The Blood Won't Come Out: Day of Diabetes Deeper Look
This post is an indepth look at a 20-30 minute window from our #DayOfDiabetes.
Last night Arden's DexCom transmitter sent a message that it needed to be replaced (That is expected as it is over a year old).
Today, during a moment that I thought would be calm, I called DexCom to order a new one. DexCom told me that I needed to call EdgePark Medical Supply.
I called Edgepark. Long explanation. Was transferred.
Arden texts that her CGM is ready for calibration - I tell her to test and put number in.
Someone picks up at Edgepark. Long explanation. Was transferred again.
Arden texts, "The blood won't come out, I did it like 12 times".
So now I'm talking to Edgepark and texting with Arden because for the first time in over seven years of having type I diabetes. She can't get a blood drop no matter how hard she tries.
Edgepark is explaining my insurance, the guy is nice and making small talk but I need him to shut up because I can sense that Arden is getting upset.
"Still not working, not going to the nurse" - Arden's Text
I tell her to try different fingers, different sides, to squeeze her arm toward her hand and then her finger toward the tip. Nothing is working.
"221" - "I got it dad but I had to do the middle finger and it hurts" - Arden's Text
I tell her that I'm proud of her by text while confirming our address with the Edgepark CSR and while that is all happening, no shit, Arden's timer for lunch goes off.
Cell phone in my left hand, telephone in my right, credit card on the counter, lump in my throat because Arden is upset yet unwilling to quit and the alarm goes off. I laughed... "At least we don't have to test", I text...
That's a #DayOfDiabetes all packed into 20 minutes.
Day Of Diabetes: World Diabetes Day Edition
Six years ago I began this blog with the intention of sharing every diabetes related moment that happen to us over a twenty-four hour period. I planned to share our day with diabetes with my friends and family but didn't have one idea about what I was going to do after that day ended. I had never read a blog, didn't know another family who lived with type I diabetes and only ever saw two message boards in the Internet. I had no idea what my sharing would introduce me to or what meeting all of you would one day mean to me. So many diabetes related events happened in the first few hours of August 16, 2007, that I had to stop before the day was over - but that was on my first day.
Today, I think I can make it for twenty-four straight hours... One full day of sharing to help bring awareness to the the world of type I diabetes. Every moment of our World Diabetes Day that is touched by type I diabetes, I will share as an update here on Arden's Day and other social media portals that lend themselves to the moment. Twitter, Facebook, Instagram, Tumblr
If you want to follow along or share the posts, I'll be hashtaging them with #DayOfDiabetes - Many other DOC members will be doing something similar today, please support them as much as you can. Here we go!
#DayOfDiabetes - Just 39 minutes in and diabetes is already making noise.
#NDAM #WorldDiabetesDay
3hrs 30min since snack time insulin. Going to wait up a little longer. Tonight may just go well. #dayofdiabetes
1:33 am. Arden's BG is drifting lower. Temp basal, off for 30 mins. I'll listen to some music and check again in 30 mins. Eyes starting to hurt.
BG is steady at 95. One last temp basal, off to sleep. now. getting up in 4hr 45min. #DayofDiabetes
I overslept. Sometimes staying up until after 2 am can do that to me. Was woken finally by Arden's DexCom. Not only did her BG slowly drift to 196 by 8am but it wanted me to know that the sensor needs to be replaced in four hours. Thing is, we use that sensor to get through the school day. Going to have to reset it and set timers for extra testing.
Arden couldn't take her chewable vitamin this morning because her BG was 200 and they are 6 carbs, would require .45 units of insulin and hinder the bolus that is working for the elevated BG - vitamins. #DayOfDiabetes
Currently trying to decide what caused morning rise.#dayofdiabetes
The popcorn Arden ate before bed resolved almost perfectly. I set a decreased temp basal at 1am that seemed to work (Happy enough with the 150 range). Guessing the AM rise was not due to temp basal at 1am. If I hadn't overslept I could have boluses it just as it began and I think the 8 am number would have been around 140ish.
Timer just sounded. Arden will be testing in class and sending me a number in a moment. #DayOfDiabetes
Working on high BG from AM & getting ready for snack.#dayofdiabetes
On the phone with DexCom to deal with transmitter battery message. #DayOfDiabetes 10:28am
Arden just texted, CGM is ready to calibrate. She is testing now. #DayofDiabetes
I’ll have a #Dblog up in 20 mins about the last 1/2 hour. edit: Here it is LINK
#DayofDiabetes
Arden is at lunch, CGM is back and new DexCom transmitter has been ordered. This looks like a safe time for me to take a shower. #DayofDiabetes
Post Gym CGM check 97. #DayofDiabetes
I just entered Arden’s post gym BGs in the #BigBlueTest #DayOfDiabetes
Arden is on her way to the bus port. Just sent her CGM, we made an adjustment/bolus and she will be home soon. #DayofDiabetes
CGMnow 90 mins after Chinese food, 84. Small snack going in. #DayOfDiabetes
Arden is in bed, had to bolus again for an elevated BG. I’ll check on her in a little bit. #DayodDiabetes
Lilly Diabetes Book GiveAway
added, November 17 - 9:36pm
The winners have been chosen at random by Arden, watch the video to see if you won - good luck!
Winners please send your mailing address to ardensday@me.com
original post -I have six wonderful books from Lilly Diabetes/Disney that are geared toward children from the ages of about 8 to 12. Each book features a character who lives with type I diabetes. I've grouped the books together by gender, three in each group. These books are available for free from your Endo's Lilly rep - if you are interested and don't win the giveaway.
To enter the drawing, simply leave a comment that includes your email address and a choice of either the boy or girl group. Arden will be drawing one name at random from each group. Entries will be excepted until midnight eastern time on World Diabetes Day (November 14, 2013).
You can enter in both groups but can only win in one. US residents only, sorry postage to Canada is steep. Good luck!
for the girls
and for the boys
The air left the room
In honor of my promise to be as open as possible for Diabetes Awareness Month, I'm going to tell a story that I may not have shared otherwise.
Last night I spoke to a lovely group of woman at their Federation Woman's Clubs meeting. I was invited to speak about publishing, my writing process and to tell some stories from my book. The group was wonderful, engaged and we were having a grand time when I said this in the course of a story, "...my daughter Arden was diagnosed with type I diabetes that year".
The air left the room.
I paused and my first inclination was to say, "No, it's alright... she's doing great" and because of the situation, that's exactly what I did. But it's not "alright", is it?
So this post is for anyone that doesn't know what a day in the life of a person living with diabetes is like... This one is for Awareness Month.
Insulin is fantastic, insulin keeps my daughter alive. - It's also very dangerous. If a person were to take too much insulin, they could die. My daughter takes insulin between ten and twenty times every twenty-four hours. I think about that constantly. Please understand, I'm not burdened by it most days but the thought is with me always.
Imagine if you had to remember to breath or consciously tell your heart to beat... that's what it feels like to love someone or live with, type I diabetes.
When I open my eyes in the morning diabetes is my first thought, I think about it when I'm walking to the bathroom at four in the morning, while I'm driving, grocery shopping, watching television, waiting in a line for a movie - when I wash the dishes, take my dog outside... I think about it so much that it feels like I drank a bottle of diabetes and then tried to eat - everything tastes like diabetes. It permeates life.
I consider diabetes with every decision that I make. Travel in a car, meals, sleep, I even think about it as Arden says, "I'm going to go get the mail". The mail. I stop and think about where her blood sugar is, before she walks to the street to get our mail - something that takes two minutes. Because, what if that's when we miscalculated her insulin. It has to happen some time, right? No one is perfect and not every carb is created equal, eventually we are going to bolus too much and she is going to experience a low blood glucose. Will that moment merely bring on rapid hunger, will she get dizzy, become disoriented? Will she have a seizure? What if no one is there?
I don't know either, so I think about diabetes all of the time in an effort to stay a half of a step ahead of this disease that doesn't seem to follow the same path twice. Yet, when the air left the room I said, "No, it's alright... she's doing great", because Arden is doing great - but I just wish that everyone knew what that meant, in our terms.
Update on 2013-11-06 00:59 by Scott Benner
Post by Arden's Day.
I want to say hello to those of you who are finding this post via a Facebook share and invite you to follow Arden's Day on Facebook. (Hi to everyone else too and thank you for making this post and Arden's Day so successful!).
'Like' Arden's Day on Facebook
'Likeing' Arden's Day on Facebook is a great way to make sure that you never miss a blog post, picture or giveaway. If you love the blog, you'll 'Like' the blog on Facebook. See what I did there? Now, you don't want to miss out on more magical word play like that do you? ;)