contact us

Use the form on the right to contact us.

You can edit the text in this area, and change where the contact form on the right submits to, by entering edit mode using the modes on the bottom right.​

         

123 Street Avenue, City Town, 99999

(123) 555-6789

email@address.com

 

You can set your address, phone number, email and site description in the settings tab.
Link to read me page with more information.

#207 A Cool Bond

Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

#207 A Cool Bond

Scott Benner

Ayla and her mother both have type 1 diabetes.….

14 year old Ayla shares her story about living with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello and welcome to Episode 207 of the Juicebox Podcast. Today's episode is sponsored by real good foods on the pod Dexcom and dancing for diabetes. Before we get started, let me give you the particulars about our advertisers. To find out more about the Dexcom g six go to dexcom.com Ford slash juice box to try a free no obligation demo of the Omni pod tubeless insulin pump, you can go to Miami pod.com forward slash juice box. Would you like to save 10% on some real good food, go to real good foods calm and put in the offer code juice box at checkout. And don't forget to find out more about dancing for diabetes that's dancing the number four diabetes.com.

In this episode, my guest Ayla will be talking about her time with Type One Diabetes. She's an advocate. She's a child, 14 years old. Hello out speaking for people with diabetes. She's scuba diving, skiing,

Unknown Speaker 1:01
she does it all.

Scott Benner 1:02
Her mom even has type one. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And to always consult a physician. Before becoming bold with insulin. We're making any changes to your health care plan. And I don't know what you're doing on February 23 2019. But I will be at the type one nation event at the desert Willow Conference Center in Arizona. I'm all over this event. So if you want to come out and see me speak, I think I'm in two different breakout sessions and we're doing the Juicebox Podcast live. To find out more you're gonna go to jdrf.org forward slash Arizona forward slash events forward slash type. I'm just kidding. Go to Juicebox podcast.com. Scroll to the bottom, click on the Events tab. They'd like it very much if you could RSVP so don't wait. And I don't usually do this, but I just received an email from Adam in Maryland. Adam, I wanted to let you know I got your email. I'm touched man. I'm glad you're doing

Ayla 2:07
it. My name is a Ayla now.

Scott Benner 2:09
Okay, so a list. The first thing you should know is that when I saw your last name, I didn't know if it was pronounced k now. Or k No. And I thought, I hope it's no because then I'm going to name the episode now you can know. But now I can't do that. But that's okay. It's not your fault.

Unknown Speaker 2:29
We'll think of another episode title.

Unknown Speaker 2:31
Alright, you're 14? Yes. Wow.

Unknown Speaker 2:34
How long have you had type one?

Ayla 2:36
I've had type one for over five years. Okay,

Scott Benner 2:41
so you are nine? Yes. Are you pretty impressed with my math? Yeah. I am usually more able to impress children around your age with my math. So I'm assuming you're in like, algebra or something like that. Yeah, yeah. See, you're way better at math than I am. Just don't hold that over my head as we're talking for the next hour. Okay. All right. So you reached out and you wanted to be on the podcast? And I was like, that's cool. Let's do that. How did you find it?

Unknown Speaker 3:12
I found your podcast through Instagram, I'm pretty sure.

Scott Benner 3:17
Nice. Excellent, very nice. I'm very old. So I don't know how to use all the social media that well. And anytime I know that it's working. I'm amazed my children see my likes on things and they make fun of me. So that's for everyone listening, you need to like my stuff more, or my kids mock me in my own. So it's, it's if you want to stick up for me, that's one way to do it. What are you doing on Instagram? Are you looking for other people with type one? Are we just trolling around or what we don't.

Ayla 3:47
I was just scrolling around. I think I saw something on like in bags, Instagram or something like that. Right. And I've also heard about your podcast or beyond type one. And it just seemed like a really cool platform that you've been put to putting together.

Scott Benner 4:06
And so and so you checked it out and you didn't find me too old or boring? No. What do you like about the podcast?

Ayla 4:16
I just enjoy all the different perspectives and stories that you share. And

Unknown Speaker 4:25
interesting.

Scott Benner 4:26
ala you're 14, you just said different perspectives. I was like, I asked my kid what she likes about something she'd like, I don't know. It's fine. She wouldn't say anything else. So that's really impressive. Okay, so you've been listening for a while. Don't please. You're very welcome. Have you been listening for a while?

Unknown Speaker 4:43
Um, maybe a few months. Yeah. Cool.

Scott Benner 4:46
What made you want to come on?

Ayla 4:48
I spoke at the gala this last fall as their keynote speaker to talk about variscan Meadows camp and camp de los ninos, the summer camps. They put on in California. And I enjoy public speaking and sharing my story with other diabetics. So I thought this would be another cool way to share my story.

Scott Benner 5:13
Every week I see more likes on the Instagram and Facebook accounts of dancing for diabetes, but not enough. I know how many people listen to this podcast get out there. Dancing for diabetes.com this is gonna be like a role reversal because you're way more mature than I am. Alright, well, that's fine. You'll be the adult halen. I will. I will act like I'm 14. How's that sound?

Unknown Speaker 5:38
Okay.

Unknown Speaker 5:40
What led you to? I'm sorry? What event? Did you speak at?

Ayla 5:45
Um, do you is gala diabetes, youth families diabetes foundation are nice and warm.

Scott Benner 5:51
And so could you speak to a big group of people? Was it nerve racking? Is it worse doing this? Or was it worse doing that? Or do you just like both?

Ayla 5:59
I think it was a lot more nerve wracking to do the gala.

Scott Benner 6:02
Did you can see the people?

Ayla 6:04
Yeah, I'm from Colorado, and he flew out to San Francisco for it. So it was a pretty big deal. Wow.

Unknown Speaker 6:09
How did they choose you for that?

Ayla 6:12
I'm not sure they just chose one camper to be the keynote speaker to represent this program for the last eight years. And I got an email and we made it happen.

Scott Benner 6:23
That's really cool. Congratulations. That's it's really interesting and fun to be recognized like that. Did it surprise you When they reached out?

Unknown Speaker 6:32
Yeah, for sure.

Unknown Speaker 6:33
You knew you wanted to do it.

Ayla 6:35
Yeah, I had no idea that you if even had a gala, and that this is a thing to, you know, be a keynote speaker at my age. But once I wrote my speech and actually made it happen, it was

Scott Benner 6:51
really amazing. It was super cool. That's amazing that they pay for like your plane and your hotel and all that stuff. Yeah. That's excellent. You do anything cool. While you're in California?

Ayla 7:03
No, we just flew out for like two or three days.

Scott Benner 7:07
Should your mom go with it?

Unknown Speaker 7:09
My dad actually excellent was

Scott Benner 7:11
who's most involved with your diabetes care at home, visit your mom, your dad or everybody.

Ayla 7:17
Everybody in my mom's also type one diabetic. So we have a cool bond that way and so she really understands. But my dad's also really supportive. He gets it. And even my sister, I just I feel like I have a very tight support system.

Scott Benner 7:32
It's amazing. How do you know how old your mom was when she was diagnosed?

Ayla 7:35
She was 35 I'm pretty sure she got gestational with me and my sister and then it came back as this normal type one.

Scott Benner 7:44
Okay, so we won't ask how was your mom is now because that's not okay. But she was 35 and she got it. So she was pregnant with one of you and you're 14 so she is she about 5045 45 look at you smart. She's 50 say 45. You did a good job. Do you guys share like management styles? Or do you do it differently than she does it? Or do you do it together? How

Unknown Speaker 8:15
does that work?

Ayla 8:18
On the Omni pod and the dex calm and I used to be on Omni pod and the dex calm and now I'm on the Medtronic 670 g

Scott Benner 8:26
o using the 670 g How are you finding it? I just talked to somebody the other day that said they hated it. And I talked to somebody else who said they loved it. One person told me that it's working great for them. And the other person told me that everything it tells them to do they have to ignore that. How's it been working for you?

Ayla 8:42
I like it when it works. When

Scott Benner 8:46
my wife, my wife would say that about me ala. But you like it when it works? Well, when does it not work?

Ayla 8:57
I'm actually on my fourth 670 it has broken a few times for me. And so when it's in auto mode and it's working, my numbers are pretty steady. But when it doesn't work it you have to you get a lot of alarm. Oh, there

Scott Benner 9:15
goes any opportunity I had for Medtronic ads later, huh? No, I'm just kidding.

Ayla 9:22
It's still a great pump. So I I really enjoy it. I'm really good for

Scott Benner 9:27
it's good for sports. It keeps you in line for sports. Yeah, right. Do you think that one day when the AMI pod comes out with their closed loop? Do you think you'd go back?

Ayla 9:36
Probably. I liked the dexcom sensor a lot more than I like the Guardian sensor but the Guardian sensor is still really nice sensor. It's nice and flat and comfortable. But I like that you could trick the Dexcom to wearing it longer.

Scott Benner 9:55
You know what I've now decided that all of my product review should be with like kids your age, because you're incredibly honest, it's perfect. Nobody, I don't have to worry about whether or not you're like, I don't want to hurt anyone's feelings or anything like that. Well, that that's really I'm glad you found something that's working for you. I wish it was a little more stable for you. But I'm glad that you found something. Did you have to switch? Were you having trouble with your management? Like, was it bouncing around on you? Or is it just something you want to try?

Ayla 10:22
I wanted to try the Medtronic. I've been back and forth between Medtronic and Omni pod for the last several years. And learning about a closed loop system I got on the pathway program. So I got it right when it came out. And I really enjoyed it.

Scott Benner 10:39
Well, that's excellent. I I'm very excited for all of the different closed loops that are coming, you know, and it looks like everybody's got their hand in trying to make one. So I think in the next year or so, we're gonna probably be inundated with them, which will be great, because everybody will have a lot of choices. And, and you know, you'll see how things work and you know, how they don't work, and you'd be able to make a good decision for yourself. That's really cool. And very proactive of you. You do a lot, right. Like you're incredibly involved in, like, sort of, like activism around type one.

Ayla 11:12
Yeah, I'd say so. I think having my mom also be type one diabetic, it's just like a good outlet to like, be confident about it. And not cover it up. So I mean, I go to diabetic summer camp every summer. And I, last year did my first ever jdrf bike race with her and I'm going to do another one this summer. Just having like little things that make you able to be confident about it, I think is really important.

Scott Benner 11:48
No, I agree, I really do in any way you can find that as is important. Also, I think it's I think it is undervalued by how empowering it can be to just show other people that you have it to, you know, be like, Hey, this is my pump, or like I remember just a couple weeks ago, we were in a pool. And I looked over and I thought for a split second like that I just see like the edge of Ardennes. But like what happened. And then I realized later she had pulled her suit down a little bit because somebody asked to see her her next calm. And she just she was like, Yo here, and then she, you know, kind of pulled aside and showed them. And we were somewhere not somewhere we were at a softball tournament a couple of weeks ago. And even though Arden didn't get to see the person or actually talked to them, a woman, you know, a grown woman in her 40s walked by walking her dog. And she had an omni pod on an index card. And I looked at I watched art and look over at her and you could just see that it. I don't want to say it made her happy. But she liked looking and seeing somebody else like her like that, you know? So that's so you're going out and being really open about it so other kids can see you. Is that the idea?

Ayla 13:00
Yeah, I live in a really small town in Colorado, and in the last year, there's been three new diabetics. So

Scott Benner 13:07
you're starting to trend ala.

Unknown Speaker 13:09
I guess.

Scott Benner 13:10
One more you got a basketball team, you know? Yeah.

Ayla 13:14
I feel like I just need to help pave the way.

Scott Benner 13:17
That's really kind of you. And that's excellent. So, so we're gonna dig in as much as I feel like, I don't want to push you too hard because you're 14 but you also seem really mature. So I'm going to ask you some questions that might be a little tough, right? Knowing what it feels like for instance, to be low or to be high. When you see your mom going through that. How does it make you feel?

Unknown Speaker 13:40
Um,

Ayla 13:43
I know what it feels like. So I feel like we have that connection. So when I'm low, she knows how I'm feeling and when she is low. I know how she's feeling so we just started we help each other out.

Scott Benner 13:55
Yeah, do you feel? I'm not I'm not trying to put words in your mouth. Do you feel any way you feel but does it make you feel like overly compassionate towards her? Does it make you feel like scared for sad for or not? And I'm going to tell you why I'm asking you in a second. So just answer however is honest. Real good foods is real food. You'll feel good about eating low carb, high protein, real ingredients. Friday night, I had the cauliflower pizza. What is that? It's a pizza. But the crust is made out of cauliflower. I don't know how they do it. It's amazing. It tastes like pizza, which throws you off because I mean you wouldn't think you know, but anyway, this is a pepperoni pizza that I really enjoyed. Toss it in the oven. Bada bing bada boom, next thing you know, I'm pizza. Now I almost went with the three cheese pizza with the chicken crust almost. I was this close but I wanted the pepperoni but next time I'm going to do it because the three cheese right large three cheese pizza with the chicken crust. 50 grams of protein, eight grams of carbs per pizza. They're absolutely grain and gluten free, all natural chicken breast crust, you can buy a case of them, get eight pizzas in the case. And don't forget at checkout to use the offer code juice box to save 10% on your entire order. Real good foods is also offering free two day shipping. So take advantage. Real good foods has variety packs, they have snacks, poppers, enchiladas chicken crust pizza that we talked about, and the cauliflower crust pizza that I just had Friday. Go over, take a look. See what you think real good foods calm. Don't forget to use the coupon code juice box at checkout to save 10% and let's be honest to support the podcast. Okay, we're gonna get back to ala she's gonna answer my question about how she feels sing her mom live with type one.

Ayla 16:00
I think it's just normal. I mean, there's lots of highs and lows when you're diabetic. So having two people in the family go through that it's just sort of like a new normal, and we help each other out.

Scott Benner 16:11
So So do you have any idea why I asked you that?

Ayla 16:14
Not really,

Scott Benner 16:15
I want the people who are listening to hear your perspective, which is this is just normal. And so for all the people who don't have type one who watch a loved one with it. And when they see them get high or low, they they're often hit with an incredible amount of guilt, and sadness. And I really wanted them to hear from you that it wasn't necessary for them to feel that way. So that's why I asked you that kind of leading question, but at the same time, I expected you to answer the way you asked. I appreciate you being honest. You

Unknown Speaker 16:49
really are good at

Unknown Speaker 16:52
Yeah, be very welcome.

Scott Benner 16:53
So Colorado. Are you for your 14 am I like you're old enough for me to joke is your whole town just like weed dispensaries or what? What's going on out there?

Ayla 17:01
No, not really. I live in telluride. Small ski town.

Unknown Speaker 17:05
Very nice. So

Scott Benner 17:06
are you guys do like how does that work? I mean, do you? Are you skiing constantly? is a big part of your life or do you never skate?

Ayla 17:15
Yeah, it's a very big part of my life. I've been skiing since I learned how to walk. And that goes the same for a lot of kids who live here. I mean, if you're a local here, everyone knows how to ski. So it's,

Scott Benner 17:29
it's more of an activity. It's not It's not like a destination thing like, oh, we're gonna get in a plane and fly somewhere and go skiing. It's, it's just something you do when you have free time.

Ayla 17:38
Yeah, for us. I mean, I ever since I think starting in kindergarten, and we we do this thing called CPE. So instead of PE during the winter, we go and ski twice a week, Thursday and Friday afternoons, with our class and our teachers. So it's just like a fun environment, you get better at skiing. And then we have a lot of ski racers. So I mean, skiing is a very big part of Telluride, community and environment.

Scott Benner 18:07
I've spent most of my life avoiding sharks, and skis, because I don't want to, I don't know if there's an afterlife alien, but I don't want to have to tell somebody I was either eaten by something, or that I hit a tree. And that's why I'm dead. And so I just think it would sound silly if that was my story going out. But I never it once in my life stood on skis, and my wife has been trying for as long as I've known her, she's like, go skiing. Come on, we'll go and I was like, I don't want to hit a tree. And so I have a big baby, Kayla, and I told you this was gonna shake out where you were gonna be the adult in the conversation. So I think it's really cool that you so are you like, do you ski? Like, I don't know. Like, like, like, are you like to go really fast? Are you like, tepid about it? How do you what would you say your level of like ski expertises

Ayla 19:03
Yeah, I ski really fast. I can ski anything on the mountain. Um, I really enjoy hiking and then skiing with friends where you go and put your skis on your back and you just take it and your ski boots and then you ski down. So that's really fun. It's

Scott Benner 19:22
that it sounds amazing. Like you're describing something that I think to myself I wish I wanted to try that. But then it's also coupled with one of the worst thing in the world in my opinion. Cold so I don't know I'm such a baby like oh god it's cold and their tree standing still while you're going fast. The whole thing sounds very dangerous. But but not to you. That's really great. How would your um does your management change much when you're skiing or when you're not? Like, manage your diabetes during the this game.

Ayla 19:55
When I see it different than other sports. I do. Because you're only seeing for a short little time, and then you're sitting on chairlift. So when I'm hiking and then skiing, my blood sugar generally does drop. But when I'm just leisurely skiing, my blood sugar tends to be pretty steady. I mean, it's not a very like, it's not a sport that takes a ton of endurance, unless you're doing like a really hard run. Yeah. So when I'm just having fun, they tend to just stay pretty steady. I mean, I'll have a few drops in a few rises. But other than that, it's an easier sport to manage than soccer or backpacking with my class at school or whatever. other sports, I end up doing.

Scott Benner 20:55
Cool. So I mean, and plus you, I'm assuming it's exciting to ski down the hill, right? So there's a little bit of adrenaline that probably helps with your blood sugar a little bit to keep it up a little bit while your activity pulls it down a little bit. It's probably a great. Yeah.

Ayla 21:10
I mean, I think the cold for sure has an effect on it. But I mean, if it's a really cool day, I'll put a hand warmer in my pocket with my pump, so it doesn't freeze. But yeah, the cold has like a small effect on it, but it's nothing very drastic.

Scott Benner 21:31
Did you see By any chance, have you ever been on my blog recently, I just put up a post from Chris Freeman, the Olympic skier and he was talking about a triathlon, he just did. And he he, he showed how he prepped for it and put all this information about his blood sugar's and all this stuff is really cool. Because that's a an amazing amount of, you know, endurance. And, and he knows how to do it really well, because he was, he was a cross country skier in the Olympics.

Unknown Speaker 21:59
Well check that out. Yeah, it's pretty cool.

Scott Benner 22:02
Okay, so you sound like you're pretty, you're pretty knowledgeable about your own care. And so how long have you? Are you kind of on your own most days? Or do you co I almost said, co parent, but do you co parent your diabetes with your mama? Or are like, like, how does it work? Like you get up in the morning? Do you start making decisions right away? Or is she helping you? Or how does that go?

Ayla 22:28
I mean, I try to take as much responsibility, I can on myself for it. But my parents do play a big role in my diabetes. And I really appreciate that. So I go to a small experiential School, where we go on big trips with my Ark classmates, and focus on a certain topic. So for example, last spring, we went to Hawaii, and

Scott Benner 22:56
I'm just gonna tell you what I just told someone privately five minutes ago through a message, when you act quickly, as your blood sugar rises, you need to less insulin to stop a spike. When you use less insulin, the likelihood of a low later becomes lesser as well. So you stop the spike. And avoid a low later. That's how you keep your blood sugar in a range that you're looking for. But what you really want to know is how do I know when to do that. But when I do it with my daughter, I look at her Dexcom g six continuous glucose monitor, I check out that line. And when that line starts to bend up, I can kind of tell now this is this is a rise that's coming. And then I just bump and nudge, a little bit of insulin and get that up rise to level back out and come back. So now it took a tiny little bit of insulin to stop her blood sugar from going say over 120 instead of waiting till she's one at 202 50 or the next time I test to find out that we have a high blood sugar. And when that happens, you're putting on a whole bunch of insulin, which eventually will become unbalanced with the impact of the carbs you've eaten or your body function. Everything gets unbalanced again and you crash low, but none of that has to happen. And if you have the dexcom g six continuous glucose monitor, you can make decisions just like that. Your results may vary. These are my findings. But my oh my are they my findings you hear me talk about all the time Arden say one see between five two and six, two for five years. Why? On the pod Dexcom dexcom.com, forward slash juicebox to get started today. I grew up in an apartment complex across the street from my school. And I just walked back and forth to it over and over again day after day, year after year while somebody was like these are numbers, these are letters. And that was my whole schooling situation. And how did you? Where did you? This is very confusing to me. Hold on, we have to stop for a second. Why do you get to go to Hawaii? What is your school? Is it? Is it like? I don't even understand. I don't even have a question because I don't understand. But it's very normal to you. When you say it's an experiential school. What do you mean by that?

Ayla 25:19
What I mean is that you really take education out of the classroom. So your classes are really small. There's about six people in my grade. So super small, you get to really know everybody, and you take the education out of the classroom and do more hands on learning, and really just experience whatever you're learning in a completely different way.

Scott Benner 25:43
It's amazing. What did you learn in Hawaii besides Hawaii is beautiful.

Ayla 25:48
We were there during the eruption of Colombia, which is really exciting. So we focused on volcanoes and oceanography, marine biology, and geography.

Scott Benner 26:04
This wasn't just your your teacher wanted to go to Hawaii, right? Yeah. There's an old actor who you don't know probably named Michael. He's a British guy. Now. I can't remember his name. All right. Well, that part will come to me. He was Alford in some of the old Batman movies, which are even too old for you to know, probably. But I saw this interview with him once and somebody asked him how he picked his roles. And he said, in the cold months, I pick a movie that's filmed somewhere warm. And in the warm months, I pick a movie that's filmed somewhere cold. And I thought, Wow, that's a pretty basic concept, but it seems to be serving him pretty well. And so I just thought maybe your teacher was like, Hey, what are we gonna get off this mountain? Where should we go? Hawaii? Sounds good. That's really beautiful. Like that's like, what do you want to do? And you I hate to this is such a very lame question to ask a kid. But what do you have any idea what you want to do when you get older?

Unknown Speaker 27:00
I want to do something in the medical field.

Scott Benner 27:04
Do you think the type one has any impact on you wanting to do that?

Ayla 27:08
Yeah, for sure. Yeah.

Scott Benner 27:10
See, do you like helping other people? Or do you appreciate the feeling that people helping you so much that you want to do it for somebody else?

Ayla 27:21
Well, so in my school there in the last year, there's one other diabetic, you got diagnosed, and she's going to fourth grade. And so my dad works at my school. He's my art teacher. And her mom works at our school also, and she is going to be my history teacher. So I mean, it's a very small community. And since eg go on these experiential trips, and you're diabetic, my parents have always come with me. And in the long run, I appreciate it. But before the trips, it's, it's a different experience, because none of my friends or classmates, have a parent come with them. Okay. But in the long run, I'm grateful for my parents and that they do love me so much and support me that they do come on these trips. Even though I want that freedom. It's just because I'm growing up. But

Scott Benner 28:16
it's a difficult line to walk to because just this last school year, Arden's Arden's class, you know, school trip went to it was like it was a theme park around here, we would rollercoasters and that kind of thing. And, you know, I didn't want to be a chaperone one because I really just didn't want to ride all the way. It's somewhere on a bus with a bunch of kids making a lot of noise. And if you're a chaperone, you have to go on the bus. But still, I felt like I needed to go to help artists art and kind of have like a free and easy day without thinking about her diabetes too much. So I contacted the school and I was like, Okay, I'm going to come but I'm going to drive up on my own. And you know, I'm just gonna be there. So the minute I got there, I ended up chaperoning her group anyway. And because it was such a big group, that the person who was chaperoning, it was like, if we just split these kids in half, they'll be able to do more and go on rides quick, you know, more quickly. So I did that I had a great time. But the entire time I thought about like, how do I stay away from her? Like, how do I how can I be here without really being like, you know, upper button making her feel like I'm watching her all the time because I wasn't. And I didn't want her to feel that way. So I just sort of hung back as much as I could and, and interjected you know, in the times when it you know, it called for it. But about halfway through the day. One of our friends was like, you know, you should come on the rides with us. And I said, I know you guys are like no come so then like the last half of the day I went on rollercoasters with everybody. And so I waited for them to and it wasn't like I didn't look sad I had things to do. I was busy and things like that kept myself busy. I didn't stand around moping that I was bored. And I found that like when they were ready. They were happy to have somebody Along with them, they just didn't want to feel like it had to happen. I don't know if that makes any sense or not. But yeah,

Ayla 30:05
I did. Part of growing up with diabetes is that your parents are going to be looking out for you. So, like it or not, that's what they're gonna do, because they want to help you and make sure that you're in the best hands possible.

Scott Benner 30:22
And how did the trip go for you with your type on pretty easy?

Ayla 30:26
Yeah, I mean, it was a lot of snorkeling and swimming. So that was a little bit of a challenge, because you had to disconnect and everything. So that's why the Omni pod

Scott Benner 30:37
is where they would have been better,

Ayla 30:40
different story for that trip. But the pump works really well on the trip. And my dad came and it was actually a really great experience and time with him. And so I've really enjoyed after all, that he did come and I hope that one day I can go on a trip myself, and just get that experience that all my friends get. So maybe this year,

Scott Benner 31:06
what do you imagine that is soon? Yeah, I mean, where How? So listen here, we'll start with this. We're halfway through talking already. It's worth going. It's doing really great. And so you, you listen to the podcast, right? You've had diabetes for five years, but your mom's had diabetes for much longer. So I imagine that when you were diagnosed, your mom kind of already had a plan. Like she knew how to do things from from herself.

Ayla 31:29
Yeah, she, she was the one who diagnosed. She checked my blood sugar one night, and yeah.

Scott Benner 31:38
I guess my thought was, prior to the podcast, you weren't struggling with your like, how was your I shouldn't put words in your mouth. But how was your management? Like? Was your blood sugar reasonably stable? You're not scared of things that you're looking for more community when you found the podcast? Not not management ideas, right?

Ayla 31:57
No, I mean, it's just the highs, the lows that are about it. Highs, some lows, and some in between.

Scott Benner 32:06
So do you in the course of a day, you know, like, for instance, where does your CGM tell you your high and low?

Ayla 32:14
I put mine since I'm in auto mode on like a really tight one. So my low is that like 80, and my highs at 150.

Scott Benner 32:26
So and so when you hear when you go above 150? Do you say Oh, the pump will take care of it? Or do you ever have to intervene?

Ayla 32:35
Um, sometimes you can't correct because it's working for you. So if you if I look at my graph right now, I've been in range most of the day so far and last night, and it has all these little purple dots at the top of the graph saying where it's done the work for me,

Scott Benner 32:57
okay. So there's some times when you say I'm eating, and this is how much insulin I want to do you tell it like I have a, like I'm having a big meal or a small meal, or how does it work? When you're eating?

Ayla 33:08
When I'm eating, I still need to do the bullet things. So all it does is it gives me more insulin when I'm approaching high. So I don't get high. I mean, I still go to 300 every once in a while. Um, and then it slowly turns my influence and bazel off as I'm going low, so I don't get to that really low, low. Okay,

Scott Benner 33:32
did it confuse it when you took it off to go snorkeling?

Ayla 33:36
The sensor went out of range. So it just took a few minutes to get back in range, but one time snorkeling. I was probably a good half mile out at a race and started feeling low. And I had to swim myself back in because I didn't have my sensor on to see what I was. And I didn't have any snacks on me. So that was a good lesson to put up taco shop blocks or something and my bathing suit or something that I can just quickly eat if I am out there.

Scott Benner 34:05
Yeah. Was it scary? Did you ever feel panicky? Or just say, Oh, I gotta get back.

Ayla 34:12
It was a little scary at the end I had a friend swim in so it was it was scary for sure. Because you're just out there in the middle of the ocean and you're starting to feel low. And it's like that low panicky feeling. So

Scott Benner 34:26
plus, you don't want to be eaten by a shark eventually.

Unknown Speaker 34:29
Yeah,

Scott Benner 34:30
right. Or ski into a tree. It's well, that's amazing. It sounds like you handled it really well. And I think that that's a, you know, a good thing for people to hear is that, you know, especially when when, when parents see kids who are younger, who are more newly diagnosed every blood sugar that looks you know, a little low panics people and it doesn't need to most of the time, you know, and even when you're in a situation that's really panicky where you're getting really low You still need to hold yourself together like that's when you have to make good decisions and you know and not freak out because it's important not to freak out this point like I'm Arden is. I mean, you'd probably be mortified because you seem like a very active child. But Ardennes is a sleeping in the summer kind of person. She stays up really late. Okay, and she sleeps in the summer. So she's still asleep right now. And her blood sugar 72 it's nice and stable. And I can actually see it on my screen right now while we're talking. But I it's fine. If she was to go to 65 I wouldn't. Like I wouldn't go oh my god, I have to go ala have to because Arden's blood sugar, you know, I just would be like, Okay, well, we'll have to do something about that, you know, like, it's, it's, it's good to stay composed. And I don't think that there's any better training for staying composed and having some flippers on a half a mile from the shore, when you realize that you feel a little dizzy. What do you know what your blood sugar was? While you were out there? Did you ever figure it out? Or did you just come back in and do something about it?

Ayla 35:58
I came back in I ate a lot of food. And it was like one of those lows where I ate and then I checked because I felt so low. And after I had like a Clif Bar and a shop block I was I see something. So I was probably low 50s when I was out there or high 40s is that

Scott Benner 36:19
always that number? What is that number about when you feel like that to begin with? Usually?

Ayla 36:25
Yeah, I start feeling my lows around 65 sometimes, but other times I never I don't feel my lows at all. It just

Scott Benner 36:33
goes and it's it's normal I got the other night I was asleep. And Artem was sitting up, I'm assuming watching something on Netflix. And she appears to love that Netflix in a very unhealthy way. But But I got I got a text from her. And it just said I feel a little dizzy. And so you know, sure enough, she was and we just did some bazel adjustments and she ate a little bit. I think she drank something. And she went right back to I went right back to sleep and she went right back to what she was doing. It's it's really it's cool that you're that you're so calm and collected about that. So when you listen to the podcast, Is there ever things that are talked about that you think, Oh, I do that? Or do you ever think I've never heard of that before? What's your experience? Mainly, when you hear people talking about management, that's something popped up that's really been valuable to you.

Ayla 37:26
You only listen to a few of your podcasts. I'm excited to listen to more. But I think everyone's story is different and alike in the same way. And everyone has like a moral of their story. So I guess the moral of my story is like even when you are diabetic, you can still go out and do these epic adventures and you know, go snorkeling or go backpacking and do these crazy things that some people would be like, Oh, yeah, you're diabetic, there's no way you could do that. Like, there's a way to do everything, even if you're going to be a little high or a little low.

Scott Benner 38:00
So there we were. Last week, in the afternoon after school trying to get every last unit of insulin at Arden's pump, it was about to expire, we knew it had been on for the full three days. But there was like eight units left. And I said, Let's keep it on the whole way. Let's try to get everything out of it. So I rushed off to the post office to mail a couple of things. And while I'm out ardan text me, hey, my pod just ran out of insulin. So I said, Okay, change it. I'm on my way home, but just get started. I was, I don't know, five, seven minutes away from my house. And when I got home, I thought okay, let me go in and see if I can help her. And I came through the door and I said, Hey, I'm here. Let me let me give you a hand. She said, I'm done. It's finished already. Can you change your insulin pump in a couple of minutes? Is the process of changing your insulin pump so easy. you'd let a child do it while they were home by themselves. If you had an iPod, you would, because my goodness, is it easy to do? Self inserting no tubes, you don't have to prime all the way through a tube. It's just it's so simple. The person who made the Omni pod must have sat down and thought how do I make this a perfect experience for people living with Type One Diabetes, so that when they go skiing, or scuba diving, they don't have to take their insulin pump off. So that when it's time to change their pump, it doesn't take a half an hour, and isn't an incredible headache. But you don't have to believe me, you can try it for yourself. Go to my on the pod.com forward slash juice box there you can get a free no obligation demo of the Omni pod. And after you try it on and wear it for a while. If you decide you want one, just contact the back and let them know that gets the ball rolling. It's that easy. What's the key to doing those things you think? Is it preparation or is it is it like prepping before is it being ready during Do you think it's a mix of those two?

Ayla 39:56
I think it's all of it. I mean, you can be wondering One second and then all the sudden be dropping and be at five. So, I mean, just have being prepared and having something in your pocket and, you know, really understanding how you feel and your body and your symptoms for being high and low are really important but to go do any kind of adventure, you know, you're even if you're not diabetic, you're gonna run into like a little conflict

Scott Benner 40:26
course. Hey, so using the snorkeling experience as a as a jumping off point for this idea, when you were getting ready to snorkel out, in that, that time where you got low, and you had to come back before you left the shore, did you think I'm snorkeling away without any kind of sugar with me? Did it occur to you? Or did it? Were you just excited to go and you just went? Did you check your blood sugar before you went? Like what was the leading up to that?

Ayla 40:53
Yeah, so it was my first time struggling on that trip. And I was I think, like 210 beforehand, and I had been told by some people, and I mean, everybody's body is different. So you do whatever you have to do, but because you have to disconnect from the Medtronic, I was told that it's good to do like, I don't know, point three of a correction to say you don't spike. So me and my dad talked about that. And pretty sure that's what we did. And so I was like, yeah, to 10. I'm fine. And then probably 45 minutes in I just started to feel pretty low and

Scott Benner 41:34
start swimming back. That kicking is a lot of effort. And for anybody who's never snorkeled you just constantly kicking your legs. It's it you know, it pretty much doesn't stop how it was the story. I've only ever snorkeled in the Caribbean. How was it in Hawaii was pretty amazing.

Ayla 41:51
At that beach, we went to is called six nine beach. So we went to the Big Island. That reef was pretty much dead. So we were looking at dead coral and just what has been affecting that. And then we went to Captain Cook, which is another snorkeling area where you hike about a mile in. And that was very beautiful is like the most pristine Blue Water you've seen. And the coral was all different colors. And there were so many different colors, fish, and it was beautiful.

Unknown Speaker 42:29
So I never saw something like that.

Ayla 42:32
No, no, it's not like that. I've we went to a lot of dead reefs, just to like, see that global warming is affecting that and to make observations. And then when we went to this alive reef, it was like, This is what it actually looks like. Like this is gorgeous,

Scott Benner 42:53
so crazy, right? It's just it's just one of the more beautiful things that I've ever seen my excuse me, my son and I were snorkeling off of a small Bay and St. JOHN A number of years ago. And this, it got a little overcast. So, you know, under the water, it gets darker. And we're together and we're looking around and we look up and this giant mass is coming at us. So I all I can see as something that is round. And I'm not kidding you like 2025 feet across. And it did strike me for a second I thought oh, oh, well, at least we'll die together. You know, because it was this thing looked like this big solid thing coming at us and and there was nowhere to go. There was nothing to do. And as I got closer and closer and closer, it ended up being a school of puffer fish.

Unknown Speaker 43:43
Oh, wow.

Scott Benner 43:44
It is it remains one of the just most wonderful things I think I've ever seen with my own eyes. But really something else after the Panic of certain death went away. I was really able to appreciate after that. And as they came up, though, as they separated. And so you were sort of in and around it. And it was really spectacular. Like I'm really, I think it's really cool that you got to see that especially with school. Because Because my daughter saw Hershey Park this year, which does not sound as cool. If I'm being honest. Hmm, how long have you been you and your sister? Right? Yeah,

Unknown Speaker 44:24
told your sister

Ayla 44:27
is going to be a loving in a few weeks.

Scott Benner 44:29
Do you find her to be irritating? Or do you like her?

Unknown Speaker 44:32
I like her a lot.

Unknown Speaker 44:33
Nice Look

Scott Benner 44:34
at you. You guys are a really great family. It seems like either that or you're been taught very well how to lie about things and I don't think that's the case anyway. And so yeah,

Unknown Speaker 44:44
our family is very tight. Yeah, no kidding. It

Scott Benner 44:47
really comes across that way. So your dad's a teacher. Your mom is

Ayla 44:52
my mom is working in telluride to make all of pyrite carbon neutral.

Unknown Speaker 44:58
Of course she got it.

Unknown Speaker 45:00
He's also a life coach.

Scott Benner 45:03
No kidding, to make Telluride, carbon neutral. And so and you want to do something in the medical field, like when you get or do you want to be a doctor or a nurse, do you want to be some other kind of practitioner? Have you thought about that?

Unknown Speaker 45:17
Yeah, I want to be a surgeon. But we'll see how that goes.

Scott Benner 45:21
Well, that's First of all, that's really cool. And let me tell you something that I think you'll find helpful. My neighbor, literally next door to my house, when I moved in, when I my family, and I moved in here, my son was two. Arden wasn't born. And my neighbor had these sets of twins, two sets of twins, which I think might be unlucky. I'm not sure what how people think about that. But he had an older set. And the younger set, obviously, in the younger set, the board, there was a boy and a girl and the boy was, I don't know how old they must have been like 10 when I moved in, or something like that. And I saw him the other day. And he is on his way to, I think Penn down in Philadelphia. He's the orthopedic like, I don't know, like he got the one orthopedic surgery spot in Penn coming out of medical school. Wow. And so he was just some like, dopey kid running around in my backyard for a long time. And and now he's a surgeon. So it's very doable, you know? Yeah. Yeah. And it sounds like if anybody could figure out how it would be you. Me take a drink here, but you're very welcome. How do you think this is going so far, by the way? Oh, that's good. Yeah, I do, too. Is there anything that we haven't talked about that you're like? I wish we were talking about it?

Unknown Speaker 46:40
Um, no, I

Scott Benner 46:44
don't know. Right. I'm pretty good at this ale. I've been doing this for a while now. Thank you. So what kind of insulin do you use?

Unknown Speaker 46:51
I use no blog. No blog works. Okay

Scott Benner 46:53
for you.

Ayla 46:55
Yeah, you see the Piedra? Nice. No blog. I think they work the same. But

Scott Benner 46:59
you having a similar experience with them? Yeah, that's excellent. Arden has a much better experience with the pager than she'd have no blog. But it's good. It just it highlights that it's good to try things and try to figure out what works best for you. So let's see. You have a lot of kids in a small community that have type one. Sex,

Ayla 47:22
there are no there's me and then now to be senior announced to be ninth grader, and a now to be fourth grader.

Scott Benner 47:34
She right out in age pretty well.

Unknown Speaker 47:37
Yeah.

Ayla 47:40
Yeah. Me and fourth grader go to the same small school and then the other two go to the public school, which is like, five minutes away.

Scott Benner 47:47
Okay. You guys all know each other, though. Yes. Do you talk about diabetes? Or do you do you like when you get together is do not. And just get together just means Snapchat? What does it mean when you're smoking? Exactly.

Ayla 48:02
Um, me and the fourth grader. Her name is Belle. And I would say we are the closest because we go to the same school and she has been diabetic for a little over a year. She got diagnosed, like a week after my diagnosis, but four years later, and she now has an omni pod. She now goes to the summer camp I go to in California run by di F. So I think because we go to a such a small school, we're really looking out for each other and all the teachers are looking out for us. And it's just a really good community where you feel very welcome and safe. So I think I'm closest with her. I don't know the senior that well. And I know the other ninth grader. Sorta she doesn't go to my school. I did track with her for a year, like for like a season. But I'd say the other girl that goes to my school, I'm for sure closest.

Scott Benner 49:11
Do you guys talk about your diabetes ever?

Unknown Speaker 49:15
Um, yeah.

Scott Benner 49:19
Is it more of a like a, hey, what would you do about this as you're more of just sort of a support thing, like a private kind of this is how I feel.

Ayla 49:29
I'd say a little bit of both going to such a small school that there's now two diabetics and both of us have a parent who works at the school and it everyone really looks out for you like everyone is starting to know the symptoms of highs and low blood sugar. Everyone's just really looking out for you. So I mean, I'm always carrying an extra low snack in case she needs one or you know helping her mom out if her mom wants to go on a bike ride or something like that. So a really great small support system and community.

Scott Benner 50:12
I'm gonna ask you a question. I'm not sure if you're going to be comfortable answering or if you're even going to know the answer to it. But DS, do you ever get, like, down about it? Does it ever is it ever feel like too much having diabetes?

Ayla 50:28
Um, I mean, it has its moments where you've been high all day, and you're just frustrated and over it. But I mean, I think a lot of good has come out of diabetes, in the long run.

Scott Benner 50:41
Just sort of learning like, I, I think that too, I think there's a lot of value that comes out of struggle, you know, of any kind. And, and so you just do you feel just more prepared for things and less,

Ayla 50:53
yeah, I feel more confident about myself. And I know my body a lot better than a lot of my friends know, their bodies. And I know, like, my boundaries. And I know, I have really good willpower. And I just, I feel like diabetes has given me a lot of really good life lessons and things that I'll take with me for the rest of my life. So, but yeah, it has its moments where you're just tired and, you know, not really feeling like giving your time correction to come down and change your sight again. But I mean, that's what you have to do that that you have to do, do

Scott Benner 51:32
you when it when that when that happens? Do you commiserate with your mom or with a friend? Or do you just sort of handle it by yourself? Do you have a way that you like to cope?

Ayla 51:44
I talk to my friends. I'd say a lot of my closest friends are from diabetes camps. So everyone there really gets it and understands. So I talked to my friends and I talked to my mom, I'm really closest to both my mom and my dad so that I benefit like that really helpful.

Scott Benner 52:06
That's really, that's wonderful. I just, I'm thinking about Arden and the people she knows who have diabetes and how they, you know, interact. And then I realized that I don't I'm not always with her when they're talking. I don't know what they're always talking about. So it's just interesting to hear it from your perspective, you know? Yeah, really, as well. Okay, so future surgeon ala, who's been to Hawaii and like 9000 other places who skis and snorkels and goes and speaks at events. Are you? I mean, is there something you haven't done that you want to do?

Unknown Speaker 52:49
Um,

Ayla 52:52
I mean, I play a lot of soccer. That's a big part of my life.

Scott Benner 52:56
Isn't it hard to play soccer on the side of a hill? Oh,

Unknown Speaker 53:02
joking. You understand? I've

Scott Benner 53:04
never been where you live. So in my mind, you're just in ski chalets on one like big pointy mountain. I'm assuming it's not exactly like that, though. You like soccer, or you like you play travel or for your, I guess you can't play for your school. There's like six kids in your grade.

Ayla 53:20
But I will play for the public school this next year. So for high school, and then I play on a club team that travels and I'm about to try out for ODP again, which is the Olympic development program.

Unknown Speaker 53:35
And see how that goes.

Scott Benner 53:37
I'm sure I'm sure it'll go great. And it's really cool that you're trying so what do I know very little about soccer, other than it really seems boring to me. And I'm sure it's not for people who love it. But what position do you play? Do you are you on defense or offense? Do you make the ball not go into the net? Which Judo?

Ayla 53:54
I play forward? So I'm up there.

Unknown Speaker 53:56
Got a lot of running. Yeah.

Unknown Speaker 54:01
Geez,

Scott Benner 54:02
I feel like if I asked you anything, you'd have a good answer to it that I'd be surprised by you ever been on the Space Shuttle? Yeah, see? See, I found something you haven't been able. That's fine.

Unknown Speaker 54:13
Not yet.

Scott Benner 54:17
Oh my gosh. I don't often. I mean, you don't often find kids and I don't mean to just talk about you like you're like a kid but you're not but I'm just saying you don't often find people your age who are so clear minded when they're speaking. It's and and so supported in their confidence, but yet the confidence seems deserved. Do you know what I mean? Like you're not just running around like I can do anything I want. You actually are doing things. There's a big difference from believing in yourself and not trying and trying and that's why you believe in yourself. It's I didn't expect like when I Got your email? I did say I remember I said to my wife, I'm like, I'm setting up an interview with a girl who's 14 was type one. I was like, but when she's writing, she seems like she's older in you know, and then I was like, I wonder if our moms helping her with this or what this but you are. You're exactly how you seem in your emails and very impressive. You know, you're very welcome. But I'm how to ask this. Is your sister have that same level? Like, is this a family trait? Or do you really think that IBS helped you put you in the situation? I don't want to paint your sister like she's just fumbling around and not capable? Why don't think that I'm just saying, Is this a learned behavior? Or is it nature nurture? Like a little bit of both? What do you think it is? Would you like to assist dancing with diabetes in their mission to elevate awareness about the realities of living with type one? And would you like to help them raise funds to assist in finding a cure, go to dancing for diabetes.com? That's dancing, the number four diabetes.com. And please check them out on Instagram, and Facebook.

Ayla 56:08
I think it's both diabetes has really helped me become a lot more mature. But my sister is also very mature. She's very responsible. She's extremely smart. Like, she's just really like, in the moment, I guess. Yeah. Which I really appreciate, like, she's a very good sister. And she really tries to understand as much as you can about the diabetes, and is anything like she puts an all or none effort into anything she does, which is really inspiring. So

Scott Benner 56:42
yeah. Hey, Evan, quick question for you. Somebody just asked me the other day, and it's not something I ever heard of, but they said they had problems managing their blood sugar at higher elevations you would know about this. Does that have any effect on your blood sugar?

Ayla 56:53
Yeah. So I mean, living up here, I don't really know any better, but going down in elevation. I'm, like, I go to summer camp in California. So that's practically sea level, and I'm up at at 715. So I'm up there for sure in elevation. But I mean, this last year at camp, my blood sugar's were pretty much the same as they were at home. But I do think that I mean, back up into elevation. It does have like, a small effect. I think I go a little higher for like a day or two.

Scott Benner 57:33
And then it regulates out again, so you don't act actually have to make like adjustments to basal rates or something like that. You just need a little more insulin when you first get back up to the elevation.

Ayla 57:45
Yeah, I mean, I know. I've heard people say, Oh, yeah, I need to change all my bases. Like I need a lot more insulin up at elevation. Yeah, living here my entire life. I thought it's pretty common. Okay. Yeah. The way I've been living with diabetes the entire time, so I don't really know any better. It's cool.

Scott Benner 58:07
All right. Um, okay, so we're sort of coming up to the end here. Is there I feel we I usually ask people if like, they want to share their Instagram or something like that, but your 14 so I don't even know if that's okay. Or not. But but it's um, but is there? Is there anything you have coming up that you can tell me about? Like, are you gonna do any more speaking or?

Ayla 58:29
I hope so. I don't have anything planned. But I would love to.

Scott Benner 58:35
Well, people will hear this maybe someone will find you through this. That would be nice. Yeah. I get some speaking through this. So maybe you should tell. Yeah, I make them pay me though. A lot. Do you make them pay you when you go somewhere?

Ayla 58:49
I didn't for this one because they paid the fees for like our air fare and our hotel. That was I think that was what they were going to pay me but instead they just put in my travel travel.

Scott Benner 59:05
I don't actually ask for very much. I'm I just like to I just like it not to cost me anything. You know, if I if I go speak somewhere, I it's usually for an organization that's you know, nonprofit, or charitable and you don't want to ask them for you know, a bunch of money. They're trying to make money and I'm always happy to go out but I always just say look, I can't cost me anything. I don't want to come home having said wow, this weekend cost me $500 like I don't you know, so I just asked for enough just to make sure that I get back and forth. Okay. I just really like you know, to commiserate with you for a second and about it. I really just, I enjoy meeting new people. And you know, doing my best to try to explain, you know what it is we talked about here on the podcast in real life and just give them an opportunity to see like you said a different perspective and, and see if it's something that strikes them as valuable for them. And hopefully leave them with a little more hope and you know, in tools, then then maybe they showed up with that day. So that's what I like, what did you talk about in those last couple minutes? Or tell me what did you talk about in your speech?

Ayla 1:00:13
I talked about how diabetes camp has really helped me grow as diabetic, and that if you never sent in your child's diabetes camp, like how amazing it is, and how it really does help on so many different levels, and then I talked about soccer, and the new 670 pump, which actually broke the day of the gala, which was pretty inconvenient. But

Scott Benner 1:00:43
Medtronic, if you want to buy some ads, get in touch with me now we can tell more stories about how your pump breaks. So funny. They actually broke while you were there while you were telling people about it.

Unknown Speaker 1:00:54
It broke like a few hours right before the gala.

Unknown Speaker 1:00:58
What did you do?

Ayla 1:01:01
We tried to, we didn't have any lantis with us, which is sort of our problem. But I'd had the pump for like six weeks. So we're like, yeah, there's no way it's gonna break like it's brand new. It's a great pump. Yeah. And all of a sudden, was just sending us an error that we called Medtronic. They're like, yeah, it's dead.

Scott Benner 1:01:23
So you're not far from home or anything? Are you? No, no, I'm fine. Don't worry. What did you bomb insulin off of? There must have been plenty of diabetics there. Right.

Ayla 1:01:32
Yeah. So luckily, I was speaking at a diabetes fundraiser, which was really helpful. So I known quite a few people there, through camp as counselors and as friends. So one of the counselors, she just gave me some lantis. And then they 24 hour shifts a new pump to our hotel. Wow,

Scott Benner 1:01:51
that's very cool. Well, it sounds like they took care of it very quickly.

Ayla 1:01:55
That's, I mean, really good company. Like they're really helpful.

Scott Benner 1:01:58
I absolutely believe that I I listen, technology is what it is, it stops working sometimes. And you have to be that's part of the game, you know, you mean, if you're going to use a pump user glucose monitor, you're gonna have to know that sometimes, it's not going to work exactly the way you want it to or the way even that it should. And you have to that's part of having diabetes with technologies, you have to learn how to exactly exist with it. You know what I mean? Like, it's not, nothing's perfect. I have looking around my house, there are plenty of electrical things in my house, and you know, and mechanical things, and I don't think one of them has worked perfectly the entire time I've had him it's just not the nature of, you know, what technology is at this point. And at this, you know, at this juncture in history, it's getting better, but it's still, it's still is what it is, you know, so I think it sounds like you handled it really well. Actually.

Unknown Speaker 1:02:49
Good for you. Yeah,

Unknown Speaker 1:02:50
it worked out. Well. Absolutely. As did

Scott Benner 1:02:53
this episode, ala I think now, but we didn't ever hit on something that we could really call the episode. Maybe we did. I remember, there was a moment where I thought that could be the title. But now it's not coming back to me. Oh, you know what it is? This is a nice way to end.

Unknown Speaker 1:03:07
I have to find it.

Scott Benner 1:03:09
Hold on one second. I'm gonna pull up your emails. Right. And I want people to know that they that when ala has a sign off on our email that says with happiness, which is just really wonderful. Did you come up with that by yourself? Yeah, I

Unknown Speaker 1:03:29
think so.

Scott Benner 1:03:30
How long has it been like that? Because you make me happy when you email me. I'm like, Oh, thank you. If somebody sent me happiness, and and I feel it when I get it like I like that's really like it would I just wouldn't have heard me to do that. But it did to you. And and that's really, I think indicative of you, as far as I can tell in this entire conversation. Like you just have a really great attitude. Now you're it's very impressive, and and I appreciate you coming on and sharing with everybody.

Unknown Speaker 1:04:00
Thank you for having me.

Unknown Speaker 1:04:01
Absolutely.

Scott Benner 1:04:01
What do you do for the rest of the day? ski on something?

Ayla 1:04:05
No, nice and sunny. I don't know. I think I might go into town and friends. I'm not really sure how many cool

Scott Benner 1:04:15
you are fantastic. I wish you were more I'm not gonna I'm just gonna say this right now. I would trade you for art. What do you think of that? sight unseen? I'd make the swap right now. I'm not saying Arden's bad. I'm just saying you're pretty good. And I could use a I could use more happiness. I'm gonna make art and say things like this to me now. Can I make her daughter? Do you think she has to do it on her own?

Unknown Speaker 1:04:36
I don't know.

Scott Benner 1:04:38
It was like, maybe you could foreshadow. I don't think it would be the same thing. If I said, Hey, when you see me address me with happiness, because then I would always know she was just doing it because I told her All right, hey, listen, real quick, favorite television show.

Ayla 1:04:57
Probably Grey's Anatomy.

Scott Benner 1:05:00
Arden loves Grey's Anatomy. watched it multiple multiple times. Yeah, yeah. So Has she she spent a whole summer watching it over and over it. What is it about Grey's Anatomy? Do you think?

Ayla 1:05:13
Oh, no, just the adrenaline rush. I, I like that.

Scott Benner 1:05:16
You like all that moving? Yeah. I referenced the other day when I was interviewing with somebody which people will hear months from now. But I, I always tease my wife. I'm like, the reason it is my favorite show on television. But I always say it with just enough sarcasm that my wife has absolutely no idea if I actually like it, or if I'm watching it, because she's watching it. And I never wanted to know, I always wanted to wonder if I really liked it or not. I don't know why it's my. It's my Grey's Anatomy game that I play. I'm very bad with the character names. So when I described them, I was like, you know, the one in the plane crash that, you know, died, and then are just like this one. I'm like, that sounds right. But I don't really know. Grey's Anatomy. Interesting. I can't believe you said that. Arden's gonna be thrilled that you said that when I told you like One Tree Hill by any chance. Never heard of it. All right. Good. Stay away from that it ruined the whole week of my wife's life. When Arden went to go to a One Tree Hill convention, they actually went I have had a very good time talking to you. I'm glad that you enjoyed it as well. I gonna say goodbye.

Ayla 1:06:27
Thank you for having me.

Scott Benner 1:06:29
How delightful was ala. Thanks so much for coming on the show and telling us all about your life and school that lets you go to Hawaii, which still baffles my mind today. Thank you also to real good foods, dancing for diabetes Dexcom. And on the pod for sponsoring this show, please go to my omnipod.com forward slash juice box dexcom.com forward slash juice box dancing the number for diabetes. Or use the offer code juice box at real good foods calm to save 10% on your entire order. And don't forget if you're in the Arizona area and you want to come to the type one nation event that I'll be speaking at on February 23. Go to Juicebox podcast.com. Scroll to the bottom of the page, click on events and there's a link there for you to RSVP. See you next week.


Please support the sponsors

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate