Scott Benner 6/13/23 Scott Benner 6/13/23

#931 On The Tarmac

Dana is the mother of a type 1 and an adult who was diagnosed at age 14. We discuss diabetes through the years from her perspective.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 931 of the Juicebox Podcast.

On today's episode of The Juicebox Podcast, I'm speaking with Dana, she's had type one diabetes for her entire life, and her daughter has type one as well. Today we're going to talk about diabetes through the years, and find out more about Amy's story. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. If you like comfort and you like quality, you're going to love cozy earth.com. use the offer code juice box at checkout. To save 35% off your entire order. Go to athletic greens.com forward slash juice box. And when you make your first order for ag one from athletic greens, you'll get five free travel packs, and a year supply of vitamin D. And of course, get 10% off your first month of online therapy@betterhelp.com forward slash juice box just go to my link, sign up and get 10% off your first month.

This episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter, contour next.com forward slash juicebox. The contour next gen and the entire line of contour products are highly accurate, incredibly made easy to use. And they have a beautiful bright light for that nighttime finger checking. And second chance test trips. That's right. Second Chance test trips, we could all use a second chance contour next one.com forward slash Juicebox Podcast is also sponsored today. By Who do you think who us med get your diabetes supplies the same way Arden does at US med go to us med.com forward slash juicebox. To get started today, all you need to do is get that free insurance check. Make sure you're covered. And then boom, bang, bang. You're getting your stuff just like garden at us. med.com forward slash juice box now, if you don't like the internet, you don't want to go to us med.com forward slash juice box. I respect that. Maybe you want a phone call, right? Like to be on the phone talk to a person. That's your vibe, no problem 888-721-1514 There are links in the show notes of the audio player you're listening in right now. And at juicebox podcast.com. To contour us Med and all the sponsors. You are listening in on audio app onto like Spotify or Apple podcast, Amazon Music something like that. Please tell me your if you are following subscribe and that app and if you're not go get yourself a sweet audio Apple listen to the podcast.

Dana 3:15
Hi, my name is Dana. And I've had type one since I was 14. So that was in 1974. So do you want to do the math? Or should I just tell you Oh, hold

Scott Benner 3:30
on a second. Let's not let's just figure it out. First of all, it's 74. I was three years old. And I'm 51 now so that was 14. So that was 48 years of being a babysitter. We're off to a bad start on feeling good about ourselves later. But but that makes that like 48 years ago, right? Yeah. And how old were you when you were diagnosed?

Dana 3:51
14.

Scott Benner 3:52
Okay, so you're 62 now? Yep. I don't even use my fingers. Feeling good. If I could pronounce water. I'd be all set. But I'm only halfway there. So. Wow. So you were diagnosed in? Hmm, where's my little pen? Here? This. I have to make notes myself. Sorry. 7070. Ford, 14 years old. You were using? You were using animal insulin right? Yes. Okay.

Dana 4:25
pork and beef,

Scott Benner 4:26
pork and beef, which sounds nicer when it's on a Chinese menu than it does when you're injecting it I imagined but what was that like? Exactly?

Dana 4:36
Ah, well, I really remember getting diagnosed. Before I got diagnosed, you know getting up in the middle of the night drinking. We have this huge water bottle in the refrigerator and like getting up and drinking the whole thing and having to get up in the middle of the night and pee. My parents knew something was wrong. They didn't know what took me to the doctor. And then I think I was in the hospital for a few days, and my whole family had to come and learn about diabetes and what to expect. And I remember them, making me run up and down the stairs in the hospital to figure out how much insulin I needed. And

Scott Benner 5:22
oh, that's interesting. The running up and down the stairs was part of the diagnostic.

Dana 5:27
Yeah, yeah, it was doctor could figure out my dosage. But I only took one shot a day, back then was in the morning. And then was you know, your you go it? Was it

Scott Benner 5:43
just and you? Did you eat any specific way?

Dana 5:47
Yes, you had the you I was given the exchange list diet, right? I don't know if you're familiar with that. Probably.

Scott Benner 5:54
I am Jenny. Jenny did the exchange at the beginning of her life. So they gave you like, it's basically like options, right? You can kind of move them around from meal to meal as long as you don't use too many of them.

Dana 6:05
Yeah, every meal. You had so many bread and fruit and meat and and you had to try to eat the same amount at the same time every day.

Scott Benner 6:20
Fontana? Yeah. By the way, I think young people listening are just amazed that there was electricity in 1974. For you to have a refrigerator, don't you think?

Dana 6:30
I know so many things, you know, that you take for granted? Now? It's like, no cell phones back then, you know. And I had so many episodes of low blood sugar. You know, because there was no meters, right? So I had several times where I woke up in the hospital. Because my parents, I had seizures, like I listened to your episode with Arden having a seizure. And I don't remember much about them except for waking up in the hospital. And then giving me orange juice and me throwing it up. And I didn't like orange juice for years. I couldn't drink it, because I just associated it with

Scott Benner 7:17
that horrible feeling. Yeah. Hey, question about that, if you remember, where you like, upright and moving. And then the next thing you knew you were in the hospital or do these more happen overnight.

Dana 7:28
Overnight, only once, when I was first diagnosed, and I didn't know what it felt like to be low. I don't remember them ever explaining the worry about that. And I was at my grandparents house, I was eating, believe it or not pickles. And then I woke up in the hospital. And that was the only time where it's happened when I've been Awake,

Scott Benner 7:51
awake. So you didn't know you were low, but you were hungry, which now you know, is a symptom of being low. And but and so you're eating pickles, which has no carbs in it. So that wasn't,

Dana 8:02
that wasn't gonna happen at all. But you know,

Scott Benner 8:05
how many times do you think this happened where your parents woke up in the middle of the night went? Dana's having a seizure again, let's go. But how often do you think that happened to?

Dana 8:12
I think it only happened three times.

Scott Benner 8:15
And then they made adjustments or you figured, you know,

Dana 8:19
yeah, I made adjustments, which was a bad path to get on. Because then I always overeat. Because I was afraid.

Scott Benner 8:27
Oh, so your adjustments weren't exactly like thoughtful adjustments. Oh, no, they were.

Dana 8:34
It was kind of like, you weren't allowed to change your dose that you were taking, which seems really stupid to me now. It's like, but it didn't even occur to me then. So the only thing I thought I could do

Scott Benner 8:48
was eat more rice. Yeah, just make sure I ate something

Dana 8:51
before I went to bed that had sugar in it, you know, so I probably ran high. Most nights after that, but I didn't wake up in the hospital.

Scott Benner 9:04
Well, I mean, when the technology was as it was, I mean, you're just doing the best you can, right? Like you're just I mean, listen, we my mom had an illness recently she had cancer was really terrible. And there's no doubt in my mind that if she had that cancer in 1974, she would have died. And that's because that was their understanding of it back then. And this was their understanding of diabetes and 74 Is it is it is that bizarre to you to see what it's like now?

Dana 9:35
Oh, no, it's actually bizarre to think what it was like then I feel like it was like the you know, primitive days. Yeah. It's, it's amazing to see how far we've come. I'm really thankful for that.

Scott Benner 9:52
What are the what are the timeline leaps that stick out in your mind? Like from animal like, what's the next thing that you think of?

Dana 10:00
I'm seeing I remember at one the reason I remember it was at one is because I went on a trip with my brother to Austria. And I was able to take test strips to poke my finger and then you put blood on the strip and you compare it to the bottle. But at least it gave you an idea of where you were. And at that point, I would sometimes take a little more insulin and like if I was in the high zone,

Scott Benner 10:39
yeah. How old were you then? For that Austria trip?

Dana 10:44

Scott Benner 10:45
that's seven years after your diagnosis. Yeah. And so that's the next leap. You remember his test strips?

Dana 10:53
Yeah, test strips, and then getting the glucose monitor machine. That was probably not too long after that. Probably two years after that, you know, positive, but I remember that. It was huge. And you had to wait. Two minutes? No, I think you had to wait five minutes with the first one. And then you had to wait two minutes. And now it's five seconds. You know, so

Scott Benner 11:27
people still complain. Sting takes forever? Yeah, I love it. Well,

Dana 11:33
you know, if you only knew waiting five minutes was really inconvenient. So at

Scott Benner 11:38
that point, is it still just the idea of I'm trying not to pass out? You're not thinking about long term health, right?

Dana 11:49
Yeah, no. I mean, I knew that it wasn't good to be too high. So it was mostly like feeling like you're on a tight rope. And you're trying not to fall off either end? Yeah. You know, like, but I always kind of had the mantra that are too high and too low right. Now, because I couldn't function if I was too low,

Scott Benner 12:16
right. Is there something behind you making noise that you can hear?

Dana 12:19
You know what it is? It's an airplane outside. Is it my windows are shut?

Scott Benner 12:25
Well, that's okay. Where is it? circling your house? It's been there forever. Oh, can you yell out and say please go?

Dana 12:32
Yeah. Oh, I wish they would.

Scott Benner 12:36
Do you live near an airport?

Dana 12:38
Yeah, I live near a small airport that didn't have a lot of traffic. Until recently Santa Santa Monica airport. I I'm not sure if they closed or wet, but a lot of their air traffic now comes to Torrance. Well, no, I'm telling you where I live.

Scott Benner 12:56
No one go kill Dana. Okay, they're good. And I took care of it.

Dana 13:01
I'll never find me. There's lots of dangerous here so

Speaker 1 13:04
you'll never find me. If the animal insulin didn't kill, or you're not getting to her, what do you think of that? Okay, so when we hear that noise behind you, it's a it's a takeoff or landing. Okay, nothing we can do about that. No big deal. Okay. Okay, so I had a question. It was

Scott Benner 13:25
my question is, why aren't you getting your diabetes supplies the way we do from us med us med.com forward slash juice box. That's where you get your free benefits check unless you prefer the phone. And then you would of course get it at 888-721-1514 That's a special number she has for Juicebox Podcast listeners. Arden is currently getting her Dexcom G sevens from us Med and her Omni pod dashes you could too. You could also get Omnipod five Dexcom G six libre three. Tandem control like you. I think you get that? Yeah, trust me. They got the stuff, call them up and see what they have. Here's what US mess is gonna give you 90 days worth of supplies, and fast and free shipping. They carry everything like I just said from insulin pumps, diabetes testing supplies, the latest CGM freestyle and Dexcom. They accept Medicare nationwide and over 800 private insurers. US med has an A plus rating with a better business bureau and a dedicated 888 number just for you. 88872115 Or of course do it online us med.com forward slash juice box. US Matt has served over 1 million customers who have diabetes since 1996. They want to give you better service and better care. And to be perfectly honest, I love their reordering system. The other day, an email comes, Hey, your supplies are ready to be shipped. Do you want them you just click a button right in the email if you want it's bang just like that it shows up at your door. US med even lets me call up and say, Hey, I see you're getting ready to send out. Dexcom right. But Arden's at college, could you send them to her college address instead? Yep, no problem. And they show up at college. Us med.com. Forward slash juicebox are 887211514. Who else is on the docket today? Oh, yeah, yeah, yeah, the contour next gen blood glucose meter, a couple of things you need to know. First off, did you know it is possible that your meter, the one you have now is not all that accurate? It's true, could be true. Contour, they make an accurate meter right now aren't using the next one. But the next gen, I have it in a box, it's all ready to go. And we're gonna whip that out and give it a looky loo pretty soon. Whether you want the next gen or the next one, what you want is accuracy. You want ease of use a bright light for nighttime viewing a screen that is easy to read. And of course, Second Chance test strips. Sometimes you touch a little blood, you don't get quite enough for your handshakes or something, you know what happens. And then owe me error error. You don't want to errors, thrown away test trips, get those Second Chance test trips from contour next one.com forward slash juicebox. While you're there, you can even buy the meter online, it's possible that the meter might be cheaper in cash and you're paying now for the meter you have through your insurance company, I don't know maybe. But quality, quality is what you want, you want ease of use, you want a bright light, a clear screen, and accurate results above all else. And you're gonna get that from the Contour. Next One and the Contour Next One contour next.com Ford slash juicebox links in the show notes links at juicebox podcast.com. Use the same meter that my daughter does the same meter I sent to my brother, the same meter my neighbor's using for his type two diabetes that easy.

We were talking about long term health. So you're still it's more about in the moment. But my next my follow up. question was, did anyone say it to you? Like were you told you're not going to live as long? Or like, Did you get any of that?

Dana 17:38
Yeah, I did. When I was first in the hospital, no one told me that. But I remember, like they gave my parents all these pamphlets three. And one of them had a thing about life expects to expectancy being 30 years from diagnosis. Okay. And I remember seeing that. And so it was kind of in the back of my mind. And when I reached that age, I felt like, you know, I beat it. I'm still here, you know?

Scott Benner 18:16
Did it change the way you lived your life? Do you think?

Dana 18:21
No, no, I, I always tried to do the best that I could to take care of myself. I think. And once I had kids, it really motivated me.

Scott Benner 18:36
Are you carefree? As a as a young person? Were you sollen? Like the did you have an overall? Like, was there a vibe about you that you were aware of?

Dana 18:46
Um yeah, I probably was pretty serious. Um, and I think having diabetes kept me from trying things like partying and drinking and smoking and stuff that a lot of my friends did, because I took that stuff seriously that I read, like, if you're, if you're smoking and you have diabetes, and then stop, you know, it's like, I always felt like, listen, it's hard enough to juggle all this. I'm not going to add more to it. unknowns to it and try to figure those out. So

Scott Benner 19:27
okay, that's interesting. So, you know, it's just striking me then I have to tell you, I interviewed somebody yesterday, who was 24. And they had such a, an older voice, and you're 62 and you sound like you're 17 Oh, so interesting.

Dana 19:42
Oh, I like that.

Scott Benner 19:45
Well, listen, everybody would like that. That's lovely. Okay, so So we're, we're in our 20s You did you go to college? I did. Okay, you graduated?

Dana 19:56
I did. I Oh, I went to community college and lived at home and graduated from there, then went to a university for a year. But had it had had an on again off again boyfriend and we finally got serious at the end of that year and so I didn't finish. We got married and then I went back to college a couple years later.

Scott Benner 20:27
Do you have a baby in between there? No, no, that why did you okay, this is an interesting time capsule. What about getting married major stuff going to college? So did you feel like Oh, I gotta go clean something

Dana 20:39
else. It was too far away. Oh, okay. I was going to college in Santa Barbara. And I well, I live in Torrance, you don't know that. It was a couple hours away. So we just I finished that year. We got married the following fall. I got it. I got two jobs and worked for a while and then wanted to go back and get my BA and

Scott Benner 21:09
this ended up being a lifelong coupling of the two

Dana 21:11
of you. Yeah, it'll be 40 years in November.

Scott Benner 21:15
I'm so glad because I thought the next thing you were gonna say was an after I got done paying for his grad school he left. Okay, good. Excellent. That's lovely. Yeah, good data, which is what? Unlikely?

Dana 21:31
Well, you know, it's, it's surprising to me, because so many of my friends aren't, you know, okay. That mean right at the same time. So I feel like we're rare.

Scott Benner 21:45
I feel, Dana, I feel like that you have to have obstinance to stay married for a very long time. Like, you almost have to defy what it is to be in a relationship. You're like, I don't care what this feels like, I'm not leaving.

Dana 22:02
It's a commitment. And you have to decide like, Okay, we gotta try different things that this is not working because I made this commitment. And I'm not gonna back out.

Scott Benner 22:14
I think of it like getting, I think of it like being lost in the mountains. And you climb over one mountain thinking, Well, when I get over this mountain, I'm gonna see the town. And then you get to the top and you're like, Oh, it's another mountain over there. Alright, well, I'm not gonna stop now. And one day, one day, I feel like I'm going to crest that hill. And there's going to be a town there. Nobody like I did it. But I think that while I'm climbing the mountain, my wife is throwing sticks and stones at me from the weeds trying to kill me with little like paper cuts. You know what they call that a death by 1000 cuts? Like, I think she just he doesn't want to see me go quickly. Because I've said to her before, Dana, why don't you just smother me with a pillow? Wouldn't that be fast? Right? But no, she she acts like she doesn't know what I'm talking about. Oh, what do you mean? Like, you know what I mean? Yeah. Anyway, all right. So you guys, you guys fought through it. You had kids? You said how many did you have?

Dana 23:09
Yes. So I have three biological kids. And then we have one foster daughter who is now our daughter.

Scott Benner 23:18
No, that's lovely. I thought you're gonna say a kid that we stole from the mall. So this was a much better story. What made you foster a child? That's lovely.

Dana 23:26
Um, my daughter had a friend in high school whose family kind of disintegrated. She needed somewhere to go. We never planned on being foster parents. But it was a way that she didn't have to leave for school and her friends and it just we could do it and, and my daughter talked us into it. So and I've never regretted it.

Scott Benner 23:56
I was gonna say throw in something positive after saying you were tucked into it.

Dana 24:00
Well, it was. It was just so unexpected. I never expected to do that.

Unknown Speaker 24:06
But what age was she when this happened?

Dana 24:09
She was 16.

Scott Benner 24:10
Okay.

Dana 24:12
And now she is 34 Look at that.

Scott Benner 24:16
You've done a nice thing. It's wonderful. And you built your family out and it had an experience you definitely didn't think you were gonna have Yeah, well, I'm glad it worked out and she ended up being like a crackhead. Because then the story would be much different. Like, it was horrible. Scott biggest this is just a horrible mistake. She Yeah, she stole her television. So this is a much better story. That's wonderful. Does she call your mom?

Dana 24:40
Yeah, sometimes. She She sometimes calls me mom sometimes calls me by my first name. Well, Dana. And same with my husband, but but she's still you know, she sends us Mother's Day Father's Day cards and celebrates Christmas with us and that's wonderful. Other holidays.

Scott Benner 25:00
So good for you that and good for her to that she's lucky to have met you guys and your daughter who didn't have the knowledge of the of life yet to not say that to you. She's just like, it'll be, I guess your daughter was like, this is a nice thing to do. We should do this, right?

Dana 25:16
Yeah, it was, it was really listen, mom, mom and dad, I just really want to help her.

Scott Benner 25:24
She called her to get a job, you should have been like, Listen, if it means that much to you. Let's see your work a little bit. Right? I'm just kidding. Yeah. What was it like to have a person come into your home after all those years? And did? And I guess I was going to ask you if you showed her the diabetes, but I guess my bigger question should be, how much of diabetes? Was your family aware of? And how much did you keep to yourself?

Dana 25:49
Um, they were aware. But I really did it on my own. I mean, like, I would take, you know, a shot of insulin before eating and, and it would be out in the open and, you know, I take insulin to the restaurant or whatever. So they were aware, and my kids knew. You know, if I started acting weird, to tell me to go check my blood sugar.

Scott Benner 26:24
That's about the extent of it. Was that preferred by you? Was it lonely? Like, why is that wire? I mean, I don't have diabetes. So I'm always wondering this, like, why? Or why is the wrong word? Come on, Scott, pull it together? Is it not a consideration to try to involve other people? Or is it something you're trying to protect them from?

Dana 26:50
Yeah, it's a good question. Because I know, it's been really interesting to me to listen to the podcasts and to listen to how you are with Arden. And, you know, part of me is envious, like, Man, I wish I would have had parents like that. And maybe it was the age that I was diagnosed. Because pretty much it was me on my own doing it all. I mean, how much have learned how to give me a shot? And but they never really did?

Scott Benner 27:28
You know, maybe it would have been nice if once in a while, they're like, hey, I'll do this for it. You don't have to name a logo go on. They had to fish. Yeah, they had to do something. Well, I, you know, it's funny, you just said that I'm more involved. And you. It's easy to feel like, Oh, I wish that happened for me. But with the way management was when you were diagnosed, being involved, just meant making sure you took a shot and then taking you to the hospital if you had a seizure, because they didn't know any, like there was not like there was other instructions for them except for the eating process. And then and then probably the sadness of thinking their daughter was going to be dead in 30 years. Yeah,

Dana 28:07
yeah. I do remember one conversation with my dad because he had a friend with a daughter with type one. And my dad came to me almost in tears, because he saw that I wasn't following the eating plan very well, and said, you know, this is what happened to my friend's daughter, and she's blind now. And I don't want that to happen to you. And it really had an impact because my dad was not someone who expressed emotions very often. So

Scott Benner 28:39
shocked shocking to see a man back then. Be that vulnerable with you, I guess.

Dana 28:44
Yeah. Yeah. Especially him.

Scott Benner 28:47
Okay. Just out of out of character for him completely. Right. Right. Exactly. All right. Okay, so married back to school, when at what age you start having children

Dana 29:02
27.

Scott Benner 29:04
That's a respectable age. I like that age as a choice.

Dana 29:07
So we had five years almost before we had kids.

Scott Benner 29:10
So you enjoyed your life for five years? You're saying?

Dana 29:14
Yeah. It's so weird. It's like, Well, why don't you remember what it was like before we had kids? Seems like we always had kids, you know, your life totally completely changes. Once you have kids. It becomes all about them. And

Scott Benner 29:30
I'm going to tell you a secret, Dana.

Dana 29:32
Take better care of myself having kids. Yeah, I'm

Scott Benner 29:34
gonna ask you about that in just a second. I'm just going to tell you first that Kelly's away for business this week. And she's in a different time zone. So we're really just not talking at all. Like there's this like slice of a moment where we can talk in the morning here when it's the evening where she is. And so she's pretty gone out of my life for the next number of days. Hold on. I'm dropping thanks. And gardens Wait school and coals here. And last night I went to bed and cold. I've been hanging out and doing more stuff because it's easier with only two people here. But I got in bed last night I closed my eyes. And I thought this would be what it would be like if I was alone. And then I started thinking about like, how would I feel my time? And like, I couldn't think of anything. I was like, well, I'll keep making the podcast. That's good. But then to what end? Do I like go on vacations? Do I go see places? Like, what do I do if I'm by myself one day, and it was a very strange feeling. And now if you ask me, anything about us as a family, or the kids or anything, I have a million ideas what we should do if we're all together, but I don't, I wouldn't know how to live my life by myself. It would be a quite an adjustment. So anyway, I take your point.

Dana 30:55
It's Yeah, it's true. I am. In fact, I think that's, you gotta find things that you enjoy doing separate from your spouse in order to keep your marriage healthy.

Scott Benner 31:09
Just teasing each other count. No, right. Yeah. Yeah, it's not even it's not even so much. I guess it's kind of a morbid thought. Like, because I was really thinking, like, what if Kelly was dead? And the kids were adults? Like, who am I? Exactly? You know what I mean, if the kids don't need me, and Kelly was just not here. Like, I don't know who I am, like, I don't know what to do. And I also thought, Oh, I wonder if I'll outlive her. If she'll outlive me, then I got competitive in my head. And I was like, I'm gonna outlive her. Then that made me feel sad. And I don't know if I'm going

Dana 31:47
to have those thoughts to, like, yeah, what would I do if he wasn't here?

Scott Benner 31:52
Yeah, except I know that. I think there is a part of me that thinks that after the sadness passed, I would probably really enjoy myself for like, a week, and then it would go down.

Dana 32:03
Yeah, well, I know there's times where he's gone. Fishing or whatever, for a weekend. And it's like, yeah, I got the house. Am I so? It doesn't last too long. Yeah.

Scott Benner 32:15
No, Kelly, in our conversation yesterday, let me know that she's thinking of moving to France without us. Oh, no. That's fine. That doesn't hurt my feelings at all. You can go by yourself. Anyway, so tell me a little more about, because it really seems important. You've mentioned it a couple times, and I haven't let you get to it once. So I'm gonna do it right now. But the idea of having children making a scenario where you desire to take better care of yourself.

Dana 32:45
I think, like, I always wanted to have kids. And I didn't know if it was possible, because I had a friend who was adopted, whose mom had type one. And they had had two stillborn babies. And so that was my thought always in the back of my head, like, oh, I, you know, am I even going to be able to have kids. And so my husband and I had talked about adopting, but we found out about a program at a nearby hospital called sweet success, where they, it was pre pregnancy, counseling for women with type one. And I thought, Well, okay, I'm gonna go to this and see what we can find out. And at that time, you'll probably be appalled. But the goal was to have your hemoglobin a one C, eight or lower to have a successful pregnancy.

Scott Benner 33:44
Oh, I'm not appalled. Um, I don't think they even could imagine how to get your agency lower than that.

Dana 33:52
Yeah, I guess that's the truth. So. So I did that. And I was able to be in the sevens when I got pregnant and the doctor before that I was put on human insulin finally. So that was probably 1986. Because then I was pregnant in in 86, and had the baby in March of 87.

Scott Benner 34:24
So that's regular and mph at that point.

Dana 34:26
So no, I was put on on human life before I got pregnant.

Scott Benner 34:30
Oh, I'm sorry. Okay.

Dana 34:33
And I guess it must have been Lantus. Right. So that involves taking more shots a day and I've they talked me into you know, you should they explain why taking human love before each meal made more sense because that's what someone without Diabetes, that's what their body you know, gives them insulin before each meal, or with each meal. So it's more mimicking what your body does. And after I had my daughter, I decided I, this isn't bad. I can take as many shots a day as I need to. That's not the hard part. You know, the hard part is keeping those numbers. You know?

Scott Benner 35:26
Yeah. And the testing still wasn't great at that point, right?

Dana 35:31
Yeah, it was still, you know, it at least There were machines at that point, not that little tube. And it really, every when I was pregnant, the doctor that I saw, was a specialist with high risk pregnancies. And he had me call every three days with my blood sugars. And I had to write them down and tell him what they were. And then he would say, okay, you know, increase by this much and

Scott Benner 36:07
yeah, that was so every three. He was he was adjusting your blood sugars based on every three day reports from you. Yes. And saying try a little more of this little less of this. Eat more, eat less like that was and you did that for nine months? Yes. That's pretty cool, actually.

Dana 36:27
Yeah, it was it was like, Man, I wish I could have this doctor all the time. I wish I could have someone all the time. Giving me the advice because you get tired of thinking about it all the time and trying to figure it out. Especially when it doesn't make sense. You know, when you think okay, I've done everything. The same as I did the day before. I'm not more active. I ate the same food. I took the same insulin. Why is my blood sugar higher?

Scott Benner 36:58
Yeah. Cuz of the hormones from the pregnancy?

Dana 37:01
Yeah, just.

Scott Benner 37:03
Wow. Well, so if we fast how many kids did you have? I'm sorry. Three, three times. And did your A onesies get better every time with every pregnancy? Yes. And do you attribute that to technology and insulins and things like that? Yeah. Okay. Did your understanding change at all? Did you do anything? Like functionally different?

Dana 37:27
Um, no. And the third one was totally a surprise. No. So we were using contraceptive sponge which I don't think is on the market anymore, because it didn't work.

Scott Benner 37:43
Did you name your kid after the sponge?

Dana 37:45
Yeah, I should have huh? Sorry, that ring doorbell thing just went off. That's

Scott Benner 37:52
fine. You're fine. Go. These are the people we sent to kill you, Dana. They're on there. Oh, well, okay. So you make you make three in what succession? How long between the three babies? How many years?

Dana 38:07
Um, so my oldest is eight years older than the youngest. Okay, so I had, I had her in at seven than I had my oldest son in 89. And then our youngest 94.

Scott Benner 38:25
Does this after a wedding, by the way, Dana or anything like that, or just a regular Friday night?

Dana 38:31
Actually, it's like, no, no, can I tell you that?

Scott Benner 38:33
Oh, I know. You and Mr. Dana. Were pretty active. I get what you're saying. Dana. It's okay.

Dana 38:40
No, it was really after a very sad event. Oh, oh. But it was kind of like, Yep, I know. That's, that's when that happened. And now we're pregnant. And I'm sure that was it.

Scott Benner 38:56
Being a sad sex can be nice. There's nothing wrong with

Dana 39:00
that. It's comforting. Yeah.

Scott Benner 39:03
Well, it's comforting. But now you every time you every time you think of Pearl Harbor, do you think of your daughter? No, I'm not trying to get you to tell me Don't Don't tell me. I just wanted to make the joke. That's okay. I don't know why Pearl Harbor. When was Pearl Harbor in the 60s? Yeah, before I was born. I my hope my my What should I have said Three Mile Island. That would have worked right? Yeah, there you go. Well, that would have been fun to hear actually. Dammit. Let's go back and do it again. No.

Dana 39:38
I feel like life didn't start till 1960 You know, that's when I was born. So I hear anything before that.

Scott Benner 39:46
Didn't happen. Yeah, yeah. Damn those dinosaurs. i Okay, so you've got these three kids. Are you and was it that you could tell that it was possible through the pregnancy. So you thought why don't I just continue on this good care in my regular life? was yes, it wasn't the idea of like, I need to stay alive for these kids.

Dana 40:09
It was a little it was both, but it was such it was nice to have that can feel like you had more control. Like, okay, if I want to eat more, just take more insulin, if I want to eat less take less insulin I it was after that. I felt like most of my doctor's appointments, I knew more than the doctor knew, you know?

Scott Benner 40:39
Yeah. And that's fascinating, didn't it? Because you don't, you don't have a ton of knowledge about it. Right, right. And you still are in that position, which that just proves out that theory that living with it is going to teach you something about it. All right. Well, that's interesting. Okay, so kids are growing up or you stay at home mom, or you have a job

Dana 40:59
as a preschool teacher. Oh, that was great. Because when they were old enough to attend the school, they had to be two and a half and potty trained. They could go to school with me, or go to work with me. And so all their, you know, young years, it was a half day. Preschool. So I'd be home by the time they got out of school.

Scott Benner 41:29
That's excellent. It really is nice. Plus, it makes everything simpler, even like commuting and, and everything. Right, because the kids are with you while you're moving to work. Yeah, yeah, that's nice. Okay. Do they have any autoimmune issues? And do you have any other autoimmune issues?

Dana 41:45
Um, I do not. But yeah, my oldest we participated in. I forgot what it was called. It was something like TrialNet, where the kids went had their blood tested to see if they had certain

Scott Benner 42:07
genetic markers for Yeah, yeah.

Dana 42:10
And my, my oldest my daughter did. And when she was 21, she developed well, she got diagnosed with type one, then they told her it was type two, then it's,

Scott Benner 42:28
that's silly. If she had the markers, and you had type one, what are we doing toner? She has typed, right? Yeah. So we were

Dana 42:34
trying to tell her type two. She told them, you know, no, my mom's type one. I want to be on insulin. And she talked them into putting her on insulin, but they gave her insulin and some type two medications. Like I think it was Metformin.

Scott Benner 42:55
Is this in the early 90s? I'm just trying to do the rough math between No, no.

Dana 43:00
Okay, let's see. She was born 87. No, it was like 2000.

Scott Benner 43:11
Why did I say 90s? It should have been in the in early 2000s 2005. Ish around there. Yeah, sir.

Dana 43:18
Okay. Probably 2007 2008. Okay. Okay.

Scott Benner 43:24
And so it's that's a more modern diagnosis, but still not ultra modern. That's a few years after? Oh, gosh, 2007 would have been just a year after Arden. So she's an adult at that point, right. Yeah, she's

Dana 43:39
in college, living with roommates.

Scott Benner 43:46
Do you and she have a connection about diabetes? You talk about it and help each other at that point? I mean, because now you know what it's like for nobody to help you. Right? So

Dana 43:56
yes. Although it's like, no, I don't want to go there. So I'm not going to make you have to erase anything. So. But yes, we have that in common. And we can talk about that. And she's probably not going to listen to this. So all I can say is, she doesn't take as good care of herself as I wish she would.

Scott Benner 44:18
Okay. Well, I think I think that recording the podcast teaches me that everyone takes care of their diabetes commensurate to their personality, if that makes sense. And I and and your personality and what you care about changes as you get older as well. I mean, it happened for you. So there's no reason why it couldn't happen for her as she had children. No, do you think she will one day?

Dana 44:48
No, no. We've talked about that. I I think she may she's not married. She's not in a relationship. Um, She has talked about adopting. She's a sign language interpreter, and she's very involved in the Deaf community. Okay. And she's talking about adopting a deaf child

Scott Benner 45:17
to cool job. And that would be a lovely thing to do. Yeah. And she also saw you Foster was it by the way, it wasn't her that talked you into the foster and it was, what was her? It was her. Oh, okay. All right. Well, yeah, she thinks differently, so she'll find something.

Dana 45:32
Yeah. So she even talked me into taking sign language classes, so, so that I now feel I could communicate with a deaf grandchild if, if that happens.

Scott Benner 45:46
Oh, that's wonderful. So it's just on the diabetes point. You have different goals than she does. Is that right?

Dana 45:56
Yeah. I think for her, it's she doesn't want to have to think about it and she doesn't want it to interfere with her job. And I'm afraid it's it's going to catch up with her someday if she doesn't, you know,

Scott Benner 46:12
do you think she's not doing well? Or do you think your motherly like instincts are turned up to 1000?

Dana 46:20
No, I think she's,

Scott Benner 46:23
there's okay, there's room for improvement. So then, let me ask you this modern day, before we started talking, you said that you went from MDI to a pump them back to MDI, right. Okay. Well, that's really

Dana 46:37
recent, and it's because of scar tissue. I kept having what like when the pump worked, it was fabulous. I mean, I love it. I wish it worked all the time. But I'd put it infusion set in, and then it would work for a day and then the next day, my blood sugar's kept going up. And I kept giving myself more insulin. And, you know, it took me a while to figure out oh, it's the site, take it off, and we were on vacation. And I developed this huge lump under my skin and it got a red and I took it off, and I was just so scared of that happening again. And I still have a lump and a red mark on my abdomen. And I don't know, I just decided it's reliable.

Scott Benner 47:36
Yeah. Did you try? Did you try different sets? Like I don't know what pump you

Dana 47:39
were using? Yeah. I I had tandem.

Scott Benner 47:43
Okay. Did you try the true steel? Yeah. And that's what

Dana 47:47
I was using. Okay. Yeah, cuz I have problems with the other ones. And the true steel was the one that worked the best. And I I think it's just having had diabetes for so many years that I have too much scar tissue.

Scott Benner 48:06
Did you just try did you try like completely different sights, like somewhere you'd never injected?

Dana 48:11
Yeah, I tried. I tried my arms was too painful. I tried my legs. You know, it just hurt. I tried my butt, which I, you know, never really tried before, but it kept getting knocked out. So I don't know. I just decided to take it off. I may try it again. I mean, I still have it. I still have all the

Scott Benner 48:37
control. Yeah. I mean,

Dana 48:41
honestly, how well I do on MDI now that I feel like I learned a lot from having a pump and having that ability to to give myself little minut amounts of insulin. So I'm trying that with the syringe like sometimes when I'm a little out of range, like just giving a little bit.

Scott Benner 49:03
Dean are you wearing a CGM? Yes. And that's working fine for you.

Dana 49:08
Yes, that Oh, black you advertise for Dex calm, and yeah, Dex calm, I think is like the greatest invention of anything that's come along. Because I never have to worry about not waking up anymore. Yeah, I'd have severe lows. You know, over the years, well, I already told you that. Sure. But even as an adult, there'll be times I wake up in the middle of the night and all sweaty and my blood sugar was 40. And, you know, I was just thankful I woke up so I'm Dexcom has gotten rid of that. You know, because it wakes me up. Yeah,

Scott Benner 49:55
yeah, no, I believe trust me. i Oh, you know, it's Funny. I've never once trusted anybody who started off the sentence by saying trust me, we take that back. But I'm very picky about who are advertisers on the podcast. You know, there are other companies and other items that have tried to get on. I'm like, I can't get behind that with like, full excitement. So I don't, I don't say yes. But the stuff that I talked about, I mean, yes, it supports the show and pays my bills and things like that. But they're, they're well curated. Advertisers on my part. So I'm thrilled that you found it. It's amazing. I've just wished you could find a way to make your pump work, because you could use an algorithm.

Dana 50:39
Yeah. Oh, it has one.

Scott Benner 50:42
I'm saying. And so it was, how long did you try the tandem?

Dana 50:47
Um, I had it. I started March of 2021. So not quite a year and a half.

Scott Benner 50:54
Are you really stuck with it?

Dana 50:56
Yeah. I mean, and I had, like, I was saying that the days when it worked, it was, it was great. It was like, I'm telling my husband, like, look at this, you know, my range 100% The whole entire day. And I, I know, I'm kind of old to be playing soccer. But, um, I started playing soccer back in when I was 39, believe it or not, in, you know, Women's League. And I would always have my blood sugar go up instead of down. And it was, it took me a while to figure out oh, it's the adrenaline, you know, talking with my doctor and he. So I would need more insulin. And it was always a tricky thing to figure out where I wanted my blood sugar to be when I start playing, to keep it from going up too much. And, you know, taking a little extra insulin or not.

Scott Benner 52:08
So you get the adrenaline spikes while you're playing soccer. You think?

Dana 52:11
Yes. Yeah. Always, no matter what I did, I tried to, you know, just relax. And it didn't happen. When I went to practice. It was only the game. So for some reason that competition.

Scott Benner 52:27
Danna, you're competitive? I am. Yeah, that's exactly what I would say. I would say you're very competitive. It's just like watching. Literally, like baseball players with type one. People say all the time, like, I don't understand. They go to practice and their blood sugar doesn't do anything, really. And then they go to the game It jumps up. It's because they want to win. Yeah, you're not trying to win practice. You're trying to so if your kids blood sugar doesn't go up at practice. They're probably not going to play the sport forever, because they don't love it. But, but um, but yeah, but but that's, I wish you could use it. Have you tried other pumps? You tried Omni pod? You try? Oh, I haven't no Medtronic.

Dana 53:07
No, well, actually, no. Back in 84, I had a pump. And I was trying to remember what it was called. I think it was called like you ugly or something. It was huge. So I was on a pump for probably a year 84 and 85. Because I have pictures of myself at the going to something in the 84 Olympics in LA and I'm wearing this big, huge pump on it. belt around my waist. So to find out how little they've gotten was awesome.

Scott Benner 53:55
I cannot find Wait, I didn't

Dana 53:57
really want to go on a pump Intel. It had that connection with the Dexcom.

Scott Benner 54:03
You know, that's interesting, because so many old school type ones say that. Like, like, well, when it works in tandem with something else, then I'll do it. But not until then it's interesting, like because you're not bothered by giving yourself injections. No, not at all. And you live through a time where the insulin wasn't as adaptive. So you'd probably don't think about things like extended boluses and Temp Basal and things like that. So you think well, there's no value in this. I don't I don't need to avoid these shots. If it does something else for me. Is that kind of the vibe?

Dana 54:38
Yeah, that was it. And also I retired from teaching preschool and I always worried about the pump in the tubing and kids pulling on it. But then there's not that problem with the Omni pot.

Scott Benner 55:00
Give it a try. Try the only power five. See if you like that. What's your goal range? What are you shooting for?

Dana 55:05
Well, I was shooting for 70 to 180. But listening to the podcast has made me realize I liked your analogies when you're when you said, you know, well, why not? 160? Why not? 140? Why not? Anyway, so I've been trying to be 70 to 140. And I've definitely seen improvement, it'll be interesting to see. When I get my next hemoglobin a one, see how well I've done without the pump. And that's gonna help me decide whether to try it again or not.

Scott Benner 55:46
What were you? What kind of agencies were you pulling with the pump.

Dana 55:51
Um, I, before I got the pump, I was probably 6.7. And then with the pump, I went. Each time I went to see the doctor got better and better. My last one was 6.0. And that's the best I've had in years.

Scott Benner 56:08
But you were irritated by having to change the site so much.

Dana 56:12
Yeah, it just became like it's taking it's interfering with life.

Scott Benner 56:19
Yeah, what, um, what what insulin, were

Dana 56:21
you using the pump? Human lug?

Scott Benner 56:24
Did you try different insolence?

Dana 56:27
No, never occurred to me.

Scott Benner 56:30
Yeah, I mean, I just wonder if, if it was the site, and your cameras and your body chemistry? Or if it was? I don't know. I'm sure. Humalog is FDA approved for use in tandem? I don't know if it is, but I'm guessing it is. But you know, they say like some sometimes you get clogs, and like my daughter uses insulin and a pump. That's not f it's not FDA approved for that pump, which just means they didn't test it. But you know, the people like, oh, it crystallizes in the tubing. And you know, we've never really had that problem. But But still, there's different. There's different things you can try. And you're retired, you have nothing but time. Give it a shot.

Dana 57:13
Yeah, especially because

Scott Benner 57:14
it sounds like you had an agency that was really just great at six and you had better stability. I mean, yeah, but I take your point, I take your point about having to switch it all the time. It's a pain in the ass.

Dana 57:28
Yeah, it is. It's yeah, I don't know. Try

Scott Benner 57:32
in pen. So you can get some of the functionality from a pump?

Dana 57:36
Like, try it in 10

Scott Benner 57:40
pairs. I think it pairs with Dex. Listen, mate, I think it does. It pairs with Dexcom. Right. Yeah. People are like, don't you sell in pen? I do. But I get. Yeah, I think it does, right.

Dana 57:58
Yeah, well, I will. I

Scott Benner 58:00
mean, just,

Dana 58:02
I never thought about changing. Insulin I didn't know was is there really that big of a difference between

Scott Benner 58:13
art and use Novolog. And we switched to a Piedra years ago, and I liked the way Piedra works. It acts kind of smooth in Arden. It's more deliberate. I don't know how to put it exactly. But for Arden, I don't know. And I've never switched back to Novolog to be perfectly honest, maybe I just wasn't very good at using insulin back then. But in the moment I thought I saw a lot of double arrows up and double arrows down with overleg. And I don't we don't see. We don't see arrows up or down almost ever with with Arden's care now you know when she gets an arrow down like something's wrong, so we just don't see that very frequently anymore. Wow.

Dana 59:02
Well, it's definitely something I'll talk to my doctor about it because she seems pretty open to changing things. When I changed from Lantis to receiver that was a great change. So there's definitely a difference and what is the long acting?

Scott Benner 59:26
Oh, that's a huge Listen, no disrespect to Lantus because but you know in your story back when it when it first came out, it was life saving for people. But recibo is going to cover 24 hours much more stably than Lantis is going to Yeah, yeah. And even

Dana 59:40
love Amir I think it was Atlantis and then live in there and then to receive and to Siva. Yeah. seems to not spike so it just keeps you even

Scott Benner 59:52
love Amir. I had to split for Arden when you know when she was little or it just never lasted 24 hours. Yeah. Yeah, mostly you're doing well. I mean, you don't really well, it comes down to me it comes down to your level of effort and the return you get for it. But I mean, honestly, you're two years away from being let's say, you were 14, and you're diagnosed, they said you were going to be dead when you were 34. So your two to two years away from 20 years on top of that, and how was your health in general?

Dana 1:00:24
Oh, really good. I think the only complications I have are, like I've had frozen shoulder. I had trigger finger I, I just went for physical therapy for it. And that really helped. So I feel like where my body is being affected by years of diabetes is tendons and ligaments, which is not something that's the you didn't read about very much. Yeah,

Scott Benner 1:00:56
no, it happens. My Jeffrey here. Mike's episode. Yeah, like he's had all those different issues. But But, okay, so trigger finger, frozen shoulder, not good. Did any of those symptoms get better when your agency came down when your variability came down? I'm seeing the correlation with that.

Dana 1:01:19
Maybe the trigger finger? I don't know if it's that or me doing these exercises every day?

Scott Benner 1:01:25
What are your trigger finger exercises look like?

Dana 1:01:29
You're kind of like sign language. It's funny because I told the therapists you know, I want to be able to continue to sign so you know, I need to be able to move my fingers and it's kind of like making the letter E with sign language and then

Scott Benner 1:01:47
it's finger calisthenics, then

Dana 1:01:49
yeah, exactly. There you go. That's funny.

Scott Benner 1:01:53
Well, trigger finger is not funny. But the idea of you sitting there bending your finger, I find it amusing for some reason. But okay, so generally speaking, though, your health is good. I mean, you're in your 60s, you're doing really well. You're obviously like, on top of things like you're a great conversationalist, and you have a great memory. You're remembering things from decades ago with no trouble whatsoever. So that's all all well and good. Does your husband have any involvement in your care any now?

Dana 1:02:21
I'm not a lot, just, he just nags me sometimes. And remind me like, when we go on trips, he's, you know, make sure you take the glucagon. And, you know, we had to use that on me once when we were on vacation. It was before Dexcom.

Scott Benner 1:02:48
Well, you shouldn't stick it on your daughter give him something to do.

Dana 1:02:53
Yeah, she lives too far away.

Scott Benner 1:02:56
He could text them bother. You heard me. I was bothering my kid by text before we started before we started going, right.

Dana 1:03:02
Wow. She won't respond well to that.

Scott Benner 1:03:07
Yeah, hi, honey. It's just me. I was wondering if you Pre-Bolus for lunch? Yeah, exactly. I would go well, that's interesting. Does she Um, well, no, I'm sorry, I we're coming up on time. And actually, I have to go to the dentist. So I'm a little stuck for being punctual today. But how do you find the podcast? This fascinates me?

Dana 1:03:32
Um, well, I think when I got on the tandem pump, I, I had a friend who's on a different pump. Medtronic. Anyway, she said, oh, you should go look on Facebook. See if there's groups you know, that, that you can ask questions. And so that's what I did in through one of these groups. Somebody mentioned, the podcasts, I kept seeing this and I thought, Oh, I like listening to books when I'm on walks, and I walk every day, especially since COVID happened, I mean, there was nothing else to do so. So I started listening and found it valuable and interesting. And I especially like the episodes with older people with diabetes because it's interesting to me to hear how different care was even the care I received and then I've heard a couple episodes with other people who got really hardly any information as you know, growing up with type one. So I don't know I enjoy those episodes a lot. Thank you for putting on us old people.

Scott Benner 1:04:58
No, i Please i love talking to everybody. I also think that it's completely possible that at the time you were diagnosed, that in the medical community's mind, you're dead man walking at that point. And it's just like, Well, we'll see how long we can stretch this out for this person. Yeah, and now it's just, it's so much different now. You know, really, really just incredible. If you think about the mid 70s, and 50 years, you know, people are wearing devices that are talking to each other and making adjustments to their insulin, keeping their a one season a six is almost like no trouble. That's a, that's a different world. You know, nobody, nobody gets diagnosed with type one diabetes now and gets handed pamphlets about, you know, your life expectancy being shorter. So it's a big deal. And it didn't, it didn't get you either. So you you've really thought through.

Dana 1:05:57
Yeah, I feel really fortunate that I'm still here. I didn't know very many other people with type one, but my husband's twin brother, develop type one after a motorcycle accident. Interesting. Which is so interesting, because my husband's been checked many times. And they say, Nope, you're you don't have any, you know, sign of it. But his twin brother developed it. And anyway, he's passed away, and he just didn't take care of himself.

Scott Benner 1:06:37
Yeah, I think you can get that he could have had an injury to his pancreas. Right. That they might not have known about? Yeah. Yeah, I don't know enough about this to start talking about it. But that could have happened, I think.

Dana 1:06:58
I think so too. I think I suspect that he had he lost the use of one arm. Like it affected the nerve in the arm. Oh. And he just, I don't know,

Scott Benner 1:07:15
did I had a couple of motorcycle accidents when I was young. And I'm lucky that I'm alive. So I know how, how vicious they can be. Yeah, like I've ever talked about on here. One day, not today, Dana. Okay, we got time.

Dana 1:07:30
But I'll be listening for that episode. Thank

Scott Benner 1:07:32
you the episode where I tell you how I got hit by a car and flipped upside down and landed on my head. Exactly why 20 years later, I needed shoulder surgery because of it. Sure. I'll tell you that when one day Don't worry. I can't thank you enough for doing this. This is a really interesting walk through decades of diabetes and, and you have a great way about you. So I thought this was wonderful. Thank you.

Dana 1:07:56
Well, thank you. I enjoyed it a lot. And I will keep listening.

Scott Benner 1:08:01
Oh, thank you so much. Hold on one second for me.

I want to offer just a huge thank you to Dana for coming on the show and telling her story. And I'd like to thank us Med and remind you to go to us med.com forward slash juice box or call 888-721-1514 and don't don't shortchange yourself. You want a need and deserve an accurate blood glucose meter. Go to contour next.com forward slash juice box and get yourself one. Use the same meter that Arden uses get your supplies the way she does, too. I appreciate it when you check out the links. When you do it supports the podcast keeps the podcast free keeps it plentiful. And I can't thank you enough. Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes, join over 40,000 active members every day, as they talk about type one type two gestational how they eat all the topics of the day around diabetes, great support, great community, don't miss it. Absolutely. For a Juicebox Podcast, type one diabetes. If you're looking for any of the series within the podcast, and you don't know where to start, or where to find them, go to juicebox podcast.com right up at the top like if you're in a browser, you'll see it at the top. If you're on your phone, you have to hit the little menu thing. But there you're going to find links to the after dark series. They ask Scott and Jenny algorithm pumping bulk beginnings to finding diabetes defining thyroid diabetes, pro tip diabetes variables mental wellness, type two diabetes, how we eat. They're all right there. I'm just going to pick one randomly. I'm gonna go diabetes. Let me think which one random divining diabetes I've clicked on the link says the finding diabetes with Scott Benner and Jenny Smith CDE rolled out a little bit. There's a player right there. You could actually listen if you wanted right in your browser or just go okay, um, you know, I was looking for defining diabetes. Pre-Bolus That's me. So 258 thing go back in your audio app and search for it or click on it right here finding diabetes is made possible by Dexcom on the pod and dancing for diabetes What do you think of that the internet is amazing juicebox podcast.com

#930 Best of Juicebox: Diabetes Variables: Bad Sites

Diabetes Variables: Bad Sites. First aired on Oct 21, 2021.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome to episode 930 of the Juicebox Podcast.

On today's episode of Best of the Juicebox Podcast, Jenny Smith and I are going to be talking about bad sites. That's bad sites for your insulin pumps, doesn't matter what kind of pump you have. Sometimes those sites just kind of stop working, they go bad, we're going to talk about it. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. You can get 35% off your entire order at cosy earth.com. When you use the offer code juice box, you can get a free year supply of vitamin D and five free travel packs with your first order of Athletic Greens that's ag one from athletic greens at athletic greens.com forward slash juice box and to get 10% off your first month of therapy with better help go to better help.com forward slash juicebox.

This episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter contour next.com forward slash juicebox. That's where you're going to find an amazing array of meters from contour. They have beautiful Second Chance test strips so you don't waste any strips and they are so so so accurate. So accurate contour next one.com forward slash Juicebox Podcast is also sponsored today by us med now us med is the place where Arden gets her Dexcom and Omni plod, plod and Omni pod supplies from sorry, they have Omni pod five Omni pod dash Dexcom G six G seven libre three. Tandem they got stuff us med.com forward slash use Box, get your free benefits check today and get started with us med don't like the internet. Here's a phone number just for Juicebox Podcast listeners 888-721-1514, give them a call and tell them hey, I'm thinking of switching to us med Can you help me out? Hey, everybody, this is the next episode in the diabetes variable series. So it's going to be me and Jenny Smith. Jenny, of course, is a 30 plus year type one, a CDE a nutritionist she's the she has a whole bunch of stuff. And she's here today to talk about a new topic, something that might come up in your life that very well may impact blood sugars. Today, the variable that Jenny and I will be talking about is bad sites. On the front page of juicebox podcast.com. A lot of the series that are within the podcast have their own space, like on the website so you can see them because I know there's a lot of episodes. Today I've added the variable series. So that's there now as well. So if you're looking for a certain episode, you're not sure what episode number it is head there and do a little scrolling. You'll find it. All right, Jenny. So I have four of them set aside to try for today. One of them. I can't wait to see how you respond. But the other ones are our I want to start with a couple that are shorter I think and and then see see what we're gonna get to so Okay, this one I think is going to be a really short variable. But I want to talk about bad sites. So just you're using an insulin pump. And the site stops being as effective as you expect or as you've I guess experienced already with the site. But people have the hardest time bailing changing up site. Yeah. It's that they the hope that sticks with them is sometimes fascinating. I can't tell if it's the if it's this thing supposed to last this long, dammit. Like, I'm not giving up or I mean, I even get if it's money. But right. You know, like if you're saying, I don't want to take this thing off, but if you have insurance. So I guess the first thing to say to people is if you have insurance, and you experience bad sides, your provider can write you a prescription for more stuff, if that becomes necessary

Jennifer Smith, CDE 4:43
to change more frequently, not at all. No. In fact, with all the pumps, I think there are people who definitely find I get to day two, I can maybe make it to day two and a half if it looks like it's really really still working well. But I don't push it anymore to day three. So yes, I mean if you're one of those people that just don't push it, know what you know? And ask your doctor to write for changes every 48 hours instead of every 72.

Scott Benner 5:09
Yeah, it's so an example is you know what the funniest thing about diabetes is whenever I go to talk about I always have a fresh example because never stops. But Arden and I are gonna go shopping this afternoon together, we're going to find little baskets to put on her shelf that she put up, she put up shelves, and she wants to put baskets on the shelves. I've been a stay at home dad for a long time. So that seems like a reasonable way for me to spend my afternoon to me,

Jennifer Smith, CDE 5:33
but for bunny eggs or something or what is she putting?

Scott Benner 5:37
I don't know what she's putting out there. Hopefully she's not hiding, you know, paraphernalia. Which I don't believe she is. But not the point. The point is that I woke up this morning to find that Arden's blood sugar had been fairly sticky at like 140 overnight. And I thought, Oh, we must have missed on the last thing that she ate. And you know, the basil is holding her nice and steady. I'll Bolus this i Bolus it and it doesn't move. And as soon as that happened, I thought this site is shot. Like it just it hits me like immediately. Now do I yank the pump off or right away? No, I turned to all of her settings up a little bit, it made all her insulin stronger. And it worked. And then when the settings reverted back, it drifted back up again. So in my mind, she's not getting insulin correctly anymore, because I'm not getting what I expect. And so I told her just before you and I did this, I said, Listen, do one more Bolus, because that's going to bridge this time, I'm going to be talking to Jenny. And then I said, and then we're going to pull your pump before we go before we go out. Because I mean, to get eight more hours out of this thing. I mean, I guess we could just jack it up. It's probably leaking, right? Or something good? Or what? So what are all the things that could go wrong with a site?

Jennifer Smith, CDE 6:55
Yeah, it's like a rabbit hole of information about site, right? It really is. So what could it be, it could be that the site is in a place that just got bumped or nudged or something. And so now, it's not really working as well under the site, maybe you develop like a little tiny, like, I don't know, like a class, let's say, but it's not absorbing quite as well. Thus, when you bump everything up, and now you're jacking in a little bit more insulin, it's kind of pushing out enough to overcome whatever the reason for the resistance is at the site, it just could be that this area, especially if you've documented enough to know the, you know, the right hip and the left hip don't absorb as well after day two, so let's just change it when it's in those locations sooner than later. So it could be the site, right? You know, variables of site, it could be infection at the site, especially in infections, I usually, usually you know that you have something starting even if it's a mild infection, I'm not talking something major, but usually the site hurts. It's sore. You might even notice a little bit of bruising like outside the cannula kind of area, but definitely it's sore and sites should not be sore. I mean, they should be with the little flexible cannula under the skin. And or even the ones who use the steel infusion sets. It shouldn't hurt.

Scott Benner 8:28
Okay. So I have I'm going to make an admission here or not an admission and admission. I'm going to admit something. omission is when you leave something out. Yeah, admit Okay,

Jennifer Smith, CDE 8:39
when you you have to add MIT something. What are you going to admit?

Scott Benner 8:43
Arden's had diabetes since she was two. And I hear people say my pumps occluded all the time. I've never figured out what they mean when they say I mean, I understand the word. But I mean physically, like the word makes me feel like somebody stuck bubblegum in your tubing, you know, like, but that's obviously not it. So, when people say I got an occlusion, what are they talking about?

Jennifer Smith, CDE 9:13
A true occlusion is different than a site that's technically gone bad. In a site that is occluded, occluded, means like you know, like the tubing is straight underneath the skin. And typically tubing will be bent visually, to some degree when you remove it and most pumps I know at least Omni pads. If you have an occlusion and your pod errors, it will tell you that it's either a pod error, or it will tell you that a pod occlusion is detected and to change the pot at that point. So and all of the pumps will register an occlusion based on a certain amount of insulin that gets backed up into the pump and it triggers the alarm to say this in insulin hasn't gone in up to this certain amount and each pump has kind of a designated amount that triggers that occlusion alarm. So an occlusion is definite ly different than a sight problem. Now an occlusion could be, it could be something that starts to make the site not feel good to because obviously, if you've got like a bent cannula under the site, that might be more irritating than something that's just supposed to be sitting straight, right? Most often though, what I've found is that an occlusion will happen soon after a site change,

Scott Benner 10:41
okay? But a bad not always,

Jennifer Smith, CDE 10:44
but a bad site could be two, three days in etcetera. But an occlusion usually is sooner than later in the life of a site, mainly because it usually happens on the site being put under the skin, okay? Something has triggered it to bend, et cetera. Could it happen while you're wearing it? Yes, it could,

Scott Benner 11:07
if we're like, from the inject,

Jennifer Smith, CDE 11:10
more likely from the actual puncture under the skin,

Scott Benner 11:13
I should knock on some wood. But in 13 years or more of using Omnipod arms had one bent cannula ever, and I've never seen the occlusion thing. I actually think it's kind of cool that on the pod, if Omnipod thinks you're not getting insulin correctly, the thing just errors and shuts off. Yes. Like, it's just like, look, this is bad for you. I'm gonna force you to put on a new insulin pump now. Yeah, I've always thought

Jennifer Smith, CDE 11:35
to it has more checks and balances to alerting sooner than later that something isn't right, internally than the other pumps.

Scott Benner 11:43
So I also don't see them as much since they took the manufacturing in house. Oh, interesting. Yeah. Since they moved from China to I just did an interview with them not too long ago. But since they moved that they have a if you've never seen it, it's astounding. Like the facility in in mass in Boston. Yeah. So maybe that's it, too. Okay, so So here's the bigger question, I guess and how to wrap this up. You learn what a bad site and bad sites just a colloquial phrase, it's not a technical term, it's a phrase that stops working the way you want it to, excuse me a site that stops working the way you want it to work, you start to notice them after experiences, like and then you kind of like figure out when you can be like, This is bad. I'm jumping on this. So there's no real. I don't think there's any way in this conversation to say just look for this, this and this other than to say, if the site's not acting like you expect, if it's towards the end of the site, life, maybe switching now's a good idea. Do you have anything to add to that? Or is that kind of it?

Jennifer Smith, CDE 12:46
It's kind of true. I mean, if you have enough hindsight from your life with diabetes, right, from experiences, you can say, Well, my lunch usually does this my breakfast usually does this, my run in the afternoon usually does this kind of thing. And if it's not, and considering other variables that could be impacting towards a higher blood sugar. If none of those are really in the picture. I usually our recommendation, take take a correction. Like you kind of did you drove a correction in and you're like, huh, I didn't do anything. Don't, don't play, just change it out. Just change it out. Get some insulin going again, who knows what the reason was, I mean, you could play with thinking about what the reason is forever. Just change it out deal with the high blood sugar and move on.

Scott Benner 13:35
Okay. All right, chat. GPT. Let's see if you can write a podcast ad for the contour next gen blood glucose meter. Wow, it works quick, ready. managing your diabetes can be a challenge. But with the contour next gen blood glucose meter, you'll have the confidence and control you need to stay on top of your health. This state of the art device offers exceptional accuracy, ensuring you get the most reliable results every time you test. That's actually true. This episode of the podcast is brought to you by the contour next gen blood glucose meter contour next.com forward slash juice box. It says I should put a sound effect in of the meter beeping, but I won't be doing that. Let's see the contour. Next Gen blood glucose meter comes with a user friendly app that helps you track your glucose levels. That's actually true. You don't have to use the app, but you absolutely can. And it is pretty fantastic. And the app lets you set reminders and keep an eye on your trends. 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Which is not to say that the meter needs a lot of blood. It's just you know, if you mess up, you can go back without, without, you know, ruining the strip or the accuracy of the test. Seriously, fantastic meters. I love them. My daughter has been carrying them for years. They they're great long time sponsors of the podcast contour next one.com forward slash juicebox. When you click on the links, you're supporting the podcasters links in the show notes of the podcast player you're listening in right now. Links at juicebox podcast.com. And of course, you can just type in contour next one.com forward slash juicebox. 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But are you just already online getting it done? Are you even listening to me anymore? Where have you already called 888-721-1514 don't like the phone us med.com forward slash juice box. The other day I got an email from us Med and it said are you You want some more supplies? I guess it was time and I said yes click the button and then they just showed up. You want to do it like that. It's pretty damn easy. Us med.com forward slash juice box if you enjoy this episode of The diabetes variable series there's more it begins episode 491 With trampoline Did you know that was a variable that could impact your type on and your blood sugar again? Also episode 505 temperature 507 Travel 511 Exercise 524 hydration. We talked about food quality in Episode 526 In Episode 530, leaky sites and tunneling episode 535 playing video games that can impact blood sugar 540 stress 544 masturbation 548 School 552 Bad sites you just heard that one here 556 growth hormone number 560s Asleep episode 564 Pumped site placement episode 568 A full moon episode 572 diabetes technology five ad is weight gain five ad for Walmart Walmart can change your blood sugar get out of here and episode 588 We call it the final episode sort of. And then there were two more 592 menopause and 596 alcohol. You can find a complete list of these just like I read to you at juicebox podcast.com. Up at the top you click on diabetes variables takes you to all of them. Or if you're a member of the private Facebook group, you just go into the feature tab. And there are lists of all the series there. That group of course, this Juicebox Podcast, type one diabetes, but we don't care what kind of diabetes you have. Come on over and check us out. There's almost 40,000 members in there, and the group is completely free for you to use just like this podcast. If you enjoyed this, please share it with someone else who you think might also enjoy it. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're interested in learning more about betterhelp.com, forward slash juicebox therapy available from BetterHelp. There'll be an ad that plays after this. But that's all that's left. So if you're not interested in learning about that, go ahead and shut this off. A huge thank you to one of today's sponsors better help, you can get 10% off your first month of therapy with my link better help.com forward slash juicebox. That's better. H e lp.com. Forward slash juicebox. If you've been thinking about speaking with someone, this is a great way to do it on your terms. Better help.com forward slash Juicebox Podcast is sponsored today by better help. Better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues better help.com forward slash juicebox. To get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and schedule live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit for any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price betterhelp.com forward slash juicebox that's better help h e l p.com. Forward slash juicebox save 10% On your first month of therapy

#929 Stewart Pitt

Stacey has had type 1 diabetes for 44 years and she is delightful.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends and welcome to episode 929 of the Juicebox Podcast.

On today's show I'll be speaking with Stacey she's 50 years old, but she was diagnosed with type one diabetes when she was just six. We talked about quite a lot in this episode, but the thing that sticks out in my head is that she cracked me up so much Stacy had me laughing the entire time. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you want to try ag one from athletic greens, please use my link athletic greens.com forward slash juice box. If you want to save 35% off your entire order at cozy earth.com use the offer code juice box at checkout and you can save 10% off your first month of therapy@betterhelp.com forward slash juice box. Guys, I swear to you this this episode is hilarious. Please Please join me in loving Stacey

this episode of The Juicebox Podcast is sponsored by touched by type one. Check them out at touched by type one.org or find them on Facebook and Instagram. The podcast is also sponsored today by Dexcom Dexcom, makers of the Dexcom G seven ng six continuous glucose monitoring system. Arden has been wearing the Dexcom G seven for over a month now and she loves it so much smaller and easy to use. Way to use si dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod. They of course make the Omni pod dash and the Omni pod five if you want algorithm, you want the Omni pod five let that thing make some decisions for you with the help of a Dexcom G six or if you just want to go old school and take care of it all by yourself. The Omni pod dash check them out Get Started Omni pod.com forward slash juicebox it rained here for the past three and a half days.

Stacey 2:39
Oh no way after not

Scott Benner 2:41
raining most of the summer. Like my things around my home dying and there's nothing you can do about it because you can't get enough, you know, water to it. And then the hurricane came up the East Coast and just it just it rained and rained and rained and just wouldn't stop. So I'm sure my grass is gonna grow until Christmas now.

Stacey 3:03
Probably Probably our rain Melbourne. One day it's beautiful. The next minute it's raining so we're used to it.

Scott Benner 3:12
I know I'm going to be cutting the lawn until New Year's is how it feels. Now in the mean, the way the weather has shifted since I've been alive, like on the calendar, you know what I mean? Like it just it's just it's crazy. Like I had my wife you know, right before Thanksgiving say to me hey, I think you should cut the lawn. Okay. Anyway, are you wearing headphones?

Stacey 3:39
I am Do you want me to take them off?

Scott Benner 3:41
I don't know. Are they wireless?

Stacey 3:43
No, they're not wireless. I'm old school. I didn't take them off.

Scott Benner 3:47
No, no, they seemed fine. I just wanted to check to see if you were wearing them. Is it a is it a microphone that you can adjust the distance to your mouth or Now

Stacey 3:55
am I too close?

Scott Benner 3:57
I don't know. Part of me thinks you're too far away and part of a part of me thinks it's just the the internet from seriously from Australia to New Jersey so

Stacey 4:08
calm down

Scott Benner 4:12
well I mean yours don't do yours have wires

Stacey 4:15
look well my internet or my headphones

Scott Benner 4:19
here's what I'm trying to say first of all we're recording so you know Stacy, but chances stays in the podcast. I'm saying if you're an island then once this How does the signal leave the island to get to the right like I saw. I don't know how this all works but you can't I mean are there wires that run under the ocean?

Stacey 4:45
Look there must be must

Scott Benner 4:47
see you laughing at me you don't know either. And or is it satellite? Right? I see do you

Stacey 4:57
do I sound okay, now I've got them all Her phone right up to my mouth. Yeah, no, no, it's about this. All right. Let me take it out and you tell me the difference. Okay, so let me take the headset off

now I can't hear you. Are you sure you can't hear me? Oh, now I can get. Can you? Is that better?

Scott Benner 5:25
So it's clear. Okay, cool. So as long as the are you in a room with no carpeting? Or?

Stacey 5:32
Yeah, I mean, you've got floorboards. Yeah, I can

Scott Benner 5:35
hear it. Isn't that crazy? I know when people don't have carpeting.

Stacey 5:38
Oh, come on what I do.

Scott Benner 5:42
I have a person who's recorded about 1000 of these. And I can tell him now. Now this will be fine. So if but you're on a laptop, I imagine.

Stacey 5:50
Yeah, she joined from my phone.

Scott Benner 5:54
That's interesting. I don't hate I don't hate this. As long as you're sort of seated and faced in the same direction, or about the same distance from the laptop the whole time. It's fine with me. And you just have to remember not to like turn your head away and start talking into the corner of the room because your voice will go away like that.

Stacey 6:12
Oh, okay. No, no, no, I've got the laptop leaning on my chest. I've got my backup on three pillows uncomfortable. All right, let's

Scott Benner 6:20
do this, then. I'm also surprised by how many people record this laying in bed. I don't know why. But I'm sitting up at a chair and trying to take this seriously.

Stacey 6:34
I want to say Carrie, we've gotten off to a good start the whole time

Scott Benner 6:39
turning some lights on. So I don't fall asleep. And I was listening the other day a person was like explaining something really intricate. So it was going on for a little while. But if I'm being honest, I kind of knew the explanation already. So I swung around to another computer to look something up that I thought we'd be talking about next. And when I swung my head back for the life of me, I could not remember what she was saying. And then I'm just like, I'm like, oh god, oh, God, oh, God, like she's gonna stop in a second. And I need to talk. I don't remember what she was saying. And I just I don't know what I said, I can't remember anymore. But I must have just pulled it like straight out of my ass because whatever I said she kept going. And I was like, Oh, my God, like, like, caught back up again. But that's what happened when I tried to divert my attention for three seconds. It was in Paris. I couldn't tell her though, because I thought it would just be too terrible to be like, Hey, I'm not listening.

Stacey 7:49
You're boring me.

Scott Benner 7:50
And she wasn't I swear to you, she just she was off on an explanation about something that I already understood about her. And I thought, well, this would be a great time for me to pull up this. This other thing that she's I know she's gonna talk about a second. And yeah, then I my brain is blanked out. Anyway. Introduce yourself, would you?

Stacey 8:11
Oh, sure. So I'm Stacy. I'm 50 years old. I can't believe I had to think about that. I'm from Melbourne, Australia. And I was diagnosed with type one diabetes at the age of six, in a Greek family with um, strict parents who had migrated from Greece to Melbourne, to Adelaide at the time.

Scott Benner 8:31
From Greece. Wow. Okay, so tell me again, how old were you when you're diagnosed?

Stacey 8:37
I was six years old.

Scott Benner 8:39
And you're 50 Now you're Greek, but you live

Stacey 8:44
in Melbourne, Australia.

Scott Benner 8:46
You've been there most of your life, I guess.

Stacey 8:49
Yeah, I was born in Melbourne, and then we moved to Adelaide when I was two years old. And then we move back to Melbourne when I was 10. And I've been living here ever since

Scott Benner 8:58
you have to help me a little bit because my geography is only like pop culture. Adelaide is where

Stacey 9:05
it's a state. Okay, when you're looking at the map of Australia, it's the state to your left immediately from Victoria.

Scott Benner 9:16
So I'm pulling up a map, but I suddenly have suddenly thought to myself, don't forget what you're talking about. The maps go.

Stacey 9:27
South Australia. Okay. Adelaide is out of South Australia. Adelaide. So capital city for South Australia.

Scott Benner 9:33
I have to tell you, the country's broken up. Oddly. It is. I mean, why is there a South Australia and a West Western Australia but the northern isn't called Northern Australia. It's called Northern Territory and there's no East Australia. Like, who did this bunch of criminals.

Stacey 10:00
Did it needs to be like, you know, they need to redo the whole thing again, I think

Scott Benner 10:03
there's not a ton of consistency. I've never looked at this before, like either pick funny names, or go with like direction, right? Why would you do three of the four directions? And then oh, and then there's some Is there a little like British ass kissing over here? Is that what this is? Like a little island? No, no, the naming Victoria South Wales Queensland. Is that British as kissing? Is that what that is?

Stacey 10:30
Um, more than likely probably.

Scott Benner 10:33
Look at you. You're like, I don't care. And then Tasmania, which is a place I thought was from a Bugs Bunny cartoon. I did not realize that was a real place. So

Stacey 10:42
it's a real close. It's a little island off of the strip.

Scott Benner 10:45
We're devils live, right?

Stacey 10:49
Apparently, so. Yes. Have

Scott Benner 10:50
you never been?

Stacey 10:52
No, I have been I never saw a little devil. But um, I did not enjoy Tasmania. We'll just leave it at that.

Scott Benner 11:03
Boy do something to you in Tasmania.

Stacey 11:05
No, I'm, I'm all about the sun and the beach. I don't like cold weather. It's cold there. Yep. Real city.

Scott Benner 11:14
That's interesting. By the way, if anyone wants to Google a Tasmanian devil, it's fantastic. It's a carnivorous marsupial, which, yeah, and in every photo of it, it has its mouth wide open. Like it's going to kill something. But it doesn't look very big. Yeah, correct. I don't know. How did this turn into the thing in the Bugs Bunny cartoon? It was Bugs Bunny. Right. The Tasmanian devil.

Stacey 11:41
Yes. I think it was a look. You're you're testing my memory. Now. You're making me go back. Yeah, I believe it was it was fun. That's funny.

Scott Benner 11:49
Yeah. It definitely was. Alright. Yeah. See, my memory is fine. Okay. Well, that has nothing to do with you. I, I always enjoy doing episodes with people from Australia, New Zealand, because I find that because the time difference. I'm speaking to them late at night. And they're always like, giddy or drunk. So it's perfect. Perfect. I'm

Stacey 12:15
not getting drunk. I'm just really tired. I just can't wait to go to bed. It's like midnight here?

Scott Benner 12:22
Well, I think I'm insulted. What do you mean, I you're not excited to do this?

Stacey 12:27
No, I've been waiting to do this since I think it was my fifth year. And I reached out to you. So I'm pretty excited. And I put three alarms on school, I wouldn't fall asleep.

Scott Benner 12:37
Thank you. I really do appreciate the effort. I'm being sincere. Thank you very much. So you wanted to come on to speak about something specific? Or did you just want to chat?

Stacey 12:47
I'm nothing specific, apart from diabetes like is that? Yeah, I don't even remember why I reached out to you to be honest to come on your show. I think when I first discovered you, which was only about a year ago, late last year, you just had me in hysterics, and I just learned so much from you. Considering you know, I had this disease. I had had this disease for 43 years at the time. And I was just fascinated that I've learned so much. And then every so often when I go for my walk, and I put you on and I listen to you, I just continued to learn and learn and learn. So I guess it doesn't matter how long you've had diabetes, for you'll always be learning something different or something new or something you weren't aware of. So

Scott Benner 13:36
I think that's worth digging into. Because to live that long with something, you would think that there wouldn't be anything to learn. Right? You're right, you would just think like, I'm gonna listen to this guy tell me stuff that I know art is stupid. I've been turning the television on for 50 years can't be a different way to do it. And and so tell me what, like, where were the big changes for you?

Stacey 14:05
So I've been on MDI for I was on MDI for 43 years. So up until November last year, as I said, brought up in a Greek family, it was really hard to not to accept that I had diabetes, diabetes was always in the background for me, so my dad protected me a lot and I couldn't do a lot of things he controlled everything I did. So I didn't like doctors because I had an incident with a doctor once and refuse to go back again. So I just went on my own and did my own thing and basically all I did was inject and watch what I ate and did my blood sugar that was my life and did all the tests my eyes, my feet what have you, but I never dove dive dive dive deep into it any further because it was just yet my parents Brace doesn't work. Here we go, and this is what I have to do. And then here I'm listening to you, and you're talking about being bold with insurance. And I like to do things my way I take my doctor's recommendations, or we work out things together. But I won't allow them to tell me what to do. Because I've had it for so long. And one thing that I'm struggling with being 50, you know, I've always struggled with my hormones during the time of the month, and I would skyrocket, I'd go out of control. So our numbers are different to the way your numbers are with blood sugars. So I would get up to 14 and 18, which is extremely high for me. And I could never manage it. You know, before my time of the month. I don't know what I'm allowed to say on here, because I've heard you say that.

Scott Benner 15:51
I mean, I assume it should be you're from Australia, you should probably be calling it Shark Week. Who wait Shark Week. Is that does that does that not translate? Do you not get Shark Week on Discovery Channel? Every whereas every day Shark Week in Australia

Stacey 16:12
call it Shark Week. We can call it Shark Week. Is this what you want?

Scott Benner 16:17
No, I don't want anything I mean, code read the event. There's a there's an entire like, euphemism.

Stacey 16:25
There is a cheater? Well, you know, I'm not gonna go around the bush. I'm just gonna say it. It's my period.

Scott Benner 16:34
Was that a? Was that upon when you sit around the bush or no?

Stacey 16:41
No, it wasn't actually I just realized what I said. is gonna be great.

Scott Benner 16:48
So a 14 a 14. blood sugar's about 250. So people can kind of get a feeling. Okay. Okay, so. So this is your whole life hormones and knock you out. And okay, so I want to go back for a second, though. You had a bad experience with the doctor? How old were you when that happened? And can you tell me a little bit about why it was a bad experience?

Stacey 17:13
Sure, I would have been maybe 16 at the time. And, or maybe it was, yeah, would have been that 16. Because they here in Australia, they stopped seeing children at the Royal Children's Hospital at the age of 16. They sort of move you on to another hospital, or to a private doctor. So of course, my father and I went to this particular doctor, and he asked me to lie on his on those bids, which was fine. And you know, he put the stethoscope on my chest and he was listening. And then he just decided to look in places that he shouldn't have looked in. And I just went with your dad there. My dad was sitting so he was behind the curtain. He couldn't see what was happening. What the hell? Yeah, exactly. Oh, sorry. That's terrible. Yeah, so I just yelled, my dad got up and really punched him. Because he just knew like, something's happened. And then when we got in the car, I told him what he had done. And I just refused to see another doctor.

Scott Benner 18:23
That's terrible. Did you guys do anything about it? Get him fired?

Stacey 18:28
No, no, we didn't. We didn't do anything. I mean, we just yeah, we, we just let it go. I was just like, you know, it is what it is. I just won't say doctors which could have jeopardized my health. But um, yeah, I just wouldn't see doctors. And then I was sent to him again, about 14 years later. And I didn't realize it was the same doctor. And as I've walked into him, because I've seen you before, and I've just, and the penny dropped. And I went, have you? And he goes, Yeah, we're back here. And, and then it just all came flooding back. Oh, my gosh. Yeah. And I just said to him, I don't remember uni because I don't use it. No, I don't remember you at all, which I did. Yeah. And, yeah, just get the hell out of there as quick as I could and never went back.

Scott Benner 19:15
Well, that sucks. Oh, my gosh, I have a recording coming up. I don't know when it is it's on the calendar with a with a person who is going to tell a story about how they, you know, took them forever to find a doctor that they liked and everything and they finally found one and they had good care with their diabetes. And then the guy got arrested for doing something similar. And he's, and I'm just like, what, like, is everybody crazy? I mean, is it that hard to get through life without being a piece of it can't be right. You know, but I guess it is so. I don't know. I'm always I've been alive as long as you have and it's still a story like that. I guess it shouldn't show argue and yet it is shocking. So that's all right. All right, well, so then this ask puts you on a bad path. And now you're not going to doctors for how long?

Stacey 20:10
I started going back to a doctor at about 3030. I was 3030. Once I was 16 at the time, so yeah, about 12 to 14 years later. And that was only because I, I would assume they were hypose. And the reason I say assume is because I never really experienced a Hypo. Because when I was diagnosed, we didn't even have glucometers I had to run, I had to wait in a potty and measure my blood sugar with strips. So and there were colored strips. So when the glucometers came out, of course, my my parents couldn't afford it. So we didn't buy one. And then we just didn't do anything. Because my father just let me run my life. I mean, I was 18 by the time and he just let me run my life. And I didn't want to do it. To be honest, I just didn't want to do it. So I may have lived, you know, the next 12 to 14 years blindly with my diabetes.

Scott Benner 21:13
So were you did you do the old like you shot your basil and didn't cover food or how did you handle it?

Stacey 21:21
So yeah, it goes back doesn't it? I just injected twice a day, once in the morning and once at night, and it was a mixture of proto fine, I think it was an X rapid or Novo rapid or I don't remember what the first one was. So it was a mixture of two insulins in the syringe because I was using syringes.

Scott Benner 21:49
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Yeah, you know what threw me off. And you'll please take this as a compliment as it is, is that I'm looking at a photo of you and I don't think of you as being 50 While I'm looking at you in the photo, and so my brain didn't wrap around that you would have been using insulin like that. Yeah, but yeah, so you were just shooting 12 It's the Greek, isn't it? You look so young.

Stacey 26:10
Yeah, okay. Yeah. It's the Greek it's great hormones.

Scott Benner 26:13
By the way, do you see a photo of me right? Yeah, I can see you. Okay. I'm adopted. People told me they thought I was Greek forever. I am not. Do you see it at all? Like, why do you? Yep,

Stacey 26:27
I do see it.

Scott Benner 26:28
It's interesting. I'm not apparently the 23andme says I'm not wrong. But anyway. Okay. So by the way, I'm sorry to get off track here. But it is incredibly delightful to hear an adult say we in a potty for some reason.

Stacey 26:48
Yeah, I do. I do enjoy saying that. Because people don't understand when you say I pissed in a party and they're like you did? Well. It's like a weed. Where else do you say it or urinated? urinated isn't a nice word. So yeah, I weighed in a potty. And I did that for years. Yeah, it didn't stop when I was, you know, because I was diagnosed at six. So it didn't stop when I was seven or eight. I continued that until about, I don't know. 1112. And that's how we That's how my parents measured my blood sugar's my parents did I didn't they took full control. My father, my late father took full control. You will he people would offer me water. When would go visiting? And you'd say no, she's fine. She was the one anything. And I'd look at him going, but I'm thirsty. I put some water like it's water, for God's sake, give you some water. So he really protected me. He was over protective. But I think it's the best thing he could have done for me because I've had it for 44 years. And I'm 50 now. And I don't want to jinx myself or do anything, but I don't have any complications. Scott. And even though those 10 to 12 years, well, we're I wasn't weighing in a potty. You're measuring my blood sugar. I still monitored myself and I was careful. And I did my HB, I always get this wrong. The HB one AC, whatever. It's called My six, three months, six months blood tests with my GP. And I was always on track. I don't think I ever went over seven or eight.

Scott Benner 28:26
It's kind of aggressive. And did you get low much or no?

Stacey 28:30
Well, I started noticing lows when I was around 30. And that's when I went back to my GP who referred me to an endocrinologist. This woman's changed my life. I walked in there and she first thing I said to her is, you're not going to tell me what to do. And she looked at me, she goes, No, you steer your ship. I'm here to work with you. What you do is up to you. But I'll give you advice. And she changed my life. So she took me off the syringes. And I went down to the pins. And I was using Nova rapid and Lantus. I think it was Lantus. Yeah, probably was. Yeah. And because I was exercising, she said, I need you to do it this way. Because I need you to give yourself insulin, you have the monitor more. We're going to give you a glucometer because you train so much. So for me it was a novelty. I'd walk into work and everyone's going on what's your blood sugar today? Where are you Where and watch me and I never used to speak about my diabetes. Like it was taboo as far as I was concerned. I don't want to talk about it. No one could ask me no one could say anything to me. I just didn't want to talk about it when I was younger. So this woman changed my life and I owe everything to her to how far I've come.

Scott Benner 29:56
Isn't it interesting Stacey and you walk in there and you're just like you're not gonna You're telling me what to do. And she she knew exactly how to handle you. She's like, Oh, no, no, of course not. Meanwhile, do you think in her head she was thinking, Oh, it's one of these? Okay.

Stacey 30:10
No, I don't think she did. Because she even said to me, she goes, you're on dinosaur syringes. We have to get you off there and bring you to date. So she, I think she did play with my head in regards to, she used the right words, to make me feel like I was doing all the decisions. Does that make sense? I know,

Scott Benner 30:30
yeah, I'm married. I know, I know how to do that. She's, you know exactly what you're talking about.

Stacey 30:42
So she really changed my life. And that's where I started noticing what a Hypo was more about, I probably did have hypose, but didn't recognize them as much when I was younger. So yeah, she changed my life. And then she decided to go to New South Wales, so to Sydney, which is to the right of Victoria. And I had to see a new doctor, a new Endo. And that's when I started seeing a new endocrinologist and she was just as fabulous, if not more fabulous than the one that I'd seen. So I was very fortunate. With my endocrinologist, it's such an

Scott Benner 31:23
example to have how a decent well meaning doctor can can impact you so well. The only have to do their job and care a little bit and it makes such a big difference to you. And I'm saying that touch you inappropriately, but that as well. Yeah, well, okay, so how many years do you think you injected for? Before you got two faster acting insulin?

Stacey 31:52
I would have been around 30. So far, if I was diagnosed at 624 years,

Scott Benner 31:56
24 years, you did it that way? Then you went to a faster acting, but you were still injecting? Is that right? Yep. MDI? Yeah. And you did that for? Like, are you on a pump now? Or no?

Stacey 32:07
Yeah, I only went on to the Omnipod in November last year. So I was injecting for 43 years. 43 years.

Scott Benner 32:13
Wow. Wow. Hey, is there any chance that you got that on the pod because of the podcast?

Stacey 32:20
Well, no, not. Not recently. Basically, I'm

Scott Benner 32:25
trying to sell ads here. What are you doing? Just look, say? Just say something like, Hey, I'm a pod, I'd never would have known about the army part. If it wasn't for Scott. Good.

Stacey 32:35
To be honest, I never would have known what I know about the Omni pod. If it wasn't for Scott 100% 100%. I don't remember if I started researching the Omnipod just after I started listening to you, or if I started researching the Omnipod, just before I started listening to I don't remember. I don't know if my memory being so crappy, is because I'm 50 years old because of my diabetes. Sometimes, like

Scott Benner 33:04
question. I don't have diabetes. And sometimes I sit here thinking I know there's a word, it means this. I don't know what it is. So, and I was I was obviously I was teasing before, but about a year ago or so. insolate reached out to me and said, Hey, we're launching Omni pod in Australia. And we'd like you to talk about a little bit and I was like, okay, so I did in an ad or two. And then I just thought this would be a nice opportunity for you to say you heard one of those ads, but it's okay. Don't worry.

Stacey 33:37
You should have put me up better I would have I would have made you sound amazing.

Scott Benner 33:44
This is also nice. I mean, it's just it's um, was this a doctor that moves you towards the pump?

Stacey 33:50
No, no. So no, I started researching because I was getting frustrated with my hormones and of course my period and when I started listening to you, and you're saying Be bold with insulin as soon as I took that approach, man, it just changed my life even more than what my life had already been changed. And then I started researching maybe I did hear it from you because I started researching for a tubeless pump. I just didn't want to be on a pump with tubes

Scott Benner 34:21
can kill me Is it me or not?

Stacey 34:25
It was us thought it was you and the and then I found you and I heard you and then I've found that a bit the only people have just the

Scott Benner 34:35
best this is coercion. insolence listening right now they're like he's not getting credit for this lady. So it's fine. It's okay. But

Stacey 34:46
no, it was it was Scott. It was you. So when I researched and of course it wasn't available here in Australia. No, Scotty wasn't you now the pen is dry. Oh

Scott Benner 35:02
my god. All right, fine. Let's get past this. They see it's okay. It wasn't me. It's fine. I'm sure they'll still buy ads and hey, listen, if they stopped buying ads and the podcast collapses, it's not your fault, Stacy. Don't worry about it. Okay. It's me. I didn't come.

Stacey 35:21
I met Brett from insolate in Sydney, so I can speak to him if you like.

Scott Benner 35:26
You met a man named Brett.

Stacey 35:29
Yeah, he's from insolate. America. He's from Weed offers. Where did you meet him? In Sydney,

Scott Benner 35:37
but I noticed that they like at a Starbucks or how did you?

Stacey 35:44
I met him insolate, Australia, brought them down. And then they asked, they read one of my blogs. And I touched their hearts and everyone was crying in the office and they called me in to do a webinar. And that's where I met Brett.

Scott Benner 36:01
Oh, you met like Brett Christianson. Yeah,

Stacey 36:04
and I can't remember the other dudes name. Oops.

Scott Benner 36:07
I'm sure the other guy's thrilled right now.

Stacey 36:11
It was Lynn. Oh, no, it's just,

Scott Benner 36:13
I'm just the guy standing next to Brett. It's fine. Brett's been on the show.

Stacey 36:20
Sorry. Yes. Yeah, he's really

Scott Benner 36:22
great. Okay. Oh, so you wrote you. I didn't know you had a blog? Yeah, keep blogs. Yep. So you wrote you wrote something, I would say by the way, Stacy, you see what's going on as they were launching on the pod and in Australia, and they started looking around for people to talk to who, you know, I'm saying. So PR and marketing. I'm so jaded now. Like when I had somebody on the other day, she was really terrific. Jennifer stone. Right. So she was on Wizards of Waverly Place on on the Disney Channel. And she was absolutely terrific. And one of my favorite, like celebrity interviews, cuz she was so real and just conversational and everything. But somebody sent me a message and said, while she she mentioned the, the ink pen a couple of times. It felt like she works for them. And I was like, Yeah, I think she does. And I said, How do you think I get these people? Do you think they're just sitting around their house, like, you know what, I really want to be on a podcast and like they're fulfilling a business agreement. They've agreed to do a certain amount of media for the job they're doing, which is to represent a thing. And I'm just lucky enough that the podcast reaches enough people that the PR, people think to ask me if they'll be on. And I felt like do people not understand that, like, when you see the rock on The Tonight Show, you know, he's selling a movie, right? Like he wasn't? He wasn't like, Oh, I haven't talked to Jimmy Fallon in a while. I think I'll go over.

Stacey 37:56
Yeah, exactly. Right. Right.

Scott Benner 37:59
So okay, so they you wrote something, what, what did you write about?

Stacey 38:04
So I wrote about my experience starting the Omni pod. If anyone doesn't know what the Omni pod is, it's a tubeless pump. And it's fantastic. So I started writing about my experience the first couple of days with the Omni pod. And when I started the Omni pod, I cried for a month. I cried every day, because I didn't have to do another injection. And I cannot tell you the emotions that ran through me. And the hardest thing was that I'm going to get emotional. Now I'm going to try not to my father wasn't around my father passed away eight years ago. And they told us when I was diagnosed, by the time your daughter gets to 21, there'll be a cure will clearly have been 21 twice, and there's no cure. And to be on a pump, and not have to inject into your tummy, because that's the only place I would inject. It's not liberating. It's, I just don't feel like I'd like a diabetic anymore. And that's my hashtag. And I stand by that. Living with this pump. And of course, the senses. I actually don't actually don't feel like a diabetic. And my father wasn't here to see it or witnessed it or experienced it with me. I just broke my heart and I cried and cried for a month and I started writing my blogs and they were very emotional. Because I was just expressing my emotion at the time. And that's when that's when Jo Jo Seder from insolate Australia reached out to me and she's she was crying on the phone with me because she said your pod or your your blog. He touched my heart. She does talk to me some more. And then I just couldn't stop crying. And then they asked me to speak to government and Prime Minister and ministers. And just so we can have the pods subsidized, because to be honest, it's $400 a month here. And like it's eating into my home loan. I'm a single woman living on her own with a mortgage. And it's hard to keep it up. But I it's not something I want to give up, because it's just changed my life.

Scott Benner 40:31
And so there's an effort to get it covered by government insurance. Is that right? Correct. Yeah. Do you think it's gonna happen? Yes. That's great. Well, I mean, the perspective that you show to people listening is is really fascinating that just leaving injections was such a big deal for you. I mean, just that it meant everything to you. It's almost unexpected when I heard you say it. And, and at the same time, I thought, Oh, God, is she being paid by Omnipod? I should have asked.

Stacey 41:12
No, no.

Scott Benner 41:15
I just it was funny after everything we talked about where you're so she spoke about it so passionately, I was like, Maybe I should just ask.

Stacey 41:25
And that's the thing, Scott, I am so passionate about things that worked for me in that I love that. I'm going to tell I'm going to share it. I didn't want the Omnipod I wouldn't be sharing it. I I can go to the beach and sit on the beach on the sand, like a beached whale and just tan all day, and not have to worry about my pen and my insulin in my pen and whether it's overheating or not.

Scott Benner 41:53
But not in Tasmania because it's cold there. Correct. Spelling says I'm paying attention. Also, I fully believe that you would be honest about on the pod if you didn't like it after you were unwilling to even joke about hearing about it through the podcast. So you're like, No, I don't believe it was you. Okay? Sorry. It must be a ton of fun to date.

Stacey 42:22
I think I'm pretty good fun. Yeah, I just need as news people are scared of me. Not that they should be I've just my box bigger than my bike. Do you guys have that saying in America? I know the saying Yeah. Okay, cool. Yeah, yes. So Omnipod did change my life. And that happened November the 29th 2021. And I haven't looked back. And since that day, I've probably had three injections. Because I've had the other day, I had an issue with the Omnipod. It had a kinked cannula. And I couldn't get my blood sugar down. So just there must have a quick shot just to bring it down a quick insulin shot, if anyone's wondering, just to bring it back down. So since then, I've probably just had three insulin shots. Yeah,

Scott Benner 43:08
it's a great, by the way, a great tip. If you're wearing a pump and your bolusing and things aren't working, and you want to check to see if it's your site. Quick, easy way is to inject some insulin, if that suddenly works the way you expect it to. You might expect that there's an insulin delivery problem. So they go yeah, see that we can see something useful while we're talking. Yeah,

Stacey 43:29
of course we can. What I've noticed with Omni pod, I know exactly now when I'm ovulating. When my periods do I know it so well that I just changed my programs. And so I don't have these up and downs all the time, the highs and lows. I keep it consistent because I know my body. And it's the best thing, especially for people going into perimenopause and menopause like myself,

Scott Benner 43:58
are you getting real hot? Or what's happening to you?

Stacey 44:02
Um, I've just seen changes with my period every month. I don't get the hot flushes. I didn't get anything like that. I've just seen changes. And I'm 50 Look, it's going to start somewhere, isn't it? You would? You would. So I'm just I want to tackle it before it gets me before it gets me before it really starts happening. And that's what the Omnipod has done. For me. It's allowed me like if I wake up and have my when I wake up and have my breakfast. If I spike straight after my breakfast, I'm ovulating. So I change my program to my ovulation program. And then it comes back in line. If I start hyper when after breakfast, then I know that I need to switch it back because sometimes we forget because we're 50 we forget now

Scott Benner 44:52
do you find that during the event you need more or less insulin

Stacey 44:59
and If it depends, one month, need more and then the next month I'll need less.

Scott Benner 45:06
Has that changed since menopause or you're you think you're perimenopause? You don't think you're

Stacey 45:14
Perry? Yeah, I think comparing. Yep. So it has that

Scott Benner 45:17
changed recently, or what was it more consistent in the years prior?

Stacey 45:22
Well, I don't know. Because I was an MDI, I could never control it. I just with MDI, all I did was increase my level media, because I went on to live in media. In the mornings, I increased it by two units every morning for the date for the days that I had my period or before my period. That's all I did. And it wasn't even great. It helped. But it wasn't great.

Scott Benner 45:47
Yeah, it wasn't instantaneous enough, either. Because you have to notice it. And then I imagine you wait another day to make sure you're sure. And then yes, then you inject it, and then you don't get that benefit for hours and hours after that. And by the time you do all that you're probably halfway through your period.

Stacey 46:06
Correct? Yeah, exactly. Right. Whilst with a sensor in the Omnipod, you just see, you actually can see what's happening to your body. So you just adjust accordingly. And it's, it's the best thing I'm like, I'm like, Yay for diabetes. It's fantastic to get diabetes. You know, there's nothing wrong with you, you can get through it, because we've got this technology, and it's amazing.

Scott Benner 46:31
Are you using a libre or a Dexcom? Dexcom. Okay, and is that in Australia right now is that Dexcom? Six, six, you have the six? Is that covered by the by the Health Authority?

Stacey 46:45
It's just got covered on July the first so yes, we were paying $300 $350 for the sensor, and then another $400 for the transmitter every three months.

Scott Benner 47:02
Or Stacey, were you out of pocket almost $10,000 a year for insulin pumps, and then CGM. Wow. Yep. Yep. Why? Why does it take so long for them to cover it when they're covering other insulin pumps aren't saying

Stacey 47:18
they are. Because the Omni pod isn't part of the I might say all this wrong, because I'm not. I'm not a doctor or into medical terms. But

Scott Benner 47:30
it's just a podcast, you can be wrong if you want to go.

Stacey 47:35
It's it's not on the process price thesis list. It's not considered I don't I don't I don't understand. And therefore it's not a normal pump, like your other plants pumps. So they haven't put it on health insurance or subsidized. So that's what we're fighting for at the moment. And I and I mean, we're fighting for it. There's a few of us on Instagram, and we keep putting up posts fund the pod fund the pod, it's, you know, it's life changing, and it'll save us from complications and living a longer and healthier life. And it'll save us from going to hospital and, you know, you can monitor everything, so I don't understand why they won't subsidize it.

Scott Benner 48:24
Well, I'm gonna guess it's got something to do with money. And, and other things. Maybe there's I don't want to guess but is the other pump may be? I don't know. I don't know. I'd be guessing. But sometimes it's just political pressure. Correct. You know, and I understand that. Yeah.

Stacey 48:45
Yeah, I understand that. But $400 a month before the sensors was subsidized. Like we were paying nearly $100 A month plus your insulin plus your jelly beans or your juice box or whatever you need to treat your hypose Plus or your doctor's appointment. We were looking at $1,500 a month.

Scott Benner 49:07
Yeah. How much you know, we've been through Australia.

Stacey 49:11
Jelly Beans, a packet. A kilo. One kilo is about $12 from the pharmacy or the chemists I don't know what you guys call it over there pharmacy or chemist.

Scott Benner 49:20
Chemist better but we call it a pharmacy. Chemists makes it in my opinion. The word chemists makes it feel like they're making meth which I think is fun. Start I'm gonna start calling the pharmacist the chemist. My gosh, well, I applaud you going so hard after this. It's um, do you do it just to Instagram?

Stacey 49:45
Just to Instagram I do. I can't do my blogs on Instagram because Instagram only allows you to have certain amount of characters and my blogs go full pages. I'm on a site To on Facebook, and it's the Omni pod, Australian users. And I'm sure you can join if you want Scott. You don't have to be Australian to use it. And I write them on there. And people just use the wait for my blog so they could read it and see what's happened and how have I challenged it and what's happened because I'll say it the pod was proud. You know, Edom started beeping at me while I'm in the water at the beach and the whole beach herder and I still don't know why. And I had to race home and change it and come back to the beach to continue my tanning and then, you know, I rang insha Allah and we went through it. And it's, you know, it only cooked in the sun because there was some baking

Scott Benner 50:43
so you don't realize that that was a it was a alarm to warn you of a shark attack it was it saved. Yeah, absolutely save your life. Yeah. They can't listen on the podcast, put that in the literature because, you know, spotty coverage doesn't work all the time. But would you have a pod failure? Did you not know how to like stick a pin in the back to shut it up?

Stacey 51:13
It just was beeping and I didn't own it said call customer service. Insulin has stopped or something like that. Okay, so I clicked on it. I think it said change pod. And I said yes. And it stopped. But I was getting no insurance. So we got in the car and I had to come home and change the pod and then we went back to the beach. The first time it happened, I was quite scared. Because I didn't know what the hell was going on. Okay. The second time it happened. I'm like, Come on, man. You're killing me. All I want to do is someday you're killing me. And then the third time it happened. I'm like, It's me. It's user error. It cannot be the pod. So that's when I rang up insulin and said, What am I doing wrong? And then they said, Well, what have you been doing? I said some baking? Was the pod exposed to the sun? Absolutely. It was like my whole body is exposed to the sun. Yes. They're like, yeah, you've cooked it. It only goes up to what 38 degrees? I think it you know, it depends. We get 30s and 38 and 40 degree heat. But I was sitting in the sun with the sun beaming on it. Not 30 minutes slept for hours. I overheated. The

Scott Benner 52:31
artists laid on the beach in it. Actually, she's going to the beach on Saturday. She told me. Yeah. And I you know, she told me that she said, Oh, we're going to the beach on Saturday. Like, that's great. You'll be taking insulin and an extra pod, right? And she goes, Yes, I will. And I was like, Okay, great. Then go to the beach.

Stacey 52:49
You see, I didn't do that. Maybe you needed to tell me that because I had to come home three times and change the damn thing. I'm like, come on, Stacy. I'd like

Scott Benner 52:57
to, I'd like to share with you a famous quote from an American president. Fool me once. Shame on you. Fool me Don't get fooled again. And so that's that's George Bush, by the way. Miss Miss completely misrepresenting that it's one of my favorite things anyone's ever said. But, so you know, it's Fool me once. Shame on you. Fool me twice. Shame on me. Yeah, but have you ever heard him say it? No. Oh, it's spectacular.

Stacey 53:34
No, no, you know if I have heard him say it, I probably don't remember. me back

Scott Benner 53:39
in school. It's my, it's my favorite thing that anyone's ever gotten wrong. I don't even care, by the way about his politics or who he is. It's just, I couldn't possibly care less. It's my favorite thing. I will find the audio and put it at the end of the episode. It's so it's so great. He just like playing. Caught in the middle. He just goes fool me Don't get fooled again. It sounds like he turns into Elvis in the middle of it. It's fantastic. Anyway, my God. Okay, so. So your point is you'll write about on the pod and you'll say when you love it, and you'll say when you have a problem that you're really open and honest about it. Yeah, and yeah, I think that's important. I think, you know, years ago, I was making the point to an advertiser who was like, you know, somebody was like, negative about our thing. And I said, Yeah, well, your thing's not perfect. You know? And if you if what you want is for people to pretend it is. I think you're just I think you're just setting people up to be disappointed. Like, wouldn't it be better to know that sometimes stuff goes wrong, and here's how you deal with it instead of treating them like oh, this is going to be absolutely insanely perfect for you every minute of every day for the rest of your life. And then when something goes wrong, they think it's a giant failure. They're still just little machines. You know, like, I feel the same way when I feel the same way when people are like, I test it, and my blood sugar's 120. And my Dexcom said, I was 98. I'm like,

Stacey 55:13
yeah, there's a delay. Yes,

Scott Benner 55:15
Stacy, you still we're in a party to figure out her blood sugar. And by the way, it wasn't right or actionable. So, you know, 120 98 it's good information. It's good information. And, and they'll say, and they'll say stuff like, well, it's normally so accurate. And so you're it's normally so accurate. But this one time it wasn't. And you're right away like this piece of garbage. Like I you don't understand, like, you have no perspective for diabetes technology. This stuff is astonishing right now. And, and just getting better all the time. So are you? Are you What are you using the only pod dash?

Stacey 55:55
Guess the Omnipod. Five hasn't come here. And I kept asking Brett to accidentally leave one before he left. But he didn't want like we couldn't discuss it. We couldn't talk about it because it hasn't been released in Australia. So they were very protective of the Omnipod. Five, and that's fine, because it's not here. I have my manager who's gone to the States at the moment, and I was gonna say to him, can you just grab me an Omnipod? Five and bring it back for me, but I didn't realize that you need letters and what have you. So I just a board that mission?

Scott Benner 56:33
Board board? Yeah, you know, of all the companies, they they don't talk about stuff before it's cleared. Because it can cause real, like regulatory problems while they're trying to get stuff through the FDA. Yeah, I remember God who came on somebody from something one time and just said something offhanded about something that hadn't been cleared yet. And I got like a panic email about six hours later. And it was just like three words. And he's like, You need to take those three words out, or we're gonna we're gonna get killed by the FDA. And I was like, whatever, it's fine with me. Like, I don't want I'm not trying to get you into any would entertain anything wrong. Like you don't even you just kind of like, kind of wondered out loud about something. And he's like, we can't say that right now. And I was like, Okay, no problem. So but yeah, they're all very they're paranoid. They Oh, yeah, they really are.

Stacey 57:27
So if the TGA is listening, you need to get your act together. And if the government's listening, you need to get your act together.

Scott Benner 57:33
You think the government will listen to this? Hey, if someone from the Australian Government is listening, I'd like to email. I'd like to know that I have that kind of power. You know what I mean? Because I'm going to start asking for other things. For instance, why can't you make the sharks remote control? Like what if you put like a little like headset on them, like in the cartoons, and you could keep them away from where you guys are surfing? How many people are killed by sharks in Australia every year? By the way?

Stacey 57:59
I don't know those statistics. Those statistics don't bother me because it hasn't killed me. So I don't really care. Why are you swimming with the sharks in the first place?

Scott Benner 58:08
I don't understand. And I don't agree. They shouldn't be. How many shark attacks have been reported in Australia in 2022. There have been 11 Shark Attack bites in Australia. But by the way, here's an interesting statement, zero provoked and one fatal. So one person has been killed by a shark in Australia this year. But what the hell does they're not provoked mean? How do I how do you know that the shark didn't feel provoked. Did you ask?

Stacey 58:37
Exactly right. They're in their territory at the end of the day.

Scott Benner 58:41
Wow, this is a thing they track. How do you provoke, unprovoked, provoked while they train, by the way, while they track shark attacks forever, recorded shark incidences since 1791.

Stacey 58:59
Oh, my God, who's keeping

Scott Benner 59:01
track of this?

Stacey 59:04
Insulin wasn't even released in 1791.

Scott Benner 59:07
Exactly right. And we were still tracking shark attacks. Most of them are minor lacerations, by the way. All right. Okay, except for the ones that say horrible things, which I'm not gonna do let's just stick with the most of them are just minor lacerations. That's fine. I didn't know that. People were tracking something like that. I've been scrolling the whole time we're talking I'm only to 1930

Stacey 59:33
they go. I say so. We don't even have a cure for diabetes. Yet. They're tracking sharps shark attacks,

Scott Benner 59:42
by the way is que LD Queensland. Yes, it is. What do you mean? I'm going to be like an official Australian by the time you and I are done talking. Also, my my my my sense of humor works in Australia, doesn't it?

Stacey 59:57
It does what you've got me in hysterics on my mom. Mr. walks every day and when I decided to listen to you, I just, I died from laughter

Scott Benner 1:00:05
I'm gonna move there when I retire. Can you get rid of all the spiders before I get there, please? Because if you could do that,

Stacey 1:00:12
just just move to I don't even know where I could send you so you don't get a tape boy, what a great white

Scott Benner 1:00:19
one. I'm not going in the ocean. But I do panic because if something goes wrong, how do you get off the island? You don't I mean? It's just not. I want to be able to run on land. Seriously, I want to be able to bolt in a direction if stuff gets upside down. You have you ever heard the one episode I did with someone? Where I was, you know, joking, joking about spiders. And then they told a story about a spider being in their toilet?

Stacey 1:00:44
No, I didn't hear I haven't heard. Do you know you've got over 700 episodes like, I only started listening to you last year. I haven't gotten through even half of them.

Scott Benner 1:00:53
Have you considered quitting your job or so that you could listen more?

Stacey 1:00:58
Now? Because then I couldn't afford my Omnipod on the pot again.

Scott Benner 1:01:03
Could you just real quick say Omni pod.com forward slash juice box in that delightful accent of yours.

Stacey 1:01:09
omnipod.com forward slash juicebox. Thank you in that delightful voice of mine. Is that right?

Scott Benner 1:01:18
I like the way you say I like the way you say it. You say insulin, which is cool. And when you tried to say HB a one say it was delightful.

Stacey 1:01:28
I don't even know what it is HB a one C HB one AC Hb C one a I don't even know what it is.

Scott Benner 1:01:36
I have to say I've got I think I've gone over this with an Australian in the past. But my favorite part of it is that you take the H and you turn it into a word that sounds like haitch. So it's almost like, hey, YH a Yech, maybe. And then it says like, hey, H, HB, HB. So it's H A, I think it's ha why. Maybe see hy CH and then B, B, E, and then and then you put the, you put the one in front of the A. So you go HB one a one C, which is backwards. It's a once it's absolutely delightful. I'm I swear to you, I don't know why you're single. But if Kelly dies, I'm coming and finding you for sure. And by the way, she's on a flight right now overseas, so All right.

Stacey 1:02:31
Well, look, the man you know about diabetes. You know, you're very welcome.

Scott Benner 1:02:38
I would totally be a catch for a 50 year old type one wasn't?

Stacey 1:02:43
Absolutely.

Scott Benner 1:02:45
I never thought of it that way. I'm gonna have no trouble dating if this plane crashes.

Stacey 1:02:52
Well, Kelly,

Scott Benner 1:02:54
Munich right now texting me from the airport. So she had to go to she had to go to Paris for work. And she's she's on our way back. Her life is horrible. Very tough. As you can tell. Yeah.

Stacey 1:03:06
It sounds a constant struggle.

Scott Benner 1:03:12
But okay, so let me make sure. Is there anything we haven't talked about that I should have? The one thing you thought you put in your notes about growing up in a Greek family, like you said it like that means something. So let me first ask you the obvious question. Your favorite actor is John Stamos. Right.

Stacey 1:03:35
George Clooney Clooney.

Scott Benner 1:03:36
Okay. All right. I just thought

Stacey 1:03:39
you know, John Stamos is pretty hot. And he doesn't even look like he's nearly 60. But George Clooney is just Ah, he's holding up. Ah, he's amazing. Yeah. Like, what's planning is my favorite actor. Did I write John Stamos?

Scott Benner 1:03:54
No, I just assumed because of

Stacey 1:03:56
the Greek well, because he's great.

Scott Benner 1:04:00
And you have the mind big. You have My Big Fat Greek Wedding on like VHS and DVD, right?

Stacey 1:04:05
Correct. Yeah, absolutely. I do.

Scott Benner 1:04:10
Wait a minute. Do you really?

Stacey 1:04:12
I do. I've got it on DVD. I don't know about VHS. But I do have it on DVD. Yes, I do. But my

Scott Benner 1:04:19
powers of generalization are amazing.

Stacey 1:04:23
You stereotype me too.

Scott Benner 1:04:25
It's so easy. I don't I always say to people, like you know, stereotypes are wrong. And I was like, Oh, okay. They're also incredibly accurate. So how do you think I jumped to so many conclusions while I'm making the podcast and I'm always right. Always right. Even even with the spider and I'm like, oh, spiders are terrible, right? She's like, Well, yeah, there was one of my toilet. I was like, yeah, see? I'm right about that. Anyway, okay, so Well, no, now that I've heard you say that I don't think I'm a good replacement then. As a mate because if you're looking at George Clooney, I don't think I'm on the same. Not exactly on the same scale as him. You don't I mean

Stacey 1:05:09
I think all the women look at George Clooney like that. I don't think it's just me.

Scott Benner 1:05:13
I believe I look at George Clooney like that. So handsome man. Like you're me. I'd hit two by the way.

Stacey 1:05:22
Oh, yeah. Brad Pitt's. Alright. Yeah,

Scott Benner 1:05:24
we don't love Brad Pitt because he's his features aren't dark enough for you? Hmm.

Stacey 1:05:28
Um, I don't know. I don't know what it is about threat. Brad Pitt. He's no he he's just got on the i But here's something about Clooney. I know. Do you really devastated when he married that woman that he married?

Scott Benner 1:05:43
That woman? Woman that pulled them out of the dating pool. I was so close.

Stacey 1:05:50
Oh, it was like lice. You've got no idea. Scott. Isn't she no idea. Isn't she like

Scott Benner 1:05:54
a genius and an attorney and like nine other things?

Stacey 1:05:59
And like 10 or 20 years younger than me? Yes. She is. My age.

Scott Benner 1:06:03
Is she really younger? Yeah, she's

Stacey 1:06:06
younger than him.

Scott Benner 1:06:07
Oh, I guess if I was George Clooney, I'd get a younger

Stacey 1:06:11
show.

Scott Benner 1:06:14
Hey, have you ever seen Brad Pitt's brother in anything?

Stacey 1:06:19
Nine. Has he got a brother? Yes.

Scott Benner 1:06:21
Do you don't know. Stupid? No, no. No, stupid. No, no.

I believe I think this episode's gonna be called stupid.

Stacey 1:06:37
I dare you to do that. That'd be so cool.

Scott Benner 1:06:44
Meanwhile, the people from AMI Potter like call it on the pods available in Australia. But yeah, yeah, call

Stacey 1:06:50
it that Oh, call it fun the pod stupid. Stupid though. We can hashtag the Prime Minister's?

Scott Benner 1:07:03
Well you can do that anyway, you don't think they'd be like, Why am I listening to something called stew kit? Also, after all this, they they're probably not even inclined to help you. But just like this why? Exactly right. Now, I mean, seriously, it's it's great to bring awareness to it. Because I mean, it's just, it's obvious, right? Like, people need choices. And they need options. And they need to feel like I mean, it took it. You didn't even know you were hopeless. I think if I'm if I'm understanding your story correctly, like you didn't real I don't imagine you knew when you got an insulin pump, that you would feel the relief that you felt.

Stacey 1:07:45
No, no, absolutely not. I I don't even know. I didn't even think about how I would feel. All I thought about was I can control my hormones in regards to my periods. My ovulation, perimenopause, menopause, that's all I thought about. And then when my diabetes educator said, put it on your arm, and this is it. I went back to work. And I was in a daze. I was walking around the office and people were saying to me, are you okay? And I'd look at them. I said, Yeah, but I've got this thing on my arm. And I'm just, I'm just trying to come to terms with it. I don't really know what's going on.

Scott Benner 1:08:26
Yeah, so it's weird enough to put something I hear people say all the time, like, especially about their children. Like a lot of people with newly diagnosed kids. Like I don't want to stick something on my kid. And I'm like, you listen, the pros are gonna far outweigh the cons. Just go for it, you know. So after you get past that feeling, like you, you describe, like actual elation, about not having to and I assume there was there was that and then the sadness of not like, I assume you wanted your father to be able to experience that too. So he wouldn't have to feel as badly for you or worry about much. Yeah, yeah,

Stacey 1:09:02
yeah. Because I told my mom, and my mom's nine, turning nine to one. So she was 90 at the time. And I don't think she really comprehended what I've done or what this means. And all she said to me, in her Greek accent once, good luck. And I just looked at her and I'm like, I don't think she understands what this actually means. Yeah, for me, and even though I tried to explain to her don't have to do an injection again, in Greek or send it to her. I still don't think she totally grasp what it actually means was with my dad, because my dad did everything. He injected me. He used to chase me around the house and I used to be crying my eyes out. So he wouldn't give me an insulin shot. I just would scream and yell and you know, he was 41 when I was diagnosed, and he aged within six months of me being diagnosed And he experienced it all he, he did it all. So the fact that he wasn't here, it broke me. It actually broke me because it would have been something I wanted to share with him and set him dead. Look, it's not a cure, but it's like a cure. I feel cured. And he would get it. Most mum didn't understand it.

Scott Benner 1:10:22
Do you think if she was younger, she would have understood or even Yes, yeah. But my mom ad and there are times where she responds to things. And I think I don't even think she means that. Like, I don't even know that she has an opinion. Sometimes I think she's just working off the last thing that she remembers. And yes, you know, it's just it's tough getting older, but I understand what you mean. Like you didn't you lost out on telling your father and then telling telling your mom was anticlimactic and not very fulfilling? Right? Well, you told me and I understand what you're saying. And I'm thrilled for you.

Stacey 1:10:57
All Thank you.

Scott Benner 1:10:59
Not the same, but you know,

Stacey 1:11:02
no, but and that's the thing. And, you know, like I've had people when I brought it in my pods, and I've had friends that follow me, you know, there were friends that have asked me about it. And they get just as excited because they used to see me in a restaurant, pull up my top, calculate my car, because I'm by carbs, I follow my macros strictly not for my diabetes, follow up for weight loss. And because I lift weights, but they used to see me lift up my shirt or my dress and just inject and, you know, one of my closest girlfriends, she she's just as excited as me, because she just looks at the PDM she says that it every time is 30. And I'm like, Yeah, that's it. That's all I have to do now. And it's just the best best feeling. And then, you know, I've got a sister and a brother and a brother in law and a sister in law, my sister in law is a type one diabetic as well. And she's obviously married to my brother, and their son is a type one diabetic also now, and I was telling them and they didn't. None of them got excited. And that's because it was taboo. We made it taboo to talk about it because I didn't want to talk about it slot. I told no one I traveled overseas and I didn't tell the people I was traveling with that I was a diabetic.

Scott Benner 1:12:19
You know, and now you're willing to talk about it. And well, that's good, because they'll figure it out from watching you at some point too. Yeah. All right. Yeah, they absolutely will. And that and you'll end up helping them as well. Also the way you say Tebow was amazing.

Stacey 1:12:35
To me.

Scott Benner 1:12:39
Sounds like a city and Star Wars. Lovely. Taboo. I mean, it's fantastic. I listen, I can't say water. So you know, whatever. But now that's a lovely story. It really is. We mixed it in with a lot of insanity. But I think it's, it's a really lovely, lovely story. And, yeah, I think it's important. So you're gonna keep going. I imagine if you can get on the pod five one day you will?

Stacey 1:13:14
Oh, absolutely. I'm first in line. I've told insolate in Sydney, as soon as it comes out, you're going to ring me you're going to tell me I'm going to be there. We're going to do this. I don't want to wait any longer than what I had to wait for the Omnipod because we had to book in, go through the diabetes educator. And you know, it went on a little bit too long, but that's okay. I'm there I'm first I'll be you'll see me on the news in America going there's a crazy girl running around Australia. She got the Omnipod five that'd be me.

Scott Benner 1:13:43
Listen, I don't know if it's inappropriate to say but the one thing I don't like about this Omnipod story is that now they're not fit women pulling up their dresses in restaurants anymore. I mean, I think that's a downside if I'm being honest.

Stacey 1:13:59
Probably is but hey,

Scott Benner 1:14:00
how was How was lunch? Jim? I was good. I had a burger and some girl put her dress up it was fantastic. I don't know what the hell she was doing but you know me it made the wait for the French fries easier

you don't have french fries never. What was even had French fries in Australia. Of course you do. Right? Yeah, we

Stacey 1:14:25
have french fries in Australia. But I was so discreet Scott people didn't even know that I did it half the times.

Scott Benner 1:14:32
No, I know. I know you get really good at it. I actually when you notice people doing it in public. I sometimes think I only notice it because I know what they're doing. And right and they're there so like, alright, I'll just like Ninja like about it that I don't think anyone else sees it but but somebody else who knows about it, you know? So

Stacey 1:14:56
yeah, I remember the first time I did it at a restaurant with one of my My closest girlfriends, she had never seen me do it before. And she went into complete meltdown. She calls the scene at the table. Really? Yep. She calls the scene. Oh my god. What are you doing? Why are you doing that here? Can't you go to the toilet? Why does it have to be here? Are you embarrassed?

Scott Benner 1:15:19
Oh, she's Uh oh. Oh, yeah, I almost used a bad word.

Stacey 1:15:25
You should have called Don't worry about that. I don't know how I have managed to speak to you without dropping a few bombs there. But yeah. You go to the toilet? What do I have to go to the toilet? You go to the toilet. And

Scott Benner 1:15:40
that's, I never understand that. That reaction, like if someone like it's the tiniest bit of common sense to look at a person and go, Wow, that's a lot for a person to have to do. I'll be flexible here. You know, even if it bothers me, Hey, real quick, the bad word that you were thinking of for her say it and I'll bleep it out. And then we'll see if it's the word I was thinking. Go ahead. Oh, I was thinking, no, no, I can't say my word.

Stacey 1:16:08
You should use Alright, tell me what it started then I'll say it just blanked me out.

Scott Benner 1:16:13
I was thinking, Oh, my God. I was thinking, actually.

Stacey 1:16:19
No, that's one word. I don't use God. Unless I'm in the car by myself. And you drive like a maniac. You're gonna cop that word, but in front of people. I do not say that word. I try not to

Scott Benner 1:16:30
know. I don't think I obviously wouldn't either. I could barely get it out. But I'm just thinking like, doesn't it? Does the British connotation of that word. Is that the same? As in Australia, like the vibe of what that word means? Yes, yes. So then it would fit in that spot. Right. But it wouldn't have the American feeling of it?

Stacey 1:16:50
No, because what's the American feeling of it? Do you guys use it differently to us?

Scott Benner 1:16:55
I think here, it's just a it's just a vicious word about women. Whereas I think I think in like in England, Australia, it's more about like the way you would like if you saw somebody just being a, like, an A jerk you like you'd almost call them like a dick here, I think yes. Right. Correct. Yeah. But yeah, I don't know. I love when a person with an accent uses that word correctly. I find it to be delightful.

Stacey 1:17:26
So we use it pretty much together with the other word that I said.

Scott Benner 1:17:31
Oh, which one goes? So hold on. We'll just bleep this out. Is it? It's not like you don't just put them together, right?

Stacey 1:17:39
Yeah, we do. We absolutely do. What do you think? Oh, like

Scott Benner 1:17:42
that. That's beautiful. That's fine. bleep that

Stacey 1:17:45
out. Leave it in let people hear I can't

Scott Benner 1:17:47
I can't leave that enter. I lose my clean reading and I are an apple will take me out of certain countries. Oh, you better bleep it out. No, I believe it out. But I love it. Although, although I got a very passionate note from a woman here, we'll end on this. Let me take a drink Hold on. I got a very I use the word. So I left the word fun in an episode by mistake during during the editing process, and then the very next day, I did it again. So for two I don't know what was wrong with me that week when I was editing, but I missed the word twice in in concurrent episodes, I'm making so much editing for myself right now. And and so I immediately realized that and I took them out. And I went to the Facebook group just to share with people Hey, like, you know, I missed a couple I'm sorry. And I titled the Facebook post, I gave to by mistake. And then I just explained, you know, in this episode in that episode, but it's been fixed. And if you're scared, you're gonna hear it, delete the episode and redownload it you should get a clean copy. But some people's players don't replace copies when I put them up. There's nothing I can do about that, blah, blah. And I just explained it out. Like I really wanted people to know if you don't want to hear it. Like, here's a way you could possibly get ahead of not hearing it. And I got a very passionate note from a woman who told me how much the podcast has helped her. How amazing it's been for her health, but that she was not going to listen anymore. And I was like, wait, what? Because at first I thought, well, that's strange. You know, do you mean like, like, if it's helping you that much like you're gonna give away your good health or your happiness or whatever for for this. But yeah, like it meant that much to her. So I responded back to when I said, Listen, that was an honest mistake. I didn't just leave it in there on purpose. Like I genuinely made a mistake and I didn't take it out. And then she responded back and she said, Well, I'll think about it. And I was like, Okay, well, she's like mistakes do happen. I was like we are being very serious right now and about something that she obviously felt very strongly about that. It's was interesting to me. Because I don't think twice about it. Like I wouldn't if I if this wasn't a clean rated show, I would be cursing a lot more. You know?

Stacey 1:20:09
100% I get you it's it's part of our vocabulary vocabulary, but at the end of the day, she's got what diabetes and you can't say the words. What come on all the time because it frustrates us.

Scott Benner 1:20:22
Do you think she does? Yeah, obviously my I'm going to spend an extra half an hour cleaning up this episode, but that's not the point. And we're in this far now. You know, In for a penny in for a pound. Which I'm sorry. I'm sure George Bush would have said in for a nickel buy me $1. So But alright, so do you want to stay? So we're done. But do you want to stay with me for a second while I find the George Bush thing? Yeah, no worries. Okay. Because you gotta go to bed. Oh, don't

Stacey 1:20:54
worry about it. I normally get up at this time to change my pod.

Scott Benner 1:20:58
Why is that happening? Because

Stacey 1:21:01
because we pay $400 SCOTT I use it up until the ADL was a finish.

Scott Benner 1:21:05
Oh, you stretch it out as far as you can. Yeah,

Stacey 1:21:09
absolutely. And if I have to get up at one o'clock two o'clock in the morning, then I'm gonna do that

Scott Benner 1:21:16
Alright, hold on a second. Let me see if I can pick this up on the microphone.

Speaker 3 1:21:19
There's an old saying in Tennessee I noticed the Texas Property boom it was shamoon.

Stacey 1:21:40
He was a bit muffled but I heard that last week. You for me for me. What did he say?

Scott Benner 1:21:46
He starts out he goes there's an old saying in Tennessee. I know it's in Texas, probably in Tennessee that says Fool me once. Shame on shame on you. Fool me. You can't get fooled again. By the way, is that not like a Led Zeppelin? Or, or Pink Floyd? Lyric?

Stacey 1:22:10
I don't know because I don't listen to them. You can't get fooled

Scott Benner 1:22:13
to get what is that? How are you not going to be helpful for me? Now if I need to know this?

Stacey 1:22:18
I don't I don't listen to Led Zeppelin or Pink Floyd.

Scott Benner 1:22:23
Well, I'm a girl. You're a girl. It's the who by the way. I've added myself as not knowing my 67 days rock won't get Won't Get Fooled Again is is that who song? So in my heart, I believe that he started into this. forgot he was in Texas, first of all, said Tennessee. Right. And then it's fantastic. And then he starts into the saying gets lost and finishes with who? Lyric? It's brilliant. Absolutely. Absolutely brilliant. It's just one of the best gaffes I've heard in my entire life.

Stacey 1:23:01
Anyway, know that when we get off, I'm gonna go and google it suck and listen to it properly. Yeah,

Scott Benner 1:23:06
well, and I will. I'll find them mp3 And I'll drop it in here. So it's, that's got to be public domain. I'm sure I can put that in here. So all right. Well, Stacy, you were a lovely, thank you so much. I appreciate you doing this very much.

Stacey 1:23:18
Oh, no, thank you. And like I said, I don't even remember why I contacted you. But I'm really glad we had the conversation was just, yeah, you've made me laugh, like you're always doing it's, it's been great. It's really good. And, you know, you just have to know what, what a difference you make to people with type one diabetes, then for someone who's lived with for 43 years, and like I said, you know, you think you know it or and then I'm listening to you. And I've learned so much. You know, I take my hat off to you. It's just amazing. And I can't thank you enough.

Scott Benner 1:23:50
That's my pleasure. And it's very nice of you to say that. Thank you. I also think that you added something today to the podcast. That story about your father, I think is going to resonate with a lot of people. And so I was very nicely to share it. And I know it must not be easy to talk about.

Stacey 1:24:07
Yeah, no, look, I love talking about my dad. Sometimes I get really emotional. Sometimes I'm okay, like today I held it together. But he was yeah, obviously. He's a little girl. I was the youngest. I am the youngest. So I was definitely daddy's little girl and you know, a Greek man whose daughter is diagnosed with a disease that would never be cured. You know, that hit him hard. And he took me everywhere to get me cured because he couldn't understand that. So, you know, my dad means a lot to me and I miss him like hell every day. But it's these little things that I want to share with him and our car. And I have to talk to myself in my house going Dad, can you hear me Shut up. We look among the Omnipod and it's just not the same. To actually hear him say well done. You know, I'm so proud of you just to give me a cuddle

Scott Benner 1:24:59
a lot You've never heard him answer you have you have never well, you've never heard him answer you have you?

Stacey 1:25:06
Um, I haven't heard him answer me. But I have felt him. I know you're being facetious. With me right now he's

Unknown Speaker 1:25:16
got some serious I had to stop.

Stacey 1:25:20
No, I haven't heard him answer me. But I have failed to hear. And I know that he's here with me.

Scott Benner 1:25:25
That's wonderful. Good. I'm glad he sounds like he was a terrific father. And I understand why you missed him so much.

Stacey 1:25:31
Yeah, he was like you the way you look after Aidan, that was my dad, no, maybe a little bit strict on my dad, because he was great. But the way you look after Aiden, I just sit and I hear you when you talk about her, and you tell her what she needs to do, and she ignores you. And you know, you look at her at the sensor and where she's at. And you tell her how much to give herself and all this stuff. It's like, there's so my dad used to do with me, just of course, with syringes and vial, insulin, you know, glass vials of insulin. And yeah, it's, you've, you've done a terrific job to see, you need to be proud. And you've helped a billion of us if not more, you know, that, you know, type one diabetes is? It's, I don't want to say it's a crappy disease. It is a crappy disease if you let it be a crappy disease. But it's the people that look after you who are think with the most of you, it's harder for them than it is for the individual.

Scott Benner 1:26:31
You know? Yeah, I think that there's a perspective both ways that's valuable for people to understand. I think that parents can not sometimes completely appreciate what it's like for kids. And I think the kids don't appreciate what it was like for the parents. And I'm always happy when I talked to adults who were kids with type one. And they have that realization about what it must have been like for their parents. I think it's I think it's a nice closing of a circle.

Stacey 1:27:01
Yeah, absolutely. Do you know, I blamed my dad, one day, we'll fighting and I turned, and I knew what I was saying wasn't the right thing. But I actually said to him, I said, it's because of you have got diabetes. And that was the worst thing I could have said to him. And his heart broke in front of minnows, a little teenagers, a little beach. And I just walked away. I had no care in the world that I had just heard my father. And then like, now, as I got older, and once I lost him, I've apologized profusely to him going, I was a beach. I'm sorry, I was a real bitch. What can I say? I shouldn't have said that to you. But that's what I said to him. Because I was hurting.

Scott Benner 1:27:36
I think, in every scenario without with or without diabetes, at some point, a child is gonna say something hurtful to their parent and the parents are, you're not ready for it the first time it happens. But if you're, if you're thoughtful about it, and sounds like your dad was like, I'm sure he realized you didn't mean that. So I wouldn't beat yourself up about that at my kids have said stuff to me. And I'm like, Oh, well, it's a good thing. I gave up my whole life to make you. Great. It's really feels all worth it right now. Thanks a lot. And then I look back, and I'm like, you know, my mom tried to plan a surprise birthday for me. I don't remember how old I was. And I somebody, like ruined the surprise. And I was uncomfortable with the idea of people gathering to like, celebrate me. And instead of instead of telling my mom that I yelled at her, and and I made her cancel the party, and I felt bad about that my entire life. But you know, I didn't mean anything by it. It was a it was a reflection about how I felt about myself not about what she was doing. Yeah, of course. And you guys listen to the podcast, even though I tried to joke my way through it, I'm still incredibly uncomfortable. With it like that. You just said a lot of lovely things that I'm pretty sure if I was completely healthy, I would accept in a better way. And I just did. Because, you know, intellectually, I think I'm more than aware of what the podcast does for people. And I know, I know, when you reach numbers, it, it feels. I mean, listen, it's if you help one person, that's an amazing feat. And I have, you know, I'm not saying you have to help 10 people for it to be amazing. But there is the you know, there's something that happens when you reach millions and millions of downloads that you recognize that if this is your story, or if someone's talking about how the podcast helped them that there are other people like that. And so I do my best to absorb them. You know, there was a there's a great review that came a couple days ago from Great Britain. And the person just said that, that I'm making the diabetes community stronger, and improving and improving people's lives and I try really hard to accept that like I, I've, I put it on my desktop so that I could try to not be uncomfortable with it. Yep, you know,

Stacey 1:30:01
and you should accept it. And it's like when people give you a compliment you people don't know how to take it. And, you know, you respond like, Yeah, whatever or okay, and you never say thanks for the compliment. It's the same. It's because we're just doing what makes what feels good for us. And we're hoping other people, but we don't expect people to thank us for doing something that we enjoy doing, because you're doing this because you enjoy it and for your daughter for Aiden, so you don't expect to get recognition. So when you do it does feel like weird. It's like, oh, okay, cool. No worries. Thank you. Yep. All right, and you make a joke out of and that's fine. But, you know, I'll keep telling you, I'm gonna keep writing now messages on your wall, and I'm gonna send you messages on Instagram and get you the best. You're the best.

Scott Benner 1:30:47
Thank you. Very nice. Thank you. Hey, listen, I feel horrible saying this at the end that I've contemplated not saying it but it's art and not Aidan.

Stacey 1:30:55
Oh, gosh, why did we go back and rerecord these I have to change your name to

I you serious, you let me go a whole hour and you didn't tell me. Jesus

Scott Benner 1:31:14
was having too much fun. And by the way, I think she was like that you don't know her name. Like that. It's not stuck. Like she. Like every time she comes on the podcast, I get a text that says your people are following me on Instagram. Can you tell them to stop? And I was like, I mean, not individually. I don't know how to do that. I was like, Don't I'm like your private. Like, just don't follow them back. And she's like, I don't know. Like okay, so but I love her. She calls them my people. She's like your, your people. Oh, by the way. If you haven't seen it yet, someone turned me into a Christmas ornament. Wait on Etsy, Etsy, Etsy. How do I say Etsy? Etsy? Etsy? Yeah, they're like, like wooden clothes pins in felt clothing with a Juicebox Podcast shirt on holding a Dexcom receiver. And it's, it's, I gotta tell you, it's it's amazing. And it's freaky at the same time. Like, like, I got a text from Isabel and she goes, I work for for a Christmas ornament. I said, you don't work for me. I don't pay you. She goes, You know what I mean? And, but it's, it's, it's amazing. Like, you have to find that it's on my Instagram right now. So you can go look when you're done. But he has someone turned me into a Christmas ornament. And I was touched by it. Like I really was. I thought, when I first saw it, I thought I must really reach farther than I think because this is this isn't this is an interesting thing for someone to do. And then I showed my son he goes, Yo man, one of these people is gonna murder you.

Stacey 1:33:05
That is so true.

Scott Benner 1:33:08
It was like what he goes that some serial killer right there. He's like, Look at this. And it was just one of them. But then I I let her like I let her put it up on the Facebook group. And I guess people ordered them. So then she sent me a picture of like, eight of them together. I was like, oh my god, people are buying these. And then I got then Stacey, I had this thought I was like, she better send me one. And I don't want to have to ask for it. You know what I mean, Stacy, like somebody better just reach out to me and say, How do I get you one of these? Because I'm not taking any cut of the sale? And I think she's charging like over $20 for them.

Stacey 1:33:41
She better get on flow, or get on? Maybe she

Scott Benner 1:33:48
No, I'm not gonna tell you. But I would love I would like out. Do you know if I hung this on my Christmas tree? It's possible my family would burn the tree.

Stacey 1:34:01
Then the trade down will disown you.

Scott Benner 1:34:03
A woman asked me yesterday. She's like, how do I use these if I'm Jewish? And I said I would use a pipe cleaner and have it hanging off the menorah candle. I think it would be amazing. Anyway,

Stacey 1:34:14
all right, please like you wait and see what I'm gonna do on the face on your Facebook page.

Scott Benner 1:34:20
Yeah, I mean, it has not been offered yet. Maybe she's just doesn't want to impose. But I mean, at this point, I'd like one. And I like I like that. She made me thin too. I think it's fantastic.

Stacey 1:34:31
Can you Did you hear that? That was my Dexcom going off.

Scott Benner 1:34:34
I heard that. It's trying to tell you there's a shark coming?

Stacey 1:34:36
No, see, he always goes up at this time.

Scott Benner 1:34:41
Your blood sugar goes up at this time of night always.

Stacey 1:34:43
Yeah, we've just hit 10.3 Why don't you

Scott Benner 1:34:47
set a Basal rate an hour before when it usually goes up and try to stop it.

Stacey 1:34:52
Because I've been monitoring it and I've just increased all my Basal rates and it's still like it's just gone up and I don't understand why

Scott Benner 1:35:00
Alright, listen, I hear what you're saying. i It's maddening. It is maddening.

Stacey 1:35:07
It's frustrating. We took

Scott Benner 1:35:09
art into college. Her settings were rock solid. I have no idea what happened. But suddenly her settings were way too strong. We had to cut them in half like no lie her Basal went from like one or 1.1 an hour to like point six, her insulin sensitivity from 42 to 70. And then four or five days later, her blood sugar started going up again. And so we we were scared to like I was scammed We Who the hell's Wait, it was me. I didn't want to my talking about. And so I didn't want to put it all the way back up because I got scared. So I kept moving it up incrementally. And finally, like two nights ago, I texted and I was like, hey, FaceTime me and share your screen with me. I'm like, we're putting every one of your settings back to where it was before you got to college. And we put them all back and last night and today we're finally back to what we were used to looking at. So I and trust me if she was here, I would have done it quicker. But there were so many new things happening. I was a little happier for it to be higher than lower while we were figuring stuff out. So she had a really bad time of the first few weeks of school. Okay, because because of a roommate thing, which I don't think I'm gonna be able to talk about on here. But yeah, things are kind of getting better now. So

Stacey 1:36:25
anyway, all right, as long as they are getting better. That's all that matters, Stacy. I

Scott Benner 1:36:29
gotta go. I gotta jump in the shower because I'm interviewing a guy from Dexcom in an hour and a half about the g7.

Stacey 1:36:34
Isn't he lucky? All right. Well, I can't wait to hear that one as well. Thanks. Thanks. You

Scott Benner 1:36:38
have a great night.

Stacey 1:36:39
Thank you. So you

Scott Benner 1:36:47
What did I tell you about Stacy? absolutely delightful. You know what else is delightful? Omni pod Omni pod.com forward slash juice box index. Com dexcom.com forward slash juice box. Have you checked out touch by type one they sponsored today's episode? Give them a shout. Touched by type one.org Find them on Facebook and Instagram. Actually, you can find on the pod Dexcom there too. But it's better if you click on my link. I mean, by better I mean, for the podcast and for you because you can't really order something through Instagram. Alright, I think I've been clear. Anyway, I love this episode. I hope you did too. Now hurry up and go Google Brad Pitt's brother Stewart. I don't really think he's a real person. If you enjoyed this and you think you would enjoy having some community support, find the Juicebox Podcast private Facebook group that now has almost 40,000 members at it. Juicebox Podcast type one diabetes, I don't care what kind of diabetes you have. I don't care how you eat, head over there for support community and friendship Juicebox Podcast type one diabetes on Facebook, a completely private hang completely free Group. If you've enjoyed this podcast, share it with someone else who you think might also enjoy it. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.