Recall: FreeStyle and FreeStyle Lite Test Strips
From Abbott Diabetes Website:
November 20, 2013Dear Valued Customer,Recently, it has come to our attention that certain lots of FreeStyle® and FreeStyle Lite® Blood Glucose Test Strips produce erroneously low blood glucose results when using FreeStyle® Blood Glucose Meters, FreeStyle Flash® Blood Glucose Meters and the FreeStyle® blood glucose meter built into the OmniPod® system. Erroneously low results that are not recognized may pose significant risks to your health.If you do not use the meters in the photographs below, your blood glucose test results are not affected and you do not need to read any further.FreeStyle Flash®
Blood Glucose Meter
FreeStyle®
Blood Glucose MeterOmniPod®
What do you want from Diabetes Awareness Month?
So November is Diabetes Awareness Month. Okay. Now what?
Aside from building awareness, which is a goal that I hold in high regard, what do you want to happen this month? What change, lesson or tidal shift would you like to see occur after the diabetes online community shines their bright light onto the life of people living with diabetes?
"Something tangible", is always my less than complete answer. But is it reasonable to expect that people who don't live with diabetes have the time or space in their busy lives to commit to understanding a complicated disease?
Using myself as an example. I am a person who understands how difficult living with a chronic illness can be, I know how important it is to the people who are effected to get their story into the world. Yet, when I see a pink ribbon or a football player trying to kill another man while wearing pink shoes... I just think, "Breast cancer awareness", but I don't really know the first thing about breast cancer. I've never made a donation to a breast cancer charity, except to honor the passing of a friend, and I don't proselytizing about breast cancer awareness.
I'm as aware as I can be, and I can't tell you one thing that my awareness brings to the people whose lives have been forever changed by breast cancer. But maybe that's enough?
Maybe that's all the breast cancer awareness people can hope for, that I know they are out there and that their lives have been impacted in a way that makes them want to teach others about their plight. Perhaps their efforts are more about adding compassion to the world and empathy that is rooted in honest concern.
Now, if you handed me a magic wand and put me in charge of diabetes awareness, I'd cast a spell on the world so that everyone would know what to do when Arden gets dizzy in the middle of her practice. I'd make it so that each person could feel the insane mix of pressure, stress and fear that I felt last night when I looked down at Arden's glucose meter and saw, "32". I would selfishly turn the entire world into care givers for Arden and each of you. I think that, if I'm being honest, that's what I want from Diabetes Awareness Month - full and complete understanding for my little girl and all of you.
What I expect however, is no more than my reaction to seeing a pink ribbon and maybe that's enough. I hope that it is.
Since I don't have a magic wand, in honor of Diabetes Awareness Month I'm going to dig even deeper and share our life with type I this month in as raw and honest of a manner as my soul can stand.
It's diabetes awareness month. I'm diabetes blogger. That's my magic wand.
Big Blue JDRF Walk
2013 JDRF Walk
On Sunday we participated in our eighth consecutive JDRF Walk. The walk provides something different for everyone. Community, support and hope are but a few of the good things that emanate from the gathering. I always think back to our first walk, it was just two months after Arden's diagnosis in 2006 and we were still reeling from the shock. The people that walked that day were each and every one, a stranger - but they helped me immeasurably just by being there. The stress that I felt was lightened when I saw so many living well with diabetes. Their presence made everything feel possible and the smiles on thier faces seemed to promise me that we were going to be okay. Today, eight walks later, I hope that our smiles have made someone else feel the same way.
And speaking of exercise and doing something good... When we got home from the walk each member of our family logged their information at Big Blue Test dot org.
from BigBlueTest.org
Since 2010, over 40,000 people helped themselves while helping more than 10,000 others. Most participants in the Big Blue Test experience an average blood sugar drop of 20% and by every Big Blue Test result a donation is made by the program sponsor to help others around the world with diabetes in need.The Big Blue Test is a program of the Diabetes Hands Foundation that encourages people with diabetes to test their blood sugar, exercise for 14-20 minutes, test again and share their experience on BigBlueTest.org. For every test, people with diabetes in need receive life-saving supplies through Big Blue Test grants that are awarded to humanitarian diabetes charities in the US and around the world, made possible thanks to the program sponsor. In 2013, the Big Blue Test grants will benefit two US-based initiatives (each will receive US$2,500) and an additional US$5,000 will support projects in Haiti and the Dominican Republic. This year, we’re seeking to reach 20,000 Big Blue Test entries, which will translate into a donation that will help save lives.
Link between Type I Diabetes and Coxsackie B Virus
I found this article particularly interesting because Arden was diagnosed with the Coxsackie virus prior to her diagnosis with type I diabetes. I was wondering how many of you also saw Coxsackie before type I?
The following is from The Scotsman.
A SPECIFIC virus family has been implicated in the development of Type 1 diabetes, raising the prospect of vaccinations against the disease. -
- by JOHN VON RADOWITZ
Scientists are encouraged by data from two studies that show a clear link between the condition and group B coxsackieviruses, which are known to damage insulin-producing cells in the pancreas.
The potential breakthrough relates to type 1 diabetes which affects around 400,000 people in the UK, 29,000 of whom are children.
Researchers believe that, in time, it may be that with screening and a vaccine, they could prevent a proportion of diabetes.
Type 1 diabetes is an autoimmune disease caused by the body’s defences destroying insulin-producing beta cells. But what triggers the extreme immune reaction in the first place has been an unanswered question.
Suspicion has fallen on enteroviruses, one of the most common infective agents in humans. They include the virus responsible for the common cold, as well as those responsible for polio and viral meningitis.
The new study narrowed the diabetes culprit down to one particular enterovirus population known as group B coxsackieviruses.
The remainder of this article a valuable read and can be found here.
Fifteen-Year-Old type I told, "We are not a hospital or charity"
Many years ago when I was in high school my best friend was diagnosed with type I diabetes. Mike took shots, carried insulin and needed to eat when he said that he needed to eat. Aside from those considerations, he never really spoke about having diabetes. We hung out together constantly, had meals, went on double dates; saw movies and the rest of what you would expect friends to do together. I was around Mike and his diabetes almost all of the time.
Yet I didn’t know much about it.
Mike had so many diabetes related decisions to make and even though we were often together when he made them, I was lost when Arden was diagnosed. As the days after her diagnosis slowly turned into months, I never found myself thinking, “no problem, I remember this from Mike...”. Nothing that I ever saw, heard or experienced with my friend prepared me to thrive or even merely exist with type I diabetes and I was as lost as the next person when it came to really understanding any of the intricacies of type I. It’s my experience with Mike that taught me to be patient with people who don’t understand diabetes. Sure, I still get annoyed and I certainly wish that the average person knew what Arden may one day need them to know in an emergency, but it’s just not reasonable to expect people who don’t live with type I second by second to understand it in a meaningful way.
Yesterday morning I saw a FaceBook post that Mike ‘liked’, it told the story of a fifteen-year-old boy with diabetes who was turned away at his local 7-Eleven when he asked the cashier to help him. I was instantly struck by the story and reached out to the boy’s mother, Katie Franklin. I asked Katie to share her families experience in the hopes that it would promote advocacy and awareness.
Tommy was riding his bike Monday after school when he experienced low blood glucose and because he was without money or supplies, he smartly went into a nearby 7-Eleven to ask for help. Katie tells me that Tommy asked the cashier for a fountain soda or candy because he has type I diabetes, his blood glucose was low and he feared that he was going to pass out. Katie says that Tommy doesn’t normally get so low that he feels this way so he knew that he was in a dire situation. The clerk, who was at a disadvantage because of a language barrier, declined by saying, “No”. The boy persisted and even showed the cashier his Medtronic insulin pump as proof of his need but the reveal of the pump didn’t change the clerk’s mind. Tommy left the store, rode his bike about a block and then called his mother at work; she rushed to him and found Tommy lying on the ground next to his bike. Tommy ate and felt better in time.
Katie drove directly to the 7-Eleven and asked to speak with the manager. Katie said that the manager told her that “we are not a hospital or charity” and when she tried to tell him that all her son needed was a twenty-five cent piece of candy and that it may have meant his very life, the manager walked her down the candy isle to show her that they don’t have candy that inexpensive. Katie, realizing she wasn’t getting anywhere with the manager, got the number for the corporate office and left the store. She was so incensed that she called the office from the store’s parking lot and spoke to the District Manager who promised to make sure that his stores understood type I better.
Katie was surprised when the owner of the 7-Eleven called her the next day because it wasn’t the DM that informed him of the disaster at his store. The owner found out about the incident the same way that I did, on the Internet. It’s important to be clear that the owner of the 7-Eleven was horrified at how his employees treated Tommy and his mother. Katie tells me that she found his apology to be sincere and that she is comfortable that he will take steps to educate his employees. The owner explained to Katie that he owns a number of 7-Elevens and that he will make certain that they all understand what diabetes is and how he want’s his employees to react when someone shows signs and symptoms. He even agreed when Katie suggested that a donation to the JDRF would go a long way toward making her feel better about what had transpired.
I know that Tommy’s story is horrifying to those of us who live with diabetes. It’s frightening to the parents of children with type I and I can only imagine how infuriating to the adults reading this who live with diabetes - but that’s not why I wanted to tell Tommy’s story.
I want to tell this story for two reasons. First because I know, thanks to my friend Mike, that everyone can’t understand type I diabetes but also because I think that we as a community are helped when we are remind periodically of that fact. I can personally see how the cashier, whose grasp of English and no experience with diabetes may have been confused when Tommy made his plea. I can’t however find a way to excuse the manager’s insensitivity and apparent lack of human kindness. I was heartened to hear from Katie that the storeowner understood what she was saying to him and offered what Katie characterized as an appropriately contrite apology. I say heartened because the owner’s reaction tells me that this story can find people who will be changed by it, that this story can make advocates out of people who previously didn’t understand type I diabetes.
The second reason that I think that Tommy’s story is valuable for us to hear is because of the reaction that some people online felt comfortable thrusting in Katie’s face. Please understand that her story was met with a ton of loving support but there were still some people that took the opportunity to chastise Katie for what they considered to be poor management of her son’s type I. What Katie said to me regarding those harsh comments needs to be heard by the parents of younger children living with type I. People told Katie that her son should never be without glucose and money and that it was a failing of her parenting that he had neither with him on Monday. Not having supplies probably seems foreign to the parents of small children because we tend to always have supplies with us but Katie told me a story that sounded all too possible and I can’t say that it won’t be all of our stories at some point in our lives. Tommy was diagnosed when he was thirteen and he’s only been living with type I for two and a half years. Katie has tried giving him money for emergencies, but he spends it. She’s tried to give him candy to carry, but he eats it... Tommy even likes the taste of glucose tablets so they get consumed as well. Katie is traversing a rocky road with her son and I can’t understand or condone anyone that would harshly judge her efforts. It can not be easy to help a fifteen-year-old boy come to terms with what diabetes demands of him. Shame on anyone who felt pompously that they knew better and then took it upon himself or herself to chastise Katie.
It’s annoying yet understandable when the world at large doesn’t understand our lives but it’s a totally different feeling of sadness to learn that people can so easily, especially in a community like the one we all share, turn on another.
If we can’t give each another the benefit of the doubt and extend the kindness that we all know our lives need and deserve, how can we possible hope for that kindness and understanding from the populous at large?
I know that this was a long and heavy post so I want to end it with a story about Tommy that I think we can all appreciate and cheer for. Tommy diagnosed himself with diabetes. At thirteen years old he took to the Internet to search for his symptoms. Tommy told his mother that he wasn’t feeling well but before they could get to a doctor and driven by what I can only assume was the discomfort that a BG of 795 brings to a person, diagnosed himself during a school day and then posted on FaceBook that he thought he had type I diabetes. His mother saw her son online when he shouldn’t be, read his post and took him to the hospital where Tommy’s self diagnosis was sadly confirmed. I love the idea of a confident thirteen year old advocating for himself with the tools that he has at his disposal, almost as much as I admire a fifteen-year-old boy having the nerve to walk penniless into a 7-Eleven and ask for help. I think that Tommy has a lot to look forward to in his life, not just as a strong advocate for himself, but I have a feeling that his story will create advocates where there previously were none and renew the passion in those already advocating so hard. Thanks to Tommy and Katie there are a few less people in the world today who don’t understand.