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#153 Beyond DKA Awareness

Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

#153 Beyond DKA Awareness

Scott Benner

Sarah Lucas from Beyond Type 1 tells us about their expansive DKA (diabetic ketoacidosis) awareness campaign. ....

You can also listen to the Juicebox Podcast on: Apple Podcasts/iOS - Spotify - google play/android - iheart radio -  or your favorite podcast app.

Learn more about the DKA Campaign

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:05
Today on episode 153 of the Juicebox Podcast, I'm speaking with Sarah Lucas, founder of beyond type one, Sarah's on the show today to tell us all about their DK awareness campaign, you are going to be fascinated by how quickly they are spreading across the country and the world, trying to help doctors and patients understand the signs and symptoms of Type One Diabetes before they've been diagnosed. Awareness like this saves lives actually saves lives. The campaign is spreading quickly, of course, because of beyond type one, but also because of their volunteers and the people on the ground in certain states and areas that are willing to put their time and effort into reaching out to doctors offices, Sarah is going to explain the whole thing. If you just listen to find out more about it cool. And if you think you might want to help, that's even better. Nothing here on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before being bold with insulin. And you know what, no ads for this one, because the second one in a week, you don't deserve to have to sit through ads twice. I got your back. Having said that next comment on the pod, fantastic sponsors of the podcast. There are links in your show notes. If you want to find out more. Here comes Sarah Lucas from beyond type one.org.

Sarah Lucas 1:17
So beyond type one was founded in July of 2015. Because my one of four co founders and we came together because we really wanted to create the an organization for people to help them live well today for you know, we wanted to inspire people, we wanted to provide education, and hope. And obviously the pastor the carer is an important component of that as well. But we really felt like there was an opportunity to create, you know, a movement, unify a community globally, which has been very successful, fortunately, and accomplishing thanks to social media and technology. So we've currently got 1.7 million people around the world that we've gathered together in the beyond type one community. And we are really excited every day to continue to build and grow that.

Scott Benner 2:11
That's an amazing number in such a short amount of time, actually. So your your feeling was that those people were out there. They just weren't, I don't want to say harness but they weren't together is that

Sarah Lucas 2:25
when we think about the type one space, historically, it's it's been fractured. There are a lot of, you know, efforts that are there's a lot of parallel efforts. There's a lot of there's a lot of anger in the community, there's a lot of misinformation. And so we thought, could we come in and be a unifying force, bring people together, and help provide them with both what they need to live well with today? But also what what is the world at large need to know about type one, because people still don't understand this disease. It's been around an incredibly long, you know, time and people still don't understand the disease at its core. And for us, that's why we feel like we aren't further along on the path, you know, to a cure is that people still don't understand the disease, we're still dealing with the jokes, the misinformation, the constant comments about Did you eat too much sugar as a kid, you just take your insulin and you're fine. So we wanted to come in and help really bust some of those myths, and then provide the type one community with just solid information solid community and really then empower them to go out and live beyond their diagnosis to live their best life.

Scott Benner 3:36
So then my question is that once you did that, because that I agree with you and and but I'm wondering once you did that, and then you saw all of the different issues that need addressing did it feel like it was fragmenting again, is it hard to hold it together?

Sarah Lucas 3:54
There's a lot of work to do is what we really see every day. And our goal at the end of the day, we we are a very small team here in Silicon Valley and a borrowed office, we've got a few remote employees around the world and, you know, a leadership council that is also around the world and very global and we work together remotely and we at the end of the day are just trying to make things a little better every day because that's that's all we can do. There are so many issues, Scott just between the the misinformation between you know, the people dying as DK at diagnosis, people not having access to insulin, people not being able to afford their, their insulin or their supplies. You know, there's just a lot to do. And some days if we think about it too much, it's it's pretty debilitating. So our, you know, the way that we operate here is we tackle things one at a time, you know, that we can we try to create scalable solutions and we're trying to have an impact. Little bit every day, we then turn around and look at who are the organizations we can partner with? Who are what are the movements and the issues that we can get behind and put our social media weight behind? And how can we help amplify efforts. So while this type one space is very fragmented, and fractured, still, we do feel like we've been able to make some inroads and coming to, you know, bringing people together, unifying efforts, sort of matchmaking, if you will, between organizations, helping people work together a little more, you know, just making the space a little more cohesive, but there is definitely much much work to do.

Scott Benner 5:38
It's, I know that I'm only trying to accomplish like, sort of this one thing. And, you know, because you're talking a lot about a lot of like, the initial stuff about diabetes, and I had to focus on I felt like I needed to focus on one thing. So I thought, I just want people to understand, basically insulin, like how to use it to make your days better, you know, like to make better outcomes for yourself in the short term and the long term. And even that is, it's not easy, like it just it's a consistent effort, you know, you reach a, you reach a big group of people, and then, you know, three times as many people are diagnosed the next month, and then, you know, how do you reach them? Again, again, social media platforms keep changing, what's popular, how they use it? And you're just like, Well, can everybody stand still for a second? You know, like,

Sarah Lucas 6:28
right? Well, I think, you know, the, the beauty of beyond type one is, is that, you know, we are a small lean team, like we've talked about, but we have really big tools, we have, you know, 12 digital platforms, and we are able to reach people in different ways across all of them. We are also have three of those are for the Spanish speaking community. So we're able to serve that population as well. And we know that we have these tools, and we use them in different ways. And, and, for example, our app, which is, you know, just beyond type one is the app that we felt. And we use that really to get when we want to finger, you know, we want to finger on the pulse. We want to take the temperature of the community, we we pop questions into the app, and we immediately get hundreds and hundreds of responses. And so we're able to, for example, we asked a question last week, were you initially mis diagnosed with Type two, and 23% of the people who responded were initially misdiagnosed with type two. So we were able to get that information really quickly. And then that helps us, you know, inform some of the strategies is that we are listening to the community, across all forms of social we are understanding their needs, their needs, the needs are very different. Whether if you're a patient, a parent, if you're diagnosed as an adult, if you're diagnosed in a country where you have limited resources, and access, you know, these, these are all different problems. And so we're listening to them, we're trying to understand them, and we're really engaging with the community. And that informs almost, you know, 100% of our strategy is comes from listening to the community. So it while it is overwhelming, I think what we are really able to see is the power of social media technology. And so when we have, you know, either a question, or we have an issue we want to get out there in front of people, we're able to do it just in a massive way really, really quickly. And so that that is the part that I find exciting, we're able to, in this new world, we're able to get a message out there within seconds. versus if you think about sort of the more traditional models, you might tell the employees, they might tell your community, they might share that sort of via in person or in a newsletter, I mean, we really have the ability to communicate instantly with the type one community all over the world. And it's, it's pretty exciting. And, you know, this disease is one of the few that you self managed for life. And so to connect to this community, again, it brings such power to them. And the one thing we hear every day all day long is I know, I'm not alone now. So many people were isolated before. And now they actually have community whether it's, you know, virtual or in person. And so that that part is what gives me hope is that we actually see progress on a daily basis. And the problems are big, but the community is big. Yeah,

Scott Benner 9:22
I get that. I get that response a lot too. Like I didn't know anybody who had type one, but now I feel like I'm listening to someone every week that does and huge part of

Unknown Speaker 9:31
action is powerful. Yeah,

Scott Benner 9:32
for sure. So okay, so one of the things that you've identified along the way that needs fixing, is the fact that people go into a doctor's office, sometimes a lot of times kids but I'm assuming adults as well. And they have flu like symptoms, which is really they have type one diabetes, and they get treated for everything but nobody tests them. And that leads to the aka and and how do we stop that like how do you get Doctors to say, I mean, it can't be expensive, right? Like, what's it cost to test somebody in offices here they have type one diabetes?

Sarah Lucas 10:06
Well, I think it's, it doesn't cost a lot. Point, it's, you know, we all know a test strip, you know, everyone says a test strips $1 in the US, or you know, the urine, the urine tests or even, you know, a quarter, whatever they are, if you buy them over the counter, the issue for us is that in the US 40, over 40%, so about 41% of people are actually in DK at diagnosis. And so what that means is, their early symptoms have been missed those early warning signs, we're all very familiar with the frequent urination, the headaches, the blurry vision, the the, you know, in some cases, that heavy diaper for babies, those those early symptoms, the weight loss, they have been missed entirely, or excused away. And we this is very common. And so what happens is, as your you progress towards, you know, your beta cells really shutting down and the lack of insulin, you know, you build up the ketones in your system. And so this does result, as you're saying it's very flu like symptoms, nausea, vomiting, loss of consciousness. So we look at this problem, we say, how is it that 41% of people are in this state when they are diagnosed. And we know that in other countries in the Nordic countries, that number is very low, it's under 10%. We also know in some of the developing countries, it's in the 8080, to 90%. So we have beyond type one, look at this, and we say this is this is a marketing problem, this is a straight up PR, you know, we could solve this with a with a really solid and thoughtful PR campaign. And we can raise awareness, and just get those symptoms tucked away into the minds of parents and school nurses and physicians and their staff. And so when people are coming in, as you say, with flu, like symptoms, especially this season has been horrific with the flu, that they are at least ruling type one out, you very well may have the flu, but you might have something as we say that could kill you. And we know that decay can be fatal. And we know that it also costs millions and millions of dollars to treat people who are in decay, you know, and that there is a potential for brain and organ failure, brain damage, organ failure and loss of life. And so that to us is, it's kind of insane, we should be able to solve this problem. It's a straight up awareness problem. And so that was the idea. This was very much inspired by Casey's death, you know, in Utah, and I came into the office one day and I there's been this image of her brother's carrying her little casket and and that was on the front page of the paper in Utah. And I came into the office and said, this is, this is crazy what this family has been through, she was sent home from the doctor three times. And so we look at that was sort of the initial inspiration. And so we thought, what is the mechanism for a really widespread campaign? How can we what how can we deliver this campaign to people all over the country and all over the world. And so in the US, the the way that we've chosen to get started, is the partnership with the American Academy of Pediatrics. And so that was that was we designed a campaign and then we were lucky enough to be introduced to the executive director in Pennsylvania at the American Academy of Pediatrics through to really wonderful parent advocates, Michelle Berman, and Debbie Healy. And we essentially walked in and with this well designed campaign and said, Let's work together on this, if you will endorse it, and provide the information for your, you know, the members of your Academy, all of the pediatricians in Pennsylvania, will pay for the campaign. And so we worked with them for a few months to sort of refine it to something that everyone felt great about. And then in the state of Pennsylvania, that rolled out in October of 2016. And it's a print and a digital campaign. So the doctor's offices receive a physical, they receive a notification from the American Academy of Pediatrics via their newsletter that this campaign is coming. We then provide a print campaign that is sent to them. And it's, you know, like all things beyond type one, it looks great, and it's really well designed by Sir Johnson, our creative director, and it is co branded with the American Academy of Pediatrics in that state. And then they receive a print campaign and then we follow that up with a custom portal that we built for them on our website that includes additional print materials they can download in 18 languages. Victor Garber from our leadership council, who you know, well Scott created video and audio psats for the office. To use, and then they have permanent access to that campaign. And so that was how it started. In

Unknown Speaker 15:07
this cold and flu season, just an extra reminder, type one diabetes can be like a wolf in sheep's clothing, it can hide behind symptoms that mimic the stomach flu or virus is left untreated, type one diabetes can lead to significant complications, including death. Ask your doctor about the warning signs, and how to screen for type one diabetes.

Scott Benner 15:38
having that connection to the to the pediatric society that that just makes them take it seriously when it's coming through the door. If you just show up, and you're sending emails and calling and saying, Hey, we have this thing, you're never really gonna get that kind of traction. But how what was the initial like it? Because you basically you spirit, you started it out in Pennsylvania? Would you have called a success in Pennsylvania? Did you see people really the doctors offices paying attention using the materials hitting your portal? That kind of stuff?

Sarah Lucas 16:07
Absolutely. I mean, we do have survey data that shows the, the teams that the pediatricians offices are asked to provide, you know, to answer a survey and provide us back the data so that we understand how this campaign has impacted their office both in terms of informing the staff and making them more aware of type one. And then also in terms of informing their patience. And across the board, we see an increase in awareness and in the level of understanding of type one diabetes, you know, when we receive this data back, and so it's in varying degrees, obviously, that there's a really large increase in the awareness among patients that's being self reported by the the physician's offices. And so we know that this campaign is impactful. There have been other campaigns and other countries Italy has a study that that does show that this awareness campaigns do impact this moment of diagnosis. And so our thought is, can we catch people early enough? Can we get them started, you know, on insulin and sort of on their new life with type one, as opposed to them starting off in DK a most likely being urbact in the ICU? And so can we start? Can we just sort of take this process back to we can't keep people from being diagnosed with type one, but can we keep them from dying? Absolutely. We know that we can. And so we see it every day, the the results that we see from both patients and from the physicians is very, very positive. So you're right, having the American Academy of Pediatrics endorsed this campaign was really part of that secret sauce, because it does people up on the envelope, right when they see it, it's got a very clever, you know, endorsement right on the front of the envelope. It's beautifully branded. And so it's an interesting phenomena that people want to open. And then we've got all the materials available for them. And then in every state that we have rolled out this campaign, we have actually, we have stories from the families in that state. We have, you know, the letter is signed in every state by the leading endocrinologist, and the leading thought leaders in in sort of the diabetes space in every state. So it's really a very localized campaign that has been rolled out so far in 18 states in the US, it's reached about 22,000 pediatrician offices. They see about 90 million patients a year, those those 22,000 offices. And we're continuing to roll it out. But it but it is that there's a process, and it's a state by state. And so the end of Pennsylvania speaks to the end, you know, in the next state over and suddenly we've got, you know, an introduction there. And so it's really been this wonderful campaign that that has taken, you know, it's a we're about 15 months in, but it's definitely rolling at a pretty terrific pace. And that's because we're able to utilize volunteers on the ground, who are actually helping to see this through their their local, their state chapter. And so, you know, we pay for the campaign, they're working on the access piece of it. And this is just sort of phase one for us. The pediatricians were a natural place to start.

Scott Benner 19:25
Yeah, it's interesting. Well, two things. First of all, I think of diagnosis already such a trauma to begin with, to add the extra trauma of the DK on top of it, it really could if you think about it, it really could color your first month's with diabetes. You know, like there's a difference between rolling into the office, hearing something horrible, like you have type one but then going home, and being able to process it as a clear headed person who's not in the ER as a parent who's not thinking oh my gosh, what do I do? How do I ignore this, all that stuff that comes with it, all that guilt and that pressure. So just alleviated? That for anybody is fantastic. You know what I mean? But But the second thing you said that really sticks with me is, is that idea of just, you know, having people helping is how it spreads. Because like I said to you, before we started recording, somebody who had been on this podcast before, reached out to me and said, Hey, you should really talk about this, this campaign that beyond type one's doing. And then as you're talking, I realized, I get notes all the time, from doctors offices, that listen to the podcast. And so it's not out of the, it's not out of the realm of possibility, it's someone in an endo office, or in a in a pediatrician office who has a connection in the state, you're not already in, like it couldn't start a fire there. And I guess that really just is how it has to happen.

Sarah Lucas 20:44
It's, you know, for us, it's been actually a really wonderful progression, it's been a way for us to roll out this campaign that it looks the same in every state, except on the very bottom is where we do the cobranding. So that this asset is the same, it's all the warning signs of type one, it's, it's, you know, ask your physician, if this could be type one, but it's, it is the same asset across every state. And that's, that's by design. We want people to recognize the signs and symptoms much in the way that you see that poster at every swimming pool in the United States that shows you how to, you know, give CPR, and so we all can picture that in our head, because it's the same consistent asset. And so that was one of the real requirements for us is, is, you know, we had to, we had to be really strict about that and say, Look, we were not going to change this other than this little logo at the bottom. This is the asset we are providing we are paying for it, we are going to roll it out there with your life, we're going to make it very seamless for the APS. And so that's been a wonderful partnership. And so they that this agreement has been, you know, held across 18 states, we've also rolled the campaign out in across New Zealand, that was rolled out to general physicians there. But in the US, we've this mechanism of the AAP is how we've, we've had to stay focused on it, Scott, because in every state we're in, we get a response back saying, gosh, could you do this with the EMTs? Could we go to the GPS with us? Could we talk to the nurse practitioners? And so for us from a from a funding perspective, frankly, I mean, we've got it down to about $2 and 91 cents in office. Wow. It's a very slick campaign. And we're really proud of that. But you know, we could be going in 100 directions. So we have committed to all of the AAP chapters in the US. And then we're going to circle back with what's the next step is that the school nurses is at the college campuses. And so we're testing very small pilots in a couple different states to see what is the next mechanism, where we actually can have this same wide sweeping effect. Because we have a lot of wonderful people who are willing to go hang up a poster in their school or their office, you know, or somewhere in their community. But really, for us, it's how do we get this campaign everywhere, so that there can be no excuses for people not at least taking that fingerstick dipping, you know, doing a urine urine stick depth, and just double checking, that's really our goal here is to say, Can we just rule out type one, when people are coming into the office, and they're, they're under the weather. And so think of that, you know, the number of lives we can save, we know is tremendous. We know that to your point, it's very, very traumatic to be diagnosed in in decay, not to mention expensive, you know, millions and millions of dollars are spent on this, you know, every year and that that can all be avoided. There's loss of productivity with parents, you know, the average hospital stay is increased substantially. So it's not just the trauma, it's, it's all of that combined. It's really just unnecessary, because this is a lack of awareness among, you know, both both parents, and you know, you think about the school nurse sending kids home with the flu. And so how easy would it be to just email those parents and say, you know, just just have the physician double check that it is the flu. So for us, you know, the stories of heartbreak are just too too many. And and this season, we've seen quite a few, quite a few deaths due to missed diagnosis and that upon reflection, people are able to certainly spot those early warning signs and it was just 100% of lack of awareness.

Scott Benner 24:31
Well, how about other countries would you be open to hearing from people I just as you were talking, I pulled up a the chart that I have that shows me where people listen to the podcast that and sometimes it's even staggering to me and you know, the thousands of people in the UK, Australia, Sweden, Japan, France, Germany, Netherlands, Slovakia, I can't believe this and now that I'm looking at it, would you like people to call you from Mexico, Spain, China, and wow, how are you people listening in China. I don't speak Chinese. But but but I mean, would you want power

Unknown Speaker 25:02
social media?

Scott Benner 25:05
Do you would you really want to hear from like, could you see yourself expanding outside of the US? Or do you want to cover the US? More blanketed? First?

Sarah Lucas 25:14
It's a great question. We actually have multiple efforts happening, you know, in other countries as well. So, next month, this, the decay awareness campaign is rolling out in partnership with the Mexican diabetes Federation. And so that that's rolling out to about 1500 practitioners. In Mexico, we, as I mentioned, we rolled out in New Zealand in October of last year. And so that was a really tremendous partnership with diabetes, New Zealand, we also happen to have a leadership council member on the ground there in New Zealand, who was able to really help facilitate that. So the amazing part about this campaign is we've had to, we've had to fly one employee to one meeting. And other than that, this has been 100%, coordinated by Michelle Berman, our leadership council member who is the National parent lead for this campaign, and then all the volunteers, both in the States and in other countries. We're working on a project in India with one of our global Ambassador members, the poorva, we've got, you know, we do have some smaller efforts happening in Wales and in the UK right now. But But to your point, Scott, like, yes, we anticipate this being a global campaign, to be honest, it's 100%, fueled by funding, so we've got the campaign, we know how to roll it out. It's in 18 languages already. It's just as we sort of continue to look at other opportunities, we'll we'll want to be able to, you know, to have the budget to make it happen. But absolutely, this is this is intended to be a global campaign, and it's already well on its way. So I,

Scott Benner 26:51
in my mind, I was gonna start thanking you for this and saying, This is great. Thanks so much, what can people do? But I have another question first? Yeah, I'm not, I'm not kissing your butt. I'm really serious. you're accomplishing this with eight people. Right? Have you ever wondered what you could do with 16 people or 108 people every day.

Sarah Lucas 27:12
I mean, I tell you, we have a wish list in here a mile long. And it's, it's really hard, we have an incredible, incredible team. And they are so hard working, many of them do not have a connection to type one. I you know, two people on our staff have type one, but the rest are people who really came into the space with incredible skills, and have have come to be really truly passionate about the space and what we can do in it. So it's been really interesting to, I guess, see, type one through their eyes, in particular, and understand how people view this disease, the work that we need to do every day, we wonder what we could do with you know, one more person to more people at 10 more. And so I think for us, it's it's you are seeing a very constrained type beyond type one right now, like we know what we want to do, we we have an incredible list of, of ideas that we would love to build out, and, and projects. And I think that for us, we are only constrained by our finances, and by the ability of this team. And so you've got eight people who work, you know, somewhere between 80 and 90 hours a week, they work incredibly hard. We are run like a tech startup. You know, here in Silicon Valley, we we sort of, we say often like we're we look like a lifestyle brand. We're running like a tech company, we happen to be a 501 c three. So at the end of the day, it is all about finances. And we are we are limited in that regard. But certainly we are not limited by our creativity or imagination, or our desire to change the world.

Scott Benner 28:51
I have never had this thought before. But while you were speaking earlier, I was like, maybe they'll just like absorb my podcast for me. Because I just because the one effort is not that I'm asking to do that. But it's just it's that feeling of we've talked about it before I have the same thoughts. People have heard me say it before. I know how many people the podcast reaches, I'm coming up on a half a million downloads. But as I look at it, and I look at the responses, I get back from the listeners, you do feel bad that it's not 10 times that amount, like you know, and not for any other reason. It's not like anything would really change for me. It's just that when you see somebody say something like, Hey, I listened to the podcast and my agency went from eight and a half till six you think why couldn't have reached more people with this? Right? You know, and it's it's, it's heartbreaking. I now feeling like I'm gonna fly out to Silicon Valley crash your office and make people give me pointers about my podcast for today.

Sarah Lucas 29:41
Well, first of all, you you are just doing such a tremendous service and and i think that the tricky part for people is you you can't you know, you can't get caught up in how many more I could be reaching. You just have to keep at it every day and it grows right. It does continue to grow and and we feel the same way. I think that's the part where we think About what we could be doing. But instead we try to focus on what actually are we doing. But I will tell you, Scott, we've had some really exciting things happen. I mean, last year in June, we actually acquired to diabetes in a studio of essays at town foundation. And it really allowed us to start serving the Hispanic community, which was a huge gap for us. And then we launched beyond type one, and espanol in August. And that was, you know, really an important moment to us, because we knew we weren't touching this, this population, we knew that they had tremendous need. In January, we actually acquired type one run. And so we now have running groups, 61 of them as of this morning, all over the world that are just popping up running groups for people to meet up and just go for a run together and really start to foster that community on the ground in places. So I think we're seeing like, as beyond type one, we want to be additive and help amplify people's efforts. And, and sort of work together where we can and and really help sort of supercharged people's efforts, like, you know, the work that you're doing is so important. But you're right, like, let's, how can more people hear it? How can more people hear these, these podcasts. And so I think that, that that's where the type one community does need to come together more, we need to see more collaboration, we need to see more people willing to work together. And I we say this all the time is beyond type one we we love working with with people who are passionate about type one, but we're not going to go sit in a focus group for a focus group. That's the other thing about us we are we are fast, I'm sort of you know, I've been at this 19 years, and as a parent of a type one, and I'm sort of done, I'm like, let's just start making stuff happen and make, we need to be making more noise. And we're only going to do that if we can come together and sort of have everyone in the type one space get on the same page. And that's what's been brilliant about the DK campaign is you've really seen the power of people, when they are passionate about about just something as simple as, let's get this poster in the hands of every pediatrician, let's get this, let's get this campaign in front of parents so that they know what at least to look out for, as they're raising their children. And then also, in the minds of adults who are impacted as well, they are they're in decay many times at diagnosis, you know, just as as children are and so we have to sort of tuck these symptoms away for people so that they are really they can they can recognize someone they see them. Because these are these are some of the problems we can solve. But I've really been impressed with people coming together and working to make this happen on the ground and they're in their state. And it's been really exciting to see.

Scott Benner 32:39
Okay, so if people want to help you in a different state, how do they get in touch with you? If somebody hears us and they're from a pediatricians office? Like what's the what's the pathway back to you.

Sarah Lucas 32:49
So beyond type one.org, that one is new miracle. So beyond type one.org if you look under programs that I all about, you know, our DK campaign is there and it gives you ways to reach out to us you can see if your state is either in progress, or has been completed. And again, this is really this concept of going through with the pediatricians is just the beginning we really want to think about what are those other touch points so that we can really make sure that we are catching people at all stages so that we can recognize you know, that the people can recognize the symptoms and we can stop deaths from you know, Miss, diagnose type one, it's just not necessary. It's tragic. And it's a problem we

Scott Benner 33:30
can solve. I can't believe you even have that beautiful website up but just a people to be perfectly honest. So

Sarah Lucas 33:37
well, we got a lot of magic makers over here a lot of creative people with a lot of a lot of talent, a lot of heart and a lot of skills. So I'm really Uber proud of our team and and you know and then our leadership council and the council said that work with us, you know, the incredible volunteers from around the world that we work with so I'm really you know, and then people like you that helped us amplify our efforts Scott and just really get the word out about what we're doing we're so appreciative and you know, you are reaching an incredible audience and serving an important purpose and we're always here to help with that as well

Scott Benner 34:12
you're very nice it's a no brainer to be involved with what you guys are doing so but but thank you very much I will put links in the show notes so people can click through and not have to remember what you said but I really appreciate you coming on and doing this

Sarah Lucas 34:23
half deck and you'll see your video of your friend Victor Garber there

Unknown Speaker 34:26
yes about it

Sarah Lucas 34:27
might be the flu or might be something else

Scott Benner 34:30
people if you have not heard the episode with Victor Robert to date, one of the nicest human beings I've ever spoken to. And so it really just it I was just overwhelmed with how at his core kind he was it just he wasn't pretending I could tell in two seconds is really sad.

Sarah Lucas 34:50
Now Victor Garber is an extraordinary human and as busy as he is, he's back on Broadway right now and he's just incredibly busy, but he is always willing to especially On these campaigns where we know we can save lives to sit down and you know, craft a quick video with us, whatever we need, he is really, you know, he's lived with type one over 50 years. He's extraordinary. And, you know, he's really an important part of this campaign for us as well. So we're really grateful for everyone who has had a hand in it, and to everybody who's hearing about it. Help us help us bring it you know, because we can, we can take this as a problem we can solve.

Unknown Speaker 35:25
This is Victor Garber. This cold and flu season, just an extra reminder. Type One Diabetes can be like a wolf in sheep's clothing. It can hide behind symptoms that mimic the stomach flu or virus. If left untreated, type one diabetes can lead to significant complications, including death. Ask your doctor about the warning signs and how to screen for type one diabetes.

Scott Benner 36:04
If you'd like to learn more or even get involved, go to beyond type one.org. There are also links in your show notes


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