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#461 Generational Type 1 Diabetes

Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

#461 Generational Type 1 Diabetes

Scott Benner

Jason is the son, father, brother and grandson of someone with type 1 diabetes.

Jason also has type 1.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


**DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:10
Hello, everyone, and welcome to Episode 461 of the Juicebox Podcast. On today's show, we're going to be speaking with Jason who has type one diabetes. And there's actually a lot of type one in his family, but I'm going to let Jason tell you about that in just a moment. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin.

If you enjoy talking about type one, management and getting community and resources from other people just like you, please check out the private Facebook group. For the podcast. It's called Juicebox Podcast type one diabetes. They'll answer just a couple of brief questions and make sure you're a real person. And then you'll be in with 10,000 other people living with Type One Diabetes, as they help each other and chat. It's really a lovely and supportive place. I hope you check it out.

This episode of The Juicebox Podcast is sponsored by touched. This episode of The Juicebox Podcast is sponsored by Omnipod Dexcom and touched by type one, find out more about the Dexcom g six continuous glucose monitor@dexcom.com forward slash juicebox. See if you're eligible for a free 30 day trial of the Omni pod dash at my Omni pod.com Ford slash juice box. Wait a minute, they've changed the URL. I have been saying to you my Omni pod comm forward slash juice box for a very long time. But starting today, drumroll h just Omni pod.com forward slash juice box links in the show notes links at Juicebox Podcast comm when you click the links, you're supporting the show. Thank you very much.

Jason 2:19
And here is Jason. I'm Jason and I am type one diabetic. And I have a lot more story I guess.

Up Introduce yourself. It is it feels like if I really say what I mean here, then I'll say everything I mean to say in the podcast. That's right. We'll get to it, I guess right 100%. So, alright, so Jason, yours is a fun story. I think in that you're in, tell me if I'm going to tell a story. And then you'll either say that is what happened or no Scott, you're thinking of someone else. But either way. I think you were in one of the group, like zooms that I've been doing and then the first time I set them up, I set them up with like a little kind of email at the end that was supposed to just be like, Hey, thanks for coming. But the email went out the email that went out was thanks for being on the podcast email. Is that right? Yes, that is correct. Wow, my memory is still traps though. I just turned 40 I think I'm getting to the age now where I shouldn't tell people how old I am. Because people in their 20s are gonna be like, there has to be someone younger I can listen to about. But, yeah, but so yeah, it gets that way when you get old. So it feels like that. Right? How old are you? Uh, I think I'm 41. Wow, young. I just found myself saying that to somebody yesterday. And I felt I felt so stupid. But I thought I thought I guess it's my turn in life to say it right. So I, you know, I said, I was like, Look, you know, I know you've This is weird. And you've heard older people say this your whole life and thought they were full of it. I'm like, but you're really young still. And you know, I probably just somebody, so don't act old when you're 41. So you get this email back. That's like thanking you for being on the podcast, and you were generous enough to email back and go, I was on the podcast.

Scott Benner 4:17
But that started us talking a little bit. All right. So how did you find the group meeting?

Unknown Speaker 4:27
Ah, so on the Facebook group for the juice box, and then the, the other closed group or whatever. And I happen to see it on there. So that's why I joined in

Jason 4:42
because it was being made available just to the closed group people. Right, right. I, I see a lot of gosh, this is I feel like this is a dirty word I don't really believe in but I see content creators, panicking trying to keep their audience and they're always Like, you know, I'll make a private Facebook group or you know, I'll come talk to you won't that be exciting? And I think that's weird, but okay. And then they are things to them. That, you know, everyone else doesn't get, and I had been doing these zooms for everybody. And then I thought, well, let me go to the people who are really focused on management stuff and see what you know, they'd like to get together. And that's why I did it just for them, not because I'm trying to exclude anyone else. But I find the conversation to be really kind of lightning, maybe somewhat more than enlightening, you know, just a nice thing to do to get it together with a bunch of people and, you know, hear them talk about stuff that a lot of people don't speak about in your day to day life. Did you talk on the call?

Unknown Speaker 5:48
I did not.

Unknown Speaker 5:50
I always look back on and think I wish I would have but it's it's a little intimidating, especially, you know, since I had really just first time being on that zoom call. And there were a lot of people there definitely seemed more experienced with dealing with with you, and everything.

Scott Benner 6:14
So I was slightly afraid to speak. I guess that's interesting. But I need you to dig deeper into dealing with me, what

Unknown Speaker 6:19
do you mean by that? Well, you're definitely a champion guy. And it, uh, you're very knowledgeable about the subject. And sometimes, you know, you're around people that are incredibly knowledgeable, you just want to sit back and listen.

Jason 6:36
But it's kind of a two way street getting that kick off that conversation with you to get you to talk about it. Well, I have to say it sounded more polite, though. A second way You said it. So that's it. I just thought, oh, is there something about me? I don't know. But you know, it's funny in the, in this scenario, or even with the podcast, you know, some people are more chatty than others. And I talk when people aren't talking. And that's right. You know, it's, you're, you're creating something for people to listen to. And, you know, you got to fill the space. So, you know, and people, like you said, have trouble speaking up. Now. Someone listening right now is like, if you shut up, Scott, they'd say something, but I can't take that risk. That's understandable. I mean, yeah, I need what you're good at. So that's why you make the big bucks, please. That's ridiculous. But I do feel like I might be good at it. Nevertheless. So let's, let's find out a little bit about now, when you were diagnosed. Jimmy, you're 41. Now? How old were you when this happen? But you want to dig a little bit deeper than that and go back to my family history of it. Well, Jason 100%. I do if you did, yeah. 100%. Yeah, go ahead. Tell me tell me about about the clan. Let's go back even further. So my grandpa's brother was type one diabetic. And then my grandpa was not but then my dad. He was diagnosed at three and a half years old. With type one diabetes. That would have been like in 1956 ish. Okay. And he married my mom decided to split out two kids. And my younger sister was diagnosed to 14 years old with type one. And then, almost two years later, I was diagnosed at the age of 1818. Oh, yeah. Was there a specter after your sister was diagnosed? Like, I'm gonna get this too?

Unknown Speaker 8:40
No, I don't think so.

Jason 8:43
You know, I was 18 years old. didn't really think anything could happen to me. I look at my son sometimes. And I think I wonder if he thinks about it. And then I realize, I think just like you just said, I think it's his age. He doesn't imagine anything could ever happened to him. You know, so right. I don't I don't think it creeps. I'm just interested if people live with that kind of feeling of it's coming. Did you know your grandfather's brother? That would be a weird thing to know your grandfather's brother, wouldn't it? No, I didn't. I have no recollection of him at all. So, you know, now I'm just sitting here thinking, do I know my grandparents siblings? And I definitely don't. Right, that must be that must be worthy. The family picnic line ends where we go. Grandma and Grandpa can come but definitely not grandpa's dad. Now he can't possibly be alive still. And definitely his brother. We don't know him that well. It seemed a little creepy. But so it's it's the your father's Jesus your father's grant. Your father's father's brother. Your father. Wow. And then your How is your sister making out? Do you guys talk about diabetes together?

Unknown Speaker 9:54
Not Not too much. I think you know, we certainly jumped on the other part of it. Rabbit Hole either?

Scott Benner 10:01
No, good, good. I'm just interested if you if the two of you have some sort of deep connection, if you don't roll on, go to something else.

Unknown Speaker 10:10
I don't think we've ever really talked about it too much until recently. And the reason it's been recent more recently is because my wife and I have three children. And two of those children are type one.

Scott Benner 10:26
Okay, all right. I will keep thinking. She's like a little type one factory over there.

Unknown Speaker 10:34
yards, left and right there all around.

Scott Benner 10:36
What else? You guys good at making crochet anything? underwater basket weaving. Finally, finally, that artists coming into focus? That's right. So tell me about your first child who was diagnosed.

Unknown Speaker 10:50
Or oldest boy Wesley, he was diagnosed at two and a half years old. We caught it pretty quick, you know, because I'm hyper aware of the symptoms. And then our middle child, Cooper was diagnosed at 11 months old.

Scott Benner 11:11
Diving right in wasting Now, what's the time at all? Is there a difference between managing a two year old and an 11 month old?

Unknown Speaker 11:21
Yeah, I was thinking back on that. And I hardly remember how in the world, we took care of 11 month old with type one. But, uh, it was really just very small amounts of insulin to keep him alive. And

Scott Benner 11:38
it's just constant finger checks at that point in time. How much of your personal experience translates to the kids?

Unknown Speaker 11:47
My wife would tell you too much.

Unknown Speaker 11:51
I tend to, you know, lead the charge and all this and sometimes my decisions in my life have impacted their their care. But for the most part, I've always had pretty good control. And I try to, you know, translate that into them. But sometimes my methods for younger children aren't quite as effective.

Jason 12:13
Okay, how, how are they not as well? What do you do for yourself? It doesn't work for them. Also, by the way, I want to let you off the hook on what your wife would say or not say because spouses in general, you know, what are you gonna do whether it was with a wife or a husband? We're all just looking around thinking like, how they do it so wrong all the time. We've just been around too long. You know, all the things that each other do wrong and hard to remember the things that we do, right, sometimes, but but so yeah, but seriously, like, what did you try on the kids that just didn't work?

Unknown Speaker 12:46
I think in general,

Unknown Speaker 12:49
you know, watching watching my dad not handles diabetes well, and watching my sister not handle their diabetes. Well, I was fairly aggressive with it. And I think when the boys were first diagnosed, I may try to look too hard with that. Or gone completely the other way, instead of trying to find that that middle ground. And of course, after starting to listen to you blabber on about type one, it's kind of falling back into the camp that we need to be a little more proactive and aggressive towards it, not just settle for, you know, anyone see lower than 7.5. But the boys in the beginning, I was always always trying to get it down, you know, to where I was hanging out at,

Jason 13:37
which was where low sixes high fives. And it's I mean, 11 month olds, eating schedule even is crazy. You know, to have an 11 month old under, you know, around seven, I think is a major accomplishment, honestly.

Unknown Speaker 13:56
Yeah, yeah. It was a challenge chain, because you have no idea how much you're gonna eat. And I believe at that point in his life, he was strictly on breast milk. So it was like, how many carbs are in them?

Scott Benner 14:10
And how much? How much are they even drinking? Right? You got to get like you have to get a they should make a clear breast for men who are breastfeeding kids with type one. You know how much smokes going through?

Unknown Speaker 14:21
I mean, right?

Scott Benner 14:22
Someone's gotta get on that. Honestly. That's right. How, what kind of management do you use? Like is it just injections within 11 month old with a two year old? What were you doing?

Unknown Speaker 14:33
At that time, when they were first diagnosed, it was strictly with a syringe. And, you know, some human log in there. And that's because we could drop units that were you know, less than a half. That of course we had to lantis at night or in the morning, whatever, at that point in time. Yes.

Scott Benner 14:53
I wonder how long ago was this? When were they to 11 months? How long ago was this? Jesus Wesley, our oldest boy just turned nine.

Unknown Speaker 15:05
So he can do your amazing math. What

Scott Benner 15:07
do you math in your head? 2012 ish. Yeah, about right. Oh my gosh, we're gonna get that was okay, so not that long ago so technology existed. So then that begs the question what technology were you using at the time that they were diagnosed?

Unknown Speaker 15:24
When my boys were diagnosed I was still MDI with a with a pen and I think shortly after Wesley was diagnosed is when I decided hey, I gotta do some for him to make him think that hey pumps are cool. So at that point in time we shut both jumped on the Omni pod index calm and did a didn't change my agency much. And it really didn't affect him too much because he was afraid of it I guess. And we kind of used it for I think maybe a year with him. And I continued on using it after that of course,

Scott Benner 16:08
so when you say didn't change your Awan see much did it change your lows? Did it change how you got here? A one thing?

Unknown Speaker 16:17
Yeah, I experienced you know, you were at Lowe's. I was a little more controlled, say over my hours. Yeah, because you could adjust the rates overnight or whatnot.

Scott Benner 16:30
Maybe you're coming to tier a one See? More honestly.

Unknown Speaker 16:34
I guess. Yeah. That standard deviation or whatever was probably substantially lower after switching to the pump. Gotcha.

Jason 16:43
Yeah, I think it's um how would people know right like people who have super low A onesies but are achieving them because they're overnight they're sleeping and their blood sugar's 55 all night. They don't realize it. Like hey, yeah, you know, what's that? Like? When you when you think I don't need this stuff? Look at my Awan sees 5.8 I'm great, you know, not realizing maybe how it's happening. We're I don't know, maybe realizing it and not wanting to rock the boat just thinking this is okay. Do you think with without your I guess the question is without your child's diagnosis. Do you ever get off MDI do you think?

Unknown Speaker 17:20
I don't think I would have gotten off MDI. If it weren't sure him. I think I would have definitely picked up the Dexcom. Okay, but I don't know if I ever would have went to a pump.

Scott Benner 17:32
So you do the pump initially, just to make it feel comfortable for your kid, but you're still using it. So what did you learn about it that made it stop being for someone else and for you,

Unknown Speaker 17:44
as you know, you could have the better control that throughout the day and didn't have to carry around an insulin pen in my pocket that you know, you reach in and you yank the pen out of your pocket and you pull the cap off and you still have the needle on the end, jab yourself in the leg on the way out.

Scott Benner 18:03
That sounds like a real story being told.

Unknown Speaker 18:06
Yeah, it's uh, and you know, at that point in my life, I was also very self conscious of it, or I wouldn't really tell anybody about it. And sometimes people see like the top of the pens to get out of my pocket. So when you get a giant Sharpie in your pocket for like, just in case, you saw that I'm Banksy. That's right.

Jason 18:29
You caught me. Yes. I'm gonna go make some beautiful artwork on that wall over there. But yeah, so that's interesting to me, though. So as an adult, even an adult with children and a married person, you really just didn't want people to know you had diabetes?

Unknown Speaker 18:44
That's right. And I don't really know why that was the case, I guess. You know, my dad kept it a big secret. My sister she was a little bit more vocal about it. But she also really didn't tell anybody. There's always kind of Hush Hush.

Jason 19:00
So you kind of cap I kind of inferred from what you said earlier that your sister and your dad maybe weren't as diligent. So in that situation, you took what you saw at home, and you changed it. But but for the hiding part that that you hold on to?

Unknown Speaker 19:16
Yeah, most definitely did. If you didn't know me on a personal level, you had no clue that I was you know, type one diabetic just sitting next year, so.

Jason 19:25
So I don't know this, but I'm asking when you live in a situation like that where most people just don't know you have diabetes. Have you ever had something happen to you around strangers, and they just think you're out of your mind and you get away from it and don't explain

Unknown Speaker 19:43
it? I don't think anything like that has ever happened. I do you remember, one of my first jobs I had out of college. I was you know, sitting at my desk working and I was getting low, not really noticing it too much. in mind, my boss comes over to me and asked me to do something. It was, you know, it was a reasonable request. And I just told him, nope, not doing it. And he gave me a funny look. And then he just walked away. And I thought, Oh, crap, you know, I probably should have said that I should probably go get something to drink right now. So I don't I don't know if he was aware of at that point in time, but I'm going to blame the diabetes at that point in time for that incident.

Scott Benner 20:30
That didn't lead you to explain to him what happened.

Unknown Speaker 20:32
No, it didn't.

Jason 20:34
That's how much you want to keep it to yourself. That's right. Yeah, I listen, I can respect one to keep it to yourself. I don't have a, I don't have a horse in that race. You don't I mean, if you want to keep it to yourself, I think that's fine. And if you want to tell everybody you bump into, I don't care. You know, I just think that whatever makes you comfortable, and happy. Now the question is, did it make you happy now that people know is it better that you told somebody or did you like it better private?

Scott Benner 21:12
Have you been on the fence about starting with an insulin pump? You'd like to, but you're just not sure? What if I told you that if you went to my Omni pod comm Ford slash juice box, you could actually get a free 30 day trial of the Omni pod dash. That means you can just take it home and use it for real with like insulin, you might be eligible for that. And the way to find out is by going to my Omni pod comm forward slash juice box. When you get there, you'll just answer a couple of quick questions. And the process will be on its way won't cost you anything. And there's no risk. Here's what you get with on the pod. First of all, it is tubeless meaning you are not connected to anything you wear the Omni pod, and the Omni pod is controlled with a wireless controller. If you're already a pumper, no more jamming stuff in your bra and your pants down your belt. None of that has to happen. No getting your tubing caught on doorknobs, or dresser handles. And of course, you don't have to disconnect to swim bave or to play rough sports. You can just keep the Omni pod on the entire time constantly getting your Basal and so on. And having easy access to Bolus and my Omni pod.com forward slash juice box. Go check it out right now and see what you think no obligation you might be eligible. It'll take you two seconds to find out. A free trial for 30 days is worth looking into. Some other things worth looking into our touch touched by type one. Now you can find them on Facebook and Instagram and it touched by type one.org. It's absolutely my favorite diabetes organization. They would love it if you just took a look nothing to do. It just want you to see what they're about touched by type one.org. And the technology at the core of every decision that we make with insulin is the Dexcom g six continuous glucose monitor. And you can find out more about it@dexcom.com forward slash juice box. Number of great things about that sound. First of all, no more finger sticks, constant readings, getting to see your blood sugar's speed and direction. Giving you insights to things like Pre-Bolus in your meals or how different foods affect your blood sugar. Dexcom also allows you to share your information with up to 10 followers. I have my phone right here, I open it up. I click on the Dexcom app Arden's blood sugar is 92 and stable. I can see that right there on my phone. I did that in real time. And you could as well you know who else could do that? A school nurse, your sister, a friend, your brother, your husband, anybody who you want to give access to. Earlier today I interviewed a woman who's had Type One Diabetes for 50 years. And she told me that the Dexcom is the single greatest tool she's ever seen in the history of managing insulin. That's quite a statement from someone who's been living with type one for five decades. Check it out@dexcom.com forward slash juice box. There's links in the show notes of your podcast player. There are links at Juicebox Podcast comm where you can just type them into your browser on the pod.com forward slash juice box dexcom.com forward slash juice box touched by type one.org. Let's get back to Jason

Unknown Speaker 25:10
I believe I should have been speaking out more about it when I was younger. I don't think people are aware very much of type one diabetes, and I think, you know, just drawing attention to it can help the cause in general, and just have people, you know, have a little more sympathy towards you if you need help.

Jason 25:29
Some understanding really, right, yeah. Wonder what the cause is? Just awareness, right? Just awareness. Yeah, I always just wonder what we expect from the awareness. I always used to dream about it, just being that someone would be able to help Arden if she needed it, like, if enough people knew about type one diabetes, then she wouldn't be in danger in public, which is, of course, kind of a grandiose idea. But I used to think that about the blog, like, I'll reach everybody, and I'll tell everybody about that. Right. And that way, they'll know if our needs help. But I don't know. You know, like, like, like, I'm aware of a lot of things in the world that aren't right. I can't do anything about any of them. And I don't even try. And I wonder what it's like to I guess now I know what it's like to be on the other side of that, like wanting someone to have an understanding about something, but like, what do I want them to do with this understanding? You know, I just want them to know. And I wonder if it? I don't know, I guess it moves things forward and hope you can get donations for things like that. But I don't know how much it matters, or doesn't, I can't I can't quantify it. I agree with you. I just can't quantify what that means. You know.

Unknown Speaker 26:42
And I think, you know, I have a few other friends that have genetic issues, and you know, they post on Facebook, hey, contact your congressman or whatever. And I think in that sense, speaking out, can help draw attention and you know, have real change if you can get more people to contact you know, people to actually have power to make change.

Jason 27:07
You Yeah, no, I agree. Sometimes you just need numbers, right? You just need them. They just show a have a little show of force. And a little little show of concern makes people makes people a little more active. For certain. Alright, so your one kids nine now? Wesley's nine, right. Yeah, I did that without taking notes. You have no idea how proud I am of myself. Does that make Cooper 766? And I remembered Cooper's name. It's a really big moment for me, Jason, just see it. Oh,

Unknown Speaker 27:36
yeah. Good job.

Scott Benner 27:37
I swear to God, like, right now be like Scott heard names. And more than five minutes later, remember them?

Unknown Speaker 27:44
And don't, don't let me tell you our third child's name. Because you write it down and you'll say it wrong.

Scott Benner 27:50
Oh, really? Tell us at the end. Tell me the complete end because I can't fill my head with any more information about that. Seriously. I can remember dad, sister, dad's father's brother. You and the kids. I mean, if you add some one more person, then I'll be lost. But I do want to attract if your youngest child's got a weird name. Is that what you're saying?

Unknown Speaker 28:12
Well, it's it's Elan. I'm sorry.

Scott Benner 28:16
Jesus, how are we going to get people to listen to the end? Well, you know what, the magic? No, this isn't about No, you lost this now you have to come up with something else that they need to know about. At the end of this episode, Jason's gonna tell you how he and his wife conceived all three children. So just hold tight.

Unknown Speaker 28:33
It's a great story.

Jason 28:36
Oh my goodness. So you're kind of in a really interesting space to me. You're a lifer. And a lifer before technology and someone who kind of got drugged to the technology late, you fill a spot in my heart, you make me feel like I'm talking to my friend Mike. So because he was just in the same situation, you know, diagnosed when it was just sort of like take a shot and, you know, then just make sure you eat, if you get dizzy, have some juice, you know, you don't really have a meter, that kind of life. And there's something about the the pathway out of that time and diabetes, that doesn't somehow lead most of you to the next level. And so I really do believe you when you say that without your kids diagnosis, you would have gone on forever like that. What's the disconnect there? Why without their diagnosis, would you have not looked into anything else?

Unknown Speaker 29:36
I think is it really is trying to make things easier for them. I you know, I can run my diabetes, mostly by how I felt and you know, witnessing them kind of start the journey and they have, you know, they're hyper unaware they can't tell you their higher low or how they feel. So I kind of I looked for that technology to help me, which is, you know, it's all kind of weird too, because the I love technology, you know, something is part of my life every day. And I don't know why I didn't not embrace that technology until

Unknown Speaker 30:16
it was kind of forced upon me.

Jason 30:18
I just, you're gonna make me work harder here. Okay, I can say it's fine. Don't worry, I can do it. I need to understand why we're gonna dig it out of you probably end up costing you a divorce. And we'll find out that six bad things happen to you when you were a child that you've been repressing. But No, but seriously, like, Why don't people want to move forward? You know why when Facebook changes the way it looks to so many people have like a stroke online. I can't believe they change this. I liked it the way it was like, What is it about people and change? But specifically around diabetes? Like why do you meet so many people who've had type one for 30 years? And they're just doing it old school, and they couldn't move forward? I used to have these conversations with Mike and he wouldn't, he wouldn't bend. You know, I was like, like, there's so much stuff here. Like you don't know, like a lot of the problems you're having you wouldn't have and, and I couldn't get him to be interested even Is it just the fear of change? Like is it a Is it just the longer process of like, you know, when you're MDI for you hear people talking on the podcast all the time. They're doing injections for a few years. And then they go to switch to a pump. And the fear they have switching to a pump can often be just like the feeling they had when they were first diagnosed. But I mean, it's like the avoidance of that the uncomfortableness if you don't know, you don't know. But then we're gonna have to end the podcast, because there's nothing to talk about, I

Unknown Speaker 31:40
really want to understand

Jason 31:43
it. To me, it's really important. And I'm trying because it's really important, because there are so many people like you who still don't move up to that next kind of plateau. And the people now who believe that their cutting edge, you all got to remember that at some point, you know, what you're doing right now is not going to be cutting edge anymore? And are you going to have the nerve to ascend as these things better? And so I'm trying to figure out why people can't do that.

Unknown Speaker 32:12
I think your the Facebook reference is pretty, pretty accurate, like people, people hate change. And for me, I think it was change. And it's also a habit, you know, my habit was formed after you know, 1000s and 1000s of injections with a pen or a needle. And it takes a lot of effort to, to break that habit. And it's not like a, I was afraid of a pump, I don't think I was ever afraid of a pump. It was just, I'm used to this is how it is. And this is just how it's gonna be. And it was working for me just fine. You know, my agency was good. And then you know, every time I went to see my doctor, he's just say you're doing good. Thanks for stopping by. Continue doing what you're doing. Doc is really in push it on me. Nobody else pushed it on me. Nobody suggested it. There was no Scott talking to me on a podcast, to listen to you back then to say, hey, there's this cool stuff out there. You should try. Yeah.

Scott Benner 33:22
Well, that makes sense. I appreciate that. The idea of it being a habit. It makes sense. Did you not even were you not even aware of some of the things you could have been doing?

Unknown Speaker 33:33
I was aware of my sister was on Medtronic, at that point in time, like they switch you to it because their control wasn't good. You know, she was all over the map. And you know, I guess at that point in time, kind of saw the pump as a solution for people that didn't have good control, and not something to

Jason 33:52
enhance control that I already had. That's how it felt for Yeah, yeah. It's funny, I think it depends on who you are. And the doctor, you know, like, if you're, you're, if you happen to be in your sister's position, then somebody might say, well try a pump, this might help. And I've also heard people say, you can't have a pump until you figure out how to do it on your own, which doesn't make sense to me very much. But the pump being mainly a delivery system is, you know, I don't understand why somebody can't have a pump if they're struggling with MDI, but right, I guess if you're struggling, the hope would be it would help you do better. And if you're doing, you know, good, you know, better than that, and so on and so forth, and down into fine tuning to me, there's got to be a place where you can't just do any better. Hopefully, we'll all get to that where the technology is just gets us all to a spot where you just couldn't possibly do any better. Right? Did your sister have bad experiences that came to you by any chance or no?

Unknown Speaker 34:49
No, I think well, I sat down talking to my mom about this not too long ago. Like our stories are between my sister and I are completely different. She Just kind of follow more along lines, my dad's footsteps and didn't really care too much about it didn't put much effort into it. And then, you know, I saw that and thought, well, that's not the way it's gonna go. Oh, good for you.

Jason 35:18
That said, it's a big leap to make, you know, it really is to break a tradition that of a family tradition of any kind is not easy to do so, right. Yeah, that's I, I am as happy for you about it, as I think that it's, you know, probably one of those things you can't really even put on your sister. You don't I mean, it's just, you just learned by seeing things. And now you're trying to make this experience for your kids. You know, even better than that, and is that working?

Unknown Speaker 35:45
I don't know how aware other than the fact that they know they have diabetes, that they are. Like, when we first tried the Omni pod on Wesley, it was three or three and a half or something like that. You know, he was just scared to death of the clicking that, you know, it makes what is priming. And that kind of scared you away from it. And then you know, him talking about being scared about it made his brother scared about it, whether we could actually talk to both of them about it. And not until recently here until two weeks ago, we started talking to him about it again. And now Wesley's kind of saying, hey, it is I maybe I do want a pump. So we're in the process of getting that ball rolling again to see if we can

Unknown Speaker 36:33
get an omni pot on him.

Scott Benner 36:35
That's excellent. And he came to it on his own.

Unknown Speaker 36:38
Well, you know, I planted the seeds.

Scott Benner 36:42
Are you planting them? Or were they just planted? Oh, they

Unknown Speaker 36:45
were just planted. You know, I just drop subtle hints here and there. And he's, you know, starting to come around to the light side of things. And

Jason 36:56
he seems to be interested in now. As you know, I'm a fan of that in parenting. It's right. It's a little bit of just, you know, stealthy mention here, let it go for a while bring it back up again. Try not to be too obvious while you're doing it. It's harder as they get older not to be obvious, but you got a good spot there for for that and you're saving yourself all kinds of money because no bribery was necessary.

Unknown Speaker 37:23
That's right.

Jason 37:25
Well, there's there's been some talk about that, too. So there has been talk of bribery. Yeah, we'll say you know, if you did good for a month might might get the Harry Potter Lego set. So nice. We'll see how it goes. Give it a try. See what happens. I I couldn't agree more. Honestly, I used to say on the podcast all the time, and I haven't said it in a while I don't think but I find it odd to let children make medical decisions. They got I hear the argument. It's their body. Don't make them do it if you don't want I'm not saying that. Like if someone's having some crazy adverse reaction to the idea of wearing an insulin pump. Like I'm not saying force them to do it. I don't even mean that in the tiniest bit. But if it's an ambivalence, and you can massage the situation, I don't I don't see why not. And I and I just I don't know like I just I've said it a million times there was a pill that was keeping your kids alive. And they didn't want to take it like would you just go well it's his body doesn't want to take it seems weird to me to you know, so I'm not that I can't do really well on MDI. I'm not saying that I'm just saying if there's a better way for you It's weird to put a seven year old in charge of that decision

Unknown Speaker 38:34
Yeah, I think with our decision to stop down he applied originally was it was it was really getting down to like a knock down drag out fight to get a pot on him. And you know, it wasn't worth the struggle at that point in time. It was it was tears crying running heightened running. How old was he at that point?

Unknown Speaker 38:56
Three and a half.

Unknown Speaker 38:59
I don't know i'm i'm somehow amused by the idea of a diaper child like just blowing the house yelling they do they have superhuman strength to at that age. So

Jason 39:13
I know for their size. Like they could you feel like you really put them to the test till you ask him to roof the house or something they really can't. That's right. They're basically useless. Honestly. I mean, again, smart decision, just you know, follow the comfortable path and now look your back, you know, so I'm down with that idea for certain how you said earlier that your your wife thought maybe in the beginning that some of your ideas were a little aggressive but now that the kids have had it for a while? Do you have a harmonious management style the two of you together?

Unknown Speaker 39:47
Dear you are you guys hearing wife having a harmonious relationship about the control.

Jason 39:55
Jason, how long have you been married 10 years, almost. Man, you gotta go slower, take some more deep breath. No, I mean, harmonious is probably a strange word to use. But I think that we both basically agree on what we're doing. I don't think that I'm bolusing. And she's sitting off to the side going, Oh, I wish this wasn't happening this way. I think that she doesn't maybe understand some of the aspects that I do, as well. But I think we're on the same page, at the very least, are you on the same page? Or?

Unknown Speaker 40:31
Brother? Yeah, we're in the same chapter. I think sometimes I take steps without, you know, consulting her first, you know, what are the changes or adjustments, which, you know, I should do a better job of sometimes I, you know, step outside of that box and make some changes, well, telling her and that kind of, you know, rubs her the wrong way, which is understandable.

Scott Benner 40:55
sentence I, I'm, I'll tell you, if you haven't been married for a while you didn't hear it. But Jason just said, which I should do a better job of that's that right there. Jason has been brainwashed in case you're wondering. He's been, he's been told that he doesn't do a good enough job so many times that he either believes it or can say it with conviction want to be right.

Unknown Speaker 41:16
It's very true.

Scott Benner 41:17
Not that everyone can do a better job. I'm not saying that. I'm just saying that there was there was a tone in your voice. It was like this is the part where I say I could do better. Just in case, my wife hears this, which now I'm assuming you're not going to let her hear but I

Unknown Speaker 41:34
try keep telling her to listen, and I'm going to tell her not to listen.

Scott Benner 41:37
Well, that's interesting, that she not listened to the podcast.

Unknown Speaker 41:40
She doesn't know she, she her job doesn't really allow her to listen to you in the background, like, like I do. Their lives are pretty hectic otherwise. And I don't think she has a whole lot of time to sit down. Listen to you for two hours a week or whatever it is. You have a full time job. Yeah.

Scott Benner 42:01
Could she cut back the part time to help the podcast?

Unknown Speaker 42:04
Oh, um, no, no, she brings home the bacon here. So Oh, okay. We need to work

Scott Benner 42:09
on that. I understand it, I see what you're saying. Yeah.

Unknown Speaker 42:14
I see which way this is happening. I see why you were so good at saying I need to do a better job. That's right. Give you don't do a better job at that you're gonna have to do a better job at making

Unknown Speaker 42:22
money. That's true.

Jason 42:25
Don't worry, I feel exactly the same way. Don't worry. No, that's cool. Obviously, everybody doesn't everybody's life doesn't fit in. But I mean, those of you who are not listening as much as I would like you to because of work. I would like really for you to consider just not working. So you could listen to the podcast more frequently. I mean, make it reasonable.

Unknown Speaker 42:44
It's not a solid plan, solid plan, make

Scott Benner 42:46
some adjustments to help the podcast out with me if you can.

Unknown Speaker 42:50
That's right.

Jason 42:51
What are you doing? I have, you know, I've got plans, I need you to list. I mean, all of those bills are so important. Like pick one you don't need get rid of Hulu. Who, who needs to who needs to pay for insulin or anything when we listen to the podcast, I don't want you to get rid of the big things. I mean, she might have to work nights, you know, just to find some time when other people are sleeping to put together. There's no jobs like that anymore is there where you put together like little things and ship them back to companies and they pay you by the piece? That's a very bad thing to do, right? People are like, Why don't like yeah, there were like these companies who pan made things, they'd ship the pieces to your house, you'd put them together and ship them back to them. And they pay you to like put stuff together. So he's got to grow up pretty broke to know that that exists. But it does. You know, that's great. Well, please tell your wife then. I'm happy, she's happy. And I wish she would listen. And if she listens, of course, nevertheless. And while you're listening, we need two different downloads on two different devices. So that's right, let's be clear, when we when we were making the decisions that need to be made.

Unknown Speaker 44:02
Yeah, I've been planting the seeds if you're just listening to the pro tip series, but uh, we'll see where that goes here.

Scott Benner 44:08
So being being serious about it for a second, do you think that if she just listened to those episodes, for example, that there'd be a marked improvement?

Unknown Speaker 44:20
I think so. This definitely helped me understand things a little bit better. And I think it would get us more on the same page if we have something to talk about other than just our kids. And myself. Yeah, I guess related to related to what you're talking about. Well,

Jason 44:39
I agree with that. I'll tell you what, if I can figure out how to get my wife listen this podcast, I'll let you know. And you can. You can. I wonder if that strikes people oddly, does it seem strange to you that I don't think my wife's ever heard a minute of this. I don't. I'm not surprised by that at all. It's like, you know, she probably juicy enough during the day. You know, now you're starting to sound like my wife, Jason. What's going on? caissons indoctrinated single guys are right now going like, Oh my god, what? I don't want things to happen to me. The other side of it is, there's a lot of good stuff too. But but I think it's in any real relationship. You know, it's tough. You know, I mean, I do hear from people, sometimes you're like, we have a very equal share of management. And we're on the same page, we both listen. So, you know, we can kind of bounce things back and forth. But I think more people fall into the situation you described, where just not everyone has the time. You know, right. makes sense to me. But I have to say, you know, not focusing directly on your wife, but in a bigger way here. I think that the 20 some hours it might take the list of those protests is more than a reasonable investment for return on return. So I mean, that's me. I obviously, am partial to them. And, and I think, I think those those, they do a good job of helping but, but I get it, I really don't. So okay. Well, what are your plans moving forward? Then? Are you thinking about automation? I am currently looping on Android APS. Oh, I don't know why. I don't think a personal APS has ever been on before. Well, well, well, how are you finding that?

Unknown Speaker 46:24
It uh, it's working. Well, I it's, it's not as pretty and nice as lived on on iOS, but it works. Fine. It's got its little quirks.

Jason 46:40
One of the quirks First of all, where are you at in the country? I have to figure out your, your I'm in. Where do you think I'm troubled by my accent here. I Ohio ish. A little bit further west. Listen, I can't now you're gonna prove to me that I don't know what's west of Ohio. That's Chicago. I'm in Iowa. Right in the middle of Iowa. Okay, what the hell's where Chicago? Chicago is, you know, like six hours? east of here. East. I went the wrong way.

Unknown Speaker 47:17
You went the right one.

Scott Benner 47:18
I thought you said West and I guess West. I guess Chicago.

Unknown Speaker 47:22
You keep going further.

Jason 47:24
Okay, all right. I listen, let's not turn this into a geography. Although it probably would be good for all of us if I pulled up a map of the United States right now and described where all the states were? Because apparently, I don't know. And probably nobody else. Let's see. So So yeah, there's just a year there's a little bit of your speech pattern is it's not slow. It's it's paced. Right. And you have a little bit of that non Accent Accent which put me somewhere I felt like midway in the country, but I didn't go quite far enough. So there we go. That's close enough. I wonder how many people in Ohio right now are like we don't sound anything like those people. How could you possibly make that mistake? Yeah, that's all But listen, people in Ohio you have Dave Chappelle. So calm down. You've got plenty. You don't need more. Okay, so you are using an automated it's a DIY automated system. It's called Open APS. Is that right? Android, APS was based on open APS. Android. APS is based on open eight. Okay. So it's, that's interesting, because I had Dana Lewis on a long time ago. Was she involved in Android APS? Or is that not her?

Unknown Speaker 48:43
Okay, I have no clue.

Jason 48:44
I have no clue. Isn't that interesting? I just grabbed it one day, and we're like this works. That's right. Wow, cool. That's really cool down or you're thinking of automation for your kids. So you're going to try on the pod five when it comes out for them? Or what do you thinking? So our insurance, you know, of course, won't cover the dash system. So we can't jump on the horizon bag bandwagon when that comes out. Unless our insurance you know, magically approves it. But uh, in the meantime, my goal is to get them on looped summer garden. And I think that's just going to, like it's helped me out tremendously. Like, overnight, you know, if you saw some other podcasts that I listened to, like, overnight, it's absolutely magical with some sort of automated system handling it when you're sleeping. Yeah. And that would really benefit our boys. Definitely. I think so too. I have to say that as well as loop works, and it really does. There's still something about I don't know if this is just me being silly, but there is still something about it not being not even vetted. It's really Really well vetted. It's just not FDA vetted. And but I don't know, there's something about it just not coming out of the box and working like the idea that if something broke, I, there's no 800 number for me to call and say, Hey, the thing doesn't work anymore. It's just that part of it is very wild, wild west of diabetes sort of feeling, you know, just like, you know, I look at Arden's Riley link, and I think, you know, I mean, what if that breaks, you know, what happens, you know, so, so excuse me, so I went out, and I got another one. And that's, and that's just sitting over there. And I'm staring at it, like, just okay, well, I have it, now something happens. That kind of stuff is strange, you know, like the case on the Reilly link breaks, and we just glue it back together, and it breaks again, and we just pile more glue on top of it until finally one day, it's just a rubber ball of hot glue gun. Like, sometimes I'm like, I wonder if the signal can get through all that hot glue. On that little case together, but but I agree with you, it's you know, overnight, any aiming algorithms overnight are really spectacular. Do you have the same issues around food that people on loop do just that you're you'll see more spikes around food and better control away from it? Often?

Unknown Speaker 51:16
Yeah, you know,

Unknown Speaker 51:19
I try to Pre-Bolus with, you know, the Android APS. And sometimes, you know, I watch what the algorithms doing. I'm thinking to myself, why, why are you doing that? And I've tried to, you know, work around getting those slight spikes after you eat, you know, by disabling a loop for an hour or whatever, and, you know, letting me make the decision instead of the algorithm at that point in time.

Jason 51:45
Now, I, I see it, and it's not perfect, obviously, nothing is, although here's a great example, right now, Arden is at the very end of a pump site. And it needs to be changed. And it will be like when I get done here, I think I'm gonna say to where I think your pump should be changed. But the reason I bring it up is because that I can see that for over like the last eight hours. I think the site's been failing. But the loop keeps pushing more insulin in to take care of the drift up that's trying to happen. If she wasn't on loop. I want on or any algorithm based, like system. I think overnight last night and into the morning, today, I think Arden's blood sugar would have ended up in the mid to hundreds. All right, but instead, every time it tries to get over 120, this thing's just like, Here's more, here's more. And it's happening so much, because like I said, I think the site's just bad. It's, it's kind of all all inspiring, when you look at like, I wish you could just see what I'm looking at right now. She's been getting micro boluses for hours, and hours and hours. And it's doing the job, it's holding her down. That's the kind of little stuff you know, you're going to be amazed by when, you know, horizon, which is called, by the way not called horizon anymore. It's on the pod five, or, you know, even if you're using t slim or whatever you end up using, honestly, yeah, these DIY ones. really spectacular. Like I tried to imagine her as an adult, you know, at noon at lunch at her job and realizing her her sights going bad. She's not going to be home till six o'clock. And this thing's going to be the difference between 100 points in her blood sugar in a situation like that. That is very, very cool. And so is your wife on board with that? Or is this one of these things you'll have to do in the dead of night when no one's looking cover of darkness?

Unknown Speaker 53:43
I think she she's definitely worried about it. She said, so who? Who makes this

Unknown Speaker 53:52
claim on the internet?

Unknown Speaker 53:53
Yeah, it's just keep on the internet. How do you get help?

Scott Benner 53:57
There's a Facebook group. You should have called the Facebook group customer service. There we go. The people on the internet are a highly curated collection of engineering.

Unknown Speaker 54:14
Professionals. See, I fixed it. There we go. I could have used you like two weeks ago.

Scott Benner 54:22
I've been married a lot longer than Jason. That's right. I know how to roll. Actually, I have been married a lot longer than you do you get married late. Or they get married early.

Unknown Speaker 54:30
And probably a little bit of both. Yeah,

Scott Benner 54:32
probably. I know for sure. I was too young. So just finding the right girl Jason.

Unknown Speaker 54:38
Yeah, moved around a little bit. When I decided to move back to Iowa, I decided to maybe it's time to settle down a bit here.

Scott Benner 54:51
What were you doing? drifter cooking meth

Unknown Speaker 54:55
was following another girl at that point in time.

Scott Benner 54:57
Did you know Yeah, where did she drag your ass to?

Unknown Speaker 55:03
Oh, we started in Iowa and she got accepted to grad school in San Diego. So I moved there and that only lasted a year when we were there. So I lived there for a little bit longer. Yes. How can you not pass up? 70 degrees every day?

Scott Benner 55:19
Yeah, you were away from the mic for a second. But I think I took your meeting. It's hard to turn up. It's hard to turn down San Diego San Diego sounds really nice.

Unknown Speaker 55:26
Yeah.

Scott Benner 55:27
Were you like a grad school house husband, what do you do? Cook did the cleaning.

Unknown Speaker 55:33
You know, at that point in time, I

Scott Benner 55:34
was the breadwinner, you know, as work and you know, supporting this. I call that when I was saying there's a person out in the world somewhere living off your hard work who is just like,

Unknown Speaker 55:46
Yeah, something.

Scott Benner 55:48
That's interesting, did you and this has nothing to do with anything but did you imagine the two of you were getting would get married?

Unknown Speaker 55:55
At that point in my life?

Unknown Speaker 55:56
I thought that was a high possibility. And I wouldn't have moved, you know, halfway across the country just

Jason 56:03
for girls smiled at you in a bar once. Yeah, that's right. I would have I'm just I definitely wouldn't have but uh, but I could see it happening for certain. That's interesting. So then when that falls apart, or dissolves mutually, or whatever, Angelina Jolie called it What did what did that? Know? was it who what famous person said they were consciously uncoupling? Oh, it's called playboy and the girl from the Marvel movies whose mom and dad are famous. Come on Gwyneth Paltrow. There we go. Right. Exactly. That's exactly what it was like. You all just got an incredible look into how my brain finds answers. But during the cold playboy, and the woman from the Marvel movies whose parents were famous, got me to palestra, just in case, you're wondering what mental illness actually looks like. So yeah, so were you consciously uncoupled? Or did or did the lock on the door get changed, or whatever. And then you just had it right back to Iowa.

Unknown Speaker 57:04
It was more along the lines of you know, the lock on the door got changed, except she was gone. She went on a trip with her classmates. And when she came back, that's when the bomb was dropped

Scott Benner 57:18
from being a boy, I know because they'd be in a woman socks. And it does in a lot of ways. I don't want to take it from you. But it sucks to be a boy. So Well, okay, so you just took a long, lonely drive across country just weeping into your steering wheel. And then

Unknown Speaker 57:35
now I asked you what that looks like the first year that were out there when that happened. And I see out there another three years until I ran out of money.

Scott Benner 57:44
You made it three more years with San Diego. Yeah, it sounds Is it beautiful to live there?

Unknown Speaker 57:49
It is. I mean, it's 70 degrees almost every day. Fog burns off by noon. Yet the ocean you know, a 15 minute drive away. You just have to be wealthy to stay there is that pretty much? That's right. Yeah. All

Scott Benner 58:01
right. Well, that makes sense. What kind of work do you do?

Unknown Speaker 58:04
I am a photographer. And I also do some drafting on the computer. Nice.

Scott Benner 58:10
What kind of photography? I do weddings is calling. Who's calling you while we're doing?

Unknown Speaker 58:18
I have no idea.

Unknown Speaker 58:19
The understand.

Scott Benner 58:22
text them back us angry letter. Tell them I said so.

Unknown Speaker 58:27
There we go. I don't have the readings gotten out of here. So anyway, what kind of photography do I do? I do. I do some I used to do a lot of weddings. But weddings are a ton of work and get tired and a ton of work on you know, really hot days. Now I do like high school seniors, families, things like that. And then I don't know if you remember my post in the juice box. Facebook group page there. me holding the jdrf Bear.

Scott Benner 59:02
You often use that as a cover art. So please send me the original please. Did you? Did you take that photo? I didn't take that photo. How do you take a photo of you holding something, Jason? And if you set the camera up on a little timer thing,

Unknown Speaker 59:18
podcast some tricks for that. But yeah, it was on a timer and I was running back and forth between my chair and the camera, you know, 100 times at night then had everything set up and yeah, at least got one good photo out of it.

Scott Benner 59:29
Nice. Do you shoot digitally I imagine now does anyone anymore?

Unknown Speaker 59:34
Oh, you know, there's

Unknown Speaker 59:35
so many hipsters are still on but you know, 99% of the world's you know, doing digital for paid work.

Jason 59:43
If you ever see Jason Lee on Instagram. I have not know he's, I guess pretty heavily into photography. And I'm wondering if he's not shooting on film based on some of his pictures but he used to be on My Name Is Earl so he got to put out a book of his photography but it's pretty interesting. Nevertheless, I think photography is something actually kind of, oddly to bring this into a weird figure eight circle. My friend Mike taught me about photography when we were kids. And we were, he was taking it in college. And I was often the guy who would like do weird things like drive his car at him really fast. So he could work with like shutters and things like that, and then swerve away from an adult in a second. Right? And one time, he contacted me and said, Hey, I'm supposed to shoot sports. But Mike, you know, didn't know anything about sports at all. None of them. He just was not a not not a person into sports. And I said, well, the Philadelphia Eagles have training camp like an hour from here, we could like pay a couple of bucks stand off to the side, and you could shoot professional football players. That would be pretty, you know, I mean, that's the best thing I can imagine for the cheapest, you know, it'll give you real access, and you can move around and everything. Right? So I drove him there. And he's taking pictures for 10 minutes. And he comes back to me, he goes, we can leave whenever you want. And I said, you're done. And he goes, I can't do it. I was like, Why can he goes, I don't understand what they're doing. And I'm like, so he didn't, he so didn't understand football. He didn't know where anybody was going to be. He didn't understand the action. He didn't understand the pace, like none of it. So he was just, you know, shooting on film and taking these pictures of nothing, you know, he's like, this is a waste of time. It's a waste of film. Like, I can't get this, let's go. So I said, Let me try. And I had never held a 35 millimeter camera in my life, having grown up incredibly poor. And so he said a lot for me. And I just, you know, it was point shoot after he set the camera up for me. And a few weeks later, he comes to my house with this, you know, big manila envelope full of these eight by 10s. And he goes, here's all the great pictures you took of the football guys, the football guys, you know. And I was like, thank you. And I took them out. I was like, are these good? And he goes, Well, my teacher thought they were great. And I said, Oh, cool. I said, Did you take credit for my pictures? He goes, No, I didn't. I was, like I said, you could have you know, but it turned out like in that moment, I just I started really enjoying taking photos of things. And one time, I was saying this to Mike's mother of all people. And I said I don't understand how the camera works at all. I don't know what any of these settings do. I don't even care to understand. I just I feel like I know where to point it and when to push the button. And she was flipping through my pictures. She goes, Well, you're really good at this part. And I said, Oh, thank you like, and so he should take pictures all the time. And now that my kids are older, I have a pretty decent camera here that I don't see quite often enough. But I have a lot of pictures around the house that remind me of that time and of Mike actually, because this family was huge about putting photos up in their home. And I always used to love that about them. I'd go into their house, and they just had there were pictures everywhere. And I've tried to adopt that a little bit, I guess in in Mike's memory and his family for showing that to me. But yeah, I don't understand how a camera works at all. But I am I'm pretty good at pointing other people. So I'm sure you're much better the the other stuff. Yeah, taking pictures part is pretty easy. To me. It's the run the business part of things. It's the challenge. It sucks, doesn't it? Like I know, times when I have to send invoices out for the podcast, and I'm just like, Oh, my wife's like, isn't the point of making the podcast? I'm like, No, the point I'm making for the podcast. I was like selling the ads is is a necessity. But I hate this part. You know, I really don't feel good about that. But do you ever just screw yourself out of money just sitting there waiting too long and stuff like that? Oh, most definitely. That's when I you know, I get that talk from my wife. Well, Jason, you need to do a better job of that. That's right. I do need to do a better job of that. Thanks for reminding me there's a strong possibility This episode is gonna be called Jason needs to do a better job. Oh. My goodness. Well, is there anything that we did not cover that you were hoping to?

Unknown Speaker 1:04:23
I don't think there's anything else unless you have some

Jason 1:04:26
great idea here. Oh, all my ideas are great. Jason. That's the first thing and secondly, I don't I just this was a nice conversation that I didn't have a lot of like preconceived expectation for which are my favorite kinds honestly. I guess I do wonder though, about your third child a little bit. So tell me tell me your third child's name.

Unknown Speaker 1:04:54
That's a Elan Elan Yes, spell my e li n see my seat. ballin, boy girl,

Unknown Speaker 1:05:01
girl.

Scott Benner 1:05:02
I thought so saying Alright, so little Elan is how old she is. Two and a half. Okay, so she's in between the first diagnosis age and the second diagnosis age.

Unknown Speaker 1:05:15
Yeah, she's she's within that

Scott Benner 1:05:16
range. Do you stare at her like a mental vacation most of the day wondering if she's gonna get that

Unknown Speaker 1:05:23
we often wonder about the you know, we pay attention to, you know how much she's drinking, and when she's going to the bathroom. Like it's always in the back of my head. And it's always in the back of my wife's head.

Unknown Speaker 1:05:37
Also.

Jason 1:05:39
Don't think we have sorry, we have tested her finger multiple times. So is it ever showing you anything concerning it's only showing me that she has a fully functioning pancreas? Nice. That's excellent. I have to say now I can't joke about your wife not working because there are three diabetics in the house. I want her working full time. Non Stop making money for the what I'm assuming is just a cooler full of insulin in your refrigerator. So

Unknown Speaker 1:06:10
we have you know, more than that little butter drawer whatever it is on the side of your refrigerator full of insulin.

Scott Benner 1:06:18
Yeah, you the butter compartments, not big enough for you guys. You

Unknown Speaker 1:06:20
need the tray, the deli compartment. And we have a whole 36 inch wide upper cabinet that is full of pump supplies for me and Dexcom sensors and

Scott Benner 1:06:33
I bet it's tough man. It's a it's a big expense I feel for you. It really I mean not to make light of it. It's really a it's a lot. Do you guys all use the same insulin? Or is it just are there different kinds

Unknown Speaker 1:06:45
of different kinds?

Jason 1:06:47
Both the boys are on Nova log in Lantus. And then I'm just on Chima log. Yeah, well, if this Armageddon thing happens, you're gonna have to get a shotgun because anybody who realizes there's three diabetics in your house is coming to you first for insulin. They're gonna skip right over. They'll be like, no, there'll be more at Jason's house than at the pharmacy. Let's go.

Unknown Speaker 1:07:07
That's right. Oh, my goodness. Wait, where's freedom drive? We pick up our prescriptions like, do we have enough of that to give you right now?

Scott Benner 1:07:15
The pharmacy looks a little nervous when you get there. Yeah. Tell the other people with diabetes to wait till tomorrow, Jason. No kidding. That's really interesting, man. It really is. Alright. Well, I really appreciate you doing this. Thank you for taking the time and for telling me so many things that I think you're gonna make. eventually get you in trouble with your wife. So probably, yeah, yeah, I really don't think we should tell her about this. And you know, or you can give her give her another episode. Listen to be like, that's right.

Unknown Speaker 1:07:45
She hears me enough. So,

Scott Benner 1:07:46
yeah, now I get that feeling too when I'm talking to my wife. That she's like, yeah, your bullshit. Old, long, long time ago. You go tell those people on that podcast, something. I don't care. I'm making her sound bad. She's not a bad person. She's lovely, actually. But it's not funny to say she's lovely. Jason. There's

Unknown Speaker 1:08:07
no wind in that for me. Really? You know, you're you're on you don't have anything to fear because she doesn't listen to the podcast. So Right, right.

Jason 1:08:14
Hey, listen, at the end of this just in case you want to say anything really lovely to your wife that would be endearing, just in case she makes it this far. She makes it this far. She is young and beautiful. And she is very knowledgeable about what should be done to take care of our boys. And the girl that you went to San Diego with she was a huge mistake and probably just not worth it at all right? That's right. Right. That would not be would not be where I'm at without it. Yeah, well, Jason, you need to do better. That's all I can say. I'm sorry. No, don't see that. See how good that was? Is everyone listening? He said I'm sorry before he even knew what he was apologizing for. You're good at this. You're gonna married forever. I don't know if that sounds good or bad to you. So I'm gonna let you go now. Alright, well, tune in next week when we'll say horrible things about marriage some more for reasons that are just for comedy, because it's fun. Anyway, hold on. Hold on one second. Jason, I want to thank you when we're not recording.

Scott Benner 1:09:24
Hey, huge thanks to Jason for coming on the show and sharing his story. Thanks also to touched by type one Omnipod and Dexcom find out more about the Dexcom g six continuous glucose monitor@dexcom.com forward slash juice box. Look into the possibility of that free 30 day trial of the Omni pod dash at Omni pod.com Ford slash juicebox. And of course, check out touched by type one at touched by type one.org. They're also on Facebook and Instagram.


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