#300 Saira is the Trif3cta

Saira has T1, loves a T1 and gave birth to a T1

Saira has type 1 diabetes as does her husband and daughter. She also has a great T1 blog www.type1basics.com

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello, everyone, and welcome to Episode 300 of the Juicebox Podcast. It's kind of a cool little. We call that when you reach them. Point. It's a milestone, isn't it? That's what they call that. It's a bit of a milestone. I don't know if it means anything, but it's cool. 300 episodes is a is a bit of a milestone. Would you like to help me celebrate 300? Here's how you could you guys are like, oh god, he's gonna ask us or something. You're right. I am. A number of you. When asked what your favorite episode of the podcast is, or who some of your favorite guests are. A lot of people say Sam fold the former Major League Baseball player who's been on twice now and has type one diabetes himself. Well, Sam does a sports camp every year for kids with Type One Diabetes. And he's running a GoFundMe right now to help pay for the camp for these kids. Now the camp happens on February 8, so it's coming up really quickly. And any money that Sam can collect to help with this camp on would be a big deal. So I'm gonna put a link in the show notes that you can click on to its charity, GoFundMe, but it'll take you right to Sam's page. And if you can throw in a couple of bucks, anything you can to help Sam continue to work with kids with Type One Diabetes, it would be terrific. So perhaps you're very excited about the podcast reaching 300 or something else going on in your life and you need a way to celebrate where you found like, four or five bucks in the cushions of your chair, something like that. You're like us found money. I wonder what I'll do with it. He said I'll probably buy like a bag or rolos or something. I don't buy a bag or all those. Give it to Sam, let him help kids. Have a great time. Fine. Thanks for considering that. And now let's get to the show. I'll play some music. And then I'll tell you more.

On this live 300th episode of the Juicebox Podcast, I will be speaking with a lovely person who has diabetes, whose husband has diabetes, and whose child has diabetes. Am I What are you thinking right now you're like, well, that's three people. You're right, your math is rock solid. All you need to do while you're listening is remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Also, I have some events coming up in Dallas, Wisconsin and Atlanta, very soon, go to Juicebox podcast.com. Scroll to the bottom click on events to find out more there are still tickets available to each of the events. Let's strap in get ready to talk to Syrah about her life with Type One Diabetes. That person living with type one, the spouse of someone who has type one in the mother of someone who has type one diabetes.

Right now I can feel you thinking oh my god, there's no ads. This is great. Now there's ads. This episode of The Juicebox Podcast is sponsored proudly by Dexcom Omni pod and dancing for diabetes. But do we call them dancing for diabetes anymore? Or do we say touched by type one.org? Hmm, think about it. It's touched by type one.org. Don't forget that on the pod makes the world's only tubeless insulin pump, the insulin pump that my daughter has been using since she was four and she's 15. So if you can do the math, that's a long time. And of course Dexcom, makers of the G six continuous glucose monitor. Find out which way your blood sugar is moving and how fast with the dexcom g six continuous glucose monitor. Find out more about all the sponsors. You can find links in your podcast app right in the show notes. You can go to Juicebox podcast.com, where you can type in these addresses my omnipod.com Ford slash juice box dexcom.com forward slash juice box or touched by type one.org

Sarah Gallo 4:13
My name is Sarah Gallo and I have been living with type one for 25 plus years in multiple capacities including myself, my husband and I are older.

Scott Benner 4:26
Okay, so let's start slow. There's an AI in your name and you're seems to be pronouncing it so go slow and tell me one more time.

Unknown Speaker 4:34
like this the whole intro? No, no, no, no,

Scott Benner 4:36
no. Your name is it do you don't say you don't say Sarah you say

Unknown Speaker 4:40
no. It's Syrah Syrah. Got it? Okay.

Scott Benner 4:45
Got it. I'm good. I just didn't want to like threw in the entire thing. Because you don't know me. Well, Sara, but I will just say Sarah over and over again. And I don't want you to be on the other side going. That's not my name.

Unknown Speaker 4:57
I would I would stop you like this

Sarah Gallo 5:01
At least on a podcast anywhere else if I just met you in person, I guess Fine, whatever.

Scott Benner 5:06
So sort of sigh like a sigh and I got it. Okay, now we all know, and I'm gonna butcher it with my my northeast accent at some point, which I didn't realize I had to I had a podcast and then people started telling me Oh my god, you talk just like me. And I was like, wait, but Okay, so you said a lot in a very short amount of time you've been living with diabetes and a lot of different capacities. So let's start with you because you've known you longest. Do you have type one?

Sarah Gallo 5:37
I do. I was diagnosed. I'm in third grade. And yes, it was a little about 20. Actually, 23 years ago,

Scott Benner 5:47
okay. Okay. 23 years ago, you're in third grade. Do you remember anything about that time at all?

Sarah Gallo 5:54
Um, yeah, actually, I remember a decent amount. And I'm actually in fourth grade. Sorry.

Scott Benner 6:03
By the way, all that staying in the podcast because you said you remember but then you said the wrong grades. So listen to everyone listening. Now. This is probably just fanfiction about Cyrus. diagnosis. Okay. This is the best she can recall.

Sarah Gallo 6:20
I was sitting here thinking I could just leave it at third grade. But then I was like, my mom's gonna listen. She's like, no, it was fourth grade.

Scott Benner 6:25
My God, you do not have to watch your mom down. Exactly. Alright, so

Sarah Gallo 6:29
I think it'll make her feel better that I was older than I then if I say I was younger,

Unknown Speaker 6:33
doesn't like

Sarah Gallo 6:34
that. It's okay to be younger than they really were when they were diagnosed.

Scott Benner 6:38
Okay, so Okay, so fourth grade, which I had a terrible fourth grade experience. So I bet you mine, even though mine was worse? Probably not. I was gonna say, I bet you mine's not as bad as yours, because I didn't end up with diabetes when it was over. But I did have a really horrible teacher didn't seem to like me, but that's neither here nor there. So you're diagnosed during the school year?

Sarah Gallo 6:57
Yeah. Um, so I was actually diagnosed a handful of times. I remember going to the doctors a lot that year. And I was living in Pakistan at the time. That's where my family's originally from. And the doctor told my mom that I was just that I just didn't like school. And I was trying to make excuses and to send me back. And, yeah, so it wasn't until I went into decay that they figured it out. And was in the hospital. And I was sitting, I was there for at least a week. And I remember the thing I was most upset about when I like, woke up and you know, they told me Hey, you have you have type one diabetes, and they told me I couldn't eat grapes. And like, that was my absolute favorite thing in the world. I was like obsessed with grapes. And they're like, you can never eat grapes again. And I just started bawling like that's what got me upset. I didn't care about shots. I was like I could never eat grapes again like that's what

Scott Benner 7:58
by the way red grapes are green What do you prefer? READ WRITE nice and and I did you get to see the doctor again. Who told you you were just didn't like school and you were faking? Because faking BK is like, next level thing.

Sarah Gallo 8:12
And but that doesn't that's not really a thing you do.

So yeah, definitely. Definitely never saw him again. Excellent. I think I would, I wouldn't. I would recognize him if I saw him. I think

Scott Benner 8:23
as as the dumbest person you've ever met in your life?

Unknown Speaker 8:26
Yeah. Like you were you were totally wrong.

Scott Benner 8:32
That's crazy. I don't even understand why that would be with the why that would jump into someone's mind. Like, were you like a malcontent? in other ways?

Sarah Gallo 8:42
Well, I'm perfectly happy child. I had lots of friends. Like, I wasn't like this moody kid that like

Scott Benner 8:48
you weren't like lighting a cat on fire and saying you didn't feel well. Like it was just yeah, by the way. I don't know why that jumped into my head. I've never thought of hurting an animal before. But anyway, I guess that's my guess that's the back of my dark minds idea of what malcontent children think to do. Any please. Public Service Announcement don't harm animals of any kind. So okay, so you go in, you've been, you know, misdiagnosed pushed off a little bit, you go in there, and then you finally find somebody I guess to tell you how to type one or did not even go that easily.

Sarah Gallo 9:18
I mean, like I said, I was DK I was unconscious when they took me to the hospital. And that was how they figured it out. The primary care doctor was bad, there's nothing wrong with you. But then when I passed out, and they do awesome, like yeah, there's definitely something wrong with her. It's amazing. Um, and they knew to check my blood sugar, but the family care guide did not

Scott Benner 9:40
because you were unconscious, and they figured maybe this is not dead. Oh my gosh. Alright. So how is life with Type One Diabetes growing up then do you ease into it? Is it rough for you or your parents involved? Do they kind of leave it on you? How did it all go?

Sarah Gallo 9:56
So it was really hard for me in the beginning. Like I said, I was living in Fox on and I had to switch schools, because the kids thought I was contagious. And, and even then after I switched, it was still like, there's a lot of stigma attached to diabetes in the developing world in general. And so inbox on, especially back in, in 93, when I was like, knows, I'm sorry. So I obviously have bad memories and numbers I'm giving her all wrong, but whatever. Here it was, when I was in fourth grade 96.

Unknown Speaker 10:33
That's what it was, I'm having such a good time with these

Sarah Gallo 10:37
90 days a year, my friend, that's what I was thinking maybe six was when I was diagnosed. And yeah, so it was just, it was there weren't a lot of people with type one out there. And not a lot of people knew about it. And then like I said, there's, there's just a stigma associated with anything being wrong with you. Regardless of what it is, it was like you don't talk about it. And unfortunately, type one, especially as a kid, it's not something you can't talk about. And, you know, going through it as you as anybody knows, and you speak to a lot of families that are you know, within the first year of being diagnose, there's a lot to learn. And so I was I was low a lot. And so I had to leave class a lot. And a lot of the kids used to make fun of me and be like, Oh, she's just making excuses to get out of class. And I remember, like, teachers yelling at me, like, Why are you sleeping in class, and it was like, I'm not sleeping. I'm, I'm low. And it was like, it was it took a lot to kind of get over that. And I didn't actually honestly realize that, like, it had impacted me the way it did. until after I met my husband. Like it was just I turned into this like, oh, because all these people are always telling me like, that's the girl with the problem. I think I tried to hide that I had it. And in high school, it was to the point where like, friends didn't even know I had type one. And I was proud of that. It was like, Yes, I really don't even know that I'm living with this. Like that was a badge of honor for me.

Scott Benner 12:14
Okay, that you were able to keep it from people? And what was the impact on you? I guess two ways, from keeping it keeping it from people. Was there an impact psychologically? And was there an impact? medically like, were there things you didn't do? Because you didn't want people to see?

Sarah Gallo 12:31
Yes. And so that didn't start until a little when like, you're at that point where you just want to be normal. You don't want to be this kid isn't doing anything differently. So I think it was one more year Honestly, I'm just something I've never talked about. But I I went through like that's when my my diabelli Mia started and essentially I I was going through puberty so it was like taking care of your blood sugar's is really hard. This is pre loop day is this is like pre anyone else helping you figure it out. I was still on MDI, back then. I I say it was Lantus by them. And either way it was. So it's a lot harder to like, be in control at that point. And I remember like a couple of times, my mom is very absolutely love her. But she was he was always like, if I was ever high, it was like, why are you high? Or why did this go wrong? And again, as like a 14 year old and the 15 year old that like, doesn't really want to have to spend that much time thinking about diabetes at a time where it took a lot of effort. I kind of got to the point where I was like eff this. If it's not in control, even though I'm trying, I'm going to be out of control because I chose it. Does that make sense? Like that was like my reaction to it. So that was kind of how I managed to hide it because I just didn't I just didn't do what I needed to I didn't take shots that often I would skip doses on a lot. And yeah, that was kind of like my way of dealing with it where it's like, I can't, I can't figure out how to take care of like the hand controls. I'm just not

Scott Benner 14:11
going to so I'll be in control of the audit control part. Exactly. Right, right. That's really, I'm not surprising, honestly. How long did that go on for

Sarah Gallo 14:22
way longer than I would have liked probably a good 10 years. And then it wasn't till I met my husband and that kind of like, really soft. So I would go on and off. But like, I'd be good for a couple of months. But then I was like, it would get hard again. And it was like forget this. I'm not gonna do it.

Scott Benner 14:43
So I'm interested you met your husband, and was it his support that helped or was it like there's so many people who come on here who seemed to indicate that when someone else in their life appears that they love and care about they suddenly want to do better? for themselves, sometimes it's having a child, sometimes it's falling in love. It's really interesting. And so common that I think it's a, it's a rule at this point, people who struggle with their diabetes, meet somebody they love. And all of a sudden, they, I don't know what it is, I don't want to oversimplify it and say it's a reason to live. But it's, it happens a lot. I was wondering how it happened to you.

Sarah Gallo 15:20
So, for me, it was a little bit more of like, Oh, I can do it. And diabetes seems so easy for him. Like it was not the struggle. He had a very, very different story and diagnosis and everything, but it was like, hey, if he can do it, I don't why why is it so hard for me kind of a thing. So that was like, one of the motivations. And then, you know, there's something to be said about, like someone else doing things differently. So like, if he was high, he was like, I can't eat that right now. And I'd be like, oh, and that's perfectly okay. Like he was just, he's always been unashamedly diabetic. Like, if he's gonna stop what he's doing. That's what he's doing. He's like, I don't understand why the world can get on board with that, like, to him. This is what it is. And it's he's not gonna try and pretend that things are different. So he needs help. He needs help. And that's it. So that was, that was really helpful for me to see like, people still love him. Nobody has any issues with him. Even though he will stop whatever he's doing when he's low. He'll literally stop people mid conversation and be like, I'm really sorry, I gotta eat something. Or like, while they're talking, he'll just grab something out of his bag and start eating. It does. Anybody? Yeah,

yeah. Whereas for me, I'd be like,

well, how come you didn't like just wait till later, or like, it was just, it was just something I had never, I'd never done it that way.

Scott Benner 16:48
I don't know what you're doing right this second, besides listening to the podcast, but you're not just listening to the podcast sitting down, you're doing something else. When you're done that something else I want you to run, be safe, but run to a computer, click on my link, or type in the words my Omni pod.com forward slash juice box. And I want you to get an absolutely free 100% no obligation on the pod demo sent to you right now. When it arrives, there'll be an explosion of excitement in your home. You'll be like, Oh, cool. We have Omni pod demo, but we do with it. But what you'll do with it is you'll put it on either yourself for the person with diabetes, you'll find a place you'll think this is where I will one day where my Omni pod, slap it on there. And you go about your life so that you can see what it would be like to wear an omni pod tubeless insulin pump, no tubing, no connection to something else. Just this little thing. It's just it's hard to put into words. That's why you need a demo. So you can see it. Little tiny, stick it on holds the insulin inside. Now one day you'll have it for real, you know, you'll need to tell it what to do. So they just give you this little thing. It's like a little diabetes manager. With the Omni pod dash, it looks just like a little Android phone. Right? You tell the you push on the buttons. I'm gonna have a unit it's on here, Polish and then wirelessly. It tells the pump like now put the insulin in it does it? It's magic. It's not magic. It's you know, like Bluetooth, which is kind of magical. When you think about it. You touch something across the room and something on the other side of the room does something magical. Miami pod.com forward slash juice boxes links in your show notes are the ones you'll find at Juicebox podcast.com. Don't forget when you're looking through those show notes and those links check out Sam fold sports camp. Do me a solid. Do Sam masala has been a great guest on the show twice now. And we can get him to come back. Yeah, well, you bumped into you bumped into the wrong people in the beginning.

Right? Like what?

stuck with me. So random. But to that just you get diagnosed and you're around some people who are like, Oh, she's contagious. And then the you move to a different school which is running away like you don't I mean, like, you're like, Oh, these people are bothering me. I'll run over here. And now you've taught yourself. When I have trouble with diabetes, what I should do is leave the place that's giving me the problem. And then it then that builds, you know, it builds and builds and builds and then your mom gives you a problem and you ran away you know, you ran away from that. And she's like, why is your budget are high and you're like, ah I'll just do the opposite. Like I'll go I'll move away from like, You kept moving away from conflict, I guess. If that if that if I'm reading it correctly from your conversation. It's it's um, it's completely understandable. It's just it's just did it start? Like what if you would have been diagnosed around 10 like local kids who were like, Syrah? It's okay, we love you. We've got this will help you. Like would that have just changed everything? You know what I mean?

Sarah Gallo 20:00
For whatever, I have no idea what the trajectory of my life would look like in that case. Um, I think there's a lot and I think that's, that gets into like, a differently I parent I love versus my husband because of like, me having the lens of what I went through, and him having the lens what he went through, obviously. So it's just, it's, it helps put us into the perspective of like, your story isn't her story for both of us. Whereas if it had been just me, I would have been like, this is what type one looks like for children. And because that's what it was for me and having him I can easily feel like that's not the case. And I don't have to project my experience on there.

Scott Benner 20:37
Yeah, Ellison that's, that's how generations are supposed to work, right, you're supposed to figure something out. And then your kids supposed to get the start on your shoulders, not in a hole, right. So we all just keep lifting each other up until one day one of our kids is going to be able to fly. That's what I'm assuming. That's a little fanciful, but I'm saying I, we, you know, I have parents who were blue collar hard working people didn't have many expectations for themselves. And, but they gave me the idea that there could be more for me. And so I went out and found more. And now my kids get to start with the idea that not that there can be more for you. But that more already exists. And it's theirs for the taking, which is which is differently than I thought it I thought it is something I had to go get. And now they just think of it as something they have that they're just trying to hold on to or make better. And so your idea of diabetes started work did you met a guy who had a completely different aspect that you know, completely different upbringing, his perspective was different, you guys blended that together, and now you're gonna have your daughter starts on your shoulders, you know what I mean? So it's really wonder it's beautiful, really, it sucks for you personally. But, but it's great for the world and for your daughter. Because like, you know, you're putting, you're putting better stuff out there than the people who you met. And very likely, when your daughter was diagnosed, she was not surrounded by a bunch of people who were just like, pointing at her and trying to witch trial, you know what I mean? So,

Sarah Gallo 22:03
yeah, I've, I've tried really hard to make sure that diabetes is extremely normalized for her to the point where she thinks that wearing an insulin pump is just as common as wearing glasses. Which I think is, is something all kids should see. And we talk about in the context, especially of type one, but in the context of any kind of difference, whether it's, you know, kids that are in wheelchairs, versus whatever it is, be, like, you know, being different is just That's all it is. People have different skin colors, people like different people's bodies need help with different things kind of a thing, and I didn't have that growing up,

Scott Benner 22:39
whatever your thing is, is your thing. It doesn't I mean, to be to be disappointed in who you are sad to begin with, but then did want to hide it is I don't know. And it's funny, too, because you and I are talking you're completely reasonable, thoughtful, intelligent person. And, and yet, that pressure was enough to, to push you in that direction, which I just think indicates how easily that kind of wrong exterior force can can move somebody, especially when they're a child, you know. So what was your husband's secret that he was he like, that he grew up with parents who were just like, whatever, don't worry about it keep going. Or what was their vibe? Do you know isn't?

Sarah Gallo 23:22
Um, I mean, he was telling us a little bit earlier. So I think there's a little bit to be said about that. He was a little over 10. And it was like at a routine checkup. And the way his mom approached, it was like, she literally made it this game when she went to school for the kids where they were, like, excited to learn about type one. And they got to win getting their blood sugar's checked if they got answers about diabetes, right. And, like, she went in and talked to the school about it and stuff. And I think a lot of it is just where he was, as well, versus like, the stigma and the community I was in, and a little bit of it having to do with, you know, the way his mom handled it as well. I think she did do a great job with that, where, you know, it was just, this is what it is. And the other kids were like, Oh, that's cool. All right. That's it, you know, like his friends would go to like the jdrf walks with him every summer or not summer, but whenever it was back home, and yeah, that was just it was always just something that was that was normal, and it was okay. And it wasn't it wasn't a big deal. And then all honestly, his control has always been different. I have always been told that I'm infertile diabetic, so it's just, it was harder for me to do. And even before I started looping, my husband and I are totally different people, we do very similar things, the amount of effort he put into his diabetes, you know, at a certain level, but if I put in the same amount of effort, my blood sugars would have been all over the place. So it just it's always been harder for me to do At the same level of control for him, if that makes sense, like it took less work for him.

Scott Benner 25:04
Yeah, no, I mean, let's just come out and say your husband got easier said have diabetes than you did. And he sucks. I get you. I hear exactly what you're saying. He can, he can, he can chirp all he wants about how well he's doing. But he got the easier one. And that's that. No, no, no. So, so it's funny because the term brittle. strikes me wrong.

Unknown Speaker 25:22
I don't love it. Yeah.

Scott Benner 25:24
And, and, and, and at the same time? I don't know. I mean, I'm not arguing with anybody who thinks that I just, there's it to me, it's always about insulin. And

Sarah Gallo 25:34
I actually I actually agree, I don't think brittle diabetic is actually a thing. I think it's more like, you haven't figured out the way to manage your diabetes in the best way possible. And just because this is what works for him is that doesn't mean that's what works for you. And so he happened to work with the standard procedures that were prescribed right? Like, this is how you do it. This is how you carb count, this is what you do. And it worked for him. Yeah. And that that's kind of how it's always been taught. Like, there's a certain way that you handle type one across the board. versus a there's other dynamic ways of doing it, whether it's, you know, how you talk about being bold with insulin, or whatever else it is. And I think that that's what it was, it was like what everyone else is doing isn't working for you. So you're brittle, there's something wrong with you versus like, there's something wrong with the way we're managing you.

Scott Benner 26:22
Don't forget to check out touched by type one.org. The next time we get a chance you're on your phone, you're a little bored. You type it in touch by type one.org. Take a look around. Same thing if you're at the home. I mean, you kind of click through Facebook one too many times, you know, like, Oh, I'm too tired to get up to board to keep looking at Facebook, check out touched by type one.org. That way you can remain lazy and sedentary and still do something different new environment. I remember a time when I would give my daughter insulin and count carbs, like give her some insulin and wait three hours and test your blood sugar. And her blood sugar would inevitably be really high or really low. And then I'd give her food if she was low or more insulin if she was high. And more often than not, she was high and there was another meal coming and Oh, just was terrible. And then one day, Arden got a dexcom continuous glucose monitor. And all of that changed all of it. Because now suddenly we could see the direction and speed that Arden's blood sugar was moving in. And we could sort of readdress our insulin decisions. If they weren't right. Now, sometimes, you know, like a couple hours after a meal, you're still like 180, it won't budge. Well, instead of staring at it and watching it go up and up, we address it with insulin and get it back down safely. And we do that with comfort, because we can see Arden's blood sugar in real time. And of course Dexcom has user definable alarms that I can set to give me a little like, Hey, yo, you might be moving a little quicker than you think or get a little higher than you want it to a little lower etc. And so Arden's blood sugar really never leaves a range that we've preset without us knowing that allows us to readdress with insulin or with carbs. And that helps contain for blood sugar in one sort of stable place. So instead of staring and wondering and waiting to test, we can look and see and know and feel comforted and decide to dexcom.com forward slash juice box or please use the links in your show notes, or the ones you'll find at Juicebox podcast.com. To find out more about the Dexcom g six continuous glucose monitor today, I promise you will not be disappointed.

Sarah Gallo 28:37
That's what it was. It was like what everyone else is doing isn't working for you. So you're brittle. There's something wrong with you versus like there's something wrong with the way we're managing you.

Scott Benner 28:46
instead of hitting the first roadblock and saying, look, here's the rules, you know, the proceed rules at that time for diabetes. Oh, they didn't work for me, oh, well, you just doesn't work, then you're broken somehow. Like, what a fascinating leap? And how do people even get out of med school thinking like that? You're like, like, Why? Why wouldn't your thought be? Okay, well, that didn't work for you. I wonder what would it not not just suddenly like, because how do people not look back especially doctors and say, hey, look, the what we're teaching right now today isn't the same as what we were teaching three years ago, or five years ago or 10 years ago, that won't be the same thing we're teaching next year. So why don't we look at the fact that maybe the person just needs more personalized care? And it's a really fascinating because liquid liquid did the deal with like, again, someone who was like, Look, do this, you did it, it didn't work. And you're like, well, I'll say it doesn't work.

Sarah Gallo 29:37
That's termed as a brittle or non compliant patient right away.

Scott Benner 29:42
Yeah. Instead of like, just somebody who needs a little more help. We're you know, the tools don't work the same for them or whatever it ends up being it's just all it's it's really infuriating. Honestly, you're gonna get me upset if we keep talking about it. So we're gonna move past that now. Okay. And I won't ask you any more questions about dates or times because I realize your recollection is is,

Unknown Speaker 30:02
is young children coming.

Scott Benner 30:06
So listen, you said you went about a decade with, you know, not really caring for yourself the way you hope to do. Are you having any side effects from that decade? Or are you doing okay?

Sarah Gallo 30:17
Hopefully I'm extremely lucky and that I have no side effects. Then you know my routine bloodwork and eye checkups and everything, and we have no side effects that we, that we know of yet. I'm honestly in the back of my head, I'm always wondering, like, Did I do anything that's going to hit me later? And we won't, we won't know. And it really pulled me out was more wanting to get pregnant, like you said to somebody else that you cared about being you know, that, that drive to do better. Because even when even getting married and being with someone that has type one that did a lot help me actually start you know, whether it's actually testing my blood sugar's or, you know, trying to take care of myself, but it wasn't, honestly until I wanted to get pregnant that it was like, Alright, you got to really lock down and like care about what your agency is, and really make it make a change in your management. Um, and then, and then after I was diagnosed, I was like, oh, there's no way you're ever gonna not be allowed to take care of yourself. Because what are you gonna teach your kid?

Scott Benner 31:23
You don't want to be a bad you don't want to be like the wrong kind of influencer example to her. So you have two kids, right is either younger or older.

Sarah Gallo 31:31
All the older she's four years old now. And she was diagnosed when she was 10 months old.

Scott Benner 31:36
Okay. So I mean, listen, you guys are just, you know, you were clearly gonna make a baby with type one. Just to like, Chase like your whole house is diabetes. It would be we I'm assuming that your other child who doesn't have it probably feels left out at this point.

Sarah Gallo 31:50
She really does. She's the one I work with. As honestly, we do a lot of like, diabetes community stuff locally. And so we're we're around other kids in the pipeline pretty often and just other people in general. And she's, whenever we do Islas pod changes, she she always wants the time. And I'm running out of demo pods.

Scott Benner 32:13
That's excellent. So is that something that you're? Is it in the front of your head yet? Like? How do I keep her from feeling like she's different? Because, because here's my example for you. I'm adopted, I've shared that a bunch of times on the show, I was adopted by very nice, average blue collar people. And as I started to get older, it was clear that I thought differently than they did. And so like, you know, like a problem would come up around the house or, you know, a problem with a bill or anything like that, like something you heard discussed in the house, then my mother and father and my brothers would have this almost instant reaction to something. And they all seem to match each other. And I was off on the side thinking like, Oh, that's not what I would do in this situation. Or that's not how it strikes me, or I'm not worried about that, because of this, and they would all get focused on one thing, and I would get focused on something different. And it always made me feel weird, that I never once just reacted the way they reacted. Like it wasn't my you know what I mean? Like, it wasn't my first indication to be like they were and I don't know what they could have done or not done. Although your husband's mother's example of running headlong into the world being like a one man like, you know, diabetes information crew seemed like that works pretty well, you know, but like, you know, what is it you'll need to do without going so far that your, your other child, you know, your Nandi one child is is like, just like, Oh, my God, this woman's always covering for me because she thinks I can't take that I don't have diabetes, like so there's a line in there, obviously. But what do you do? Have you thought about the roles or stuff you're doing now?

Sarah Gallo 33:57
I mean, honestly, right now she's two years old. So the amount that we talk about her feelings is limited. her feelings are around the fact that her sister stared at her for too long right now. Those are the kinds of meltdowns we have.

Unknown Speaker 34:15
So

Sarah Gallo 34:17
we we are going to be going to friends for life this summer for the first time as a as a family. And the one thing that I love about what they offer is like the sibling program. And so I know that's something I want to kind of have as an outlet for her to talk to other people who are caregivers type ones. And then honestly, she will always have my sister to talk to because she she grew up as like the older sister that me like my older sister have to go on sleep overs with me because this was pre CGM, so it was like a sister's going with you to make sure you're alive in the morning kind of a thing. As she she felt she gets what it's like to be a caregiver. And you know, my daughter and like, my, my type one daughter, she's, she's, she's been a type one caregiver essentially, I feel like she'll always have her as someone to talk about and vent about, like, type one taking over. Because I know that my eldest sister had a times where like she, she has a guard because something bigger going on with my type one at that moment, and I know she'll have her as a resource. And then the other thing that we are really big on in our family is just doing what we call special time. So like, I like it's time to hang out with just me and hang out with just her dad. And same with an IRA, we have time to hang out with both me and just her dad to kind of be like, okay, we all have relationships outside of just being a family of four. And, you know, letting her have that time honestly, like, I feel kind of guilty for this sometimes, but like, I took an hour to Disneyland ones just in her and it was like, I don't worry about Pre-Bolus and knew her about, you know, going low while we're standing in the heat or any of that stuff. And it was like, I felt guilty that it was easier to be with her. And I've always kind of wondered if that's how it doesn't mean I love her differently, or any more or less than, than Iowa. It's just a different experience when I'm just with her. And I've always wondered like, how is this how my parents felt with me? Yeah. Like not that they didn't love being with me. But it's a little bit more to think about when you're with me. No, I listen, I started taking care of it myself.

Scott Benner 36:39
I imagine I would. I mean, wondering about that. How does it make you feel like do you? Does it make you feel sad to think that they might have been like, Oh my god, I'm so happy not to be with her right now? Because it's just easier and I need a break? Or do you see that as just being human and reasonable? Or does

Sarah Gallo 36:57
it I if anything, if I wasn't a type one parent, I would maybe think of it differently, but feeling the exact same way myself? Yeah, I get it. I can't blame them. And it's totally fine. Um, yeah,

Scott Benner 37:11
yeah, I was just I went away for one night to do a speaking thing recently. And you know, there's a little dinner at night and people like, well, what are you gonna do now? It's like, Oh, my God, I'm gonna run upstairs and go to sleep. Yeah, I just I can't, I'm so excited to go to sleep. Because I'm going to send my wife a text and be like, Hey, good luck. And then I'm gonna go shut my eyes. Yeah, basically for nine hours in a row. And that's exactly what other people are planning for things. And I'm just like, ah, your lives are way too exciting for me, I I'm seeing some unbroken sleep calm, and I gotta get going. I get it. Like it just it is easier. And I have a similar situation. I go away with my son, sometimes for baseball stuff. And there's less to think about. And there's it's nice not to think about things. Sometimes. It's actually it's not even just going away. It's, you know, I mean, an hour and a half ago, I was running around the house on a phone call with someone taking down you guys really getting a good look into my life taking down like these little curtains that need to be laundered. And I'm putting them in the washing machine. And it just hit me out of nowhere. I'm like, I should look at Arden's blood sugar, because it was like 1045 in the morning, and I had not looked at it yet. I was like, I really should look. So I just kind of whipped out my phone. And I'm walking and trying to see what our blood sugar's at the same time. And I thought for a second. Other people don't have to do this. Like, that must be nice. And you know, I guess I'll never really know, but just sound nice. You don't I mean, like, and to your point, it doesn't it has no impact on how I feel about Arden whatsoever. Yeah, it just, you don't I mean,

Sarah Gallo 38:47
yeah, we still love our children. And in hindsight, we would do it all over again. We wouldn't ever be like, Oh, you know, I had a lot of people ask, like, if you knew which occur in children? Yeah, yeah, I spoke to another mom of a guy with type one the other day and I straight up was like, I would do it all over again. I wouldn't not have islands. As you told me. She was gonna have type one. And she looks really surprised. And I was like, Really? You're you would you would say you wouldn't have had your son because, yes, they've won. Like why, especially in hindsight,

Unknown Speaker 39:18
and what other reasons would you give him away for?

Sarah Gallo 39:23
And then also,

I mean, we had some, like, really not necessary comments about like, Oh, are you guys trying to breed diabetics when we have our second and it was like that not funny. To you.

Unknown Speaker 39:36
A person we don't talk to

Sarah Gallo 39:37
anymore. I personally don't talk to anymore. Yeah.

Scott Benner 39:41
Do you think they were trying to be funny, or do you

Sarah Gallo 39:44
think they were they thought it was funny because they like laughed, and you know, and I like you could tell on my face like that. But I just, I just kind of like, boxed away. I think I've ever seen that. It wasn't it wasn't a friend. It was like appointment so it doesn't matter. I've never seen him again. Yeah.

Scott Benner 40:03
It's, it's it's it's interesting what happens when people are trying to be like, real quick or off the top of their head or get any mean like flipping or fun. And then they just say something stupid and everyone stares like, oh geez, I went too far, or I didn't realize where the line was or something like that. It's very, uh, it's very telling, actually, I'm more interested in the woman who said, Would you have done this if you knew? Because that's, I mean, I mean, how far into that? Are we going to get it Really? Because my kids are kind of annoying. Like, if I knew they're annoying, would I not have had them? You know? I mean, I know I look at my wife sometimes. And I realized that she's like, oh, if I knew all this, I definitely wouldn't have married this guy like that. I can tell. You know, like that. That seems obvious to me. But I don't know. It's such an odd statement. Like I go back a lot to Sam fold was on the show, and he's a white coach for the Philadelphia Phillies now, but he was on and I and I said to him, like something similar like the Did it ever occur to you not to have more kids because of diabetes? And, or to have kids at all? Because the type of cuz he's type one his kids aren't? And it's funny, his answer was just so like, No, of course not. Because I realized when he said, he has type one, he has no trouble with it. It doesn't cause him. He doesn't think of himself differently. And because of that, he wouldn't be concerned if he had a child who had it. I was like, Oh, it's more about his. It's how he feels about himself, not how he feels about the diabetes. And you're not me, like he doesn't see that. It's no different than if you were incredibly short. And I said to you, Oh, are you thinking of not having kids? So your kids wouldn't be short? Like you would think Well, that doesn't bother me. Like I I'm fine with my height. So they're very, very, very interesting how how that all goes plus? I don't know. I'm looking at your I have a little picture here for you guys. You're a delightful family. Why would you not want this to exist? You know, Amy? Yeah, very cool. She's a pretty funky little girl. And I would never ever change anything about her even when she's having a meltdown. I I'm so delighted at the idea that, that I can look at her younger daughter or sister and freak her out by staring at her like she doing that on purpose. Do you think? Is there anything? Yeah.

Sarah Gallo 42:19
Oh, am I looking at me? Excellent.

My oldest.

Unknown Speaker 42:28
You looking at me and my mother. Like,

Scott Benner 42:31
you broke up for a second, but I got it. I got it enough. I'm hearing that you did it with your older sister. Oh, yeah. That's so cool. So all right. Let's see. I do have questions. Management ideas. So you were pens for a long time. I'm assuming you went to a pump at some point. Did you

Sarah Gallo 42:48
never Pound those all like straight up syringes, syringes? No kidding?

Scott Benner 42:51
Okay, syringes, right, from syringes to a pump? Did you have a pump before a CGM?

Sarah Gallo 42:57
I did. So I get a pump until my junior year of high school. And then I took a break. For like, I'm gonna say a year. Because we lived in point at the time, it was kind of hard to get supplies. And there was like a couple of different reasons. This was also when I wasn't taking care of myself anyway. So it was like, I didn't want a thing on me. And I did. back, I started with Medtronic. But I've always had. And that was like the first pump that came out. And it was like, the best at the time. And then I've had probably three Medtronic pumps at this point. And I got on their first VM when it first came out. I hated it. It was like the worst thing ever. It was always wrong. And so I stopped I stopped using it. I had a really bad experience with fans, basically. And I was like, No, I don't trust them. They like do worse than you know, because I'll like treat a low when I'm not low kind of a thing. And then I got on Dexcom when we decided we wanted to get pregnant. And so I wanted I wanted to get my agency down. I wanted to know like I wanted to be in control because you know, to tell you that you want your UNC a certain amount before you even try to conceive so yeah, and I've never ever got off of it after that.

Scott Benner 44:25
Nice. Yeah, I mean, my understanding of that, that early on Medtronic sensor, the CGM that they had was just that it was terrible and like, yeah, I think anything that I've heard people describe as a harpoon is something I would try to.

Sarah Gallo 44:44
Yeah, I mean, I was on there. The first thing they had where it was like where it for, I want to say three days, but you can see the readings that the doctors could like you would, you would take it back to them and they would see what your blood sugar's were. Yeah, the whole time. I tried that. Like, you know, they did that in the Beginning and then we switched over, whatever, whenever they came out with the first one. My dad's always been really big on like the newest diabetes technologies. As soon as like a new pump with a new thing came out. He was always like all about switching to that one, even if it's not what I what I wanted, like, I'm fine with MDI. And he's like, no, this is better.

Unknown Speaker 45:20
And better at it.

Sarah Gallo 45:22
It was it was out here, there's more tools that we can use to help. So we always try, like the newest thing that came out. And yeah, I just I hated I hated the Medtronic CGM I, I've been on I've been on the, you know, whatever version of Dexcom has been out ever since then we're on. I'm right now looping with the G six, and old Medtronic legacy pump, which is the same pump that I met my husband through, ironically,

Scott Benner 45:51
met your husband through an insulin pump.

Sarah Gallo 45:52
Yeah, that's how we met. I was in the Peace Corps when we met. And so nobody there knew what an insulin pump was or what diabetes was really, that actually ended up being my project. And the Peace Corps was working with the Diabetes Association to help break the stigma around type one around there, ironically. And so he, I want to say I was walking into a building and he was walking out the story is always better when he tells it for the record. And I was I think I was bolusing. And I was I was holding my palm. And he looked at me, he was like, Hey, nice insulin pump. And I was so excited. Because I was just like, I just been fighting. Like, why? You know why diabetes needed to be something that was talked about? And like, then here, there's, there's somebody that I already knew what it was, and I was like, How did you know? And he pulled his insulin pump out, which was like, the same one as mine. And we just never stopped talking after that. That's really cool.

Scott Benner 46:50
And oh, wow, I did that sweet and simple and easy. And you're nowhere near home. And, and that still happens. And you guys, how long have you been together now?

Unknown Speaker 46:59
Um, we I know I'm taking

Scott Benner 47:01
a risk. Yes, you have a date related question.

Sarah Gallo 47:06
We've been married seven years, but we've basically been together for nine.

Scott Benner 47:09
Okay, that's really sweet. That's excellent. So you, you said, you said a couple of things that, that I'm gonna like, circle back around on. So at one point, he said, I guess like to start, tell me a little bit about your, your background. So tell me again, where you grew up? And

Sarah Gallo 47:27
a loaded question. Um, I was born here in orange, California, I moved back to the black side, which is where my parents are originally from. When I was seven or eight. I want to say eight. And we lived there for about five years, we moved back to closer to my grandparents. And then my dad, job moved away, where we lived for another five years or less I did when I graduated from high school, moved to DC for college, left for the Peace Corps, and then finally moved back here to California.

Scott Benner 48:08
Okay, and can I ask like, what ethnic background Your parents are? And I have a reason for asking if you'll, if you'll go to the Pakistani. Yeah. Okay. So how much of like, so it's interesting, you said that because I live in a community that is there's a fair amount of Indians and Pakistanis near nearby. And when you said your father was like, This is the newest, this is the best, we should use this that struck me very much to be in sort of the way a lot of my friends think, who are have had that background. And I was wondering if that's something like, was it just around diabetes? Or was it was your dad is your dad sort of like that, to begin with?

Sarah Gallo 48:51
He is an engineer by background. Um, so he's all about, like, technology is his thing. And he always I mean, he, he's always got, he works in telecommunications, now, or he did. He's kind of switched around what he's done. So he's always been like, the newer phone, and this is the newer, you know, whatever technology is there. That's what he's always been excited about. He's always been in that field. for him. Tech is kind of like, a thing. And it was something he felt like he had control over and how he could help.

Scott Benner 49:23
so and so and so also then kind of thing in the thought for a second, he talked about stigma around diabetes. That's also something I'm now seeing. It's in the Indian community, but with type two. So a lot of a lot of Indians are sort of developing type two as they get older, but none of them really appear to talk about it too much. And, and they are really hesitant to move away from kind of cultural foods that I think they know they shouldn't be eating, right, that they just sort of, it's this very, they're so proud of their culture, that it's just like, Look This is what I eat. And so I see it's not good for my blood sugar. But, you know, if I got to go down with the ship, it's very reminiscent of, of type two in the south really in like the 70s and 80s, where like we drink, you know, I drink tea with sugar in it. That's what I do. And like, so it's like how I grew up. And it's hard to break away from

Sarah Gallo 50:19
hard to break habits. And I always feel bad for people that are diagnosed later in life, whether it's, you know, adult onset type one or type two, because as hard as childhood Davies's, it's easier to change habits earlier on. Yeah. Versus like, this is how you've lived your entire life now do things differently.

Scott Benner 50:41
Yeah. I mean, I brought it up. Because I imagine that, you know, you don't have to be from Pakistan to have something about the way you grew up that influences how you think or how you won't change, you know what I mean? Like there's, everyone's got something culturally that they are, you know, attached to, and don't want to get away from. And it's just, I don't know, I want for everyone listening to realize that, that it's cool to want to do what you want to do. But at the same time, if what if what you've been taught or what you've grown up with is moving you in a bad direction, then you need to get away from it. You need to do what you know, Sarris husband does just he's like, I don't care. He's like, you know, I'm talking to you, my blood sugar's low, that's over now. Now I'm doing what I need to do. I think that what you need to do, is the most important thing. And I talked to too many people who have the, you know, the situation that you described, where it's like, I wouldn't treat my low if I was in the middle of a conversation with somebody. And for whatever reason, I just, I don't know, I just really want people to be more focused on themselves first and not care so much about what other people think because, like, I always say, like, this, that person that's hassling you, they're not going to be around. Don't be mean like, that's not like, it's not like they're your your spouse, or you know, changing your arm, like you can just walk away from them. In a tougher when you're a kid, and you're trapped in a school with them, but in a real world situation, you're in charge, you know what I mean? So,

Sarah Gallo 52:11
be in charge. Yeah, but when you when your kid kids can be cruel. So like, it's, um, I think that's part of why I might overthink a little bit like how I, I like, make type one normal for eila. I know my husband didn't have that experience. But like, for me, it was like, I was made fun of for a bunch of different reasons. And so I and I've already noticed, like, certain interactions that I was had, where I remember there was this mom on a playground at this like Co Op that we were going to, and she had one of those massive bags of like it was like grandma's cookies or something that are sugar laden and just yeah, you know, from like, they were just awful. I don't even know how many carbs are. That wasn't the point and she was like, handing them out to all the kids and I was blood sugar just happened to be really high. I'm never like, I'm going to restrict what your what you eat. But if you're like 267 double arrows up and you already just ate a snack. There's no need for you to eat that

Scott Benner 53:09
cookie time. Yeah,

Sarah Gallo 53:10
yeah. And so this time, I was like handing them out to everybody. And she is she's not the type of guy to take food from from somebody says this grandma was like holding it out. And she's like, they get tickets with her and she kept pushing. And finally, I was like, You know what, she really doesn't need that like that type one diabetes, and it's fine. Just, you know, stop pushing it on my kid, basically. And then she just like, took them away and made a point of being like, they're like all the other kids like, okay, here I haven't but then she looked at Island back but not used to be hard. These aren't for you. It was like really was that necessary woman like this thing? Oh, my child out make her feel bad. And now she wants the cookies, obviously. because someone's telling her she can't have it. Yeah,

Scott Benner 53:51
yeah. Wait, like, there are so many stupid people. I I wish that could be the episode title of almost everything we do. It just there are just so many stupid people, and you're gonna bump into them, especially when you bring them into your world like that. Where? Because like, look what you were doing. You're like, Look, she's got diabetes, leave her alone. Like, you know, you're trying to give her the reason I'm not being rude to you about the cookie. There's a real good reason here. why she's we're not going to take the cookie from you. Thank you anyway, and then her, her idea of how to make it better, just makes it like seven times worse. It's really fascinating. And at the same time, so incredibly expected. So I just yeah, there's nowhere to run. Sometimes I'll say to my wife, like, we need to move and she's like to where and I went Yeah, that's a good point. Like, we're, we're gonna run to exactly.

Sarah Gallo 54:39
But on the other hand, we've also had, you know, times where I was like on the playground or in like a swimming pool or something and a kid will point it or pot and be like, what's that? Like? What's my pod? Where's yours? Like her? That's just yeah, everyone have fun? Yeah. I mean, she knows that like she has diabetes and and not everyone does, but she also knows that it's not Have it like, there's a balance and to find it, interview me in 10 years and interview her and see if I didn't Okay, job.

Scott Benner 55:09
Isn't that funny. That's what there's something about the podcast that makes me feel like I have to go on forever and double back and talk to everybody again a second time, like a decade later, which that's now my idea that someone else on another podcast is gonna steal, but that's fine. So I, but I think that, um, we don't do that often enough, like, my son and I were in the car the other day and Baseball Draft was happening. And they took some kid out of high school. And I said, I really wish they would just like, keep up with that person. Like, I want to know what happens next. Because you know, more often than not, what's going to happen is they're, you know, drafting a kid out of high school, he's going to go off and not be able to do it, or fail or get hurt. It's just very likely, statistically that he won't play baseball for much longer. But the part that young kids hear is, oh, that guy got drafted. And that seems like the win. You know what I mean? Like, can we never go back and follow up with people. And that's probably where the more interesting stories are. But you need to know the first part of the story to know the second part. And I did. I don't know if you heard me one time, but I interviewed a younger a younger girl, like she was like, 10 or 11 years old. And I said, I think I'm gonna have you back on every year for as long as I do this, just to see how your life has changed. I think there's something incredibly interesting about that. So don't Don't laugh. Maybe I will have you back on when will your daughter's or say, you can come back on and tell us how she's a stripper. And you're

Sarah Gallo 56:42
ready for kindergarten?

Scott Benner 56:45
Well, listen, it doesn't matter. I'm paying for college right now. You're gonna be broke and destitute. By the way it won't really matter. Very, very expensive.

Unknown Speaker 56:53
I always tell people in diabetes supplies

Scott Benner 56:55
just Oh, yeah, yeah, between insulin and college, I get retirement. Yeah, I'm assuming you guys should have six jobs. So you've said a couple of interesting things about like you were in the Peace Corps. Was your husband in the Peace Corps to when you met?

Sarah Gallo 57:11
No, he works in your construction. So you happen to be working on a project down there?

Scott Benner 57:16
I say and, and are you has your whole life sort of going in that direction, like doing things for other people?

Sarah Gallo 57:23
That's what I chose my path Initially, I I suppose I thought I wanted to join the United Nations. And so yeah, Peace Corps was like the first thing that I wanted to do. I worked in the nonprofit space for quite a while. And right now for the most part, my my full time job is being a mom, but I serve on the board for a couple of organizations and do most of my charity stuff through volunteer work instead? Because parenting type one kid this young and then just two and four year old is a lot of work. I know you've been stay at home dad for longer than I've been doing the mom thing. It's hard.

Scott Benner 58:04
It's in if my god i the people wouldn't people wouldn't believe it. I think that don't do it. But yeah, I haven't heard the television on. While the sun's been up in like, since the last space shuttle. That literally is the last time I turned on the television during the day, I thought to myself, I should probably watch the space shuttle launch. So go back to however long ago that was That's the last time I turned on a TV during the day. So let me let me kind of dive into some other ideas here for a second. So just very quickly, it doesn't sound like it. But I want to see, are you and your husband involved in each other's management at all? Do you ever, like bounce ideas off of each other? Is it stay fairly separate?

Sarah Gallo 58:42
Yeah, um, we we are. So I think I'm convincing him to switch over to Luke on the 670 g right now. And he's seen like how great it's been for me and, and he just is not a fan of the Medtronic sensor. We've had enough failures with it. And he's been on calm himself before. So he wants to go back to that. So that's probably the extent I've been hands off since he went on the six, seven AG, because I just I don't know that system very well. And I don't really know how to use it. I've, you know, I've put them in touch with friends who are on it, and had you know, in that way, but then we've analyzed, like, what it is about that system that, you know, makes it work the way it does for him and we've we've talked about it as much as I can without having actual experience with it. And most of our you know, my my help in managing his would be like a reminder to Pre-Bolus or, like telling him how many carbs you're eating and reminding him like, hey, there's a lot of fat in that one. But the 70s he doesn't know how to do that. It doesn't know how to extend the bolus. So instead, it's like, Hey, remember, there's a lot of fat in that. might want to add another 10 carbs in right now. Like an hour later, kind of a thing. I don't have to bet For myself, because I'll just put it into loop. And same for Iowa, but a lot of it was teaching him he. So when he switched to this energy and I switched to loop, which is or at the same time, about like a year and a half ago, we both kind of became a little more hands off, because what we both noticed was that when either I was doing well with diabetes, or he was like eila wasn't. So it was kind of like there was only so much headspace we had for type one. And so that's why we we made those decisions where it was like, we need something else to manage our diabetes, so we can focus on her. And so that's what that's what we chose, he chose the 670 G and I chose Lupe, and we kind of like stopped thinking about our, our own diabetes for a little bit. Because we were able, we were able to do that something else was kind of handling it for us.

Unknown Speaker 1:00:47
Yeah. And trying to figure out we were able to,

Sarah Gallo 1:00:50
yeah, and then we were able to kind of take care of her a little bit better. And then when the Omnipod loot became available, it was like a no brainer, because I'd already been doing it myself for a year that I was like, that's definitely what I want to do with her. And it wasn't like, in all honesty, usually it's like, you know, we would have these conversations about what we think makes sense for her. But it was one of those cases where I was like, this is what we're doing. And you're gonna get on board with it. And he was totally fine with it. Obviously, if it hadn't gone well, we would have would have switched back but but it has. And I think that's probably the the other thing is that he's kind of left a lot of those decisions to me, like I'm the one that decided to get the Omni pod for her. And like fight with insurance because they didn't cover the Omni pod. And I was like, I don't want to put too big on my on my two year old I'm sorry. And like he's kind of left that part to me. And as you know, just trust that I'm I've done my research and know what's what's best in that space. Because he's he's always been kind of like this is what's working and I'm you know, there's no need to mess with it. So despite him having like, I'm kind of going off on a tangent I realized I wasn't adoring him having been like, the reason that I started taking care of myself. Like, before me has a one sees are like seven and a half and eight. I honestly usually hate talking about agencies that I feel like they're not a true testament to how well you're doing because it could be like a balance of a lot of highs and lows, right? Um, but his were his were usually like seven and a half, eight. And it wasn't till like, I started taking care of myself. And we I started getting more involved with him that he brought us down to like 6.5, like between six and 6.5.

Unknown Speaker 1:02:38
And with

Sarah Gallo 1:02:42
I guess I kind of lost track of where Oh,

Unknown Speaker 1:02:43
where? Yeah,

Scott Benner 1:02:45
well, let me ask you then. So when he was more like seven and a half and eight Where were you?

Sarah Gallo 1:02:51
I mean, before I met him, I was like, in the 12. I was but remember, I wasn't taking care of myself. Yeah, sure.

Whatever. I

I was probably once I started taking care of myself was in the sevens, but it wasn't till we tried to we started getting you know, wanting to get pregnant I had been I'd been like in the 655 sevens free wanting to get pregnant. And then after I say I think what changed my mind a lot about my diabetes management was the endocrinologist Iris and an endocrinologist I had the second time around with inara. He was just amazing. He was basically like your I know, you're familiar with loops. So imagine everything that Luke does, he would do for me, like every week, I would meet with him every week. And he would change all the numbers he'd like, sit there and analyze every graph on my clarity on my on my pump and look at everything, and change literally like every hour and my bezels and my carb ratios and everything and just send me home and it would fix whatever was going wrong. And my uncle never been better. I was like, I was a six when I was pregnant, which is really amazing to have all these hormones, like there'll be that good. And that was what made me like change how I thought about I managed things. It wasn't like, oh, you're not trying hard enough. It was like I need somebody to look at the math and tell me like What does and doesn't work. And like the first the first highrisk under I had with eila was like he literally made me cry a couple of times because it was like you need to eat the exact same thing every day. I need the exact number of carbs that it says on this stupid little sheet that says how much nutrition you're supposed to have. And it's like that, that's an insane amount of food. I'm not gonna eat that much. Like a whole it was a really bad story with with my pregnancy with Iowa. But yeah, that was what made me really, really change how I thought about like managing type one and that kind of sent me on that trajectory of like being better and my agencies have been under six since then. That's

Scott Benner 1:04:59
that's really Go in and Islas is working progress are going well or how was it? She's looping now? I guess

Sarah Gallo 1:05:07
we haven't. She's only been looking for a little bit. So we haven't actually analyzed her her numbers, but she was as as we did the Jade study with lube and so she was a 6.4. Last we checked, I think is amazing. doesn't eat what you tell her to. And when you tell her when you're not looking? Yeah. How were

Scott Benner 1:05:31
you doing prior to like prior to that dude, listen to this podcast like were you doing like the stuff we talked about here? Or? No?

Sarah Gallo 1:05:39
I do listen to the podcast. I'm gonna be really honest.

Yeah. I hated you in the beginning. I love that. That's great.

Scott Benner 1:05:47
Why

Sarah Gallo 1:05:49
not? And you because I think the first podcast they listened was the one where you interviewed. I can't remember her name. I want to say, Chloe or not. The Girl with the diabetic alert dog. Oh, okay. And le le and coach for Mom, I talked to my mom. Right? Yeah. And I felt like you were you. You kept saying like, you would never get a diabetic dog. And here I was listening for the first time and I have an older dog. Sorry, I don't know what he's talking about. He's not in my shoes. Don't tell me to like bass Hi. Like, I got defensive. I was like, guys, like, he doesn't know what he's talking about my site. You know, the way we manage it is totally different. I that's how I felt it was like, I felt like who were saying like, you do things a certain way. And that's like, the only way to do it. And that was my like, reaction that was just

Scott Benner 1:06:44
no place. I remember doing that interview and actually feeling weird about doing it. She had approached me about being on and I was at a spot where I was like, I don't like I don't get the alert dog thing. Like I just didn't get it. So I was like, well let her come on. And I'll tell her I don't get it. And she can talk me out of it. And you know, or whatever. Like, let her you know, tell us how it goes. The stuff I don't understand. And it was also earlier in the podcast too, right? Like what? Yeah, it was I was still getting better at Yeah.

But that's cool. So but you stayed? Did you just want to like tune back in and be angry at me again? Is that what happened? Funny,

Sarah Gallo 1:07:22
it's so funny because I like I think that was the first one. And I was like yelling as I was listening. I was like washing dishes and it was like on on the speakers and I was like yelling at you. And then I like I think like a week later, I was listening to another one. And I was yelling at you again. And my husband was like,

Unknown Speaker 1:07:38
why are you still listening to this guy if you hate him so much. And I was like,

Sarah Gallo 1:07:44
I was like, I just I kept listening. And then yeah, eventually just like learned your personality. And I was like, Yeah, I bet you this is not gonna say I'm gonna like get my bloods gonna boil for a bit, but I don't yell anymore.

Scott Benner 1:07:57
So nice. This is a very interesting difference between, like us, you live in California, and like this place where people are just so nice to everybody all the time. And I just I don't know. Yeah, I just don't I'm not that nice. So, I mean, I, I'm not not nice. I just don't have the ability to talk around things. I don't know what that means. Exactly. That my wife's like, you know, there's a nicer way to say that. And I think, yeah, it takes up so many words. And then you know, like, let's get to the point. But I appreciate that you're still listening. I think it is an incredible testament that you really were yelling at me and your home and still listen to the podcast, I would I would accept that as a as a beautiful review. And thank you for

Sarah Gallo 1:08:38
and then in the beginning, it was like I can't stand on but these people is interviewing like, that's, that's what kept me because it was like, I want to hear what this woman has to say or I want to hear, you know, whatever it was that you were that you were talking about that day. And then eventually, it just listen to all of them because I is a dictate what we listen to in their house. But I do wish and I know that other people have asked you this as well. But there was a way to like search by topic. Yeah, like in the podcast app to be like, oh, let's see, I bet Scott has interviewed somebody about this.

Scott Benner 1:09:12
It's tough because the podcast, the way app, the way they all have it set up. It's not that searchable. I understand there's going to be an update to it that will be out by the time this us our conversation goes up that it's going to make them more searchable. It's tough, too, because I very much like the conversations to be kind of unwielding and just kind of keep going. Like you're talking on the phone with somebody. So like, like, here's an example. Tell me right now, if we were going to put it into a description, what's your interview been about? It's not that easy. Yes.

Sarah Gallo 1:09:50
I mean, for me, usually it's like, when whenever I talk to anybody, it's like, oh, the type one times three like to end tends to be family. That's like the gist. Anybody uses like, oh, here's someone living with them multiple pasties? Because that is kind of like we've talked about me and my husband and I, Ella, I guess I know what it would be you and I

Scott Benner 1:10:09
talked, here's what you spoke about in my memory right now, right? This is how I think about it. You and your husband, your daughter have type one, great. Your mom, you know, had some influence that you weren't thrilled about. You met people at school that pushed you away. They may have very well caused you to hide your diabetes, you met a person who helped you to bring it out because they were more open about it. You really started taking care of yourself better when you decided to get pregnant, you've moved into different tech like so I don't know how to. I don't know how to quantify. Right, right. And I don't want and here's my concern, is I think you said a dozen really valuable things in the last hour. And if I pick one of them and tell somebody, that's what the podcast is about, and they are not interested in that, then they're not going to hear the other 11 things you said. And that's Mike. That's why I make the podcast descriptions vague, because I figure you'll get in there and try to find out what it is to you. Yeah, I just I don't know. And and if I said to you, this week is about red, and next week's about blue and next week's about yellow, I'd get bored with that. And I wouldn't listen. So. I don't know. It's just my brains broken a little bit, I think. And I'm in charge. So this is what happens.

Sarah Gallo 1:11:31
Fairly fine. It works. I guess that is only sometimes where I'm like, Hey, I wonder if he's already talked about this?

Scott Benner 1:11:36
Oh, no, I hear you. I am I do, honestly, I mean, being 100% serious. I wish there was a better way. And I'm hoping that what Apple's about to implement might help that because apparently, they're going to index all of the words spoken in the podcast and make the make the text searchable. Somehow, I don't know

Sarah Gallo 1:11:56
what that sounds like. It's gonna complicate it to the level of like, needing to know SEO for podcast. I don't know.

Scott Benner 1:12:01
I don't know what mad genius is gonna either get that right or screw it up. But I'm interested to see what's gonna happen. So. But one way or the other, you're saying that the frozen urine of diabetes was not a good title for an episode?

Unknown Speaker 1:12:15
I mean,

Unknown Speaker 1:12:17
it made me gag.

Scott Benner 1:12:21
That's great. All right, listen, is there anything we haven't spoken about that you want it to?

Unknown Speaker 1:12:30
my notes.

Scott Benner 1:12:34
One day, I'm gonna make notes. But not today. Although I did write something down. I wrote down to one sibling interview, because you said something earlier that made me think it might be really interesting to talk to an incredibly open person who grew up with a person with diabetes and didn't have

Sarah Gallo 1:12:49
that would be really nice. So that's a perspective, I'd be really interested in hearing. Um, I was gonna say, if I listened to your interview with Amy from Omnipod, the other day or from a flood, and she said something about, like, you know, she has a unique experience speaking to other you know, adults with type one, and most people don't have that and how, like, she specifically said, you can never be both. And I like I like, like my hand up in the air as I was driving was like, Yes, yes, you can, you can, like understand being a parent of type one, and also having it yourself. And the one thing I like to tell any parents that I meet with kids that have type one who obviously don't, you know, they don't know, what it's like to have type one themselves, is that being the parent is much harder than being the one with type one. So like, I lived with it all my life was not half as big of a deal, as it was when she was diagnosed, like, what you're going through is way harder than what Arden is going through. In my opinion, well, that's good to know. Like, usually makes people feel better. Yeah,

Scott Benner 1:13:56
that's definitely good. I can see that, like 100% can see it from that perspective, and you have obviously a unique perspective, being a person who has it and is now the parent of someone with it. So I'm going to take your word for it. I and it absolutely makes sense to me that whatever a person's going through is just sort of normal for them. You know, and that's got to be the hope a little bit right that, yeah, I have diabetes, but it's my situation and, you know, I'm okay. It's going okay, like your I love the way you describe how your husband talks about it, just like this is what it is. And this is what I do. And you know, that's it.

Sarah Gallo 1:14:34
That's like a man thing because my dad was very similar. It was basically like, I remember my mom would tell, like my sister, my cousins or whatever to like, eat ice cream in the other room or something like that. And my dad would be like, no, why should anyone else do things differently? Like she's just gonna have to learn to deal with it. Don't make other people do things different around her. And my husband's kind of the same. He's like, it is what it It is cuz like he cried when she was diagnosed. And that's about it. He's never been upset outside of that. And I like I'm the one that gets emotional over like hard slight changes, or blood draws or whatever. And are random guys

Scott Benner 1:15:11
on the internet that you don't agree with?

Sarah Gallo 1:15:16
Not random anymore, though. Thank you. And

Unknown Speaker 1:15:20
you just like,

Sarah Gallo 1:15:21
yeah, it's hard, but I can't do anything about it. So why get upset about it? That's his attitude is like, if I can't change it, I'm not gonna dwell on it.

Scott Benner 1:15:29
Yeah, I feel like we talked about that with Amy, cuz you brought up Amy from insulin. I feel like I talked about that with her like is there is just sort of a guy perspective. Sometimes we're just like, this is what it is. Let's just keep going. Who cares? And, you know, maybe that's a defense mechanism where you don't want to deal with how you feel about things. And maybe it's a survival instinct. You know, I have no idea.

Sarah Gallo 1:15:53
I think it's a thing where men feel like that, and I'm totally generalizing here. But men usually feel like they need to fix things. And if they can't fix it, then it's either not broken, or it's just we're gonna ignore it.

Scott Benner 1:16:05
Yeah, we're not that bright. I hear what you're saying. But, you know, you can't make babies without us. So guess what? You're stuck? No, that's incredibly valuable. I can't wait for someone a year from now to come on to tell me about this stuff that you said that they disagree. I

Sarah Gallo 1:16:26
think that that was my biggest issue with listening to the podcast in the beginning was it was like, I'm a really big proponent for your diabetes may vary. There's a reason for like quite a while all three of us are on completely different systems, different influence different CGM, like everything was different. Because that's just what worked for us, like I was on MDI, and no sensor for a while. And that worked for when it worked. You know, I just, I think, the one thing I want people to know is that there's like, no right way to do diabetes, it's like you will figure out what works for you. And, yeah, it's not based off of necessarily what a doctor will tell you, because they'll tell you what they know. But they might they don't know you, they don't know how you live, they don't know what time you wake up or what labor what days you exercise or don't, and how that impacts like, everything is different for every person. So I think that's like, the thing I want people to know is that every, everyone's different, not just like, your bezels are different. But like, everything about your life is different than someone else's. And that unfortunately, diabetes has like how many variables so I can impact your blood sugar's there's no right way to do it.

Scott Benner 1:17:37
And so I 100% agree with you. And I think that, but there's probably times where I come off, like I'm saying, No, no, listen, it's just about how the insulin works. And it doesn't matter. Like the other things don't matter. The other things do matter. They just don't quite, in my opinion, matter as much as understanding how the insulin works. And so I, this is a long conversation, this podcast is it has to be like, it's not just an hour or a week, or a month or a day, like, in my opinion, you need to listen through all of them as best you can to hear one person say what you just said, and then hear another person say something different to find out that they both are having success or failure, you know, and it looks different. And how can I adjust? It's just, I just realized, at one point that people's expectations of sharing online are from blogs, and in a blog post, you can start off by saying all that stuff, your diabetes is going to be different than someone else's. And don't forget that this is dangerous. And this is, you know, you don't want to do this first. No, you know, you know, somebody will say you use a pre buy Temp Basal, but don't don't suspend your insulin, because then your pump won't show up at all the like, once you get done safety in all of your statements, a no one's reading it anymore. And be it's so incredibly long. It's not, it's not absorbable. So I just thought like, why don't I just say to myself, okay, there's gonna be times I'm going to say something on the podcast, and there's probably nine addendums to it, I should be adding, but I'm not going to, I'm going to just hope they listen next week when that comes up, or that they heard it two weeks ago when I said it the last time because because I think that we just weren't pushing hard enough. Like with the way people were writing about it, because I used to write about the same way too, is very careful about everything and measured. And what I can tell you for certain is that when I was just blogging, I would get a note every once in a while, every few days, maybe a couple times a month, hey, the blog is really helping me I appreciate it. I wanted to let you know, those notes now come six to 10 times a day. So there's something about this, that if you stick with it long enough, it'll get to you. And I don't know what it is. And I'm not even taking credit for it. I just it was my idea and it seems like it's working out more or less and look, you hated me and you still listen so I must have been Don't do something. And I just think that there's a bigger, there's a bigger thing to consider around all of this than what you can just maybe put into 300 words. And that you're going to have to resolve yourself to the fact that you're not going to learn it all in a day or in one sitting when, you know, that kind of a thing. I don't know if any of that made sense or not.

Sarah Gallo 1:20:21
But it does. I mean, at the end of the day, your podcast is an opportunity for people to have, like a diabetes community that doesn't involve just reading words, because I think tone is lost a lot in in text. And having a view into conversations with people with type one, especially for the people that don't have a really big, like, diabetes community around them, I think is, is extremely valuable. Not everybody has

Scott Benner 1:20:48
the ability to be a part of that for multiple reasons. It could be the time they have, it could be where they live, whatever it is. And you are giving people that that opportunity to be a part of something without having to leave the comfort of their home or their car, or whatever it is. It's amazingly interesting to me, when somebody will say to me, you know, what is the podcast about I'm like, Oh, it's about how to use insulin. And then someone will come up to me and tell me that for them, This podcast is a community that they didn't have otherwise. And I think, wow, that wasn't even my initial intention. But look, it ended up being that thing for that person. And so whatever it ends up being for you, whether it's a community or a way of using insulin, or somebody yell at whatever it is, it's like, to me, it's great. You know, like, if it does any of those things or other things for people, I'm happy about that. So anyway, I now I'm gonna get emails from other people are yelling at me in their house, but that's fine. I'll take that.

Sarah Gallo 1:21:42
Sorry for giving people permission to yell at you. No, no,

Scott Benner 1:21:45
no, please. I'm married. I'm okay with being I be disabled. Goodbye, because we've been at this for a long time. And then I'm gonna I'm just gonna tell you, thank you privately. We're not being recorded. So thank you very much for coming on the show. I appreciate

Unknown Speaker 1:21:59
you having me.

Scott Benner 1:22:03
Huge thanks to Dexcom ami pod and touched by type one for sponsoring this the 300th episode of the Juicebox Podcast, the Juicebox Podcast, the Juicebox Podcast, and thanks so much to Syrah for coming on and telling the story of her family with Type One Diabetes. It is not too often we're going to get someone who is the spouse of someone living with the mother of someone living with Type One Diabetes. She's like the trifecta. She is the trifecta. Oh my god. Syrah is the trifecta. I just thought of the title for this episode.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

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#299 Ask Scott and Jenny: Chapter Ten

Answers to Your Diabetes Questions…

Ask Scott and Jenny, Answers to Your Diabetes Questions

• Can a fast drop in blood sugar values affect your health?

• How do you help your body recover from a high?

• How do you know when to adjust basal rates, correction factors and insulin sensitivity?

• Let’s talk about basal to bolus insulin ratio.

• How do you figure out what type of insulin to use?

• What are the impacts of diabetes on your dental health?

• What is the best insulin pump for you and how do you choose?

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello, everyone, welcome to Episode 299 of the Juicebox Podcast. Today's show friends is sponsored by the Contour Next One blood glucose meter, this is the meter my daughter uses, it is incredibly accurate, easy to carry around. And if you go to the link right now that's in your show notes are the one that's at Juicebox podcast.com. And click on it, it will take you to Contour Next one.com. When you get there, top right corner, there's a yellow button says about getting a free meter, click on it, scroll down a little bit, fill out a little bit of information. And you're on your way. There are some limitations and restrictions that apply. But it'll only take you a second to find out if you're eligible. If you're not go to your doctor and be like, Yo, I want to try the Contour. Next One write me a prescription for that. Think about it. How long have you had that meter that you're using? Is it old? Is it out of date? Is there technology that exists? It's better than the one you're carrying around right now? I bet you there is. And I bet you it's the Contour. Next One.

Welcome back to another episode of Ask Scott and Jenny. This is sort of a super sized episode. What are we going to talk about today? Among other things, how to help yourself coming back from high blood sugar. When should you adjust your basal and bolus rates, different types of insulin the impact diabetes can have on your dental health, which sounds boring, but isn't. And Jenny talks about insulin pumps, she kind of rates them it's fun. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. And if you'd like to get Jenny Smith, working for you go to integrated diabetes comm and click on Jenny's email address. Actually, the email addresses in the show notes. It's the Juicebox podcast.com On this episode, and all the episodes Jenny's involved in so you just want to email Jenny and say something like hey, Jenny, I'd like to hire you. And then you'll start that conversation with her. Now you guys ready? Here comes don't? Don't it's gonna jump up now. Done ready?

I haven't asked Jenny question. My wife met somebody recently, who said that their adult child lived for a fairly long time with higher elevated blood sugars higher a one C, they kind of pulled themselves together, all at once out of nowhere, got it come to come down quickly, but then had like neuropathy problems that the doctor told them was from a fast drop. I'd love you to explain that to me, because I only heard that one other time, but not even put that way.

Jennifer Smith, CDE 2:59
And from the physiology standpoint, I mean, I'm certainly not a neurologist or anything to explain it from the physiology component. But it's the same as I think not that long ago, we had talked about changes in AI as well, with really fast changes in blood sugar. So it's the same thing it's your body has adapted to the high values. And as such, the neuropathy if it was probably there, as well as probably getting worse along the time of the blood sugars being too high. Now with the quick change in blood sugar. The change to how the sensation of those nerves are, I guess, feeling things because of the change in the glucose level, which has been impacting the health of the nerve cells. That's what brings on a more significant and more profound pain than they may have been living with when their blood sugar's were just high.

Scott Benner 3:59
So is that a bit of a false narrative then then the queen? Yeah, it was coming anyway, it might have just come a little quicker because you took this thing that your body was accustomed to, and so greatly changed it

Jennifer Smith, CDE 4:11
and greatly changed. Exactly if

Scott Benner 4:13
I'm diagnosed today with an 11. And I somehow end up with a five, two months from now, I'm not going to give myself neuropathy.

Jennifer Smith, CDE 4:23
No, no, no, the neuropathy was there to begin with the pain symptoms were something that were exacerbated essentially, because of the major shift in glucose that the body was not used to again it I mean, it does take some time to bring blood sugars down and you know more power to the person who was like gosh, I can't live with you know, 400 blood sugars anymore. I'm going to get them down to be like 150 Now instead, but still, that's a major shift for the body to handle. If you do it all at once great but you you may have some of those typical symptoms like again, you may have major shift in the way that you see things, you may think that you are seeing things great when your budget was at 300. And now one is down in normal, now you can't see anything, we have to give your time your body time to a climate to that new, what is healthy value, and then go see the doctor, if it doesn't. If it doesn't get better, you know, within like a month or so of being in target. Same thing with the neuropathy. While it may help to go and see, you know, your neurologist, or whoever's helping you to manage that, likely, they're not going to change too much other than potentially maybe prescribing some additional pain management strategy for you until the glucose levels are stable enough at that target value. And the symptoms kind of go away, or they come to a more normal stable, you know, range. And at that point, then of course, they're preventing further further damage from happening. So okay,

Scott Benner 6:01
well, I'm keeping stuff together here in a little bit of a blend. So elanco wants to know about helping her body recover from high blood sugar. So she's just talking about I think, a day, you know, where you have six hours and you're elevated, and you finally get back down? Is there something she could be doing to fortify yourself to feel better sooner to? Like, I don't know, like other than hydration, I wouldn't know what to say. Like, how do you make that blog go away?

Jennifer Smith, CDE 6:27
Yeah, if it does, it takes some time. I don't think there's necessarily any one cut and dry kind of strategy. Hydration certainly is a big one. Absolutely. Also, you know, if things like regular food intake, or snacks, or even activity, sometimes those can sort of help you clear. That mental fog, as things are changing to even just getting out in sometimes the fresh air and getting a walk and getting movement and whatnot can help as well. So

Scott Benner 7:05
is it a diabetes thing and more of just a human thing? Maybe because you've been put through this situation. And now you got to kind of bounce from it's like, almost like, I guess, like being sick. And then you wake up and you're like, Oh, you have that weird, like, lost feeling. I don't know what being obviously, I don't know what being high feels like. So my job, I just know people's descriptions of it. Okay, let's see, I feel like we've said this before. But correction factors, and insulin sensitivity, basal rates? When do you

Unknown Speaker 7:40
adjust? Like, like you said, when you know what? To a job?

Scott Benner 7:44
Yeah, yeah. Well, when do you When do you know when to adjust? Like, let's say, you know, it's your base, or, you know, it's your insulin to carb ratio or something like that? How long do you wait before you save yourself? This is my new normal, I need to make an adjustment in my pump to cover this is it? To me, this is another one of those like somebody wants you to tell them how much time? I don't know how to answer that. Like, I know doctors will tell you what three days is that sometimes

Jennifer Smith, CDE 8:09
even longer than that some doctors want like a week's worth of data to see that it's a definitive trend. I mean, I usually, I usually say, you know, if you know that, now, all of a sudden, whatever reason is happening, you're waking up at 150, when you used to wake up at 100. And it's been happening in the last three nights, and you have literally not changed anything, clearly something changed. So go ahead, make a change to the Basal or if you're kind of wary about changing your profile set at Temp Basal. In this instance, set a Temp Basal increase at bedtime of a certain percent and see if it hits the mark. If you wake up where you were great. Go in see how much the pump was delivering based on the temp you instituted and make that change into the Basal profile.

Scott Benner 8:54
Great. I would say that this is one of the things that led me to say things like more insulin, because I just kept looking at these scenarios like Jennifer's talking about here. And I just thought there's not enough of a rhyme or reason to this, that I can say to myself, okay, what I'll do is I'll wait X amount of days every time this happens. So just I just decided like, I'm gonna stay fluid. And if it's like this today and tomorrow, great, and if it changes, you know, the next day, right, what am I gonna do? I know, I'm, I'm gonna have to do what I have to do.

Jennifer Smith, CDE 9:31
Right? I mean, sometimes it takes I would say, for me personally, I always look at things after like a two day, you know, if it's tonight, for some reason, in the morning, I wake up in the morning higher than normal. And that's one night, I don't know. Let's see. I'm gonna go to bed at my normal rate where I would usually go to bed. If I see a rise again overnight tonight, in the middle of the night, if I wake up, I'm probably going to pop in some change of some kind, just that I don't wake up high again. And tonight, then I'm going to say, I'm going to go in and change my Basal profile, I'm not going to deal with this, right, I'm not going to wake up to alarms and alerts if I don't have to. And you know what, if I end up dipping down, then well, just two nights that I needed some extra insulin. And I'll go back to what I needed. But an overall change, usually, most people have had diabetes, a number of years, kind of get this intuitive sort of feeling about something has shifted, I know that something has shifted, I don't know why it shifted, I just need, quote, unquote, more insulin.

Scott Benner 10:37
Put that in there. I genuinely think that that's, that's one of those scenarios where you just have to, you just have to stay fluid and take care of it. You know, right? It comes. Because I would rather because I know what the fear is, right? Like, what if I turn it up, and then all of a sudden, five days now that causes a low? In my mind, that would be another time to adjust? And at least for the last five days? You haven't been high? Right? You know, I think it's all in the way you want to look at it. Right? Hey, welcome to the new age of smart diabetes management. Welcome to the Contour Next One blood glucose meter. By integrating your blood glucose meter with a smartphone app, you can simplify the management of your diabetes, blood sugar results captured through the day can be automatically synced and logged in over time, the results may create meaningful insights into how your activities affect your blood sugar levels, which can help improve your understanding of your diabetes. All of this while being on the same platform you use for so many other aspects of your life. Yes, smartphone. So check out Contour Next one.com. There's links in the show notes and a Juicebox podcast.com. That'll take you right there. When you get there, you're going to find out about the simple to use, and remarkably accurate Contour. Next One smart meter, and the contour diabetes app. It seamlessly connects via Bluetooth technology to capture all of your blood sugar readings, and help you to manage your diabetes smarter. When you combine the Contour Next One meter with the contour diabetes app, you're going to have a smart system that allows you to engage the level that is right for you to manage your diabetes. All right, so head into the show notes, hit the link, check it out, some people will be eligible to get the Contour. Next One meter for free. There's a little yellow box at the top of the page, check it out, you might be the one where if you'd like to talk to your doctor about the Contour Next One meter, just be like Yo, I want to use the same meter that the guy on the podcast kid uses. And then tell them it's the Contour. Next One, you will not be disappointed this meter or rocks. Please use my link. It's available at Juicebox podcast.com. We're in the show notes of your podcast player. Okay, very quickly. I'm not going to seem to make sense when I start talking in this next bit with Jenny. But what happened was while Jenny and I were talking Arden's pump ran out of insulin at school, and Jenny and I took a break, I ran across the street, and we changed the pump real quick. Right? So now that'll make sense for you. Ready in 5432 you have to be a little impressed.

Jennifer Smith, CDE 13:17
I'm actually really impressed. Like, your school literally must be like right across the street.

Scott Benner 13:23
It's um, that's pretty close. It really is across the street, right? it's it's a it's a four minute ride. You know, she met me in the office, we rolled down to the nurse and and bing bang, boom, I'm back. So eight. I think I think I was going for 18 minutes total. So

Jennifer Smith, CDE 13:42
yeah, it wasn't long. So awesome.

Scott Benner 13:45
Next time I do an on the pot. And I tell you, you can swap it on the pod fast. you believe me? We've done Arden's on the bench of a softball field. Keep the dust away for a second, right. Anyway. All right, I think we can get through a couple here. Okay. I like this one. Tara wants to know, about bazel bolus ratio. So she says that her endo tells her you know 5050 but then Becky comes in and says we're 30% bazel 70% bolson. Are those fine with it? I feel like I'm gonna say if you are too heavy on the Bolus side, you're probably bumping in nudging too much. And you could probably get some back from Basal. But what is the like why do people say well, what do you say? Because I've heard 5050 to

Jennifer Smith, CDE 14:32
5050 is a starting place It really is. And that's why endo is kind of look at that as a place to start with potentially where adjustments might need to be made. But you also have to consider some other things from the standpoint of like, metabolic bazel insulin need, what I've seen in practice, and seems to you know, be kind of correct is that If you have a pretty active lifestyle, metabolically, you are probably more at an appropriate body weight, and you will respond to insulin better. So sensitivity will be higher. So from a standpoint of background bazel insulin, your basal insulin and an active life may actually be less, you may be kind of one of those people whose bazel bolus ratio is more like 4060 40%, coming from bazel. Because without food in the picture, your body just responds nicely to insulin, it could even be more than that. Maybe it's 35. Or you know, whatever. More commonly, though, for most active, it's about like 4060, give or take kind of thing. On the opposite of that, if you have a really busy life, but you're mostly sedentary and you really are only able to get to the gym once or twice a week, you're probably on the other end of that you probably have a higher metabolic need, because your body's just not responding as well to insulin. So your basal needs may be a lot higher. And it may seem like your boluses aren't really that heavy, then, as far as like an analysis, another good place to look is at the breakdown of your bolus insulin, like how much of your bolus is truly derived from just covering the food that you're putting in. And how much of it is actually corrective. Because if you're constantly like you just said, if you're constantly nudging, by correcting with little bits, because it's just not getting down to target, it may very well be that your background is also not high enough, it could be that you're covering with more Bolus, because in the back, there's just not enough there to keep you you could be using more Basal,

Scott Benner 17:00
right. And so there's a lot of different scenarios. This is interesting. So you know, your activity, if you were a person who didn't need very much bazel to keep you stable, but you had big meals, you might even see a swing like that. Right? Right. Right. So then there is no right ratio, there's no correct ratio, there's a correct ratio for you. But there is a way to check to make sure, hey, let's make sure that we couldn't be doing some of this with Basal and take away some of that bumping in. And I think that's specific to people who listen to the podcast, like the bumping and nudging is great. But if you're bumping and nudging, and your kid puts on 10 pounds, because they're growing, you're going to just keep pumping and nudging when you should be thinking more based

Jennifer Smith, CDE 17:43
on a problem or bazel. Exactly. Yeah, yeah. And you're right. I mean, from the standpoint of somebody who, like I think I commented, I don't know when we talked a couple times before about mango man. He's a type one who is an expert in like nutrition. He's got like a PhD. I don't, I don't remember too much more about him. But he, I mean, he eats like hundreds of grams of carbs in a day, but he's also really, really, really active. And so I would, I would estimate that his Basal needs are probably pretty low. But his boluses are probably fairly big, given that he eats so much carbon at a time. And then it covers it, and it drops him back down to his target. And his bazel holds him there until the next time he eats you know, 200 grams of carbs.

Scott Benner 18:36
I think that that makes 100% sense. And I think that is the clarity for this question. So I think we did good there. Okay, so here's one that I don't know that there's any truth to this one. Katherine's asking about figuring out what type of insulin they should be using. And I know that technically, there's not a big difference between the insolence right, the fast acting insulins, but some people do see differences differences when they use them. But is there anything that we could like literally say, like humalog novolog, a Piedra? Are there fiasco? I mean,

Jennifer Smith, CDE 19:16
are there discernible differences between them? I mean, the fiasco obviously, there, there should be a discernible difference with fiasco. If you get response by using it. Yes. For the most part, the two that are the most similar and action that I would say a good majority of people who've switched between novolog humalog novolog because now their insurance covers it up. Now you're covering human logs. So let's switch you back. They usually don't notice much of a difference in its action. There are people however, who do notice a difference. I personally don't notice the difference between novolog and human log at all. I tried to Piedra and it it didn't work the same for me at all, I especially noticed it when I was using extended boluses, it just didn't have the same emphasis or work the same in an extended fashion as my human log normally did. I've got a friend who she knows that if she's on human log, she uses more insulin on human log than if she goes back to novolog. She knows that. So I, you know, definitively again, majority of people don't notice much of a difference novolog to human log, I think the two outliers there, a Piedra may work a bit differently for you. Again, there are people who can use interchangeably all three of Piedra novolog, humalog and have no difference whatsoever. fiasco is kind of in its own category, really, I think there is there's a definite difference, mainly because it's action is faster. And then there are some people of course, with ABS, but it works great, like me, worked for five months, and it was done. It didn't want to work for me at all anymore. I'm done. That's it. Yeah.

Scott Benner 21:04
I you know, I would say for Arden, she used novolog. And she she used a pager. With novolog, we saw a ton of like double arrows up double arrows down, you know, big spike after a meal, then a crazy crash later kind of a feeling. And for Arden, I've only ever been able to explain it that a PG appears to just work smoother for her. Like it's just more constant and it and predictable for me. And that's it. You know, I don't know that human log wouldn't be better. I never tried it. Right. And and you know, people all the time, like, you know, don't you want to try fiasco? And I'm like, Well, I don't I want to hear about fiasco is that it works for the people it works for and others don't. And here's the other thing about crowdsourcing this information, right? It's that we don't know everybody's other details that they don't share with you like, oh, you're all you see someone line who says, human doesn't work for me. They don't say, by the way, human doesn't work. For me. My blood sugars are mainly in the 250s. Most of the time, I eat an incredibly carb heavy diet. And I don't have a CGM, like you don't mean like, they don't give you all the details about their life. They just say something like, you know, I didn't like that television show. But you know, you don't I mean, like, you don't get enough of the details to know why crowd sourced information is tough sometimes, because it lacks the details that you you often need. The one thing I'll say is that it can't hurt to try, you know, a reasonable endocrinologist should let you try if you want to. Right, Arden did need more a pager than she needed. novolog. So her ratio went up a little bit when we switch,

Jennifer Smith, CDE 22:42
but it worked better, but it works way better, less spiking, dropping. So yeah. And I think that it takes evaluation, you know, if you if you have a sense that there are that there's something that just doesn't seem right. Ask your doctor for, you know, as many doctors have some sample bottles, ask them for a sample bottle of the opposite type of insulin and see if you don't get better response from it. I mean, if and if you don't notice anything different well, then maybe something in your settings needs to change or something in your strategy needs to change, you know, but at least you've tried and you've kind of addressed

Scott Benner 23:20
to see whether or not I will just tell you that for Arden with a Piedra I have. I don't I mean double arrow in either direction. I don't remember. Like it just, it just does not happen. So, um, okay. Uh, let's see. We're doing well, by Well, I mean, we have time left. That one seems like it's a little too much for now. Let me uh, that one's pretty obvious. I could get answered there. Oh, okay. Here's a pretty simple one. What are the impacts that type one diabetes, if any has on your dental health?

Unknown Speaker 24:03
Um, well.

Jennifer Smith, CDE 24:06
Overall, we know that diabetes can affect most places in the body. Here oral health included. People with diabetes more commonly have a potential for bleeding gums, more ginger vitus gum diseases, more potential for receding gums. And, you know, the interesting thing about it is it seems to be for the most part, the higher blood sugars again, can cause more oral health problems. So long story nutshell short, just keep your blood sugars contained to try to avoid dental problems. Does it mean that everybody with diabetes is going to end up with some type of gum disease because of, you know, mismanaged blood sugars. Not necessarily, you know, but it is certainly one of the potential, I guess complications of, of life with diabetes. Now, the interesting thing is, I mean, I have receding gums myself, I've had them for years. But the interesting thing is that, to me, I don't know how it could relate to my blood sugar control.

Scott Benner 25:30
Pills really good. Yeah, it's

Jennifer Smith, CDE 25:31
good. I haven't let my blood sugar's run at like 300 or 200. Even, you know, for years and years. The interesting thing is that it actually started after I had kids. In fact, I didn't have my first cavity. until after I had a child. And my I asked my dentist about it actually, at the time, I was like, are you sure there's a cavity there? Are you sure? Like, I've never had a cabinet in my whole entire life, you know? And he, he said, Well, interestingly, we do know that the oral health of women during pregnancy, because of all the hormone changes, there are some things that can impact like the natural bacteria in the mouth of a pregnant woman. And so he said, it can provide a better environment for bacteria to start causing

Scott Benner 26:19
problems. That's a technical way. Yeah, let me let me tell you what I've witnessed in my life, making a baby drains the life out of you. And for women worse, your feet get bigger. That's not a good thing. anybody whose feet get bigger while they're pregnant, it doesn't go back. So congratulations for that one. And I just think of it as like a demon in a movie that sucks. Like, you know, they go face to face, you can see the life pulling out of like the live person and bringing in the demon back to life. That's what happens. That's what your kids are their life suckers. So um, I will add this, and this isn't specifically about diabetes. But if you are bouncing around on that roller coaster and correcting a lot with sugar, especially overnight, that could impact your dental health.

Jennifer Smith, CDE 27:07
Absolutely.

Scott Benner 27:08
Because you're taking this juice in your mouth. And then it sits in their mouth and gives them cavities when Arden had baby teeth. And we were not good at this. I'm almost horrified to tell you that I think she had they were on her baby teeth. But I think she had 10 cavities one time, like all at once. And you know, she had to, she actually had to go to the hospital to be put under because they were so worried about blood sugar, because we were so bad at her blood sugar back then. You know, like, like now when she goes to the dentist, I'm like, it'll be fine. I'll take care of it. You do your thing. I'll do my thing. Her blood sugar will be okay. But back then had to go to the hospital insurance didn't want to cover it. Yeah, my wife's company actually stepped up and forced the insurance company to do it, which was lovely at the time. It was like a $15,000 bill to put her in the hospital to fix it was crazy. But it was just from the juice. Now. We had it all worked out. And then one time she told me she was sick of the juice she was drinking. But I had found this kind of like impactful juice that wasn't it has fairly natural stuff in it. So I switched her to something else. And in that six months, she got a cavity. And nothing had changed about it. She wasn't using a lot of juice, but that so we switched away from that juice. And she hasn't had a cavity since then. Hmm. So interesting. Yeah, it's not from diabetes directly, but it is indirectly from it.

Jennifer Smith, CDE 28:31
Correct? Correct. And that it's also a hard thing, that overnight component and I'm glad that you brought that part up. Because who overnight really, even as an adult, a knowledgeable adult who wants to treat their low blood sugar and then oh, yep, got to go to the bathroom. I gotta brush my teeth, we got to floss and like chewed on gummy bears, right? Eat the juice or whatever. Nobody wants to do that two o'clock in the morning, right? I don't want to do that.

Scott Benner 29:00
You've already and I do know, some people keep water next to the bed just to swish at least to try to. And that's better than nothing, right? But yeah, to your point. I mean, you're gonna drink juice and then Go brush your teeth. And then imagine 15 minutes later you get low again, a drink some more juice, you're brushing your teeth again. And, and at the same time, you know, to avoid a cavity. Maybe it's not a bad idea. But I mean, I, you know, I'm supposed to take like, one over the counter and acid before I go to bed at night. And sometimes I'll brush my teeth and then I'll take it. I'll be like, oh, like do that for and now again. You know, it doesn't have to be constantly it happens every once in a while, you know? A great while. Okay, well, that's a big question. I'm skipping right over that. We get to that one later. But that's a huge question. That's not a that's not an ask Scott and Jenny. that's a that's a bigger one. Um,

Unknown Speaker 29:56
that's an episode one is

Scott Benner 29:57
a complete episode. I don't know that. I have an answer to any of It. So

Jennifer Smith, CDE 30:03
that's a you need an appointment to discuss this

Scott Benner 30:05
girl again, therapist and six friends. Oh, I see Chris here says that I should just say what are a couple of times so you can make fun of my accent. He doesn't care what we talked about there is satin Jenny as long as I say whatever. And by the way, I've noticed I've never brought it up but when Jenny accesses her brain so when I ask her a question, she accesses her brain to think of it. her left eye closes more than a right eye. And I wonder if she? Oh, yeah, I don't think she knows that. I don't know. It's almost like she's a supervillain. And she's got information somewhere. And she's like, Huh, and she pulls it right out. Because for you guys listening. I don't tell Jenny this stuff up. Like I'm just throwing questions at her. And she's like, okay, answer you like on the spot. Yeah, yeah, it's it's like a driver's test. But you're driving in a car. And you know, they're like, turn now turn now.

Jennifer Smith, CDE 30:53
That's really funny. I've never noticed that.

Scott Benner 30:56
Yeah, exactly. So Alright, so here's one that I think we could finish up our time with. Is there in your mind? Because you deal with everybody in the you know, who uses all kinds of different pumps? Mm hmm. And obviously, you use Omni pod? And that's to you, the best for you. But But is it the best for you? Or if I got you secretly off in the corner? Is it the one you think would if I made you the king of the world? But you put one on everybody or no? And what are the pros and cons of the other pumps at all of them? Actually?

Jennifer Smith, CDE 31:30
Yeah, this is actually a great question. Because I think it's also a big part of the reason that oftentimes people end up coming to work with us is because we, we don't push to one specific direction when somebody comes to us and says, Hey, you know, I'm considering a pump coming from MDI, or, hey, I've been on this pump for like, eons. And do you think that there's something that would be better for me? Should I be considering this one? Should I be considering this one? What's coming out? What's, you know, which company is heading development and kind of moving the fastest and blah, blah, blah, blah, blah? Um, I, I personally would, I've got reasons for staying on Omnipod right now, which, you know. And there, I mean, the reasons really are such that it provides me with a system that allows me to get the best management.

Scott Benner 32:30
So So Jenny is talking around something so I can put ads on my epic, correct? Yeah. So um,

Jennifer Smith, CDE 32:36
so I'm trying really hard. If, if that wasn't a potential, I would say, put on the spot about another pump that I would consider changing to I would consider changing to tandem? Why would I think they are being the newest pump company of the three that are currently on the market? I think tandem has stepped up, they've done a fantastic job of development of making a product that's user friendly, touchscreen, small, convenient to use. And they're continuing to quickly move ahead with their technology. They're they're trying to bring to the table management that can help people better they are. So I mean, if I had to choose, you know, within the next month, because my current setup was no longer going to be available to me, I would say, yeah, I'll, I'll choose tandem, I like it.

Scott Benner 33:45
And so what you think tandem brings overpowers the tubeless nature of Omni pod for you.

Jennifer Smith, CDE 33:52
That's the only drawback I can definitely say the tubeless nature of Omni pod is a huge step above the other two companies on the market. But from I feel like that tubeless piece is it's more aesthetic. It really is. It's something that I as an adult, I can get over it. I don't I don't love tubing by any means. But I can get over it. If a system provides me with something that helps my management, the to versus non tube. I don't really think it has anything to do with what I get from a control perspective. Right. It's more my lifestyle that the tubeless is huge benefit for but I can deal with the tubing. If it means the pump provides me with what I need for good management a

Scott Benner 34:52
gun to your head right now though. Pick a pump,

Unknown Speaker 34:56
Omni pot okay.

Scott Benner 35:00
Good second for you.

Jennifer Smith, CDE 35:01
tandem is a good second and I hate you know, saying I mean Medtronic has been on the market a long time. They're they're also, it's a really good pump it truly is. But for I think for a fair number of people with the current system they have on the market. I've got a lot of people I work with who they like their Medtronic pump, but they choose to use a different CGM, because they're CGM is just not meeting the mark. For many people, myself included I did the pump was okay. It was fine to use. It was a tube pump, it did what it was supposed to do, blah, blah, blah. But their sensor has never worked for me. So you know, from an all around, encompassing, that's why I said, you know, if I had to choose because I no longer could use my Omnipod. I would choose tandem, because at least it still connects and works with Dexcom.

Scott Benner 35:54
Okay, if so, Omni pod ads, say the FDA goes to phone control. And that's okay. That pretty much levels the playing field, and tilted towards on the pod for you away from tandem. Like if you get the same kind of like one screen touchy feeling from it,

Jennifer Smith, CDE 36:13
the ones green touchy feeling getting rid of a PDM that feels like

Scott Benner 36:18
you're carrying a thing? Yeah,

Jennifer Smith, CDE 36:19
I'm carrying like a thing around like, it's even bigger than most glucometers

Scott Benner 36:25
are the new ones. You're so you're, you're you're stuck with the PDM because of what you're doing. And so and, and Right, so the dash is smaller. Right. But still, it's you're carrying an extra thing? Right. And I think to this, this whole question becomes moot, probably within the next 1012 months. Right. Like when, when horizon, you know, if if horizon comes out and, and the other companies are going to, you know, they're going to make their changes again, and it's just a lot of stuff is going to change. The insulin pumps are gonna change a lot in the next year and year and a half, I think.

Jennifer Smith, CDE 37:03
We hope

Scott Benner 37:04
Yes. Yeah. Well, yeah, those are their timelines, right? Like, or what if it all comes out? You're just like, sort of the same?

Jennifer Smith, CDE 37:11
right? Exactly. I do know that there are there are definite nuances between the three, what are considered kind of those hybrid control hybrid, closed loop systems with the FDA approved pumps, right? I mean, 670 G is already out, control, like you, hopefully will be out sometime soon. Even that compared to Medtronic, it's different, the system will work a bit differently, the you know, what it does for you will be a bit different and horizon from everything I know about it, which isn't a heck of a lot. It will also have its specific pieces that are different compared to control IQ and six, seven Digi. So I think each system will do something better than a current conventional pump does. But you know, you'll have to figure out which one is best for you.

Scott Benner 38:04
Yeah, there's gonna be a lot of choosing and I think to a no, I can say that. What I thought was really cool with the pod said was, look, when, when our horizon system comes out, we're gonna have an algorithm. But if you want to use the tide pool algorithm, then use that one, like, they don't care which algorithm you use, which is a is is a huge step towards trying to give you choice. Now, having said that, I don't exactly know when tide pools gonna make it through the FDA either. So there's a lot happening and at the same time, it's unsure. It's uncertain until it actually happens. So all right, well, that was good. I have a bazillion more for next time.

Unknown Speaker 38:38
Okay.

Scott Benner 38:41
Okay is right Jenny. Thank you so much, Jenny Smith for coming on the Juicebox Podcast and sharing your wealth of knowledge with everyone. Don't forget, you can hire Jenny at integrated diabetes.com or right there in the show notes is her email address, you can just send her an email. Thank you so much to the sponsor, Contour. Next One meter, this is Arden's blood glucose meter, it is terrific and it can be yours. Click on the links in the show notes go to Juicebox podcast.com. If you don't have shown us that you can find by the way you do you just might not know how to get to them. Or you can go to Contour Next one.com to see if you're eligible for a free Contour Next One meter. mm meter scrape I swear to God, it's amazing. You're thinking like it's just the blood sugar meter but new stuff bomb diggity. Hey, friends, couple of things coming up on February 16. I will be speaking at the type one nation event in Dallas. He says questioning whether or not he knows where he'll be. Let me click on the link. You get to Juicebox Podcast com scroll to the bottom of the page, click on events and you'll see these there. Type One Nation summit North Texas they call it the greatest Dallas and Greater Fort Worth Arlington chapter. This event is on Sunday, February 16. I'm doing a one hour talk there about being bold with insulin. You can also see me coming up in Atlanta, Georgia, Saturday, September, Saturday, September, I said September. Let's try again. On Saturday, February 29. I am doing a ton of speaking there that day, I'll be speaking in a bunch of different sessions. And one of my sessions will actually be with Jenny, Jenny and I are gonna do a q&a together. That'll be fun. Come out and witness Jenny and I meet each other in person for the first time. You can still get tickets. There's links again here on my page. I'm going to be at the jdrf in Wisconsin on March 26. It's a Thursday night from think five to 8:30pm. It's just three solid hours of me chit chatting about the stuff on the podcast, show up at five leave at 830 a new person while we're rolling through the events, Saturday, May 30, had touched by type one in Orlando, Florida. And they will be at the type one nation event in Virginia. That's rich from Richmond, Virginia, August 22. That's a long time from now. I just had to turn one down the other day that broke my heart. I wanted to do it so badly. But it conflicted with a date. I had something set up on already, but we're trying to figure out something else to do. So I can come out. I can't tell you where because you'll all be bummed out and they really wanted me there and I wanted to come so you can't be like, you can't be like up their butts about or anything like that. They really tried. It was my fault. My schedule didn't link up but I so wanted to go. I love that part of the country. Okay, so yeah, Juicebox podcast.com, scroll to the bottom, click on events, get yourself tickets. Thanks so much for listening. I hope you have a terrific weekend. I hope I see you at one of the live events. I can't tell you how much it means to me that you are listening to the podcast and sharing it with other people. January is well on its way to being the most downloaded month of this podcast. So that's because of you guys. And I really very much appreciate all the effort you put into getting the word out about the Juicebox Podcast. I'll talk to you soon.

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About Jenny Smith

Jennifer holds a Bachelor’s Degree in Human Nutrition and Biology from the University of Wisconsin. She is a Registered (and Licensed) Dietitian, Certified Diabetes Educator, and Certified Trainer on most makes/models of insulin pumps and continuous glucose monitoring systems. You can reach Jenny at jennifer@integrateddiabetes.com

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#298 The Good Stuff

Shelby Shares

Shelby is an adult with type 1 diabetes as well as the mom of a type 1. 

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello, everyone, welcome to Episode 298 of the Juicebox Podcast. On today's show, you're going to be hearing from Shelby an adult with type one diabetes who also has a child with type one. Please take a moment with me now to remember the sponsors dexcom Omni pod and dancing for diabetes. Now of course, you can get a free no obligation demo of the Omni pod sent directly to your door by going to my Omni pod.com forward slash juice box, you'll be able to find out more about the Dexcom g six continuous glucose monitor@dexcom.com forward slash juicebox. And to hear more about dancing for diabetes, where do you go? Ooh, longtime listeners you're thinking I know. But huh? Try touched by type one.org touched by type one.org. And now we will play the music and begin the program.

Alright, I just got back from the dentist. So I'm going to keep this short. Nothing you here on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin.

Shelby 1:29
All right, my name is Shelby. I am a parent of a child with Type One Diabetes. And I also have Type One Diabetes myself, and I was diagnosed as an adult.

Scott Benner 1:43
So you were diagnosed when you were in your late 30s?

Shelby 1:46
I was 38. About to turn 39. Yeah.

Scott Benner 1:49
Okay. And how long ago was that?

Shelby 1:51
I'm 11 years. Can you do the math? Well, sure I can. But I

Scott Benner 1:55
don't want to show off your 49. You got it. I'm pretty impressed. So Excellent. So okay, so you're diagnosed 11 years ago. And I guess the first thing to dig into is what was your what was the course of action? Like? How is it being diagnosed as an adult? What happened?

Shelby 2:17
All right, so I, um, I was actually trying to get pregnant with Caroline, and so was going through not a whole lot of fertility stuff, but still like really paying attention to the things you need to do to try and get pregnant. And every month, I would not be pregnant. But I would notice the signs that I saw on, like, fertility groups online, like, oh, super thirsty, paying a lot, and so tired. Those are all signs of being newly pregnant, apparently. So I got really excited every time I was really thirsty, or paying a lot or super tired. And it never ended up that I was pregnant, and I just never thought anything about it.

Scott Benner 3:10
So I'm sure we can ask you a question. Yeah. When you were super excited at the signs that you thought you were pregnant, honestly, was it because you didn't have to try to get pregnant anymore?

Unknown Speaker 3:20
Yeah.

Shelby 3:23
Yeah, it's work. You know, how much fun?

Scott Benner 3:30
That's what I was thinking, Oh, my God, this part's over. Excellent.

Shelby 3:35
I'm done for a while.

Scott Benner 3:37
I hope the men listening are really taking this to heart. Because you really are just the person who brings home the food and makes all the babies look the same. So there you go. Okay, so. So you're online, you're looking at the forums, your feet, you're feeling like it might be that but how long before? I mean, month after month, you're not pregnant? Do you start thinking I wonder what else this is?

Shelby 3:59
Yeah. So it was, um, it was July? Well, I had, I was teaching summer school. So I was working eight to 12. I was coming home, completely wiped out taking like three hour naps in the afternoon. And I remember saying to my husband, why am I so tired? He said, Well, you're working. I said, I'm only working a half a day, four days a week, like that shouldn't make me this tired that I kept on, you know, not thinking anything about it was going to bed with two full glasses of water every single night and drinking them both in the middle of the night. And finally, it was about mid August. I'm like, this is not right. There's something wrong. So I googled, you know, thirst, frequent urination tired, and diabetes popped up. And I'm like, well, that's can't be that. Can't be that it's got to be something different. So I remember it was a Saturday, my primary my primary care Dr. Had office hours Saturday at noon. So I said, hey, let's go to the doctor. I think something's going on. It could be diabetes, but it's probably not. I just want to go get checked out. So we go to the doctor, and I happen to know the nurse, she she was a friend of mine. And she was like, Oh, you've lost so much weight. I walked in, I hadn't thought anything about losing weight. She said, Oh, my gosh, you've lost so much weight. I said, Oh, I have. She's Yeah, you look good. She's what's, what's the problem? I said, Well, really thirsty? I'm peeing all the time. And I'm tired because Oh, you know what it is? About? It's like the honeymoon cystitis? I bet you just have a urinary tract infection. And you know, we'll get you straight. So let's pee in this cup. And, and see, you know, and see what it is. So, I'm thinking Great, that's easy. That's an easy fix, and did the urine sample, and she comes in the room, she goes, um, your glucose is very high, we're going to need to check you with a finger stick, like, okay, no clue what any of this even really meant.

Scott Benner 6:10
So you're still not connecting that to what you read online?

Shelby 6:13
No, no. And she's like, did a finger stick? It was 300. And I don't know, 65 something around there. And she said, you have diabetes. And I said, you know, immediately I'm just sobbing in the office just, I'm thinking What in the world? I don't know anything about it. And and the first thing I said was, does this mean, I can't try and get pregnant? And they were like, No, no, you're fine, you can still get pregnant, they just have to monitor you more. It's no big deal. But they diagnosed me right there with type two, of course, because I was 38 years old. So they gave me a shot of insulin and the arm told me to take the Metformin that they were going to prescribe to me and come back in a couple days for a lab work,

Scott Benner 7:08
we should have known not to believe them, because 20 minutes earlier, they told you how to UTI. So you should have been like you might not know what you're talking about.

Shelby 7:15
Right? I know, at the time, I was just like, okay, whatever you say,

Scott Benner 7:19
seriously, you know, to what a whirlwind honestly because you're struggling for months I To me, the one of the saddest little things that we kind of blow right over is, you know, filling purposefully two cups of water to go to bed every night when you know, like this isn't right. I've never done this in my life. And you're walking you know, to your bedroom with these water, wondering what's going on. So you struggle all that time, you finally say to yourself, okay, I'm gonna go to the doctor, you'll wander in, you're uncertain, probably worried about what's going to happen. And the first thing you do is you see somebody who looks at you and goes, Oh, my God, you look terrific. And you're like, Oh, I do look terrific. This is amazing. You know, like, I am killing it. And and I just have a UTI. I'm gonna take a pill once a day for seven days, I'm going to feel better. And I'm going to be thin, like, yeah. And then five seconds later, someone's yelling diabetes at you and type two, they're getting your diagnosis wrong. And that all happens what in 20 minutes?

Unknown Speaker 8:15
Yeah,

Scott Benner 8:16
pretty much. Yeah, it is. It's it really is like somebody just grabbed me by the head and shaking. It's horrible. What now? So do you come back in a week? Having, by the way, I guess after the Metformin, you lost a little more weight, huh?

Shelby 8:30
Um, I think I wouldn't know what happened after that is of course I'm, I'm like, Google queen. And I do a lot of research when I need to know something. I just research and research like a crazy person. And so immediately I went home, I found the ADA forums, and I jumped on there. And I'm so glad I did. Because those people are they people at that time, were super knowledgeable about, like, what you should eat in order to kind of manage type two, which of course, I thought I still had, you know, because at the doctor, they gave me the crappy diet, you know, plan, which was toast and fruit and orange juice for breakfast.

Unknown Speaker 9:16
Which for the rest of your life,

Shelby 9:17
yeah. And I'm like, this isn't this, this can't be good. So those people were like, you know, you've got to test your blood sugar every time you know, two hours after you eat. They were like super competent with more so than any of the information I got from the doctor's office. So so it was after a while, though, that I went to I took the Metformin for a while and I think they gave me something called active plus, something met Oh, that's what it was. It was best what they gave me access plus met which then I read, I googled and research that and that like, hold on to your fat cells. Like I don't want to take something that hold onto your fat cells, inflames your fat cells or whatever it does.

Scott Benner 10:04
Shelby let me cut you off your voices. Your voices? Yeah, we have a connection. You hear me? Are you on Wi Fi? All right. Yes. All right, hold on one second. Because Can you hear me now? Nice. I still have the poor connection.

Unknown Speaker 10:25
All right. So I your your broken up.

Scott Benner 10:28
Okay, I'm going to disconnect. I'm going to disconnect and call you right back. Okay. Nowhere else you'll never find a connection between your Omni pod and some controller because the Omni pod is tubeless. It's not connected to anything. You guys really got to give me some credit for being able to tie in what's happening in the podcast, these ads. I mean, it's not easy. Anyway, you know what is easy. Watch this, wearing it on the pod tubeless insulin pump because there's me tubes. Think about what that really means. So every other pump on the market has an infusion set right. And that goes in to your body. And then that's connected by plastic tubing that runs all through your clothing. And every which way to the controller where the insulin is stored and where you make all the decisions you push the buttons. But on the pod doesn't have any of that on the pod is this small, self contained device that speaks wirelessly to its controller. So there's no tubes, no tethering, not stuck to anything. Now this may be hard for some of you to x. Now this may be hard for some of you to picture in your mind's eye. I get that mainly because of my poor description. But luckily for you, you don't need my description to understand the Omni pod better because Omni pod would be thrilled to send you an absolutely free, no obligation demo of the pod directly to you right to your house. Wherever you are, wherever you receive the mailings. You could get it right there. Just go to my Omni pod.com forward slash juice box fill out the tiniest bit of information about yourself. And Omni pod will get you the demo right to your door ASAP. And don't worry if you can't remember the link, it's at Juicebox podcast.com. Or right there in your podcast player shownotes. Miami pod.com forward slash juice box get your free no obligation pod experience kit sent to you right now today. Last thing Don't forget that dancing for diabetes.com is now touched by type one.org check out touched by type one.org they gave you a medication called

Shelby 12:42
aptos plus met and it was something that works alongside Metformin I guess to lower your your glucose levels. But when I researched it, it there were some part of the way it works is to like increase your fat cells or blow up your fat cells or do something and I thought I don't want to be on this for you.

Unknown Speaker 13:08
So I just

Shelby 13:11
say, right, I don't I don't need it anymore fat cells.

But they you know, the doctor they did they scheduled me for the lab work, my agency came back it was like 9.9 I think. And then they scheduled me for an appointment at the dietician and the certified diabetes educator. And they were great. In fact, it was the certified diabetes educator that after a month of me being very meticulous logging every food I ate and every form of exercise I did and every blood sugar I checked, she looked at my my information and said you you may want to get checked for type one you are not presenting as a type two, you should not be spiking to 300 after you eat a rice cake. And so I did some research I I looked into the the latent autoimmune diabetes, which you know, there's no like medical code for that. So they either call you type one or type two, like my endocrinologist doesn't even recognize that as a as a thing. He's just like, nope, you're type one. But I do think it was more of the latent autoimmune just because because of some of the other stuff. But yeah, so I have I have a friend that's a doctor and I said, Hey, this is what I think is going on. And she said, come into the office tomorrow we'll do blood work and see. So they ran the Gad 64 the antibody test and C peptide. And after about a week she called me at home and said look I just wanted to You that your antibodies came back? And it looks like you have type one. She said, I'm going to refer you to the endocrinologist.

Scott Benner 15:08
How did you feel at that point? Was there a relief for an answer?

Shelby 15:10
Oh, absolutely. I was so relieved, because I was struggling with my blood sugar. And I couldn't figure out why. That anytime I ate a single gram of carbohydrates, I was shooting through the roof. And so I was Yeah, it was a huge relief. And I guess. So they scheduled me with an appoint within the chronologist and sent my files over there. And it was like a week away, you know, because I don't think regular medical professionals understand type one very well. And the endocrinologist called me it was a Friday, he said, Can you come in today at 430? I know they were getting ready to close and he he got me in that day, and put me on insulin.

Scott Benner 15:51
Somebody understood Finally, and you were you were finally talking to somebody who had a plan and an idea. That's excellent. And yeah, and you're happy 11 years later? Are you still with them?

Shelby 16:01
Yeah, I am. He's, um, he's a funny guy. He, he listens to me. He like, I'm very proactive with my own care. And I, I kind of have a reputation for telling doctors what we're going to do, instead of asking them what we're gonna do. And so, I mean, he's always, he always listens, he always does whatever I want to do. So I like him pretty well. Without giving

Scott Benner 16:25
away too much, I guess here to people about your location. I guess your scene at the hospital where my daughter was diagnosed while we were on vacation. I'm thinking

Shelby 16:35
that's where my daughter is. Yeah,

Unknown Speaker 16:36
daughter was okay.

Shelby 16:38
Yep. And her story is a whole completely separate, crazy story, too. But my endocrinologist is actually local. And we're about an hour, an hour and a half from that hospital. And we live in a really, really pretty rural small town. So we're lucky that we even have an endocrinologist in town.

Scott Benner 16:58
Yeah, I see. Oh, so Okay, so you're lucky to have your own endo close by. And you don't have too bad of a ride to get to what I understand is a very good Diabetes Center at a children's hospital. Yeah, right. I was told back then that we were lucky to have been diagnosed there. Yep. is Dr. satin Smith still there? Do you know?

Shelby 17:17
He is that is not who we see. But I do. We'd go to a diabetes, or where we went to a diabetes camp family camp last year. And she was one of the endocrinologist there. And we're going this coming weekend. I'm sure she'll be there as well. Well, you tell

Scott Benner 17:32
her I said hello, please. That poor woman took a phone call from me. The first night we took garden home from the doctor, I'm from the hospital, I must have called her at 430 in the morning to say Is it okay if I give her this insulin? And I tell you, I mean, you none of you know me personally, but for me to call you in the middle of the night was a I sat there it was it was turmoil for me like deciding do you call a person at this time of the of the night and wake them up and I couldn't bring myself to give her the insulin, I couldn't bring myself to ignore that I thought she needed the insulin. And I had no idea how to make the decision on my own. And it was the first night we were out of the hospital. So she was very sweet because she did not call me names or yell at me when I called her at her home. She was she was really great. Honestly.

Shelby 18:19
Yeah. I've heard good things about her. She said she's a well respected endocrinologist in that practice.

Scott Benner 18:25
Okay, so you're going along pretty well, I'm assuming, let me get a feeling for what you do to manage. Are you pumping give a glucose monitor? How do you handle it?

Shelby 18:34
Um, I right now, I've been pumping since about, since really three months after I was diagnosed with type one. At first. I was like, Oh, I don't want to pump that's weird, like to have a thing attached to me. But the more I you know, the more I thought about it, the more I was like, you know, that's actually pretty cool that you can, you know, does all the math for you. I don't have to worry about counting how many units for per carbon all this? You know, I'm not very good at math. So. So that really was what appealed to me, I guess at first. So I started with the Omni pod. It was pretty new at the time.

Scott Benner 19:13
Yeah, that's about when Arden started with it actually, about 11. Yeah.

Shelby 19:18
I did that for about five years. And then I was on the T slim for another five years. And now I'm using the 670 G. I was gonna say now you're on Medtronic, because there's only three

Scott Benner 19:31
insulin pump companies left.

Shelby 19:33
I know I had to try them all out.

Scott Benner 19:36
It just wasn't any other option. Unless you were like and I went overseas and got this.

Shelby 19:41
Dana or whatever. Yeah.

Scott Benner 19:43
So you're so you're using the they're closed loop, but do you find it working for you?

Shelby 19:48
Yes, I

I love it. And Caroline's been on it since she was newly diagnosed and I just transitioned to it back in January. So it's been great for me. So you got to see her on it. So you could decide before you got to see somebody use it in your home and then decide if you want to use it. Exactly. And I was, I was basically an expert by the time I got mine, so I was like, I don't need training. Thanks. I'm good.

Scott Benner 20:16
We I know how to do this and just give me the box. So I'm gonna work backwards with your daughter's diagnosis because we're gonna just trust me for a second I guess. So. So. How long ago was your daughter diagnosed?

Shelby 20:31
She was diagnosed.

Thanksgiving Day. 2017. Okay.

Scott Benner 20:38
Wow. Happy Thanksgiving. Yeah. Which, and

Shelby 20:42
guess what? We were on vacation at the beach.

Scott Benner 20:48
It just happens like that. Yeah. Well, you want to see, man, I just sidestep for a second. I try to talk my family into going away on the big holidays all the time. Like, imagine how much fun it would be to be on a beach on Christmas or something. I always say stuff like that. And everyone stares back at me blankly. I'm like, No, trust me. No one's it's never gonna happen in my lifetime. But I applaud you're going away for Thanksgiving. I like that a lot.

Shelby 21:11
Yeah, we went away for Christmas. This past Christmas. We were We were in the mountains. See, no one listens to me.

Scott Benner 21:19
So you're away you're on vacation where everyone gets diagnosed. And, and, and, and she's diagnosed so but so you're I guess at your your near the Children's Hospital that we talked about?

Shelby 21:32
And no, we are actually we are actually down an hour and a half south of that Children's Hospital about the same distance away from where my home is, but still

Scott Benner 21:43
away, maybe around the Outer Banks or something like that. If I'm guessing we certainly were Yes. Okay. And okay, so you figure it out on vacation? Do you bail on the vacation and go to the go to a hospital? How do you handle that you just start giving your insulin. The dexcom g six continuous glucose monitor features a slim water resistant sensor that is discreet and easy to insert. The sensor accurately measures glucose levels just beneath the surface of the skin, and sends data wirelessly every five minutes to compatible smart device or right to your dexcom receiver. The dexcom g six also has customizable alerts and alarms. So say you'd like to know when your blood sugar gets to 140 you can set that up. For us. We have Arden set at 120. So it's customizable, like you could be different than me that nice. Now, here's the big deal about the G six, in my opinion, zero finger sticks. The dexcom g six is FDA permitted to make diabetes treatment decisions without confirmation from a fingerstick or calibration. That's pretty darn exciting. So let's really wrap our heads around what we're talking about right now, a device that is small and discreet and waterproof. That tells you the direction and speed that your blood sugar is moving in. This information can be shared with up to 10 followers. So you could be following your child as well as their school nurse. And I don't know, their dad and the Seven Dwarves, maybe not dopey, so you'd have an extra one. But really, if you don't know what the Dexcom gs six is, it is really something you should try to find out more about. I hope I've got you interested, head to dexcom.com forward slash juice box and take a real hard luck. You were talking about being able to see your blood sugar in real time and make decisions to stop high blood sugars and treat lows before they ever happen. Every decision we make about ardens care begins with the dexcom g six.

Shelby 24:13
Well, I could have but here's here's what happened. This is the crazy story. So she wasn't really she wasn't sick. She wasn't. She wasn't really symptomatic. There was a couple look in hindsight, looking back the couple of weeks prior to diagnosis. I remember she told me one time her legs felt shaky. And so I checked her blood sugar because it's not unusual for me to check my kids blood sugar. I've been doing it ever since I've been diagnosed anytime they ask for more than one glass of water. I'm like let me check your blood sugar.

Unknown Speaker 24:48
Here's your water.

Shelby 24:52
So she told me her legs were shaky and I checked her blood sugar and it was pretty low. It was like I can't remember maybe low 60s, maybe Upper 50s. It was like it was lower than I had seen on any of my kids. And throughout the years and I thought, well, that's interesting. And she feels low, huh? Well, that's weird. And I remember telling my husband and he's like, Well, what do you think we should do? I'm like, Oh, I guess we'll just keep an eye on it. And I remember saying, I feel like if she wets the bed, then that will be the sign. I need to check her blood sugar and be concerned and buy a mattress. And sure enough, and this is the crazy part. This is like how your brain really goes into denial. It wasn't maybe three nights later, I woke her up one morning, and her bed was soaking wet. And I was like, Oh my god, you wet the bed. And she's like, Oh, my God, but I happen and she's not a bad wetter. But then I thought, seven, seven year olds sometimes drink too much and all night and sleep really hard and don't get up. I just you know, I explained it away, even though I had said, that will be the sign I need. And even my husband said Did you check her blood sugar? And I said, No. She's not really super thirsty. She's not like paying a lot. I just I just ignored it. And then do you have any insight into that moment? Now looking back? Did you just not want her to have diabetes? Or I think I didn't want to know. I mean, I really think I knew deep down that something was going on. And I just didn't. I wasn't ready to know it

Unknown Speaker 26:33
yet. I can understand that.

Shelby 26:36
Yeah. So yeah. And I thought, there's nothing else going on. Like she doesn't look sick. She hadn't lost weight. She's, you know, she's fine. But so when we are at the beach, we were it was the night before Thanksgiving, and she was had had dinner and dessert. And she was I don't remember, she was playing the iPad or something. We were watching TV. And we've had a couple glasses of wine. And I was checking my blood sugar because my husband and I eat late and we're getting ready to eat our dinner. And Caroline came over and said, Hey, can you check my blood sugar? And I'm like, sure. Haha, you know, this is not this is something we do. Like it's not a big deal.

Scott Benner 27:19
What's mommy has just enough wine in or not to be worried.

Shelby 27:24
Exactly. And so I checked her blood sugar, and it was like 325

Scott Benner 27:34
that's overdue right up. I bet.

Shelby 27:36
I was like, Well, you know, have just enough wine to not panic. I said, hey, go wash your hands for me. And so she goes in washes her hands, and I check it again. And it's like 295. And I'm like, Go wash your hands with a different soap.

Scott Benner 27:55
Can you scrub all the sugar off your hands, please and get back here. I need to get on at least 180.

Shelby 28:04
And so she does that. And so I check it again. And it's still in the upper two hundreds. And I'm like, well, this is interesting. And I've just got this fake smile plastered on my face because I don't want her to freak out. And I'm like, Okay, well go on to bed now. You're fine. So, um, you know, my husband and I are talking. We're in the Outer Banks. The hospital care there is not stellar. And um, he's like, should we take her to the emergency room? I'm like, Well, number one. We've been drinking wine we don't really need to be driving. Number two, if we take her to the Outer Banks hospital, they're not going to know what to do with her. They're gonna they're gonna send us right to ch Katie. Oops, I just gave away where we were, but that's the case. And, you know, it's not super dangerously high that she's worried about her. She's not vomiting. She's not you know, she's not showing signs that she's going into DK a. I said, I think we should just get up first thing in the morning and go and so that's what we did. We we went to I checked her again before bed. She was down you know, she was coming down on her own. And, and we got up in the morning and driver straight to the hospital. And they they were funny, you know, it's Thanksgiving Day. So they didn't have anyone there that the endocrinologist was a phone consult. But they did blood work, per se was only like 6.5 I think, and she did not have any ketones. There was no signs of decay and we just caught it super early. Super, super early. They didn't send us with any insulin nice they sent us with a meter and some strips and said check her blood sugar. Keep her low carb and come back Monday after the holidays. They actually they did offer to admit her to the hospital. I'm like, No, I don't think we need that. Let's just we're gonna go finish our vacation and have our last weekend without being, you know, having diabetes. And

Scott Benner 30:12
yeah, well, you probably went to that hospital and said the same thing we did at that front desk. She's like, why are you here? And we said, Our daughter has diabetes. And they said, and what's going on? I'm like, Oh, no, you don't understand. We're diagnosing her. My daughter has diabetes. Now we need your help. And, and they were just like, How do you know? And of course, she's like, well, we tested her blood sugar and the internet and they laughed, because it was, you know, so long ago, the internet was, you know, now you're like, I figured things out on the internet. People like that makes sense. And back then you were crazy person if you you know, medical on the internet, so, okay, so how that so Caroline's, she's 2017, November, it's about a year and a half ago. It's not too much more than that. I guess I'm assuming you've got her on a pump.

Shelby 30:58
Right? Yes. Okay. I did well, about three weeks in with, with at the time she was diagnosed, I had taken a pump break. So I was on MDI, for like a year, had put my T slim in the closet, I was just doing shots, because I was kind of over it. And I just didn't feel like worrying about I mean, I was really kind of in a, in a burnout mode myself. So she was diagnosed is basically as soon as she was diagnosed, I pulled out my pump and started pumping again, because I was like, she needs to see how much easier this is with a pump. And three weeks later, I remember trying to correct her in the night, a high blood sugar and the night with a pin. And she was like rolling away from me and struggling. And I was like, This is the pits she needs to get on the pump. And I called the endocrinologist the next day and said, she needs to get on the pump. We don't want to do a sailing trial. I don't want to talk to any pump reps. I know and I want and you just need to write the prescription. And she's like, All righty, I'll do it.

Scott Benner 32:06
No, I really want everyone to listen to what Shelby just said, because so many of you write me and say, my doctor says that we just have to wait, or the ones that make me the most mental, by the way are when you guys get the pump mailed to your house, and you wait a month to go to the class. I mean, I know you're supposed to. But if you know what you're doing, you know what you're doing. And there's, there's no reason when you know what you're doing. There's no reason if you don't know what you're doing, then get good direction, obviously. But I know you imagine you're going to go to some pump training class and some magical deity of diabetes is gonna come down from a pie and explain it all to you. But it really is just a person who comes to the room it goes, Alright, here's what I've been told to tell you about this insulin pump. So, you know, you can do more than Shelby just told you. She just told her doctor, this is what we're doing. And the doctor was like, all right, like, Don't hurt me. And then that was

Shelby 33:02
it really was And so yeah, the pump came. We actually had a follow up appointment, like a week later, just because it was six weeks after her diagnosis. And so I'm like, we'll just do the training there. And they were so accommodating. I mean, they they are they have been wonderful and accommodating us whenever, whenever we need it

Scott Benner 33:23
getting getting a good practice or good hospital is, is lucky and exciting, actually, because the people who get the bad ones have terrible stories. Exactly. Okay, so two questions I have that are kind of disjointed. But you've said stuff that I like you're doing such a good job. I don't want to stop you when you're talking. But you are alluding to more children. How many kids do you have exactly how many times you've gone through that horrible process?

Shelby 33:48
Oh, just Well, I mean, just one. Caroline was the only No, no. I have three kids total. The first two were not a process.

Scott Benner 33:58
I meant the having the babies part when you made them.

Shelby 34:01
Oh, yeah. Three times.

Scott Benner 34:05
Okay. So you've put up with that three times. And now you're three. What are their ages? Just I was wondering.

Shelby 34:11
I have a just turned 18 year old who's headed to college in the fall graduations. My daughter, my oldest. And then I have a son who is 16. And then Caroline is nine.

Scott Benner 34:25
Wow, that's nice that they're well spread out. You'll be able to afford to send them all to school.

Shelby 34:30
Oh my gosh. I mean, that's a whole nother story is the whole college expense thing. That was eye opening.

Scott Benner 34:37
Yeah, yeah. Oh, please. I'm dizzy standing here talking to you right now. But thinking about the payment starting up again. Anyway, so Okay, so three kids spread out pretty well. And the other thing that I have to ask because you said you were teaching but that you're bad at math. You weren't teaching math, right?

Shelby 34:53
No, actually, that when I taught math, I was really good at teaching it because I was kind of learning it along with the kids. So then it started making sense to me. So I could explain it like really well, because it all of a sudden, it was like, Oh, now I get fat. And then I could explain it really well. You just

Scott Benner 35:10
said something that is so disconcerting to people who don't teachers. They're like, wait, they learn it while they're teaching it to the game.

Shelby 35:19
Absolutely, like, so much of the time, I'm learning it right along with them.

Scott Benner 35:24
So anyway, those of you who again, who were sending your kids off to school thinking, oh, there's a grand deity that comes down for a pie, and it's none of this works. We're all just people. So gotcha. That's hilarious. So how did you? How did your daughter handle being diagnosed? And do your other children seem wary that it's going to happen to them?

Shelby 35:44
Um, okay, so Caroline, it was kind of weird. Like her diagnosis. They never ever said she had diabetes until our follow up visit that Monday. Like they were just calling it hypoglycemia, I think, because we didn't want to be admitted to the hospital. And if they had called it diabetes, and then they hadn't admitted us, maybe it would look like

Scott Benner 36:11
I'm so sorry. Hold on one second. somebody's calling me. Just not not handy. But it's something ready. This is crazy, but we're gonna call them back. So, my dogs, this is embarrassing. Hold on a second. My dogs are in a kennel. today. I'm picking them up after I'm done talking to you. And I just want to check to make sure they're okay. So I'm just going to take my headphones away from my ear for a second.

Unknown Speaker 36:39
All right, hold on.

Scott Benner 36:43
Call them back. We should put on speaker

Unknown Speaker 36:50
Hey, Scott.

Scott Benner 36:50
Hi. How are you? Hey, so listen, I'm recording my podcast right now. So you're gonna be live or you're gonna be on the recording when this happens. I just wanted to make sure they were okay. You're just telling me what time to pick them up because of the grooming right?

Unknown Speaker 37:02
Well, that was what I was calling about. I have written down Monday, but in the computer, it says Wednesday. So is it today? Yes, we're picking off today.

Scott Benner 37:09
Okay, we'll have them ready for 12 1230 you want me to be a little late? Just a little bit. Okay. Thank you so much. Hey, everybody. Great. Kendall in New Jersey. Windy hell's going on. There we go. All right. Bye. Bye. You're welcome.

Unknown Speaker 37:25
Well, that was weird.

Unknown Speaker 37:26
Okay. Well, good news.

Scott Benner 37:28
I get a little extra time on myself. I'm so sorry. Where were we when that happened?

Shelby 37:34
Gosh, I'm the last person you need to ask that. I can never remember what I'm talking about. Oh, maybe how Caroline handled it. Oh, yeah, I know now. So they never called it diabetes in the emergency room. They just said hypoglycemia, and call us back Monday. And I knew or I figured they were doing that because they didn't admit us. And it would look maybe unprofessional. Or

Scott Benner 38:01
they know how to talk to the insurance company so they don't get in trouble and you don't get in trouble.

Shelby 38:05
Exactly. So I don't think they wanted to say Oh, she has type one diabetes, but we just let her go after a couple hours. So. So when we when we did the follow up at so we didn't really explain it to Caroline, I guess I was kind of waiting to make sure for for 100% sure that this is what we were dealing with. We got to the appointment on Tuesday, we called Monday and they got us right in. And the you know, the nurse is checking her blood sugar and saying, so how's your diabetes going? And I'm like you we don't call it that. Yes, please don't. Don't scare my child. My

Scott Benner 38:45
mind. You weren't going to be the one to tell her. Do you think that? I mean, have you spoken to her since then? Did she know at that point, or? I mean, she's only nine. So I'm just along for the ride, right? I mean,

Shelby 38:56
she she kind of knew she she wasn't really sure what it all meant for her. But that same day, we were trained on how to do the pins, which I was like, I know how to do the pins, but train my husband because I don't feel like having to do that.

Unknown Speaker 39:15
Oh, that's so funny.

Scott Benner 39:18
I don't need you to help me with this. But here's a list of things. I don't want to have to tell that guy.

Shelby 39:24
So really, it was training for him. And my daughter. So yeah, we we did that and that she was fine. I mean, she's been through her moments of I hate diabetes, because it's really only when we're doing like a sensor change. And she doesn't like that particular aspect of it. But other than that she doesn't care like she swears or pump around and says how many carbs is this? How much should I put in my pump? And

Scott Benner 39:52
you know, we just go on? It's just been watching you do it for a very long time too. So, yeah, I you know, I also think that children Especially in a certain age, they don't want to do anything that they don't want to do at a certain time. And they're switching your sensor out is obviously not as much fun as putting your clothes away or something like that. But, you know, in that moment, if you said your daughter, look upstairs and put your laundry away, she'd be like, I don't want to do that, you know, like, it's they don't want to do what they don't i don't want to do it. I don't want to do so. It sucks. It does. But it sounds like she's going along really well. So now,

Shelby 40:26
you asked about my other

Scott Benner 40:28
pair, I want to know about do your other kids ever come up to you privately? And are they like, Hey, is this gonna happen to me?

Shelby 40:34
Um, no, it's more like me saying that to them. Like y'all need to watch out. You might get it too. And I still check their blood sugar. So I have here here's something interesting when I was when Caroline was one, and that's as old as you can. That's the first time you can be checked with a trial net study. I signed them all up for trial net and had the blood draw, but their blood drawn and they all came back negative for antibodies.

Unknown Speaker 41:04
So he didn't have any at that time.

Shelby 41:06
Not at the time. And then once she was diagnosed, I called trauma back and said, Hey, I want to, I want to check my other two. Again, they sent me the kit to take to lab core and it's just been sitting on my desk, I just am looking at it right now. Because it's a pain to get a lab courts up. It's an hour and a half away from where we live and trying to take two kids that are on completely different schedules and get them all together to go to Virginia to get a blood draws. Right? It's pretty impossible. So is your daughter.

Scott Benner 41:38
Your daughter is starting college in the fall. Is that Yeah, timeline, right. Yeah, I pulled my son aside when he left last fall. I was like, Look, I'm really sorry to have to say this to me. You're trying to leave and we're trying to be upbeat and everything, like then you probably never gonna get diabetes. But here's a couple of things. If they happen to you, you absolutely cannot ignore them. And you know, you need to tell us right away if you know, and I went through the, you know, the signs and symptoms with them. Not that we hadn't talked about it prior, but I just all of a sudden felt this anxiety about him being somewhere else where he might just ignore it. Yeah, exactly. So anyway,

Shelby 42:13
yeah. So they're, they're aware. But the good thing is they they are children, the older two are children from my first marriage. So I mean,

Scott Benner 42:24
I don't know not the same. It's not the same stew that made Yeah, that made Carlin I hear you. Yep. That's the good thing. You were like, how many other times your life have you thought that probably never right?

Unknown Speaker 42:41
Exactly.

Scott Benner 42:42
At least I didn't make them with what's his name? So you know? Exactly. I was trying to figure out what I could say there's so many times I remember that kids listened with their parents. And I'm like, I don't just not even cursing. I don't even want to allude to things. Obviously, the other the other guy's got better stuff. So as far as that goes.

Shelby 43:04
So we know I mean, if we assume we don't know, I was an adult when I was diagnosed.

Scott Benner 43:09
So Exactly. So how about that in your, in your bloodline and the other type one or endo issues?

Shelby 43:16
Well, I am, I was adopted as an infant. So I have no medical graduate to

Scott Benner 43:23
so I that we're in the same boat. I was at a doctor's office the other day. And he starts asking me a bunch of questions, just put my hands up, because I didn't want to like talk over him. And he looked at me and he's like, what? No, and I'm adopted, you can skip over that whole part.

Shelby 43:35
Yeah. I kind of love that part. Because it like takes a whole segment away from that appointment. Like, I don't know, I'm adopted.

Scott Benner 43:42
Yeah, he just goes, Oh, okay. And then they just get by it like nothing happened, which makes you think, well, how important was this part anyway? Because you don't seem concerned at all that you don't have the answers to these questions. Right? I gotcha. Okay, so you guys are managing along, I'd like to in the last kind of like 15 minutes here talk a little bit about day to day stuff. So my first thought is, do do you manage the same Now personally, that you did prior to Caroline's diagnosis, or did her diagnosis make you turn you into I want to be a role model situation like what situation Did you find yourself in?

Shelby 44:18
Absolutely, like I turned me into I want to be a role model. And I want to I want to start taking better care of my myself diabetes wise because I need her to see that that's important. So I definitely like I said, I put my pump back on I started checking my blood sugar more regularly. And but it's it's hard because I'm so caught up in her diagnosis and her diabetes and wanted to make sure that she's like as perfectly taken care of as she can be, that I do. I sometimes forget about myself, you know,

Scott Benner 44:54
well, you can't leave her with that husband by himself. So you're gonna do better for yourself, but so it's Tell me a little bit if you don't mind, and I feel like you're pretty open. So prior to you know, prior to Caroline, let's let's go back a little bit in time when when you when you're pumping t slim so now you're five years into your diabetes. What do you know? 10 years because I did Omni pod for five years before that. I meant when around when you started t slim you were Oh yeah, you're right. Yeah. And so what what do you back then calling like, when What? What a one CD you hear at the end? Oh god, that's good. And you know, and how do you handle like insulin where you are Pre-Bolus? Or like, how did you how did you live your life? Like sort of back then in the middle of your 10 years? Um,

Shelby 45:43
let me think about that. I, I, I don't really remember, I think I was pretty you know, what I would I do remember, I was always very conscientious about checking my blood sugar and, and trying to keep it, you know, within range as much as possible. And I knew that, you know, I was not satisfied with an eight, one c above seven. And when it went above seven, one time, I was horrified. And my endocrinologist was kind of shocked, I think, because there's never been that high. And he was like, Do you need a lesson? Another lesson on carb counting like, What is your problem? But I got myself back together and, and and got it back down. So

Scott Benner 46:29
it's so interesting. The carb counting is what popped up into their head like you must have forgotten how to count called. Like you really, you don't have diabetes, doctor. Okay, so So, you under seven, you were which by the way under seven, it's terrific. And you're you know, you're you're happy there. Where you are Pre-Bolus? Sir, were you? Were you accountant needed? Or how did you handle then?

Shelby 46:54
I mean, I was not not really a Pre-Bolus or because I just, I forget, like I'm terrible with I still struggle with that. And that Pre-Bolus thing is really good when you're on the Medtronic 670 G. And I still forget, like I'm good at Pre-Bolus and Caroline, but I always forget to Pre-Bolus myself, so I'm not so good at that. I just, I've always never been afraid of insulin. So taking too much insulin does not freak me out.

Scott Benner 47:23
Okay, so you've been aggressive most of your time. And that translated to Caroline when you started with her? Or did that? Did you get scared then?

Shelby 47:31
It first I was a little scared. And now I'm you know, then I actually started listening to your podcast. And it you know, kind of calmed my fears. I'm like, Oh, you know, it's not a big deal. She has to have a juice box because I gave her a little too much insulin it And typically, that doesn't happen typically giving a little more insulin is what keeps her in range. I yeah, I

Scott Benner 47:52
find that it's usually more than you think almost every time Yeah. Yeah. Right. So and I you have to, you get caught in such a loop. When you under you underestimate, you know, and that loop could go on for hours that could roll into days rolls into weeks, that rolls the months and years, where you just always end just you know, think about it going back with a little kid, you know, nine years old, another half and other three quarters another unit could have made, you know, all the difference in the world. And for adults to I know, it's you know, it's tougher for adults I hear them talking with it's like, you know, you want me to be more aggressive, it's a lot more insulin, it's not an unitar to you know, I'm a 200 pound human being it's 30 more units, you know, or something like that. But still, I think I think being more aggressive is the way to to get your answers about what you need and what you don't need

Shelby 48:43
and and not overcorrecting Alo. I you know, that is the worst. I see on these Facebook groups that I'm members of and the people are posting their Dexcom rollercoasters and they're like, 440 and then 440 I'm like, stop correcting with, you know, 500 grams of carbs a brisket and

Scott Benner 49:08
try gummy bears to try for gummy bear see what happens. Why does it have to be the whole package of gummy bears, you know, like, and I get that they get hungry in that you know when you're getting low. But But to your point again, like how many times does that have to happen to you before you say alright, I ate all the gummy bears. Maybe next time I'll try eating half of them and see what happens and some people will tell you it's fear. But I you know, sometimes I wonder when people share those graphs, right? Like I think there are some people who share them who are really genuine like, Look, I don't know how to stop this one of you needs to I need I need a stranger on the internet to help me please. And I get that right. And there are some people I think that just sort of enjoy the drama of it.

Shelby 49:49
I so agree. I think that is a huge part of it. And then they follow up with I just hate this disease. And I'm just like, it's just not like If not, no, no, no,

Scott Benner 50:02
yeah, let's do something helpful. That's what I'm about. Seriously, that's whole podcast is about I'm like, let's just do something positive and, and try to get to a better situation like let's stop looking at the same thing over and over again and just yelling Oh, well, that's just diabetes. There's nothing I can do about it. And there is, you know, so it's so you have been aggressive and she's doing well. How are you? Would you share Carlin's a one say like her latest one? How she don't?

Shelby 50:27
Yeah, she, um, she was 6.3 at her last visit. Well say she was 6.5 when she was diagnosed, and I think she went up to like, seven, you know, when we're still kind of honeymooning and yeah, figuring it out. And then she came back down to 6.7. When she got when she first got on the pump, and I was really excited. Then she was 6.2. And then she was 6.3. So great. That's statistically not that, that different. But that, you know, what's crazy is that there is this like pa or nurse practitioner or somebody that works for that hospital that we go to. And she had the nerve, when we went to see her one time to tell us that 6.7 with too low that they like to see a more around 7.5. And I said, I'm not gonna run her higher, just to satisfy your arbitrary, like requirement of a one. See, that is crazy.

Scott Benner 51:27
Thank you for for seeing what the ADA said 10 years ago and trying to hit that number for my daughter. I don't that that that number is set out when they're trying to they're trying to help people who have much higher a one sees, say to them, Look, hey, wouldn't 7.5 be way better? In what world? Does it make sense? The poll, you are, by the way, anyone else aside, and your story of that is echoed so many times in my inbox, people who go in they're like, Look, we did it. We figured it out. No crazy variability, no, no, no lows, no highs, and and we've got a six, five, and then they get yelled at. It's crazy. Yep. It's another it's just another example of them not understanding. That's all.

Shelby 52:12
But you know, the recommendation says lower than 7.5. It doesn't say keep them right at 7.5 for optimal results. Actually, it's not a target. You're not like shooting for it. So you have a hero dog. And it's like somebody's trying to get to you. Do you have something to do? Do you have to go? No, my son was coming in the door. So I ran upstairs because I can do that. Since I'm on the phones.

Scott Benner 52:38
I just thought oh, maybe like she's got to do something and I don't want to hold her up. So you go in with your six, five. Now, how did you respond to that, like face to face? Or did you just ignore them and leave?

Shelby 52:49
I literally said that to her. I said I am not going to run her higher to meet your arbitrary requirements.

Scott Benner 52:56
And how was that NASA? This is the important part. How does what's the response back from your assertion?

Shelby 53:03
I said she said it's not her a Wednesday is low because she had lots of lows. I know that was her assumption is that the run you know, running on low or having so many lows is going to lower your average. I said she is in range most of the time. And so she goes Oh, oh, let me look again. And she looked at her actual pump reports and then said, Well, you're right. She doesn't. She isn't having that many low but she loves but she's still having some

Scott Benner 53:31
suggests she has diabetes unit we use insulin made by like a person. It's not perfect. Yeah. It's got to be frustrating. It really I'm in a different situation at our endo where I don't get a lot of, I don't get a lot of pushback. So not too many infuriating things get said to me over the years.

Shelby 53:50
Well, and her regular endocrinologist would have never said that. In fact, when I went to her, you know, and she saw 6.2 she's like, this is great. You're doing you know, she's doing great, blah, blah, blah. So it's just this one in P and we have to see her next time. And I'm already like, geared up to fight

Scott Benner 54:09
to go in there with your gloves on already. Before you start, lady, listen, I'm going to tell you right now what you're gonna find out or anyone see to be when you run that blood value. And then why don't you just not even mention it? Because we're all happy over here.

Shelby 54:24
I mean, I think I might have to practice it.

Scott Benner 54:27
Just keep her keep her spot. That's all just just get the prescription pad out so we can get out of here.

Shelby 54:33
Exactly. Don't ask me any questions. We've got that

Scott Benner 54:37
I need stuff. I need stuff. Oh, that's so amazing. It really is this year. How involved is your husband with care?

Shelby 54:45
Um, you know, when I'm home I typically just do it because I do all the stuff because it's easier I it's second nature, or I don't have to think about it and he really has to think about it. But I you know, I'm not always here and he just, he just does what he does. He's He's learning he's figuring it out. He used to call me a lot when, when I was if I was gone, like how many carbs do I give her, you know. But now he's pretty much got it. I did had to go out of town to take my daughter to visit a college last weekend. And it was sensor change and site change weekend.

Unknown Speaker 55:23
Okay, chum got the full show.

Shelby 55:27
So I did YouTube videos, and posted them so he could watch the video to help him along.

Scott Benner 55:33
That's very good. That's it's a great idea. Just seeing it is I mean, honestly, you know, no matter which pump you're using, it's just not that difficult, you know, so anyone could figure it out after a while the trepidation is, is from that feeling like you don't want to mess it up? Mainly because that's exactly it's about to poke a hole in you. And you don't want to do that more than once if you don't have to. And the second thing is, is that it's expensive. And you don't want to you don't want to ruin it, you know, so I definitely get that. All right. Well, this was really fantastic. Thank you very much, you were perfect for the show.

Shelby 56:08
Thank you. I'm so glad I suggested that I

Scott Benner 56:11
said I come on. Listen, if you think that everyone isn't doing this, that's how I get most people, most people reach out. And they're just like, I really think I could be valuable here. And I'm like, That's excellent. And because how would I find you? And you know, it really is great. There are some people I hear about, and I reach too, but honestly, I'd rather have a conversation with you shall be a person who doesn't have a voice in the diabetes community already. Because you're going to tell your story in a really unique way. You have not been telling it to people for 100 years, you know, at conferences or something like that, which there's nothing wrong with that. But, you know, I like I like hearing a real conversation, not something that you knew you were gonna say 20 minutes before you said it, you know, so I really appreciate this. Now, the one problem you have, I would imagine, is Steel Magnolias. Right? Because your name, right? Because your name is Shelby. And yeah, right there, your husband, cuz I'm thinking about it for myself. You get a little agitated. And I want to say drink your juice shall be but I can't because at the end of the movie, they kill Shelby. Right. So like, if they just want to let Shelby live at the end of the movie, this would be a perfect joke for your husband to use for the rest of his life. But

Shelby 57:23
right. She died. Yeah, they

Scott Benner 57:26
ruined they ruined your husband's job. By the way. They were that movie? And that's what I'm saying. Has he ever said it to you once?

Shelby 57:33
Never, never, ever, ever. I don't even know if he's seen that movie. I would probably he probably freaked out if he saw the movie. And then the Shelby with Type One Diabetes Dies at the End. And he'd be like, Oh my God, that's what's gonna happen.

Scott Benner 57:46
Do you think movies dictate how your husband thinks the world goes? not worried about the Avengers not stopping fantasy?

Shelby 57:55
I don't know. He hasn't seen that either.

Unknown Speaker 57:58
Do you let him out of the house?

Unknown Speaker 58:01
Sometimes just working

Scott Benner 58:02
to pay for that college? I guess. So.

Unknown Speaker 58:05
Get out there your money, buddy.

Scott Benner 58:08
I'd let me say goodbye. And then take one second. I would say goodbye to you personally. Okay, thanks. Thank you. I want to thank Shelby for coming on the show talking about her type one diabetes, for her willingness to tell us that her husband is not really allowed to make many decisions and how our ex has the good stuff. One day someone's gonna get divorced from coming on this podcast.

Unknown Speaker 58:37
Alright.

Scott Benner 58:39
Okay, let's go slower. I'm ready. I want to thank the podcast sponsors Dexcom Omni pod and dancing for diabetes. Don't forget dancing for diabetes is now at touched by type one.org. Same great place, slightly different URL. You can get yourself a dexcom g six continuous glucose monitor@dexcom.com Ford slash juice box

Unknown Speaker 59:03
or

Scott Benner 59:05
to get a free no obligation demo of the Omni pod tubeless insulin pump sent directly to you. But am I on the pod.com forward slash juicebox. Two things before I let you go, it's still pretty early in January 2020. But this month is on track to be the most downloaded in the history of the podcast. So huge. Thanks. I'm out there telling you all the time, please share the show with somebody else. I think you might actually be doing it. Thank you very much. Last thing, I just got a really great review from one of you and I want to thank you directly for it. So whoever elemental is, please know that your review that you left on Apple podcasts really just made me feel terrific. It really made me feel like what I'm trying to do is happening. I won't read the whole thing to you. Because it would seem like I was just tooting my own horn, which I am not I'm putting pointing out that she said, I'm assuming Ellie is a woman that the podcast is challenging to the status quo. That was just heartwarming to me. There was other nice stuff in there too. But that part really made me feel good. So elemental, you made my day. And I want to thank you for leaving the review. And thanks to all of you who've just left a ton of great reviews. I've seen a lot of new ones recently, and they all are very meaningful to me, please don't think otherwise. That one just really just got me right there. I really enjoyed it. Okay, I will see you on Friday with a new show. Sound right? Right. It's a date.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

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