

Scott Benner 59:56
it's it's you'd fling you'd fling a spicy pickle at somebody. If you were gonna do Yeah, see now I was thinking immediately, you know, those little like girkin like the little tiny like solid, like maybe into too long and thankfully, I feel like I get your, like pointer finger behind it and really kind of like with a madam. You know, like boom. And then like because and they wouldn't hurt anybody but they hit they'd be like a little like, like a little thud like on their forehead. You know what I mean? Like, I think that would be fun.

Unknown Speaker 1:00:22
Yeah, yeah, yeah.

Scott Benner 1:00:25
Okay, throw in pickles is definitely bites it does sound like fun to me throw a pickle at somebody.

Unknown Speaker 1:00:34
It does,

Scott Benner 1:00:36
although the little sandwich style ones that are kind of cut in slices. Like now I'm like, you can kind of frisbee them. You know what I mean? Like, like, maybe because they're wet. They'd like sit and stick like now I'm imagining just like, sticking pickles to someone's like forehead. That's all I don't I hope I haven't let you down. I don't know. I know. You want to come on so badly. And I it's hard to know what to talk about sometimes. And I did. I did my best to to make this fun for you. Did you have fun?

Dylan Giuliano 1:01:05
Yes, I had a ton of fun. I just appreciate you putting me on this podcast. Thank you so much.

Scott Benner 1:01:11
It's my pleasure. What would you want? I guess if there's one thing about diabetes that you wish people knew what what would it be? How to handle it? You just wish they knew better? How to help themselves? Yeah. Do you struggle to help yourself? Sometimes? Yeah. Yeah. And and so any information coming in from the outside? is valuable? You think? Yeah, yeah. Cuz then you can take it and sort of like, mold it to yourself and and take some ideas that work for you and leave others behind that you don't like and and find a process that works for you.

Dylan Giuliano 1:01:49
Yeah, out awesome. And people would probably be much nicer and stuff.

Scott Benner 1:01:55
You think if they're okay, hold on a second. So you think that Do you believe that some people are struggling with their diabetes, and therefore maybe they lash out in different ways? Yeah, yeah. So you're looking for people to have a more harmonious life? All over?

Unknown Speaker 1:02:15
Yeah, yeah.

Unknown Speaker 1:02:16
Okay.

Scott Benner 1:02:18
I understand. Dylan. What do you do for your mom today?

Dylan Giuliano 1:02:25
Um, listen the eyes. Tell her I love you and give her a hug right out of

Scott Benner 1:02:31
nowhere. Oh, Dylan. Hold on. People are calling. Let me see what's going on here. This is like a bad call, like, you know, like, they try to sell you like solar panels or something like that. Yeah. So it's what I'm getting right now. I didn't mean to let that interrupt you. I'm so sorry. And do it out of nowhere. hours from now, like, hours from now. Just boom, get a make her day. She's gonna like she'll get in bed tonight. And she'll be like, she'll say to your dad, she'll go. You know, at some point today, Dylan just came up to me and said he loved me and gave me a hug. It was so nice. She's gonna be all like Wi Fi and everything and feeling really good about it. Right? And then, like, essential, listen to this later and should be like that little kid. He didn't mean that. But you would meet it if you said it, right.

Unknown Speaker 1:03:10
Yeah, so

Scott Benner 1:03:12
what am I telling you like everyone smile for anybody listening? Let's do it this way down. Whether you're 12 years old, I'm 48. Right? anywhere in between. If you have access to your parents, give them a call. Say hi to him. Tell him you love him, right? Mm hmm. There's people out there. They're breaking their butts for you. You know, these people? I mean, are you wearing pants right now though?

Dylan Giuliano 1:03:33
Um, yeah. Who

Scott Benner 1:03:35
paid for those pants?

Unknown Speaker 1:03:37
My mom and dad are out

Unknown Speaker 1:03:38
there hustling for you? Do they feed you? Yeah, every day. Yeah. How much food costs?

Scott Benner 1:03:45
super expensive. Unbelievable. They get you that medicine. They take you to the doctor. Um, you see what I'm doing for these kids over here? in grades? You know what I mean? Right. Like, just once in a while hug would be nice. Just to like, Hey, are you you know how many? How many pictures of yourself? You're a kid on the internet? How many pictures of yourself that you taken a week? 100?

Unknown Speaker 1:04:06
Maybe?

Scott Benner 1:04:06
Yeah, send one to your mom once in a while. Be like, yo, look who's here. Dylan who loves you? Right? Plus, you don't want to know like you don't want to like Carl the cucumber better than she likes you. Do you? Hey, if you call your brother Karl the cucumber? Is he gonna punch you or no?

Unknown Speaker 1:04:26
Probably.

Scott Benner 1:04:28
That'll just be between me and you. And the countless 10s of thousands of people who are listening to this. Okay. But don't let Don't let him know. Okay, Dylan, you're a good kid. Man. I really appreciate you doing this. Thank you so much.

Dylan Giuliano 1:04:41
You're welcome. Thank you for inviting me on to the Juicebox Podcast. I appreciate it. I really

Scott Benner 1:04:47
I that means a lot to me. I'll tell you what, do this before we leave. Take a breath, get yourself centered, and say Hi, this is diabetic. They'll pickle and you're listening to the Juicebox Podcast.

Unknown Speaker 1:05:00
Okay,

Dylan Giuliano 1:05:08
because this is doing diabetic to pickle and you're listening to the Juicebox Podcast.

Scott Benner 1:05:14
Very nice. Do it again real fast.

Dylan Giuliano 1:05:17
Hello, this is dialectal pickle and you're listening to the Juicebox Podcast

Scott Benner 1:05:21
doing I really appreciate that. A huge thank you to Dylan for coming on the show and being so honest about his fibromyalgia, type one diabetes, troubles, he's gone through online sharing with people, everything. I mean, guys, he was 12 when he recorded this, check him out on your favorite social media place. He's diabetic, dill, pickle, DUI L and then pickle is spelled like, you know, people spell pickle. All right, what else? Oh, a couple nice things you could do here. Check out touched by type one.org. And go to Contour Next one.com to find out if you're eligible for an absolutely free blood glucose meter, and not just a blood glucose meter, the bestest one that they have. And by they, I mean the world. It's the best one in the whole world. In my opinion. My opinion counts, so does yours. So go see what you think. I just want to say here at the end, that I very much appreciate that you're listening. And that many of you share the show with other people who you think will, you know, find it valuable or helpful or fun? I don't know what you think. But when you think it and you share, it makes me feel warm inside. So thank you very much. Expect at least one more show this week. Maybe two. Hey, those of you who are new to the show and think you're caught up, head back into the archives see what else you can find. There are over 350 episodes of the Juicebox Podcast. Some people who you're listening with have heard every one of them. Don't you want to be one of those people? I want you to be one of those people. Seriously, though, there are a lot of great episodes back there. I hit somebody sent me a message the other day and I'm like, I don't understand why you haven't talked about this. And I was like what what do you mean? And then I asked him how long have you been listening to the show? She's like three months. I talked about that three years ago you got to go look bingeing isn't just for Netflix.

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Scott Benner 7/3/20 Scott Benner 7/3/20

#352 Defining Diabetes: Rage Bolus

Scott and Jenny Smith define diabetes terms

Defining Diabetes: Feeding Insulin. Scott and Jenny Smith, CDE define the terms that are at the center of your type 1 diabetes care.

Check out the Diabetes Pro Tip episodes and Juicebox Docs

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
This episode of defining diabetes is brought to you by Omni pod, the tubeless insulin pump and dexcom, makers of the dexcom g six continuous glucose monitor. Find out more at my Omni pod.com Ford slash juice box and dexcom.com Ford slash juice box on the pod we'll even send you a free no obligation demo in this episode of defining diabetes, Jenny Smith and I will be defining rage bolus. Now you know Jenny, she's an all the pro tip episodes and defining diabetes and ask Scott and Jenny. She's also a person who's been living with Type One Diabetes for over 30 years. Jenny holds a bachelor's degree in human nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian, a certified diabetes educator and a certified trainer on most makes and models of insulin pumps, and continuous glucose monitoring systems. Jenny services are for hire, check her out at integrated diabetes.com.

We're gonna get started in just a moment. But before we do, please remember that nothing you hear on the Juicebox Podcast should be considered advice medical more otherwise, please always consult a physician before making any changes to your health care plan. or becoming bold with insulin.

Do you have an absolutely spectacular endocrinologist certified diabetes educator diabetes, nutritionist if you know anybody who's helping you with type one, you have one like that, that you'd love to share with other people. Where are you looking for one that fits that description? Check out juice box docs.com. If you do JUIZBOXD OCS It's a place where I'm collecting an amazing list of fantastic support for people with type one diabetes. It's absolutely free. If you have somebody great to add, check it out. If you're looking for somebody, check it out.

Unknown Speaker 2:31
Rage Bolus.

Scott Benner 2:33
So I know that that

Jennifer Smith, CDE 2:36
hasn't rageful I mean, everybody has

Scott Benner 2:39
just like, at some point, you look at your blood sugar or someone else's blood sugar you're helping and you're like, damn it. I just don't care more, more and more. And it's always and when you rage bolus, the idea is that you know you're putting in more than you need, because you're just trying to crush the situation and you're willing to live with a low later to stop what's going on right now. Is that how you think of it?

Jennifer Smith, CDE 3:02
Oh, yes, I you know, a rage Bolus is a you know, even if it's mostly on a subconscious level, like you're not really acknowledging but you're like, I'm just take five units right now because I'm so tired of this like high blood sugar. And I know five units is too much like subconscious level. I probably only need the two units that my pump is recommending. But I just want this blood sugar down. And I'm not waiting six hours for it to happen. I'm gonna do it. Now. It's gonna work right yet.

Scott Benner 3:31
Yes, I Jenny's not wrong. I've done it. She's done it. Everybody has done it. It's actually interesting, because I've got a chance to wear a glucose monitor for a little bit. I think my body does it sometimes too. I it's very interesting. When if I eat too much simple sugar. My body appears to push back harder with insulin than it does if what I've eaten is more balanced. Yeah. Oh, it's so fascinating. But But anyway, taking me out of it and keeping it with people who are using you know, manmade insulin. When you hear someone say I rage Bolus, that's what they're talking about. They're talking about they had a high that they just couldn't do so they hit it with more insulin than they knew it needed just to make it go away. Now, there are great reasons why you could have a high stuck blood sugar. And I again think that if people listen through the pro tip episodes, they might not get into that situation is frequently I have to say that you know now for art and you know if I'm raged bolusing and now I'm making quotes, it's for like a blood sugar. That's 180 that won't move. You know, like no line. I don't rage

Jennifer Smith, CDE 4:43
Bolus is not like 10 units for that no, a lot less because you're starting at a lower high

Scott Benner 4:49
rate really crazy rage balls for us at this point would be three units now. Right But back when her blood sugar was, you know would go to 300 and sit there and I'd stare at it and be like, I don't know what's happening. But it was a lot more insulin than I was just like more and more and more. And then, you know, suddenly you're like, oh god, I gotta catch it with food. And it turns into a whole thing. But my reasoning for wanting to define it is because I think that people use the term when they use it, like in community or online. It's it's fairly accepted that this is something that has to happen. And I do believe that once in a while, you're going to need to do that. But if you're doing that constantly, again, that's a signal that something's wrong, you know, somewhere else. And so please,

Jennifer Smith, CDE 5:40
salutely, right. It's just kind of like you're bumping nudge? Yeah, if you're doing it occasionally, that's the purpose. If it comes into use every single day, there's something that's not right. It's just not right. And

Scott Benner 5:53
you and you can do something about it. I did something very uncommon for me yesterday, I saw a person in a Facebook group that was not my facebook group. And they said that they were getting low to the point of passing out every day of their life. And I just was like, I can't, I can't walk past this,

Jennifer Smith, CDE 6:13
I need to help you. I said,

Scott Benner 6:14
seriously, I can't do this. So I jumped in. I said, Look, I'm very sorry for sharing my content in here. I'm like, but this is diabetes, pro tip calm, you go listen to those episodes, this isn't gonna happen to you anymore. And so I couldn't, I couldn't leave, I just couldn't walk away for I actually felt like I saw a car accident, and the car was on fire. And I thought I might die. But I gotta try to get this person out of here. Because on social media, sharing your own content, and somebody else's place is a lot like risking your life because people can turn on you. You know, but I just couldn't, I could, I couldn't walk away from it. So I feel the same way about rage. bolusing it's, it can really be dangerous to you. And so absolutely, right. So the best way to I know I say these stupid things, but the best way to not get it you know, to not have the rage of all this is the knockout. Hi, which is like now people are like, yeah, thanks, idiot. I know, but,

Jennifer Smith, CDE 7:09
but I'd like to not get high either.

Scott Benner 7:12
Wow, do you have a don't get high episode jerk. But, but turns out I do. So, you know, I don't want to see you in that situation where you're constantly racing, but you understand what it means now. And that's the first step to enlightenment, which sounded way more high minded than I meant it to.

Jennifer Smith, CDE 7:32
We'll also talk so much about rage. bolusing and I think that there's also the opposite of it. But there's no defined like, like term for it like rage. bolusing It's not like rage carving, like when you're affecting like a low blood sugar with this amount that you know is way too much. Like even in your low brain of like fuzziness. You're like, Oh, yeah, if I eat the whole bag of taffy, that's probably gonna make me be 300 but you know what? I'm so low right now. I'm just gonna

Scott Benner 7:59
doesn't matter. And that doesn't matter. You'll get a little bonus definition here. Is that eat the kitchen?

Jennifer Smith, CDE 8:05
I that would be

Unknown Speaker 8:08
it? That's right. Yeah, the kitchen is how

Scott Benner 8:10
I hear people talking about it. Like I felt like I could have eaten everything in the kitchen. Or eat the refrigerator, fridge. The fridge, right? There's other ways to think about it. It's interesting as you describe that, I know you have to go but I really just recognized how that's one of the separation points for me not having diabetes. Like there's I have no context for that. I know what it looks like when I watch but I don't know what it feels like when it's happening. You know, I can I can describe what I see with my daughter, but I don't I imagine it's pretty frightening. And yeah, you know, in just I don't know if you imagine your blood sugar's real high, you you've been like that for hours, you're cloudy, you're moody. And you've got this, you've got this device in your hand and you're like, you know what, I just gonna give myself a lot of this right now and see what's going to be you know, feels like a feels like a jumping off a cliff and you're like, I hear water down there. I can't see it. It's probably down there. You know, you're I go. Anyway, it's, it's it's really lovely to have somebody perspective who, who genuinely has been through it. So thank you very

Unknown Speaker 9:16
much. Absolutely.

Scott Benner 9:19
Friends, it's time to get yourself a free, no obligation demo of the Omni pod sent over to the house. Okay, let's talk about the AMI pod tubeless insulin pump, besides being absolutely spectacular, is the insulin pump that my daughter who was about to turn 16 has been wearing every day since she was four years old. That's a long time. Every day on the pod comes through exactly the way we expect it to and in a myriad of ways by being unobtrusive by being tubeless by helping us with extended boluses Temp Basal rates and just being what's the word I want really just it's there, it's solid, you don't mean like it does, it does what I think it's going to do when it's going to do it, I get what I expect. And what I expect, is a quality insulin pump. That gives me the delivery and the wearability for my daughter that we need. And that means that she can stay attached to her insulin, when she's playing sports without being obtrusive, while she's taking a shower, sleeping, running around in the backyard, jumping on the trampoline, riding a bike, swimming, all of the things that your body still needs insulin for, you know, when you hear people saying, Oh, I disconnect for that? Well, they don't have insulin during that time. And that's very likely gonna cause a high blood sugar. Now, I understand that two pumps need to be disconnected sometimes. But the Omni pod never needs to be disconnected. It's tubeless. Wonderful. And you don't have to take my word for it. Because on the pod will be thrilled, happy, elated, delighted to send you a free no obligation demo that you can try it on yourself. Find out if what I just said is true. But you notice, but still try my on the pod.com Ford slash juice box. Check it out, get the demo, decide what you want to do. If you want to keep going with Omni pod, it'll be easy. And if you don't, no harm, no foul. You were just trying. That's why they call it no obligation. Now I have an obligation to tell you about the dexcom g six continuous glucose monitor. This application is both business oriented because their advertisers and moral because I think everyone should know about the dexcom g six continuous glucose monitor. Here's why. I'm gonna use an example from this morning. Arden wakes up her blood sugar is 106 I see it on her Dexcom nice and steady. I hear her moving around upstairs. No big deal. She's getting her face wash getting dressed, getting ready to actually go out right now. All of a sudden or blood sugar diagonal up starts moving up. 106 turns into 115 turns into 118 all of a sudden 125 Well, we bolus right we're trying to stop that rise before it happens. Arden's trying to go out just trying to do things she needs to eat. She doesn't need to walk into this day. 5060 7080 points higher than she needs to. But imagine had she woken up and tested her blood sugar with a meter boom, she would have saw 106 and thought, Hey, I'm doing great. And then she never would have seen anything that happened next. And then a half an hour 40 minutes later when she's sitting down to eat and tests again, you know in a world without a CGM. Who knows what she is to 25 now suddenly, the first meal is in jeopardy. It puts the rest of the day in question. You're looking at roller coaster going up and down and up and down are skipping a meal. Instead, beep beep Arden's blood sugar hits 120 she gets a little insulin right back to where we need to be ready for that meal ready for the day. That uniquely happened because Arden has a dexcom g six continuous glucose monitor. Now that's just one example. Imagine all of the other ways that technology can be used for you. Imagine that the way I found out about it wasn't because I was bugging Arden while she was getting dressed. It's because it popped up on my iPhone. Because the dexcom g six has Sharon follow. And that works on Android and iPhone. So Arden CGM told her app or app, put it up in the cloud came back down on my phone, just like that we averted a high blood sugar burden the problem at a meal. save the day Dexcom g six is going to save more than one day for you. That's for certain. Find out how you can get

at dexcom@dexcom.com forward slash juice box. There are links to Dexcom Omni pod and the other sponsors at Juicebox podcast.com. If you can't remember them, they're also right they're in the show notes of your podcast player. You can click on them right there, like click Like with your finger. very much appreciate when you support the sponsors because it supports the podcast, whether it's on the pod Dexcom the Contour Next One blood glucose meter or touched by type one. When you check out the links. You're telling those sponsors I listened to the Juicebox Podcast I heard about you there. They keep sponsoring you keep getting the podcast for free. Seems like a good deal. Alright, a little bit of music, and we're out of here. Do I have any announcements here maybe one Hold tight. You can find the rest of the defining diabetes series as well as ask Scott and Jenny and the diabetes pro tip episodes at diabetes pro tip comm you can find them too at Juicebox podcast.com But, you know, diabetes pro tips pretty easy to understand no es after the P, so just the P no si p.com diabetes pro tip.com. Also, if you have a great doctor or need one, for type one diabetes, check out juice box docs.com do cs juicebox, Doc's calm and ever growing list of Type One Diabetes healthcare professionals that listeners of the podcast have recommended. Let me give you a couple of examples. For instance, right there in Australia, Rachel Baker, Rn NCD. He does some amazing work. How about up in Canada? Dr. Jeremy Gilbert, over in Ontario, that's Toronto. You understand Toronto, Ontario, right? Like Canada does their places weird? I mean, compared to how we do it. How about Melissa and tonic? in Fairfax, Virginia. alfonzo, Armstead, Nashville, Tennessee. And many, many, many more. And people put in effort when they send in their doctors to give real examples of why, for instance, someone wrote in that Elizabeth Harris in Chapel Hill, North Carolina, she said about Elizabeth, I've worked with Dr. Harris for close to a decade and she's taking care of me through many different stages of my diabetes. From the disengaged teenager to the engaged with struggling young adult to well controlled debate goes online, check it out, juice box, Doc's calm. It's not a pay service. None of the doctors are paying me to be there. It's just me trying to take your good experiences, and putting them in one place so somebody else can get the advantage of what you've learned about your doctor. Thank you so much for listening to the podcast for sharing it for rating it on iTunes, which they don't call iTunes anymore Apple podcasts. That and I just got a great review the other day that really made me happy, and I appreciate that you guys are enjoying the show. Thanks again, keep sharing June was the most downloaded month in the history of the podcast. Not only that, but I'm talking about june of 2020. June of 2020 was for downloads 100 times greater than June of 2019. But listen to this 525 times greater than June of 2018. So we're coming up on another big milestone for the podcast. That's a try to see what I can do to celebrate 2 million downloads. I don't have any ideas yet, but I'll figure something out. I appreciate you helping me get to those downloads by listening by bingeing by sharing. They're all amazing things that you guys do it support the show. Thank you so much. I'll see you soon.