#1178 Two Old Scotts
Scott Benner
Scott Has type 1 diabetes, celiac, asthma and more.
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Scott Benner 0:00
Hello friends welcome to episode 1178 of the Juicebox Podcast
Okay, so Scott is 55 years old not me, Scott Scott, who you're going to listen to today on this episode with me so two old Scott's that's why we call it that he's 55 years old he has type one diabetes celiac asthma Raynaud's Gilbert's vitiligo, he's a marathon runner. Today we're going to talk to Scott about his life and some things that he's worried about, not the least of which is how newly diagnosed people are under informed. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan. T one D exchange.org/juicebox. Take the survey help type one diabetes research to leap forward you need to be a US citizen. Have type one diabetes or be the caregiver of someone with type one. The survey should take about 10 minutes to complete. You can do it from your phone or your tablet. You could probably do it while you're sitting on the toilet because it doesn't really take that long. He won the exchange.org/juice box but don't sit too long you'll get hemorrhoids.
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Scott 2:24
Hi, my name is Scott. I live somewhere in the Midwest near the mountains. I have type one diabetes. I was diagnosed in June of 2020. My doctor actually called me while I was mountain biking to tell me that I probably should eat less carbs for a few days. So they figured out what was going on. No family history whatsoever. But I have five other autoimmune disorders.
Scott Benner 2:46
Wow. which one came first.
Scott 2:50
I was diagnosed in my teens with Go Bears, which is you know, it's benign that my father actually had it. That's how I why I was tested for it. And then I have slight hands of arthritis. But it's I don't take anything for it. That was diagnosed when I was in my 20s. And then I got Giardia from drinking contaminated water in the woods one time and my doctor gave me blood tests for all this the medicine you have to take for it. My liver function was really weird. So I spent months in and out of tests before they finally decided I had celiac.
Scott Benner 3:28
Okay. And how old are you then? Cheese?
Scott 3:31
2000. So that was in my 30s. Okay, like 32 I have I've had asthma my entire life, which could be considered autoimmune to some extent because that's, you know, it's just inflamed inflammation. Yeah. And then was diagnosed in 2020 with type one. Did you ever DKA No, nothing.
Scott Benner 3:50
Okay, hold on. So I actually think this doesn't happen very frequently. I should have a sound effect. But I don't know anyone's ever said Gilberto's before to me. So common harmless liver condition in which the liver doesn't properly process bilirubin. Yep. Do you do anything for it? No,
Scott 4:09
the only the only effect it has on my life because I can't donate blood.
Scott Benner 4:14
Well, listen, that's not been. Exactly. He did a couple of things to get me out of responsibilities. That'd be alright. Wow. Okay, but how did how did you avoid type one for so long? You're like, uh, you don't I mean? Yeah,
Scott 4:29
it's so funny. So my wife's a nurse, a very, she has like, all these letters after her name on her badge and stuff. So she's, she's done some crazy stuff. And when I was diagnosed, she was actually at work. And I texted her my, my labs and she goes, type two, and I'm like, I have no idea. I mean, all I had was the lab. All I had was my glucose was like, 600.
Scott Benner 4:52
Yeah. What's your body style like Scott?
Scott 4:55
I mean, I'm a distance runner. Okay. Yeah.
Scott Benner 4:59
Is that why when she was like type that type to doesn't make sense to her she thought
Scott 5:03
nor did it to my my son. My pa is actually also a runner and I've run with her like around town, which is hysterical. We didn't know each other till so we moved here I never we moved to where we live now and I had never established a doctor here. Like a permanent doctor, I had gone to a group of doctors for you know, just do the checkups but did not have a specific position. So I made an appointment with this person just for you know, I had these weird symptoms. Um, I felt like my mouth was on fire. Like all the time, I couldn't eat anything with hot peppers in it. And I love hot peppers. I absolutely adore spicy food, and I couldn't eat anything. And that's why I went to the doctor.
Scott Benner 5:45
Did you ever figure out what that was? Yeah, it's as
Scott 5:48
soon as my blood sugar got back to normal. I was back to guzzling. Siracha like it's water.
Scott Benner 5:54
Oh, my goodness. That's interesting. Again, it's kind of your like a like a, like a virgin delete here. Yeah, no, no, I mean, you just saying so many things I've never heard before. I'm delighted, which I'm sorry that your medical maladies are delighting to me. But I mean, I've had a lot of conversations. I don't hear a lot of people say stuff that's different sometimes, you know, in this part of the conversation, so that's interesting. So you couldn't handle spicy food while your blood sugar's were high. Yeah.
Scott 6:20
And, like last night, I had rice we had we had Thai food last night and I went way overboard. And you know, when you go way overboard, obviously your pump fails or your pump site fail. So I was like 250 and like I could literally feel my mouth burning and I'm like, This isn't fair.
Scott Benner 6:40
That's quite the deterrent actually, isn't it? I can't I get when my bloods are good. I or my mouth will go on fire. But that's it, man. That's what else you got going on, that people don't know about? Like, is there any other weird stuff happening? No,
Scott 6:54
no, I think that's about oh, and I'm gonna say it wrong. I always do my doctor last meet vitiligo, vitiligo.
Scott Benner 7:01
Oh, it's, yeah, it's been a Lago. I spent the last week of my life with my wife mocking me pretty openly, because I'm enjoying the television show, Mayor of Kingstown. And I've been saying it a lot in the house. I'm like a child. And she says, it's, you're saying the word incorrectly? And I was like, is it not? Kingstown? And she says, no, no, the other word. So I said of, because I was screwing around by that. And she goes no mer, you're saying Merong. You're saying like ma Ra? And I was like, Yeah, and I was like, Mayor, and she goes, Nope, wrong. And I'm like, Mayor, and she's like, nope, and now it's now it's an Abbott and Costello routine. Like I'm like, mejor. And she goes, that's weird. And I was and so anyway, this goes back and forth. Then she gets frustrated with me. And then I think it's not even just frustrating. I think she looks at me and thinks I probably shouldn't have made another human being with him. I feel like I feel like that's where it is. Anyway, this went on for days because I like, like a Heiser. I don't know if you want to get it but I blew my way through two seasons of that show because I was enjoying it so much. So I've been talking about it for like two weeks. And anyway, I don't know how to say the word so don't feel bad about that a Lago which I only know because Michael Jackson had it. If you take insulin or sulfonylureas you are at risk for your blood sugar going too low. You need a safety net when it matters most. Be ready with G voc hypo pen. My daughter carries G voc hypo pen everywhere she goes, because it's a ready to use rescue pen for treating very low blood sugar and people with diabetes ages two and above that I trust. Low blood sugar emergencies can happen unexpectedly and they demand quick action. Luckily, G voc hypo pen can be administered in two simple steps even by yourself in certain situations. Show those around you where you store G vo Capo pen and how to use it. They need to know how to use G vo Capo pen before an emergency situation happens. Learn more about why G vo Capo pen is in Ardens diabetes toolkit at G voc glucagon.com/juicebox. G voc shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma. Or if you have a tumor in your pancreas called an insulinoma visit G voc glucagon.com/risk. For safety information. It's very important to me that the supplements I take are of the highest quality and that's why for the past number of years, I've been drinking ag one. Unlike many supplement brands. Ag one is researched and developed by an in house team of scientists, doctors and nutritionists with decades of experience in their respective fields. Taking care of my health shouldn't be complicated and ag one simplifies this by making it so that there aren't a million different pills and capsules. For me to keep track of just one scoop of ag one mixed in water every day, and I'm on my way, ag ones ingredients are heavily researched for efficacy and quality. And I love that every scoop also includes prebiotics, probiotics, and digestive enzymes for gut support, as well as vitamin C and zinc to support my immune health. I've partnered with ag one for so long because they make such a high quality product that I genuinely look forward to drinking every day. So if you want to replace your multivitamin, and more, start with ag one, try ag one and get a free one year supply of vitamin d3 que two and five free ag one travel packs with your first subscription at my link, drink ag one.com/juice box that's drink ag one.com/juice box, check it out.
Scott 10:51
I was in a research, a research trial for a COVID vaccine. And I got to be really good friends with some of the PIs that work for the research hospital. And they have me at the top of the list they said which means I might have a chance for a study they're doing with some new topical and light therapy and all that. So I'm hoping to get into that.
Scott Benner 11:15
Wait a minute. So that's for the vitiligo Where do you have it on your what do you have it on your body?
Scott 11:19
My hands, my face, really all over? So like, I have scars on my legs because I fall a lot. And every time I get a cut on my leg, it leaves like a white line that never never read pigments. That part does. I mean, it doesn't bother me. I told my wife all the time that it would be nice not to look like a tattooed freak for a little bit. And she laughs because that that nobody notices that. You know, everybody notices.
Scott Benner 11:44
Well Are you are you incredibly Caucasian.
Scott 11:47
I can get a tan with a flashlight. So okay, it's and and I live in the high desert. So I'm in the sun a lot.
Scott Benner 11:56
So is it it's interesting, like so your skin tone is? I don't know how to do this. Are you like Italian like that? That kind of skin tone?
Scott 12:06
No, I'm mostly German and Eastern European. So okay, if you put me in a cave for a year I'd be pasty white. Yeah, probably
Scott Benner 12:14
be able to see through you. I got I there's European and my kids from my wife. And more Italian from me. And they tan well, but they they go to translucent in the wintertime. It's it's pretty interesting. Really is oddly interesting how, like pasty they get without the sun. That's your whole life. The vitiligo or no? Yep, that's been well,
Scott 12:40
I mean, I so I was like 19. And it's kind of funny. I was a bartender and hair halfway down to my button. My mother hated it. My mother thought that I look like a hippie. And I guess it was 21 I was driving home to see my mom. And I just literally stopped the haircut place, like halfway in the middle of Pennsylvania, and got it all cut off. And when the lady cut it off, because you have gray hairs, and I'm like I do not I'm 21 or 22 or whatever it was and she's like, No, but you pull one out. And that's when it started. That's when I noticed that that I started losing pigmentation and within a year I you know, I was partially gray and within like five years I was completely and totally gray and had patches all over and every doctor I went to went yep, that's what it is. It's
Scott Benner 13:26
always encouraging when they do that. We were at a we were we were at a doctor or Arden was getting she had a lot of shoulder pain. She got a like a steroid injection in her shoulder, right. She had like some inflammation, I guess and and it was fascinating how quickly like he put the injection that went away immediately was crazy. But not the point like while we were there. She's like, you know, I'm pretty bendy. Like Arden's not like super flexible, but she's got, like flex to her. And he's like, ah, that's probably that ILS Dan Lawler. And we were like, yeah, we've we've considered that that could be that we don't know, she doesn't have a diagnosis or anything like that. Bah, bah, bah. And he goes, Yeah, there's nothing I can do about that. He just he just said it. Like, you're gonna want to let that one go. He's like, you can exercise and stuff. And then he just sort of stopped talking. I was like, what a lovely bedside manner you have, sir. Okay, so your autoimmune stack up as you get older. Now your mom and dad don't have any autoimmune stuff or they don't have diabetes.
Scott 14:27
My dad had Go Bears and that is the only thing we know about as far back now I did have an uncle who this would have been like, in the 50s or 60s Probably had celiac because I always remember it's Bill never drank beer. That was the whole family knew this like never offer bill a beer because he'll get sick.
Scott Benner 14:45
Oh, no kidding. And that was that. Yeah. And I
Scott 14:49
also remember him when we go to would go to their house. Like he would eat steak and potatoes. And that was literally the only two things he would eat was was was red meat and potato He knows how long do you live? Not long like 60
Scott Benner 15:05
The way you giggled Scott was almost like devious. No, we got him Don't worry. No, I mean, yeah, because I mean, there's a couple of other nutrients you need.
Scott 15:16
You kind of want to balance that meant maybe have a salad once a week
Scott Benner 15:20
or whenever throwing a vitamin even. Yeah, but yeah, that's it. Your dad was the Go Bears and nothing else and maybe an uncle with celiac blade just all jumped on you now. Do you have kids? Yeah. Did they have anything?
Scott 15:31
I have a 22 year old, a 25 year old and 28 year old and we made them all do trial net. We had them all tested for celiac. When I was diagnosed. Nothing, absolutely nothing. And I'm good with that.
Scott Benner 15:47
Geez, did you grow up under a powerline? Or something like that?
Scott 15:51
By train track? Does that count?
Scott Benner 15:52
I don't know if it does or not. I just remember those stories about people whose homes burned near power lines, then they turned into Spider Man or something like that? Yeah, which of these things has the biggest impact on your life?
Scott 16:05
Probably the celiac because it just minutes. I live in a place where we're like, even the breweries have tons of gluten free selections. It. It's amazing how much like gluten free beer I can have. But like getting, I can't stand gluten free pizza. I just I don't like the the texture and the taste. And so it makes it hard to work in sales. I should note that I so I go out with customers and take them to dinner and stuff. And so the celiac really impacts that because I don't want to like, oh, yeah, I have to eat gluten free. Let's go pick this place. Or I'm diabetic. Let's go pick, you know, someplace that's low carb or something like that. So the celiac makes it hard to sometimes to you're
Scott Benner 16:53
gonna say you're a bummer in the car. Like, let's get pizza. Now, we want to Chinese. I want my blood sugar to be high all night. No, what about
Scott 17:03
these conversations? Yeah, I'm sorry.
Scott Benner 17:04
What's it like in a bit in a because that's a real business setting. That's even beyond business. Because it's not like it's not like the people sitting around you in a cubicle or the the people you work with every day. Like when you have to sit down at a meal and give yourself insulin. Does that come with a description every time when you meet a new person? Yeah,
Scott 17:24
so I'm running loop. And I work in a very, very high tech field. So I work with a lot of people who are programmers and software guys and AI and all that. And I always chop loop and the pump and the CGM and talk about you know, the fact that we're running pirates or not pirated, unapproved code and all that. So it's a great icebreaker with some people like that. I've had people who have literally built lube for their the one guy built it for his nephew.
Scott Benner 17:52
After seeing it with you. Yeah. That's pretty cool. All right. So cool. So I mean, you're an older you get me you're in your 50s. I was just thinking about this this morning. The the lessons that come with being older, about like patients, I was thinking a lot about patients this morning, and how, like when I was young patients felt like apathy. But that doesn't feel that way anymore. And, you know, I'm assuming you've learned along the way that none of this matters. So, you know, it's just tell people who cares. If they don't like it? What are you going to do? I wouldn't imagine it's ever gotten in the way of business, right? Like nobody's ever like curled up and been like a like that. Right?
Scott 18:30
That my last job. I had a meeting on Tuesday at 11am, every other Tuesday. And I would I would have to prep for that meeting. Because it was that was my biggest customer. And like, I would hear from my management on a routine basis that this customer leaves, so do you. And they were unhappy, and I was getting so that they are the reason I left my old job because I was under all this pressure and I was getting no support. And I just Life's too short to hate your job and I hated it. So I left and then bit every Tuesday I would have to prep for this meeting, I would have to take a unit of insulin, like 15 minutes before the meeting because I would spike and I would I would go from you know a flatline of 90 with no carbs whatsoever. 280 in 20 minutes, meaning just the stress of it. Yeah, that is the only thing that I could possibly come up with it. The diabetes impacted my work, okay.
Scott Benner 19:26
I used to hate ordering my daughter's diabetes supplies. I never had a good experience. And it was frustrating. But it hasn't been that way for a while actually for about three years now. Because that's how long we've been using us med us med.com/juice box or call 888721151 for us med is the number one distributor for FreeStyle Libre systems nationwide. They are the number one specialty distributor for Omni pod dash, the number one fastest growing tandem distributor nationwide, the number one rated distributor index. com customer satisfaction surveys. They have served over 1 million people with diabetes since 1996. And they always provide 90 days worth of supplies and fast and free shipping. US med carries everything from insulin pumps, and diabetes testing supplies to the latest CGM, like the libre three and Dexcom G seven. They accept a Medicare nationwide and over 800 private insurers find out why us med has an A plus rating with the Better Business Bureau at us mad.com/juice box or just call them at 888-721-1514 get started right now. And you'll be getting your supplies the same way we do. Yeah, you know, it'd be beeping, while these people are already like pissed about something that's not nothing you can really do about because you're just you're just in there like you're a mediator, right? And that's scenario. Like they're mad about something that's not you're doing it's the business and now you have to go in there and explain to them why they shouldn't be mad.
Scott 21:06
Yeah, I was the designated apologize or
Scott Benner 21:10
is that on your CV? Is your business making people upset? Scott can handle it. Started tap dance and singing a song at the same time, right is what it feels like? i Yeah, yeah, yeah, no, I almost know what you mean, I didn't before I had this job. But now I I'm in a weird position where the value of the podcast to advertisers is something that some of them just intrinsically understand. And some of them don't get at all. Like it works. But they don't know why. And they want it to be trackable. And you're busy explain to them. That's not really how this works. Like, I know you want it to work that way you want it to be person A clicked on this thing, they bought that thing, it came through my link, you can attribute that to me, I have value. And that's literally, you know, that's the business side of my life. Except that there are plenty of things that people go into doctors offices, and they're like, Hey, give me a one of these. Or the doctors like do you need a blank? And they go yeah, I'll take blank because they might not even think it's because they heard on the podcast, but it is. And that's not trackable for me. Yeah, some of them really get it actually a lot of them get it, and a few of them don't. And having meetings with those people. That's what it feels like. It feels like I'm tap dancing on the head of a pin, singing a song and juggling at the same time and trying to get them to see something that they don't understand. And it's it's a ton of pressure, because it's a diabetes podcast. Like there's not a never ending list of people who are super interested in advertising. You know what I mean? Like, it's, I hate the pressure, honestly, I wish I could just make the podcast and not think about that. Or they would just agree that I'm fantastic. And just send the ad revenue, and I'll do the ads for him. You know what I mean? So that'd be nice. But I take your point, I would. It's nice that you were in this situation to get away from that. I don't want to make it sound like I'm like burdened or anything like that. I make a podcast, Scott, you don't I mean, like might be after I do this with you, I'm gonna have lunch with a friend, and then I'm gonna get my hair cut later today. So I'm not like, it's not the worst thing in the world. Anyway, I'm gonna get to your diabetes in a second. But I'm interested in you having to go to basically your adult children and telling them they have to get a medical procedure. So was that met easily with them? Were any of them like, I don't want to do this here to talk them into it.
Scott 23:44
So I have two mini me's The one is the anxiety ridden bundle of nerves, me and the other one is the sarcastic and rude me. And the bundle of nerves is the boy and the sarcastic one is the girl and the boy said, I'll do it. But I don't like needles. And the girl said I swear to God, if I get diabetes, because of you. You're you're going to the what was it? Oh, she said you're going to the county nursing home, not the paid one.
Scott Benner 24:16
There you go. Even the anxiety Scott, I think might be a little like, I'm not going to tell you anxieties autoimmune because that would be silly. And I'm not a researcher. But I do think that after having so many conversations, I don't even know how to put it but I think there are things that run in that river. You know, like how many people have I spoken to who are like, Oh, I have a bipolar uncle. I'm like how many people would type one have to say that to you before you go play? That seems like more than a coincidence. And you know, or the even just allergies. I had terrible allergies when I was younger, like really bad. And they've gotten better over time. Oh my but my son got blasted with them when he was is like a senior in high school. And they've gotten better over time. But he's always like a like a little sniffy when you say him or something like that. You don't I mean, yeah, I
Scott 25:11
am this time of year just the dust here is crazy. And when the the wildfires are really bad No, we escaped so the central part of the US escaped most of the the Canadian model file fire smoke this summer, like it always back East. And that's really weird. But when we get the Utah fires and stuff, it's absolutely terrible. Here, I ran a half marathon and air quality that was kinda sketchy. Like afterward, looking at the news, we probably shouldn't have been running. But I spent like a week using an inhaler because of it.
Scott Benner 25:42
Really, just from running out doors in that. Yeah, yeah,
Scott 25:47
it was a bad day. Like, it's funny. I picture shows up on my Facebook memories all the time. And it's like, you can't even see the sun. It's just like this blur in the sky. There
Scott Benner 25:57
were days here where it was dark during the day. Yeah, and yellow. Like, the sun couldn't get through at all. And the sky was dystopian, but like, no kidding. Like, I'm not over exaggerating. And it you couldn't see, sometimes you couldn't see down the street. And that was from Canada, and I'm in New Jersey. And it was just, it was not a thing that happens around here. So it took it was really off putting hard to breathe. You go outside, you couldn't get a deep breath. Like you know, you cough it was really something else, actually. Bye bye
Scott 26:31
have to wait for you to release some of the Canadian ones that you Canadian people that you interviewed this summer to see if you're blaming them for oh, I
Scott Benner 26:38
blamed them all heartily. And I know Canadians that I would text personally, and tell them that I don't know what you're doing up there. But please pull it together. I said, if this was America, we'd have this handled by now. I don't know if we would have or not, by the way. I just you know, like, come on. And so you're saying that your, your level of I don't know, like tolerance for that changes by the like, in the year? Or is it more about the dust in the air?
Scott 27:06
It's more about the dust in the air. It doesn't help that I have two very, very dogs and a cat. And, you know, any normal person without with bad allergies would probably start by not getting a couple of dogs and then you know letting them sleep on the bed with you.
Scott Benner 27:19
Yeah, no, that's a bad decision. I'll tell you right now my son loves our dogs. i If he ever gets ones and adult Arby's I'll be stung. There's one of our dogs if he touches it, he he can't even touch the dog. Oh, you know, and my wife has gone through bouts of that through the years where she could wrestle with the dog. There was no trouble down though I can't touch it back to its better again. And it's actually difficult as a parent and as a husband. Because there's part of me, it's like, I should take this dog for a walk and not let it come back. Because it's like, this is a really terrible for my family. And there's part of me that's just like, I don't maybe dogs just don't belong in a house. You know? It because this is it's more than they can handle. For sure. You know, I get like, sometimes I'm like, is it bad for everybody? I don't know. I don't think I'm gonna turn people off on having a pet but I take your point. I don't know why the hell you would do that. I was like your Do you like my dogs now? Well, hey, listen. I like them, too. You also like pizza, but you stopped eating it? What are you gonna do put pizza in the dogs in the same box and put them in the garage? Yeah. But it is. Pizza is good. It's terrible. Sorry. I'm really sorry.
Scott 28:35
You were talking about what affects me the most. I hear you talk about your pizza recipe. I would love to do that. I love to cook. I'm actually fairly competent at it too. I would love to cook pizza like you You made but you just can't make gluten free pizza like that. It doesn't
Scott Benner 28:52
work. You need the gluten. Actually, it's what you need. It's all about that mean when you learn to make the dough there's nothing to dough by the way. It's like flour and salt water to me yeast. But when you really like go dig down deep and learn about what makes a good pizza dough. It's all about that building of those those gluten molecules in there. And that's what makes it fluffy and crispy and airy and everything you're looking for. So yeah, it sucks, man. I'm sorry. There's so much good. Like if you told the story about your whatever uncle or whatever, the beer guy that couldn't drink beer. And obviously that's a really long time ago. I'll be before it sounds like he was before a factory farming. Yeah, right. But now there's so many people are affected by it. It really does make you wonder like, what's on the wheat? Like, is it something they're spraying on the wheat that's like, causing it more like I don't know, obviously. But the the incidence has gone up so much over the last few decades. It's just seems crazy to me. Honestly.
Scott 29:52
It's amusing to me that my wife and kids love to poke fun at me like we'll go to a restaurant and be like, hey, the spread is good. You want some? Or you know, they did this to me all the time. And we all laugh and joke about it. My wife went to the doctor yesterday for some stomach issues she's been having. And the doctor told her he wants her to go gluten free for a month. And she came home almost in tears. And I'm like, I don't I feel bad for not that bad. She
Scott Benner 30:19
upset because of the gluten or because of the crap she thought she was going to take from you. No,
Scott 30:25
no, no, because of the gluten. So she was she's like, she never met a carb. She didn't like she has she and the dogs have breakfast cookies every morning, which sounds terrible. But they have these the best coughs I mean, you
Scott Benner 30:41
want to tell her to go on we go V because she just wouldn't care about food at all. And then that would fix that I because we had we made something for dinner the other night and it just went poorly. I bought the wrong. It's a long story. I'm not going to bother you with it. But I bought the wrong meat. I usually get it into one place. I got it another place, went to eat it. And we were immediately both of us were like, This is terrible. Now we've been cooking all day. And we just like swallowed hard and threw in the garbage. And I was like, I'll go get a pizza. It was just a knee jerk reaction from like my life before being on weight loss medication. And then we got the pizza. And both of us took a couple of bites here like we don't want this is terrible, like so heavy and greasy. And like nobody like really. It's very interesting how that those GLP medications just tell your brain like I don't want this. Like I'm not telling your wife to do that for that reason. But I'm telling you if she was using that she wouldn't give a crap about those breakfast. Things. She wouldn't care at all. It's fascinating. I was explaining it to my, my dentist yesterday. He's like, how's this working? And I said, Well, I think I might have a GLP deficiency because as soon as I started taking it, I started losing weight. Well before it even like caloric restriction could have helped me. But I just said I'm like my brain is not my brain never tells me I'm hungry. And my stomach never tells me I'm hungry. And so I need to an even when I'm incredibly hungry. It just feels like oh, it would be nice if I had a meal. Like that's the extent of the pressure I get from it. I think they're going to do more testing. And I think you're gonna see type ones get GLP medications in the future. Yeah, I'm talking to a couple of people. Eventually I'll have some of them on the podcast, who are experiencing a significant decrease in the amount of insulin they need. And they're a onesies are going down their blood sugars are more stable. They're using the GLP medication for weight, but it's actually working so well in other places. Anyway, that's not what we're here to talk about. I have a question about Raynaud's. How does that present for you?
Scott 32:47
Mostly after exercise? Like, if it's below about 60 degrees, my hands will get like completely numb. And there have been times that I literally had to go so come and water because it gets painful. And you know with vitiligo, my hands were already mostly white, but they turned like like a corpse white, like printing paper white. I've had people stopped me and asked me if I was okay, because I looked at my hands were so white,
Scott Benner 33:18
like a stranger.
Scott 33:20
I ran a I think it was half marathon. And at the end, I was just like bent over catching my breath and the medical staff came come over and they looked at me like are you okay? And I'm like, Why? Why are you asking? And they started pointing my hands and they're like, your hands are really really white and like, Oh, it's just we're not don't
Scott Benner 33:39
worry, I have a lot of autoimmune issues. I I like that you said corpse white. That's not a color you're going to find on a on a wall paint ever, I don't think but it does paint a picture doesn't it? So numb or cold? Both
Scott 33:54
so I can I can like it'll get painfully cold and then it'll get numb and then it'll get painfully cold again and then it'll get numb.
Scott Benner 34:03
And there's no way to warm your hands. Right? It's just
Scott 34:07
it goes away. You know after 1520 minutes I draw my hands in my pockets and put gloves on and it goes away. As
Scott Benner 34:14
you're sitting here talking about I'm squeezing my hand I'm like why am I squeezing my hand while I'm doing this? A couple of weeks ago I went to touch by type one Orlando and I spoke at their event beautiful event really terrific. It was all day Saturday. I flew home early Sunday morning to be with my I was like oh I don't want to miss the whole weekend with my wife so I'm going to take an early flight to get home. That was a mistake. Here's why it was mistake 6am Flight had to be up at three o'clock in the morning in the hotel didn't go to bed till 10 o'clock at night the night before got up was exhausted like you know middle of the night Uber to the to the airport, get there and then my flight gets pushed back an hour and a half which is just has nothing to do with the story but is incredibly frustrating because you started thinking I could have slept till four o'clock. And anyway, we finally get on the flight. It's this as you might expect on a Sunday morning. A very sparsely you know, but distributed flight. There's people in seats here and there. And before we take off, stewardess comes up, and she just makes the announcement. Listen, there's enough people on this flight, you guys can all have your own row, just feel free to get up and move. So I go to another row, I'm on a very low budget airline because it goes to an airport very close to my house. And so I'm like, Alright, I know that the seats are basically concrete with a piece of paper overtop of them. But like, whatever, you know, like, I'm going to land 15 minutes from my house. So this is the thing I want. So I go into the row and I'm like, I'm exhausted. I'm gonna lay down and I lay across the three seats, I just curl up on my right side, like a baby and I go to sleep. In my cozy Earth joggers, by the way, in case people are wondering, cozy earth.com Use the Africa juice box to save 40% And I'm laying across the thing. I hope they're, I hope they're still get relaxed or six months from now this comes out, I pass out Scott like, I'm gone. And I am awoken by my right hand asleep. Like that's what wakes me up like how painfully my right hand is asleep. And I'm so tired. I just flip over. And I go back to sleep. I sleep for another like 90 minutes. And when I wake up, my right hand is still asleep. I was like, that's weird. But I had no idea about time like I had been so like, sound asleep. I didn't know. Anyway, I'm getting my bag. I'm getting off the plan. I'm shaking my hand out in the parking lot. I'm shaking my hand, I get my car. I'm like what is happening? And it is now three weeks later, and I still have numbness on my right hand. I think I slept on the metal rail, right on my elbow where that nerve passes through your elbow, like near like where I guess people would call it like your funny bone. And I think I damaged the nerve in my arm. I think I was that passed out on this hard thing. So it's getting better very, very slowly. And the internet. Please don't laugh of me. If you're listening. The Internet tells me this could take months to go away. Yeah, yeah. So I'm not like going to a doctor because I have like full, like strength and range of motion, all that stuff. And it does seem to get better as time passes, but incredibly slowly. So and my point of telling you that is that every day, I'm bothered by it. And I can't imagine what would happen if I went for a run and my hands were freezing cold I'd be I mean, I would find that upsetting. But I guess you're used to it. It's weird, though
Scott 37:30
I don't seem to have the problem skiing, or like hiking, or it's just that it's it seems to be just after some sort of strenuous activity.
Scott Benner 37:39
Yeah, I'm gonna definitely end up with a problem as I get older because I have a lawn mower that I sit on and my arms are out in front of me. And if I do that, in the cold, my fingers go numb. And they actually a doctor told me they think it's the where the nerve passes through my shoulder. That gets pinched. And I was like, well, can they do anything about that? And he's like, oh, there's an incredibly difficult surgery you could try. It's like, nevermind, I guess maybe I'll just get a different lawnmower or, you know, whatever. But yeah, you love it when they're like, Oh, it's a surgery. It's really hard and like, thanks. But anyway, this thing with my elbow, and my hand is it's hard not to be concerned every day. Like, you know, just When water hits it, and it feels weird. Like, it feels like my half of my arm and half of my hand like the skin on top is like half asleep. I don't know another way to put it. Have you seen a doctor about this? I looked on the internet, Scott. And the internet said to me. Yeah, that's the same thing. I also called My shoulder surgeon. Because I thought that maybe it was emanating from my shoulder. He of course was like that's not your shoulder at your neck. I'm like, Dude, it's definitely not my neck, it might be my elbow. And he said, well, listen, if it persists, and I was like, right, he said, Go see a doctor and I was like, what kind of doctor and he said two different kinds. You can either see a psychiatrist or a neurosurgeon or neurologist, and I was like, alright, neurologist, I understand loosely I'm like a psychiatrist. He said they have access to drugs that actually impact nerve pain. So apparently there's something that psychiatrist prescribed for something else. That also helps nerve pain and I was like Alright man, I'm gonna believe you but I'm also gonna go with I think it's gonna go away. So as long as it continues to get better, I'm not going to think anything of I'm just going to let it go. I think I've given myself two months and then I'm gonna go to a doctor. You think that's too long it doesn't get worse like I can sit and work all day at my desk doesn't change. So I don't know it's I probably should go sooner Is that what you're telling me? It's it's amusing
Scott 39:53
because we're talking about my my discovering ahead diabetes story about how I The Burning Man thing, but I for like four or five weeks I had been drinking we, it was June, and it's hot here. And we've been hiking all over just tons of hiking, no one hike, I took a two liter backpack of water or two liters, like a Camelback style backpack with two liters of water and drank it all, and then tried to get my wife to give me hers before that, but I did the same thing. I'm like, I'm gonna, I have this this thing I'm concerned about, but I'm going to I'm going to set a timeframe it's going to be like, if it's not better in two weeks, then I'll go to the doctor.
Scott Benner 40:33
Well, the internet said that my this nerve thing could last of the six months. I won't let it go that long. But, you know, I mean, also, where am I getting the neurologist from, and you know, I'm gonna go to a neurologist held my hands asleep, and I know, he's gonna be like, Oh, that'll go away. I'm just gonna be so angry. But I also think about, I shouldn't maybe I shouldn't say this on the podcast, not like big stuff like not like your blood sugar being 300 every day or something like that. But these little things. I also do like a cost benefit analysis in my head about how long I think I'm going to live. Mike, can I just deal with this until it's over? Salad feels to me sometimes. I mean, and Madison thinks about things that way too. Like, if you need a hip or a knee, they're going to tell you wait as long as you can. But we can't wait too long to get too old. But we need to wait long enough that you'll never need it again. Because you can't you the next time this hip goes out, you'll be too old for the surgery. Like so that is I mean, partly our bodies are what they are, and they're not just eminently fixable all the time. This is some bullshit. I'm not gonna lie, the amount of it feels really weird. Like just sitting there, my path, my hand tingling, and not tingling enough that you're like, stop just enough that the world feels different. And anybody who's had their hand goes sleep knows what I'm talking about. But anyway,
Scott 41:55
I busted my thumb up on a snowboarding on some feature. And I went to the doctor after three weeks of agony. And the doctor said, Well, we can cut it up and, and fix all this stuff inside of it. Or you could take Motrin for another two, three weeks and just live with it. And so my left arm doesn't look like my right thumb, because I was not having having my hand and the cast for six months, because my thumb felt weird.
Scott Benner 42:18
You know, we're gonna have to call this episode to old Scots, because I just had toe surgery. And I will gloss over it because I think I've mentioned it on here, but I just woke up one morning, I'm embarrassed over a year ago, and maybe longer than that now. And my toe hurt a lot. And I know, in my mind, I was like Kelly's like, Did you stop it? Did you I have no recollection of anything happening to my till I went to bed, it was fine. I woke up and felt like somebody was stabbing my toe. And I'm like, this will go away, then it didn't, then it got worse. And then there'd be good days and bad days. And I was like maybe there's a bone chip in there. And like someday, like, you know, I'm like telling myself all kinds of stories. Then I get into the position where I have to fly unexpectedly, to go say goodbye to my mother. And as me and my youngest brother Rob are like trying to get through like the Chicago airport. He's like, dude, do you need a walker or something? And I couldn't like I couldn't walk. I was like walking on my heel, like running through the airport on my heel. I was like, Oh, crap, I'll go to the doctor. So I went to urgent care because I was like, just do an x ray. And it'll probably show like a bone ship or something. And then I can take it to a real doctor and get it taken care of. Like, that's what I thought. And so sure enough, she actually isn't she goes, Oh, it looks like a little bone shipped off here. I was like, and then I felt like a genius. I was like, I knew this is what happened. And she goes looks like it's settled in the knuckle here. Blah, blah. I took the film to a doctor. He goes, Oh, yeah, it looks like you have some arthritis in this knuckle. We'll clean that out and we'll be fine. I was like, great. I woke up from the surgery he goes wasn't arthritis. I was like, wait, what he was, like, takes a lot of fraying in there. And I'm like, what? And he goes the ligament not the ligament. The other thing. Crap. Fiber says something doesn't matter. That something was all frayed away. He goes anyway, I had to give you microfracture surgery. And I was like, why? And he's like, Yeah, we poked like, countless holes in the bone, a cartilage. He's like, so that hopefully the cartilage will grow into the holes and kind of reattach your toe. And I was like, seriously, then he's like, Yeah, I'm like, Okay. Like, I thought he was cleaning out a knuckle and taking out like a bone chip. And I'm like, how does that happen? He goes, No, no, you probably heard it. At some point. I was like, okay, so yeah, the cartilage was just fraying in my toe. And it was my big toe and it wouldn't bend and I couldn't drive off it. So I couldn't walk Okay. And boy, I'll tell you, that writes your brain about what you're in control of, you know what I mean? Like that little thing in there is broken like I'm now hobbled, like legitimately hobbled and in a significant amount of pain, I took a fistful of over the counter drugs to get through that flight. Anyway, it actually seems to be working, it's getting better all the time. And the pain is very minimal. So hopefully this works, because if not Scott, they're going to fuse my toe. And I'm like, they're gonna want now it's okay, we just go to the knuckle, we fuse the bone together. I was like, that's the fix? Like, where the hell are we? Anyway, that's where medicine is for your toe. for yourself. You don't use medication for asthma symptoms, or just an inhaler? Or is it and is that prescribers over the counter? It's
Scott 45:52
it's a theater, although it's a script, and I haven't used it. I haven't used it at all this summer. Like I said, we had a very, very low smoky summer here, and I'm really happy with
Scott Benner 46:03
it. You don't need it to run. No, no,
Scott 46:07
I, it's kind of funny. I ran a small race down and done by Colorado Springs. This weekend. It was only a 10th of a mile for 24 hours. And the dust was really bad down there. And I thought, Oh, I didn't bring my inhaler. This is going to stink really badly. But I had no problems whatsoever. Thank goodness.
Scott Benner 46:30
Hold on one second. I am looking at. I'm getting a live. I'm moderating my Facebook group live. So somebody looks like they've jumped into the group. And they're trying to scam people. And Isabelle knows I'm recording. And she wants to make sure I want to do what she wants to do.
Scott 46:52
Yeah, so it's just one of those. I trust her judgment. Yes.
Scott Benner 46:55
Yeah, I think she's just because she's gonna have to ban the account. And she's like, I want to be sure before I do this. Okay. That's what we're gonna do. I have a whole life that no one knows about. She just, she just typed by to me about the account, not to me. So I'll say thank you still recording? Yeah, it's, it's a real world, like a whole job moderating that group. It's so big. You're in it. I know, I work because I recognize name from it. But there's this thing, like, the bigger the group gets, I think the more valuable it gets. It's amazing how well it works for people, there's no time of day in a 24 hour day, you can ask a question and not get responses, which is amazing. But once there's that many people, and it's that active, then the members look like fish in a barrel to people who are either scamming or selling. And they'll very artfully try to make what they're doing seem legitimate, or caring or whatever. And then they get you then they DM with you, and then they take your money. So it's hard to
Scott 48:05
work in a space that does content moderation, not what you're doing. But on a similar vein, and I see it all the time in all of these groups where someone comes in and goes, Look at the shirt I just bought, or look at this thing I just bought. And you look, you click on their profile, and they they joined five minutes ago. Yeah.
Scott Benner 48:24
Oh, there was a I've said this before. But it's worth saying, again, a coordinated effort to sell shoes. And it was fascinating how well it was coordinated. One account, by the way, could all be the same person like I would have. Like, there's no way to know what you're dealing with. But one account says, I have diabetes, and I'm having foot pain. And I'm looking for a shoe. That's all it asks for. It needs help. And then real people come in and give help, while along the way. And other accounts will come in and say, Oh, my doctor gave me these and check them out because they really worked. And then they'll have a third account, come in and say I use those two. Then the first account says, I'm going to give these a try. And then they appear to be having a real conversation. And then before you know it, other people in the thread start buying the shoes too. By the time that all got broken down by one of my moderators who figured the whole thing out Stephanie, she like, sniff the whole thing out like Columbo. I think we learned that there were like six accounts that were all on this one shoe scam, just to make everybody feel like it was a real conversation. It's good business to like, I mean they're making money off of it. And
Scott 49:39
it's chose the wrong side of this. I sit in much spammers all day long. Constantly 24/7 I think these people are idiots I could I could get around me.
Scott Benner 49:48
I could do a much better yet. Well that is the other problem is often where they're easy to catch is there. They don't have a grasp of the English language usually, which is what makes it easier to like you know, like I'm a pirate like that kind of thing. And like it's easier, but when they, when they do when they can speak English well and use phrasing correctly and stuff like that. It's hard to find sometimes, I've often thought the world is lucky, and I'm a good person. I don't know if you've ever had this feeling. Because I could, I could definitely rip people off if I needed to, like I would, I could see how it could be done. Like, that's what you're saying, like, I could get around this if I needed to. I don't have any, like ill intentions for people. But if I did, I mean, my God, like there's, you could, you could do this all day long. Just little little, like scammy things all day long. You could you could do nothing but print money doing that. And that's what's happening. It's everywhere. So anyway, we keep it out. And it's a lot of work. And I hope people appreciate it. Because there's times it's like, one o'clock in the morning and I'm getting texts, like we have to do something about this. We can't leave this set, like I want to sleep, and you kind of can't. So anyway, alright, Scott, why did you want to come on the podcast? I mean, we've only been talking for 45 minutes, so now's probably the time to ask you.
Scott 51:07
Mostly I just You had reached out about people who are diagnosed as adults. find it fascinating watching basically the just found out crowd or the community. Oh, yeah, I was diagnosed, I've been in the hospital for a week, what do I do? It pains me to know and that these people were getting out of the hospital and asking what to do, because I think I mentioned I was actually mountain biking when my doctor called to tell me I had diabetes. So I wasn't in the hospital. But I came back. It took a little bit to find an endocrinologist, like a week. And I basically just ate salads for a week because I didn't know what else to do. And that's what my wife said to do. So I did that. Yeah, I got him with the Endo. They gave me some information. But, and she's a great fit. Don't get me wrong, I loved her. She was the best endocrinologist I've ever met. Then she moved, and they got another one. And she's just as good. So I have this really great care team, I have an RD. And I see these people jumping in the group like, what's the carb? What? How do I take insulin like these, these, these supremely basic questions seem to be not covered well by the medical staff. And that's, that's what led me to, that's actually how I found your podcast was one of the other, you know, just the typical type one groups on Facebook, or were just driving me nuts with the sheer volume of this and misinformation.
Scott Benner 52:29
It's it's tough. Jenny and I are prepping a series right now that's aimed at doctors. And so the the idea behind it is, we're going to talk to doctors about what they should understand and what they should be telling people. And at the same time, we think the information will serve as education for the patients about what they should be expecting from their doctors, right. So it should, it should serve two groups, you should see like the massive amount of information we've pulled together from, from patients from people listening to the podcast are like, here's what my doctor doesn't know, or here's what I wish they understood. And we pulled that all together. And then we're going to kind of reverse engineer it and try to basically teach doctors how to take care of diabetes through a podcast, because I'm out of ideas about how to like, I'm, I'm past hoping it's gonna get better. Because it just isn't like the way the medical system is set up. And the way they're taught in school, they just don't know. And they're never going to and no one's going to change it. So I figured if this podcast helped people to live better with diabetes, maybe we could help doctors to understand it better. And I think it's big enough now that it's time to take a swing at that. So anyway, it's something we're going to be working on through the end of the year and the beginning of next year.
Scott 53:45
Is it going to be on the different podcast format? Or is it going to be part of the Juicebox? Podcast?
Scott Benner 53:50
Oh, no, it'll be it'll be right here. But I also have toyed with the idea of launching it as a separate podcast, too. But the problem there is is that is that making anything popular is is actually it's impossible. It just it is. And when something becomes popular, it's as much luck as it is anything else. So I've got the IRS already. I figured we put it here and let people the only thing I can't decide is are people going to be have the nerve to give something like that to a doctor. Oh, I did. Yeah. Yeah. So I think maybe yes, and I think a lot of doctors listen to this too. So hopefully, that'll be a way that it can happen. But I can't I can't take it anymore. Either. Like it's just frustrating for an adult or a child or a parent to like be put into a situation where they have this difficult to manage thing that could be explained to them and nobody explains it to them. And then you learn that they're not explaining it to them because they don't understand that either. Then you have these conversations with people and see how their lives unfold when they don't have that information. It's unconscionable. So, I mean, somebody's got to try to do something And I tried for a couple of years, and I'm sure this will pop up. When Jenny and I talked about it, I tried to get speaking engagements, you know, there are organizations that, you know, have the ear of the medical community. And every time they contact me, they want me to come on, and they want me to come to their thing and speak. But they want me to be like, you know, the famous guy from the podcast, like, give some light hearted, like, they just want to draw people in. And I want to say something, and I tell them, here's what I'd like to talk about. And they go, yo, we can't have you out to talk about that
Scott 55:30
over and over. And they would, would lose their minds. Well, you're not
Scott Benner 55:34
a doctor, and you're not going to come here and tell everybody they're doing it wrong, is what I was told once, one time, a more reasonable person said, I wish I could have you come do that I would get fired if you showed up and spoke about that. So that's when I was like, this isn't gonna they're not gonna fix this. So like, maybe I'll take a shot at it. I mean, the podcast is spread, right? It helps people with diabetes, they find each other, maybe that'll work the same way. I don't know. But it's worth a shot. And at the very least, even if doctors ignore it, it will teach people listening, what to expect. And so it'll still be really valuable for listeners. Anyway, that's my idea popped in my head in the shower about six months ago.
Scott 56:14
I think it's a great idea.
Scott Benner 56:16
Thank you, I have all my best thoughts in the shower.
Scott 56:18
I see people jumping in all the time, like, Hey, I saw my doctor said, you know, take this many units for this many carbs. And it's not working, what should I do? And the number of people who simply don't understand that this is their life, that if they, if it's not working, fix it, you know,
Scott Benner 56:36
try something would be a good first step. And then well, then the other problem is, there's there's factions, oh, yeah, different than any other life, right. But we had it the other day in the Facebook group. This woman's kids had diabetes for three weeks, you know? And she's like, Hey, rice, what's the deal with rice? You know, and she's like, you know, how do I do this. And they're, you know, overwhelmingly in my group, like, genuinely, overwhelmingly, it was a very popular thread where people came in and gave all kinds of different great thoughts about how to Pre-Bolus or how to, you know, change to a different rice. We do that we basmati rice here, because it's easier to Bolus for, or how to do extended boluses how to cook. Like, people started talking about cooking things, then cooling it and reheating it. So it doesn't have the same impact, like just tons of great information. But it only takes one person who's got a, you know, something they want to say. And they're like, don't eat it. That's what you do. Don't eat it. And I'm like, That poor lady's kid has had diabetes for three weeks. Even if don't eat it ends up being the right thing for her. That's where you want to start by scaring the hell out of her and her kid. Like you don't you mean? Like, why? Why is then there's the older people have type one diabetes, I just, I don't eat those things. And I'm like, Have you tried the Pro Tip series? It won't help? No, it will. But okay, so okay, you're old enough, you decided you can't eat rice, that's fine, then you have to kind of like moderate the conversation so that it's clear that there would be another way, just and not offend that person, which I had to do with a couple of older women that were in the group. I was like, Look, you should try this. I think maybe you'd find that if you timed your insulin differently. I don't have time for that. Okay, good. But at least now the people reading it can see that there. They might have been wrong. And there might have been another way. But if that's the decision they make, by the way, Scott, I don't care if you decide just to cut out rice, like God bless whatever. I don't really care how people eat at all. But then it's just It's always, it's always one person. One. Like, bro, sciency I only eat elk meat that I kill myself. You know, like that vibe. And you're killing yourself and the insulin is killing you and carbs are killing you. And I'm like, Oh, my God, man, calm down, like go live like that if you want to, but don't What are you doing to this woman? So then I tried to have a conversation with that person knowing by the way, when it starts Scott, I'm going to be as thoughtful and open to this man's ideas about how to eat as I can. But I know that by the time this day ends, he's going to leave this group. But I still have the conversation because it's worth letting people watch the conversation happen. And in the end, it works. The lady says I'm going to go try the Pro Tip series. I'll be back. I'll switch to basmati rice. I'm going to try the cooking and cooling process for you know, I think some people do it with potatoes and stuff like that. So we got all the good information to her. And I told her and if you one day, you just want to eat low carb because you can't figure all this out, then that's up to you. You should do that. But don't not understand how insulin works and just give up on the third day. You know what I mean? Like because that's going to lead to something bad because you know, pizzas really good and it's Gonna be a problem at some point. And if that kid goes to college man, good luck being low carb and a college on a college campus. I don't know how the hell you're gonna do that.
Scott 1:00:07
I can't even imagine it. I can't. I think that we we push people into disordered eating habits. We being diabetics push others into disordered eating habits instead of fixing the problem of good eye cream balls too early, too late, too little too much. Should I have extended Bolus? What do I do versus I'm just not going
Scott Benner 1:00:26
to eat? Yeah, I think it's a 10% greater risk of having an eating disorder if you have type one diabetes, and it doesn't matter if you're going to forget the science behind it. I've talked to a lot of people with diabetes, a lot of them have eating disorders like so. And it's, in my opinion, based on my experience, it's because of this. It's because they don't want their blood sugars to get high. And of course, they don't want to and they don't want to use insulin in a way that makes them low later. And of course, you don't want to do that. And they have no like we've discussed for the last hour, nobody's taught them how to do it. So they're doing it all wrong, their blood sugars are ping ponging all over the place. And yes, eating no carbs will put an end to that, it'll cause you to use less insulin, less insulin will mean fewer spikes, fewer lows. 100%. Right. It also means you're eating steak every day, or something like that, you know, or for the rest of your life. And I'm sure there are low carb people that will hear this and I go, there's plenty of good. So I'm sure there is there's plenty of great stuff you can eat. It's lovely. It's also expensive. Some people can't afford it. It's also a big idea some people can understand. And whether you're eating carnivore or keto or somewhere in between, you still need to understand how your insulin works. So let them understand the insulin, then they can apply it to whatever eating style they want. Because this is America, and I'm not their mommy, and they can eat whatever they want. There are plenty of people who eat stuff that I'm like, Hey, here's how you Bolus for this, that I also think I wouldn't need that. If I was you, that does not look good for you. You know, I'm not them. To act like you can make people do anything, because it's what's right, or what's good for them is ridiculous. Like, I don't know how long you have to be alive before you can figure that out. You know, if it was as easy as telling people the right way. First of all, that would infer that we know the right way. But if it was that easy, then the whole world would work great. Because we would just tell everybody what to do. And it would all be fine. Except that's not how it works. So you're going to ignore that. And then let them have poor health for their whole life. Like, why? Cuz you know what I mean? Because you think eating a carnivore is the way to go, like, or whatever, like I don't, I just don't get that whole thing. I don't understand that feeling that you can bend the world to your will. It's just because it's quote unquote, right? It doesn't make any sense to me at all. But anyway, apparently, it makes sense to a few people. And then I get into a, you know, I get into a thing with those people, because they're just attacking and defending their position. And I, I try very hard to stay open minded to see their position, explain what I think the bigger picture is. And then eventually, at the end of the day, they think I'm tall, and then they leave. So it's, but every time it happens, Scott, I think, Oh, this is my day. I don't want this to be my day. But it's gonna be and and then there we are. I'm sorry. I went off on the thing that I apologize when
Scott 1:03:15
I was diagnosed with celiac. And I came home from the doctor and we lived in this this town of like 600 people in the middle of the Allegheny Mountains. And I went to the grocery store, which you know, small town grocery store you've been, you can look up and go in and I'm trying to find something to eat that's gluten free. And I mean, I had done some research on the internet. I knew, you know, certain things. And I went and I'm like, Well, I'm getting ice cream because I deserve ice cream. And I pick it up and they look at the label and one of the ingredients is way and I hadn't stuck it like it's stuck in my head that I couldn't have way that way was a wheat product. I don't know what made that connection, but it did. Threw the ice cream back in I grabbed a bag of Fritos and went home and I'm sitting on the couch pouting and my wife comes in she goes What's the matter? I go, I can have ice cream it has way and my whole family to this day mocks me for that.
Scott Benner 1:04:08
I can see you eating the Fritos I don't want these freedom. Exactly what it was stupid freedom's stupid.
Scott 1:04:18
But I think I think that happens to a lot of people is they get something that's factually wrong in their head and they run with it. They it's like instead of shopping to look at the flag, they're caring and to see if it's right, they just take it as a standard barrier and run down the field.
Scott Benner 1:04:35
I want to be completely clear, a lower or low carb diet will make type one diabetes management easier. It will 100% Eating cleaner foods will stay away from processed foods will cause more complex carbs are going to be more difficult. Like I'm not telling you that but it's not impossible. It's just the thing you need to understand. You deserve the opportunity to understand it before you make a decision about a thing. You're never going to eat again for the rest of your life. And it that's just, that's my take on it is that everybody should understand how to use insulin, and then take that knowledge out into the world and do whatever you want with it. I don't care, like you just but you should have a basic education before you start making lifelong decisions. That's all. And I think that for some reason, the way people eat becomes very tribal. And they very much defend it. I've talked about it before I understand if you're, you know, a person who has diabetes, who struggled and went low carb, and it feels like it saved your life. Like I understand that completely. And I would probably proselytize about it too, if I if I had that feeling. But I'm going to tell you that if you would have met me before that and tried those pro tip episodes, you might not have done that. And you still could have, but it might not have been your only decision at the time. So that that's all that's all I'm saying. But trust me that gets bent all the time, like I see online, like he's a carb pusher, like, oh my god, I'm a carb butcher. I don't give a crap what people eat. As a matter of fact, I don't think you should have that many carbs. It's, you know, a reasonable amount, that's fine. But you find yourself in a day where you're having 300 carbs, 500 carbs. I don't I don't know. I wouldn't do that if I was you. But I'm not you. So I don't care what you do. I don't know why more people. What's that?
Scott 1:06:20
Somebody posted the loop graph the other day asking your question about something and the 135 carbs on board and I went, I have not eaten 135 carbs in a day. In 10 years.
Scott Benner 1:06:35
Oh, there are days where Arden's just like, I'm stunned by how much insulin she like needs for some times. Like it's usually around her period, that kind of stuff. When she gets I think cravings for things aren't and could have like three meals a day, and each meal could be 50 or 60 carbs. And well, yeah. And then that's, that's
Scott 1:06:53
not that much. I mean, my wife goes to Starbucks and comes back with a drink. And I think it's probably 150 carbs. Yeah. All the time.
Scott Benner 1:07:02
But that's a great example. Like Scott asked me if I think your wife should drink that. I do not believe she should know, I think that's probably a mistake for her overall general health. But if she's going to and she has diabetes, I'd like her to be able to do it without a 350 blood sugar that lasts for two hours and ends up with a low.
Scott 1:07:20
I tell people this all the time. I don't I eat low carb, low ish carb. Like, if we go out to we I was out with some friends a couple of weeks ago, and I got a burger with no bun. Because celiac and french fries and they were making fun of my my halfway keto halfway, not keto dinner, but I don't eat carbs in the morning, very rarely, because we get up and get moving, I get a few hours of work done. And then I go run. And I know if I have more than a half unit of insulin on board, when I go for a run, I'm going to have to do drastic things like I'm going to have to like eat 20 or 30 grams of carbs. So I don't crash because it might go from about 10 to one or 10 cars per unit to about 100 carbs per unit.
Scott Benner 1:08:08
When you're exercising. Yeah, yeah. It's
Scott 1:08:12
so funny. My own that that. So I ran 30, almost 34 miles on Saturday. At that race, my g7 freaked out in the middle of it. And I was running this perfectly flatline at number for like an hour and a half and all of a sudden it beeps and says hey, you're too 20. And I'm like, No, I'm not to 20. I know this, I fooled around with it, tried correcting it a couple times. It didn't work her place that which the warm up on the new sensors is everything. To me. It's beautiful. So I've eaten a whole lot of carbs to correct the insulin that that was given to me when it thought it was 200 but wasn't. But at the end of the day, after 10 hours, I had used less than 40 units of insulin total.
Scott Benner 1:08:52
It's over on that. Yeah,
Scott 1:08:53
yeah. And I eat a lot of bananas.
Scott Benner 1:08:56
The way the variables impact is fascinating. I mean that. I mean, obviously that's a lot of running. But Arden has been doing a couple of all nighters in a row. And like clockwork, she's getting low at like four o'clock in the morning. And it's just it's from her sleep being off. Yeah. Oh, yeah. That'll kill me. Yeah. And so it's an it's fascinating. And then of course, you're exhausted and your sleeps off, and you're low. So like, last night, I had to wake her up. I had a hard time waking her up last night. And like, I was sending, like, find my iPhones, like I left my bedroom, so I wouldn't wake my wife up because I was like calling. And I got to the point where I was looking at her blood sugar, and I'm like, I'm gonna have to call her roommates. And I'm like, she's gonna be pissed about that. But I tried not to and I but I, as long as I could, but with Nightscout I could see she still had enough insulin on board. This was going to be problematic. She wasn't going to float at 60 and she didn't she went down to 50. And then it was like 48 And I'm like, okay, like, that's it. Like, here we go. And I woke everybody up and she sent me an angry text, you know, don't bother my roommates and I just sent her a text back. I said, Arden, I waited as absolutely long as I could this was necessary. You know, you need to drink a juice. And that's it. And actually remotely, I changed her target from where it is to like 110 for the rest of the night, so it wouldn't happen again. And oh, people are like, how do you do that? I did it with Nightscout. She's using Iaps. I don't have time to explain it all to you right now. Actually, I don't have time, Scott, because I have to go to a lunch thing soon. But I did all that. And she woke up this morning, and I got a text from her at like 10 o'clock, she should have been in class. She goes, Dad, I slept through my class. I'm so sorry. Like, you know, I'm gonna have to do a couple of things. Because I'm behind and I'm exhausted and I need to catch up. And I just told her, like we even talked about last night, like she's not mad about last night. She wasn't mad, then she just shut her blood sugar was low. It's four o'clock in the morning, and she was frustrated. And I just told her one of those things that like, you know, I've learned like, through being old, I just told her. I said, like, just remember, be flexible. Like, rearrange your to do list so that it reflects what's you know, most important now? Don't look backwards. Don't worry about anything that you feel like you're putting off. I said, You're a smart person. You'll do the right thing. Just keep going. That's it. And I hopefully that's what she'll end up doing. But yeah, she tried to burn the candle at both ends for a couple of days. And it just, it made everything hard for so yeah, anyway, those variables like running or not getting enough sleep or whatever. They're, they're tough on you, Scott, I apologize for doing this. But I gotta ask if there's anything else that we missed, because I have to
Scott 1:11:36
go in a minute. Oh, no problem. No, I had a great time. Thank you. Oh,
Scott Benner 1:11:39
me too. We're definitely calling this to old Scots. Yeah, is a perfect name. Although I imagine you're like, you know, in amazing shape. And I'm just still trying to get there. And I'm using medication. It sounds like you're running to do it, but good for you. If it's therapy. Well, you know, I didn't want to say because you seem like such a nice person. But I believe anybody that runs this much is is exercising their their thoughts. Oh,
Scott 1:12:06
my, my shrink look. Well, I would agree with you all day long.
Scott Benner 1:12:10
That's all fine with me. I don't know where you were, however you think comes out. Listen, if you think comes out with extra healthy. Fantastic. You know, one
Scott 1:12:19
quick story, please. You got all these please, please. So it was at the grocery store yesterday, I just had like three or four errands to run. But I'm like trying to do between meetings and stuff. And I got run into the grocery store. And I'm grabbing the things and for whatever reason my blood sugar goes from 116 to 50. In the 10 minutes, I'm in the grocery store. I've had tumbling issues, that's probably what it is. But I get up to the camera and I'm standing there and I'm like I because my blood sugar was so low. I forgotten everything that I needed. I'm standing there with two six packs of Diet Pepsi. I can't operate the machine. I can't do anything. So I grabbed a package of gummy lifesavers, and I'm not talking a small package. I'm talking like, you know, the big roll by my cigar. Yeah. And I'm shoving them into my mouth while waiting in line at the checkout. And the woman comes over she goes, Are you okay? And I'm like, why? She goes, You're sweating really bad. I'll be fine in a minute. I couldn't she had to ring me out at the self checkout. I couldn't do it. Yeah,
Scott Benner 1:13:09
that's crazy. How quick did it come over? Get 10 minutes? Oh,
Scott 1:13:13
yeah, if even I mean, I literally walked in the store and was was suddenly confused.
Scott Benner 1:13:17
And that's you wearing a fairly adept algorithm that is taking you're taking away insulin trying to stop that from happening to you like that. And it still can happen after I managed Arden last night, got her awake and got her to do everything. I looked back at how long that algorithm had been trying to stop this low from happening. It had been trying for like four hours to avoid this moment. You just stop and think if that's not an algorithm then for the last four hours, she's getting a unit of insulin an hour as her basil on a on like a standard pumping system. And she would have needed I mean, instead of like a small little quick 15 gram juice box that took a 50 and turned it into a 95 for the rest of the night. I mean four units. I mean, she would have needed like 40 carbs to fix that maybe more and something more substantial than juice. So anyway, this stuff's amazing. We're lucky to have it I got to jump off scot I'm so sorry. Oh, no
Scott 1:14:16
problem. Thank you.
Scott Benner 1:14:17
Of course Hold on one second for me. A huge thanks to us med for sponsoring this episode of The Juicebox Podcast. Don't forget us med.com/juice box this is where we get our diabetes supplies from you can as well use the link or call 888721151 for us the link or call the number get your free benefits check so that you can start getting your diabetes supplies the way we do from us med. A huge thank you to one of today's sponsors. Ag one drink ag one.com/juice box. You can start your day the same way I do with a delicious drink of ag One thanks also to G voc glucagon. Find out more about Chivo Capo pen at G voc glucagon.com. Forward slash juicebox. you spell that GVOKEGLUC AG o n.com. Forward slash juicebox. If you're not already subscribed or following in your favorite audio app, please take the time now to do that it really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. That Juicebox Podcast is full of so many series that you want and need afterdark s gotten Jenny algorithm pumping bold beginnings defining diabetes the finding thyroid, the diabetes Pro Tip series for type one, the diabetes variable series mental wellness, type two diabetes pro tip, how we eat. Oh my goodness, there's so much at juicebox podcast.com. Add up into that menu and pick around. And if you're in the private Facebook group, just go to the feature tab for lists upon lists of all of the series. always free. Always helpful. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com
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