Scott Benner 8/6/19 Scott Benner 8/6/19

#250 Everything Doesn't Have To Be Perfect

1 + 1 = Turtle…

Karly has type 1 diabetes and she is on the show to hare her perspective on parenting a child with type 1, eating disorders and hypoglycemia.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello everyone and welcome to Episode 250 of the Juicebox Podcast. Today's episode is sponsored by Omni pod dancing for diabetes and Dexcom. You can go to dancing the number four diabetes.com dexcom.com forward slash juice box, or my omnipod.com. forward slash juice box to find out more.

Welcome back everyone today on the program, Carly, Carly has had Type One Diabetes since she was a child. She's on the program today to talk about a number of different things an eating disorder, how it develops, and how she got past it. The role her parents played in her diabetes care. Some of the organizations that she reached out to as an adult hypoglycemia study she's involved in, I came super close to calling this episode one plus one equals turtle. But instead, I present to you everything doesn't have to be perfect. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And to always consult a physician before becoming bold with insulin or making any changes to your health care plan. One last thing, I listened to the emails and the messages and there are t shirts available again, just go to Juicebox podcast.com. scroll down, you'll see a big image that says merge on the front. When you get to that link. You'll see the new podcast logo with Be bold on the back. A t shirt that says stop the arrows, one that says bold with insulin. mugs, flip flops, bags, stickers, there's so much to choose from.

Carly 1:47
Hi, my name is Carly. And I'm from Minnesota and I'm a 23 year old guy but it goes 15 years.

Scott Benner 1:56
Okay, so 23 you're still in college?

Carly 1:59
Um, no, I actually graduated in May just got done.

Scott Benner 2:03
Okay. And for 15 years, so since you were How old?

Unknown Speaker 2:07
Um, the math on that seven? Seven, I think

Scott Benner 2:12
I was trying to get out of doing the math, I thought you would just know. So you're diagnosed at seven years old? And is this something that your parents were involved in most of the time?

Carly 2:23
Um, initially, yes. When I was seven, they did most of the taking care. And then I would say probably once I started giving myself my own shots when I was like 12, it kind of just got handed mostly off to me.

Scott Benner 2:40
So from seven to 12 and beyond, tell me a little bit about what the idea of managing a day looked like to you. Like, were you trying to keep your blood sugar at 85? Were you trying to keep it anywhere? Was it all over the place? Did you not track it that tightly? What kind of technology were using? Give me a big overview of of what your day was like?

Carly 3:01
Yeah, so when I was on when I was first diagnosed, it was kind of like yesterday, it was within 80 to 180. And first of all, I was terrified of influence shots, and I would not do them myself when I was first diagnosed. So I would I didn't want insulin at all at all. So I would do the long acting in the morning. And then as obviously fast acting in the morning, too. And I'm not really exactly sure how it works to be honest, because I didn't get insulin shots at school at all, but I was still able to eat lunch. So I think and I would take my blood sugar and be you know, within 80 to 180. And if I wasn't my mom would come give me a correction.

Scott Benner 3:44
Dancing for diabetes, calm dancing, the number for diabetes.com

Carly 3:53
when I got home at the end of the day was still no blood sugar. So to be honest, I don't really know exactly what insulin I was on that allowed me to do that. As far

Scott Benner 4:00
as you were saying that does it start sounding screwy to you? Because, yeah. And it's funny how at the time you were just like this is what we're doing. So you didn't want to give yourself an injection at that age and there was no one at school to do it or you didn't even want anybody at school to do it.

Carly 4:16
I would only let my mom do it. So I didn't want anyone at school doing it. And I think I was also still honeymooning and i i know i honeymooned for quite a while because I did not have a whole lot of insulin for the first probably two years of diagnosis.

Unknown Speaker 4:30
Okay,

Carly 4:31
so maybe that was after that couldn't watch my home under school though. I didn't get shots that fulfil, yeah, I must have just been on my probably high after lunch and just I got home and I was fine.

Scott Benner 4:42
And if you got over 180 your mom would make the trip to the school and she would inject for you.

Carly 4:47
Yeah, usually. Yeah.

Scott Benner 4:48
Did that happen frequently in your memory?

Unknown Speaker 4:51
No, not really.

Scott Benner 4:53
Alright, so I don't think we're ever gonna really know how it is you got through your days. Excellent. Yeah, I know. That's interesting. Right,

Carly 5:00
I should really ask, I should really ask. I don't know how I just know that that's how it was. And I, until middle school, I never even gave myself shots at schools. Oh, yeah.

Scott Benner 5:09
No kidding. And so and now when you turn 12 Did you just magically one day, say to yourself, I can do this now.

Carly 5:18
Kind of it was more, I wanted to go to sleep overs and not have to have my mom come and give myself insulin. I remember the first few times I had sleepovers, I would, he would come and give me you know, come super early in the morning, and then come super late at night and give me and give me insulin for whatever snacks I was having and stuff.

But after, you know, after a couple times that I was like, I want to kind of figure this out. So then I, then I did and that's, that's when that started. So necessity was the mother of your invention, you were just like, Look,

Scott Benner 5:49
I don't need my mom showing up at these like social events anymore. So I'm gonna, I'm gonna figure out this needle thing. Yes, that's,

Carly 5:57
that's what I that's what I did. And, um, I was terrified of this stabbing myself in the arm was just, like, normal injection needle. So we had this thing called a shot ease. It was like, you put the needle into the bodies, and then you just click it, and then it releases the needle without you having to stab yourself.

Scott Benner 6:14
So I've heard of that a little bit, but I've never seen one and you but you had. So there was there's a huge phobia going on for you then. Yes. And do you feel that way now?

Carly 6:27
Actually, because I have, obviously my insulin pump. But um, so Medtronic, but I, the other day at work, my insulin pump came disconnected. And I had nothing with me, because I just wasn't thinking when I left the house, so I had nothing with me. And I luckily work at a hospital. And so one of the nurses was like, we'll use the use the little vial and your insulin pump and then use one of these needles and drop some insulin and just give yourself some insulin and just kind of keep doing that until you can go home because I was halfway through my shift. Not a good idea. Except for I hate needles. So I was like, Can you give me the shot? And she was like, yeah, that's fine. But that's weird that you can't give it to yourself. I was like, Yeah, I haven't done this in like 10 years, probably.

Scott Benner 7:07
So I have a couple of thoughts around that. But first, I have to ask you, what sort of work do you do at the hospital?

Carly 7:12
I am a nursing aide. I graduated with a degree in biology and I want to go to physician assistant school.

Unknown Speaker 7:17
Okay.

Carly 7:19
So yes, so right now I'm just trying to get direct patient care hours, and I'm working as a nursing aide, are you

Scott Benner 7:23
able to give other people injections?

Carly 7:27
No, we are able to do a lot of blood sugar checks, but I'm not able to give them and

Scott Benner 7:32
so the rules don't allow you to if the rules allowed you to do you feel like you could do it?

Carly 7:37
Yeah, definitely. I have. I mean, I have gone to diabetes camp and had to give kids shots and I can do to other people. It's just myself. I just I don't know,

Scott Benner 7:46
no, no, don't don't be I first of all, don't apologize or be embarrassed because, um, trust me, I'm getting to this for a reason. So and so when so when the nurse or somebody who helped you at work that day, did it? It didn't hurt, right?

Unknown Speaker 8:00
No, not at all.

Scott Benner 8:00
And so and you know, cognitively that if you did it, it would have heard either, yes, but there's just something between that thought and the action of doing it. You really are like, like stopped by it's so interesting. How are you with putting your pump on?

Carly 8:16
That I'm perfectly fine with too, because it's like, I just press a button. And I still, I think it's the sight of seeing the needle go into. I don't know why it freaks me out.

Scott Benner 8:26
But it does. Have you tried turning your head and not looking? I have not done that. Close your eyes just like like swing in the direction. If you're fine. See what happens. I think I could do it. I think there's a game to be made of figuring out how you're able to do this on your own because it sounds to me. Right? It sounds to me that you are able to do it. There's just whatever the sticking thing is for you. Maybe it's visual, like you're saying.

Unknown Speaker 8:52
Yes, that could be I guess

Scott Benner 8:55
this is great. I so Arden doesn't I don't think Arden's ever given herself an injection. Okay, I honestly don't. And I you know, to say that we haven't used them in a really long time is you know, since she was four, probably with any consistency. But I don't think like when she was four, maybe she did it a few times. But I don't think if I handed her a needle right now, and I was like, hey, do this. I don't think she'd be like, yeah, right on no problem. You know, yeah, definitely. She can manage your pump, fine. Take your pump on and off. And you know, and do all that there's, there's no problem with that at all.

Carly 9:30
I think it's kind of a mind game. like doing it to yourself, at least like doing it to other people. It's easier, but to yourself. It's just a mind game.

Scott Benner 9:38
What do you think about like, like, so your mom was like, Look, I'll come to the school and do this for you. Do you think that if she was just like, Listen, I'm not coming to the school. You're gonna go into a nurse's office and do this. Do you think you think you would have done that? Have you thought Do you feel like you would have been like, Oh, honey, you're not winning this game. I'm out there. Just send me home. Or you roared head on I guess is my Question.

Carly 10:02
I was stubborn when it came to diabetes stuff. So I would probably have just cry, then she would have been like, okay, I'll come do it.

Scott Benner 10:08
See is I hear you? Yeah, I don't know, when my kids cry, just like, look at them. And I'm like, oh, you're gonna stop, right? Like, this is SCADA, this has got to end. I don't want to be a part of this. Okay, so I just wanted to go through that a little bit, because I'm sure there's a lot of people who feel that way. And I'm sure there are people who have given, you know, injections for people and, you know, asking for people to do it. They don't want to or feel like they can't, I don't think there's any shame in it. Obviously, you're managing, you know, just as well. No, no, in your note to me, you said that around 12 years old, your parents sort of passed off the care like you, you learned how to inject like you've just gone over, but then that sort of took them out of the loop. So you were now making insulin decisions when you were 12?

Carly 10:53
Yes, basically, um, I would say, maybe not right, when I was 12, was I making the decisions in terms of, like, how much to give myself I would still probably ask, and I wasn't the best at counting carbs, quote, unquote, but um, I. So I think, initially, I was just kind of they would, you know, my mom would dose them for me, and then I would get them to myself on but probably probably, like, as soon as for sure High School is when I did make all my insulin decisions, especially because around 13, I got an insulin pump. So that's when I started really making all my decisions.

Scott Benner 11:27
Okay. And so, you know, we're, I don't for burying the lede here or not. So you've at some point in your life developed an eating disorder around diabetes?

Carly 11:38
Yes, um, I would say High School is one that started. And I didn't really even know it was an eating disorder. When I first start when it first started, like, I just kind of, I don't, I guess, like, there's no really pinpoint to confirm that started. But, you know, I've just started putting two and two together that I wasn't giving myself a lot of insulin in my blood sugar's are always high and losing weight. And then it just kind of, yeah, I just kind of went into a downhill spiral after that, when I actually started realizing what I was doing. And then into college continued until probably my second year of college. But being a bio major, he kind of, well, it's not that I didn't realize before, but being a bio major, especially you realize how bad it is for your body and how much I wanted to make a change and to be healthy around diabetes. Okay, so let's

Scott Benner 12:29
kind of if you don't mind, like, unpack that a little bit and go through it. So in the beginning, it was just, if I left my blood sugar higher, I'd lose weight. That is that was that the the starting point?

Carly 12:44
Yes, I think, um, I think that and also, there was also a part of it, too, that I was also very active, I was on track and in the in depth team, and I didn't want to, I didn't want to go low. I didn't want to have to go low and be not a part of that. So keeping my blood sugar a little bit higher, I was able to, obviously not go low on and so initially, it wasn't, I was always 400 it was initially I was just kind of, you know, floating in the sky. 100 200 and being being okay. But it wasn't, I guess, I guess, later on, it started being you know, it would be more higher in the four hundreds and it got even worse. Okay.

Scott Benner 13:25
Did you were you not eating? Were you not eating because of this? Or were you eating? More? Like, what how did the what was that piece of it? Like?

Carly 13:37
I think at the beginning, when I again, wasn't really realizing what I was doing was making me lose weight. I was kind of not eating as much that was more the classic eating disorder symptoms of like, more anorexic, just not, not, not eating a lot at all. But then once I started realizing that Oh, I just don't take influence, but I can eat things and it started being I would eat whatever I wanted to I just have really high blood sugars. So I guess it was a little bit of both.

Scott Benner 14:05
Did you? Did you find yourself in DK ever.

Carly 14:10
I was just talking to a friend about this the other day, I do not know how I was never NDK like I probably wasn't BK but I never was. I never was sick enough that I actually went into the hospital. Okay, so I don't know how I never Yeah, never ended up being super sick.

Scott Benner 14:27
And then and then tell me to when you go to your endo appointments. I'm assuming you are going to reasonably regular endo appointments, right?

Carly 14:35
No. Okay. No, yeah, that's Yeah, as soon as my parent my parents, my parents are lovely people, but they but they were not pressuring me in terms of diabetes at all. And so I would go on what kind of I would not go regularly at all. And when I would go it would be very I'd be very defensive and my endo you know, kind of knew something was up like obviously I have you know, 13 a one see there's something up on. And at first, my first endo kind of passed it off as cheese, you know, noncompliant to the teenager, you know, she didn't need to do better controls, let's just try this whole thing a little bit for these meals or whatever, let's just try it. I don't think he was understanding that I had an eating disorder at all. But then I went to a second barrel because my insurance changed. So I had to go to switch to different, different No, basically, um, and she knew what was going on, totally figured me out and kind of told my parents and, or my dad, at least while he was there, you know about possibly that I had any disorder. And I was just totally rebellious against it. I do not. And I reached out. And then after that, I don't think I went to an endocrinologist for two or three more years. Okay, because I just didn't, I didn't want to face it. Okay, Carly,

Scott Benner 15:52
you're so you're saying a lot here. So first of all, I want to thank you, because there have been hundreds of people on the show, but only a handful of them ever have to dig into stuff like this. And these are really valuable conversations, and you're brave to have it with me. So So first of all, thank you very much.

Carly 16:11
Yes, it's definitely a very important thing to talk about.

Scott Benner 16:14
No, absolutely. It seems like there was a couple of components here, right? The first one was that your parents weren't exactly dealing with you like, hey, look, this is something we do every three months, we go to the doctor, you get some sort of a, whatever the doctor does, they make, you know, adjustments or suggestions, and we're gonna keep doing this, that that just wasn't just wasn't part of your life. And I'm sure it's not part of a lot of people's lives. To be perfectly honest. Yeah,

Unknown Speaker 16:43
right. Yeah,

Carly 16:44
I was just very, I'm very defensive about about the whole thing. In general, I think my parents just kind of like, well, because I'm not, I'm not a defensive person in any other ways. In my life. I'm very, um, I'm just not that kind of person. Um, so when I started being super defensive, and just kind of angry about the whole thing, they just kind of stepped back and were like, Whoa, like, I'm sorry. Like, we'll let you handle this. Like,

Scott Benner 17:04
yeah, so there's this. If I've mentioned this before, I apologize. But it fits so well, here. I spoke at a hospital in the recent past. And, and endocrinologist, nurse practitioners came up to me afterwards, because I had mentioned how I'm involved with gardens care. And they thanked me when it was over, saying that it was very important for the parents in the room to hear that because a lot of parents think that this is just something they don't need to be involved in. Or sometimes they don't want to be or for whatever reason, they distance themselves from the care and leave it on children who are quite honestly too young to really, you know, understand that. Yeah,

Carly 17:48
definitely. This is definitely both perspectives, like, like parents, like, I think as I go to diabetes camp, so I see the parents that are very like, on top of it, and then the other parents are kind of like, oh, it'll be okay, it'll be fine. And some of them, some of them are, whether they're responsible, but then some of them aren't. And it just like, I want to help them and be like, you know, just try to mentor them while they're there. Because I know that they when they go home, I don't want them to end up like I did not have not have as much guidance, which is unfortunate, right? Because somebody said that about you? Oh, she'll be fine. And you weren't fine. And exactly, and what you know, you're only I don't want to say only 23 but you're only 23. You know, you don't have children, you haven't been out in the in the world in the fight yet. You know, so yeah.

Scott Benner 18:32
Right. So so you're you may know this through your experience now, or, or maybe don't have the perspective yet. But there are always going to be parenting moments, when it's not easy. It's not fun, and their kids hate it. And you still have to, you still have to be there and do that thing with them. And and there's, you know, obviously there are things that kids can avoid when they're in their own time if they're at school. You know, we're talking about diabetes, but this could be anything you could be telling your kid Look, don't smoke a jewel, and the kid still sneaks away and does what they're going to do. But I think that every time you see that jewel, you still have to be the person who takes it from them and then put some sort of a consequence in order and and work through it. It's it becomes touchy and scary when it's about a health thing, you know?

Carly 19:20
Exactly. Yes. And I think I'm also parents just, I guess from my perspective, my parents just didn't want to don't want to hurt me, but they didn't realize in the long run that's not helping for anymore. They were just trading easier now for worse later. Exactly.

Scott Benner 19:37
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Carly 21:40
I think they kind of realized what was going on. So I think I needed someone to just come alongside me and just say hey, like I know that you know you're defensive about this. But I think that you if you don't want help from us, we need to bring you to another chronologist or we need to find another another key Wendy, that's your age that you can talk to her someone because I literally had nothing. So just to have that support would be really helpful. And I'm and I'm not blaming them at all, like for sure. Like they, they didn't know what to do. Like, I'm also their only child, but like, it's not like they've had practices before. And so yeah, so I think just taking along, going alongside a kid guidance, and just letting them know that you know you're there for them. Or they can help you find resources.

Scott Benner 22:26
But that could help them. Yeah, they didn't have a practice kid them when they could just mess up and go, Hey, that was our first one. This is not our fault. You are the practice kid. So yeah, look what they figured out from practice, no more playing. I hear him. Okay, so something, try something, try anything, do something. If that doesn't work, do something else. But don't give up. And I think the message for parents needs to be that. Just because kids push back doesn't necessarily mean they don't want you there. There might be other reasons why they're pushing back too. And for you. You know, it could have been anything, it could have been your fear of needles, it could have been that you just didn't want to have diabetes, you know?

Carly 23:08
Exactly. Yeah. And I think for me, it was it was I think it was perfectionism. You know, I want perfection and diabetes, well not perfection. So if I just ignored it, and it wasn't, it wasn't there. And I could just continue living my life and being perfect in other aspects like not going law at dance practice or not going low when I'm trying to study for a test or whatever.

Scott Benner 23:27
How do you end up working your way through something like an eating disorder? And is there are there things that parents can look for in their kids that are kind of hints that something like that's going on besides the elevated blood sugars ne one sees it seemed crazy out of whack and stuff like that?

Carly 23:45
Yeah, I think um, well, first are things that you can look for. I think I'm just not you know, I guess avoiding avoiding food or having specific, specific things that they want to eat. I guess our classic eating disorder signs, also kind of being I guess, depressed around depressed in general, I've obviously teenagers can be anxiety and depression, but I think especially around like diabetes and eating. And for me specifically how I worked through it, I took me a long time to really realize that, like I said that I even really had an eating disorder. And then after I did, it took me a long time to figure out how to solve it. I didn't I didn't go through classic like treatment going to a treatment facility. I going back I wish I would have been in college. I was just like, I'm too busy to figure this out myself. And so what really helped me was on I, first of all becoming involved with the college diabetes network. I found our chapter at our at the University of Minnesota and kind of came affiliated with them and then ended up going on a retreat. They have like a leadership retreat every year where they have leaders from chapters around the country. Me too. And for a week, you kind of get to be with all these key windy leaders and learn about, about new technology, learn about things that you can take back to your chapter. And that week kind of changed my life. I'm actually that was two years ago now, yeah, two years ago in May. And we still have an active group Snapchat that we literally every day is always blowing up with people, you know, sending each other grass with their Dexcom, or whatever you're talking about general things that we're frustrated with. And just having that connection, even though they're not obviously living in Minnesota, having that connection of people, and constantly talking to them, and seeing how they're keeping track of their diabetes really helped me. And also, aside from that I learned of an organization called we are diabetes that is focused on specifically type one diabetes and eating disorders. And the founder of that I kind of came in connection with and she came alongside me and kind of mentored me a little bit too. So I think just having in general, the seven connections to diabetes things and being around people that are keeping good track of the diabetes really helped me community, right, just hearing, having knowing someone else's, they're being able to bounce something off of somebody showing somebody something that's not perfect. And then going Oh, yeah, that

Scott Benner 26:17
happens to me too. And, and that feeling that everything doesn't have to be perfect, right?

Carly 26:23
Yes, yes.

Scott Benner 26:24
Were you like, are you were you like that? In your personality about other things? Or did that idea of perfection, just live in the diabetes space for you?

Carly 26:35
Oh, definitely about other things, too, about school about any sport I participated in. And, yeah, I'm very perfectionist, which has its good qualities, but also it's bad quality.

Scott Benner 26:48
I know, I might be married to a person like you, I understand what's going on. So a lot of a lot of this isn't quite right. Not quite good enough, like that sort of thing. Does that come? Do you think it was a learned behavior? Did somebody show you how to be like that? Or do you think that it's just sort of hardwired?

Carly 27:05
I don't really, I guess, I don't really know. Because my dad is most easygoing, like fun person in the world, like, everything's a joke to him. And then my mom's not a perfectionist, either. She's not as easygoing as my dad, but she's definitely not. not expecting us to be hardwired from past past relatives or something. Yeah.

Scott Benner 27:25
I was just wondering, it's interesting, because I know for my wife, it's, it's a family trait. You know, like, it's definitely something that, you know, is in the genes. And so I was just wondering, but that's, that's super interesting. Okay. So you, you get yourself on a better path. And you do that through it sounds like through community and support and everything, which is, which is fantastic. Did you have any lasting medical effects from the disorder? And is it something you still fight with today? You know, what is maintenance look like?

Carly 28:02
Yeah, I actually did not have any lot lasting well, aside from my vision, you know, I had 2020 vision before this all happened. And I have glasses now. But that could have been from that could be from not having good diabetes care, or just other things in general. So and it's not like I have terrible vision, I just have to wear glasses on but other than that, I really have no, no residue effects from it. And it's definitely still, it's still present. I'm not like anything like it was but I would say, um, in terms of like fear going low overnight, like, which I don't know, it's not necessarily an eating disorder thing anymore. It's just that I'm so used to not going low overnight that like, I freak out. When I go to bed below 120 I would say like, I'm like, I need to eat something before I go to bed because I don't want to wake up low. And I think that's just because for years and years, I've reduced to that. It's definitely become much better. And I was actually listening to your podcast as helped a lot because this summer on every time I would go out for a walk or whatever, I would listen to your podcast and listening to other people kind of had the same issue where they don't want to bump a nudge and go a little bit have their blood sugar's went a little bit lower on kind of inspired me.

Scott Benner 29:16
Good. I'm good. That's excellent. So hearing other people's stories got you kind of like revved up, but you're and how did you put that into? Like, once you had that momentum, and you were feeling like, Hey, I would like to do something more like what I'm hearing about other people saying, What's the first step to that? It's got to be the overnight stuff, right? Like that's got to be your biggest fear, I would imagine because you do live by yourself.

Carly 29:39
I don't right now I did when I was in college, but now I live back with my parents until until I find another place.

Scott Benner 29:48
No place. I would stay there as long as I could. If I wish you I would. I would. I'm all for someone paying my rent and still if someone wants to show up and do it. So don't don't rush around for that plus you sound like you have bigger plans. So just you know, as long as they think you're moving towards something, I'm sure they'll leave you alone.

Carly 30:05
Yes, I would like to, I would like to move out, but I will take advantage as long as I can

Scott Benner 30:11
for you. Plus, you're in Minnesota. I mean, most half of the year can even go outside anyway. What's the difference? It's just like, like a meat locker.

Carly 30:20
Coal kind of Yeah. Today, it's made in the 20 degree melvil? I think so it's kind of warm outside, but it's 20

Scott Benner 30:26
degrees. Listen to what she just said. It's 20 degrees. It's kind of you live in a place where you can walk on a lake, just let's stop. Okay. It's not natural. But But seriously, I escaped. Yeah, no, please. I was my brother lives in Wisconsin. told me when he moved there, because he, you know, he's from where we're from. And he's like, Guys I work with invited me to go ice fishing. And I was like, What is that? He explained it to me, and I'm like, are you gonna do it? He goes, I don't know. I don't know how I can't like we all work together. He went one time. He's like, it was insane. Yeah, he's like, he's like, they lit a fire on the top of the lake. And I was like, right, because it just burned. Nothing happened. It's like nine feet of it. It's like, come home. Boy.

Carly 31:12
I can see how that could seem really weird to someone that's never done that before. Yeah,

Scott Benner 31:15
you're done. Right? It is. But so so when you make so let me I guess let me ask you this. Prior to coming out of high school, and you're in you know, you're come to college, and you find the college diabetes network, and you find yourself some stability. Where are you at? Like a one c? You know, average blood sugar wise in college? Like, what were your goals? Like day to day goals? And how did they end up? Like kind of grading out? I guess, at the end of the three months? Although someone's gonna get really mad that I said grading out, but it's a term just Well, I'll be fine.

Carly 31:50
Yeah, so I think the first first year of college, I definitely didn't go the endo at all. So I don't know what it was, it was probably still 1213 second year of college, it started when I'm actually kind of certain, trying to figure stuff out. So um, when I went and I think the first time it was like, 9.6, or something like that. And then recently, I guess, a third year of college in the fourth year of college, I got it down into eight. And then last time I went in, it was seven, which was at the beginning, or when I got back from Vanderbilt. So that was like, I guess, the end of the summer. So I'm going in next month, so

Scott Benner 32:28
So yeah, absolutely go, that's you should be incredibly proud of yourself. I'm sure you are. But you don't need me to tell you that. But. But that's a really amazing accomplishment in a very short amount of time on your own. Coming from where you came. That's, that's spectacular. And you don't shy away from food. And you don't you don't overeat to avoid lows and all that sort of going.

Carly 32:50
Yeah, yeah, I definitely am someone that since I do kind of diaper infection, I do kind of eat only regimens that are not right to certain things, because I know how to bowls for them. But I definitely expanding my horizons in terms of figuring out how to bowl for other things for you.

Scott Benner 33:05
Well, this is very exciting. Now listen, I think it's important to say to people listening that I think Carly's story is shocking, like if you don't live this life, or if these things have never kind of, you know, crept up in your life. I would see we're hearing them might be like, wow, that's insane. But I don't think that your story. Is that uncommon? Carly? You know, yeah, I don't at all. And have you met other people who were in a similar situation? I know, I don't know if you have or not, but I'm just interested in like a diabetes camp.

Carly 33:36
Well, it's kind of interesting, because I have not like, specifically met I've like, through we are diabetes, like I've talked to like the founder who had eating disorder. And I was, I guess, that multiple people have default diabetes network that, that kind of went through disorder phase, but not like, not extreme. But it is interesting, because I do work at the hospital. And I see so many people that are around, you know, between the ages of 18 and 25. that come in with aka. And obviously, not all of them have eating disorders, but a lot of them are not. Some of them, you can kind of just tell do and I just want to like I know, as my position, I can't step up and be like, hey, like, I want to help you. But I'm interesting that I can't say anything, but I do see a lot of people at the hospital that um, that are going through that same thing. So it kind of makes me realize that Yeah, my story is not there. A lot of people are going through this

Scott Benner 34:29
right. And I think that that goes for most people like whatever it is that your story is around diabetes, it is probably not so dissimilar from other people. And it just, I think we I somebody put it to me, I'm trying to figure out a way to say something, somebody put something to me one way recently that I didn't know 100% with the makeup, but they they said I would bet that people who listen to your podcasts are either the people who are you know really quote unquote good at it, or the people who are really struggling and hoping to get good at it. I was like, Well, isn't that everybody? Like, like, they're just variations of that in between. But still. But still, I think that when I hear you talk, I can sit here and think, well, this could easily happen to my daughter, right? Like this could absolutely easily happen to her. And she, you wouldn't think that would be common, you know, for her situation. But who knows what goes on once she takes over her own, you know, care a little extra. And I think this is just, I think it's just incredibly kind of you to offer your experience so that everybody can can kind of look up and say, I wonder what what's going on in my life that maybe I should be paying more attention to? or What does my kid need that? I may be acting like, oh, they're fine. And maybe they're not, you know?

Carly 35:47
Yeah, definitely. That's why I want to, I want to share my story. And I want to let other people know that because yeah, when they when they hear that other people are going through the same thing. I wish, I wish when I was going through it, I would have had resources like this or someone, here's someone else's story and been like, well, that's me like I need to, I need to try to, you know, reach out and try to figure figure out how to handle things.

Scott Benner 36:09
So so Okay, so let's talk a little bit about like today like getting the mail right now in in now time now time, which is not a phrase commonly used. So what would that be called the present? There we go. Unbelievable, Carly.

Unknown Speaker 36:22
They're hard baby. I've

Scott Benner 36:23
done too many these podcasts. I just had now time. It's making me so you have a pump now. glucose monitor.

Unknown Speaker 36:33
Guess Yes, I

Carly 36:34
have a pump on a pump. Right now. I have the Medtronic 670 and the on the sensor. I really don't like it. I have so I'm actually on a clinical trial right now for not for our glucose monitor or anything, but I'm wearing a Dexcom for the clinical trial. And I'm in love with it that it connects to my phone and that it sets my Apple Watch. It's amazing. And so I'm gonna try to switch to Dexcom but I am currently on the truck. Oh, Medtronic, people. You must be so sick of turning on this podcast and hearing people say I like my Medtronic CGM. But you had no choice you live in Minnesota, which I believe is the headquarters for Medtronic isn't aren't they? Yes, it is. literally everyone. You go to the endo here, everyone up until like, probably a year ago, everyone had Medtronic. Now they're kind of figuring out that maybe Medtronic is not perfect. But up until up until a year ago, like literally every kid we didn't even know what like panda was or Dexcom was

Scott Benner 37:31
how hard how difficult could it be? to trick a person who thinks it's spending a day standing on a frozen lake fishing through a hole is a good idea. Right? Like it must be so it just has to be so easy. Like it just Hi. This is the only insulin popular out Oh, it is Thank you very much. And then you just take what it probably is a sticker on the box that says won't freeze during ice fishing. Which then right makes everybody there go Oh, this is this is the best insulin pump it won't for a perfect

Carly 37:58
insulin pump. Yeah,

Scott Benner 38:00
walking on water. So, but no, no, I didn't know that. I just you know, I know I bear saying every once in a while, a couple episodes. I didn't ask you what kind of pump you had when you came on. You know you offer that information up. I didn't know you were currently using Dexcom on a trial. But this is totally where I'm going to put the Dexcom ad right here. Yesterday took Arden and two of her friends to a small shopping district nearby our home, drop them off so they can have a nice day together. Arden was armed with a few things. They bought insulin pump, a juice box, her meter and test strips. But only one thing made the entire trip. Simple. It was the dexcom g six continuous glucose monitor and its ability to share Arden's blood sugars with me remotely, I just dropped them off and left kicked him right out of the car. I was like Hey, get out of here. Have fun, you crazy kids. As Arden was getting in the car, I said look, I'm not sure if walking around this heats gonna bring your blood sugar up or down. As soon as we see what's going on. We'll make a decision her blood sugar was 91 at that moment. The walking around actually Can you guess drove her blood sugar up a little bit. So she used her Omni pod put up a little temporary bazel rate continued on with the day. Then they went to a restaurant for lunch for art and had macaroni and cheese and salad. We were bolusing and when we missed on the bowls a little bit we are going to put in more insulin Why? Because the dexcom showed us the direction and speed of her blood sugar. It showed us that we missed a little bit with her meal and so we put in more now, the more almost help we got it a 150 and it leveled off and just as it leveled off at 150. What did Arden want to do? Well, her and her friends found a cupcake shop. We were able to Bolus at the 150 aggressively enough. Keep in mind these are results and yours may vary but Arden's blood sugar did not go up during the cupcake from the 150. But down settling in again in the mid 80s. All of that I'm going to talk right past the music. All of that is because of the functionality of the dexcom g six continuous glucose monitor direction, speed of your blood sugar. super important. Just as important, the ability for her blood sugar to be shared with a loved one, in this case, me. You want to make good decisions about your diabetes, start with this one, go to dexcom.com forward slash juice box and get the G six continuous glucose monitor. Tell me about the trial you're doing right now.

Carly 40:40
Yeah, so it's, um, it's really interesting, actually. So it's about people that have hypoglycemia unawareness. And, um, and recently, as I have started on getting my blood sugar's in better control, I will go out for a run and also wearing my sensor, I started realize this, I'll go out for a run and literally drop into the 40s and not even not even realize it and then get back and be like, Oh, I'm low. And so I've heard of this clinical trial that they're doing. It's measuring basically people that have hypoglycemia unawareness. It's measuring their brain activity when their glucose does go really low. And they think that type one diabetics have some sort of compensation or something going on in their, in their brain cells that are making it so their brain kind of says, you know, you go low all the time, so we're just not going to give the normal normal awareness signs, you know, the shakiness feeling sweaty and stuff, because it happens all the time. And I feel like we don't need to freak out about this. So So yeah, so they basically put you in, they put four IVs in you on one and both of your feet one both of your hands and put you in an MRI machine and drop your glucose really low, and measure your brain activity. And see if there's anything funky going on. And Carly for this you being paid $1 million a day. Is that correct? Because that's what I would charge to do that. I think it's like, I think it's compensation of like $500 a day, so it is quite a bit.

Scott Benner 42:02
Wow. Fancy and in Minnesota, that's like 1500

Unknown Speaker 42:06
right? Yes, yes.

Scott Benner 42:08
It says a lovely place anywhere cold. Really? You're gonna hear me speak poorly about I just.

Carly 42:14
It's very, it's a lovely house. Beautiful falls beautiful summers and beautiful springs. But yes, the winter is a bit a bit cold.

Scott Benner 42:21
Yes. My brother in Wisconsin says, come out and visit see the lakes. To which I respond. No. And then that's how that ends. We have beautiful lakes as I'm sure you do.

Carly 42:36
You got to come in. But you got to come in the fall. And

Scott Benner 42:39
one day, I mean, I'm just trying to get him to move home. I it's been a decade. I'm pretty sure he's not coming. But I I thought if I withheld my delightfulness he'd have to come back for it. But I don't I

Carly 42:49
don't know. He's not catching on to that.

Scott Benner 42:51
No, not at all. That that's he doesn't love my mom. I think that's what I'm just kidding. We tease them about it. Sometimes I'm like, Oh, you know, if you love mom, you'd come home and live here. And he's like, this is where my job isn't like, is it? But it actually is, he doesn't deserve that. He's a really nice person. Anyway, you so you're on this study, which is insane. But that's very nice. It's a nice thing you're doing for other people. Plus, you might get some answers for yourself. It's incredibly interesting that you're hearing that it's possible that people who experience a lot of low blood sugars might have a mechanism that tells them like, Look, don't feel like this, because you're more because your body spent a long time at elevated blood sugars. So it really adapted to that space. How long says something I'm interested to know after you brought your blood sugar's down to a more reasonable place. You didn't even feel it then at that moment, like in the beginning. Like like coming from like a 200 all the time down to an a you know, 100 all the time. That didn't make you feel oddly,

Carly 44:02
I think it was very gradual. I didn't like it wasn't like everyday I'd be at normal blood sugar's I was kind of you know, back and forth. So I think it didn't really hit me that hard. Um, I think maybe it maybe the actual lows did like I was not used to going low. So you know, if I was below 70 at all, like I was shaky, like not I could not function at all. But eventually Yeah, that kind of disappeared and I know sometimes can't feel my feel my lows.

Scott Benner 44:27
Wow. And and but you've never become incapacitated.

Unknown Speaker 44:29
Never know.

Scott Benner 44:31
So you're functioning. Do you look back and think Hmm, I wasn't as cognitively sharp as I thought I was in that moment or does that not even change?

Unknown Speaker 44:42
I'm like when I'm like running and I'm like say

Scott Benner 44:46
you say you go for running you're low. Do you look back like an hour later and think oh, I just as I was running, I thought one plus one equals turtle or nothing,

Carly 44:55
I guess. I guess not. Because I'm not really like I'm just more like have my music playing I listen to a podcast or something. So usually, usually I don't have to think too hard. So I guess I don't I don't really know. When I get when I get back home, I definitely can tell because I'll start fumbling around and you know, being shaky and be like, Hey, I'm probably low. Okay. But yeah, when I'm running, I can't really I can't really tell.

Scott Benner 45:17
Carly, are you excited that there's a high likelihood your episode is going to be called One plus one equals turtle?

Carly 45:24
Yes, that sounds like a great, great name.

Scott Benner 45:26
We're turtle math. Maybe we'll figure it out. Don't worry, but something's gonna happen. I said, I just said that. I wish you could all live in my head from it. I just said that. And I thought inside my brain, I thought, I've never had that thought before in my entire life. Like, how did that just come out? That's why people like the podcast who knows what I'm gonna say? I don't even know. God knows if any of this diabetes stuff is even correct.

Unknown Speaker 45:49
I'm just kidding.

Unknown Speaker 45:51
That's very true.

Scott Benner 45:52
You caught me a good day. I'm a little giddy today, Carly. So I'm so sorry. Sorry, to everyone's made it this far into the episode. Okay, so right now, you said your human agency sort of in the eight ish range that you're bringing down slowly? Which by the way, I like the I like the slow approach to like not getting crazy and just going nuts. How's your variability? Like? Are you bouncing around as much? Or are you? I guess it is 781? See? Are you like very stable around like 141 50? Most of the day? Or how does? How does? How's that?

Carly 46:28
I would say, um, again, it really depends upon the day. But I would say I'm pretty stable. I don't have a whole lot of dropping. When I first I will say when I first started working at the hospital, though, it's a lot of a lot of just the entire day. I'm on my feet running around. And so I that has gotten me kind of some, some ups and downs because you know, I'll go low correct gold high, like just kind of up and down rollercoaster. But I'm definitely figuring out my bazel bit more, a little bit more now. And actually, that is one thing that I do use the 674 is figuring out at work and figuring out how to change my basal rate, because I didn't even know and it has been kind of helpful for that.

Scott Benner 47:07
Is that is this? Is it the 670? Is that the one that does the Is it like an artificial pancreas type one?

Carly 47:13
Yeah, yeah, the auto mode. Yeah, what I first was very frustrated with and did not like, but after realizing that it could help you at work, I kind of it's kind of like a little bit more. It's interesting,

Scott Benner 47:23
but it targets your blood sugar for what, like, where does it set out? You know,

Carly 47:28
so I haven't set. I haven't set up the lowest setting, which I believe is like, I think it's like 70 to 100 or something like that. But it will sometimes be okay with me being you know, 141 50 even sometimes, which can get frustrating because then you end up eating fake carbs. Because you can't give yourself just like, Well, my girl bowl says that you have to pretend like you're eating something. Just to cut out microvolts to get you a little bit lower. You're tricking the pump. Yeah.

Scott Benner 47:56
I'm sorry. Go ahead. No, I was just gonna say I guess that's fair. It's tricking you. I told you it was gonna keep you between 70 100 and your 150. So I guess it's fair if you trick it back.

Unknown Speaker 48:05
Yeah, yeah.

Carly 48:08
You can't do that. I'm like, Well, it wasn't what am I supposed to do? Because it's really annoying that I you know, could potentially be in the lower 100 right now, and it's keeping me at 150. Like, it's annoying, right? I

Scott Benner 48:18
know, this is the official insulin pump of Minnesota, but it's not doing a good job for me and I have

Carly 48:25
a rep in Minnesota very well.

Scott Benner 48:26
No, we and and know exactly. That's not fair to Minnesota. At all. You guys made a wrestler governor, you know that right? Yes, it's winter or something like that. I'm just saying, as you know, maybe it is fair to Minnesota is what I'm saying. He's a conspiracy theorist now who lives on a beach in Mexico because he doesn't want to be in the country near what I'm assuming are the people who are coming to get them. So I think you guys did a great job. sussing that one out, and, you know, onward and upward. But um,

Carly 49:04
Oh, goodness. Yeah. Like, just ignore that part of our

Scott Benner 49:06
body visscher that that was his name. Yeah, he's a little he's, he's, I'm sure he's fine. But maybe he's just saying those things to get attention and have a television show. But I think he's one of those people who believes any crazy thing you might think he he's pretty sure it might be true. So good for him. Anyway, so So okay, so you're using that pump with the, you know, the auto mode, it automatically keeps your blood sugar at 150. And then you so I get what you're saying this, you pretend you're eating so it'll give you insulin. So it'll bring you down? Yes, but then that isn't. They're telling you you can't do that because that throws off the algorithm, which I gotcha. But what you're saying is you better hope that this tax calm doesn't hook up to a pump to make a different algorithm, buddy, because I'm getting out of here one way or the other.

Carly 49:57
Yes, exactly. What I do There is a way to like hook up the Dexcom, to the old Medtronic and like make your own artificial pancreas or something like that

Scott Benner 50:06
you just got out of my space, I'm not sure. What are some of the things you're looking forward to? I mean, with your own health as well as like, you know, with your life, like, you must feel like you're on a completely different path. And you've been on so far.

Carly 50:23
Yeah, I'm definitely looking forward to, um, I want to go to PA school, and I want to specialize in endocrinology. And the men work with people with diabetes. And I actually, um, yeah, I think my whole career path changed after kind of getting in control of my diabetes of wanting to somehow go into health care, it helps those that have diabetes, and I think realizing that teens have more time to spend with their patients and how, you know, you always go to the endo, and they're kind of you know, you get your agency and they don't have much time to sit down with you. I feel like the PA that I work with that my clinics despite you get more time to work with them, and sit down and you kind of get time for them to kind of say, Hey, what's going on here? You know, let's look at your look at your graphs and stuff. Whereas I'm more like a CD kind of role, where is on? And those don't think that's, I'm like, I'm really looking forward to be able to possibly go into that as my career.

Scott Benner 51:20
Are you getting better at that like, for yourself? Are you able to start looking at your graphs and really figure about like, Oh, I think this is that, and I'm at this point, now. I just look and I'm like, Oh, I know what this means. And I can adjust it in like two seconds. And, like, just Yeah. Are you getting to that point?

Carly 51:39
Yeah, I think, um, but also, I think I still have so much variability in my day to day activity that I still kind of, still in figuring out a little bit, but I'm definitely getting better at being able to look at it and be like, you know, you were whatever, like, made this you were now 200. You know, you can have both for this a little bit earlier, and, you know, maybe one more unit and would have been a little bit better. Um, so I definitely, in terms of like, running and stuff, because I do, I do run it quite frequently. And, um, that that's a little bit more of a challenge for me and figuring out exactly, I it seems like it varies from day to day what my blood sugar's do no matter what I do for that, so I figured that out.

Scott Benner 52:19
So I've heard, and I'm not 100% the right person to talk about this with but I've heard some people talking about if they, they tried to get the insulin completely out of themselves before activity, like before working out,

meaning that like right haven't had like an active bolt, there's no act of bolus, even the end of one. And that they can kind of work out forever without their blood sugar kind of dropping from that. Yes, that is something that I have figured out that if I have any insulin on board, I'm going to plumb it, no matter if I had, you know, 1000 carb breakfast, that was

Carly 52:53
a huge breakfast, it wouldn't matter. Like if I have any insulin on board, I'm just going to plummet no matter what. So I have to wake up. If I want to workout before work, I have to wake up super early and bolt through whatever I'm eating and you know, then and then go work out or just eat something that has more protein and not a lot of carbs and eat that and then just not have to bowl because if I have insulin, I'm just gonna plummet and not be able to not be able to finish my run.

Scott Benner 53:20
Well, this is a little unfair to you, Carly. I'm sorry, because we got a little bit of a late start because of me, but my schedule is super tight today. So I have to ask you if there's anything we did not talk about that you wanted to that I forgot?

Carly 53:33
I don't think so. I think we kind of everything.

Scott Benner 53:37
I'm pretty good at this. You are yours. I could tell like you were you were by the way. Congratulations. I know if you've ever been on a podcast before. Nice and chatty, I liked it. And well thank you know, amen. You knew what you were gonna say you got right to it, you spoke about it. Like you're obviously an incredibly bright person. And so I was like, This is great. I'm just gonna sit back and say stupid things about Minnesota on fairly. So thank you. I

Carly 54:04
was very nervous about what exactly I was gonna say. I was like, I'm gonna go for it. And just, you know, we'll do it.

Scott Benner 54:09
Are you happy that that went that way? Because you emailed me and you were like, what should I be preparing for? And I'm, of course no help. Anyone who's ever been in your position knows that I just emailed back. I'm like, it'll be fine. Don't worry about some people that doesn't really work for their personality too. Well, so. But you You really did. You went from what are we going to talk about to Don't worry about it to doing a really great job. So I genuinely appreciate you taking this time like this. Thank you. Thank you. You're very welcome. Dancing for diabetes has a new space they're working on they just completed the demolition portion of the construction process. You gotta go check it out. It's very exciting. Dancing, the number four diabetes.com were on their Instagram or Facebook pages to see those pictures. Huge. Thank you to Carly for coming on the show and baring her soul on so many important topics. Thank you all so to us. In the pod Dexcom, and of course dancing for diabetes for their support of the podcast. I do want to give you two other things here that Carly mentioned during the show. We are diabetes.org is the organization that Carly mentioned. They're not sponsors. But it seemed to be very helpful to her. So I think you should check them out. We are diabetes.org. And it comes up a lot on the show, especially with college aged students, but the college diabetes network is that college diabetes network.org. Also, don't forget the 1 million giveaway celebration is underway for the podcast. That is right in August of 2019. That Juicebox Podcast Thanks to you, we'll reach 1 million total downloads. And I wanted to celebrate with you in a way that you didn't have to do anything. It's a giveaway that you don't have to do anything to enter. So go to Juicebox podcast.com. Scroll down till you see the little thing for the 1 million celebration, click on it. You'll see all the stuff that's going to be involved in the giveaway on the pod decks comm and dancing for diabetes swag, one free item of your choice from myabetic.com. Stay put medical is going to give us a gift bag. We'll give you the winner. How about a 30 minute consultation with Jenny Smith. Oh, come on, right 30 minutes on the phone with Jenny. The winner will also get two new bold with insulin t shirts. Which if you want to see right now, just go to Juicebox podcast.com. and scroll down to merch you can buy them now if you want or try to win the giveaway. And the big prize, depending on how you think of it could be the prize you don't want, you might end up going Hey, Scott, I'll take all this stuff except for this last thing. But if you do win and you are interested in offering one week of unfettered access you and I can text call by phone, FaceTime, whatever you need any questions you have for seven days, I'm here to answer them for the winner. The contest is open to everyone. There are some limitations for overseas, you'll see when you get to Juicebox podcast.com. But everyone can play. Everyone can enter. It doesn't cost anything to enter. And you can enter once a day for nothing. You don't have to follow me on something or do anything. I'm not going to make you do anything you do those things if you want to. But I'm not going to make you do something to enter. Just go enter. There was 324 I just logged on 324 entries so far. And you can enter once a day so you can get like I don't know how many days left in August, but for every day left in August, you can get an entry give yourself a better chance to win. That's pretty cool. I just actually refresh it. There's 326 entries now You better hurry up and get over there. Thank you so much for listening to the Juicebox Podcast. I hope you guys are having a great summer. hope you really enjoyed this episode. I thought there was a lot of insight into a number of important issues here. 1 million downloads new swanky t shirts. This podcast is really classing up.

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Scott Benner 8/2/19 Scott Benner 8/2/19

#249 Defining Diabetes: Extended Bolus

Defining Diabetes: Extended Bolus

Scott and Jenny Smith, CDE define the terms at the center of your type 1 diabetes care

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
In this episode of defining diabetes Jenny Smith and I are going to define extended Bolus. Defining diabetes is made possible by Dexcom on the pod and dancing for diabetes. Please remember that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise the Always consult a physician before becoming bold with insulin or making any changes to your medical plan.

Extended bolus

Jennifer Smith, CDE 0:30
extended bolus that's a very good one because

first of all, a lot of people don't realize how this ended Bolus works. So extended Bolus refers specifically to pumping right in an insulin pump you have the option old if your son animist pump you had something called the combo bolus. If you have a Medtronic pump you have dual bolus and square as if you have Omnipod. Extended Bolus. If you have a tandem pump, it's extended Bolus as well. They all call it something different. They all essentially works the same exact way. Extended Bolus allows you to take a bolus and extend all or a portion of it out over a designated time period. So let's say for example, like the terms that the tronic came up with, honestly, the duel in the square wave Bolus, because you can do them on all the pumps even though they're not called that in all the pumps. A duel with Bolus means that you're going to give let's say your pump recommends two units right now for what you said you were going to eat. If you choose a dual way of Bolus. The pump will ask you how much of this Bolus do you want to give right now as an upfront amount, like a normal bolus that you get, let's say you say 50%. Okay, your pump is going to give you one unit right now, the other The next screen that comes up How long do you want to deliver the other 50%? Over in this case, one unit? Do you want it over half hour? Do you want it over three hours? Do you want it over four hours, eight hours, what do you want? At that point, the pump will start a drip, drip, drip, drip drip of that one unit bolus out over the course of time you told it to deliver it out over it doesn't wait until the end. Let's say you said two hours. It doesn't wait until you get to two hours and then it delivers the one unit Bolus. That is not how extended works in any of the pumps. It is a drip drip almost like a secondary bazel kind of if you think about it, drip drip drip drip drip out over the time period you said and again the other bolus is the square wave in Medtronic. You can do it the same way and the other pumps square wave means you give no normal bolus right now and say you say zero percent. Right now the next screen will say well how long do you want to deliver this two units over you say two hours it will drip drip drip, drip drip the whole bowl is in over a two hour time period. That's extended Bolus.

Scott Benner 2:55
I will sometimes cheat on a Pre-Bolus if Arden's blood sugar is not stable enough to hold it. So like say Arden's 20 minutes away from eating lunch and this is when we get a chance to Pre-Bolus while she's at school, but her blood sugar's you know 75 then we'll do a zero percent now and the rest over a half an hour so that it starts dripping rain right away but by the time she sits down and eats about two thirds of it is in probably none of its active. It just starts becoming active as she starts to eat and the rest of its in by then too and coming online. It's just it's it's a brilliant way to manipulate insulin. And in the end, a lot of what we talked about here is ways to make the insulin do what you want it to do, but more importantly when you want it to do it. So extending the wave square. These are all ways of stretching out your your insulin boluses.

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Scott Benner 7/29/19 Scott Benner 7/29/19

#248 Meaningful Connections

Debra is the Wizard of Positive…

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello and welcome to Episode 240 248. Wow, is that right? may look. Hello and welcome to Episode 248 of the Juicebox Podcast. Today's episode is sponsored by Omni pod Dexcom and dancing for diabetes, you can go to my Omni pod comm forward slash juice box dancing the number for diabetes.com or dexcom.com forward slash juice box to learn more. Well, this doesn't happen very often, but I'm giving you an episode on the day it was recorded. It's not with like a company like not like newsworthy, time sensitive stuff. This episode is with Deborah. And Deborah has a daughter with Type One Diabetes, a son who has autism, and a father who has Alzheimer's. When Debra wrote me to tell me about her positive attitude. I thought I want to find out more about that. And then she came on today and if this is perfect, so we've been talking about management for a while and hearing people's diabetes stories. Let's hear something upbeat. Something that's still helpful about living with type one, but at the same time, maybe not. So Management Center. Let's call this episode like you know that sorbet you get before dinner to cleanse your palate. And then we'll jump right back into more diabetes pro tips with Jenny. And people's stories that are a little more diabetes centric. Not that this isn't. But this conversation just I don't know. It was really kind of beautiful. I really enjoyed it. I felt like I was in therapy. But my therapist was a friend. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before becoming bold with insulin or making any changes

Unknown Speaker 1:45
to your health

Deborah 1:46
care plan. I'm actually at Rutgers right now.

Unknown Speaker 1:52
Are you really what are you doing there?

Deborah 1:54
I dropped Juliet off at the is through Camp ninjetta. It's like a it's like a day camp. Yeah, for for diabetes, or type one. And I actually went to I went to you know, I graduated from so I always get very nostalgic being here. But she's at the camp right now. So I'm just, you know, I'm going to I'm going to hang out today round this. Yeah, like just kind of walk through the old, old classes. And you know, I mean, after we talk, I'm going to go to my favorite Thai place in Highland Park. That's excellent. Good for Yeah, right. Okay, head I'm sorry.

Scott Benner 2:29
No, don't be sorry. My son has a played baseball at Rutgers a number of times. So I'm familiar with the area right there.

Deborah 2:36
Yeah, well, I met Yeah, I mean, Rutgers. I don't know. I love it here. My husband went here to we both went here and I'm right in front of Amman, Douglas campus right now. But um, I don't know if you're familiar. It's like by Douglas. It's just so pretty here. But it just brings back a lot of a lot of memories.

Scott Benner 2:56
my niece's. My niece is an incoming Junior, I think at Rutgers.

Deborah 3:00
Oh, at Rutgers. Oh, I think it's such a great, like even when, like it's I loved, loved it. I loved I loved school here. I hated high hated High School of school. But loved love college. Like every you know, everyone was different and, and it was liberating.

Scott Benner 3:21
When is the last time you went to dancing for diabetes.com? Or check them out on Instagram or Facebook? If you haven't done in a while, I think now's the time. Unless you're driving and then wait. I mean, finish the podcast because it's gonna get really cool. And like in depth, and I mean, you just gonna love depper by the time this is over and her stories about her father and kids, it's, it's all incredibly heartwarming. But then have your heart rewarmed later today dancing for diabetes.com we're on their Facebook page, or their Instagram account. That's all I got for you.

Deborah 3:59
My name is Deborah. And I have a little girl with type one. And I'm really grateful to be on this. This podcast.

Scott Benner 4:08
Oh, thank you. Your email caught my attention. Because it was just it was it was like my father has this. My daughter has this my son, I was like, wow, like, and then at the end you're like and I have a really good like, you know, overall outlook. And I said, well that that I want to hear about so tell me tell me a little bit about your your daughter's diagnosis. How old was she? How long ago was it?

Deborah 4:33
Well, so she she was just diagnosed a year ago. But Juliet was diagnosed a year ago. He we were actually in Princeton, and I took the kids to see the Wizard of Oz. And she got up four times to pay. And I actually got a little annoyed with her. I thought she was just like bored. And I tend to stay I feel terrible. But I actually like Juliet. I know you're bored. But you know your brother and I are watching this. And she's like, no, I really Have to go. And, and, and she really was going, but then I thought, you know, maybe she's got a bladder infection, you know, so I said, is it doesn't hurt? And she's like, No, not at all. And so that was like the first my first moment of awareness and then over the next couple of weeks, you know, she was just drinking a lot and eating a lot and I, so I took her, I took her to the, to the doctor, for what I thought was maybe a urinary tract infection, but I really wasn't worried because healthy and happy and frozen, eating and just doing very well. Yeah, just exactly. just just just paying a little extra and I thought, okay, it's June it's hot out. But, you know, long story short, she eaten the cup, and the doctor walked in. He sent us to the emergency room. And it was like a it was like a kind of like a moment like, like a like her lips were moving. But I just, you know, I you know, I it was it was very bizarre.

Scott Benner 6:05
It's like a movie, right? Like, everything sort of goes blank and you hear kind of a deafening ringing in your ears and nothing's quite getting through to your brain. And yeah, you're thinking I just thought she had to pay. That's weird. Yeah. Now there's this much larger thing. I hope you understand that. Even though you didn't say it. Deborah, you've already named this episode because I'm pretty close to going with.

I'm pretty close to going with she was off to take a wizard.

Unknown Speaker 6:39
I love it. I love it

Scott Benner 6:40
as you were saying it. Like there's a five year old little boy inside of me trying not to giggle through what you were talking. I was like, oh my god. During the Wizard of Oz, why are we

Deborah 6:50
beautiful. I love it. I love it. Oh, that's that's so that's great. That's so great. I love it.

Scott Benner 6:56
So it knocks you over I imagine Did you you call your husband right away? You just go to the ER?

Deborah 7:01
Yeah, no, I did. I did. We were admitted. next four days. And it's like, we had a whole learn a whole new language. I actually handled it very well initially. No, I, my husband, was he you know, he, it was harder for him. I feel like for me, it came later, like, three months or even two months later, that's when it kind of hit me. And I'm like, wow, this is hard. Yeah, this is this is really overwhelming. Because I you know, I had mentioned my son has autism. And that, that that's, that's been that's been to me, they're they're both very difficult just in different ways. You know, I'm such a connector, what what makes life worth living to me is the connections that that you make with people and you know, meaningful connections. And so it's a little harder to connect with my son even though he's you know, considered highly functioning very verbal. You know, I mean, he's, you would love him. He's very, very quirky he has, he's obsessed with air conditioners, drains, vents, garbage disposals, but it's hard to connect with him, like emotionally, you know, he's and so that's, that's that. That's been very hard for. But in the same breath, also my greatest teacher, and so is Juliet. And so is my dad. And it sounds so cliche ish. But there really are silver linings in, you know, to every cloud there. And it sounds like it sounds very cliche ish. But I do think that there's, there's beauty in pain.

Scott Benner 8:32
It's I don't think it's cliched at all, to think that more difficult existences open up perspective on things that people who don't run into those problems, you know, don't they don't get to see those things. And there's little moments and teachable ideas and things that kind of hit you like, Wow, I can't believe I didn't notice this about the world before. And it does open up, you know, one side gets, doesn't get closed off, it gets maybe slowed down, or it's not exactly what you want it to be. It's almost like you know, your TV was not the brightness all the way up. And but then all this other stuff opens up. And if you allow them all to blend together, you end up with more than you would have had.

Deborah 9:15
You're so right. And I think if someone were to say to me, you know, 15 years ago, before I was married and had kids, if they've, they're gonna say you're gonna have a father with all time or son with autism, a daughter with type one I probably, you know, would not have had children, I probably would have taken a different path, but I'm so glad I did. I'm so glad I did. I did have you know, like I didn't know like, because life is is it's richer, and it's more meaningful. You know? Like, I'm glad that no one told me that because it really is richer.

Scott Benner 9:48
Again, perspective, the EU back then would have known what the EU now knows and you would have made the best decision you could have at the moment it would have in your you know, in your retrospective Look, it would have been wrong, you know, right. I get it. And at the same time, I would tell you that I thought we were probably going to have three kids until Arden was diagnosed and it slowed us down. You know, like it was hard to, in those, you know, initial years, it was, you know, we were so overwhelming, I didn't have a, you know, I didn't have anywhere to go to find out about all the things that were going wrong, we just, they'd go wrong over and over and over again. And you just beat your head against the wall, trying to figure out how to fix it. And the tech, the technology was terrible, then and then not terrible, but it was a meter and like, you know, needles, so you were just like, let's see what we got here with this.

Deborah 10:38
I know. And I and I know that you hear this all the time. But I do want to thank you, because you're you're really doing something wonderful for the community. And, you know, you're really making type one, not as scary. And, you know, you you have found this method, and you have well, you have found ways in technology, your your, you know, really paving the way to make this more manageable. And just, you know, so I, you know, I really appreciate what you're what you're doing. I know you hear this a lot, but it's very good. You're you're making a difference, you know, like you really are,

Scott Benner 11:12
I can't tell you that. hearing it over and over again. It doesn't get old. And I don't mean from my perspective, I mean, because, you know, I was You caught me on a day where I was doing sort of paperwork this morning, and I'm corresponding with different people. And one of them is the initial person who, at Omni pod who heard my pitch about, you know, this is what I want to do with this podcast, and but I need you, I need you to support it before it has any listeners and, and you know, I need you to put ads on it when I can't promise anybody's gonna hear them. But here's what I want to do. And here's what I think it can do. And I was commiserating with her because we were i'd shared a note from one of you guys with her. And I told her I was like, Look, this is you did this as much as anyone else, you know, like, You're the one who after I had made that pitch to every person at every pharma company I'd ever bumped into. And if that person lost their job, and somebody else got hired, I'd find that person and pitch them again, over and over and over again, the person or the person that on the pod that heard me was the third person in a decade to hold that job. And they finally heard me and I was like, here's what I think I can do with this podcast. And, and that it worked is amazing. But as I was writing or the note, and I told her how many people downloaded the podcast in the first 12 months of the show. And then I shared with her that in the month we're in now four times as many people have that have downloaded the show this month, as did the first year.

Unknown Speaker 12:46
Wow, that's incredible. I was like,

Scott Benner 12:48
I think we're on like, a precipice here. Like, I think we can blow this up to the point where this doesn't just reach. You know, the people who listen to podcasts and those people that they talk to, like, I think I could make this bigger. You know what I mean? Like so, I'm really excited. I really

Deborah 13:04
Oh, no, no, no, I'm sorry, I interrupted you. No, no, no, I

Scott Benner 13:08
believe in the next couple of years if I can get this to the point where people have access to it if they want it earlier on in their diagnosis, and really try to shorten the painful part.

Deborah 13:20
That's That's incredible. And it you know, it takes a village and amazing when you have a group of people that come together for a cause I've seen it and I'm living it you know, I really believe in the in the power of our intentions and our thoughts. So that's that's, that's really beautiful.

Scott Benner 13:37
88% of surveyed on the pod users agree that the Omni pod to boost insulin pump makes living with diabetes easier. I have not been surveyed, but add me to that list. Make it 88% of users and 100% of Scott. But you're gonna want to know why I say that. Well, it all starts with the company, right? It's a well run company. So my customer service experiences are good. I get product when I need it. It's not a problem. And then from there, we're talking about putting the pump on filling it. inserting it it's easy, it's quick, really quick, like I can pitstop a pod and like a minute and a half middle of the night. It's easy. Fill the syringe fill the pot, stick it on push a button self insert done from there bolusing Temp Basal is everything you do with your insulin pump is simple, nice user interface on the PDM screen. Easy. I don't have to carry around anything with me right my daughter's not strapped to up insulin pump but they don't. My daughter is not strapped to an insulin pump at the end of a bunch of tubing. That is easy. I can swim with it. I don't have to take it off to take a shower a bath. Easy, easy, easy. And then when it's time to change it again. We're back where we started. Add an E Fill an insertion process, those 88% or 100%, right? The only thing left for you to do is find out if I'm telling the truth. And that's easy to do. Because Omni pod offers a free, no obligation demo, go to my Omni pod.com forward slash juice box, fill in the tiniest bit of information. And Omni pod will send the demo pod right to your house. Deborah, I couldn't agree with you more. I'm, I'm watching it, I'm watching it now. While you and I record this, where people will download the podcast then downloaded it in the first month it was out. And incredible. So cool. And the notes I got a note this morning on Facebook, I, I now have a I have a forcefield around my emotions when I read your notes, because I just I can't cry all the time all day long. I mean, so I just, I just read, like, that's really cool. I make sure to remember that this is a really new and positive experience for the person who's writing it. And I tried so hard not to just be blazor when I like I don't want to just be like, Hey, good job, you're done. Good. You know, keep going. Yeah, by using the tools that's going to work because it's the truth. Just keep going, I'll be fine. But

Deborah 16:13
no, and that's very hard. It takes a very special person to like, I'm not on on an idea I was years ago. Um, I have mixed emotions, you know, I see how credible it could be. It's just, I, I just get I get very like over what like, like you said, I you know, you want to respond. Art, you know, you want to put your heart into your responses. You don't want it to be just you know, but you can't possibly, and you have hundreds of thousands of people, you know, writing to, you know, it's it's very hard to find that balance, I

Scott Benner 16:46
guess it's there. It's difficult to like if you're if you're driving, I don't know, if you're taking a trip, and you're and you have a rope and you can pull people out of holes. But every quarter of a mile someone's in a hole there at some point. There's one person who you drive by and you go, you know what I'll call 911 for that one, because I can't stop for each one of you on never get to the end.

Deborah 17:09
Oh, absolutely. But

Scott Benner 17:10
I'm starting to think that maybe I'm not supposed to get to the end. Maybe. Maybe I'm supposed to stop at every person.

Unknown Speaker 17:17
Yeah, yeah,

Scott Benner 17:18
yeah. Maybe that's your destination. Maybe it's true. You know what I mean? So as long as I'm growing?

Deborah 17:24
Yeah, I have a magnet on my fridge. Because it's not about the destination. It's the journey, you know, to get there. Yeah. So that's, that's really wow, that's nice. Yeah, cuz I really think every person we meet and every experience we have, whether it's, quote unquote, positive or negative is, is the teacher. You know, like, I spent many years like, even in college, I put this comparative religion class, which was fascinating philosophy. I ended up studying psychology, but I found that I, you know, I was searching for like a guru. Oh, and after being faced with all these struggles, I kind of realized life is is the guru. Like every you know, autism is my teacher diabetes is my teacher, all timers, like life is our life is the teacher, every person, every experience, every you know, and then there's days where you just don't want to do it. There's days where you just you just want to, you know, you just, you just get depressed and like, I write I break I you know, and that's that's fine, too.

Scott Benner 18:21
You're just trying to live your life you don't every, every day doesn't need to be a learning experience.

Unknown Speaker 18:26
Right? Right. Exactly. And that's really

Scott Benner 18:28
what you're talking about really is the goal of the podcast is to get the the tools, the ideas, so just commonplace in your life, right? So that something happens and you just do a thing. You don't have to sit around for 15 minutes, like staring at the wall thinking like, what do I do about this blood sugar? You You want to get to the point where you look at that data, you see the experience that's happening around you with the food or what's going on, and you just go Oh, you know what, this is a Temp Basal increase. I have to do it right here. And you trust it and you do it and it works and the tools work? Yeah, I mean, like when you see a nail that needs to be hammered in. If you've got a toolbox in front of you, and you don't know to pick up the hammer, you could make yourself crazy wondering like, Is it the pliers that does it? Is it the screwdriver, like what am I gonna do, but when you can just look down, see nail grab hammer, bang, bang, bang, it's done and never think about it. That's where I'm trying to get everybody with a diabetes.

Deborah 19:18
Yes. And you and you and you're doing it for shared experiences and your own experience. You know, these podcasts do pave the way to an easier transition and experience. And you know, so I mean, I'm always sharing and sharing you diagnose I actually shared you in Wegmans the other day with a woman add her daughter has diabetes for five years. And she got very, very low and then she ate all this like a whole bunch of candy. And then he's like, oh, now she's going to be 300. I'm like, Well, why don't you just hit a Temp Basal. Like, what is that? I'm like, Oh, I'm like, Well, first of all, have you ever listened to the you know, Scott's podcast, then? No. And and now she's upset. Now she's been listening. She's like, this is amazing. And I'm so yeah, no, it's it's wonderful. Deborah

Scott Benner 20:06
had you on with the intention of telling other people how to be happy not not to make me happy, but it's going well, though. I mean, I grew six inches since you and I started talking.

Deborah 20:18
Buddy, my employer, you know, because I, I see the beauty in people and I like to share that. And my employer the other day, she's like, babe, I'm a six, you're making me out to be a 10. I'm an I'm a six. I know, I do have to kind of like, I know, I'm like, I definitely. I love to read love. And, you know, and see, you know, share with people that the good but I'm just a little,

Scott Benner 20:39
it's not too much. It's not too much. Trust me. It's not too much. I just at some point, someone's gonna be listening. Be like, Listen, he's probably a bad person in other parts of life. Like, let's let it go. Oh,

Deborah 20:51
we have our shadows.

Scott Benner 20:53
I had my moments, but I feel like I hit the main the main ones pretty well. Yeah.

Unknown Speaker 20:57
Yeah. But anyway,

Scott Benner 20:58
so I wanted. So I don't know anything about autism. Okay, so I'm assuming I'm assuming your son was diagnosed before your daughter.

Deborah 21:07
Yes. I had studied psychology at Rutgers. And I actually went to dental he worked at, like the Douglas school for autism. And just very bizarre that I interned there. And 10 years later, I was touring the school for my son. And I married an engineer, my husband's an engineer, and two and a half my son was doing a lot of a lot of these engineering, like he was a key is almost like he was afraid of other children his age, he would he you know, whenever we went to a birthday party, he had under my, like, my arm, and he wanted to look at the air conditioner, wants to see the way that they worked. And he wanted to look at the garbage disposal. So when I, you know, I had some concerns, but he was talking, so that kind of threw off. And of course, you know, I also, the idea of autism at the time was just, it was very upsetting. But as time went on, became more apparent and saviors and just, you know, just that he was he was that he thought felt differently. And so I'll never forget that we went to the developmental pediatrician, and she, you know, again, just like Juliet, you know, he murmured the words, you know, your son has autism. And it's like, everything. It was like a movie screen. It was like, it was like I was with a witnessing a movie. Oh, and it, I felt like her words were very painful and almost too much to bear. But behind like, behind the movie was like a piece. And in every event in my life, whenever there's something really tragic, that's almost too much to bear. There's also like, a piece behind the tragedy. That makes sense. So it's like, I'm witnessing this movie, but I'm in the background, and I'm like, hey, it's gonna be okay. No, and I so I got the diagnosis. And then six months later, we got the diagnosis that my father had eimer. Again, same thing, it was like, as if I was witnessing, you know, this terrible horror movie, but in the background, I'm like, it's gonna be okay. It's gonna be alright. It's not to say that I didn't go through depressions through the years, you know, or I didn't go through moments or days, weeks of feeling pretty awful, because I did. But what I have found is that there's they're, like, even with so with my dad. He so my mom and dad got divorced. And I was like, the nicest divorce ever. Like as far as divorces go, and he had a long term. He was with this woman for about 25 years. And when they parted ways, that's when I started really seeing the the deficits, I would go to visit him. And one time, you know, I heard the shower on and I said, that is the shower on and he looked confused. And I went upstairs and his whole bathroom was like, flooded. And then, you know, a few weeks later, I went to visit him and I smelled something burning and he had left the remote control by the stove. And I said, Dad, what's what's going on? What you know, you left the remote control and then then he had gotten into the, the icing, you know, after so then he got into two car accidents. And thank God, they were just fender benders. That's when my aunt and I got involved. I'm an only child. And we took him we have a we have a Oh my God, why is the name escaping me? It's a neuro pro doctor. neurologist. neurologist. Yes, we so my aunt, my my aunt, her husband's brother's in Belgium. And we went to two neurologists, and did brain scans and a whole bunch of testing and they said that he has, you know, he has all timers and

so my dad was a very smart man, he had a master's in quantitative analysis, I don't even know what that means. He owned his own CPA firm for 30 years very, he was a mediator, he was a really smart, intelligent, you know, good hearted man, you know, a good a great listener. But he, you know, he was he was busy a lot when I was growing up, he was he was always at the office. And so when he got sick and sort of needed me more, and, you know, growing up, he was my hero, every every little girl like their daddies are usually their heroes. And then when I turned like, 1819, I'm like, but you know, I, I went through a little bit of a rebellious, rebellious stage where I felt a little angry with him. And then when I became a parent, myself, I realized, you know, this is hard. Sometimes it's easier to be like, at work, you know, like, this is really hard stuff. parenting, you know, the hardest thing I've ever done in my life. So, you know, becoming a parent made me grow in compassion. And he did a lot of good for a lot of people. So I feel like his all timers really bridge the gap between us. And, you know, we got, we got very close, and it slowed him down. And I remember this one moment, we're walking through this garden, because he had, he had to go into an assisted living facility, which is right by my house, and I visit him every day. And we're going through this garden. And I said to my dad, you know, what's the greatest thing you've ever done that he's, you know, he's traveled a lot. He's met a lot of interesting people. And, you know, and again, when I was younger, I didn't always feel like a priority. And he turned to me. And he said, You and that was like, a really beautiful moment, that I'm that I just, you know, hold in my heart. And he has this disease. It's sort of like a slow go by. And, you know, now he's, he's, you know, completely in a wheelchair, he's in diapers, he needs to be fed, you know, again, I'm there every day My mom is there. My mom's remarried. And her husband goes with her. I mean, it's such a beautiful, like, it's so amazing. Like, how amazing My mom is who and and her husband, but um, so it's, it's been sort of like this, like, slow goodbye. It's, it's

Unknown Speaker 27:23
a virtue.

Scott Benner 27:25
Okay, I'm sorry. No, don't be sorry. It sounds like what brought you to a place that wouldn't have happened without the Alzheimer's. It just Yeah, like maybe never gets to tell you that. And you don't get to be around him enough to see the other parts of him and

Deborah 27:39
yeah, like, it brought us closer and in ways it really like like, this is the closest I've ever felt. Yeah. Oh, and then tragedy, there's, there's also an sadness, there's also humor.

So this is this is kind of funny. But after he got the diagnosis of all timers, you know, by and my and his best friend, were like, we have to take the car keys away. You know, this is we can't have him driving around like this. And that was really, really hard. Trying to do that. So this is this is kind of silly. So we're four weeks, we're like trying, we're talking to him. We're trying to meditate The best way to, you know, take the car keys, and my husband's car broke. So we had to borrow his car for a few weeks, but

Scott Benner 28:29
he just forgot about it.

Deborah 28:31
Well, no, what ended up happening with this is it gets even funnier. So I work in any part time. I took his car into the city with me, I actually parked in the garage and after work, it was it was late, you know, so I didn't have to worry about parking Park after like five or six o'clock, you could park wherever. And so I had met up with my cousin at a restaurant and I actually parked and I actually sat at the window right in front of where the car was. And we just ordered and we're about to drink our tea. And all of a sudden I hear, boom, I look up I look out the window. My father's car is like standing straight up in the air. And, again, a movie moment. I'm just like, like, it just seems so unbelievable to me. My cousin is you know, I'm just kind of like very detached, like, I can't believe my debt. My dad's car is totaled, you know? And my cousin is he's, you know, kind of very emotional. She's like, I did you see what just happened? Oh my god, you know, and I walk outside. Some guy ran a stop sign fashion to my dad's car. And his car was fine. My dad's car was totaled. And that's how we got the car away. And we got a check from the insurance company for the car.

Scott Benner 29:48
workout in the guy didn't really hurt did any damage.

Deborah 29:51
No one was hurt. The guy in his car had like a little scratch. Or you know, like, like a little something to the bumper. Everybody was fine. It's It's great. Crazy, you know life sometimes. Ah,

Scott Benner 30:04
well, you know what you said a second ago that made me think and I could be so far off on this. And I obviously don't have any first hand knowledge but you you referred to this part of your dad's life as a as a slow goodbye. And it made me wonder if maybe with your son with the autism, if it's not just the instead of it being difficult to connect with him, I wonder if it's just a more slow connection. Like, I wonder if it's more of a slow Hello.

Deborah 30:28
It's so funny. You're saying that and you are so right on I just got the goosebumps. So I always say my dad is yes. It's like he's progressing into this other world, you know, he's he's leaving us and my son is slowly coming in taking him, you know, much longer. But he is I mean, he's, he's amazing. You know, my son, he is definitely that's another. I resisted this for many years. Like I I wanted peace and I wanted to I wanted it to be easier. And I wanted harmony, and you know, and I resisted challenges, I didn't want to deal with them. Until one day, I just, I couldn't, you know, I broke, like, his behaviors were just so challenging. I just broke and I put my hands up to the sky in the bathroom floor 3am crying out, I don't even know who just someone that you know, whatever you want to call it. And I really was sort of desperate and vulnerable and open and out of control. And it was in that moment that I just, you know, I just got the sense that my son is the past light and like, Don't Don't, don't resist this, like, face him and open yourself up. And he's that he's your teacher. Yeah. You know, he's he's the teacher.

Scott Benner 31:46
It's almost like, it's almost like the autism slows down time for him. So like things that he's getting to, he's just getting to slower. And there'll be things he probably won't get to, but because his growth will take more time. But in that, and it's hard for us when we're moving as fast as we are to want to slow down. But you describe that you only got to connect with your father because he slowed down. Yeah, you know, so. So there's, it just, it's, these two things are incongruous, right, you can't like you can't figure out diabetes. While things are happening in full speed, I think that's one of the reasons that the podcast helps is because you can listen to it while you're doing something else. So what it does is it makes more time, right? Because Because I always allude to it. And I say it just sort of in flippant ways like you know, you know, this is all happening, but you have to go to work or take care of a different child or cut your lawn, there's other things happening. But if you could really stop and step back far enough, you could see this diabetes thing and make sense of it. And really, I tell people a lot we talked about a person from on the pod earlier that supported the podcast before any but before they had any reason to the other person, if you want to thank anybody for the show ever. It's my wife, who you'll probably never hear from but who allows this time for me. Like to be a state I was a stay at home dad, right. So I got the pullback farther from the from the diabetes and take a bigger view of it. And then I got to like very slowly put together pieces. And then the pieces became ideas, those ideas became methods. And then I was able to start over about how to tell people about them. I started writing about them. I didn't find that to be as quick as I wanted it to be. So I went into the podcast, and even some of the episodes like it's me still learning how to talk to you about the things that my wife allowed me time to figure out. Right. And so that's why all this exists, whether whether you want to see it that way or not. I'm 100% positive it

Deborah 33:47
is. Oh, yes. And I actually met her and your daughter, pocket St. Peters. And that served me. Well. So beautiful. And I also want to take this opportunity to thank my husband, too, because he is an incredible man. And I you know, it's sad that sometimes in a marriage, you don't always you know, you don't always appreciate each other. But I more than ever. Now. I really do. He's He's an incredible husband and father and so devoted so hard working. And I'm very lucky. Also, to have him as a partner,

Unknown Speaker 34:25
those people like yeah, and

Scott Benner 34:27
what he's doing for you is he's he's making space he's making time. And that time you're dedicating to slowing down so that you can be with your son as he's growing, right? Like we all Is it funny we all complain all the time when we have kids. I just blinked and it went by so fast. And that's not happening to you. It probably feels like it's taking longer, but you don't have that feeling of like wow, I missed everything. You things are happening so methodically, that you really do get to experience every one of them and I guess you're finding at some points. In the beginning, you weren't wired to be working at that speed, maybe,

Deborah 35:05
you know, I, I, I am taking those moments and big life as Oh, because of what I'm being faced with. I do have to slow down. But I, it's just it's kind of a crazy culture, you know, that we live in with our phones, and we're always beeping in terms I really do miss I miss the 80s. I miss like, you know, I miss like, when it was a little simpler. But I mean, this is great, too. But it's a very fast paced culture that we live in. But I, I will say that, yes, I think I have. I think I have more moments of being present. Which, which most of us are, we're most of us are either living in the past or the future, you know, and most of us are not really, in the moment.

Scott Benner 35:51
I know a way to live in the future. And in the moment, it's with Dexcom. That's right, the Dexcom g six continuous glucose monitor makes you feel like you're flying in a spaceship, a spaceship made out of diabetes technology, because it's so like, out of this world. But you don't have to leave Earth to find it, you really just have to go to dexcom.com Ford slash juice box, I mean, way easier than flying into space or jumping into a time machine. Like that kind of stuff, which is a lot of that doesn't exist for real. But what I'm saying is, if you want to feel like you're living in the future, Today, Dexcom is the way to go. What are you going to find when you get to that dexcom.com Ford slash juice box URL, let me tell you, you're going to see the continuous glucose monitor that is at the top of its game, you are going to find the ability to see your blood sugar not just what it is not just Hey, my blood sugar is 140. But is this 140 rising or falling? And if it is, how fast is that happening, all that information at a glance, this information that you can also get on your Android or Apple phone 10 if the person with diabetes in your life happens to be a loved one and not yourself, you can see that information on your phone. Amazing, right? Like your kid could be anywhere you could see their blood sugar dexcom.com forward slash juice box where the links in your show notes were at Juicebox podcast.com, it's time to come to your future, which is technologies present. And get yourself a present isn't the English language amazing. There's so many words that sound the same and many of them are spelled the same, but they mean different things. But no matter how you say or spelled Dexcom it means comfort, quality, better way of life. The shows about the startup again, but before it does. Dancing for diabetes.com dancing the number four diabetes.com check them out on Facebook, check him out on Instagram, you will not be sorry, dancing, you know how to spell da NC IMG four is the digit four and then diabetes di A B t is the A b e t s then.is the period and comm CLM it sounds to me like you're doing an amazing job because there's you obviously are being inundated in three completely different ways on three separate fronts. Right? Like the diabetes feels dire, and it feels immediate. And the Autism is taking forever and is frustrating. And your father's the you know is is is slow, slow, slow, slow. It's very, not a lot of people have to bounce between such varying ideas in one day. But you're doing it.

Deborah 38:39
I'm trying I'm trying to, you know, I think it does take that village, which I've, you know, sort of created my mom, my mom has listened to every episode of your show. He takes notes and she sends them to me. I haven't listened to every episode, but I would like to, you know, I'm, I'm listening to your show. And then also when I because I have a long ride into the city I listen to like podcasts on just trying to stay balanced and peaceful and that sort of thing. But I also I do listen to your show. But my mom is always sending me notes, you know, from from the show and just you know, and I have just some wonderful people that I'm surrounded by and it really does take a village I think to to raise a family to build a an amazing movement. You know, just if everybody if everybody just kind of contributes a small piece of goodness to the higher good we you know, it's it really does make a difference, correct me

Scott Benner 39:42
if I'm wrong. I met your mom in the

Deborah 39:44
lobby outside of you did Yes, he did. as well.

Scott Benner 39:48
As you're talking I remember remembering more and more. It's so I hope you're not insulted like no you said we met at the hospital. I didn't know I'm sorry but

Deborah 39:58
no, not at all. That's probably not

Scott Benner 40:01
gonna go back. They contacted me and I picked a date and I'm gonna go back in about six months.

Deborah 40:08
I know I heard I heard about Yeah, very nice time. That was January.

Scott Benner 40:12
Yeah, a very nice time. And it was just the, I don't think I would have known the complete impact because there was a, there's a fair amount of people there. But one family in particular has kept in touch with me through so I know exactly

Deborah 40:25
which family

Scott Benner 40:26
Yeah. And, um, so it's great to see, they came along so far in six months. It's really cool.

Deborah 40:32
Oh, I told him he should like do a class. I told him. I told him he should do a class because he he's got it. Yeah, he's he's he you like, Yeah, he has exactly what he said. I'm not Yeah, he did. I I'm not exactly we're where you are. But that's okay. You know, we're good. Like, we'll get there.

Scott Benner 40:54
We're all not going to be in the same place at the same time.

Deborah 40:56
Exactly. Right. It's

Scott Benner 40:57
just, it's just, it's To me, it's comforting to know that, that a better place exists, and that you can keep moving towards it. Yeah. And and if you're seeing, you know, like, like we just said, like, sometimes you see improvement improvement, sometimes you see these walls, where nothing seems to get better. And those are the times you just have to sort of reinvest in what you're doing and say to yourself, I'm probably spread too thin in this moment, I'm not paying enough attention to one place.

Deborah 41:23
Yeah, and you need a break. And like you said during the lecture, like always that one parent that, you know, taking on this a little bit, you know, a little more than the other not not, there's no one no one's fault. You know, you need a break, you need you need to just get a break from it, or move your, you know, go out with the other child for a weekend or just sleep. No, just get some sleep. And so, you know, I completely, you know, I couldn't agree with you more.

Scott Benner 41:52
I have a couple of questions. So you said that you thought your husband handled the autism better than the diabetes? Yes.

Unknown Speaker 41:59
Why do you think that was?

Deborah 42:03
The autism was harder for me easier for him the diet? Yeah.

Unknown Speaker 42:06
I don't know. Just how you think just yeah, I

Deborah 42:10
mean, yeah, I that's how that's how it is? i? Yeah, I don't know. I think that, um, like we, you know, we had already had one child with special needs. And then to have a second it was like, it just it hit him harder. Yeah, at first. And at first, I'm like, we got this honey, it was almost I look back and I was playing, like, I look back at myself, you know, like, it did hit me. It hit me like, probably two or three months after the hospital. And it was there was a period of like, depression, sadness, followed by, hey, we're gonna do this. We're gonna we're gonna get this.

Scott Benner 42:47
You know, it felt to me when you were talking that you went into survival mode first. And then after things leveled out, then you took time to be upset about it? And yes, right. And yes.

Deborah 42:58
And I think maybe seeing my husband breakdown, like I'm like, Okay, I have to I have to be wrong one right now.

Unknown Speaker 43:03
There's only two of us. And he's fine. So

Unknown Speaker 43:05
yeah, exactly, exactly.

Scott Benner 43:08
Oh, listen, it's a little like a foxhole. Right. If the guy next to us. It can't stand up and shoot, it's on us. You know, you're gonna get overrun.

Unknown Speaker 43:16
Exactly.

Scott Benner 43:17
It's it's very nice that you had somebody else. And it also opens a window into how a single parent situation, really, you guys really need to lock down a friend or a family member to be

Unknown Speaker 43:30
like that other person for you. Right? That's, that's heartbreaking. Yeah.

Scott Benner 43:33
Because when you're crying in the foxhole, you need somebody else to stand up and shoot. And it can't be it can't be the kids. You know, it needs to be it needs to be somebody else that's got your back for five seconds. You said something earlier that made me think about you said about just how hard parenting is in general, you didn't realize till you had your own kids.

Unknown Speaker 43:49
Okay, I thought I think

Scott Benner 43:50
one of the one of the things that I have found to be like, that I'm the most proud of because it is so difficult to do is you know, when you stand in judgment of your children, your children stand in judgment of you for a second and you recognize that they're right about their assessment of you, and that you have like, screwed something up or failed somewhere or not done really what you could have done.

Unknown Speaker 44:13
Learning Yes,

Scott Benner 44:14
learning that you have to stand there and feel it and then acknowledge it not be upset not lash back out. Like all that stuff. That's an incredible like you say you learn from your kids. That's an amazing mirror, right? Because they hold that mirror up to you and you're like, Oh, damn, they're right. You know, and, and I've, I can look back into my own childhood at the moments where I did that to my parents. And they, of course, just, you know, shove the back twice as hard and stop me from talking. But I didn't I don't you know, it was my first inclination as a younger parent. It was my wife had said to me, like, you have to let them talk like they're making sense. And I was thinking, I was like, Oh, I you know, at first I was like, she's just gonna use these kids to fix me. But But nobody Seriously, it's it's one of the most difficult things to do besides seeing your kids struggle or be in pain and not be able to help listening to them. tell you, Hey, you know, here's my assessment of something I just saw you do. And in all honesty, this doesn't jive with how you've told me to live life. So you're gonna have to adjust this or you're a hypocrite and in to sit there and think, Wow, they're right. And then to make that adjustments very hard, but very,

Deborah 45:28
it is hard. And it's so humbling. You know, there's, there's times where I've kind of lost it, and then not not lost a bit. You know, I've I have a lot, I think I have a lot of self control. I very, I really don't get angry very often. I do with the two with my kids. I definitely but but I think it's important to, like you said, you know, when your kids call you out to what, I'm sorry, Mommy, mommy made a mistake. Mommy shouldn't have, you know, reacted that way. And I'm human too. We all make mistakes, you know. So I definitely know, I have no problem saying I'm sorry, or acknowledging.

Scott Benner 46:05
It was most difficult for me because my father yelled, he yelled, that's how my dad would control a situation you just be louder than everybody else.

Deborah 46:13
Right? A lot of a lot of parents

Scott Benner 46:15
when I was younger, like, I fell into that quite easily, you know, and it didn't happen as much because the kids were so easy. Like the only mean like, there wasn't a lot of opportunity for it. But when it came, that was my default. I was like, Oh, I will just be louder than everybody else. shut this down.

Deborah 46:31
Right, right. Of course. No, we just we go with what we know and what we are experienced. Right? Right.

Scott Benner 46:37
I have not broken all the bad circles in my life. But I'm really close on that one. And I feel I feel very proud about it. So

Deborah 46:44
no, that's, that's you're better than me because I have yelled and I don't like doing I don't like to I don't like to with the kids. I really doesn't you know, in the moment, it doesn't happen a lot. The moment it'll feel good. And then like a seconds later, I'm like, at, you know, like, you know, but it's just like when they're not listening. My my dad my dad yell he gave he just gave me a book. So dab rock. go one two never made it to three. And then my mom. Oh, well, I sort of take after more in terms of like my parenting she was very soft. Easy going and but but a real nurturer such a you know, but also a little bit of a worrier. But just so so loving and so nurturing and, and that's sort of where you know, as I think, you know, a lot of it Some of it is my fault because I they are very spirited isn't. You know, when you're strict, they don't really take advantage, softer sometimes. I don't know.

Scott Benner 47:42
I you know, the strictness the strictness inhibits them, though and what I what I've really found about myself is that when it's you mentioned, like yelling when they're not listening, like my kids, listen, they're not like that. It's for me. It's when it not that not that they listened constantly or that you were stolen. But But what I'm saying is, for me, it strikes when, when they're looking at me, and they're saying, hey, look, you just did this thing. And that's not like there's what I've learned to do is just instead of trying to stop them, I just acknowledge them. And I let my ego go. And I say, look, I need you to understand in this moment, I can't take any criticism. Like I just don't, I'm tired. Or I'm just this day's been too much. And as you're right, but I can't stay in here and do this with you right now. Because I just don't have it in me today. So so you're not wrong. I'm not trying to stop you. I'm just telling you, if you have any compassion for me, yeah, let me off the hook right now.

Deborah 48:35
I totally get it. And that's, that is so important, I think, you know, to try to put our egos aside, and you know, because I feel like we don't do many things can just be, you know, I feel like a lot of us don't know how to communicate and through my son. So he has such difficulty communicating. Like, even at work. You know, whenever we have a really difficult client, they say called Debbie, and my one my one coworker, you know, she said, This woman is like, borderline abusive, she's terrible. And I'm and I and I ended up spending some time with her. I said, That's nothing, like, you know, like, you know, some people just don't know how to, you know, for whatever the reason is, maybe they're on the spectrum, maybe they, you know, whatever, there's, there's, you know, whatever the reason is, they just don't always know how to effectively communicate. And I think it's important not to take that personal and, and, you know, sometimes we have to put ourselves on the line a little bit and, and be a little vulnerable to open them up that makes

Scott Benner 49:32
it so you say this is my wife and I had this conversation yesterday off. And I don't know how this happened. But I was saying to her, it was like, you know, now with, you know, how much how much how we see people on the spectrum or autistic or anything like that, and how well they're being helped and, and people are helping them integrate into like a like a life. You know what I mean? Like, a world where a couple of decades ago, you would have just institutionalized somebody. Yeah, right. Yeah, that doesn't happen anymore. I'm like now there's This, these people exist in the world now. And it's so interesting to watch how that's working. You know, like,

Unknown Speaker 50:08
it's, you know,

Scott Benner 50:09
it's really something. Here's how the conversation started. Since we're talking about, I was driving down the street, and I saw this girl who I, you know, for the, I don't know, the right way to say this, but she was clearly autistic. Right, but she, you know, you could write, but gorgeous, like, model, right? And I thought I thought like, This girl is not gonna like some guys gonna be like, Yo, what's up? And like, what happens next? God, I just stood there wondering like all of that, like, I wonder where that goes and how that works? And

Deborah 50:45
I No, no, I worry, I think about I mean, I try not too much about the future. But I you know, I of course, I you know, you do have to think about that. And I plan a little bit through the principles of ABA, applied behavior analysis, which is like one of the only proven methods that has effectively shown to really, significantly help those with autism. It's amazing how much is therapies, really, and help a lot of these kids to live, you know, as some would want to say typical, you know, but like a somewhat typical life. But it is a huge spectrum. I mean, there are there are children that are nonverbal, that are not potty trained. I mean, like the kids in his class, they're, they're fascinating. There's one child that's obsessed with Titanic, those everything there is to know about the Titanic. And there's another little boy that if you say, October 30 1918, he'll say Tuesday, like, you know, he has memorized all the calendar. And there's another little boy who's obsessed with peanut butter and jelly sandwiches, he knows every and then, you know, my son loves air conditioners, drains, vents, garbage disposals, you know, like, they're like these, they're very quirky. And they get, you know, like, they get these like interests, and they just are, they're very smart. They're like little savant in certain areas, but then, you know, struggles socially,

Scott Benner 52:16
in the quarter of a block that I drove past this girl, I wondered about her entire life. Like, I was like, oh, like so many different ideas? And what could happen? Just the idea between, like, what if?

Unknown Speaker 52:27
What if?

Scott Benner 52:28
What if a malicious guy's the first person to approach versus what if it's just some sweet person who's just like, you know, what you seem like a person I want to know. And like, and all the things in between. And I was just, I was, I was happy for like, that she was going to have all these possibilities, because you think 30 years ago, she wouldn't have been just walking down the street by herself going for a walk on a nice day, right? Like her life would have probably been more segmented and, and, and, and more restricted. And I don't know, it was just really, okay, so Alright, so, so here's the last part we haven't spoken about. Okay.

Unknown Speaker 53:03
It's you, oh,

Scott Benner 53:06
we talked about, you know, a little bit about the diabetes. But to me, this conversation is more about being positive in the face of health issues. And so, you know, we learned about your father and his, his, his Alzheimer's, your son is his autism, who's taking care of you?

Deborah 53:24
Well, I am my husband is an incredible support. And my mom You know, my in laws, husband, family. Yesterday, they they went to the beach, and I stayed back and you know, my in laws were all there, and especially my, my brother in law, my sister in law there. But I have learned that is not selfish to go get a massage. It's not selfish to ask your spouse like, do I need a break? I just want to sit under a tree. And I just don't want to talk. No. And I and I have learned to love me. Oh, and because you kind of have to spend the rest of your life with yourself, right? And so you might as well learn to love yourself. And I love to read, like I get a lot of fulfillment and enjoy from from reading. Good books are listening to, you know, inspiring podcasts like yours. And you know, I just really try to nurture and take care of myself and I and I see a difference when I'm not. I do see a difference when I'm not used to carving out a little bit of time. For myself, though. I do think that it's just so important to to carve out time for your yourself.

Scott Benner 54:44
Yeah, no, I think that in many. I think if you really look at many families, there are people there are people who take on roles, and these people kind of get pulled together naturally like you don't normally see two like caregiver types married to each other. Do you know what I mean? Like,

Unknown Speaker 55:00
I don't know exactly what

Scott Benner 55:02
I have to tell you, I would joke about this. But if Deborah, if you and I were married, we'd be the two least productive people on the planet. Talking about how we felt all the while, we wouldn't have, we wouldn't have $15 into our name. So, you

Deborah 55:18
know, I'm more of the caregiver.

Scott Benner 55:20
And I am in our situation.

Deborah 55:22
Yes, right. He's more but he's he's the he's very committed. So I'm always the one I you know, I make the breakfast or lunch, the dinner, the smoothie, the smoothies, the foot massages, like, I'm always Are you okay? How do you feel? But then I'm also the first one, like, if he gets frustrated with me, I'm like, then why are we together? No. I love and I made a commitment cheat. And you're my What? You know, so he's the, he's the, he's the he's the he's very committed and devoted, and

Scott Benner 55:50
he's the guy who's gonna get up every day and go to work and make sure everything

Deborah 55:53
incredible. We do this like this cleanse every every January, we do this 21 day cleanse, he and I, and the first couple years, like I cheated, like, after the third day, he's like to those, and I'm like, No, no, you know, or did you have chocolate? You know, he's like, I don't I don't get it. He's like, if you make a commitment, you do it. You know, like, What is? But he is so like you said he gets up every day. I don't think he's ever missed in 17 years that I've no been Matt, you know, been with him. Like, I don't think he's ever missed a day of work. Like he is just so. And he but he's comes home and he he's he's so present with the kids. And he's just Oh,

Scott Benner 56:32
oh, got an engineer's mind. decency. Yeah, I'm on top of that. Yeah, no, I hear you.

Unknown Speaker 56:38
I just put it out with you guys. Well, it's,

Scott Benner 56:41
it's really the same. Kelly's just a bright, like hardworking person. You know, I, my wife is probably one of the, in, in, in the space that she's in. She is probably one of the preeminent people in that, like very neat, Nishi world that she works in. And if you go all the way back to her first job coming out of college, and she got attempt was attempt position. So she comes out, they put her in a in a double cube with a with a nurse. And it's at a pharma company. And my wife says, The first day she sat there, no one talked to her. She came but but not just no one talked to her. No one came up there and went Hi, you work here. Now this is your job.

Unknown Speaker 57:24
She

Scott Benner 57:24
right quite literally just sat there. So the next day again, nothing. So she turns to the woman in the cube. And she says, Is anyone ever going to like, talk to me or approach me or tell me what I was hired to do? Like, you know, like this, she was like 21 years old, 22 years old. And the woman's like, you know, they will eventually but your attempt, they were probably just filling a position. And so my wife comes home. And I'm like, So from my perspective, I'm like, she you just get to sit there and they're gonna pay. Yeah, I was like, This is amazing. And my wife said, I can't do that. So right. On the flower on the third day, my wife asked the nurse, what are you doing? And the nurse explained it to her and it was drug safety. It's the it's the protections of the things you don't say at a pharmaceutical company. Oh, my wife is the person who is standing up for you at a pharmaceutical company. Right? Wow. And so there are these rulings and rules and things from the FDA massive volumes of them. And my wife went and got them and sat down and read them. And now if you want to know anything about that, you come as a fitness industry, right? That's,

Deborah 58:35
yeah, I didn't credit that's my husband. Yes, my husband, I'll just watch the video or ask someone to kind of show it to me,

Scott Benner 58:42
I would have had my feet up on the desk. And if someone came through and said, Scott, what are you doing? I'd be like, I am the luckiest person in the world. I just got a job right off the bat and then die. But that's my whole plan. You know, buddy. wife was like, I won't waste this time. And so

Deborah 58:59
that's incredible. That's

Scott Benner 59:01
right. And it's just very fasting. Because you also because people are like that you also kind of can't tell them, like in the way you want to because they don't feel things in the same way that other people do. Because they're such like working individuals like right, they really are. They get up they strap it on and they go to work every day. It's really it's really something but if it wasn't for her,

Deborah 59:19
it's admirable.

Scott Benner 59:20
Yeah, this wouldn't exist. Because how would I? How would I afford the time to have learned all these things? Or the time to figure out how to tell you about them or the time to actually tell you about them? You know, so

Deborah 59:31
if it was if it wasn't for him?

Scott Benner 59:33
No, please. Definitely Yeah, if I we I say all the time, if our roles were reversed my wife and I would be lucky to live like in a shack on the edge of the river. You know, to me, like the best I probably could have done,

Deborah 59:46
but we're so we're so blessed that we found worked we found out we found them. It I really it's you know, I think I think you actually I think you appreciate marriage even for as you as you get older and the kids start getting older and you really are Faced with some real, you know, but I but I agree with everything you're saying and your wife is my husband. And and thank God thank God for that,

Scott Benner 1:00:09
oh, if they were married, they'd be so happy. They never talk to each other. It's gonna work.

Unknown Speaker 1:00:14
So great. I love it. I

Scott Benner 1:00:17
love it very funny. Well, I want to thank you so much for doing this. It was absolutely spectacular. I did not know what to expect. And it just went exactly, it couldn't have gone any better than I'd hoped. So I really appreciate you being this open and sharing this time with everybody.

Deborah 1:00:33
Well, thank you so much for this wonderful opportunity. And, you know, I, I appreciate it, too. And I'll see you soon. I'll see you in January. I'll be back to

Scott Benner 1:00:43
hopefully you guys can get a whole new group of people to come in.

Unknown Speaker 1:00:47
And oh, yeah, and maybe

Scott Benner 1:00:48
some of the originals can come back and we can advance them along a little farther. That'd be really cool.

Deborah 1:00:52
I already I already told my Oh, my in laws. And, um, and I've shared I've extended it to that we might have to get like a big, really big room. Because I think a lot of people yeah, we might actually have to, because I think a lot of people are extending it, you know, you. So well, we might actually have to get a bigger room for that. But

Scott Benner 1:01:10
I guess we'll see with it. Yeah, the most exciting thing that happened after that was that I got word back. That the the like the person who leads the endo department was very pleased with the conversation that I started. And I thought that was great, because I that's my goal is I hope that doctors talk about this more like this, you know,

Deborah 1:01:29
well, there is a doctor, part of the group, who apparently is, you know, he's he's been doing this a long time. And he's sort of old school. And when that family that you were talking about before, that their daughter's a one c down, like I think, like a five point something. He basically was like, tell me how you did it. And, you know, he, he told him about your podcast, and he showed him what he was doing. And because he sort of this, this particular doctor, he's not my doctor, but I just what I understand very nice man. But I think just more old school, but he's now extremely open and advocating for I actually had spoken to once and I was trying to explain to him that you know that we have too much coverage, because he was the one on call. And he's like, What do you mean, the numbers are fine. They're 7580 I'm like, Yeah, but they were double ours down. From what I what I understand after that family that both referring to before, you know, after he has a one, her daughter's a one c went down. So you know, to a normal range. That show me what you're doing. And and so now I understand he's, you know, very open to this and encouraging of it.

Scott Benner 1:02:44
And maybe we'll see him then like, yeah,

Deborah 1:02:48
yeah, exactly.

Unknown Speaker 1:02:49
I would absolutely love. Oh,

Deborah 1:02:51
thank you so much. Enjoy the rest of your day. And I'll see

Scott Benner 1:02:54
you soon. Yep. You You go be nostalgic at your alma mater, and I'll talk to you later.

Deborah 1:02:58
Yes, I will. Okay, thank you. Thank you for by.

Scott Benner 1:03:04
I believe that Deborah is the first person to record the podcast by wandering around a college campus. Very cool. I just I again, love this today. It's why I'm getting it right to you. I want to thank Dexcom on the pod and dancing for diabetes for supporting the podcast with their ads, please consider supporting them back with your patronage. dexcom.com Ford slash juice box my Omni pod.com Ford slash shoes box dancing. Number four diabetes.com are the links in your show notes at Juicebox podcast.com. One last thing. This Friday and other defining diabetes will come out at the end of it. Hmm, do I want to put it at the end of the defining No. Here's what I'm gonna do. Yes, I'm going to do that. I think I'm going to Yes, here's what I'm gonna do. On Friday, defining diabetes will come out again other short couple minute episodes, where Jenny Smith and I define a word or phrase that part of your life with type one. I'll also release a quick episode announcing the giveaway the 1 million download giveaway. That's what I do. so that you guys can go That makes sense. It does, right. Guys, sometimes I don't know what to do. Sometimes. I'm amazed the podcast is popular at all. Or that I have any luck running it. I think that's what I'm gonna do. I think I'm gonna release the time. Yeah, right. Yes. All right. This is what I'm gonna do for certain now. I've just talked myself into it. This Friday. Let me find out what the date is on Friday. Because you're getting this on the 30th of July. Friday's the second of August. It's the day before my anniversary. Oh, I should get an anniversary. Oh Jesus. All right, different problem for now. I'm learning a lot right now. For now Friday, August 2, you're going to get another episode of defining diabetes. And the announcement for the big giveaway, the 1 million downloads celebration, going to be 9 billion different ways to enter. They're all going to be incredibly easy. And one winner is going to get the whole thing. Everything it's not like hey, swag bag from Omni pod swag bag from Dexcom free myabetic bag. This this this like, you'll get this and you'll get no no winner gets the whole thing winner take all understand. Look for the announcement on Friday. The second I spent a few minutes talking about what getting to a million downloads has meant to me and what I think it means to the podcast itself and where it's going and we'll just talk about it for a little bit. might get a little weepy or sentimental it's hard to know what will happen exactly. Anyway, I hope you enjoyed this episode of the Juicebox Podcast. I'll see you on Friday for the announcement for another defining diabetes episode. Hope you guys are having a great summer if you live you know in atmosphere where it's summer. And for those of you listening in the other one I hope it's not too cold. How many hemispheres are there hemma sphere? Oh, we're getting into stuff I don't know. You guys want to look it up before I go. How many hemispheres? Are there we're not the first person to wonder this on Google. For any circle drawn around the Earth divides it into two equal halves called hemispheres. They there are generally considered to be four hemispheres but it's generally considered mean is their foreign. Alright, how can there be like okay, generally considered I don't enjoy that as an explanation anyway. Northern Southern Eastern and Western the equator or line of zero degrees. Wait, the equator or line of zero degrees latitude divides the earth into the northern and southern hemispheres. Alright. What about what about the other righteous now we're gonna look into this more. All right, the equator or line of zero degrees latitude divides the earth into the northern and southern hemispheres. The northern hemisphere contains North America, the northern part of South America, Europe, the northern two thirds of Africa and most of Asia. The southern hemisphere contains most of South America, one third of Africa, Australia, Antarctica and some Asian Island.

There are differences in the climates of that this is how we got to this of the northern and southern hemispheres because of the Earth's seasonal tilt toward and away from the sun. In the northern hemisphere, the warmer summer months are from June through September. This makes sense because it's so high right now and it's warm here in the southern hemisphere. Summer begins in December and ends in March. Alright, there's some stuff here about prime meridian. I do not want to get into that. This is going off the rails. I'll see you guys later.

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