#439 How We Eat: Gluten Free
Scott Benner
Type 1 Diabetes, Celiac and Gluten Free Eating
Lindsay is a type 1 who has Celiac and eats Gluten Free.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Amazon Alexa - Google Play/Android - iHeart Radio - Radio Public or your favorite podcast app.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to Episode 439 of the Juicebox Podcast. On today's show, I'm going to be speaking with Lindsay. And this episode is another in the how we eat series. So number 400 is how we eat carnivore. Number 373 how we eat vegan cat number 405 how we eat plant based. And today of course, we'll be talking about a gluten free diet, amongst many other things.
Lindsay has had Type One Diabetes for a very long time. She's also had celiac for a really long time, not as long as the diabetes, but still, you'll see. Today she's on the show to tell her story. And of course, we're going to talk about how she eats. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan. We're becoming bold with insulin.
I don't normally do this. But Lindsay, if you're listening, I just went back to see your initial email that you sent me and your life is so full and rich. And we basically didn't talk about any of it. So you can come back on whenever you want. Send me an email.
No kidding. We should never have talked about the celiac Look at all this stuff. Oh, Captain that says firefighter business owner skydiving marathon. does that say? Wait? Hold on a second deckhand. I deckhand on a fishing boat, not a boat, Captain. I mean, I've never been on a boat. So it all kind of seems the same to me. Anyway, before we get started, let me just throw my deep voice and tell you that nothing. No, I was already said that. Oh boy, here we go. This episode of The Juicebox Podcast is sponsored by the Dexcom g six continuous glucose monitor, head over to dexcom.com Ford slash juice box to learn more about the CGM that I think is life changing for people who are using insulin. And of course, the insulin pump that my daughter has been using, since she was four years old is the Omni pod. And it is a tubeless insulin pump. Why don't you check it out and even get them to send you a free no obligation demo by going to my Omni pod.com Ford slash juice box. While you're out there on the internet checkout touched by type one.org, two great little organization that does amazing things for people with type one diabetes, touch by type one.org. And you can find them on Facebook and Instagram. And the person who started touched by type one is going to be on the show in a couple of weeks.
Lindsay 3:01
My name is Lindsay, I live in New Jersey. I've been a type one for a while since I was six years old. So for about 27 years. I just hit my 27th year in July. And I've been celiac for about 16 years. Okay,
Scott Benner 3:23
how did the celiac present itself.
Lindsay 3:27
So when I switched doctors from a pediatric endocrinologist to an adult doctor when I was a teenager, they ran it the celiac test as a random routine test for new patients. And the one marker did come back positive. Of course, when they do the blood work, it'll come back positive but then it has to be confirmed with a biopsy through an endoscopy which was also done and it was confirmed. I I had no idea at the time what it was I'd never heard of it. My mom had never heard of it. And we kind of we started from that point. Totally gluten free.
Scott Benner 4:13
So were you living with type one for about a decade without understanding that you had celiac do you think?
Lindsay 4:19
Yes, I do. And in looking back in hindsight, I always had just kind of like a funky stomach i can't i have no other way to describe it. I'm just very, very agitated I was uncomfortable a lot and I felt like it was a lot more than it should be. So all throughout elementary and middle school I just was in a lot of discomfort and looking back now I do believe that I was celiac positive at that point.
Scott Benner 4:52
I'm trying to decide if you guys come on and try to name the shows while you're talking because I'm very drawn to funky stomach as the title for this episode. Just you You know,
Unknown Speaker 5:00
I love it.
Lindsay 5:01
I think it's I think it's a great title
Scott Benner 5:04
to work towards celiac in there somewhere. So people understand why but I think funky stomach is very strong. Okay, so that that's what you know, it's so funny, you're gonna be great at this because I had a question for you. And you answered the question and just continued talking. I was like, Oh, this is gonna be easy for me, thank God. But um, okay, so let's put a little bit of context to funky stomach so that people who may be experiencing the same thing understand, what what did you notice what was happening?
Unknown Speaker 5:38
What was that?
Scott Benner 5:39
What What did you notice? Like what made you like, you know, did you eat something? And then or were you not connecting the dots in those first 10 years? Did you say
Lindsay 5:48
yours? I don't think I was connecting the dots at all. Nor were my parents. I think we had been to the gastroenterologist, and then to the doctor, and we were always really on top of my health all throughout my entire life, basically. But I think at that point, a lot of people didn't really think celiac, they didn't really think all of these other things, that could be the problem. You know, they just kind of would brush it off and say, Oh, it's, it's a funky stomach, or it's your genes, or, you know, maybe you have a sensitivity but we don't, we're not that concerned about it.
Scott Benner 6:27
So they weren't that concerned with you. They weren't that concerned, because they weren't in the bathroom with you after you ate. I bet you were concerned. Right?
Lindsay 6:34
Well, they weren't living with me. And, you know, I know a lot of other people with celiac and undiagnosed celiac. Say that they struggle like in the bathroom. They really, they really are their lives are affected terribly. And I don't think I was ever at that point. It didn't seem to be that drastic for me. But yeah, I think we just kind of brushed it off for the first 10 years. And then once we put the pieces together, and once we got the diagnosis, I it really all started to make sense. And the symptoms, now that I know their bloating, their discomfort, diarrhea, nausea, I never had any vomiting, but I was often very tired, just kind of lethargic. And those really do fit the bill. Okay,
Scott Benner 7:26
so you eat something that doesn't, let's just say agree with your, with your system. And then what's the timing? How long does it take for symptoms to pop up? How long do they last?
Lindsay 7:38
So for celiac, for me, I would notice symptoms within about a half hour, I would say half hour to an hour. And I really don't know how that's possible. And I've asked this question to my doctor several times, we've kind of come up with an answer, which is a whole other conversation that I can touch on. But the celiac affects your small intestine. So for food to get to your small intestine, it's going to take quite a while. So I'm not really sure how I'm symptomatic in such a small frame of time. But the one the one thing that I was going to mention is that I have figured out some other foods that I've had issues with which has led me to also being on a low fodmap diet, which is an acronym for different types of carbohydrates that are difficult to digest. And that's really where like a lot of different discomfort was coming from as well.
Scott Benner 8:38
Okay. All right. So it's something it hits you pretty quickly. discomfort comes in all the ways that you described, does it last for hours days,
Lindsay 8:49
it will last for days. So if I eat something with gluten in it, I will have severe just exhaustion, achy, achy, Enos almost flu like or mild flu like symptoms, just feeling absolutely terrible. And that will last for me for probably a couple of days. And the only thing I would be able to do to try and help that along is just hydrate, drink a ton of water. I exercise a lot. So I would do my best to really continue exercising. I feel like that can only help and just do your best to filter out whatever toxins. You know, I have in my body. It's
Scott Benner 9:34
crazy. It really is strange. And I'm assuming if you don't understand that this is why it's happening for food reasons. Then you probably eat something that makes it keep going daily, right? There's probably no really getting out of it back before you understand. It's just you just think you have a funky stomach.
Unknown Speaker 9:51
Right, exactly.
Unknown Speaker 9:52
And I say, for me,
Lindsay 9:54
I love food. I've always been a great eater even when I was a baby. So We were eating all sorts of different foods. And when I was little we were traveling and we were just having a ball. And, you know, almost I felt like everything I ate affected me negatively, in some way,
Scott Benner 10:13
because at some point probably in every meal, you had something even if it wasn't everything you had something that was impacting you. Oh, for sure.
Lindsay 10:21
Yeah, absolutely. And now knowing what it is gluten will hide in so many different things that people don't even know it's in. It's really
Scott Benner 10:31
tough. Tell me about that. Where would it exist? Like we think I would think of bread, right? I'd be like, Oh, I guess? I guess Lindsey doesn't eat pizza, and things like that. But where is it that we don't think of it.
Lindsay 10:43
So other things would be different kinds of sauces. So some salad dressings like thick pasta sauces, like a Baka sauce, Alfredo sauce, soups, a lot of soups have have wheat flour and gluten in it. It's really a thickener. It's it's a protein. So it binds food. It makes food sick and yummy and delicious. And unfortunately, you know, those are those are off the table. A lot of people we eat a lot of sushi. So a lot of people don't realize soy sauce has wheat in it. Beer, a lot of different alcoholic beverages if you're over 21 Yeah, and of course, bread. Oh, any any kind of carb karvy? Would it starchy food?
Scott Benner 11:35
Would it be easier to list the things that don't have gluten in it? Yeah,
Lindsay 11:40
it would, it would. And it's, it's really like vegetables, fruit, chicken, fish steak. Those things are naturally gluten free. And then, over the years, and since I was diagnosed, it's become a real market for food. So there's so many different options now. So we have breads and pastas and all sorts of sweet treats and anything we could possibly imagine.
Scott Benner 12:07
Um, it's an autoimmune disease. Is that right?
Unknown Speaker 12:11
It is Yes.
Scott Benner 12:12
Is that your only other autoimmune type? Just type one in celiac?
Unknown Speaker 12:17
Yes.
Scott Benner 12:18
Gotcha. And it so is it. The lining in it? Like I know you said the small intestines, but it's something about the lining in the small intestines is there like flattened out or something like that? or?
Lindsay 12:30
Yeah, so your small intestine has lining, they're made up of small little finger like objects called v lie. And when a celiac patient eats gluten, the gluten, the body attacks that gluten as an invader, and it will the villa will become flattened out. So normally, they're like hair like structures, they absorb things, they catch things as they travel through the small intestine. And it will become they will become flattened out over time. Which really then causes inflammation, damage. And then of course, other things from that point, which would be malabsorption. of anything that you're eating anemia and, and all sorts of different other problems.
Scott Benner 13:23
So then you start with Once this happens once the gluten attacks, that lining and starts flattening it out and causing all these other problems, you're also going to start having trouble absorbing other nutrients as well, correct?
Lindsay 13:37
Yeah, correct. And a lot of patients with celiac who are undiagnosed, are really quite underweight, or just very unhealthy. They obviously, I would think most of them feel terrible. And they're just not they're not thriving.
Scott Benner 13:52
Yeah. That's very interesting and timely for me. Because if you if you listen to the podcast, I don't think I've said it out loud, like completely, because I'm still trying to figure out how to talk about it. But I've learned that it's possible. I have a genetic problem where I can't absorb iron. Okay.
Unknown Speaker 14:09
Yeah. And
Scott Benner 14:11
so I've had a lot of these different tests, you know, and the endoscopy the other way, you know,
Unknown Speaker 14:19
lovely. Yeah,
Scott Benner 14:19
I've swallowed a camera that was fun. Or like this purse around my neck for a bunch of hours. And I could just pick it up and look at this little screen and watch the camera go through my system. And oh, my gosh, yeah, kind of cool. Well, yeah, I mean, but the camera came out, Lindsay
Lindsay 14:37
I'm glad it came out, though.
Scott Benner 14:38
Yeah, I'm just saying that part I wasn't as thrilled about and it but it's very interesting that these two things, they do sort of mimic each other. I have just started the process of getting involved in a study for people who don't absorb iron that's happening out of Boston Children's I think, okay, and We might be figuring out that my son has it as well. Oh, wow. But it's just it's very interesting to see to how it affects me. But he being younger and more kind of, you know, vital than I am, obviously, where he can kind of overpower some of the symptoms, unlike this where this would just down anybody. It's just really fascinating that that it's all the idea of your immune system seeing something incorrectly, like just it's seeing the gluten incorrectly. That's the entirety of the problem. Is that really it?
Lindsay 15:33
I believe so. To the best of my knowledge. Yes. And it is. It is very interesting. It's very scary. autoimmune diseases, as you know, there's just so many question marks, and there's so many of them. And nobody really knows why this seems to happen. Yeah, it's quite
Scott Benner 15:51
scary. Why did people stop calling it celiac? sprue?
Unknown Speaker 15:55
Oh, I really don't know. I
Lindsay 15:58
think people, I think people are just getting a little bit more used to it now. So just calling it
Unknown Speaker 16:02
celiac.
Scott Benner 16:03
My wife's grandmother, me and my wife's grandmother had it. Excuse me. And she if you asked her what was wrong, she's like, I've got the sprue
Lindsay 16:12
I think I'm gonna start saying, Yeah, just start telling people you really, really interesting.
Scott Benner 16:18
I have the sprue. I'm gonna read. I'm gonna read for a second an autoimmune reaction to eating gluten, a protein found in wheat, barley and rye over time, the immune reaction to eating gluten creates inflammation that damages the small intestines lining, leading to medical complications, it also prevents absorption of some nutrients. The classic symptoms of like you mentioned diarrhea, other symptoms include bloating, gas, fatigue, low blood count, anemia, osteoporosis, and many people can have this without symptoms. That's interesting. a mainstay of treatment is strict gluten free diet that can help manage symptoms and promote intestinal healing. Okay, so once you figure this all out, and you switch to a gluten free diet, back before it was hip to say you weren't eating gluten. And before it was hip, I'm assuming it was difficult to find things that didn't have gluten in it, what did you do in the beginning,
Lindsay 17:08
I remember it being very difficult. I remember really going through a whole extensive list of foods that I was going to have to eliminate from my diet. And being in high school, I, I was kind of in denial about it. I was like, Oh, this, you know, this isn't really a big deal. I'll figure it out. And maybe I'll have a you know, sneak a cookie here and there. If I really want one that didn't last very long. Because once I realized what I was doing to myself, just with one cookie, I really kind of had like, a total 180 I couldn't continue on that path. So we eliminated and we meaning my parents and I a lot of different foods and and we had to just totally navigate the food store in a different way. At that point, there was some pasta that was out which was made from keen Wah, and maybe some some rice pasta, but other than that, there wasn't much of anything at all. Okay.
Scott Benner 18:13
Yeah, and now there's a ton of stuff, but it's expensive, right?
Unknown Speaker 18:18
Yeah,
Lindsay 18:18
there's a ton of stuff. And it's, it's pretty exciting. And I always tell people, like being celiac for so long now. It really makes food more exciting. If I find like a cupcake that I can eat or a really great bakery. It's just the most exciting day like, of the year so um, it that's that's definitely the positive but one of the negatives is yes, it is very expensive. I but when you when you don't have a choice, you just
Scott Benner 18:49
No, of course, I was wondering if you can't submit your your grocery bill to your health insurance company. That'd be interesting.
Lindsay 18:56
Yeah, that would be interesting. I we can as far as I know, and I think I do still do this. But we can write off gluten free foods from our tax taxes. But you know, your write offs are not super significant with that stuff.
Scott Benner 19:12
Yeah, yeah. write offs are more exciting to talk about than they are when you watch how they kind of come together in your tax situation. Like I did all this. I have this I have that. And then the guy comes back and he's he tells me he's like, Oh, yeah, it's good thing. You sent all this stuff in because it decreased your bill by and I'm like, that's not enough money. Like what do you
Unknown Speaker 19:31
know, it's like $100 there's
Scott Benner 19:34
not exciting. You didn't excite me with it. But that's interesting that you can do that. Okay, so what is a like, what's a day's worth of meals? Like for people who are listening right now who may think they have this and you know, what do you get to eat and did you eventually get accustomed to it? Alright, I feel some fast talking coming on. I'm gonna get through all the ads without stopping here we go. The Dexcom g six continuous glucose monitor is a staple in my daughter's life. We make decisions about insulin dosing, direction and speed of her blood sugar, all from the Dexcom g sex, I can watch it on my iPhone. If you had an Android, you could watch it from there as well. Arden loves it. She loves not having to do her finger sticks. She loves being able to see the speed and direction of her blood sugar. She loves that we can Pre-Bolus and make good decisions about her meals that keep her blood sugar's in a stable range. There's no more guessing about where your blood sugar is, or if it's moving when you have the Dexcom because you can see the speed and direction. And a moment ago I said I can see Arden's blood sugar on my phone. Well, that's because she can share her information. If she wants to. With up to 10 followers. This is for Android or iPhone. Please, please take it from me when I tell you that I was not nearly as good at diabetes before Dexcom. As I am now with it, check it out@dexcom.com forward slash juice box. There are actually links in the show notes of your podcast player, and at Juicebox Podcast comm if you can't remember the link now onto the AMI pod. My daughter started wearing it when she was four because I didn't want to send her to school on shots. So we got her on it before kindergarten started. And we have never looked back. She is 16 right now. And she has more than Omnipod every day for the last 12 years. And it's been a friend the entire time. She's worn it while she's swimming while she's running while she's playing softball, taking a shower and doing all of the other things that everyone does every day on the pod gives you the freedom to hide the pot if you want. Or to wear it out where people can see it, it doesn't matter. It's completely flexible with your needs. And there's no tubing, you are not connected to a device or a controller when you're using the Omni pod. And that is an amazing feeling of freedom. My Omni pod.com forward slash juice box on the power be thrilled to send you a free and no obligation demo of the pod right now. We'll send it to your house so you can wear it and see. If you don't like it, it's cool. And if you do, you can just keep going. It's amazing. Miami pod.com forward slash juice box. Speaking of amazing, Elizabeth forest started touched by type one a very long time ago. And she is building an amazing machine over there. A machine that helps people with type one diabetes, I told you earlier Elizabeth is going to be on the show pretty soon. But in the meantime, you can check out what she and the organization are doing at touched by type one.org. As a matter of fact, I'm doing a little thing for touch by type one at the end of February. And if you'd like to come you can just go to their website and sign up. It's absolutely free. Touched by type one.org go to programs then upcoming events. And there it is February 26 bold with insulin life. They're also by the way on Facebook and Instagram. So check them out. I'm on Facebook and Instagram as well. But I didn't buy an ad on the show. So I'm probably not allowed to talk about it here. I should probably ask the boss. I just heard back. And it turns out if I wanted to talk about my Facebook and Instagram here, I'm allowed to make Juicebox Podcast on Instagram and bold with insulin on Facebook. That's the public page. And the private page is Juicebox Podcast type one diabetes. And I have a blog Juicebox podcast.com. Actually, there's diabetes pro tip.com as well just want the diabetes pro tip episodes, as well as the defining diabetes stuff. I mean, it's all right there and your podcast player but those are a quicker way to do it. If you're just looking for them. Diabetes pro tip.com.
Lindsay 23:57
Absolutely, I did get accustomed to it. I did. It took me a little while to really get into a groove with what I like to eat and what I didn't like to eat. I mean, right now. There are so many options. So there's so many different choices for people, but a day's worth of food for me. Breakfast I often have like a piece of gluten free toast with almond butter. I eat eggs a lot. So eggs are gluten free. protein shakes, I found some protein that is it's vegan and gluten free and it doesn't upset my stomach. Lunch I eat I eat fruit IE yogurts. I'm also dairy free, so I'm just going to throw that out there. So all my yogurts are coconut and almond and non dairy. And I feel like I have a huge variety of foods that I choose from but I'm like not thinking of all of them right now. I mean, we eat a lot Lot of food in this house, so we're definitely not not eating.
Scott Benner 25:05
What happens like, Are you married?
Lindsay 25:08
Not yet, but hopefully soon. If he's listening from the other room, maybe we can take that as a hand. Oh,
Scott Benner 25:13
okay. Well, I mean, I can try What? What's his name?
Unknown Speaker 25:18
Brian,
Scott Benner 25:18
Brian, buy a ring. What are you doing? There you go, maybe? And but that's my question is the people that you you live with? Do they have to eat this way with you too? Or is it just impossible to not? Or is it? Do you just make two meals? How do you manage,
Lindsay 25:34
so he eats gluten free with me as well. We aren't a totally gluten free household. So he has his own bread, and English muffins, and he has his own beer. So some things are in the house that are not gluten free. But when I make a meal, and I do most of the cooking, I will just prepare gluten free meal. So he enjoys the pasta, he really can't tell the difference. desserts really the same thing. He'll eat everything. And he has no complaints about it. So it just makes it a little bit easier when you're when you're making full meals.
Scott Benner 26:11
you're cooking, and he hasn't bought a ring. That's all I heard. Just in case you're wondering. I would love for someone to cook for me honestly
Unknown Speaker 26:18
is a wonderful guy. I'm
Scott Benner 26:19
sure I just want somebody to cook for me is really what I'm saying. But here's what you get when you're cooking. as near as I can tell, no one knows how much effort goes into it. And if they don't like it, they're very quick to tell you. This wasn't very good. You like oh, well, it still took me three hours. So I really appreciate you saying that. It's seriously,
Unknown Speaker 26:40
it's not fair.
Scott Benner 26:41
Do you find yourself trying to approximate, quote unquote, food from before in a gluten way? In a non gluten way? Or like Like you said, you said there's a pasta that doesn't have gluten in it. But is there a way to just throw away? You know, modern eating? And like, What? How would you do that? Does that make sense?
Lindsay 27:04
I'm not sure I understand. You mean like, if we, if we just didn't have the pasta? Well, no,
Scott Benner 27:12
I guess what I'm saying is that there's a way people think about eating right. Like and you know, you'll say to someone, well, you can't have gluten anymore. And they're like, oh, and they start thinking no bread, no pasta, all these other things. But But is there a way to just walk away from them and go, I just don't eat bread anymore? I don't need a bread that doesn't have gluten in it? What would that look like? If you just walked away from modern foods, and went to things that didn't have gluten in it? Would you just be chewing on sticks and eating steaks or like you don't mean like, I'm trying to understand, like, I'm trying to really understand what a person would do. If they couldn't afford to buy what I'm assuming is a very expensive cupcake so that it actually tastes like a cupcake and doesn't have gluten in it.
Lindsay 27:52
Yeah, it's very true. That that is very expensive. The foods and especially the really well made, desserts and products are expensive. So it is unfortunate that there is a difference there. You know, if somebody was to really just totally eliminate any kind of gluten item, or were you know, trying to buy the gluten free items, you would have all natural and all things made from the earth basically vegetables, fruits, meats, chicken fish. Rice is a big one. I'm not sure you know, I think rice is is pretty easily attainable. But yeah, you would probably eat really, really well as long as you balance things out as much as possible.
Scott Benner 28:42
And just the way that we would consider like clean. Like right, no additives, it is what you see there. This is a This is rice, this is a steak there's nothing else that has been put into it or added there's no anything else to it. This is this is the basics like staples.
Lindsay 28:58
Absolutely, yeah. And it really would be a wonderful way to go about eating gluten free. In my opinion, I think you would really you probably feel better overall, as long as you're choosing the right veggies and fruits and you know, whatever works for you, especially with a type one. I think it would be it would be great. And a lot of people with celiac have kind of like rose colored glasses about the gluten free food. A lot of it is really not great for you. There are other things that have to be added to make it you know, soft and mushy and sweet and this and that. So just because it's gluten free doesn't mean that it is healthy. There are things that you can eat on occasion, but it's not. It's I don't think it's any better for you than the non gluten free option.
Scott Benner 29:52
So I brought that I'm glad you brought that up because when I was going through all the testing to figure out my iron issue the one time the doctor just says to me Look, you don't appear to have a gluten sensitivity at all. He does. But let's test it. I was like, Okay. And so he says, so for a month, eat gluten free. And I did. And I put on weight from the I went broke, I felt like and I put on weight is what is how I felt and didn't feel any differently? Because of course I I'm not, I don't have celiac. So it was, it was it was an interesting month of I didn't find it to be off putting, like there's some bread that's fantastically good that doesn't have gluten in it. Oh, yeah, I feel I figured that out. But then I started learning what you were talking about, which is there's just gluten things that you wouldn't, you don't expect and so but but anyway, it just I did, I gained, I gained a few pounds. And I was like, That's fascinating. Because in my mind, I thought, Oh, I'm eating healthier. Right? And in you just set it it's not necessarily the case. It's there's a lot of other things that are going in, I'm assuming that have calories in them to try to make flavor in different ways. Is that kind of the idea?
Lindsay 31:04
Absolutely. Yeah, I think I can't speak for every single product. But I think a lot of the gluten free products out there are probably more calorie dense than some of the non gluten free counterparts. I think that there's it's not so much bad stuff, but it's just more stuff. Potentially in some some products when people think they are actually doing better for themselves, which if they're eating gluten free they are but of course, you know, loading up on all sorts of different gluten free treats, if not better for you.
Scott Benner 31:34
Yeah, you're sort of trading one problem for another one.
Unknown Speaker 31:37
Exactly.
Unknown Speaker 31:38
Yeah. Okay.
Scott Benner 31:39
So what is this is one of my favorite words that I don't particularly understand fodmap What, what is what does that mean? When people say I'm gonna do like a low fodmap diet.
Lindsay 31:52
So a low fodmap diet, I don't have all of the words for each part of the fodmap acronym,
Scott Benner 31:59
or you talk
Unknown Speaker 32:01
to bowl,
Lindsay 32:02
Holy Ghost something. There are certain kinds of carbohydrate that just simply are not well broken down and digested also by the small intestine. So a lot of times this food and it's not it's other food like apples and, and different sweeteners, like I think xylitol is one brussel sprouts, all sorts of different foods. They they're not well broken down, and they end up kind of sitting in your intestinal tract. And they start to almost like ferment, which, of course, causes inflammation, bloating, gassiness, discomfort. And the when I was diagnosed celiac, that was one thing and then I ended up eliminating dairy. Several years later, which I was having some issues with. And then a few years after that, I kind of honed in with my gastro on this low fodmap diet. And once I did that, I felt amazing. And it's been quite some time now where I've been on this diet or I don't even like to call it a diet but following this lifestyle and I feel like 100%
Scott Benner 33:22
Okay, let me take a shot at this right. No one laughed at me. fodmap is an acronym for fermentable oligo die mono, sack chlorides and Polly OLS.
Unknown Speaker 33:40
Sounds right, does
Scott Benner 33:40
it that can't possibly be right. But they they are short chain carbohydrates that are poorly absorbed in the small intestine and prone to absorb water and ferment in the colon. I don't think we went anything fermenting in our colon ever. That's um, I'm gonna make that statement right here now.
Unknown Speaker 33:59
No, you don't.
Scott Benner 34:00
So make. So I'm trying to get a feeling for what what would be on a low fodmap diet.
Lindsay 34:10
So the things that I really eat a lot of broccoli, sweet potatoes, those are all low in fodmaps blueberries, raspberries non dairy foods are low fodmap so we drink almond milk in the house and any kind of non dairy
Unknown Speaker 34:32
you know, substance Yeah,
Lindsay 34:34
I'm brown rice, almond a peanut butter.
Unknown Speaker 34:40
Eggs.
Lindsay 34:41
Those are all low fodmap
Scott Benner 34:43
Okay, so I found one now that I'm looking at and it's funny we don't we buy milk that has no lactose in it just for because it seemed like the thing to do and nobody really drinks milk all that often here. But I like how this this this chart I found is It says avoid excess glucose, lactose, a bunch of different vegetables that I guess you wouldn't expect. asparagus, beet root broccoli, brussel sprouts, cabbage, eggplant, garlic, onions, shallots. those are those are avoids.
Lindsay 35:16
Yeah. So I eat broccoli with no problem, which is interesting. But yeah, the like tomatoes and onions. Avocados bother me. I think they're on the list as well.
Scott Benner 35:29
Did you just do what the kids call? What is that called when you're showing off but you're trying to act like you're not? Damn it? I can't think of it. I'm so not a kid. But you were just like I eat brussel sprouts. Like, like you were a superhero.
Unknown Speaker 35:43
I'm so cool. My broccoli over here. Oh,
Scott Benner 35:47
yeah, yeah, broccoli, no trouble here. I get knocked down like it's nothing. A lot of Polly the polyols apples, apricots, avocados. That's really interesting. But then the other side of it says you can enjoy and then it gives you a whole list of things like don't feel bad because you could have a mandarin. The Oh, that's really interesting. The vegetables are more bamboo shoots alfalfa, beet shoots. Celery, celery. Does anyone enjoy Sorry?
Unknown Speaker 36:18
Do you want to say that I
Lindsay 36:19
just said yesterday how much I love celery. And I'm sure everybody's gonna make fun of me for saying that.
Scott Benner 36:23
He loves celery. strong, strong second episode title right there. Oh, parsnips you can finally Hey, listen, everybody, you can finally learn what a parsnip is. Is this your time? Go on Facebook later and tell people about it. I know what a parsnip is. I'm low fodmap you'll make all kinds of friends. But the but the the real story here is that you say you feel amazing.
Lindsay 36:51
I do. Okay. Yeah, I do. I was really, I was really struggling with really the most thing. The biggest thing that I struggled with was the fodmap issue. And if I the one example I can think of is for years, I was having a protein shake after a workout or in the morning for breakfast, and I would put peanut butter and and blueberries and whatever almond milk in it. And it was a couple hours later, I would be just so uncomfortable. I would be so bloated. I'm just uncomfortable, gassy, bloated, whatever. So I was I spent a year trying to figure out what the heck it was. And it was the protein powder. It was the vegan protein powder was made from pea protein, which is I really think it's the most common vegan like plant based protein powder. The pea protein was killing me and I now know that and it's like eliminated so many issues. For me I use rice protein, which doesn't cause any kind of adverse reactions.
Scott Benner 38:01
No kidding. By the way, the thing I was trying to think of earlier humblebrag
Lindsay 38:07
Do you hear my Omni pod beeping in the background here?
Unknown Speaker 38:10
I do. Are you are you putting it on right now? No, I
Lindsay 38:13
had it. Oh, it's expiring. Here we go.
Scott Benner 38:19
That's that. tan tan tan tan like I'm getting up calm down.
Unknown Speaker 38:23
Yeah, relax.
Scott Benner 38:27
All right. Um, so you found a guy who's willing to do it with you not buy a ring, but he's willing to eat gluten free? That's nice. And and you feel 1,000,000%? Better? Talk about a little bit? What is it like to tell another person you're gluten free? Especially when it became chic for a while? Did people look at you sideways? Or do you just keep it yourself?
Lindsay 38:52
I felt that way. Yeah, I felt that people were getting a little judgy with me. Just because I always worry that people think I'm doing it just to kind of get attention or to stand out. And that's, that's not the case at all. I don't want that extra attention and care, like from, you know, random people or from anybody. So that was really my biggest concern, telling people initially, I'm kind of outgoing, so I don't really have a problem talking about it. The same thing with with type one. I really don't have any issues talking about it. But I always do wonder if people think I'm just like, exaggerating something or you know, being difficult
Scott Benner 39:34
right now. I mean, it did really become like she gets the word like everybody stopped eating. Like, I'm not going to eat gluten. I farted once I'm not going to eat gluten anymore. You know, like that kind of thing. And it's a common thing when I was looking earlier, it's there's more than 200,000 cases a year in the US which makes it a common element. But Wow, even when you say that, I mean think of you know, you heard a lot more than 200,000 people tell you they don't eat gluten. I mean More especially online where everybody's like, Oh, I don't eat gluten, I don't do that. And I'm not saying like you even. I mean, it seems to me that even if you don't have celiac not eating gluten might be a really, you know, healthy thing for you to do. Right? Just because, you know, isn't that interesting, like, what we're talking about here is a lot of foods that, you know, are very, and I don't know how to talk about this correctly, but, you know, processing wheat is, is a is not a thing we've been doing forever, you know, like crushing wheat and turning it into flour and processing foods in general, is still a more, you know, hundreds of years, you know, 1000s of years thing, not millions of years thing. And so, I mean, you're there's just a list here of things that, you know, you would eat if you were wandering around in America or somewhere else on the planet and trying to fend for yourself out of trees and bushes and things like that. Seriously. Right, you know, yeah. And then some brilliant guy comes along and figures out puff pastry, and now you know, you can't poop, right? It just, it's not fair.
Lindsay 41:05
It causes a whole bunch of problems. And who knows? A lot of people say that they do think and there's been studies showing that that could be considered part of the problem here. You know, personally speaking, I, I try and avoid as much processed food gluten free food as possible. But I also love to eat and I love to eat well. And and, you know, we it has to balance, it has to be a balance. But with with people going gluten free, just voluntarily. There's a lot of people that do it. And I think a lot of people do it, because they're also having issues. They're having digestive issues. They're bloated. They don't know what the heck is wrong. And hey, why not try it, see if it helps. And if it helps them, whatever it is good.
Scott Benner 42:00
Is that considered like a gluten sensitivity? If you don't have like, the full blown, you know?
Unknown Speaker 42:05
Yeah, like, yeah, so
Lindsay 42:07
gluten sensitivity would, as far as I understand, it would not be considered an autoimmune disease. But something's something's going on with your body just doesn't like the gluten protein. Yeah,
Scott Benner 42:19
so that. So that low fodmap way of eating could help with other like gastrointestinal problems, and like irritable bowel, bloating, stuff like that, like it could really address a lot of different issues.
Lindsay 42:31
Absolutely. A lot of people with IBS and Crohn's do follow the low fodmap diet. It as far as I've heard, it helps immensely with those issues.
Scott Benner 42:42
I gotta say anything that stops something from fermenting in my colon, I think is probably a good idea. I, I try really hard. This last year, I've been, I should say, trying hard and succeeding in not eating processed foods. So I just sort of made a blanket statement to myself, like, if it comes in a bag, or a box, I stay away from it. Even down to like, you know, different oils, like I won't, I won't use an olive oil that's heat pressed or processed. I only use cold pressed non processed olive oil to cook with. No, and it's made a difference I am since the beginning of the corona outbreak, and I've said it on here a couple of times. But you know, as as we were all like kind of getting like locked into our houses. I looked at myself in the mirror and I thought, yeah, this isn't gonna go well for you, you know, and you're gonna end bad Oh, my god. I'm like, I don't know if they'll be able to get me back out the door once they get me in the house. Right? And so I was like, I was like, What do I do? And all I did was I cut out certain oils. I only use cold pressed non processed oil that I do use, and I'm eating on a What do they call that? I it's weird that I'm doing it. And I say that to people all the time. And now when I need the word when I'm being recorded, I can't think of it but holy hell, Lindsey I only eat
Unknown Speaker 44:11
organic or it's
Scott Benner 44:13
about the timing. This is embarrassing. Um, I swear I'm actually doing it. What are they everyone listening right now is yelling if this is what it's called, idiot, I don't even do it. And I know what it is. Intermittent fasting, I eat on an intermittent fasting schedule. So I choose eight hours of the day, normally between 11 and seven or if I get pinched in the morning, like from noon to eight and I only eat in that timeframe. Okay, and so beyond taking out processed stuff, and only in that timeframe. I haven't changed anything and I might be close to 30 pounds down since the being a Corona then no,
Unknown Speaker 44:52
wow.
Scott Benner 44:53
not interesting and I'm not limiting myself during the eight hours.
Lindsay 44:56
Good for you. That's amazing.
Scott Benner 44:58
Yeah, I'm But as you're talking, and this whole series that I'm going to do here about different ways that people eat, I've just become very interested in it. Like someone had a Dorito the other day, and I looked at it, and I thought, there would have been a time in my life where I would have seen a Dorito and thought to myself, those things are so fake, and they taste like crap. And then I would have eaten a whole bag of them. And, and now somebody kind of like, held the bag towards me. I was like, Nah, I don't, I would, I just wouldn't eat that. Yeah, you know, it's a, it's an interesting way, you can watch your mindset, sort of, like change. And really, I think sugar is the last Hill for me, honestly, because I still, if I get some sugar in me, I turn into like, I'm like the sugar version of a heroin addict. I'm just like, someone's like, Oh, look, here's a little candy. And you're like, I'm a little candy. It tastes like cherries. And I put it in my mouth. And then I find myself wandering around the house going, where's that bag, a little candies that tastes like Yeah. Find that bag so that I can eat every one of those things and make them go away. So they stopped tormenting me. You know, it did turn into Gollum pretty quickly.
Lindsay 46:12
And that's like, it really is a lot of your mental status and your mental energy. You have to kind of change the way that you think. And once you round that corner, turn that corner with maybe not having sweet stuff every day, or whatever it is. You You change, and you once you start to feel better, then you you're like, wow, this is this is amazing.
Scott Benner 46:37
Yeah. What do you do for? Do you have a sweet tooth? Do you ever get a craving?
Lindsay 46:42
Occasionally, I always say that I think my sweet tooth is like, just very minimal because of type one. We never really have a ton of sweet stuff in my house when I was growing up. And when I was first diagnosed, it was always like just an occasional thing, holidays or whatnot. So I don't really have a sweet tooth. I have a I love salty foods. So it's the same premise. When you when you eat a lot of salt, or add salt, you start wanting more and needing more to taste. So that's something that I have to keep an eye on. Like you just can't get it like
Scott Benner 47:23
enough is never enough,
Lindsay 47:25
right? You just have like popcorn, I could just put salt on the popcorn like crazy. And it would just it and then you feel terrible because you're like all bloated.
Scott Benner 47:35
And you have to keep escalating to get the same high out of the salt. At some point. You're just gonna start licking the salt shaker and then throwing the popcorn into your mouth. Exactly. Yeah. Yeah, I have a comparison that I'm not gonna make here. But actually, I'm gonna make it and then I'll bleep it out for you. But it's like, right, like, you start. You start with like, Oh, this is nice. The two of them seem to like each other. And then by the end, you're like, Can someone get it? done here? And this just isn't doing it for me anymore.
Unknown Speaker 48:02
It just totally goes off the rails. Yeah,
Scott Benner 48:04
yeah. Lindsey Wait, oh, you hear that played back all bleeped out. And you can't figure out what we're talking about. Only you are gonna get to laugh. Isn't that nice?
Unknown Speaker 48:11
I'm honored.
Unknown Speaker 48:12
I cannot wait.
Scott Benner 48:15
Oh, my God, anyway. Okay, so yeah, I think that I think that what I'm learning and what kind of drove me towards because I have to say like, if you do listen to the podcast, I, I really believe that anybody can do whatever they want. And it's possible that one of you out there is doing something that's really unhealthy for you. But that's your decision. I have no business making that decision for you. I just want you to understand how to manage your insulin while you're making the decisions. You're eating about food. That that's really my, like entire goal about the podcast, right? Yes. But I am becoming more interested in letting people describe the different ways that they eat. Because I realized that there's huge segments of people who are going to eat gluten free and the you know, some people are going to do intermittent fasting, and some people are going to do you know, other ideas. And so I've tried to line up a lot of people, I've had a lot of success years as the first one I'm recording but but I want people to come on and talk about their different, you know, food eating styles, and I don't think of them as diets, really just ways of ways of eating that, that end up being beneficial to you. And, you know, that's it. I just, I mean, it could not have been fun the 10 years you spent, you know, struggling like that. And it's really amazing that you found something that works for you. So I guess like spend a little bit of time here and tell me Is there any impact on your type one before you went gluten free and after?
Lindsay 49:52
Not that I can remember. I don't remember having any adverse reactions before I was diagnosed. Before I was gluten free, compared to after, although I was I was younger and it was quite some time ago, but nothing really stands out to me in great detail. I was diagnosed when I was six and I was doing injections for gosh up until about 2007 when I started on the Omnipod Okay, and I I've always been pretty on top of the diabetes Of course every day is different and a challenge but my parents I'm an only child and my parents really took a lot of time with me when I was little to get me on the right track and make sure I understood how things are important or you know how to handle different things and
Scott Benner 50:49
whatnot. So if even though you were bloated and uncomfortable and and making it what I mismatching is just horrible poops. It's just your your blood sugar control didn't suffer it within that situation.
Lindsay 51:03
No, not that I can remember. Nothing that would would have been really directly related to the celiac being undiagnosed.
Scott Benner 51:11
Okay. Hey, listen, now that you're not gluten free. Do you ever stand out from the toilet? Look in there and go, Oh, my God, that thing is perfect.
Unknown Speaker 51:20
No, you've never thought that like I make the greatest. Now like you've never had that thought.
Unknown Speaker 51:27
Although, you know,
Lindsay 51:28
I'm sure I know. I know people do that. And hey, I am not judging you. You should be proud of what you
Scott Benner 51:35
do. I think people should stand up and celebrate and be like, my God, look at that thing. perfect size and shape. came right out.
Unknown Speaker 51:42
healthy.
Scott Benner 51:42
I'm so healthy. My daughter has a friend Sanchez she calls. She goes, she'll say Mr. Benner did you? Do you have a ghost? And I'm like, What? And she goes a ghost. You know, when you don't really have the wife? I was like, wait, that's what that is.
Unknown Speaker 51:58
That's a great name. It's like, Is that an internet
Scott Benner 51:59
thing? Or did you make that up? You're still wiping though, right? And she goes, Oh, yeah. But you know what I mean? I think I do. Yeah, so awesome. I think I do. It's funny that girls vegan, but, but it's interesting, because some of the way she gets the vegan are less than healthy. And if you made me think of her earlier, when you were talking like, you know, you can eat a cupcake and say, you know, like this wrapped in a piece of plastic that you bought in the grocery aisle that you know, could live through a nuclear war and go vegan. Yeah, yeah. It's very interesting. We're gonna dig into all that. Okay, so run me through a day. You get up in the morning, what do you for breakfast.
Lindsay 52:45
So most common breakfast would be a piece of gluten free toast with almond butter or organic peanut butter. Okay. Sometimes I put some blueberries on top of it. And that's really going to be dependent on what my sugar is. What I'm doing afterwards, so that's really what I eat most mornings. Other mornings, I'll have like, eggs and maybe a piece of toast or I love siracha on my eggs, so that's definitely one of my favorites. Okay.
Unknown Speaker 53:18
And then do I'm gonna go through the whole
Scott Benner 53:20
Yeah, like, do you snack mid afternoon? Do you have lunch? Like what happens next?
Lindsay 53:24
Yeah, so um, I usually eat three square meals a day with some snacks mixed in depending on my work schedule, and depending on my sugar, obviously, I'm lunch a lot of times is a protein shake. So we'll have a protein shake with a little bit of dairy free yogurt and a little bit of frozen fruit and some peanut butter. So that that's, that's launched and that's probably I think that's about between 30 and 35 carbs depending on the fruit and a dinner. I mean, we could go crazy. We had sushi last night. We love steak. We love chicken barbeque chicken, sweet potatoes, mashed sweet potatoes
Scott Benner 54:11
sweet potatoes sweet potatoes all rotten without Of course any cheese or milk or anything like that.
Unknown Speaker 54:19
Yeah, you and you
Lindsay 54:20
can make all of those like really good, yummy foods gluten and dairy free. It just may take a little bit more time and energy but yeah, broccoli, salmon, fish, shrimp, crab legs, we
Unknown Speaker 54:34
we love it do all that stuff. I
Lindsay 54:37
do usually have dessert. And of course, again, it's going to be dependent on my sugar and how late it is and a bunch of other things. Did I work out that day? But we'll have how Gosh, I don't even know. A little bit of a gluten free brownie or part of a cupcake or something like that.
Scott Benner 54:57
Yeah. Hey, listen. You remember when we used to go to the movies? What did you get? When you went to the movies, did you bring something with you? Ah,
Lindsay 55:03
that's a really good question. I usually just get popcorn. Oh,
Scott Benner 55:07
because you didn't have that? Yeah, no problem. Got it. You're not do you find yourself smuggling food into places ever?
Unknown Speaker 55:15
Um,
Lindsay 55:16
I do, I have at times, and in the past, it's actually more so been for dinner purposes. So if we go out to eat, and I want to have some kind of pasta dish, I'd bring my own pasta. But there would have to be a conversation there with with the restaurant or with the cook about using a different pot and making sure they're cooking it in a in a separate pot of water, basically, because a lot of restaurants, they'll just cook all their pasta in the same pasta water. And that obviously would not work for someone with celiac. So
Scott Benner 55:54
because all that everyone can imagine making pasta and there's that, like thickness that that happens in the water. That is I guess the gluten, right?
Lindsay 56:02
Yeah, that's the starch that that comes off of that pasta noodle. And that's a whole other thing. I mean, eating out, there's a risk of cross contamination. Always try and let them know. And of course, you know, a lot of places are just more aware of these things right now. But you have to be super careful. And I'm not going to drive myself absolutely crazy. I'm not going to go in and inspect the kitchen and you know, demand all these crazy things. But you have to really be mindful. And you do have to hopefully trust that these people are doing the right thing.
Scott Benner 56:37
Yeah. Is it? Is it one of those things where you can just tell like an hour later, you're just I don't know, let's say farting in the car and you think to yourself, there's no way they wash that pot?
Unknown Speaker 56:47
Yeah, you'll
Lindsay 56:48
know, you'll just just I really wish I thought about this prior to talking to you. Because I really don't know how else to say it other than just being really uncomfortable. Especially as a woman, you know, if you're going out to dinner, and you're with your boyfriend or your friends and you're in a dress and heels or whatever, and you eat something that you shouldn't have, you're just like, super uncomfortable you want to do is just rip your clothes off and get in your PJs and go to bed.
Scott Benner 57:16
What that makes me ask someone to ask you, what's it like to have sort of a gluten issue on top of your period?
Lindsay 57:24
Um, for me personally, I wouldn't really consider it any different than Okay, guess what it should be? Yeah, I don't think there's any any change. There's only
Scott Benner 57:35
there's only so much bloating and uncomfortableness the body can make, I guess.
Lindsay 57:39
Yeah, there's a Yeah, there's a limit there. You know, I try my best to, for me, exercising is what? What eliminates that stuff? Even if I'm super uncomfortable, I try and just keep moving and keep drinking water. And those two things for me seem to help eliminate a lot of those issues. Yeah.
Scott Benner 58:01
Is there any other physical symptoms? Like I don't know, I'm making things up. But joint pain headaches, or does any of that? Or is it all just pretty much stay in your belly and your digestive tract?
Lindsay 58:13
Yeah, there's a whole there's a plethora of other symptoms that people have. Occasionally through my life, I have gotten them. I of course, I wouldn't know 100% if they were celiac related, or if I had eaten gluten at the time, but the most common other symptoms for celiac would be the joint pain. Absolutely, like an arthritic feeling. People start losing hair. People get dizzy and have blurred vision. And there's also a type of dermatitis like a skin rash that would be caused directly caused by gluten so people do break out and rashes and all sorts of different things. I'm on a bunch of different Facebook forums for celiac and celiac type ones. And I see people asking about all sorts of different things you would never even think of.
Scott Benner 59:09
Well, I'm going to ask you this because I'm in the middle of trying to help Arden with something if I said to you, it feels like your bones are bruised. Is that a feeling you've ever had?
Lindsay 59:18
Yeah, yeah, really? Okay. Absolutely. Or maybe for somebody who, who goes out and likes to party maybe feeling a hangover. I think that's another good comparison. Just just exhausted. Terrible. watery eyes. headache. achy kind of just
Scott Benner 59:37
flew like can't get rested. Yeah, Max deafness. muscles are no,
Lindsay 59:44
I'm not so much for me. But absolutely, I've heard it from all these different patients present with all these different symptoms that seem kind of far out there. But I do think that they are all related to celiac if I'm diagnosed
Scott Benner 59:58
as part of me that thinks I should just put are not an IV drip for a month and the letter stop eating, take her back to like zero and start over again. That did you have to do an elimination diet at first it just cut everything out.
Lindsay 1:00:13
We did our best to just cut everything out. I don't remember. I remember having the conversations with my parents, I remember them going through all of these different foods that we were going to eliminate and that we were going to keep. And I don't remember, like throwing out the kitchen at that time. And you know, starting from zero, but I know that that's what pretty much what we had to do.
Scott Benner 1:00:37
Okay. That's interesting. It really is. I appreciate you talking about this. It's obviously personal. But you were really excited to help and I kind of put the call out I and I appreciate that very much. It's something I just don't understand.
Lindsay 1:00:52
I was just gonna say I'm, I love the podcast, I am somewhat new to it. I think it's been a couple months actually, maybe since Corona started. And being a diabetic for 27 years, it has changed so much of the way that I think about things because you do and I know you've discussed this before you do fall into certain patterns and and just you get complacent with with things sometimes. And it really you've you've helped me, so I'm happy to chat here with you.
Scott Benner 1:01:22
It's very nice. I was wondering if we were going to take a couple minutes to talk about how terrific I was. And this is really a good time for it.
Lindsay 1:01:29
Yeah, you've you've been great. I really do appreciate.
Scott Benner 1:01:32
Yeah, I'm kidding. But thank you. And I'm glad. I'm glad I have to say I'm kidding. For the five people who are like don't understand sarcasm, and they're right now running to like a review somewhere. No, this guy is so full of himself. And he just said that he's great. And I'm like, all right, I gotta get out to the east coast once in a while talk to other people. Lindsey knows she's from right around here. We could probably have done this in person, I'm guessing.
Unknown Speaker 1:01:57
Yeah, yeah, absolutely. Yeah.
Scott Benner 1:02:00
Well, I'm really thrilled that the podcast has been helpful for you. And, and the complacency is something that I find in my own life all the time, where you just sort of you get that drift off, and you're like, Oh, it's only 160? Yeah, fine. You know, and then before you know it, it's three weeks later, and you know, you've got some app that tells you you're a one C, you know is gone up, you know, a half a point, and you're you know, your variability is growing and your standard deviation is getting bigger. And you just think well, what should I do? And you're looking at, I just probably need some more basil here, and then you're done. And it's, you know, something that's, it's pretty easy, just hard to see in the moment. You know, it's one of those. It's one of the macro things where you have to step back and see the whole thing and get out of this minute, two minute, you know, fight that you're in and start thinking about the whole war, I guess, for the
Lindsay 1:02:46
Absolutely, yeah, and I think a lot of it is just really how you're how the human brain handles things. You start something and it's kind of working and you go with it. And then it just continues and maybe it gets worse, and nothing, you can always do better. And that's definitely been brought to light.
Scott Benner 1:03:06
Well, how else right? Could you could you put yourself in a situation where you know that having a slice of pizza is gonna send you into like stomach cramps, and you know, two hours in the bathroom and still the next time you see a pizza, just go Alright, let's do it again. You know, start feeling like Well, I guess this is how my life is. And yeah, I guess it doesn't need to be. Especially if you have beet shoots.
Lindsay 1:03:29
I mean, I there's no comparison.
Scott Benner 1:03:31
If I opened your refrigerator, would I just be like, I don't recognize any of these foods.
Lindsay 1:03:36
No, no, you would you would be I'm sure you'd be fine.
Unknown Speaker 1:03:42
This has a face. What is this?
Unknown Speaker 1:03:45
What is this?
Scott Benner 1:03:47
Oh my gosh, well, I use very nice that your I guess I was gonna say fiance but obviously not your, your, your guy friend, which I'm assuming is what your mom calls them. That boy, it's very nice that he's doing it with you, you know, as much as he can, like, Yeah, I know. You said he has separate foods that are his but but it's it's very cool. And I think that it's um, it's just to have support around this sort of thing. I don't think can probably be undervalued because you probably feel like you probably felt already pretty alone with diabetes, then add this and am I wrong? Or
Lindsay 1:04:25
you're you're right. The support in any situation, diabetes, celiac or anything in life is really just so important. And even not just with him but with with his family and his parents and, and our friends. All of our friends are they know and they're mindful. So it's just nice to know that people it's nice to know when people think about you and maybe go out of their way to get you something or you know, make dinner a little bit more special for you and it doesn't It's just It's lovely.
Scott Benner 1:05:01
Yeah, no, I can see that. Hey, are there people who do a better job with gluten free foods than others? Like you? Sometimes he didn't just like, does your tongue just come out of your mouth and just let it fall out of your mouth thinking like, Okay, this is terrible. Or, like, where do you find a gluten free bakery? I guess I'm saying like, where do you? How did you crack them, there's
Lindsay 1:05:22
a there's a few. There's, there's actually several in New Jersey. There are there's one down south, it's about an hour and a half from me. And there are several up kind of close to the city. And of course, there's a whole bunch of places in the city. So you, I've just found them through talking to people and Facebook. And it's amazing. I mean, I, I will drive an hour and a half, actually, I, I've run a marathon. And after the marathon was on, I had my mom waiting there with a cinnamon bun. But prior to that, we drove an hour and a half just to get a couple of cinnamon buns for the end of the race, because it's just such an exciting venture to have like this gooey, icing covered cinnamon roll.
Scott Benner 1:06:13
See when you simplify your life, small things can be very exciting. And and that's true. That's really cool. Do you see yourself having a breakdown ever? Or do you think this is something you can just easily do your whole life,
Lindsay 1:06:26
it's something that I will do my whole life. I won't ever voluntarily break down and eat something that's not gluten free. Especially now, I am 33. And we you know, not right away. But we would like to have a baby one day and I definitely don't want to jeopardize my health in any way. So this is gonna be this. Is
Scott Benner 1:06:51
it good for you? Well, I think it's interesting to hear you speak and I'm hoping that other people coming on are gonna kind of follow similarly, that you're not a zealot or a lunatic. And you know, because I think I think there are some people could could easily think Oh, you don't eat gluten, this must be a, you know, just a raving loon, you know, and then, yeah, and you're just clearly a very normal, nice person. So
Unknown Speaker 1:07:14
thank you. Yeah,
Scott Benner 1:07:15
that's it. Yeah. Well, you're from Jersey. How could you be a bad person? This is true. By the way. Are you from here? because no one's really from here. Are they?
Unknown Speaker 1:07:22
Oh, I'm from here.
Scott Benner 1:07:22
Oh, I didn't think I was born in New Jersey. I thought we just all ended up here somehow.
Lindsay 1:07:28
We just got lost and ended up here.
Scott Benner 1:07:30
Yeah. Well, I always just think it's a job. You know, like, you get a job and you move to New Jersey or you don't want to live in the city. So you're going to commute? Yeah, I just thought of this as like a holding place for other people. But
Unknown Speaker 1:07:42
yeah, yeah. But I guess no, my
Scott Benner 1:07:43
kids are born in New Jersey. So they're from here. You know, yeah. gotta live with that shame. Now.
Unknown Speaker 1:07:51
It's a good thing.
Scott Benner 1:07:52
No, I actually like it here a lot. I don't I don't. I don't have any trouble with the jersey whatsoever.
Unknown Speaker 1:07:59
No, absolutely not.
Scott Benner 1:08:01
We have pharmaceutical companies and banks. And those circles to make left turns with we have all kinds of stuff.
Lindsay 1:08:08
Oh, yeah. Well, yeah, all of our roles and driving habits are like, first foreign to the rest of the country. Yeah.
Scott Benner 1:08:16
And what about those beaches where the water doesn't get warm? That's lovely. Did we not say anything that you are going to like five seconds from now? When I say goodbye, go, Oh, my God, how did I not say this? Or do you think we did a good job of explaining it to people?
Lindsay 1:08:33
Um, actually, yeah, there was one thing that I did want to want to discuss real quick was that when I was diagnosed, and when I was diagnosed with diabetes, and I know we are you're the podcast has discussed this before. I had chickenpox prior to the type one diagnosis. And the doctors all thought that that was related. When I was diagnosed with celiac, I had been in a stressful kind of life changing and not necessarily negative stress, but a very stressful long term situation. And all of my doctors also felt that that stress did kind of bring out the celiac, it, you know, your immune system was maybe a little bit compromised, and something just clicked and that's how it happened. So I've read that a lot. My doctors have also kind of agreed with that. And I think that's something to just know that that a lot of people say if you're sick, or if you're under a lot of pressure or stress. That may be the cause of some of these things are not the cause but what actually brings it
Scott Benner 1:09:42
out. Yeah, so everyone sit in the middle of a dark room and hum to yourself for the rest of your life. That's it.
Unknown Speaker 1:09:47
Yeah, just just don't do anything.
Scott Benner 1:09:49
No more interacting. Turn the news off to by the way. Oh, please. Yeah, that's it. It is interesting because as we've been working with Arden and she's getting more frequent blood draws is she trying to figure stuff out every once in a while, like her, like, you know, it's like a every No, it's not like on any schedule, but like, you'll see her white blood cells pop up like she's fighting some sort of an infection or something like that. But you don't you don't see it in her in her life like you don't you wouldn't look at her and go, Oh, she's sick right now, or something like that. But she'll have these white blood cells that indicate an infection fight. And then the next time she has the blood draws, everything's perfect again, right. And it's just interesting, you don't know what your body's going through. And, and the way I like to think about food is this, and I'll leave, I'll leave everyone with us. And I'm certainly not the gold standard for this idea. But I'm trying to be just because your body can process it doesn't mean you should eat it. Right? Just because it goes in your mouth and comes out the other side and you're still alive when it's over doesn't make it a good idea. Not all the time. So I'm trying to figure out what those things are for me, and I think everyone should be doing their best to consider what those things are for them.
Lindsay 1:11:01
I agree. I think that's a great way to think
Scott Benner 1:11:03
yeah, go I really appreciate you doing this. Would you hold on for one second, and thank you.
A huge thank you to Lindsay for coming on the show and sharing all that she knows about type one diabetes and celiac disease. Thanks also to Dexcom, makers of the G six continuous glucose monitor and on the pod makers of the Omni pod tubeless insulin pump. I also want to thank touched by type one, you'll be able to find all the sponsors at Juicebox Podcast comm or in the show notes of your podcast player. But if you want Dexcom it's dexcom.com forward slash Juicebox. Podcast my omnipod.com forward slash juicebox and touched by type one.org
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!